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30 blog posts in 30 days for Cushing's Awar eness. Learn more at \;https://cushieblog .com/2016/03/19/fifth-annual-cushings-awareness-challenge/
CATEGORIES:Cushings UID:20160427T1426140Z-549422-2@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 1: Cushing’s Awareness Challenge 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20210401;BYMONTH=4;BYMONTHDAY=1 DTSTART;VALUE=DATE:20160401 DTEND;VALUE=DATE:20160402 DESCRIPTION:April is always Cushing’s Awareness Challenge month because Dr. Harvey Cushing was born on April 8th\, 1869. https://cushieblogger.com/20 18/04/01/day-1-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:April is always Cushing&rsquo\;s Awareness
Challenge month because Dr. Harvey Cushing was born on April 8th\, 1869.
https://cushieblogger.com/2018/04/
01/day-1-cushings-awareness-challenge-2018/
March 30\, 2007
It may not have
been adrenal crisis\, but it may have\, as Renea\, after her BLA\, didn't
need replacement. She hadn't taken hydro for some year(s)\, and yet her c
ortisol was always '0'. The doctors would just scratch their heads.
Read more at \;https://cushingsbios.com/2022/03/30/in-memory-alena-renea-week s-greenhill-march-30-2007-2/
CATEGORIES:In Memory UID:20220330T1315150Z-549422-4@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 2: Cushing’s Awareness Challenge 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20190402;BYMONTH=4;BYMONTHDAY=2 DTSTART;VALUE=DATE:20180402 DTEND;VALUE=DATE:20180403 DESCRIPTION:Give yourself\, your condition\, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus poin ts if you provide a visual! Read more at https://cushieblogger.com/2018/04 /02/day-2-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:Give yourself\, your condition\, or your he alth focus a mascot. Is it a real person? Fictional? Mythical being? Descr ibe them. Bonus points if you provide a visual!
Read more at \ ;https://cushieblogger.com/2018/04/02/day-2- cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180402T1521460Z-549422-5@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Print Your Own Cushing's Brochures DTSTART;VALUE=DATE:20160502 DTEND;VALUE=DATE:20160503 RRULE:FREQ=WEEKLY;UNTIL=20200403;INTERVAL=2;BYDAY=MO DESCRIPTION:Robin suggested this at the Pittsburgh Cushing's Dinner. These are the ones I gave out at the dinner and send out with the awareness brac elets. I print them on special tri-fold brochure paper and that works out well. I do update these after each meeting\, when I have new pictures\, so if you print them out\, check back now and then for the latest copy smile .gif Newest version has a Columbus\, OH picture Print your own Cushing's b rochures at http://www.cushings-help.com/downloads/brochure.pdf X-ALT-DESC;FMTTYPE=text/html:Robin suggested this at the Pittsburgh Cush ing's Dinner.
These are the ones I gave out at the dinner and send out with the awareness bracelets. I print them on special tri-fold brochu re paper and that works out well.
I do update these after each mee ting\, when I have new pictures\, so if you print them out\, check back no w and then for the latest copy smile.gif
Newest version has a Colu mbus\, OH picture
Print your own Cushing's brochures at \; http://www.cushings-help.com/downloads/brochure.pdf
CATEGORIES:Cushings UID:20160427T1428550Z-549422-7@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Add or update Your Bio DTSTART;VALUE=DATE:20160403 DTEND;VALUE=DATE:20160404 RRULE:FREQ=WEEKLY;UNTIL=20301203;BYDAY=TU DESCRIPTION:Please add your bio. Your information will help others. I would like to add that if anyone would like to do something for the Cushing's A wareness Challenge but you don't have (or want to have) a blog\, why not c onsider adding your bio to the website this month? More info at https://cu shingsbios.com/2024/10/28/we-have-a-new-bio-form/ X-ALT-DESC;FMTTYPE=text/html:Please add your bio. Your information will help others.
I would like to add that if anyone would like to do s
omething for the Cushing's Awareness Challenge but you don't have (or want
to have) a blog\, why not consider adding your bio to the website this mo
nth?
More info at \;https://cush
ingsbios.com/2024/10/28/we-have-a-new-bio-form/
Harvey Cushing (1869-1939) is considered to
be the father of modern neurological surgery. In the early part of the 20
th century\, he developed basic techniques and instruments for operating o
n the brain and\, as a result\, founded the discipline as a distinct surgi
cal speciality. Before Cushing began his career\, brain tumours were consi
dered to be inoperable\, and the mortality rate for any surgical procedure
which involved opening the skull was around 90%. Early in his career\, Cu
shing dramatically reduced the mortality rate for neurosurgery to less tha
n 10%\, and by the time of his retirement in 1937\, he had successfully re
moved more than 2\,000 tumours.
Read more at \;https://cushings-help.com/2025/04/08/its-harveys-birthday/
The above is the official Cushing's path to a diagnosis but here&rsquo\;s how it seems to be in real life...
Read more at \;https://cushieblogger.com /2017/04/05/day-5-cushings-awareness-challenge-2017/
CATEGORIES:Awareness Challenge UID:20170405T1327540Z-549422-11@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 29\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300429;BYMONTH=4;BYMONTHDAY=29 DTSTART;VALUE=DATE:20180429 DTEND;VALUE=DATE:20180430 DESCRIPTION:In 1983 I came across a little article in the Ladies Home Journ al which said: “If you have these symptoms…” I found the row with my sympt oms and the answer read “…ask your doctor about Cushing’s”. Read more at h ttps://cushings.invisionzone.com/topic/56891-day-29-cushing%E2%80%99s-awar eness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:In 1983 I came across a little article in t he Ladies Home Journal which said: &ldquo\;If you have these symptoms&hell ip\;&rdquo\;
I found the row with my symptoms and the answer read &ldquo\;&hellip\;ask your doctor about Cushing&rsquo\;s&rdquo\;.
R ead more at \;https:/ /cushings.invisionzone.com/topic/56891-day-29-cushing%E2%80%99s-awareness- challenge-2022/
CATEGORIES:Awareness Challenge UID:20220429T1306210Z-549422-12@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20180406 SUMMARY:Day 6: Cushing’s Awareness Challenge 2018 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190407;BYMONTHDAY=6 EXDATE;VALUE=DATE:20190406 DESCRIPTION:Uh\, Oh – I’m nearly a day late (and a dollar short?)…and I’m n ot yet sure what today’s topic will be. I seem swamped by everything late ly\, waking up tired\, napping\, going to bed tired\, waking up in the mid dle of the night\, starting all over again…and my DH was recently diagnose d with cancer which makes everything more hectic and tiring... Read more a t https://cushieblogger.com/2018/04/06/day-6-cushings-awareness-challenge- 2018/ X-ALT-DESC;FMTTYPE=text/html:Uh\, Oh &ndash\; I&rsquo\;m nearly a day la te (and a dollar short?)&hellip\;and I&rsquo\;m not yet sure what today&rs quo\;s topic will be. \;I seem swamped by everything lately\, waking up tired\, napping\, going to bed tired\, waking up in the middle of the n ight\, starting all over again&hellip\;and my DH was recently \;diagno sed with cancer which makes everything more hectic and tiring...
R ead more at \;https://cushieblogger.com/ 2018/04/06/day-6-cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180407T1547080Z-549422-13@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 8: Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300408;BYMONTH=4;BYMONTHDAY=8 DTSTART;VALUE=DATE:20080408 DTEND;VALUE=DATE:20080409 DESCRIPTION:Today\, April 8th\, is Cushing’s Awareness Day. Please wear you r Cushing’s ribbons\, t-shirts\, awareness bracelets or Cushing’s colors ( blue and yellow) and hand out Robin’s wonderful Awareness Cards to get a d iscussion going with anyone who will listen. And don’t just raise awarenes s on April 8. Any day is a good day to raise awareness. Read more at https ://cushings-help.com/2025/04/08/day-8-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:Today\, April 8th\, is Cushing&rsquo\;s Awa reness Day. Please wear your Cushing&rsquo\;s ribbons\, t-shirts\, awarene ss bracelets or Cushing&rsquo\;s colors (blue and yellow) and hand out Rob in&rsquo\;s wonderful Awareness Cards to get a discussion going with anyon e who will listen.
And don&rsquo\;t just raise awareness on April 8. Any day is a good day to raise awareness.
Read more at \;https://cushings-help.com/2025/04/08 /day-8-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250408T1245260Z-549422-14@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 24\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300427;BYMONTH=4;BYMONTHDAY=24 DTSTART;VALUE=DATE:20160424 DTEND;VALUE=DATE:20160425 DESCRIPTION:In 1986 I was finally diagnosed with Cushing’s after struggling with doctors and trying to get them to test for about 5 years. I was goi ng to go into the NIH (National Institutes of Health) in Bethesda\, MD for final testing and then-experimental pituitary surgery. I was terrified an d sure that I wouldn’t survive the surgery. Read more at https://cushieblo gger.com/2021/04/24/day-24-cushings-awareness-challenge-2021-2/ X-ALT-DESC;FMTTYPE=text/html:In 1986 I was finally diagnosed with Cushin g&rsquo\;s after struggling with doctors and trying to get them to test fo r about 5 years. \; I was going to go into the NIH (National Institute s of Health) in Bethesda\, MD for final testing and then-experimental pitu itary surgery.
I was terrified and sure that I wouldn&rsquo\;t sur vive the surgery.
Read more at \;https://cushieblogger.com/2021/04/24/day-24-cushings-awareness-challen ge-2021-2/
CATEGORIES:Awareness Challenge UID:20220424T2210010Z-549422-15@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 9: Cushing’s Awareness Challenge 2017 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200409;BYMONTH=4;BYMONTHDAY=9 DTSTART;VALUE=DATE:20160409 DTEND;VALUE=DATE:20160410 DESCRIPTION:If you believe you have Cushing's (or any other rare disease)\, learn what you can about it\, connect with other patients\, make a timeli ne of symptoms and photographs. Read\, take notes\, save all your doctors notes\, keep your lab findings\, get second/third/ten or more opinions. M ake a calendar showing which days you had what symptoms. Google calendars are great for this. Read more at https://cushieblogger.com/2017/04/09/day -9-cushings-awareness-challenge-2017/ X-ALT-DESC;FMTTYPE=text/html:If you believe you have Cushing's (or any o ther rare disease)\, learn what you can about it\, connect with other pati ents\, make a timeline of symptoms and photographs. Read\, take notes\, sa ve all your doctors notes\, keep your lab findings\, get second/third/ten or more opinions. \;Make a calendar showing which days you had what s ymptoms. \;Google calendars are great for this.
Read more at& nbsp\;https://cushieblogger.com/2017/04/09/d ay-9-cushings-awareness-challenge-2017/
CATEGORIES:Awareness Challenge UID:20170410T1517040Z-549422-16@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 29: Cushing’s Awareness Challenge 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250429;BYMONTH=4;BYMONTHDAY=29 DTSTART;VALUE=DATE:20160429 DTEND;VALUE=DATE:20160430 EXDATE;VALUE=DATE:20190429 DESCRIPTION: I was amazed to make it through the entire weekend with no Adr afinil – sadly\, there’s nowhere to get it anymore. I carried extra corti sol\, just in case. And slept all the way home on the train. Read more at https://cushieblogger.com/2018/04/29/day-29-cushings-awareness-challenge- 2018/ X-ALT-DESC;FMTTYPE=text/html:\;I was amazed to make it through the entire weekend with no Adrafinil &ndash\; sadly\, there&rsquo\;s nowhere t o get it anymore. \;I carried extra cortisol\, just in case. \;A nd slept all the way home on the train.
Read more at \;https://cushieblogger.com/2018/04/29/day-29-cushin gs-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180430T0116100Z-549422-17@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 11: Cushing’s Awareness Challenge 2017 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200411;BYMONTH=4;BYMONTHDAY=11 DTSTART;VALUE=DATE:20160411 DTEND;VALUE=DATE:20160412 DESCRIPTION:When Michael started having headache issues in middle school\, I had him tested for Cushing's. I had no idea yet if it could be familial but I wasn't taking any chances. It turned out that my father had also h ad some unnamed endocrine issues. Hmmm... Read more at https://cushieblo gger.com/2017/04/11/day-11-cushings-awareness-challenge-2017/ X-ALT-DESC;FMTTYPE=text/html:When Michael started having headache issues in middle school\, I had him tested for Cushing's. \;I had no idea y et if it could be familial but I wasn't taking any chances. \;It turn ed out that my father had also had some unnamed endocrine issues. \;H mmm...
Read more at \; https:// cushieblogger.com/2017/04/11/day-11-cushings-awareness-challenge-2017/
CATEGORIES:Awareness Challenge UID:20170411T1405020Z-549422-18@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 13: Cushing’s Awareness Challenge 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250413;BYMONTH=4;BYMONTHDAY=13 DTSTART;VALUE=DATE:20160413 DTEND;VALUE=DATE:20160414 EXDATE;VALUE=DATE:20190413 DESCRIPTION:So\, where did all this blue and yellow come from\, anyway? Th e answer is so easy and without any thought that it will amaze you. Read m ore at https://cushieblogger.com/2018/04/13/day-13-cushings-awareness-chal lenge-2018/ X-ALT-DESC;FMTTYPE=text/html:So\, where did all this blue and yellow com e from\, anyway? \;The answer is so easy and without any thought that it will amaze you.
Read more at \;https://cushieblogger.com/2018/04/13/day-13-cushings-aw areness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20240413T1349040Z-549422-19@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Testimonials DTSTART;VALUE=DATE:20160511 DTEND;VALUE=DATE:20160512 RRULE:FREQ=MONTHLY;UNTIL=20200412;BYDAY=2WE,5WE DESCRIPTION:Mary\, without your efforts\, many of us would be dead! I have 0 doubt of that. We have lost several along the way\, but even so\, becaus e of you\, they were able to connect with others and find support! It make s all the difference in the world. Read more at https://cushieblogger.com/ testimonial/ X-ALT-DESC;FMTTYPE=text/html:Mary\, without your efforts\, many of us wo uld be dead! I have 0 doubt of that. We have lost several along the way\, but even so\, because of you\, they were able to connect with others and f ind support! It makes all the difference in the world.
Read more a t \;h ttps://cushieblogger.com/testimonial/
CATEGORIES:Cushings UID:20160427T1615490Z-549422-20@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Kathryn McBride 'Bridie' Miller ~ May 1\, 2007 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300501;BYMONTH=5;BYMONTHDAY=1 DTSTART;VALUE=DATE:20070501 DTEND;VALUE=DATE:20070502 DESCRIPTION:Murdered May 1\, 2007 'My name is Caroline and I dont post ofte n but have met a few of you guys and read the board regularly\, it has def initely been a godsend to cushies everywhere. The reason I am writing toni ght is I have just received devastating information about a dear friend of mine\, and a woman some of you may have met during testing. Her name is K athryn Miller and she is a patient of Dr. Ludlam\, that is how she and I m et. She was diagnosed with cushings late last fall and had surgery in Dece mber and was doing pretty well afterwards...' Read more at https://cushing sbios.com/2022/05/01/in-memory-of-kathryn-mcbride-bridie-miller-may-1-2007 -2/ X-ALT-DESC;FMTTYPE=text/html:Murdered May 1\, 2007
'My name is C aroline and I dont post often but have met a few of you guys and read the board regularly\, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating inform ation about a dear friend of mine\, and a woman some of you may have met d uring testing. Her name is Kathryn Miller and she is a patient of Dr. Ludl am\, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'< /p>
Read more at \;ht tps://cushingsbios.com/2022/05/01/in-memory-of-kathryn-mcbride-bridie-mill er-may-1-2007-2/
CATEGORIES:In Memory UID:20220502T1145250Z-549422-21@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Patti ~ May 2\, 2002 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300502;BYMONTH=5;BYMONTHDAY=2 DTSTART;VALUE=DATE:20020502 DTEND;VALUE=DATE:20020503 EXDATE;VALUE=DATE:20190502 DESCRIPTION:May 2\, 2002 From the Message Boards: ” I loved her\, she was a great friend. She died of adrenal cortical carcinoma.” Read more at https ://cushingsbios.com/2025/05/02/in-memory-of-patti-may-2-2002-3/ X-ALT-DESC;FMTTYPE=text/html:May 2\, 2002
From the Message Board s: &rdquo\; I loved her\, she was a great friend. She died of adrenal cort ical carcinoma.&rdquo\;
Read more at \;https://cushingsbios.com/2025/05/02/in-memory-of-patti-may-2- 2002-3/
CATEGORIES:In Memory UID:20250502T1339110Z-549422-22@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 11: Cushing’s Awareness Challenge 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200413;BYMONTH=4;BYMONTHDAY=11 DTSTART;VALUE=DATE:20160411 DTEND;VALUE=DATE:20160412 EXDATE;VALUE=DATE:20190411 DESCRIPTION:As luck would have it\, NIH (National Institutes of Health\, Be thesda\, Maryland) was doing a clinical trial of Cushing's. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH\, Ma yo Clinic and a place in Quebec to do this then-rare pituitary surgery cal led a Transsphenoidal Resection. Read more at https://cushieblogger.com/20 18/04/11/day-11-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:As luck would have it\, NIH (National Insti tutes of Health\, Bethesda\, Maryland) was doing a clinical trial of Cushi ng's. I live in the same area as NIH so it was not too inconvenient but ve ry scary at first to think of being tested there. At that time I only had a choice of NIH\, Mayo Clinic and a place in Quebec to do this then-rare p ituitary surgery called a Transsphenoidal Resection.
Read more at& nbsp\;https://cushieblogger.com/2018/04/11/ day-11-cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180411T2123250Z-549422-23@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160410 SUMMARY:Day 10: Cushing’s Awareness Challenge 2018 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190414;BYMONTHDAY=10 EXDATE;VALUE=DATE:20190410 DESCRIPTION:In the fall of 2002 my endo refused to discuss my fatigue or an ything at all with me until I lost 10 pounds. He said I wasn’t worth treat ing in my overweight condition and that I was setting myself up for a hear t attack. He gave me 3 months to lose this weight. Those 3 months included Thanksgiving\, Christmas and New Years. Needless to say\, I left his off ice in tears\, again. Read more at https://cushieblogger.com/2018/04/10/da y-10-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:In the fall of 2002 my endo refused to disc uss my fatigue or anything at all with me until I lost 10 pounds. He said I wasn&rsquo\;t worth treating in my overweight condition and that I was s etting myself up for a heart attack. He gave me 3 months to lose this weig ht. Those 3 months included Thanksgiving\, Christmas and New Years. \ ;Needless to say\, I left his office in tears\, again.
Read more a t \;https://cushieblogger.com/2018/04/1 0/day-10-cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180410T2022410Z-549422-24@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 16: Cushing’s Awareness Challenge 2017 DTSTART;VALUE=DATE:20160521 DTEND;VALUE=DATE:20160522 RRULE:FREQ=MONTHLY;UNTIL=20200416;BYDAY=3SA DESCRIPTION:I used to carry a print out of this everywhere I go because I f ind it very soothing. This print out was in a plastic page saver. On the other side there is a Psalm 116\, part of the post from Day Fifteen of the 2018 Cushing's Challenge. These days\, both these readings are available on my phone. Read more at https://cushieblogger.com/2018/04/16/day-16-cus hings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:I used to carry a print out of this everywh ere I go because I find it very soothing. \;This print out was in a p lastic page saver. On the other side there is a Psalm 116\, part of the po st from Day Fifteen \;of the 2018 Cushing's Challenge. \;These da ys\, both these readings are available on my phone.
Read more at&n bsp\;https://cushieblogger.com/2018/04/16/d ay-16-cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180421T1326140Z-549422-25@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160415 SUMMARY:Julie (Jules)\, Pituitary Bio DESCRIPTION:Julie is from Mount Arlington\, New Jersey. She had been seve rely ill for over a decade before being diagnosed with pituitary Cushing's . Read this bio at https://cushingsbios.com/2016/04/15/julie-jules-pituita ry-bio/ X-ALT-DESC;FMTTYPE=text/html:Julie \;is from Mount Arlington\, New Jersey. \;She had been severely ill for over a decade before being di agnosed with pituitary Cushing's.
Read this bio at \;https://cushingsbios.com/2016/04/15/julie-jules-pituitary-bio/ CATEGORIES:Cushie Bios UID:20160428T0019290Z-549422-26@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160416 SUMMARY:Laurie (Boo)\, Undiagnosed Daughter DESCRIPTION:Laurie is very worried about her young daughter who has been ha ving issues since she was a toddler. Read more at https://cushingsbios.com /2016/04/15/laurie-boo-undiagnosed-daughter/ X-ALT-DESC;FMTTYPE=text/html:
Laurie is very worried about her young daug hter who has been having issues since she was a toddler.
Read more at \;https://cushingsbios.com/2016/04/15/laurie- boo-undiagnosed-daughter/
CATEGORIES:Cushie Bios UID:20160428T0019380Z-549422-27@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Support Cushing's Help With Forever Brave Infinity Scarf DTSTART;VALUE=DATE:20160521 DTEND;VALUE=DATE:20160522 RRULE:FREQ=MONTHLY;UNTIL=20180416;BYDAY=3SA DESCRIPTION:Rare Disease Awareness Scarf Cushing’s Help and Support – Fore ver Brave Infinity Scarf $10 from each purchase will be donated to Cushing ’s Help and Support Read more at https://cushieblog.com/2016/04/01/forever -brave-infinity-scarf/ X-ALT-DESC;FMTTYPE=text/html:Rare Disease Awareness Scarf \;
Cu
shing&rsquo\;s Help and Support &ndash\; Forever Brave Infinity Scarf
$10 from each purchase will be donated to Cushing&rsquo\;s Help and
Support
Read more at \;https://cushieblog.com /2016/04/01/forever-brave-infinity-scarf/
CATEGORIES:Support Cushing's Help UID:20181117T1755180Z-549422-28@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 14: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250416;BYMONTH=4;BYMONTHDAY=14 DTSTART;VALUE=DATE:20160414 DTEND;VALUE=DATE:20160415 DESCRIPTION:After I was finished with the Cushing's long diagnostic process \, surgery and several post-op visits to NIH\, I was asked to give the scr ipture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport. Read more at https://cushieblogger.com/ 2019/04/14/day-14-cushings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:After I was finished with the Cushing's lon g diagnostic process\, surgery and several post-op visits to NIH\, I was a sked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.
Read more at \; https://cushieblogger.com/2019/04/1 4/day-14-cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190414T2321520Z-549422-29@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Stacy Ollenberger RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301104;BYMONTH=11;BYMONTHDAY=4 DTSTART;VALUE=DATE:20151104 DTEND;VALUE=DATE:20151105 DESCRIPTION:November 4\, 2015 Stacy had two pituitary surgeries\, radiation and an adrenalectomy. She died of an adrenal crisis on November 4\, 2015 . Read more at https://cushingsbios.com/2021/11/04/in-memory-of-stacy-olle nberger-november-4-2015-2/ X-ALT-DESC;FMTTYPE=text/html:November 4\, 2015
Stacy had two pit uitary surgeries\, radiation and an adrenalectomy. \;She died of an a drenal crisis on November 4\, 2015.
Read more at \;https://cushingsbios.com/2021/11 /04/in-memory-of-stacy-ollenberger-november-4-2015-2/
CATEGORIES:In Memory UID:20221104T1459480Z-549422-30@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 20: Cushing’s Awareness Challenge 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300417;BYMONTH=4;BYMONTHDAY=17 DTSTART;VALUE=DATE:20160417 DTEND;VALUE=DATE:20160418 DESCRIPTION:This is a tough one. Sometimes I’m in “why me” mode. Why Cush ing's? Why cancer? Unfortunately\, there’s not a thing I can do about ei ther. Cushing's\, who knows the risk factors? For kidney cancer I found out the risk factors and nearly none apply to me. So why? But why not? No particular reason why I should be exempt from anything. Read more at http s://cushieblogger.com/2018/04/20/day-20-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:This is a tough one. \;Sometimes I&rsq uo\;m in &ldquo\;why me&rdquo\; mode. \;Why Cushing's? \;Why can cer? \;Unfortunately\, there&rsquo\;s not a thing I can do about eith er. \;Cushing's\, who knows the risk factors? \;For kidney cance r I found out the risk factors and nearly none apply to me. So why? But wh y not? \;No particular reason why I should be exempt from anything.
Read more at \;ht tps://cushieblogger.com/2018/04/20/day-20-cushings-awareness-challenge-201 8/
CATEGORIES:Awareness Challenge UID:20250417T1012170Z-549422-31@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 19\, Cushing’s Awareness Challenge 2020 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250419;BYMONTH=4;BYMONTHDAY=19 DTSTART;VALUE=DATE:20160419 DTEND;VALUE=DATE:20160420 DESCRIPTION:After I was finished with the Cushing’s long diagnostic process \, surgery and several post-op visits to NIH\, I was asked to give the scr ipture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport. Read more at https://cushieblogger.com/2 020/04/19/day-19-cushings-awareness-challenge-2020/ X-ALT-DESC;FMTTYPE=text/html:After I was finished with the Cushing&rsquo \;s long diagnostic process\, surgery and several post-op visits to NIH\, I was asked to give the scripture reading at my church. The man who preach ed \;the sermon that week was the survivor of a horrific accident wher e he and his family were hit by a van while waiting at an airport.
Read more at \;https://cushieblogger.c om/2020/04/19/day-19-cushings-awareness-challenge-2020/
CATEGORIES:Awareness Challenge UID:20200424T2033450Z-549422-32@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 18: Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300419;BYMONTH=4;BYMONTHDAY=18 DTSTART;VALUE=DATE:20160418 DTEND;VALUE=DATE:20160419 DESCRIPTION:Cushie Crusader\, that’s me…and many others. I think we all ha ve an opportunity to be Cushie Crusaders every time we tell others about o ur illness\, share our story on or offline\, post about our struggles – an d triumphs – on the message boards\, write blog posts in this Cushing’s Aw areness Challenge… Read more at https://cushings.invisionzone.com/topic/56 863-day-18-cushing%E2%80%99s-awareness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:Cushie Crusader\, that&rsquo\;s me&hellip\; and many others. \;I think we all have an opportunity to be Cushie Cr usaders every time we tell others about our illness\, share our story on o r offline\, post about our struggles &ndash\; and triumphs &ndash\; on the \;message boards\, write blog posts in th is Cushing&rsquo\;s Awareness Challenge&hellip\;
Read more at \;https:// cushings.invisionzone.com/topic/56863-day-18-cushing%E2%80%99s-awareness-c hallenge-2022/
CATEGORIES:Awareness Challenge UID:20250418T1011520Z-549422-33@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 14\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300420;BYMONTH=4;BYMONTHDAY=14 DTSTART;VALUE=DATE:20160414 DTEND;VALUE=DATE:20160415 DESCRIPTION:Way back when we first got married\, my husband thought we migh t have a big family with a lot of kids. He was from a family of 6 sibling s\, so that’s what he was accustomed to. I am an only child so I wasn’t s ure about having so many. I needn’t have worried.. Read more at https://cu shings-help.com/2025/04/14/day-14-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:Way back when we first got married\, my hus band thought we might have a big family with a lot of kids. \;He was from a family of 6 siblings\, so that&rsquo\;s what he was accustomed to. \;I am an only child so I wasn&rsquo\;t sure about having so many.
I needn&rsquo\;t have worried..
Read more at \;https://cushings-help.com/2025/04/14/day-1 4-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250414T1258500Z-549422-34@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160420 SUMMARY:Kate N (Kate NC)\, Steroid Induced Cushing's DESCRIPTION:Kate is from Charlotte\, North Carolina. 6 years ago she went through a series of steroid injections to try to relieve her back pain. Sh e ended up with steroid induced Cushing's Syndrome. Read more at https:// cushingsbios.com/2016/04/20/kate-n-kate-nc-steroid-induced-cushings/ X-ALT-DESC;FMTTYPE=text/html:Kate is from Charlotte\, North Carolina. &n bsp\;6 years ago she went through a series of steroid injections to try to relieve her back pain. She ended up with steroid induced Cushing's Syndro me. \;
Read more at \;https:/ /cushingsbios.com/2016/04/20/kate-n-kate-nc-steroid-induced-cushings/< /p> CATEGORIES:Cushie Bios UID:20160428T0019150Z-549422-35@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20160416T130000 DTEND;TZID=America/New_York:20160416T143000 SUMMARY:Action for Adrenal Disease DESCRIPTION:Watch online at https://plus.google.com/events/cpjbd8celcbfgngp 8und662s198?hl=en Secondary Adrenal Insufficiency and Addison's Disease ca n be deadly\, mostly because of the lack of education and awareness. We ha ve lost too many and need to be proactive in preventing unnecessary deaths ! Join us as we educate on what these diseases are\, how easily they can b ecome deadly and preventive measures we can all take to help this communit y. Brought to you by the National Adrenal Disease Foundation\, with speake rs who have personal experience with these diseases. X-ALT-DESC;FMTTYPE=text/html:
Watch online at https://plus.go
Secondary Adrenal Insufficiency and Addison's Disease can be deadly\, most ly because of the lack of education and awareness. We have lost too many a nd need to be proactive in preventing unnecessary deaths! Join us as we ed ucate on what these diseases are\, how easily they can become deadly and p reventive measures we can all take to help this community. Brought to you by the National Adrenal Disease Foundation\, with speakers who have person al experience with these diseases.
CATEGORIES:Events and Meetings UID:20160428T0024350Z-549422-36@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:n Memory of Natalie Fay ~ April 21\, 2008 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300421;BYMONTH=4;BYMONTHDAY=21 DTSTART;VALUE=DATE:20080421 DTEND;VALUE=DATE:20080422 DESCRIPTION:Natalie had a BLA in March\, 2008. She died April 21\, 2008at t he age of 42 and had recently had a BLA. I first met Natalie at a local lu nch in November of 2001 and have seen her several times since then. Read N atalie's bio at https://cushingsbios.com/2021/04/21/in-memory-of-natalie-f ay-april-21-2008-2/ X-ALT-DESC;FMTTYPE=text/html:Natalie had a BLA in March\, 2008. She died April 21\, 2008at the age of 42 and had recently had a BLA.
I first met Natalie at a local lunch in November of 2001 and have seen he
r several times since then.
Read Natalie's bio at \;https://cushingsbios.com/2021/04/21/in-memory-of-natal ie-fay-april-21-2008-2/
CATEGORIES:In Memory UID:20220421T0924300Z-549422-37@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160420 SUMMARY:Cushing’s Disease and how a brain tumour made me fat DESCRIPTION:It was a bit of a shock to be told I might have a very rare bra in tumour releasing the hormone cortisol that affects 10 in a Million peop le. Things went downhill and Cushing’s Disease really started breaking apa rt my body. Read more at https://cushingsbios.com/2016/04/20/cushings-dise ase-and-how-a-brain-tumour-made-me-fat/ X-ALT-DESC;FMTTYPE=text/html:It was a bit of a shock to be told I might have a very rare brain tumour releasing the hormone cortisol that affects 10 in a Million people. Things went downhill and Cushing&rsquo\;s Disease really started breaking apart my body.
Read more at \;https://cushingsbios.com/2016/04/20/cushi ngs-disease-and-how-a-brain-tumour-made-me-fat/
CATEGORIES:Cushie Bios UID:20160428T0032480Z-549422-38@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 21\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300421;BYMONTH=4;BYMONTHDAY=21 DTSTART;VALUE=DATE:20160421 DTEND;VALUE=DATE:20160422 DESCRIPTION:The image above is from our first local meeting\, here in North ern VA – note the 6 Cushing St. sign behind us. Natalie was the Cushie in the middle. Today is the anniversary of Natalie’s death. Last month was th e anniversary of Sue’s death. I wrote about Janice earlier. Read more at h ttps://cushings.invisionzone.com/topic/56882-day-21-cushing%E2%80%99s-awar eness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:The image above is from our first local mee
ting\, here in Northern VA &ndash\; note the 6 Cushing St. sign behind us.
Natalie was the Cushie in the middle.
Today is the anniversary
of Natalie&rsquo\;s death. Last month was the anniversary of Sue&rsquo\;s
death. I wrote about Janice earlier.
Read more at \;https://cushings.invisionzone.com/ topic/56882-day-21-cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220421T0930570Z-549422-39@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 23\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300424;BYMONTH=4;BYMONTHDAY=23 DTSTART;VALUE=DATE:20160423 DTEND;VALUE=DATE:20160424 DESCRIPTION:Saturday\, 4/23/16 really was one of the best days I’ve had in a long time. I wrote a longer post about that later on my travel blog but here’s the original plan: https://maryoblog.com/2016/04/23/busy-saturday/ Suffice it to say\, we arrived at the Tattoo and I got no nap at all\, all day! Read more at https://cushings.invisionzone.com/topic/56884-day-23-cu shing%E2%80%99s-awareness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:Saturday\, 4/23/16 really was one of the be st days I&rsquo\;ve had in a long time.
I \;wrote \;a long er post about that later on \;my travel blog \;but here&rsquo\;s the ori ginal plan: \;https://maryoblog.com/2016/04/23/busy-sat urday/
Suffice it to say\, we arrived at the Tattoo and I got no nap at all\, all day!
Read more at \;https://cushings.invisionzone.co m/topic/56884-day-23-cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20250423T1255010Z-549422-40@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 22\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300423;BYMONTH=4;BYMONTHDAY=22 DTSTART;VALUE=DATE:20160422 DTEND;VALUE=DATE:20160423 DESCRIPTION:This is a tough one. Sometimes I’m in “why me” mode. Why Cush ing’s? Why cancer? Unfortunately\, there’s not a thing I can do about ei ther. Cushing’s\, who knows the risk factors? For kidney cancer I found out the risk factors and nearly none apply to me. So why? But why not? No particular reason why I should be exempt from anything. Read more at http s://cushings.invisionzone.com/topic/56883-day-22-cushing%E2%80%99s-awarene ss-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:This is a tough one. \;Sometimes I&rsq uo\;m in &ldquo\;why me&rdquo\; mode. \;Why Cushing&rsquo\;s? \; Why cancer? \;Unfortunately\, there&rsquo\;s not a thing I can do abo ut either. \;Cushing&rsquo\;s\, who knows the risk factors? \;Fo r kidney cancer I found out the risk factors and nearly none apply to me. So why? \;But why not? \;No particular reason why I should be exe mpt from anything.
Read more at \;https://cushings.invisionzone.com/topic/56883-day-22- cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220422T1814150Z-549422-41@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 22: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250424;BYMONTH=4;BYMONTHDAY=22 DTSTART;VALUE=DATE:20160422 DTEND;VALUE=DATE:20160423 DESCRIPTION:I have seen this image several places online and it never cease s to crack me up. Sometimes\, we really have strange things going on insid e our bodies. Read more at https://cushieblogger.com/2019/04/22/day-22-cus hings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:I have seen this image several places onlin e and it never ceases to crack me up. Sometimes\, we really have strange t hings going on inside our bodies.
Read more at \;https://cushieblogger.com/2019/04/22/day-22-cushings-awa reness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190422T1411500Z-549422-42@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 25\, Cushing’s Awareness Challenge 2020 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250426;BYMONTH=4;BYMONTHDAY=25 DTSTART;VALUE=DATE:20160425 DTEND;VALUE=DATE:20160426 DESCRIPTION:As I said earlier\, I have a history of daily naps of at least 3 hours a day. It cuts into everything and prevents me from doing many th ings. I have to schedule my life around these naps and it’s awful. Read m ore at https://cushieblogger.com/2020/04/25/day-25-cushings-awareness-chal lenge-2020/ X-ALT-DESC;FMTTYPE=text/html:As I said earlier\, I have a history of dai ly naps of at least 3 hours a day. \; It cuts into everything and prev ents me from doing many things. \; I have to schedule my life around t hese naps and it&rsquo\;s awful.
Read more at \;https://cushieblogger.com/2020/04/25/day-25-cushings-awar eness-challenge-2020/
CATEGORIES:Awareness Challenge UID:20200426T0024160Z-549422-44@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Melinda Smith ~ May 9\, 2014 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300509;BYMONTH=5;BYMONTHDAY=9 DTSTART;VALUE=DATE:20140509 DTEND;VALUE=DATE:20140510 DESCRIPTION:Sadly\, we lost another Cushing’s patient on Friday\, May 9\, 2 014. Melinda was a member of the Cushing’s Help message boards since Jun 24\, 2007. She was only 25 and left behind a young son and many loving fa mily members. Read more at https://cushingsbios.com/2022/05/09/in-memory-o f-melinda-smith-may-9-2014-2/ X-ALT-DESC;FMTTYPE=text/html:Sadly\, we lost another Cushing&rsquo\;s pa tient on Friday\, May 9\, 2014. \; \;Melinda was a member \;of the Cushing&rsquo\;s Help mes sage boards since \;Jun 24\, \;2007.
She was only 25 and left behind a young son and many loving family members.
Read more at \;https://cushingsbios.com/2022/05/09/ in-memory-of-melinda-smith-may-9-2014-2/
CATEGORIES:In Memory UID:20220509T1625120Z-549422-45@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Thomas F. Zachman ~ June 3\, 2010 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300603;BYMONTH=6;BYMONTHDAY=3 DTSTART;VALUE=DATE:20100603 DTEND;VALUE=DATE:20100604 DESCRIPTION:Thomas “Tommy” F. Zachman\, of Windsor\, formerly of Toledo\, O hio\, died suddenly and unexpectedly at University Hospital in Denver on J une 3\, 2010\, complications of Cushing’s Syndrome. Read more at https://c ushingsbios.com/2021/06/03/in-memory-of-thomas-f-zachman-june-3-2010-2/ X-ALT-DESC;FMTTYPE=text/html:Thomas &ldquo\;Tommy&rdquo\; F. Zachman\, o f Windsor\, formerly of Toledo\, Ohio\, died suddenly and unexpectedly at University Hospital in Denver on June 3\, 2010\, complications of Cushing& rsquo\;s Syndrome.
Read more at \;https://cushingsbios.com/2021/06/03/in-memory-of-thomas-f-zachman-jun e-3-2010-2/
CATEGORIES:In Memory UID:20210603T0938430Z-549422-46@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Diana Crosley RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300618;BYMONTH=6;BYMONTHDAY=18 DTSTART;VALUE=DATE:20140618 DTEND;VALUE=DATE:20140619 DESCRIPTION:Diana Lynn Alexander Crosley\, age 58\, of Sidney\, passed away peacefully on Wednesday\, June 18\, 2014\, at 10:10 p.m. at her residence surrounded by her loving family. Read more at https://cushingsbios.com/2 022/06/18/in-memory-of-diana-crosley-june-18-2014/ X-ALT-DESC;FMTTYPE=text/html:Diana Lynn Alexander Crosley\, age 58\, of Sidney\, passed away peacefully on Wednesday\, June 18\, 2014\, at 10:10 p .m. at her residence surrounded by her loving family. \;
Read more at \;https://cushingsbios.com/2022/0 6/18/in-memory-of-diana-crosley-june-18-2014/
CATEGORIES:In Memory UID:20220618T1222060Z-549422-47@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Samantha Cohn ~ June 19\, 2014 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300620;BYMONTH=6;BYMONTHDAY=19 DTSTART;VALUE=DATE:20140619 DTEND;VALUE=DATE:20140620 DESCRIPTION:Juilliard graduate Samantha Cohn\, 34\, crawled out a window in her 16th-floor apartment at West 71st Street and Broadway and jumped at 1 0:10 a.m. Cohn\, who was wearing workout clothes\, landed on the sidewalk on Broadway and nearly hit a neighbor\, Matt Kovary. Her mother told inve stigators she had been diagnosed with Cushing’s syndrome\, police sources said. Read more at https://cushingsbios.com/2022/06/19/in-memory-of-samant ha-cohn-june-19-2014/ X-ALT-DESC;FMTTYPE=text/html:Juilliard graduate Samantha Cohn\, 34\, crawled out a wi ndow in her 16th-floor apartment at West 71st Street and Broadway and jump ed at 10:10 a.m.
Cohn\, who was wearing workout clothes\, landed o n the sidewalk on Broadway and nearly hit a neighbor\, Matt \;Kovary.< /p>
Her mother told investigators she had been diagnosed with Cushing& rsquo\;s syndrome\, police sources said.
Read more at \;https://cushingsbios.com/2022/06/19/in-memory-of-sa mantha-cohn-june-19-2014/
CATEGORIES:In Memory UID:20220620T0848020Z-549422-48@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Kate Myers RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300623;BYMONTH=6;BYMONTHDAY=23 DTSTART;VALUE=DATE:20140623 DTEND;VALUE=DATE:20140624 DESCRIPTION:Kate (Fairley on the Cushing’s Help message boards) was only 4 6 when she died on June 23\, 2014. Read more at https://cushingsbios.com/ 2021/06/23/in-memory-of-kate-myers-june-23-2014/ X-ALT-DESC;FMTTYPE=text/html:Kate (Fairley on the Cushing&rsquo\;s Help m essage boards) \;was only 46 when she died on June 23\, 2014.&nbs p\;
Read more at \;https://cushingsb ios.com/2021/06/23/in-memory-of-kate-myers-june-23-2014/
CATEGORIES:In Memory UID:20210623T1253530Z-549422-49@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Today in Medical History RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200903;BYMONTH=9;BYMONTHDAY=3 DTSTART;VALUE=DATE:20000903 DTEND;VALUE=DATE:20000904 DESCRIPTION:On this date in 1931\, chemists discovered that the pituitary g land contains a hormone\, hGH\, that controls growth. Overactivity of the pituitary\, which sits at the base of the brain\, results in gigantism. Un deractivity results in dwarfism. The discovery in 1931 eventually led to p hysicians treating children suffering from a deficiency of the hormone by injections of hGH obtained from the pituitaries of cadavers. More recently \, scientists have discovered a way to produce genetically engineered hGH in bacteria. X-ALT-DESC;FMTTYPE=text/html:On this date in 1931\, chemists discovered that the pituitary gland contains a hormone\, hGH\, that controls growth. Overactivity of the pituitary\, which sits at the base of the brain\, resu lts in gigantism. Underactivity results in dwarfism. The discovery in 1931 eventually led to physicians treating children suffering from a deficienc y of the hormone by injections of hGH obtained from the pituitaries of cad avers. More recently\, scientists have discovered a way to produce genetic ally engineered hGH in bacteria.
CATEGORIES:This Day in Medical History UID:20160428T0106530Z-549422-50@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Janice RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300904;BYMONTH=9;BYMONTHDAY=4 DTSTART;VALUE=DATE:20010904 DTEND;VALUE=DATE:20010905 DESCRIPTION:On the message boards\, Lorrie wrote: Our dear friend\, Janice died this past Tuesday\, September 4\, 2001. I received an IM from her bes t friend Janine\, tonight. Janine had been reading the boards\, as Janice had told her about this site\, and she came upon my name and decided to IM me. I am grateful that she did. She said that she knew that Janice would want all of us to know that she didn’t just stop posting. Read more at htt ps://cushingsbios.com/2021/09/04/in-memory-of-janice-tuesday-september-4-2 001/ X-ALT-DESC;FMTTYPE=text/html:On the message boards\, Lorrie wrote: Our dear friend\, Janice died this past Tuesday\, September 4\, 2001. I received an IM from her best friend Janine\, tonigh t. Janine had been reading the boards\, as Janice had told her about this site\, and she came upon my name and decided to IM me. I am grateful that she did. She said that she knew that Janice would want all of us to know t hat she didn&rsquo\;t just stop posting.
Read more at \;< a href='https://cushingsbios.com/2021/09/04/in-memory-of-janice-tuesday-se ptember-4-2001/' target='_blank' rel='nofollow'>https://cushingsbios.com/2 021/09/04/in-memory-of-janice-tuesday-september-4-2001/
CATEGORIES:In Memory UID:20220905T0919400Z-549422-51@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Kandace Bankston ‘Kandy’ Kline RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300909;BYMONTH=9;BYMONTHDAY=9 DTSTART;VALUE=DATE:20070909 DTEND;VALUE=DATE:20070910 DESCRIPTION:Kandy Klein long-time member of the message boards passed away September 9\, 2007. Read more at https://cushingsbios.com/2022/09/09/in-me mory-of-kandace-bankston-kandy-kline-september-9-2007/ X-ALT-DESC;FMTTYPE=text/html:Kandy Klein \;long-tim e member of the message boards passed away September 9\, 2007.
Rea d more at \;https://cushingsbios.com/2022/09/09/in-memory-of-kandace-bankston-kan dy-kline-september-9-2007/
CATEGORIES:In Memory UID:20220909T1227410Z-549422-52@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Today in Medical History RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200921;BYMONTH=9;BYMONTHDAY=21 DTSTART;VALUE=DATE:20000921 DTEND;VALUE=DATE:20000922 DESCRIPTION:Synthesized Cortisone In 1948\, Edward Kendall and Philip Hench created the first of the many “miracle drugs\,' which were actually synth esized hormones\, to treat rheumatoid arthritis and other diseases. Hench and Kendall\, who each headed a medical department at the Mayo Clinic in R ochester\, Minn.\, realized that the adrenal glands play an important role in rheumatoid arthritis. The two noticed that a woman with rheumatoid art hritis had a lessening of symptoms while she was pregnant\, and they worke d to discover what caused the change. They were able to isolate a hormone in the cortex\, or outer part\, of the adrenal glands\, which they called cortisone. On Sept. 21\, 1948\, Hench administered a synthesized version o f cortisone developed by Kendall to a patient with arthritis. The two rese archers were awarded the Nobel Prize in physiology or medicine in 1950 for their achievements. X-ALT-DESC;FMTTYPE=text/html:Synthesized Cortisone
In 1948\, Edw ard Kendall and Philip Hench created the first of the many &ldquo\;miracle drugs\,' which were actually synthesized hormones\, to treat rheumatoid a rthritis and other diseases. Hench and Kendall\, who each headed a medical department at the Mayo Clinic in Rochester\, Minn.\, realized that the ad renal glands play an important role in rheumatoid arthritis.
The t wo noticed that a woman with rheumatoid arthritis had a lessening of sympt oms while she was pregnant\, and they worked to discover what caused the c hange. They were able to isolate a hormone in the cortex\, or outer part\, of the adrenal glands\, which they called cortisone.
On Sept. 21\ , 1948\, Hench administered a synthesized version of cortisone developed b y Kendall to a patient with arthritis. The two researchers were awarded th e Nobel Prize in physiology or medicine in 1950 for their achievements.
CATEGORIES:This Day in Medical History UID:20160428T0148130Z-549422-53@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Lenise Petersen RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301002;BYMONTH=10;BYMONTHDAY=2 DTSTART;VALUE=DATE:20021002 DTEND;VALUE=DATE:20021003 EXDATE;VALUE=DATE:20181002 DESCRIPTION:Lenise passed away Wednesday\, Oct. 2\, 2002 at 23 years old\, just after her surgery. Read more at https://cushingsbios.com/2021/10/02/i n-memory-of-lenise-petersen-october-2-2002-3/ X-ALT-DESC;FMTTYPE=text/html:Lenise passed away Wednesday\, Oct. 2\, 200 2 at 23 years old\, just after her surgery.
Read more at \;https://cushingsbios.com/20 21/10/02/in-memory-of-lenise-petersen-october-2-2002-3/
CATEGORIES:In Memory UID:20251004T1930230Z-549422-54@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Alice Baker RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301003;BYMONTH=10;BYMONTHDAY=3 DTSTART;VALUE=DATE:20021003 DTEND;VALUE=DATE:20021004 DESCRIPTION:Thursday\, October 3\, 2002 Alice died of lung cancer and Cushi ng’s. Read more at https://cushingsbios.com/2025/10/03/in-memory-of-alice- baker-october-3-2002/ X-ALT-DESC;FMTTYPE=text/html:Thursday\, October 3\, 2002
Alice d ied of lung cancer and Cushing&rsquo\;s.
Read more at \;https://cushingsbios.com/2025/10/03/ in-memory-of-alice-baker-october-3-2002/
CATEGORIES:In Memory UID:20251004T1926440Z-549422-55@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Barbara “Cookie” Rothenberg RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301011;BYMONTH=10;BYMONTHDAY=11 DTSTART;VALUE=DATE:20031011 DTEND;VALUE=DATE:20031012 DESCRIPTION:My family and I met Cookie at the UVA Cushings Conference Fall 2002. She was so helpful and caring. She told my father\, sister\, and I h er “Cushings Story.” She was so\, well\, there is no better word to descri be her\, “bubbly.” She was so happy to be there\, teaching\, learning\, an d helping with CUSH. She left an impression on my family and I. She had su ch a great personality. She was one of the very first “Cushies” I met…and she made me re-think my attitude about being sick. She was going through s o much\, yet she had such a wonderful attitude towards it all. She was ama zing! Read more at https://cushingsbios.com/2021/10/11/in-memory-barbara-c ookie-rothenberg-oct-11-2003-2/ X-ALT-DESC;FMTTYPE=text/html:My family and I met Cookie at the UVA Cushi ngs Conference Fall 2002. She was so helpful and caring. She told my fathe r\, sister\, and I her &ldquo\;Cushings Story.&rdquo\; She was so\, well\, there is no better word to describe her\, &ldquo\;bubbly.&rdquo\; She was so happy to be there\, teaching\, learning\, and helping with CUSH. She l eft an impression on my family and I. She had such a great personality. Sh e was one of the very first &ldquo\;Cushies&rdquo\; I met&hellip\;and she made me re-think my attitude about being sick. She was going through so mu ch\, yet she had such a wonderful attitude towards it all. She was amazing !
Read more at \;https://cushingsbios.com/2021/10/11/in-memory-barbara-cookie-roth enberg-oct-11-2003-2/
CATEGORIES:In Memory UID:20241011T1419460Z-549422-56@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Bonny Hamm RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201012;BYMONTH=10;BYMONTHDAY=12 DTSTART;VALUE=DATE:20091012 DTEND;VALUE=DATE:20091013 DESCRIPTION:She was only 45 at the time of her death October 12\, 2009. I’ ve known far too many Cushies who have died far too young from this diseas e. Bonny wrote :I was sick with ALL the symptoms (about 30-40) for 5 years . Finally got correctly diagonosed and had my left Adrenal Gland and its t umour removed in June 2007. The recovery was long and hellish. The worst s ymptom after the operation was 3 months of constant itching literally from my scalp to my heels and every inch of skin in between. I also had pain i n every single joint of my body\, along with all the pre op symptoms that took a long long time to improve... Read more at https://cushingsbios.com/ 2019/10/12/in-memory-of-bonny-hamm-october-12-2009/ X-ALT-DESC;FMTTYPE=text/html:She was only 45 at the time of her death Oc tober 12\, 2009. \; I&rsquo\;ve known far too many Cushies who have di ed far too young from this disease.
Bonny wrote
:I was sick with ALL the symptoms (about 30-40) for 5 years. Finally got correct ly diagonosed and had my left Adrenal Gland and its tumour removed in June 2007. The recovery was long and hellish. The worst symptom after the oper ation was 3 months of constant itching literally from my scalp to my heels and every inch of skin in between. I also had pain in every single joint of my body\, along with all the pre op symptoms that took a long long time to improve...
Read more at \;https://cushingsbios.com/2019/10/12/in-memory-of-bonny-hamm-october-12-2 009/
CATEGORIES:In Memory UID:20191012T1651230Z-549422-57@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Martha RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201014;BYMONTH=10;BYMONTHDAY=14 DTSTART;VALUE=DATE:20081014 DTEND;VALUE=DATE:20081015 DESCRIPTION:StaceyH wrote: Dr. F had wanted to give Martha an IPSS\, but she had a problem with an EKG two weeks ago so the doctor would not releas e her for surgery. She went for a cardio stress test last week and was to get her results tomorrow. She was feeling “ok” but when I arrived home thi s evening\, I found her in the bathroom. I tried to give her CPR but I rea lly knew it was too late... Read more at https://cushingsbios.com/2015/10/ 14/in-memory-martha-october-14-2008/ X-ALT-DESC;FMTTYPE=text/html:StaceyH wrote: \; Dr. F had wanted to give Martha an IPSS\, but she had a problem with an EKG two weeks ago so t he doctor would not release her for surgery. She went for a cardio stress test last week and was to get her results tomorrow. She was feeling &ldquo \;ok&rdquo\; but when I arrived home this evening\, I found her in the bat hroom. I tried to give her CPR but I really knew it was too late...
< p>Read more at \;https://cushingsbios.com/2015/1 0/14/in-memory-martha-october-14-2008/ CATEGORIES:In Memory UID:20161014T1334030Z-549422-58@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Anniversary of Robert Brown's death RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301102;BYMONTH=11;BYMONTHDAY=2 DTSTART;VALUE=DATE:20151102 DTEND;VALUE=DATE:20151103 DESCRIPTION:Robert Brown was from Vancouver\, Oregon X-ALT-DESC;FMTTYPE=text/html:Robert Brown was from Vancouver\, Oregon
CATEGORIES:In Memory UID:20251103T0027160Z-549422-59@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 28\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300428;BYMONTH=4;BYMONTHDAY=28 DTSTART;VALUE=DATE:20160428 DTEND;VALUE=DATE:20160429 DESCRIPTION: I was walking somewhere on deck and suddenly a wave came up ov er the deck making it very slippery. I fell and cracked the back of my he ad on the curved edge of a table in the dining area. I had the next-to-th e-worse headache I have ever had\, the worst being after my pituitary surg ery. At least after the surgery\, I got some morphine. Read more at https: //cushings.invisionzone.com/topic/56890-day-28-cushing%E2%80%99s-awareness -challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:\;I was walking somewhere on deck and suddenly a wave came up over the deck making it very slippery. \;I fe ll and cracked the back of my head on the curved edge of a table in the di ning area. \;I had the next-to-the-worse headache I have ever had\, t he worst being after my pituitary surgery. At least after the surgery\, I got some morphine.
Read more at \;https://cushings.invisionzone.com/topic/56890-day-28- cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220428T1236280Z-549422-60@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Hermina Dala RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301129;BYMONTH=11;BYMONTHDAY=29 DTSTART;VALUE=DATE:20021129 DTEND;VALUE=DATE:20021130 EXDATE;VALUE=DATE:20181129 DESCRIPTION:https://cushingsbios.com/2025/11/29/in-memory-hermina-dala-nove mber-29-2002/ X-ALT-DESC;FMTTYPE=text/html:https://cushingsbios.com/2025/11/29/in-memory-hermina-dala-november-29-20 02/
\;
CATEGORIES:In Memory UID:20251130T2306040Z-549422-62@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Millie Niss RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301129;BYMONTH=11;BYMONTHDAY=29 DTSTART;VALUE=DATE:20091129 DTEND;VALUE=DATE:20091130 DESCRIPTION:Millie is the first Cushing’s patient that I know of to have di ed from complications from Swine Flu. She was only 36. Millie developed a confirmed case of the H1N1 virus. She spent 29 days in the ICU of Millard Suburban Hospital before dying of complications of the flu\, compounded b y Behcet’s Disease and Cushings Disease. Read more at https://cushingsbios .com/2021/11/29/in-memory-millie-niss-november-29-2009/ X-ALT-DESC;FMTTYPE=text/html:Millie is the first Cushing&rsquo\;s patien t that I know of to have died from complications from Swine Flu. \; Sh e was only 36.
Millie developed a confirmed case of the H1N1 virus . She spent 29 days in the ICU of Millard Suburban Hospital before dying o f complications of the flu\, compounded by Behcet&rsquo\;s Disease and Cus hings Disease.
Read more at \;https://cushingsbios.com/2021/11/29/in-memory-millie-niss-novem ber-29-2009/
CATEGORIES:In Memory UID:20251130T2300460Z-549422-63@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 26\, Cushing’s Awareness Challenge 2021 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300429;BYMONTH=4;BYMONTHDAY=26 DTSTART;VALUE=DATE:20160426 DTEND;VALUE=DATE:20160427 DESCRIPTION:So often during the diagnosis phase of Cushing’s I felt lost li ke this picture – I was walking alone to an unknown place with an unknown future. My diagnosis was pre-Internet which meant that any information had to be gotten from libraries\, bookstores\, magazines…or doctors. In 1983 to 1986 I knew something was terribly wrong but there was no backup from doctors\, family or friends. My first hope was from a magazine (see Day S ix). Read more at https://cushieblogger.com/2022/04/26/day-26-cushings-awa reness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:So often during the diagnosis phase of Cush ing&rsquo\;s I felt lost like this picture &ndash\; I was walking alone to an unknown place with an unknown future.
My diagnosis was pre-Int ernet which meant that any information had to be gotten from libraries\, b ookstores\, magazines&hellip\;or doctors. \;In 1983 to 1986 I knew so mething was terribly wrong but there was no backup from doctors\, family o r friends. \;My first hope was from a magazine (see \;Day Six).
Read m ore at \;https://cushieblogger.com/2022 /04/26/day-26-cushings-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220427T1430360Z-549422-64@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Jill's Father RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300105;BYMONTH=1;BYMONTHDAY=5 DTSTART;VALUE=DATE:20050105 DTEND;VALUE=DATE:20050106 EXDATE;VALUE=DATE:20240105 DESCRIPTION:January 5\, 2005 Jill wrote: 'In December 2004 my dad who had a ddison's for over 30 years had a triple bypass surgery 6 days before Chris tmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to g ive him his steriods for his Addison's for 22 hours\, which they were comp letely aware that he had...' Read more at https://cushings.invisionzone.co m/events/event/1591-in-memory-jills-father/ X-ALT-DESC;FMTTYPE=text/html:January 5\, 2005
Jill wrote: 'I n December 2004 my dad who had addison's for over 30 years had a triple by pass surgery 6 days before Christmas. The surgery was an amazine success a nd it was predicted he would be home before Christmas. Day 2 following sur gery the hospital neglected to give him his steriods for his Addison's for 22 hours\, which they were completely aware that he had...'
Read more at \;https://cush ings.invisionzone.com/events/event/1591-in-memory-jills-father/
CATEGORIES:In Memory UID:20260105T0753210Z-549422-65@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160429 SUMMARY:How women can spot heart attack warning signs DESCRIPTION:Women receive less aggressive treatment after a heart attack th an men and often delay care longer than men. This is why it is especially important that women learn to identify signs of a heart attack. Read more at https://maryomedical.com/2016/04/29/how-women-can-spot-heart-attack-war ning-signs/ X-ALT-DESC;FMTTYPE=text/html:Women receive less aggressive treatment aft er a heart attack than men and often delay care longer than men. This is w hy it is especially important that women learn to identify signs of a hear t attack.
Read more at \;ht tps://maryomedical.com/2016/04/29/how-women-can-spot-heart-attack-warning- signs/
CATEGORIES:Other Medical UID:20160429T1335530Z-549422-66@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160429 SUMMARY:Caroline (carogyrl)\, Undiagnosed Bio DESCRIPTION:Caroline is from Kentucky. She has been treated numerous times with steroids for migraines and chronic sinusitis. She has the 'classic l ook' of someone with Cushing's. Read more at https://cushingsbios.com/2016 /04/29/carogyrl-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Caroline is from Kentucky. \;She has b een treated numerous times with steroids for migraines and chronic sinusit is. She has the 'classic look' of someone with Cushing's.
Read mor e at \;https://cushingsbios.com/2016/04/29/carogyrl-undi agnosed-bio/
CATEGORIES:Cushie Bios UID:20160430T0040430Z-549422-67@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160430 SUMMARY:Ectopic adrenocorticotropic hormone syndrome caused by neuroendocri ne tumors of the thymus DESCRIPTION:TNEC is an extremely aggressive disease that should be consider ed when treating patients with Cushing’s syndrome due to ectopic ACTH secr etion. Read more at https://cushieblog.com/2016/04/30/ectopic-adrenocortic otropic-hormone-syndrome-caused-by-neuroendocrine-tumors-of-the-thymus/ X-ALT-DESC;FMTTYPE=text/html:TNEC is an extremely aggressive disease tha t should be considered when treating patients with Cushing&rsquo\;s syndro me due to ectopic ACTH secretion.
Read more at \;https://c ushieblog.com/2016/04/30/ectopic-adrenocorticotropic-hormone-syndrome-caus ed-by-neuroendocrine-tumors-of-the-thymus/
CATEGORIES:News Items UID:20160430T0813330Z-549422-68@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushie MemberMap DTSTART;VALUE=DATE:20160511 DTEND;VALUE=DATE:20160512 RRULE:FREQ=MONTHLY;UNTIL=20300430;BYDAY=2WE EXDATE;VALUE=DATE:20220608 DESCRIPTION:Add your own info (or your doctor's) to the Cushie MemberMap at https://cushieblogger.com/2018/11/17/rebuilding-the-membermap/ X-ALT-DESC;FMTTYPE=text/html:Add your own info (or your doctor's) to the Cushie MemberMap at \;https://cushieblogger.com/2018/1 1/17/rebuilding-the-membermap/
CATEGORIES:Cushie Bios UID:20210522T1112140Z-549422-69@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160430 SUMMARY:Promising Pre-Clinical and Phase 1 Data Support Advance of Selectiv e Cortisol Modulator CORT125134 as Potential Treatment for Cushing's Syndr ome and Solid-Tumor Cancers DESCRIPTION:'Advancing CORT125134 is an important step in protecting and ex tending our growing Cushing's syndrome franchise and in developing cortiso l modulation for a wide range of other serious diseases\,' said Joseph K. Belanoff\, MD\, Corcept's Chief Executive Officer. 'This selective cortiso l modulator has shown great promise. We are optimistic that\, for some pat ients with Cushing's syndrome\, CORT125134 may be even better than our app roved product\, Korlym® -- just as effective\, but without the side effect s associated with Korlym's affinity for the progesterone receptor. Equally important\, we look forward to investigating its potential as a treatment for solid-tumor cancers.' Read more at https://cushieblog.com/2016/04/30/ promising-pre-clinical-and-phase-1-data-support-advance-of-selective-corti sol-modulator-cort125134-as-potential-treatment-for-cushings-syndrome-and- solid-tumor-cancers/ X-ALT-DESC;FMTTYPE=text/html:'Advancing CORT125134 is an important step in protecting and extending our growing Cushing's syndrome franchise and i n developing cortisol modulation for a wide range of other serious disease s\,' said Joseph K. Belanoff\, MD\, Corcept's Chief Executive Officer.&nbs p\;'This selective cortisol modulator has shown great promise. \;We ar e optimistic that\, for some patients with Cushing's syndrome\, CORT125134 may be even better than our approved product\, Korlym®\;&nb sp\;-- just as effective\, but without the side effects associated with Ko rlym's affinity for the progesterone receptor. \;Equally important\, w e look forward to investigating its potential as a treatment for solid-tum or cancers.'
CATEGORIES:News Items UID:20160430T0824580Z-549422-70@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Lori Holt ~ January 6\, 2008 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300106;BYMONTH=1;BYMONTHDAY=6 DTSTART;VALUE=DATE:20060106 DTEND;VALUE=DATE:20060107 EXDATE;VALUE=DATE:20190106,20240106 DESCRIPTION:During the first few days of September 2007\, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surge ry and never recovered. Read more at https://cushingsbios.com/2022/01/06/i n-memory-lori-holt-january-6-2008/ X-ALT-DESC;FMTTYPE=text/html:During the first few days of September 2007
\, Lori had surgery to remove her adrenal gland.
She experienced extr
eme difficulty post surgery and never recovered.
Read more at \;https://cushingsbios.com/2022/01/06/in-memory-lo ri-holt-january-6-2008/
CATEGORIES:In Memory UID:20220107T2336230Z-549422-71@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20130227 SUMMARY:In Memory: Christopher “Migs” Migliore DESCRIPTION:At age 31\, Migs fought gallantly his battle with Cushing’s Syn drome. Diagnosed in late 2012\, Migs endured a surgical operation in Febru ary 2013 to excise both his adrenal glands. The objective was to combat th e effects of Cushing’s Syndrome. Read more at https://cushingsbios.com/201 3/11/20/in-memory-christopher-migs-migliore/ X-ALT-DESC;FMTTYPE=text/html:At age 31\, Migs fought gallantly his battl e with Cushing&rsquo\;s Syndrome. Diagnosed in late 2012\, Migs endured a surgical operation in February 2013 to excise both his adrenal glands. The objective was to combat the effects of Cushing&rsquo\;s Syndrome.
Read more at \;https://cushingsbios.com/2013 /11/20/in-memory-christopher-migs-migliore/
\;
CATEGORIES:Cushings UID:20160430T0910060Z-549422-72@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Diane\, April 2008 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300418;BYMONTH=4;BYMONTHDAY=18 DTSTART;VALUE=DATE:20080418 DTEND;VALUE=DATE:20080419 DESCRIPTION:I am not sure of the exact date but this was originally posted April 18\, 2008... My name is Amy and my very best friend just passed away from an adrenal crisis. Diane was unaware that she had any adrenal issue. Read more at https://cushingsbios.com/2025/04/18/in-memory-of-diane-april -2008/ X-ALT-DESC;FMTTYPE=text/html:I am not sure of the exact date but this wa s originally posted April 18\, 2008...
My name is Amy and my very best friend just passed away from \;an adrenal crisis. Diane w as unaware that she had any adrenal issue.
Read more at \;https://cushingsbios.com/2025/04/18/in-memor y-of-diane-april-2008/
CATEGORIES:In Memory UID:20250418T1016270Z-549422-73@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Erica Michelle “GaGa” Meno RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300306;BYMONTH=3;BYMONTHDAY=6 DTSTART;VALUE=DATE:20150306 DTEND;VALUE=DATE:20150307 DESCRIPTION:Erica was a fellow Cushing’s Disease survivor. She had been thr ough pituitary surgery\, radiation\, and a BLA in an effort to receive her cure. Read more at https://cushingsbios.com/2022/03/06/in-memory-erica-mi chelle-gaga-meno-march-6-2015-2/ X-ALT-DESC;FMTTYPE=text/html:Erica was a fellow Cushing&rsquo\;s Disease survivor. She had been through pituitary surgery\, radiation\, and a BLA in an effort to receive her cure.
Read more at \;https://cushingsbios.com/2022/03/06/in-memory-er ica-michelle-gaga-meno-march-6-2015-2/
CATEGORIES:In Memory UID:20220306T0736350Z-549422-74@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Sue Koziol (SuziQ) RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300312;BYMONTH=3;BYMONTHDAY=12 DTSTART;VALUE=DATE:20060312 DTEND;VALUE=DATE:20060312 DESCRIPTION:Sue was born in Michigan on August 08\, 1946 and passed away on March 12\, 2006 at the age of 59. She was a very special friend to Cushie s world-wide. We will remember her always. Read more at https://cushingsbi os.com/2022/03/12/in-memory-sue-koziol-suziq-march-12-2006/ X-ALT-DESC;FMTTYPE=text/html:Sue was born in Michigan on August 08\, 1946 and passed away on March 12\, 2006 at the age of 59.
She was a very special friend to Cushies world-wide. We will remember her always.
Read more at \;https://cushingsbios.com/2022/03/12/in-memory-sue -koziol-suziq-march-12-2006/
CATEGORIES:In Memory UID:20220312T1446570Z-549422-75@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Deloreese Daniels Owens RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250316;BYMONTH=3;BYMONTHDAY=16 DTSTART;VALUE=DATE:20020316 DTEND;VALUE=DATE:20020317 DESCRIPTION:Deloreese Daniels Owens\, daughter of “Touched by an Angel” sta r Della Reese\, was found dead at her Los Angeles-area home Wednesday. She was 41. The cause of death was not disclosed\, but Owens suffered from a pituitary dysfunction that made her prone to infections. Read more at http s://cushingsbios.com/2021/03/16/in-memory-deloreese-daniels-owens-march-16 -2002/ X-ALT-DESC;FMTTYPE=text/html:Deloreese Daniels Owens\, daughter of &ldqu o\;Touched by an Angel&rdquo\; star Della Reese\, was found dead at her Lo s Angeles-area home Wednesday. She was 41. The cause of death was not disc losed\, but Owens suffered from a pituitary dysfunction that made her pron e to infections.
Read more at \;https://cushingsbios.com/2021/03/16/in-memory-deloreese-daniels-owe ns-march-16-2002/
CATEGORIES:In Memory UID:20210316T0719280Z-549422-76@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Erin Lee Rechel Pugh RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301104;BYMONTH=11;BYMONTHDAY=4 DTSTART;VALUE=DATE:20151104 DTEND;VALUE=DATE:20151105 DESCRIPTION:Erin was from Canton\, Ohio and several other Cushies met her a t local meetings. She was 35 when she died. More info at http://www.legacy .com/obituaries/ohio/obituary.aspx?n=erin-lee-pugh-rechel&pid=176388742& X-ALT-DESC;FMTTYPE=text/html:Erin was from Canton\, Ohio and several oth er Cushies met her at local meetings.
She was 35 when she died.
More info at \;http://www.legacy.com/obituaries/ohio/obituary.aspx?n=er in-lee-pugh-rechel&\;pid=176388742&\;
CATEGORIES:In Memory UID:20221104T1500430Z-549422-77@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Marie Richardson RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300315;BYMONTH=3;BYMONTHDAY=15 DTSTART;VALUE=DATE:20090315 DTEND;VALUE=DATE:20090316 DESCRIPTION:I do not know the exact date that Marie died in March\, 2009. C ontributory factors in Mrs Richardson's death had been Cushing's disease\, a very rare condition involving a hormone disorder\, and bronchial pneumo nia. Read more at https://cushingsbios.com/2022/03/15/in-memory-marie-rich ardson-march-2009/ X-ALT-DESC;FMTTYPE=text/html:I do not know the exact date that Marie die d in March\, 2009.
Contributory factors in Mrs Richardson's death had been Cushing's disease\, a very rare condition involving a hormone dis order\, and bronchial pneumonia.
Read more at \;https://cushingsbios.com/2022/03/15/in-memory-marie-richardso n-march-2009/
CATEGORIES:In Memory UID:20220315T2228080Z-549422-78@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160502 SUMMARY:Melanoma Monday DESCRIPTION:May is designated as National Melanoma Month. Included in tha t designation is National Melanoma Monday\, which is the first Monday in M ay. The American Academy of Dermatology has set aside this day to raise a wareness about skin cancer. X-ALT-DESC;FMTTYPE=text/html:May is designated as National Melanoma Mont h. \; Included in that designation is National Melanoma Monday\, whic h is the first Monday in May. \;The American Academy of Dermatology h as set aside this day to raise awareness about skin cancer.
CATEGORIES:Other Medical UID:20160430T1040240Z-549422-80@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170501 SUMMARY:Melanoma Monday DESCRIPTION:May is designated as National Melanoma Month. Included in tha t designation is National Melanoma Monday\, which is the first Monday in M ay. The American Academy of Dermatology has set aside this day to raise a wareness about skin cancer. X-ALT-DESC;FMTTYPE=text/html:May is designated as National Melanoma Mont h. \; Included in that designation is National Melanoma Monday\, whic h is the first Monday in May. \;The American Academy of Dermatology h as set aside this day to raise awareness about skin cancer.
CATEGORIES:Other Medical UID:20160430T1041070Z-549422-81@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20180507 SUMMARY:Melanoma Monday DESCRIPTION:May is designated as National Melanoma Month. Included in tha t designation is National Melanoma Monday\, which is the first Monday in M ay. The American Academy of Dermatology has set aside this day to raise a wareness about skin cancer. X-ALT-DESC;FMTTYPE=text/html:May is designated as National Melanoma Mont h. \; Included in that designation is National Melanoma Monday\, whic h is the first Monday in May. \;The American Academy of Dermatology h as set aside this day to raise awareness about skin cancer.
CATEGORIES:In Memory UID:20160430T1041390Z-549422-82@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20190506 SUMMARY:Melanoma Monday DESCRIPTION:May is designated as National Melanoma Month. Included in tha t designation is National Melanoma Monday\, which is the first Monday in M ay. The American Academy of Dermatology has set aside this day to raise a wareness about skin cancer. X-ALT-DESC;FMTTYPE=text/html:May is designated as National Melanoma Mont h. \; Included in that designation is National Melanoma Monday\, whic h is the first Monday in May. \;The American Academy of Dermatology h as set aside this day to raise awareness about skin cancer.
CATEGORIES:Other Medical UID:20160430T1042090Z-549422-83@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160430 SUMMARY:Endocrine Society experts call for expanded screening for primary a ldosteronism DESCRIPTION:Primary aldosteronism occurs when the adrenal glands — the smal l glands located on the top of each kidney – produce too much of the hormo ne aldosterone. This causes aldosterone\, which helps balance levels of so dium and potassium\, to build up in the body. The resulting excess sodium can lead to a rise in blood pressure. Read more at https://cushieblog.com/ 2016/04/30/endocrine-society-experts-call-for-expanded-screening-for-prima ry-aldosteronism/ X-ALT-DESC;FMTTYPE=text/html:Primary aldosteronism occurs when the adren al glands &mdash\; the small glands located on the top of each kidney &nda sh\; produce too much of the hormone aldosterone. This causes aldosterone\ , which helps balance levels of sodium and potassium\, to build up in the body. The resulting excess sodium can lead to a rise in blood pressure.
Read more at \;https://cushieblog.com/2016/04/30/endocrine-society-expe rts-call-for-expanded-screening-for-primary-aldosteronism/
CATEGORIES:Other Medical UID:20160430T1056510Z-549422-84@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Bravelets! DTSTART;VALUE=DATE:20160505 DTEND;VALUE=DATE:20160506 RRULE:FREQ=MONTHLY;UNTIL=20200428;BYDAY=1TH EXDATE;VALUE=DATE:20161006 DESCRIPTION:$10 from every item sold on this page will be donated to help r aise awareness for Cushing’s Disease through the work of the Cushings Help family of websites. For nearly 16 years we have provided information\, su pport\, RSS feeds\, news\, and education for people with Cushing's or othe r endocrine problems\, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to h igh levels of cortisol. View all the items here: https://www.bravelets.com /bravepage/cushing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:$10 from every item sold on this page will be donated to help raise awareness for Cushing&rsquo\;s Disease through th e work of the Cushings Help family of websites. For nearly 16 years we hav e provided information\, support\, RSS feeds\, news\, and education for pe ople with Cushing's or other endocrine problems\, their friends and famili es. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol.
View all the it ems here: \;https://www.bravelets.com/bravepage/cushing -s-help-and-support
CATEGORIES:Support Cushing's Help UID:20160430T1401440Z-549422-85@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 30: Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300430;BYMONTH=4;BYMONTHDAY=30 DTSTART;VALUE=DATE:20160430 DTEND;VALUE=DATE:20160501 DESCRIPTION:Today is the final day of the Cushing’s Awareness Challenge and I wanted to leave you with this word of advice… Read more at https://cush ings.invisionzone.com/topic/56893-day-30-cushing%E2%80%99s-awareness-chall enge-2022/ X-ALT-DESC;FMTTYPE=text/html:Today is the final day of the Cushing&rsquo \;s Awareness Challenge and I wanted to leave you with this word of advice &hellip\;
Read more at \;https://cushings.invisionzone.com/topic/56893-day-30-cushing%E 2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220430T1141080Z-549422-86@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160501 SUMMARY:A Single-Center 10-Year Experience with Pasireotide in Cushing's Di sease: Patients' Characteristics and Outcome DESCRIPTION:Pasireotide is the first pituitary-directed drug approved for t reating patients with Cushing's disease (CD). Our 10-year experience with pasireotide in CD is reported here. Read more at https://cushieblog.com/20 16/04/30/a-single-center-10-year-experience-with-pasireotide-in-cushings-d isease-patients-characteristics-and-outcome/ X-ALT-DESC;FMTTYPE=text/html:Pasireotide is the first pituitary-directed drug approved for treating patients with Cushing's disease (CD). Our 10-y ear experience with pasireotide in CD is reported here.
CATEGORIES:News Items UID:20160430T1724450Z-549422-87@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160501 SUMMARY:Resolution of the physical features of Cushing's syndrome in a pati ent with a cortisol secreting adrenocortical adenoma after unilateral adre nalectomy DESCRIPTION:A 37-year-old woman developed clinical manifestations of Cushin g’s syndrome over a span of 2 years. Physical examination revealed feature s that best describe Cushing’s syndrome\, such as wide purple striae (>1 c m) over the abdomen\, facial plethora and easy bruisability. Other featur es observed were hypertension\, moon facies\, acne\, a dorsocervical fat p ad\, central obesity and dyslipidaemia. Read more at https://cushieblog.co m/2016/05/01/resolution-of-the-physical-features-of-cushings-syndrome-in-a -patient-with-a-cortisol-secreting-adrenocortical-adenoma-after-unilateral -adrenalectomy/ X-ALT-DESC;FMTTYPE=text/html:A 37-year-old woman developed clinical mani festations of Cushing&rsquo\;s syndrome over a span of 2 years. Physical e xamination revealed features that best describe Cushing&rsquo\;s syndrome\ , such as wide purple striae (>\;1 cm) over the abdomen\, facial plethor a and easy bruisability. \; \;Other features observed were hyperte nsion\, moon facies\, acne\, a dorsocervical fat pad\, central obesity and dyslipidaemia.
Read more at \;https://cushieblog.com/2016/05/01/resoluti on-of-the-physical-features-of-cushings-syndrome-in-a-patient-with-a-corti sol-secreting-adrenocortical-adenoma-after-unilateral-adrenalectomy/ CATEGORIES:News Items UID:20160501T1335140Z-549422-88@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160501 SUMMARY:Amee (Amee)\, Adrenal/Pituitary Bio DESCRIPTION:Amee is from Channel Islands\, UK. She is post Cushings Syndro me with a unilateral Adrenalectomy\, Hypothyroid and now has a Pituitary micro-adenoma. Read more at https://cushingsbios.com/2016/05/01/amee-amee- adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:
Amee is from Channel Islands\, UK. \;S he is post Cushings Syndrome \;with a unilateral Adrenalectomy\, Hypo thyroid and now has a Pituitary micro-adenoma.
Read more at \; https://cushingsbios.com/2016/05/01/amee-amee-adrenal-bio/< /p> CATEGORIES:Cushie Bios UID:20160501T2221050Z-549422-89@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160501 SUMMARY:‘Adrenal Fatigue’ Not Always Used Accurately DESCRIPTION:The term “adrenal fatigue” is increasingly used\, and not alway s correctly — or\, at least\, it is used in cases where it’s not clear if that is actually the case. But let me start by discussing what has happene d to you. Pituitary apoplexy is bleeding into the pituitary gland\, usuall y into a pituitary tumor\, as in your case. This may cause severe headache s and vision changes\, and often it prevents the pituitary from making the many important hormones that control the endocrine glands and regulate th e body. Read more at https://cushieblog.com/2016/05/01/adrenal-fatigue-not -always-used-accurately/ X-ALT-DESC;FMTTYPE=text/html:
The term &ldquo\;adrenal fatigue&rdquo\; is increasingly used\, and not always correctly &mdash\; or\, at least\, it is used in cases where it&rsquo\;s not clear if that is actually the case. But let me start by discussing what has happened to you. Pituitary apople xy is bleeding into the pituitary gland\, usually into a pituitary tumor\, as in your case. This may cause severe headaches and vision changes\, and often it prevents the pituitary from making the many important hormones t hat control the endocrine glands and regulate the body.
Read more at \;https://cushieblog.com/2016/05/01/a drenal-fatigue-not-always-used-accurately/
CATEGORIES:News Items UID:20160501T2243120Z-549422-90@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Diagnostic Testing for Cushing's DTSTART;VALUE=DATE:20160527 DTEND;VALUE=DATE:20160528 RRULE:FREQ=MONTHLY;UNTIL=20200401;BYDAY=4FR DESCRIPTION:Diagnosis is based on a review of the patient's medical history \, physical examination and laboratory tests. Often x-ray exams of the adr enal or pituitary glands are useful for locating tumors. These tests help to determine if excess levels of cortisol are present and why. No single l ab test is perfect\, and usually\, several are needed. The three most comm on tests used to diagnose Cushing's syndrome are the 24-hour urinary free cortisol test\, the measurement of midnight plasma cortisol or late-night salivary cortisol\, and the low-dose dexamethasone suppression test (LDDST ). Another test\, the dexamethasone-corticotropin-releasing hormone (dexam ethasone-CRH) test\, may be needed to distinguish Cushing's syndrome from other causes of excess cortisol. Read more at http://www.cushings-info.com /index.php?title=Diagnostic_Testing X-ALT-DESC;FMTTYPE=text/html:Diagnosis is based on a review of the patie nt's medical history\, physical examination and laboratory tests. Often x- ray exams of the adrenal or pituitary glands are useful for locating tumor s. These tests help to determine if excess levels of cortisol are present and why.
No single lab test is perfect\, and usually\, several are needed. The three most common tests used to diagnose Cushing's syndrome a re the 24-hour urinary free cortisol test\, the measurement of midnight pl asma cortisol or late-night salivary cortisol\, and the low-dose dexametha sone suppression test (LDDST). Another test\, the dexamethasone-corticotro pin-releasing hormone (dexamethasone-CRH) test\, may be needed to distingu ish Cushing's syndrome from other causes of excess cortisol.
Read more at \;http://www.cushings-info.com/index.php?title =Diagnostic_Testing
CATEGORIES:Cushings UID:20160501T2248010Z-549422-91@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy May Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200501;BYMONTH=5;BYMONTHDAY=1 DTSTART;VALUE=DATE:20160501 DTEND;VALUE=DATE:20160502 DESCRIPTION:Learn to do a Maypole dance at http://www.maryo.co/happy-may-da y/ X-ALT-DESC;FMTTYPE=text/html:Learn to do a Maypole dance at \;http://www.maryo.co /happy-may-day/
CATEGORIES:Holiday UID:20160501T2337280Z-549422-92@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160502 SUMMARY:Addison's disease: Primary adrenal insufficiency DESCRIPTION:Patients suffering from chronic adrenal insufficiency require l ifelong hormone supplementation. Education in dose adaption during physica l and mental stress or emergency situations is essential to prevent life-t hreatening adrenal crises. Patients with adrenal insufficiency should carr y an emergency card and emergency kit with them. Read more at https://cush ieblog.com/2016/05/02/addisons-disease-primary-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Patients suffering from chronic adrenal ins ufficiency require lifelong hormone supplementation. Education in dose ada ption during physical and mental stress or emergency situations is essenti al to prevent life-threatening adrenal crises. Patients with adrenal insuf ficiency should carry an emergency card and emergency kit with them.
Read more at \;https://cushieblog .com/2016/05/02/addisons-disease-primary-adrenal-insufficiency/
CATEGORIES:News Items UID:20160502T0641480Z-549422-93@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Support Cushing's Help with iGive DTSTART;VALUE=DATE:20160510 DTEND;VALUE=DATE:20160511 RRULE:FREQ=MONTHLY;UNTIL=20200402;BYDAY=2TU,5TU DESCRIPTION:Get a free iGive.com account so your favorite cause can earn mo ney every time you shop online. There're over 50\,000 causes listed alread y and if you don't find yours you can add it on the fly. It's free and eas y! http://www.igive.com/MaAlgd4 iGive.com You Shop. Your Charity Gets Mone y. For Free.™ iGive is a free service where shopping at any of 1700 stores like Amazon\, Travelocity\, Overstock\, and many more\, means a donation to your favorite cause. X-ALT-DESC;FMTTYPE=text/html:| Get a free iGive.com account so your favorite cause can earn money eve
ry time you shop online. There're over 50\,000 causes listed already and i
f you don't find yours you can add it on the fly. It's free and easy!
\;http://www.igive.
com/MaAlgd4 | |
| iGive.com You Shop. Your Charity Gets Money. For Free.&trade\; iGive is a free servic e where shopping at any of 1700 stores like Amazon\, Travelocity\, Oversto ck\, and many more\, means a donation to your favorite cause. |
The University of Pennsylvania School of Me dicine was the first and only medical school in the thirteen American colo nies when\, in the fall of 1765\, students enrolled for 'anatomical lectur es' and a course on 'the theory and practice of physik.' By organizing a m edical faculty separate and distinct from the collegiate faculty\, Penn's trustees effectively created the first university in North America\, thoug h the corporate name continued as the College of Philadelphia until 1779.< /p>
Read more at \;http://www.archives.upenn.edu/his ty/features/schools/med.html
CATEGORIES:This Day in Medical History UID:20160502T0711590Z-549422-95@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:American chemist Glenn T. Seaborg born\, 1912 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200419;BYMONTH=4;BYMONTHDAY=19 DTSTART;VALUE=DATE:20000419 DTEND;VALUE=DATE:20000420 DESCRIPTION:He is known for his discovery of iodine-131\, which is used to treat thyroid disease. X-ALT-DESC;FMTTYPE=text/html:He is known for his discovery of iodine-131 \, which is used to treat thyroid disease.
CATEGORIES:This Day in Medical History UID:20160502T0724060Z-549422-96@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Insulin becomes available for the general public\, 1923 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200415;BYMONTH=4;BYMONTHDAY=15 DTSTART;VALUE=DATE:20000415 DTEND;VALUE=DATE:20000416 DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html: CATEGORIES:This Day in Medical History UID:20160502T0726110Z-549422-97@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160721 SUMMARY:The MAGIC Foundation’s Annual Adult Convention RRULE:FREQ=DAILY;COUNT=4 DESCRIPTION:Lots of Cushies go to this meeting. Dr. Theodore Friedman (Dr. F) will be one of the speakers. More information at http://cushings.invis ionzone.com/index.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-a dult-convention/ X-ALT-DESC;FMTTYPE=text/html:Lots of Cushies go to this meeting. \; Dr. Theodore Friedman (Dr. F) will be one of the speakers.
More in formation at \;http://cushings.invisionzone.com/index.php?/topic/54062-the-magic -foundation%E2%80%99s-annual-adult-convention/
CATEGORIES:Events and Meetings UID:20160502T1358210Z-549422-98@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for the The MAGIC Foundation’s Annual Adult Convention DTSTART;VALUE=DATE:20160502 DTEND;VALUE=DATE:20160503 RRULE:FREQ=WEEKLY;UNTIL=20160720;BYDAY=MO,FR DESCRIPTION:More info at http://cushings.invisionzone.com/index.php?/topic/ 54062-the-magic-foundation%E2%80%99s-annual-adult-convention/ X-ALT-DESC;FMTTYPE=text/html:More info at \;http://cushings.invisionzone.com/i ndex.php?/topic/54062-the-magic-foundation%E2%80%99s-annual-adult-conventi on/
CATEGORIES:Events and Meetings UID:20160530T1416160Z-549422-99@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:How Cushing's has broken my body RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200502;BYMONTH=5;BYMONTHDAY=2 DTSTART;VALUE=DATE:20140502 DTEND;VALUE=DATE:20140503 DESCRIPTION:It isn't April anymore\, but 2014 week's events have inspired a nother post by Catherine trying to explain a few specific limitations and misunderstandings. Read more at https://cushieblogger.com/2016/05/02/how-c ushings-has-broken-my-body/ X-ALT-DESC;FMTTYPE=text/html:It isn't April anymore\, but 2014 week's ev ents have inspired another post by Catherine trying to explain a few speci fic limitations and misunderstandings.
Read more at \;https://cushieblogger.com/2016/05/02/how-cushings-has-broken -my-body/
CATEGORIES:Cushings UID:20160502T1427080Z-549422-100@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Recruitment for Cushing's Syndrome Clinical Study DTSTART;VALUE=DATE:20160602 DTEND;VALUE=DATE:20160603 RRULE:FREQ=WEEKLY;UNTIL=20200502;INTERVAL=2;BYDAY=TH DESCRIPTION:This trial is testing the safety and effectiveness of a new inv estigational drug for the treatment of Cushing's Syndrome. Under the super vision of qualified physicians\, cortisol levels and symptoms of Cushing’s Syndrome will be closely followed along with any signs of side effects. L earn more at http://curec.lk/1X0J6kT X-ALT-DESC;FMTTYPE=text/html:This trial is testing the safety and effect iveness of a new investigational drug for the treatment of Cushing's Syndr ome. Under the supervision of qualified physicians\, cortisol levels and s ymptoms of Cushing&rsquo\;s Syndrome will be closely followed along with a ny signs of side effects.
Learn more at \;http://curec.lk/1X0J6kT
\;< /p> CATEGORIES:Cushings UID:20161011T0143070Z-549422-101@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160502 SUMMARY:Why Was This Woman Gaining Weight Despite Her Diet? DESCRIPTION:“I just can’t seem to lose weight\,” the 59-year-old woman said quietly. She had tried everything\, she told the young doctor\, who was t raining to be an endocrinologist at Mount Sinai Hospital in New York City. Weight Watchers. Exercise. She ate more vegetables\, less fat\, then fewe r carbs. But still she was gaining weight\, 30 pounds during the past seve n months\, including 12 in the past two weeks. She had never been skinny\, she continued\, but shapely. In her mid-40s\, she started gaining weight\ , slowly at first\, then rapidly. She was considering bariatric surgery\, but she wanted to make sure she wasn’t missing something obvious. She had low thyroid hormones and had to take medication. Could her thyroid be off again? Read more at https://cushieblog.com/2016/05/02/why-was-this-woman-g aining-weight-despite-her-diet/ X-ALT-DESC;FMTTYPE=text/html:
&ldquo\;I just can&rsquo\;t seem to lose we ight\,&rdquo\; the 59-year-old woman said quietly. She had tried everythin g\, she told the young doctor\, who was training to be an endocrinologist at Mount Sinai Hospital in New York City. Weight Watchers. Exercise. She a te more vegetables\, less fat\, then fewer carbs. But still she was gainin g weight\, 30 pounds during the past seven months\, including 12 in the pa st two weeks. She had never been skinny\, she continued\, but shapely. In her mid-40s\, she started gaining weight\, slowly at first\, then rapidly. She was considering bariatric surgery\, but she wanted to make sure she w asn&rsquo\;t missing something obvious. She had low thyroid hormones and h ad to take medication. Could her thyroid be off again?
Read more a t \;https://cushieblog.com/2016/ 05/02/why-was-this-woman-gaining-weight-despite-her-diet/
CATEGORIES:News Items UID:20160502T1619090Z-549422-102@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Addison's Disease vs Cushing's Syndrome Nursing DTSTART;VALUE=DATE:20160526 DTEND;VALUE=DATE:20160527 RRULE:FREQ=MONTHLY;UNTIL=20200503;BYDAY=4TH DESCRIPTION:Nursing notes and video on Addison's Disease and Cushing's Synd rome/Disease Read more at https://cushieblog.com/2016/05/02/addisons-disea se-vs-cushings-syndrome-nursing/ X-ALT-DESC;FMTTYPE=text/html:Nursing notes and video on Addison's Diseas e and Cushing's Syndrome/Disease
Read more at \;https://cushieblog.com/2016/05/02/addisons-disease-vs-c ushings-syndrome-nursing/
CATEGORIES:Cushings UID:20160502T2009530Z-549422-103@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160503 SUMMARY:Sharon M (Sharon)\, Ectopic Cushing's DESCRIPTION:Sharon is from Fort Smith\, Arkansas. She was diagnosed with C ushings in 2005. She had surgery in 2006 which required her lower right l ung to be removed. It was rare because her symptoms cycled. Read more at h ttps://cushingsbios.com/2016/05/02/sharon-m-sharon-ectopic-cushings/ X-ALT-DESC;FMTTYPE=text/html:Sharon is from Fort Smith\, Arkansas. \;She was diagnosed with Cushings in 2005. \;She had surgery in 2006 which required her lower right lung to be removed. It was rare because her symptoms cycled.
Read more at \;https:/ /cushingsbios.com/2016/05/02/sharon-m-sharon-ectopic-cushings/
CATEGORIES:Cushie Bios UID:20160503T0157070Z-549422-104@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160502 SUMMARY:A New Cushie added to the Cushing's World Map DESCRIPTION:Add your location and diagnosis to our Cushing's World Map. He lpful Doctor locations are being added to this map\, as well. See the map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:Add your location and diagnosis to our Cush
ing's World Map. \;
Helpful Doctor locations are being added to t
his map\, as well.
See the map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&\;locate=1&a mp\;add=1
CATEGORIES:Cushie Bios UID:20160503T0205020Z-549422-105@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:World Asthma Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200503;BYMONTH=5;BYMONTHDAY=3 DTSTART;VALUE=DATE:20160503 DTEND;VALUE=DATE:20160504 DESCRIPTION:Asthma is a common condition that causes your airways to become narrow and swollen. This can make it hard to breathe. Asthma symptoms inc lude coughing\, wheezing\, and chest tightness or pain. Many adults strugg le with asthma even though they take medication to treat it. That's why re searchers are working to develop medications that may better treat asthma in the future. More info at http://curec.lk/1Y54ths X-ALT-DESC;FMTTYPE=text/html:Asthma is a common condition that causes yo ur airways to become narrow and swollen. This can make it hard to breathe. Asthma symptoms include coughing\, wheezing\, and chest tightness or pain .
Many adults struggle with asthma even though they take medicatio n to treat it. That's why researchers are working to develop medications t hat may better treat asthma in the future.
More info at \;http://curec.lk/1Y54ths< /p> CATEGORIES:Holiday UID:20160503T1236440Z-549422-106@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Help Cushing's Help to Help You! DTSTART;VALUE=DATE:20160525 DTEND;VALUE=DATE:20160526 RRULE:FREQ=MONTHLY;UNTIL=20200403;BYDAY=4WE DESCRIPTION:Cushings-Help has provided information and support for people w ith Cushing's or other endocrine problems\, their friends and families for over 15 years. The Cushings Help family of websites and the message board s are growing fast. Each has outgrown it's web server and had to be moved to accommodate this growth. Read more at http://fnd.us/apR55?ref=sh_73Ppz4 X-ALT-DESC;FMTTYPE=text/html:
Cushings-Help has provided information and support for peo ple with Cushing's or other endocrine problems\, their friends and familie s for over 15 years.
The Cushings Help family of websites and
\;the message boards \;are growing fast. Each has outgrown it's
web server and had to be moved to accommodate this growth.
Read
more at \;http://fnd.us/apR55?ref=sh_73Ppz4
Abigail is from Spring Valley\, New York. S he has been sick for the 13 years since May 2003\, and for the first 12 ye ars she did not have the correct diagnosis. Her symptoms first started out with like sinus infections.
Read more at \;https://cushingsbios.com/2016/05/03/abigail-b-helpmepleez-pituitary -bio/
CATEGORIES:Cushie Bios UID:20160503T2208230Z-549422-108@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Stay Safe - Adrenal Crisis! DTSTART;VALUE=DATE:20160518 DTEND;VALUE=DATE:20160519 RRULE:FREQ=MONTHLY;UNTIL=20200403;BYDAY=3WE DESCRIPTION:If left untreated\, adrenal insufficiency can cause serious ill ness or death. But by working with their doctors and nurses\, patients can learn how to manage this condition. Learn more at http://www.cushings-i nfo.com/index.php?title=Adrenal_Crisis! X-ALT-DESC;FMTTYPE=text/html:If left untreated\, adrenal insufficiency c an cause serious illness or death. But by working with their doctors and n urses\, patients can learn how to manage this condition.
\;
Learn more at \;http://www.cushings-info.com/index .php?title=Adrenal_Crisis!
CATEGORIES:Cushings UID:20160503T2220530Z-549422-109@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:May the Fourth Be With You! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200504;BYMONTH=5;BYMONTHDAY=4 DTSTART;VALUE=DATE:20140504 DTEND;VALUE=DATE:20140505 DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html:
Susanna is from Reading\, PA. She had pitui tary surgery on Nov 13\, 2015 at Johns Hopkins.
Read more at \ ;https://cushingsbios.com/2016/05/04/susanna-n-s usanna-nolt-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160504T1304130Z-549422-111@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160504 SUMMARY:A New Cushie added to the Cushing's World Map DESCRIPTION:Add your location and diagnosis to our Cushing's World Map. He lpful Doctor locations are being added to this map\, as well. See the map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:Add your location and diagnosis to our Cush
ing's World Map. \;
Helpful Doctor locations are being added to t
his map\, as well.
See the map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&\;locate=1&a mp\;add=1
CATEGORIES:Cushie Bios UID:20160504T1307230Z-549422-112@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20160518T140000 DTEND;TZID=America/New_York:20160518T150000 SUMMARY:RDLA's May Legislative In-Person Meeting DESCRIPTION:The NIH and FDA: Vital Agencies in the Fight Against Rare Disea ses Wednesday\, May 18th\, 2016 2:00 pm – 3:00 pm Senate Capitol Visitors Center Room 201\, Washington\, D.C.\, 20004 Read more at https://cushieblo g.com/2016/05/04/rdlas-may-legislative-in-person-meeting/ X-ALT-DESC;FMTTYPE=text/html:The NIH and FDA: Vital Agencies in the Figh
t Against Rare Diseases
Wednesday\, May 18th\, 2016
2:00 p
m &ndash\; 3:00 pm
Senate Capitol Visitors Center Room 201\, Wa
shington\, D.C.\, 20004
Read more at \;https://cushieblog.com/2016/05/04/rdlas-may-legislative-in-person-meet ing/
CATEGORIES:Events and Meetings UID:20160504T1505550Z-549422-113@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for the RDLA's May Legislative In-Person Meeting DTSTART;VALUE=DATE:20160601 DTEND;VALUE=DATE:20160602 RRULE:FREQ=WEEKLY;UNTIL=20160517;INTERVAL=2;BYDAY=WE DESCRIPTION:The NIH and FDA: Vital Agencies in the Fight Against Rare Disea ses Wednesday\, May 18th\, 2016 2:00 pm – 3:00 pm Senate Capitol Visitors Center Room 201\, Washington\, D.C.\, 20004 Read more at https://cushieblo g.com/2016/05/04/rdlas-may-legislative-in-person-meeting/ X-ALT-DESC;FMTTYPE=text/html:The NIH and FDA: Vital Agencies in the Figh
t Against Rare Diseases
Wednesday\, May 18th\, 2016
2:00 pm & ndash\; 3:00 pm
Senate Capitol Visitors Center Room 201\, Washingt on\, D.C.\, 20004
Read more at \;ht tps://cushieblog.com/2016/05/04/rdlas-may-legislative-in-person-meeting/
CATEGORIES:Events and Meetings UID:20160504T1507400Z-549422-114@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Edward Calvin Kendall died\, 1972 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200504;BYMONTH=5;BYMONTHDAY=4 DTSTART;VALUE=DATE:20000504 DTEND;VALUE=DATE:20000505 DESCRIPTION: Along with his work on the adrenal gland\, he is remembered fo r successfully isolating thyroxine\, a thyroid gland hormone. X-ALT-DESC;FMTTYPE=text/html:\;Along with his work on the adrenal g land\, he is remembered for successfully isolating thyroxine\, a thyroid g land hormone.
CATEGORIES:This Day in Medical History UID:20160504T2004270Z-549422-115@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy Cinco de Mayo! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200505;BYMONTH=5;BYMONTHDAY=5 DTSTART;VALUE=DATE:20000505 DTEND;VALUE=DATE:20000506 DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html:
Use Code TREAT5 at \;htt
ps://www.bravelets.com/bravepage/cushing-s-help-and-support
$10 from every item sold on this page will be donated to help raise aware
ness for Cushing&rsquo\;s Disease through the work of the Cushings Help fa
mily of websites. For nearly 16 years we have provided information\, suppo
rt\, RSS feeds\, news\, and education for people with Cushing's or other e
ndocrine problems\, their friends and families. Cushing's syndrome is a ho
rmonal disorder caused by prolonged exposure of the body's tissues to high
levels of cortisol.
Be careful with over the counter meds! &nbs
p\;
SINGAPORE - The Health Sciences Authority (HSA) has warned
the public not to purchase or consume a health product labelled in Chinese
as 'Hai Leng Hai Beh Herbal Itch Removing Capsule' after a customer consu
med it and has now been diagnosed with a metabolic disorder known as Cushi
ng's syndrome.
Read more at \;https: //cushieblog.com/2016/05/06/woman-diagnosed-with-cushings-syndrome/
CATEGORIES:News Items UID:20160506T1359360Z-549422-118@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160506 SUMMARY:Delayed diagnosis\, barriers to care increase morbidity in children with Cushing’s syndrome DESCRIPTION:Dr. Gkourogianni and colleagues analyzed data from 135 children treated for Cushing’s syndrome (transsphenoidal surgery) at the NIH betwe en 1997 and 2015 (mean age\, 13 years\; 51% girls\; 33% Hispanic or black) . Researchers used a 10-point index for rating severity in pediatric Cushi ng’s syndrome based on predefined cutoffs\; degree of hypercortisolemia\, impaired glucose tolerance\, and hypertension were graded on a 3-point sca le (0-2)\; height\, BMI z scores\, duration of disease\, and tumor invasio n were graded on a 2-point scale (0-1). Read more at https://cushieblog.co m/2016/05/06/delayed-diagnosis-barriers-to-care-increase-morbidity-in-chil dren-with-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Dr. \;Gkourogianni and colleagues analy zed data from 135 children treated for Cushing&rsquo\;s syndrome (transsph enoidal surgery) at the NIH between 1997 and 2015 (mean age\, 13 years\; 5 1% girls\; 33% Hispanic or black). Researchers used a 10-point index for r ating severity in pediatric Cushing&rsquo\;s syndrome based on predefined cutoffs\; degree of hypercortisolemia\, impaired glucose tolerance\, and h ypertension were graded on a 3-point scale (0-2)\; height\, BMI z scores\, duration of disease\, and tumor invasion were graded on a 2-point scale ( 0-1).
Read more at \;https://cushieblog.com/2016/05/06/delay ed-diagnosis-barriers-to-care-increase-morbidity-in-children-with-cushings -syndrome/
\;
CATEGORIES:News Items UID:20160506T1542330Z-549422-119@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy Mother's Day! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200507;BYMONTH=5;BYMONTHDAY=8 DTSTART;VALUE=DATE:20160508 DTEND;VALUE=DATE:20160509 DESCRIPTION:More info at http://www.maryo.co/happy-mothers-day-2/ X-ALT-DESC;FMTTYPE=text/html:
More info at \;http://www.maryo.co/happy-mothers-day-2/
CATEGORIES:Holiday UID:20160508T0647230Z-549422-120@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY: In Memory of Gregory J. Bart Jr. ~ May 7\, 2016 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300507;BYMONTH=5;BYMONTHDAY=7 DTSTART;VALUE=DATE:20160507 DTEND;VALUE=DATE:20160508 DESCRIPTION:He died of a presumed heart attack. September 19\, 2015 he said ''I was diagnosed hypertensive way back when I was 20. The condition rema ined for years\, and became more acute with my cushings pit tumor. I still have high blood pressure\, partially teated with three meds. I'll have to consult my doc and see if this may also be an issue.' More information at https://cushingsbios.com/2022/05/07/in-memory-of-gregory-j-bart-jr-may-7- 2016-2/ X-ALT-DESC;FMTTYPE=text/html:He died of a presumed heart attack.
September 19\, 2015 he said ''I was diagnosed hypertensive way back when I was 20. The condition remained for years\, and became more acute with my cushings pit tumor. I still have high blood pressure\, partially teated w ith three meds. I'll have to consult my doc and see if this may also be an issue.'
More information at \;https://cushingsbios.com/2022/05/07/in-memory-of-gregory-j-bart-jr-may-7 -2016-2/
CATEGORIES:In Memory UID:20220507T2149530Z-549422-121@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160509 SUMMARY:Dee (DeeO)\, pituitary (prolactinoma) bio DESCRIPTION:A Golden Oldie. Dee is from Australia. Her daughter has a pr olactinoma and Dee is wondering if she could have Cushing's. Read more at https://cushingsbios.com/2016/05/09/dee-deeo-pituitary-prolactinoma-bio/ X-ALT-DESC;FMTTYPE=text/html:A Golden Oldie. \; Dee is from Austral ia. \;Her daughter has a prolactinoma and Dee is wondering if she cou ld have Cushing's.
Read more at \;htt ps://cushingsbios.com/2016/05/09/dee-deeo-pituitary-prolactinoma-bio/< /p> CATEGORIES:Cushie Bios UID:20160509T1604360Z-549422-122@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:William Moulton Marston was born\, 1893 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200509;BYMONTH=5;BYMONTHDAY=9 DTSTART;VALUE=DATE:20000509 DTEND;VALUE=DATE:20000510 DESCRIPTION:American psychologist\, lawyer\, inventor and comic book writer William Moulton Marston was born. Along with creating the character Wonde r Woman\, he is also remembered for creating the systolic blood pressure t est. X-ALT-DESC;FMTTYPE=text/html:
American psychologist\, lawyer\, inventor a nd comic book writer William Moulton Marston was born. Along with creating the character Wonder Woman\, he is also remembered for creating the systo lic blood pressure test.
CATEGORIES:This Day in Medical History UID:20160510T1252590Z-549422-123@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160510 SUMMARY:lyebye0\, Pituitary Bio DESCRIPTION:lyebye0 is from Louisiana. She has a pituitary tumor that the d octor wants to watch. Read more at https://cushingsbios.com/2016/05/10/lye bye0-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:lyebye0 is from Louisiana. She has a pituit ary tumor that the doctor wants to watch.
Read more at \;https://cushingsbios.com/2016/05/10/lyebye0-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160510T2300480Z-549422-124@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160511 SUMMARY:Barbara (2maro)\, Pituitary Bio DESCRIPTION:Barbara is from Houston\, Texas. She ended up at at MD Anderso n with Dr. McCutcheon who removed the pituitary tumor transsphenoidally. Miraculously\, over the next 9 months\, she lost 100 pounds. She is no lo nger diabetic and did not have high blood pressure until 2008. Read more a t https://cushingsbios.com/2016/05/11/barbara-2maro-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Barbara is from Houston\, Texas. \;She ended up at at MD Anderson with Dr. McCutcheon who removed the pituitary tumor transsphenoidally. \;Miraculously\, over the next 9 months\, sh e lost 100 pounds. \;She is no longer diabetic and did not have high blood pressure until 2008.
Read more at \;htt ps://cushingsbios.com/2016/05/11/barbara-2maro-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160511T1010260Z-549422-125@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160512 SUMMARY:A Team Effort to Treat a Pea-Sized Gland DESCRIPTION:A subset of pituitary tumors secrete excess hormones\, which cr eate syndromes characterized by whatever hormone is being secreted in exce ss\, Dr. Coppa added. Oftentimes these problems are diagnosed by an endocr inologist. Read more at https://cushieblog.com/2016/05/12/a-team-effort-to -treat-a-pea-sized-gland/ X-ALT-DESC;FMTTYPE=text/html:A subset of pituitary tumors secrete excess hormones\, which create syndromes characterized by whatever hormone is be ing secreted in excess\, Dr. Coppa added. Oftentimes these problems are di agnosed by an endocrinologist.
Read more at \;https://cushieblog.com/2016/05/12/a-team-effort-to-treat
-a-pea-sized-gland/
Rare Disease Legislative Advocates in conju nction with the Rare Disease Congressional Caucus Co-Chairs will host \;a briefing on \;The NIH and FDA: Vital Agencies in the Fight against Rare Disease s \;on May 18th \;from 2:00-3:00pm at \;the Senate Capitol Visitors Center in Washington\, DC. \;The b riefing\, to be moderated by Research!America Vice President of Policy and Advocacy Ellie Dehoney\, will feature remarks by a distinguished panel.
More info at \;http://everylifefoundation.org/fastertrack_ may_2016/
CATEGORIES:Events and Meetings UID:20160512T1645080Z-549422-127@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Registration Open for Regional Legislative Conferences and In-Distr ict Lobby Days DTSTART;VALUE=DATE:20160512 DTEND;VALUE=DATE:20160513 RRULE:FREQ=WEEKLY;UNTIL=20160701;BYDAY=TU,SA DESCRIPTION:Rare Disease Legislative Advocates will host In-District Lobby Days to facilitate meetings for rare advocates across the country with the ir elected federal officials during the summer Congressional recess (July 18th through September 5th). Registration is open through July 1st. More i nformation at https://cushieblog.com/2016/05/12/registration-open-for-regi onal-legislative-conferences-and-in-district-lobby-days/ X-ALT-DESC;FMTTYPE=text/html:Rare Disease Legislative Advocates will hos t In-District Lobby Days to facilitate meetings for rare advocates across the country with their elected federal officials during the summer Congres sional recess (July 18th \;through September 5th ).
Registration \;is open through July 1st.
More information at \;https://cushieblog.com/2016/0
5/12/registration-open-for-regional-legislative-conferences-and-in-distric
t-lobby-days/
These half-day conferences will feature rem arks from federal elected officials\, academics\, patient advocates and ot her rare disease stakeholders. \; Lunch will be provided.
Regi stration will be available \;here \;through June 22nd. D on&rsquo\;t miss the opportunity to learn and network with other local adv ocates!
More info at \;https://cushieblog.com/2016/05/12/registrati on-open-for-regional-legislative-conferences-and-in-district-lobby-days/
CATEGORIES:Events and Meetings UID:20160512T1701170Z-549422-129@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for Regional Legislative Conference in Boston\, Chicago an d Seattle DTSTART;VALUE=DATE:20160512 DTEND;VALUE=DATE:20160513 RRULE:FREQ=WEEKLY;UNTIL=20160622;BYDAY=SU,WE DESCRIPTION:These half-day conferences will feature remarks from federal el ected officials\, academics\, patient advocates and other rare disease sta keholders. Lunch will be provided. Registration will be available here t hrough June 22nd. Don’t miss the opportunity to learn and network with oth er local advocates! More info at https://cushieblog.com/2016/05/12/registr ation-open-for-regional-legislative-conferences-and-in-district-lobby-days / X-ALT-DESC;FMTTYPE=text/html:These half-day conferences will feature rem arks from federal elected officials\, academics\, patient advocates and ot her rare disease stakeholders. \; Lunch will be provided. \;
Registration will be available \;here \;through June 22nd. Don&rsquo\;t miss the opportunity to learn and network with other lo cal advocates!
More info at \;https://cushieblog.com/2016/05/12/reg istration-open-for-regional-legislative-conferences-and-in-district-lobby- days/
CATEGORIES:Events and Meetings UID:20160530T1415540Z-549422-130@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160630 SUMMARY:Regional Legislative Conference in Chicago DESCRIPTION:These half-day conferences will feature remarks from federal el ected officials\, academics\, patient advocates and other rare disease sta keholders. Lunch will be provided. Registration will be available here th rough June 22nd. Don’t miss the opportunity to learn and network with othe r local advocates! More info at https://cushieblog.com/2016/05/12/registra tion-open-for-regional-legislative-conferences-and-in-district-lobby-days/ X-ALT-DESC;FMTTYPE=text/html:These half-day conferences will feature rem arks from federal elected officials\, academics\, patient advocates and ot her rare disease stakeholders. \; Lunch will be provided.
Regi stration will be available \;here \;through June 22nd. D on&rsquo\;t miss the opportunity to learn and network with other local adv ocates!
More info at \;https://cushieblog.com/2016/05/12/registration-open-for-regi onal-legislative-conferences-and-in-district-lobby-days/
CATEGORIES:Events and Meetings UID:20160512T1705550Z-549422-131@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160630 SUMMARY:Regional Legislative Conference in Seattle DESCRIPTION:These half-day conferences will feature remarks from federal el ected officials\, academics\, patient advocates and other rare disease sta keholders. Lunch will be provided. Registration will be available here th rough June 22nd. Don’t miss the opportunity to learn and network with othe r local advocates! More info at https://cushieblog.com/2016/05/12/registra tion-open-for-regional-legislative-conferences-and-in-district-lobby-days/ X-ALT-DESC;FMTTYPE=text/html:These half-day conferences will feature rem arks from federal elected officials\, academics\, patient advocates and ot her rare disease stakeholders. \; Lunch will be provided.
Regi stration will be available \;here \;through June 22nd. D on&rsquo\;t miss the opportunity to learn and network with other local adv ocates!
More info at \;https://cushieblog.com/2016/05/12/registration-open-for-regi onal-legislative-conferences-and-in-district-lobby-days/
CATEGORIES:Events and Meetings UID:20160512T1707250Z-549422-132@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160513 SUMMARY:Happy Friday the 13th! DESCRIPTION:http://www.maryo.co/i-almost-forgot/ X-ALT-DESC;FMTTYPE=text/html:http://www.maryo.co/i-almost-forgot/
CATEGORIES:Holiday UID:20160513T1854210Z-549422-133@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20160528T103000 DTEND;TZID=America/New_York:20160528T133000 SUMMARY:Pituitary Patient Support Group Meeting DESCRIPTION: Pituitary Patient Support Group Meeting\, Saturday May 28\, 2 016. Neuro Endocrine expert Dr. Pejman Cohan will be speaking. 'From Diagn osis to Treatments' There will be time for Q&A and lunch served after the meeting. Meeting 10:30am-11:45am Lunch 11:45am-1:00pm More info at https:/ /cushieblogger.com/2016/05/15/pituitary-patient-support-group-meeting/ X-ALT-DESC;FMTTYPE=text/html:
\;
Pituitary Patient Support Group Meeting\, Saturday M ay 28\, 2016. Neuro Endocrine expert Dr. Pejman Cohan will be speaking. 'F rom Diagnosis to Treatments'
There will be time for Q&\;A and l unch served after the meeting. Meeting 10:30am-11:45am
Lunch 11:45 am-1:00pm
More info at \;https:/ /cushieblogger.com/2016/05/15/pituitary-patient-support-group-meeting/
\;
\;
CATEGORIES:Events and Meetings UID:20160516T0053210Z-549422-134@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:National Biographer's Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200516;BYMONTH=5;BYMONTHDAY=16 DTSTART;VALUE=DATE:20000516 DTEND;VALUE=DATE:20000517 DESCRIPTION:National Biographer’s Day commemorates the anniversary of the f irst meeting of Samuel Johnson and his biographer James Boswell in London\ , England on May 16\, 1763\, and honors all biographers. A biography is a written account of another person’s life. Read more at http://www.maryo.co /who-knew/ X-ALT-DESC;FMTTYPE=text/html:National Biographer&rsquo\;s Day commemorat es the anniversary of the first meeting of Samuel Johnson and his biograph er James Boswell in London\, England on May 16\, 1763\, and honors all bio graphers.
A biography is a written account of another person&rsquo \;s life.
Read more at \;http://www.maryo.co/who-knew/
CATEGORIES:Holiday UID:20160516T1725050Z-549422-135@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160519 SUMMARY:Stephanie (steph)\, Steroid induced bio DESCRIPTION:Stephanie is from Wimberley\, Texas. About 2 and a half to 3 y rs ago\, she was being treated for a condition called Reflex Sympathetic d ystrophy. She was injected with steroids and was found to have Cushing's. She still has some of the symptoms of Cushing's even though she has been cured. Read more at https://cushingsbios.com/2016/05/19/stephanie-steph-s teroid-induced-bio/ X-ALT-DESC;FMTTYPE=text/html:Stephanie is from Wimberley\, Texas. \ ;About 2 and a half to 3 yrs ago\, she was being treated for a condition c alled Reflex Sympathetic dystrophy. \;She was injected with steroids and was found to have Cushing's. \;She still has some of the symptoms of Cushing's even though she has been cured.
Read more at \;< a href='https://cushingsbios.com/2016/05/19/stephanie-steph-steroid-induce d-bio/' target='_blank'>https://cushingsbios.com/2016/05/19/stephanie-step h-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20160519T1523360Z-549422-136@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:British pathologist Michael A. Epstein born\, 1921 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200519;BYMONTH=5;BYMONTHDAY=19 DTSTART;VALUE=DATE:20000519 DTEND;VALUE=DATE:20000520 DESCRIPTION:Along with being one of the co-founders of the Epstein-Barr vir us\, he is remembered for his work in cancer research. X-ALT-DESC;FMTTYPE=text/html:Along with being one of the co-founders of the Epstein-Barr virus\, he is remembered for his work in cancer research.
CATEGORIES:This Day in Medical History UID:20160519T1525440Z-549422-137@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160521 SUMMARY:Primary versus revision transsphenoidal resection for nonfunctionin g pituitary macroadenomas: matched cohort study DESCRIPTION:The object of this study was to compare the outcomes of primary and revision transsphenoidal resection (TSR) of nonfunctioning pituitary macroadenomas (NFPMAs) using endoscopic methods. Read more at https://cush ieblog.com/2016/05/22/primary-versus-revision-transsphenoidal-resection-fo r-nonfunctioning-pituitary-macroadenomas-matched-cohort-study/ X-ALT-DESC;FMTTYPE=text/html:The object of this study was to compare the outcomes of primary and revision transsphenoidal resection (TSR) of nonfu nctioning pituitary macroadenomas (NFPMAs) using endoscopic methods.
CATEGORIES:News Items UID:20160522T0840000Z-549422-138@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:National Buy a Musical Instrument Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200522;BYMONTH=5;BYMONTHDAY=22 DTSTART;VALUE=DATE:20000522 DTEND;VALUE=DATE:20000523 DESCRIPTION:Naturally\, here at the O'Connor Music Studio\, a piano\, keybo ard or organ is recommended but this day is for all types of instruments a nd is for people of all ages. More information at https://oconnormusicstu dio.com/2016/05/22/national-buy-a-musical-instrument-day/ X-ALT-DESC;FMTTYPE=text/html:Naturally\, here at the O'Connor Music Stud io\, a piano\, keyboard or organ is recommended but this day is for all ty pes of instruments and \;is for people of all ages. \;
Mor e information at \;https://oconnormus icstudio.com/2016/05/22/national-buy-a-musical-instrument-day/
CATEGORIES:Holiday UID:20160522T0908400Z-549422-139@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160522 SUMMARY:Kat S (kats)\, Madelung's Disease DESCRIPTION:Kat is from the USA. She has recently been diagnosed with Made lung's Disease. Read more at https://cushingsbios.com/2016/05/22/kat-s-ka ts-madelungs-disease/ X-ALT-DESC;FMTTYPE=text/html:Kat \; \;is from the USA. She has r ecently been diagnosed with Madelung's Disease. \;
Read more at& nbsp\;https://cushingsbios.com/2016/05/22/kat-s-kats-mad elungs-disease/
CATEGORIES:Cushie Bios UID:20160523T0059350Z-549422-140@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:National Lucky Penny Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200523;BYMONTH=5;BYMONTHDAY=23 DTSTART;VALUE=DATE:20000523 DTEND;VALUE=DATE:20000524 DESCRIPTION:When you are out and about today\, look on the ground for penni es. It just might be your lucky day! Read more at http://www.maryo.co/ever y-time-it-rains/ X-ALT-DESC;FMTTYPE=text/html:When you are out and about today\, look on the ground for pennies. It just might be your lucky day!
Read more at \;http://www.maryo.co/every-time-it-rains/
CATEGORIES:Holiday UID:20170523T1256400Z-549422-141@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Nominations Now Open for RareVoice Awards DTSTART;VALUE=DATE:20160606 DTEND;VALUE=DATE:20160607 RRULE:FREQ=WEEKLY;UNTIL=20160731;INTERVAL=2;BYDAY=MO DESCRIPTION:If you know of someone who has been a “Voice” for the rare dise ase community and should be honored for their work\, please click here to submit your nomination. Read more at https://cushieblogger.com/2016/05/23/ nominations-now-open-for-rarevoice-awards/ X-ALT-DESC;FMTTYPE=text/html:If you know of someone who has been a &ldqu o\;Voice&rdquo\; for the rare disease community and should be honored for their work\, please \;click here to submit your nomination.
Read more at \;https://cushieblo gger.com/2016/05/23/nominations-now-open-for-rarevoice-awards/
CATEGORIES:Events and Meetings UID:20160523T1727070Z-549422-142@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160523 SUMMARY:Xchicagoan (xchicagoan)\, Undiagnosed Bio DESCRIPTION:A Golden Oldie from Thursday\, March 12\, 2009\, Xchicagoan was from Huntersville\, North Carolina. She was not yet diagnosed with Cushi ng's but had many symptoms including Adrenal Hyperplasia and thyroid issue s. Read more at https://cushingsbios.com/2016/05/23/xchicagoan-xchicagoan- undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:A Golden Oldie from Thursday\, March 12\, 2 009\, Xchicagoan was from Huntersville\, North Carolina. \;She was no t yet diagnosed with Cushing's but had many symptoms including Adrenal Hyp erplasia and thyroid issues.
Read more at \;https://cushingsbios.com/2016/05/23/xchicagoan-xchicagoan-undiagn osed-bio/
CATEGORIES:Cushie Bios UID:20160524T0007490Z-549422-143@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160524 SUMMARY:Judy (Joybound1)\, Undiagnosed Bio DESCRIPTION: Judy is from Sherwood\, Oregon. She had a DUTCH test last yea r showing high cortisol levels and is wondering why the doctor didn't do a nything further. Read more at https://cushingsbios.com/2016/05/24/judy-joy bound1-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:
\;
Judy \;is from Sherwood\, Oregon. She had a DUTCH test
last year showing high cortisol levels and is wondering why the doctor did
n't do anything further.
Read more at \;ht tps://cushingsbios.com/2016/05/24/judy-joybound1-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160524T1242480Z-549422-144@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's World Map DTSTART;VALUE=DATE:20000606 DTEND;VALUE=DATE:20000607 RRULE:FREQ=WEEKLY;UNTIL=20300524;INTERVAL=2;BYDAY=TU EXDATE;VALUE=DATE:20170207,20160531,20181113 DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at https://drive.google.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyMsVbJ&usp= sharing X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and diagnosis to our Cushing
's World Map.
Helpful Doctor locations are being added to this map\,
as well
See the Map at \;https://drive.google.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcY yMsVbJ&\;usp=sharing
CATEGORIES:Cushie Bios UID:20230926T0930180Z-549422-145@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Jean Alexandre Barré was born in 1880 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200525;BYMONTH=5;BYMONTHDAY=25 DTSTART;VALUE=DATE:20000525 DTEND;VALUE=DATE:20000526 DESCRIPTION:French neurologist Jean Alexandre Barré was born. Along with Ge orges Guillain\, he identified the Guillain-Barré syndrome. X-ALT-DESC;FMTTYPE=text/html:French neurologist Jean Alexandre Barr&eacu te\; was born. Along with Georges Guillain\, he identified the Guillain-Ba rré\; syndrome.
CATEGORIES:This Day in Medical History UID:20160525T1950340Z-549422-146@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160922 SUMMARY:Rally for Medical Research Hill Day DESCRIPTION:Sign up to receive updates\, including a link to register once it becomes available. X-ALT-DESC;FMTTYPE=text/html:Sign up \;to receive updates\, includi ng a link to register once it becomes available.
CATEGORIES:Events and Meetings UID:20160526T1258100Z-549422-147@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160526 SUMMARY:Heather (HeatherKY)\, Pituitary Bio DESCRIPTION:Heather is from Kentucky. In 2002\, she developed a case of Be ll's Palsy and was put on prednisone. In December 2008\, after many years of feeling hopeless and alone\, she was diagnosed with cyclical Cushing’s Disease caused by a pituitary tumor. Transsphenoidal pituitary surgery w as scheduled for February 2009. Read more at https://cushingsbios.com/201 6/05/26/heather-heatherky-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Heather \;is from Kentucky. \;In 2 002\, she developed a case of Bell's Palsy and was put on prednisone. &nbs p\;In December 2008\, after many years of feeling hopeless and alone\, she was diagnosed with cyclical Cushing&rsquo\;s Disease caused by a pituitar y tumor. \;Transsphenoidal pituitary surgery was scheduled for Februa ry 2009. \;
Read more at \;https://cu shingsbios.com/2016/05/26/heather-heatherky-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160526T1319260Z-549422-148@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160527 SUMMARY:Cushing’s disease recurrence predictive factors: Outcome analysis o f patients in VANCOUVER over 30 years DESCRIPTION:The objective of this study was to describe the management and outcomes of patients with Cushing’s disease (CD) in the Vancouver region o ver a 30-year period and to investigate the predictive factors of CD recur rence. Read more at https://cushieblog.com/2016/05/27/cushings-disease-rec urrence-predictive-factors-outcome-analysis-of-patients-in-vancouver-over- 30-years/ X-ALT-DESC;FMTTYPE=text/html:The objective of this study was to \;de scribe the management and outcomes of patients with Cushing&rsquo\;s disea se (CD) in the Vancouver region over a 30-year period and to investigate t he predictive factors \;of CD recurrence.
Read more at \;< a href='https://cushieblog.com/2016/05/27/cushings-disease-recurrence-pred ictive-factors-outcome-analysis-of-patients-in-vancouver-over-30-years/' t arget='_blank'>https://cushieblog.com/2016/05/27/cushings-disease-recurren ce-predictive-factors-outcome-analysis-of-patients-in-vancouver-over-30-ye ars/
CATEGORIES:News Items UID:20160527T1726250Z-549422-149@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160527 SUMMARY:Patients with ARMC5 mutations: The NIH clinical experience DESCRIPTION:They determined that patients with bilateral adrenal enlargemen t\, found on imaging tests\, should be screened for ARMC5 mutations\, whic h are associated with subclinical Cushing's syndrome (CS) and primary hype raldosteronism (PA) More information at https://cushieblog.com/2016/05/27/ patients-with-armc5-mutations-the-nih-clinical-experience/ X-ALT-DESC;FMTTYPE=text/html:They determined that patients with bilatera l adrenal enlargement\, found on imaging tests\, should be screened for AR MC5 mutations\, which are associated with subclinical Cushing's syndrome ( CS) and primary hyperaldosteronism (PA)
More information at \; https://cushieblog.com/2016/0 5/27/patients-with-armc5-mutations-the-nih-clinical-experience/
CATEGORIES:News Items UID:20160527T1816200Z-549422-150@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160527 SUMMARY:Acupuncture in menopause (AIM) study DESCRIPTION:A total of 209 perimenopausal and postmenopausal women aged 45 to 60 years\, experiencing four or more vasomotor symptoms VMS per day\, w ere recruited from the community and randomized to receive up to 20 acupun cture treatments within the first 6 months (acupuncture group) or the seco nd 6 months (waitlist control group) of the 12–month study period. Read mo re at https://power-surge.co/2016/05/27/acupuncture-in-menopause-aim-study / X-ALT-DESC;FMTTYPE=text/html:A total of 209 perimenopausal and postmenop
ausal women aged 45 to 60 years\, experiencing four or more vasomotor symp
toms VMS per day\, were recruited from the community and randomized to rec
eive up to 20 acupuncture treatments within the first 6 months (acupunctur
e group) or the second 6 months (waitlist control group) of the 12&ndash\;
month study period.
Read more at \;ht
tps://power-surge.co/2016/05/27/acupuncture-in-menopause-aim-study/
The National Moment of Remembrance\, establ ished by Congress\, asks Americans\, wherever they are at 3 p.m.\, local t ime\, on Memorial Day\, to pause in an act of national unity for a duratio n of one minute.
The time 3 p.m. was chosen because it is the tim e when most Americans are enjoying their freedoms on the national holiday. The Moment does not replace traditional Memorial Day events\; rather\, it is an act of national unity in which all Americans\, alone or with family and friends\, honor those who died in service to the United States.
CATEGORIES:Holiday UID:20160529T1645030Z-549422-152@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160530 SUMMARY:Role of radiosurgery in management of pituitary adenoma-The BNI exp erience DESCRIPTION:Researchers conducted this study to determine the efficacy of s tereotactic radiosurgery with CyberKnife for the treatment of recurrent pi tuitary adenoma. They concluded that stereotactic radiosurgery for recurre nt/residual pituitary adenomas using CyberKnife appears to be relatively s afe and effective when compared to conventional radiotherapy. Read more at https://cushieblog.com/2016/05/30/role-of-radiosurgery-in-management-of-p ituitary-adenoma-the-bni-experience/ X-ALT-DESC;FMTTYPE=text/html:Researchers conducted this study to determi ne the efficacy of stereotactic radiosurgery with CyberKnife \;for the treatment of recurrent pituitary adenoma. They concluded that stereotacti c radiosurgery \;for \;recurrent/residual pituitary adenomas using CyberKnife appears to be relatively safe and effective when compared to c onventional radiotherapy.
Read more at \;https://cushieblog.com/2016/05/30 /role-of-radiosurgery-in-management-of-pituitary-adenoma-the-bni-experienc e/
CATEGORIES:News Items UID:20160530T1420140Z-549422-153@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160530 SUMMARY:Finding the team DESCRIPTION:Sometime doctors really need to be selected because they are a team player. With having complicated issues\, I feel much more comfortable when I have more than one doctor looking over things. Where I lived befor e\, I had a local endocrinologist and an expert. They worked together and had somewhat different roles. This was good for a while. However\, sometim es sometimes things don’t work out... Read more at https://cushieblogger.c om/2016/05/30/finding-the-team/ X-ALT-DESC;FMTTYPE=text/html:Sometime doctors really need to be selected because they are a team player. With having complicated issues\, I feel m uch more comfortable when I have more than one doctor looking over things. Where I lived before\, I had a local endocrinologist and an expert. They worked together and had somewhat different roles. This was good for a whil e. However\, sometimes sometimes things don&rsquo\;t work out...
R ead more at \;https://cushieblogger.com/2016/05/30/finding-the- team/
CATEGORIES:Cushie Bios UID:20160530T1427390Z-549422-154@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160530 SUMMARY:Cristina (Cristina)\, Adrenal Bio DESCRIPTION:Cristina is from Australia. She was recently diagnosed with adr enal Cushing's and will have surgery soon. Read more at https://cushingsb ios.com/2016/05/30/cristina-cristina-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Cristina is from Australia. She was recentl y diagnosed with adrenal Cushing's and will have surgery soon. \;
Read more at \;https://cushingsbios.com/2016/05 /30/cristina-cristina-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160530T1435240Z-549422-155@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160530 SUMMARY:A New Cushie added to the Cushing's World Map DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and
diagnosis to our Cushing's World Map.
Helpful Doctor locations are b
eing added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&a mp\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20160530T1440060Z-549422-156@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160531 SUMMARY:Masked renal dysfunction in patients with adrenal Cushing’s syndrom e manifested by adrenalectomy DESCRIPTION:Considering the mineralocorticoid effect of cortisol as with al dosterone\, excessive cortisol secretion may also mask the renal dysfuncti on of patients with adrenal Cushing's syndrome (CS). Read more at https:// cushieblog.com/2016/05/31/masked-renal-dysfunction-in-patients-with-adrena l-cushings-syndrome-manifested-by-adrenalectomy/ X-ALT-DESC;FMTTYPE=text/html:Considering the mineralocorticoid effect of cortisol as with aldosterone\, excessive cortisol secretion may also mask the renal dysfunction of patients with adrenal Cushing's syndrome (CS).
Read more at \;https://cushieblog.com/2016/05/31/maske d-renal-dysfunction-in-patients-with-adrenal-cushings-syndrome-manifested- by-adrenalectomy/
CATEGORIES:News Items UID:20160531T1204000Z-549422-157@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20160917T093000 DTEND;TZID=America/New_York:20160917T133000 SUMMARY:8th Annual Johns Hopkins Pituitary Patient Day DESCRIPTION:This is a free event\, but seating is limited. Reserve your spa ce now: Please R.S.V.P. by September 9\, 2016 by email (preferred) to Pitu itaryDay@jhmi.edu or by calling Alison Dimick at 410-955-3921. X-ALT-DESC;FMTTYPE=text/html:This is a free event\, but seating is limit ed. Reserve your space now: \;Please R.S.V.P. by September 9\, 2016 \;by email (preferred) to \;PituitaryDay@jhmi.edu \; \;or by calling Aliso n Dimick at \;410-955-3921.
CATEGORIES:Events and Meetings UID:20160905T0718380Z-549422-158@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for 8th Annual Johns Hopkins Pituitary Patient Day DTSTART;VALUE=DATE:20160606 DTEND;VALUE=DATE:20160607 RRULE:FREQ=WEEKLY;UNTIL=20160916;BYDAY=TH EXDATE;VALUE=DATE:20160908,20160915 DESCRIPTION:This is a free event\, but seating is limited. Reserve your spa ce now: Please R.S.V.P. by September 9\, 2016 by email (preferred) to Pitu itaryDay@jhmi.edu or by calling Alison Dimick at 410-955-3921. Read more at https://cushieblogger.com/2016/06/06/8th-annual-johns-hopkins-pituitary -patient-day/ X-ALT-DESC;FMTTYPE=text/html:This is a free event\, but seating is limit ed. Reserve your space now: Please R.S.V.P. by September 9\, 2016 by email (preferred) to PituitaryDay@jhmi.edu \;or by calling Alison Dimick a t 410-955-3921.
Read more at \;https://cushieblogger.com/2016/06/06/8th-annual-johns-hopkins-pituit ary-patient-day/
CATEGORIES:Events and Meetings UID:20160801T1247160Z-549422-159@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Manfred Sakel was born in 1990 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200606;BYMONTH=6;BYMONTHDAY=6 DTSTART;VALUE=DATE:20000606 DTEND;VALUE=DATE:20000607 DESCRIPTION:Jewish Austrian neurophysiologist and psychiatrist Manfred Sake l was born. He is credited with developing insulin shock therapy in 1927. Insulin shock therapy was a treatment for schizophrenia by inducing daily comas for weeks using large doses of insulin. X-ALT-DESC;FMTTYPE=text/html:Jewish Austrian neurophysiologist and psych iatrist Manfred Sakel was born. He is credited with developing insulin sho ck therapy in 1927.
Insulin shock therapy was a treatment for schi zophrenia by inducing daily comas for weeks using large doses of insulin.< /p> CATEGORIES:This Day in Medical History UID:20160607T0020150Z-549422-160@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160606 SUMMARY:Joslyn (Joslyn)\, Adrenal Bio DESCRIPTION:Joslyn is from Harrisburg\, Pennsylvania. She was diagnosed wi th adrenal Cushing's Syndrome and was scheduled to have surgery July 6\, 2 009. She was interviewed in the Cushings Help Voice Chat / Podcast series after her surgery. Originally from Monday\, June 8\, 2009. Read more at h ttps://cushingsbios.com/2016/06/06/joslyn-joslyn-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:
Joslyn \;is from Harrisburg\, Pennsylva nia. \;She was diagnosed with adrenal Cushing's Syndrome and was sche duled to have surgery July 6\, 2009. \;She was interviewed in the Cus hings Help Voice Chat / Podcast series after her surgery. Originally from Monday\, June 8\, 2009.
Read more at \;https:// cushingsbios.com/2016/06/06/joslyn-joslyn-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160607T0043280Z-549422-161@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20160613T110000 DTEND;TZID=America/New_York:20160613T120000 SUMMARY:Webinar: Endoscopic Endonasal Surgery for the Treatment of Cushing' s Disease DESCRIPTION:An update on the diagnosis and treatment options of Cushing's d isease. Description of the endoscopic endonasal approach for the managemen t of CD. Surgical videos demonstration and comparison with the microscopic transsphenoidal approach. Surgical outcomes and adjuvant treatment. Read more at https://cushieblog.com/2016/06/06/webinar-endoscopic-endonasal-sur gery-for-the-treatment-of-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:An update on the diagnosis and treatment op tions of Cushing's disease. Description of the endoscopic endonasal approa ch for the management of CD. Surgical videos demonstration and comparison with the microscopic transsphenoidal approach. Surgical outcomes and adjuv ant treatment.
Read more at \;https://cushieblog.com/2016/06/06/webinar-en doscopic-endonasal-surgery-for-the-treatment-of-cushings-disease/
CATEGORIES:Events and Meetings UID:20160607T0146430Z-549422-162@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for this Webinar DTSTART;VALUE=DATE:20160606 DTEND;VALUE=DATE:20160607 RRULE:FREQ=WEEKLY;UNTIL=20160613;BYDAY=SU,TU,TH DESCRIPTION:An update on the diagnosis and treatment options of Cushing's d isease. Description of the endoscopic endonasal approach for the managemen t of CD. Surgical videos demonstration and comparison with the microscopic transsphenoidal approach. Surgical outcomes and adjuvant treatment. Read more at https://cushieblog.com/2016/06/06/webinar-endoscopic-endonasal-sur gery-for-the-treatment-of-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:An update on the diagnosis and treatment op tions of Cushing's disease. Description of the endoscopic endonasal approa ch for the management of CD. Surgical videos demonstration and comparison with the microscopic transsphenoidal approach. Surgical outcomes and adjuv ant treatment.
Read more at \;https://cushieblog.com/2016/06/06/webinar-en doscopic-endonasal-surgery-for-the-treatment-of-cushings-disease/
CATEGORIES:Events and Meetings UID:20160607T0147590Z-549422-163@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160607 SUMMARY:What a Hoot! Healing Cushing’s Syndrome Naturally DESCRIPTION:'But there is hope\, here are a few great herbs and other proce sses that can heal Cushing’s Syndrome naturally.' Read more at http://wp.m e/p3t4Te-JX X-ALT-DESC;FMTTYPE=text/html:'But there is hope\, here are a few great h erbs and other processes that can heal Cushing&rsquo\;s Syndrome naturally .'
Read more at \;http://wp.me/p3t4Te-JX
CATEGORIES:Cushings UID:20160607T1639400Z-549422-164@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160607 SUMMARY:Long-term Cognitive Effects of Glucocorticoid Excess in Cushing's S yndrome DESCRIPTION:We previously found that patients with Cushing's syndrome (CS) scored lower than controls in several domains of cognitive function and th at correction of hypercortisolism is not necessarily correlated with short -term improvement in intellectual performance. Read more at https://cushi eblog.com/2016/06/07/long-term-cognitive-effects-of-glucocorticoid-excess- in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:We previously found that patients with Cush
ing's syndrome (CS) scored lower than controls in several domains of cogni
tive function and that correction of hypercortisolism is not necessarily c
orrelated with short-term improvement in intellectual performance. \;<
br />
Read more at \;https://cushieblog.com/2016/06/07/long-term-cognitive-eff
ects-of-glucocorticoid-excess-in-cushings-syndrome/
Wendy is from Glenside\, PA. \;She was diagnosed in April 2016 with Cushing Disease caused by a pituitary adenom a and will have surgery 8/10/2016.
Read more at \;htt ps://cushingsbios.com/2016/06/08/wendy-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160608T1346580Z-549422-166@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160608 SUMMARY:A New Cushie added to the Cushing's World MapWorld Map DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and
diagnosis to our Cushing's World Map.
Helpful Doctor locations are b
eing added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&a mp\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20160608T1349450Z-549422-167@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:James Young Simpson was born in 1811 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200608;BYMONTH=6;BYMONTHDAY=8 DTSTART;VALUE=DATE:20000608 DTEND;VALUE=DATE:20000609 DESCRIPTION:Scottish obstetrician James Young Simpson was very interested i n the use of anesthesia for pregnancy and he also discovered the anestheti c properties of chloroform. X-ALT-DESC;FMTTYPE=text/html:Scottish obstetrician James Young Simpson w as very interested in the use of anesthesia for pregnancy and he also disc overed the anesthetic properties of chloroform.
CATEGORIES:This Day in Medical History UID:20160608T1543500Z-549422-168@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160608 SUMMARY:Mae\, Undiagnosed Bio DESCRIPTION:A Golden Oldie originally from Sunday\, October 26\, 2008 Mae i s from Orlando\, Florida. She is not yet diagnosed with Cushing's but has many symptoms. Read more at https://cushingsbios.com/2016/06/08/mae-undiag nosed-bio/ X-ALT-DESC;FMTTYPE=text/html:A Golden Oldie originally from Sunday\, Oct
ober 26\, 2008
Mae is from Orlando\, Florida. She is not yet di
agnosed with Cushing's but has many symptoms.
Read more at \;< a href='https://cushingsbios.com/2016/06/08/mae-undiagnosed-bio/' target=' _blank'>https://cushingsbios.com/2016/06/08/mae-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160608T2305520Z-549422-169@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160609 SUMMARY:Clinical Trial for Cluster Headaches RRULE:FREQ=MONTHLY;UNTIL=20160809;BYDAY=2SU,2TH,-1SU,-1TH DESCRIPTION:Cluster Headache is one of the most painful types of headaches. It's frequently described as pain that occurs around\, behind\, or above the eye and along the temple in cyclic patterns or “clusters.” There are m ore than 200\,000 cases of Cluster Headaches in the U.S. per year\, and ma ny patients describe it as a “drilling” type of sensation. Learn more abou t the clinical trial at http://curec.lk/1Uaj36v X-ALT-DESC;FMTTYPE=text/html:Cluster Headache is one of the most painful types of headaches. It's frequently described as pain that occurs around\ , behind\, or above the eye and along the temple in cyclic patterns or &ld quo\;clusters.&rdquo\; There are more than 200\,000 cases of Cluster Heada ches in the U.S. per year\, and many patients describe it as a &ldquo\;dri lling&rdquo\; type of sensation.
Learn more about the clinical tri al at \;http://curec .lk/1Uaj36v
CATEGORIES:Other Medical UID:20160610T1253580Z-549422-170@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160610 SUMMARY:Safety Plan DESCRIPTION:My local endocrinologist wanted me to get a medical bracelet\, solucortef\, and training. I went back this past Friday and was asked abou t my plan. Part of the problem is that I live alone. My dogs\, cats\, and fish can not help me if anything happens. While I check in with family dai ly for this reason and have friends of the family that have helped\, this is not enough. One of the things discussed was making sure that people I h ave contact with every day know who to contact if I don’t show up for some thing. Additionally\, I was asked to have a neighbor trained in solucortef injection. I thought that the biggest problem I would have would be a pro blem with needles\, BOY WAS I WRONG. Read more at https://cushieblogger.co m/2016/06/10/safety-plan/ X-ALT-DESC;FMTTYPE=text/html:My local endocrinologist wanted me to get a medical bracelet\, solucortef\, and training. I went back this past Frida y and was asked about my plan. Part of the problem is that I live alone. M y dogs\, cats\, and fish can not help me if anything happens. While I chec k in with family daily for this reason and have friends of the family that have helped\, this is not enough. One of the things discussed was making sure that people I have contact with every day know who to contact if I do n&rsquo\;t show up for something. Additionally\, I was asked to have a nei ghbor trained in solucortef injection. I thought that the biggest problem I would have would be a problem with needles\, BOY WAS I WRONG.
Re ad more at \;https://cushieblogger.com/2016/06/10/safety-plan/
\;
CATEGORIES:Cushie Bios UID:20160610T1447390Z-549422-171@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160610 SUMMARY:LaDawn (NanaX3)\, Adrenal/Prolactinoma bio DESCRIPTION:LaDawn is from Huntsville\, TN. She has been terribly ill for 17 months with adrenal insufficiency and a prolactinoma. Over the years s he has also been diagnosed with been diagnosed for years\, Fibromyalgia\, IBS\, Sleep Apnea\, Insomnia\, hypertension\, hypotension\, digestive diso rders\, and early pancreatitis. Read more at https://cushingsbios.com/2016 /06/10/ladawn-nanax3-adrenalprolactinoma-bio/ X-ALT-DESC;FMTTYPE=text/html:LaDawn \;is from Huntsville\, TN. \;She has been terribly ill for 17 months with adrenal insufficiency and a prolactinoma. \;Over the years she has also been diagnosed with been diagnosed for years\, Fibromyalgia\, IBS\, Sleep Apnea\, Insomnia\, hyper tension\, hypotension\, digestive disorders\, and early pancreatitis.
Read more at \;https://cushingsbios.com /2016/06/10/ladawn-nanax3-adrenalprolactinoma-bio/
CATEGORIES:Cushie Bios UID:20160610T1522420Z-549422-172@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160612 SUMMARY:More on Polycystic Kidney Disease DESCRIPTION:Polycystic kidney disease is a genetic disorder that causes num erous cysts to grow in the kidneys. A kidney cyst is an abnormal sac fille d with fluid. PKD cysts can greatly enlarge the kidneys while replacing mu ch of their normal structure\, resulting in chronic kidney disease (CKD)\, which causes reduced kidney function over time. CKD may lead to kidney fa ilure\, described as end-stage kidney disease or ESRD when treated with a kidney transplant or blood-filtering treatments called dialysis. Read more at https://maryomedical.com/2016/06/12/more-on-polycystic-kidney-disease/ X-ALT-DESC;FMTTYPE=text/html:Polycystic kidney disease is a genetic diso rder that causes numerous cysts to grow in the kidneys. A kidney cyst is a n abnormal sac filled with fluid. PKD cysts can greatly enlarge the kidney s while replacing much of their normal structure\, resulting in chronic ki dney disease (CKD)\, which causes reduced kidney function over time. CKD m ay lead to kidney failure\, described as end-stage kidney disease or ESRD when treated with a kidney transplant or blood-filtering treatments called dialysis.
Read more at \;https://maryo medical.com/2016/06/12/more-on-polycystic-kidney-disease/
CATEGORIES:Other Medical UID:20160613T0057140Z-549422-173@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160608 SUMMARY: Polycystic Kidney Disease DESCRIPTION: I’ve decided to add information about Polycystic Kidney Disea se to this blog since my brother-in-law died from this last week. My moth er-in-law also had it and 3 of her children inherited this disease. When I had my kidney cancer\, I was surprised to learn that Polycystic Kidney Di sease was a risk factor. Read more at https://maryomedical.com/2016/06/08/ polycystic-kidney-disease/ X-ALT-DESC;FMTTYPE=text/html:
\;
I&rsquo\;ve decided to add informatio n about \;Polycystic Kidney Disease to this blog since my brother-in-l aw died from this last week. \;My mother-in-law also had it and 3 of her children inherited this disease.
When I had \;my kidney cancer\, I was surprised to learn that \;Polycystic
Kidney Disease was a risk factor.
Read more at \;https://maryomedical.com/2016/06/08/polycystic-kidney-disease/
Gail \;is from Saluda\, North Carolina. \;She was diagnosed with adrenal Cushing's in February 1009 and had a BLA April 10\, 2009.
Read more at \;https:// cushingsbios.com/2016/06/12/gail-ramboette-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160613T0119110Z-549422-175@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:World Blood Donor Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200614;BYMONTH=6;BYMONTHDAY=14 DTSTART;VALUE=DATE:20000614 DTEND;VALUE=DATE:20000615 DESCRIPTION:The theme of this year's World Blood Donor Day is 'Blood connec ts us all'. It focuses on thanking blood donors and highlights the dimensi on of 'sharing' and 'connection' between blood donors and patients. In add ition\, the World Health Organization has adopted the slogan 'Share life\, give blood'\, to draw attention to the roles that voluntary donation syst ems play in encouraging people to care for one another and promote communi ty cohesion. Read more at http://curec.lk/21iWHSi X-ALT-DESC;FMTTYPE=text/html:The theme of this year's World Blood Donor Day is 'Blood connects us all'. It focuses on thanking blood donors and hi ghlights the dimension of 'sharing' and 'connection' between blood donors and patients. In addition\, the World Health Organization has adopted the slogan 'Share life\, give blood'\, to draw attention to the roles that vol untary donation systems play in encouraging people to care for one another and promote community cohesion.
Read more at \;http://curec.lk/21iWHSi
CATEGORIES:Other Medical UID:20160613T2206100Z-549422-176@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:National Flag Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200614;BYMONTH=6;BYMONTHDAY=14 DTSTART;VALUE=DATE:20000614 DTEND;VALUE=DATE:20000615 DESCRIPTION: Read more at http://www.maryo.co/national-flag-day/ X-ALT-DESC;FMTTYPE=text/html:
\;
Read more at \;http://www.maryo.co/national-flag-day/
CATEGORIES:Holiday UID:20160614T1447490Z-549422-177@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Karl Landsteiner was born\, 1868 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200614;BYMONTH=6;BYMONTHDAY=14 DTSTART;VALUE=DATE:20000614 DTEND;VALUE=DATE:20000615 DESCRIPTION:Austrian and American biologist and physician Karl Landsteiner was born. He is noted for developing the modern method of classifying the blood groups. X-ALT-DESC;FMTTYPE=text/html:Austrian and American biologist and physici an Karl Landsteiner was born. He is noted for developing the modern method of classifying the blood \;groups.
CATEGORIES:This Day in Medical History UID:20160614T1536420Z-549422-178@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Carl Schmidt was born\, 1822 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200613;BYMONTH=6;BYMONTHDAY=13 DTSTART;VALUE=DATE:20000613 DTEND;VALUE=DATE:20000614 DESCRIPTION:Baltic German chemist Carl Schmidt is born. He studied chemical changes in the blood associated with cholera\, diabetes and arsenic poiso ning. X-ALT-DESC;FMTTYPE=text/html:Baltic German chemist Carl Schmidt is born. He studied chemical changes in the blood associated with cholera\, diabet es and arsenic poisoning.
CATEGORIES:This Day in Medical History UID:20160614T1538090Z-549422-179@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160614 SUMMARY:Fiona\, Pituitary Bio DESCRIPTION:Fiona is from Lydford\, UK. She was first diagnosed in 1990 af ter a year of tests and years of symptoms. About 3 or 4 years ago her sym ptoms started returning. It appears that she has a recurrence after 18 ye ars. Read more at https://cushingsbios.com/2016/06/14/fiona-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Fiona is from Lydford\, UK. \;She was first diagnosed in 1990 after a year of tests and years of symptoms. \;About 3 or 4 years ago her symptoms started returning. \;It appears that she has a recurrence after 18 years.
Read more at \;https://cushingsbios.com/2016/06/14/fiona-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160614T1721480Z-549422-180@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160614 SUMMARY:Harley (HBW)\, Adrenal and Pituitary Bio DESCRIPTION:Harley is from Sturgis\, South Dakota. He has Addison's Disease and a pituitary tumor. He has steroid induced Cushing's. Read more at htt ps://cushingsbios.com/2016/06/14/harley-hbw-adrenal-and-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Harley \;is from Sturgis\, South Dakota
.
He has Addison's Disease and a pituitary tumor. He has steroid ind
uced Cushing's.
Read more at \;https ://cushingsbios.com/2016/06/14/harley-hbw-adrenal-and-pituitary-bio/ CATEGORIES:Cushie Bios UID:20160614T2320210Z-549422-181@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:The first human blood transfusion\, 1667 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200615;BYMONTH=6;BYMONTHDAY=15 DTSTART;VALUE=DATE:20000615 DTEND;VALUE=DATE:20000616 DESCRIPTION:The first human blood transfusion wass administered by Dr. Jean -Baptiste Denys. X-ALT-DESC;FMTTYPE=text/html:
The first human blood transfusion wass admi nistered by Dr. Jean-Baptiste Denys.
CATEGORIES:This Day in Medical History UID:20160615T1417320Z-549422-182@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160613 SUMMARY:Happy Palindrome Week RRULE:FREQ=DAILY;COUNT=6 DESCRIPTION:You should feel very balanced this week. Why? Because it’s pali ndrome week! Read more at http://www.maryo.co/happy-palindrome-week/ X-ALT-DESC;FMTTYPE=text/html:You should feel very balanced this week. Wh y? Because it&rsquo\;s palindrome week!
Read more at \;http://www.m aryo.co/happy-palindrome-week/
\;
CATEGORIES:Holiday UID:20160615T1515350Z-549422-183@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160615 SUMMARY:Pituitary tissue grown from human stem cells releases hormones in r ats DESCRIPTION:Currently\, patients with hypopituitarism must take expensive\, lifelong hormone replacement therapies that poorly mimic the body's compl ex patterns of hormone secretion that fluctuates with circadian rhythms an d responds to feedback from other organs. By contrast\, cell replacement t herapies hold promise for permanently restoring natural patterns of hormon e secretion while avoiding the need for costly\, lifelong treatments. Read more at https://cushieblog.com/2016/06/15/pituitary-tissue-grown-from-hum an-stem-cells-releases-hormones-in-rats/ X-ALT-DESC;FMTTYPE=text/html:Currently\, patients with hypopituitarism m ust take expensive\, lifelong hormone replacement therapies that poorly mi mic the body's complex patterns of hormone secretion that fluctuates with circadian rhythms and responds to feedback from other organs. By contrast\ , cell replacement therapies hold promise for permanently restoring natura l patterns of hormone secretion while avoiding the need for costly\, lifel ong treatments.
Read more at \;https://cushieblog.com/2016/06/15/pituitary-tis sue-grown-from-human-stem-cells-releases-hormones-in-rats/
CATEGORIES:News Items UID:20160615T1540420Z-549422-184@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160615 SUMMARY:Past News Items: My 37-year-old daughter has Addison's disease. DESCRIPTION:With Addison's disease\, the adrenal glands have stopped produc ing their many hormones. Those hormones include cortisone and aldosterone. Cortisone gives us energy\, combats inflammation and figures into many of the body's most important functions. Aldosterone is essential for blood p ressure maintenance. Without adrenal gland hormones\, the skin darkens\, e specially the elbow skin and the creases in the hands. Read more at https: //cushieblog.com/2016/06/15/past-news-items-my-37-year-old-daughter-has-ad disons-disease/ X-ALT-DESC;FMTTYPE=text/html:With Addison's disease\, the adrenal glands have stopped producing their many hormones. Those hormones include cortis one and aldosterone. Cortisone gives us energy\, combats inflammation and figures into many of the body's most important functions. Aldosterone is e ssential for blood pressure maintenance. Without adrenal gland hormones\, the skin darkens\, especially the elbow skin and the creases in the hands.
Read more at \;https://cushieblog.com/2016/06/15/past-news-items-my-37-year-old-daughte r-has-addisons-disease/
CATEGORIES:News Items UID:20160616T0056290Z-549422-185@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160616 SUMMARY:Bilateral adrenal myelolipoma in Cushing's disease: a relook into t he role of corticotropin in adrenal tumourigenesis DESCRIPTION:In this article\, the association of bilateral adrenal myelolip omas with Cushing's disease has been discussed and the role of ACTH in the tumourigenesis has been reviewed. Read more at https://cushieblog.com/201 6/06/16/bilateral-adrenal-myelolipoma-in-cushings-disease-a-relook-into-th e-role-of-corticotropin-in-adrenal-tumourigenesis/ X-ALT-DESC;FMTTYPE=text/html:In this article\, the association of bilate ral adrenal myelolipomas with Cushing's disease has been discussed and the role of ACTH in the tumourigenesis has been reviewed.
CATEGORIES:News Items UID:20160616T2132090Z-549422-186@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160619 SUMMARY:Happy Father's Day! DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html:
(1865) \;English physician George Redm ayne Murray was born. He is credited with pioneering the treatment of endo crine diseases\, which include thyroid cancer.
CATEGORIES:This Day in Medical History UID:20160620T2254480Z-549422-188@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Edward Anthony Spitzka was born in 1876 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200617;BYMONTH=6;BYMONTHDAY=17 DTSTART;VALUE=DATE:20000617 DTEND;VALUE=DATE:20000618 DESCRIPTION:(1876) American anatomist Edward Anthony Spitzka was born. He p ublished 40 papers on brain anatomy and also performed autopsies on brains . X-ALT-DESC;FMTTYPE=text/html:(1876) American anatomist Edward Anthony Sp itzka was born. He published 40 papers on brain anatomy and also performed autopsies on brains.
CATEGORIES:This Day in Medical History UID:20160620T2256250Z-549422-189@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160621 SUMMARY:Candy (Candybar11)\, Pituitary Bio DESCRIPTION:Candy is from North Myrtle Beach\, SC. She was diagnosed with Cushing's in 1997 and had pituitary surgery at NIH. Read more at https://c ushingsbios.com/2016/06/21/candy-candybar11-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Candy is from North Myrtle Beach\, SC. &nbs p\;She was diagnosed with Cushing's in 1997 and had pituitary surgery at N IH.
Read more at \;https://cushingsbios.co m/2016/06/21/candy-candybar11-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160621T1255200Z-549422-190@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160621 SUMMARY:A New Cushie added to the Cushing's World MapWorld Map DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and
diagnosis to our Cushing's World Map.
Helpful Doctor locations are b
eing added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&a mp\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20160621T1258000Z-549422-191@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160621 SUMMARY:Surgery Preferred Option in Cushing's Disease for Best Survival DESCRIPTION:Rosario Pivonello\, MD\, PhD\, department of clinical medicine and surgery\, section of endocrinology\, University of Naples Federico II\ , Italy\, and colleagues write that\, although surgery is not suitable for all patients\, 'Prompt pituitary surgery might be the preferred treatment for Cushing's disease to guarantee the best mortality outcome.' Read more at https://cushieblog.com/2016/06/21/surgery-preferred-option-in-cushings -disease-for-best-survival/ X-ALT-DESC;FMTTYPE=text/html:Rosario Pivonello\, MD\, PhD\, department o f clinical medicine and surgery\, section of endocrinology\, University of Naples Federico II\, Italy\, and colleagues write that\, although surgery is not suitable for all patients\, 'Prompt pituitary surgery might be the preferred treatment for Cushing's disease to guarantee the best mortality outcome.'
Read more at \;https://cushieblog.com/2016/06/21/surgery-preferred-option-i n-cushings-disease-for-best-survival/
CATEGORIES:News Items UID:20160621T2328060Z-549422-192@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160622 SUMMARY:(For the General Public) Are there any advantages to human growth h ormone? DESCRIPTION:HGH comes in two forms: injections and pills. Since HGH injecti ons are difficult to administer\, pills are often preferred. Yet\, these s upplements do not actually contain HGH like injections do\, because the ho rmone would quickly break down in the digestive tract. Instead\, they cont ain amino acids that are absorbed by the body\, which raises HGH levels. ( They are also more expensive and can cost $100-plus for a month’s supply.) Read more at https://cushieblog.com/2016/06/22/for-the-general-public-are -there-any-advantages-to-human-growth-hormone/ X-ALT-DESC;FMTTYPE=text/html:HGH \;comes i
n two forms: injections and pills. Since \;HGH \;injections are difficult to administer\, pills are often preferre
d. Yet\, these supplements do not actually contain \;HGH \;like injections do\, because the hormone would quickly
break down in the digestive tract. Instead\, they contain amino acids that
are absorbed by the body\, which raises \;HGH \;levels. (They are also more expensive and can cost $100-plus for
a month&rsquo\;s \;supply.)
Read more at \;https://cushieblog.com/2016
/06/22/for-the-general-public-are-there-any-advantages-to-human-growth-hor
mone/
This will be a case-based review of the cau
ses\, diagnosis and treatment of pituitary failure\, focusing on the most
common scenarios patients may encounter. We will review issues with hormon
al testing unique to patients with pituitary disease\, and the approach to
ward optimizing pituitary hormone replacement.
More information
at \;http
s://cushieblogger.com/2016/06/22/webinar-the-essentials-the-diagnosis-and-
treatment-of-hypopituitarism/
This will be a case-based review of the cau
ses\, diagnosis and treatment of pituitary failure\, focusing on the most
common scenarios patients may encounter. We will review issues with hormon
al testing unique to patients with pituitary disease\, and the approach to
ward optimizing pituitary hormone replacement.
More information
at \;http
s://cushieblogger.com/2016/06/22/webinar-the-essentials-the-diagnosis-and-
treatment-of-hypopituitarism/
Pituitary tumors represent the most common
intracranial neoplasms accompanying serious morbidity through mass effects
and inappropriate secretion of pituitary hormones. Understanding the etio
logy of pituitary tumorigenesis will facilitate the development of satisfa
ctory treatment for pituitary adenomas.
Read more at \;https://dash.harvard.edu/bitstream/handle/1/11879
696/3871038.pdf\;sequence=1
The sight of blood in your urine is enough to make anyone panic. It doesn&rsquo\;t always indicate a serious problem\ , but it&rsquo\;s important you get it checked out with your doctor.
Read more at \;https://maryomedical.c om/2016/06/23/is-blood-in-your-urine-cause-for-concern/
CATEGORIES:News Items UID:20160623T1956590Z-549422-197@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Help Advance Research for Better Cushing’s Syndrome Treatment DTSTART;VALUE=DATE:20160623 DTEND;VALUE=DATE:20160624 RRULE:FREQ=WEEKLY;UNTIL=20160823;BYDAY=MO DESCRIPTION:I am so passionate about Clinical Trials\, especially for Cushi ng's because I was only diagnosed in 1987 because I was a part of a clinic al trial at the NIH. In addition to helping myself\, I knew I'd be helpin g other Cushies coming along after me - something positive I could do whil e I was at my worst. I hope that others will consider doing Clinical Trial s\, if they qualify for them. You never know who else you might help! Rea d more at https://cushieblog.com/2016/06/23/help-advance-research-for-bett er-cushings-syndrome-treatment/ X-ALT-DESC;FMTTYPE=text/html:I am so passionate about Clinical Trials\, especially for Cushing's because I was only diagnosed in 1987 because \;I was a part of a clinical trial at the NIH. \;In addi tion to helping myself\, I knew I'd be helping other Cushies coming along after me - something positive I could do while I was at my worst.
I hope that others will consider doing Clinical Trials\, if they qualify f or them. \;You never know who else you might help!
Read more at \;https://cushieblo g.com/2016/06/23/help-advance-research-for-better-cushings-syndrome-treatm ent/
CATEGORIES:Cushings UID:20160801T1246430Z-549422-198@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20000624 SUMMARY:Cushing's Disease or Syndrome? RRULE:FREQ=MONTHLY;UNTIL=20200624;BYDAY=2FR,-1FR DESCRIPTION:Cushing’s disease is the most common form of endogenous Cushing ’s syndrome. It is caused by a tumor in the pituitary gland that secretes excessive amounts of a hormone called Adrenocorticotropic hormone\, or ACT H. Fortunately\, this type of tumor is typically benign. Unlike a cancerou s (malignant) tumor\, a benign tumor stays in its original location and wi ll not spread. After you are diagnosed with Cushing’s syndrome\, it is imp ortant that your doctor continues the diagnostic process to determine the cause of hypercortisolism. Read more at http://www.cushings-info.com/index .php?title=Cushing%27s_Disease_or_Syndrome%3F X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease is the most common
form of endogenous Cushing&rsquo\;s syndrome. It is caused by a tumor in
the pituitary gland that secretes excessive amounts of a hormone called Ad
renocorticotropic hormone\, or ACTH. Fortunately\, this type of tumor is t
ypically benign. Unlike a cancerous (malignant) tumor\, a benign tumor sta
ys in its original location and will not spread. After you are diagnosed w
ith Cushing&rsquo\;s syndrome\, it is important that your doctor continues
the diagnostic process to determine the cause of hypercortisolism.
<
br />Read more at \;http://www.cushing
s-info.com/index.php?title=Cushing%27s_Disease_or_Syndrome%3F
The signs and symptoms of Cushing's syndrom e vary from person to person making Cushing's a really hard disease to dia gnose.
Read more at \;http://www.cushings-info.com/index .php?title=Symptoms
CATEGORIES:Cushings UID:20160626T0123110Z-549422-200@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20000530 SUMMARY:Cushing's Symptoms (Part 2) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200530;BYMONTHDAY=30 DESCRIPTION:Myth: 'All Cushing's patients have the exact same symptoms and the level of illness is the same for everyone. If you do not have ALL of t he classic symptoms of Cushing's\, then you must NOT have Cushing's Syndro me/Disease!' Read more at http://www.cushings-info.com/index.php?title=Sym ptoms\,_Part_2 X-ALT-DESC;FMTTYPE=text/html:Myth: \;'All Cushing's patients have the exact same symptoms and the level of illness is the sam e for everyone. If you do not have ALL of the classic symptoms of Cushing' s\, then you must NOT have Cushing's Syndrome/Disease!'
Read more at \;http://www.cushings-info.com/index.php?title=Sympt oms\,_Part_2
CATEGORIES:Cushings UID:20160626T0124380Z-549422-201@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:National Sunglasses Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200627;BYMONTH=6;BYMONTHDAY=27 DTSTART;VALUE=DATE:20000627 DTEND;VALUE=DATE:20000628 DESCRIPTION:Elton John has over a thousand pairs\, Canadian singer Corey Ha rt only wears his at night\, and you can tell the good guys from the bad g uys in The Matrix by the shape of theirs. What am I talking about? Sunglas ses\, of course! There’s nothing quite as stylish as a pair of shades\, so get out your aviators or your wayfarers and start celebrating National Su nglasses Day! Read more at http://www.maryo.co/national-sunglasses-day/ X-ALT-DESC;FMTTYPE=text/html:Elton John \;has over a thousand p
airs\, Canadian singer Corey Hart only wears his at night\, and you can te
ll the good guys from the bad guys in The Matrix by the shape of theirs. W
hat am I talking about? Sunglasses\, of course! There&rsquo\;s nothing qui
te as stylish as a pair of shades\, so get out your aviators or your wayfa
rers and start celebrating National Sunglasses Day!
Read more a
t \;http://www.maryo.co/national-sunglasses-day/
Megan is from San Antonio\, Texas. \;S he had a unilateral adrenalectomy on Wednesday\, June 22\, 2016. She's jus t under a week post-op and feeling pretty good.
Read more at \ ;https://cushingsbios.com/2016/06/28/megan-gaff228-adrenal- bio/
CATEGORIES:Cushie Bios UID:20160628T2240320Z-549422-203@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160628 SUMMARY:Not Cushing's: Sciatica DESCRIPTION:Sciatica refers to pain that radiates along the path of the sci atic nerve\, which branches from your lower back through your hips and but tocks and down each leg. Typically\, sciatica affects only one side of you r body. Read more at https://maryomedical.com/2016/06/28/sciatica/ X-ALT-DESC;FMTTYPE=text/html:Sciatica refers to pain that radiates along the path of the sciatic nerve\, which branches from your lower back throu gh your hips and buttocks and down each leg. Typically\, sciatica affects only one side of your body.
Read more at \;https://maryomedical. com/2016/06/28/sciatica/
CATEGORIES:Other Medical UID:20160629T0139370Z-549422-204@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Pituitary Hormones DTSTART;VALUE=DATE:20000701 DTEND;VALUE=DATE:20000702 RRULE:FREQ=WEEKLY;UNTIL=20200629;INTERVAL=2;BYDAY=MO,SA DESCRIPTION:http://www.cushings-info.com/index.php?title=Pituitary_Hormones X-ALT-DESC;FMTTYPE=text/html:http://www.cushings-info.co m/index.php?title=Pituitary_Hormones
CATEGORIES:Cushings UID:20160629T2306060Z-549422-205@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160629 SUMMARY:Elisabeth (bethnaz)\, Pituitary Bio DESCRIPTION:A Golden Oldie originally from Friday\, November 21\, 2008 Eliz abeth is from Mesa\, Arizona. She had pituitary surgery on November 26\, 2 008. Read more at https://cushingsbios.com/2016/06/29/elisabeth-bethnaz-pi tuitary-bio/ X-ALT-DESC;FMTTYPE=text/html:A Golden Oldie originally from Friday\, Nov
ember 21\, 2008
Elizabeth is from Mesa\, Arizona. She had pitui
tary surgery on November 26\, 2008.
Read more at \;https://cushingsbios.com/2016/06/29/elisabeth-bethnaz-pituitary- bio/
CATEGORIES:Cushie Bios UID:20160629T2315050Z-549422-206@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160630 SUMMARY:Hypopituitarism - Deficiency in Pituitary Hormone Production DESCRIPTION:Hypopituitarism is a health condition in which there is a reduc tion in the production of hormones by the pituitary gland. The pituitary g land is located at the base of the brain and is responsible for the produc tion of several hormones... Read more at https://cushieblog.com/2016/06/30 /hypopituitarism-deficiency-in-pituitary-hormone-production/ X-ALT-DESC;FMTTYPE=text/html:Hypopituitarism is a health condition in wh ich there is a reduction in the production of hormones by the pituitary gl and.
The pituitary gland is located at the base of the brain and i
s responsible for the production of several hormones...
Read mo
re at \;https://cushiebl
og.com/2016/06/30/hypopituitarism-deficiency-in-pituitary-hormone-producti
on/
Shears is from Grantham\, New Hampshire. Sh e had a Transsphenoidal surgery to remove her pituitary \;tumor. The pathology report results were that it was an ACTH (aka Cortisol) and Prola ctin Tumor.
Read more at \;https://cushing sbios.com/2016/06/30/sheara-sbailey-pituitary-bio-2/
CATEGORIES:Cushie Bios UID:20160630T1932060Z-549422-208@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20000701 SUMMARY:Adrenal Insufficiency DESCRIPTION:In simple terms\, Adrenal Insufficiency occurs when the body do es not have enough cortisol in it. You see\, cortisol is life sustaining a nd we actually do need cortisol to survive. You have probably seen the com mercials about 'getting rid of extra belly fat' by lowering your cortisol. These advertisements make it hard for people to actually understand the i mportance of the function of cortisol. Read more at http://www.cushings-in fo.com/index.php?title=Adrenal_Insufficiency X-ALT-DESC;FMTTYPE=text/html:In simple terms\, Adrenal Insufficiency occ
urs when the body does not have enough cortisol in it. You see\, cortisol
is life sustaining and we actually do need cortisol to survive. You have p
robably seen the commercials about 'getting rid of extra belly fat' by low
ering your cortisol. These advertisements make it hard for people to actua
lly understand the importance of the function of cortisol.
Read
more at \;http://www.cushings-info.com/index.php?t
itle=Adrenal_Insufficiency
Valerie \;is from Toms River\, New Jers ey. \;She has been on steroids for 6 years and as a result\, she now has Cushing's\, Addison's and type 2 diabetes. \;
Read more at \;https://cushingsbios.com/2016/07/01/valerie- vj713-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20160702T0108300Z-549422-210@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Joseph Ransohoff was born in 1915 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200701;BYMONTH=7;BYMONTHDAY=1 DTSTART;VALUE=DATE:20000701 DTEND;VALUE=DATE:20000702 DESCRIPTION:(1915) Russian-Jewish neuroscientist Joseph Ransohoff was born. He is known pioneering the use of medical imaging in the diagnosis and tr eatment of brain tumors. X-ALT-DESC;FMTTYPE=text/html:(1915) Russian-Jewish neuroscientist Joseph Ransohoff was born. He is known pioneering the use of medical imaging in the diagnosis and treatment of brain tumors.
CATEGORIES:This Day in Medical History UID:20160702T1538070Z-549422-211@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Michalina Wisłocka was born in 1921 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200701;BYMONTH=7;BYMONTHDAY=1 DTSTART;VALUE=DATE:20000701 DTEND;VALUE=DATE:20000702 DESCRIPTION:(1921) Polish gynecologist and sexologist Michalina Wisłocka wa s born. She was the co-founder of the Society of Sensible Maternity\, wher e she worked on infertility treatment and birth control. X-ALT-DESC;FMTTYPE=text/html:(1921) Polish gynecologist and sexologist M ichalina Wisłocka was born. She was the co-founder of the Society of Sensi ble Maternity\, where she worked on infertility treatment and birth contro l.
CATEGORIES:This Day in Medical History UID:20160702T1537500Z-549422-212@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Pituitary Post-Op DTSTART;VALUE=DATE:20000805 DTEND;VALUE=DATE:20000806 RRULE:FREQ=MONTHLY;UNTIL=20250702;BYDAY=1SA,4SA EXDATE;VALUE=DATE:20181027 DESCRIPTION:After your physicians have determined that it is reasonably saf e to discharge you from the hospital following transsphenoidal pituitary s urgery there are a number of important situations that may arise. Most peo ple feel well after discharge. However\, you should be aware of these poss ible problems\, just in case. The following general guidelines are provide d to promote your health and safety. Headache\, facial\, and sinus pain ar e not uncommon following pituitary surgery. As you may have noted\, the pa in and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort\, please con tact your neurosurgeon immediately. Read more at http://www.cushings-info. com/index.php?title=Pituitary_Post-Op X-ALT-DESC;FMTTYPE=text/html:After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsp henoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However\, you should be aware of these possible problems\, just in case. The following general gu idelines are provided to promote your health and safety.
Headache\ , facial\, and sinus pain are not uncommon following pituitary surgery. As you may have noted\, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pai n or discomfort\, please contact your neurosurgeon immediately.
Re ad more at \;http://www.cushings-info.com/index.php?tit le=Pituitary_Post-Op
CATEGORIES:Cushings UID:20181027T1851040Z-549422-213@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160702 SUMMARY:Julie\, Undiagnosed BIo DESCRIPTION:Julie is from Lewisburg. She is not yet diagnosed but has mor e tests in six weeks and is looking for advice. Read more at https://cushi ngsbios.com/2016/07/02/julie-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Julie \; \;is from Lewisburg. \;She is not yet diagnosed but has more tests in six weeks and is looking for advice.
Read more at \;https://cushingsbios.com /2016/07/02/julie-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160702T1553220Z-549422-214@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160702 SUMMARY:Video: Adrenalectomy for Cushing's Syndrome Surgical Management DESCRIPTION:A video of a laparoscopic adrenalectomy. Read more at https://c ushieblog.com/2016/07/02/video-adrenalectomy-for-cushings-syndrome-surgica l-management/ X-ALT-DESC;FMTTYPE=text/html:A video of a laparoscopic adrenalectomy.
Read more at \;https://cushieblog.com/2016/07/02/video-adrenalectomy-for-cushings-synd
rome-surgical-management/
Wanda is from Oklahoma. \;She is not y et diagnosed but has been having symptoms since she was 25. \;She is 44 now.
Read more at \;https://cushingsbios.com/2 016/07/02/wanda-g-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160703T0025090Z-549422-216@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Personal Stories - MaryO DTSTART;VALUE=DATE:20000806 DTEND;VALUE=DATE:20000807 RRULE:FREQ=MONTHLY;UNTIL=20200703;BYDAY=1SU,4SU DESCRIPTION:Life changed for me in 1983. At first I noticed I'd stopped hav ing my periods and\, of course\, I thought I was pregnant. I went to my Gy necologist who had no explanation. Lots of women lose their periods for a variety of reasons so no one thought that this was really significant. The n I got really tired\, overly tired. I would take my son to a half hour Ch oir rehearsal and could not stay awake for the whole time. I would lie dow n in the back of the van\, set an alarm and sleep for the 30 minutes. Read more at http://www.cushings-info.com/index.php?title=Personal_Stories_-_M aryO X-ALT-DESC;FMTTYPE=text/html:Life changed for me in 1983.
At fir st I noticed I'd stopped having my periods and\, of course\, I thought I w as pregnant. I went to my Gynecologist who had no explanation. Lots of wom en lose their periods for a variety of reasons so no one thought that this was really significant.
Then I got really tired\, overly tired. I
would take my son to a half hour Choir rehearsal and could not stay awake
for the whole time. I would lie down in the back of the van\, set an alar
m and sleep for the 30 minutes.
Read more at \;http://www.cushings-info.com/index.php?title=Personal_Stories_-_
MaryO
\;
Other ideas here: \; http://cushings.invisionzone.com/index.php?/topic/54095-we-could-all-be-ri ch/
CATEGORIES:Entertainment UID:20161205T0030440Z-549422-219@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160704 SUMMARY:Cushing's Syndrome Masquerading as Treatment Resistant Depression DESCRIPTION:We report a case of recurrent depressive disorder\, who present ed with severe depressive episode without psychotic symptoms\, not respond ing to multiple adequate trials of antidepressants\, who on investigation was found to have Cushing's syndrome and responded well to Ketoconazole. R ead more at https://cushieblog.com/2016/07/04/cushings-syndrome-masqueradi ng-as-treatment-resistant-depression/ X-ALT-DESC;FMTTYPE=text/html:We report a case of recurrent depressive di sorder\, who presented with severe depressive episode without psychotic sy mptoms\, not responding to multiple adequate trials of antidepressants\, w ho on investigation was found to have Cushing's syndrome and responded wel l to Ketoconazole.
Read more at \;https://cushieblog.com/2016/07/04/cushings-syndrom e-masquerading-as-treatment-resistant-depression/
CATEGORIES:News Items UID:20160704T1828380Z-549422-220@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160704 SUMMARY:Heather P (Heather)\, Undiagnosed Bio DESCRIPTION:Heather is from Colorado. Her husband is not yet diagnosed wit h Cushing's but he has been having a lot of symptoms since late 2015. Read more at https://cushingsbios.com/2016/07/04/heather-p-heather-undiagnosed -bio/ X-ALT-DESC;FMTTYPE=text/html:Heather \;is from Colorado. \;Her husband is not yet diagnosed with Cushing's but he has been having a lot o f symptoms since late 2015.
Read more at \;https://cushingsbios.com/2016/07/04/heather-p-heather-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160704T2111260Z-549422-221@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:All Types of Cushing's are NOT the Same DTSTART;VALUE=DATE:20000801 DTEND;VALUE=DATE:20000802 RRULE:FREQ=MONTHLY;UNTIL=20200704;BYDAY=1TU,5TU EXDATE;VALUE=DATE:20181030 DESCRIPTION: In the words of our dear friend and advocate\, Robin Ess\, 'Th ere are many genetic varieties with quite a few discovered in the past cou ple of years. Plus\, there are several types such as adrenal\, ectopic\, a nd pituitary. And so on'....Amazingly\, some doctors do not realize that t here are different varieties of Cushing's and that the symptoms can come f rom a different source. Read more at http://www.cushings-info.com/index.ph p?title=All_Types_of_Cushing%27s_are_NOT_the_Same X-ALT-DESC;FMTTYPE=text/html: \;In the words of our dear friend and
advocate\, Robin Ess\, 'There are many genetic varieties with quite a few
discovered in the past couple of years. Plus\, there are several types suc
h as adrenal\, ectopic\, and pituitary. And so on'....Amazingly\, some doc
tors do not realize that there are different varieties of Cushing's and th
at the symptoms can come from a different source.
Read more at&
nbsp\;http://www.cushings-info.com/
index.php?title=All_Types_of_Cushing%27s_are_NOT_the_Same
(1934) Polish and naturalized-French physic ist and chemist Marie Curie passes away. She is remembered for her work in radiation and the development of the theory of radioactivity.
&nb sp\;
\;
CATEGORIES:This Day in Medical History UID:20160706T0915140Z-549422-223@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Help Yourself\, Part 1 DTSTART;VALUE=DATE:20000802 DTEND;VALUE=DATE:20000803 RRULE:FREQ=MONTHLY;UNTIL=20200706;BYDAY=1WE DESCRIPTION:Tips for living with Cushing's - before\, during and after trea tment. Please feel free to add your own tips here! Cushing’s disease may s ometimes make you feel that your life is out of your control. But there ar e some general things you can do to help take back control. For specific t ips such as Getting Medical Attention for an Adrenal Crisis or how to make an Emergency Kit\, please see Helpful Hints Read more at http://www.cushi ngs-info.com/index.php?title=Help_Yourself\,_Part_1 X-ALT-DESC;FMTTYPE=text/html:Tips for living with Cushing's - before\, d uring and after treatment. Please feel free to add your own tips here!
Cushing&rsquo\;s disease may sometimes make you feel that your life i s out of your control. But there are some general things you can do to hel p take back control.
For specific tips such as Getting Medical Att ention for an Adrenal Crisis or how to make an Emergency Kit\, please see& nbsp\;Helpful Hints
Read m ore at \;http://www.cushings-info.com/index.php?ti tle=Help_Yourself\,_Part_1
CATEGORIES:Cushings UID:20160706T0918060Z-549422-224@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Help Yourself\, Part 2 DTSTART;VALUE=DATE:20000809 DTEND;VALUE=DATE:20000810 RRULE:FREQ=MONTHLY;UNTIL=20200706;BYDAY=2WE DESCRIPTION:From Tips from LindaP Things I've learned and wanted to share B y LindaP\, with a little help from other Cushing's Message Board members. This is a continuing list\, if you want to share. I have learned so much o n this Cushing's journey\, much of it from all of you and this site. I wan ted to share those learnings\, in the event that it helps anyone else. Obv iously - my own opinions here! My best wishes to everyone on their Cushing 's journey. Read more at http://www.cushings-info.com/index.php?title=Help _Yourself\,_Part_2 X-ALT-DESC;FMTTYPE=text/html:From \;Tips from LindaP
Things I've learned and wanted to share
By LindaP\, with a little help from other \;Cushing's Message Board \;members. This is a continuing list\, if you want to share.
I have learned so mu ch on this Cushing's journey\, much of it from all of you and this site. I wanted to share those learnings\, in the event that it helps anyone else.
Obviously - my own opinions here!
My best wishes to every one on their Cushing's journey.
Read more at \;http://www.cushings-info.com/index.php?title=Help_Yourself\,_Part_2
CATEGORIES:Cushings UID:20160706T0919450Z-549422-225@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Help Yourself\, Part 3 DTSTART;VALUE=DATE:20000816 DTEND;VALUE=DATE:20000817 RRULE:FREQ=MONTHLY;UNTIL=20200706;BYDAY=3WE DESCRIPTION:Good general info for anyone\, no matter what symptoms or disea se you may have. Read more at http://www.cushings-info.com/index.php?title =Help_Yourself\,_Part_3 X-ALT-DESC;FMTTYPE=text/html:Good general info for anyone\, no matter wh at symptoms or disease you may have.
Read more at \;http://www.cushings-info.com/index.php?title=Help_Yourself\,_Par t_3
CATEGORIES:Cushings UID:20160706T0921070Z-549422-226@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Birthday of the Message Boards RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300930;BYMONTH=9;BYMONTHDAY=30 DTSTART;VALUE=DATE:20000930 DTEND;VALUE=DATE:20001001 DESCRIPTION:Today is the birthday\, or anniversary\, of the boards startin g September 30\, 2000 (The rest of the site started earlier that year on July 21\, 2000) As of today\, we have 73\,024 members who have made countl ess posts. Find the message boards here: http://cushings.invisionzone.com/ X-ALT-DESC;FMTTYPE=text/html:Today \;is the birthday\, or anniversa ry\, of the boards starting September 30\, 2000 \;
(The rest of the site started earlier that year on July 21\, 20 00)
As of today\, we have 73\,024 \;members who have made countless posts.
Find the message boards here: \;http://cushi ngs.invisionzone.com/
CATEGORIES:Cushings UID:20220929T1309000Z-549422-227@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy Birthday\, Cushings-Help.com! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300721;BYMONTH=7;BYMONTHDAY=21 DTSTART;VALUE=DATE:20000721 DTEND;VALUE=DATE:20000722 DESCRIPTION:The first website (http://www.cushings-help.com) first went 'li ve' July 21\, 2000 and the message boards September 30\, 2000. Read more at https://cushieblog.com/2023/07/21/happy-23rd-birthday/ X-ALT-DESC;FMTTYPE=text/html:The first website (http://www .cushings-help.com) first went 'live' July 21\, 2000 and the& nbsp\;message boards \;September 30\, 2000. \;
Read more at \;https://cushieblog.com/2023/07 /21/happy-23rd-birthday/
CATEGORIES:Cushings UID:20230721T0827540Z-549422-228@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Natalia Bekhtereva was born in 1924 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250707;BYMONTH=7;BYMONTHDAY=7 DTSTART;VALUE=DATE:20000707 DTEND;VALUE=DATE:20000708 DESCRIPTION:(1924) Russian neuroscientist and psychologist Natalia Bekhtere va is born. She published more than 360 works\, including a report on the biopotential of cerebral hemispheres in human brain tumors. X-ALT-DESC;FMTTYPE=text/html:(1924) Russian neuroscientist and psycholog ist Natalia Bekhtereva is born. She published more than 360 works\, includ ing a report on the biopotential of cerebral hemispheres in human brain tu mors.
CATEGORIES:This Day in Medical History UID:20180707T1829490Z-549422-229@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memoriam: Kassey Whiterock RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300630;BYMONTH=6;BYMONTHDAY=30 DTSTART;VALUE=DATE:20160630 DTEND;VALUE=DATE:20160701 DESCRIPTION:Kassey passed away on June 30\, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st. Kassey was only 20 years old. Read more at https://cushingsbios.com/2021/06/30/i n-memory-kassey-whiterock-june-30-2016/ X-ALT-DESC;FMTTYPE=text/html:Kassey passed away on June 30\, 2016. Her s ister said she died in her sleep. She was in the hospital due to a crisis on June 21st.
Kassey was only 20 years old.
Read more at&n bsp\;https://cushingsbios.com/2021/06/30/in-m emory-kassey-whiterock-june-30-2016/
CATEGORIES:In Memory UID:20210630T1551040Z-549422-230@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160707 SUMMARY:Support Cushing's Help With Bravelets RRULE:FREQ=DAILY;COUNT=3 EXDATE;VALUE=DATE:20160708,20160709 DESCRIPTION:TODAY! Original Rope Bracelets are 25% OFF with code: ROPE25. E nds at midnight CST! $10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cus hings Help family of websites. For nearly 16 years we have provided inform ation\, support\, RSS feeds\, news\, and education for people with Cushing 's or other endocrine problems\, their friends and families. Cushing's syn drome is a hormonal disorder caused by prolonged exposure of the body's ti ssues to high levels of cortisol. Read more at https://www.bravelets.com/b ravepage/cushing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:TODAY! Original Rope Bracelets are 25% OFF with code: ROPE25. Ends at midnight CST!
$10 from every item sold on this page will be donated to help raise awareness for Cushing&rsquo\;s Disease through the work of the Cushings Help family of w ebsites. For nearly 16 years we have provided information\, support\, RSS feeds\, news\, and education for people with Cushing's or other endocrine problems\, their friends and families. Cushing's syndrome is a hormonal di sorder caused by prolonged exposure of the body's tissues to high levels o f cortisol.
Read more at \;https://www.bravelet s.com/bravepage/cushing-s-help-and-support
CATEGORIES:Support Cushing's Help UID:20160707T1947160Z-549422-231@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160708 SUMMARY:Support Cushing's Help With Bracelets: TODAY! Rosa Bracelets are 25 % OFF DESCRIPTION:TODAY! Rosa Bracelets are 25% OFF with code: ROSA25. Ends at mi dnight! $10 from every item sold on this page will be donated to help rais e awareness for Cushing’s Disease through the work of the Cushings Help fa mily of websites. For nearly 16 years we have provided information\, suppo rt\, RSS feeds\, news\, and education for people with Cushing's or other e ndocrine problems\, their friends and families. Cushing's syndrome is a ho rmonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/cush ing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:TODAY! Rosa Bracelets are 25% OFF w ith code: ROSA25. Ends at midnight!
$10 from every item s old on this page will be donated to help raise awareness for Cushing&rsquo \;s Disease through the work of the Cushings Help family of websites. For nearly 16 years we have provided information\, support\, RSS feeds\, news\ , and education for people with Cushing's or other endocrine problems\, th eir friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol.
Read more at \;https://www.bravelets.com/bravepa ge/cushing-s-help-and-support
CATEGORIES:Support Cushing's Help UID:20160708T1512220Z-549422-232@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160709 SUMMARY:Support Cushing's Help With Bravelets DESCRIPTION:TODAY! Maya Bracelets are 25% OFF with code: MAYA25. Ends at mi dnight CST! $10 from every item sold on this page will be donated to help raise awareness for Cushing’s Disease through the work of the Cushings Hel p family of websites. For nearly 16 years we have provided information\, s upport\, RSS feeds\, news\, and education for people with Cushing's or oth er endocrine problems\, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Read more at https://www.bravelets.com/bravepage/ cushing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:TODAY! Maya Bracelets are 25% OFF with code: MAYA25. Ends at midnight CST!
$10 from every item sold on this page will be donated to help raise awareness for Cushing&rsquo\;s Disease through the work of the Cushings Help family of websites. For near ly 16 years we have provided information\, support\, RSS feeds\, news\, an d education for people with Cushing's or other endocrine problems\, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol.
Read more at \;https://www.bravelets.com/bravepage/c ushing-s-help-and-support
CATEGORIES:Support Cushing's Help UID:20160709T1631560Z-549422-233@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160707 SUMMARY:Kali\, Undiagnosed Bio DESCRIPTION:Kali is from Canada. She's 20 years old and has been on this j ourney for a year and a half now. She has many Cushing's symptoms but she 's not getting a positive diagnosis from testing. Read more at https://cu shingsbios.com/2016/07/07/kali-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Kali is from Canada. She's \;20 years old and has been on this journey for a year and a half now. \;She has many Cushing's symptoms but she's not getting a positive diagnosis from t esting. \;
Read more at \;https://cushingsbios.c om/2016/07/07/kali-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160708T0133250Z-549422-234@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Nominations for RareVoice Awards close July 31 DTSTART;VALUE=DATE:20160708 DTEND;VALUE=DATE:20160709 RRULE:FREQ=WEEKLY;UNTIL=20160731;BYDAY=SU,FR DESCRIPTION:Rare Disease Legislative Advocates is accepting nominations for the 5th Annual RareVoice Awards\, a celebration to honor advocates and po licy leaders who give rare disease patients a “voice” on Capitol Hill and in State government. Read more at https://cushieblog.com/2016/07/08/nomina tions-for-rarevoice-awards-close-july-31/ X-ALT-DESC;FMTTYPE=text/html:Rare Disease Legislative Advocates \;is accepting nominations for the \;5th Annual RareVoice Awards\, a celebr ation to honor advocates and policy leaders who give rare disease patients a &ldquo\;voice&rdquo\; on Capitol Hill and in State government.
Read more at \;https://cushieblog.co m/2016/07/08/nominations-for-rarevoice-awards-close-july-31/
CATEGORIES:Other Medical UID:20160729T1439100Z-549422-235@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160708 SUMMARY:Cushing’s syndrome: Pituitary surgery alone is the preferred treatm ent to improve survival DESCRIPTION:No agreement has been reached on the long-term survival prospec ts for patients with Cushing's disease. We studied life expectancy in pati ents who had received curative treatment and whose hypercortisolism remain ed in remission for more than 10 years\, and identified factors determinin g their survival. Read more at https://cushieblog.com/2016/07/08/cushings- syndrome-pituitary-surgery-alone-is-the-preferred-treatment-to-improve-sur vival/ X-ALT-DESC;FMTTYPE=text/html:No agreement has been reached on the long-t erm survival prospects for patients with Cushing's disease. We studied lif e expectancy in patients who had received curative treatment and whose hyp ercortisolism remained in remission for more than 10 years\, and identifie d factors determining their survival.
Read more at \;https:/ /cushieblog.com/2016/07/08/cushings-syndrome-pituitary-surgery-alone-is-th e-preferred-treatment-to-improve-survival/
CATEGORIES:Cushings UID:20160709T0223320Z-549422-236@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160711 SUMMARY:Crystal T\, Undiagnosed Bio DESCRIPTION:Crystal is from Westblocton\, Alabama. She is not yet diagnose d with Cushing's but 4 doctors from her primary to specialist believe she has some form of Cushing's. Read more at https://cushingsbios.com/2016/07 /11/crystal-t-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Crystal is from Westblocton\, Alabama. &nbs p\;She is not yet diagnosed with Cushing's but 4 doctors from her primary to specialist believe she has some form of Cushing's. \;
Read more at \;https://cushingsbios.com/2016/07/11/crystal-t -undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160711T1212330Z-549422-237@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:William Osler was born in 1849 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200712;BYMONTH=7;BYMONTHDAY=12 DTSTART;VALUE=DATE:20000712 DTEND;VALUE=DATE:20000713 DESCRIPTION:(1849) Canadian physician William Osler was born. He was one of the four founding professors of Johns Hopkins Hospital. X-ALT-DESC;FMTTYPE=text/html:(1849) Canadian physician William Osler was born. He was one of the four founding professors of Johns Hopkins Hospita l.
CATEGORIES:This Day in Medical History UID:20160712T1509050Z-549422-238@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Claude Bernard was born in 1813 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200712;BYMONTH=7;BYMONTHDAY=12 DTSTART;VALUE=DATE:20000712 DTEND;VALUE=DATE:20000713 DESCRIPTION:(1813) French physiologist Claude Bernard was born. He was one of the first to suggest the idea of using blind experiments\, in order to ensure the objectivity of scientific observations in clinical research stu dies. X-ALT-DESC;FMTTYPE=text/html:(1813) French physiologist Claude Bernard w as born. He was one of the first to suggest the idea of using blind experi ments\, in order to ensure the objectivity of scientific observations in c linical research studies.
CATEGORIES:This Day in Medical History UID:20160712T1510070Z-549422-239@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Jenni Moore ~ January 25\, 2016 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200125;BYMONTH=1;BYMONTHDAY=25 DTSTART;VALUE=DATE:20160125 DTEND;VALUE=DATE:20160126 DESCRIPTION:Jenni was a 26-year-old who had complications from two unsucces sful operations to remove a tumor of the pituitary gland. A Type 2 diabeti c since 2002\, Miss Moore suffered from emotionally unstable personality d isorder and an abusive relationship\, before a diagnosis of Cushing’s dise ase as a result of the tumor. Read more at https://cushingsbios.com/2016/0 7/13/in-memory-of-jenni-moore-january-25-2016/ X-ALT-DESC;FMTTYPE=text/html:Jenni was a 26-year-old who had complicatio ns from two unsuccessful operations to remove a tumor of the pituitary gla nd.
A Type 2 diabetic since 2002\, Miss Moore suffered from emotio nally unstable personality disorder and an abusive relationship\, before a diagnosis of Cushing&rsquo\;s disease as a result of the tumor.
R ead more at \;https://cushingsbios.com/2 016/07/13/in-memory-of-jenni-moore-january-25-2016/
CATEGORIES:In Memory UID:20160713T1445590Z-549422-240@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160714 SUMMARY:Ryley (Sunshine)\, Possible Adrenal Bio DESCRIPTION:Ryley is from Joliet\, Illinois. Her endo thinks Ryley has an adrenal problem. Read more at https://cushingsbios.com/2016/07/14/ryley-su nshine-possible-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Ryley is from Joliet\, Illinois. \;Her endo thinks Ryley has an adrenal problem.
Read more at \;https://cushingsbios.com/2016/07/14/ryley-sunshine-po ssible-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160714T1326000Z-549422-241@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160714 SUMMARY:Six controversial issues on subclinical Cushing’s syndrome DESCRIPTION:Subclinical Cushing’s syndrome is a condition of hypercortisoli sm in the absence of signs specific of overt cortisol excess\, and it is a ssociated with an increased risk of diabetes\, hypertension\, fragility fr actures\, cardiovascular events and mortality. Read more at https://cushie blog.com/2016/07/14/six-controversial-issues-on-subclinical-cushings-syndr ome/ X-ALT-DESC;FMTTYPE=text/html:Subclinical Cushing&rsquo\;s syndrome is a condition of hypercortisolism in the absence of signs specific of overt co rtisol excess\, and it is associated with an increased risk of diabetes\, hypertension\, fragility fractures\, cardiovascular events and mortality.< /p>
Read more at \;ht tps://cushieblog.com/2016/07/14/six-controversial-issues-on-subclinical-cu shings-syndrome/
CATEGORIES:News Items UID:20160714T1434340Z-549422-242@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Glossary DTSTART;VALUE=DATE:20000715 DTEND;VALUE=DATE:20000716 RRULE:FREQ=WEEKLY;UNTIL=20200715;BYDAY=WE EXDATE;VALUE=DATE:20181024 DESCRIPTION:Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know. Find them at http://www.cu shings-help.com/definitions.htm X-ALT-DESC;FMTTYPE=text/html:Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know.
< p>Find them at \;http://www.cushings-help.com/definitions.htm CATEGORIES:Cushings UID:20160715T1002000Z-549422-243@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160715 SUMMARY:Elevated late-night salivary cortisol may indicate recurrent Cushin g’s disease DESCRIPTION:According to the researchers\, late-night salivary cortisol lev el is more sensitive for detecting Cushing’s disease recurrence compared w ith urinary free cortisol or a dexamethasone suppression test. Read more a t https://cushieblog.com/2016/07/15/elevated-late-night-salivary-cortisol- may-indicate-recurrent-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:According to the researchers\, late-night s alivary cortisol level is more sensitive for detecting Cushing&rsquo\;s di sease recurrence compared with urinary free cortisol or a dexamethasone su ppression test.
Read more at \;https://cushieblog.com/2016/07/15/elevat ed-late-night-salivary-cortisol-may-indicate-recurrent-cushings-disease/
CATEGORIES:Cushings UID:20160715T1426360Z-549422-244@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160716 SUMMARY:Primary hyperaldosteronism: a case of unilateral adrenal hyperplasi a with contralateral incidentaloma DESCRIPTION:Primary hyperaldosteronism is one of the most common causes of secondary hypertension but clear differentiation between its various subty pes can be a clinical challenge. Read more at https://cushieblog.com/2016/ 07/16/primary-hyperaldosteronism-a-case-of-unilateral-adrenal-hyperplasia- with-contralateral-incidentaloma/ X-ALT-DESC;FMTTYPE=text/html:Primary hyperaldosteronism is one of the mo st common causes of secondary hypertension but clear differentiation betwe en its various subtypes can be a clinical challenge.
Read more at& nbsp\;https://cushieblog.com/2016/07/16/primary-hyperaldoste ronism-a-case-of-unilateral-adrenal-hyperplasia-with-contralateral-inciden taloma/
CATEGORIES:News Items UID:20160716T1244120Z-549422-245@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160716 SUMMARY:GH therapy increases fracture risk in patients previously treated f or acromegaly DESCRIPTION:The researchers noted that patients with previous Cushing’s dis ease were younger and more often women and had a greater history of osteop enia or osteoporosis\, whereas patients with acromegaly had a longer durat ion between tumor treatment and the start of GH therapy and were treated m ore often with radiotherapy. Read more at https://cushieblog.com/2016/07/1 6/gh-therapy-increases-fracture-risk-in-patients-previously-treated-for-ac romegaly/ X-ALT-DESC;FMTTYPE=text/html:The researchers noted that patients with pr evious \;Cushing&rsquo\;s disease \;were younger and more often wo men and had a greater history of osteopenia or osteoporosis\, whereas pati ents with acromegaly had a longer duration between tumor treatment and the start of GH therapy and were treated more often with radiotherapy.
< p>Read more at \;https://cushieblog.com/2016/07/16/gh-therapy-increases-frac ture-risk-in-patients-previously-treated-for-acromegaly/ CATEGORIES:News Items UID:20160716T2330060Z-549422-246@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160717 SUMMARY:National Ice Cream Day! DESCRIPTION: Read more at http://www.maryo.co/happy-ice-cream-day/ X-ALT-DESC;FMTTYPE=text/html:
\;
Read more at \;http://www.maryo.co/happy-ice-cream-day/
CATEGORIES:Holiday UID:20160717T1326300Z-549422-247@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20160720T073000 DTEND;TZID=America/New_York:20160720T083000 SUMMARY:Cushing's Segment on TV DESCRIPTION:The segment on Cushing's for The Balancing Act on Lifetime will air on both July 20 and July 27 at 7:30am ET/PT. Here is a short 'teaser' for it. https://youtu.be/yGaZ32A0Yq8 X-ALT-DESC;FMTTYPE=text/html:The segment on Cushing's for The Balancing Act on Lifetime will air on both July 20 and July 27 at 7:30am ET/PT.
Here is a short 'teaser' for it.
https://youtu.be/yGaZ32A0Yq8< /p> CATEGORIES:Cushings UID:20160718T0243500Z-549422-248@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20160727T073000 DTEND;TZID=America/New_York:20160727T083000 SUMMARY:Cushing's Segment on TV DESCRIPTION:The segment on Cushing's for The Balancing Act on Lifetime will air on both July 20 and July 27 at 7:30am ET/PT. Here is a short 'teaser ' for it. https://youtu.be/yGaZ32A0Yq8 X-ALT-DESC;FMTTYPE=text/html:
The segment on Cushing's for The Balancing Act on Lifetime will air on both July 20 and July 27 at 7:30am ET/PT. \;
Here is a short 'teaser' for it.
https://youtu.be/yGaZ3 2A0Yq8
CATEGORIES:Cushings UID:20160718T0244420Z-549422-249@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160718 SUMMARY:Rebecca\, Undiagnosed Bio DESCRIPTION:Rebecca is from Perth\, Australia. She has many Cushing's symp toms but is not yet diagnosed. Read more at https://cushingsbios.com/2016/ 07/18/rebecca-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Rebecca \;is from Perth\, Australia. S he has many Cushing's symptoms but is not yet diagnosed.
Read more at \;https://cushingsbios.com/2016/07/18/rebecca-undiagn osed-bio/
CATEGORIES:Cushie Bios UID:20160718T1044410Z-549422-250@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160720 SUMMARY: Menopause sometimes requires a survival guide DESCRIPTION:Menopause has gotten a bad rap. Women in their 40s and 50s who have any symptoms – from moodiness to insomnia and headaches – may believe that it’s a normal part of aging and there’s not much they can do about i t. Read more at https://power-surge.co/2016/07/20/menopause-sometimes-requ ires-a-survival-guide/ X-ALT-DESC;FMTTYPE=text/html:Menopause has gotten a bad rap. Women in th eir 40s and 50s who have any symptoms &ndash\; from moodiness to insomnia and headaches &ndash\; may believe that it&rsquo\;s a normal part of aging and there&rsquo\;s not much they can do about it.
Read more at&nb sp\;https://power-surge.co/2016/07/20/men opause-sometimes-requires-a-survival-guide/
CATEGORIES:Other Medical UID:20160720T1443190Z-549422-251@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Charles Horace Mayo was born in 1865 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200719;BYMONTH=7;BYMONTHDAY=19 DTSTART;VALUE=DATE:20000719 DTEND;VALUE=DATE:20000720 DESCRIPTION:(1865) American medical practitioner Charles Horace Mayo is bor n. He is one of the founders of the Mayo Clinic\, a non-profit medical pr actice and medical research group. He also specialized in nervous system a nd thyroid surgery. X-ALT-DESC;FMTTYPE=text/html:(1865) American medical practitioner Charle s Horace Mayo is born. He is one of the founders of the Mayo Clinic\, &nbs p\;a non-profit medical practice and medical research group. He also speci alized in nervous system and thyroid surgery.
CATEGORIES:This Day in Medical History UID:20160720T2056320Z-549422-252@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160723 SUMMARY:Pituitary Gland: Normal Function and Assessment DESCRIPTION:This computer-based\, interactive module introduces preclinical medical students to normal pituitary function and outlines its assessment . Solid understanding of these topics is requisite to learning clinical di sorders of the pituitary. Read more at https://cushieblog.com/2016/07/23/p ituitary-gland-normal-function-and-assessment/ X-ALT-DESC;FMTTYPE=text/html:This computer-based\, interactive module in troduces preclinical medical students to normal pituitary function and out lines its assessment. Solid understanding of these topics is requisite to learning clinical disorders of the pituitary.
Read more at \;< a href='https://cushieblog.com/2016/07/23/pituitary-gland-normal-function- and-assessment/' target='_blank'>https://cushieblog.com/2016/07/23/pituita ry-gland-normal-function-and-assessment/
CATEGORIES:News Items UID:20160723T1709360Z-549422-253@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160723 SUMMARY:Bravelets! 25% off the Amelia Bracelet through 7/24. Code: AMELIA25 . RRULE:FREQ=DAILY;COUNT=2 DESCRIPTION:$10 from every item sold on this page will be donated to help r aise awareness for Cushing’s Disease through the work of the Cushings Help family of websites. For over 16 years we have provided information\, supp ort\, RSS feeds\, news\, and education for people with Cushing's or other endocrine problems\, their friends and families. Cushing's syndrome is a h ormonal disorder caused by prolonged exposure of the body's tissues to hig h levels of cortisol. Read more at https://www.bravelets.com/bravepage/cus hing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:$10 from every item sold on this page will be donated to help raise awareness for Cushing&rsquo\;s Disease through th e work of the Cushings Help family of websites. For over 16 years we have provided information\, support\, RSS feeds\, news\, and education for peop le with Cushing's or other endocrine problems\, their friends and families . Cushing's syndrome is a hormonal disorder caused by prolonged exposure o f the body's tissues to high levels of cortisol.
Read more at \;https://www.bravelets.com/bravepage/cushing-s-help-and-su pport
CATEGORIES:Support Cushing's Help UID:20160723T2113570Z-549422-254@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160727 SUMMARY:Psoriatic arthritis patients face more endocrine comorbidities DESCRIPTION:In a univariate analysis\, the risk for Cushing’s disease was n otably higher among psoriatic arthritis patients\, compared with controls. Read more at https://cushieblog.com/2016/07/27/psoriatic-arthritis-patien ts-face-more-endocrine-comorbidities/ X-ALT-DESC;FMTTYPE=text/html:In a univariate analysis\, the risk for Cus hing&rsquo\;s disease was notably higher among psoriatic arthritis patient s\, compared with controls.
Read more at \;https://cushieblog.com/2016/07/27/psoriatic -arthritis-patients-face-more-endocrine-comorbidities/
CATEGORIES:Cushings UID:20160727T1356320Z-549422-255@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Paul Langerhans was born in 1847 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200725;BYMONTH=7;BYMONTHDAY=25 DTSTART;VALUE=DATE:20000725 DTEND;VALUE=DATE:20000726 DESCRIPTION: (1847) German pathologist\, physiologist and biologist Paul La ngerhans was born. He is best known for his discovery of Islets of Langerh ans\, pancreatic cells which produce insulin. X-ALT-DESC;FMTTYPE=text/html:\;(1847) German pathologist\, physiolo gist and biologist Paul Langerhans was born. He is best known for his disc overy of Islets of Langerhans\, pancreatic cells which produce insulin.
CATEGORIES:This Day in Medical History UID:20160728T1531240Z-549422-256@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:José Celso Barbosa was born in 1857 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200727;BYMONTH=7;BYMONTHDAY=27 DTSTART;VALUE=DATE:20000727 DTEND;VALUE=DATE:20000728 DESCRIPTION:(1857) Puerto Rican physician\, sociologist José Celso Barbosa was born. He initiated an early form of health insurance\, encouraging emp loyers to pay a fee to cover future needs of their employees. X-ALT-DESC;FMTTYPE=text/html:(1857) Puerto Rican physician\, sociologist José\; Celso Barbosa was born. He initiated an early form of health insurance\, encouraging employers to pay a fee to cover future needs of t heir employees.
CATEGORIES:This Day in Medical History UID:20160728T1533200Z-549422-257@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160729 SUMMARY:Bravelets! 20% off everything! Code: BRAVE20 Ends 7/29. DESCRIPTION:$10 from every item sold on this page will be donated to help r aise awareness for Cushing’s Disease through the work of the Cushings Help family of websites. For over 16 years we have provided information\, supp ort\, RSS feeds\, news\, and education for people with Cushing's or other endocrine problems\, their friends and families. Read more at https://www. bravelets.com/bravepage/cushing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:$10 from every item sold on this page will be donated to help raise awareness for Cushing&rsquo\;s Disease through th e work of the Cushings Help family of websites. For over 16 years we have provided information\, support\, RSS feeds\, news\, and education for peop le with Cushing's or other endocrine problems\, their friends and families .
Read more at \;https://www.bravelets.com/bravepage/cushing-s -help-and-support
CATEGORIES:Support Cushing's Help UID:20160729T1301020Z-549422-258@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Isidor Isaac Rabi was born in 1898 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200729;BYMONTH=7;BYMONTHDAY=29 DTSTART;VALUE=DATE:20000729 DTEND;VALUE=DATE:20000730 DESCRIPTION:(1898) American physicist Isidor Isaac Rabi was born. He won th e Nobel Prize in 1944 for his discovery of nuclear magnetic resonance\, wh ich is used in magnetic resonance imaging (MRI). X-ALT-DESC;FMTTYPE=text/html:(1898) American physicist Isidor Isaac Rabi was born. He won the Nobel Prize in 1944 for his discovery of nuclear mag netic resonance\, which is used in magnetic resonance imaging (MRI).
CATEGORIES:This Day in Medical History UID:20160729T1437160Z-549422-259@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Ronald Fisher passed away in 1962 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200729;BYMONTH=7;BYMONTHDAY=29 DTSTART;VALUE=DATE:20000729 DTEND;VALUE=DATE:20000730 DESCRIPTION:(1962) English statistician\, and biologist Ronald Fisher pass ed away. He is known for developing the analysis of variance (ANOVA)\, whi ch is used in clinical trials to compare the means of more than two sample s. X-ALT-DESC;FMTTYPE=text/html:(1962) \;English statistician\, and bi ologist Ronald Fisher passed away. He is known for developing the analysis of variance (ANOVA)\, which is used in clinical trials to compare the mea ns of more than two samples.
CATEGORIES:This Day in Medical History UID:20160729T1438160Z-549422-260@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160731 SUMMARY:Jennifer M's Daughter\, Undiagnosed Bio DESCRIPTION:Jennifer M is from Erie\, PA. Her 9-year-old daughter is not yet diagnosed with Cushing's but she is testing now. Read more at https:// cushingsbios.com/2016/07/31/jennifer-ms-daughter-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Jennifer M \;is from Erie\, PA. \ ;Her 9-year-old daughter is not yet diagnosed with Cushing's but she is te sting now.
Read more at \;https://cu shingsbios.com/2016/07/31/jennifer-ms-daughter-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20160731T2347350Z-549422-261@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy August! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200801;BYMONTH=8;BYMONTHDAY=1 DTSTART;VALUE=DATE:20000801 DTEND;VALUE=DATE:20000802 DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html:
(1788) German chemist Leopold Gmelin was bo rn. He created Gmelin&rsquo\;s test\, a chemical test which detects the pr esence of bile in a urine sample.
CATEGORIES:This Day in Medical History UID:20160803T1920570Z-549422-263@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160803 SUMMARY:Interview with a Doctor on Trans-Sphenoidal surgery DESCRIPTION:As neurosurgeons we use an endoscope with a camera attached to it and insert the instrument through the nostril. We go through the right nostril and through the sinus to reach the tumor and remove it. Once that is done\, we add a coagulant to prevent bleeding. The operation takes only an hour to 90 minutes to perform and is minimally invasive. People come i n and expect the surgery to last five or six hours. They hear “surgery” an d fearfully assume that. But modern trans-sphenoidal surgery is simple\, o nly lasting one to two hours. Read more at https://cushieblog.com/2016/08 /03/interview-with-a-doctor-on-trans-sphenoidal-surgery/ X-ALT-DESC;FMTTYPE=text/html:As \;neurosurgeons \;we use an endo scope with a camera attached to it and insert the instrument through the n ostril. We go through the right nostril and through the sinus to reach the tumor and remove it. Once that is done\, we add a coagulant to prevent bl eeding. The operation takes only an hour to 90 minutes to perform and is m inimally invasive. People come in and expect the surgery to last five or s ix hours. They hear &ldquo\;surgery&rdquo\; and fearfully assume that. But modern trans-sphenoidal surgery is simple\, only lasting one to two hours . \;
Read more at \;https://cushieblog.com/2016/08/03/interview-with-a-doctor-on-trans-spheno idal-surgery/
CATEGORIES:News Items UID:20160803T2336360Z-549422-264@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160803 SUMMARY:Cushing's Syndrome Epidemiology DESCRIPTION:It is also difficult to establish epidemiological trends in Cus hing’s syndrome\, because not all cases of the disease are diagnosed. Howe ver\, it is important that diagnosis is made as soon as possible\, because early diagnosis and treatment of the condition are associated with improv ed morbidity and mortality rates. Read more at https://cushieblog.com/2016 /08/03/cushings-syndrome-epidemiology/ X-ALT-DESC;FMTTYPE=text/html:It is also difficult to establish epidemiol ogical trends in Cushing&rsquo\;s \;syndrome\, \;because not all c ases of the disease are diagnosed. However\, it is important that diagnosi s is made as soon as \;possible\, \;because early diagnosis and tr eatment of the condition are associated with improved morbidity and mortal ity rates.
Read more at \;https://cushieblog .com/2016/08/03/cushings-syndrome-epidemiology/
CATEGORIES:News Items UID:20160803T2346040Z-549422-265@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160809 SUMMARY:Screening tool accurately predicts Cushing’s syndrome in most at-ri sk patients DESCRIPTION:A scoring system based on clinical signs and a late-night saliv ary cortisol test accurately predicted Cushing’s syndrome in at-risk patie nts\, with only one missed case\, according to recent findings. Read more at https://cushieblog.com/2016/08/09/screening-tool-accurately-predicts-cu shings-syndrome-in-most-at-risk-patients/ X-ALT-DESC;FMTTYPE=text/html:A scoring system based on clinical signs an d a late-night salivary cortisol test accurately predicted Cushing&rsquo\; s syndrome in at-risk patients\, with only one missed case\, according to recent findings.
Read more at \;https://cushieblog.com/2016/08/09/scree ning-tool-accurately-predicts-cushings-syndrome-in-most-at-risk-patients/< /a>
CATEGORIES:Cushings UID:20160809T1411050Z-549422-266@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160811 SUMMARY:Kim H\, Pituitary Bio DESCRIPTION:Kim H is from Grays\, UK. She has ectopic Cushing's but nearly 16 years later the ectopic source has never been found despite many more t ests. It is still there because it still produces ACTH. Update May 2007: T he ectopic source was in Kim's appendix. After testing\, it was found to b e a carcinoid tumour. Read more at https://cushingsbios.com/2016/08/11/kim -h-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Kim H is from Grays\, UK. She has ectopic C ushing's but nearly 16 years later the ectopic source has never been found despite many more tests. It is still there because it still produces ACTH . Update May 2007: The ectopic source was in Kim's appendix. After testing \, it was found to be a carcinoid tumour.
Read more at \;https://cushingsbios.com/2016/08/11/kim-h-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160812T0026130Z-549422-267@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160811 SUMMARY:New Helpful Doctor added to New York DESCRIPTION:Patient Comment: I heard your podcast with Aly H. You mentioned about adding good doctors to your website especially from the Northeast. I had pituitary surgery twice also. The first time was slicing and dicing on the left side which was determined from a petrosal vein sampling back i n 1990. After that things got back to normal. I had my daughter in 1993 an d after that I started having many issues and eventually was diagnosed aga in in 1996. I went back into surgery with the same surgeon and this time t hey completely removed the pituitary and I had 6 weeks of radiation post s urgery. I am on lifetime hormone replacements and have finally found an en docrinologist that I like and trust. This is him that I am adding to your list. Read more at: http://www.cushie.info/index.php/doctors/208-helpful-d octors-new-york X-ALT-DESC;FMTTYPE=text/html:Patient Comment: \;I h eard your podcast with Aly H. You mentioned about adding good doctors to y our website especially from the Northeast. I had pituitary surgery twice a lso. The first time was slicing and dicing on the left side which was dete rmined from a petrosal vein sampling back in 1990. After that things got b ack to normal. I had my daughter in 1993 and after \;that \;I star ted having many issues and eventually was diagnosed again in 1996. I went back into surgery with the same surgeon and this time they completely remo ved the pituitary and I had 6 weeks of radiation post surgery. I am on lif etime hormone replacements and have finally found an endocrinologist that I like and trust. This is him that I am adding to your list.
Read more at: \;http://www.cushie.info/index.php/doct ors/208-helpful-doctors-new-york
CATEGORIES:Cushings UID:20160812T0045010Z-549422-268@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160812 SUMMARY:New Diagnostic Criteria for Subclinical Hypercortisolism using Post surgical Hypocortisolism DESCRIPTION:There is no consensus on the biochemical diagnostic criteria fo r subclinical hypercortisolism (SH). Using parameters related to the hypot halamic-pituitary-adrenal axis\, we aimed to develop a diagnostic model of SH for predicting postsurgical hypocortisolism and metabolic complication s. Read more at https://cushieblog.com/2016/08/12/new-diagnostic-criteria- for-subclinical-hypercortisolism-using-postsurgical-hypocortisolism/ X-ALT-DESC;FMTTYPE=text/html:There is no consensus on the biochemical di agnostic criteria for subclinical hypercortisolism (SH). Using parameters related to the hypothalamic-pituitary-adrenal axis\, we aimed to develop a diagnostic model of SH for predicting postsurgical hypocortisolism and me tabolic complications.
Read more at \;https://cushieblog. com/2016/08/12/new-diagnostic-criteria-for-subclinical-hypercortisolism-us ing-postsurgical-hypocortisolism/
CATEGORIES:News Items UID:20160812T1431120Z-549422-269@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY: Christiaan Eijkman was born in 1858 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200811;BYMONTH=8;BYMONTHDAY=11 DTSTART;VALUE=DATE:20000811 DTEND;VALUE=DATE:20000812 DESCRIPTION:(1858) Dutch physician Christiaan Eijkman was born. He demonstr ated that beriberi is caused by a poor diet\, which later led to the disco very that beriberi results from a vitamin B1 deficiency. X-ALT-DESC;FMTTYPE=text/html:(1858) Dutch physician Christiaan Eijkman w as born. He demonstrated that beriberi is caused by a poor diet\, which la ter led to the discovery that beriberi results from a vitamin B1 deficienc y.
CATEGORIES:This Day in Medical History UID:20160812T1433420Z-549422-270@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160812 SUMMARY:Experimental Drug Improves Cushing’s Disease DESCRIPTION:First-line treatment for Cushing’s disease is surgical removal of the ACTH-secreting tumor\, which leads to remission in 65 to 90 percent of patients. But symptoms return in 10 to 30 percent of those patients\, requiring repeat surgery\, radiation therapy\, or treatment with drugs tha t interfere with part of the cortisol control system. Until last month\, t here was no specific FDA-approved medical treatment for Cushing’s syndrome \; the newly approved drug mifepristone should benefit some patients\, but it does not affect the pituitary source of the condition or reduce cortis ol levels. Read more at https://cushieblog.com/2016/08/12/experimental-dru g-improves-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:First-line treatment for Cushing&rsquo\;s d isease is surgical removal of the ACTH-secreting tumor\, which leads to re mission in 65 to 90 percent of patients. But symptoms return in 10 to 30 p ercent of those patients\, requiring repeat surgery\, radiation therapy\, or treatment with drugs that interfere with part of the cortisol control s ystem. Until last month\, there was no specific FDA-approved medical treat ment for Cushing&rsquo\;s syndrome\; the newly approved drug mifepristone should benefit some patients\, but it does not affect the pituitary source of the condition or reduce cortisol levels.
Read more at \;https://cushieblog.com/2016/08/12/experimenta l-drug-improves-cushings-disease/
CATEGORIES:Cushings UID:20160812T1514300Z-549422-271@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160816 SUMMARY:Improvement of cardiovascular risk factors after adrenalectomy in p atients with adrenal tumors and Subclinical Cushing Syndrome DESCRIPTION:Beneficial effects of adrenalectomy on cardiovascular risk fact ors in patients with Subclinical Cushing Syndrome (SCS) are uncertain. Re ad more at https://cushieblog.com/2016/08/16/improvement-of-cardiovascular -risk-factors-after-adrenalectomy-in-patients-with-adrenal-tumors-and-subc linical-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Beneficial effects of adrenalectomy on card iovascular risk factors in patients with Subclinical Cushing Syndrome (SCS ) are uncertain. \;
CATEGORIES:Cushings UID:20160816T2216110Z-549422-272@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160816 SUMMARY:Who's at Risk for Cushing's? DESCRIPTION:Roberto Salvatori\, MD\, professor and medical director of the Johns Hopkins Pituitary Center\, who was not involved with the study\, com mented to MedPage Today in an email: 'Any endocrinologist would proceed wi th careful Cushing biochemical evaluation in the presence of the clinical features (muscular atrophy\, osteoporosis\, and dorsocervical fat pad) tha t are well known to be associated with hypercortisolism. Of notice\, the o dds ratio is further increased by an abnormal late-night salivary cortisol \, which is already a screening test for hypercortisolism.' Read more at h ttps://cushieblog.com/2016/08/16/whos-at-risk-for-cushings/ X-ALT-DESC;FMTTYPE=text/html:Roberto Salvatori\, MD\, professor and medi cal director of the Johns Hopkins Pituitary Center\, who was not involved with the study\, commented to MedPage Today in an email: 'Any endocrinolog ist would proceed with careful Cushing biochemical evaluation in the prese nce of the clinical features (muscular atrophy\, osteoporosis\, and dorsoc ervical fat pad) that are well known to be associated with hypercortisolis m. Of notice\, the odds ratio is further increased by an abnormal late-nig ht salivary cortisol\, which is already a screening test for hypercortisol ism.'
Read more at \;https://cushieblog.com/2016/ 08/16/whos-at-risk-for-cushings/
CATEGORIES:Cushings UID:20160817T0352410Z-549422-273@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:John Albertson Sampson was born in 1873 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200817;BYMONTH=8;BYMONTHDAY=17 DTSTART;VALUE=DATE:20000817 DTEND;VALUE=DATE:20000818 DESCRIPTION: (1873) American gynecologist John Albertson Sampson was born. He studied endometriosis (a disease where tissue that normally grows with in the uterus escapes and grows in another area) and had an artery (Sampso n artery) named after him. X-ALT-DESC;FMTTYPE=text/html:\;(1873) American gynecologist John Al bertson Sampson was born. He studied \;endometriosis (a disease where tissue that normally grows within the uterus escapes and grows in another area) and had an artery (Sampson artery) named after him.
CATEGORIES:This Day in Medical History UID:20160817T2120100Z-549422-274@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Syndrome and Skin Problems DTSTART;VALUE=DATE:20160822 DTEND;VALUE=DATE:20160823 RRULE:FREQ=WEEKLY;UNTIL=20160913;BYDAY=MO DESCRIPTION:There are numerous symptoms associated with Cushing's syndrome\ , which range from muscle weakness\, hypertension\, curvature of the spine (kyphosis)\, osteoporosis\, and depression\, to fatigue Specific symptoms which pertain to the skin are as follows... Read more at https://cushiebl og.com/2016/08/22/cushings-syndrome-and-skin-problems/ X-ALT-DESC;FMTTYPE=text/html:There are numerous symptoms associated with Cushing's syndrome\, which \;range \;from muscle weakness\, hyper tension\, curvature of the spine (kyphosis)\, osteoporosis\, and depressio n\, to fatigue Specific symptoms which pertain to the skin are as follows. ..
Read more at \;https://cushieblog.co m/2016/08/22/cushings-syndrome-and-skin-problems/
CATEGORIES:Cushings UID:20160822T1401310Z-549422-275@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Alexander Bogdanov was born in 1873 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200822;BYMONTH=8;BYMONTHDAY=22 DTSTART;VALUE=DATE:20000822 DTEND;VALUE=DATE:20000823 DESCRIPTION:(1873) Russian physician and philosopher Alexander Bogdanov was born. He received training in medicine and psychology and focused his res earch on the possibility of blood transfusions helping human rejuvenation. X-ALT-DESC;FMTTYPE=text/html:(1873) Russian physician and philosopher Al exander Bogdanov was born. He received training in medicine and psychology and focused his research on the possibility of blood transfusions helping human rejuvenation.
\;
CATEGORIES:This Day in Medical History UID:20160822T1831290Z-549422-276@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160823 SUMMARY:Lydia M\, Pituitary Bio DESCRIPTION:Lydia is from High Prairie\, AB\, Canada. She was diagnosed in itially by her family doctor. She has many Cushing's symptoms. Read more at https://cushingsbios.com/2016/08/23/lydia-m-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Lydia is from High Prairie\, AB\, Canada. & nbsp\;She was diagnosed initially by her family doctor. \;She has man y Cushing's symptoms.
Read more at \;https://cushin gsbios.com/2016/08/23/lydia-m-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160823T1429360Z-549422-277@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Antonia Novello was born in 1944 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200823;BYMONTH=8;BYMONTHDAY=23 DTSTART;VALUE=DATE:20000823 DTEND;VALUE=DATE:20000824 DESCRIPTION:(1944) Puerto Rican physician and public health administrator A ntonia Novello was born. She was the 14th Surgeon General of the US and fo cused on women’s health\, drinking\, smoking and AIDS. X-ALT-DESC;FMTTYPE=text/html:(1944) Puerto Rican physician and public he alth administrator Antonia Novello was born. She was the 14th Surgeon Gene ral of the US and focused on women&rsquo\;s health\, drinking\, smoking an d AIDS.
CATEGORIES:This Day in Medical History UID:20160823T1608490Z-549422-278@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160823 SUMMARY:Niamh (niamhiblog)\, Adrenal Bio DESCRIPTION:Niamh is from Ireland. In October 2015 she underwent a full le ft adrenalectomy to remove a tumor from her adrenal gland. Read more at ht tps://cushingsbios.com/2016/08/23/niamh-niamhiblog-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Niamh is from Ireland. \;In October 20 15 she underwent a full left adrenalectomy to remove a tumor from her adre nal gland.
Read more at \;https://cushingsbi os.com/2016/08/23/niamh-niamhiblog-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160823T1716220Z-549422-279@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Charles Richet was born in 1850 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200825;BYMONTH=8;BYMONTHDAY=25 DTSTART;VALUE=DATE:20000825 DTEND;VALUE=DATE:20000826 DESCRIPTION:(1850) French physiologist Charles Richet was born. He is known for his work in anaphylaxis\, which helped many researchers understand as thma and hay fever. X-ALT-DESC;FMTTYPE=text/html:(1850) French physiologist Charles Richet w as born. He is known for his work in anaphylaxis\, which helped many resea rchers understand asthma and hay fever.
CATEGORIES:This Day in Medical History UID:20160825T1518200Z-549422-281@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy Labor Day! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200907;BYMONTH=9;BYMONTHDAY=4 DTSTART;VALUE=DATE:20000904 DTEND;VALUE=DATE:20000905 EXDATE;VALUE=DATE:20160904 DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html:
(1954) Author\, television writer and neuro scientist Billi Gordon was born. Along with acting in Married with Childre n he now conducts research on the pathophysiology of stress prior to obesi ty-related diseases. \;
CATEGORIES:This Day in Medical History UID:20160905T0710390Z-549422-284@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Oliver Wendell Holmes Sr. was born in 1809 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200829;BYMONTH=8;BYMONTHDAY=29 DTSTART;VALUE=DATE:20000829 DTEND;VALUE=DATE:20000830 DESCRIPTION:(1809) American physician\, poet\, professor Oliver Wendell Hol mes Sr. was born. He won Harvard Medical School’s Boylston Prize\, for his paper on the benefits of using the stethoscope\, which was not commonly u sed at the time. X-ALT-DESC;FMTTYPE=text/html:(1809) American physician\, poet\, professo r Oliver Wendell Holmes Sr. was born. He won Harvard Medical School&rsquo\ ;s Boylston Prize\, for his paper on the benefits of using the stethoscope \, which was not commonly used at the time.
CATEGORIES:This Day in Medical History UID:20160905T0715160Z-549422-285@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160909 SUMMARY:Last Day to Register for the 8th Annual Johns Hopkins Pituitary Pat ient Day DESCRIPTION:This is a free event\, but seating is limited. Reserve your spa ce now: Please R.S.V.P. by September 9\, 2016 by email (preferred) to Pitu itaryDay@jhmi.edu or by calling Alison Dimick at 410-955-3921. More info at https://cushieblogger.com/2016/06/06/8th-annual-johns-hopkins-pituitary -patient-day/ X-ALT-DESC;FMTTYPE=text/html:This is a free event\, but seating is limit ed. Reserve your space now: \;Please R.S.V.P. by September 9\, 2016 \;by email (preferred) to \;PituitaryDay@jhmi.edu \; \;or by calling Aliso n Dimick at \;410-955-3921.
More info at \;https://cushieblogger.com/2016/06/0 6/8th-annual-johns-hopkins-pituitary-patient-day/
CATEGORIES:Events and Meetings UID:20160905T0720320Z-549422-286@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160907 SUMMARY:Register for 8th Annual Johns Hopkins Pituitary Patient Day DESCRIPTION:This is a free event\, but seating is limited. Reserve your spa ce now: Please R.S.V.P. by September 9\, 2016 by email (preferred) to Pitu itaryDay@jhmi.edu or by calling Alison Dimick at 410-955-3921. Read more at https://cushieblogger.com/2016/06/06/8th-annual-johns-hopkins-pituitary -patient-day/ X-ALT-DESC;FMTTYPE=text/html:This is a free event\, but seating is limit ed. Reserve your space now: Please R.S.V.P. by September 9\, 2016 by email (preferred) to PituitaryDay@jhmi.edu \;or by calling Alison Dimick a t 410-955-3921.
Read more at \;https://cushieblogger.com/2016/06/06/8th-annual-johns-hopkins-pituit ary-patient-day/
CATEGORIES:Events and Meetings UID:20160905T0721090Z-549422-287@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Emil Theodor Kocher was born in 1841 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200825;BYMONTH=8;BYMONTHDAY=25 DTSTART;VALUE=DATE:20000825 DTEND;VALUE=DATE:20000826 DESCRIPTION:(1841) Swiss physician and medical researcher Emil Theodor Koch er was born. He won the 1909 Nobel Prize in Physiology or Medicine for his contribution to the field of thyroid surgery. X-ALT-DESC;FMTTYPE=text/html:(1841) Swiss physician and medical research er Emil Theodor Kocher was born. He won the 1909 Nobel Prize in Physiology or Medicine for his contribution to the field of thyroid surgery.
CATEGORIES:This Day in Medical History UID:20160905T0755560Z-549422-288@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:John Macleod was born in 1876 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200906;BYMONTH=9;BYMONTHDAY=6 DTSTART;VALUE=DATE:20000906 DTEND;VALUE=DATE:20000907 DESCRIPTION:(1876) Scottish biochemist and physiologist John Macleod was bo rn. He is credited with discovering and isolating insulin\, for which he s hared the 1923 Nobel Prize in Physiology or Medicine. X-ALT-DESC;FMTTYPE=text/html:(1876) Scottish biochemist and physiologist John Macleod was born. He is credited with discovering and isolating insu lin\, for which he shared the 1923 Nobel Prize in Physiology or Medicine.< /p> CATEGORIES:This Day in Medical History UID:20160907T1601010Z-549422-289@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:All About the Pituitary Gland DTSTART;VALUE=DATE:20161005 DTEND;VALUE=DATE:20161006 RRULE:FREQ=MONTHLY;UNTIL=20200907;BYDAY=1WE,4WE DESCRIPTION:The pituitary gland stimulates all the other endocrine glands t o produce their own hormones. Read more at https://cushieblog.com/2016/09/ 07/all-about-the-pituitary-gland/ X-ALT-DESC;FMTTYPE=text/html:
The pituitary gland stimulates all the \;other endocrine glands to produce their own hormones.
Read more at \;https://cushieblog.com/2016/09/07/all-about-the- pituitary-gland/
CATEGORIES:Cushings UID:20160908T0100260Z-549422-290@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160908 SUMMARY:Liz L\, Pituitary Bio DESCRIPTION:Liz is from Los Osos\, California. She was diagnosed with Cu shing's in April of 2002. She had transsphenoidal surgery in August and th ought things were going ok until maybe a year ago. Read more at https://cu shingsbios.com/2016/09/08/liz-l-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Liz \;is from \;Los Osos\, Califo rnia. \;She was diagnosed with Cushing's in April of 2002. She had tr anssphenoidal surgery in August and thought things were going ok until may be a year ago.
Read more at \;https://cushingsbios.co m/2016/09/08/liz-l-pituitary-bio/
CATEGORIES:Cushie Bios UID:20160908T1316260Z-549422-291@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160908 SUMMARY:'How can you leave her like this?' DESCRIPTION:A mother has revealed the anguish her family suffered after her daughter (16)\, who is in need of pituitary surgery for recurrent Cushing 's Disease\, was turned away from Beaumont Hospital. Read more at https:// cushieblog.com/2016/09/08/how-can-you-leave-her-like-this/ X-ALT-DESC;FMTTYPE=text/html:A mother has revealed the anguish her famil y suffered after her daughter (16)\, who is in need of pituitary surgery f or recurrent Cushing's Disease\, was turned away from Beaumont Hospital.
Read more at \;https://cushieblog.com/2016/0 9/08/how-can-you-leave-her-like-this/
CATEGORIES:News Items UID:20160908T1514000Z-549422-292@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160908 SUMMARY:Melissa (SweetMelisa)\, Adrenal Bio DESCRIPTION:Melissa is from Virginia. A CT with contrast showed bilateral adrenal adenomas. She is requesting a referral to Johns Hopkins or Duke t o see what she'll do next. Read more at https://cushingsbios.com/2016/09/0 8/melissa-sweetmelisa-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Melissa is from Virginia. \;A CT with contrast showed bilateral adrenal adenomas. \;She is requesting a ref erral to Johns Hopkins or Duke to see what she'll do next.
Read mo re at \;https://cushingsbios.com/2016/09/08/melis sa-sweetmelisa-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160908T1600400Z-549422-293@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160909 SUMMARY:Julie B\, Adrenal Bio DESCRIPTION:Julie is from Lewisburg. She has two adrenal adenomas and man y Cushing's symptoms but is not yet diagnosed. Read more at https://cushin gsbios.com/2016/09/09/julie-b-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Julie is from Lewisburg. \; She has tw o adrenal adenomas and many Cushing's symptoms but is not yet diagnosed.
Read more at \;https://cushingsbios.com/2016/09/09/jul ie-b-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160909T1443200Z-549422-294@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160910 SUMMARY:Raquel O (Raquel8a) Pituitary Bio DESCRIPTION:Raquel is from Ewa Beach\, Hawaii. She believes she has had Cus hing's for maybe 20 years. She has an adrenal tumor but is waiting for a neurosurgeon\, so I'm not clear about the diagnosis. Read more at https:// cushingsbios.com/2016/09/09/raquel-o-raquel8a-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Raquel is from Ewa Beach\, Hawaii. She beli eves she has had Cushing's for maybe 20 years. \;She has an adrenal t umor but is waiting for a neurosurgeon\, so I'm not clear about the diagno sis.
Read more at \;https://cushingsbios.co m/2016/09/09/raquel-o-raquel8a-adrenal-bio/
CATEGORIES:Cushie Bios UID:20160909T2212480Z-549422-295@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:We Remember September 11 ~ Always RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200911;BYMONTH=9;BYMONTHDAY=11 DTSTART;VALUE=DATE:20010911 DTEND;VALUE=DATE:20010912 DESCRIPTION:http://www.maryo.co/we-remember-september-11-always/ X-ALT-DESC;FMTTYPE=text/html:
http://www.maryo.co/we-remember-september-11-always/<
/p>
CATEGORIES:Holiday
UID:20160911T0848450Z-549422-296@localendar.com
END:VEVENT
BEGIN:VEVENT
DTSTAMP:20260601T021017Z
SUMMARY:In Memory: Ryan Tyler Monds
RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300904;BYMONTH=9;BYMONTHDAY=4
DTSTART;VALUE=DATE:20160904
DTEND;VALUE=DATE:20160905
DESCRIPTION:Ryan passed away peacefully and is free from illness and pain..
..Also mourning his loss are aunts\, uncles\, cousins\, many life-long fri
ends and friends through Cushing’s Disease Awareness. Read more at https:/
/cushingsbios.com/2021/09/04/in-memory-of-ryan-tyler-monds-september-4-201
6/
X-ALT-DESC;FMTTYPE=text/html:
Ryan passed away peacefully and is free fro m illness and pain....Also mourning his loss are aunts\, uncles\, cousins\ , many life-long friends and friends through Cushing&rsquo\;s Disease Awar eness.
Read more at \;https://cushingsbios.com/2021/09/04/in-memory-of-ryan-tyler-mon ds-september-4-2016/
CATEGORIES:In Memory UID:20220905T0919590Z-549422-297@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160911 SUMMARY:Ryan C (Awesomenatious)\, Pseudo Cushings and Chronic Fatigue DESCRIPTION:Ryan is from Scotland. He has Pseudo Cushings and chronic fati gue diagnoses but is not getting any help. He STILL has high cortisol lev els. Read more at https://cushingsbios.com/2016/09/11/ryan-c-awesomenatiou s-pseudo-cushings-and-chronic-fatigue/ X-ALT-DESC;FMTTYPE=text/html:Ryan is from Scotland. \;He has Pseudo Cushings and chronic fatigue diagnoses but is not getting any help. \;He STILL has high cortisol levels.
Read more at \;https://cushingsbios.com/2016/09/11/r yan-c-awesomenatious-pseudo-cushings-and-chronic-fatigue/
CATEGORIES:Cushie Bios UID:20160912T0011060Z-549422-298@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160912 SUMMARY:Miranda (Miranda34)\, Steroid-Induced Cushing's DESCRIPTION:Miranda is from France. She was recently diagnosed with Cushi ng's syndrome due to the medicine she takes for asthma. Last year she ke pt collapsing in the street and was suffering from low blood-pressure and hypoglycemia. Read more at https://cushingsbios.com/2016/09/12/miranda-mir anda34-steroid-induced-cushings/ X-ALT-DESC;FMTTYPE=text/html:Miranda \;is from France. \;She w as recently diagnosed with Cushing's syndrome \;due to the medicine s he takes for asthma. \;Last year she kept collapsing in the street an d was suffering from low blood-pressure and hypoglycemia.
Read mor e at \;https://cushingsbios.com/2016/0 9/12/miranda-miranda34-steroid-induced-cushings/
CATEGORIES:Cushie Bios UID:20160912T2131240Z-549422-299@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160912 SUMMARY:Signs and Symptoms of Adult Growth Hormone Deficiency DESCRIPTION:The human growth hormone is an important hormone for the mainte nance of health\, metabolism\, and mental functioning. Studies on growth h ormone deficiency show that most people have adequate levels of this hormo ne in their bodies. Although a decline in growth hormone levels comes with age\, this decline is not enough to cause major changes in a person’s hea lth and well-being. On the other hand\, structural damage to the pituitary gland will cause some of the major conditions and symptoms of growth horm one deficiency. In such cases\, growth hormone replacement therapy is high ly advised. Read more at https://cushieblog.com/2016/09/12/signs-and-sympt oms-of-adult-growth-hormone-deficiency/ X-ALT-DESC;FMTTYPE=text/html:The human growth hormone is an important ho rmone for the maintenance of health\, metabolism\, and mental functioning. Studies on growth hormone deficiency show that most people have adequate levels of this hormone in their bodies. Although a decline in growth hormo ne levels comes with age\, this decline is not enough to cause major chang es in a person&rsquo\;s health and well-being. On the other hand\, structu ral damage to the pituitary gland will cause some of the major conditions and symptoms of growth hormone deficiency. In such cases\, growth hormone replacement therapy is highly advised.
Read more at \;https://cushieblog.com/2016/09/12/signs-a nd-symptoms-of-adult-growth-hormone-deficiency/
CATEGORIES:News Items UID:20160913T0212110Z-549422-300@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160913 SUMMARY:Adiponectin level may serve as predictor of subclinical Cushing’s s yndrome DESCRIPTION:In adults with adrenal incidentaloma\, adiponectin levels may h elp predict the presence of subclinical Cushing’s disease\, according to r ecent findings. Read more at https://cushieblog.com/2016/09/13/adiponectin -level-may-serve-as-predictor-of-subclinical-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:In adults with adrenal incidentaloma\, adip onectin levels may help predict the presence of subclinical Cushing&rsquo\ ;s disease\, according to recent findings.
Read more at \;https://cushieblo g.com/2016/09/13/adiponectin-level-may-serve-as-predictor-of-subclinical-c ushings-syndrome/
CATEGORIES:News Items UID:20160913T1427170Z-549422-301@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Leopold Ružička was born in 1887 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200913;BYMONTH=9;BYMONTHDAY=13 DTSTART;VALUE=DATE:20000913 DTEND;VALUE=DATE:20000914 DESCRIPTION: (1887) Croatian-Swiss scientist Leopold Ružička was born. His lab was able to successfully synthesize sex hormones (androsterone and tes tosterone)\, and also researched terpenes and steroids. X-ALT-DESC;FMTTYPE=text/html:\;(1887) Croatian-Swiss scientist Leop old Ružička was born. His lab was able to successfully synthesize sex horm ones (androsterone and testosterone)\, and also researched terpenes and st eroids.
CATEGORIES:This Day in Medical History UID:20160913T1603390Z-549422-302@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Davidson Nicol was born in 1924 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200914;BYMONTH=9;BYMONTHDAY=14 DTSTART;VALUE=DATE:20000914 DTEND;VALUE=DATE:20000915 DESCRIPTION: (1924) Sierra Leonean academic\, diplomat and physician Davids on Nicol was born. He was the first person to analyse the breakdown of ins ulin in the human body\, which paved the way for the treatment of diabetes . X-ALT-DESC;FMTTYPE=text/html:\;(1924) Sierra Leonean academic\, dip lomat and physician Davidson Nicol was born. He was the first person to an alyse the breakdown of insulin in the human body\, which paved the way for the treatment of diabetes.
CATEGORIES:This Day in Medical History UID:20160914T1332290Z-549422-303@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160915 SUMMARY:2 New Helpful Doctors added to California DESCRIPTION:An Endocrinologist with 2 Locations and a Neurosurgeon to Palo Alto Read more at http://www.cushie.info/index.php/doctors/california X-ALT-DESC;FMTTYPE=text/html:An Endocrinologist with 2 Locations and a N eurosurgeon to Palo Alto
Read more at \;http://www.cushie. info/index.php/doctors/california
CATEGORIES:Cushings UID:20160915T1456530Z-549422-304@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160915 SUMMARY:New Male added to Bios of Male Patients DESCRIPTION:Ryan is from Scotland. He a Pseudo Cushings and chronic fatigu e diagnosis and no help and STILL high cortisol levels Read more at http:/ /www.cushie.info/index.php/cushing-s/about-us/14-bios-of-male-patients X-ALT-DESC;FMTTYPE=text/html:Ryan is from Scotland. \;He a Pseudo C ushings and chronic fatigue diagnosis and no help and STILL high cortisol levels
Read more at \;http://www. cushie.info/index.php/cushing-s/about-us/14-bios-of-male-patients
CATEGORIES:Cushie Bios UID:20160915T1514170Z-549422-305@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Luther Terry was born in 1911 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200915;BYMONTH=9;BYMONTHDAY=15 DTSTART;VALUE=DATE:20000915 DTEND;VALUE=DATE:20000916 DESCRIPTION:(1911) American physician and public health official Luther Ter ry was born. He was the ninth Surgeon General of the United States and was best known for his warnings of the dangers and impact on health of tobacc o. X-ALT-DESC;FMTTYPE=text/html:(1911) American physician and public health official Luther Terry was born. He was the ninth Surgeon General of the U nited States and was best known for his warnings of the dangers and impact on health of tobacco.
CATEGORIES:This Day in Medical History UID:20160915T1646530Z-549422-306@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Sign Up For Pituitary Patient Support Group Meeting DTSTART;VALUE=DATE:20160917 DTEND;VALUE=DATE:20160918 RRULE:FREQ=WEEKLY;UNTIL=20161118;BYDAY=SA DESCRIPTION:Topic: 'Advancements in Pituitary Surgery-Better Treatments\, B etter Quality of Life' LiveStreaming on Facebook. More info at https://cus hieblogger.com/2016/09/17/pituitary-patient-support-group-meeting-2/ X-ALT-DESC;FMTTYPE=text/html:Topic: \;'Advancements in Pituitary Surgery-Better Treatments\, Better Quality of Life'
Liv eStreaming on Facebook.
Mor e info at \;https://cushieblogger.com/ 2016/09/17/pituitary-patient-support-group-meeting-2/
CATEGORIES:Events and Meetings UID:20160917T1340410Z-549422-307@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161119 SUMMARY:Pituitary Patient Support Group Meeting in Santa Monica\, CA DESCRIPTION:Topic: 'Advancements in Pituitary Surgery-Better Treatments\, B etter Quality of Life' LiveStreaming on Facebook. More info at https://cus hieblogger.com/2016/09/17/pituitary-patient-support-group-meeting-2/ X-ALT-DESC;FMTTYPE=text/html:Topic: \;'Advancements in Pituitary Surgery-Better Treatments\, Better Quality of Life'
Liv eStreaming on Facebook.
Mor e info at \;https://cushieblogger.com/ 2016/09/17/pituitary-patient-support-group-meeting-2/
CATEGORIES:Events and Meetings LOCATION: UID:20160921T0030530Z-549422-309@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Davidson Nicol passed away in 1994 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200920;BYMONTH=9;BYMONTHDAY=20 DTSTART;VALUE=DATE:20000920 DTEND;VALUE=DATE:20000921 DESCRIPTION:(1994) Sierra Leonean academic\, diplomat\, and physician David son Nicol passed away. He was the first person to analyze the the breakdow n of insulin in the human body. X-ALT-DESC;FMTTYPE=text/html:(1994) Sierra Leonean academic\, diplomat\, and physician Davidson Nicol passed away. He was the first person to anal yze the the breakdown of insulin in the human body.
CATEGORIES:This Day in Medical History UID:20160921T0032420Z-549422-310@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:MaryO\, Founder of Cushings-Help\, born RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200922;BYMONTH=9;BYMONTHDAY=22 DTSTART;VALUE=DATE:20000922 DTEND;VALUE=DATE:20000923 DESCRIPTION:http://www.cushings-help.com/maryos_story.htm X-ALT-DESC;FMTTYPE=text/html:http://www.cushings-help.com/maryos_story.htm
CATEGORIES:Cushie Bios UID:20160924T1008300Z-549422-311@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20160926 SUMMARY:Invisible Illness Awareness Week RRULE:FREQ=DAILY;COUNT=7 DESCRIPTION:This week (September 26 – October 2) is Invisible Illness Aware ness Week. Invisible illness is all around us. More than likely\, you know someone who is battling a battle every day. Help raise awareness for invi sible illnesses by starting conversations. The more you talk about it\, th e more awareness can take place. The more awareness that takes place\, the better our chances of finding a cure and coming to a better understanding of the needs of patients who feel alone in their battles. X-ALT-DESC;FMTTYPE=text/html:This week (September 26 &ndash\; October 2) is Invisible Illness Awareness Week. Invisible illness is all around us. More than likely\, you know someone who is battling a battle every day. He lp raise awareness for invisible illnesses by starting conversations. The more you talk about it\, the more awareness can take place. The more aware ness that takes place\, the better our chances of finding a cure and comin g to a better understanding of the needs of patients who feel alone in the ir battles.
CATEGORIES:Holiday UID:20160929T1029050Z-549422-312@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Joanne Swain RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300929;BYMONTH=9;BYMONTHDAY=28 DTSTART;VALUE=DATE:20160928 DTEND;VALUE=DATE:20160929 DESCRIPTION:Joanne was known on the boards as raggettyjoanne. Mario VandDer meij announced the passing of his loving wife of 23 years. Joanne Swain V anDermeij at the age of 56. After 2 years and 3 months of fighting the s ystem\, Joanne was finally diagnosed March the 14th\, 2011\, with full blo wn adrenal Cushing's. http://cushings.invisionzone.com/profile/10929-ragge ttyjoanne/ X-ALT-DESC;FMTTYPE=text/html:Joanne was known on the boards as \;rag gettyjoanne.
Mario VandDermeij announced the passing of his loving
wife of 23 years. \;Joanne Swain VanDermeij at the age of 56. \
;
After 2 years and 3 months of fighting the system\, Joanne&nb
sp\;was finally diagnosed March the 14th\, 2011\, with full blown adrenal
Cushing's.
http://cushings.invisionz one.com/profile/10929-raggettyjoanne/
CATEGORIES:In Memory UID:20230929T0833510Z-549422-313@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161001 SUMMARY:Comment added to Meriam S (Jomisa03)\, Pituitary Bio DESCRIPTION:I have been sick and undiagnosed for so long.my PCP wouldn’t li sten to me I found a copy of an old CT scan from one of many bouts with ki dney stones that showed bilateral adrenal adenomas. Finally got a doctor f riend to order Dex suppression test... Read more at https://cushingsbios.c om/2015/10/31/meriam-s-jomisa03-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I have been sick and undiagnosed for so lon g.my PCP wouldn&rsquo\;t listen to me I found a copy of an old CT scan fro m one of many bouts with kidney stones that showed bilateral adrenal adeno mas. Finally got a doctor friend to order Dex suppression test...
Read more at \;https://cushingsbios.com/2015/10/3 1/meriam-s-jomisa03-pituitary-bio/
CATEGORIES:Cushie Bios UID:20161001T1340080Z-549422-314@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161001 SUMMARY:Elara\, Undiagnosed Bio DESCRIPTION:Elara is from Palmerston North\, New Zealand. She recently had high numbers on a Dexamethasone test and is wondering if she has Pseudo-C ushing's. Read more at https://cushingsbios.com/2016/10/01/elara-undiagnos ed-bio/ X-ALT-DESC;FMTTYPE=text/html:Elara is from Palmerston North\, New Zealan d. \;She recently had high numbers on a Dexamethasone test and is won dering if she has Pseudo-Cushing's.
Read more at \; https://cushingsbios.com/2016/10/01/elara-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20161001T1353190Z-549422-315@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161002 SUMMARY:Testimonials Updated RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201002;BYMONTHDAY=2 EXDATE;VALUE=DATE:20170102 DESCRIPTION:The latest is Grateful you got treatment & for all you do! X-ALT-DESC;FMTTYPE=text/html:The latest is
Grateful you got trea tment &\; for all you do!
CATEGORIES:Cushings UID:20170102T1632540Z-549422-316@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161006 SUMMARY:Bravelets DESCRIPTION:$10 from every item sold on this page will be donated to help r aise awareness for Cushing’s Disease through the work of the Cushings Help family of websites. For nearly 16 years we have provided information\, su pport\, RSS feeds\, news\, and education for people with Cushing's or othe r endocrine problems\, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to h igh levels of cortisol. View all the items here: https://www.bravelets.com /bravepage/cushing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:$10 from every item sold on this page will be donated to help raise awareness for Cushing&rsquo\;s Disease through th e work of the Cushings Help family of websites. For nearly 16 years we hav e provided information\, support\, RSS feeds\, news\, and education for pe ople with Cushing's or other endocrine problems\, their friends and famili es. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol.
View all the it ems here: \;https://www.bravelets.com/bravepage/cushing -s-help-and-support
CATEGORIES:Support Cushing's Help UID:20161002T1451180Z-549422-317@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161002 SUMMARY:Bravelets Sale through 10/3 RRULE:FREQ=DAILY;COUNT=2 DESCRIPTION:$10 from every item sold on this page will be donated to help r aise awareness for Cushing’s Disease through the work of the Cushings Help family of websites. For nearly 16 years we have provided information\, su pport\, RSS feeds\, news\, and education for people with Cushing's or othe r endocrine problems\, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to h igh levels of cortisol. View all the items here: https://www.bravelets.com /bravepage/cushing-s-help-and-support X-ALT-DESC;FMTTYPE=text/html:$10 from every item sold on this page will be donated to help raise awareness for Cushing&rsquo\;s Disease through th e work of the Cushings Help family of websites. For nearly 16 years we hav e provided information\, support\, RSS feeds\, news\, and education for pe ople with Cushing's or other endocrine problems\, their friends and famili es. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol.
View all the it ems here: \;https://www.bravelets.com/bravepage/cushing-s-help-and-supp ort
CATEGORIES:Support Cushing's Help UID:20161002T1451000Z-549422-318@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161002 SUMMARY:Midnight Salivary Cortisol Versus Urinary Free and Midnight Serum C ortisol as Screening Tests for Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201002;BYMONTHDAY=2 DESCRIPTION:Information about Salivary Cortisol. The newest information is Midnight Salivary Cortisol Versus Urinary Free and Midnight Serum Cortiso l as Screening Tests for Cushing's Syndrome. There is currently no optimal test to screen for endogenous Cushing's syndrome (CS) in children. Tradit ional 24-hour urine or midnight serum cortisol values may be difficult to obtain or elevated by venipuncture stress. We hypothesized that salivary cortisol measurement is a reliable way to screen for CS in children. Read more at https://cushieblog.com/2016/10/02/midnight-salivary-cortisol-vers us-urinary-free-and-midnight-serum-cortisol-as-screening-tests-for-cushing s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Information about Salivary Cortisol. \ ;The newest information is Midnight Salivary Cortisol Versus Urinary Free and Midnight Serum Cortisol as Screening Tests for Cushing's Syndrome. The re is currently no optimal test to screen for endogenous Cushing's syndrom e (CS) in children. Traditional \;24-hour urine or midnight serum cor tisol values may be difficult to obtain or elevated by \;venipuncture stress. We hypothesized that salivary cortisol measurement is a reliable way to screen for CS in children.
CATEGORIES:Cushings UID:20161002T2049320Z-549422-319@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Causes of Cushing’s Syndrome DTSTART;VALUE=DATE:20161107 DTEND;VALUE=DATE:20161108 RRULE:FREQ=WEEKLY;UNTIL=20201002;INTERVAL=2;BYDAY=SU DESCRIPTION:Pituitary Tumors\, Adrenal Tumors\, and Other Cushing’s Syndrom e Causes Read more at https://cushieblog.com/2016/10/02/causes-of-cushings -syndrome/ X-ALT-DESC;FMTTYPE=text/html:Pituitary Tumors\, Adrenal Tumors\, and Oth er Cushing&rsquo\;s Syndrome Causes
Read more at \;https://cushieblog.com/2016/10/02/causes-of-cushings-syndrome/
CATEGORIES:Cushings UID:20161002T2302210Z-549422-320@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's disease best treated by endocrinologist DTSTART;VALUE=DATE:20161101 DTEND;VALUE=DATE:20161102 RRULE:FREQ=MONTHLY;UNTIL=20201004;BYDAY=1TU,3TU DESCRIPTION:I was told that I have Cushing's disease\, which has caused dia betes\, high blood pressure\, hunger\, weight gain and muscle loss. I was never sick before this\, and I did not have any of those things. I am told I have a tumor on my right adrenal gland. I have been to numerous doctors \, but most have not been too helpful. Read more at https://cushieblog.com /2016/10/04/cushings-disease-best-treated-by-endocrinologist/ X-ALT-DESC;FMTTYPE=text/html:I was told that I have Cushing's disease\, which has caused diabetes\, high blood pressure\, hunger\, weight gain and muscle loss. I was never sick before this\, and I did not have any of tho se things. I am told I have a tumor on my right adrenal gland. I have been to numerous doctors\, but most have not been too helpful.
Read mo re at \;https://cushieblog.com/201 6/10/04/cushings-disease-best-treated-by-endocrinologist/
CATEGORIES:Cushings UID:20161005T0118270Z-549422-321@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161011 SUMMARY:INCIDENTALLY DISCOVERED ACTH-SECRETING PITUITARY ADENOMA ON A SESTA MIBI SCAN IN A PATIENT WITH HYPERPARATHYROIDISM DESCRIPTION:This study was written about a member of the message boards. S he writes: ' I wanted to post an article that my Endos wrote about me in 2 014. To be honest\, I knew they were writing the article\, but forgot to l ook for it (haha Cushing's fried my brain). Anyway\, i just discovered it a little while ago when I remembered and googled it. I'm not sure if this is interesting to anyone\, but here it is' Read the article at http://jour nals.aace.com/doi/pdf/10.4158/EP14345.CR X-ALT-DESC;FMTTYPE=text/html:This study was written about a member \;of the message boards. \;She writes: ' \;I wa
nted to post an article that my Endos wrote about me in 2014. To be honest
\, I knew they were writing the article\, but forgot to look for it (haha
Cushing's fried my brain). Anyway\, i just discovered it a little while ag
o when I remembered and googled it. I'm not sure if this is interesting to
anyone\, but here it is'
Read the article at \;http://
journals.aace.com/doi/pdf/10.4158/EP14345.CR
(1961) American pediatric surgeon and publi c health administrator Charles Everett Koop was born. He was the 13th Surg eon General of the United States.
CATEGORIES:This Day in Medical History UID:20161014T1542140Z-549422-323@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161015 SUMMARY:Emily\, Undiagnosed Bio DESCRIPTION:Emily is from Grover Beach\, CA Her tests are running high but her endo said it appears she has Cushing's on paper\, but not by looking at her. Therefore his conclusion is she don't have it\, and nothing can be done at this time. Read more at https://cushingsbios.com/2016/10/15/emily -undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Emily \;is from Grover Beach\, CA \;Her tests are running high but her endo said it appears she has Cushing' s on paper\, but not by looking at her. Therefore his conclusion is she do n't have it\, and nothing can be done at this time.
Read more at&n bsp\;https://cushingsbios.com/2016/10/15/emily-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20161015T1436400Z-549422-324@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Endocrine Society issues new guidelines on hypopituitarism DTSTART;VALUE=DATE:20161103 DTEND;VALUE=DATE:20161104 RRULE:FREQ=WEEKLY;UNTIL=20201013;INTERVAL=2;BYDAY=TH DESCRIPTION:The Endocrine Society today (10/13/16) issued a Clinical Practi ce Guideline that recommends treating insufficient hormone levels in indiv iduals with hypopituitarism by replacing hormones at levels as close to th e body's natural patterns as possible. Read more at https://cushieblog.com /2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitarism/ X-ALT-DESC;FMTTYPE=text/html:The Endocrine Society today (10/13/16) issu ed a Clinical Practice Guideline that recommends treating insufficient hor mone levels in individuals with hypopituitarism by replacing hormones at l evels as close to the body's natural patterns as possible.
Read mo re at \;https://cushiebl og.com/2016/10/15/endocrine-society-issues-new-guidelines-on-hypopituitari sm/
CATEGORIES:News Items UID:20161015T1450160Z-549422-325@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161016 SUMMARY:Kim H\, Ectopic Bio DESCRIPTION:Kim H is from Grays\, UK. She had ectopic Cushing's but nearly 16 years later the ectopic source had never been found despite many more tests. It was still there because it still produced ACTH. Update: The ec topic source was in Kim's appendix. After testing\, it was found to be a c arcinoid tumour. Read more at https://cushingsbios.com/2016/10/16/kim-h-ec topic-bio/ X-ALT-DESC;FMTTYPE=text/html:Kim H is from Grays\, UK. \;She had ec topic Cushing's but nearly 16 years later the ectopic source had never bee n found despite many more tests. It was still there because it still produ ced ACTH. \;
Update: The ectopic source was in Kim's appendix . After testing\, it was found to be a carcinoid tumour.
Read more at \;https://cushingsbios.com/2016/10/16/kim-h-ectopic-bio/
CATEGORIES:Cushie Bios UID:20161016T2342420Z-549422-326@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161017 SUMMARY:Update added to Kim H\, Ectopic Bio (in the comments) DESCRIPTION:...Life had been tough but I am still here fighting. Never give up. Read more at https://cushingsbios.com/2016/10/16/kim-h-ectopic-bio/ X-ALT-DESC;FMTTYPE=text/html:...Life had been tough but I am still here fighting. Never give up.
\;
Read more at \;https://cushingsbios.com/2016/10/16/kim-h-ectopic-bio/
CATEGORIES:Cushie Bios UID:20161017T0913420Z-549422-327@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20001017 SUMMARY:Robert Atkins was born in 1930 DESCRIPTION:(1930) American physician and cardiologist Robert Atkins was bo rn. He is most famously known for inventing the Atkins Diet\, a controvers ial diet that claims to promote weight loss. X-ALT-DESC;FMTTYPE=text/html:(1930) American physician and cardiologist Robert Atkins was born. He is most famously known for inventing the Atkins Diet\, a controversial diet that claims to promote weight loss.
CATEGORIES:This Day in Medical History UID:20161017T2116010Z-549422-328@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Alfons Jakob (Creutzfeldt–Jakob disease) passed away in 1931 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201017;BYMONTH=10;BYMONTHDAY=17 DTSTART;VALUE=DATE:20001017 DTEND;VALUE=DATE:20001018 DESCRIPTION:(1931) German neurologist Alfons Jakob passed away. He is most famously remembered for being the first recognize and describe Creutzfeldt –Jakob disease\, a degenerative neurological disease that is known as the human form of mad cow disease. X-ALT-DESC;FMTTYPE=text/html:(1931) German neurologist Alfons Jakob pass ed away. He is most famously remembered for being the first recognize and describe Creutzfeldt&ndash\;Jakob disease\, a degenerative neurological di sease that is known as the human form of mad cow disease.
CATEGORIES:This Day in Medical History UID:20161017T2117330Z-549422-329@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Robert Atkins was born in 1930 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201017;BYMONTH=10;BYMONTHDAY=17 DTSTART;VALUE=DATE:20001017 DTEND;VALUE=DATE:20001018 DESCRIPTION:(1930) American physician and cardiologist Robert Atkins was bo rn. He is most famously known for inventing the Atkins Diet\, a controvers ial diet that claims to promote weight loss. X-ALT-DESC;FMTTYPE=text/html:(1930) American physician and cardiologist Robert Atkins was born. He is most famously known for inventing the Atkins Diet\, a controversial diet that claims to promote weight loss.
CATEGORIES:This Day in Medical History UID:20161017T2121580Z-549422-330@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161017 SUMMARY:Marcia (Marcia K)\, undiagnosed bio DESCRIPTION:Marcia is from North Palm Beach\, Florida. She has a PCOS diag nosis and has Cushing's symptoms. Read more at https://cushingsbios.com/20 16/10/17/marcia-marcia-k-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Marcia \;is from North Palm Beach\, Flo rida. \;She has a PCOS diagnosis and has Cushing's symptoms.
Read more at \;https://cushingsbios.com/2016/10/1 7/marcia-marcia-k-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20161018T0119390Z-549422-331@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161022 SUMMARY:Melissa\, Pituitary Bio DESCRIPTION:Melissa is from Sheridan\, Indiana. She had pituitary surgery J uly 18\, 2007 but doesn't have a cure. Possible ectopic Cushing's has been suggested. The surgeon does not want to do radiation or removal due to he r age. Read more at https://cushingsbios.com/2016/10/22/melissa-pituitary- bio/ X-ALT-DESC;FMTTYPE=text/html:Melissa \;is from Sher idan\, Indiana. She had pituitary surgery July 18\, 2007 but doesn't have a cure. Possible ectopic Cushing's has been suggested. The surgeon does no t want to do radiation or removal due to her age.
Read more at&nbs p\;https://cushingsbios.com/2016/10/22/melissa-pituitary-bio/
CATEGORIES:Cushie Bios UID:20161022T2340510Z-549422-332@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161023 SUMMARY:Comment added to Emily\, Undiagnosed Bio DESCRIPTION:I was the same way. I never got any of the stretch marks but ev entually I did get the fat lump at the base of my neck between my shoulder s. I noticed my face rounding years before anyone else did and my surgeon had to see before and current pics to believe me.... Read more at https:// cushingsbios.com/2016/10/15/emily-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I was the same way. I never got any of the stretch marks but eventually I did get the fat lump at the base of my neck between my shoulders. I noticed my face rounding years before anyone else did and my surgeon had to see before and current pics to believe me....
Read more at \;https://cushingsbios.com/2016/10/15/e mily-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20161023T1225000Z-549422-333@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161023 SUMMARY:New Testimonial DESCRIPTION:From Mary Kelly O'Connor\, a true Cushings Survivor and Hero!!! I want to be just as wonderful as her when I grow up. XOXOXOXO Read more at https://cushieblogger.com/testimonial/ X-ALT-DESC;FMTTYPE=text/html:From Mary Kelly O'Connor\, a true Cushings Survivor and Hero!!! I want to be just as wonderful as her when I grow up. XOXOXOXO
Read more at \;https://cushieblogger.com/testimonial/
CATEGORIES:Cushings UID:20161023T1234340Z-549422-334@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161024 SUMMARY:Severe Trauma May Damage The Brain as Well as the Psyche RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201024;BYMONTHDAY=24 DESCRIPTION:Cushing's patients also have pronounced memory problems\, espec ially for facts like where a car was parked. 'The hippocampus is essential for transferring such facts from short-term to long-term memory\,' said D r. Sapolsky. Read more at https://cushieblog.com/2016/10/24/severe-trauma- may-damage-the-brain-as-well-as-the-psyche/ X-ALT-DESC;FMTTYPE=text/html:Cushing's patients also have pronounced mem ory problems\, especially for facts like where a car was parked. 'The hipp ocampus is essential for transferring such facts from short-term to long-t erm memory\,' said Dr. Sapolsky.
Read more at \;https://cushieblog.com/2016/10/24/severe-tra uma-may-damage-the-brain-as-well-as-the-psyche/
CATEGORIES:Cushings UID:20161024T1314330Z-549422-335@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy Halloween! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201031;BYMONTH=10;BYMONTHDAY=31 DTSTART;VALUE=DATE:20001031 DTEND;VALUE=DATE:20001101 DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html:
(1799) American physician and surgeon John Light Atlee was born. He was one of the organizers of the American Medical Association\, and also served as its president.
CATEGORIES:This Day in Medical History UID:20161102T2349330Z-549422-337@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:MaryO Pituitary Surgery Anniversary RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301103;BYMONTH=11;BYMONTHDAY=3 DTSTART;VALUE=DATE:20001103 DTEND;VALUE=DATE:20001104 EXDATE;VALUE=DATE:20181103 DESCRIPTION:Today is the anniversary of MaryO's pituitary surgery at NIH in 1987. Read more at https://cushingsbios.com/2021/11/03/maryo-34th-pit uitary-surgery-anniversary/ X-ALT-DESC;FMTTYPE=text/html:Today is the anniversary of MaryO's pituita ry surgery at NIH in 1987. \;
\;
Read more at&nb sp\;https://cushingsbios.com/2021/11/03 /maryo-34th-pituitary-surgery-anniversary/
\;
No universally accepted glucocorticoid repl acement dose exists for patients with adrenal insufficiency. \;
< p>Read more at \;https://cushieblog .com/2016/11/04/hydrocortisone-dosing-for-adrenal-insufficiency/ CATEGORIES:Cushings UID:20161104T1310440Z-549422-339@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161112 SUMMARY:MizBellaTru\, Undiagnosed bio DESCRIPTION:MizBellaTru is from Herndon\, Virginia. She has not been diagn osed with Cushing's but she has had a lot of illness over the past 12 yea rs and symptoms that could be Cushing's. Some of the past diagnoses inclu de Ulcerative Colitis\, diabetes\, seizures\, Bells Palsy and Meniere's di sease. Read more at https://cushingsbios.com/2016/11/12/mizbellatru-undiag nosed-bio/ X-ALT-DESC;FMTTYPE=text/html:MizBellaTru is from Herndon\, Virginia. &nb sp\;She has not been diagnosed with Cushing's but she has had a lot of ill ness over the past \;12 years and symptoms that could be Cushing's. & nbsp\;Some of the past diagnoses include Ulcerative Colitis\, diabetes\, s eizures\, Bells Palsy and Meniere's disease.
Read more at \;https://cushingsbios.com/2016/11/12/mizbellatru-undiagnosed -bio/
CATEGORIES:Cushie Bios UID:20161112T1112570Z-549422-340@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Low Oxytocin Levels Linked to Reduced Empathy DTSTART;VALUE=DATE:20161210 DTEND;VALUE=DATE:20161211 RRULE:FREQ=MONTHLY;UNTIL=20201112;BYDAY=2SA DESCRIPTION:“Patients who have undergone pituitary surgery\, and in particu lar those who have acquired CDI (cranial diabetes insipidus) as a conseque nce\, may present with lower oxytocin levels\,” she continued. “This could impact on their emotional behavior\, and in turn affect their psychologic al well-being. Perhaps we should be considering the introduction of oxytoc in level checks in these cases.” Read more at https://cushieblog.com/2016/ 11/12/low-oxytocin-levels-linked-to-reduced-empathy/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;Patients who have undergone pituita ry surgery\, and in particular those who have acquired CDI (cranial diabet es insipidus) as a consequence\, may present with lower oxytocin levels\,& rdquo\; she continued. &ldquo\;This could impact on their emotional behavi or\, and in turn affect their psychological well-being. Perhaps we should be considering the introduction of oxytocin level checks in these cases.&r dquo\;
Read more at \;https:/ /cushieblog.com/2016/11/12/low-oxytocin-levels-linked-to-reduced-empathy/< /a>
CATEGORIES:News Items UID:20161112T1213120Z-549422-341@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161118 SUMMARY:Doc Karen\, Pituitary and BLA Bio DESCRIPTION:Karen has been dealing with Cushing's since 2006. She has had pituitary surgery and a BLA. Since her surgeries\, she has become an advo cate for Cushing's patients and will be launching a new nonprofit organiza tion soon. Learn more at https://cushingsbios.com/2016/11/18/doc-karen-pit uitary-and-bla-bio/ X-ALT-DESC;FMTTYPE=text/html:Karen has been dealing with Cushing's since 2006. \;She has had pituitary surgery and a BLA. \;Since her su rgeries\, she has become an advocate for Cushing's patients and will be la unching a new nonprofit organization soon.
Learn more at \;https://cushingsbios.com/2016/11/18/doc-karen-pituitary- and-bla-bio/
CATEGORIES:Cushie Bios UID:20161118T1704000Z-549422-342@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20161202T110000 DTEND;TZID=America/New_York:20161202T113000 SUMMARY:Interview with Doc Karen DESCRIPTION:Karen has been dealing with Cushing's since 2006. She has had pituitary surgery and a BLA. Since her surgeries\, she has become an advo cate for Cushing's patients and will be launching a new nonprofit organiza tion soon. Learn more at https://cushingsbios.com/2016/11/18/doc-karen-pit uitary-and-bla-bio/ X-ALT-DESC;FMTTYPE=text/html:Karen has been dealing with Cushing's since 2006. \;She has had pituitary surgery and a BLA. \;Since her su rgeries\, she has become an advocate for Cushing's patients and will be la unching a new nonprofit organization soon.
Learn more at \;https://cushingsbios.com/2016/11/18/doc-karen-pituitary- and-bla-bio/
CATEGORIES:Events and Meetings UID:20161118T1704520Z-549422-343@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Lesley Rees was born in 1942 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201117;BYMONTH=11;BYMONTHDAY=17 DTSTART;VALUE=DATE:20001117 DTEND;VALUE=DATE:20001118 EXDATE;VALUE=DATE:20181117 DESCRIPTION:(1942) British professor\, medical doctor\, and endocrinologist Lesley Rees was born. She has improving medical education and published o ver 300 articles in peer-reviewed journals\, many on endocrinology. X-ALT-DESC;FMTTYPE=text/html:(1942) British professor\, medical doctor\, and endocrinologist Lesley Rees was born. She has improving medical educa tion and published over 300 articles in peer-reviewed journals\, many on e ndocrinology.
CATEGORIES:This Day in Medical History UID:20161120T1511150Z-549422-344@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Adrenal Insufficiency: Primary and Secondary DTSTART;VALUE=DATE:20161218 DTEND;VALUE=DATE:20161219 RRULE:FREQ=MONTHLY;UNTIL=20201120;BYDAY=3SU DESCRIPTION:Adrenal insufficiency is a condition that develops when most of the adrenal gland is not functioning normally. Primary adrenal insufficie ncy arises due to the damage of the glands or because of using drugs that halt synthesis of cortisol. On the other hand\, secondary adrenal insuffic iency stems from processes that inhibit the secretion of the adrenocortico tropic hormone (ACTH) by the hypophysis as a result of a hypothalamic or p ituitary pathology. The former is sometimes also referred to as tertiary a drenal insufficiency. Read more at https://cushieblog.com/2016/11/20/adren al-insufficiency-primary-and-secondary/ X-ALT-DESC;FMTTYPE=text/html:Adrenal insufficiency is a condition that d evelops when most of the adrenal gland is not functioning normally. Primar y adrenal insufficiency arises due to the damage of the glands or because of using drugs that halt synthesis of cortisol. On the other hand\, second ary adrenal insufficiency stems from processes that inhibit the secretion of the adrenocorticotropic hormone (ACTH) by the hypophysis as a result of a hypothalamic or pituitary pathology. The former is sometimes also refer red to as tertiary adrenal insufficiency.
Read more at \;https://cushieblog.com/2016/11/20/adrenal-insuff iciency-primary-and-secondary/
CATEGORIES:News Items UID:20161121T0214040Z-549422-345@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Pituitary dysfunction after traumatic brain injury: are there defin itive data in children? DTSTART;VALUE=DATE:20161219 DTEND;VALUE=DATE:20161220 RRULE:FREQ=MONTHLY;UNTIL=20201121;BYDAY=3MO DESCRIPTION:In the past decade\, several studies in adults and children hav e described the risk of pituitary dysfunction after traumatic brain injury (TBI). As a result\, an international consensus statement recommended fol low-up on the survivors. More info at https://cushieblog.com/2016/11/21/pi tuitary-dysfunction-after-traumatic-brain-injury-are-there-definitive-data -in-children/ X-ALT-DESC;FMTTYPE=text/html:In the past decade\, several studies in adu lts and children have described the risk of pituitary dysfunction after tr aumatic brain injury (TBI). As a result\, an international consensus state ment recommended follow-up on the survivors.
More info at \; https://cushieblog.com/2016/11/21/pituitary-dysfunction-after-traumatic-br ain-injury-are-there-definitive-data-in-children/
CATEGORIES:News Items UID:20161122T0206070Z-549422-346@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161123 SUMMARY:Helpful Endocrinologist in Pittsburgh\, Pennsylvania DESCRIPTION:Dr. Gordon is in private practice and has an experienced resear ch site that is currently recruiting for a Cushing's Syndrome Trial. More info at https://cushieblog.com/2016/11/23/helpful-endocrinologist-in-pitts burgh-pennsylvania/ X-ALT-DESC;FMTTYPE=text/html:Dr. Gordon is in private practice and has a n experienced research site that is currently recruiting for a Cushing's S yndrome Trial.
More info at \;https://cushieblog.com/2016/11/23/helpful-endocrinologist-in-pittsbu rgh-pennsylvania/
CATEGORIES:Helpful Doctors UID:20161124T0239470Z-549422-347@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Franciszek Kokot was born in 1929 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201124;BYMONTH=11;BYMONTHDAY=24 DTSTART;VALUE=DATE:20001124 DTEND;VALUE=DATE:20001125 DESCRIPTION:(1929) Polish nephrologist and endocrinologist Franciszek Kokot was born. His research focused on the link between hormone levels and kid ney diseases. X-ALT-DESC;FMTTYPE=text/html:(1929) Polish nephrologist and endocrinolog ist Franciszek Kokot was born. His research focused on the link between ho rmone levels and kidney diseases.
CATEGORIES:This Day in Medical History UID:20161125T1936470Z-549422-348@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161129 SUMMARY:Laura F\, Undiagnosed Bio DESCRIPTION:Laura is from Dallas\, West Virginia. She been gaining weight for about 3 1/2 years since having her thyroid removed due to a 25 year ol d nodule that was calcified. She now has many other Cushing's symptoms. R ead more at https://cushingsbios.com/2016/11/29/laura-f-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Laura \;is from Dallas\, West Virginia. \;She been gaining weight for about 3 1/2 years since having her thy roid removed due to a 25 year old nodule that was calcified. \;She no w has many other Cushing's symptoms.
Read more at \;https://cushingsbios.com/2016/11/29/laura-f-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20161129T1615490Z-549422-349@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Choh Hao Li passed away in 1987 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201128;BYMONTH=11;BYMONTHDAY=28 DTSTART;VALUE=DATE:20001128 DTEND;VALUE=DATE:20001129 DESCRIPTION:(1987) Chinese-born U.S. biochemist Choh Hao Li passed away. He is remembered for determining that the pituitary growth hormone\, somatot ropin\, is made of 256 amino acid chains and also for synthesizing it. X-ALT-DESC;FMTTYPE=text/html:(1987) Chinese-born U.S. biochemist Choh Ha o Li passed away. He is remembered for determining that the pituitary grow th hormone\, somatotropin\, is made of 256 amino acid chains and also for synthesizing it.
CATEGORIES:This Day in Medical History UID:20161202T1133390Z-549422-350@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161202 SUMMARY:UAE Patient’s (Pituitary) Brain Tumour Removed Through Nostrils RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201202;BYMONTHDAY=2 DESCRIPTION:Patient suffering from a pituitary gland tumor that threatened to cause blindness undergoes scar-less procedure. Read more at https://cus hieblog.com/2016/12/02/uae-patients-pituitary-brain-tumour-removed-through -nostrils/ X-ALT-DESC;FMTTYPE=text/html:Patient suffering from a pituitary gland tu mor that threatened to cause blindness undergoes scar-less procedure.
Read more at \;htt ps://cushieblog.com/2016/12/02/uae-patients-pituitary-brain-tumour-removed -through-nostrils/
CATEGORIES:News Items UID:20161202T1848500Z-549422-351@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Medical Therapies in Cushing’s Syndrome DTSTART;VALUE=DATE:20170101 DTEND;VALUE=DATE:20170102 RRULE:FREQ=MONTHLY;UNTIL=20201204;BYDAY=1SU,4SU DESCRIPTION:Medical therapy has an important\, albeit secondary\, role in p atients with Cushing’s syndrome. While medications are not currently used as definitive therapy of this condition\, they can be very effective in co ntrolling hypercortisolism in patients who fail surgery\, those who are no t surgical candidates\, or those whose tumor location is unknown. Medical therapies can be particularly helpful to control hypercortisolism in patie nts with Cushing’s disease who underwent radiation therapy and are awaitin g its salutary effects. Read more at https://cushieblog.com/2016/12/04/med ical-therapies-in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Medical therapy has an important\, albeit s econdary\, role in patients with Cushing&rsquo\;s syndrome. While medicati ons are not currently used as \;definitive \;therapy \;of \;this condition\, they can be very effective in controlling hypercortisol ism in patients who fail surgery\, those who are not surgical candidates\, or those whose tumor location is unknown. Medical therapies can be partic ularly helpful to control hypercortisolism in patients with Cushing&rsquo\ ;s disease who underwent radiation therapy and are awaiting its salutary e ffects.
Read more at \;https://cushi eblog.com/2016/12/04/medical-therapies-in-cushings-syndrome/
CATEGORIES:News Items UID:20161205T0030020Z-549422-352@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Syndrome mutant PKAL205R exhibits altered substrate speci ficity DTSTART;VALUE=DATE:20170105 DTEND;VALUE=DATE:20170106 RRULE:FREQ=WEEKLY;UNTIL=20201215;INTERVAL=2;BYDAY=TH DESCRIPTION:Through these results\, we suggest that substrate rewiring may contribute to Cushing's Syndrome disease etiology\, and introduce a powerf ul new paradigm for investigating mutation-induced kinase substrate rewiri ng in human disease. Read more at https://cushieblog.com/2016/12/15/cushin gs-syndrome-mutant-pkal205r-exhibits-altered-substrate-specificity/ X-ALT-DESC;FMTTYPE=text/html:Through these results\, we suggest that sub strate rewiring may contribute to Cushing's Syndrome disease etiology\, an d introduce a powerful new paradigm for investigating mutation-induced kin ase substrate rewiring in human disease.
Read more at \;https://cushieblog.c om/2016/12/15/cushings-syndrome-mutant-pkal205r-exhibits-altered-substrate -specificity/
CATEGORIES:Cushings UID:20161215T2058480Z-549422-353@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161217 SUMMARY:Comment added to hadeer (gogo)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201217;BYMONTHDAY=17 DESCRIPTION:...My wife is struggling with Cushing’s as well\, and it’s diff icult to find people with the same experiences here as I’m sure you know.. .. Read more at https://cushingsbios.com/2015/09/26/ghadeer-gogo-undiagnos ed-bio/ X-ALT-DESC;FMTTYPE=text/html:...My wife is struggling with Cushing&rsquo \;s as well\, and it&rsquo\;s difficult to find people with the same exper iences here as I&rsquo\;m sure you know....
Read more at \;https://cushingsbios.com/2015/09/26/ghadeer-gogo-undiagnose d-bio/
CATEGORIES:Cushie Bios UID:20161217T1940220Z-549422-354@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to Raveh I\, Adrenal Bio DTSTART;VALUE=DATE:20170121 DTEND;VALUE=DATE:20170122 RRULE:FREQ=MONTHLY;UNTIL=20201217;BYDAY=3SA DESCRIPTION:It has been two years since your post\, and I hope that you are feeling better... Read more at https://cushingsbios.com/2014/10/23/raveh- i-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:It has been two years since your post\, and I hope that you are feeling better...
Read more at \;https://cushingsbios.com/2014/10/23/raveh-i-adrenal-bio/
CATEGORIES:Cushie Bios UID:20161217T1943340Z-549422-355@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161219 SUMMARY:Comment added to Susanna N (Susanna Nolt)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201219;BYMONTHDAY=19 DESCRIPTION:I’m just in the process of getting diagnosed with Cushing’s Syn drome but I just wanted to let you know that virtually everything you desc ribed is also happening to me\, symptoms wise... Read more at https://cush ingsbios.com/2016/05/04/susanna-n-susanna-nolt-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m just in the process of getting d iagnosed with Cushing&rsquo\;s Syndrome but I just wanted to let you know that virtually everything you described is also happening to me\, symptoms wise...
Read more at \;https://cush ingsbios.com/2016/05/04/susanna-n-susanna-nolt-pituitary-bio/
CATEGORIES:Cushie Bios UID:20161219T1341190Z-549422-356@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161220 SUMMARY:Matthew C\, Pituitary Bio DESCRIPTION:Matthew C is from Grain Valley\, Missouri. He had a failed pi tuitary surgery August 9\, 2016 after being fired by a couple endocrinolog ists. Read more at https://cushingsbios.com/2016/12/20/matthew-c-pituitary -bio/ X-ALT-DESC;FMTTYPE=text/html:Matthew C \;is from Grain Valley\, Mis souri. \;He had a failed pituitary surgery August 9\, 2016 after bein g fired by a couple endocrinologists.
Read more at \;https://cushingsbios.com/2016/12/20/matthew-c-pituitary-bio/
CATEGORIES:Cushie Bios UID:20161220T1150470Z-549422-357@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161220 SUMMARY:Comment added to Matthew C\, Pituitary Bio DESCRIPTION:Instead of going overseas\, the doctors in Johns Hopkins in Bal timore md are fantastic... Read more at https://cushingsbios.com/2016/12/2 0/matthew-c-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Instead of going overseas\, the doctors in Johns Hopkins in Baltimore md are fantastic...
Read more at \; https://cushingsbios.com/2016/12/20/matthew-c-pituitary-bio/< /a>
CATEGORIES:Cushie Bios UID:20161221T0205100Z-549422-358@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161221 SUMMARY:Pituitary Dysfunction as a Result of Traumatic Brain Injury RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201221;BYMONTHDAY=21 EXDATE;VALUE=DATE:20181021 DESCRIPTION:Unfortunately\, problems with the pituitary gland may not alway s be visible on MRIs or other imaging tests because the pituitary is so sm all. Endocrinologists who handle hormone therapy frequently are not famili ar with brain injuries\, and may not make the connection that your brain i njury was the cause of the problem. Read more at http://cushieblog.com/201 6/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury X-ALT-DESC;FMTTYPE=text/html:Unfortunately\, problems with the pituitary gland may not always be visible on MRIs or other imaging tests because th e pituitary is so small. Endocrinologists who handle hormone therapy frequ ently are not familiar with brain injuries\, and may not make the connecti on that your brain injury was the cause of the problem.
Read more at \;http://cushieblog.co m/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury
CATEGORIES:News Items UID:20161221T1357090Z-549422-359@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161221 SUMMARY:Tammy\, Adrenal Bio DESCRIPTION:Tammy is from Frederick\, MD. She was diagnosed with Cushing's in the past week and will have adrenal surgery soon. Read more at https:/ /cushingsbios.com/2016/12/21/tammy-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Tammy is from Frederick\, MD. \;She wa s diagnosed with Cushing's in the past week and will have adrenal surgery soon.
Read more at \;https://cushingsbios.com/2016/12/2 1/tammy-adrenal-bio/
CATEGORIES:Cushie Bios UID:20161221T1407040Z-549422-360@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161221 SUMMARY:New Cushie added to Cushing's World Map DESCRIPTION:Add your location and diagnosis to our Cushing's World Map. Hel pful Doctor locations are being added to this map\, as well See the map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:Add your location and diagnosis to our Cush
ing's World Map.
Helpful Doctor locations are being added to this map
\, as well
See the map at \;htt p://www.zeemaps.com/pub?group=342449&\;legend=1&\;locate=1&\;add= 1
CATEGORIES:Cushie Bios UID:20161221T1410100Z-549422-361@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Ernst von Bergmann was born in 1836 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201216;BYMONTH=12;BYMONTHDAY=16 DTSTART;VALUE=DATE:20001216 DTEND;VALUE=DATE:20001217 DESCRIPTION:(1836) Baltic German surgeon Ernst von Bergmann was born. He wa s a pioneer of aseptic surgery\, the practise of sterile conditions while performing surgery. X-ALT-DESC;FMTTYPE=text/html:(1836) Baltic German surgeon Ernst von Berg mann was born. He was a pioneer of aseptic surgery\, the practise of steri le conditions while performing surgery.
CATEGORIES:This Day in Medical History UID:20161221T1412070Z-549422-362@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Bilateral testicular tumors resulting in recurrent Cushing’s syndro me after bilateral adrenalectomy DTSTART;VALUE=DATE:20170118 DTEND;VALUE=DATE:20170119 RRULE:FREQ=MONTHLY;UNTIL=20201221;BYDAY=3WE DESCRIPTION:Recurrence of hypercortisolism in patients after bilateral adre nalectomy for Cushing’s disease is extremely rare. Read more at https://cu shieblog.com/2016/12/21/bilateral-testicular-tumors-resulting-in-recurrent -cushings-syndrome-after-bilateral-adrenalectomy/ X-ALT-DESC;FMTTYPE=text/html:Recurrence of hypercortisolism in patients after bilateral adrenalectomy for Cushing&rsquo\;s disease is extremely ra re.
Read more at \;https://cushieblog.com/2016/12/ 21/bilateral-testicular-tumors-resulting-in-recurrent-cushings-syndrome-af ter-bilateral-adrenalectomy/
CATEGORIES:Cushings UID:20161221T1438450Z-549422-363@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161221 SUMMARY:Into the brain through the nostrils RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201221;BYMONTHDAY=21 DESCRIPTION:Image-guided (navigation-assisted) endoscopic trans-nasal trans -sphenoidal pituitary surgery is what we are about to view being performed in the country (Sri Lanka) only since October this year. For\, the 38-yea r-old patient lying inert on the operating table has a tumour just above h er pituitary gland\, between the optic nerves and the carotid arteries\, m aking it a difficult operation-site to access. (The pea-size pituitary gla nd is dubbed the ‘master gland’ as it produces many hormones for the whole body\, while also stimulating other glands to produce other hormones.) Re ad more at https://cushieblog.com/2016/12/21/into-the-brain-through-the-no strils-sri-lanka/ X-ALT-DESC;FMTTYPE=text/html:Image-guided (navigation-assisted) endoscop ic trans-nasal trans-sphenoidal pituitary surgery is what we are about to view being performed in the country (Sri Lanka) only since October this ye ar. For\, the 38-year-old patient lying inert on the operating table has a tumour just above her pituitary gland\, between the optic nerves and the carotid arteries\, making it a difficult operation-site to access. (The pe a-size pituitary gland is dubbed the &lsquo\;master gland&rsquo\; as it pr oduces many hormones for the whole body\, while also stimulating other gla nds to produce other hormones.)
Read more at \;https://cushieblog.com/2016/12/21/into-the-brain-through -the-nostrils-sri-lanka/
CATEGORIES:News Items UID:20161221T1513580Z-549422-364@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Wilhelm Röntgen published a paper in 1895 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201228;BYMONTH=12;BYMONTHDAY=28 DTSTART;VALUE=DATE:20001228 DTEND;VALUE=DATE:20001229 DESCRIPTION:(1895) Wilhelm Röntgen published a paper which detailed his dis covery of a new type of radiation\, this was later known as x-rays. X-ALT-DESC;FMTTYPE=text/html:(1895) Wilhelm Rö\;ntgen published a pa per which detailed his discovery of a new type of radiation\, this was lat er known as x-rays.
CATEGORIES:This Day in Medical History UID:20161229T1634230Z-549422-365@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Carl Ludwig was born in 1816 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201229;BYMONTH=12;BYMONTHDAY=29 DTSTART;VALUE=DATE:20001229 DTEND;VALUE=DATE:20001230 DESCRIPTION:(1816) German physician and physiologist Carl Ludwig was born. His research included a focus on blood pressure\, anesthesia\, and secreto ry glands. X-ALT-DESC;FMTTYPE=text/html:(1816) German physician and physiologist Ca rl Ludwig was born. His research included a focus on blood pressure\, anes thesia\, and secretory glands.
CATEGORIES:This Day in Medical History UID:20161229T1636100Z-549422-366@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161230 SUMMARY:Sandy (KindredSpirit)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20170130;BYMONTHDAY=30 DESCRIPTION:Sandy is from Calgary\, Alberta\, Canada. She had health issue s for several years and a friend asked if she had been tested for Cushing' s. She hadn't heard of it but after reading the symptoms online\, she sou ght out testing. Read more at https://cushingsbios.com/2016/12/30/sandy-ki ndredspirit-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Sandy is from Calgary\, Alberta\, Canada. & nbsp\;She had health issues for several years and a friend asked if she ha d been tested for Cushing's. \;She hadn't heard of it but after readi ng the symptoms online\, she sought out testing.
Read more at \;https://cushingsbios.com/2016/12/30/sandy-kindred spirit-pituitary-bio/
CATEGORIES:Cushie Bios UID:20161230T1146570Z-549422-367@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161230 SUMMARY:New Cushie added to Cushing's World Map DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and
diagnosis to our Cushing's World Map.
Helpful Doctor locations are b
eing added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&a mp\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20161230T1151250Z-549422-368@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161230 SUMMARY:Comment added to Tammy\, Adrenal Bio DESCRIPTION:... I was diagnosed with Cushing’s after suffering a severe kid ney stone back in January. I had a tumor on my left adrenal gland and had surgery in March to remove both my left adrenal gland and the tumor that w as on it... Read more at https://cushingsbios.com/2016/12/21/tammy-adrena l-bio/ X-ALT-DESC;FMTTYPE=text/html:... I was diagnosed with Cushing&rsquo\;s a fter suffering a severe kidney stone back in January. I had a tumor on my left adrenal gland and had surgery in March to remove both my left adrenal gland and the tumor that was on it... \;
Read more at \;< a href='https://cushingsbios.com/2016/12/21/tammy-adrenal-bio/' target='_b lank'>https://cushingsbios.com/2016/12/21/tammy-adrenal-bio/
CATEGORIES:Cushie Bios UID:20161230T1357320Z-549422-369@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161230 SUMMARY:Comment added to Matthew C\, Pituitary Bio DESCRIPTION:... I also had a pituitary operation and the awful sinus sampli ng in 2010 after being treat for dressing and anxiety for years\, after my first operation I was well on the way to recovery until my symptoms start ed returning... Read more at https://cushingsbios.com/2016/12/20/matthew-c -pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:... I also had a pituitary operation and th e awful sinus sampling in 2010 after being treat for dressing and anxiety for years\, after my first operation I was well on the way to recovery unt il my symptoms started returning...
Read more at \;https://cushingsbios.com/2016/12/20/matthew-c-pituitary-bio/
CATEGORIES:Cushie Bios UID:20161230T1358410Z-549422-370@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161229 SUMMARY:Comment added to Laura F\, Undiagnosed Bio DESCRIPTION:Have you tried Armour? It’s supposed to be all natural and work s like synthroid. Read more at https://cushingsbios.com/2016/11/29/laura-f -undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Have you tried Armour? It&rsquo\;s supposed to be all natural and works like synthroid.
Read more at \;https://cushingsbios.com/2016/11/29/laura-f-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20161230T1359440Z-549422-371@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161231 SUMMARY:Kayla\, Pituitary Bio DESCRIPTION:Kayla is from the United States. She is 21 years old and has h ad a pituitary tumor and Addison's for almost 4 years. Her doctor took her off her meds and she is testing for Cushing's. Read more at https://cushi ngsbios.com/2016/12/31/kayla-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Kayla is from the United States. \;She is 21 years old and has had a pituitary tumor and Addison's for almost 4 years. Her doctor took her off her meds and she is testing for Cushing's.< /p>
Read more at \;https://cushingsbios.com/2016/12/31/ka yla-pituitary-bio/
CATEGORIES:Cushie Bios UID:20161231T1557340Z-549422-372@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20161231 SUMMARY:Comment added to Tammy\, Adrenal Bio DESCRIPTION:... It took over a year to lose all the weight. I know the over whelming feeling you have. I was there. I live a completely normal life no w 5 years later... Read more at https://cushingsbios.com/2016/12/21/tammy- adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:... It took over a year to lose all the wei ght. I know the overwhelming feeling you have. I was there. I live a compl etely normal life now 5 years later...
Read more at \;h ttps://cushingsbios.com/2016/12/21/tammy-adrenal-bio/
CATEGORIES:Cushie Bios UID:20161231T1658380Z-549422-373@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:The Pituitary Gland: Small But Mighty DTSTART;VALUE=DATE:20170107 DTEND;VALUE=DATE:20170108 RRULE:FREQ=WEEKLY;UNTIL=20201231;INTERVAL=2;BYDAY=SA DESCRIPTION:Not only does the pituitary make its own hormones\, but it also triggers hormone production in other glands. The pituitary is aided in it s job by the hypothalamus. This part of the brain is situated above the pi tuitary\, and sends messages to the gland on when to release or stimulate production of necessary hormones. Read more at https://cushieblog.com/2016 /12/31/the-pituitary-gland-small-but-mighty/ X-ALT-DESC;FMTTYPE=text/html:Not only does the pituitary make its own ho rmones\, but it also triggers hormone production in other glands. The pitu itary is aided in its job by the hypothalamus. This part of the brain is s ituated above the pituitary\, and sends messages to the gland on when to r elease or stimulate \;production \;of necessary hormones.
Read more at \;https://cushieblog.com/2016/12/ 31/the-pituitary-gland-small-but-mighty/
CATEGORIES:Cushings UID:20180210T1235060Z-549422-374@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Some Lifestyle Tips for Cushing’s Syndrome DTSTART;VALUE=DATE:20170206 DTEND;VALUE=DATE:20170207 RRULE:FREQ=MONTHLY;UNTIL=20200102;BYDAY=1MO DESCRIPTION:There are some ideas in the post below and some at http://www.c ushings-info.com/index.php?title=Help_Yourself\,_Part_1 (and also parts 2 and 3!) Do you have any other helpful tips for the New Year? Read more at https://cushieblog.com/2017/01/02/some-lifestyle-tips-for-cushings-syndrom e/ X-ALT-DESC;FMTTYPE=text/html:There are some ideas in the post below and some at \;http://www.cushings-info.com/index.php?t itle=Help_Yourself\,_Part_1 \;(and also parts 2 and 3!)
Do you have any other helpful tips for the New Year?
Read more at&nb sp\;https://cushieblog.com/2017/01/02/some-li festyle-tips-for-cushings-syndrome/
CATEGORIES:Cushings UID:20170102T1517350Z-549422-375@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170101 SUMMARY:Cushing’s Syndrome Treatments RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200101;BYMONTHDAY=1 DESCRIPTION:You may need one treatment or a combination of these treatments to effectively treat your Cushing's syndrome. Your doctor will let you kn ow what treatments for Cushing's syndrome you'll need. Read more at https: //cushieblog.com/2017/01/01/cushings-syndrome-treatments/ X-ALT-DESC;FMTTYPE=text/html:You may need one treatment or a combination of these treatments to effectively treat your Cushing's syndrome. Your do ctor will let you know what treatments for Cushing's syndrome you'll need.
Read more at \;https://cushieblog.com/2017/01 /01/cushings-syndrome-treatments/
CATEGORIES:Cushings UID:20170101T1541170Z-549422-376@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170101 SUMMARY:Comment added to Kayla\, Pituitary Bio DESCRIPTION:Did he actually diagnose you with the disease? Which would be a tumor... Read more at https://cushingsbios.com/2016/12/31/kayla-pituitary -bio/ X-ALT-DESC;FMTTYPE=text/html:Did he actually diagnose you with the disea se? Which would be a tumor...
Read more at \;https:// cushingsbios.com/2016/12/31/kayla-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170101T1542440Z-549422-377@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Low Cortisol or an Adrenal Crisis DTSTART;VALUE=DATE:20170213 DTEND;VALUE=DATE:20170214 RRULE:FREQ=MONTHLY;UNTIL=20200102;BYDAY=2MO DESCRIPTION:Some are very sick and believe it can be treated at home\, othe rs are low on cortisol and believe they urgently need Emergency Department treatments. It can be very hard to tell the difference at times. Read mo re at https://cushieblog.com/2017/01/02/low-cortisol-or-an-adrenal-crisis- learning-the-difference/ X-ALT-DESC;FMTTYPE=text/html:Some are very sick and believe it can be tr eated at home\, others are low on cortisol and believe they urgently need Emergency Department treatments. \;It can be very hard to tell the di fference at times.
Read more at \;https://cushieblog.com/2017/01/02/low-cortisol-or-an-adre nal-crisis-learning-the-difference/
CATEGORIES:Other Medical UID:20170102T1439480Z-549422-378@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170102 SUMMARY:Lynn M\, Adrenal BIo DESCRIPTION:A Golden Oldie bio. Lynn M's left adrenal gland was removed on Nov 29\, 2000. Read more at https://cushingsbios.com/2017/01/02/lynn-m-ad renal-bio/ X-ALT-DESC;FMTTYPE=text/html:A Golden Oldie bio. \;Lynn M's left ad renal gland was removed on Nov 29\, 2000.
Read more at \;https://cushingsbios.com/2017/01/02/lynn-m-adrenal-bio/
CATEGORIES:Cushie Bios UID:20170102T1559390Z-549422-379@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170102 SUMMARY:Comment added to Some Lifestyle Tips for Cushing's Syndrome DESCRIPTION:...I don’t know what to do except keep pushing my doctor to do more testing. Most of the time\, I’m too tired to even go to the doctor... . Read more at https://cushieblog.com/2017/01/02/some-lifestyle-tips-for-c ushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:...I don&rsquo\;t know what to do except ke ep pushing my doctor to do more testing. Most of the time\, I&rsquo\;m too tired to even go to the doctor....
Read more at \;https://cushieblog.com/2017/01/02/some-lifestyle-tips-fo r-cushings-syndrome/
CATEGORIES:Cushie Bios UID:20170102T1620420Z-549422-380@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170102 SUMMARY:New Testimonial added DESCRIPTION:If it wasn't for MaryO's hard work in creating an online commun ity I don't know if I'd have made it through all these years. She's a behi nd the scenes kind of person\, she doesn't ask for much and often winds up on the periphery but despite her own health challenges she gives and give s and gives and has helped thousands of people. From https://cushieblogger .com/testimonial/anonymous/ X-ALT-DESC;FMTTYPE=text/html:If it wasn't for MaryO's hard work in creat ing an online community I don't know if I'd have made it through all these years. She's a behind the scenes kind of person\, she doesn't ask for muc h and often winds up on the periphery but despite her own health challenge s she gives and gives and gives and has helped thousands of people.
< p>From \;https://cushieblogger.com/testimonial/anonymous/ CATEGORIES:Cushings UID:20170102T1631540Z-549422-381@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170102 SUMMARY:Bios of Male Patients Updated DESCRIPTION:Added a new pituitary bio. Read more at http://www.cushie.info/ index.php/cushing-s/about-us/14-bios-of-male-patients X-ALT-DESC;FMTTYPE=text/html:Added a new pituitary bio.
Read mor e at \;http://www.cushie.info/index.php/c ushing-s/about-us/14-bios-of-male-patients
CATEGORIES:Cushie Bios UID:20170102T1645250Z-549422-382@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Isaac Asimov was born in 1920 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200102;BYMONTH=1;BYMONTHDAY=2 DTSTART;VALUE=DATE:20000102 DTEND;VALUE=DATE:20000103 DESCRIPTION:(1920) Isaac Asimov was born. He co-authored a college textbook Biochemistry and Human Metabolism\, and also wrote a number of science fi ction books. X-ALT-DESC;FMTTYPE=text/html:(1920) Isaac Asimov was born. He co-authore d a college textbook Biochemistry and Human Metabolism\, and also wrote a number of science fiction books.
CATEGORIES:This Day in Medical History UID:20170103T0240540Z-549422-383@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170103 SUMMARY:Comment added to Elisabeth (bethnaz)\, Pituitary Bio DESCRIPTION:...I have gained 10 unexplained pounds. I am loosing my hair. I cannot see my clavicles anymore. I have a small nodule in my thyroid. I e xperience random “asthma” symptoms and bilateral neck and abdomen pain / t ightness. I am waiting for further workup by my endocrinologists.... Read more at https://cushingsbios.com/2016/06/29/elisabeth-bethnaz-pituitary-bi o/ X-ALT-DESC;FMTTYPE=text/html:...I have gained 10 unexplained pounds. I a m loosing my hair. I cannot see my clavicles anymore. I have a small nodul e in my thyroid. I experience random &ldquo\;asthma&rdquo\; symptoms and b ilateral neck and abdomen pain / tightness. I am waiting for further worku p by my endocrinologists....
Read more at \;https://cushingsbios.com/2016/06/29/elisabeth-bethnaz-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170104T0024150Z-549422-384@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Malia Kenney RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300104;BYMONTH=1;BYMONTHDAY=4 DTSTART;VALUE=DATE:20170104 DTEND;VALUE=DATE:20170105 EXDATE;VALUE=DATE:20240104 DESCRIPTION:Malia died on this date\, January 4\, 2017 at the age of 40. S he had been dealing with Cushing's Disease for the past 18 years or so. Re ad more at https://cushingsbios.com/2022/01/04/in-memory-malia-kenney-janu ary-4-2017/ X-ALT-DESC;FMTTYPE=text/html:Malia died on this date\, January 4\, \ ;2017 \;at the age of 40. \; \;She had been dealing with Cushi ng's Disease for the past 18 years or so.
Read more at \;https://cushingsbios.com/2022/01/04/i n-memory-malia-kenney-january-4-2017/
CATEGORIES:In Memory UID:20240105T0024550Z-549422-385@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170106 SUMMARY:New Testimonial Added DESCRIPTION:I haven't been on here for awhile and like others said\, this s ite is a godsend Mary! I come back every once in awhile when I'm looking f or more answers. Thank you so much for this site. So many people here have offered advice and friendship. I am grateful for it. More info at https: //cushieblogger.com/testimonial/rissa/ X-ALT-DESC;FMTTYPE=text/html:I haven't been on here for awhile and like others said\, this site is a godsend Mary! I come back every once in awhil e when I'm looking for more answers. Thank you so much for this site. So m any people here have offered advice and friendship. I am grateful for it.& nbsp\;
More info at \;https://cushieblogger.com/testimonial/rissa /
CATEGORIES:Cushings UID:20170106T1432190Z-549422-386@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170106 SUMMARY:Comment added to In Memory of Malia Kenney ~ January 4\, 2017 DESCRIPTION:Blessings to you for your struggle with cushings… RIP Read more at https://cushingsbios.com/2017/01/04/in-memory-of-malia-kenney-january- 4-2017/ X-ALT-DESC;FMTTYPE=text/html:Blessings to you for your struggle with cus hings&hellip\; RIP
Read more at \;https://cushingsbios.com/2017/01/04/in-memory-of-malia-kenney-january-4- 2017/
CATEGORIES:Cushie Bios UID:20170106T1546340Z-549422-387@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170107 SUMMARY:Angie T\, Pituitary Bio DESCRIPTION:Angie is from Alamo\, GA. She started gaining a lot of weight in 2015 thought it was from taking insulin for her diabetes. She has a pi tuitary tumor and is looking for an in-network surgeon. Read more at https ://cushingsbios.com/2017/01/07/angie-t-angie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Angie is from Alamo\, GA. \;She starte d gaining a lot of weight in 2015 thought it was from taking insulin for h er diabetes. \;She has a pituitary tumor and is looking for an in-net work surgeon.
Read more at \;https://cushings bios.com/2017/01/07/angie-t-angie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170108T0042520Z-549422-388@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170107 SUMMARY:New Cushie added to Cushing's World Map DESCRIPTION:Add your location and diagnosis to our Cushing's World Map. Hel pful Doctor locations are being added to this map\, as well See the map he re: http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:Add your location and diagnosis to our Cush
ing's World Map.
Helpful Doctor locations are being added to this map
\, as well
See the map here: \; http://www.zeemaps.com/pub?group=342449&\;legend=1&\;locate=1&\;a dd=1
CATEGORIES:Cushie Bios UID:20170108T0045230Z-549422-389@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170108 SUMMARY:High cortisol: Symptoms and signs RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200108;BYMONTHDAY=8 DESCRIPTION:There are two main causes of high cortisol: Chronic stress and more rarely\, Cushing’s disease. Cushing’s disease is caused by a hormone- secreting tumor on the adrenal gland which results in the release more cor tisol than required. Living with chronic stress also leads to high cortiso l because the release of cortisol is a natural response from the body when it is stressed. The hypothalamic–pituitary-adrenal [HPA] axis is what reg ulates the timely release of cortisol during acute stress\, but when stres s becomes chronic the feedback from the HPA becomes damaged and so cortiso l continues to be released. Read more at http://cushings.invisionzone.co m/index.php?/topic/54177-high-cortisol-symptoms-and-signs/ X-ALT-DESC;FMTTYPE=text/html:There are two main causes of high cortisol: Chronic stress and more rarely\, Cushing&rsquo\;s disease. Cushing&rsquo\ ;s disease is caused by a hormone-secreting tumor on the adrenal gland whi ch results in the release more cortisol than required.
Living with chronic stress also leads to high cortisol because the release of cortiso l is a natural response from the body when it is stressed. The hypothalami c&ndash\;pituitary-adrenal [HPA] axis is what regulates the timely release of cortisol during acute stress\, but when stress becomes chronic the fee dback from the HPA becomes damaged and so cortisol continues to be release d.
\;
Read more at \;http://cushings.invisionzone.com/index.php?/topic/54177-high -cortisol-symptoms-and-signs/
CATEGORIES:Cushings UID:20170108T1423210Z-549422-390@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170108 SUMMARY:Correy D (Cushie Correy)\, Pituitary Bio DESCRIPTION:Correy is from Cedar Rapids\, Iowa. She posted a very extensiv e bio of her experiences with transsphenoidal surgery\, recurrence\, and S ignifor. Read more at https://cushingsbios.com/2017/01/08/correy-d-cushie -correy-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Correy is from Cedar Rapids\, Iowa. \; She posted a very extensive bio of her experiences with transsphenoidal su rgery\, recurrence\, and Signifor. \;
Read more at \;https://cushingsbios.com/2017/01/08/correy-d-cushie-c orrey-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170108T1446430Z-549422-391@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170108 SUMMARY:New Cushie added to Cushing's World Map DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and
diagnosis to our Cushing's World Map.
Helpful Doctor locations are b
eing added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&a mp\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20170108T1447400Z-549422-392@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170110 SUMMARY:A Letter To Patients With Chronic Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200110;BYMONTHDAY=10 EXDATE;VALUE=DATE:20181110 DESCRIPTION:MaryO'Note: Dr. Rob was interviewed by Robin (staticnrg) and M ary O'Connor (MaryO) October 2\, 2008 on BlogTalkRadio Cushing's Help ...I am talking about your understanding of a fact that everyone else seems to miss\, a fact that many doctors hide from: we are normal\, fallible peopl e who happen to doctor for a job. We are not special. In fact\, many of us are very insecure\, wanting to feel the affirmation of people who get b etter\, hearing the praise of those we help. We want to cure disease\, to save lives\, to be the helping hand\, the right person in the right place at the right time. But chronic unsolvable disease stands square in our wa y. You don't get better\, and it makes many of us frustrated\, and it mak es some of us mad at you. We don't want to face things we can't fix becau se it shows our limits. We want the miraculous\, and you deny us that cha nce... Read more at https://cushieblog.com/2017/01/10/a-letter-to-patients -with-chronic-disease/ X-ALT-DESC;FMTTYPE=text/html:MaryO'Note: \; \;D r. Rob was interviewed by Robin (staticnrg) and Mary O'Connor (MaryO) Octo ber 2\, \;2008 \;on \;BlogTalkRadio Cushing's Help
...I am ta lking about your understanding of a fact that everyone else seems to miss\ , a fact that many doctors hide \;from: \;we are normal\, fallible people who happen to doctor for a job. \; We are not special. \; In fact\, many of us are very insecure\, wanting to feel the affirmation o f people who get better\, hearing the praise of those we help. \; We w ant to cure disease\, to save lives\, to be the helping hand\, the right p erson in the right place at the right time.
But chronic unsolvable
disease stands square in our way. \; You don't get better\, and it ma
kes many of us frustrated\, and it makes some of us mad at you. \; We
don't want to face things we can't fix because it shows our limits. \;
We want the miraculous\, and you deny us that chance...
Read m
ore at \;https://cushieblog.com/2017/01/1
0/a-letter-to-patients-with-chronic-disease/
Sam\, 17\, has faced limitations with serio us health issues\, including Cushing's\, Addison&rsquo\;s disease and oste oporosis.
Read more at \;https://cushingsbios.com/2017/01 /10/sam-in-the-news/
CATEGORIES:Cushie Bios UID:20170131T1046170Z-549422-394@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Insulin was used for the first time in 1922 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200111;BYMONTH=1;BYMONTHDAY=11 DTSTART;VALUE=DATE:20000111 DTEND;VALUE=DATE:20000112 DESCRIPTION:(1922) Insulin was used for the first time to treat diabetes in a human patient. X-ALT-DESC;FMTTYPE=text/html:(1922) Insulin was used for the first time to treat diabetes in a human patient.
CATEGORIES:This Day in Medical History UID:20170112T1755080Z-549422-395@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170115 SUMMARY:Comment added to Kali\, Undiagnosed Bio DESCRIPTION:...If you don’t mind\, can you update what happened after? Beca use your story is so similar to mine... Read more at https://cushingsbios .com/2016/07/07/kali-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...If you don&rsquo\;t mind\, can you updat e what happened after? Because your story is so similar to mine... \;< /p>
Read more at \;https://cushingsbios.com/2016/07/07/k ali-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170115T2313270Z-549422-396@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170116 SUMMARY:Comment added to Magdalena\, Food-Dependent Cushing’s Bio DESCRIPTION:... I too am going through undiagnosed Cushings symptoms and pr ay for the correct diagnose in time... Read more at https://cushingsbios .com/2013/06/23/magdalena-food-dependent-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:... I too am going through undiagnosed Cush ings symptoms and pray for the correct diagnose in time... \;
Read more at \;https://cushingsbios.com/20 13/06/23/magdalena-food-dependent-cushings-bio/
CATEGORIES:Cushie Bios UID:20170115T2315380Z-549422-397@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170121 SUMMARY:Topical Ocular Glucocorticoid Leads to Cushing's Syndrome in 9-Year -Old RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200121;BYMONTHDAY=21 DESCRIPTION:Clinicians should be aware that even extremely low doses of top ical ocular steroid therapy can cause iatrogenic Cushing's Syndrome. Read more at https://cushieblog.com/2017/01/21/topical-ocular-glucocorticoid-le ads-to-cushings-syndrome-in-9-year-old/ X-ALT-DESC;FMTTYPE=text/html:Clinicians should be aware that even extrem ely low doses of topical ocular steroid therapy can cause iatrogenic Cushi ng's Syndrome.
Read more at \;https://cushieblog.com/2017/01/21/topical-ocular -glucocorticoid-leads-to-cushings-syndrome-in-9-year-old/
CATEGORIES:Cushings UID:20170121T1545500Z-549422-398@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Wilder Penfield was born in 1891 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200126;BYMONTH=1;BYMONTHDAY=26 DTSTART;VALUE=DATE:20000126 DTEND;VALUE=DATE:20000127 DESCRIPTION:(1891) Canadian neurosurgeon Wilder Penfield was born. He is kn own for improving the techniques of brain surgery and mapping the function of a number of brain regions. X-ALT-DESC;FMTTYPE=text/html:(1891) Canadian neurosurgeon Wilder Penfiel d was born. He is known for improving the techniques of brain surgery and mapping the function of a number of brain regions.
CATEGORIES:This Day in Medical History UID:20170126T1711290Z-549422-399@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170126 SUMMARY:Comment added to Chelsea\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180126;BYMONTHDAY=26 DESCRIPTION:...gained 30 lbs in a month\, just had a Ct scan where they sai d I have no adrenal tumors but my dhea-s is still in the 860 range.... Rea d more at https://cushingsbios.com/2016/01/23/chelsea-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...gained 30 lbs in a month\, just had a Ct scan where they said I have no adrenal tumors but my dhea-s is still in t he 860 range....
Read more at \;https://cushingsb ios.com/2016/01/23/chelsea-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170126T2109010Z-549422-400@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170117 SUMMARY:Comment added to In Memory of Malia Kenney ~ January 4\, 2017 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180217;BYMONTHDAY=17 DESCRIPTION:I met Malia just a few months ago. She was such a joy to visit with. I had the opportunity to meet her parents as well... Read more at h ttps://cushingsbios.com/2017/01/04/in-memory-of-malia-kenney-january-4-201 7/ X-ALT-DESC;FMTTYPE=text/html:I met Malia just a few months ago. She was such a joy to visit with. I had the opportunity to meet her parents as wel l... \;
Read more at \;https ://cushingsbios.com/2017/01/04/in-memory-of-malia-kenney-january-4-2017/
CATEGORIES:Cushie Bios UID:20170207T1426120Z-549422-401@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170123 SUMMARY:Comment added to Kali\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180123;BYMONTHDAY=23 DESCRIPTION:Have you tried a ND? Naturopathic doctor. Mine did some alterna tive tests and treated the syndrome as a whole instead of what my medical doctor did... Read more at https://cushingsbios.com/2016/07/07/kali-undiag nosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Have you tried a ND? Naturopathic doctor. M ine did some alternative tests and treated the syndrome as a whole instead of what my medical doctor did...
Read more at \;htt ps://cushingsbios.com/2016/07/07/kali-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170126T2115340Z-549422-402@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170128 SUMMARY:Comment added to Help Advance Research for Better Cushing's Syndrom e Treatment RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180128;BYMONTHDAY=28 DESCRIPTION:I was also treated at NIH (almost 1 year ago)... Read more at h ttps://cushieblog.com/2016/06/23/help-advance-research-for-better-cushings -syndrome-treatment/ X-ALT-DESC;FMTTYPE=text/html:I was also treated at NIH (almost 1 year ago)...
Read more at \;https://cushieblog.com/2016/06/23/help-advance-res
earch-for-better-cushings-syndrome-treatment/
Because tumors within the skull cannot be p alpated\, researchers used Magnetic Resonance Elastography (MRE) to assess pituitary tumor stiffness by measuring waves transmitted through the skul l into pituitary macroadenomas (PMAs). MRE reliably identified tumors that were soft enough for removal with a minimally-invasive suction technique versus harder tumors requiring more invasive surgery.
Read more at \;https://cush ieblog.com/2017/01/28/imaging-technique-measures-tumor-stiffness-to-aid-su rgical-planning/
CATEGORIES:News Items UID:20170128T1357470Z-549422-404@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory of Missy Young ~ January 29\, 2017 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200129;BYMONTH=1;BYMONTHDAY=29 DTSTART;VALUE=DATE:20170129 DTEND;VALUE=DATE:20170130 DESCRIPTION:Missy had been a member of the online Cushing's community for a long time and was well known to many. Read more at https://cushingsbios.c om/2017/01/29/in-memory-of-missy-young-january-29-2017/ X-ALT-DESC;FMTTYPE=text/html:Missy had been a member of the online Cushi ng's community for a long time and was well known to many.
Read mo re at \;https://cushingsbios.com/2017/01 /29/in-memory-of-missy-young-january-29-2017/
CATEGORIES:In Memory UID:20170130T0011130Z-549422-405@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170129 SUMMARY:Metabolomic Biomarkers in Urine of Cushing’s Syndrome Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200129;BYMONTHDAY=29 DESCRIPTION:This follow-up study was conducted to determine which steroid m etabolites could serve as potential indicators of Cushing's Syndrome and p ossible subclinical hypercortisolism in patients diagnosed with so called non-functioning adrenal incidentalomas (AIs). Read more at https://cushieb log.com/2017/01/29/metabolomic-biomarkers-in-urine-of-cushings-syndrome-pa tients/ X-ALT-DESC;FMTTYPE=text/html:This follow-up study was conducted to deter mine which steroid metabolites could serve as potential indicators of Cush ing's Syndrome and possible subclinical hypercortisolism in patients diagn osed with so called non-functioning adrenal incidentalomas (AIs).
Read more at \;https: //cushieblog.com/2017/01/29/metabolomic-biomarkers-in-urine-of-cushings-sy ndrome-patients/
CATEGORIES:News Items UID:20170130T0036050Z-549422-406@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to Metabolomic Biomarkers in Urine of Cushing’s Syndr ome Patients DTSTART;VALUE=DATE:20170226 DTEND;VALUE=DATE:20170227 RRULE:FREQ=MONTHLY;UNTIL=20180130;BYDAY=-1SU DESCRIPTION:...I have not been diagnosed\, but I’m trying to learn all I ca n due to all the symptoms I have. Read more at https://cushieblog.com/2017 /01/29/metabolomic-biomarkers-in-urine-of-cushings-syndrome-patients/ X-ALT-DESC;FMTTYPE=text/html:...I have not been diagnosed\, but I&rsquo\ ;m trying to learn all I can due to all the symptoms I have.
Read more at \;https://cus hieblog.com/2017/01/29/metabolomic-biomarkers-in-urine-of-cushings-syndrom e-patients/
CATEGORIES:Cushie Bios UID:20170130T1811450Z-549422-407@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170130 SUMMARY:Comment added to Imaging Technique Measures Tumor Stiffness to Aid Surgical Planning RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180129;BYMONTHDAY=30 DESCRIPTION:...I may have Cushing’s\, but have not finished testing yet. Re ad more at https://cushieblog.com/2017/01/28/imaging-technique-measures-tu mor-stiffness-to-aid-surgical-planning/ X-ALT-DESC;FMTTYPE=text/html:...I may have Cushing&rsquo\;s\, but have n ot finished testing yet.
Read more at \;https://cushieblog.com/2017/01/28/imaging -technique-measures-tumor-stiffness-to-aid-surgical-planning/
CATEGORIES:Cushie Bios UID:20170130T1810180Z-549422-408@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Annette S (Annette)\, Undiagnosed Bio DTSTART;VALUE=DATE:20170227 DTEND;VALUE=DATE:20170228 RRULE:FREQ=MONTHLY;UNTIL=20180130;BYDAY=-1MO DESCRIPTION:Annette is from Chattanooga\, TN\, She has many Cushing's sympt oms but is not yet diagnosed. She was diagnosed as insulin resistant and as of recent was told she is not insulin resistant. Read more at https://c ushingsbios.com/2017/01/30/annette-s-annette-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Annette is from Chattanooga\, TN\, She has many Cushing's symptoms but is not yet diagnosed. \;She was diagnosed as insulin resistant and as of recent was told she is not insulin resista nt.
Read more at \;https://cushingsbios .com/2017/01/30/annette-s-annette-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170130T2339570Z-549422-409@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Cushie added to Our Cushing's World Map DTSTART;VALUE=DATE:20170206 DTEND;VALUE=DATE:20170207 RRULE:FREQ=WEEKLY;UNTIL=20170228;INTERVAL=2;BYDAY=MO DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and
diagnosis to our Cushing's World Map.
Helpful Doctor locations are b
eing added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&a mp\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20170130T2343100Z-549422-410@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to Annette S (Annette)\, Undiagnosed Bio DTSTART;VALUE=DATE:20170301 DTEND;VALUE=DATE:20170302 RRULE:FREQ=MONTHLY;UNTIL=20180201;BYDAY=1WE DESCRIPTION:...Those negative tests don't mean anything if she has many sym ptoms that warrant further searching. I have even less symptoms than the t extbook ones and my highs are few in comparison to my normal ones but enou gh to raise an eyebrow... Read more at https://cushingsbios.com/2017/01/30 /annette-s-annette-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...Those negative tests don't mean anything if she has many symptoms that warrant further searching. I have even less symptoms than the textbook ones and my highs are few in comparison to my normal ones but enough to raise an eyebrow...
Read more at \;< a href='https://cushingsbios.com/2017/01/30/annette-s-annette-undiagnosed- bio/' target='_blank'>https://cushingsbios.com/2017/01/30/annette-s-annett e-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170201T1445420Z-549422-411@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170201 SUMMARY:Pituitary Issues: Irregular Periods RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180201;BYMONTHDAY=1 DESCRIPTION:Q: I am 28 years old and I have not yet started my periods natu rally. I have to take medicine for periods — Novelon. The doctors say that there is some problem with my hormones in the pituitary gland. Please adv ise me how to get normal and natural periods\, because after taking the me dicine I get my period\, but without medicines I don’t. Read the answer at https://cushieblog.com/2017/02/01/pituitary-issues-irregular-periods/ X-ALT-DESC;FMTTYPE=text/html:Q: I am 28 years old and I have not yet sta rted my periods naturally. I have to take medicine for periods &mdash\;&nb sp\;Novelon. The doctors say that there is some problem with my hormones i n the pituitary gland. Please advise me how to get normal and natural peri ods\, because after taking the medicine I get my period\, but without \;medicines \;I don&rsquo\;t.
Read the answer at \;https://cushieblog.com/2017/02/01/pituitary-issues-irregula r-periods/
CATEGORIES:Other Medical UID:20170201T1626370Z-549422-412@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170518 SUMMARY:NIH Clinical Center DESCRIPTION:The Big Bang Theory’s Jim Parsons is set to narrate a three-par t docuseries 'First in Human: The Trials of Building 10' about the NIH Cli nical Center. The documentary series is scheduled to begin airing on Disco very May 18. X-ALT-DESC;FMTTYPE=text/html:The Big Bang Theory&rsquo\;s Jim Parsons is set to narrate a three-part docuseries 'First in Human: The Trials of Bui lding 10' about the NIH Clinical Center.
The documentary series is scheduled to begin airing on \;Discovery \; May 18.
CATEGORIES:Events and Meetings UID:20170201T1657200Z-549422-413@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Sophie M (Sophie)\, Pituitary Bio DTSTART;VALUE=DATE:20170302 DTEND;VALUE=DATE:20170303 RRULE:FREQ=MONTHLY;UNTIL=20180202;BYDAY=1TH DESCRIPTION:Sophie is from Caen\, France. She was recently diagnosed with Cushing's Disease but still needs some testing done. Read more at https:/ /cushingsbios.com/2017/02/02/sophie-m-sophie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Sophie is from Caen\, France. \; She w as recently diagnosed with Cushing's Disease but still needs some testing done.
Read more at \;https://cushingsbios.c om/2017/02/02/sophie-m-sophie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170202T1504290Z-549422-414@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Cushie added to Our Cushing's World Map DTSTART;VALUE=DATE:20170302 DTEND;VALUE=DATE:20170303 RRULE:FREQ=MONTHLY;UNTIL=20170205;BYDAY=1TH,3TH DESCRIPTION:Although the sample below is just the US\, our newest member ad ded her marker to Caen\, France. Add your location and diagnosis to ou r Cushing's World Map. Helpful Doctor locations are being added to this ma p\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend= 1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:Although the sample below is just the US\, our newest member added her marker to Caen\, France.
\;
\;
Add your location and diagnosis to our Cushing's
World Map.
Helpful Doctor locations are being added to this map\, as
well
See the Map at \;http://ww w.zeemaps.com/pub?group=342449&\;legend=1&\;locate=1&\;add=1< /p> CATEGORIES:Cushie Bios UID:20170206T0253310Z-549422-415@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Antonio Maria Valsalva was born in 1732 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200202;BYMONTH=2;BYMONTHDAY=2 DTSTART;VALUE=DATE:20000202 DTEND;VALUE=DATE:20000203 DESCRIPTION:Who knew that someone was credited with this? (1732) Italian an atomist Antonio Maria Valsalva was born. He is credited with developing th e Valsalva maneuver\, the process of trying to blow air out of your nose w hile it is plugged in order to clear the airways of the ears. X-ALT-DESC;FMTTYPE=text/html:
Who knew that someone was credited with thi s?
(1732) Italian anatomist Antonio Maria Valsalva was born. He is credited with developing the Valsalva maneuver\, the process of trying to blow air out of your nose while it is plugged in order to clear the airwa ys of the ears.
\;
\;
CATEGORIES:This Day in Medical History UID:20170202T1759260Z-549422-416@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Neurosurgeon and Otolaryngologist Team Up to Remove Tumor in Pituit ary Gland DTSTART;VALUE=DATE:20170304 DTEND;VALUE=DATE:20170305 RRULE:FREQ=MONTHLY;UNTIL=20180204;BYDAY=1SA DESCRIPTION:After experiencing bad headaches and double vision\, Kris Johns on was diagnosed with a pituitary adenoma\, a tumor of the pituitary gland at the base of the brain. Loyola ENT surgeon Chirag Patel\, MD\, teamed u p with Video at https://cushieblog.com/2017/02/04/neurosurgeon-and-otolary ngologist-team-up-to-remove-tumor-in-pituitary-gland/ X-ALT-DESC;FMTTYPE=text/html:After experiencing bad headaches and double vision\, Kris Johnson was diagnosed with a pituitary adenoma\, a tumor of the pituitary gland at the base of the brain. Loyola ENT surgeon Chirag P atel\, MD\, teamed up with
CATEGORIES:News Items UID:20170506T1439420Z-549422-417@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Endoscopic Surgery on a Pituitary Adenoma DTSTART;VALUE=DATE:20170304 DTEND;VALUE=DATE:20170305 RRULE:FREQ=MONTHLY;UNTIL=20180204;BYDAY=1SA DESCRIPTION:In this video Dr. Theodosopoulos illustrates portions of an end oscopic resection of a pituitary adenoma. Watch the video at https://cushi eblog.com/2017/02/04/endoscopic-surgery-on-a-pituitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:In this \;video \;Dr. Theodosopoulo s illustrates portions of an endoscopic resection of a pituitary adenoma.< /p>
Watch the video at \;https://cush ieblog.com/2017/02/04/endoscopic-surgery-on-a-pituitary-adenoma/
CATEGORIES:News Items UID:20170506T1440030Z-549422-418@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170204 SUMMARY:Jenny\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180204;BYMONTHDAY=4 DESCRIPTION:(Golden Oldie) Jenny is from Minneapolis\, Minnesota. Her doct or referred her to an Endo and her appointment was be at the end of Januar y 2008. Read more at https://cushingsbios.com/2017/02/04/jenny-undiagnosed -bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Jenny is from Minneapolis\, Minnesota. \;Her doctor referred her to an Endo and her appointment w as be at the end of January 2008.
Read more at \;ht tps://cushingsbios.com/2017/02/04/jenny-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170204T1044010Z-549422-419@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Kandis\, Pituitary Bio DTSTART;VALUE=DATE:20170305 DTEND;VALUE=DATE:20170306 RRULE:FREQ=MONTHLY;UNTIL=20180205;BYDAY=1SU DESCRIPTION:(Golden Oldie) Kandis (Kandis) is from Frederick\, Maryland. S he had a transsphenoidal that was unsuccessful followed by a BLA (bilatera l adrenalectomy). Read more at https://cushingsbios.com/2017/02/05/kandis -pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Kandis (Kandis) is from Fred erick\, Maryland. \;She had a transsphenoidal that was unsuccessful f ollowed by a BLA (bilateral adrenalectomy). \;
Read more at&nb sp\;https://cushingsbios.com/2017/02/05/kandis-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170206T0239470Z-549422-420@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170205 SUMMARY:Lisa (Lisa)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180205;BYMONTHDAY=5 DESCRIPTION:Lisa is from New York. She is not yet diagnosed with Cushing' s but she has many symptoms\, hypothyroidism and a tiny adenoma on her lef t adrenal gland. Read more at https://cushingsbios.com/2017/02/05/lisa-lis a-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Lisa is from New York. \; She is not y et diagnosed with Cushing's but she has many symptoms\, hypothyroidism and a tiny adenoma on her left adrenal gland.
Read more at \;https://cushingsbios.com/2017/02/05/lisa-lisa-undiagnosed-bio/< /a>
CATEGORIES:Cushie Bios UID:20170206T0249210Z-549422-421@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170205 SUMMARY:New Cushie added to Cushing's World Map DESCRIPTION:Our newest member added her marker to New York. Add your lo cation and diagnosis to our Cushing's World Map. Helpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.co m/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:Our newest member added her marker to New Y ork.
\;
\;
Add your location and d
iagnosis to our Cushing's World Map.
Helpful Doctor locations are bei
ng added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1& \;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20170206T0252350Z-549422-422@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Kathleen (ForegoneLegacy)\, Pituitary Bio DTSTART;VALUE=DATE:20170306 DTEND;VALUE=DATE:20170307 RRULE:FREQ=MONTHLY;UNTIL=20180206;BYDAY=1MO DESCRIPTION:(Golden Oldie) Kathleen (ForegoneLegacy) is from Chambersburg\ , PA. She had two pituitary tumors removed 8/22/08 and she's still not fee ling any better. Over the last 10 years she has been Cushing's\, Lyme\, lu pus\, endometriosis\, sinus tachycardia\, fibromyalgia\, arthritis and ast hma. Read more at https://cushingsbios.com/2017/02/06/kathleen-foregoneleg acy-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) \;Kathleen (ForegoneLeg acy) is from Chambersburg\, PA. She had two pituitary tumors removed 8/22/ 08 and she's still not feeling any better. Over the last 10 years she has been Cushing's\, Lyme\, lupus\, endometriosis\, sinus tachycardia\, fibrom yalgia\, arthritis and asthma.
Read more at \;https://cushingsbios.com/2017/02/06/kathleen-foregonelegacy-pit uitary-bio/
CATEGORIES:Cushie Bios UID:20170206T1657140Z-549422-423@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170206 SUMMARY:8 Things You Should Know About Addison's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180206;BYMONTHDAY=6 DESCRIPTION:Addison's disease refers to an autoimmune disorder in which you r body attacks and destroys your adrenal glands. Read more at https://cus hieblog.com/2017/02/06/8-things-you-should-know-about-addisons-disease/ X-ALT-DESC;FMTTYPE=text/html:Addison's disease refers to an autoimmune d isorder in which your body attacks and destroys your adrenal glands. \ ;
Read more at \;https://cu shieblog.com/2017/02/06/8-things-you-should-know-about-addisons-disease/
CATEGORIES:Other Medical UID:20170206T1739460Z-549422-424@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Testimonial from Jayne DTSTART;VALUE=DATE:20170306 DTEND;VALUE=DATE:20170307 RRULE:FREQ=MONTHLY;UNTIL=20180206;BYDAY=1MO DESCRIPTION:I am hoping that a solution can be found to keep this website o pen. It has so much knowledge for so many undiagnosed cushies and holds to o many memories for me. No where else can I look to find 'In Memory' for a ll the cushie friends I've met and known for so many years... You have tou ched so many thousands of peoples lives with this site. Read more at https ://cushieblogger.com/testimonial/jayne/ X-ALT-DESC;FMTTYPE=text/html:I am hoping that a solution can be found to
keep this website open. It has so much knowledge for so many undiagnosed
cushies and holds too many memories for me. No where else can I look to fi
nd 'In Memory' for all the cushie friends I've met and known for so many y
ears...
You have touched so many thousands of peoples lives with this
site.
Read more at \;https://cushieblogger.com/testimonial/jayne /
CATEGORIES:Cushings UID:20170206T2254370Z-549422-425@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170207 SUMMARY:Stephanie (Stephanie)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180207;BYMONTHDAY=7 DESCRIPTION:Stephanie is from Fairbanks\, AK. She had her first transsphen oidal surgery in Aug 2016 that removed the bulk of the macroadema\, but th ere was still elevated cortisol and they found some cyst left. Just had th e second surgery January 2017 and still has symptoms of Cushing's Disease. Read more at https://cushingsbios.com/2017/02/07/stephanie-stephanie-pitu itary-bio/ X-ALT-DESC;FMTTYPE=text/html:Stephanie is from Fairbanks\, AK. \;Sh e had her first transsphenoidal surgery in Aug 2016 that removed the bulk of the macroadema\, but there was still elevated cortisol and they found s ome cyst left. Just had the second surgery January 2017 and still has symp toms of Cushing's Disease.
Read more at \;https://cushingsbios.com/2017/02/07/stephanie-stephanie-pituitary-bio/< /a>
CATEGORIES:Cushie Bios UID:20170207T1358140Z-549422-426@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170207 SUMMARY:New Member added to the Cushing's World Map DESCRIPTION:The latest member is from Fairbanks\, Alaska. Add your loca tion and diagnosis to our Cushing's World Map. Helpful Doctor locations ar e being added to this map\, as well See the Map at http://www.zeemaps.com/ pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:The latest member is from Fairbanks\, Alask a.
\;
\;
Add your location and dia
gnosis to our Cushing's World Map.
Helpful Doctor locations are being
added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&\; locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20170207T1359140Z-549422-427@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170207 SUMMARY:Comment added to Kathleen (ForegoneLegacy)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20170507;BYMONTHDAY=7 DESCRIPTION:...I’m 23 and had a pituitary tumor removed in November. I feel 100000x better even though it’s only been 3 months.... Read more at https ://cushingsbios.com/2017/02/06/kathleen-foregonelegacy-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:...I&rsquo\;m 23 and had a pituitary tumor removed in November. I feel 100000x better even though it&rsquo\;s only be en 3 months....
Read more at \;http s://cushingsbios.com/2017/02/06/kathleen-foregonelegacy-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170207T1425310Z-549422-428@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Pierre-Joseph Desault was born in 1738 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200206;BYMONTH=2;BYMONTHDAY=6 DTSTART;VALUE=DATE:20000206 DTEND;VALUE=DATE:20000207 DESCRIPTION:(1738) French anatomist and surgeon Pierre-Joseph Desault was b orn. Known as one of the leading surgeons of France in his time\, he devel oped a number of surgical instruments and introduced many improvements to surgical practises. X-ALT-DESC;FMTTYPE=text/html:(1738) French anatomist and surgeon Pierre- Joseph Desault was born. Known as one of the leading surgeons of France in his time\, he developed a number of surgical instruments and introduced m any improvements to surgical practises.
CATEGORIES:This Day in Medical History UID:20170208T0227430Z-549422-429@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Ulf Svante von Euler was born in 1905 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200207;BYMONTH=2;BYMONTHDAY=7 DTSTART;VALUE=DATE:20000207 DTEND;VALUE=DATE:20000208 DESCRIPTION:(1905) Swedish physiologist and pharmacologist Ulf Svante von E uler was born. He shared the 1970 Nobel Prize in Physiology or Medicine fo r his work on neurotransmitters and the role of noradrenaline. X-ALT-DESC;FMTTYPE=text/html:(1905) Swedish physiologist and pharmacolog ist Ulf Svante von Euler was born. He shared the 1970 Nobel Prize in Physi ology or Medicine for his work on neurotransmitters and the role of noradr enaline.
CATEGORIES:This Day in Medical History UID:20170208T0230000Z-549422-430@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170208 SUMMARY:Diagnosis and Treatment of Pituitary Adenomas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180208;BYMONTHDAY=8 DESCRIPTION:The primary treatment of Cushing disease (hypercortisolism due to ACTH-producing adenomas\, which is the cause in approximately 65% of th e cases of hypercortisolism) is adenoma resection and medical therapies in cluding ketoconazole\, mifepristone\, and pasireotide. Read more at https: //cushieblog.com/2017/02/08/diagnosis-and-treatment-of-pituitary-adenomas/ X-ALT-DESC;FMTTYPE=text/html:The primary treatment of Cushing disease (h ypercortisolism due to ACTH-producing adenomas\, which is the cause in app roximately 65% of the cases of hypercortisolism) is adenoma resection and medical therapies including ketoconazole\, mifepristone\, and pasireotide.
Read more at \;https://cushi eblog.com/2017/02/08/diagnosis-and-treatment-of-pituitary-adenomas/
CATEGORIES:Cushings UID:20170208T1512210Z-549422-431@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Jules\, Pituitary Bio DTSTART;VALUE=DATE:20170308 DTEND;VALUE=DATE:20170309 RRULE:FREQ=MONTHLY;UNTIL=20180208;BYDAY=2WE DESCRIPTION:(Golden Oldie) Jules (Jules) is from Broussard\, Louisiana. She had a duodenal ulcer at age 10 and was been diagnosed with hypothyroidism . An MRI revealed a pituitary tumor. Read more at https://cushingsbios.com /2017/02/08/jules-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Jules (Jules) is from Brouss ard\, Louisiana. She had a duodenal ulcer at age 10 and was been diagnosed with hypothyroidism. An MRI revealed a pituitary tumor.
Read more at \;https://cushingsbios.com/2017/02/08/jules-pituitary-bio /
CATEGORIES:Cushie Bios UID:20170208T1553110Z-549422-432@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Hair Test for Cushing Syndrome? DTSTART;VALUE=DATE:20170309 DTEND;VALUE=DATE:20170310 RRULE:FREQ=MONTHLY;UNTIL=20180209;BYDAY=2TH,5TH DESCRIPTION:'As a potential solution to the limitations of these tests\, ha ir cortisol has been increasingly studied as an additional means to diagno se patients with Cushing Syndrome. Much like hemoglobin A1C is a longitudi nal marker of blood glucose levels\, hair cortisol can be a measure of the body's glucocorticoid levels over the previous several weeks to months.' Read more at https://cushieblog.com/2017/02/09/hair-test-for-cushing-syndr ome/ X-ALT-DESC;FMTTYPE=text/html:'As a potential solution to the limitations of these tests\, hair cortisol has been increasingly studied as an additi onal means to diagnose patients with Cushing Syndrome. Much like hemoglobi n A1C is a longitudinal marker of blood glucose levels\, hair cortisol can be a measure of the body's glucocorticoid levels over the previous severa l weeks to months.'
Read more at \;https://c ushieblog.com/2017/02/09/hair-test-for-cushing-syndrome/
CATEGORIES:Cushings UID:20170209T2048490Z-549422-433@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170210 SUMMARY:Elizabeth\, Pituitary/Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180210;BYMONTHDAY=10 DESCRIPTION:(Golden Oldie) Elizabeth has been diagnosed with both an adrena l tumor and a pituitary tumor but she hadhttps://cushingsbios.com/2017/02/ 10/elizabeth-pituitaryadrenal-bio/ not yet been diagnosed with Cushing's. Read more at X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Elizabeth has been diagnosed with both an adrenal tumor and a pituitary tumor but she hadhttps://cushingsbios.com/2017/02/10/elizabeth-pituitaryadrenal-bio/ not yet been diagnosed with Cushing's.
Read more at \;
CATEGORIES:Cushie Bios UID:20170210T2321150Z-549422-434@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170215 SUMMARY:What You Should Know About Pituitary Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200215;BYMONTHDAY=15 DESCRIPTION:Treatments may include surgery\, radiation therapy or medicatio n. Transsphenoidal surgery is surgery performed through the nose and sphen oid sinus (located in the very back part of the nose\, just beneath the ba se of the brain) to remove a pituitary tumor. It can be performed with an endoscope\, microscope or both and is a team effort between neurosurgeons and ear\, nose and throat (otolaryngology/ENT) surgeons. Radiation therapy uses high-energy x-rays to kill the tumor cells and is recommended when s urgery is not an option\, if the pituitary tumor remains\, or if the tumor causes symptoms that are not relieved by medicine. Read more at https://c ushieblog.com/2017/02/15/what-you-should-know-about-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:Treatments may include surgery\, \;radi ation therapy or medication. Transsphenoidal \;surgery is surgery perf ormed through the nose \;and sphenoid sinus (located in the very back& nbsp\;part of the nose\, just beneath the base of the \;brain) to remo ve a pituitary tumor. It can be \;performed with an endoscope\, micros cope or \;both and is a team effort between neurosurgeons \;and ea r\, nose and throat (otolaryngology/ENT) \;surgeons. Radiation therapy uses high-energy \;x-rays to kill the tumor cells and is recommended& nbsp\;when surgery is not an option\, if the pituitary \;tumor remains \, or if the tumor causes \;symptoms that are not relieved by medicine .
Read more at \;https://cushie blog.com/2017/02/15/what-you-should-know-about-pituitary-tumors/
CATEGORIES:Cushings UID:20170215T1126370Z-549422-435@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:An Amusing Look At Hormones And The Pituitary Gland DTSTART;VALUE=DATE:20170315 DTEND;VALUE=DATE:20170316 RRULE:FREQ=MONTHLY;UNTIL=20200215;BYDAY=3WE DESCRIPTION:A moment in the scheming mind of Professor Pituitary and his si dekick\, Dr. Hypothalamus!! And... their minions\, the Hormonal Kitties! V iew the video at https://cushieblog.com/2017/02/15/an-amusing-look-at-horm ones-and-the-pituitary-gland/ X-ALT-DESC;FMTTYPE=text/html:A moment in the scheming mind of Professor Pituitary and his sidekick\, Dr. Hypothalamus!! And... their minions\, the Hormonal Kitties!
View the video at \;https://cushieblog.com/2017/02/15/an-amusing-look-at-hormo nes-and-the-pituitary-gland/
CATEGORIES:Other Medical UID:20170215T1554420Z-549422-436@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170215 SUMMARY:Register for Webinar: Advances in Pituitary Surgery DESCRIPTION:After registering you will receive a confirmation email with de tails about joining the webinar. More information at https://cushieblogger .com/2017/02/15/webinar-advances-in-pituitary-surgery/ X-ALT-DESC;FMTTYPE=text/html:After registering you will receive a confir mation email with details about joining the webinar.
More informat ion at \;https://cushieblogger.com/2017/02 /15/webinar-advances-in-pituitary-surgery/
CATEGORIES:Events and Meetings UID:20170215T1611460Z-549422-437@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20170216T160000 DTEND;TZID=America/New_York:20170216T170000 SUMMARY:Webinar: Advances in Pituitary Surgery DESCRIPTION:Webinar Objectives: 1. Understand the advantages of the endosco pic approach to the pituitary 2. Recognize limitations of modern pituitary surgery 3. Understand techniques for avoiding complications X-ALT-DESC;FMTTYPE=text/html:1. Understand
the advantages of the endoscopic approach to the pituitary
2. Recogn
ize limitations of modern pituitary surgery
3. Understand techniques
for avoiding complications
(1822) English psychologist and statisticia n Francis Galton was born. He was the first to apply statistical methods t o research and to collect information through surveys and questionnaires.< /p> CATEGORIES:This Day in Medical History UID:20170217T2303390Z-549422-439@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170218 SUMMARY:Mandy\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180218;BYMONTHDAY=18 DESCRIPTION:(Golden Oldie) Mandy is from Southend on Sea\, England. She ha d several diagnoses and had seen a vast array of medical personnel. She w as diagnosed with PCOS but not yet with Cushing's. Read more at https://cu shingsbios.com/2017/02/18/mandy-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:
(Golden Oldie) Mandy is from Southend on Se a\, England. \;She had several diagnoses and had seen a vast array of medical personnel. \;She was diagnosed with PCOS but not yet with Cu shing's.
Read more at \;https://cushingsbios.com/20 17/02/18/mandy-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170218T1149020Z-549422-440@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170219 SUMMARY:Necessary Silence\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180219;BYMONTHDAY=19 DESCRIPTION:Necessary Silence is from the UK. She is not yet diagnosed wit h Cushing's but has many symptoms. She is keeping a video series on Youtu be called Medical Adventures. Read more at https://cushingsbios.com/2017/0 2/19/necessary-silence-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Necessary Silence is from the UK. \;Sh e is not yet diagnosed with Cushing's but has many symptoms. \;She is keeping a video series on Youtube called Medical Adventures.
Read more at \;https://cushingsbios.com/2017/02/19/ necessary-silence-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170220T0025220Z-549422-441@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170220 SUMMARY:Happy President's Day! DESCRIPTION:http://www.maryo.co/presidents-day/ X-ALT-DESC;FMTTYPE=text/html:http://www.maryo.co/presidents-day/
CATEGORIES:Holiday UID:20170220T1500090Z-549422-442@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy Cherry Pie Day! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200220;BYMONTH=2;BYMONTHDAY=20 DTSTART;VALUE=DATE:20000220 DTEND;VALUE=DATE:20000221 DESCRIPTION: More about Cherry Pie day at http://www.maryo.co/presidents-d ay/ X-ALT-DESC;FMTTYPE=text/html:
& nbsp\;
More about Cherry Pie day at \;http://www.maryo.co/presidents-day/< /a>
CATEGORIES:Holiday UID:20170220T1503000Z-549422-443@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Elizabeth Holloway Marston was born in 1893 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200220;BYMONTH=2;BYMONTHDAY=20 DTSTART;VALUE=DATE:20000220 DTEND;VALUE=DATE:20000221 DESCRIPTION: (1893) American attorney and psychologist Elizabeth Holloway M arston was born. She is known for being an inspiration for the Wonder Woma n comics\, and for her contribution to the development of the systolic blo od pressure test. X-ALT-DESC;FMTTYPE=text/html:\;(1893) American attorney and psychol ogist Elizabeth Holloway Marston was born. She is known for being an inspi ration for the Wonder Woman comics\, and for her contribution to the devel opment of the systolic blood pressure test.
CATEGORIES:This Day in Medical History UID:20170222T0808570Z-549422-444@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Frederick Banting passed away in 1941 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200221;BYMONTH=2;BYMONTHDAY=21 DTSTART;VALUE=DATE:20000221 DTEND;VALUE=DATE:20000222 DESCRIPTION: (1941) Canadian medical scientist\, and physician Frederick Ba nting passed away. He shared the 1923 Nobel Prize in Medicine for his co-d iscovery of insulin. X-ALT-DESC;FMTTYPE=text/html:\;(1941) Canadian medical scientist\, and physician Frederick Banting passed away. He shared the 1923 Nobel Priz e in Medicine for his co-discovery of insulin.
CATEGORIES:This Day in Medical History UID:20170222T0810550Z-549422-445@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:John Michael Bishop was born in 1936 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200222;BYMONTH=2;BYMONTHDAY=22 DTSTART;VALUE=DATE:20000222 DTEND;VALUE=DATE:20000223 DESCRIPTION:(1936) American immunologist and microbiologist John Michael Bi shop was born. He shared the 1989 Nobel Prize in Physiology or Medicine fo r his research on how tumours can form as a result of mutated genes. X-ALT-DESC;FMTTYPE=text/html:(1936) American immunologist and microbiolo gist John Michael Bishop was born. He shared the 1989 Nobel Prize in Physi ology or Medicine for his research on how tumours can form as a result of mutated genes.
CATEGORIES:This Day in Medical History UID:20170223T2355540Z-549422-446@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for Advances in the Treatment of Pediatric Brain Tumors We binar DTSTART;VALUE=DATE:20170225 DTEND;VALUE=DATE:20170226 RRULE:FREQ=WEEKLY;UNTIL=20170307;BYDAY=SA DESCRIPTION:Sign up to join Johns Hopkins’ director of pediatric neurosurge ry Alan Cohen on Tuesday\, March 7\, from 7 to 8 p.m. ET for a free online seminar to learn more about the latest surgical treatment options for ped iatric brain tumors\, including minimally invasive techniques. Read more at https://cushieblogger.com/2017/02/25/advances-in-the-treatment-of-pedi atric-brain-tumors-webinar/ X-ALT-DESC;FMTTYPE=text/html:Sign up to join Johns Hopkins&rsquo\; direc tor of pediatric neurosurgery Alan Cohen on Tuesday\, March 7\, from 7 to 8 p.m. ET for a free online seminar to learn more about the latest surgica l treatment options for pediatric brain tumors\, including minimally invas ive techniques.
\;
Read more at \;https://cushieblogger.com/2017/02/25/ad vances-in-the-treatment-of-pediatric-brain-tumors-webinar/
CATEGORIES:Events and Meetings UID:20170225T1715450Z-549422-447@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20170307T190000 DTEND;TZID=America/New_York:20170307T200000 SUMMARY:Advances in the Treatment of Pediatric Brain Tumors Webinar DESCRIPTION:Log in to Johns Hopkins’ director of pediatric neurosurgery Ala n Cohen on Tuesday\, March 7\, from 7 to 8 p.m. ET for a free online semin ar to learn more about the latest surgical treatment options for pediatric brain tumors\, including minimally invasive techniques. Read more at ht tps://cushieblogger.com/2017/02/25/advances-in-the-treatment-of-pediatric- brain-tumors-webinar/ X-ALT-DESC;FMTTYPE=text/html:Log in to \;Johns Hopkins&rsquo\; direc tor of pediatric neurosurgery Alan Cohen on Tuesday\, March 7\, from 7 to 8 p.m. ET for a free online seminar to learn more about the latest surgica l treatment options for pediatric brain tumors\, including minimally invas ive techniques.
\;
Read more at \;https://cushieblogger.com/2017/02/25/ad vances-in-the-treatment-of-pediatric-brain-tumors-webinar/
CATEGORIES:Events and Meetings UID:20170225T1717000Z-549422-448@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20170420T190000 DTEND;TZID=America/New_York:20170420T200000 SUMMARY:Webinar: Managing Menopause Matters DESCRIPTION:Learn from Wen Shen\, M.D.\, director of the Menopause Consulta tion Clinic\, about menopause symptoms and the latest treatment options. R ead more at https://maryomedical.com/2017/02/25/managing-menopause-matters / X-ALT-DESC;FMTTYPE=text/html:Learn from \;Wen Shen\, M.D.\, director of the Menopause Consultation Clin ic\, about menopause symptoms and the latest treatment options.
Re ad more at \;https://maryomedical.com/2017/02/25/manag ing-menopause-matters/
CATEGORIES:Events and Meetings UID:20170225T1744530Z-549422-449@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for Managing Menopause Matters Webinar DTSTART;VALUE=DATE:20170227 DTEND;VALUE=DATE:20170228 RRULE:FREQ=WEEKLY;UNTIL=20170421;BYDAY=MO DESCRIPTION:Learn from Wen Shen\, M.D.\, director of the Menopause Consulta tion Clinic\, about menopause symptoms and the latest treatment options. R ead more at https://maryomedical.com/2017/02/25/managing-menopause-matters / X-ALT-DESC;FMTTYPE=text/html:Learn from \;Wen Shen\, M.D.\, director of the Menopause Consultation Clin ic\, about menopause symptoms and the latest treatment options.
Re ad more at \;https://maryomedical.com/2017/02/25/manag ing-menopause-matters/
CATEGORIES:Events and Meetings UID:20170225T1746440Z-549422-450@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170226 SUMMARY:Kathleen (irishlass)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180226;BYMONTHDAY=26 DESCRIPTION:(Golden Oldie) Kathleen (irishlass) is from Wisconsin. She ha d a transsphenoidal pituitary resection December 5\, 2007. A recent MRI r evealed a good portion of the tumor remains. Read more at https://cushings bios.com/2017/02/26/kathleen-irishlass-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) \;Kathleen (irishlass) is from Wisconsin. \;She had a transsphenoidal pituitary resection De cember 5\, 2007. \;A recent MRI revealed a good portion of the tumor remains.
Read more at \;https://cushings bios.com/2017/02/26/kathleen-irishlass-pituitary-bio/
\;< /p> CATEGORIES:Cushie Bios UID:20170226T2223190Z-549422-451@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170227 SUMMARY:Meme's Brother-in-law\, Steroid-Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180227;BYMONTHDAY=27 DESCRIPTION:Meme's brother-in-law has had a lifetime of prednisone use due to chronic asthma. He has steroid induced (Iatrogenic) Cushing's. Read mor e at https://cushingsbios.com/2017/02/27/memes-brother-steroid-induced-bio / X-ALT-DESC;FMTTYPE=text/html:
Meme's brother-in-law has had a lifetime of prednisone use due to chronic asthma. He has steroid \;induced (Iatro genic) Cushing's.
Read more at \;https: //cushingsbios.com/2017/02/27/memes-brother-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20170227T2027500Z-549422-452@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170228 SUMMARY:Rare Disease Day 2017 DESCRIPTION:You are still able to participate in raising awareness of the d ay and be part of the change\, by sharing the video\, the poster\, or any Rare Disease Day material on your Facebook\, Twitter or other social media platforms. Read more at https://cushieblog.com/2017/02/28/rare-disease -day-2017/ X-ALT-DESC;FMTTYPE=text/html:You are still able to participate in raisin g awareness of the day and be part of the change\, by sharing the video\, the poster\, or \;an y Rare Disease Day material \;on your \;Facebook\, \;Twitter \;or other social media platfo rms. \;
\;
Read more at \;https://cu shieblog.com/2017/02/28/rare-disease-day-2017/
CATEGORIES:Events and Meetings UID:20170228T1555460Z-549422-453@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Rare Disease Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250228;BYMONTH=2;BYMONTHDAY=29 DTSTART;VALUE=DATE:20000229 DTEND;VALUE=DATE:20000301 DESCRIPTION:Each and every day since 1987\, I tell anyone who will listen a bout Cushing’s... Read more at https://cushingsbios.com/2021/02/28/rare-di sease-day-2021-maryo-pituitary-kidney-cancer-bio/ X-ALT-DESC;FMTTYPE=text/html:Each and every day since 1987\, I tell anyo ne who will listen about Cushing&rsquo\;s...
Read more at \;https://cushings bios.com/2021/02/28/rare-disease-day-2021-maryo-pituitary-kidney-cancer-bi o/
CATEGORIES:Events and Meetings UID:20240229T1553050Z-549422-454@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Charles Best was born in 1899 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200227;BYMONTH=2;BYMONTHDAY=27 DTSTART;VALUE=DATE:20000227 DTEND;VALUE=DATE:20000228 DESCRIPTION:(1899) Canadian medical scientist Charles Best was born. He was the co-creator of insulin. X-ALT-DESC;FMTTYPE=text/html:(1899) Canadian medical scientist Charles B est was born. He was the co-creator of insulin.
CATEGORIES:This Day in Medical History UID:20170228T2243200Z-549422-455@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170301 SUMMARY:Nancy (chance)\, Steroid-Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180301;BYMONTHDAY=1 DESCRIPTION:Nancy (chance) is from Olympia\, Washington. She has Iatrogenic (steroid-induced) Cushing's due to being on steroids for 30 years. She al so has Adrenal Insufficiency and a doctor told her to say she has Addison' s. Read more at https://cushingsbios.com/2017/03/01/nancy-chance-steroid-i nduced-bio/ X-ALT-DESC;FMTTYPE=text/html:Nancy (chance) is from Olympia\, Washington . She has Iatrogenic (steroid-induced) Cushing's due to being on steroids for 30 years. She also has Adrenal Insufficiency and a doctor told her to say she has Addison's.
Read more at \;ht tps://cushingsbios.com/2017/03/01/nancy-chance-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20170301T2039200Z-549422-456@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170302 SUMMARY:Cushing’s Disease Treatment Market to Witness an Outstanding Growth by 2017 – 2025 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180302;BYMONTHDAY=2 DESCRIPTION:Cushing’s disease treatment market revenue is growing with a st able growth rate\, this is attributed to increasing number of pipeline dru gs. Also increasing interest of pharmaceutical companies to develop Cushin g disease drugs is a major factor contributing to the revenue growth of Cu shing disease treatment market over the forecast period. Read more at htt ps://cushieblog.com/2017/03/02/cushings-disease-treatment-market-to-witnes s-an-outstanding-growth-by-2017-2025/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease treatment market r evenue is growing with a stable growth rate\, this is attributed to increa sing number of pipeline drugs. Also increasing \;interest \;of pha rmaceutical companies to develop Cushing disease drugs is a major factor c ontributing to the revenue growth of Cushing disease treatment market over the forecast period. \;
Read more at \;https://cushieblog.com/20 17/03/02/cushings-disease-treatment-market-to-witness-an-outstanding-growt h-by-2017-2025/
CATEGORIES:News Items UID:20170302T1528210Z-549422-457@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Testimonial from Crystal DTSTART;VALUE=DATE:20170403 DTEND;VALUE=DATE:20170404 RRULE:FREQ=MONTHLY;UNTIL=20180306;BYDAY=1MO DESCRIPTION:Thank you Mary O'Conner for your compassion and dedicated perso nal time for this site. I'm certain you have helped a large number of peop le. I am blessed to have discovered your site. Thank you for listening and responding to all inquiries. From the Cushing's Help message boards at h ttp://cushings.invisionzone.com/index.php?/topic/54166-the-heyday-of-these -boards-is-clearly-over/ X-ALT-DESC;FMTTYPE=text/html:Thank you Mary O'Conner for your compassion and dedicated personal time for this site. I'm certain you have helped a large number of people. I am blessed to have discovered your site. Thank y ou for listening and responding to all inquiries. \;
From the Cushing's Help message boards at \;http://cushings.invisionzone.com/in dex.php?/topic/54166-the-heyday-of-these-boards-is-clearly-over/
CATEGORIES:Cushings UID:20170306T2215280Z-549422-458@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170306 SUMMARY:A Stunning Woman Reveals The Devastating Secret Behind Her Weight G ain RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180306;BYMONTHDAY=6 DESCRIPTION:Vicki P first noticed she was gaining weight back in October 20 15. She has had two pituitary surgeries since then. Read more at https:// cushingsbios.com/2017/03/06/a-stunning-woman-reveals-the-devastating-secre t-behind-her-weight-gain/ X-ALT-DESC;FMTTYPE=text/html:Vicki P first noticed she was gaining weigh t back in October 2015. \;She has had two pituitary surgeries since t hen.
Read more at \;https://cushingsbios.com/2017/03/06/a-stunning-woman-rev eals-the-devastating-secret-behind-her-weight-gain/
CATEGORIES:Cushie Bios UID:20170306T2251340Z-549422-459@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Time to Sign Up for the Cushing's Awareness Challenge 2017 DTSTART;VALUE=DATE:20170308 DTEND;VALUE=DATE:20170309 RRULE:FREQ=WEEKLY;UNTIL=20170408;BYDAY=WE DESCRIPTION:Since April 8 is Cushing’s Awareness Day\, several people got t heir heads together to create the Sixth Annual Cushing’s Awareness Bloggin g Challenge. All you have to do is blog about something Cushing’s relate d for the 30 days of April. More info at https://cushieblogger.com/2017/ 03/08/time-to-sign-up-for-the-cushings-awareness-challenge-2017/ X-ALT-DESC;FMTTYPE=text/html:(1886) American chemist Edward Calvin Kenda ll was born. He shared the 1950 Nobel Prize for Physiology or Medicine for his work on the hormones of the adrenal glands and their structure and fu nction.
CATEGORIES:This Day in Medical History UID:20170309T2023040Z-549422-461@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170310 SUMMARY:Comment added to A Stunning Woman Reveals The Devastating Secret Be hind Her Weight Gain RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180310;BYMONTHDAY=10 DESCRIPTION:I had 2 surgeries also. That was 2002 and 2003. I still struggl e to loose weight... Read more at https://cushingsbios.com/2017/03/06/a-st unning-woman-reveals-the-devastating-secret-behind-her-weight-gain/ X-ALT-DESC;FMTTYPE=text/html:I had 2 surgeries also. That was 2002 and 2 003. I still struggle to loose weight...
Read more at \;https://cushingsbios .com/2017/03/06/a-stunning-woman-reveals-the-devastating-secret-behind-her -weight-gain/
CATEGORIES:Cushie Bios UID:20170310T2114130Z-549422-462@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170312 SUMMARY:Comment added to Lisa (Lisa)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180312;BYMONTHDAY=12 DESCRIPTION:...Saw a neuro-endocrinologist and wifey just got the official Cushings diagnosis last week. She had all of the same sysmptoms for years and progressively getting worse... Read more at https://cushingsbios.com/2 017/02/05/lisa-lisa-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...Saw a neuro-endocrinologist and wifey ju st got the official Cushings diagnosis last week. She had all of the same sysmptoms for years and progressively getting worse...
Read more a t \;https://cushingsbios.com/2017/02/05/lisa-lisa-undia gnosed-bio/
CATEGORIES:Cushie Bios UID:20170312T1352450Z-549422-463@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170313 SUMMARY:April (April)\, undiagnosed bio (PCOS) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180313;BYMONTHDAY=13 DESCRIPTION:(Golden Oldie) April (April) is from Jacksonville\, Florida. S he is not yet diagnosed with Cushing's but has a PCOS diagnosis. Read more at https://cushingsbios.com/2017/03/13/april-april-undiagnosed-bio-pcos/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) \;April (April) is from Jacksonville\, Florida. She is not yet diagnosed with Cushing's but has a PCOS diagnosis.
Read more at \;https:// cushingsbios.com/2017/03/13/april-april-undiagnosed-bio-pcos/
CATEGORIES:Cushie Bios UID:20170313T1611200Z-549422-464@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:The Cables1 Gene in Glucocorticoid Regulation of Pituitary Corticot rope Growth and Cushing Disease DTSTART;VALUE=DATE:20170411 DTEND;VALUE=DATE:20170412 RRULE:FREQ=MONTHLY;UNTIL=20180314;BYDAY=2TU,4TU DESCRIPTION:Cushing disease (CD) is due to pituitary corticotrope adenomas that produce unrestrained ACTH secretion and have lost the negative feedba ck exerted by glucocorticoids (GCs). Read more at https://cushieblog.com/2 017/03/14/the-cables1-gene-in-glucocorticoid-regulation-of-pituitary-corti cotrope-growth-and-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing disease (CD) is due to pituitary&nb sp\;corticotrope \;adenomas that produce unrestrained ACTH secretion a nd have lost the negative feedback exerted by glucocorticoids (GCs).
Read more at \;https://cushieblog.com/2017/03/14/the-ca bles1-gene-in-glucocorticoid-regulation-of-pituitary-corticotrope-growth-a nd-cushing-disease/
CATEGORIES:News Items UID:20170314T1104530Z-549422-465@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20170323T120000 DTEND;TZID=America/New_York:20170323T130000 SUMMARY:Webinar: Growth Hormone Replacement: Not Just for Kids? DESCRIPTION:Learn about the testing approaches for confirmation of growth h ormone deficiency in adult patients with pituitary disease and more. Read more at https://cushieblogger.com/2017/03/14/webinar-growth-hormone-replac ement-not-just-for-kids/ X-ALT-DESC;FMTTYPE=text/html:Learn about the testing approaches for conf irmation of growth hormone deficiency in adult patients with pituitary dis ease and more.
Read more at \;https://cushieblogger.com/2017/03/14/webinar-growth-hormone-rep lacement-not-just-for-kids/
CATEGORIES:Events and Meetings UID:20170314T1118500Z-549422-466@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for Webinar: Growth Hormone Replacement: Not Just for Kids ? DTSTART;VALUE=DATE:20170314 DTEND;VALUE=DATE:20170315 RRULE:FREQ=WEEKLY;UNTIL=20170323;BYDAY=TU DESCRIPTION:Learn about the testing approaches for confirmation of growth h ormone deficiency in adult patients with pituitary disease and more. Read more at https://cushieblogger.com/2017/03/14/webinar-growth-hormone-replac ement-not-just-for-kids/ X-ALT-DESC;FMTTYPE=text/html:Learn about the testing approaches for conf irmation of growth hormone deficiency in adult patients with pituitary dis ease and more.
Read more at \;https://cushieblogger.com/2017/03/14/webinar-growth-hormone-rep lacement-not-just-for-kids/
CATEGORIES:Events and Meetings UID:20170314T1120130Z-549422-467@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170314 SUMMARY:Jody (jodiann)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180314;BYMONTHDAY=14 DESCRIPTION:(Golden Oldie) Jody (jodiann) is from Tacoma\, Washington. Sh e was diagnosed with Cushing's syndrome about 12 years ago. She also was diagnosed with bliateral multinodular adrenal hyperplasia. Her mom died f rom complications from a bilateral adrenalectomy (BLA) in 1978. She had C ushing's syndrome with pheochromocytomas. Read more at https://cushingsbi os.com/2017/03/14/jody-jodiann-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) \;Jody (jodiann) is fro m Tacoma\, Washington. \;She was diagnosed with Cushing's syndrome ab out 12 years ago. \;She also was diagnosed with bliateral multinodula r adrenal hyperplasia. \;Her mom died from complications from a bilat eral adrenalectomy (BLA) in 1978. \;She had Cushing's syndrome with p heochromocytomas. \;
Read more at \;https:// cushingsbios.com/2017/03/14/jody-jodiann-adrenal-bio/
CATEGORIES:Cushie Bios UID:20170314T1210030Z-549422-468@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to “Kathleen (ForegoneLegacy)\, Pituitary Bio” DTSTART;VALUE=DATE:20170420 DTEND;VALUE=DATE:20170421 RRULE:FREQ=MONTHLY;UNTIL=20180316;BYDAY=3TH DESCRIPTION:thank you so much for sharing your journey through your surgery ! How are you feeling now? Read more at https://cushingsbios.com/2017/02/0 6/kathleen-foregonelegacy-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:thank you so much for sharing your journey through your surgery! How are you feeling now?
Read more at \; https://cushingsbios.com/2017/02/06/kathleen-fo regonelegacy-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170316T2019130Z-549422-469@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Raymond Vahan Damadian was born in 1936 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200316;BYMONTH=3;BYMONTHDAY=16 DTSTART;VALUE=DATE:20000316 DTEND;VALUE=DATE:20000317 DESCRIPTION:(1936) Armenian-American physician\, medical practitioner\, an d inventor Raymond Vahan Damadian was born. He invented the first magnetic resonance imaging (MRI) machine. X-ALT-DESC;FMTTYPE=text/html:(1936) \;Armenian-American physician\, medical practitioner\, and inventor Raymond Vahan Damadian was born. He i nvented the first magnetic resonance imaging (MRI) machine.
CATEGORIES:This Day in Medical History UID:20170316T2021180Z-549422-470@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170317 SUMMARY:Comment added to “Kathleen (ForegoneLegacy)\, Pituitary Bio” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180317;BYMONTHDAY=17 DESCRIPTION:From Kathleen: I feel SO much better\, I was 166lbs two days be fore my surgery on November 9th and today I am 125lbs almost back down to my normal weight! I still get a little tired... Read more at https://cushi ngsbios.com/2017/02/06/kathleen-foregonelegacy-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:From Kathleen: I feel SO much better\, I wa s 166lbs two days before my surgery on November 9th and today I am 125lbs almost back down to my normal weight! I still get a little tired...
< p>Read more at \;https://cushingsbios.com/2017/02/06/kathleen-foregone legacy-pituitary-bio/ CATEGORIES:Cushie Bios UID:20170317T1511230Z-549422-471@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy Saint Patricks Day! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200317;BYMONTH=3;BYMONTHDAY=17 DTSTART;VALUE=DATE:20000317 DTEND;VALUE=DATE:20000318 DESCRIPTION: Read more at http://www.maryo.co/saint-patricks-day-riverdanc e/ X-ALT-DESC;FMTTYPE=text/html:
\;
Read more at \;http://www.maryo.co/saint-patricks-day-riverdanc e/
CATEGORIES:Holiday UID:20170317T1514020Z-549422-472@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Happy First Day of Spring! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200320;BYMONTH=3;BYMONTHDAY=20 DTSTART;VALUE=DATE:20170320 DTEND;VALUE=DATE:20170321 DESCRIPTION: Read more at http://www.maryo.co/happy-spring/ X-ALT-DESC;FMTTYPE=text/html:
\;
Read more at \;http://www.maryo.co/happy-spring/
CATEGORIES:Holiday UID:20170320T1451550Z-549422-473@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170320 SUMMARY:New Testimonial from Susan (SDSather) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180320;BYMONTHDAY=20 DESCRIPTION:You have provided an invaluable service to many\, many people w ith Cushing's and other Cushing's-like diseases and syndromes... ...You ha ve been a pioneer in this field and you created an avenue for people to fi nd information\, when it was often withheld by the medical profession as p roprietary. Thank you so much for all you have done. Read more at https:// cushieblogger.com/testimonial/susan-sdsather/ X-ALT-DESC;FMTTYPE=text/html:You have provided an invaluable service to many\, many people with Cushing's and other Cushing's-like diseases and sy ndromes...
...You have been a pioneer in this field and you
created an avenue for people to find information\, when it was often withh
eld by the medical profession as proprietary. Thank you so much for all yo
u have done.
Read more at \;https://cushieblogger.com/te stimonial/susan-sdsather/
CATEGORIES:Cushings UID:20170320T1836540Z-549422-474@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170321 SUMMARY:Scalp Hair Cortisol Accurate in Cushing's Syndrome Diagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180321;BYMONTHDAY=21 DESCRIPTION:Scalp hair cortisol measurement is an accurate first-line diagn ostic test for Cushing’s syndrome in adults and offers several advantages over other first-line diagnostic procedures\, according to findings publis hed in the European Journal of Endocrinology. Read more at https://cushieb log.com/2017/03/21/scalp-hair-cortisol-accurate-in-cushings-syndrome-diagn osis/ X-ALT-DESC;FMTTYPE=text/html:Scalp hair cortisol measurement is an accur ate first-line diagnostic test for Cushing&rsquo\;s syndrome in adults and offers several advantages over other first-line diagnostic procedures\, a ccording to findings published in the \;European Journal of Endocr inology.
Read more at \;https://cushieblog.com/2017/03/21/scalp-hair-cortisol-accura te-in-cushings-syndrome-diagnosis/
CATEGORIES:Cushings UID:20170321T2035360Z-549422-475@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170322 SUMMARY:Suspecting Pituitary Disorders: “What's Next?” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180322;BYMONTHDAY=22 DESCRIPTION:In this '3 in 3' video\, Ji Hyun (CJ) Chun\, PA-C\, BC-ADM\, co vers 3 types of pituitary disorders and describes useful workups for use b y primary care clinicians. Read more at https://cushieblog.com/2017/03/22/ suspecting-pituitary-disorders-whats-next/ X-ALT-DESC;FMTTYPE=text/html:In this '3 in 3' video\, Ji Hyun (CJ) Chun\ , PA-C\, BC-ADM\, covers 3 types of pituitary disorders and describes usef ul workups for use by primary care clinicians.
Read more at \; https://cushieblog.com/2017/03/22/suspecting- pituitary-disorders-whats-next/
CATEGORIES:Cushings UID:20170322T1343270Z-549422-476@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Postoperative ACTH\, cortisol levels may predict Cushing’s disease remission rate DTSTART;VALUE=DATE:20170426 DTEND;VALUE=DATE:20170427 RRULE:FREQ=MONTHLY;UNTIL=20180322;BYDAY=4WE DESCRIPTION:Early and midterm nonremission after transsphenoidal surgery in people with Cushing’s disease may be predicted by normalized early postop erative values for adrenocorticotropic hormone and cortisol\, study data s how. Read more at http://wp.me/p3t4Te-Nm X-ALT-DESC;FMTTYPE=text/html:Early and midterm nonremission after transs phenoidal surgery in people with Cushing&rsquo\;s disease may be predicted by normalized early postoperative values for adrenocorticotropic hormone and cortisol\, study data show.
Read more at \;http://wp.me/p3t4Te-Nm
CATEGORIES:Cushings UID:20170322T1359090Z-549422-477@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Matt\, Undiagnosed Bio DTSTART;VALUE=DATE:20170426 DTEND;VALUE=DATE:20170427 RRULE:FREQ=MONTHLY;UNTIL=20180322;BYDAY=4WE DESCRIPTION:Matt is from Las Vegas\, NV. He has used inhalers for about 20 years and has developed several symptoms that sound like Cushing's. His doctors all dismiss the idea that the inhalers caused his problems. Read m ore at https://cushingsbios.com/2017/03/22/matt-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Matt is from Las Vegas\, NV. \;He has used inhalers for about 20 years and has developed several symptoms that s ound like Cushing's. \;His doctors all dismiss the idea that the inha lers caused his problems.
Read more at \;https://cus hingsbios.com/2017/03/22/matt-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170322T1410580Z-549422-478@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Cushie added to the Cushing's World Map DTSTART;VALUE=DATE:20170426 DTEND;VALUE=DATE:20170427 RRULE:FREQ=MONTHLY;UNTIL=20170422;BYDAY=4WE DESCRIPTION: Add your location and diagnosis to our Cushing's World Map. H elpful Doctor locations are being added to this map\, as well See the Map at http://www.zeemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and
diagnosis to our Cushing's World Map.
Helpful Doctor locations are b
eing added to this map\, as well
See the Map at \;http://www.zeemaps.com/pub?group=342449&\;legend=1&a mp\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20170322T1412210Z-549422-479@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:John Woodland Hastings was born in 1927 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200324;BYMONTH=3;BYMONTHDAY=24 DTSTART;VALUE=DATE:20000324 DTEND;VALUE=DATE:20000325 DESCRIPTION:(1927) American biochemist and academic John Woodland Hastings was born. He is known for his research in bioluminescence and circadian rh ythms. X-ALT-DESC;FMTTYPE=text/html:(1927) American biochemist and academic Joh n Woodland Hastings was born. He is known for his research in bioluminesce nce and circadian rhythms.
CATEGORIES:This Day in Medical History UID:20170325T1842320Z-549422-480@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170326 SUMMARY:Science Teacher Receives Support After Cushing’s Disease Diagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180326;BYMONTHDAY=26 DESCRIPTION:Kara Murrow was diagnosed with Cushing's Disease after medical professionals discovered a tumor on her pituitary gland. For six years\, s he experienced symptoms — including weight gain\, dizziness and headaches — but said doctors couldn’t determine the cause. Read more at https://cu shieblog.com/2017/03/26/science-teacher-receives-support-after-cushings-di sease-diagnosis/ X-ALT-DESC;FMTTYPE=text/html:Kara Murrow was diagnosed with Cushing's Di sease after medical professionals discovered a tumor on her pituitary glan d. For six years\, she experienced symptoms &mdash\; including weight gain \, dizziness and headaches &mdash\; but said doctors couldn&rsquo\;t deter mine the cause. \;
\;Read more at \;https://cushieblog.com/2017/03/26/scie nce-teacher-receives-support-after-cushings-disease-diagnosis/
CATEGORIES:Cushie Bios UID:20170327T1342340Z-549422-481@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Testimonial from Becca DTSTART;VALUE=DATE:20170430 DTEND;VALUE=DATE:20170501 RRULE:FREQ=MONTHLY;UNTIL=20170526;BYDAY=-1SU DESCRIPTION:thanks for blazing the path for cushing's patients. It never go es unnoticed how many people you have helped. From https://cushieblogger.c om/testimonial/becca/ X-ALT-DESC;FMTTYPE=text/html:thanks for blazing the path for cushing's p atients. It never goes unnoticed how many people you have helped.
From \;https://cushieblogger.com/testimonial/becca/
CATEGORIES:Cushings UID:20170326T2153470Z-549422-482@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Wilhelm Conrad Röntgen was born.in 1845 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200327;BYMONTH=3;BYMONTHDAY=27 DTSTART;VALUE=DATE:20000327 DTEND;VALUE=DATE:20000328 DESCRIPTION:(1845) German and Dutch mechanical engineer and physicist Wilhe lm Conrad Röntgen was born. He won the first Nobel Prize in Physics in 190 1 for producing electromagnetic radiation in a wavelength range known as X -rays. X-ALT-DESC;FMTTYPE=text/html:(1845) German and Dutch mechanical engineer and physicist Wilhelm Conrad Rö\;ntgen was born. He won the first Nob el Prize in Physics in 1901 for producing electromagnetic radiation in a w avelength range known as X-rays.
CATEGORIES:This Day in Medical History UID:20170327T2346230Z-549422-483@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness - Something *You* Can Do RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20180327;BYMONTH=3;BYMONTHDAY=27 DTSTART;VALUE=DATE:20170327 DTEND;VALUE=DATE:20170328 DESCRIPTION:Thank you for being willing to participate in giving a voice to Cushing’s Disease in recognition of April 8th - Cushing’s Awareness Day! Read more at http://cushings-help.com/news.htm X-ALT-DESC;FMTTYPE=text/html:Thank you for being willing to participate
in giving a voice to Cushing&rsquo\;s Disease in recognition of April 8th
-
Cushing&rsquo\;s Awareness Day!
Read more at \;http://c ushings-help.com/news.htm
CATEGORIES:Cushings UID:20170328T0040270Z-549422-484@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170401 SUMMARY:Cushing's Awareness Videos and Pictures due Today DESCRIPTION:Thank you for being willing to participate in giving a voice to Cushing’s Disease in recognition of April 8th - Cushing’s Awareness Day! Read more at http://cushings-help.com/news.htm X-ALT-DESC;FMTTYPE=text/html:Thank you for being willing to participate
in giving a voice to Cushing&rsquo\;s Disease in recognition of April 8th
-
Cushing&rsquo\;s Awareness Day!
Read more at \;http://cushings-help.c om/news.htm
CATEGORIES:Cushings UID:20170328T0041300Z-549422-485@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge: 2 Days to Go! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200329;BYMONTH=3;BYMONTHDAY=30 DTSTART;VALUE=DATE:20170330 DTEND;VALUE=DATE:20170331 DESCRIPTION:More information at https://cushieblogger.com/2017/03/08/time-t o-sign-up-for-the-cushings-awareness-challenge-2017/ X-ALT-DESC;FMTTYPE=text/html:
More in formation at \;https:/ /cushieblogger.com/2017/03/08/time-to-sign-up-for-the-cushings-awareness-c hallenge-2017/
CATEGORIES:Events and Meetings UID:20170329T1102590Z-549422-486@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge: It's Here! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300401;BYMONTH=4;BYMONTHDAY=1 DTSTART;VALUE=DATE:20170401 DTEND;VALUE=DATE:20170402 DESCRIPTION: Read the blog at https://cushieblogger.com X-ALT-DESC;FMTTYPE=text/html:
\;
Read the blog at \;https://cushieblogger.com
CATEGORIES:Awareness Challenge UID:20220401T1346500Z-549422-487@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge: One More Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200331;BYMONTH=3;BYMONTHDAY=31 DTSTART;VALUE=DATE:20170331 DTEND;VALUE=DATE:20170401 DESCRIPTION: X-ALT-DESC;FMTTYPE=text/html:
Nearly half of adults with Cushing&rsquo\;s disease that persists or recurs after surgical treatment require second a nd sometimes third therapeutic interventions\, including pituitary surgica l reintervention\, radiotherapy\, pharmacotherapy or bilateral adrenalecto my\, study data from Mexico show.
Read more at \;https://cushieblog.c om/2017/03/30/postsurgical-treatment-often-necessary-in-persistent-recurre nt-cushings-disease/
CATEGORIES:Cushings UID:20170331T0136400Z-549422-489@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170331 SUMMARY:imbolcgirl (imbolcgirl)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180331;BYMONTHDAY=31 DESCRIPTION:imbolcgirl (imbolcgirl) is from Ohio. She his not yet diagnosed with Cushing's but has many symptoms. Read more at https://cushingsbios.c om/2017/03/31/imbolcgirl-imbolcgirl-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:imbolcgirl (imbolcgirl) is from Ohio. She h is not yet diagnosed with Cushing's but has many symptoms.
Read mo re at \;https://cushingsbios.com/2017/03/31 /imbolcgirl-imbolcgirl-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170331T1616520Z-549422-490@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Interview Archive with Mary O’Connor aka MaryO\, Cushings-Help.com founder RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300408;BYMONTH=4;BYMONTHDAY=8 DTSTART;VALUE=DATE:20170408 DTEND;VALUE=DATE:20170409 DESCRIPTION:As part of this year’s Cushing’s Awareness Challenge\, I’ve dec ided to share our Interview Series again since there was lots of great inf o in there... Interview with Mary O’Connor (MaryO)\, founder of Cushings-H elp.com and 20-year pituitary Cushing’s Survivor. Robin (staticnrg) hosted . Read more at https://cushieblogger.com/2022/04/08/archived-interview-wit h-mary-oconnor-aka-maryo-cushings-help-com-founder-3/ X-ALT-DESC;FMTTYPE=text/html:As part of this year&rsquo\;s Cushing&rsquo
\;s Awareness Challenge\, I&rsquo\;ve decided to share our Interview Serie
s again since there was lots of great info in there...
Intervie
w with Mary O&rsquo\;Connor (MaryO)\, founder of Cushings-Help.com and 20-
year pituitary Cushing&rsquo\;s Survivor. Robin (staticnrg) hosted.
<
br />Read more at \;https://cushieblogger.com/2022/04/08/archived-interview-wit
h-mary-oconnor-aka-maryo-cushings-help-com-founder-3/
J (Gonzo) is from Michigan. She was misdiag nosed several times before 2001. J had an MRI that showed a 2-3 mm micro a denoma on her pituitary and she took Ketoconazole for several years.
Read more at \;https://cushingsbios.com/2017/04/01/j-pituitary -bio/
CATEGORIES:Cushie Bios UID:20170401T1334490Z-549422-492@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170401 SUMMARY:A Faster Way to Diagnose Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180401;BYMONTHDAY=1 DESCRIPTION:Diagnosing Cushing’s syndrome can take 24 hours of complicated and repeated analysis of blood and urine\, brain imaging\, and tissue samp les from sinuses. But that may soon be in the past: National Institutes of Health (NIH) researchers have found that measuring cortisol levels in hai r samples can do the same job faster. Read more at https://cushieblog.com/ 2017/04/01/a-faster-way-to-diagnose-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Diagnosing Cushing&rsquo\;s syndrome can ta ke 24 hours of complicated and repeated analysis of blood and urine\, brai n imaging\, and tissue samples from sinuses. But that may soon be in the p ast: National Institutes of Health (NIH) researchers have found that measu ring cortisol levels in hair samples can do the same job faster.
R ead more at \;https://cushieblog.com/201 7/04/01/a-faster-way-to-diagnose-cushings-syndrome/
CATEGORIES:Cushings UID:20170401T1435390Z-549422-493@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170401 SUMMARY:Adrenocortical carcinoma masquerading as Cushing's disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180401;BYMONTHDAY=1 DESCRIPTION:30% of the patients with Cushing's Syndrome have ACTH levels in the ‘grey zone’ (5–20 pg/mL)\, thereby posing a challenge in establishing the aetiological diagnosis. Read more at https://cushieblog.com/2017/04/ 01/adrenocortical-carcinoma-masquerading-as-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:30% of the patients with Cushing's Syndrome have ACTH levels in the &lsquo\;grey zone&rsquo\; (5&ndash\;20 pg/mL)\, t hereby posing a challenge in establishing the aetiological diagnosis. \;
Read more at \;https://cushieblog.com/2017/04/01/adrenocortical-carcinoma-masquerading-a s-cushings-disease/
CATEGORIES:News Items UID:20170401T1445310Z-549422-494@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Testimonial from msmuzikblog DTSTART;VALUE=DATE:20170506 DTEND;VALUE=DATE:20170507 RRULE:FREQ=MONTHLY;UNTIL=20180401;BYDAY=1SA DESCRIPTION:...i’m so thankful for you& your sharing your personal journey along with all the intel\, articles\, advice\, medical breakthroughs\, per sonal experiences anecdotal stories and more as I feel I have an Allie in this battle I’ve just begun & I felt completely alone until now- thanks to you Read more at https://cushieblogger.com/testimonial/msmuzikblog/ X-ALT-DESC;FMTTYPE=text/html:...i&rsquo\;m so thankful for you&\; you r sharing your personal journey along with all the intel\, articles\, advi ce\, medical breakthroughs\, personal experiences anecdotal stories and mo re as I feel I have an Allie in this battle I&rsquo\;ve just begun &\; I felt completely alone until now- thanks to you
Read more at \;https://cushieblogger.com/testimonial/msmuzikblog/
CATEGORIES:Cushings UID:20170401T1447550Z-549422-495@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Another Cushie Blogger DTSTART;VALUE=DATE:20170402 DTEND;VALUE=DATE:20170403 RRULE:FREQ=WEEKLY;UNTIL=20170430;BYDAY=SU DESCRIPTION:Danielle has joined the Cushings Awareness Challenge! Read he r blog at http://www.lifewithcushings.com/ X-ALT-DESC;FMTTYPE=text/html:Danielle has joined the Cushings Awareness Challenge!
\;
Read her blog at \;http://www.lifewithcushings.com /
CATEGORIES:Cushings UID:20170402T1249570Z-549422-496@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Blogging Challenge DTSTART;VALUE=DATE:20170507 DTEND;VALUE=DATE:20170508 RRULE:FREQ=WEEKLY;UNTIL=20170430;INTERVAL=2;BYDAY=SU DESCRIPTION:I remember the moment I realized something wasn't right. My mo m was taking me to the mall\, because none of my jeans fit me anymore. Sh e was talking about how she wished I would try to lose weight\, because sh e has been overweight most of her life\, and didn't want that for me. But \, I needed pants to wear to school\, so I bought another size up. I reme mber thinking\, nothing has changed. I didn't eat more\, or less\, I hadn 't stopped any activities. Maybe this was just my metabolism slowing down . Read more at http://www.lifewithcushings.com/ X-ALT-DESC;FMTTYPE=text/html:I remember the moment I realized something wasn't right. \;My mom was taking me to the mall\, because none of my jeans fit me anymore. \;She was talking about how she wished I would try to lose weight\, because she has been overweight most of her life\, a nd didn't want that for me. \;But\, I needed pants to wear to school\ , so I bought another size up. \;I remember thinking\, nothing has ch anged. \;I didn't eat more\, or less\, I hadn't stopped any activitie s. \;Maybe this was just my metabolism slowing down. \;
R ead more at \;http://www.lifewithcushings.com/
CATEGORIES:Cushie Bios UID:20170402T1301560Z-549422-497@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Blogging Challenge DTSTART;VALUE=DATE:20170401 DTEND;VALUE=DATE:20170402 RRULE:FREQ=WEEKLY;UNTIL=20170430;BYDAY=SA DESCRIPTION:I remember the moment I realized something wasn't right. My mo m was taking me to the mall\, because none of my jeans fit me anymore. Sh e was talking about how she wished I would try to lose weight\, because sh e has been overweight most of her life\, and didn't want that for me. But \, I needed pants to wear to school\, so I bought another size up. I reme mber thinking\, nothing has changed. I didn't eat more\, or less\, I hadn 't stopped any activities. Maybe this was just my metabolism slowing down . Read more at http://www.lifewithcushings.com/ X-ALT-DESC;FMTTYPE=text/html:I remember the moment I realized something wasn't right. \;My mom was taking me to the mall\, because none of my jeans fit me anymore. \;She was talking about how she wished I would try to lose weight\, because she has been overweight most of her life\, a nd didn't want that for me. \;But\, I needed pants to wear to school\ , so I bought another size up. \;I remember thinking\, nothing has ch anged. \;I didn't eat more\, or less\, I hadn't stopped any activitie s. \;Maybe this was just my metabolism slowing down. \;
R ead more at \;http://www.lifewithcushings.com/
CATEGORIES:Awareness Challenge UID:20170402T1308250Z-549422-498@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 1: Blogging with the Cushies\, featuring MaryO DTSTART;VALUE=DATE:20170506 DTEND;VALUE=DATE:20170507 RRULE:FREQ=WEEKLY;UNTIL=20170430;INTERVAL=2;BYDAY=SA DESCRIPTION:MaryO kicks off Cushing's Awareness Month with a blog post abou t a testing method that had been discussed for years but many of us haven' t been tested this way. Read more at https://cushieblogger.com/2017/04/02 /day-1-blogging-with-the-cushies-featuring-maryo/ X-ALT-DESC;FMTTYPE=text/html:MaryO kicks off Cushing's Awareness Month w ith a blog post about a testing method that had been discussed for years b ut many of us haven't been tested this way. \;
Read more at&nb sp\;https://cushieblogger.com/2017/0 4/02/day-1-blogging-with-the-cushies-featuring-maryo/
CATEGORIES:Awareness Challenge UID:20170402T1322240Z-549422-499@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 1: Blogging with the Cushies\, featuring Alicia and The EPIC Fo undation RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200430;BYMONTH=4;BYMONTHDAY=1 DTSTART;VALUE=DATE:20170401 DTEND;VALUE=DATE:20170402 DESCRIPTION:Have you checked out The Epic Foundation? I encourage you to do so. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017\, Karen deb uted EPIC. Read more at https://cushieblogger.com/2017/04/02/day-1-bloggi ng-with-the-cushies-featuring-alicia-and-the-epic-foundation/ X-ALT-DESC;FMTTYPE=text/html:Have you checked out The Epic Foundation? I encourage you to do so. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017\, Karen debuted EPIC. \;
Read more at \;https://cushieblogge r.com/2017/04/02/day-1-blogging-with-the-cushies-featuring-alicia-and-the- epic-foundation/
CATEGORIES:Awareness Challenge UID:20170407T1227170Z-549422-500@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170402 SUMMARY:Jennifer\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180402;BYMONTHDAY=2 DESCRIPTION:Jennifer (jqatar07) is from Doha\, Qatar. She is not yet diagno sed with Cushing's but has many symptoms. She has been diagnosed with hypo thyroidism and she takes Toprol XL for heart palpitations. She will see a Cushing's Expert in Dubai UAE in November. Jennifer updated her bio after seeing an endocrinologist in Dubai UAE. Two pituitary tumors were found an d the endo referred her to see Dr. Bill Ludlam. Read more at https://cushi ngsbios.com/2017/04/02/jennifer-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Jennifer (jqatar07) is from Doha\, Qatar. S he is not yet diagnosed with Cushing's but has many symptoms. She has been diagnosed with hypothyroidism and she takes Toprol XL for heart palpitati ons. She will see a Cushing's Expert in Dubai UAE in November. Jennifer up dated her bio after seeing an endocrinologist in Dubai UAE. Two pituitary tumors were found and the endo referred her to see Dr. Bill Ludlam.
< p>Read more at \;https://cushingsbios.com/2017/04/02/jen nifer-undiagnosed-bio/ CATEGORIES:Cushie Bios UID:20170402T1359240Z-549422-501@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Archived Interview: Symptoms and Diagnosis: Cushing’s Message Board Members RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300402;BYMONTH=4;BYMONTHDAY=2 DTSTART;VALUE=DATE:20180402 DTEND;VALUE=DATE:20180403 DESCRIPTION:Robin Smith (staticnrg) hosted as Cushing’s message board membe rs called in to talk about their fight for diagnosis and treatment. Robin opened the show with a brief explanation of what Cushing’s is and what the symptoms are. Read more at https://cushieblogger.com/2022/04/02/archived- interview-symptoms-and-diagnosis-cushings-message-board-members-3/ X-ALT-DESC;FMTTYPE=text/html:Robin Smith (staticnrg) hosted as Cushing&r squo\;s message board members called in to talk about their fight for diag nosis and treatment. Robin opened the show with a brief explanation of wha t Cushing&rsquo\;s is and what the symptoms are.
Read more at \;https:/ /cushieblogger.com/2022/04/02/archived-interview-symptoms-and-diagnosis-cu shings-message-board-members-3/
CATEGORIES:Events and Meetings UID:20220402T1918200Z-549422-502@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 2 DTSTART;VALUE=DATE:20170402 DTEND;VALUE=DATE:20170403 RRULE:FREQ=WEEKLY;UNTIL=20170430;BYDAY=SU DESCRIPTION:... me\, it is not about giving all the dirty details. It's ab out raising awareness\, providing support to others with chronic illness\, so they know they are not alone. It's about the person reading this blog \, that thinks they might have Cushing's\, who might get help a little soo ner than they would have without reading my story. It's for friends and f amily\, so they know what's going on in my life\, with my health\, without me having to tell the story over and over again... Read more at https://c ushieblogger.com/2017/04/02/cushings-awareness-challenge-day-2/ X-ALT-DESC;FMTTYPE=text/html:... me\, it is not about giving all the dir ty details. \;It's about raising awareness\, providing support to oth ers with chronic illness\, so they know they are not alone. \;It's ab out the person reading this blog\, that thinks they might have Cushing's\, who might get help a little sooner than they would have without reading m y story. \;It's for friends and family\, so they know what's going on in my life\, with my health\, without me having to tell the story over an d over again...
Read more at \;https: //cushieblogger.com/2017/04/02/cushings-awareness-challenge-day-2/
CATEGORIES:Awareness Challenge UID:20170402T2234380Z-549422-503@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170403 SUMMARY:Rachel\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180403;BYMONTHDAY=3 DESCRIPTION:Rachel is from Elgin\, Illinois. She is not yet diagnosed but has many symptoms. Her symptoms lead her to believe that she has Cushing ’s Syndrome\, Adrenal Fatigue\, or Pheochromocytoma\, or maybe a mixture o f all 3. She has had these symptoms for around 16 years\, Read more at htt ps://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Rachel is from Elgin\, Illinois. \;She is not yet diagnosed but has many symptoms. \;Her symptoms lead her to believe that \;she has Cushing&rsquo\;s Syndrome\, Adrenal Fatigue \, or Pheochromocytoma\, or maybe a mixture of all 3. She has had these sy mptoms for around 16 years\,
Read more at \;https: //cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170403T1237160Z-549422-504@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Longer-Acting Growth Hormones Promising for Adult GH Deficiency DTSTART;VALUE=DATE:20170501 DTEND;VALUE=DATE:20170502 RRULE:FREQ=MONTHLY;UNTIL=20180403;BYDAY=1MO DESCRIPTION:Two investigational long-acting growth-hormone (GH) replacement products hold potential for less frequent dosing and improved adherence a mong adult patients with proven growth-hormone deficiency. Read more at ht tps://cushieblog.com/2017/04/03/longer-acting-growth-hormones-promising-fo r-adult-gh-deficiency/ X-ALT-DESC;FMTTYPE=text/html:Two investigational long-acting \;growt h-hormone \;(GH) replacement products hold potential for less frequent dosing and improved adherence among adult patients with proven growth-hor mone deficiency.
Read more at \;https://cushieblog.com/2017/04/03/longer-acting-growt h-hormones-promising-for-adult-gh-deficiency/
CATEGORIES:News Items UID:20170403T1358110Z-549422-505@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 3 DTSTART;VALUE=DATE:20170501 DTEND;VALUE=DATE:20170502 RRULE:FREQ=WEEKLY;UNTIL=20170430;INTERVAL=2;BYDAY=MO DESCRIPTION:One of my least favorite things about my life with chronic illn ess is having imaging appointments. Whether it's my yearly brain MRI\, or a chest X-ray\, the whole process is uncomfortable\, and sometimes even p ainful... Read more at https://cushieblogger.com/2017/04/03/cushings-aware ness-challenge-day-3/ X-ALT-DESC;FMTTYPE=text/html:One of my least favorite things about my li fe with chronic illness is having imaging appointments. \;Whether it' s my yearly brain MRI\, or a chest X-ray\, the whole process is uncomforta ble\, and sometimes even painful...
Read more at \;https://cushieblogger.com/2017/04/03/cushings-awareness-chal lenge-day-3/
CATEGORIES:Awareness Challenge UID:20170403T1524330Z-549422-506@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170403 SUMMARY:Bimonthly Growth Hormone Injections to Replace Daily Injections? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180403;BYMONTHDAY=3 DESCRIPTION:At the Annual ENDO 2017 meeting in Orlando\, FL\, Moore et al p rovided an update on somavaratan\, the long acting recombinant human growt h hormone being investigated for children and adults with growth hormone d eficiency. Read more at https://cushieblog.com/2017/04/03/bimonthly-grow th-hormone-injections-to-replace-daily-injections/ X-ALT-DESC;FMTTYPE=text/html:At the Annual ENDO 2017 meeting in Orlando\
, FL\, Moore et al provided an update on \;somavaratan\, the \;lon
g acting \;recombinant human growth hormone being investigated for chi
ldren and adults with growth hormone deficiency.
\;
Read more at \;https:// cushieblog.com/2017/04/03/bimonthly-growth-hormone-injections-to-replace-d aily-injections/
CATEGORIES:News Items UID:20170404T0124430Z-549422-507@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Myths and Facts DTSTART;VALUE=DATE:20170501 DTEND;VALUE=DATE:20170502 RRULE:FREQ=WEEKLY;UNTIL=20170430;INTERVAL=2;BYDAY=MO DESCRIPTION:Shared from Dr. Karen Thames of The EPIC Foundation. Read more at https://cushieblogger.com/2017/04/03/cushings-myths-and-facts/ X-ALT-DESC;FMTTYPE=text/html:Shared from Dr. Karen Thames of The EPIC Fo undation.
Read more at \;https://cushieblogger. com/2017/04/03/cushings-myths-and-facts/
CATEGORIES:Awareness Challenge UID:20170404T0134360Z-549422-508@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Interview Archive with Judy\, mom to 2 Cushing’s Patients\, and her daughter Jess DTSTART;VALUE=DATE:20180501 DTEND;VALUE=DATE:20180502 RRULE:FREQ=MONTHLY;UNTIL=20300412;BYDAY=1TU DESCRIPTION:Interview with Judy\, the mother of two Cushing’s patients\, an d her daughter\, Jess\, a high school student with Cushing’s. Robin (stati cnrg) hosted. Read more at https://cushieblogger.com/2022/04/11/archived-i nterview-with-judy-mom-to-two-cushings-patients-and-her-daughter-jess-3/ X-ALT-DESC;FMTTYPE=text/html:Interview with Judy\, the mother of two Cus hing&rsquo\;s patients\, and her daughter\, Jess\, a high school student w ith Cushing&rsquo\;s. Robin (staticnrg) hosted.
Read more at \ ;h ttps://cushieblogger.com/2022/04/11/archived-interview-with-judy-mom-to-tw o-cushings-patients-and-her-daughter-jess-3/
CATEGORIES:Events and Meetings UID:20220411T2053110Z-549422-509@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 7: Cushing’s Awareness Challenge 2018 DTSTART;VALUE=DATE:20180505 DTEND;VALUE=DATE:20180506 RRULE:FREQ=MONTHLY;UNTIL=20190407;BYDAY=1SA DESCRIPTION:In Day 12 on April 12\, 2017\, I wrote about how we got the Cus hing's colors of blue and yellow. This post is going to be about the firs t Cushing's ribbons. Read more at https://cushieblogger.com/2018/04/07/day -7-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:In Day 12 on April 12\, 2017\, I wrote abou t how we got the Cushing's colors of blue and yellow. \;This post is going to be about the first Cushing's ribbons.
Read more at \; https://cushieblogger.com/2018/04/07/day-7-c ushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180407T1449340Z-549422-510@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Prednisolone May Raise Cholesterol in Adrenal Insufficiency DTSTART;VALUE=DATE:20170502 DTEND;VALUE=DATE:20170503 RRULE:FREQ=MONTHLY;UNTIL=20180404;BYDAY=1TU DESCRIPTION:Prednisolone treatment of patients with adrenal insufficiency i s associated with significantly elevated total-and low-density-lipoprotein (LDL) cholesterol levels compared with use of an alternative glucocortico id\, hydrocortisone\, new data suggest. Read more at https://cushieblog.co m/2017/04/04/prednisolone-may-raise-cholesterol-in-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Prednisolone treatment of patients with adr enal insufficiency is associated with significantly elevated \;total-a nd \;low-density-lipoprotein (LDL) cholesterol levels compared with&nb sp\;use \;of an alternative glucocorticoid\, hydrocortisone\, new data suggest.
Read more at \;https://cushieblog.com/2017/04/04/prednisolone-may-raise-cholest erol-in-adrenal-insufficiency/
CATEGORIES:News Items UID:20170404T1507340Z-549422-511@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 4 DTSTART;VALUE=DATE:20170404 DTEND;VALUE=DATE:20170405 RRULE:FREQ=WEEKLY;UNTIL=20170430;BYDAY=TU DESCRIPTION:I have often said\, I wish I had cancer instead. Most people w ould not understand this sentiment\, why in the world would you wish for s uch a horrible disease? It is another common thread tying people with chronic illness together. If my disease was cancer\, everyone would know w hat it was. I wouldn't be questioned by my boss when I called in sick. M y friends and family would be more supportive. My doctors wouldn't questi on my symptoms. Maybe my life would be easier. Read more at http://www .lifewithcushings.com/2017/04/cushings-awareness-challenge-day-4.html X-ALT-DESC;FMTTYPE=text/html:&ldquo\;The cortisone story originated at M ayo Clinic\, where I have been on staff for 33 years\,&rdquo\; Young told& nbsp\;Endocrine Today. \;&ldquo\;Although much of this story is not new information\, it is not familiar to the current generations of endocrine scientists and clinical endocrinologists. It is a story of disco very science\, clinical intuition\, persistence\, team science\, patient v olunteerism and sacrifice\, hopes\, and dreams.&rdquo\;
Read more at \;https://cushieblog.com/2017/04/04/history-of-c ortisones-discovery/
CATEGORIES:News Items UID:20170404T1524400Z-549422-513@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20180404 SUMMARY:Interview Archive with Jayne\, Ectopic Cushing’s Patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190404;BYMONTHDAY=4 EXDATE;VALUE=DATE:20190404 DESCRIPTION:Mary O’Connor (MaryO) hosted an interview with Jayne\, a Cushin g’s patient who had pituitary surgeries and a bilateral adrenalectomy befo re finding the true source of her ectopic Cushing’s. Read more at https:// cushieblogger.com/2018/04/04/interview-archive-with-jayne-ectopic-cushings -patient/ X-ALT-DESC;FMTTYPE=text/html:Mary O&rsquo\;Connor (MaryO) hosted an inte rview with Jayne\, a Cushing&rsquo\;s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopi c Cushing&rsquo\;s.
Read more at \;https://cushieblogger.com/2018/04/04/interview-archive-wi th-jayne-ectopic-cushings-patient/
CATEGORIES:Events and Meetings UID:20180404T2011260Z-549422-514@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing’s is RARE”\, “No one has Cushing’s! DTSTART;VALUE=DATE:20170404 DTEND;VALUE=DATE:20170405 RRULE:FREQ=WEEKLY;UNTIL=20170430;BYDAY=TU DESCRIPTION:Myth: “Cushing’s is RARE”\, “No one has Cushing’s!”\, “It is li terally impossible for you to have Cushing’s Disease!” Fact... Read more at https://cushieblogger.com/2017/04/04/cushings-is-rare-no-one-has-cushi ngs/ X-ALT-DESC;FMTTYPE=text/html:Myth: \;&ldquo\;Cushing&rsquo\;s is RAR E&rdquo\;\, &ldquo\;No one has Cushing&rsquo\;s!&rdquo\;\, &ldquo\;It is l iterally impossible for you to have Cushing&rsquo\;s Disease!&rdquo\;
\;
Fact...
Read more at \;https://cushieblogger.com/2017/04/04/cushings-is-rare-no-one-has-c ushings/
CATEGORIES:Awareness Challenge UID:20170404T2335160Z-549422-515@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 5 DTSTART;VALUE=DATE:20170405 DTEND;VALUE=DATE:20170406 RRULE:FREQ=WEEKLY;UNTIL=20170430;BYDAY=WE DESCRIPTION:Social media dominates most people's lives these days. You see what everyone you know is up to\, but the problem is\, most people only po st about the highlights of their lives. You don't get to see the low point s\, the every day struggles. You don't see what keeps them up at night wit h worry. Read more at http://www.lifewithcushings.com/2017/04/cushings-awa reness-challenge-day-5.html X-ALT-DESC;FMTTYPE=text/html:Social media dominates most people's lives these days. You see what everyone you know is up to\, but the problem is\, most people only post about the highlights of their lives.
You do n't get to see the low points\, the every day struggles. You don't see wha t keeps them up at night with worry.
Read more at \;http://www.lifewithcushings.com/2017/04/cushings-awa reness-challenge-day-5.html
CATEGORIES:Awareness Challenge UID:20170405T1324210Z-549422-516@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Osilodrostat maintained cortisol control in Cushing’s syndrome DTSTART;VALUE=DATE:20170503 DTEND;VALUE=DATE:20170504 RRULE:FREQ=MONTHLY;UNTIL=20180405;BYDAY=1WE DESCRIPTION:Osilodrostat\, a drug that normalized cortisol in 89% of patien ts with Cushing’s syndrome who took it during a phase II study\, continued to exert a sustained benefit during a 31-month extension phase. Read more at https://cushieblog.com/2017/04/05/osilodrostat-maintained-cortisol-con trol-in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Osilodrostat\, a drug that normalized corti sol in 89% of patients with Cushing&rsquo\;s syndrome who took it during a phase II study\, continued to exert a sustained benefit during a 31-month extension phase.
Read more at \;https://cushieblog.com/2017/04/05/osilodrostat-maintai ned-cortisol-control-in-cushings-syndrome/
CATEGORIES:News Items UID:20170405T2137540Z-549422-517@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20180405 SUMMARY:Archived Interview with Alicia\, a patient who is still testing RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250405;BYMONTHDAY=5 DESCRIPTION:Interview with Alicia\, a Cushing’s Message Board member who is still testing. Alicia writes “Around the end of my Junior year\, probably one of the worst things that could have happened during my 8 years of ill ness happened\, I had severe psychiatric symptoms at school\, including ps ychosis\, and was put on a “students in crisis” plan and sent home for a l ittle while. Being diagnosed as a “psych patient” would delay my diagnosis for years\, most doctors just considered me “crazy.” Read more at https:/ /cushieblogger.com/2019/04/05/archived-interview-with-alicia-a-patient-who -is-still-testing/ X-ALT-DESC;FMTTYPE=text/html:Interview with Alicia\, a Cushing&rsquo\;s Message Board member who is still testing. Alicia writes &ldquo\;Around th e end of my Junior year\, probably one of the worst things that could have happened during my 8 years of illness happened\, I had severe psychiatric symptoms at school\, including psychosis\, and was put on a &ldquo\;stude nts in crisis&rdquo\; plan and sent home for a little while. Being diagnos ed as a &ldquo\;psych patient&rdquo\; would delay my diagnosis for years\, most doctors just considered me &ldquo\;crazy.&rdquo\;
Read more at \;https://cushi eblogger.com/2019/04/05/archived-interview-with-alicia-a-patient-who-is-st ill-testing/
CATEGORIES:Events and Meetings UID:20190408T0731310Z-549422-518@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170406 SUMMARY:Growth Hormone Deficiency Following Complicated Mild Traumatic Brai n Injury RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180406;BYMONTHDAY=6 DESCRIPTION:Traumatic brain injury (“TBI”) is considered the main cause of hypopituitarism in adults and growth hormone (“GH”) deficiency is the most common pituitary deficit associated with TBI. Read more at https://cushie blog.com/2017/04/06/growth-hormone-deficiency-following-complicated-mild-t raumatic-brain-injury/ X-ALT-DESC;FMTTYPE=text/html:Traumatic brain injury (&ldquo\;TBI&rdq uo\;) \;is considered the main cause of hypopituitarism in adults and \;growth hormone (&ldquo\;GH&rdquo\;) \;deficiency i s the most common pituitary deficit associated with TBI.
Read more at \;h ttps://cushieblog.com/2017/04/06/growth-hormone-deficiency-following-compl icated-mild-traumatic-brain-injury/
CATEGORIES:News Items UID:20170406T1800070Z-549422-519@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:William Bate Hardy was born in 1864 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200406;BYMONTH=4;BYMONTHDAY=6 DTSTART;VALUE=DATE:20170406 DTEND;VALUE=DATE:20170407 DESCRIPTION:(1864) British biologist and food scientist William Bate Hardy was born. He studied biomedicine and was the first to suggest the word ‘ho rmone’. X-ALT-DESC;FMTTYPE=text/html:(1864) British biologist and food scientist William Bate Hardy was born. He studied biomedicine and was the first to suggest the word &lsquo\;hormone&rsquo\;.
CATEGORIES:This Day in Medical History UID:20170406T1802010Z-549422-520@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170406 SUMMARY:Cushing's Awareness Challenge - Day 6 DESCRIPTION:So\, I've changed the name of this blog. I've been thinking ab out it for a long time\, and Life with Cushing's didn't really make sense anymore. I don't have Cushing's at this time\, and Life with Chronic Illn ess is a more accurate phrase to describe my life. Of course\, this doesn 't change the fact that Cushing's is still a big part of my life\, and wil l continue to be a big part of my blog. Read more at http://www.lifewith cushings.com/2017/04/cushings-awareness-challenge-day-6.html X-ALT-DESC;FMTTYPE=text/html:So\, I've changed the name of this blog. &n bsp\;I've been thinking about it for a long time\, and Life with Cushing's didn't really make sense anymore. \;I don't have Cushing's at this t ime\, and Life with Chronic Illness is a more accurate phrase to describe my life. \;Of course\, this doesn't change the fact that Cushing's is still a big part of my life\, and will continue to be a big part of my bl og. \;
Read more at \;htt p://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-6.ht ml
CATEGORIES:Awareness Challenge UID:20170406T1807580Z-549422-521@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20180406 SUMMARY:Myths and Facts about Cushing’s: YOU are the problem and the reason … RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190406;BYMONTHDAY=6 DESCRIPTION:Myth: YOU are the problem and the reason for your cortisol leve ls. Having issues with too much or too little cortisol\, the stress hormon e\, means that YOU are stressing too much or are too anxious. “YOU could c ontrol your levels if you would JUST calm down!” Read the response at http s://cushieblogger.com/2018/04/06/myths-and-facts-about-cushings-you-are-th e-problem-and-the-reason/ X-ALT-DESC;FMTTYPE=text/html:Myth: \;YOU are the problem and the rea son for your cortisol levels. Having issues with too much or too little co rtisol\, the stress hormone\, means that YOU are stressing too much or are too anxious. &ldquo\;YOU could control your levels if you would JUST calm down!&rdquo\;
Read the response at \;https://cushieblogger.com/2018/04/06/myths -and-facts-about-cushings-you-are-the-problem-and-the-reason/
CATEGORIES:Awareness Challenge UID:20180406T1852230Z-549422-522@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Interview Archive: Mary O’Connor (MaryO) interviewed Robin Smith (s taticnrg) DTSTART;VALUE=DATE:20180504 DTEND;VALUE=DATE:20180505 RRULE:FREQ=MONTHLY;UNTIL=20190407;BYDAY=1FR DESCRIPTION:Robin had Cushing’s for over 20 years\, at least. Of course\, n o one figured it out or even put two and two together until her new PCP wh om Robin found in 2004 said “endocrine”. She didn’t figure it out\, either \, but at least Robin had a piece of the puzzle and Robin found www.cushin gs-help.com. Robin immediately went into denial and left for several month s until Robin got so sick Robin knew she had to… Read more at https://cush ieblogger.com/2018/04/06/interview-archive-mary-oconnor-maryo-interviewed- robin-smith-staticnrg/ X-ALT-DESC;FMTTYPE=text/html:Robin had Cushing&rsquo\;s for over 20 year s\, at least. Of course\, no one figured it out or even put two and two to gether until her new PCP whom Robin found in 2004 said &ldquo\;endocrine&r dquo\;. She didn&rsquo\;t figure it out\, either\, but at least Robin had a piece of the puzzle and Robin found \;www.cushings-help.com. Robin immediately wen t into denial and left for several months until Robin got so sick Robin kn ew she had to&hellip\;
Read more at \;https://cushieblogger.com/2018/04/06/ interview-archive-mary-oconnor-maryo-interviewed-robin-smith-staticnrg/
CATEGORIES:Events and Meetings UID:20180407T0124570Z-549422-523@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 7: Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300407;BYMONTH=4;BYMONTHDAY=7 DTSTART;VALUE=DATE:20170407 DTEND;VALUE=DATE:20170408 DESCRIPTION:As you can probably tell\, I spend a lot of my time at doctor's offices and hospitals. I always try to plan ahead and download books\, po dcasts\, and music onto my phone so I have things to do while commuting to and from\, and while waiting. Read more at https://cushieblogger.com/2022 /04/07/day-7-cushings-awareness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:As you can probably tell\, I spend a lot of my time at doctor's offices and hospitals. I always try to plan ahead and download books\, podcasts\, and music onto my phone so I have things to d o while commuting to and from\, and while waiting.
Read more at&nb sp\;https://cushieblogger.com /2022/04/07/day-7-cushings-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20250407T1223220Z-549422-524@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20180407 SUMMARY:Interview Archive with Karen N\, Cyclical Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190407;BYMONTHDAY=7 DESCRIPTION:Karen (Rooon55)\, February 21\, 2008. Karen’s disease started w hen she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s\, Thyroid disease\, GH deficiency\, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. Read m ore at https://cushieblogger.com/2018/04/07/interview-archive-with-karen- n-cyclical-cushings/ X-ALT-DESC;FMTTYPE=text/html:Karen (Rooon55)\, February 21\, 2008. Karen &rsquo\;s disease started when she was a little girl (7) and she finally g ot a diagnosis in 2005. She had cycling Cushing&rsquo\;s\, Thyroid disease \, GH deficiency\, and Auto immune Alopecia. She believes she is cured aft er two Pituitary surgeries.
Read more at \; https://cushieblogger.com/2018/04/07/interview-archiv e-with-karen-n-cyclical-cushings/
CATEGORIES:Events and Meetings UID:20180407T2221540Z-549422-525@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170410 SUMMARY:Comment added to Rachel\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180410;BYMONTHDAY=10 DESCRIPTION:... You mentioned you had an M.R.I. of your brain\, did you hap pen to have a pituitary M.R.I. (which is different and would better focus on the pituitary)? ACTH blood test? ACTH stimulation test? Have you had a workup for Cushing’s at all (24 hour UFC\, low dose dexamethasone suppresi on test\, and midnight salivary cortisol)?... Read more at https://cushin gsbios.com/2017/04/03/rachel-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:... You mentioned you had an M.R.I. of your
brain\, did you happen to have a pituitary M.R.I. (which is different and
would better focus on the pituitary)? ACTH blood test? ACTH stimulation t
est? Have you had a workup for Cushing&rsquo\;s at all (24 hour UFC\, low
dose dexamethasone suppresion test\, and midnight salivary cortisol)?...&n
bsp\;
Read more at \;https://cushingsbios.com/2
017/04/03/rachel-undiagnosed-bio/
The only potentially permanent treatment fo r Cushing's is surgery. \;Whether you have a pituitary tumor\, adrena l tumor\, or ectopic source of ACTH\, most often\, you will eventually nee d surgery.
Read more at \;http ://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-9.htm l
CATEGORIES:Awareness Challenge UID:20170410T1519210Z-549422-527@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 10 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200410;BYMONTH=4;BYMONTHDAY=10 DTSTART;VALUE=DATE:20170410 DTEND;VALUE=DATE:20170411 DESCRIPTION:Medications to treat Cushing's is a newly expanding option. Wh en I was diagnosed with Cushing's\, only about 7 years ago\, these new med ications were barely in trial phases... Read more at http://www.lifewithcu shings.com/2017/04/cushings-awareness-challenge-day-10.html X-ALT-DESC;FMTTYPE=text/html:Medications to treat Cushing's is a newly e xpanding option. \;When I was diagnosed with Cushing's\, only about 7 years ago\, these new medications were barely in trial phases...
Read more at \;http://www.lifewithcus hings.com/2017/04/cushings-awareness-challenge-day-10.html
CATEGORIES:Awareness Challenge UID:20170410T1522020Z-549422-528@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170408 SUMMARY:Myths and Facts about Cushing’s: Cushing’s Syndrome/Disease can be healed or cured RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300408;BYMONTHDAY=8 DESCRIPTION:Fact: NO! Caloric intake or lack of exercise has NO impact on w eight gain and/ or loss in persons with Cushing’s... Read more at https:// cushieblogger.com/2025/04/12/myth-after-a-cure-for-cushings-everyone-heals -and-goes-back-to-normal-2/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;NO! Caloric intake or lack of e xercise has NO impact on weight gain and/ or loss in persons with Cushing& rsquo\;s...
Read more at \;https://cushieblogger.com/2025/0 4/12/myth-after-a-cure-for-cushings-everyone-heals-and-goes-back-to-normal -2/
CATEGORIES:Cushings UID:20250412T2312580Z-549422-529@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Mary O’Connor (MaryO) second interview archive with Robin Smith (st aticnrg) DTSTART;VALUE=DATE:20170508 DTEND;VALUE=DATE:20170509 RRULE:FREQ=MONTHLY;UNTIL=20300413;BYDAY=2MO EXDATE;VALUE=DATE:20190408 DESCRIPTION:Robin had Cushing's for over 20 years\, at least. Of course\, n o one figured it out or even put two and two together until her new PCP wh om she found in 2004 said 'endocrine'. She didn't figure it out\, either\, but at least Robin had a piece of the puzzle and she found cushings-help. com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help. She had originally sought t his PCP because she had been going to all sorts of doctors. Read more at h ttps://cushieblogger.com/2022/04/13/mary-oconnor-maryo-second-archived-int erview-with-robin-smith-staticnrg-2/ X-ALT-DESC;FMTTYPE=text/html:Robin had Cushing's for over 20 years\, at least. Of course\, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said 'endocrine'. She didn't figu re it out\, either\, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for s everal months until she got so sick she knew she had to have help. She had originally sought this PCP because she had been going to all sorts of doc tors.
Read more at \;https://cushieblogger.com/2022/04/13 /mary-oconnor-maryo-second-archived-interview-with-robin-smith-staticnrg-2 /
CATEGORIES:Events and Meetings UID:20230816T1249140Z-549422-530@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170409 SUMMARY:Interview Archive: JenS discussed Bilateral Adrenalectomy (BLA) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300409;BYMONTHDAY=9 EXDATE;VALUE=DATE:20190409 DESCRIPTION:Jen had Pituitary surgery by Dr. Shahinian 4/28/04\, removed AC TH secreting corticotroph hyperplasia and prolactinoma. Read more at https ://cushieblogger.com/2022/04/09/archived-interview-jens-discussed-bilatera l-adrenalectomy-bla-3/ X-ALT-DESC;FMTTYPE=text/html:Jen had Pituitary surgery by Dr. Shahinian 4/28/04\, removed ACTH secreting corticotroph hyperplasia and prolactinoma .
Read more at \;https://cushieblogger.com/2022/04/09/archived-interview-jens-disc ussed-bilateral-adrenalectomy-bla-3/
CATEGORIES:Events and Meetings UID:20220409T1619220Z-549422-531@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170408 SUMMARY:SPECIAL Archived Cushing’s Awareness Day Voice Chat! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300408;BYMONTHDAY=8 DESCRIPTION:Listen as Jayne Kerns and Robin Smith (staticnrg) hosted a Cush ing’s Awareness Day Special Chat. Read more at https://cushieblogger.com/2 022/04/08/archived-cushings-awareness-day-voice-chat-2/ X-ALT-DESC;FMTTYPE=text/html:Listen as Jayne Kerns and Robin Smith (stat icnrg) hosted a Cushing&rsquo\;s Awareness Day Special Chat.
Read more at \;https://cushieblogger.com /2022/04/08/archived-cushings-awareness-day-voice-chat-2/
CATEGORIES:Events and Meetings UID:20220408T2005500Z-549422-532@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170410 SUMMARY:Cushing’s Myths and Facts: “All types of Cushing’s are the same” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300410;BYMONTHDAY=10 DESCRIPTION:There are many genetic varieties with quite a few discovered in the past couple of years. Plus\, there are several types such as adrenal\ , ectopic\, and pituitary. And so on... Read more at https://cushieblogger .com/2025/04/10/cushings-myths-and-facts-all-types-of-cushings-are-the-sam e/ X-ALT-DESC;FMTTYPE=text/html:There are many genetic varieties with quite a few discovered in the past couple of years. Plus\, there are several ty pes such as adrenal\, ectopic\, and pituitary. And so on...
Read m ore at \;https://cushieblogger.com/2025/04/10/cushings-myths-and-facts-all-type s-of-cushings-are-the-same/
CATEGORIES:Cushings UID:20250411T0808520Z-549422-533@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Bernardo Houssay was born in 1887 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200410;BYMONTH=4;BYMONTHDAY=10 DTSTART;VALUE=DATE:20170410 DTEND;VALUE=DATE:20170411 DESCRIPTION: (1887) Argentine physiologist Bernardo Houssay was born. He sh ared the 1947 Nobel Prize for Physiology or Medicine for his discovery of the role of pituitary hormones in the regulation of blood sugar. X-ALT-DESC;FMTTYPE=text/html:\;(1887) Argentine physiologist Bernar do Houssay was born. He shared the 1947 Nobel Prize for Physiology or Medi cine for his discovery of the role of pituitary hormones in the regulation of blood sugar.
CATEGORIES:This Day in Medical History UID:20170410T2304400Z-549422-534@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 11 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200411;BYMONTH=4;BYMONTHDAY=11 DTSTART;VALUE=DATE:20170411 DTEND;VALUE=DATE:20170412 DESCRIPTION:There are a lot of expectations when you are finally treated or cured from Cushing's. It can be harder than having Cushing's\, or it mig ht be a breeze. Here's what I experienced after my BLA. Read more at http ://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-11.ht ml X-ALT-DESC;FMTTYPE=text/html:There are a lot of expectations when you ar e finally treated or cured from Cushing's. \;It can be harder than ha ving Cushing's\, or it might be a breeze. \;Here's what I experienced after my BLA.
Read more at \;http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day- 11.html
CATEGORIES:Awareness Challenge UID:20170411T1322100Z-549422-535@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170412 SUMMARY:Archived Interview: Cushing’s Diagnosis and Symptoms\, part 2 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300412;BYMONTHDAY=12 DESCRIPTION:Listen as Robin Smith (staticnrg) and Mary O’Connor (MaryO) co- host Cushing’s message board members calling in to talk about their fight for diagnosis and treatment. The show will be opened with a brief explanat ion of what Cushing’s is and what the symptoms are. Listen at https://cush ieblogger.com/2022/04/12/archived-interview-cushings-diagnosis-and-symptom s-part-2-2/ X-ALT-DESC;FMTTYPE=text/html:Listen as Robin Smith (staticnrg) and Mary O&rsquo\;Connor (MaryO) co-host Cushing&rsquo\;s message board members cal ling in to talk about their fight for diagnosis and treatment. The show wi ll be opened with a brief explanation of what Cushing&rsquo\;s is and what the symptoms are.
Listen at \;https://cushieblogger.com/2022/04/12/archived-interview -cushings-diagnosis-and-symptoms-part-2-2/
CATEGORIES:Events and Meetings UID:20220413T1233290Z-549422-536@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170412 SUMMARY:Archived Interview: Karen Nolan\, Cyclic Cushing’s\, part 2 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250412;BYMONTHDAY=12 DESCRIPTION:Karen’s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing’s\, Thyroid disea se\, GH deficiency\, and Auto immune Alopecia. She believes she is cured a fter two Pituitary surgeries. A doctor didn’t advise Vermont’s Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing’s disease – another Cushing’s patie nt did. Read more at https://cushieblogger.com/2019/04/12/archived-inter view-karen-nolan-cyclic-cushings-part-2/ X-ALT-DESC;FMTTYPE=text/html:Karen&rsquo\;s disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cyclin g Cushing&rsquo\;s\, Thyroid disease\, GH deficiency\, and Auto immune Alo pecia. She believes she is cured after two Pituitary surgeries. A doctor d idn&rsquo\;t advise Vermont&rsquo\;s Karen Nolan (Rooon on the boards) tha t she might be one of the scant 3.5 per million people diagnosed annually with Cushing&rsquo\;s disease &ndash\; another Cushing&rsquo\;s patient di d.
\;
Read more at \;https://cushieblogger.com/2019/04/12/archived-interview-ka ren-nolan-cyclic-cushings-part-2/
CATEGORIES:Events and Meetings UID:20190413T1318000Z-549422-537@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 12 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200412;BYMONTH=4;BYMONTHDAY=12 DTSTART;VALUE=DATE:20170412 DTEND;VALUE=DATE:20170413 DESCRIPTION:One of the most common symptoms of Cushing's is weight gain. S ome people only gain 30 pounds\, some gain hundreds. I always have a hard time quantifying the exact amount I gained because I was a teenager\, or even a young child when I first had Cushing's symptoms. My best guess is about 150 pounds\, only because that is close to what I've lost after trea tment. Read more at http://www.lifewithcushings.com/2017/04/cushings-awa reness-challenge-day-12_12.html X-ALT-DESC;FMTTYPE=text/html:One of the most common symptoms of Cushing' s is weight gain. \;Some people only gain 30 pounds\, some gain hundr eds. \;I always have a hard time quantifying the exact amount I gaine d because I was a teenager\, or even a young child when I first had Cushin g's symptoms. \;My best guess is about 150 pounds\, only because that is close to what I've lost after treatment. \;
Read more at& nbsp\;http://www.lifewithcushings.com/ 2017/04/cushings-awareness-challenge-day-12_12.html
CATEGORIES:Awareness Challenge UID:20170413T0201050Z-549422-538@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170412 SUMMARY:Cushing’s Myths and Facts: It is MY fault that I got Cushing’s… RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200412;BYMONTHDAY=12 DESCRIPTION:Fact: This is a very controversial topic because we don’t like to talk about it. However\, many people struggle with this myth. Read more at https://cushieblogger.com/2019/04/13/cushings-myths-and-facts-it-is-my -fault-that-i-got-cushings/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;This is a very controversial to pic because we don&rsquo\;t like to talk about it. However\, many people s truggle with this myth.
Read more at \;https://cushieblogger.com/2019/04/13/cushings-m yths-and-facts-it-is-my-fault-that-i-got-cushings/
CATEGORIES:Awareness Challenge UID:20190413T2248580Z-549422-539@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to Karen Nolan\, Cyclic Cushing’s\, part 2 DTSTART;VALUE=DATE:20170511 DTEND;VALUE=DATE:20170512 RRULE:FREQ=MONTHLY;UNTIL=20180413;BYDAY=2TH DESCRIPTION:I’ve been told they are unable to determine how long someone ha s had cushings. How did you know it started at 7? I think mine started at 9 but they don’t know. Also how were you diagnosed with GH defincency? My endo mentioned they might test me. Just curious what tests are involved. R ead more at https://cushieblogger.com/2017/04/12/karen-nolan-cyclic-cushin gs-part-2/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;ve been told they are unable to de termine how long someone has had cushings. How did you know it started at 7? I think mine started at 9 but they don&rsquo\;t know. Also how were you diagnosed with GH defincency? My endo mentioned they might test me. Just curious what tests are involved.
Read more at \;https://cushieblogger.com/2017/04/12/karen-nolan-cyclic-cushing s-part-2/
CATEGORIES:Cushings UID:20170413T1252490Z-549422-540@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 13 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200413;BYMONTH=4;BYMONTHDAY=13 DTSTART;VALUE=DATE:20170413 DTEND;VALUE=DATE:20170414 DESCRIPTION:I take medication every single day to stay alive. At 24 years old\, it was one of my main complaints after my BLA. Of course\, I had ta ken medicine before that\, even taken medication every day before that\, b ut my life didn't depend on it. Read more at http://www.lifewithcushings.c om/2017/04/cushings-awareness-challenge-day-13.html X-ALT-DESC;FMTTYPE=text/html:I take medication every single day to stay alive. \;At 24 years old\, it was one of my main complaints after my BLA. \;Of course\, I had taken medicine before that\, even taken medi cation every day before that\, but my life didn't depend on it.
Re ad more at \;http://www.lifewithcushi ngs.com/2017/04/cushings-awareness-challenge-day-13.html
CATEGORIES:Awareness Challenge UID:20170413T2253000Z-549422-541@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170413 SUMMARY:Interview Archive: Monica and Crystal\, Pituitary Buddies RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200413;BYMONTHDAY=13 EXDATE;VALUE=DATE:20190413 DESCRIPTION:Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed . Since there was no post-op crash\, she also had a BLA in December 2006. Read more at https://cushieblogger.com/2018/04/13/interview-archive-monic a-and-crystal-pituitary-buddies/ X-ALT-DESC;FMTTYPE=text/html:Monica was diagnosed with Cyclical Cushing& rsquo\;s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash\, she also h ad a BLA in December 2006. \;
Read more at \;https://cushieblogger.com/2018/04/13/inter view-archive-monica-and-crystal-pituitary-buddies/
CATEGORIES:Events and Meetings UID:20180414T0707360Z-549422-542@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 14 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200414;BYMONTH=4;BYMONTHDAY=14 DTSTART;VALUE=DATE:20170414 DTEND;VALUE=DATE:20170415 DESCRIPTION:Hospital gowns\, as I have said many\, many times\, are not fun to wear. They can leave you exposed\, they are typically too big\, and a re generally uncomfortable. When I am staying in the hospital\, I usually change into my own clothes as soon as possible. I am still waiting for s omeone to re-design hospital gowns! In the meantime\, I am going to share what I usually pack\, or have my family members bring to the hospital for me to wear. Read more at http://www.lifewithcushings.com/2017/04/cushings -awareness-challenge-day-14.html X-ALT-DESC;FMTTYPE=text/html:Hospital gowns\, as I have said many\, many
times\, are not fun to wear. \;They can leave you exposed\, they are
typically too big\, and are generally uncomfortable. \;When I am sta
ying in the hospital\, I usually change into my own clothes as soon as pos
sible. \;I am still waiting for someone to re-design hospital gowns!&
nbsp\;
In the meantime\, I am going to share what I usually pac
k\, or have my family members bring to the hospital for me to wear.
Jenn (StaceyJenn) was diagnosed with adrena l insufficiency\, hypothyroidism\, and a host of other ailments in 2001 (c andidiasis\, intestinal permeability\, 22 latent food allergies). Once dia gnosed\, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds...
Listen at \;https:/ /cushieblogger.com/2019/04/15/archived-interview-jenn-steroid-induced-iatr ogenic-cushings-patient/
CATEGORIES:Events and Meetings UID:20230816T1249320Z-549422-544@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170415 SUMMARY:Comment added to Jennifer\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180415;BYMONTHDAY=15 DESCRIPTION:I have cushings and i live not too far from you... Read more at https://cushingsbios.com/2017/04/02/jennifer-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I have cushings and i live not too far from you...
Read more at \;https://cushingsbios.com/ 2017/04/02/jennifer-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170415T1628430Z-549422-545@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 15\, Cushing’s Awareness Challenge 2020 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200415;BYMONTH=4;BYMONTHDAY=15 DTSTART;VALUE=DATE:20170415 DTEND;VALUE=DATE:20170416 DESCRIPTION:Today’s Cushing’s Awareness Challenge post is about kidney canc er (renal cell carcinoma). You might wonder how in the world this is relat ed to Cushing’s. I think it is\, either directly or indirectly. Read mor e at https://cushieblogger.com/2020/04/16/day-15-cushings-awareness-challe nge-2020/ X-ALT-DESC;FMTTYPE=text/html:Today&rsquo\;s Cushing&rsquo\;s Awareness C hallenge post is about kidney cancer (renal cell carcinoma). You might won der how in the world this is related to Cushing&rsquo\;s. I think it is\, either directly or indirectly.
I&rsquo\;m sorry to hear you are still stru ggling. I have wondered when I would ever feel good again. I had surgery J anuary 2017 they said I&rsquo\;m in remission I&rsquo\;m trying to slowly go off my medicine and let my pituitary to wake up...
Read more at \;https://cushingsbios.com/2016/03/18/erin-t-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170416T0131120Z-549422-548@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170416 SUMMARY:Archived Interview: Terry G\, pituitary patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300416;BYMONTHDAY=16 DESCRIPTION:Terry (Terry) is a long time pituitary Cushing’s survivor. Terr y had a pituitary surgery (in LA) in October of 2003 which did not cure he r Cushing’s Disease. Then\, Dec 13th\, 2003 she had her BLA in a Wisconsin hospital. She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery from October 2003. She had to be on a lot of antibiotics and narcotic pain relievers. In Sept 2005 the surgeon remove the infection from one area\, making another area clear….. Listen a t https://cushieblogger.com/2019/04/16/archived-interview-terry-g-pituita ry-patient/ X-ALT-DESC;FMTTYPE=text/html:Terry (Terry) is a long time pituitary Cush ing&rsquo\;s survivor. Terry had a pituitary surgery (in LA) in October of 2003 which did not cure her Cushing&rsquo\;s Disease. Then\, Dec 13th\, 2 003 she had her BLA in a Wisconsin hospital. She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery fro m October 2003. She had to be on a lot of antibiotics and narcotic pain re lievers. In Sept 2005 the surgeon remove the infection from one area\, mak ing another area clear&hellip\;..
Listen at \; https://cushieblogger.com/2019/04/16/ar chived-interview-terry-g-pituitary-patient/
CATEGORIES:Events and Meetings UID:20230816T1248540Z-549422-549@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170417 SUMMARY:Myths and Facts about Cushing’s: UFC’s are the Gold Standard for C ushing’s testing RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250417;BYMONTHDAY=17 DESCRIPTION:Fact: UFC stands for Urinary Free Cortisol. In layman’s terms t his test assesses cortisol by collecting urine for 24 hours. It was once t hought that this was the gold standard and the end all and be all in terms of assessing Cushing’s in a patient. What we now know is that this is not necessarily true... Read more at https://cushieblogger.com/2019/04/17/cu shings-myths-and-facts-ufcs-are-the-gold-standard-for-cushings-testing/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;UFC stands for Urinary Free Cortisol. In layman&rsquo\;s terms this test assesses cortis ol by collecting urine for 24 hours. It was once thought that this was the gold standard and the end all and be all in terms of assessing Cushing&rs quo\;s in a patient. What we now know is that this is not necessarily true ...
Read more at \; https://cushieblogger.com/2019/04/17/cushings-myths-a nd-facts-ufcs-are-the-gold-standard-for-cushings-testing/
CATEGORIES:Cushings UID:20190418T0144170Z-549422-550@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170419 SUMMARY:Archived Interview: Monica’s Husband Kevin\, about Caretakers RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250420;BYMONTHDAY=19 DESCRIPTION:Talking about Cushing’s from the spouse/caretaker point of view He is also Monica’s producer/ manager. For the two years during Monica’s diagnosis and surgeries he worked from home as a computer programmer so t hat he could take care of Monica. Monica and Kevin were married two years ago\, just before Monica’s pituitary surgery... Read more at https://cushi eblogger.com/2019/04/19/archived-interview-monicas-husband-kevin-about-car etakers/ X-ALT-DESC;FMTTYPE=text/html:Talking about Cushing&rsquo\;s from the spo
use/caretaker point of view He is also Monica&rsquo\;s producer/ manager.
\;For the two years during Monica&rsquo\;s diagnosis and surgeries he
worked from home as a computer programmer so that he could take care of M
onica. Monica and Kevin were married two years ago\, just before Monica&rs
quo\;s pituitary surgery...
Read more at https://cushieblogger.com/2019/04/19/archived-in
terview-monicas-husband-kevin-about-caretakers/
...The MRI was of the pituitary gland\, whi ch there was no growth on it at all. The glucose tests were the 5 hour and an 8 hour one\, and the insulin levels were checked with them. With all t hese tests\, nothing abnormal showed up. I guess you can see why doctors w ould give up on me...
Read more at \;https://cushi ngsbios.com/2017/04/03/rachel-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170418T1310380Z-549422-552@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170418 SUMMARY:A New Newspaper Article on Jordy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180418;BYMONTHDAY=18 DESCRIPTION:Mr Cernik suffers from ultra-rare Cushing's syndrome which caus es high levels of the hormone Cortisol - a steroid that regulates the meta bolism and immune system. Read more at https://cushingsbios.com/2017/04/18 /a-new-newspaper-article-on-jordy/ X-ALT-DESC;FMTTYPE=text/html:Mr \;Cernik suffers from ultra-rare Cus hing's syndrome which causes high levels of the hormone Cortisol - a stero id that regulates the metabolism and immune system.
Read more at&n bsp\;https://cushingsbios.com/2017/04/18/a-new-newsp aper-article-on-jordy/
CATEGORIES:Cushie Bios UID:20170418T1328050Z-549422-553@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 18 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200418;BYMONTH=4;BYMONTHDAY=18 DTSTART;VALUE=DATE:20170418 DTEND;VALUE=DATE:20170419 DESCRIPTION:What should you do if you think you have Cushing's? 1. Click t he 3 lines you see in the upper right corner\, scroll down about halfway\, and take a look at some of those helpful websites. Those sites are what got me to the right endocrinologist\, and helped me through the testing ph ase... Read more at http://www.lifewithcushings.com/2017/04/cushings-aware ness-challenge-day-18.html X-ALT-DESC;FMTTYPE=text/html:What should you do if you think you have Cu
shing's?
1. \;Click the 3 lines you see in the upper right
corner\, scroll down about halfway\, and take a look at some of those hel
pful websites. \;Those sites are what got me to the right endocrinolo
gist\, and helped me through the testing phase...
Read more at&nbs p\;http://www.lifewithcushings.com/2017/0 4/cushings-awareness-challenge-day-18.html
CATEGORIES:Awareness Challenge UID:20170418T2001400Z-549422-554@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170418 SUMMARY:Comment added to Rachel\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180418;BYMONTHDAY=18 DESCRIPTION:...The fatigue is a nightmare I don’t even think the word fatig ue does what happens justice. My fatigue ( I call it Zombie status) has be en assisted with helping out my adrenal glands\, because I know at the ver y least I have an issue due to testing... Read more at https://cushingsbio s.com/2017/04/03/rachel-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...The fatigue is a nightmare I don&rsquo\; t even think the word fatigue does what happens justice. My fatigue ( I ca ll it Zombie status) has been assisted with helping out my adrenal glands\ , because I know at the very least I have an issue due to testing...
Read more at \;https://cushingsbios.com/2017/04/03/rach el-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170418T2006070Z-549422-555@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Diagnosis and Differential Diagnosis of Cushing’s Syndrome DTSTART;VALUE=DATE:20170516 DTEND;VALUE=DATE:20170517 RRULE:FREQ=MONTHLY;UNTIL=20200418;BYDAY=3TU DESCRIPTION:More than a century ago\, Harvey Cushing introduced the term “p luriglandular syndrome” to describe a disorder characterized by rapid deve lopment of central obesity\, arterial hypertension\, proximal muscle weakn ess\, diabetes mellitus\, oligomenorrhea\, hirsutism\, thin skin\, and ecc hymoses. Read more at https://cushieblog.com/2017/04/18/diagnosis-and-diff erential-diagnosis-of-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:More than a century ago\, Harvey Cushing in troduced the term &ldquo\;pluriglandular syndrome&rdquo\; to describe a di sorder characterized by rapid development of central obesity\, arterial hy pertension\, proximal muscle weakness\, diabetes mellitus\, oligomenorrhea \, hirsutism\, thin skin\, and ecchymoses.
Read more at \;https://cushieblog.com/2017/04/18 /diagnosis-and-differential-diagnosis-of-cushings-syndrome/
CATEGORIES:Cushings UID:20170418T2108560Z-549422-556@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170418 SUMMARY:Archived Interview: Monica\, pituitary survivor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250418;BYMONTHDAY=18 DESCRIPTION:Listen as Monica (Monicaroni) talks about the challenges she’s faced maintaining her music career while in testing and treatment. Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in Novemb er 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash\, she also had a BLA in December 2006. Listen at https:/ /cushieblogger.com/2019/04/18/archived-interview-monica-pituitary-survivor / X-ALT-DESC;FMTTYPE=text/html:Listen as Monica (Monicaroni) talks about t he challenges she&rsquo\;s faced maintaining her music career while in tes ting and treatment. Monica was diagnosed with Cyclical Cushing&rsquo\;s. S he had pituitary surgery in November 2006. An 8mm encapsulated pituitary t umor was removed. Since there was no post-op crash\, she also had a BLA in December 2006.
Listen at \;https://cushieblogger.com/2019/04/18/archived-interview-monica-pituitary -survivor/
CATEGORIES:Events and Meetings UID:20190420T1421360Z-549422-557@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170418 SUMMARY:Myths and Facts about Cushing’s: “Men1 and Men2 are the only genet ic causes of Cushing’s” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190418;BYMONTHDAY=18 EXDATE;VALUE=DATE:20190418 DESCRIPTION:This is a Myth. More current research has explored multiple eti ologies of Cushing’s. It was once thought that heredity had no influence o n the development of Cushing’s Syndrome/Disease and our knowledge was once limited in this sense. Read more at https://cushieblogger.com/2018/04/18 /myths-and-facts-about-cushings-men1-and-men2-are-the-only-genetic-causes- of-cushings/ X-ALT-DESC;FMTTYPE=text/html:This is a Myth. More current research has e xplored multiple etiologies of Cushing&rsquo\;s. It was once thought that heredity had no influence on the development of Cushing&rsquo\;s Syndrome/ Disease and our knowledge was once limited in this sense.
Read mor e at \; https://cushieblogger.com/2018/04/18/myths-and-facts-about-cu shings-men1-and-men2-are-the-only-genetic-causes-of-cushings/
CATEGORIES:Cushings UID:20180423T1407200Z-549422-558@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170419 SUMMARY:Archived Interview with FerolV\, pituitary survivor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250419;BYMONTHDAY=19 EXDATE;VALUE=DATE:20190419 DESCRIPTION:Ferol started noticing irregular symptoms in her late 20’s\, bu t more developed since 2001\, and rapidly more chronic as time went by. Fi nally\, at her March 2005 physical\, she had enough symptoms listed for he r GP to start getting the connection to Cushing’s. She was immediately ref erred to Dr. Adam Spitz\, endocrinologist\, with a battery of tests confir med the initial diagnosis. Her pituitary surgery was performed 09-30-05. S he has lost 30+ pounds after reaching a high of 190 prior to surgery. List en at http://www.blogtalkradio.com/cushingshelp/2008/05/08/interview-with- ferolv-pituitary-survivor X-ALT-DESC;FMTTYPE=text/html:Ferol started noticing irregular symptoms i n her late 20&rsquo\;s\, but more developed since 2001\, and rapidly more chronic as time went by. Finally\, at her March 2005 physical\, she had en ough symptoms listed for her GP to start getting the connection to Cushing &rsquo\;s.
She was immediately referred to Dr. Adam Spitz\, endocr inologist\, with a battery of tests confirmed the initial diagnosis. Her p ituitary surgery was performed 09-30-05. She has lost 30+ pounds after rea ching a high of 190 prior to surgery.
Listen at \;http://www.blogtalkradio.com/cushingshel p/2008/05/08/interview-with-ferolv-pituitary-survivor
CATEGORIES:Events and Meetings UID:20180423T2042140Z-549422-559@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 19 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200419;BYMONTH=4;BYMONTHDAY=19 DTSTART;VALUE=DATE:20170419 DTEND;VALUE=DATE:20170420 DESCRIPTION:Do you ever come across someone you think might have Cushing's? I feel like I can pick people out of a crowd that have Cushing's\, it's all about the body type (central obesity with thin arms and legs). I feel like I see people all the time that might have Cushing's. But how do you address it without offending anyone? I am a little shy\, so I am not the kind of person to go up to a stranger and start a conversation. Especiall y about their personal health. Read more at http://www.lifewithcushings.co m/2017/04/cushings-awareness-challenge-day-19.html X-ALT-DESC;FMTTYPE=text/html:Do you ever come across someone you think m
ight have Cushing's? \;I feel like I can pick people out of a crowd t
hat have Cushing's\, it's all about the body type (central obesity with th
in arms and legs).
I feel like I see people all the time that m
ight have Cushing's. \;But how do you address it without offending an
yone? \;I am a little shy\, so I am not the kind of person to go up t
o a stranger and start a conversation. \;Especially about their perso
nal health.
Read more at \;ht tp://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-19. html
CATEGORIES:Awareness Challenge UID:20170420T0034540Z-549422-560@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170420 SUMMARY:Interview with Jackie (samsmom) & Jordan RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200420;BYMONTHDAY=20 EXDATE;VALUE=DATE:20190420 DESCRIPTION:Jackie (samsmom) & Jordan: Cushing’s in young people\, the figh t to diagnose\, the amazing gift of a GOOD endocrinologist. Jackie has app eared on Discovery Health discussing her fight for a cure for her younger daughter\, as well. Later\, the gene responsible for Sam’s illness was fou nd. Her father carried the gene as did her two sisters. Jordan\, Jackie’s oldest daughter\, has recently had her adrenals removed. Listen at http:// www.blogtalkradio.com/cushingshelp/2008/05/15/interview-with-jackie-samsmo n-jordan X-ALT-DESC;FMTTYPE=text/html:Jackie (samsmom) &\; Jordan: Cushing&rsq uo\;s in young people\, the fight to diagnose\, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her f ight for a cure for her younger daughter\, as well. Later\, the gene respo nsible for Sam&rsquo\;s illness was found. Her father carried the gene as did her two sisters. Jordan\, Jackie&rsquo\;s oldest daughter\, has recent ly had her adrenals removed.
Listen at \;http://www.blogtalkradio.com/cushingshelp/2008/05/15/ interview-with-jackie-samsmon-jordan
CATEGORIES:Events and Meetings UID:20180423T2102480Z-549422-561@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 20 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200420;BYMONTH=4;BYMONTHDAY=20 DTSTART;VALUE=DATE:20170420 DTEND;VALUE=DATE:20170421 DESCRIPTION:Many people with Cushing's do not have a supportive primary car e physician. They either don't believe their symptoms\, or won't refer th em to a specialist. I was fortunate enough to never have a problem with mi ne. Although she didn't know much about Cushing's\, she was willing to re fer me to multiple endocrinologists. I have been going to the same practic e since I was born\, and now\, due to insurance issues\, I will have to sw itch. Read more at http://www.lifewithcushings.com/2017/04/cushings-awaren ess-challenge-day-20.html X-ALT-DESC;FMTTYPE=text/html:Many people with Cushing's do not have a su pportive \;primary care physician. \;They either don't believe th eir symptoms\, or won't refer them to a specialist. I was fortunate enough to never have a problem with mine. \;Although she didn't know much a bout Cushing's\, she was willing to refer me to multiple endocrinologists. I have been going to the same practice since I was born\, and now\, due t o insurance issues\, I will have to switch.
Read more at \;http://www.lifewithcushings.com/2017/04/cushings-awareness-c hallenge-day-20.html
CATEGORIES:Awareness Challenge UID:20170421T1439330Z-549422-562@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170420 SUMMARY:Myths and Facts about Cushing’s: “All Cushing’s patients have the e xact same symptoms' RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190421;BYMONTHDAY=20 EXDATE;VALUE=DATE:20190420 DESCRIPTION:Fact: Everyone does NOT have the exact same symptoms. Not all C ushing’s patients are exactly the same. This is one mistake that non exper ts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not... Read more at https://cushieblogger .com/2018/04/20/myths-and-facts-about-cushings-all-cushings-patients-have- the-exact-same-symptoms/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;Everyone does NOT have the exac t same symptoms. Not all Cushing&rsquo\;s patients are exactly the same. T his is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not...&nb sp\;
Read more at \;https://cushieblogger.com/2018/04/20/myths-a nd-facts-about-cushings-all-cushings-patients-have-the-exact-same-symptoms /
CATEGORIES:Cushings UID:20180423T2108370Z-549422-563@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170421 SUMMARY:Natalie Stokes\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180421;BYMONTHDAY=21 DESCRIPTION:Natalie Stokes\, of Saint Agnes Close in Studley\, suffers from Cushing’s disease\, a condition where the body produces excess steroid ho rmones. She had her disability benefits withdrawn eight weeks ago. Read mo re at https://cushingsbios.com/2017/04/21/natalie-stokes-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Natalie Stokes\, of Saint Agnes Close in St udley\, suffers from Cushing&rsquo\;s disease\, a condition where the body produces excess steroid hormones. She had her disability benefits withdra wn eight weeks ago.
Read more at \;https://c ushingsbios.com/2017/04/21/natalie-stokes-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170421T2042020Z-549422-564@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Interview with Leslie\, Pituitary Cushing's survivor RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250421;BYMONTH=4;BYMONTHDAY=21 DTSTART;VALUE=DATE:20170421 DTEND;VALUE=DATE:20170422 EXDATE;VALUE=DATE:20190421 DESCRIPTION:Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3\, 200 8. Listen at http://www.blogtalkradio.com/cushingshelp/2008/05/22/intervie w-with-jackie-samsmon-jordan (The URL appears incorrect due to last minute guest changes.) X-ALT-DESC;FMTTYPE=text/html:Leslie had pituitary tumors removed twice a t the University Of Michigan. After her second surgery she gave birth to h er second baby. She has had another recurrence and has had Gamma Knife Rad iation April 3\, 2008.
Listen at \;http://www.blogtalkradio.com/cushingshelp/2008/05/22/interv iew-with-jackie-samsmon-jordan \;(The URL appears incorrect \; due to last minute guest changes.)
CATEGORIES:Events and Meetings UID:20180423T2116130Z-549422-565@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170421 SUMMARY:Exogenous Cushing's syndrome due to a Chinese herbalist’s prescript ion of ointment containing dexamethasone RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180421;BYMONTHDAY=21 DESCRIPTION:Hydrocortisone substitution and subsequently a reduction schedu le were implemented\, after which endogenous cortisol production recovered after 4 months. Physicians should be aware that unregistered herbal medic ine can contain potent drugs such as glucocorticoids. Read more at https:/ /cushieblog.com/2017/04/21/exogenous-cushings-syndrome-due-to-a-chinese-he rbalists-prescription-of-ointment-containing-dexamethasone/ X-ALT-DESC;FMTTYPE=text/html:Hydrocortisone substitution and subsequentl y a reduction schedule were implemented\, after which endogenous cortisol production recovered after 4 months. Physicians should be aware that unreg istered herbal medicine can contain potent drugs such as glucocorticoids.< /p>
CATEGORIES:News Items UID:20170422T0031520Z-549422-566@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Lower health-related quality of life observed in patients with Addi son’s disease\, Cushing’s syndrome DTSTART;VALUE=DATE:20170527 DTEND;VALUE=DATE:20170528 RRULE:FREQ=MONTHLY;UNTIL=20180422;BYDAY=4SA DESCRIPTION:Cushing’s syndrome of pituitary origin was associated with wors e health-related quality of life\, especially for physical functioning\, s ocial functioning and mental health. In Cushing’s syndrome\, health-relate d quality of life was generally worse during periods of hypercortisolism\, but scores for these patients were lower than those of patients with Addi son’s disease even during periods of hypocortisolism or eucortisolism\, ac cording to the researchers. Read more at http://addisonshelp.blogspot.com/ 2017/04/lower-health-related-quality-of-life.html X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome of pituitary orig in was associated with worse health-related quality of life\, especially f or physical functioning\, social \;functioning \;and mental health . In Cushing&rsquo\;s syndrome\, health-related quality of life was genera lly worse during periods of hypercortisolism\, but scores for these patien ts were lower than those of patients with Addison&rsquo\;s disease even du ring periods of \;hypocortisolism \;or \;eucortisolism\, accor ding to the researchers.
Read more at \;http://addisonshelp.blogspot.com/2017/04/lower-health-related -quality-of-life.html
CATEGORIES:Cushings UID:20170422T1159270Z-549422-567@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 21 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200421;BYMONTH=4;BYMONTHDAY=21 DTSTART;VALUE=DATE:20170421 DTEND;VALUE=DATE:20170422 DESCRIPTION:I always struggle with what to say\, or how much to say\, about my chronic illnesses. Someone might make a comment like\, 'You look so t an! Have you been on vacation?' and I am not tan from the sun\, I am tan because of my rising ACTH levels\, or maybe because I am jaundiced... Rea d more at http://www.lifewithcushings.com/2017/04/cushings-awareness-chall enge-day-21.html X-ALT-DESC;FMTTYPE=text/html:I always struggle with what to say\, or how much to say\, about my chronic illnesses. \;Someone might make a com ment like\, 'You look so tan! \;Have you been on vacation?' \;an d I am not tan from the sun\, I am tan because of my rising ACTH levels\, or maybe because I am jaundiced...
Read more at \;http://www.lifewithcushings.com/2017/04/cushings-awar eness-challenge-day-21.html
CATEGORIES:Awareness Challenge UID:20170422T1639350Z-549422-568@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170422 SUMMARY:Comment added to “Kristin T\, Undiagnosed Bio” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200422;BYMONTHDAY=22 DESCRIPTION:... I have every single symptom of Cushing’s\, and I believe it is cyclical and has been happening for about 26 years. It will be what ki lls me\, I fear. Of course\, it will be deemed because of obesity and heal th issues related to it. It is frustrating that doctors just think-it’s so rare\, this cannot be what’s wrong. I think it is rarely diagnosed becaus e it us hard to get the tests to give the accurate information. I do not t hink they will ever diagnose me... Read more at http://wp.me/p3tb2N-r0 X-ALT-DESC;FMTTYPE=text/html:... I have every single symptom of Cushing& rsquo\;s\, and I believe it is cyclical and has been happening for about 2 6 years. It will be what kills me\, I fear. Of course\, it will be deemed because of obesity and health issues related to it. It is frustrating that doctors just think-it&rsquo\;s so rare\, this cannot be what&rsquo\;s wro ng. I think it is rarely diagnosed because it us hard to get the tests to give the accurate information. I do not think they will ever diagnose me.. .
Read more at \;http://wp.me/p3tb2N-r0
CATEGORIES:Awareness Challenge UID:20170422T1710190Z-549422-569@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 22 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200422;BYMONTH=4;BYMONTHDAY=22 DTSTART;VALUE=DATE:20170422 DTEND;VALUE=DATE:20170423 DESCRIPTION:Steroids are my BFFs\, but at the same time\, they are the enem y. When I had Cushing's\, steroids\, whether produced from your body or t aken in pill form\, were the absolute worst. Now\, my life depends on the m. It's a hard switch to flip\, and years later\, still finding myself ba ttling the need to hate them. I hate taking medication daily. I hate bri nging pill bottles\, needles\, and vials filled with steroids everywhere I go. Read more at http://www.lifewithcushings.com/2017/04/cushings-awarene ss-challenge-day-22.html X-ALT-DESC;FMTTYPE=text/html:Steroids are my BFFs\, but at the same time
\, they are the enemy. \;When I had Cushing's\, steroids\, whether pr
oduced from your body or taken in pill form\, were the absolute worst. &nb
sp\;Now\, my life depends on them. \;
It's a hard switch to
flip\, and years later\, still finding myself battling the need to hate t
hem. \; \;I hate taking medication daily. I hate bringing pill bo
ttles\, needles\, and vials filled with steroids everywhere I go.
Read more at \;http://www.lifewithcus hings.com/2017/04/cushings-awareness-challenge-day-22.html
CATEGORIES:Awareness Challenge UID:20170422T1749330Z-549422-570@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170422 SUMMARY:Steve Owens (sowens) returns to talk about support networks and age ncies RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200422;BYMONTHDAY=22 DESCRIPTION:Steve Owens (sowens) returned on May 29\, 7:30. His topic was b uilding up support networks and using available agencies to get back to wo rk (rehab\, PT/OT\, job coaches\, etc)... Listen at http://www.blogtalkrad io.com/cushingshelp/2008/05/29/steve-owens-sowens-returns-to-talk-about-su pport-networks-and-agencies X-ALT-DESC;FMTTYPE=text/html:Steve Owens (sowens) returned on May 29\, 7 :30. His topic was building up support networks and using available agenci es to get back to work (rehab\, PT/OT\, job coaches\, etc)...
CATEGORIES:Events and Meetings UID:20170422T2201180Z-549422-571@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170406 SUMMARY:Cushing’s Myths and Facts: “Each Person Requires the Same Dose of S teroid in Order to Survive…” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300423;BYMONTHDAY=6 EXDATE;VALUE=DATE:20181022 DESCRIPTION:Fact: In simple terms\, Adrenal Insufficiency occurs when the b ody does not have enough cortisol in it. You see\, cortisol is life sustai ning and we actually do need cortisol to survive. You have probably seen t he commercials about “getting rid of extra belly fat” by lowering your cor tisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.... Read more at https://cushi eblogger.com/2025/04/06/cushings-myths-and-facts-each-person-requires-the- same-dose-of-steroid-in-order-to-survive/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;In simple terms\, Adrenal Insuf ficiency occurs when the body does not have enough cortisol in it. You see \, cortisol is life sustaining and we actually do need cortisol to survive . You have probably seen the commercials about &ldquo\;getting rid of extr a belly fat&rdquo\; by lowering your cortisol. These advertisements make i t hard for people to actually understand the importance of the function of cortisol....
Read more at \;https://cus hieblogger.com/2025/04/06/cushings-myths-and-facts-each-person-requires-th e-same-dose-of-steroid-in-order-to-survive/
CATEGORIES:Cushings UID:20250407T0012240Z-549422-572@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170423 SUMMARY:Health Care Expenditure Burden High in Adrenal Insufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200423;BYMONTHDAY=23 DESCRIPTION:Patients with adrenal insufficiency may accrue substantial heal th care costs and have more hospital stays and outpatient visits compared with healthy controls\, according to findings published in the Journal of the Endocrine Society. Read more at https://cushieblog.com/2017/04/23/heal th-care-expenditure-burden-high-in-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Patients with adrenal insufficiency may acc rue substantial health care costs and have more hospital stays and outpati ent visits compared with healthy controls\, according to findings publishe d in the \;Journal of the Endocrine Society.
Read mor e at \;https: //cushieblog.com/2017/04/23/health-care-expenditure-burden-high-in-adrenal -insufficiency/
CATEGORIES:News Items UID:20170423T1401380Z-549422-573@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170423 SUMMARY:Interview with Heather S\, Pituitary Cushing’s Survivor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200423;BYMONTHDAY=23 EXDATE;VALUE=DATE:20190423 DESCRIPTION:Heather\, pituitary surgery on January 18\, 2006 after years of medical problems\, June 5\, 7:30PM Listen at http://www.blogtalkradio.co m/cushingshelp/2008/06/05/interview-with-heather-s-pituitary-cushings-surv ivor X-ALT-DESC;FMTTYPE=text/html:Heather\, pituitary surgery on January 18\, 2006 after years of medical problems\, June 5\, 7:30PM \;
Lis ten at \;http://www.blogtalkradio.com/cushingshelp/2008/06/0 5/interview-with-heather-s-pituitary-cushings-survivor
CATEGORIES:Events and Meetings UID:20170423T1949060Z-549422-574@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170425 SUMMARY:Archived Interview: Dr. Dori Middleman\, Pituitary Cushing’s Surviv or RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300424;BYMONTHDAY=25 DESCRIPTION:Dr. Dori Middleman is a Psychophamacologist\, Certified Gestalt Psychotherapist and Cushing’s Patient. She has had both pituitary surgery and two gamma knife radiosurgeries. Listen at https://cushieblogger.com/ 2019/04/25/archived-interview-dr-dori-middleman-pituitary-cushings-survivo r/ X-ALT-DESC;FMTTYPE=text/html:Dr. Dori Middleman is a Psychophamacologist \, Certified Gestalt Psychotherapist and Cushing&rsquo\;s Patient.
She has had both pituitary surgery and two gamma knife radiosurgeries.
Listen at \; https://cushieblogger.com/2019/04/25/archived-interview -dr-dori-middleman-pituitary-cushings-survivor/
CATEGORIES:Events and Meetings UID:20230925T1141350Z-549422-575@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Reasons You Have Flab Around Your Abdomen DTSTART;VALUE=DATE:20170529 DTEND;VALUE=DATE:20170530 RRULE:FREQ=MONTHLY;UNTIL=20200424;BYDAY=-1MO DESCRIPTION: Some diseases/ disorders and conditions\, such as Cushing's\, could be responsible for your abdominal fat and these have nothing to do w ith not exercising or not eating right. Read more at https://cushieblog.c om/2017/04/24/reasons-you-have-flab-around-your-abdomen/ X-ALT-DESC;FMTTYPE=text/html:\;Some diseases/ disorders and conditi ons\, such as Cushing's\, could be responsible for your abdominal fat and these have nothing to do with not exercising or not eating right. \;
Read more at \;https://cushieblog. com/2017/04/24/reasons-you-have-flab-around-your-abdomen/
CATEGORIES:Cushings UID:20170425T0003400Z-549422-576@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY: Cushing's Awareness Challenge - Day 23 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200423;BYMONTH=4;BYMONTHDAY=23 DTSTART;VALUE=DATE:20170423 DTEND;VALUE=DATE:20170424 DESCRIPTION:Being a caretaker is hard work. Especially when you are taking care of someone with a chronic illness. I have experienced being on both ends\, as the person being taken care of\, and the caretaker. Read more a t http://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day -23.html X-ALT-DESC;FMTTYPE=text/html:Being a caretaker is hard work. \;Espe cially when you are taking care of someone with a chronic illness. \; I have experienced being on both ends\, as the person being taken care of\ , and the caretaker.
Read more at \;http://www.lifewithcushings.com/2017/04/cushings-awareness-challeng e-day-23.html
CATEGORIES:Awareness Challenge UID:20170425T1313510Z-549422-577@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170424 SUMMARY:Cushing’s Myths and Facts: “You should be all better by now!” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300424;BYMONTHDAY=24 DESCRIPTION:Fact: However\, in the case of the chronically ill\, a differe nt cycle occurs. In the chronically ill\, the person loses his normal heal th. He goes through a period of treatment and sometimes recovers... Read m ore at https://cushieblogger.com/2022/04/27/myth-you-should-be-all-better- by-now-2/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;However\, in the case of the c hronically ill\, a different cycle occurs. In the chronically ill\, the pe rson loses his normal health. He goes through a period of treatment and so metimes recovers...
Read more at \;https://cushieblogger.com/2022/04/27/myth-you-should-be-all-better-by-no w-2/
CATEGORIES:Cushings UID:20220427T2043120Z-549422-578@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 24 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200424;BYMONTH=4;BYMONTHDAY=24 DTSTART;VALUE=DATE:20170424 DTEND;VALUE=DATE:20170425 DESCRIPTION:So many people around the word have invisible illnesses\, many of those illnesses can be disabling. For me\, it is not one illness alone that can be disabling. It is the combination of many\, and maybe even med ication side... Read more at http://www.lifewithcushings.com/2017/04/cushi ngs-awareness-challenge-day-24.html X-ALT-DESC;FMTTYPE=text/html:So many people around the word have invisib le illnesses\, many of those illnesses can be disabling. \;For me\, i t is not one illness alone that can be disabling. It is the combination of many\, and maybe even medication side...
Read more at \;http://www.lifewithcushings.com/2017/04/cushin gs-awareness-challenge-day-24.html
CATEGORIES:Awareness Challenge UID:20170425T1325230Z-549422-579@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 16: Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300425;BYMONTH=4;BYMONTHDAY=16 DTSTART;VALUE=DATE:20170416 DTEND;VALUE=DATE:20170417 DESCRIPTION:I used to carry a print out of this everywhere I go because I f ind it very soothing. This print out was in a plastic page saver. On the other side there is a Psalm 116\, part of the post from Day Nineteen of th e 2015 Cushing’s Challenge. These days\, both these readings are availabl e on my phone. Read more at https://cushings.invisionzone.com/topic/56844- day-16-cushing%E2%80%99s-awareness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:I used to carry a print out of this everywh ere I go because I find it very soothing. \;This print out was in a p lastic page saver. On the other side there is a Psalm 116\, part of the po st from \;Day Nineteen of the 2015 Cushing&rsquo\;s Challenge. \;These days\, both thes e readings are available on my phone.
Read more at \;https://cushings.invisionzone.com/ topic/56844-day-16-cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220416T1444280Z-549422-580@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170425 SUMMARY:Interview with Donna Sellers\, mother of a Cushing’s patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300425;BYMONTHDAY=25 EXDATE;VALUE=DATE:20190425 DESCRIPTION:Donna Sellers\, President\, John’s Foundation for Cushing’s Awa reness\, mother of a Cushing’s patient. Listen at http://www.blogtalkradio .com/cushingshelp/2008/06/19/interview-with-donna-sellers-mother-of-a-cush ings-patient X-ALT-DESC;FMTTYPE=text/html:Donna Sellers\, President\, John&rsquo\;s F oundation for Cushing&rsquo\;s Awareness\, mother of a Cushing&rsquo\;s pa tient.
CATEGORIES:Events and Meetings UID:20230925T1145380Z-549422-581@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 25 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200425;BYMONTH=4;BYMONTHDAY=25 DTSTART;VALUE=DATE:20170425 DTEND;VALUE=DATE:20170426 DESCRIPTION:Did you know that dogs and horses get Cushing's too? Horses an d dogs have similar symptoms to humans\, like muscle weakness in their leg s\, and central obesity. Horses' hair gets curly too! Read more at http:/ /www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-25.html X-ALT-DESC;FMTTYPE=text/html:Did you know that dogs and horses get Cushi
ng's too? \;
Horses and dogs have similar symptoms to human
s\, like muscle weakness in their legs\, and central obesity. \;Horse
s' hair gets curly too!
Read more at \;http://www.lifewithcushings.com/2017/04/cushings-awareness-chall enge-day-25.html
CATEGORIES:Awareness Challenge UID:20170426T1510210Z-549422-582@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170427 SUMMARY:Archived Second Interview: Alicia RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250426;BYMONTHDAY=27 DESCRIPTION:...my life has changed significantly since my last interview\, and I could talk about losing my job and applying for Social Security at s uch a young age. And the issues about self-esteem tied to a career\, and r isk of depression and isolation... Listen at https://cushieblogger.com/201 9/04/27/archived-second-interview-alicia/ X-ALT-DESC;FMTTYPE=text/html:...my life has changed significantly since my last interview\, and I could talk about losing my job and applying for Social Security at such a young age. And the issues about self-esteem tied to a career\, and risk of depression and isolation...
Listen at&n bsp\;https://cushieblogger.com/2019/04/27/archived- second-interview-alicia/
CATEGORIES:Events and Meetings UID:20190427T1706270Z-549422-583@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Myth: Even Though You Are Chronically Ill\, You Should Have The Sam e Amount Of Energy Every Day… DTSTART;VALUE=DATE:20170531 DTEND;VALUE=DATE:20170601 RRULE:FREQ=MONTHLY;UNTIL=20190426;BYDAY=-1WE EXDATE;VALUE=DATE:20190424 DESCRIPTION:Christine Miserandino (2010) uses the spoon theory to answer th e question\, “What does it feel like to be sick?” The spoons serve as a sy mbol for resources available and energy spent to get through every moment of every day. Read more at https://cushieblogger.com/2018/04/26/myths-and- facts-about-cushings-even-though-you-are-chronically-ill-you-should-have-t he-same-amount-of-energy-every-day/ X-ALT-DESC;FMTTYPE=text/html:Christine Miserandino (2010) uses the spoon theory to answer the question\, &ldquo\;What does it feel like to be sick ?&rdquo\; The spoons serve as a symbol for resources available and energy spent to get through every moment of every day.
CATEGORIES:Cushings UID:20180427T1028520Z-549422-584@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 26 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200426;BYMONTH=4;BYMONTHDAY=26 DTSTART;VALUE=DATE:20170426 DTEND;VALUE=DATE:20170427 DESCRIPTION:The Pituitary Network Association is one of my favorite resourc es for getting information about pituitary related things. They have publ ished a Patient's Bill of Rights that I have referred back to hundreds of times. I used to have it hanging at my desk at work. Read more at http:// www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-26.html X-ALT-DESC;FMTTYPE=text/html:The Pituitary Network Association is one of my favorite resources for getting information about pituitary related thi ngs. \;They have published a Patient's Bill of Rights that I have ref erred back to hundreds of times. \;I used to have it hanging at my de sk at work.
Read more at \;ht tp://www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-26. html
CATEGORIES:Awareness Challenge UID:20170428T1250470Z-549422-585@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170428 SUMMARY:Comment on “Kristi (kingskid)\, Undiagnosed Bio” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180428;BYMONTHDAY=28 DESCRIPTION:I am going through the same thing. I was diagnosed with MS in 2 008. They noticed the lesions on my brain when they did an MRI for migrain es\, then followed with a spinal tap\, which was also positive for MS. I t hought ” FINALLY” someone found out what is wrong with me….So I thought... . Read more at https://cushingsbios.com/2013/05/12/kristi-kingskid-undiagn osed-bio/ X-ALT-DESC;FMTTYPE=text/html:I am going through the same thing. I was di agnosed with MS in 2008. They noticed the lesions on my brain when they di d an MRI for migraines\, then followed with a spinal tap\, which was also positive for MS. I thought &rdquo\; FINALLY&rdquo\; someone found out what is wrong with me&hellip\;.So I thought....
Read more at \;https://cushingsbios.com/2013/05/12/kristi-kingskid-undi agnosed-bio/
CATEGORIES:Cushie Bios UID:20170428T1434520Z-549422-586@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Archived Interview: Charlie (creativeogre) DTSTART;VALUE=DATE:20170526 DTEND;VALUE=DATE:20170527 RRULE:FREQ=MONTHLY;UNTIL=20210428;BYDAY=-1FR DESCRIPTION:Charlie is not yet diagnosed with Cushing’s but has many sympto ms. He writes\, in part\, “I understand that Cushing’s Disease is a very d ifficult disease to diagnose. However\, it seems as though we have had to guide doctors through this process over the past year. If I sound bitter a nd frustrated\, it is because I am! I have not been able to work over the past year. Tasks that used to take me several hours to complete now take t wo days. I can no longer walk the dog. I do not sleep well at night..” Lis ten at https://cushieblogger.com/2019/04/28/archived-interview-charlie-cre ativeogre/ X-ALT-DESC;FMTTYPE=text/html:Charlie is not yet diagnosed with Cushing&r squo\;s but has many symptoms. He writes\, in part\, &ldquo\;I understand that Cushing&rsquo\;s Disease is a very difficult disease to diagnose. How ever\, it seems as though we have had to guide doctors through this proces s over the past year. If I sound bitter and frustrated\, it is because I a m! I have not been able to work over the past year. Tasks that used to tak e me several hours to complete now take two days. I can no longer walk the dog. I do not sleep well at night..&rdquo\;
Listen at \;https://cushieblogger.com/2019/04/28/archived-int erview-charlie-creativeogre/
CATEGORIES:Events and Meetings UID:20190428T2234440Z-549422-587@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 27 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200427;BYMONTH=4;BYMONTHDAY=27 DTSTART;VALUE=DATE:20170427 DTEND;VALUE=DATE:20170428 DESCRIPTION:It is hard to be a good friend when you are sick. Illness is a ll consuming. Not many people my age really understand that. At 30-somet hing\, most are consumed with careers\, finding who you want to spend your life with\, having kids\, even buying homes. Illness is a foreign subjec t. No one knows what to say when I bring up anything health related. The room gets quiet. On the other hand\, illness is my whole life. I don't know anything about having a real career\, having a boyfriend\, buying an ything major\, let alone a home. And kids are not even on my radar yet. My life is filled with medications.. Read more at http://www.lifewithcushi ngs.com/2017/04/cushings-awareness-challenge-day-27.html X-ALT-DESC;FMTTYPE=text/html:It is hard to be a good friend when you are
sick. \;Illness is all consuming. \;Not many people my age real
ly understand that. \;At 30-something\, most are consumed with career
s\, finding who you want to spend your life with\, having kids\, even buyi
ng homes. \;Illness is a foreign subject. \;No one knows what to
say when I bring up anything health related. \;The room gets quiet.
\;
On the other hand\, illness is my whole life. \;I
don't know anything about having a real career\, having a boyfriend\, buyi
ng anything major\, let alone a home. \;And kids are not even on my r
adar yet. \;My life is filled with medications..
Read more at \;http://www.lifewithcushings.com/20 17/04/cushings-awareness-challenge-day-27.html
CATEGORIES:Awareness Challenge UID:20170429T1155250Z-549422-588@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Archived Interview: Kate (Fairley) DTSTART;VALUE=DATE:20170527 DTEND;VALUE=DATE:20170528 RRULE:FREQ=MONTHLY;UNTIL=20250428;BYDAY=-1SA DESCRIPTION:Kate (Fairley)\, July 17\, 2008. Kate had symptoms since 1991. She had two pituitary surgeries and another recurrence. She is not yet cur ed and her current diagnoses are Idiopathic Intracranial Hypertension\, pa nhypopituitarism and a CSF leak. She has appeared on National Geographic T V in the Science of Obesity. Listen at https://cushieblogger.com/2019/04/2 9/archived-interview-kate-fairley/ Sadly\, Kate was only 46 when she died on June 23\, 2014. Her bio and video can be found here: https://cushingsb ios.com/2015/06/23/1623/ X-ALT-DESC;FMTTYPE=text/html:Kate (Fairley)\, July 17\, 2008. Kate had s ymptoms since 1991. She had two pituitary surgeries and another recurrence . She is not yet cured and her current diagnoses are Idiopathic Intracrani al Hypertension\, panhypopituitarism and a CSF leak. She has appeared on N ational Geographic TV in the Science of Obesity.
Listen at \;< a href='https://cushieblogger.com/2019/04/29/archived-interview-kate-fairl ey/' target='_blank'>https://cushieblogger.com/2019/04/29/archived-intervi ew-kate-fairley/
Sadly\, Kate was only 46 when she died on Jun e 23\, 2014. \;Her bio and video can be found here: \;https://cushingsbios.com/2015/06/23/1623/
CATEGORIES:Events and Meetings UID:20190429T1712560Z-549422-589@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170426 SUMMARY:Cushing’s Myths and Facts: “Vitamins and Natural Remedies can cure/ heal Cushing’s” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300428;BYMONTHDAY=26 DESCRIPTION:Do you know how many people have told me that if I just “juice” \, I will be cured from Cushing’s or Adrenal Insufficiency?! I appreciate the sentiment\, but the sad reality is that no amount of juicing and no vi tamin will cure Cushing’s. Some Cushing’s patients do take vitamins\, some do eat raw food or paleo diets\, and some even juice. However\, this is j ust a lifestyle choice and not an attempt to cure Cushing’s. Read more at https://cushieblogger.com/2022/04/29/myth-vitamins-and-natural-remedies-c an-cure-heal-cushings/ X-ALT-DESC;FMTTYPE=text/html:Do you know how many people have told me th at if I just &ldquo\;juice&rdquo\;\, I will be cured from Cushing&rsquo\;s or Adrenal Insufficiency?! I appreciate the sentiment\, but the sad reali ty is that no amount of juicing and no vitamin will cure Cushing&rsquo\;s. Some Cushing&rsquo\;s patients do take vitamins\, some do eat raw food or paleo diets\, and some even juice. However\, this is just a lifestyle cho ice and not an attempt to cure Cushing&rsquo\;s. \;
Read more at \;https://cushieblo gger.com/2022/04/29/myth-vitamins-and-natural-remedies-can-cure-heal-cushi ngs/
CATEGORIES:Cushings UID:20220430T1143050Z-549422-590@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comparison of MRI techniques for detecting microadenomas in Cushing 's disease DTSTART;VALUE=DATE:20170527 DTEND;VALUE=DATE:20170528 RRULE:FREQ=MONTHLY;UNTIL=20180429;BYDAY=-1SA DESCRIPTION:This study was a blinded assessment of pituitary MRI in patient s with proven Cushing's disease. Read more at https://cushieblog.com/2017/ 04/29/comparison-of-mri-techniques-for-detecting-microadenomas-in-cushings -disease/ X-ALT-DESC;FMTTYPE=text/html:This study was a blinded assessment of pitu itary MRI in patients with proven Cushing's disease.
Read more at& nbsp\;http s://cushieblog.com/2017/04/29/comparison-of-mri-techniques-for-detecting-m icroadenomas-in-cushings-disease/
CATEGORIES:News Items UID:20170429T1256370Z-549422-591@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:South Korea fines Novartis $49M over kickbacks\, suspends insurance payment DTSTART;VALUE=DATE:20170506 DTEND;VALUE=DATE:20170507 RRULE:FREQ=WEEKLY;UNTIL=20170629;INTERVAL=2;BYDAY=SA DESCRIPTION:South Korea said on Thursday it has fined Swiss drugmaker Novar tis 55.1 billion won ($48.80 million) for offering doctors kickbacks to re commend the company's drugs\, and also suspended insurance coverage for so me of its drugs. Read more at https://www.mdlinx.com/pulmonology/top-medic al-news/article/2017/04/28/7151773?utm_source=in-house&utm_medium=message& utm_campaign=todays-news-ap-april17-pulm X-ALT-DESC;FMTTYPE=text/html:South Korea said on Thursday it has fined S wiss drugmaker Novartis 55.1 billion won ($48.80 million) for offering doc tors kickbacks to recommend the company's drugs\, and also suspended insur ance coverage for some of its drugs.
CATEGORIES:News Items UID:20170708T1427020Z-549422-592@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170429 SUMMARY:Interview with Katie (kvb927) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250429;BYMONTHDAY=29 DESCRIPTION:Katie’s short bio: Symptoms started in 2002 at age 22\, or befo re. Jan. 2008 – 2 mm. area of differential enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 – DX – hypothalamic ame norrhea Mar. 2008 – DX – pituitary adenoma\, hypogonadism – female. Listen at http://www.blogtalkradio.com/cushingshelp/2008/07/24/interview-with-ka tie-kvb927 X-ALT-DESC;FMTTYPE=text/html:Katie&rsquo\;s short bio: Symptoms started in 2002 at age 22\, or before. Jan. 2008 &ndash\; 2 mm. area of differenti al enhancement on right pituitary and 11 mm. pineal cyst identified by MRI Jan. 2008 &ndash\; DX &ndash\; hypothalamic amenorrhea Mar. 2008 &ndash\; DX &ndash\; pituitary adenoma\, hypogonadism &ndash\; female.
Lis ten at \;ht tp://www.blogtalkradio.com/cushingshelp/2008/07/24/interview-with-katie-kv b927
CATEGORIES:Events and Meetings UID:20180430T0120490Z-549422-593@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Awareness Challenge - Day 28 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200428;BYMONTH=4;BYMONTHDAY=28 DTSTART;VALUE=DATE:20170428 DTEND;VALUE=DATE:20170429 DESCRIPTION:Many people with Cushing's\, adrenal insufficiency\, lupus\, an d other chronic illnesses cannot work due to their disability. It is not e asy to apply for disability. There is a lot of paperwork involved\, which can be hard emotionally to write about how much your illness limits you. Y ou have to talk to all of your doctors\, and get their support. Sometimes\ , even they will not understand the full picture. .. Read more at http:/ /www.lifewithcushings.com/2017/04/cushings-awareness-challenge-day-29.html X-ALT-DESC;FMTTYPE=text/html:Part 1. \;Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing&rsquo\;s. They also discussed popular doctor blogs and other topics of interest to Cushin g&rsquo\;s Patients.
Listen at \;http://www.blogtalkradio.com/cushingshe lp/2008/08/21/tentative-interview-with-joselle
\;
Part 2. \; \;Robin and MaryO discuss the role of blogs in helping to spread the word about Cushing&rsquo\;s. They also discuss popular doct or blogs and other topics of interest to Cushing&rsquo\;s Patients\, frien ds and family.
CATEGORIES:Events and Meetings UID:20180430T1743530Z-549422-595@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Day 30\, Cushing’s Awareness Challenge 2020 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250430;BYMONTH=4;BYMONTHDAY=30 DTSTART;VALUE=DATE:20170430 DTEND;VALUE=DATE:20170501 DESCRIPTION:Today is the final day of the Cushing’s Awareness Challenge and I wanted to leave you with this word of advice… To that end\, I’m saving some of what I know for future blog posts\, maybe even another Cushing’s A wareness Challenge next year. Read more at https://cushieblogger.com/2020/ 04/30/day-30-cushings-awareness-challenge-2020/ X-ALT-DESC;FMTTYPE=text/html:Today is the final day of the Cushing&rsquo \;s Awareness Challenge and I wanted to leave you with this word of advice &hellip\;
To that end\, I&rsquo\;m saving some of what I kno
w for future blog posts\, maybe even another Cushing&rsquo\;s Awareness Ch
allenge next year.
Read more at \;https://cushieblogger.com/2020/04/30/day-30-cushings-awareness-challeng e-2020/
CATEGORIES:Awareness Challenge UID:20200501T0902170Z-549422-596@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170501 SUMMARY:Aimee\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180501;BYMONTHDAY=1 DESCRIPTION:Aimee is the daughter of a Cushing's patient\, Pat. Pat was du e to have a BLA in February 2008. She has also had two back fusions\, two knee replacements\, pituitary surgery\, gamma knife and chemical treatmen t. Read more at https://cushingsbios.com/2017/05/01/aimee-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Aimee is the daughter of a Cushing's patien t\, Pat. \;Pat was due to have a BLA in February 2008. \;She has also had two back fusions\, two knee replacements\, pituitary surgery\, g amma knife and chemical treatment.
Read more at \;https ://cushingsbios.com/2017/05/01/aimee-adrenal-bio/
CATEGORIES:Cushie Bios UID:20170501T2111010Z-549422-597@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170501 SUMMARY:Interview with Gracie (Fatnsassy) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190501;BYMONTHDAY=1 DESCRIPTION:Gracie says: 'I've been having symptoms of Cushing's at least 1 4 yrs. I began testing with Dr. F. June\, 2007. I was diagnosed in May\, 2 008 with cyclical Cushing's disease. I have surgery coming up soon. I'm go ing to see Dr. J. next Monday\, and I'll get my surgery date that day\, so I will know by the night of the program\, when I am going to surgery.) Le t me know if you need more info.' Listen at http://www.blogtalkradio.com/c ushingshelp/2008/07/31/interview-with-gracie-fatnsassy X-ALT-DESC;FMTTYPE=text/html:Gracie says: 'I've been having symptoms of Cushing's at least 14 yrs. I began testing with Dr. F. June\, 2007. I was diagnosed in May\, 2008 with cyclical Cushing's disease. I have surgery co ming up soon. I'm going to see Dr. J. next Monday\, and I'll get my surger y date that day\, so I will know by the night of the program\, when I am g oing to surgery.) Let me know if you need more info.'
Listen at&nb sp\;http://www.blogtalkradio.com/cush ingshelp/2008/07/31/interview-with-gracie-fatnsassy
CATEGORIES:Events and Meetings UID:20170501T2235560Z-549422-598@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Crystal\, Pseudo Cushing's Bio DTSTART;VALUE=DATE:20170607 DTEND;VALUE=DATE:20170608 RRULE:FREQ=MONTHLY;UNTIL=20180503;BYDAY=1WE DESCRIPTION:Crystal is from Spruce Pine\, North Carolina. She was originall y diagnosed with pseudo Cushing's. After broken bones she got to NIH (the National Institutes of Health) but they couldn't find the tumor\, although they believe it's behind a hernia. Surgery is too risky and Crystal is co ntemplating a BLA. Read more at https://cushingsbios.com/2017/05/03/crysta l-pseudo-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:Crystal is from Spruce Pine\, North Carolin a. She was originally diagnosed with pseudo Cushing's. After broken bones she got to NIH (the National Institutes of Health) but they couldn't find the tumor\, although they believe it's behind a hernia. Surgery is too ris ky and Crystal is contemplating a BLA.
Read more at \;https://cushingsbios.com/2017/05/03/crystal-pseudo-cushings-bio/< /a>
CATEGORIES:Cushie Bios UID:20170503T1353080Z-549422-599@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Topical Steroid Use in Psoriasis Patient Leads to Severe Adrenal In sufficiency DTSTART;VALUE=DATE:20170602 DTEND;VALUE=DATE:20170603 RRULE:FREQ=MONTHLY;UNTIL=20180505;BYDAY=1FR DESCRIPTION:The patient was a 63-year-old white male with a 23-year history of psoriasis. For 18 years\, the patient had been applying Clobetasol Pro pionate 0.05% topically on several areas of his body every day. Upon prese ntation to the endocrine clinic for evaluation of his low serum cortisol\, the patient complained of a 24-pound weight gain over a 2-year period\, f eeling fatigued\, as well as facial puffiness... Read more at https://cush ieblog.com/2017/05/05/topical-steroid-use-in-psoriasis-patient-leads-to-se vere-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:The patient was a 63-year-old white male wi th a 23-year history of psoriasis. For 18 years\, the patient had been app lying Clobetasol Propionate 0.05% topically on several areas of his body e very day. Upon presentation to the endocrine clinic for evaluation of his low serum cortisol\, the patient complained of a 24-pound weight gain over a 2-year period\, feeling fatigued\, as well as facial puffiness...
Read more at \;https://cushieblog.com/2017/05/05/topical-steroid-use-in-pso riasis-patient-leads-to-severe-adrenal-insufficiency/
CATEGORIES:News Items UID:20170505T1240340Z-549422-600@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170505 SUMMARY:JoAnn (Flojo3)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180505;BYMONTHDAY=5 DESCRIPTION:JoAnn (Flojo3) is from Thunder Bay\, Canada. During a kidney ul trasound it was found that JoAnn has an abnormality in her adrenal glands. Read more at https://cushingsbios.com/2017/05/05/joann-flojo3-adrenal-bio / X-ALT-DESC;FMTTYPE=text/html:JoAnn (Flojo3) is from Thunder Bay\, Canada . During a kidney ultrasound it was found that JoAnn has an abnormality in her adrenal glands.
Read more at \;https://cush ingsbios.com/2017/05/05/joann-flojo3-adrenal-bio/
CATEGORIES:Cushie Bios UID:20170505T1445510Z-549422-601@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Corcept Therapeutics Announces Presentations on Mifepristone for th e Treatment of Patients with Hypercortisolism DTSTART;VALUE=DATE:20170603 DTEND;VALUE=DATE:20170604 RRULE:FREQ=MONTHLY;UNTIL=20180506;BYDAY=1SA DESCRIPTION:'There is growing awareness that even less severe degrees of hy percortisolism are harmful\,' said Joseph K. Belanoff\, M.D.\, Corcept's C hief Executive Officer. 'As a result\, physicians are increasingly screeni ng patients whose metabolic and cardiovascular symptoms have not responded to conventional therapy and finding cases of previously undetected Cushin g's syndrome.' Read more at https://cushieblog.com/2017/05/06/corcept-ther apeutics-announces-presentations-on-mifepristone-for-the-treatment-of-pati ents-with-hypercortisolism/ X-ALT-DESC;FMTTYPE=text/html:'There is growing awareness that even less severe degrees of hypercortisolism are harmful\,' said Joseph K. Belanoff\ , M.D.\, Corcept's Chief Executive Officer. 'As a result\, physicians are increasingly screening patients whose metabolic and cardiovascular symptom s have not responded to conventional therapy and finding cases of previous ly undetected Cushing's syndrome.'
CATEGORIES:News Items UID:20170506T1438250Z-549422-602@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170506 SUMMARY:Cushing’s appears to begin its cardiovascular effects during childh ood RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180506;BYMONTHDAY=6 DESCRIPTION:Children as young as 6 years old with the disorder already may show signs of cardiovascular remodeling\, with stiffer aortas and higher a ortic pulse-wave velocity than do age-matched controls... Read more at htt ps://cushieblog.com/2017/05/06/cushings-appears-to-begin-its-cardiovascula r-effects-during-childhood/ X-ALT-DESC;FMTTYPE=text/html:Children as young as 6 years old with the d isorder already may show signs of cardiovascular remodeling\, with stiffer aortas and higher aortic pulse-wave velocity than do age-matched controls ...
Read more at \;https://cushieblog.com/2017/05/06/cushings-appears-to-begin- its-cardiovascular-effects-during-childhood/
CATEGORIES:News Items UID:20170506T1437480Z-549422-603@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Primary Adrenal Insufficiency (PAI) DTSTART;VALUE=DATE:20170603 DTEND;VALUE=DATE:20170604 RRULE:FREQ=MONTHLY;UNTIL=20190506;BYDAY=1SA DESCRIPTION:Primary adrenal insufficiency (PAI) in children is an uncommon\ , but potentially fatal. The current symptoms include weakness\, fatigue\, anorexia\, abdominal pain\, weight loss\, orthostatic hypotension\, salt craving and characterized by hyperpigmentation. Read more at https://cushi eblog.com/2017/05/06/primary-adrenal-insufficiency-pai/ X-ALT-DESC;FMTTYPE=text/html:Primary adrenal insufficiency (PAI) in chil dren is \;an uncommon\, \;but potentially fatal. The current sympt oms include weakness\, fatigue\, anorexia\, abdominal pain\, weight loss\, orthostatic hypotension\, salt craving and characterized by hyperpigmenta tion.
Read more at \;https://cushieblog.c om/2017/05/06/primary-adrenal-insufficiency-pai/
CATEGORIES:News Items UID:20170506T1502350Z-549422-604@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170509 SUMMARY:Basal Cortisol Elevated in Patients with ACTH-Staining Pituitary Ma croadenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180509;BYMONTHDAY=9 DESCRIPTION:We hypothesized that patients with subclinical Cushing's diseas e or silent ACTH-secreting tumors would have a higher delta cortisol on th e ACTH stimulation tests vs. other types of macroadenoma pathologies Read more at https://cushieblog.com/2017/05/09/basal-cortisol-elevated-in-patie nts-with-acth-staining-pituitary-macroadenoma/ X-ALT-DESC;FMTTYPE=text/html:We hypothesized that patients with subclini cal Cushing's disease or silent ACTH-secreting tumors would have a higher delta cortisol on the ACTH stimulation tests vs. other types of macroadeno ma pathologies
Read more at \;https://cushieblog.com/2017/05/09/basal-c ortisol-elevated-in-patients-with-acth-staining-pituitary-macroadenoma/
CATEGORIES:News Items UID:20170509T1302070Z-549422-605@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:John Desmond Bernal was born in 1901 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200510;BYMONTH=5;BYMONTHDAY=10 DTSTART;VALUE=DATE:20000510 DTEND;VALUE=DATE:20000511 DESCRIPTION:(1901) One of the UK’s most well-known and controversial scient ists\, John Desmond Bernal\, was born. He worked and published extensively on many science topics\, including vitamin D\, vitamin B\, cholesterol\, and the origin of life. X-ALT-DESC;FMTTYPE=text/html:(1901) One of the UK&rsquo\;s most well-kno wn and controversial scientists\, John Desmond Bernal\, was born. He worke d and published extensively on many science topics\, including vitamin D\, vitamin B\, cholesterol\, and the origin of life.
CATEGORIES:This Day in Medical History UID:20170513T1528280Z-549422-606@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170515 SUMMARY:Victoria (Victoria)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180515;BYMONTHDAY=15 DESCRIPTION:Victoria is from Texas and just finished her first year of coll ege. She has many Cushing's symptoms and is awaiting results of blood and urine testing. Read more at https://cushingsbios.com/2017/05/15/victoria- victoria-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Victoria is from Texas and just finished he r first year of college. \;She has many Cushing's symptoms and is awa iting results of blood and urine testing.
Read more at \;https://cushingsbios.com/2017/05/15/victoria-victoria-un diagnosed-bio/
CATEGORIES:Cushie Bios UID:20170515T0947100Z-549422-607@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Testimonial from Victoria DTSTART;VALUE=DATE:20170619 DTEND;VALUE=DATE:20170620 RRULE:FREQ=MONTHLY;UNTIL=20180515;BYDAY=3MO DESCRIPTION:I would first like to say how happy i am that this website exis ts it makes me feel so much better that others have gone through what i am currently experiencing and have made amazing recoveries! Read more at ht tps://cushieblogger.com/testimonial/victoria/ X-ALT-DESC;FMTTYPE=text/html:I would first like to say how happy \;i \;am that this website exists it makes me feel so much better that ot hers have gone through what \;i \;am currently experiencing and ha ve made amazing recoveries! \;
Read more at \;https://cush ieblogger.com/testimonial/victoria/
CATEGORIES:Cushie Bios UID:20170515T0954320Z-549422-608@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Kathryn (Kathryn)\, Pituitary Bio DTSTART;VALUE=DATE:20170621 DTEND;VALUE=DATE:20170622 RRULE:FREQ=MONTHLY;UNTIL=20180517;BYDAY=3WE DESCRIPTION:(Golden Oldie) Kathryn is from West Yorkshire\, England. She ha d a pituitary adenoma removed and is on replacement of cortisol\, thyroxin e and soon to be on growth hormone. She was to be having a hip replacement . Read more at https://cushingsbios.com/2017/05/17/kathryn-kathryn-pituita ry-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Kathryn is from West Yorkshi re\, England. She had a pituitary adenoma removed and is on replacement of cortisol\, thyroxine and soon to be on growth hormone. \;She was to b e having a hip replacement.
Read more at \; https://cushingsbios.com/2017/05/17/kathryn-kathryn-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170517T1002540Z-549422-609@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170518 SUMMARY:Danielle\, Undiagnosed (Cyclical Cushing's) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180518;BYMONTHDAY=18 DESCRIPTION:Danielle is from Toronto\, Canada. She has been having Cushing' s symptoms since May-Aug 2013 when she was 17-18. A T3 MRI of her pituita ry showed an enlargement of the right side of her pituitary gland. Read mo re at https://cushingsbios.com/2017/05/18/danielle-undiagnosed-cyclical-cu shings/ X-ALT-DESC;FMTTYPE=text/html:Danielle is from Toronto\, Canada. She has been having Cushing's symptoms since May-Aug 2013 when she was 17-18. &nbs p\;A T3 MRI of her pituitary showed an enlargement of the right side of he r pituitary gland.
Read more at \; https://cushingsbios.com/2017/05/18/danielle-undiagnosed-cyclical-cushings /
CATEGORIES:Cushie Bios UID:20170518T1959470Z-549422-610@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170519 SUMMARY:9 Tips For Safe Travel With Diabetes (or other conditions) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180519;BYMONTHDAY=19 DESCRIPTION:Many of these tips work for Cushing's patients on Growth Hormon e\, as well. Read more at https://maryomedical.com/2017/05/19/9-tips-for-s afe-travel-with-diabetes/ X-ALT-DESC;FMTTYPE=text/html:Many of these tips work for Cushing's patie nts on Growth Hormone\, as well.
Read more at \;https://maryomedical.com/2017/05/19/9-tips-for-safe-travel-wit h-diabetes/
CATEGORIES:Other Medical UID:20170519T1721130Z-549422-611@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:NIH Clinical Center: Facts at a Glance DTSTART;VALUE=DATE:20170617 DTEND;VALUE=DATE:20170618 RRULE:FREQ=MONTHLY;UNTIL=20180520;BYDAY=3SA DESCRIPTION:As a research facility\, only patients with the precise kind or stage of illness under investigation are admitted for treatment at the NI H Clinical Center. There are no labor and delivery services and no other s ervices common to community hospitals. Read more at https://www.cc.nih.gov /about/welcome/fact.html X-ALT-DESC;FMTTYPE=text/html:As a research facility\, only patients with the precise kind or stage of illness under investigation are admitted for treatment at the NIH Clinical Center. There are no labor and delivery ser vices and no other services common to community hospitals.
Read mo re at \;https://www.cc.nih.gov/about/welcome/fact.html
CATEGORIES:Other Medical UID:20170520T1635400Z-549422-612@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170521 SUMMARY:Cushing's Testing at NIH RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180521;BYMONTHDAY=21 DESCRIPTION:Currently recruiting clinical trials at the NIH (National Insti tutes of Health) Read more at https://cushieblog.com/2017/05/21/cushings-t esting-at-nih/ X-ALT-DESC;FMTTYPE=text/html:Currently recruiting clinical trials at the NIH (National Institutes of Health)
Read more at \;https://cushieblog.com/2017/05/21/cushings-testing-at-nih/
CATEGORIES:Cushings UID:20170521T2354460Z-549422-613@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Interview with Sheryl (sherylr) DTSTART;VALUE=DATE:20170618 DTEND;VALUE=DATE:20170619 RRULE:FREQ=MONTHLY;UNTIL=20180521;BYDAY=3SU DESCRIPTION:Sheryl had adrenal surgery (BLA) in 1974. Read more at https:// cushingsbios.com/2017/05/21/sheryl-adrenal-patient/ X-ALT-DESC;FMTTYPE=text/html:Sheryl had adrenal surgery (BLA) in 1974.
Read more at \;https://cushingsbios.com/2017/05/21/ sheryl-adrenal-patient/
CATEGORIES:Cushie Bios UID:20170522T0013210Z-549422-614@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170521 SUMMARY:Interview with Sheryl (sherylr) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180521;BYMONTHDAY=21 DESCRIPTION:Sheryl talked about what it’s been like living with Addison’s a fter a BLA – for over 30 years. Read Sheryl’s bio at https://cushingsbios. com/2017/05/21/sheryl-adrenal-patient/ Listen at http://www.blogtalkradio. com/cushingshelp/2008/08/07/interview-with-ashleigh-marinewife05 X-ALT-DESC;FMTTYPE=text/html:Sheryl talked about what it&rsquo\;s been l ike living with Addison&rsquo\;s after a BLA &ndash\; for over 30 years.
Read Sheryl&rsquo\;s bio at \;https://cushingsbios.com/2017/05/21/sheryl-adrenal-patient/
Listen at \;http://www.blogtalkradio.com/cushingshelp/2008/08/07/intervie w-with-ashleigh-marinewife05
CATEGORIES:Events and Meetings UID:20170522T0019260Z-549422-615@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register Now for Johns Hopkins Pituitary Day! DTSTART;VALUE=DATE:20170606 DTEND;VALUE=DATE:20170607 RRULE:FREQ=WEEKLY;UNTIL=20171017;INTERVAL=2;BYDAY=TU DESCRIPTION:The 9th annual Pituitary Day will take place on October 14\, 20 17. Patients living with pituitary disorders can hear lectures from our pi tuitary specialists\, see movies of pituitary surgeries and hear from othe r patients about their experience living with pituitary disease and underg oing surgery. Read more at https://cushieblogger.com/2017/05/23/register-n ow-for-johns-hopkins-pituitary-day/ X-ALT-DESC;FMTTYPE=text/html:The 9th annual Pituitary Day will take plac e on October 14\, 2017. Patients living with pituitary disorders can hear lectures from our pituitary specialists\, see movies of pituitary surgerie s and hear from other patients about their experience living with pituitar y disease and undergoing surgery.
Read more at \;https://cushieblogger.com/2017/05/23/register-now-fo r-johns-hopkins-pituitary-day/
CATEGORIES:Events and Meetings UID:20170523T1529550Z-549422-616@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170523 SUMMARY:Sloan Kettering Clinical Trials & Research RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180523;BYMONTHDAY=23 DESCRIPTION:Clinical trials are research studies that test new treatments t o see how well they work. Our Pituitary and Skull Base Tumor Center is lea ding clinical trials investigating new medical therapies for patients with Cushing’s disease and acromegaly. They are also involved in quality-of-li fe studies aimed at improving long-term follow-up care for patients who ne ed it. Read more at http://www.cushie.info/index.php/clinical-trials/214 -sloan-kettering-new-york-city-clinical-trials-research X-ALT-DESC;FMTTYPE=text/html:Clinical trials are research studies that t est new treatments to see how well they work. Our \;Pituitary and Skull Base Tumor Center \;is leading clinical trials investigating new medical therapies for patients with Cushing&rsquo\;s disease and acromegaly. They are also invo lved in quality-of-life studies aimed at improving long-term follow-up car e for patients who need it.
\;
Read more at \;http://www.cushie .info/index.php/clinical-trials/214-sloan-kettering-new-york-city-clinical -trials-research
CATEGORIES:Cushings UID:20170524T0137180Z-549422-617@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:A retrospective analysis of postoperative hypokalemia in pituitary adenomas after transsphenoidal surgery DTSTART;VALUE=DATE:20170627 DTEND;VALUE=DATE:20170628 RRULE:FREQ=MONTHLY;UNTIL=20180523;BYDAY=4TU DESCRIPTION:Pituitary adenoma is one of the most common intracranial neopla sms\, and its primary treatment is endoscopic endonasal transsphenoidal tu morectomy. Postoperative hypokalemia in these patients is a common complic ation\, and is associated with morbidity and mortality. This study aimed t o analyze the etiopathology of postoperative hypokalemia in pituitary aden omas after endoscopic transsphenoidal surgery. Read more at https://cushie blog.com/2017/05/23/a-retrospective-analysis-of-postoperative-hypokalemia- in-pituitary-adenomas-after-transsphenoidal-surgery/ X-ALT-DESC;FMTTYPE=text/html:Pituitary \;adenoma is one of the most common intracranial neoplasms\, and its primary treatment is endoscopic en donasal transsphenoidal tumorectomy. Postoperative hypokalemia in these pa tients is a common \;complication\, \;and is associated with morbi dity and mortality. This study aimed to analyze the etiopathology of posto perative hypokalemia in pituitary adenomas after endoscopic transsphenoida l surgery.
CATEGORIES:Cushings UID:20170524T0148470Z-549422-618@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Register for Webinar: Make Sense of Your Dollars DTSTART;VALUE=DATE:20170607 DTEND;VALUE=DATE:20170608 RRULE:FREQ=WEEKLY;UNTIL=20170613;INTERVAL=2;BYDAY=WE DESCRIPTION:A rare disease diagnosis is something that no one can plan or p repare for and it can often lead to financial burdens\, but with the right guidance in financial planning\, you can overcome these budgeting obstacl es. Listen in to hear professionals in finance guide you through money man agement and budget preparation. More information at https://cushieblogger. com/2017/05/24/webinar-make-sense-of-your-dollars/ X-ALT-DESC;FMTTYPE=text/html:A rare disease diagnosis is something that no one can plan or prepare for and it can often lead to financial burdens\ , but with the right guidance in financial planning\, you can overcome the se budgeting obstacles. Listen in to hear professionals in finance guide y ou through money management and budget preparation.
More informati on at \;https://cushieblogger.com/2017/05/24/ webinar-make-sense-of-your-dollars/
CATEGORIES:Events and Meetings UID:20170524T2334410Z-549422-619@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20170613T100000 DTEND;TZID=America/New_York:20170613T110000 SUMMARY:Webinar: Make Sense of Your Dollars DESCRIPTION:A rare disease diagnosis is something that no one can plan or p repare for and it can often lead to financial burdens\, but with the right guidance in financial planning\, you can overcome these budgeting obstacl es. Listen in to hear professionals in finance guide you through money man agement and budget preparation. More information at https://cushieblogger. com/2017/05/24/webinar-make-sense-of-your-dollars/ X-ALT-DESC;FMTTYPE=text/html:A rare disease diagnosis is something that no one can plan or prepare for and it can often lead to financial burdens\ , but with the right guidance in financial planning\, you can overcome the se budgeting obstacles. Listen in to hear professionals in finance guide y ou through money management and budget preparation.
More informati on at \;https://cushieblogger.com/2017/05/24/ webinar-make-sense-of-your-dollars/
CATEGORIES:Events and Meetings UID:20170524T2335450Z-549422-620@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170525 SUMMARY:Cushie Memories RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180525;BYMONTHDAY=25 DESCRIPTION:It makes me sad just thinking about that conference. Since tha t time\, three of my close Cushie friends in attendance have died. Sue\, Natalie\, and Diana. Cookie had died the previous year but she had also b een a force to reckon with. All died too young. All the Cushies who have died have been too young. I hate this disease/syndrome. Read more at http ://www.maryo.co/nashville/ X-ALT-DESC;FMTTYPE=text/html:It makes me sad just thinking about that co nference. \;Since that time\, three of my close Cushie friends in att endance have died. \;Sue< /a>\, \;Natalie\ , and \;Diana. \;Cookie&nbs p\;had died the previous year but she had also been a force to reckon with . All died too young. \;All the \;Cushies& nbsp\;who have died \;have been too young. \;I hate this dise ase/syndrome.
Read more at \;http://www.maryo.co/nashville/
CATEGORIES:In Memory UID:20170525T1811410Z-549422-621@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Melissa\, Pituitary Bio DTSTART;VALUE=DATE:20170629 DTEND;VALUE=DATE:20170630 RRULE:FREQ=MONTHLY;UNTIL=20180525;BYDAY=-1TH DESCRIPTION:Melissa (Melissa) is from Franklin\, Kentucky. She had a pituit ary tumor removed but had symptoms return after 10 years. Read more at htt ps://cushingsbios.com/2017/05/25/melissa-pituitary-bio-2/ X-ALT-DESC;FMTTYPE=text/html:Melissa (Melissa) is from Franklin\, Kentuc ky. She had a pituitary tumor removed but had symptoms return after 10 yea rs.
Read more at \;https://cushingsbios.com/2017/ 05/25/melissa-pituitary-bio-2/
CATEGORIES:Cushie Bios UID:20170525T2235160Z-549422-622@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cortisol: Chronic Stress Increases the Risk of Early Puberty DTSTART;VALUE=DATE:20170626 DTEND;VALUE=DATE:20170627 RRULE:FREQ=MONTHLY;UNTIL=20180529;BYDAY=-1MO DESCRIPTION:Hair cortisol concentration\, a biomarker of chronic stress\, i s associated with early breast development in girls and increased testicul ar volume in boys. Read more at https://cushieblog.com/2017/05/29/cortisol -chronic-stress-increases-the-risk-of-early-puberty/ X-ALT-DESC;FMTTYPE=text/html:Hair cortisol concentration\, a biomarker o f chronic stress\, is associated with early breast development in girls an d increased testicular volume in boys.
Read more at \;https://cushieblog.com/2017/05/29/c ortisol-chronic-stress-increases-the-risk-of-early-puberty/
CATEGORIES:News Items UID:20170529T1450240Z-549422-623@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:NIH researchers find potential genetic cause of Cushing syndrome DTSTART;VALUE=DATE:20170706 DTEND;VALUE=DATE:20170707 RRULE:FREQ=MONTHLY;UNTIL=20180601;BYDAY=1TH,3TH DESCRIPTION:Finding may lead to therapies that prevent pituitary tumor recu rrence. Read more at https://www.nih.gov/news-events/nih-researchers-fin d-potential-genetic-cause-cushing-syndrome X-ALT-DESC;FMTTYPE=text/html:Finding may lead to therapies that prevent pituitary tumor recurrence.
\;
Read more at \;https://www.nih.gov/news-events /nih-researchers-find-potential-genetic-cause-cushing-syndrome
CATEGORIES:Cushings UID:20170601T1549340Z-549422-624@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170603 SUMMARY:Cataloging Cushing's Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180603;BYMONTHDAY=3 DESCRIPTION:Harvey Cushing\, the pioneer and father of neurosurgery\, was b orn on April 8\, 1869 in Cleveland\, Ohio. He graduated from Yale Universi ty in 1891\, studied medicine at Harvard Medical School and received his m edical degree in 1895. In 1896\, he moved to Johns Hopkins Hospital where he trained to become a surgeon under the watchful eye of William S. Halste ad\, the father of American surgery. By 1899 Cushing became interested in surgery of the nervous system and began his career in neurosurgery. During his tenure at Johns Hopkins\, there were countless discoveries in the fie ld of neuroscience. In 1913\, Cushing relocated to Harvard as the surgeon- in-chief at the new Peter Bent Brigham Hospital. Cushing continued to oper ate on several hundred patients a year with remarkable results. In additi on he was relentless in his recording of patient histories and continued h is careful attention to the details and documentation of each surgery. Rea d more at https://cushieblog.com/2017/06/03/cataloging-cushings-patients/ X-ALT-DESC;FMTTYPE=text/html:Harvey Cushing\, the pioneer and father of neurosurgery\, was born on April 8\, 1869 in Cleveland\, Ohio. He graduate d from Yale University in 1891\, studied medicine at Harvard Medical Schoo l and received his medical degree in 1895. In 1896\, he moved to Johns Hop kins Hospital where he trained to become a surgeon under the watchful eye of William S. Halstead\, the father of American surgery. By 1899 Cushing b ecame interested in surgery of the nervous system and began his career in neurosurgery. During his tenure at Johns Hopkins\, there were countless di scoveries in the field of neuroscience.
In 1913\, Cushing relocate d to Harvard as the surgeon-in-chief at the new Peter Bent Brigham Hospita l. Cushing continued to operate on several hundred patients a year with re markable results. \; In addition he was relentless in his recording of patient histories and continued his careful attention to the details and documentation of each surgery.
Read more at \; https://cushieblog.com/2017/06/03/cataloging-cushings-patients/
CATEGORIES:Cushings UID:20170603T1402380Z-549422-625@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Helpful Doctor added to the MemberMap DTSTART;VALUE=DATE:20170701 DTEND;VALUE=DATE:20170702 RRULE:FREQ=WEEKLY;UNTIL=20180603;INTERVAL=2;BYDAY=SA DESCRIPTION:New Doctor added to Dallas\, Texas. See the map at http://www.z eemaps.com/pub?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:New Doctor added to Dallas\, Texas.
See the map at \;http://www.zeemaps.co m/pub?group=342449&\;legend=1&\;locate=1&\;add=1
CATEGORIES:Helpful Doctors UID:20170603T2241460Z-549422-626@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170603 SUMMARY:Pediatric Endocrine Society Provides Guidance for Growth Hormone Us e in Pediatric Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180603;BYMONTHDAY=3 DESCRIPTION:Adda Grimberg\, MD\, from the Perelman School of Medicine at th e University of Pennsylvania in Philadelphia\, and colleagues updated guid elines on the use of growth hormone\, focusing on idiopathic short stature (ISS)\, GH deficiency (GHD)\, and primary insulin-like growth factor-I (I GF-I) deficiency (PIGFD). The guidelines were written on behalf of the Ped iatric Endocrine Society. Read more at https://cushieblog.com/2017/06/03/p ediatric-endocrine-society-provides-guidance-for-growth-hormone-use-in-ped iatric-patients/ X-ALT-DESC;FMTTYPE=text/html:Adda Grimberg\, MD\, from the Perelman Scho ol of Medicine at the University of Pennsylvania in Philadelphia\, and col leagues updated guidelines on the use of growth hormone\, focusing on idio pathic short stature (ISS)\, GH deficiency (GHD)\, and primary insulin-lik e growth factor-I (IGF-I) deficiency (PIGFD). The guidelines were written on behalf of the Pediatric Endocrine Society.
Read more at \;< a href='https://cushieblog.com/2017/06/03/pediatric-endocrine-society-prov ides-guidance-for-growth-hormone-use-in-pediatric-patients/' target='_blan k'>https://cushieblog.com/2017/06/03/pediatric-endocrine-society-provides- guidance-for-growth-hormone-use-in-pediatric-patients/
CATEGORIES:News Items UID:20170604T0006330Z-549422-627@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Current Therapeutics of Kidney Cancer: Landmark Trials DTSTART;VALUE=DATE:20170702 DTEND;VALUE=DATE:20170703 RRULE:FREQ=MONTHLY;UNTIL=20180604;BYDAY=1SU DESCRIPTION:Dr. Vaishampayan provided an excellent walk down memory lane\, highlighting the landmark trials in kidney cancer over the last 20 years a t this morning’s ASCO 2017 annual meeting session “Evolving Treatment Para digm in Renal Cell Carcinoma.” Read more at https://maryomedical.com/2017/ 06/04/current-therapeutics-of-kidney-cancer-landmark-trials/ X-ALT-DESC;FMTTYPE=text/html:Dr. Vaishampayan provided an excellent walk down memory lane\, highlighting the landmark trials in kidney cancer over the last 20 years at this morning&rsquo\;s ASCO 2017 annual meeting sessi on &ldquo\;Evolving Treatment Paradigm in Renal Cell Carcinoma.&rdquo\;
Read more at \;https: //maryomedical.com/2017/06/04/current-therapeutics-of-kidney-cancer-landma rk-trials/
CATEGORIES:Other Medical UID:20170604T1321450Z-549422-628@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Study links genetic mutations\, Cushing syndrome DTSTART;VALUE=DATE:20170704 DTEND;VALUE=DATE:20170705 RRULE:FREQ=WEEKLY;UNTIL=20180606;INTERVAL=2;BYDAY=TU DESCRIPTION:Researchers have determined mutations in the gene CABLES1 may l ead to Cushing syndrome\, a rare disorder in which the body overproduces t he stress hormone cortisol. ...“This discovery could lead to the developme nt of treatment strategies that simulate the function of the CABLES1 prote in and prevent recurrence of pituitary tumors in people with Cushing syndr ome.” Read more at https://cushieblog.com/2017/06/06/study-links-genetic-m utations-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Researchers have determined mutations in th e gene CABLES1 may lead to Cushing syndrome\, a rare disorder in which the body overproduces the stress hormone cortisol.
...&ldquo\;T
his discovery could lead to the development of treatment strategies that s
imulate the function of the CABLES1 protein and prevent recurrence of pitu
itary tumors in people with Cushing syndrome.&rdquo\;
Read more at \;https://cushieblog.com/2017/06/06 /study-links-genetic-mutations-cushing-syndrome/
CATEGORIES:Cushings UID:20170606T2204570Z-549422-629@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170607 SUMMARY:Vic (Tori276)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200607;BYMONTHDAY=7 DESCRIPTION:Vic is from London\, UK. She has had symptoms for the last 8 y ears and has used hydrocortisone on her face daily for 26 years. She is a waiting test results. Read more at https://cushingsbios.com/2017/06/07/vic -tori276-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Vic is from London\, UK. \;She has had symptoms for the last 8 years and has used hydrocortisone on her face dai ly for 26 years. \;She is awaiting test results.
Read more at \;https://cushingsbios.com/2017/06/07/vic-tori276-un diagnosed-bio/
CATEGORIES:Cushie Bios UID:20170607T1014240Z-549422-630@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170608 SUMMARY:A Cushing's Collection: A Humorous Journey Surviving Cushing’s Dise ase\, Diabetes Insipidus\, and a Bilateral Adrenalectomy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180608;BYMONTHDAY=8 DESCRIPTION:Diagnosed with a rare disease that only affects between two and ten people per million\, Marie Conley used emails to communicate with fam ily\, friends\, and co-workers to keep them apprised of the diagnosis and prognosis of Cushing's disease and the many complications she experienced on this journey.Her ironic humor and raw\, emotional approach helps bring hope to those touched by this rare and unrelenting disease. In her mid-thi rties\, Conley\, who strived to keep herself healthy while maintaining the delicate balance of raising a young child\, keeping a home\, and a demand ing career\, began to experience a variety of unexplained maladies inconsi stent with her life style. Because of the elusive nature of Cushing's dise ase\, the treatment is a long and complicated process of trial and error. At this time\, there is no cure\, largely due to the fact that Cushing's d isease is considered an “orphan disease.” As is her nature\, she has decid ed to “adopt” this “orphan” and is doing everything she can to bring aware ness to this disease. Conley's tenacious spirit and determination would no t allow this insidious disease to triumph over her life. Armed with her la ptop as the only weapon available in the sterility of the recovery room\, the author attacks the keyboard with a vengeance to let friends and family know that in this battle\, there is no surrender. Find it on amazon.com X-ALT-DESC;FMTTYPE=text/html:Diagnosed with a rare disease that only aff ects between two and ten people per million\, Marie Conley used emails to communicate with family\, friends\, and co-workers to keep them apprised o f the diagnosis and prognosis of Cushing's disease and the many complicati ons she experienced on this journey.Her ironic humor and raw\, emotional a pproach helps bring hope to those touched by this rare and unrelenting dis ease.
In her mid-thirties\, Conley\, who strived to keep herself h
ealthy while maintaining the delicate balance of raising a young child\, k
eeping a home\, and a demanding career\, began to experience a variety of
unexplained maladies inconsistent with her life style.
Because of the
elusive nature of Cushing's disease\, the treatment is a long and complic
ated process of trial and error. At this time\, there is no cure\, largely
due to the fact that Cushing's disease is considered an &ldquo\;orphan di
sease.&rdquo\; As is her nature\, she has decided to &ldquo\;adopt&rdquo\;
this &ldquo\;orphan&rdquo\; and is doing everything she can to bring awar
eness to this disease.
Conley's tenacious spirit and determi
nation would not allow this insidious disease to triumph over her life. Ar
med with her laptop as the only weapon available in the sterility of the r
ecovery room\, the author attacks the keyboard with a vengeance to let fri
ends and family know that in this battle\, there is no surrender.
Find it on \;amazon.c om
CATEGORIES:Cushings UID:20170608T1556460Z-549422-631@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Perioperative Systemic Therapy for Kidney Cancer: Current Data and Ongoing Trials DTSTART;VALUE=DATE:20170714 DTEND;VALUE=DATE:20170715 RRULE:FREQ=MONTHLY;UNTIL=20180609;BYDAY=2FR DESCRIPTION:Dr. Uzzo gave the third and final talk in this excellent sessio n highlighting systemic therapy in the management of kidney cancer. Read m ore at https://maryomedical.com/2017/06/09/perioperative-systemic-therapy- for-kidney-cancer-current-data-and-ongoing-trials/ X-ALT-DESC;FMTTYPE=text/html:Dr. Uzzo gave the third and final talk in t his excellent session highlighting systemic therapy in the management of k idney cancer.
Read more at \;https://maryomedical.com/2017/06/09/p erioperative-systemic-therapy-for-kidney-cancer-current-data-and-ongoing-t rials/
CATEGORIES:Other Medical UID:20170609T1247170Z-549422-632@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170609 SUMMARY:Marie C (MarieConleyHbg)\, Pituitary/ BLA Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180609;BYMONTHDAY=9 DESCRIPTION:Marie is from Elizabethtown\, PA. She was diagnosed with pitui tary Marie was diagnosed with Cushing’s Disease. She has fought through d ozens of hospital stays and numerous surgeries – including pituitary surge ry and a BLA Read more at https://cushingsbios.com/2017/06/09/marie-c-mari econleyhbg-pituitary-bla-bio/ X-ALT-DESC;FMTTYPE=text/html:Marie is from Elizabethtown\, PA. \;Sh e was diagnosed with pituitary Marie was diagnosed with Cushing&rsquo\;s D isease. \;She has fought through dozens of hospital stays and numerou s surgeries &ndash\; including pituitary surgery and a BLA
Read mo re at \;https://cushingsbios.com/2017/06 /09/marie-c-marieconleyhbg-pituitary-bla-bio/
CATEGORIES:Cushie Bios UID:20170609T1424400Z-549422-633@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170611 SUMMARY:Anomalous Response to Metyrapone in Cushing's Syndrome Due to Adren ocortical Adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180611;BYMONTHDAY=11 DESCRIPTION:An older article about Metyrapone use in adrenal Cushing's. Rea d more at https://cushieblog.com/2017/06/11/anomalous-response-to-metyrapo ne-in-cushings-syndrome-due-to-adrenocortical-adenoma/ X-ALT-DESC;FMTTYPE=text/html:An older article about Metyrapone use in ad renal Cushing's.
Read more at \;https://cushieblog.com/2017/06/11 /anomalous-response-to-metyrapone-in-cushings-syndrome-due-to-adrenocortic al-adenoma/
CATEGORIES:Cushings UID:20170611T2128420Z-549422-634@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to “Liz L\, Pituitary Bio” DTSTART;VALUE=DATE:20170709 DTEND;VALUE=DATE:20170710 RRULE:FREQ=MONTHLY;UNTIL=20180611;BYDAY=2SU DESCRIPTION:... My health history is getting long\, and I’m pretty much bed ridden\, so a Cushings diagnosis could answer and maybe solve a lot of my health issues. I did want to ask you who your doctor is\, and if it is so meone local. I’m afraid my doctor is not too familiar with Cushings\, and I’m hoping to find someone with more experience. If you have any recommend ations\, I’d love to hear back from you... Read more at https://cushingsb ios.com/2016/09/08/liz-l-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:... My health history is getting long\, and I&rsquo\;m pretty much bed ridden\, so a Cushings diagnosis could answer and maybe solve a lot of my health issues. I did want to ask you who your doctor is\, and if it is someone local. I&rsquo\;m afraid my doctor is not too familiar with Cushings\, and I&rsquo\;m hoping to find someone with m ore experience. If you have any recommendations\, I&rsquo\;d love to hear back from you... \;
Read more at \;https://cushin gsbios.com/2016/09/08/liz-l-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170611T2238210Z-549422-635@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:New Testimonial From Crystal DTSTART;VALUE=DATE:20170710 DTEND;VALUE=DATE:20170711 RRULE:FREQ=MONTHLY;UNTIL=20180612;BYDAY=2MO DESCRIPTION:Please help me if you can. I really enjoy and am grateful for t his group. I've learned so much and I now know I'm not alone with this di sease. Thank you for your time. From https://cushieblogger.com/testimonia l/crystal-2/ X-ALT-DESC;FMTTYPE=text/html:Please help me if you can. I really enjoy a nd am grateful for this group. \; I've learned so much and I now know I'm not alone with this disease. Thank you for your time. \;
F rom \;https://cushieblogger.com/testimonial/crystal-2/
CATEGORIES:Cushings UID:20170612T2249480Z-549422-636@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory ~ Sarah Fraik RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300613;BYMONTH=6;BYMONTHDAY=13 DTSTART;VALUE=DATE:20110613 DTEND;VALUE=DATE:20110614 DESCRIPTION:Sarah had recently had surgery to remove a tumor from her pitui tary gland in the hopes of treating her Cushing’s Disease. She died on Ju ne 13\, 2011 after a brief illness at the age of 28. Read more at https:// cushingsbios.com/2022/06/13/in-memory-of-sarah-fraik-june-13-2011/ X-ALT-DESC;FMTTYPE=text/html:Sarah had recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing&rsquo\ ;s Disease. \;She died on June 13\, 2011 after a brief illness at the age of 28.
Read more at \;https:// cushingsbios.com/2022/06/13/in-memory-of-sarah-fraik-june-13-2011/
CATEGORIES:In Memory UID:20220613T1448240Z-549422-637@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170613 SUMMARY:Message Board Upgrade Coming Soon! DESCRIPTION:I'm sure that there will be changes which we will figure out to gether. The 'skin' that we have now won't be supported by the upgrade but I'm sure I can make it look nice again after the upgrade... Read more at h ttps://cushieblogger.com/2017/06/13/message-board-upgrade-coming-soon/ X-ALT-DESC;FMTTYPE=text/html:I'm sure that there will be changes which w e will figure out together.
The 'skin' that we have now won'
t be supported by the upgrade but I'm sure I can make it look nice again a
fter the upgrade...
Read more at \;htt ps://cushieblogger.com/2017/06/13/message-board-upgrade-coming-soon/ CATEGORIES:Cushings UID:20170614T2003540Z-549422-638@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:$5 Bonus for Cushings Help! DTSTART;VALUE=DATE:20170705 DTEND;VALUE=DATE:20170706 RRULE:FREQ=WEEKLY;UNTIL=20170731;INTERVAL=2;BYDAY=WE DESCRIPTION:This is a very easy way to give back without it costing you any thing. Every new member who joins to support your organization by July 15t h and makes their first purchase by July 31st earns a $5 Bonus for Cushing s Help! Read more at https://cushieblogger.com/2017/06/14/5-bonus-for-cush ings-help/ X-ALT-DESC;FMTTYPE=text/html:
This is a very easy way to give back withou t it costing you anything.
Every new member who joins to support y our organization by July 15th and makes their first purchase by July 31st earns a $5 Bonus for Cushings Help!
Read more at \;https://cushieblogger.com/2017/06/14/5-bonus-for-cushings-help/ CATEGORIES:Support Cushing's Help UID:20170614T1340470Z-549422-639@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:The Message Board Upgrade is here! DTSTART;VALUE=DATE:20170705 DTEND;VALUE=DATE:20170706 RRULE:FREQ=WEEKLY;UNTIL=20170814;INTERVAL=2;BYDAY=WE DESCRIPTION:The upgrade is here\, it's different and I need a new 'skin' fo r this to get rid of all the white. Some things are still happening behind the scenes. Read more at https://cushieblogger.com/2017/06/14/the-boards- have-been-upgraded/ X-ALT-DESC;FMTTYPE=text/html:
The upgrade is here\, it's different and I need a new 'skin' for this to get rid of all the white.
Some thing s are still happening behind the scenes.
Read more at \;https://cushieblogger.com/2017/06/14/the-boards-have-been-up graded/
CATEGORIES:Cushings UID:20170711T2358190Z-549422-640@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170621 SUMMARY:MaryO ~ Growth Hormone Update RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180621;BYMONTHDAY=21 DESCRIPTION:Going back on Growth Hormone? I've been dealing with Cushing's since 1883. The after effects of pituitary surgery since 1987\, kidney ca ncer since 2006. It's time I felt better\, already! Read more at https:// cushingsbios.com/2017/06/21/maryo-growth-hormone-update/ X-ALT-DESC;FMTTYPE=text/html:Going back on Growth Hormone? I've been dea ling with Cushing's since 1883. \;The after effects of pituitary surg ery since 1987\, kidney cancer since 2006. \;It's time I felt better\ , already!
Read more at \;https://cushingsbio s.com/2017/06/21/maryo-growth-hormone-update/
CATEGORIES:Cushie Bios UID:20170621T1032120Z-549422-641@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to MaryO ~ Growth Hormone Update DTSTART;VALUE=DATE:20170727 DTEND;VALUE=DATE:20170728 RRULE:FREQ=MONTHLY;UNTIL=20180622;BYDAY=-1TH DESCRIPTION:WOW! You have been through so much. It is a miracle to me that you have as good of an attitude as you do. I think if this had been me\, e ither I would have given up by now... Read more at https://cushingsbios.co m/2017/06/21/maryo-growth-hormone-update/ X-ALT-DESC;FMTTYPE=text/html:WOW! You have been through so much. It is a miracle to me that you have as good of an attitude as you do. I think if this had been me\, either I would have given up by now...
Read mor e at \;https://cushingsbios.com/2017/06/21/maryo-grow th-hormone-update/
CATEGORIES:Cushie Bios UID:20170622T2247090Z-549422-642@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170624 SUMMARY:Cushing’s Syndrome: A Tale of Frequent Misdiagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180624;BYMONTHDAY=24 DESCRIPTION:Cushing’s syndrome is a condition you probably have never heard of\, but for those who have it\, the symptoms can be quite scary. Worse still\, getting it diagnosed can take a while. Cushing’s syndrome occurs when the tissues of the body are exposed to high levels of cortisol for an extended amount of time. Cortisol is the hormone the body produces to hel p you in times of stress. It is good to have cortisol at normal levels\, b ut when those levels get too high it causes health problems. Although cor tisol is related to stress\, there is no evidence that Cushing’s syndrome is directly or indirectly caused by stress. Read more at https://cushieblo g.com/2017/06/24/cushings-syndrome-a-tale-of-frequent-misdiagnosis/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is a condition yo u probably have never heard of\, but for those who have it\, the symptoms can be quite scary. \;Worse still\, getting it diagnosed can take a w hile. \;Cushing&rsquo\;s syndrome occurs when the tissues of the body are exposed to high levels of cortisol for an extended amount of time. Co rtisol is the hormone the body produces to help you in times of stress. It is good to have cortisol at normal levels\, but when those levels get too high it causes health problems. \; Although cortisol is related to st ress\, there is no evidence that Cushing&rsquo\;s syndrome is directly or indirectly caused by stress.
Read more at \;https://cushieblog.com/2017/06/24/cushings-syndrome-a-t ale-of-frequent-misdiagnosis/
CATEGORIES:Cushings UID:20170624T1620200Z-549422-643@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170625 SUMMARY:Margaret (Margaret)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180625;BYMONTHDAY=25 DESCRIPTION:(Golden Oldie) Margaret is from SW\, Virginia. She had recentl y been diagnosed with Cushing's Disease. She was scheduling an IPSS. Read more at https://cushingsbios.com/2017/06/25/margaret-margaret-pituitary-b io/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Margaret is from SW\, Virgin ia. \;She had recently been diagnosed with Cushing's Disease. \; She was scheduling an IPSS.
Read more at \;https://cushingsbios.com/2017/06/25/margaret-margaret-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170625T0944440Z-549422-644@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Other Medical: Yogurt and diabetes: Overview of recent observationa l studies DTSTART;VALUE=DATE:20170723 DTEND;VALUE=DATE:20170724 RRULE:FREQ=MONTHLY;UNTIL=20180625;BYDAY=4SU DESCRIPTION:Analysis of observational studies was performed to determine th e association between yogurt consumption and type 2 diabetes\, along with possible mechanisms involved. Findings reported that in healthy and older adults at high cardiovascular risk\, yogurt consumption\, in the context o f a healthy dietary pattern\, may reduce the risk of type 2 diabetes. Read more at https://maryomedical.com/2017/06/25/yogurt-and-diabetes-overview- of-recent-observational-studies/ X-ALT-DESC;FMTTYPE=text/html:Analysis of observational studies was perfo rmed to determine the association between yogurt consumption and type 2 di abetes\, along with possible mechanisms involved. Findings reported that i n healthy and older adults at high cardiovascular risk\, yogurt consumptio n\, in the context of a healthy dietary pattern\, may reduce the risk of t ype 2 diabetes.
Read more at \;https://maryomedical.com/2017/06/25/yogurt-and-diabetes -overview-of-recent-observational-studies/
CATEGORIES:News Items UID:20170626T0134510Z-549422-645@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170626 SUMMARY:Comment added to “Annette S (Annette)\, Undiagnosed Bio' RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180626;BYMONTHDAY=26 DESCRIPTION:I have had every lab run for autoimmune that you can imagine in the past 6 months. My SED rate is high along with a few others that are o ff somewhat\, but nothing definitive. My Endo does not believe in Saliva t est? He is a fan of the Dex Suppression... Read more at https://cushingsbi os.com/2017/01/30/annette-s-annette-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I have had every lab run for autoimmune tha t you can imagine in the past 6 months. My SED rate is high along with a f ew others that are off somewhat\, but nothing definitive. My Endo does not believe in Saliva test? He is a fan of the Dex Suppression...
Rea d more at https://cushingsbios.com/2017/01/30/annet te-s-annette-undiagnosed-bio/ \;
CATEGORIES:Cushie Bios UID:20170626T2254010Z-549422-646@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Grading system may predict recurrence\, progression of pituitary ne uroendocrine tumors DTSTART;VALUE=DATE:20170725 DTEND;VALUE=DATE:20170726 RRULE:FREQ=MONTHLY;UNTIL=20180627;BYDAY=-1TU DESCRIPTION:The risk for recurrence or progression of pituitary neuroendocr ine tumors in adults is significantly associated with age and tumor type\, according to findings published in The Journal of Clinical Endocrinology & Metabolism. Read more at https://cushieblog.com/2017/06/27/grading-syste m-may-predict-recurrence-progression-of-pituitary-neuroendocrine-tumors/ X-ALT-DESC;FMTTYPE=text/html:The risk for recurrence or progression of p ituitary neuroendocrine tumors in adults is significantly associated with age and tumor type\, according to findings published in \;The Jour nal of Clinical Endocrinology &\; Metabolism.
Read more at \;https://cushieblog.com/2017/06/27/grading-system-may-predict-recurren ce-progression-of-pituitary-neuroendocrine-tumors/
CATEGORIES:News Items UID:20170628T0134000Z-549422-647@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170627 SUMMARY:Lisann\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180627;BYMONTHDAY=27 DESCRIPTION:(Golden Oldie) Lisann (lisann) was from St. Louis\, Missouri. She was not yet diagnosed with Cushing's but she was testing. She has an adenoma\, is a long-time hydrocortisone user and has Graves Disease. Read more at https://cushingsbios.com/2017/06/27/lisann-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Lisann (lisann) was from St. Louis\, Missouri. \;She was not yet diagnosed with Cushing's but she was testing. \;She has an adenoma\, is a long-time hydrocortisone us er and has Graves Disease.
Read more at \;https:// cushingsbios.com/2017/06/27/lisann-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170628T0155010Z-549422-648@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:In Memory: Kalyn Allen\, June 28\, 2017 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300628;BYMONTH=6;BYMONTHDAY=28 DTSTART;VALUE=DATE:20170628 DTEND;VALUE=DATE:20170629 DESCRIPTION:Kalyn was only 41 when she died on June 28\, 2017. She had rec ently had pituitary surgery. Read more at https://cushingsbios.com/2021/0 6/28/in-memory-of-kalyn-allen-june-28-2017/ X-ALT-DESC;FMTTYPE=text/html:Kalyn \;was only 41 when she died on Ju ne 28\, 2017. \;She had recently had pituitary surgery.
Read more at \; https://cushingsbios.com/2021/06 /28/in-memory-of-kalyn-allen-june-28-2017/
CATEGORIES:In Memory UID:20210630T1555050Z-549422-649@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Phase 3 SONICS Study Evaluating RECORLEV™ (levoketoconazole) in End ogenous Cushing’s Syndrome DTSTART;VALUE=DATE:20170727 DTEND;VALUE=DATE:20170728 RRULE:FREQ=MONTHLY;UNTIL=20180701;BYDAY=-1TH DESCRIPTION:Phase 3 SONICS study evaluating the safety and efficacy of RECO RLEV™(levoketoconazole)\, a next-generation cortisol synthesis inhibitor\, for the treatment of endogenous Cushing’s syndrome. Based upon strong int erest in the SONICS study at the end of screening\, a small number of addi tional potential study participants remain in screening and will be allowe d to enroll\, if qualified. Read more at https://cushieblog.com/2017/06/29 /phase-3-sonics-study-evaluating-recorlev-levoketoconazole-in-endogenous-c ushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Phase 3 SONICS study evaluating the safety and efficacy of RECORLEV&trade\;(levoketoconazole)\, a next-generation cor tisol synthesis inhibitor\, for the treatment of endogenous Cushing&rsquo\ ;s syndrome. Based upon strong interest in the SONICS study at the end of screening\, a small number of additional potential study participants rema in in screening and will be allowed to enroll\, if qualified.
Read more at \;https://cushieblog.com/2017/06/29/phase-3-sonics-study-e valuating-recorlev-levoketoconazole-in-endogenous-cushings-syndrome/ CATEGORIES:News Items UID:20170629T1256290Z-549422-650@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170629 SUMMARY:Leann\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180629;BYMONTHDAY=29 DESCRIPTION:(Golden Oldie) Leann is from Bulger\, Pennsylvania. Her son was recently diagnosed with Congenital Adrenal Hyperplasia (CAH). She suspect s possible adrenal problems with her oldest daughter (age 19) and herself. Read more at https://cushingsbios.com/2017/06/29/leann-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:
(Golden Oldie) Leann \;is from Bulger\, Pennsylvania. Her son was recently diagnosed with Congenital Adrenal Hype rplasia (CAH). She suspects possible adrenal problems with her oldest daug hter (age 19) and herself.
Read more at \;https://c ushingsbios.com/2017/06/29/leann-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170629T2336530Z-549422-651@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Bruising easily and gaining weight? Don't mistake high blood pressu re for this syndrome DTSTART;VALUE=DATE:20170825 DTEND;VALUE=DATE:20170826 RRULE:FREQ=MONTHLY;UNTIL=20180701;BYDAY=-1FR DESCRIPTION:Cushing's Syndrome is a hormonal disorder caused by prolonged e xposure to the hormone cortisol - which can be caused by taking steroids. Cortisol regulates metabolism and immune response in the body. Read more a t https://cushieblog.com/2017/06/30/bruising-easily-and-gaining-weight-don t-mistake-high-blood-pressure-for-this-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing's Syndrome is a hormonal disorder c aused by prolonged exposure to the hormone cortisol - which can be caused by taking steroids. Cortisol regulates metabolism and immune response in t he body.
Read more at \;https://cushieblog.com/2017/06/30/bruis ing-easily-and-gaining-weight-dont-mistake-high-blood-pressure-for-this-sy ndrome/
CATEGORIES:Cushings UID:20170701T0210540Z-549422-652@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Neuropsychiatric disorders in Cushing's syndrome DTSTART;VALUE=DATE:20170805 DTEND;VALUE=DATE:20170806 RRULE:FREQ=MONTHLY;UNTIL=20180701;BYDAY=1SA DESCRIPTION:Endogenous Cushing's syndrome (CS)\, a rare endocrine disorder characterized by cortisol hypersecretion\, is associated with psychiatric and neurocognitive disorders. Major depression\, mania\, anxiety\, and neu rocognitive impairment are the most important clinical abnormalities. More over\, patients most often complain of impairment in quality of life\, int erference with family life\, social\, and work performance. Surprisingly\, after hypercortisolism resolution\, despite the improvement of the overal l prevalence of psychiatric and neurocognitive disorders\, the brain volum e loss at least partially persists and it should be noted that some patien ts may still display depression\, anxiety\, panic disorders\, and neurocog nitive impairment. This brief review aimed at describing the prevalence of psychiatric and neurocognitive disorders and their characterization both during the active and remission phases of CS. The last section of this rev iew is dedicated to quality of life\, impaired during active CS and only p artially resolved after resolution of hypercortisolism. Read more at https ://www.ncbi.nlm.nih.gov/pmc/articles/PMC4403344/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing's syndrome (CS)\, a rare endocrine disorder characterized by cortisol hypersecretion\, is associat ed with psychiatric and neurocognitive disorders. Major depression\, mania \, anxiety\, and neurocognitive impairment are the most important clinical abnormalities. Moreover\, patients most often complain of impairment in q uality of life\, interference with family life\, social\, and work perform ance. Surprisingly\, after hypercortisolism resolution\, despite the impro vement of the overall prevalence of psychiatric and neurocognitive disorde rs\, the brain volume loss at least partially persists and it should be no ted that some patients may still display depression\, anxiety\, panic diso rders\, and neurocognitive impairment. This brief review aimed at describi ng the prevalence of psychiatric and neurocognitive disorders and their ch aracterization both during the active and remission phases of CS. The last section of this review is dedicated to quality of life\, impaired during active CS and only partially resolved after resolution of hypercortisolism .
Read more at \;https://www.ncbi.nlm.nih.gov/pmc/articl es/PMC4403344/
CATEGORIES:Cushings UID:20170701T1216370Z-549422-653@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170702 SUMMARY:Cushing's Syndrome\, Cortisol\, and Cognitive Competency: A Case Re port RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180702;BYMONTHDAY=2 DESCRIPTION:We describe the case of a carcinoid patient with Cushing's synd rome (CS) and neurocognitive impairment due to ectopic ACTH production who developed sepsis and died because of his family's decision to withdraw an tibiotic treatment. This report is presented to illustrate the importance of advanced-care planning in patients with CS. Read more https://cushieblo g.com/2017/07/02/cushings-syndrome-cortisol-and-cognitive-competency-a-cas e-report/ X-ALT-DESC;FMTTYPE=text/html:We describe the case of a carcinoid patient with Cushing's syndrome (CS) and neurocognitive impairment due to ectopic ACTH production who developed sepsis and died because of his family's dec ision to withdraw antibiotic treatment. This report is presented to illust rate the importance of advanced-care planning in patients with CS.
Read more \;http s://cushieblog.com/2017/07/02/cushings-syndrome-cortisol-and-cognitive-com petency-a-case-report/
CATEGORIES:Cushings UID:20170702T1307590Z-549422-654@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170703 SUMMARY:Drug trial begins for Cushing’s syndrome therapy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180703;BYMONTHDAY=3 DESCRIPTION:Participant enrollment has concluded for a phase 3 trial invest igating the safety and efficacy of levoketoconazole\, a cortisol synthesis inhibitor\, for the treatment of endogenous Cushing’s syndrome\, accordin g to a press release from Strongbridge Biopharma\, the drug’s developer. R ead more at http://cushings.invisionzone.com/index.php?/topic/54267-drug-t rial-begins-for-cushing%E2%80%99s-syndrome-therapy/ X-ALT-DESC;FMTTYPE=text/html:Participant enrollment has concluded for a phase 3 trial investigating the safety and efficacy of levoketoconazole\, a cortisol synthesis inhibitor\, for the treatment of endogenous Cushing&r squo\;s syndrome\, according to a press release from Strongbridge Biopharm a\, the drug&rsquo\;s developer.
Read more at \;http://cushings.invisi onzone.com/index.php?/topic/54267-drug-trial-begins-for-cushing%E2%80%99s- syndrome-therapy/
CATEGORIES:Cushings UID:20170703T0755480Z-549422-655@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Crystal T\, Undiagnosed Bio DTSTART;VALUE=DATE:20170807 DTEND;VALUE=DATE:20170808 RRULE:FREQ=MONTHLY;UNTIL=20180703;BYDAY=1MO DESCRIPTION:Crystal is from Alabama. She is not yet diagnosed but has had Cushing's symptoms for three years. Read more at https://cushingsbios.com/ 2017/07/03/crystal-t-undiagnosed-bio-2/ X-ALT-DESC;FMTTYPE=text/html:Crystal is from Alabama. \;She is not yet diagnosed but has had Cushing's symptoms for three years.
Read more at \;https://cushingsbios.com/2017/07/03/crysta l-t-undiagnosed-bio-2/
CATEGORIES:Cushie Bios UID:20170703T0810090Z-549422-656@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170703 SUMMARY:New Testimonial from Vanessa RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180703;BYMONTHDAY=3 DESCRIPTION:Thank you. I have been reading the blogs\, it's helpful. So tha nk you for putting in the effort on the site. This is extremely frustra ting and upsetting. But like I've read from others\, I finally have a reas on for all the issues I was having... Read more at https://cushieblogger .com/testimonial/vanessa-u/ X-ALT-DESC;FMTTYPE=text/html:Compared with patients with Cushing&rsquo\; s disease\, those with ectopic Cushing&rsquo\;s syndrome had &ldquo\;marke dly higher&rdquo\; midnight cortisol and ACTH\, as well as basal cortisol and ACTH.
Read more at \;https://cushieblog.com/2017/07/03/ectopic-cushings-syndrome-associ ated-with-thoracic-tumors/
CATEGORIES:Cushings UID:20170704T0136090Z-549422-658@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Webinar with Dr. Friedman July 16\, 2017 DTSTART;VALUE=DATE:20170704 DTEND;VALUE=DATE:20170705 RRULE:FREQ=WEEKLY;UNTIL=20170716;BYDAY=TU DESCRIPTION:Join Dr. Theodore Friedman for an informative webinar on the en docrine causes of hair loss in women. Dr. Friedman will discuss what hormo nes to measure if a woman is experiencing hair loss. He will discuss how t o optimize hormone replacement to minimize or reverse hair loss. There wil l be plenty of time for questions and discussion. Read more at https://cus hieblogger.com/2017/07/04/webinar-with-dr-friedman-july-16-2017/ X-ALT-DESC;FMTTYPE=text/html:Join Dr. \;Theodore Friedman for an inf ormative webinar on the endocrine causes of hair loss in women. Dr. Friedm an will discuss what hormones to measure if a woman is experiencing hair l oss. He will discuss how to optimize hormone replacement to minimize or re verse hair loss. There will be plenty of time for questions and discussion .
Read more at \;https://cushieblo gger.com/2017/07/04/webinar-with-dr-friedman-july-16-2017/
CATEGORIES:Events and Meetings UID:20170704T2123540Z-549422-659@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20170716T170000 DTEND;TZID=America/New_York:20170716T180000 SUMMARY:Webinar with Dr. Friedman This Evening DESCRIPTION:Join Dr. Theodore Friedman for an informative webinar on the en docrine causes of hair loss in women. Dr. Friedman will discuss what hormo nes to measure if a woman is experiencing hair loss. He will discuss how t o optimize hormone replacement to minimize or reverse hair loss. There wil l be plenty of time for questions and discussion. Read more at https://cus hieblogger.com/2017/07/04/webinar-with-dr-friedman-july-16-2017/ X-ALT-DESC;FMTTYPE=text/html:Join Dr. \;Theodore Friedman for an inf ormative webinar on the endocrine causes of hair loss in women. Dr. Friedm an will discuss what hormones to measure if a woman is experiencing hair l oss. He will discuss how to optimize hormone replacement to minimize or re verse hair loss. There will be plenty of time for questions and discussion .
Read more at \;https://cushieblo gger.com/2017/07/04/webinar-with-dr-friedman-july-16-2017/
CATEGORIES:Events and Meetings UID:20170704T2125220Z-549422-660@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170705 SUMMARY:For Pituitary Tumors\, Gamma Knife™ Radiosurgery Offers Better Tumo r Control RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180705;BYMONTHDAY=5 DESCRIPTION:For many patients with pituitary tumors\, initial surgical inte rvention is followed quickly by Gamma Knife™ radiosurgery. The benefits of using this radiosurgical intervention are many\, and can offer better tum or control and a more positive long-term prognosis compared to surgery alo ne. Read more at https://cushieblog.com/2017/07/05/for-pituitary-tumors-ga mma-knife-radiosurgery-offers-better-tumor-control/ X-ALT-DESC;FMTTYPE=text/html:For many patients with pituitary tumors\, i nitial surgical intervention is followed quickly by Gamma Knife&trade\; ra diosurgery. The benefits of using this radiosurgical intervention are many \, and can offer better tumor control and a more positive long-term progno sis compared to surgery alone.
Read more at \;https://cushieblog.com/2017/0 7/05/for-pituitary-tumors-gamma-knife-radiosurgery-offers-better-tumor-con trol/
CATEGORIES:Cushings UID:20170705T1243170Z-549422-661@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170707 SUMMARY:Alex C\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180707;BYMONTHDAY=7 DESCRIPTION:Alex is from San Antonio TX. He is not yet diagnosed but has h ad Cushing's symptoms for five years. His cortisol levels are very high. Read more at https://cushingsbios.com/2017/07/07/alex-c-alex-c-undiagnosed -bio/ X-ALT-DESC;FMTTYPE=text/html:Alex is from San Antonio TX. \;He is n ot yet diagnosed but has had Cushing's symptoms for five years. \;His cortisol levels are very high.
Read more at \;https://cushingsbios.com/2017/07/07/alex-c-alex-c-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170707T1130580Z-549422-662@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170708 SUMMARY:Growth Hormone: Improving Patients’ Lives and Boosting Mature Produ ct Portfolios RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180708;BYMONTHDAY=8 DESCRIPTION:easypod—an automated drug delivery device manufactured by Merck KGaA\, Darmstadt\, Germany for its recombinant human growth hormone\, Sai zen—is the only electronic\, fully automated injection device for growth h ormone therapy. Its features include automated dose delivery and prescript ion tracking\, which records injection history and any missed injections\, and allows patients to know when to change their cartridge by displaying how much medicine is left in the device. Read more at https://cushieblog.c om/2017/07/08/growth-hormone-improving-patients-lives-and-boosting-mature- product-portfolios/ X-ALT-DESC;FMTTYPE=text/html:easypod&mdash\;an automated drug delivery d evice manufactured by Merck KGaA\, Darmstadt\, Germany for its recombinant human growth hormone\, Saizen&mdash\;is the only electronic\, fully autom ated injection device for growth hormone therapy. Its features include aut omated dose delivery and prescription tracking\, which records injection h istory and any missed injections\, and allows patients to know when to cha nge their \;cartridge by displaying how much medicine is left in the d evice.
Read more at \;https://cushieblog.com/2017/07/08/growth-hormone -improving-patients-lives-and-boosting-mature-product-portfolios/
CATEGORIES:News Items UID:20170708T1426060Z-549422-663@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170708 SUMMARY:New on the Message Boards DESCRIPTION:A new feature! A weekly (or thereabouts) summary of the Messag e Board features. There has been a discussion about a new state regulation that went into effect July 1st\, affecting insurance that will not cover anything ordered or prescribed by out-of-state doctors that aren't enrolle d in some quality control database. Read more at https://cushieblogger.com /2017/07/08/new-on-the-message-boards/ X-ALT-DESC;FMTTYPE=text/html:A new feature! \;A weekly (or thereabo uts) summary of the Message Board features. There has been a discussion ab out a new state regulation that went into effect July 1st\, affecting insu rance that will not cover anything ordered or prescribed by out-of-state d octors that aren't enrolled in some quality control database.
Read more at \;https://cushieblogger.com/2017/07/08/new-on -the-message-boards/
CATEGORIES:Cushings UID:20170708T1630070Z-549422-664@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Renee (rmaxwell)\, Undiagnosed Bio DTSTART;VALUE=DATE:20170812 DTEND;VALUE=DATE:20170813 RRULE:FREQ=MONTHLY;UNTIL=20171208;BYDAY=2SA DESCRIPTION:Renee (rmaxwell) is from the Los Angeles area of California. Sh e is not yet diagnosed but has many symptoms. Read more at https://cushing sbios.com/2017/07/08/renee-rmaxwell-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Renee (rmaxwell) \;is from the Los Angeles area of California. She is not yet diagnosed but has many symptoms.
Read more at \;https://cush ingsbios.com/2017/07/08/renee-rmaxwell-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170708T1640430Z-549422-665@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170708 SUMMARY:Comment added to Alex C (Alex C)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180708;BYMONTHDAY=8 DESCRIPTION:... I too am in the same situation and also have been dealing w ith constant pain for 6 years now\, been bedridden for about 4. I’m pretty sure my pain is unrelated to my Cushing’s– terrible pain in/ behind my ey es. They feel like they’re ripping if I move them. I’ve been through the p rocess of test after test\, surgery after surgery to no avail and no answe r or relief from my pain. I have about 90% of the symptoms of Cushing’s in cluding cataracts in both eyes and I am only 26... Read more at https://c ushingsbios.com/2017/07/07/alex-c-alex-c-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:... I too am in the same situation and also have been dealing with constant pain for 6 years now\, been bedridden for about 4. I&rsquo\;m pretty sure my pain is unrelated to my Cushing&rsquo\ ;s&ndash\; terrible pain in/ behind my eyes. They feel like they&rsquo\;re ripping if I move them. I&rsquo\;ve been through the process of test afte r test\, surgery after surgery to no avail and no answer or relief from my pain. I have about 90% of the symptoms of Cushing&rsquo\;s including cata racts in both eyes and I am only 26... \;
Read more at \;< a href='https://cushingsbios.com/2017/07/07/alex-c-alex-c-undiagnosed-bio/ ' target='_blank'>https://cushingsbios.com/2017/07/07/alex-c-alex-c-undiag nosed-bio/
CATEGORIES:Cushie Bios UID:20170708T1647400Z-549422-666@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170711 SUMMARY:Comment added to J\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180711;BYMONTHDAY=11 DESCRIPTION:... There is no doubt in my mind that I have Cushings syndrome because all the signs are there all the way down to the red puffy face and I can’t keep the fluid off my body despite my efforts. But I’m one of tho se people that researches and then talks to my doc so far I’ve been right on the money and I been the one to request the xolair. And my doc agreed i t was the right step to take but it’s hard to get your insurance to cover it you and your doctor will have to fight to get them to cover it\, but if the issue is bad enough they will\, Cushings can get really bad... Read m ore at https://cushingsbios.com/2017/04/01/j-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:... There is no doubt in my mind that I hav e Cushings syndrome because all the signs are there all the way down to th e red puffy face and I can&rsquo\;t keep the fluid off my body despite my efforts. But I&rsquo\;m one of those people that researches and then talks to my doc so far I&rsquo\;ve been right on the money and I been the one t o request the xolair. And my doc agreed it was the right step to take but it&rsquo\;s hard to get your insurance to cover it you and your doctor wil l have to fight to get them to cover it\, but if the issue is bad enough t hey will\, Cushings can get really bad...
Read more at \;https ://cushingsbios.com/2017/04/01/j-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170711T1444090Z-549422-667@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;TZID=America/New_York:20170717T130000 DTEND;TZID=America/New_York:20170717T140000 SUMMARY:Webinar: Coping With the Ups and Downs of Pituitary Disorders DESCRIPTION:Register now for this informative webinar happening July 17 at 10:00 AM - 11:00 AM Pacific Daylight Time/1:00 PM - 2:00 PM Eastern Daylig ht Time. Read more at https://cushieblogger.com/2017/07/13/webinar-coping- with-the-ups-and-downs-of-pituitary-disorders/ X-ALT-DESC;FMTTYPE=text/html:Register now for this informative webinar h appening July 17 at 10:00 AM - 11:00 AM Pacific Daylight Time/1:00 PM - 2: 00 PM Eastern Daylight Time.
Read more at \;https://cushieblogger.com/2017/07/13/webi nar-coping-with-the-ups-and-downs-of-pituitary-disorders/
CATEGORIES:Events and Meetings UID:20170713T1340150Z-549422-668@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Nicole\, Undiagnosed Bio DTSTART;VALUE=DATE:20170810 DTEND;VALUE=DATE:20170811 RRULE:FREQ=MONTHLY;UNTIL=20180713;BYDAY=2TH DESCRIPTION:Nicole is from Seattle\, WA. She is not yet diagnosed but her Cushing's symptoms started about 2 years ago. She is a student at The Jui lliard School in New York studying Dance. Read more at https://cushingsbio s.com/2017/07/13/nicole-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Nicole is from Seattle\, WA. \;She is not yet diagnosed but her Cushing's symptoms started about 2 years ago. &n bsp\;She is a student at The Juilliard School in New York studying Dance.< /p>
Read more at \;https://cushingsbios.com/2017/07/13 /nicole-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170714T0117550Z-549422-669@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170715 SUMMARY:New on the Message Boards ~ July 15\, 2017 DESCRIPTION:A quick summary of some of this week’s activity on the Cushing’ s Help message boards. A new question about the cost vs benefits of growth hormone under the topic Growth Hormone A newbie who is not yet diagnosed but has Bi lateral adrenal tumors Information about Webinar: Coping With t he Ups and Downs of Pituitary Disorders A new Image Gallery\, A Dancer’s 4 0 lbs Weight Gain in under 2 years + symptoms Read more at https://cushieb logger.com/2017/07/15/new-on-the-message-boards-july-15-2017/ X-ALT-DESC;FMTTYPE=text/html:A quick summary of some of this week&rsquo\ ;s activity on the Cushing&rsquo\;s Help message boards.
A new que stion \;about the cost vs benefits of growth hormone under the topic&n bsp\;Growth Hormone
A newbie \;who is not yet diagnosed but has \;Bi lateral adrenal tumors
Information \;about \;Webinar: Coping With the Ups and Down s of Pituitary Disorders
A \;new Image Gallery\, \;A Dancer&rsquo\;s 40 lbs Weight Gain in under 2 years + symptoms
Read more at \;https://cushieb logger.com/2017/07/15/new-on-the-message-boards-july-15-2017/
CATEGORIES:Cushings UID:20170715T2328530Z-549422-670@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170715 SUMMARY:New Testimonial from NightHawk RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171215;BYMONTHDAY=15 DESCRIPTION:I love the new look for the site! From the message boards at ht tp://cushings.invisionzone.com/index.php?/topic/54234-dr-f-update X-ALT-DESC;FMTTYPE=text/html:I love the new look for the site!
F rom the message boards at \;http://cushings.invisi onzone.com/index.php?/topic/54234-dr-f-update
CATEGORIES:Cushings UID:20170715T1601270Z-549422-671@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170715 SUMMARY:Maria\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180715;BYMONTHDAY=15 DESCRIPTION:Maria is from Pittsburgh\, Pennsylvania. She was diagnosed at t he age of 16 with a pituitary tumor\, 17 when she had removed the first ti me and 19 the second time. Read more at https://cushingsbios.com/2017/07/1 5/maria-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Maria \;is from Pittsb urgh\, Pennsylvania. She was diagnosed at the age of 16 with a pituitary t umor\, 17 when she had removed the first time and 19 the second time.
Read more at \;https://cushingsbios.com/2017/07/15/maria- pituitary-bio/
CATEGORIES:Cushie Bios UID:20170715T1957320Z-549422-672@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Suzanne (Suzanna)\, Undiagnosed Bio DTSTART;VALUE=DATE:20170820 DTEND;VALUE=DATE:20170821 RRULE:FREQ=MONTHLY;UNTIL=20180716;BYDAY=3SU DESCRIPTION:Suzanne is from Nottingham\, England. She is not yet diagnosed but test results show high cortisol. She asked her GP if her contracepti ve (Yaz) could be causing her symptoms and he said no. Read more at https ://cushingsbios.com/2017/07/16/suzanne-suzanna-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Suzanne is from Nottingham\, England. \;She is not yet diagnosed but test results show high cortisol. \;She asked her GP if her contraceptive \;(Yaz) could be causing her sympt oms and he said no.
Read more at \;https: //cushingsbios.com/2017/07/16/suzanne-suzanna-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170716T1119280Z-549422-673@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Comment added to Suzanne (Suzanna)\, Undiagnosed Bio DTSTART;VALUE=DATE:20170815 DTEND;VALUE=DATE:20170816 RRULE:FREQ=MONTHLY;UNTIL=20171218;BYDAY=3TU DESCRIPTION:Request a midnight cortisol salivary test bc it will help rule out medication causing interference with your results. I take depo and des pite strong concerns about taking it with Cushing’s it has not made any di fference. The traits and actions you describe and mention are also related to high cortisol levels... Read more at https://cushingsbios.com/2017/07/ 16/suzanne-suzanna-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Request a midnight cortisol salivary test b c it will help rule out medication causing interference with your results.
I take depo and despite strong concerns about taking it with Cush ing&rsquo\;s it has not made any difference.
The traits and action s you describe and mention are also related to high cortisol levels...
Read more at \;https://cushingsbios.com/2017 /07/16/suzanne-suzanna-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170718T2043400Z-549422-674@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170718 SUMMARY:Conference on Adrenal Insufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180323;BYMONTHDAY=18 DESCRIPTION:We're thrilled to announce the date for AIU's first stand alone conference for Adrenal Insufficiency. We have some incredible speakers li ned up and hope you'll come join us. A list of speakers will be included w ith registration information in September/October. Read more at https://cu shieblogger.com/2017/07/18/conference-on-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:We're thrilled to announce the date for AIU 's first stand alone conference for Adrenal Insufficiency. We have some in credible speakers lined up and hope you'll come join us. A list of speaker s will be included \;with \;registration information in \;Sept ember/October.
Read more at \;https: //cushieblogger.com/2017/07/18/conference-on-adrenal-insufficiency/
CATEGORIES:Events and Meetings UID:20170718T2127160Z-549422-675@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170718 SUMMARY:Yes\, You Need a Medical Alert Bracelet! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200718;BYMONTHDAY=18 DESCRIPTION:#3– DO NOT MAKE IT “PRETTY” OR “NOT SO OBVIOUS”. I can not stre ss this enough. Ladies I know that you want the cute ones that look like n ormal bracelets\, and have pretty charms\, etc on them… THE ENTIRE point o f a medical alert bracelet is that someone needs to see it and know that t hey should look at it. If it looks like a regular bracelet or regular neck lace and it isn’t obvious within the first 3 seconds once we get to you an d look in the obvious places (neck/wrist). it will NOT get seen. I promise you\, we are too busy trying to play the guessing game of why you are not responding\, than to take a look at every single piece of regular jewelry and see if it might have a really small inscribing of what is wrong with you. Once again. Make it noticeable. We will see that we need to look at i t. Once we do. The guessing game is more than likely OVER. and we can begi n to treat you appropriately. Read more at https://cushieblog.com/2017/07/ 18/yes-you-need-a-medical-alert-bracelet/ X-ALT-DESC;FMTTYPE=text/html:#3&ndash\; DO NOT MAKE IT &ldquo\;PRETTY&rdquo\; OR &ldquo\;NOT SO OBVIOUS&rdquo\;. I can not stress this enough. Ladies I know that you want the cute ones t hat look like normal bracelets\, and have pretty charms\, etc on them&hell ip\; THE ENTIRE point of a medical alert bracelet is that someone needs to see it and know that they should look at it. If it looks like a regular b racelet or regular necklace and it isn&rsquo\;t obvious within the first 3 seconds once we get to you and look in the obvious places (neck/wrist). i t will NOT get seen. I promise you\, we are too busy trying to play the gu essing game of why you are not responding\, than to take a look at every s ingle piece of regular jewelry and see if it might have a really small ins cribing of what is wrong with you. Once again. Make it noticeable. We will see that we need to look at it. Once we do. The guessing game is more tha n likely OVER. and we can begin to treat you appropriately.
Read m ore at \;https://cushieblog.com/2017/07/18/ye s-you-need-a-medical-alert-bracelet/
CATEGORIES:Cushings UID:20170719T0004020Z-549422-676@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:NDA for Macrilen™ for the Evaluation of Growth Hormone Deficiency i n Adults DTSTART;VALUE=DATE:20170816 DTEND;VALUE=DATE:20170817 RRULE:FREQ=MONTHLY;UNTIL=20171219;BYDAY=3WE DESCRIPTION:Macimorelin\, a ghrelin agonist\, is an orally-active small mol ecule that stimulates the secretion of growth hormone. Macimorelin has bee n granted orphan drug designation by the FDA for diagnosis of AGHD. ... AG HD affects approximately 75\,000 adults across the U.S.\, Canada and Europ e. Growth hormone not only plays an important role in growth from childhoo d to adulthood\, but also helps promote a hormonally-balanced health statu s. AGHD mostly results from damage to the pituitary gland. It is usually c haracterized by a reduction in bone mineral density\, lean body mass\, exe rcise capacity\, and overall quality of life as well as an increase of car diovascular risks. Read more at https://cushieblog.com/2017/07/19/nda-for- macrilen-for-the-evaluation-of-growth-hormone-deficiency-in-adults/ X-ALT-DESC;FMTTYPE=text/html:Macimorelin\, a ghrelin agonist\, is an ora lly-active small molecule that stimulates the secretion of growth hormone. Macimorelin has been granted orphan drug designation by the FDA for diagn osis of AGHD. ...
AGHD affects approximately 75\,000 adults across the U.S.\, Canada and Europe. Growth hormone not only plays an important role in growth from childhood to adulthood\, but also helps promote a horm onally-balanced health status. AGHD mostly results from damage to the pitu itary gland. It is usually characterized by a reduction in bone mineral de nsity\, lean body mass\, exercise capacity\, and overall quality of life a s well as an increase of cardiovascular risks.
Read more at \; https://cush ieblog.com/2017/07/19/nda-for-macrilen-for-the-evaluation-of-growth-hormon e-deficiency-in-adults/
CATEGORIES:News Items UID:20170719T1241580Z-549422-677@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170719 SUMMARY:New Testimonial from NightHawk RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171219;BYMONTHDAY=19 DESCRIPTION:Just wanted to add much love and thanks for everything you have done. You probably don't even know how many lives you have touched\, and saved! ... Read more at https://cushieblogger.com/testimonial/lisa-t-w/ X-ALT-DESC;FMTTYPE=text/html:Just wanted to add much love and thanks for everything you have done. You probably don't even know how many lives you have touched\, and saved! ...
Read more at \;https://cushiebl ogger.com/testimonial/lisa-t-w/
CATEGORIES:Cushings UID:20170719T1301340Z-549422-678@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170719 SUMMARY:New Testimonial from Lisa T W RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171219;BYMONTHDAY=19 DESCRIPTION:Just wanted to add much love and thanks for everything you have done. You probably don't even know how many lives you have touched\, and saved! ... From https://cushieblogger.com/testimonial/lisa-t-w/ X-ALT-DESC;FMTTYPE=text/html:Just wanted to add much love and thanks for everything you have done. You probably don't even know how many lives you have touched\, and saved! ...
\;
From \;https:// cushieblogger.com/testimonial/lisa-t-w/
CATEGORIES:Cushings UID:20170719T1303090Z-549422-679@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushings Help is almost 18! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250720;BYMONTH=7;BYMONTHDAY=20 DTSTART;VALUE=DATE:20170720 DTEND;VALUE=DATE:20170721 DESCRIPTION:It's unbelievable but the idea for Cushing's Help and Support a rrived 18 years ago tonight. Read more at https://cushieblogger.com/2018/0 7/20/were-almost-18/ X-ALT-DESC;FMTTYPE=text/html:
It's unbelievable but the idea for Cushing's Help and Support arri
ved 18 years ago tonight.
Read more at \;https://cushiebl ogger.com/2018/07/20/were-almost-18/
CATEGORIES:Cushings UID:20180720T1539340Z-549422-680@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Kind Words from a Facebook Post RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200720;BYMONTH=7;BYMONTHDAY=20 DTSTART;VALUE=DATE:20170720 DTEND;VALUE=DATE:20170721 DESCRIPTION:These came up in my Facebook Memories from this date in 2009! R ead more at https://cushieblogger.com/testimonial/kind-words-from-a-facebo ok-post/ X-ALT-DESC;FMTTYPE=text/html:These came up in my Facebook Me mories from this date in 2009!
Read more at \;https://cushieblogger.com/testimonial/kind-words-from-a-faceboo k-post/
CATEGORIES:Cushings UID:20170720T1229550Z-549422-681@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:A Retrospective Review of 34 Cases of Pediatric Pituitary Adenoma DTSTART;VALUE=DATE:20170817 DTEND;VALUE=DATE:20170818 RRULE:FREQ=MONTHLY;UNTIL=20180720;BYDAY=3TH DESCRIPTION:Craniotomy is worth considering for total tumor removal. Pituit ary adenoma apoplexy needs further studies since its different features be tween children and adults in present study. Specialized care and teamwork of neurosurgeons\, pediatricians\, and endocrinologists are important. Rea d more at https://cushieblog.com/2017/07/20/a-retrospective-review-of-34-c ases-of-pediatric-pituitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:Craniotomy is worth considering for total t umor removal. Pituitary adenoma apoplexy needs further studies since its d ifferent features between children and adults in present study. Specialize d care and teamwork of neurosurgeons\, pediatricians\, and endocrinologist s are important.
Read more at \;https://cushieblog.com/2017/07/20/a-retrospective-r eview-of-34-cases-of-pediatric-pituitary-adenoma/
CATEGORIES:News Items UID:20170720T1305010Z-549422-682@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170721 SUMMARY:New Testimonial From Dara M RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180721;BYMONTHDAY=21 DESCRIPTION:Thank the gods\, you have saved so many of us xxx Posted at Tha nk the gods\, you have saved so many of us xxx X-ALT-DESC;FMTTYPE=text/html:Thank the gods\, you have saved so many of us xxx
Posted at \;Thank the gods\, y ou have saved so many of us xxx
CATEGORIES:Cushings UID:20170721T1917220Z-549422-683@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170722 SUMMARY:New on the Message Boards ~ July 22\, 2017 DESCRIPTION:A quick summary of some of this week’s activity on the Cushing’ s Help message boards. Read about them all at https://cushieblogger.com/20 17/07/22/new-on-the-message-boards-july-22-2017/ X-ALT-DESC;FMTTYPE=text/html:A quick summary of some of this week&rsquo\ ;s activity on the Cushing&rsquo\;s Help message boards.
Read abou t them all at \;https://cushieblogger.com /2017/07/22/new-on-the-message-boards-july-22-2017/
CATEGORIES:Cushings UID:20170722T1303260Z-549422-684@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Cushing's Help Guest Forum DTSTART;VALUE=DATE:20170812 DTEND;VALUE=DATE:20170813 RRULE:FREQ=MONTHLY;UNTIL=20200722;BYDAY=2SA,4SA DESCRIPTION:The Guest Forum has returned. At the moment\, new guest questi ons are not moderated. Check it out at http://cushings.invisionzone.com/in dex.php?/forum/316-guest-forum/ X-ALT-DESC;FMTTYPE=text/html:The Guest Forum has returned. \;At the moment\, new guest questions are not moderated.
Check it out at&n bsp\;http://cushings.invisionzone.com/index.php?/forum/ 316-guest-forum/
CATEGORIES:Cushings UID:20180310T1535330Z-549422-685@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170722 SUMMARY:Love the Slide! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180722;BYMONTHDAY=22 DESCRIPTION:Love this picture that came up in one of the Cushing's Conferen ce presentations. See the slide at https://cushieblogger.com/2017/07/22/lo ve-the-slide/ X-ALT-DESC;FMTTYPE=text/html:Love this picture that came up in one of th e Cushing's Conference presentations.
See the slide at \; https://cushieblogger.com/2017/07/22/love-the-slide/
CATEGORIES:Cushings UID:20170722T2209530Z-549422-686@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170722 SUMMARY:Comment added to Neurosurgeon and Otolaryngologist Team Up to Remov e Tumor in Pituitary Gland RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180722;BYMONTHDAY=22 DESCRIPTION:May I ask\, what your symptoms were before surgery and what led to the initial discovery of your pituitary adenoma? Was Cushings a second ary diagnoses? Read more at https://cushieblog.com/2017/02/04/neurosurgeon -and-otolaryngologist-team-up-to-remove-tumor-in-pituitary-gland/ X-ALT-DESC;FMTTYPE=text/html:May I ask\, what your symptoms were before surgery and what led to the initial discovery of your pituitary adenoma?
Was Cushings a secondary diagnoses?
Read more at \;https://cushie blog.com/2017/02/04/neurosurgeon-and-otolaryngologist-team-up-to-remove-tu mor-in-pituitary-gland/
CATEGORIES:Cushie Bios UID:20170723T0320200Z-549422-687@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Mary S (ladysslipper)\, Adrenal Bio DTSTART;VALUE=DATE:20170827 DTEND;VALUE=DATE:20170828 RRULE:FREQ=MONTHLY;UNTIL=20180723;BYDAY=4SU DESCRIPTION:(Golden Oldie) Mary S (ladysslipper) is from Frostburg\, Maryla nd. She recently completed a clinical trial at NIH because of an adrenal n odule. She also has hyperplasia of both adrenals and primary hyperaldoster onism as well as elevated cortisol. Read more at https://cushingsbios.com/ 2017/07/23/mary-s-ladysslipper-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:(Golden Oldie) Mary S (ladysslipper) is fro m Frostburg\, Maryland. She recently completed a clinical trial at NIH bec ause of an adrenal nodule. She also has hyperplasia of both adrenals and p rimary hyperaldosteronism as well as elevated cortisol.
Read more at \;https://cushingsbios.com/2017/07/23/mary-s-l adysslipper-adrenal-bio/
CATEGORIES:Cushie Bios UID:20170723T2035010Z-549422-688@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z DTSTART;VALUE=DATE:20170724 SUMMARY:Comment added to Danielle\, Undiagnosed (Cyclical Cushing's) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180724;BYMONTHDAY=24 DESCRIPTION:Peter's comment reads almost like an entire bio of its own. 'I am in a similar predicament. In January 2017 I started having random episo des of Severe sweating\, I thought it was because I was overweight at near ly nearly 250 pounds with a height of 5’8. I went to primary care physicia n he recommended I see a Hematologist who saw some abnormalties in my bloo d. He recommended I see an Endocrinologist. I Googled to find a top one in my city. He took a lot of blood samples and urine test\, ACTH level was a bnormal is what he discovered\, unlike others I went directly to an MRI\, first of adrenal gland then MRI with and without contrast. Results showed a micro adenoma\, for non medical people reading it’s basically a small tu mor on the pituitary gland possibly causing excess cortisol production... Read more in the comments at https://cushingsbios.com/2017/05/18/danielle- undiagnosed-cyclical-cushings/ X-ALT-DESC;FMTTYPE=text/html:Peter's comment reads almost like an entire bio of its own. 'I am in a similar predicament. In January 2017 I started having random episodes of Severe sweating\, I thought it was because I wa s overweight at nearly nearly 250 pounds with a height of 5&rsquo\;8. I we nt to primary care physician he recommended I see a Hematologist who saw s ome abnormalties in my blood. He recommended I see an Endocrinologist. I G oogled to find a top one in my city. He took a lot of blood samples and ur ine test\, ACTH level was abnormal is what he discovered\, unlike others I went directly to an MRI\, first of adrenal gland then MRI with and withou t contrast. Results showed a micro adenoma\, for non medical people readin g it&rsquo\;s basically a small tumor on the pituitary gland possibly caus ing excess cortisol production...
Read more in the comments at&nbs p\;https://cushingsbios.com/2017/05/18/daniell e-undiagnosed-cyclical-cushings/
CATEGORIES:Cushie Bios UID:20170724T0700290Z-549422-689@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Kiko Matthews\, Pituitary Cushing's Survivor Solo Rows Atlantic yo Raise £100K For Hospital That Saved Her Life DTSTART;VALUE=DATE:20170828 DTEND;VALUE=DATE:20170829 RRULE:FREQ=MONTHLY;UNTIL=20180724;BYDAY=4MO DESCRIPTION:Eight years ago she almost died after a 6mm tumour on her pitui tary gland – a gland at the base of the brain responsible for hormone cont rol – brought on an aggressive form of the rare disease Cushing’s. The tum our made her cortisol levels climb dangerously high\, causing severe memor y loss\, muscle wasting\, osteoporosis\, end-stage diabetes\, insomnia\, ‘ brain fog’ and psychosis\, or what Kiko now affectionately calls ‘mental b ehaviour’. Her body ballooned\, her face grew red\, spotty and hairy and h er muscles wasted to the point she was too weak to walk. Read more at http s://cushieblog.com/2017/07/24/kiko-matthews-pituitary-cushings-survivor-so lo-rows-atlantic-to-raise-100k-for-hospital-that-saved-her-life/ X-ALT-DESC;FMTTYPE=text/html:Eight years ago she almost died after a 6mm tumour on her pituitary gland &ndash\; a gland at the base of the brain r esponsible for hormone control &ndash\; brought on an aggressive form of t he rare disease Cushing&rsquo\;s.
The tumour made her cortisol lev els climb dangerously high\, causing severe memory loss\, muscle wasting\, osteoporosis\, end-stage diabetes\, insomnia\, &lsquo\;brain fog&rsquo\; and psychosis\, or what Kiko now affectionately calls &lsquo\;mental behav iour&rsquo\;.
Her body ballooned\, her face grew red\, spotty and hairy and her muscles wasted to the point she was too weak to walk.
< p>Read more at \;https://cushieblog.com/2017/07/2 4/kiko-matthews-pituitary-cushings-survivor-solo-rows-atlantic-to-raise-10 0k-for-hospital-that-saved-her-life/ CATEGORIES:Cushie Bios UID:20170724T2158340Z-549422-690@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021017Z SUMMARY:Crystal (Crystal)\, Pituitary Bio DTSTART;VALUE=DATE:20170829 DTEND;VALUE=DATE:20170830 RRULE:FREQ=MONTHLY;UNTIL=20200725;BYDAY=-1TU DESCRIPTION:Crystal is from Oregon. She was finally diagnosed with Cushing' s Disease (excreting pituitary tumor) in April 2017. Read more at https:/ /cushingsbios.com/2017/07/25/crystal-crystal-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Crystal is from Oregon. She was finally dia gnosed with Cushing's Disease (excreting pituitary tumor) in April 2017.&n bsp\;
Read more at \;https://cushingsbios.c om/2017/07/25/crystal-crystal-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170725T2303380Z-549422-691@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170726 SUMMARY:A Phase III Study of Osilodrostat to Treat Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180726;BYMONTHDAY=26 DESCRIPTION:In people with a disorder known as Cushing’s disease\, levels o f the hormone cortisol are very high in the urine and blood. Lowering cort isol levels relieves the symptoms of Cushing’s disease. Osilodrostat is an investigational drug that inhibits an enzyme needed for cortisol to be ma de. Read more at https://cushieblog.com/2017/07/26/a-phase-iii-study-of-os ilodrostat-to-treat-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:In people with a disorder known as Cushing& rsquo\;s disease\, levels of the hormone cortisol are very high in the uri ne and blood. Lowering cortisol levels relieves the symptoms of Cushing&rs quo\;s disease. Osilodrostat is an investigational drug that inhibits an e nzyme needed for cortisol to be made.
Read more at \;https://cushieblog.com/2017/07/26/a- phase-iii-study-of-osilodrostat-to-treat-cushings-disease/
CATEGORIES:News Items UID:20170726T1419360Z-549422-692@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170728 SUMMARY:[Pseudo-Cushing's] Michigan woman nearly dies after herbal suppleme nt found to be laced with steroids RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180728;BYMONTHDAY=28 DESCRIPTION:The 'pills were loaded with Dexamethasone … [which] is a medica tion. It’s a synthetic steroid\, very potent\, very long acting\, and if we take it for quite some time\, we develop what is called Cushing Syndrom e\,” said Dr. Barkan. Higgins was diagnosed with Cushing Syndrome\, and Ba rkan says she could have died if she hadn’t sought help. Read more at http s://cushieblog.com/2017/07/28/pseudo-cushings-michigan-woman-nearly-dies-a fter-herbal-supplement-found-to-be-laced-with-steroids/ X-ALT-DESC;FMTTYPE=text/html:The 'pills were loaded with Dexamethasone & hellip\; [which] is a medication. \; It&rsquo\;s a synthetic steroid\, very potent\, very long acting\, and if we take it for quite some time\, we develop what is called Cushing Syndrome\,&rdquo\; said Dr. Barkan.
Higgins was diagnosed with Cushing Syndrome\, and Barkan says sh
e could have died if she hadn&rsquo\;t sought help.
Read more at&n bsp\;https://cushieblog.com/2017/07/28/pseudo-cushings-michiga n-woman-nearly-dies-after-herbal-supplement-found-to-be-laced-with-steroid s/
CATEGORIES:Cushings UID:20170728T1232500Z-549422-693@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Paul M (Paul)\, Pituitary Bio DTSTART;VALUE=DATE:20170825 DTEND;VALUE=DATE:20170826 RRULE:FREQ=MONTHLY;UNTIL=20180728;BYDAY=-1FR DESCRIPTION:Paul is from Boston Massachusetts. He was diagnosed with Cushin g's Disease 4 years ago and has had pituitary surgery. Four years later he feels almost as bad most days as before the surgery. Read more at https ://cushingsbios.com/2017/07/28/paul-m-paul-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Paul is from Boston Massachusetts. He was d iagnosed with Cushing's Disease \;4 years ago and has had pituitary s urgery. \;Four years later he feels almost as bad most days as before the surgery.
Read more at \;https://cushingsbi os.com/2017/07/28/paul-m-paul-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170728T1357110Z-549422-694@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New on the Message Boards ~ July 29\, 2017 DTSTART;VALUE=DATE:20170729 DTEND;VALUE=DATE:20170730 RRULE:FREQ=WEEKLY;UNTIL=20170804;BYDAY=TU,SA DESCRIPTION:The Guest Questions have returned on a trial basis. At the mom ent\, new guest questions are not moderated. Guests may ask for informati on and (hopefully!) board members will answer. There is one question so fa r on How to search the boards? Read more at https://cushieblogger.com/2017 /07/29/new-on-the-message-boards-july-29-2017/ X-ALT-DESC;FMTTYPE=text/html:The Guest Questions have returned on a trial basis. \;At the moment\, new guest questions are not moderated. \;Guests may ask for information a nd (hopefully!) board members will answer.
There is one question s o far on \;How to search th e boards?
Read more at \;http s://cushieblogger.com/2017/07/29/new-on-the-message-boards-july-29-2017/
CATEGORIES:Cushings UID:20170729T1515590Z-549422-695@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170729 SUMMARY:Comment added to Leah (Lele)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171029;BYMONTHDAY=29 DESCRIPTION:...Ask for an MRI to check if there’s a small tumor in the pitu itary. Please look up Dr. Daniel Kelly in Santa Monica California. USA... Read more at https://cushingsbios.com/2013/08/22/leah-lele-undiagnosed-bio / X-ALT-DESC;FMTTYPE=text/html:...Ask for an MRI to check if there&rsquo\;
s a small tumor in the pituitary.
Please look up Dr. Daniel Kelly in
Santa Monica California. USA...
Read more at \; https://cushingsbios.com/2013/08/22/leah-lele-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170729T1525000Z-549422-696@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:My Daughter Lisa Marie Bates Died Needlessly Of Addison's Disease DTSTART;VALUE=DATE:20170828 DTEND;VALUE=DATE:20170829 RRULE:FREQ=MONTHLY;UNTIL=20190731;BYDAY=-1MO EXDATE;VALUE=DATE:20190225 DESCRIPTION:The problem with Addison's disease is that only 1 out of 100\,0 00 people get this. Lisa's symptoms were classic\, vitilago which are whi te spots\, darkened pigment\, and flu like symptoms. Even in this day and age doctors can miss a case of Addison's. Read more at http://addisonshel p.blogspot.com/2009/07/my-daughter-lisa-marie-bates-died.html X-ALT-DESC;FMTTYPE=text/html:The problem with Addison's disease is that only 1 out of 100\,000 people get this. \;Lisa's symptoms were classi c\, vitilago which are white spots\, darkened pigment\, and flu like sympt oms. \;Even in this day and age doctors can miss a case of Addison's.
Read more at \;http://addison shelp.blogspot.com/2009/07/my-daughter-lisa-marie-bates-died.html
CATEGORIES:In Memory UID:20180430T1331580Z-549422-697@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170801 SUMMARY:New Testimonial from Mike P RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171201;BYMONTHDAY=1 DESCRIPTION:Thanks for being there for many of us. Including Me. ALWAYS a P ositive inspiration.. Read more at https://cushieblogger.com/testimonial/m ike-p/ X-ALT-DESC;FMTTYPE=text/html:Thanks for being there for many of us. Incl uding Me. ALWAYS a Positive inspiration..
Read more at \;https:/ /cushieblogger.com/testimonial/mike-p/
CATEGORIES:Cushings UID:20170801T1315290Z-549422-698@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Rachel\, Undiagnosed Bio DTSTART;VALUE=DATE:20170901 DTEND;VALUE=DATE:20170902 RRULE:FREQ=MONTHLY;UNTIL=20171204;BYDAY=1FR DESCRIPTION:...I’ve been lost with this for so long\, I’ve had so many frus trated cries\, I’ve tried diet after diet\, every doctor blaming my sympto ms on my weight and telling me I need to lose weight but I just can’t... R ead more at https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...I&rsquo\;ve been lost with this for so l ong\, I&rsquo\;ve had so many frustrated cries\, I&rsquo\;ve tried diet af ter diet\, every doctor blaming my symptoms on my weight and telling me I need to lose weight but I just can&rsquo\;t...
Read more at \; https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170804T2142180Z-549422-699@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170807 SUMMARY:Comment added to Dawn M (Lind8588)\, Steroid Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171207;BYMONTHDAY=7 DESCRIPTION:I go through phases wondering if it’s cushing syndrome I have \ , or some form of it\, but since I have been taking amphetamines and stron ger for so long I don’t really feel like I deserve to be diagnosed... Read more at https://cushingsbios.com/2014/10/22/dawn-m-lind8588-steroid-induc ed-bio/ X-ALT-DESC;FMTTYPE=text/html:I go through phases wondering if it&rsquo\; s cushing syndrome I have \, or some form of it\, but since I have been ta king amphetamines and stronger for so long I don&rsquo\;t really feel like I deserve to be diagnosed...
Read more at \;https://cushingsbios.com/2014/10/22/dawn-m-lind8588-steroid-induce d-bio/
CATEGORIES:Cushie Bios UID:20170808T1405010Z-549422-700@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Toni (Toni)\, Adrenal Bio DTSTART;VALUE=DATE:20170912 DTEND;VALUE=DATE:20170913 RRULE:FREQ=MONTHLY;UNTIL=20171208;BYDAY=2TU DESCRIPTION:I just had surgery on Friday and had left adrenal removed. I ju st got home today ( Monday) and I must say I expected it to be much worse. ... Read more at https://cushingsbios.com/2016/01/23/toni-toni-adrenal-bi o/ X-ALT-DESC;FMTTYPE=text/html:I just had surgery on Friday and had left a drenal removed. I just got home today ( Monday) and I must say I expected it to be much worse. ...
Read more at \;https://cus hingsbios.com/2016/01/23/toni-toni-adrenal-bio/
CATEGORIES:Cushie Bios UID:20170808T1406530Z-549422-701@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170808 SUMMARY:An unusual case of Cushing's syndrome due to bihormonal ACTH–prolac tin secreting pituitary macroadenoma with rapid response to cabergoline RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180808;BYMONTHDAY=8 DESCRIPTION:A 23-year-old man presenting with florid Cushing's syndrome was found to have high plasma ACTH and very high serum prolactin. Pituitary M RI showed a large invasive macroadenoma. Read more at https://cushieblog.c om/2017/08/08/an-unusual-case-of-cushings-syndrome-due-to-bihormonal-acth- prolactin-secreting-pituitary-macroadenoma-with-rapid-response-to-cabergol ine/ X-ALT-DESC;FMTTYPE=text/html:A 23-year-old man presenting with florid Cu shing's syndrome was found to have high plasma ACTH and very high serum pr olactin. Pituitary MRI showed a large invasive macroadenoma.
CATEGORIES:Cushings UID:20170808T1417190Z-549422-702@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170810 SUMMARY:Another Comment added to Toni (Toni)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171210;BYMONTHDAY=10 DESCRIPTION:Hello\, I had my right adrenal remove over 22 years ago\, I was 32 years old with a 2 & 4 year old. I\, like so many\, was misdiagnosed f or about one year\, felt horrible all the time\, gained 30 lbs in one mont h\, while having two weight loss shakes a day & doing aerobics for an hour everyday... Read much more in the comments at https://cushingsbios.com/20 16/01/23/toni-toni-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Hello\, I had my right adrenal remove over 22 years ago\, I was 32 years old with a 2 &\; 4 year old. I\, like so many\, was misdiagnosed for about one year\, felt horrible all the time\, gained 30 lbs in one month\, while having two weight loss shakes a day &am p\; doing aerobics for an hour everyday...
Read much more in the c omments at https://cushingsbios.com/2016/01/23/toni-toni-adrena l-bio/ \;
CATEGORIES:Cushie Bios UID:20170810T1915260Z-549422-703@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170810 SUMMARY:NIH: Discovery Channel’s Documentary Series ‘First In Human’ DESCRIPTION:First In Human represents the first time cameras have embedded in Building 10 and followed first in human patients throughout their entir e trial. This unique access is the product of Hoffman’s nearly twenty year s of filmmaking in partnership with the NIH on projects such as The Alzhei mer’s Project and The Weight of the Nation. Read more at https://cushieblo gger.com/2017/08/10/nih-discovery-channels-documentary-series-first-in-hum an/ X-ALT-DESC;FMTTYPE=text/html:First In Human represents the first time ca meras have embedded in Building 10 and followed first in human patients th roughout their entire trial. This unique access is the product of Hoffman& rsquo\;s nearly twenty years of filmmaking in partnership with the NIH on projects such as The Alzheimer&rsquo\;s Project and The Weight of the Nati on.
Read more at \;https://cushieblogger.com/2017/08/10/nih-discovery-channels-documentar y-series-first-in-human/
CATEGORIES:Other Medical UID:20170810T2117360Z-549422-704@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Vicky (Vicjy)\, Adrenal Bio DTSTART;VALUE=DATE:20170909 DTEND;VALUE=DATE:20170910 RRULE:FREQ=MONTHLY;UNTIL=20180812;BYDAY=2SA DESCRIPTION:Vicky is from Florida. She thinks her symptoms started about 3 years ago. Vicky recently had adrenal surgery for a left adrenal adenoma. Read more at https://cushingsbios.com/2017/08/12/vicky-vicjy-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Vicky is from Florida. She thinks her sympt oms started about 3 years ago. \;Vicky recently had adrenal surgery f or a left adrenal adenoma.
Read more at \;https:/ /cushingsbios.com/2017/08/12/vicky-vicjy-adrenal-bio/
CATEGORIES:Cushie Bios UID:20170812T1444480Z-549422-705@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170813 SUMMARY:The burden of Cushing's disease: clinical and health-related qualit y of life aspects RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180813;BYMONTHDAY=13 DESCRIPTION: These findings highlight the significant burden associated wi th CD. As current treatment options may not fully reverse the burden of ch ronic hypercortisolism\, there is a need for both improved diagnostic tool s to reduce the time to diagnosis and effective therapy\, particularly a t argeted medical therapy. Read more at https://cushieblog.com/2017/08/13/th e-burden-of-cushings-disease-clinical-and-health-related-quality-of-life-a spects/ X-ALT-DESC;FMTTYPE=text/html:
& nbsp\;
These findings highlight the significant burden associated with CD. As current treatment options may not fully reverse the burden of chronic hypercortisolism\, there is a need for both improved diagnostic to ols to reduce the time to diagnosis and effective therapy\, particularly a targeted medical therapy.
Read more at \;https://cushieblog.com/2 017/08/13/the-burden-of-cushings-disease-clinical-and-health-related-quali ty-of-life-aspects/
CATEGORIES:Cushings UID:20170813T2339520Z-549422-706@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Liz L\, Pituitary Bio DTSTART;VALUE=DATE:20170911 DTEND;VALUE=DATE:20170912 RRULE:FREQ=MONTHLY;UNTIL=20171214;BYDAY=2MO DESCRIPTION:My son. Joseph 30 from McAllen TX has had cushings for about 5 Years. After MD Anderson Cancer treatment and Methodist Hosp in Houston bo th botched diagnosing and treating him because the surgeons... Read more a t https://cushingsbios.com/2016/09/08/liz-l-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:My son. Joseph 30 from McAllen TX has had c ushings for about 5 Years. After MD Anderson Cancer treatment and Methodis t Hosp in Houston both botched diagnosing and treating him because the sur geons...
Read more at https://cushingsbios.com/2016/09/08 /liz-l-pituitary-bio/ \;
CATEGORIES:Cushie Bios UID:20170814T1210540Z-549422-707@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170814 SUMMARY:Comment added to Jody (jodiann)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171214;BYMONTHDAY=14 DESCRIPTION:...One thing for sure is that having an adrenalectomy might see m to you of a magical cure but it is Not\, I wonder where the old me went to \, I have no energy\, no drive and my joints hurt badly and yet they cl aimed I am cured I think that half of the battle with this unusual disease is the aftermath of treatment... Read more at https://cushingsbios.com/20 17/03/14/jody-jodiann-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:...One thing for sure is that having an adr enalectomy might seem to you of a magical cure but it is Not\, I wonder wh ere the old me went to \, I have no energy\, no drive and my joints hurt b adly and yet they claimed I am cured I think that half of the battle with this unusual disease is the aftermath of treatment...
Read more at \;https://cushingsbios.com/2017/03/14/jody-jodiann-adre nal-bio/
CATEGORIES:Cushie Bios UID:20170815T0055040Z-549422-708@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170816 SUMMARY:Growth Hormone: Drug companies are growing less generous in helping patients pay for meds RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180816;BYMONTHDAY=16 DESCRIPTION:Wright suffered a head injury 17 years ago that damaged his pit uitary gland. In 2003\, he was diagnosed as having an abnormally low level of growth hormone\, which caused him to suddenly become overwhelmed with fatigue. That’s a potentially life-threatening condition if an episode sho uld occur while driving\, walking down stairs or performing some other phy sical activity. Wright’s doctor prescribed the self-injected human growth hormone Humatrope\, manufactured by Eli Lilly & Co. Read more at https://c ushieblog.com/2017/08/16/growth-hormone-drug-companies-are-growing-less-ge nerous-in-helping-patients-pay-for-meds/ X-ALT-DESC;FMTTYPE=text/html:Wright suffered a head injury 17 years ago that damaged his pituitary gland. In 2003\, he was diagnosed as having an abnormally low level of growth hormone\, which caused him to suddenly beco me overwhelmed with fatigue.
That&rsquo\;s a potentially life-thre atening condition if an episode should occur while driving\, walking down stairs or performing some other physical activity.
Wright&rsquo\;s doctor prescribed the self-injected human growth hormone Humatrope\, manu factured by Eli Lilly &\; Co.
Read more at \;https://cush ieblog.com/2017/08/16/growth-hormone-drug-companies-are-growing-less-gener ous-in-helping-patients-pay-for-meds/
CATEGORIES:Other Medical UID:20170816T1255410Z-549422-709@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Adrenal myelolipoma(s) as presenting manifestation of subclinical C ushing’s disease (eutopic ACTH-dependent Cushing’s syndrome) DTSTART;VALUE=DATE:20170920 DTEND;VALUE=DATE:20170921 RRULE:FREQ=MONTHLY;UNTIL=20180816;BYDAY=3WE DESCRIPTION:In this article\, hormonal evaluation in a middle-aged woman wi th diabetes\, hypertension and incidentally discovered unilateral adrenal myelolipoma revealed underlying subclinical Cushing’s disease. Read more a t https://cushieblog.com/2017/08/16/adrenal-myelolipomas-as-presenting-man ifestation-of-subclinical-cushings-disease-eutopic-acth-dependent-cushings -syndrome/ X-ALT-DESC;FMTTYPE=text/html:In this article\, hormonal evaluation in a middle-aged woman with diabetes\, hypertension and incidentally discovered unilateral adrenal myelolipoma revealed underlying subclinical Cushing&rs quo\;s disease.
CATEGORIES:Cushings UID:20170816T1515410Z-549422-711@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170816 SUMMARY:Cushing's Slideshow RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180816;BYMONTHDAY=16 DESCRIPTION:Message board member sherryc presented this PowerPoint at pione er Pacific College. It took a lot of work with her failing memory but she did It! She wanted to get the word out about Cushing's and her journey wit h this awful disease. Read more at https://cushieblogger.com/2017/08/16 /cushings-slideshow/ X-ALT-DESC;FMTTYPE=text/html:Message board member sherryc presented this PowerPoint at pioneer Pacific College. It took a lot of work with her fai ling memory but she did It! She wanted to get the word out about Cushing's and her journey with this awful disease. \;
\;
R ead more at \;https://cushieblogger.com/2017/08/16/cushings-s lideshow/
CATEGORIES:Cushings UID:20170816T1543250Z-549422-712@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170816 SUMMARY:Mild Cases of Cushing's Syndrome Present Diagnostic Challenges RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180816;BYMONTHDAY=16 DESCRIPTION:'It can be challenging to differentiate the milder forms from p seudo-Cushing's states\,' which are characterized by altered cortisol prod uction and many of the same clinical features as Cushing's syndrome\, acco rding to Roberto Salvatori\, MD\, the medical director of the Johns Hopkin s Pituitary Center\, Baltimore\, Maryland. These may include alcoholism\, obesity\, eating disorders\, and depression. 'Because Cushing's can cause depression\, for example\, it is sometimes difficult to determine which ca me first\,' he says. In these states\, however\, hypercortisolism is belie ved to be driven by increased secretion of hypothalamic corticotropin-rele asing hormone\, which is suppressed in Cushing's syndrome Read more at h ttps://cushieblog.com/2017/08/16/mild-cases-of-cushings-syndrome-present-d iagnostic-challenges/ X-ALT-DESC;FMTTYPE=text/html:'It can be challenging to differentiate the milder forms from pseudo-Cushing's states\,' which are characterized by a ltered cortisol production and many of the same clinical features as Cushi ng's syndrome\, according to Roberto Salvatori\, MD\, the medical director of the Johns Hopkins Pituitary Center\, Baltimore\, Maryland. These may i nclude alcoholism\, obesity\, eating disorders\, and depression. 'Because Cushing's can cause depression\, for example\, it is sometimes difficult t o determine which came first\,' he says. In these states\, however\, hyper cortisolism is believed to be driven by increased secretion of hypothalami c corticotropin-releasing hormone\, which is suppressed in Cushing's syndr ome
\;
Read more at \;https://cushieblog.com/2017/08/16/mild-cases-of-cush ings-syndrome-present-diagnostic-challenges/
CATEGORIES:Cushings UID:20170817T0210560Z-549422-713@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Lynne (jim4lynne)\, Steroid-Induced Bio DTSTART;VALUE=DATE:20170915 DTEND;VALUE=DATE:20170916 RRULE:FREQ=MONTHLY;UNTIL=20180818;BYDAY=3FR DESCRIPTION:Lynne is from the United Kingdom. Her Cushing's has been cause d by corticosteroids. She has been on steroids or 40 years daily.for sever e brittle asthma. She has been on prednisolone and IV steroids on hospital admissions for years. Read more at https://cushingsbios.com/2017/08/18/ly nne-jim4lynne-steroid-induced-bio/ X-ALT-DESC;FMTTYPE=text/html:Lynne is from the United Kingdom. \;He r Cushing's has been caused by corticosteroids. She has been on steroids o r 40 years daily.for severe brittle asthma. She has been on prednisolone a nd IV steroids on hospital admissions for years.
Read more at \;https://cushingsbios.com/2017/08/18/lynne-jim4l ynne-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20170818T1433220Z-549422-714@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170824 SUMMARY:Janice B\, Steroid-Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180824;BYMONTHDAY=24 DESCRIPTION:Janice is from St. Catharines\, Ontario\, Canada. She had pitu itary surgery April 2013 and had an adrenal crisis while on vacation. She has a recurrence\, possibly due to too much prednisone. Read more at http s://cushingsbios.com/2017/08/24/janice-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Janice is from St. Catharines\, Ontario\, C anada. \;She had pituitary surgery April 2013 and had an adrenal cris is while on vacation. \;She has a recurrence\, possibly due to too mu ch prednisone.
Read more at \;https://cushingsbios.c om/2017/08/24/janice-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170824T1951190Z-549422-715@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170904 SUMMARY:Comment added to Deborah S\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171204;BYMONTHDAY=4 DESCRIPTION:...I feel the same as you. No doctor seems to put everything to gether did you get a diagnosis. Read more at https://cushingsbios.com/2016 /03/19/deborah-s-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...I feel the same as you. No doctor seems to put everything together did you get a diagnosis.
Read more at&n bsp\;https://cushingsbios.com/2016/03/19/deborah-s-undiagno sed-bio/
CATEGORIES:Cushie Bios UID:20170904T1516410Z-549422-716@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Memory: Cassandra Dills-Dailey ~ August 29\, 2017 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300829;BYMONTH=8;BYMONTHDAY=29 DTSTART;VALUE=DATE:20170829 DTEND;VALUE=DATE:20170830 DESCRIPTION:Casey Dailey\, age 38\, was fighting Cushing's disease\, a pitu itary gland disorder often caused by a tumor creating excess cortisol. She had surgery Aug. 23 and went home the next day. Over the following weeken d\, she began feeling sick. She vomited\, sometimes with blood. Then\, she couldn't stand or talk\, relatives said. A high fever started Sunday\, af ter floodwaters surrounded her home\, and she became unresponsive. Read mo re at https://cushingsbios.com/2022/08/29/in-memory-of-cassandra-dills-dai ley-august-29-2017/ X-ALT-DESC;FMTTYPE=text/html:Casey Dailey\, age 38\, was fighting Cushin g's disease\, a pituitary gland disorder often caused by a tumor creating excess cortisol. She had surgery Aug. 23 and went home the next day. Over the following weekend\, she began feeling sick. She vomited\, sometimes wi th blood. Then\, she couldn't stand or talk\, relatives said. A high fever started Sunday\, after floodwaters surrounded her home\, and she became u nresponsive.
Read more at \;https://cushingsbios.com/2022/08/29/in-memory-of-cass andra-dills-dailey-august-29-2017/
CATEGORIES:In Memory UID:20220831T2323440Z-549422-717@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Glowing cancer tool illuminates benign\, but dangerous\, brain tumo rs during pituitary surgery DTSTART;VALUE=DATE:20171005 DTEND;VALUE=DATE:20171006 RRULE:FREQ=MONTHLY;UNTIL=20180907;BYDAY=1TH DESCRIPTION:'Pituitary adenomas are rarely cancerous\, but they can cause o ther serious problems for patients by pushing up against parts of their br ain\, which can lead to Cushing's disease\, gigantism\, blindness and deat h\,' Lee explained. 'The study shows that this novel\, targeted\, near inf rared fluorescent dye technique is safe\, and we believe this technique wi ll improve surgery.' Read more at https://cushieblog.com/2017/09/07/glowin g-cancer-tool-illuminates-benign-but-dangerous-brain-tumors-during-pituita ry-surgery/ X-ALT-DESC;FMTTYPE=text/html:'Pituitary adenomas are rarely cancerous\, but they can cause other serious problems for patients by pushing up again st parts of their brain\, which can lead to Cushing's disease\, gigantism\ , blindness and death\,' Lee explained. 'The study shows that this novel\, targeted\, near infrared fluorescent dye technique is safe\, and we belie ve this technique will improve surgery.'
Read more at \;ht tps://cushieblog.com/2017/09/07/glowing-cancer-tool-illuminates-benign-but -dangerous-brain-tumors-during-pituitary-surgery/
CATEGORIES:News Items UID:20170907T1307570Z-549422-718@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170907 SUMMARY:Crinetics Pharmaceuticals Awarded Two SBIR Grants to Develop New Th erapeutics for Congenital Hyperinsulinism and Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180907;BYMONTHDAY=7 DESCRIPTION:Crinetics Pharmaceuticals\, Inc.\, a rare disease therapeutics company focused on endocrine disorders and endocrine-related cancers\, ann ounced that it was awarded two new grants from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) of the National Institu tes of Health (NIH)\, which will be used for the development of Crinetics’ nonpeptide\, oral somatostatin agonists for congenital hyperinsulinemia\, and the discovery of novel small molecule drugs for Cushing's disease\, r espectively. Read more at https://cushieblog.com/2017/09/07/crinetics-phar maceuticals-awarded-two-sbir-grants-to-develop-new-therapeutics-for-congen ital-hyperinsulinism-and-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Crinetics Pharmaceuticals\, Inc.\, a rare d isease therapeutics company focused on endocrine disorders and endocrine-r elated cancers\, announced \;that it was awarded two new grants from the National Institute of Diabetes and Digestive and Kidney Diseases (NIDD K) of the National Institutes of Health (NIH)\, which will be used for the development of Crinetics&rsquo\; nonpeptide\, oral somatostatin agonists for congenital hyperinsulinemia\, and the discovery of novel small molecul e drugs for Cushing's disease\, respectively.
Read more at \;< a href='https://cushieblog.com/2017/09/07/crinetics-pharmaceuticals-awarde d-two-sbir-grants-to-develop-new-therapeutics-for-congenital-hyperinsulini sm-and-cushings-disease/' target='_blank'>https://cushieblog.com/2017/09/0 7/crinetics-pharmaceuticals-awarded-two-sbir-grants-to-develop-new-therape utics-for-congenital-hyperinsulinism-and-cushings-disease/
CATEGORIES:News Items UID:20170907T1337010Z-549422-719@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Massachusetts Hospital Opens New Neurosurgery Program DTSTART;VALUE=DATE:20171013 DTEND;VALUE=DATE:20171014 RRULE:FREQ=MONTHLY;UNTIL=20180908;BYDAY=2FR DESCRIPTION:Dr. Safain received his medical degree from Yale University Sch ool of Medicine. He completed his neurosurgery residency at Tufts Medical Center serving as chief resident during his final year. Dr. Safain also completed fellowship training in pituitary and neuro-endoscopic surgery at Brigham and Women’s Hospital. Read more at https://cushieblog.com/2017/09 /08/massachusetts-hospital-opens-new-neurosurgery-program/ X-ALT-DESC;FMTTYPE=text/html:Dr. Safain received his medical degree from Yale University School of Medicine. \; He completed his neurosurgery residency at Tufts Medical Center serving as chief resident during his fin al year. \; Dr. Safain also completed fellowship training in pituitary and neuro-endoscopic surgery at Brigham and Women&rsquo\;s Hospital.
Read more at \;https://cu shieblog.com/2017/09/08/massachusetts-hospital-opens-new-neurosurgery-prog ram/
CATEGORIES:Helpful Doctors UID:20170908T1129180Z-549422-720@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170909 SUMMARY:New Testimonial from Lynn RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171209;BYMONTHDAY=9 DESCRIPTION:...Thank you Mary for these boards which back in 2000 were the only source of support and education there was for a patient like me. I jo ined them in 2000 and again in 2004. I will always be grateful for the sen se of normalcy and belonging I found on this web site. I work from home no w and have a great life! To all of you just starting the journey......DONT GIVE UP....LIFE IS WORTH LIVING AND YOU MATTER...With the right Drs on yo ur team and these boards you can live your best life. Educate yourself and be proactive. Be strong and please don't be afraid to ask questions or as k for help... Read more at http://cushings.invisionzone.com/profile/9726-l ynn/ X-ALT-DESC;FMTTYPE=text/html:...Thank you Mary for these boards which ba ck in 2000 were the only source of support and education there was for a p atient like me. I joined them in 2000 and again in 2004. I will always be grateful for the sense of normalcy and belonging I found on this web site. I work from home now and have a great life! To all of you just starting t he journey......DONT GIVE UP....LIFE IS WORTH LIVING AND YOU MATTER...With the right Drs on your team and these boards you can live your best life. Educate yourself and be proactive. Be strong and please don't be afraid to ask questions or ask for help...
Read more at \;http://cu shings.invisionzone.com/profile/9726-lynn/
CATEGORIES:Cushings UID:20170909T1736580Z-549422-721@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Matt\, Undiagnosed Bio DTSTART;VALUE=DATE:20171014 DTEND;VALUE=DATE:20171015 RRULE:FREQ=MONTHLY;UNTIL=20171209;BYDAY=2SA DESCRIPTION:It’s terrible that you have to feel like you’re going through t his alone. It would help to find a doctor that is really listening to your story and hopefully asking you the right questions. I’d suggest meeting w ith a naturopathic doctor if possible and see where that leads you. Mine w as able to help me when other doctors were unable to... Read more at http s://cushingsbios.com/2017/03/22/matt-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:It&rsquo\;s terrible that you have to feel like you&rsquo\;re going through this alone. It would help to find a docto r that is really listening to your story and hopefully asking you the righ t questions. I&rsquo\;d suggest meeting with a naturopathic doctor if poss ible and see where that leads you. Mine was able to help me when other doc tors were unable to... \;
Read more at \;https:/ /cushingsbios.com/2017/03/22/matt-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170909T2300150Z-549422-722@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170913 SUMMARY:Comment added to Nicole\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171213;BYMONTHDAY=13 DESCRIPTION:Your story sounds very similar to mine (although I am a runner) . I saw Dr. Yuen and worked with his group for a few years. Went through a ll of the Cushing’s tests\, and some were concerning in the beginning and over time they went down to normal. My problem was years of restrictive di eting and excessive exercising... Read more at https://cushingsbios.com/20 17/07/13/nicole-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Your story sounds very similar to mine (alt hough I am a runner). I saw Dr. Yuen and worked with his group for a few y ears. Went through all of the Cushing&rsquo\;s tests\, and some were conce rning in the beginning and over time they went down to normal. My problem was years of restrictive dieting and excessive exercising...
Read more at \;https://cushingsbios.com/2017/07/13/nicole-undia gnosed-bio/
CATEGORIES:Cushie Bios UID:20170913T0952560Z-549422-723@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Christine G\, Pituitary Bio DTSTART;VALUE=DATE:20171011 DTEND;VALUE=DATE:20171012 RRULE:FREQ=MONTHLY;UNTIL=20180913;BYDAY=2WE DESCRIPTION:Christine is from Loudonville\, New York. It took her approxim ately 6 years o be diagnosed with Cushing’s Disease. Her insurance compan y denied out of network coverage. She did not feel comfortable with any lo cal surgeons because of the lack of surgical experience with Cushing’s Dis ease so Dr. Swearingen at Mass General performed her surgery. Read more at https://cushingsbios.com/2017/09/13/christine-g-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Christine is from Loudonville\, New York. & nbsp\;It took her approximately 6 years o be diagnosed with Cushing&rsquo\ ;s Disease. \;Her insurance company denied out of network coverage. S he did not feel comfortable with any local surgeons because of the lack of surgical experience with Cushing&rsquo\;s Disease so Dr. Swearingen at Ma ss General performed her surgery.
Read more at \;https://cushingsbios.com/2017/09/13/christine-g-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170913T1027060Z-549422-724@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170916 SUMMARY:In the UK? A study to investigate the prevalence of pituitary gland dysfunction and it's risk factors following traumatic brain injuries (TBI ) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180916;BYMONTHDAY=16 DESCRIPTION:Post- traumatic brain injury (anterior) pituitary gland dysfunc tion (PTPD) is common following traumatic brain injury and clinical and ra diological factors at the time of trauma may predict the risk of developin g long-term PTPD. Read more at https://cushieblog.com/2017/09/16/in-the-uk -a-study-to-investigate-the-prevalence-of-pituitary-gland-dysfunction-and- its-risk-factors-following-traumatic-brain-injuries-tbi/ X-ALT-DESC;FMTTYPE=text/html:Post- traumatic brain injury (anterior) pit uitary gland dysfunction (PTPD) is common following traumatic brain injury and clinical and radiological factors at the time of trauma may predict t he risk of developing long-term PTPD.
Read more at \;https://cushieblog.com/2017/09/ 16/in-the-uk-a-study-to-investigate-the-prevalence-of-pituitary-gland-dysf unction-and-its-risk-factors-following-traumatic-brain-injuries-tbi/ CATEGORIES:News Items UID:20170916T1101180Z-549422-725@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Testimonial From Faith Hope Love DTSTART;VALUE=DATE:20171021 DTEND;VALUE=DATE:20171022 RRULE:FREQ=MONTHLY;UNTIL=20171216;BYDAY=3SA DESCRIPTION:... Mary I thank god every day for finding your site. Without i t I would not be where I am today...... Free of Cushings and finally movin g on with my life. You are an angel sent stright from heven. From https:// cushieblogger.com/testimonial/faith-hope-love/ X-ALT-DESC;FMTTYPE=text/html:
... Mary I thank god every day for finding your site. Without it I would not be where I am today...... Free of Cushin gs and finally moving on with my life. You are an angel sent stright from heven.
From \;https://cushieblogger.com/testimonial/fai th-hope-love/
CATEGORIES:Cushings UID:20170916T1141080Z-549422-726@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170916 SUMMARY:Comment added to Leah (Lele)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171216;BYMONTHDAY=16 DESCRIPTION:I was diagnosed with Cushing's two years ago after having a sev ere kidney stone. The X-ray that they took when they found the kidney ston e revealed a large tumor on my left adrenal gland.... Read more at https: //cushingsbios.com/2013/08/22/leah-lele-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I was diagnosed with Cushing's two years ag o after having a severe kidney stone. The X-ray that they took when they f ound the kidney stone revealed a large tumor on my left adrenal gland....& nbsp\;
Read more at \;https://cushingsbios.com/ 2013/08/22/leah-lele-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170916T1327330Z-549422-727@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170918 SUMMARY:New Testimonial From Patricia G RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171218;BYMONTHDAY=18 DESCRIPTION:THE KNOWLEDGE AND SUPPORT IS A LIFE RAFT ...THANKYOU Read more at https://cushieblogger.com/testimonial/patricia-g/ X-ALT-DESC;FMTTYPE=text/html:THE KNOWLEDGE AND SUPPORT IS A LIFE RAFT .. .THANKYOU
Read more at \;https://cushieblogger.com/testimoni al/patricia-g/
CATEGORIES:Cushings UID:20170918T1020020Z-549422-728@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170923 SUMMARY:New Testimonial From Mike P RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171223;BYMONTHDAY=23 DESCRIPTION:...Thanks for paving the way for so many of us to have a road t o follow. It's surely not been the straightest or had it's fill of pothole s. BUT as rollercoaster riders AND Journey Zebra Warriors. WE stand United AND will carry on. NO matter OUR obstaclessss... Read more at https://cu shieblogger.com/testimonial/mike-p-2/ X-ALT-DESC;FMTTYPE=text/html:...Thanks for paving the way for so many of us to have a road to follow. It's surely not been the straightest or had it's fill of potholes. BUT as rollercoaster riders AND Journey Zebra Warri ors. WE stand United AND will carry on. NO matter OUR obstaclessss... \;
Read more at \;https://cushieblogger.com/testimonial/mike-p -2/
CATEGORIES:Cushie Bios UID:20170923T1134580Z-549422-729@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Pituitary tumors require collaborative care for best treatment resu lts DTSTART;VALUE=DATE:20171026 DTEND;VALUE=DATE:20171027 RRULE:FREQ=MONTHLY;UNTIL=20180928;BYDAY=-1TH DESCRIPTION:“In the last few decades\, a considerable body of evidence supp orts the concept that patients with pituitary tumors would receive the bes t care from units of excellence composed of expert neurosurgeons performin g pituitary surgery by transsphenoidal and other approaches\, plus experie nced neuroendocrinologists devoted to these types of tumors\,” the authors wrote. “These experts\, working in liaison with supporting units\, would form a center of excellence for pituitary tumors (PTCOE). Such a center wo uld be the optimal organization for patients\, the most cost-effective for health administrators\, and a more suitable structure to allow for deriva tion and presentation of results\, and advancement of pituitary science.” Read more at https://cushieblog.com/2017/09/28/pituitary-tumors-require-co llaborative-care-for-best-treatment-results/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;In the last few decades\, a conside rable body of evidence supports the concept that patients with pituitary t umors would receive the best care from units of excellence composed of exp ert neurosurgeons performing pituitary surgery by transsphenoidal and othe r approaches\, plus experienced neuroendocrinologists devoted to these typ es of tumors\,&rdquo\; the authors wrote. &ldquo\;These experts\, working in liaison with supporting units\, would form a center of excellence for p ituitary tumors (PTCOE). Such a center would be the optimal organization f or patients\, the most cost-effective for health administrators\, and a mo re suitable structure to allow for derivation and presentation of results\ , and advancement of pituitary science.&rdquo\;
Read more at \ ;https://cushieb log.com/2017/09/28/pituitary-tumors-require-collaborative-care-for-best-tr eatment-results/
CATEGORIES:News Items UID:20170928T1129340Z-549422-730@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170928 SUMMARY:Comment added to Nicole\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180928;BYMONTHDAY=28 DESCRIPTION:...This has been going on about 8+ years for me. I was thin mus cular and now 206 lbs I am just starting thyroid Med’s. Labs all over the place. Have you been exposed to mold? My labs showed toxicity and a Natro has me on binders but almost all my docs think I’m crazy. ... From the com ments at https://cushingsbios.com/2017/07/13/nicole-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...This has been going on about 8+ years fo r me. I was thin muscular and now 206 lbs I am just starting thyroid Med&r squo\;s. Labs all over the place. Have you been exposed to mold? My labs s howed toxicity and a Natro has me on binders but almost all my docs think I&rsquo\;m crazy. ...
From the comments at \;https ://cushingsbios.com/2017/07/13/nicole-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20170928T1144040Z-549422-731@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Christine G\, Pituitary Bio DTSTART;VALUE=DATE:20171026 DTEND;VALUE=DATE:20171027 RRULE:FREQ=MONTHLY;UNTIL=20180929;BYDAY=-1TH DESCRIPTION:I’m going to have an appointment with Dr. Tritons on 10/4/17. H ave recently been hospitalized at MGH for almost 2 weeks with uncontrolled HBP 200/114. Now taking massive dosages of BP meds and 35 HC. My Endo say s I am now Cushings... From the comments at https://cushingsbios.com/2017/ 09/13/christine-g-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m going to have an appointment wit h Dr. Tritons on 10/4/17. Have recently been hospitalized at MGH for almos t 2 weeks with uncontrolled HBP 200/114. Now taking massive dosages of BP meds and 35 HC. My Endo says I am now Cushings...
From the comment s at \;https://cushingsbios.com/2017/09/13/christine-g- pituitary-bio/
CATEGORIES:Cushie Bios UID:20170928T1147410Z-549422-732@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170928 SUMMARY:Comment added to Dawn M (Lind8588)\, Steroid Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180928;BYMONTHDAY=28 DESCRIPTION:I spent years battling symptoms and seeing doctor after doctor before we could align them all into a Cushing’s diagnosis. Don’t dismiss y our symptoms or your gut feeling or the severity of the disease.... From t he comments at https://cushingsbios.com/2014/10/22/dawn-m-lind8588-steroid -induced-bio/ X-ALT-DESC;FMTTYPE=text/html:I spent years battling symptoms and seeing doctor after doctor before we could align them all into a Cushing&rsquo\;s diagnosis. Don&rsquo\;t dismiss your symptoms or your gut feeling or the severity of the disease....
From the comments at \;https://cushingsbios.com/2014/10/22/dawn-m-lind8588-steroid- induced-bio/
CATEGORIES:Cushie Bios UID:20170928T1153260Z-549422-733@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Faith's Husband\, Pituitary Bio DTSTART;VALUE=DATE:20171026 DTEND;VALUE=DATE:20171027 RRULE:FREQ=MONTHLY;UNTIL=20180928;BYDAY=-1TH DESCRIPTION:Faith and her husband are from Peabody\, MA. Her husband has Cu shings\, has had 2 pituitary surgeries\, radiation\, and is still not any better. Read more at https://cushingsbios.com/2017/09/28/faiths-husband-pi tuitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Faith and her husband are from Peabody\, MA . Her husband has Cushings\, has had 2 pituitary surgeries\, radiation\, a nd is still not any better.
Read more at \;h ttps://cushingsbios.com/2017/09/28/faiths-husband-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170928T1202380Z-549422-734@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170928 SUMMARY:New Cushie added to the MemberMap RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20171028;BYMONTHDAY=28 DESCRIPTION:Faith and her husband are from Peabody\, MA. Her husband has Cu shings\, has had 2 pituitary surgeries\, radiation\, and is still not any better. Add your own info (or your doctor's) to the Cushie MemberMap Read more at https://www.zeemaps.com/map?group=342449 X-ALT-DESC;FMTTYPE=text/html:Faith and her husband are from Peabody\, MA
. Her husband has Cushings\, has had 2 pituitary surgeries\, radiation\, a
nd is still not any better.
Add your own info (or y
our doctor's) to the Cushie MemberMap
Read more at \;https://www.zeem aps.com/map?group=342449
CATEGORIES:Cushie Bios UID:20171024T1415090Z-549422-735@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170928 SUMMARY:Irene\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180928;BYMONTHDAY=28 DESCRIPTION:Irene was diagnosed with Cushings Syndrome\, following an MRI s can. It emerged that a tumor on her pituitary gland was causing an excess production of cortisol\, the stress-relieving hormone. Read more at https ://cushingsbios.com/2017/09/28/irene-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Irene was diagnosed with Cushings Syndrome\ , following an MRI scan. It emerged that a tumor on her pituitary gland wa s causing an excess production of cortisol\, the stress-relieving hormone. \;
Read more at \;https://cushingsbios.com/2017/ 09/28/irene-pituitary-bio/
CATEGORIES:Cushie Bios UID:20170928T1242370Z-549422-736@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:A 12-year-old boy died from Addison's disease after the chance of l ifesaving treatment was 'missed' DTSTART;VALUE=DATE:20171028 DTEND;VALUE=DATE:20171029 RRULE:FREQ=MONTHLY;UNTIL=20180930;BYDAY=-1SA DESCRIPTION:The death of a 12-year-old boy who was suffering from undiagnos ed Addison’s disease was preventable\, an inquest heard. Ryan Lee Morse ha d been unwell from July 2012\, with his parents noticing his skin darkenin g and him becoming lethargic and losing weight. His condition worsened ove r the following months and he died during the early hours of December 8\, 2012. Read more at https://cushieblog.com/2017/09/30/a-12-year-old-boy-die d-from-addisons-disease-after-the-chance-of-lifesaving-treatment-was-misse d/ X-ALT-DESC;FMTTYPE=text/html:The death of a 12-year-old boy who was suff ering from undiagnosed Addison&rsquo\;s disease was preventable\, an inque st heard.
Ryan Lee Morse had been unwell from July 2012\, with his parents noticing his skin darkening and him becoming lethargic and losing weight.
His condition worsened over the following months and he d ied during the early hours of December 8\, 2012.
Read more at \;https://cushieblog.com/2017/09/30/a-12-year-old-boy-died-from- addisons-disease-after-the-chance-of-lifesaving-treatment-was-missed/< /p> CATEGORIES:News Items UID:20170930T1258370Z-549422-737@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170930 SUMMARY:Updated: Is Your Doctor Being Paid to Prescribe Korlym? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190930;BYMONTHDAY=30 DESCRIPTION:Top Doctors and Hospitals Receiving Payments From Corcept\, mak ers of Korlym (Please note that I'm sharing this from the Cushings-Help.co m message boards. You must be a logged-in member of that board to read the rest of this post. Log in or register at http://cushings.invisionzone.com ) Read more at http://cushings.invisionzone.com/topic/54309-is-your-docto r-being-paid-to-prescribe-korlym/ or https://cushieblogger.com/2018/07/08/ top-doctors-receiving-payments-from-corcept-makers-of-korlym/ X-ALT-DESC;FMTTYPE=text/html:
Top Doctors and Hospitals Receiving Payment s From Corcept\, makers of Korlym
(Please note that I'm sharing th is from the Cushings-Help.com message boards. You must be a logged-in memb er of that board to read the rest of this post. Log in or register at http://cushings.inv isionzone.com \;)
Read more at \;http://cushings.invisionzone.com/topic/54309-is-you r-doctor-being-paid-to-prescribe-korlym/
or \;https://cushieblogger.com/2018/07/0 8/top-doctors-receiving-payments-from-corcept-makers-of-korlym/
CATEGORIES:Cushings UID:20180708T1319520Z-549422-738@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment from gina G on Today is the 'Birthday' of the Message Board s! DTSTART;VALUE=DATE:20171028 DTEND;VALUE=DATE:20171029 RRULE:FREQ=MONTHLY;UNTIL=20200930;BYDAY=-1SA DESCRIPTION:Happy B-day MaryO & the message boards! Mary\, I'm convinced yo u won't know till you get to heaven\, how many lives you've help save & ho w much comfort you've brought to some of the sickest people on earth. Can' t thank you enough! Read more at https://cushieblogger.com/testimonial/gin a-g-2/ X-ALT-DESC;FMTTYPE=text/html:Happy B-day MaryO &\; the message boards ! Mary\, I'm convinced you won't know till you get to heaven\, how many li ves you've help save &\; how much comfort you've brought to some of the sickest people on earth. Can't thank you enough!
Read more at&nbs p\;https://cushieblogger.com/testimonial/gina-g-2/
CATEGORIES:Cushings UID:20170930T1955020Z-549422-739@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170930 SUMMARY:Comment from Sharon K on Today is the 'Birthday' of the Message Boa rds! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180930;BYMONTHDAY=30 DESCRIPTION:You have truly brought information\, hope\, and encouragement t o so many. There's no way to appreciate fully all you did by unselfishly b eginning and maintaining the message boards and the rest of the sites. The boards helped guide me through the awful Cushing's maze to other Cushies and to medical help. Thank you\, dear lady! From https://cushieblogger.com /testimonial/sharon-k/ X-ALT-DESC;FMTTYPE=text/html:You have truly brought information\, hope\, and encouragement to so many. There's no way to appreciate fully all you did by unselfishly beginning and maintaining the message boards and the re st of the sites. The boards helped guide me through the awful Cushing's ma ze to other Cushies and to medical help. Thank you\, dear lady!
Fr om \;https://cushieblogger.com/testimonial/sharon-k/
CATEGORIES:Cushings UID:20170930T1954300Z-549422-740@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170930 SUMMARY:Comment From Susan F on Today is the 'Birthday' of the Message Boar ds! RRULE:FREQ=MONTHLY;UNTIL=20180930;BYDAY=5SA DESCRIPTION:Countless lives supported and saved by MaryO and the community and knowledge bank she created. Forever in her debt. Read more at https:// cushieblogger.com/testimonial/susan-f-2/ X-ALT-DESC;FMTTYPE=text/html:Countless lives supported and saved by Mary O and the community and knowledge bank she created. Forever in her debt.
Read more at \;https://cushieblogger.com/testimonial/susan-f-2 /
CATEGORIES:Cushings UID:20170930T1957230Z-549422-741@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20170930 SUMMARY:Comment from Denise on Today is the 'Birthday' of the Message Board s! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20180930;BYMONTHDAY=30 DESCRIPTION:I'm sure I wouldn't be here without you ! Read more at https:// cushieblogger.com/testimonial/denise-p-2/ X-ALT-DESC;FMTTYPE=text/html:I'm sure I wouldn't be here without you !
Read more at \;https://cushieblogger.com/testimonial/denise-p -2/
CATEGORIES:Cushings UID:20170930T2004360Z-549422-742@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment from Judy on Today is the 'Birthday' of the Message Boards! DTSTART;VALUE=DATE:20171105 DTEND;VALUE=DATE:20171106 RRULE:FREQ=MONTHLY;UNTIL=20171231;BYDAY=1SU DESCRIPTION:I definitely credit you for still having my kids around! From h ttps://cushieblogger.com/testimonial/judy-k/ X-ALT-DESC;FMTTYPE=text/html:I definitely credit you for still having my kids around!
From \;https://cushieblogger.com/testimonial/judy- k/
CATEGORIES:Cushings UID:20171001T1231290Z-549422-743@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Memory: Edward H. Oldfield\, MD\, 1947–2017 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300901;BYMONTH=9;BYMONTHDAY=1 DTSTART;VALUE=DATE:20170901 DTEND;VALUE=DATE:20170902 DESCRIPTION:Dr. Oldfield was my pituitary surgeon at NIH back in 1987. He s aved my life. Ed started as Senior Staff Fellow in the Surgical Neurolog y Branch at the NIH (1981). After 5 years\, Ed would become the Chief of t he Surgical Neurology Branch. He would stay on as Branch Chief and lead th e neurosurgical effort at the NIH for the next 21 years. During his tenure \, he developed clinical\, research\, and training programs in epilepsy\, congenital malformations\, syringomyelia\, nervous system neoplasia\, drug delivery\, and vascular malformations. The strength of these programs was his leadership and their multidisciplinary nature\, which incorporated ph ysicians and scientists across the basic\, translational\, and clinical ar enas. Research investigation was always targeted at defined clinical probl ems. Under his direction\, these programs shaped understanding of the stud ied neurological disorders\, as well as improving patient care. Read more at https://cushingsbios.com/2019/09/01/in-memory-dr-edward-hudson-oldfield -september-1-2017-2/ X-ALT-DESC;FMTTYPE=text/html:Dr. Oldfield \;was my pituitary surgeon at NIH back in 1987. He saved my life. \;
Ed started as Seni or Staff Fellow in the Surgical Neurology Branch at the NIH (1981). After 5 years\, Ed would become the Chief of the Surgical Neurology Branch. He w ould stay on as Branch Chief and lead the neurosurgical effort at the NIH for the next 21 years. During his tenure\, he developed clinical\, researc h\, and training programs in epilepsy\, congenital malformations\, syringo myelia\, nervous system neoplasia\, drug delivery\, and vascular malformat ions. The strength of these programs was his leadership and their multidis ciplinary nature\, which incorporated physicians and scientists across the basic\, translational\, and clinical arenas. Research investigation was a lways targeted at defined clinical problems. Under his direction\, these p rograms shaped understanding of the studied neurological disorders\, as we ll as improving patient care.
Read more at \;https://cushingsbios.com/2019/09 /01/in-memory-dr-edward-hudson-oldfield-september-1-2017-2/
CATEGORIES:In Memory UID:20250903T1911420Z-549422-744@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171010 SUMMARY:Cushing’s Syndrome Revealing Carney Complex: A Case Report RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201010;BYMONTHDAY=10 DESCRIPTION:We report a case of a 35-year-old patient diagnosed with Cushin g’s syndrome complicated with an impaired glucose tolerance (IGT) and a se vere psychiatric disturbance. The diagnosis of CNC was made by having two major criteria\, namely a primary pigmented nodular adrenal disease (PPNAD ) and thyroid carcinoma. Read more at https://cushieblog.com/2017/10/10/c ushings-syndrome-revealing-carney-complex-a-case-report/ X-ALT-DESC;FMTTYPE=text/html:We report a case of a 35-year-old patient d iagnosed with Cushing&rsquo\;s syndrome complicated with an impaired gluco se tolerance (IGT) and a severe psychiatric disturbance. The diagnosis of CNC was made by having two major criteria\, namely a primary pigmented nod ular adrenal disease (PPNAD) and thyroid carcinoma. \;
Read mo re at \;https://cushieblog .com/2017/10/10/cushings-syndrome-revealing-carney-complex-a-case-report/< /a>
CATEGORIES:Cushings UID:20171010T1416000Z-549422-745@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Cortisol Modulator Shows Early Signs of Safety\, Efficacy in Health y Volunteers DTSTART;VALUE=DATE:20171109 DTEND;VALUE=DATE:20171110 RRULE:FREQ=MONTHLY;UNTIL=20181011;BYDAY=2WE DESCRIPTION:“This first-in-human study has demonstrated that CORT125134 is well tolerated following single doses up to 500 mg and repeated doses up t o 250 mg once daily for 14 days\,” researchers wrote. “Pharmacological act ivity was confirmed following the administration of a single 500-mg dose a nd daily administration of 250 mg.” Read more at https://cushieblog.com/20 17/10/11/cortisol-modulator-shows-early-signs-of-safety-efficacy-in-health y-volunteers/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;This first-in-human study has demon strated that CORT125134 is well tolerated following single doses up to 500 mg and repeated doses up to 250 mg once daily for 14 days\,&rdquo\; resea rchers wrote. &ldquo\;Pharmacological activity was confirmed following the administration of a single 500-mg dose and daily administration of 250 mg .&rdquo\;
Read more at \;https://cushieblog.com/2017/10/11/cortisol-mod ulator-shows-early-signs-of-safety-efficacy-in-healthy-volunteers/
CATEGORIES:News Items UID:20171011T1711280Z-549422-746@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171012 SUMMARY:Comment added to Alex C (Alex C)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181012;BYMONTHDAY=12 DESCRIPTION:Hi Alex I am a specialist in rare disease and you need to find yourself a good endocrinologist that will take screening for Cushing’s ser iously. Demand an overnight Dexamethasone suppression test to start. Ask t o get both a cortisol level in addition to the Dexamethasone level... Rea d more at https://cushingsbios.com/2017/07/07/alex-c-alex-c-undiagnosed-bi o/ X-ALT-DESC;FMTTYPE=text/html:Hi Alex I am a specialist in rare disease a nd you need to find yourself a good endocrinologist that will take screeni ng for Cushing&rsquo\;s seriously. Demand an overnight Dexamethasone suppr ession test to start. Ask to get both a cortisol level in addition to the Dexamethasone level... \;
Read more at \;https://cushingsbios.com/2017/07/07/alex-c-alex-c-undiagnosed-bio/ CATEGORIES:Cushings UID:20171012T0724580Z-549422-747@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Addison's Disease: Periods at 4 years\, Menopause at 5 DTSTART;VALUE=DATE:20171110 DTEND;VALUE=DATE:20171111 RRULE:FREQ=MONTHLY;UNTIL=20181012;BYDAY=2TH DESCRIPTION:In addition to Addison’s disease\, Emily has been diagnosed wit h congenital Adrenal Hyperplasia\, Central Precocious Puberty\, Autism Spe ctrum Disorder\, Sensory Processing disorder and Anxiety Disorder. The 5-y ear-old’s adrenal glands don’t produce enough steroid hormones. Read more at https://cushingsbios.com/2017/10/12/addisons-disease-periods-at-4-years -menopause-at-5/ X-ALT-DESC;FMTTYPE=text/html:
In addition to Addison&rsquo\;s disease\, E mily has been diagnosed with congenital Adrenal Hyperplasia\, Central Prec ocious Puberty\, Autism Spectrum Disorder\, Sensory Processing disorder an d Anxiety Disorder.
The 5-year-old&rsquo\;s adrenal glands don&rsq uo\;t produce enough steroid hormones.
Read more at \;https://cushingsbios.com/2017/10/12/addiso ns-disease-periods-at-4-years-menopause-at-5/
CATEGORIES:Cushie Bios UID:20171012T0736410Z-549422-748@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171012 SUMMARY:Pituitary Post-Op RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201012;BYMONTHDAY=12 DESCRIPTION:After Your Transsphenoidal (Pituitary) Surgery After your physi cians have determined that it is reasonably safe to discharge you from the hospital following transsphenoidal pituitary surgery there are a number o f important situations that may arise. Most people feel well after dischar ge. However\, you should be aware of these possible problems\, just in cas e. The following general guidelines are provided to promote your health an d safety. Read more at http://www.cushings-info.com/index.php?title=Pituit ary_Post-Op X-ALT-DESC;FMTTYPE=text/html:After Your Transsphenoidal (Pituita ry) Surgery
After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsphe noidal pituitary surgery there are a number of important situations that m ay arise. Most people feel well after discharge. However\, you should be a ware of these possible problems\, just in case. The following general guid elines are provided to promote your health and safety.
Read more a t \;http://www.cushings-info.com/index.php?title=Pituit ary_Post-Op
CATEGORIES:Cushings UID:20171012T0810480Z-549422-749@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Increase in Glucose Uptake by Cushing’s Disease-associated Tumors C ould Improve Early Detection DTSTART;VALUE=DATE:20171111 DTEND;VALUE=DATE:20171112 RRULE:FREQ=MONTHLY;UNTIL=20181013;BYDAY=2FR DESCRIPTION:Microadenomas – tumors in the pituitary gland measuring less th an 10 mm in diameter – that release corticotropin\, or corticotropinomas\ , can lead to Cushing’s disease. The presurgical detection of these microa denomas could improve surgical outcomes in patients with Cushing’s. Read m ore at https://cushieblog.com/2017/10/13/increase-in-glucose-uptake-by-cus hings-disease-associated-tumors-could-improve-early-detection/ X-ALT-DESC;FMTTYPE=text/html:Microadenomas &ndash\; tumors in the pituit ary gland measuring less than 10 mm in diameter \;&ndash\; that releas e corticotropin\, or \; corticotropinomas\, can lead to Cushing&rsquo\ ;s disease. The presurgical detection of these microadenomas could improve surgical outcomes in patients with Cushing&rsquo\;s.
Read more at \;https://cushieblog.com/2017/10/13/increase-in-glucose-uptak e-by-cushings-disease-associated-tumors-could-improve-early-detection/
CATEGORIES:Cushings UID:20171013T1354140Z-549422-750@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171013 SUMMARY:Rare Case of Woman Manipulating Saliva Tests to Support Cushing’s D iagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181013;BYMONTHDAY=13 DESCRIPTION:The case report described a woman who was admitted to a special ist clinic after two endocrinologists had failed to diagnose what they sus pected was cyclic Cushing’s syndrome. The woman had complained of fatigue and weight gain over the past four years despite weight loss banding surge ry\, and declined taking steroid medications. The examination did not reve al particular Cushing’s symptoms. Read more at https://cushieblogger.com/2 017/10/13/would-you-do-this/ X-ALT-DESC;FMTTYPE=text/html:The case report described a woman who was a dmitted to a specialist clinic after two endocrinologists had failed to di agnose what they suspected was cyclic Cushing&rsquo\;s syndrome.
T he woman had complained of fatigue and weight gain over the past four year s despite weight loss banding surgery\, and declined taking steroid medica tions. The examination did not reveal particular Cushing&rsquo\;s symptoms .
Read more at \;https://cushieblogger.com/2017/10/13/ would-you-do-this/
CATEGORIES:Cushings UID:20171013T1437320Z-549422-751@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Low-dose Steroids Relieve Sore Throat Pain DTSTART;VALUE=DATE:20171112 DTEND;VALUE=DATE:20171113 RRULE:FREQ=MONTHLY;UNTIL=20181014;BYDAY=2SA DESCRIPTION:NEW YORK (Reuters Health) – A single low dose of corticosteroid s speeds pain relief in patients who have sore throat\, without serious ad verse effects\, according to a systematic review and meta-analysis publish ed in The BMJ along with parallel clinical practice guidelines. Read more at https://maryomedical.com/2017/10/14/low-dose-steroids-relieve-sore-thro at-pain/ X-ALT-DESC;FMTTYPE=text/html:NEW YORK (Reuters Health) &ndash\; A single low dose of corticosteroids speeds pain relief in patients who have sore throat\, without serious adverse effects\, according to a systematic revie w and meta-analysis published in The BMJ along with parallel clinical prac tice guidelines.
Read more at \;https://maryomedical.com/2017/10/14/low-dose-steroids-relieve-sore-throa t-pain/
CATEGORIES:Other Medical UID:20171014T0634070Z-549422-752@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Adventures with Human Growth Hormone: Travelling (Flying) DTSTART;VALUE=DATE:20171120 DTEND;VALUE=DATE:20171121 RRULE:FREQ=MONTHLY;UNTIL=20181015;BYDAY=3SU DESCRIPTION:...I had the gel pack from the iCool frozen solid and put that in a small Rubbermaid lunch bag with 2 thin ice packs\, 1 on top and 1 on the bottom. If you don't want to read all the way to the end\, this syst em kept the growth hormone cold for the 20 hours going and returning but t he 2 thin blocks had completely thawed. The inner iCool was mostly frozen and the growth hormone was still cool.... Read more at https://maryomedic al.com/2017/10/15/adventures-with-human-growth-hormone-travelling-flying/ X-ALT-DESC;FMTTYPE=text/html:...I had the gel pack from the iCool frozen solid and put that in a small Rubbermaid lunch bag with 2 thin ice packs\, \; 1 on top and 1 on the bottom. \;If you don't want to read all the way to the end\, this system kept the growth hormone cold for the 20 hours going and returning but the 2 thin blocks had completely thawed. \;T he inner iCool was mostly frozen and the growth hormone was still cool....
Read more at \;ht tps://maryomedical.com/2017/10/15/adventures-with-human-growth-hormone-tra velling-flying/
CATEGORIES:Cushings UID:20171016T0127410Z-549422-753@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171016 SUMMARY:Cathy T\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181016;BYMONTHDAY=16 DESCRIPTION:Cathy is from Wellington\, New Zealand and had the left side of her pituitary gland removed and a BLA. Cathy has been through 2 cycles of IVF fertility treatment and the second one worked. She had a baby girl. C athy updated her bio in September 2009. She has another new 5mm tumour on the right side of her pituitary gland. She has Nelsons Syndrome and Addiso n's after having both adrenals removed. They want to give her radiation an d she's looking for suggestions. Read more at https://cushingsbios.com/201 7/10/16/cathy-t-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Cathy is from Wellington\, New Zealand and had the left side of her pituitary gland removed and a BLA. Cathy has been through 2 cycles of IVF fertility treatment and the second one worked. Sh e had a baby girl. Cathy updated her bio in September 2009. She has anothe r new 5mm tumour on the right side of her pituitary gland. She has Nelsons Syndrome and Addison's after having both adrenals removed. They want to g ive her radiation and she's looking for suggestions.
Read more at& nbsp\;https://cushingsbios.com/2017/10/16/cathy-t-pituitary-bio /
CATEGORIES:Cushie Bios UID:20171016T0842330Z-549422-754@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171018 SUMMARY:Blood Sample from Tributary Adrenal Gland Veins May Help to Diagnos e Subclinical Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181018;BYMONTHDAY=18 DESCRIPTION:Researchers report a new technique for collecting blood samples from tiny veins of the adrenal glands\, called super-selective adrenal ve nous sampling (ssAVS). The technique can be used to help diagnose diseases marked by excessive release of adrenal hormones\, such as subclinical Cus hing’s syndrome (SCS) or primary aldesteronism (PA). Read more at https:// cushieblog.com/2017/10/18/blood-sample-from-tributary-adrenal-gland-veins- may-help-to-diagnose-subclinical-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Researchers report a new technique for coll ecting blood samples from tiny veins of the adrenal glands\, called super- selective adrenal venous sampling (ssAVS). The technique can be used to he lp diagnose diseases marked by excessive release of adrenal hormones\, suc h as subclinical Cushing&rsquo\;s syndrome (SCS) or primary aldesteronism (PA).
Read more at \;https://cushieblog.com/2017/1 0/18/blood-sample-from-tributary-adrenal-gland-veins-may-help-to-diagnose- subclinical-cushings-syndrome/
CATEGORIES:Cushings UID:20171018T0639280Z-549422-755@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Intraoperative MRI improves complete resection of pituitary macroad enoma DTSTART;VALUE=DATE:20171116 DTEND;VALUE=DATE:20171117 RRULE:FREQ=MONTHLY;UNTIL=20181018;BYDAY=3WE DESCRIPTION:The use of intraoperative MRI\, especially with transsphenoidal reoperations for invasive and noninvasive pituitary macroadenomas\, leads to significantly higher “gross tumor resection” rates. This method preven ts additional operations or treatment\, such as radiation\, because it red uces the number of patients with residual adenoma after surgery. This tech nology is usually found in specialized tertiary care hospitals but should be considered for reoperation for large pituitary macroadenomas or initial operation for large invasive pituitary macroadenomas. Read more at https: //cushieblog.com/2017/10/18/intraoperative-mri-improves-complete-resection -of-pituitary-macroadenoma/ X-ALT-DESC;FMTTYPE=text/html:The use of intraoperative MRI\, especially with transsphenoidal reoperations for invasive and noninvasive pituitary m acroadenomas\, leads to significantly higher &ldquo\;gross tumor resection &rdquo\; rates. This method prevents additional operations or treatment\, such as radiation\, because it reduces the number of patients with residua l adenoma after surgery. This technology is usually found in specialized t ertiary care hospitals but should be considered for reoperation for large pituitary macroadenomas or initial operation for large invasive pituitary macroadenomas.
Read more at \;https://cushieblog.com/2017/10/18/intraoperati ve-mri-improves-complete-resection-of-pituitary-macroadenoma/
CATEGORIES:News Items UID:20171018T2252330Z-549422-756@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171020 SUMMARY:New ACTH Detection Method Improves Cure Rates in Cushing’s Disease Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181020;BYMONTHDAY=20 DESCRIPTION:MRI\, for example\, detects only 50 percent of Cushing’s adenom as\, limiting surgeons’ ability to conduct curative TSR surgeries. Therefo re\, better diagnostic and tumor localization techniques are needed to inc rease the likelihood that initial surgeries can remove the entire tumor an d cure patients. Read more at https://cushieblog.com/2017/10/20/new-acth-d etection-method-improves-cure-rates-in-cushings-disease-patients/ X-ALT-DESC;FMTTYPE=text/html:MRI\, for example\, detects only 50 percent of Cushing&rsquo\;s adenomas\, limiting surgeons&rsquo\; ability to condu ct curative TSR surgeries. Therefore\, better diagnostic and tumor localiz ation techniques are needed to increase the likelihood that initial surger ies can remove the entire tumor and cure patients.
Read more at&nb sp\;https:// cushieblog.com/2017/10/20/new-acth-detection-method-improves-cure-rates-in -cushings-disease-patients/
CATEGORIES:Cushings UID:20171020T1414510Z-549422-757@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Long-acting pasireotide safe\, effective for recurrent Cushing’s di sease DTSTART;VALUE=DATE:20171118 DTEND;VALUE=DATE:20171119 RRULE:FREQ=MONTHLY;UNTIL=20181020;BYDAY=3FR DESCRIPTION:“Surgical resection of the causative pituitary adenoma is the f irst-line treatment of choice for most patients with Cushing’s disease\, w hich leads to remission in greater than 75% of patients if done by an expe rt pituitary surgeon\,” Andre Lacroix\, MD\, professor in the department o f medicine at University of Montreal teaching hospital\, and colleagues wr ote in the study background. “However\, surgery is not always successful\, and disease recurrence can occur several years after initial remission\, while some patients refuse or are not candidates for surgery. As a result\ , many patients require additional treatment options.” Read more at https: //cushieblog.com/2017/10/20/long-acting-pasireotide-safe-effective-for-rec urrent-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;Surgical resection of the causative pituitary adenoma is the first-line treatment of choice for most patients with \;Cushing&rsquo\;s disease\, which leads to remission in greater than 75% of patients if done by an expert pituitary surgeon\,&rdquo\;&nbs p\;Andre Lacroix\, MD\, \;professor in the department of medicine at University of Montreal teaching hospital\, and colleagues wrote in the study background. &ldquo\;However\, surgery is not always suc cessful\, and disease recurrence can occur several years after initial rem ission\, while some patients refuse or are not candidates for surgery. As a result\, many patients require additional treatment options.&rdquo\;
Read more at \;https://cushieblog.com/2017/10/20/long-acting-pasireotide-safe-effe ctive-for-recurrent-cushings-disease/
CATEGORIES:Cushings UID:20171021T0215120Z-549422-758@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171021 SUMMARY:Courtnay P (Courtnay)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181021;BYMONTHDAY=21 DESCRIPTION:Courtnay is from Canada. She thinks she has Cushing's Disease caused by a pituitary tumor but doctors won't send her for an MRI. Read mo re at https://cushingsbios.com/2017/10/21/courtnay-p-courtnay-undiagnosed- bio/ X-ALT-DESC;FMTTYPE=text/html:Courtnay is from Canada. \;She thinks she has Cushing's Disease caused by a pituitary tumor but doctors won't se nd her for an MRI.
Read more at \;htt ps://cushingsbios.com/2017/10/21/courtnay-p-courtnay-undiagnosed-bio/< /p> CATEGORIES:Cushie Bios UID:20171021T1345540Z-549422-759@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171022 SUMMARY:Comment added to Toni (Toni)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181022;BYMONTHDAY=22 DESCRIPTION:I had adrenalectomy in December 2015. I am currently still on s teroids. My other adrenal gland is taking a long time to recover\, but I'm half way there. My am cortisol is 5 I need to be at 10. Due to the long t ime my doctor tends to feel I had bushings for almost 7 years prior to dia gnosis. But yes the itching went away completely. I know there is hardly a ny info on itching\, I think I read in 2 different articles out of 100's t hat some people itch... Read more at https://cushingsbios.com/2016/01/23/t oni-toni-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:
I had adrenalectomy in December 2015. I am currently still on steroids. My other adrenal gland is taking a long time to recover\, but I'm half way there. My am cortisol is 5 I need to be at 1 0. Due to the long time my doctor tends to feel I had bushings for almost 7 years prior to diagnosis. But yes the itching went away completely. I kn ow there is hardly any info on itching\, I think I read in 2 different art icles out of 100's that some people itch...
Read more at \;https://cushingsbios.com/2016/01/23/toni-toni-adrenal-bio/
CATEGORIES:Cushie Bios UID:20171022T2045590Z-549422-760@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Cushing's Survey DTSTART;VALUE=DATE:20171127 DTEND;VALUE=DATE:20171128 RRULE:FREQ=MONTHLY;UNTIL=20181022;BYDAY=4SU DESCRIPTION:Hi\, I am diagnosed but untreated. I’m too ill to be treated no w after years of mistreatment... Read more at https://cushieblogger.com/20 17/10/21/cushings-survey/ X-ALT-DESC;FMTTYPE=text/html:Hi\, I am diagnosed but untreated. I&rsquo\ ;m too ill to be treated now after years of mistreatment...
Read m ore at \;https://cushieblogger.com/2017/10/21/cushings-survey/
CATEGORIES:Cushie Bios UID:20171022T2107000Z-549422-761@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Toni (Toni)\, Adrenal Bio DTSTART;VALUE=DATE:20171127 DTEND;VALUE=DATE:20171128 RRULE:FREQ=MONTHLY;UNTIL=20181022;BYDAY=4SU DESCRIPTION:...The itch has improved tremendously though I get it at times. I do feel that my muscles are constantly aching like if I had run miles. Each day I see some of the cushings symptoms leaving me which is great. In a few weeks I get tested to see where my levels are. .... Read more at h ttps://cushingsbios.com/2016/01/23/toni-toni-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:...The itch has improved tremendously thoug h I get it at times. I do feel that my muscles are constantly aching like if I had run miles. Each day I see some of the cushings symptoms leaving m e which is great. In a few weeks I get tested to see where my levels are. .... \;
Read more at \;https://cushingsbios.com /2016/01/23/toni-toni-adrenal-bio/
CATEGORIES:Cushie Bios UID:20171022T2133170Z-549422-762@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171022 SUMMARY:Comment added to Toni (Toni)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181022;BYMONTHDAY=22 DESCRIPTION:...Its funny because people ask how mi feel and when i tell the m better they think great. But what they dont realize is every time i chan ge dosage new symptoms arise and i feel like crap. I know it needs to happ en in oreder to get to the end\, but it sucks!!!! Read more at https://cus hingsbios.com/2016/01/23/toni-toni-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:...Its funny because people ask how mi feel and when i tell them better they think great. But what they dont realize is every time i change dosage new symptoms arise and i feel like crap. I k now it needs to happen in oreder to get to the end\, but it sucks!!!!
Read more at \;https://cushingsbios.com/2016/01/23/toni -toni-adrenal-bio/
CATEGORIES:Cushie Bios UID:20171022T2206090Z-549422-763@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Ren\, Undiagnosed Bio DTSTART;VALUE=DATE:20171129 DTEND;VALUE=DATE:20171130 RRULE:FREQ=MONTHLY;UNTIL=20181024;BYDAY=4TU DESCRIPTION:Ren is from Canada. Her symptoms onset at a time where her lif estyle was out of control. She was drinking heavily\, using drugs and didn 't have a care in the world. When meeting with a new family doctor (after getting sober) all of the focus was put onto her recovery and mental healt h Diagnosed with bipolar disorder\, depression and anxiety and prescribed meds for all of the above but she didn't have these problems before the p hysical symptoms onset. Read more at https://cushingsbios.com/2017/10/24/ ren-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Ren is from Canada. \;Her symptoms ons et at a time where her lifestyle was out of control. She was drinking heav ily\, using drugs and didn't have a care in the world. When meeting with a new family doctor (after getting sober) all of the focus was put onto her recovery and mental health \;Diagnosed with bipolar disorder\, depre ssion and anxiety and prescribed meds for all of the above but she didn't have these problems before the physical symptoms onset. \;
Rea d more at \;https://cushingsbios.com/2017/10/24/ren-undiagnos ed-bio/
CATEGORIES:Cushie Bios UID:20171024T1217110Z-549422-764@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171024 SUMMARY:New Cushie added to the MemberMap RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181024;BYMONTHDAY=24 DESCRIPTION:Ren is from Canada. Her symptoms onset at a time where her lif estyle was out of control. She was drinking heavily\, using drugs and didn 't have a care in the world. When meeting with a new family doctor (after getting sober) all of the focus was put onto her recovery and mental healt h Diagnosed with bipolar disorder\, depression and anxiety and prescribed meds for all of the above but she didn't have these problems before the p hysical symptoms onset. See all the entries at http://www.zeemaps.com/pub ?group=342449&legend=1&locate=1&add=1 X-ALT-DESC;FMTTYPE=text/html:Ren \;is from Canada. \;Her sympto ms onset at a time where her lifestyle was out of control. She was drinkin g heavily\, using drugs and didn't have a care in the world. When meeting with a new family doctor (after getting sober) all of the focus was put on to her recovery and mental health \;Diagnosed with bipolar disorder\, depression and anxiety and prescribed meds for all of the above but she d idn't have these problems before the physical symptoms onset. \;
See all the entries at \;http://www. zeemaps.com/pub?group=342449&\;legend=1&\;locate=1&\;add=1
CATEGORIES:Cushie Bios UID:20171024T1415490Z-549422-765@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171027 SUMMARY:Study Highlights Importance of Clinical Follow-Up in Cushing’s Pati ents After Adenoma Removal RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181027;BYMONTHDAY=27 DESCRIPTION:However\, since 15% of patients have a recurrence\, ongoing mon itoring and follow-up after TSS are important. The importance of this foll ow-up care is highlighted in a recent case report. Read more at https://cu shieblog.com/2017/10/27/study-highlights-importance-of-clinical-follow-up- in-cushings-patients-after-adenoma-removal/ X-ALT-DESC;FMTTYPE=text/html:However\, since 15% of patients have a recu rrence\, ongoing monitoring and follow-up after TSS are important. The imp ortance of this follow-up care is highlighted in a recent case report.
Read more at \;https://cushieblog.com/2017/10/27/study-high lights-importance-of-clinical-follow-up-in-cushings-patients-after-adenoma -removal/
CATEGORIES:Cushings UID:20171028T0124240Z-549422-766@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:The Challenge of Obesity in Diagnosing Cushing’s Syndrome and Strat egies to Improve Methods DTSTART;VALUE=DATE:20171127 DTEND;VALUE=DATE:20171128 RRULE:FREQ=MONTHLY;UNTIL=20201029;BYDAY=-1SU DESCRIPTION:The worldwide prevalence of metabolic syndrome in obese people is estimated at about 10%. Conversely\, the incidence of undiagnosed Cushi ng’s syndrome is about 75 cases per 1 million people. Cushing’s and metabo lic syndrome share significant clinical similarities\, including obesity\, hypertension\, and type 2 diabetes. Therefore\, “making the diagnosis is the least certain aspect in the care of patients with [Cushing’s]\,” Dr. L ynn Loriaux wrote. Read more at https://cushieblog.com/2017/10/29/the-chal lenge-of-obesity-in-diagnosing-cushings-syndrome-and-strategies-to-improve -methods/ X-ALT-DESC;FMTTYPE=text/html:The worldwide prevalence of metabolic syndr ome in obese people is estimated at about 10%. Conversely\, the incidence of undiagnosed Cushing&rsquo\;s syndrome is about 75 cases per 1 million p eople.
Cushing&rsquo\;s and metabolic syndrome share significant c linical similarities\, including obesity\, hypertension\, and type 2 diabe tes. Therefore\, &ldquo\;making the diagnosis is the least certain aspect in the care of patients with [Cushing&rsquo\;s]\,&rdquo\; Dr. Lynn Loriaux wrote.
Read more at \;https://cushieblog.com/2017/10/29/t he-challenge-of-obesity-in-diagnosing-cushings-syndrome-and-strategies-to- improve-methods/
CATEGORIES:News Items UID:20171030T0039480Z-549422-767@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Yale basement\, a ‘shop of horrors’ concealed medical history RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20201031;BYMONTH=10;BYMONTHDAY=31 DTSTART;VALUE=DATE:20171031 DTEND;VALUE=DATE:20171101 DESCRIPTION:Dr. Harvey Cushing was exhaustive in his analysis of tumors and other neurological diseases\, often photographing patients before and aft er surgery\, and obtaining his patients’ permission to study their brains posthumously. Read more at https://maryomedical.com/2017/10/31/in-yale-ba sement-a-shop-of-horrors-concealed-medical-history/ X-ALT-DESC;FMTTYPE=text/html:Dr. Harvey Cushing was exhaustive in his an alysis of tumors and other neurological diseases\, often photographing pat ients before and after surgery\, and obtaining his patients&rsquo\; permis sion to study their brains posthumously. \;
Read more at \ ;https://maryomedical.co m/2017/10/31/in-yale-basement-a-shop-of-horrors-concealed-medical-history/
CATEGORIES:News Items UID:20171031T1500330Z-549422-768@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171103 SUMMARY:Giving Thanks for 30 Years RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181103;BYMONTHDAY=3 DESCRIPTION:Today is the 30th anniversary of my pituitary surgery at NIH. A s one can imagine\, it hasn't been all happiness and light. Most of my jo urney has been documented here and on the message boards - and elsewhere a round the web. Read more at https://cushingsbios.com/2017/11/03/maryo-givi ng-thanks-for-30-years/ X-ALT-DESC;FMTTYPE=text/html:Today is the 30th anniversary of my pituita ry surgery at NIH.
As one can imagine\, it hasn't been all happine ss and light. \;Most of my journey has been documented here and on the message boards - and elsewhe re around the web.
Read more at \;https: //cushingsbios.com/2017/11/03/maryo-giving-thanks-for-30-years/
CATEGORIES:Cushings UID:20171103T1409470Z-549422-769@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171103 SUMMARY:New Testimonial From Lynn M DESCRIPTION:Congrats Mary Kelly O'Connor!!! And many thanks to you for all you’ve done for the cushie world! I’ve got 17 years post op and have truly enjoyed reading your bio. It’s always helpful and encouraging. Read more at https://cushieblogger.com/testimonial/lynn-m/ X-ALT-DESC;FMTTYPE=text/html:Congrats Mary Kelly O'Connor!!! And many th anks to you for all you&rsquo\;ve done for the cushie world! I&rsquo\;ve g ot 17 years post op and have truly enjoyed reading your bio. It&rsquo\;s a lways helpful and encouraging.
Read more at \;https://cushieblog ger.com/testimonial/lynn-m/
CATEGORIES:Cushings UID:20171103T1459530Z-549422-770@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Testimonial From Denise P DTSTART;VALUE=DATE:20171202 DTEND;VALUE=DATE:20171203 RRULE:FREQ=MONTHLY;UNTIL=20181104;BYDAY=1SA DESCRIPTION:I am so thankful for you \, too ! I probably wouldn't be here w ithout you MaryO ! Read more at https://cushieblogger.com/testimonial/deni se-p-3/ X-ALT-DESC;FMTTYPE=text/html:I am so thankful for you \, too ! I probabl y wouldn't be here without you MaryO !
Read more at \;https: //cushieblogger.com/testimonial/denise-p-3/
CATEGORIES:Cushie Bios UID:20171104T1245270Z-549422-771@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171104 SUMMARY:New Testimonial From Christina P RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181104;BYMONTHDAY=4 DESCRIPTION:... I am forever grateful to you and for you\, Mary. THANK YOU for sharing your experience with others and building a network of educatio n\, support\, and friendship... Read more at https://cushieblogger.com/t estimonial/christina-p-4/ X-ALT-DESC;FMTTYPE=text/html:... I am forever grateful to you and for yo u\, Mary. THANK YOU for sharing your experience with others and building a network of education\, support\, and friendship...
\;
< p>Read more at \;https://cushieblogger.com/testimonial/christina- p-4/ CATEGORIES:Cushie Bios UID:20171104T1552330Z-549422-772@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171105 SUMMARY:Comment added to Ren\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181105;BYMONTHDAY=5 DESCRIPTION:...I also have an enlarged tongue with grooves and cracks in it and muscle wasting and some of your symptoms. I hope you find a diagnosis soon... Read more at https://cushingsbios.com/2017/10/24/ren-undiagnosed -bio/ X-ALT-DESC;FMTTYPE=text/html:...I also have an enlarged tongue with groo ves and cracks in it and muscle wasting and some of your symptoms.
I hope you find a diagnosis soon... \;
Read more at \;https://cushingsbios.com/2017/10/24/ren-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20171106T0213350Z-549422-773@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171107 SUMMARY:New Testimonial From Jenn H RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181107;BYMONTHDAY=7 DESCRIPTION:Agree! Back in 2000 with my first bout of Cushing’s\, after I g ot my diagnosis I searched online and initially only found pictures of dog s with Cushing’s. I was petrified. But then I found MaryO and that communi ty and knew I wasn’t alone. From https://cushieblogger.com/testimonial/jen n-h/ X-ALT-DESC;FMTTYPE=text/html:Agree! Back in 2000 with my first bout of C ushing&rsquo\;s\, after I got my diagnosis I searched online and initially only found pictures of dogs with Cushing&rsquo\;s. I was petrified. But t hen I found MaryO and that community and knew I wasn&rsquo\;t alone.
From \;https://cushieblogger.com/testimonial/jenn-h/
CATEGORIES:Cushie Bios UID:20171108T0241170Z-549422-774@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Delayed complications after transsphenoidal surgery for pituitary a denomas DTSTART;VALUE=DATE:20171213 DTEND;VALUE=DATE:20171214 RRULE:FREQ=MONTHLY;UNTIL=20181108;BYDAY=2WE DESCRIPTION:Perioperative complications after transsphenoidal surgery for p ituitary adenomas have been well documented in the literature\; however\, some complications can occur in a delayed fashion postoperatively and repo rts are sparse about their occurrence\, management\, and outcome. Read mor e at https://cushieblog.com/2017/11/08/delayed-complications-after-transsp henoidal-surgery-for-pituitary-adenomas/ X-ALT-DESC;FMTTYPE=text/html:Perioperative complications after transsphe noidal surgery for pituitary adenomas have been well documented in the lit erature\; however\, some complications can occur in a delayed fashion post operatively and reports are sparse about their occurrence\, management\, a nd outcome.
Read more at \;https://cushieblog.com/2017/11/08/delayed-compl ications-after-transsphenoidal-surgery-for-pituitary-adenomas/
CATEGORIES:News Items UID:20171108T1358590Z-549422-775@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20171119T060000 DTEND;TZID=America/New_York:20171119T070000 SUMMARY:Salivary Testing Webinar DESCRIPTION:Join Dr. Friedman for a webinar informing the Cushing's and Add ison's community on the newly available Peak Biometric Research Stress Man agement System that offers a quick\, private\, and non-invasive way to mea sure cortisol levels —without the hassle and expense of sending samples to a lab. Dr. Friedman will go over how to order and use the POC salivary co rtisol monitor. He will explain that the product is not FDA-approved for d iagnostic purposes and how to use it with commercial salivary testing. The re will be plenty of time for questions and discussion. Read more at https ://cushieblogger.com/2017/11/09/salivary-testing-webinar/ X-ALT-DESC;FMTTYPE=text/html:Join Dr. Friedman for a webinar informing t he Cushing's and Addison's community on the newly available Peak Biometric Research Stress Management System that offers a quick\, private\, and non -invasive way to measure cortisol levels &mdash\;without the hassle and ex pense of sending samples to a lab. Dr. Friedman will go over how to order and use the POC salivary cortisol monitor. He will explain that the produc t is not FDA-approved for diagnostic purposes and how to use it with comme rcial salivary testing. There will be plenty of time for questions and dis cussion.
Read more at \;https://cushieblogger.c om/2017/11/09/salivary-testing-webinar/
CATEGORIES:Events and Meetings UID:20171109T1832460Z-549422-776@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171110 SUMMARY:New Testimonial From Rene B RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181110;BYMONTHDAY=10 DESCRIPTION:\,\,\,I'm thankful for cushings-help.com (and Mary Kelly O'Conn or who started it) and all the amazing people I've met because of it. Read more at https://cushieblogger.com/testimonial/rene-b-3/ X-ALT-DESC;FMTTYPE=text/html:\,\,\,I'm thankful for \;cushings-help.com \;(and \;Mar y Kelly O'Connor \;who started it) and all the amazing people I've met because of it.
Read more at \;https://cushieblogger.com/t estimonial/rene-b-3/
CATEGORIES:Cushings UID:20171110T1509250Z-549422-777@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Long-acting Signifor Has Similar Safety Profiles as Twice-daily Tre atment in Cushing’s Patients\, Trial Showed DTSTART;VALUE=DATE:20171209 DTEND;VALUE=DATE:20171210 RRULE:FREQ=MONTHLY;UNTIL=20181111;BYDAY=2SA DESCRIPTION:A long-acting\, once-a-month treatment of Signifor (pasireotide ) normalized cortisol levels in 40% of patients with Cushing’s disease who se disease had recurred after surgery\, or who were not candidates for sur gery\, according to new data from a Phase 3 trial. Read more at https://cu shieblog.com/2017/11/11/long-acting-signifor-has-similar-safety-profiles-a s-twice-daily-treatment-in-cushings-patients-trial-showed/ X-ALT-DESC;FMTTYPE=text/html:A long-acting\, once-a-month \;treatmen t \;of \;Signifor (pasireotide) \;normalized cortisol levels i n 40% of patients with \;Cushing&rsquo\;s disease \;whose disease had recurred after surgery\, or who were not candidates for surgery\, acco rding to new data from a Phase 3 trial.
CATEGORIES:Cushings UID:20171111T1745260Z-549422-778@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171112 SUMMARY:Can You Help? Hump at back of neck RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181112;BYMONTHDAY=12 DESCRIPTION:I have had this weird looking hump at the back of my neck since my late teens and I was a size 9 6 months later im twenty and I went to a size 11 I figured ok I’m still growing and also figured it could have bee n water weight from the birth control of was taking back then and I contin ued to take this birth control for years until 2005 as I gained more I fig ured I stop and the water weight would subside but I was wrong as the year s went by i kept gaining but staying at the same weight for a decade and i t would increase... Read more at http://cushings.invisionzone.com/topic/54 327-hump-at-back-of-neck/ X-ALT-DESC;FMTTYPE=text/html:I have had this weird looking hump at the b ack of my neck since my late teens and I was a size 9 6 months later im tw enty and I went to a size 11 I figured ok I&rsquo\;m still growing and als o figured it could have been water weight from the birth control of was ta king back then and I continued to take this birth control for years until 2005 as I gained more I figured I stop and the water weight would subside but I was wrong as the years went by i kept gaining but staying at the sam e weight for a decade and it would increase...
Read more at \; http://cushings.invisionzone.com/topic/54327-hump-at-ba ck-of-neck/
CATEGORIES:Cushings UID:20171112T1820110Z-549422-779@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171114 SUMMARY:Letter to Cushies RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191114;BYMONTHDAY=14 DESCRIPTION:To all my Cushie friends who are still dealing with this horrib le disease\, keep fighting\, don’t ever give up\, you will get better. I told a very close friend of mine the other day\, if I had the power I woul d heal everyone you today. Cushing’s is a horrible disease\, and unless y ou have been through it there is no way anyone could ever understand it. Read more at https://cushieblogger.com/2017/11/14/letter-to-cushies/ X-ALT-DESC;FMTTYPE=text/html:To all my Cushie friends who are still deal ing with this horrible disease\, keep fighting\, don&rsquo\;t ever give up \, you will get better. \; I told a very close friend of mine the othe r day\, if I had the power I would heal everyone you today. \;Cushing &rsquo\;s is a horrible disease\, and unless you have been through it ther e is no way anyone could ever understand it. \;
Read more at&n bsp\;https://cushieblogger.com/2017/11/14/letter-to-cushies/ CATEGORIES:Cushings UID:20180614T1247370Z-549422-780@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Desmopressin is Promising Alternative in Diagnosing Cushing’s Disea se DTSTART;VALUE=DATE:20171220 DTEND;VALUE=DATE:20171221 RRULE:FREQ=MONTHLY;UNTIL=20181115;BYDAY=3WE DESCRIPTION:Currently\, pituitary imaging is insufficient to confirm a Cush ing’s diagnosis. This is because 70 percent of pituitary adenomas in Cushi ng’s are microadenomas\, which are physically very small. As a result\, 40 percent of Cushing’s patients are reported as being healthy. This means t hat a Cushing’s diagnosis requires a combination of techniques including c linical symptoms\, imaging methods and endocrinological assays that includ e measures of serum cortisol and ACTH levels. Read more at https://cushieb log.com/2017/11/15/desmopressin-is-promising-alternative-in-diagnosing-cus hings-disease/ X-ALT-DESC;FMTTYPE=text/html:
Currently\, pituitary imaging is insufficie nt to confirm a Cushing&rsquo\;s diagnosis. This is because \;70 perce nt of pituitary adenomas in Cushing&rsquo\;s are microadenomas\, which are physically very small. As a result\, 40 percent of Cushing&rsquo\;s patie nts are reported as being healthy.
This means that a Cushing&rsquo \;s diagnosis requires a combination of techniques including clinical symp toms\, imaging methods and endocrinological assays that include measures o f serum cortisol and ACTH levels.
Read more at \;https://cushieblog.com/2017/11/ 15/desmopressin-is-promising-alternative-in-diagnosing-cushings-disease/
CATEGORIES:Cushings UID:20171115T1408270Z-549422-781@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171130 SUMMARY:Can You Help? Adderall and Cushings RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181130;BYMONTHDAY=30 DESCRIPTION:I was recently diagnosed by the NIH with Cushings and Adrenal h yperplasia due to a tumor in my adrenals. I have taken Adderall for a few years now for what I thought was ADD. Can Adderall increase cortisol lev els since it is a stimulant? Respond or ask more questions at http://cushi ngs.invisionzone.com/topic/54332-adderall-and-cushings/ X-ALT-DESC;FMTTYPE=text/html:I was recently diagnosed by the NIH \;w ith Cushings and Adrenal hyperplasia due to a tumor in my adrenals. \ ;I have \;taken \;Adderall for a few years now for what I thought was ADD. \;Can Adderall increase cortisol levels since it is a stimul ant?
Respond or ask more questions at \;ht tp://cushings.invisionzone.com/topic/54332-adderall-and-cushings/
CATEGORIES:Cushings UID:20171130T1428130Z-549422-782@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171201 SUMMARY:High Cortisol Levels\, as Seen in Cushing’s\, Can Lead to Greater R isk of Heart Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181201;BYMONTHDAY=1 DESCRIPTION:People with high cortisol levels have lower muscle mass and hig her visceral fat deposits\, putting them at a greater risk for cardiovascu lar disease\, new research shows. High levels of cortisol can result from a variety of reasons\, including Cushing’s disease and adrenal tumors. Mos t adrenal tumors are found to be non-functioning\, meaning they do not pro duce excess hormones. However\, up to 47 percent of patients have mild aut onomous cortisol excess (MACE). Read more at https://cushieblog.com/2017/1 2/01/high-cortisol-levels-as-seen-in-cushings-can-lead-to-greater-risk-of- heart-disease-study-finds/ X-ALT-DESC;FMTTYPE=text/html:People with high cortisol levels have lower muscle mass and higher visceral fat deposits\, putting them at a greater risk for cardiovascular disease\, new research shows.
High levels of cortisol can result from a variety of reasons\, including \;Cushing &rsquo\;s disease \;and adrenal tumors. Most adrenal tumors are found to be non-functioning\, meaning they do not produce excess hormones. Howev er\, up to 47 percent of patients have mild autonomous cortisol excess (MA CE).
Read more at \;https://cushieblog.com/2017/12/01/ high-cortisol-levels-as-seen-in-cushings-can-lead-to-greater-risk-of-heart -disease-study-finds/
CATEGORIES:Cushings UID:20171201T1438530Z-549422-783@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Moxie G\, MoxieGarrett\, Pituitary Bio DTSTART;VALUE=DATE:20180105 DTEND;VALUE=DATE:20180106 RRULE:FREQ=MONTHLY;UNTIL=20181201;BYDAY=1FR DESCRIPTION:Moxie is from Toronto\, Ontario\, Canada. She is Post Surgery: 9mm secreting pituitary tumor causing Cushings Disease and now has Diabet es 2. Read more at https://cushingsbios.com/2017/12/01/moxie-g-moxiegarret t-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Moxie is from Toronto\, Ontario\, Canada. & nbsp\;She is Post Surgery: 9mm secreting pituitary tumor causing Cushings Disease and now has Diabetes 2.
Read more at \;https://cushingsbios.com/2017/12/01/moxie-g-moxiegarrett-pituitar y-bio/
CATEGORIES:Cushie Bios UID:20171201T1454430Z-549422-784@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171201 SUMMARY:New Testimonial From Susan F RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181201;BYMONTHDAY=1 DESCRIPTION:It's encouraging to see the medical community catching up to wh at we've all known for\, like\, decades. Thanks\, MaryO! :-) From https ://cushieblogger.com/testimonial/susan-f-3/ X-ALT-DESC;FMTTYPE=text/html:It's encouraging to see the medical communi ty catching up to what we've all known for\, like\, decades. Thanks\, Mary O! \;:-)
\;
From \;https://cushieblogger.co m/testimonial/susan-f-3/
CATEGORIES:Cushings UID:20171201T1509510Z-549422-785@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to In Memory: Stacy Ollenberger\, November 4\, 2015 DTSTART;VALUE=DATE:20180105 DTEND;VALUE=DATE:20180106 RRULE:FREQ=MONTHLY;UNTIL=20181201;BYDAY=1FR DESCRIPTION:My medical history was a lot like Stacy's. I could not get 8 do ctors to understand the weight gain was something I never had issues with. I was very healthy even on blood labs. I had 2 brain surgeries and option I chose was to remove the pituitary if need be the second time... Read mo re at https://cushingsbios.com/2016/04/16/in-memory-of-stacy-ollenberger-n ovember-4-2015/ X-ALT-DESC;FMTTYPE=text/html:My medical history was a lot like Stacy's. I could not get 8 doctors to understand the weight gain was something I ne ver had issues with. I was very healthy even on blood labs. I had 2 brain surgeries and option I chose was to remove the pituitary if need be the se cond time...
Read more at \;https://cushingsbios.com/2016/04/16/in-memory-of-stacy-ollenberger-novem ber-4-2015/
CATEGORIES:Cushie Bios UID:20171201T1852310Z-549422-786@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171202 SUMMARY:Comment added to Myth: Even Though You Are Chronically Ill\, You Sh ould Have The Same Amount Of Energy Every Day RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181202;BYMONTHDAY=2 DESCRIPTION:...Guilt seems to be an ever-present companion to this disease. Let’s be our own friend and be gentle with ourselves. God Bless\, and tha nks for the spoons! Read more at https://cushieblogger.com/2017/04/26/myth -even-though-you-are-chronically-ill-you-should-have-the-same-amount-of-en ergy-every-day/ X-ALT-DESC;FMTTYPE=text/html:...Guilt seems to be an ever-present compan ion to this disease. Let&rsquo\;s be our own friend and be gentle with our selves. God Bless\, and thanks for the spoons!
Read more at \; https://cushieblogger.com/2017/04/26/myth-even-though-you-are-chr onically-ill-you-should-have-the-same-amount-of-energy-every-day/
CATEGORIES:Cushie Bios UID:20171202T1548220Z-549422-787@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Testimonial From Phil B DTSTART;VALUE=DATE:20180106 DTEND;VALUE=DATE:20180107 RRULE:FREQ=MONTHLY;UNTIL=20181202;BYDAY=1SA DESCRIPTION:As I researched 'Cushing's disease' I happened across a support group website( Cushings-help.com ) and began a quest. Read more at https: //cushieblogger.com/testimonial/phil-b-2/ X-ALT-DESC;FMTTYPE=text/html:As I researched 'Cushing's disease' I happe ned across a support group website( Cushings-help.com \;) and began a quest.
Read more at \;https://cushieblogger.com/testimonial/ph il-b-2/
CATEGORIES:Cushie Bios UID:20171202T1618350Z-549422-788@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171204 SUMMARY:Doctors Use Microwave Therapy on Cushing’s Patient Too Weak to Have Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181204;BYMONTHDAY=4 DESCRIPTION:Microwave therapy improved the Cushing’s syndrome of a woman wh ose lungs had almost failed\, allowing her to have the adrenal surgery nee ded to control her disease\, a case study showed. Read more at https://cus hieblog.com/2017/12/04/doctors-use-microwave-therapy-on-cushings-patient-t oo-weak-to-have-surgery/ X-ALT-DESC;FMTTYPE=text/html:Microwave therapy improved the Cushing&rsqu o\;s syndrome of a woman whose lungs had almost failed\, allowing her to h ave the adrenal surgery needed to control her disease\, a case study showe d.
Read more at \;https://cushieblog.com/2017/12/04/doctors-use-microwave- therapy-on-cushings-patient-too-weak-to-have-surgery/
CATEGORIES:Cushings UID:20171204T1359320Z-549422-789@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171206 SUMMARY:New Testimonial From Kim B RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181206;BYMONTHDAY=6 DESCRIPTION:I started with Cushings-help.com too. Great website. I do like it more than fb. I wish everyone would go back there... Read more at https ://cushieblogger.com/testimonial/kim-b/ X-ALT-DESC;FMTTYPE=text/html:I started with Cushings-help.com too. Great website. I do like it more than fb. I wish everyone would go back there.. .
Read more at \;https://cushieblogger.com/testimonial/kim-b/
CATEGORIES:Cushings UID:20171207T0112140Z-549422-790@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171210 SUMMARY:Comment added to Forums RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181210;BYMONTHDAY=10 DESCRIPTION:I started Korlym for my Cushing’s 2 and 1/2 months ago. I gaine d 10 pounds right after I started!! Doc said weight loss will happen but a fter 4-6 months! Has anyone else had any weight gain on Korlym? Read more at https://cushieblog.com/message-boards/ X-ALT-DESC;FMTTYPE=text/html:I started Korlym for my Cushing&rsquo\;s 2 and 1/2 months ago. I gained 10 pounds right after I started!! Doc said we ight loss will happen but after 4-6 months! Has anyone else had any weight gain on Korlym?
Read more at \;https://cushieblog.com/message-boards/< /a>
CATEGORIES:Cushie Bios UID:20171211T0447530Z-549422-791@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20171211T130000 DTEND;TZID=America/New_York:20171211T140000 SUMMARY:Register for this Webinar RRULE:FREQ=DAILY;COUNT=3 DESCRIPTION:...To build awareness among patients and medical providers of e arly signs and symptoms of pituitary and pituitary related tumors...To build awareness among patients and me
dical providers of early signs and symptoms of pituitary and pituitary rel
ated tumors<\;br />\;
To understand the consequences of delays in
diagnosis of pituitary tumors...
Read more at \;https:/ /cushieblogger.com/2017/12/11/webinar-delays-in-diagnosis-of-pituitary-tum ors-why-they-happen-and-steps-to-prevent-them/
CATEGORIES:Cushings UID:20171211T2110460Z-549422-792@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171213 SUMMARY:ACTH-producing Lung Tumors Hard to Detect\, But May Be Cured with S urgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181213;BYMONTHDAY=13 DESCRIPTION:Ectopic Cushing’s syndrome can be challenging to diagnose\, esp ecially when it comes identifying the problem source. But appropriate horm one management protocols\, used in combination with advanced imaging metho ds\, may help physicians identify ectopic ACTH-producing tumors. ... In ha lf of all Cushing’s patients\, ectopic ACTH is produced by small lung cell carcinomas or lung carcinoids (a type of slow-growing lung cancer). But s ome tumors in the thymus and pancreas also have been found to produce ACTH ... Read more at https://cushieblog.com/2017/12/13/acth-producing-lung-tum ors-hard-to-detect-but-may-be-cured-with-surgery/ X-ALT-DESC;FMTTYPE=text/html:Ectopic Cushing&rsquo\;s syndrome can be ch allenging to diagnose\, especially when it comes identifying the problem s ource. But appropriate hormone management protocols\, used in combination with advanced imaging methods\, may help physicians identify ectopic ACTH- producing tumors.
...
In half of all Cushing&rsquo\;s pati ents\, ectopic ACTH is produced by small lung cell carcinomas or lung carc inoids (a type of slow-growing \;lung cancer). But some tumors in the thymus and pancreas also have been found to produce ACTH...
Read m ore at \;ht tps://cushieblog.com/2017/12/13/acth-producing-lung-tumors-hard-to-detect- but-may-be-cured-with-surgery/
CATEGORIES:Cushings UID:20171213T1521040Z-549422-793@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Patients Undergoing Adrenalectomy Should Receive Steroid Substituti ve Therapy DTSTART;VALUE=DATE:20180111 DTEND;VALUE=DATE:20180112 RRULE:FREQ=MONTHLY;UNTIL=20181214;BYDAY=2TH DESCRIPTION:All patients who undergo removal of one adrenal gland due to Cu shing’s syndrome (CS) or adrenal incidentaloma (AI\, adrenal tumors discov ered incidentally) should receive a steroid substitutive therapy\, a new s tudy shows. Read more at https://cushieblog.com/2017/12/14/patients-underg oing-adrenalectomy-should-receive-steroid-substitutive-therapy/ X-ALT-DESC;FMTTYPE=text/html:All patients who undergo removal of one adr enal gland due to Cushing&rsquo\;s syndrome (CS) or adrenal incidentaloma (AI\, adrenal tumors discovered incidentally) should receive a steroid sub stitutive therapy\, a new study shows.
Read more at \;https://cushieblo g.com/2017/12/14/patients-undergoing-adrenalectomy-should-receive-steroid- substitutive-therapy/
CATEGORIES:Cushings UID:20171214T1546240Z-549422-794@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171215 SUMMARY:2 Health Conditions That Can Cause Hyperpigmentation RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181215;BYMONTHDAY=15 DESCRIPTION:Cushing’s syndrome: The abnormal amount of cortisol in the huma n body causes a condition known as the Cushing’s syndrome. And one of the symptoms of the disorder is hyperpigmentation of the skin. Read more at ht tp://cushings.invisionzone.com/topic/54341-2-health-conditions-that-can-ca use-hyperpigmentation/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome: \;The abnormal amount of cortisol in the human body causes a conditio n known as the Cushing&rsquo\;s syndrome. And one of the symptoms of the d isorder is hyperpigmentation of the skin.
Read more at \;http://cushings.invisionzone .com/topic/54341-2-health-conditions-that-can-cause-hyperpigmentation/
CATEGORIES:Cushings UID:20171215T1452070Z-549422-795@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171216 SUMMARY:Pituitary Gland Resection May Help Manage Presumed Cushing’s Patien ts RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181216;BYMONTHDAY=16 DESCRIPTION:The surgical removal of two-thirds of the pituitary gland is as sociated with high initial remission rates and low operative morbidity in patients with suspected Cushing’s disease\, when no tumor is found on the gland during surgical exploration. Read more at https://cushieblog.com/201 7/12/16/pituitary-gland-resection-may-help-manage-presumed-cushings-patien ts/ X-ALT-DESC;FMTTYPE=text/html:The surgical removal of two-thirds of the p ituitary gland is associated with high initial remission rates and low ope rative morbidity in patients with suspected \;Cushing&rsquo\;s disease \, when no tumor is found on the gland during surgical exploration.
< p>Read more at \;https://cushieblog.com/2017/12/16/pituitary-gland-resection-may-help-ma nage-presumed-cushings-patients/ CATEGORIES:Cushings UID:20171216T2252420Z-549422-796@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171222 SUMMARY:Oral Test for Adult Growth Hormone Deficiency Approved in US RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181222;BYMONTHDAY=22 DESCRIPTION:Macimorelin stimulates the secretion of growth hormone from the pituitary gland into the circulatory system. Stimulated growth-hormone le vels are measured in four blood samples over 90 minutes after oral adminis tration of the agent for the assessment of growth-hormone deficiency. Read more at https://cushieblog.com/2017/12/22/oral-test-for-adult-growth-horm one-deficiency-approved-in-us/ X-ALT-DESC;FMTTYPE=text/html:Macimorelin stimulates the secretion of gro wth hormone from the pituitary gland into the circulatory system. Stimulat ed growth-hormone levels are measured in four blood samples over 90 minute s after oral administration of the agent for the assessment of growth-horm one deficiency.
Read more at \;https://cushieblog.com/2017/12/22/oral-test-for-adult-gro wth-hormone-deficiency-approved-in-us/
CATEGORIES:News Items UID:20171222T1438290Z-549422-797@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Testimonial From Krystine DTSTART;VALUE=DATE:20180130 DTEND;VALUE=DATE:20180131 RRULE:FREQ=MONTHLY;UNTIL=20181226;BYDAY=-1TU DESCRIPTION:...So Thankful you have come into our lives & helped each and e very one of us!!!! ... Read more at https://cushieblogger.com/testimonial/ krystine/ X-ALT-DESC;FMTTYPE=text/html:...So Thankful you have come into our lives &\; helped each and every one of us!!!! ...
Read more at \ ;https://cushieblogger.com/testimonial/krystine/
CATEGORIES:Cushings UID:20171226T1418270Z-549422-798@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171227 SUMMARY:Pregnant Women with Hypertension and Hypercortisolism May Have Cush ing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181227;BYMONTHDAY=27 DESCRIPTION:While Cushing’s rarely occurs in women during pregnancy\, high cortisol levels can lead to major complications for both the mother and th e fetus\, such as premature birth and high fetal mortality. Read more at h ttps://cushieblog.com/2017/12/27/pregnant-women-with-hypertension-and-hype rcortisolism-may-have-cushings/ X-ALT-DESC;FMTTYPE=text/html:While Cushing&rsquo\;s rarely occurs in wom en during pregnancy\, high cortisol levels can lead to major complications for both the mother and the fetus\, such as premature birth and high feta l mortality.
Read more at \;https://cushieblog.com/2017/12/27/pregnant-women- with-hypertension-and-hypercortisolism-may-have-cushings/
CATEGORIES:Cushings UID:20171227T1536350Z-549422-799@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20171230 SUMMARY:Common Cushing’s Treatment\, Somatostatin Analogs\, May Sometimes W orsen Disease Course RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20181230;BYMONTHDAY=30 DESCRIPTION:Doctors often prescribe somatostatin analogs to manage the horm onal imbalance that characterizes Cushing’s syndrome. However\, in rare si tuations these medicines have paradoxically made patients worse than bette r. Read more at https://cushieblog.com/2017/12/30/common-cushings-treatmen t-somatostatin-analogs-may-sometimes-worsen-disease-course/ X-ALT-DESC;FMTTYPE=text/html:Doctors often prescribe somatostatin analog s to manage the hormonal imbalance that characterizes Cushing&rsquo\;s syn drome. However\, in rare situations these medicines have paradoxically mad e patients worse than better.
Read more at \;https://cushieblog.co m/2017/12/30/common-cushings-treatment-somatostatin-analogs-may-sometimes- worsen-disease-course/
CATEGORIES:Cushings UID:20171230T1732060Z-549422-800@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180103 SUMMARY:Cushing's Patients Could Be Diagnosed\, Subtyped Using Plasma Stero id Levels RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190103;BYMONTHDAY=3 DESCRIPTION:Patients with different subtypes of Cushing’s syndrome (CS) hav e distinct plasma steroid profiles. This could be used as a test for diagn osis and classification\, a German study says. A quick diagnosis of CS is crucial so that doctors can promptly give therapy. However\, diagnosing CS is often complicated by the multiple tests necessary not just to diagnose the disease but also to determine its particular subtype. Read more at ht tps://cushieblog.com/2018/01/03/cushing-patients-could-be-diagnosed-subtyp ed-using-plasma-steroid-levels/ X-ALT-DESC;FMTTYPE=text/html:Patients with different subtypes of Cushing &rsquo\;s syndrome (CS) have distinct plasma steroid profiles. This could be used as a test for diagnosis and classification\, a German study says.< /p>
A quick diagnosis of CS is crucial so that doctors can promp
tly give therapy. However\, diagnosing CS is often complicated by the mult
iple tests necessary not just to diagnose the disease but also to determin
e its particular subtype.
Read more at \;https://cushieblog.com/2018/01/03/c ushing-patients-could-be-diagnosed-subtyped-using-plasma-steroid-levels/
CATEGORIES:Cushings UID:20180103T1514590Z-549422-801@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190808 SUMMARY:The EPIC Foundation First Annual Convention RRULE:FREQ=DAILY;COUNT=4 DESCRIPTION:The EPIC Foundation proudly announces our upcoming first annual convention! Get ready to come and meet other chronic illness warriors\, g et support\, and take classes that will help you learn how to THRIVE with chronic illness! Read more at http://cushings.invisionzone.com/topic/54350 -the-epic-foundation-first-annual-convention X-ALT-DESC;FMTTYPE=text/html:The EPIC Founda tion proudly announces our upcoming first annual convention!
< p class='p4'>Get ready to come and meet other chronic ill ness warriors\, get support\, and take classes that will help you learn ho w to THRIVE with chronic illness!Read more at \;http://cush ings.invisionzone.com/topic/54350-the-epic-foundation-first-annual-convent ion
CATEGORIES:Events and Meetings UID:20180111T1454450Z-549422-802@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180111 SUMMARY:New Testimonial From Janet B RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190111;BYMONTHDAY=11 DESCRIPTION:Your efforts need to be recognized and so happy that they were at the major conference. You are proof that one person can affect thousand s of others in a positive way. Just wish I had found your site when I was going through Cushings and not after the surgery.... Read more at https:// cushieblogger.com/testimonial/janet-b/ X-ALT-DESC;FMTTYPE=text/html:Your efforts need to be recognized and so h appy that they were at the major conference. You are proof that one person can affect thousands of others in a positive way. Just wish I had found y our site when I was going through Cushings and not after the surgery....
Read more at \;https://cushieblogger.com/testimonial/janet-b/
CATEGORIES:Cushings UID:20180111T1537320Z-549422-803@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Janice (Not So Cushie)\, Upcoming Book\, Installment 1 DTSTART;VALUE=DATE:20180208 DTEND;VALUE=DATE:20180209 RRULE:FREQ=MONTHLY;UNTIL=20190111;BYDAY=2TH DESCRIPTION:Janice writes: I have written a memoir about my experiences wit h Cushing's Disease. An agent is interested in it but says I have to have a platform before she will represent me. So I need a following. I want thi s book to get out to show people the effects of Cushing's in our lives and to help the families going through this to better help and understand the person suffering with this disease. In the book I mention this site. Unfo rtunately I found it after I already had the pit surgery. I have also wri tten a play based on my memoir. I am on a mission to inform people of this disease... Read the first installment here: https://cushingsbios.com/2018 /01/11/janice-not-so-cushie-upcoming-book-installment-1/ X-ALT-DESC;FMTTYPE=text/html:Janice writes: \;I hav e written a memoir about my experiences with Cushing's Disease. An agent i s interested in it but says I have to have a platform before she will repr esent me. So I need a following. I want this book to get out to show peopl e the effects of Cushing's in our lives and to help the families going thr ough this to better help and understand the person suffering with this dis ease. In the book I mention this site. Unfortunately I found it after I al ready had the pit surgery. \;I have also written a play based on my m emoir. I am on a mission to inform people of this disease...
Read the first installment here: \;ht tps://cushingsbios.com/2018/01/11/janice-not-so-cushie-upcoming-book-insta llment-1/
CATEGORIES:Cushings UID:20180111T1548130Z-549422-804@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180111 SUMMARY:New Cushie added to the MemberMap RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190111;BYMONTHDAY=11 DESCRIPTION:Mary (Marianne) is from Waxahachie\, Texas. She is not officia lly diagnosed but told by one of the endocrinologists on the team that she has Cushing's Syndrome. Find the MemberMap at https://cushieblogger.com/2 018/11/17/rebuilding-the-membermap/ X-ALT-DESC;FMTTYPE=text/html:Mary (Marianne) is from Waxahachie\, Texas. \;She is not officially diagnosed but told by one of the endocrinolo gists on the team that she has Cushing's Syndrome.
Find the Member Map at \;https://cushieblogger.com/2018/11/17/rebuildin g-the-membermap/
CATEGORIES:Cushings UID:20181117T1604220Z-549422-805@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180111 SUMMARY:J Stone (J Stone)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190111;BYMONTHDAY=11 DESCRIPTION:J Stone is from Boise\, Idaho. Her journey started in 2009 with weight gain\, headaches\, high blood pressure\, mood changes\, insomnia e very symptom except stretch marks. Her nursing instructor asked “do you ha ve Cushing's?” Those words changed her life.J Stone is from Boise\, Idaho. Her journey
started in 2009 with weight gain\, headaches\, high blood pressure\, mood
changes\, insomnia every symptom except stretch marks. Her nursing instruc
tor asked &ldquo\;do you have Cushing's?&rdquo\; Those words changed her l
ife.<\;br />\;
<\;br />\;
She has had two pituitary surg
eries and is considering a BLA (bilateral adrenalectomy).
Read mor e at \;https://cushingsbios.com/2018/01/11/j-stone- j-stone-pituitary-bio/
CATEGORIES:Cushie Bios UID:20180111T1810410Z-549422-806@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180112 SUMMARY:Study Examines Therapy Options for Post-adrenalectomy Low Glucocort icoid Levels RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190112;BYMONTHDAY=12 DESCRIPTION:Unfortunately\, adrenalectomy leads to a sharp drop in hormones that are necessary for our bodies. So\, post-adrenalectomy glucocorticoid replacement therapy is required for patients. Hydrocortisone and predniso ne are synthetic glucocorticoids that most often are used for glucocortico id replacement therapy. Read more at https://cushieblog.com/2018/01/12/stu dy-examines-therapy-options-for-post-adrenalectomy-low-glucocorticoid-leve ls/ X-ALT-DESC;FMTTYPE=text/html:Unfortunately\, adrenalectomy leads to a sh arp drop in hormones that are necessary for our bodies. So\, post-adrenale ctomy glucocorticoid replacement therapy is required for patients.
Hydrocortisone and prednisone are synthetic glucocorticoids that most oft en are used for glucocorticoid replacement therapy.
Read more at&n bsp\;ht tps://cushieblog.com/2018/01/12/study-examines-therapy-options-for-post-ad renalectomy-low-glucocorticoid-levels/
CATEGORIES:Cushings UID:20180112T1334200Z-549422-807@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to CushieWiki DTSTART;VALUE=DATE:20180209 DTEND;VALUE=DATE:20180210 RRULE:FREQ=MONTHLY;UNTIL=20190112;BYDAY=2FR DESCRIPTION:I had my gaul bladder out. There were 5 stones the size of golf balls. I said to the doctor now that you’ve taken the gaul bladder out\, my body is still going to create these stones but where do they go or coll ect now? He had no answer. My body can’t break down starches. Are these st ones the starches that accumulate? I think the starches are connected to C ushing’s disease. And may be what gives us Cushing’s... Read more at https ://cushieblog.com/cushiewiki-2/ X-ALT-DESC;FMTTYPE=text/html:I had my gaul bladder out. There were 5 sto nes the size of golf balls. I said to the doctor now that you&rsquo\;ve ta ken the gaul bladder out\, my body is still going to create these stones b ut where do they go or collect now? He had no answer. My body can&rsquo\;t break down starches. Are these stones the starches that accumulate? I thi nk the starches are connected to Cushing&rsquo\;s disease. And may be what gives us Cushing&rsquo\;s...
Read more at \;https://cushieblog.com/cushi ewiki-2/
CATEGORIES:Cushings UID:20180112T1337220Z-549422-808@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180112 SUMMARY:New Testimonial From Janet B RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190112;BYMONTHDAY=12 DESCRIPTION:Your Cushing’s site is very valuable to the medical community a nd should be looked at as a resource of knowledge from people experiencing first hand what the medical community writes. Read more at https://cush ieblogger.com/testimonial/janet-b-2/ X-ALT-DESC;FMTTYPE=text/html:Your Cushing&rsquo\;s site is very valuable to the medical community and should be looked at as a resource of knowled ge from people experiencing first hand what the medical community writes.< /p>
\;
Read more at \;https://cushieblogger.com/test imonial/janet-b-2/
CATEGORIES:Cushings UID:20180112T1340390Z-549422-809@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Janice (Not So Cushie)\, Upcoming Book\, Installment 2 DTSTART;VALUE=DATE:20180209 DTEND;VALUE=DATE:20180210 RRULE:FREQ=MONTHLY;UNTIL=20190112;BYDAY=2FR DESCRIPTION:Part 2 of Janice's memoirs about her experience with Cushing's Disease. Read more at https://cushingsbios.com/2018/01/12/janice-not-so-c ushie-upcoming-book-installment-2/ X-ALT-DESC;FMTTYPE=text/html:Part 2 of Janice's memoirs about her experi ence with \;Cushing's Disease.
Read more at \;https://cushingsbios.com/2018/01/12/janice-not- so-cushie-upcoming-book-installment-2/
CATEGORIES:Cushie Bios UID:20180112T1350420Z-549422-810@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180115 SUMMARY:Comment added to Janice (Not So Cushie)\, Upcoming Book\, Installme nt 1 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190115;BYMONTHDAY=15 DESCRIPTION:...It took almost 12 years to finally get my Cushings Syndrome diagnosis because my monthly blood\, urine and saliva tests came back one positive/one negative. Finally I had them send all the test results to NIH and they came back with a definite diagnosis.... Read more at https://cus hingsbios.com/2018/01/11/janice-not-so-cushie-upcoming-book-installment-1/ X-ALT-DESC;FMTTYPE=text/html:...It took almost 12 years to finally get m y Cushings Syndrome diagnosis because my monthly blood\, urine and saliva tests came back one positive/one negative. Finally I had them send all the test results to NIH and they came back with a definite diagnosis....
Read more at \;https://cushi ngsbios.com/2018/01/11/janice-not-so-cushie-upcoming-book-installment-1/
CATEGORIES:Cushie Bios UID:20180116T0046480Z-549422-811@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180118 SUMMARY:Late-night salivary cortisol often fluctuates widely in Cushing’s d isease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190118;BYMONTHDAY=18 DESCRIPTION:“Cortisol levels\, as represented by late-night salivary cortis ol\, in Cushing’s disease patients without variable symptoms fluctuate muc h more widely than many endocrinologists may realize\,” Laurence Kennedy\, MD\, FRCP\, chairman of the department of endocrinology\, diabetes and me tabolism at the Cleveland Clinic\, told Endocrine Today. “In patients with recurrent or persistent Cushing’s disease\, the late-night salivary corti sol can be normal much more frequently than has been appreciated.” Read mo re at https://cushieblog.com/2018/01/18/late-night-salivary-cortisol-often -fluctuates-widely-in-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;Cortisol levels\, as represented by late-night salivary cortisol\, in Cushing&rsquo\;s disease patients witho ut variable symptoms fluctuate much more widely than many endocrinologists may realize\,&rdquo\; Laurence Kennedy\, MD\, FRCP\, chairman of the depa rtment of endocrinology\, diabetes and metabolism at the Cleveland Clinic\ , told Endocrine Today. &ldquo\;In patients with recurrent or persistent C ushing&rsquo\;s disease\, the late-night salivary cortisol can be normal m uch more frequently than has been appreciated.&rdquo\;
Read more a t \;https: //cushieblog.com/2018/01/18/late-night-salivary-cortisol-often-fluctuates- widely-in-cushings-disease/
CATEGORIES:Cushings UID:20180118T2022190Z-549422-812@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Janice (Not So Cushie)\, Upcoming Book\, Installme nt 1 DTSTART;VALUE=DATE:20180217 DTEND;VALUE=DATE:20180218 RRULE:FREQ=MONTHLY;UNTIL=20190120;BYDAY=3SA DESCRIPTION:...I hope this is helpful. But this post of mine is very limite d. So I suggest you introduce yourself in the I’m new section under welcom e and tell us more about yourself and situation. When you scroll down the list of sections you will notice there is a section for people to help ans wer your questions and that would be a much better place to post things to get more people to react and answer. This is a wonderful caring and shari ng site Mary has founded and I know you will find it as helpful as I have. Take Care. Wishing you better health and friendship. Read more at https:/ /cushingsbios.com/2018/01/11/janice-not-so-cushie-upcoming-book-installmen t-1/ X-ALT-DESC;FMTTYPE=text/html:...I hope this is helpful. But this post of mine is very limited. So I suggest you introduce yourself in the I&rsquo\ ;m new section under welcome and tell us more about yourself and situation . When you scroll down the list of sections you will notice there is a sec tion for people to help answer your questions and that would be a much bet ter place to post things to get more people to react and answer. This is a wonderful caring and sharing site Mary has founded and I know you will fi nd it as helpful as I have. Take Care. Wishing you better health and frien dship.
Read more at \;ht tps://cushingsbios.com/2018/01/11/janice-not-so-cushie-upcoming-book-insta llment-1/
CATEGORIES:Cushie Bios UID:20180120T1544060Z-549422-813@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180120 SUMMARY:Comment added to Kate N (Kate NC)\, Steroid Induced Cushing's RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190120;BYMONTHDAY=20 DESCRIPTION:...My daughter was recently diagnosed with Cushing Syndrome as a result of her use of corticosteroids also. She has stopped taking them c ompletely\, but it’s only been 5 months\, and she is still suffering from the debilitating affects (weight gain\, depression\, hair loss\, back pain \, back hump\, etc.). Is there any light at the end of the tunnel?... Read more at https://cushingsbios.com/2016/04/20/kate-n-kate-nc-steroid-induce d-cushings/ X-ALT-DESC;FMTTYPE=text/html:...My daughter was recently diagnosed with Cushing Syndrome as a result of her use of corticosteroids also. She has s topped taking them completely\, but it&rsquo\;s only been 5 months\, and s he is still suffering from the debilitating affects (weight gain\, depress ion\, hair loss\, back pain\, back hump\, etc.). Is there any light at the end of the tunnel?...
Read more at \;https://cushingsbios.com/2016/04/20/kate-n-kate-nc-steroid-induced-cu shings/
CATEGORIES:Cushie Bios UID:20180120T1551290Z-549422-814@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180120 SUMMARY:Stacy B\, Pituitary/Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190120;BYMONTHDAY=20 DESCRIPTION:Stacy is from Greencastle\, Indiana. She has tumors on both a drenals and one on her pituitary gland. Her endo offered to put her on a new trial drug in which she declined. Read more at https://cushingsbios.c om/2018/01/20/stacy-b-pituitary-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Stacy is from Greencastle\, Indiana. \ ;She has \;tumors on both adrenals and one on her pituitary gland. &n bsp\; Her endo offered to put her on a new trial drug in which she decline d.
Read more at \;https://cushingsbios.com/ 2018/01/20/stacy-b-pituitary-adrenal-bio/
CATEGORIES:Cushie Bios UID:20180120T1649260Z-549422-815@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Janice (Not So Cushie)\, Upcoming Book\, Installment 3 DTSTART;VALUE=DATE:20180218 DTEND;VALUE=DATE:20180219 RRULE:FREQ=MONTHLY;UNTIL=20190121;BYDAY=3SU DESCRIPTION:... Something so scary happening that they have to use a code t o bring nurses and security guards on the run. Shifting in bed\, tugging at the blue gown to close the gap at the back\, I feel the poetic justice of it all. My mother\, forty-years later\, finding a way to punish me from the grave\, for sending her to the asylum\, to make me crazy like her. Read more at https://cushingsbios.com/2018/01/21/janice-not-so-cushi e-upcoming-book-installment-3/ X-ALT-DESC;FMTTYPE=text/html:... Something so scary happening that they have to use a code to bring nurses and security guards on the run. \; \;
\; \; \; \; \;Shi fting in bed\, tugging at the blue gown to close the gap at the back\, I f eel the poetic justice of it all. My mother\, forty-years later\, finding a way to punish me from the grave\, for sending her to the asylum\, to mak e me crazy like her.
Read more at \; https://cushingsbios.com/2018/01/21/ janice-not-so-cushie-upcoming-book-installment-3/
CATEGORIES:Cushie Bios UID:20180121T1422550Z-549422-816@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180121 SUMMARY:Low Cortisol Levels Hours After Surgery Predict Long-term Remission in Cushing’s Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190121;BYMONTHDAY=21 DESCRIPTION:The team found that cortisol levels below 5 μg/dL by 15 hours a fter surgery or below 2 μg/dL in the first 21 hours may “accurately predic t durable remission in the intermediate term. Read more at http://cushings .invisionzone.com/topic/54359-low-cortisol-levels-hours-after-surgery-pred ict-long-term-remission-in-cushing%E2%80%99s-patients/?tab=comments#commen t-473961 X-ALT-DESC;FMTTYPE=text/html:The team found that cortisol levels below 5 &mu\;g/dL by 15 hours after surgery or below 2 &mu\;g/dL in the first 21 hours may &ldquo\;accurately predict durable remission in the intermediate term.
CATEGORIES:Cushings UID:20180121T1752310Z-549422-817@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:What Do *You* Think? DTSTART;VALUE=DATE:20180303 DTEND;VALUE=DATE:20180304 RRULE:FREQ=MONTHLY;UNTIL=20190203;BYDAY=1SA DESCRIPTION:Dr. Harvey Cushing\, who is the one responsible for discovering our disease\, found some of his patients in circuses... Read more at http s://cushieblogger.com/2018/02/03/what-do-you-think/ X-ALT-DESC;FMTTYPE=text/html:Dr. Harvey Cushing\, who is the one respons ible for discovering our disease\, found some of his patients in circuses. ..
Read more at \;https://cushieblogger.com/2018/02/03 /what-do-you-think/
CATEGORIES:Cushings UID:20180203T1556110Z-549422-818@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180204 SUMMARY:Sign Up and Enjoy Patient Benefits RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190204;BYMONTHDAY=4 DESCRIPTION:Sign Up and Enjoy Patient Benefits. To join our database and to receive a $5 gift card if you qualify\, please complete the form. Current ly we are looking for patients and caregivers with many different rare con ditions. Read more at https://cushieblogger.com/2018/02/04/sign-up-and-enj oy-patient-benefits/ X-ALT-DESC;FMTTYPE=text/html:Sign Up and Enjoy Patient Benefits. To join our database and to receive a $5 gift card if you qualify\, please comple te the form. Currently we are looking for patients and caregivers with man y different rare conditions.
Read more at \;https://cushieblogger.com/2018/02/04/sign-up-and-enjoy-patient-bene fits/
CATEGORIES:Cushings UID:20180204T1747200Z-549422-819@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Invitation to Patient Day 2018 DTSTART;VALUE=DATE:20180302 DTEND;VALUE=DATE:20180303 RRULE:FREQ=WEEKLY;UNTIL=20180407;INTERVAL=2;BYDAY=TH,SA DESCRIPTION:We welcome all families living with any rare disease to join us in celebrating their strength and courage\, while also recognizing their daily challenges and sacrifices. The interactions between our employees an d families provide a first-hand education about living with rare disease a nd further inspires the work we do for patients and families. Read more a t https://cushieblogger.com/2018/02/08/invitation-to-patient-day-2018/ X-ALT-DESC;FMTTYPE=text/html:We welcome all families living with any rar e disease to join us in celebrating their strength and courage\, while als o recognizing their daily challenges and sacrifices. The interactions betw een our employees and families provide a first-hand education about living with rare disease and further inspires the work we do for patients and fa milies. \;
Read more at \;https://cus hieblogger.com/2018/02/08/invitation-to-patient-day-2018/
CATEGORIES:Events and Meetings UID:20180208T1217450Z-549422-820@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180210 SUMMARY:Temozolomide May Partially Improve Aggressive Pituitary Tumors Caus ing Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190210;BYMONTHDAY=10 DESCRIPTION:Aggressive pituitary tumors are usually invasive macroadenomas\ , or benign tumors larger than 10 mm. A very rare subset of pituitary aden oma — particularly corticotropinoma\, or tumors with excessive secretion o f corticotropin (ACTH) — exhibit Crooke’s cells. These tumors are highly i nvasive\, have a high recurrence rate\, and are often resistant to treatme nt. Read more at https://cushieblog.com/2018/02/10/temozolomide-may-partia lly-improve-aggressive-pituitary-tumors-causing-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Aggressive pituitary tumors are usually inv asive macroadenomas\, or benign tumors larger than 10 mm.
A very r are subset of pituitary adenoma &mdash\; particularly \;corticotropino ma\, or tumors with excessive secretion of corticotropin (ACTH) &mdash\; e xhibit Crooke&rsquo\;s cells. These tumors are highly invasive\, have a hi gh recurrence rate\, and are often resistant to treatment.
Read mo re at \;https://cushieblog.com/2018/02/10/temozolomide-may-partially- improve-aggressive-pituitary-tumors-causing-cushings-disease/
CATEGORIES:News Items UID:20180210T1246170Z-549422-821@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Mika\, Undiagnosed Bio DTSTART;VALUE=DATE:20180311 DTEND;VALUE=DATE:20180312 RRULE:FREQ=MONTHLY;UNTIL=20190211;BYDAY=2SU DESCRIPTION:Mika is from New South Wales\, Australia. She is not yet diagn osed with Cushing's but thinks she's close. Read more at https://cushingsb ios.com/2018/02/11/mika-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Mika is from New South Wales\, Australia. & nbsp\;She is not yet diagnosed with Cushing's but thinks she's close.
Read more at \;https://cushingsbios.com/2018/02/11/mika- undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180211T1312280Z-549422-822@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180212 SUMMARY:Endoscopic and Microscopic Surgery Equally Effective in Cushing’s D isease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190212;BYMONTHDAY=12 DESCRIPTION:Using endoscopic or microscopic techniques to surgically remove the pituitary glands leads to similar remission and recurrence rates in C ushing’s disease patients\, a review of 24 studies shows. Read more at htt ps://cushieblog.com/2018/02/12/endoscopic-and-microscopic-surgery-equally- effective-in-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Using endoscopic or microscopic techniques to surgically remove the pituitary glands leads to similar remission and r ecurrence rates in Cushing&rsquo\;s disease patients\, a review of 24 stud ies shows.
Read more at \;https://cushieblog.com/2018/02/12/endoscopic-and-m icroscopic-surgery-equally-effective-in-cushings-disease/
CATEGORIES:Cushings UID:20180212T1312250Z-549422-823@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Ashley D\, Possible Familial Cushing's Bio DTSTART;VALUE=DATE:20180312 DTEND;VALUE=DATE:20180313 RRULE:FREQ=MONTHLY;UNTIL=20190212;BYDAY=2MO DESCRIPTION:Ashley's mother has Cushing's and she just found out she has h igh cortisol levels\, too. Read more at https://cushingsbios.com/2018/02/1 2/ashley-d-possible-familial-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:Ashley's mother has Cushing's and she \;just found out she has high cortisol levels\, too.
Read more at& nbsp\;https://cushingsbios.com/2018/02/12/ash ley-d-possible-familial-cushings-bio/
CATEGORIES:Cushie Bios UID:20180212T2226210Z-549422-824@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180214 SUMMARY:New Testimonial From NotSoCushie RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190214;BYMONTHDAY=14 DESCRIPTION:...Thank God for Mary O and her insight to help us all. Take ca re. Good health. Read more at http://cushings.invisionzone.com/topic/54370 -help-with-diagnosis/?tab=comments#comment-474008 (Please note that I'm sharing this from the Cushings-Help.com message boards. You must be a logg ed-in member of that board to read the rest of this post. Log in or regist er at http://cushings.invisionzone.com ) X-ALT-DESC;FMTTYPE=text/html:...Thank God for Mary O and her insight to help us all. Take care. Good health.
Read more at \;http://cushings.invisionzone.com/topic /54370-help-with-diagnosis/?tab=comments#comment-474008 \; \; (Please note that I'm sharing this from the Cushings-Help.com message boar ds. You must be a logged-in member of that board to read the rest of this post. Log in or register at http://cushings.invisionzone.com )
CATEGORIES:Cushings UID:20180214T1737290Z-549422-825@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Preoperative medical treatment in Cushing's syndrome. DTSTART;VALUE=DATE:20180314 DTEND;VALUE=DATE:20180315 RRULE:FREQ=MONTHLY;UNTIL=20190214;BYDAY=2WE DESCRIPTION:This study was performed to assess how frequently preoperative medical treatment (PMT) was given to Cushing's syndrome (CS) patients acro ss Europe and to investigate differences in preoperative characteristics o f patients who receive PMT and those who undergo primary surgery. Read mo re at https://cushieblog.com/2018/02/14/preoperative-medical-treatment-in- cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:This study was performed to assess how freq uently preoperative medical treatment (PMT) was given to Cushing's syndrom e (CS) patients across Europe and to investigate differences in preoperati ve characteristics of patients who receive PMT and those who undergo prima ry surgery. \;
Read more at \;https://cushieblog.com/2018/02/14/preoperative-medical-treatmen t-in-cushings-syndrome/
CATEGORIES:Cushings UID:20180215T0125570Z-549422-826@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180214 SUMMARY:Patient’s Atypical Cushing’s Symptoms Lead to Discovery of Novel Ge netic Mutations RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190214;BYMONTHDAY=14 DESCRIPTION:Primary bilateral macronodular adrenal hyperplasia (PBMAH) is a disorder characterized by multiple lumps in the adrenal glands and excess ive cortisol production. It is a rare cause of Cushing’s syndrome... ...Ov erall\, the study “highlights the importance of early recognition of atypi cal symptoms of Cushing’s syndrome such as exophthalmos\, which would save the patient from harmful effects of excessive cortisol exposure\,” the re searchers said. Read more at https://cushieblog.com/2018/02/14/patients-a typical-cushings-symptoms-lead-to-discovery-of-novel-genetic-mutations/ X-ALT-DESC;FMTTYPE=text/html:Primary bilateral macronodular adrenal hype rplasia (PBMAH) is a disorder characterized by multiple lumps in the adren al glands and excessive cortisol production. It is a rare cause of Cushing &rsquo\;s syndrome...
...Overall\, the study &ldquo\;highlights th e importance of early recognition of atypical symptoms of Cushing&rsquo\;s syndrome such as exophthalmos\, which would save the patient from harmful effects of excessive cortisol exposure\,&rdquo\; the researchers said.&nb sp\;
Read more at \;https://cushieblog.com/2018/02/14/patients-atypi cal-cushings-symptoms-lead-to-discovery-of-novel-genetic-mutations/
CATEGORIES:Cushings UID:20180215T0137260Z-549422-827@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180216 SUMMARY:Repeat Checks of Cortisol Levels in Saliva May Improve Use of Metop irone as Cushing’s Treatment RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190216;BYMONTHDAY=16 DESCRIPTION:Measuring cortisol levels in saliva multiple times a day is a c onvenient and useful way to determine the best course of treatment for pat ients with Cushing’s syndrome\, a preliminary study shows. Read more at ht tps://cushieblog.com/2018/02/16/repeat-checks-of-cortisol-levels-in-saliva -may-improve-use-of-metopirone-as-cushings-treatment/ X-ALT-DESC;FMTTYPE=text/html:Measuring cortisol levels in saliva multipl e times a day is a convenient and useful way to determine the best course of treatment for patients with Cushing&rsquo\;s syndrome\, a \;prelimi nary study shows.
Read more at \;https://cushieblog.co m/2018/02/16/repeat-checks-of-cortisol-levels-in-saliva-may-improve-use-of -metopirone-as-cushings-treatment/
CATEGORIES:Cushings UID:20180216T1548170Z-549422-828@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Stacy B\, Pituitary/Adrenal Bio DTSTART;VALUE=DATE:20180317 DTEND;VALUE=DATE:20180318 RRULE:FREQ=MONTHLY;UNTIL=20190217;BYDAY=3SA DESCRIPTION:...have hashi\, ON\, endometriosis\, adrenal failure\, and cyst s... Read more at https://cushingsbios.com/2018/01/20/stacy-b-pituitary-ad renal-bio/ X-ALT-DESC;FMTTYPE=text/html:...have hashi\, ON\, endometriosis\, adrena l failure\, and cysts...
Read more at \;htt ps://cushingsbios.com/2018/01/20/stacy-b-pituitary-adrenal-bio/
CATEGORIES:Cushie Bios UID:20180217T1526410Z-549422-829@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180217 SUMMARY:Adrenal Gland Lump Led to 5-year-old Developing Cushing’s\, Startin g Puberty RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190217;BYMONTHDAY=17 DESCRIPTION:The 5-year-old boy’s over-production of adrenal gland hormones led to both symptoms of Cushing’s syndrome and signs that he was starting puberty\, the researchers said. One reason the case was rare is that the a verage age when Cushing’s develops is 40\, doctors say. Another is that ep ithelial adrenal gland tumors account for only 0.2 percent of all tumors i n children\, the researchers said. Read more at https://cushieblog.com/201 8/02/17/adrenal-gland-lump-led-to-5-year-old-developing-cushings-starting- puberty/ X-ALT-DESC;FMTTYPE=text/html:The 5-year-old boy&rsquo\;s over-production of adrenal gland hormones led to both symptoms of Cushing&rsquo\;s syndro me and signs that he was starting puberty\, the researchers said.
One reason the case was rare is that the average age when Cushing&rsquo\;s develops is 40\, doctors say. Another is that \;epithelial adrenal gl and tumors account for only \;0.2 percent of all tumors in children\, the researchers said.
Read more at \;https://cushieblog.com/2018/02/17/adre nal-gland-lump-led-to-5-year-old-developing-cushings-starting-puberty/
CATEGORIES:Cushings UID:20180217T1540420Z-549422-830@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180226 SUMMARY:Benefits of Medication Before Surgery for Cushing’s Syndrome Still Unclear RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190226;BYMONTHDAY=26 DESCRIPTION:In Europe\, nearly 20 percent of patients with Cushing’s syndro me receive some sort of medication for the disease before undergoing surge ry\, a new study shows. Six months after surgery\, these patients had remi ssion and mortality rates similar to those who received surgery as a first -line treatment\, despite having worse disease manifestations when the stu dy began. However\, preoperative medication may limit doctors’ ability to determine the immediate success of surgery\, researchers said. Read more a t https://cushieblog.com/2018/02/26/benefits-of-medication-before-surgery- for-cushings-syndrome-still-unclear/ X-ALT-DESC;FMTTYPE=text/html:In Europe\, nearly 20 percent of patients w ith Cushing&rsquo\;s syndrome receive some sort of medication for the dise ase before undergoing surgery\, a new study shows.
Six months afte r surgery\, these patients had remission and mortality rates similar to th ose who received surgery as a first-line treatment\, despite having worse disease manifestations when the study began. However\, preoperative medica tion may limit doctors&rsquo\; ability to determine the immediate success of surgery\, researchers said.
Read more at \;https://cushieblog.com/2018/0 2/26/benefits-of-medication-before-surgery-for-cushings-syndrome-still-unc lear/
CATEGORIES:Cushings UID:20180226T1224460Z-549422-831@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180301 SUMMARY:New Testimonial From Terry G RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190301;BYMONTHDAY=1 DESCRIPTION: You are an amazing rock star in the Cushing's Disease communit y Mary Kelly O'Connor ? ? ? On Facebook X-ALT-DESC;FMTTYPE=text/html:\;You are an amazing rock star in the Cushing's Disease community Mary Kelly O'Connor ? ? ?
On \;Facebook
CATEGORIES:Cushings UID:20180301T1322280Z-549422-832@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY: New Testimonial From Denise P DTSTART;VALUE=DATE:20180405 DTEND;VALUE=DATE:20180406 RRULE:FREQ=MONTHLY;UNTIL=20190301;BYDAY=1TH DESCRIPTION:Thank you Mary O for all you do . I'm sure I wouldn't be here w ithout your website . From Facebook X-ALT-DESC;FMTTYPE=text/html:Thank you Mary O for all you do . I'm sure I wouldn't be here without your website .
From \;Facebook
CATEGORIES:Cushings UID:20180301T1326290Z-549422-833@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:The 2018 Rare Disease Day video! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200301;BYMONTH=3;BYMONTHDAY=1 DTSTART;VALUE=DATE:20180301 DTEND;VALUE=DATE:20180302 DESCRIPTION:This year’s video features patients and family members\, resear chers and doctors who show they're rare. The video shows the wide range of people involved in the rare disease cause and together\, with your suppor t they can be a strong voice for greater progress in research of rare dise ases. Read more and see the video at https://cushieblogger.com/2018/02/28/ the-2018-rare-disease-day-video/ X-ALT-DESC;FMTTYPE=text/html:This year&rsquo\;s video features patients and family members\, researchers and doctors who \;show they're rare. The video shows the wide range of peop le involved in the rare disease cause and together\, with your support the y can be a strong voice for greater progress in research of rare diseases.
Read more and see the video at \;https: //cushieblogger.com/2018/02/28/the-2018-rare-disease-day-video/
CATEGORIES:Other Medical UID:20180301T1337350Z-549422-834@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180301 SUMMARY:New Testimonial From Tricia B RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190301;BYMONTHDAY=1 DESCRIPTION:Rare disease day was yesterday. The woman who wrote this articl e is one of the first I met in my journey with Cushing’s Disease. She has helped save many lives by putting a name to a random collection of symptom s that so often get dismissed by the medical community. From https://cushi eblogger.com/testimonial/tricia-b/ X-ALT-DESC;FMTTYPE=text/html:Rare disease day was yesterday. The woman w ho wrote this article is one of the first I met in my journey with Cushing &rsquo\;s Disease. She has helped save many lives by putting a name to a r andom collection of symptoms that so often get dismissed by the medical co mmunity.
From \;https://cushieblogger.com/testimonial/tricia-b /
CATEGORIES:Cushings UID:20180301T1352550Z-549422-835@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180301 SUMMARY:Zoe\, Pituitary Video RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190301;BYMONTHDAY=1 DESCRIPTION:Zoe shares her experience of living with Cushing’s disease\, a rare condition that develops when your body produces too much of the hormo ne cortisol. Read more and watch the video at https://cushieblogger.com/20 18/03/01/zoe-pituitary-video/ X-ALT-DESC;FMTTYPE=text/html:Zoe shares her experience of living with Cu shing&rsquo\;s disease\, a rare condition that develops when your body pro duces too much of the hormone cortisol.
Read more and watch the vi deo at \;https://cushieblogger.com/2018/03/01/zoe-pituitary- video/
CATEGORIES:Cushie Bios UID:20180301T1413080Z-549422-836@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Pituitary Patient Support Group Saturday March 24\, 2018 DTSTART;VALUE=DATE:20180405 DTEND;VALUE=DATE:20180406 RRULE:FREQ=WEEKLY;UNTIL=20180324;INTERVAL=2;BYDAY=TH DESCRIPTION:Pituitary Patient Support Group Saturday March 24\, 2018 Pejman Cohan\, MD 10:00am - 11:45am Daniel F. Kelly\, MD 11:45am - 12:45pm Lunch 1:00pm - 2:00pm Family and friends welcome Read more at https://cushieblo gger.com/2018/03/01/pituitary-patient-support-group-saturday-march-24-2018 / X-ALT-DESC;FMTTYPE=text/html:Pituitary Patient Support Group Saturday Ma
rch 24\, 2018
Pejman Cohan\, MD 10:00am - 11:45am
Daniel F. Kell
y\, MD 11:45am - 12:45pm
Lunch 1:00pm - 2:00pm
Family and friend
s welcome
Read more at \;https://cushieblogger.com/2018/03/01/pituitary-patient-support-gro up-saturday-march-24-2018/
CATEGORIES:Events and Meetings UID:20180302T0247370Z-549422-837@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20180324T220000 DTEND;TZID=America/New_York:20180325T020000 SUMMARY:Pituitary Patient Support Group Saturday March 24\, 2018 DESCRIPTION:Pituitary Patient Support Group Saturday March 24\, 2018 Pejman Cohan\, MD 10:00am - 11:45am Daniel F. Kelly\, MD 11:45am - 12:45pm Lunch 1:00pm - 2:00pm Family and friends welcome Read more at https://cushiebl ogger.com/2018/03/01/pituitary-patient-support-group-saturday-march-24-201 8/ X-ALT-DESC;FMTTYPE=text/html:Pituitary Patient Support Group Saturday Ma
rch 24\, 2018
Pejman Cohan\, MD 10:00am - 11:45am
Daniel F. Kell
y\, MD 11:45am - 12:45pm
Lunch 1:00pm - 2:00pm
Family and friend
s welcome \;
Read more at \;https://cushieblogger.com/2018/03/01/pituitary-patient-supp ort-group-saturday-march-24-2018/
CATEGORIES:Events and Meetings UID:20180302T0249000Z-549422-838@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to A New Newspaper Article on Jordy DTSTART;VALUE=DATE:20180407 DTEND;VALUE=DATE:20180408 RRULE:FREQ=MONTHLY;UNTIL=20190303;BYDAY=1SA DESCRIPTION:...Thirty-eight-year-old Jordy Cernik suffered from adenomas on both glands and had to have both removed. Here is where it becomes bizarr e: without his adrenal glands to secrete adrenaline\, he is now incapable of feeling fear... Read more at https://cushingsbios.com/2017/04/18/a-new- newspaper-article-on-jordy/ X-ALT-DESC;FMTTYPE=text/html:...Thirty-eight-year-old Jordy Cernik suffe red from adenomas on both glands and had to have both removed. Here is whe re it becomes bizarre: without his adrenal glands to secrete adrenaline\, he is now incapable of feeling fear...
Read more at \;https://cushingsbios.com/2017/04/18/a-new-newspaper-article- on-jordy/
CATEGORIES:Cushie Bios UID:20180303T1332420Z-549422-839@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180303 SUMMARY:Comment added to Dawn M (Lind8588)\, Steroid Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190303;BYMONTHDAY=3 DESCRIPTION:What allergy medications do you take now after the Cushing’s sy ndrome? I have Primary Ciliary Dyskinesia\, immune deficiency\, allergies\ , allergic asthma. I have also had steroids over the years for migraines\, ankle surgery and other injuries..... Read more at https://cushingsbios.c om/2014/10/22/dawn-m-lind8588-steroid-induced-bio/ X-ALT-DESC;FMTTYPE=text/html:What allergy medications do you take now af ter the Cushing&rsquo\;s syndrome? I have Primary Ciliary Dyskinesia\, imm une deficiency\, allergies\, allergic asthma. I have also had steroids ove r the years for migraines\, ankle surgery and other injuries.....
Read more at \;https://cushingsbios.com/2014/ 10/22/dawn-m-lind8588-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20180303T1339350Z-549422-840@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180303 SUMMARY:Woman with hump on her neck diagnosed herself with Cushing’s diseas e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190303;BYMONTHDAY=3 DESCRIPTION:Woman who suddenly gained 40LBS\, while suffering hair loss\, b ruising\, and migraines\, diagnosed herself with a rare hormonal condition - after finding a lump of FAT at the back of her neck Read more at https: //cushingsbios.com/2018/03/03/woman-with-hump-on-her-neck-diagnosed-hersel f-with-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Woman who suddenly gained 40LBS\, while suf fering hair loss\, bruising\, and migraines\, diagnosed herself with a rar e hormonal condition - after finding a lump of FAT at the back of her neck
Read more at \;https://cushingsbios.com/2018/03/03/woman-with-hump-on-her-neck -diagnosed-herself-with-cushings-disease/
CATEGORIES:Cushie Bios UID:20180303T1420120Z-549422-841@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180303 SUMMARY:Cyndi K (What Now?)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190303;BYMONTHDAY=3 DESCRIPTION:Cyndi is from Bradenton FL USA. She is In the process of disco very - all symptoms check marked. CT Scan completed 2 days ago - waiting w ith anxiety for results of blood work and scans. Read more at https://cush ingsbios.com/2018/03/03/cyndi-k-what-now-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Cyndi is from Bradenton FL USA. \;She is In the process of discovery - all symptoms check marked. CT Scan comple ted 2 days ago - waiting with anxiety for results of blood work and scans.
Read more at \;https://cushingsbios.com /2018/03/03/cyndi-k-what-now-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180303T2047140Z-549422-842@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Cushie\, Cyndi\, added to the MemberMap DTSTART;VALUE=DATE:20180407 DTEND;VALUE=DATE:20180408 RRULE:FREQ=MONTHLY;UNTIL=20180903;BYDAY=1SA DESCRIPTION:Cyndi is from Bradenton FL USA. She is In the process of discov ery - all symptoms check marked. CT Scan completed 2 days ago - waiting wi th anxiety for results of blood work and scans. Add your own info (or your doctor's) to the Cushie MemberMap X-ALT-DESC;FMTTYPE=text/html:Cyndi is from Bradenton FL USA. She is In t he process of discovery - all symptoms check marked. CT Scan completed 2 d ays ago - waiting with anxiety for results of blood work and scans.
< p>We present a case of a 52-year-old ma n with osteoporosis who sustained fragility fractures and became wheelchai r-bound due to progressive lower extremity weakness. Evaluation demonstrat ed suppression of the hypothalamic-pituitary-adrenal axis\, with undetecta ble salivary and urinary cortisol levels. Further investigation revealed l ong-term use of Artri King\, a supplement for musculoskeletal pain that co ntains undisclosed glucocorticoids. This case highlights the risk of unreg ulated supplements causing iatrogenic Cushing&rsquo\;s syndrome and its as sociated complications.
CATEGORIES:Cushings UID:20260107T1002130Z-549422-2051@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251230 SUMMARY:A Second Look at Refractory Edema: Delayed Diagnosis of Paraneoplas tic Cushing’s Syndrome in Small Cell Lung Cancer RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301230;BYMONTHDAY=30 DESCRIPTION:Paraneoplastic Cushing syndrome (PCS) is a rare manifestation o f ectopic adrenocorticotropic hormone (ACTH) production\, mostly associate d with bronchial carcinoid and small cell lung cancer (SCLC). https://cush ings.invisionzone.com/topic/57932-a-second-look-at-refractory-edema-delaye d-diagnosis-of-paraneoplastic-cushing%E2%80%99s-syndrome-in-small-cell-lun g-cancer/ X-ALT-DESC;FMTTYPE=text/html:Paraneoplastic Cushing syndrome (PCS) is a rare manifestation of ectopic adrenocorticotropic hormone (ACTH) pro duction\, mostly associated with bronchial carcinoid and small cell lung c ancer (SCLC).
CATEGORIES:Cushings UID:20251230T1419070Z-549422-2034@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220517 SUMMARY:Recurrent Metatarsal Fractures in a Patient With Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240517;BYMONTHDAY=17 DESCRIPTION:A 39-year-old premenopausal woman presented to the orthopedic o utpatient clinic with recurrent metatarsal fractures and no history of tra uma. A metabolic bone disease was suspected\, and after further evaluation by endocrinology services\, the Cushing's Disease was diagnosed. Read mor e at https://cushings.invisionzone.com/topic/56907-recurrent-metatarsal-fr actures-in-a-patient-with-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:A 39-year-old premenopausal woman presented to the orthopedic outpatient clinic with recurrent metatarsal fractures a nd no history of trauma. A metabolic bone disease was suspected\, and afte r further evaluation by endocrinology services\, the Cushing's Disease was diagnosed.
Read more at \;https://cushings.invisionzone.com/topic/56907 -recurrent-metatarsal-fractures-in-a-patient-with-cushing-disease/
CATEGORIES:Cushings UID:20220517T1331520Z-549422-1572@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190209 SUMMARY:Faster Adrenal Recovery May Predict Cushing’s Disease Recurrence RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200209;BYMONTHDAY=9 DESCRIPTION:A shorter duration of adrenal insufficiency — when the adrenal gland is not working properly — after surgical removal of a pituitary tumo r may predict recurrence in Cushing’s disease patients\, a new study sugge sts. Read more at https://cushieblog.com/2019/02/09/faster-adrenal-recover y-may-predict-cushings-disease-recurrence/ X-ALT-DESC;FMTTYPE=text/html:A shorter duration of adrenal insufficiency &mdash\; when the adrenal gland is not working properly &mdash\; after su rgical removal of a pituitary tumor may predict recurrence in Cushing&rsqu o\;s disease patients\, a new study suggests.
Read more at \;< a href='https://cushieblog.com/2019/02/09/faster-adrenal-recovery-may-pred ict-cushings-disease-recurrence/' target='_blank'>https://cushieblog.com/2 019/02/09/faster-adrenal-recovery-may-predict-cushings-disease-recurrence/
CATEGORIES:News Items UID:20190209T2139320Z-549422-1078@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210831 SUMMARY:Albany Med Welcomes Dr. Robert Heller\, Cranial and Skull Base Surg eon RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220831;BYMONTHDAY=31 DESCRIPTION:Robert Heller\, M.D.\, has joined Albany Med’s Department of Ne urosurgery and has been named assistant professor of neurosurgery at Alban y Medical College. He specializes in the surgical treatment of pituitary t umors\, meningiomas\, acoustic neuromas and gliomas. He is also skilled in stereotactic radiosurgery\, a precisely targeted form of radiation therap y to treat tumors. Read more at https://cushings.invisionzone.com/topic/56 030-albany-med-welcomes-dr-robert-heller-cranial-and-skull-base-surgeon/ X-ALT-DESC;FMTTYPE=text/html:Robert Heller\, M.D.\, has joined Albany Me d&rsquo\;s Department of Neurosurgery and has been named assistant profess or of neurosurgery at Albany Medical College. He specializes in the surgic al treatment of pituitary tumors\, meningiomas\, acoustic neuromas and gli omas. He is also skilled in stereotactic radiosurgery\, a precisely target ed form of radiation therapy to treat tumors.
Read more at \;< a href='https://cushings.invisionzone.com/topic/56030-albany-med-welcomes- dr-robert-heller-cranial-and-skull-base-surgeon/' target='_blank'>https:// cushings.invisionzone.com/topic/56030-albany-med-welcomes-dr-robert-heller -cranial-and-skull-base-surgeon/
CATEGORIES:Helpful Doctors UID:20210831T1120520Z-549422-1416@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Update on the Treatment of Pituitary Diseases: Emerging Therapies DTSTART;VALUE=DATE:20190207 DTEND;VALUE=DATE:20190208 RRULE:FREQ=WEEKLY;UNTIL=20190412;INTERVAL=2;BYDAY=WE DESCRIPTION:This course is suited for medical professionals\, patients\, an d caregivers to improve patient care and outcomes through evidence-based d iscussion of clinical practice guidelines and emerging therapies in order to assess and update current practices to promote earlier diagnosis and tr eatment of pituitary diseases. Read more at https://cushieblogger.com/201 9/01/16/update-on-the-treatment-of-pituitary-diseases-emerging-therapies/ X-ALT-DESC;FMTTYPE=text/html:This course is suited for medical professio nals\, patients\, and caregivers to improve patient care and outcomes thro ugh evidence-based discussion of clinical practice guidelines and emerging therapies in order to assess and update current practices to promote earl ier diagnosis and treatment of pituitary diseases. \;
Read mor e at \;https:// cushieblogger.com/2019/01/16/update-on-the-treatment-of-pituitary-diseases -emerging-therapies/
CATEGORIES:Events and Meetings UID:20190116T2359580Z-549422-1071@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220809 SUMMARY:Hypercortisolemic Cushing's Patients Possess a Distinct Class of He matopoietic Progenitor Cells Leading to Erythrocytosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230809;BYMONTHDAY=9 DESCRIPTION:We characterized the phenotype of a large cohort of patients wi th Cushing’s Disease\, a rare condition associated with elevated cortisol levels. Results from hypercortisolemic patients with active Cushing’s were compared with those obtained from eucortisolemic patients after remission and from non-diseased volunteers. Read more at https://cushings.invisionz one.com/topic/57255-hypercortisolemic-cushings-patients-possess-a-distinct -class-of-hematopoietic-progenitor-cells-leading-to-erythrocytosis/ X-ALT-DESC;FMTTYPE=text/html:We characterized the phenotype of a large c ohort of patients with Cushing&rsquo\;s Disease\, a rare condition associa ted with elevated cortisol levels. Results from hypercortisolemic patients with active Cushing&rsquo\;s were compared with those obtained from eucor tisolemic patients after remission and from non-diseased volunteers.
CATEGORIES:News Items UID:20220809T1332350Z-549422-1599@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250924 SUMMARY:Altered Microbiome Signature in Cushing’s Syndrome Persists Beyond Remission RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270924;BYMONTHDAY=24 DESCRIPTION:Patients with Cushing's syndrome (CS) suffer from metabolic and cardiovascular comorbidities caused by hypercortisolism. The human gut mi crobiome responds to different pathological conditions. https://cushings.i nvisionzone.com/topic/57884-altered-microbiome-signature-in-cushing%E2%80% 99s-syndrome-persists-beyond-remission/ X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing's syndrome (CS) suffer from metabolic and cardiovascular comorbidities caused by hypercor tisolism. The human gut microbiome responds to different pathological cond itions.
CATEGORIES:Cushings UID:20250924T1549500Z-549422-1939@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 18\, Cushing’s Awareness Challenge 2020 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250424;BYMONTH=4;BYMONTHDAY=18 DTSTART;VALUE=DATE:20200418 DTEND;VALUE=DATE:20200419 DESCRIPTION:In case you haven’t guessed it\, my cause seems to be Cushing’s Awareness. I never really decided to devote a good portion of my life to Cushing’s\, it just fell into my lap\, so to speak – or my laptop. I had been going along\, raising my son\, keeping the home fires burning\, tryi ng to forget all about Cushing’s. Read more at https://cushieblogger.com /2020/04/18/day-18-cushings-awareness-challenge-2020/ X-ALT-DESC;FMTTYPE=text/html:In case you haven&rsquo\;t guessed it\, my cause seems to be Cushing&rsquo\;s Awareness. \;I never really decide d to devote a good portion of my life to Cushing&rsquo\;s\, it just fell i nto my lap\, so to speak &ndash\; or my laptop.
I had been going a long\, raising my son\, keeping the home fires burning\, \;trying to forget all about Cushing&rsquo\;s. \;
Read more at \;https://cushieblogger.com/2020/04/18/day-18-cus hings-awareness-challenge-2020/
CATEGORIES:Awareness Challenge UID:20200426T0017310Z-549422-1252@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200927 SUMMARY:Comment on Matt\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210927;BYMONTHDAY=27 DESCRIPTION:By the way\, I know these symptoms very well. Ever heard of chi ari malformation? This can also be responsible for your endocrine trouble. Talk to an neurologist and try to get an mri of your skull done. Read mor e at https://cushingsbios.com/2017/03/22/matt-undiagnosed-bio/comment-page -1/#comment-57233 X-ALT-DESC;FMTTYPE=text/html:By the way\, I know these symptoms very wel l. Ever heard of chiari malformation? This can also be responsible for you r endocrine trouble. Talk to an neurologist and try to get an mri of your skull done.
Read more at \;https://cushingsbios.com/2017/03/22/matt-undiagnosed-bio/comment-page- 1/#comment-57233
CATEGORIES:Cushie Bios UID:20200927T1556000Z-549422-1295@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190404 SUMMARY:Archived Interview with Jayne\, Ectopic Cushing’s Patient DESCRIPTION:Mary O’Connor (MaryO) hosted an interview with Jayne\, a Cushin g’s patient who had pituitary surgeries and a bilateral adrenalectomy befo re finding the true source of her ectopic Cushing’s. Read more at https:// cushieblogger.com/2019/04/04/archived-interview-with-jayne-ectopic-cushing s-patient/ X-ALT-DESC;FMTTYPE=text/html:Mary O&rsquo\;Connor (MaryO) hosted an inte rview with Jayne\, a Cushing&rsquo\;s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopi c Cushing&rsquo\;s.
Read more at \;https://cushieblogger.com/2019/04/04/archived-interview- with-jayne-ectopic-cushings-patient/
CATEGORIES:Events and Meetings UID:20190405T1252180Z-549422-1120@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210521 SUMMARY:Joanna\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220521;BYMONTHDAY=21 DESCRIPTION:Joanna is from Colorado. She is testing now. Her symptoms are buffalo hump\, thin arms and thinner legs\, fatigue\, extreme leg aching\ , skin feels like its sunburned\, high triglycerides\, high cholesterol\, weight gain\, hair growth on face\, the list goes on and on and on. Read more at https://cushingsbios.com/2021/05/21/joanna-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Joanna is from Colorado. \;She is test ing now. \;Her symptoms are buffalo hump\, thin arms and thinner legs \, fatigue\, extreme leg aching\, skin feels like its sunburned\, high tri glycerides\, high cholesterol\, weight gain\, hair growth on face\, the li st goes on and on and on. \;
Read more at \;ht tps://cushingsbios.com/2021/05/21/joanna-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20210521T1148390Z-549422-1381@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210811 SUMMARY:Experts Offer Recommendations For Management Of Pituitary Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220811;BYMONTHDAY=11 DESCRIPTION:An international panel reached consensus for pre- and postopera tive endocrine testing to manage adults undergoing transsphenoidal surgery \, including measurement of prolactin and insulin-like growth factor I lev els for all pituitary tumors. Read more at https://cushings.invisionzone.c om/topic/55933-experts-offer-recommendations-for-management-of-pituitary-t umors/ X-ALT-DESC;FMTTYPE=text/html:An international panel reached consensus fo r pre- and postoperative endocrine testing to manage adults undergoing tra nssphenoidal surgery\, including measurement of prolactin and insulin-like growth factor I levels for all pituitary tumors.
Read more at&nbs p\;https:/ /cushings.invisionzone.com/topic/55933-experts-offer-recommendations-for-m anagement-of-pituitary-tumors/
CATEGORIES:News Items UID:20210811T1048150Z-549422-1410@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Recordati Rare Diseases Announce Publication in the Journal of Clin ical Endocrinology & Metabolism of the Phase III LINC 4 Study Confirming t he Efficacy and Safety of Isturisa® (Osilodrostat) in Patients With Cushin g’s Disease DTSTART;VALUE=DATE:20220427 DTEND;VALUE=DATE:20220428 RRULE:FREQ=MONTHLY;UNTIL=20230330;BYDAY=-1WE DESCRIPTION:Recordati Rare Diseases announce today the publication of posit ive results from the Phase III LINC 4 study of Isturisa in The Journal of Clinical Endocrinology & Metabolism. These data reinforce Isturisa as an e ffective and well-tolerated oral therapy for patients with Cushing’s disea se. Isturisa is indicated in the EU for the treatment of adult patients wi th endogenous Cushing’s syndrome\, a rare and debilitating condition of hy percortisolism Read more at https://cushings.invisionzone.com/topic/56726- recordati-rare-diseases-announce-publication-in-the-journal-of-clinical-en docrinology-metabolism-of-the-phase-iii-linc-4-study-confirming-the-effica cy-and-safety-of-isturisa%C2%AE-osilodrostat-in-patients-with-cushing%E2%8 0%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Recordati Rare Diseases announce today the publication of positive results from the Phase III LINC 4 study of Isturis a in The Journal of Clinical Endocrinology &\; Metabolism. These data r einforce Isturisa as an effective and well-tolerated oral therapy for pati ents with Cushing&rsquo\;s disease. Isturisa is indicated in the EU for th e treatment of adult patients with endogenous Cushing&rsquo\;s syndrome\, a rare and debilitating condition of hypercortisolism
CATEGORIES:Cushings UID:20220330T1309300Z-549422-1541@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240520 SUMMARY:Venous Thromboembolism in Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300520;BYMONTHDAY=20 DESCRIPTION:Patients with Cushing syndrome (CS) are at increased risk of ve nous thromboembolism. Read more at https://cushings.invisionzone.com/topic /57730-venous-thromboembolism-in-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing syndrome (CS) are at increased risk of venous thromboembolism.
Read more at \;https://cushings.invis ionzone.com/topic/57730-venous-thromboembolism-in-cushing-syndrome/
CATEGORIES:Cushings UID:20240520T1424370Z-549422-1787@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220810 SUMMARY:Pasireotide-Induced Shrinkage in GH and ACTH Secreting Pituitary Ad enoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240810;BYMONTHDAY=10 DESCRIPTION:Pasireotide (PAS) is a novel somatostatin receptor ligands (SRL )\, used in controlling hormonal hypersecretion in both acromegaly and Cus hing’s Disease (CD). In previous studies and meta-analysis\, first-generat ion SRLs were reported to be able to induce significant tumor shrinkage on ly in somatotroph adenomas. Read more at https://cushings.invisionzone.co m/topic/57267-pasireotide-induced-shrinkage-in-gh-and-acth-secreting-pitui tary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:Pasireotide (PAS) is a novel somatost atin receptor ligands (SRL)\, used in controlling hormonal hypersecretion in both acromegaly and Cushing&rsquo\;s Disease (CD). In previous studies and meta-analysis\, first-generation SRLs were reported to be able to indu ce significant tumor shrinkage only in somatotroph adenomas. \;
Read more at \;https://cushings.invisionzo ne.com/topic/57267-pasireotide-induced-shrinkage-in-gh-and-acth-secreting- pituitary-adenoma/
CATEGORIES:News Items UID:20220810T2159440Z-549422-1600@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20201003 SUMMARY:Matt (MattHill)\, Ectopic Cushing's RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20211003;BYMONTHDAY=3 DESCRIPTION:Matt was diagnosed with Stage 2 small cell lung cancer causing high levels of Cortisol\, low testosterone and thyroid. He is from Liverp ool\, England. Read more at https://cushingsbios.com/2020/10/03/matt-matth ill-ectopic-cushings/ X-ALT-DESC;FMTTYPE=text/html:Matt was diagnosed with Stage 2 small cell lung cancer causing high levels of Cortisol\, low testosterone and thyroid . \;He is from Liverpool\, England.
Read more at \;https://cushingsbios.com/2020/10/03/matt-matthill-ectopic-cu shings/
CATEGORIES:Cushie Bios UID:20201003T1537050Z-549422-1299@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20260117 SUMMARY:Insulin Resistance Unveiled: Cushing's Disease in a Patient with Ty pe 1 Diabetes Mellitus and Worsening Glycemic Control RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300117;BYMONTHDAY=17 DESCRIPTION:Type 1 diabetes mellitus is an autoimmune disease often charact erized by endogenous insulin deficiency and often sensitivity to endogenou s insulin administration. Cushing's disease\, though rare\, should be cons idered as a cause of insulin resistance and increased insulin requirements in individuals with type 1 diabetes mellitus. https://cushings.invisionzo ne.com/topic/57942-insulin-resistance-unveiled-cushings-disease-in-a-patie nt-with-type-1-diabetes-mellitus-and-worsening-glycemic-control/ X-ALT-DESC;FMTTYPE=text/html:Type 1 diabetes mellitus is an autoim mune disease often characterized by endogenous insulin deficiency and ofte n sensitivity to endogenous insulin administration. Cushing's disease\, th ough rare\, should be considered as a cause of insulin resistance and incr eased insulin requirements in individuals with type 1 diabetes mellitus.
CATEGORIES:Cushings UID:20260117T1319570Z-549422-2067@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 11\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300411;BYMONTH=4;BYMONTHDAY=11 DTSTART;VALUE=DATE:20210411 DTEND;VALUE=DATE:20210412 DESCRIPTION:Blue and Yellow – we have those colors on ribbons\, websites\, T-shirts\, Cushing’s Awareness Challenge logos and even cars. Read more at https://cushings-help.com/2025/04/11/day-11-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:Blue and Yellow &ndash\; we have those colo rs on ribbons\, websites\, T-shirts\, Cushing&rsquo\;s Awareness Challenge logos and even cars.
Read more at \;https://cushings-help.com/2025/04/11/day-11-cushings-aware ness-challenge/
CATEGORIES:Awareness Challenge UID:20250411T1018580Z-549422-1351@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Helena (hummerbird)\, Steroid-Induced Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301211;BYMONTH=12;BYMONTHDAY=11 DTSTART;VALUE=DATE:20251211 DTEND;VALUE=DATE:20251212 DESCRIPTION:Some of my first signs were extreme insomnia yet when I did sle ep I would still feel extremely fatigued\, flushing of the face\, neck\, c hest\, and back\, weekly migraines and daily headaches which started after I was 45\, unexplained weight gain\, crazy buzzy internal tremor adrenali ne smacking (I could actually taste it!) jitters that would not go away\, hypersensory (especially to light and sounds)\, feeling painfully sunburne d even though I had not been out in the sun\, pain in my legs going way be yond restless leg syndrome\, totally fearful of everything\, developing a hump between my shoulders and a host of other symptoms. https://cushingsbi os.com/2025/12/11/helena-hummerbird-steroid-induced-bio/ X-ALT-DESC;FMTTYPE=text/html:Some of my first signs were extreme i nsomnia yet when I did sleep I would still feel extremely fatigued\, flush ing of the face\, neck\, chest\, and back\, weekly migraines and daily hea daches which started after I was 45\, unexplained weight gain\, crazy buzz y internal tremor adrenaline smacking (I could actually taste it!) jitters that would not go away\, hypersensory (especially to light and sounds)\, feeling painfully sunburned even though I had not been out in the sun\, pa in in my legs going way beyond restless leg syndrome\, totally fearful of everything\, developing a hump between my shoulders and a host of other sy mptoms.
htt ps://cushingsbios.com/2025/12/11/helena-hummerbird-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20251212T0744220Z-549422-2025@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210519 SUMMARY: Pituitary Tumors and Treatments RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300519;BYMONTHDAY=19 DESCRIPTION:Pituitary tumors start in the pituitary gland. They’re usually benign (not cancerous) and rarely spread to other parts of the body. Dr. B orghei-Razavi discusses pituitary tumors and treatments through minimally invasive surgical approaches offered at Cleveland Clinic Florida. Read mor e at https://cushings.invisionzone.com/topic/55668-pituitary-tumors-and-tr eatments/ X-ALT-DESC;FMTTYPE=text/html:Pituitary tumors start in the pituitary gla nd. They&rsquo\;re usually benign (not cancerous) and rarely spread to oth er parts of the body. Dr. Borghei-Razavi discusses pituitary tumors and tr eatments through minimally invasive surgical approaches offered at Clevela nd Clinic Florida.
Read more at \;https://cushings.invisionzone.com/topic/55668-pituitary-tumors-and-trea tments/
CATEGORIES:Cushings UID:20210519T1242200Z-549422-1378@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Amber D\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301211;BYMONTH=12;BYMONTHDAY=11 DTSTART;VALUE=DATE:20251211 DTEND;VALUE=DATE:20251212 DESCRIPTION:Amber is from New Zealand. She was diagnosed with a pituitary tumor in 2020 \, and underwent surgery\, several years after symptoms eme rged\, including rapid weight gain\, muscle loss\, brain fog\, fatigue\, d epression and severe headaches. https://cushingsbios.com/2025/12/11/amber- d-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Amber is from New Zealand. \;She was d iagnosed with a pituitary tumor in 2020 \, and underwent \;surgery\, several years after symptoms emerged\, including rapid weight gain\, muscl e loss\, brain fog\, fatigue\, depression and severe headaches.
https://cushingsbios.com/2025/12/11/amber-d-pituit ary-bio/
CATEGORIES:Cushie Bios UID:20251212T0741130Z-549422-2024@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20260108T120000 DTEND;TZID=America/New_York:20260108T130000 SUMMARY:Adrenal Insufficiency United Free Workshop on Five Principles of Se lf-Advocacy DESCRIPTION:Adrenal Insufficiency United are offering a free workshop today at noon to introduce you to the Five Principles of Self-Advocacy. https:/ /cushings.invisionzone.com/topic/57937-adrenal-insufficiency-united-free-w orkshop-on-five-principles-of-self-advocacy/ X-ALT-DESC;FMTTYPE=text/html:Adrenal Insufficiency United are offe ring a free workshop today at noon \;to introduce you to the Five Prin ciples of Self-Advocacy.
CATEGORIES:Events and Meetings UID:20260107T1022520Z-549422-2052@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:❣️The Message Boards Turn 25 Today! ❣️ RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300930;BYMONTH=9;BYMONTHDAY=30 DTSTART;VALUE=DATE:20230930 DTEND;VALUE=DATE:20231001 DESCRIPTION:Today is the birthday\, or anniversary\, of the boards startin g September 30\, 2000 (The rest of the site started earlier that year on J uly 21\, 2000) As of today\, we have 73\,357 members who have made countle ss posts. Find the Message Boards at https://cushings.invisionzone.com/ X-ALT-DESC;FMTTYPE=text/html:Today \;is the birthday\, or anniversa ry\, of the boards starting September 30\, 2000 (The rest of the site star ted earlier that year on July 21\, 2000)
As of today\, we have 73\ ,357 members who have made countless posts.
Find the Message Board s at \;https://cushings.invisionzone.com/
Today&rsquo\;s Cushing&rsquo\;s Awareness C hallenge post is about kidney cancer (renal cell carcinoma). You might won der how in the world this is related to Cushing&rsquo\;s. I think it is\, either directly or indirectly.
Read more at \;https://cushings.invisionzone.com/topic/5 6835-day-15-cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220415T1610310Z-549422-1355@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181118 SUMMARY:3 New Cushies added to the Cushing's MemberMap RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191118;BYMONTHDAY=18 DESCRIPTION:One is from Pittsburgh\, PA\, i from Udine\, Italy snd one from Roanoke\, VA See the MemberMap X-ALT-DESC;FMTTYPE=text/html:One is from Pittsburgh\, PA\, i from Udine\ , Italy snd one from Roanoke\, VA
See the \;MemberMap
CATEGORIES:Cushie Bios UID:20181118T2053170Z-549422-1031@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Pituitary Tumors Affect Patients’ Ability to Work\, Reduce Quality of Life DTSTART;VALUE=DATE:20181208 DTEND;VALUE=DATE:20181209 RRULE:FREQ=MONTHLY;UNTIL=20191110;BYDAY=2SA DESCRIPTION:Pituitary tumors\, like those that cause Cushing’s disease\, ha ve significant effects on a patient’s physical\, mental\, and social healt h\, all of which influence their work status and health-related quality of life. Read more at https://cushieblog.com/2018/11/10/pituitary-tumors-aff ect-patients-ability-to-work-reduce-quality-of-life/ X-ALT-DESC;FMTTYPE=text/html:Pituitary tumors\, like those that cause Cu shing&rsquo\;s disease\, have significant effects on a patient&rsquo\;s ph ysical\, mental\, and social health\, all of which influence their work st atus and health-related quality of life.
Read more at \;https://cushieblog.co m/2018/11/10/pituitary-tumors-affect-patients-ability-to-work-reduce-quali ty-of-life/
CATEGORIES:News Items UID:20181110T1610070Z-549422-1020@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251029 SUMMARY:Crinetics Pharma’s Promising Study on CRN04894 for Cushing’s Syndro me: A Potential Game-Changer? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301029;BYMONTHDAY=29 DESCRIPTION:Crinetics Pharmaceuticals is conducting a study titled ‘A Phase 1b/2a Open-label Multiple-ascending Dose Exploratory Study of CRN04894 in ACTH-dependent Cushing’s Syndrome.’ This study aims to evaluate the safet y\, tolerability\, and pharmacokinetics of CRN04894\, an ACTH receptor ant agonist\, in treating Cushing’s Syndrome\, a condition characterized by ex cessive cortisol production. The study’s significance lies in its potentia l to offer a new treatment avenue for patients with Cushing’s disease or E ctopic ACTH Syndrome. https://cushings.invisionzone.com/topic/57905-crinet ics-pharma%E2%80%99s-promising-study-on-crn04894-for-cushing%E2%80%99s-syn drome-a-potential-game-changer/ X-ALT-DESC;FMTTYPE=text/html:Crinetics Pharmaceuticals is conducti ng a study titled &lsquo\;A Phase 1b/2a Open-label Multiple-ascending Dose Exploratory Study of CRN04894 in ACTH-dependent Cushing&rsquo\;s Syndrome .&rsquo\; This study aims to evaluate the safety\, tolerability\, and phar macokinetics of CRN04894\, an ACTH receptor antagonist\, in treating Cushi ng&rsquo\;s Syndrome\, a condition characterized by excessive cortisol pro duction. The study&rsquo\;s significance lies in its potential to offer a new treatment avenue for patients with Cushing&rsquo\;s disease or Ectopic ACTH Syndrome.
CATEGORIES:Cushings UID:20251029T0848440Z-549422-1960@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Stephanie M (Stephanie)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301108;BYMONTH=11;BYMONTHDAY=8 DTSTART;VALUE=DATE:20251108 DTEND;VALUE=DATE:20251109 DESCRIPTION:Stephanie is from Eielson AFB\, Alaska. She has had two pitui tary surgeries\, gamma knife and has taken mifepristone https://cushingsbi os.com/2025/11/07/stephanie-m-stephanie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Stephanie is from Eielson AFB\, Alaska. &nb sp\; She has had two pituitary surgeries\, gamma knife and has taken mifep ristone
https://cushingsbi os.com/2025/11/07/stephanie-m-stephanie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251108T1140510Z-549422-1972@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210420 SUMMARY:Kim M (MerryKim)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220420;BYMONTHDAY=20 DESCRIPTION:Kim is from Durant\, OK. She has had Cushing’s since she was 1 2 years old and had a right adrenalectomy in March of 2021. Read more at https://cushingsbios.com/2021/04/20/kim-m-merrykim-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Kim is from Durant\, OK. \;She has had \;Cushing&rsquo\;s since she was 12 years old and had a right adrenal ectomy in March of 2021.
\;
Read more at \;https://cushingsbios.com/2021/04/20/kim-m-merrykim-adrenal-bio/< /a>
CATEGORIES:Cushie Bios UID:20210420T1318350Z-549422-1358@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181119 SUMMARY:Comment added to Jayne\, In The Media RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191119;BYMONTHDAY=19 DESCRIPTION:I dropped by this site because my friend’s daughter has Cushing s and I wanted to learn more. Is there any chance that Cushings might be m anageable or improvable in a way similar to what Izabella Wentz proposes f or Hashimotos? Can you help? https://cushingsbios.com/2018/11/17/jayne-in -the-media/ X-ALT-DESC;FMTTYPE=text/html:I dropped by this site because my friend&rs quo\;s daughter has Cushings and I wanted to learn more. Is there any chan ce that Cushings might be manageable or improvable in a way similar to wha t Izabella Wentz proposes for Hashimotos?
Can you help? \;https://cushingsbios.com/2018/11/17/jayne-in-the-media/
CATEGORIES:Cushie Bios UID:20181119T1313520Z-549422-1034@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241125 SUMMARY:Ectopic Adrenocorticotrophic Hormone Syndrome in a 10-Year-Old Girl With a Thymic Neuroendocrine Tumor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301125;BYMONTHDAY=25 DESCRIPTION:Thymic neuroendocrine tumor as a cause of Cushing syndrome is e xtremely rare in children. https://cushings.invisionzone.com/topic/57770-e ctopic-adrenocorticotrophic-hormone-syndrome-in-a-10-year-old-girl-with-a- thymic-neuroendocrine-tumor/ X-ALT-DESC;FMTTYPE=text/html:Thymic neuroendocrine tumor as a caus e of Cushing syndrome is extremely rare in children.
CATEGORIES:Cushings UID:20241125T1527550Z-549422-1836@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220504 SUMMARY:Osilodrostat Effective for Patients With Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230504;BYMONTHDAY=4 DESCRIPTION:Osilodrostat is associated with rapid normalization of mean uri nary free cortisol (mUFC) excretion in patients with Cushing disease and h as a favorable safety profile\, according to the results of a study publis hed in the Journal of Clinical Endocrinology & Metabolism. Read more at ht tps://cushings.invisionzone.com/topic/56896-osilodrostat-effective-for-pat ients-with-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:Osilodrostat is associated with rapid norma lization of mean urinary free cortisol (mUFC) excretion in patients with C ushing disease and has a favorable safety profile\, according to the resul ts of a study published in the \;Journal of Clinical Endocrinology &\; Metabolism.
Read more at \;https://cushings.invisionzone.com/topic/ 56896-osilodrostat-effective-for-patients-with-cushing-disease/
CATEGORIES:News Items UID:20220504T1210280Z-549422-1560@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220427 SUMMARY:Cushing’s Syndrome Diagnostic and Treatment Market See Huge Growth for New Normal RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250427;BYMONTHDAY=27 DESCRIPTION:Reports on drug companies that make medications for Cushing's: Novartis\, Orphagen Pharmaceuticals\, Inc.\, Corcept Therapeutics Various factors are responsible for the market’s growth trajectory\, which are stu died at length in the report. In addition\, the report lists down the rest raints that are posing threat to the global Cushing’s Syndrome Diagnostic and Treatment market. Read more at https://cushings.invisionzone.com/topic /56888-cushing%E2%80%99s-syndrome-diagnostic-and-treatment-market-see-huge -growth-for-new-normal/ X-ALT-DESC;FMTTYPE=text/html:Reports on drug companies that make medicat ions for Cushing's: Novartis\, Orphagen Pharmaceuticals\, Inc.\, Corcept T herapeutics
Various factors are responsible for the market&rsquo\; s growth trajectory\, which are studied at length in the report. In additi on\, the report lists down the restraints that are posing threat to the gl obal Cushing&rsquo\;s Syndrome Diagnostic and Treatment market.
Re ad more at \;https://cushings.invisionzone.com/topic/56 888-cushing%E2%80%99s-syndrome-diagnostic-and-treatment-market-see-huge-gr owth-for-new-normal/
CATEGORIES:Cushings UID:20220427T1507290Z-549422-1556@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20260105 SUMMARY:Dr. Friedman Has Partnered With Ulta Lab Tests to Offer Affordable\ , Hassle-Free Lab Testing at About One-Tenth the Cost of Going Through Ins urance RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270105;BYMONTHDAY=5 DESCRIPTION:Dr. Friedman understands your concerns and has partnered with U lta Lab Tests to offer affordable\, hassle-free lab testing—typically at a bout one-tenth the cost of going through insurance\, with fast turnaround times. https://cushings.invisionzone.com/topic/57935-dr-friedman-has-part nered-with-ulta-lab-tests-to-offer-affordable-hassle-free-lab-testing-at-a bout-one-tenth-the-cost-of-going-through-insurance/ X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman understands your concern s and has partnered with Ulta Lab Tests to offer affordable\, hassle-free lab testing&mdash\;typically at about one-tenth the cost of going through insurance\, with fast turnaround times. \;
CATEGORIES:Cushings UID:20260105T0748490Z-549422-2046@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Sandi J\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300103;BYMONTH=1;BYMONTHDAY=3 DTSTART;VALUE=DATE:20260103 DTEND;VALUE=DATE:20260104 DESCRIPTION:Recently I had a kidney stone. I went to the ER where they did a CT scan. The confirmed the stone and gave me pain pills to tough it out. A couple of weeks later I got a letter describing all of the CT findings. I had to look up all of them to figure out what they meant. One of them w as adrenal adenoma. When I started reading about this one it was like read ing my medical history. Weight gain in the belly\, hump on my shoulders\, high blood pressure\, high sugar\, high triglycerides\, fatigue\, depressi on\, serious panic attacks\, aching muscles… https://cushingsbios.com/2026 /01/03/sandi-j-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Recently I had a kidney stone. I went to the ER where they did a CT scan. The confirmed the stone and gave me p ain pills to tough it out. A couple of weeks later I got a letter describi ng all of the CT findings. I had to look up all of them to figure out what they meant. One of them was adrenal adenoma. When I started reading about this one it was like reading my medical history. Weight gain in the belly \, hump on my shoulders\, high blood pressure\, high sugar\, high triglyce rides\, fatigue\, depression\, serious panic attacks\, aching muscles&hell ip\;
https://cushingsbios .com/2026/01/03/sandi-j-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260105T1244240Z-549422-2047@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220507 SUMMARY:Tracking a Mystery Disease to the Pituitary Gland RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300507;BYMONTHDAY=7 DESCRIPTION:Sharmyn McGraw knows as much about pituitary disease as some do ctors. She learned about it after struggling for years with a medical myst ery that began in 1993. First\, she began to feel anxious. Then\, she bega n to gain weight\, and she developed a rash. Much of her hair fell out. He r eyes began to yellow and her face puffed up. Read more at https://cushin gs.invisionzone.com/topic/56898-tracking-a-mystery-disease-to-the-pituitar y-gland-sharmyn-mcgraw/ X-ALT-DESC;FMTTYPE=text/html:Sharmyn McGraw knows as much about pituitar y disease as some doctors. She learned about it after struggling for years with a medical mystery that began in 1993.
First\, she began to f eel anxious. Then\, she began to gain weight\, and she developed a rash. M uch of her hair fell out. Her eyes began to yellow and her face puffed up.
Read more at \;https://cushings.invisionzone.com/topic/56898-tracking-a -mystery-disease-to-the-pituitary-gland-sharmyn-mcgraw/
CATEGORIES:Cushings UID:20220507T0738470Z-549422-1563@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220507 SUMMARY:The effect of endogenous Cushing's syndrome on all-cause and cause- specific mortality RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240507;BYMONTHDAY=7 DESCRIPTION:Despite improved outcomes in recent years\, increased mortality from CS persists. The causes of death highlight the need to prevent and m anage co-morbidities in addition to treating hypercortisolism. Read more a t https://cushings.invisionzone.com/topic/56897-the-effect-of-endogenous-c ushings-syndrome-on-all-cause-and-cause-specific-mortality/ X-ALT-DESC;FMTTYPE=text/html:Despite improved outcomes in recent years\, increased mortality from CS persists. The causes of death highlight the n eed to prevent and manage co-morbidities in addition to treating hypercort isolism.
Read more at \;https://cushings.invisionzon e.com/topic/56897-the-effect-of-endogenous-cushings-syndrome-on-all-cause- and-cause-specific-mortality/
CATEGORIES:Cushings UID:20220507T0650450Z-549422-1561@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220507 SUMMARY:Message Board Downtime This week RRULE:FREQ=DAILY;COUNT=8 DESCRIPTION:Our community will experience a single\, brief period of downti me this week. The exact timing is not known as this is a rolling update. T here will be no data loss and most communities will see a downtime window of less than 10 minutes. https://cushings.invisionzone.com/ X-ALT-DESC;FMTTYPE=text/html:Our community will experience a single\, br ief period of downtime this week. The exact timing is not known as this is a rolling update. There will be no data loss and most communities will se e a downtime window of less than 10 minutes.
https://cushings.invisionzone.com/
CATEGORIES:Cushings UID:20220507T0654090Z-549422-1562@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:What Do *You* Think? Women\, Patients of Color Warning About 'Medi cal Gaslighting' DTSTART;VALUE=DATE:20220511 DTEND;VALUE=DATE:20220512 RRULE:FREQ=MONTHLY;UNTIL=20300413;BYDAY=2WE DESCRIPTION:One area where the problem of medical gaslighting is a huge iss ue is in the area of autoimmune diseases. So\, we know that almost 80% of autoimmune disease sufferers are women\, and there hasn't been nearly enou gh research into how to diagnose some of these diseases and how to recogni ze their symptoms. And as a result\, a lot of women with autoimmune diseas es say that when they have first gone to doctors\, their symptoms have bee n dismissed\, or doctors have said\, 'It's just anxiety -- maybe you shoul d go on an antidepressant\,' something like that. Express your thoughts at https://cushings.invisionzone.com/topic/56824-what-do-you-think-women-pat ients-of-color-warning-about-medical-gaslighting/ X-ALT-DESC;FMTTYPE=text/html:One area where the problem of medical gasli ghting is a huge issue is in the area of autoimmune diseases. So\, we know that almost 80% of autoimmune disease sufferers are women\, and there has n't been nearly enough research into how to diagnose some of these disease s and how to recognize their symptoms. And as a result\, a lot of women wi th autoimmune diseases say that when they have first gone to doctors\, the ir symptoms have been dismissed\, or doctors have said\, 'It's just anxiet y -- maybe you should go on an antidepressant\,' something like that.
Express your thoughts at \;https://cushings.invisionzone.com/topi c/56824-what-do-you-think-women-patients-of-color-warning-about-medical-ga slighting/
CATEGORIES:Cushings UID:20220413T1507130Z-549422-1550@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210904 SUMMARY:Paediatric patients with Cushing disease and negative pituitary MRI have a higher risk of nonremission after transsphenoidal surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220904;BYMONTHDAY=4 DESCRIPTION:Up to one-third of pediatric and adolescent patients with Cushi ng's Disease do not have a pituitary tumor visualized in MRI. A negative M RI is associated with higher odds of non-remission after surgery\; however \, if remission is achieved\, long-term risk for recurrence is not associa ted with the preoperative MRI findings. Read more at https://cushings.invi sionzone.com/topic/56048-paediatric-patients-with-cushing-disease-and-nega tive-pituitary-mri-have-a-higher-risk-of-nonremission-after-transsphenoida l-surgery/ X-ALT-DESC;FMTTYPE=text/html:Up to one-third of pediatric and adolescent patients with Cushing's Disease do not have a pituitary tumor visualized in MRI. A negative MRI is associated with higher odds of non-remission aft er surgery\; however\, if remission is achieved\, long-term risk for recur rence is not associated with the preoperative MRI findings.
CATEGORIES:News Items UID:20210904T1535310Z-549422-1420@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Sabrina\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300504;BYMONTH=5;BYMONTHDAY=4 DTSTART;VALUE=DATE:20260504 DTEND;VALUE=DATE:20260505 DESCRIPTION:Hii my name is Sabrena and i am only 16 years old\, i realised i had all the symptoms of Cushings disease about a week ago. I started see ing the fact that i am constantly gaining weight\, i went to see my doctor and i told her about it i told her i had all the symptoms of CD and i am constantly gaining weight each day i have stretch marks on my abodmen\, my arms and back too\, my periods dont come for about 3month sometimes more/ or less. https://cushingsbios.com/2026/05/04/sabrena-sabrena-undiagnosed- bio/ X-ALT-DESC;FMTTYPE=text/html:Hii my name is Sabrena and i am only 16 yea rs old\,
i realised i had all the symptoms of Cushings disease abo ut a week ago. I started seeing the fact that i am constantly gaining weig ht\, i went to see my doctor and i told her about it i told her i had all the symptoms of CD and i am constantly gaining weight each day i have stre tch marks on my abodmen\, my arms and back too\, my periods dont come for about 3month sometimes more/ or less.
https://cushingsbios.com/2026/05/04/sabrena-sabrena-undiagnosed-bi o/
CATEGORIES:Cushie Bios UID:20260511T1148120Z-549422-2093@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210321 SUMMARY:Largest-ever analysis of its kind finds Cushing's syndrome triples risk of death RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220321;BYMONTHDAY=21 DESCRIPTION:Heart disease and infections rank as top causes of death among those with rare disorder Read more at https://cushings.invisionzone.com/to pic/55577-largest-ever-analysis-of-its-kind-finds-cushings-syndrome-triple s-risk-of-death/ X-ALT-DESC;FMTTYPE=text/html:Heart disease and infections rank as top ca uses of death among those with rare disorder
Read more at \;https://cushings.invisionzone.com/topic/55577-largest-ever-analysis-of- its-kind-finds-cushings-syndrome-triples-risk-of-death/
CATEGORIES:News Items UID:20210321T1540500Z-549422-1339@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210509 SUMMARY:The Mohs Nose RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220509;BYMONTHDAY=9 DESCRIPTION:After I posted Just Nosing Around\, I joined a Facebook group f or Skin Cancer Warriors. I was amazed how supportive they are. I never had any support with Cushing’s or Kidney Cancer pre-op\, so it was really nic e to be on the receiving end for once… Also\, I remembered that I should s tress dose tomorrow! I started packing my bag to include Tylenol and I’ll add extra cortisol\, a bottle of ice water and my iPad tomorrow. Read more at https://maryomedical.com/2021/05/09/the-mohs-nose/ X-ALT-DESC;FMTTYPE=text/html:After I posted Just Nosing Around\, I joine d a Facebook group for Skin Cancer Warriors. I was amazed how supportive t hey are. I never had any support with Cushing&rsquo\;s or Kidney Cancer pr e-op\, so it was really nice to be on the receiving end for once&hellip\;< /p>
Also\, I remembered that I should stress dose tomorrow! I started packing my bag to include Tylenol and I&rsquo\;ll add extra cortisol\, a b ottle of ice water and my iPad tomorrow.
Read more at \;htt ps://maryomedical.com/2021/05/09/the-mohs-nose/
CATEGORIES:Other Medical UID:20210509T0851100Z-549422-1374@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220514 SUMMARY:Safety of Long-Term Growth Hormone Treatment Assessed RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250514;BYMONTHDAY=14 DESCRIPTION:A worldwide\, observational study of adults and adolescents wit h growth hormone deficiency (GHD) found long-term GH replacement was safe. These findings were published in the Journal of Clinical Endocrinology & Metabolism. … The most common all-cause adverse events included arthralgia (4.6%)\, peripheral edema (3.9%)\, headache (3.6%)\, influenza (2.8%)\, d epression (2.8%)\, and recurrence of pituitary tumor (2.7%). The most comm on treatment-related adverse events were peripheral edema (3.1%) and arthr algia (2.6%). Read more at https://cushings.invisionzone.com/topic/56901-s afety-of-long-term-growth-hormone-treatment-assessed/ X-ALT-DESC;FMTTYPE=text/html:A worldwide\, observational study of adults and adolescents with growth hormone deficiency (GHD) found long-term GH r eplacement was safe. These findings were published in the \;Journal of Clinical Endocrinology &\; Metabolism.
&hellip\;
The m ost common all-cause adverse events included arthralgia (4.6%)\, periphera l edema (3.9%)\, headache (3.6%)\, influenza (2.8%)\, depression (2.8%)\, and recurrence of pituitary tumor (2.7%). The most common treatment-relate d adverse events were peripheral edema (3.1%) and arthralgia (2.6%).
Read more at \;https://cushings.invisionzone.com/topic/56901-safety-of-long-term-growth- hormone-treatment-assessed/
CATEGORIES:News Items UID:20220514T0824270Z-549422-1566@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:She thought her weight gain was due to giving birth. She learned it was a tumor DTSTART;VALUE=DATE:20210625 DTEND;VALUE=DATE:20210626 RRULE:FREQ=MONTHLY;UNTIL=20220528;BYDAY=-1FR DESCRIPTION:Hemphill sought a second opinion at Cleveland Clinic Weston\, w here more MRIs of her brain\, combined with an Inferior Petrosal Sinus Sam pling (IPSS) procedure\, detected she had a tumor on her pituitary gland. That led her to be diagnosed with Cushing’s Disease — caused by excess cor tisol. Read more at https://cushingsbios.com/2021/05/28/she-thought-her-we ight-gain-was-due-to-giving-birth-she-learned-it-was-a-tumor/ X-ALT-DESC;FMTTYPE=text/html:Hemphill sought a second opinion at Clevela nd Clinic Weston\, where more MRIs of her brain\, combined with an Inferio r Petrosal Sinus Sampling (IPSS) procedure\, detected she had a tumor on h er pituitary gland. That led her to be diagnosed with Cushing&rsquo\;s Dis ease &mdash\; caused by excess cortisol.
Read more at \;https://cush ingsbios.com/2021/05/28/she-thought-her-weight-gain-was-due-to-giving-birt h-she-learned-it-was-a-tumor/
CATEGORIES:Cushie Bios UID:20210528T1328240Z-549422-1387@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220517 SUMMARY:Osilodrostat Resolves Most Physical Signs of Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240517;BYMONTHDAY=17 DESCRIPTION:Not only was central obesity the most common physical manifesta tion associated with hypercortisolism among these Cushing's disease patien ts\, but it was also more frequently rated as severe at baseline. Read mor e at https://cushings.invisionzone.com/topic/56906-osilodrostat-resolves-m ost-physical-signs-of-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Not only was central obesity the most commo n physical manifestation associated with hypercortisolism among these Cush ing's disease patients\, but it was also more frequently rated as severe a t baseline.
Read more at \;https://cushings.invisionzone.com/topic/56906-os ilodrostat-resolves-most-physical-signs-of-cushings-disease/
CATEGORIES:Cushings UID:20220517T0026460Z-549422-1571@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210528 SUMMARY:Slow and Steady With Osilodrostat Best in Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220528;BYMONTHDAY=28 DESCRIPTION:Acting as a potent oral 11-beta-hydroxylase inhibitor\, osilodr ostat was first approved by the FDA in March 2020 for adults with Cushing' s disease who either cannot undergo pituitary gland surgery or have underg one the surgery but still have the disease. The drug is currently availabl e in 1 mg\, 5 mg\, and 10 mg film-coated tablets. Read more at https://cus hings.invisionzone.com/topic/55690-slow-and-steady-with-osilodrostat-best- in-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Acting as a potent oral 11-beta-hydroxylase inhibitor\, osilodrostat was \;first approved by the FDA in March 202 0 \;for adults with Cushing's disease who either cannot undergo pituit ary gland surgery or have undergone the surgery but still have the disease . The drug is currently available in 1 mg\, 5 mg\, and 10 mg film-coated t ablets.
Read more at \;https://cushings.invisionzone.com/topic/55690-slow-and- steady-with-osilodrostat-best-in-cushings-disease/
CATEGORIES:News Items UID:20210528T1256230Z-549422-1386@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251001 SUMMARY:Liver impairment and medical management of Cushing Syndrome and MAC SProvisionally RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20261001;BYMONTHDAY=1 DESCRIPTION:Cushing syndrome (CS) and Mild Autonomous Cortisol Secretion sy ndrome (MACS) are states of endogenous hypercortisolemia\, associated with multiple metabolic complications. https://cushings.invisionzone.com/topic /57887-liver-impairment-and-medical-management-of-cushing-syndrome-and-mac s-provisionally/ X-ALT-DESC;FMTTYPE=text/html:Cushing syndrome (CS) and Mild Autono mous Cortisol Secretion syndrome (MACS) are states of endogenous hypercort isolemia\, associated with multiple metabolic complications.
< p>https://cushings.invisionzone.com/topic/578 87-liver-impairment-and-medical-management-of-cushing-syndrome-and-macs-pr ovisionally/ CATEGORIES:Cushings UID:20251001T0745030Z-549422-1942@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220612 SUMMARY:Carola B (Carola)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250612;BYMONTHDAY=12 DESCRIPTION:On December 26\, 2014 she went to a local urgent care clinic wi th pneumonia\, confirmed by an x-ray\, for which she was treated. Carola received a phone call from the urgent care clinic a few days afterwards ex plaining that the radiologist had seen something unusual that needed furth er examination. After numerous tests her suspected Cushing’s diagnosis w as confirmed. Read more at https://cushingsbios.com/2022/06/12/carola-b-ca rola-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:On December 26\, 2014 she went to a local u rgent care clinic with pneumonia\, confirmed by an x-ray\, for which she w as treated. \;Carola received a phone call from the urgent care clini c a few days afterwards explaining that the radiologist had seen something unusual that needed further examination. \;
After numerous t ests her suspected Cushing&rsquo\;s diagnosis was confirmed.
Read more at \;https://cushingsbios.com/2022/06/12/carola- b-carola-adrenal-bio/
CATEGORIES:Cushie Bios UID:20220612T2219490Z-549422-1581@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20260423 SUMMARY:Summit on Adrenal Insufficiency RRULE:FREQ=DAILY;COUNT=3 DESCRIPTION:Living with adrenal insufficiency—or caring for someone who doe s—requires knowledge\, preparation\, and a strong support network. This ye ar’s conference is designed to bring together patients\, families\, caregi vers\, and medical professionals for a time of learning\, encouragement\, and connection. Through a variety of planned sessions and breakout discuss ions\, attendees will explore the latest medical advances\, practical stra tegies for daily life\, and ways to advocate for better care and understan ding. More info: https://cushings.invisionzone.com/topic/57953-summit-on-a drenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Living with adrenal insufficiency&mdash\;or caring for someone who does&mdash\;requires knowledge\, preparation\, and a strong support network. This year&rsquo\;s conference is designed to br ing together patients\, families\, caregivers\, and medical professionals for a time of learning\, encouragement\, and connection.
Through a variety of planned sessions and breakout discussions\, attendees will exp lore the latest medical advances\, practical strategies for daily life\, a nd ways to advocate for better care and understanding.
More info:& nbsp\;https://cushings.invis ionzone.com/topic/57953-summit-on-adrenal-insufficiency/
CATEGORIES:Events and Meetings UID:20260411T1123570Z-549422-2085@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200731 SUMMARY:Hypercortisolism Quickly Reversed With Oral Tx RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210731;BYMONTHDAY=31 DESCRIPTION:Treatment improved multiple cardiovascular risk and other facto rs in Cushing's disease patients https://cushieblog.com/2020/07/31/treatme nt-improved-multiple-cardiovascular-risk-and-other-factors-in-cushings-dis ease-patients/ X-ALT-DESC;FMTTYPE=text/html:Treatment improved multiple cardiovascular risk and other factors in Cushing's disease patients
CATEGORIES:News Items UID:20200731T1257590Z-549422-1282@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Mary H (Marietta)\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300107;BYMONTH=1;BYMONTHDAY=7 DTSTART;VALUE=DATE:20260107 DTEND;VALUE=DATE:20260108 DESCRIPTION:It all started in late 1974\, when I started having lots of ill nesses and was depressed. I was crying a lot and going back and forth to my doctor\, who treated every illness and gave me anti-depressants. Then t he weight gain started\, ( I was 185 at my highest\, which was usually 115 -120) actually I had been gaining weight\, but by now it was rapid and une ven– only my trunk and face. All through late ’74 and 1975\, I was back an d forth\, even with a dx of pregnant\, (which made evryone happy\, as I w as married Feb 1974. But the mental problems continued\, I was under psyc hiatric care and had 2-3 in-patinet stays of about 2 weeks. Each time\, a fter the observation and evaluation\, I was discharged with no dx. I would also fall asleep at the strangest places and times\, all very suddenly. h ttps://cushingsbios.com/2026/01/06/mary-h-marietta-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:It all started in late 1974\, when I starte d having lots of illnesses and was depressed. \; I was crying a lot an d going back and forth to my doctor\, who \;treated every illness and gave me anti-depressants.
Then the weight gain started\, ( I was 1 85 at my highest\, which was usually 115-120) actually I had been gaining weight\, but by now it was rapid and uneven&ndash\; only my trunk and face .
All through late &rsquo\;74 and 1975\, I was back and forth\, ev en with a dx of pregnant\, \; (which made evryone happy\, as I was mar ried Feb 1974. \; But the mental problems continued\, I was under psyc hiatric care and had 2-3 in-patinet stays of about 2 weeks. \; Each ti me\, after the \;observation and evaluation\, I was discharged with no dx. I would also fall asleep at the strangest places and times\, all very suddenly.
https://cushingsbios.co m/2026/01/06/mary-h-marietta-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260107T1456000Z-549422-2053@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20260107 SUMMARY:Paraneoplastic Cushing's Syndrome Due to ACTH-Secreting Acinic Cell Carcinoma of the Parotid Gland: A Rare Case RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300107;BYMONTHDAY=7 DESCRIPTION:Although acinic cell carcinoma — a cancer of the glands that pr oduce saliva — is usually considered low risk\, it can behave aggressively and cause Cushing’s syndrome\, according to researchers who described suc h a case involving a 58-year-old man in Turkey. They added that if not rec ognized and treated at an early stage\, it can rapidly become life-threate ning. https://cushings.invisionzone.com/topic/57938-paraneoplastic-cushing s-syndrome-due-to-acth-secreting-acinic-cell-carcinoma-of-the-parotid-glan d-a-rare-case/ X-ALT-DESC;FMTTYPE=text/html:Although \;acinic cell carcinoma \;
They added that if not recogni zed and treated at an early stage\, it can rapidly become life-threatening .
https://cushin gs.invisionzone.com/topic/57938-paraneoplastic-cushings-syndrome-due-to-ac th-secreting-acinic-cell-carcinoma-of-the-parotid-gland-a-rare-case/ CATEGORIES:Cushings UID:20260107T1508320Z-549422-2054@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 9: Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300409;BYMONTH=4;BYMONTHDAY=9 DTSTART;VALUE=DATE:20220409 DTEND;VALUE=DATE:20220410 DESCRIPTION:What have you learned about the medical community since you hav e become sick? This one is so easy. I’ve said it a thousand times – you kn ow your own body better than any doctor will. Most doctors have never seen a Cushing’s patient\, few ever will in the future. Read more at https://c ushings-help.com/2025/04/09/day-9-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:
What have you learned about the medical com munity since you have become sick?
This one is so easy. I&rsquo\;v e said it a thousand times &ndash\; you know your own body better than any doctor will. Most doctors have never seen a Cushing&rsquo\;s patient\, fe w ever will in the future.
Read more at \;https://cushings-help.com/2025/04/09/day-9-cushings-aw areness-challenge/
CATEGORIES:Awareness Challenge UID:20250409T1222540Z-549422-1545@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230604 SUMMARY:Catastrophic ACTH-secreting Pheochromocytoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250604;BYMONTHDAY=4 DESCRIPTION:Cushing’s syndrome due to ectopic adrenocorticotropic hormone ( ACTH) secretion (EAS) by a pheochromocytoma is a challenging condition. R ead more at https://cushings.invisionzone.com/topic/57606-catastrophic-act h-secreting-pheochromocytoma/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome due to ecto pic adrenocorticotropic hormone (ACTH) secretion (EAS) by a pheochromocyto ma is a challenging condition. \;
Read more at&nb sp\;https://cus hings.invisionzone.com/topic/57606-catastrophic-acth-secreting-pheochromoc ytoma/
CATEGORIES:Cushings UID:20230604T2105190Z-549422-1647@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190429 SUMMARY:Day 27: Cushing’s Awareness Challenge 2019 DESCRIPTION: I was amazed to make it through the entire weekend with no Adr afinil – sadly\, there’s nowhere to get it anymore. I carried extra corti sol\, just in case. And slept all the way home on the train. Read more at https://cushieblogger.com/2019/04/27/day-27-cushings-awareness-challenge- 2019/ X-ALT-DESC;FMTTYPE=text/html:\;I was amazed to make it through the entire weekend with no Adrafinil &ndash\; sadly\, there&rsquo\;s nowhere t o get it anymore. \;I carried extra cortisol\, just in case. \;A nd slept all the way home on the train.
Read more at \;https://cushieblogger.com/2019/04/27/day-27-cushin gs-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190427T1433410Z-549422-1148@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210604 SUMMARY:Comment added to In Memory of Sherry Carlson ~ May 30\, 2020 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220604;BYMONTHDAY=4 DESCRIPTION:I am so...so sorry that Sherry had to go through all of this pa in. I had surgery to remove a pituitary tumor on February 2\, 2021 and goi ng through the challenging recovery stages of Cushing's Disease but certai nly not like Sherry's. My condolences to her family. Read more at https:// cushingsbios.com/2021/05/30/in-memory-of-sherry-carlson-may-30-2020-2/comm ent-page-1/#comment-58579 X-ALT-DESC;FMTTYPE=text/html:I am so...so sorry that Sherry had to go th rough all of this pain. I had surgery to remove a pituitary tumor on Febru ary 2\, 2021 and going through the challenging recovery stages of Cushing' s Disease but certainly not like Sherry's. My condolences to her family.
Read more at \;https://cushingsbios.com/2021/05/30/in-memory-of-sherry-carlso n-may-30-2020-2/comment-page-1/#comment-58579
CATEGORIES:Cushie Bios UID:20210604T2048240Z-549422-1391@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210605 SUMMARY:Osilodrostat Improves Signs and Symptoms Associated With Cushing Di sease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220605;BYMONTHDAY=5 DESCRIPTION:Osilodrostat therapy was found to be effective in improving blo od pressure parameters\, health-related quality of life\, depression\, and other signs and symptoms in patients with Cushing disease\, regardless of the degree of cortisol control\, according to study results presented at the 30th Annual Scientific and Clinical Congress of the American Associati on of Clinical Endocrinologists (ENVISION 2021). Read more at https://cush ings.invisionzone.com/topic/55707-osilodrostat-improves-signs-and-symptoms -associated-with-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:Osilodrostat therapy was found to be effect ive in improving blood pressure parameters\, health-related quality of lif e\, depression\, and other signs and symptoms in patients with Cushing dis ease\, regardless of the degree of cortisol control\, according to study r esults presented at the 30th Annual Scientific and Clinical Congress of th e American Association of Clinical Endocrinologists (ENVISION 2021).
Read more at \;https://cushings.invisionzone.com/topic/55707-osilodro stat-improves-signs-and-symptoms-associated-with-cushing-disease/
CATEGORIES:News Items UID:20210605T1403100Z-549422-1392@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Prevalence of Nelson’s Syndrome After Bilateral Adrenalectomy in Pa tients with Cushing’s Disease DTSTART;VALUE=DATE:20210703 DTEND;VALUE=DATE:20210704 RRULE:FREQ=MONTHLY;UNTIL=20300605;BYDAY=1SA DESCRIPTION:Bilateral adrenalectomy (BA) still plays an important role in t he management of Cushing's disease (CD). Nelson’s syndrome (NS) is a sever e complication of BA\, but conflicting data on its prevalence and predicti ng factors have been reported. The aim of this study was to determine the prevalence of NS\, and identify factors associated with its development. R ead more at https://cushings.invisionzone.com/topic/55708-prevalence-of-ne lson%E2%80%99s-syndrome-after-bilateral-adrenalectomy-in-patients-with-cus hing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Bilateral adrenalectomy (BA) still plays an important role in the management of Cushing's disease (CD). Nelson&rsquo\ ;s syndrome (NS) is a severe complication of BA\, but conflicting data on its prevalence and predicting factors have been reported. The aim of this study was to determine the prevalence of NS\, and identify factors associa ted with its development.
CATEGORIES:News Items UID:20210605T1454070Z-549422-1393@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211119 SUMMARY:Need Financial Assistance? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301119;BYMONTHDAY=19 DESCRIPTION:Cushing’s Syndrome | Accepting Applications Medical Assistance Co-Pay Assistance Premium Assistance Read more at https://cushings.invisio nzone.com/topic/56273-need-financial-assistance/ X-ALT-DESC;FMTTYPE=text/html:Medical Assistance
Co-Pay Assistance
Premiu
m Assistance
Read more at \;https://c ushings.invisionzone.com/topic/56273-need-financial-assistance/
< /div>Ectopic Cushing&rsquo\;s syndrome due to metastatic neuroendocrine small-cell carcinoma is a rare condition wit h a poor prognosis. The options for treatment are few and not necessarily curative. There needs to be increased awareness of this serious and rare c omplication. Managing the condition can be a challenge and requires a mult idisciplinary team approach to improve outcomes.
CATEGORIES:News Items UID:20221123T1307150Z-549422-1624@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220604 SUMMARY:Altered Hippocampal Volume and Functional Connectivity in Patients with Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240604;BYMONTHDAY=4 DESCRIPTION:Stress-related brain disorders can be associated with glucocort icoid disturbance and hippocampal alteration. However\, it remains largely unknown how cortisol affects the structure and function of hippocampus. C ushing's disease (CD) provides a unique “hyperexpression model” to explore the effects of excessive cortisol on hippocampus as well as the relation between these effects and neuropsychological deficits. Read more at https: //cushings.invisionzone.com/topic/56924-altered-hippocampal-volume-and-fun ctional-connectivity-in-patients-with-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Stress-related brain disorders can be assoc iated with glucocorticoid disturbance and hippocampal alteration. However\ , it remains largely unknown how cortisol affects the structure and functi on of hippocampus. Cushing's disease (CD) provides a unique &ldquo\;hypere xpression model&rdquo\; to explore the effects of excessive cortisol on hi ppocampus as well as the relation between these effects and neuropsycholog ical deficits.
CATEGORIES:News Items UID:20220604T1446080Z-549422-1578@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Research Opportunity! All of Us DTSTART;VALUE=DATE:20211218 DTEND;VALUE=DATE:20211219 RRULE:FREQ=MONTHLY;UNTIL=20241120;BYDAY=3SA DESCRIPTION:I just signed up for this because it may be helpful for researc hers at the NIH and elsewhere to learn more about Cushing's\, cancer\, wha tever else they can learn from my history. Over 35 years ago\, I agreed t o be a part of a study at NIH so they could learn more about Cushing's. I consider this to be a larger\, easier part of what I did back then. Read more at https://cushings.invisionzone.com/topic/56283-research-opportunity -all-of-us/ X-ALT-DESC;FMTTYPE=text/html:I just signed up for this because it may be helpful for researchers at the NIH and elsewhere to learn more about Cush ing's\, cancer\, whatever else they can learn from my history. \;
Over 35 years ago\, I agreed to be a part of a study at NIH so they co uld learn more about Cushing's. \; I consider this to be a larger\, ea sier part of what I did back then.
Read more at \;https://cushings.invisionzone.com/topic/56283-research-o pportunity-all-of-us/
\;
CATEGORIES:Cushings UID:20211120T1944040Z-549422-1463@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220411 SUMMARY:What Insight Does Big Data Offer Into Adrenal Insufficiency? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240411;BYMONTHDAY=11 DESCRIPTION:Although adrenal insufficiency is uncommon\, it is not so infre quent that we never encounter patients who have it. The sometimes-tricky p resentations\, along with the glorious responses to therapy\, provide many endocrinologists with a blend of fascination and professional gratificati on. We think of the condition as a possibility more often than we find the real thing\, doing cosyntropin tests that yield normal results for a vari ety of presentations\, from critical illness to hyponatremia. We inherit p eople with panhypopituitarism and figure it out ourselves when an adult su rvivor of cancer who received central nervous system radiation years ago b egins to gradually underperform. Read more at https://cushings.invisionzon e.com/topic/56800-what-insight-does-big-data-offer-into-adrenal-insufficie ncy/ X-ALT-DESC;FMTTYPE=text/html:Although adrenal insufficiency is uncommon\ , it is not so infrequent that we never encounter patients who have it. Th e sometimes-tricky presentations\, along with the glorious responses to th erapy\, provide many endocrinologists with a blend of fascination and prof essional gratification. We think of the condition as a possibility more of ten than we find the real thing\, doing cosyntropin tests that yield norma l results for a variety of presentations\, from critical illness to hypona tremia. We inherit people with panhypopituitarism and figure it out oursel ves when an adult survivor of cancer who received central nervous system r adiation years ago begins to gradually underperform.
Read more at& nbsp\;https://c ushings.invisionzone.com/topic/56800-what-insight-does-big-data-offer-into -adrenal-insufficiency/
CATEGORIES:Other Medical UID:20220411T0805000Z-549422-1549@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210327 SUMMARY:ENDO 2021 Roundup: COVID-19 Risk With Adrenal Insufficiency\, Cushi ng's Death Risk\, Jatenzo Liver Data\, and More RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220327;BYMONTHDAY=27 DESCRIPTION:Some of the latest research advancements in the field of endocr inology presented at the Endocrine Society's virtual ENDO 2021 meeting. Re ad more at https://cushings.invisionzone.com/topic/55585-endo-2021-roundup -covid-19-risk-with-adrenal-insufficiency-cushings-death-risk-jatenzo-live r-data-and-more/ X-ALT-DESC;FMTTYPE=text/html:Some of the latest research advancements in the field of endocrinology presented at the Endocrine Society's virtual E NDO 2021 meeting.
CATEGORIES:News Items UID:20210327T1612130Z-549422-1346@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Helpful Doctors: Ohio DTSTART;VALUE=DATE:20220514 DTEND;VALUE=DATE:20220515 RRULE:FREQ=MONTHLY;UNTIL=20240409;BYDAY=2SA DESCRIPTION:Many people on the message boards see Dr. Kirschner for adrenal issues. See the short video at https://cushings.invisionzone.com/topic/56 786-helpful-doctors-ohio/ X-ALT-DESC;FMTTYPE=text/html:Many people on the message boards see Dr. K irschner for adrenal issues.
See the \;short video at \;https://cushings.invisionzone.com/topic/56786-helpful-do ctors-ohio/
CATEGORIES:Cushings UID:20220409T1340380Z-549422-1547@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220409 SUMMARY:New Testimonial From Facebook RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300409;BYMONTHDAY=9 DESCRIPTION:…for Mary Kelly O'Connor and her diligence in creating a suppor t group website that many of us feel was literally a lifesaver. Read mor e at https://cushieblogger.com/testimonial/facebook/ X-ALT-DESC;FMTTYPE=text/html:&hellip\;for Mary Kelly O'Connor and her di ligence in creating a support group website that many of us feel was liter ally a lifesaver.
\;
Read more at \;https://cushi eblogger.com/testimonial/facebook/
CATEGORIES:Cushings UID:20220409T1242180Z-549422-1544@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220608 SUMMARY:Cushie MemberMap DESCRIPTION:Add your own info (or your doctor's) to the Cushie MemberMap at https://cushieblogger.com/2018/11/17/rebuilding-the-membermap/ X-ALT-DESC;FMTTYPE=text/html:Add your own info (or your doctor's) to the Cushie MemberMap at \;https://cushieblogger.com/2018/1 1/17/rebuilding-the-membermap/
CATEGORIES:Cushie Bios UID:20220627T0951440Z-549422-1589@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211122 SUMMARY:Dynamic And Invasive Testing in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221122;BYMONTHDAY=22 DESCRIPTION:Dynamic testing represents the mainstay in the differential dia gnosis of ACTH-dependent Cushing’s syndrome. However\, in case of undetect able or detectable lesion < 6 mm on MRI\, bilateral inferior petrosal sinu s sampling (BIPSS) is suggested by current guidelines. Aim of this study w as to analyze the performance of CRH\, desmopressin and high-dose dexameth asone suppression test (HDDST) in the differential diagnosis of ACTH-depen dent Cushing’s syndrome as well as the impact of invasive and noninvasive tests on surgical outcome in patients affected by Cushing’s disease (CD) Read more at https://cushings.invisionzone.com/topic/56289-dynamic-and-in vasive-testing-in-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Dynamic testing represents the mainstay in the differential diagnosis of ACTH-dependent Cushing&rsquo\;s syndrome. Ho wever\, in case of undetectable or detectable lesion&thinsp\;<\;&thinsp\ ;6 \;mm on MRI\, bilateral inferior petrosal sinus sampling (BIPSS) is suggested by current guidelines. Aim of this study was to analyze the per formance of CRH\, desmopressin and high-dose dexamethasone suppression tes t (HDDST) in the differential diagnosis of ACTH-dependent Cushing&rsquo\;s syndrome as well as the impact of invasive and noninvasive tests on surgi cal outcome in patients affected by Cushing&rsquo\;s disease (CD)
\;
Read more at \;https://cushings.invisionzone.com/topic/56289-dynamic-an d-invasive-testing-in-cushing%E2%80%99s-disease/
CATEGORIES:News Items UID:20211122T1209340Z-549422-1467@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Memory: Martha\, October 14\, 2008 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301014;BYMONTH=10;BYMONTHDAY=14 DTSTART;VALUE=DATE:20211014 DTEND;VALUE=DATE:20211015 DESCRIPTION:Upon getting the pre-op work ready for her IPSS\, Martha had an other abnormal EKG and she was sent for a chemically induced stress test. During the stress test\, she said she became very\, very sleepy and the nu rse asked if she was ok. A few days after the test she became very dizzy a nd briefly passed out in the kitchen but refused to go to the hospital. Sh e was so tired of being poked\, prodded and not getting anywhere with any answers. On October 14\, 2008\, the day before she was to get the results of the EKG\, Martha died. Read more at https://cushingsbios.com/2021/10/14 /in-memory-martha-october-14-2008/ X-ALT-DESC;FMTTYPE=text/html:Upon getting the pre-op work ready for her IPSS\, Martha had another abnormal EKG and she was sent for a chemically i nduced stress test. During the stress test\, she said she became very\, ve ry sleepy and the nurse asked if she was ok. A few days after the test she became very dizzy and briefly passed out in the kitchen but refused to go to the hospital. She was so tired of being poked\, prodded and not gettin g anywhere with any answers.
On October 14\, 2008\, the day before she was to get the results of the EKG\, Martha died.
Read more at \;https://cushingsbios.com/2021/10/14/in-memory -martha-october-14-2008/
CATEGORIES:In Memory UID:20211014T0625370Z-549422-1435@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220611 SUMMARY:Medications which are sometimes used to treat Cushing's RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250611;BYMONTHDAY=11 DESCRIPTION:Medications which are sometimes used to treat Cushing's Read mo re at https://cushings.invisionzone.com/topic/56925-medications-used-to-tr eat-cushing%E2%80%99s/ X-ALT-DESC;FMTTYPE=text/html:Medications which are sometimes used to tre at Cushing's
Read more at \;https://cushings.invisionzone.com/topic/56925-medications-used-to -treat-cushing%E2%80%99s/
CATEGORIES:Cushings UID:20220611T2049450Z-549422-1579@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:VIDEO: New Cushing’s\, Acromegaly Drug Data Prominent at ENDO Annua l Meeting DTSTART;VALUE=DATE:20220710 DTEND;VALUE=DATE:20220711 RRULE:FREQ=MONTHLY;UNTIL=20240612;BYDAY=2SU DESCRIPTION:In this video exclusive\, Maria Fleseriu\, MD\, FACE\, reviews the pituitary research presented at the annual meeting of the Endocrine So ciety in Atlanta. Among the hottest pituitary topics at the meeting\, acco rding to Fleseriu\, were dilemmas in pituitary tumors and data for new dru gs for Cushing’s syndrome. Read more at https://cushings.invisionzone.com/ topic/56942-video-new-cushing%E2%80%99s-acromegaly-drug-data-prominent-at- endo-annual-meeting/ X-ALT-DESC;FMTTYPE=text/html:In this video exclusive\, \;Maria Flese riu\, MD\, FACE\, reviews the pituitary research presented at the annual m eeting of the Endocrine Society in Atlanta.
Among the hottest pitu itary topics at the meeting\, according to Fleseriu\, were dilemmas in pit uitary tumors and data for new drugs for Cushing&rsquo\;s syndrome.
< p>Read more at \;https://cushings.invisionzone.com/topic/56942- video-new-cushing%E2%80%99s-acromegaly-drug-data-prominent-at-endo-annual- meeting/ CATEGORIES:News Items UID:20220612T2305370Z-549422-1582@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220612 SUMMARY:Cushing’s Syndrome With Acute Psychosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240612;BYMONTHDAY=12 DESCRIPTION:A 22-year-old woman with a three-month history of an increase i n appetite\, binge eating\, and weight gain. After two weeks of her initia l symptoms\, she started to have grandiose and persecutory delusions\, aud itory hallucinations\, decreased need for sleep\, agitation\, irritability \, and aggression Read more at https://cushings.invisionzone.com/topic/569 39-cushing%E2%80%99s-syndrome-with-acute-psychosis/ X-ALT-DESC;FMTTYPE=text/html:A 22-year-old woman with a three-month \;history \;of an increase in appetite\, binge eating\, and weight gai n. After two weeks of her initial symptoms\, she started to have grandiose and persecutory delusions\, auditory hallucinations\, decreased need for sleep\, agitation\, irritability\, and aggression
Read more at&nbs p\;https://cushings.invisio nzone.com/topic/56939-cushing%E2%80%99s-syndrome-with-acute-psychosis/
CATEGORIES:News Items UID:20220612T1946470Z-549422-1580@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220613 SUMMARY:Need Help Paying for your Meds? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300613;BYMONTHDAY=13 DESCRIPTION:Since 1987\, NORD has provided assistance programs to help pati ents obtain life-saving or life-sustaining medication they could not other wise afford. These programs provide medication\, financial assistance with insurance premiums and co-pays\, diagnostic testing assistance\, and trav el assistance for clinical trials or consultation with disease specialists . Read more at https://cushings.invisionzone.com/topic/56948-need-help-pay ing-for-your-meds/ X-ALT-DESC;FMTTYPE=text/html:Since 1987\, NORD has provided \;assist ance programs to help patients obtain life-saving or life-sustaining medic ation they could not otherwise afford. These programs provide medication\, financial assistance with insurance premiums and co-pays\, diagnostic tes ting assistance\, and travel assistance for clinical trials or consultatio n with disease specialists.
Read more at \;https://cushings.invisionzone.com/topic/56948-need-help-paying- for-your-meds/
CATEGORIES:Cushings UID:20220613T2331000Z-549422-1583@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190109 SUMMARY:Comment added to Nicole\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200109;BYMONTHDAY=9 DESCRIPTION:Your case is every similar to mine. I wasn’t a dancer but I did play multiple sports in high school and played college basketball. I saw doctor Yuen at Swedish as well and many more doctors as well. I have never got my case or my symptoms solved. Over 4 years of doctors and testing. T hey found I had a pituitary tumor and mildly high cortisol in my 24 hour U rine test with high levels of testostine... In the comments at https://cus hingsbios.com/2017/07/13/nicole-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Your case is every similar to mine. I wasn& rsquo\;t a dancer but I did play multiple sports in high school and played college basketball. I saw doctor Yuen at Swedish as well and many more do ctors as well. I have never got my case or my symptoms solved. Over 4 year s of doctors and testing. They found I had a pituitary tumor and mildly hi gh cortisol in my 24 hour Urine test with high levels of testostine...
In the comments at \;https://cushingsbios.com/2017/07 /13/nicole-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20190110T0029230Z-549422-1061@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 4: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250404;BYMONTH=4;BYMONTHDAY=4 DTSTART;VALUE=DATE:20190404 DTEND;VALUE=DATE:20190405 DESCRIPTION:Give yourself\, your condition\, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus poin ts if you provide a visual! Read more at https://cushieblogger.com/2019/04 /04/day-4-cushings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:Give yourself\, your condition\, or your he alth focus a mascot. Is it a real person? Fictional? Mythical being? Descr ibe them. Bonus points if you provide a visual!
Read more at \ ;https://cushieblogger.com/2019/04/04/day-4- cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190405T1250420Z-549422-1119@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220811 SUMMARY:Can You Help? Blood Pressure RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240811;BYMONTHDAY=11 DESCRIPTION:From my email - I know high blood pressure is quite common with Cushing’s but has anyone who has been diagnosed experienced very low bloo d pressure? Answer this question at https://cushings.invisionzone.com/topi c/57274-low-blood-pressure/ X-ALT-DESC;FMTTYPE=text/html:From my email - \;I know high blo od pressure is quite common with Cushing&rsquo\;s but has anyone who has b een diagnosed experienced very low blood pressure?
An swer this question at \;https://cushi ngs.invisionzone.com/topic/57274-low-blood-pressure/
CATEGORIES:Cushings UID:20220811T1139550Z-549422-1601@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211020 SUMMARY:Helpful Doctors: Wisconsin RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301020;BYMONTHDAY=20 DESCRIPTION:“My absolute favorite MD. Dr. Maas gets to know her patients an d is very thorough. Dr. Maas gave me my life back and I will always love h er for that. If you want a great Endocrinologist\, she’s your best bet.” – Veronica M. Read more at https://cushings.invisionzone.com/topic/56235-he lpful-doctors-wisconsin/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;My absolute favorite MD. Dr. Maas g ets to know her patients and is very thorough. Dr. Maas gave me my life ba ck and I will always love her for that. If you want a great Endocrinologis t\, she&rsquo\;s your best bet.&rdquo\; &ndash\; Veronica M.
Read more at \;https://cushings.invisionzone.com/topic/56235-helpf ul-doctors-wisconsin/
CATEGORIES:Helpful Doctors UID:20211020T1917020Z-549422-1439@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Stefanie\, Pituitary Bio DTSTART;VALUE=DATE:20190209 DTEND;VALUE=DATE:20190210 RRULE:FREQ=MONTHLY;UNTIL=20200112;BYDAY=2SA DESCRIPTION:I was also diagnosed in 2012 and has surgery in 2013. I continu e on meds and have many health issues still. I haven’t had a full recovery and dramatic weight loss or anything. I’m now starting to regret surgery as it has left me very limited in what I can do. I was far more mobile bef ore. I miss my life. I’ve lost everything since having surgery!.. Read mor e in the comments area of https://cushingsbios.com/2019/01/11/stefanie-pi tuitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I was also diagnosed in 2012 and has surger y in 2013. I continue on meds and have many health issues still. I haven&r squo\;t had a full recovery and dramatic weight loss or anything. I&rsquo\ ;m now starting to regret surgery as it has left me very limited in what I can do. I was far more mobile before. I miss my life. I&rsquo\;ve lost ev erything since having surgery!..
Read more in the comments area of \; \;https://cushingsbios.com/2019/01/11/stefanie-pit uitary-bio/
CATEGORIES:Cushie Bios UID:20190113T0234450Z-549422-1068@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Call 911! Adrenal Crisis\, Addison's/Adrenal Insufficiency DTSTART;VALUE=DATE:20211106 DTEND;VALUE=DATE:20211108 RRULE:FREQ=WEEKLY;UNTIL=20301023;INTERVAL=2;BYDAY=SA DESCRIPTION:Acute adrenal crisis is a life-threatening state caused by insu fficient levels of cortisol\, which is a hormone produced and released by the adrenal gland. Read more at https://cushings.invisionzone.com/topic/56 238-call-911-adrenal-crisis-addisonsadrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Acute adrenal crisis is a life-threatening state caused by insufficient levels of cortisol\, which is a hormone produ ced and released by the adrenal gland.
Read more at \;https://cushings.invisionzone .com/topic/56238-call-911-adrenal-crisis-addisonsadrenal-insufficiency/
CATEGORIES:Cushings UID:20211023T1446510Z-549422-1441@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20221001 SUMMARY:Clinical Trial: SPI-62 as a Treatment for Adrenocorticotropic Hormo ne-dependent Cushing's Syndrome (RESCUE) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20231001;BYMONTHDAY=1 DESCRIPTION:This is a randomized\, placebo-controlled\, crossover study of SPI-62 in subjects with ACTH-dependent Cushing's syndrome. Subjects will r eceive each of the following 2 treatments for 12 weeks: SPI-62 and matchin g placebo Read more at https://cushings.invisionzone.com/topic/57566-clini cal-trial-spi-62-as-a-treatment-for-adrenocorticotropic-hormone-dependent- cushings-syndrome-rescue/ X-ALT-DESC;FMTTYPE=text/html:This is a randomized\, placebo-contro lled\, crossover study of SPI-62 in subjects with ACTH-dependent Cushing's syndrome. Subjects will receive each of the following 2 treatments for 12 weeks: SPI-62 and matching placebo
CATEGORIES:Cushings UID:20221001T1520080Z-549422-1613@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211120 SUMMARY:Basics: Cushing's Syndrome vs. Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301120;BYMONTHDAY=20 DESCRIPTION:Any condition that causes the adrenal gland to produce excessiv e cortisol results in the disorder Cushing's syndrome. Cushing syndrome is characterized by facial and torso obesity\, high blood pressure\, stretch marks on the belly\, weakness\, osteoporosis\, and facial hair growth in females. Read more at https://cushings.invisionzone.com/topic/56281-basics -cushings-syndrome-vs-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Any condition that causes the adrenal gland to produce excessive cortisol results in the disorder Cushing's syndrome. Cushing syndrome is characterized by facial and torso obesity\, high bloo d pressure\, stretch marks on the belly\, weakness\, osteoporosis\, and fa cial hair growth in females.
Read more at \;https://cushings.invisionzone.com/topic/56281-ba sics-cushings-syndrome-vs-cushings-disease/
CATEGORIES:Cushings UID:20211120T1335360Z-549422-1462@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Neurosurgical treatment of Cushing disease in pediatric patients: c ase series and review of literature. DTSTART;VALUE=DATE:20190110 DTEND;VALUE=DATE:20190111 RRULE:FREQ=MONTHLY;UNTIL=20191213;BYDAY=2TH DESCRIPTION:Transsphenoidal surgery remains the mainstay therapy for CD in pediatric patients as well as adults. It is an effective treatment option with low rate of complications. Both endoscopic and microscopic approaches provide safe access to sella and satisfactory surgical results. Read more at https://cushieblog.com/2018/12/13/neurosurgical-treatment-of-cushing-d isease-in-pediatric-patients-case-series-and-review-of-literature/ X-ALT-DESC;FMTTYPE=text/html:Transsphenoidal surgery remains the mainsta y therapy for CD in pediatric patients as well as adults. It is an effecti ve treatment option with low rate of complications. Both endoscopic and mi croscopic approaches provide safe access to sella and satisfactory surgica l results.
CATEGORIES:News Items UID:20181213T1005510Z-549422-1046@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190114 SUMMARY:New Cushie added to the Cushing's MemberMap. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190614;BYMONTHDAY=14 DESCRIPTION:Holly W is from Harper\, TX She is not yet diagnosed with Cush ing's. See the entire map at https://goo.gl/EKpyqr X-ALT-DESC;FMTTYPE=text/html:Holly W is from Harper\, TX \;She is n ot yet diagnosed with Cushing's.
See the entire map at \;https://goo.gl/EKpyqr
CATEGORIES:Cushie Bios UID:20190114T1743350Z-549422-1069@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220601 SUMMARY:Basics: What Causes Abnormal Cortisol Levels? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300601;BYMONTHDAY=1 DESCRIPTION:“In general\, cortisol levels tend to peak in the late morning and gradually decline throughout the day\,” he explains. “When a stressful event occurs\, the increased cortisol will work alongside our ‘fight or f light’ mechanisms to either upregulate or downregulate bodily functions. [ Affected systems include] the central nervous system\, cardiovascular syst em\, gastrointestinal system\, or immune system.” Read more at https://cus hings.invisionzone.com/topic/57552-basics-what-causes-abnormal-cortisol-le vels/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;In general\, cortisol levels tend to peak in the late morning and gradually decline throughout the day\ ,&rdquo\; he explains. &ldquo\;When a stressful event occurs\, the increas ed cortisol will work alongside our &lsquo\;fight or flight&rsquo\; mechan isms to either upregulate or downregulate bodily functions. [Affected syst ems include] the central nervous system\, cardiovascular system\, gastroin testinal system\, or immune system.&rdquo\;
Read more at \;https: //cushings.invisionzone.com/topic/57552-basics-what-causes-abnormal-cortis ol-levels/
CATEGORIES:Cushings UID:20220910T0809570Z-549422-1606@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181228 SUMMARY:Vision Loss The First Sign Of Adrenal Tumour In 42-Year-Old Patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191228;BYMONTHDAY=28 DESCRIPTION:A 42-year-old woman who presented to hospital with acute vision loss in her right eye was diagnosed with a benign tumour in her adrenal g land. Read more at https://cushieblog.com/2018/12/28/vision-loss-the-first -sign-of-adrenal-tumour-in-42-year-old-patient/ X-ALT-DESC;FMTTYPE=text/html:A 42-year-old woman who presented to hospit al with acute vision loss in her right eye was diagnosed with a benign tum our in her adrenal gland.
Read more at \;https://cushieblog.com/2018/12/28/vision -loss-the-first-sign-of-adrenal-tumour-in-42-year-old-patient/
CATEGORIES:News Items UID:20181228T1548270Z-549422-1052@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210227 SUMMARY:Cushing Syndrome and COVID-19 RRULE:FREQ=DAILY;COUNT=6 EXDATE;VALUE=DATE:20210228 DESCRIPTION:A Zoom call to discuss Cushing's Syndrome and COVID-19 Read mor e at https://cushings.invisionzone.com/topic/55544-cushing-syndrome-and-co vid-19/ X-ALT-DESC;FMTTYPE=text/html:A Zoom call to discuss Cushing's Syndrome a nd COVID-19
Read more at \;https: //cushings.invisionzone.com/topic/55544-cushing-syndrome-and-covid-19/
CATEGORIES:Cushings UID:20210227T0922320Z-549422-1322@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY: Denise H (deekay)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301004;BYMONTH=10;BYMONTHDAY=4 DTSTART;VALUE=DATE:20251004 DTEND;VALUE=DATE:20251005 DESCRIPTION:I had been having some of the same issues and symptoms as when i first went to doctor that started coming up this is why i asked for blo od test in first place and they are stating with meds and my own levels i am once again overproducing makes sense. However i am not feeling well at all severe muscle pains in knees and feel like i need a crane to get out of bed from being so stiff everyday. https://cushingsbios.com/2025/10/04/d enise-h-deekay-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I had been having some of the same issues a nd symptoms as when i first went to doctor that \;started coming up t his is why i asked for blood test in first place and they are stating with meds and my own levels i am once again overproducing makes sense. \; However i am not feeling well at all severe muscle pains in knees and feel like i need a crane to get out of bed from being so stiff everyday.
https://cushingsbios.com/2025/10/04/d enise-h-deekay-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251004T1933360Z-549422-1950@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Alma (Diane)\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301003;BYMONTH=10;BYMONTHDAY=3 DTSTART;VALUE=DATE:20251003 DTEND;VALUE=DATE:20251004 DESCRIPTION:I have been diagnosed with Subclinical Cushings Disease. Also\, included in that diagnose is rare form of cushings\; Amiah macnodular ind ependent hyperplasia? https://cushingsbios.com/2025/10/02/alma-diane-adren al-bio/ X-ALT-DESC;FMTTYPE=text/html:I have been diagnosed with Subclinical Cush ings Disease.
Also\, included in that diagnose is rare form of cus hings\; Amiah macnodular independent hyperplasia?
https://cushingsbios.com/2025/10/02/alma-diane-adrenal-bio/
CATEGORIES:Cushie Bios UID:20251004T1941050Z-549422-1949@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Shannon\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301004;BYMONTH=9;BYMONTHDAY=30 DTSTART;VALUE=DATE:20250930 DTEND;VALUE=DATE:20251001 DESCRIPTION:In the past year alone I’ve seen 5 doctors who couldn’t tell me the time. They made me feel like I was crazy. Even when I got double visi on in my right eye and had to wear an eye patch for 3 months. No one could figure out why. I still have vision disturbances but after two med packs of steriods the double vision went away. https://cushingsbios.com/2025/09 /30/shannon-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:In the past year alone I&rsquo\;ve seen 5 d octors who couldn&rsquo\;t tell me the time. They made me feel like I was crazy. Even when I got double vision in my right eye and had to wear an ey e patch for 3 months. No one could figure out why. \;I still have vis ion disturbances but after two med packs of steriods the double vision wen t away.
https://cushingsbios.com/2025/09 /30/shannon-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251004T1935460Z-549422-1947@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Margaret S (Maggierose)\, Possible Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301002;BYMONTH=10;BYMONTHDAY=2 DTSTART;VALUE=DATE:20251002 DTEND;VALUE=DATE:20251003 DESCRIPTION:I had very\, very thick hair and it’s now extremely thin. I hav e a type of rash on my face which has got worse over the years. It seems l ike my legs and arms are much thinner than they used to be but my abdomen is getting larger\, mainly my upper abdomen. I don’t have any stria but ha ve similar marks on my legs especially around my knees. My skin marks easi ly. I also seem to have a small buffalo hump on my back. Seem to have brai n fog but usually put that down to age. Feel tired all the time. https://c ushingsbios.com/2025/10/01/margaret-s-maggierose-possible-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I had very\, very thick hair and it&rsquo\; s now extremely thin. I have a type of rash on my face which has got worse over the years. It seems like my legs and arms are much thinner than they used to be but my abdomen is getting larger\, mainly my upper abdomen. I don&rsquo\;t have any stria but have similar marks on my legs especially a round my knees. My skin marks easily. I also seem to have a small buffalo hump on my back. Seem to have brain fog but usually put that down to age. Feel tired all the time.
https://cushingsbios.com/2025/10/01/margaret-s-maggierose-possible-a drenal-bio/
CATEGORIES:Cushie Bios UID:20251004T1925140Z-549422-1948@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251004 SUMMARY:A Preliminary Model to Tailor Osilodrostat In Patients With Adrenoc orticotropic Hormone (ACTH)-Sependent Cushing's syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20271004;BYMONTHDAY=4 DESCRIPTION:Over the past 10 years\, osilodrostat has become one of the mos t commonly used steroidogenesis inhibitors in patients with Cushing's synd rome. The starting dose is usually determined based on the product charact eristics\, the prescriber's experience\, and cortisol levels. https://cush ings.invisionzone.com/topic/57890-a-preliminary-model-to-tailor-osilodrost at-in-patients-with-adrenocorticotropic-hormone-acth-dependent-cushings-sy ndrome/ X-ALT-DESC;FMTTYPE=text/html:Over the past 10 years\, osilodrostat has b ecome one of the most commonly used steroidogenesis inhibitors in patients with Cushing's syndrome. The starting dose is usually determined based on the product characteristics\, the prescriber's experience\, and cortisol levels.
CATEGORIES:Cushings UID:20251004T1903350Z-549422-1946@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251004 SUMMARY:Adrenal Insufficiency Common After Adrenalectomy for Mild Autonomou s Cortisol Secretion RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301004;BYMONTHDAY=4 DESCRIPTION:More than half of adults who underwent a unilateral adrenalecto my to treat mild autonomous cortisol secretion developed adrenal insuffici ency\, https://cushings.invisionzone.com/topic/57891-adrenal-insufficienc y-common-after-adrenalectomy-for-mild-autonomous-cortisol-secretion/ X-ALT-DESC;FMTTYPE=text/html:More than half of adults who underwent a un ilateral adrenalectomy to treat mild autonomous cortisol secretion develop ed adrenal insufficiency\, \;
CATEGORIES:Cushings UID:20251004T1902170Z-549422-1945@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:CDC Expands Eligibility for COVID-19 Booster Shots DTSTART;VALUE=DATE:20211101 DTEND;VALUE=DATE:20211102 RRULE:FREQ=WEEKLY;UNTIL=20221025;INTERVAL=2;BYDAY=MO DESCRIPTION:For individuals who received a Pfizer-BioNTech or Moderna COVID -19 vaccine\, the following groups are eligible for a booster shot at 6 mo nths or more after their initial series: 65 years and older Age 18+ who li ve in long-term care settings Age 18+ who have underlying medical conditio ns Age 18+ who work or live in high-risk settings Read more at https://cus hings.invisionzone.com/topic/56239-cdc-expands-eligibility-for-covid-19-bo oster-shots/ X-ALT-DESC;FMTTYPE=text/html:For individuals who received a Pfizer-BioNT ech or Moderna COVID-19 vaccine\, the following groups are eligible for a booster shot at 6 months or more after their initial series:
Read more at \;https://cushings.invisionzone.com/to pic/56239-cdc-expands-eligibility-for-covid-19-booster-shots/
CATEGORIES:Other Medical UID:20211025T1139460Z-549422-1442@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181215 SUMMARY:Brian R\, MENS Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191215;BYMONTHDAY=15 DESCRIPTION:Brian is from Pendleton\, IN He had thyroid surgery in October 2015 and a second in December 2015. He also has had pituitary surgery. In July 2018 blood tests confirmed his Cushing's is back. Read his bio at https://cushingsbios.com/2018/12/15/brian-r-mens-bio/ X-ALT-DESC;FMTTYPE=text/html:Brian is from Pendleton\, IN \;He had thyroid surgery in October 2015 and a second in December 2015. \;He a lso has had pituitary surgery. \;In July 2018 blood tests confirmed h is Cushing's is back.
Read his bio at \;https://cushings bios.com/2018/12/15/brian-r-mens-bio/
CATEGORIES:Cushie Bios UID:20181215T1837400Z-549422-1049@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Ashley D\, Possible Familial Cushing's Bio DTSTART;VALUE=DATE:20190119 DTEND;VALUE=DATE:20190120 RRULE:FREQ=MONTHLY;UNTIL=20191215;BYDAY=3SA DESCRIPTION:How are things going now? Read the original bio at https://cush ingsbios.com/2018/02/12/ashley-d-possible-familial-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:How are things going now?
Read the original bio at \;https://cushingsbios.co m/2018/02/12/ashley-d-possible-familial-cushings-bio/
CATEGORIES:Cushie Bios UID:20181215T1822300Z-549422-1048@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210306 SUMMARY:Helpful Neurourgeon: Pennsylvania RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220306;BYMONTHDAY=6 DESCRIPTION:Walter Jean\, MD\, has joined Lehigh Valley Health Network (LVH N) and will serve as Chief of Neurosurgery. Jean is a board-certified neur osurgeon with expertise in complex intracranial surgery. He is known world -wide for his expertise in complex brain surgery. With nearly 20 years’ ex perience in both open and endoscopic skull base surgery\, Jean has several clinical interests including acoustic neuromas\, pituitary adenomas\, sku ll base meningioma\, intraventricular tumors\, and trigeminal neuralgia. H is acclaimed textbook\, “Skull Base Surgery: Strategies\,” is used by neur osurgeons across the globe to learn about open and endoscopic skull base s urgery. Read more at https://cushings.invisionzone.com/topic/55562-helpful -neurosurgeon-pennsylvania/?tab=comments#comment-475814 X-ALT-DESC;FMTTYPE=text/html:Walter Jean\, MD\, has joined&n bsp\;Lehigh Vall ey Health Network (LVHN) \;and will serve as Chief of Neurosurgery .
Jean is a board-certified neurosurgeon with expertise in complex intracranial surgery. He is known world-wide for his expertise in complex brain surgery. With nearly 20 years&rsquo\; experience in both open and e ndoscopic skull base surgery\, Jean has several clinical interests includi ng acoustic neuromas\, pituitary adenomas\, skull base meningioma\, intrav entricular tumors\, and trigeminal neuralgia. His acclaimed textbook\, &ld quo\;Skull Base Surgery: Strategies\,&rdquo\; is used by neurosurgeons acr oss the globe to learn about open and endoscopic skull base surgery.
Read more at \;https://cushings.invisionzone.com/topic/55562-helpful-neurosurgeo n-pennsylvania/?tab=comments#comment-475814
CATEGORIES:Helpful Doctors UID:20210306T1811290Z-549422-1329@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220310 SUMMARY:Covid-19 and Cushing’s Disease in a Patient with ACTH-secreting Pit uitary Carcinoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240310;BYMONTHDAY=10 DESCRIPTION:We describe the case of a patient with severe COVID-19 infectio n with active Cushing’s disease due to pituitary carcinoma\, who was treat ed with high-dose dexamethasone followed by ‘block-replacement’ therapy wi th hydrocortisone in combination with off-label use of ketoconazole as a s teroidogenesis inhibitor. His hospitalization was prolonged by multiple re admissions to the ICU for infectious causes. Our case illustrates the pres ence of multiple comorbidities for a severe and complicated course of COVI D-19 in a patient with active Cushing’s disease. Read more at https://cush ings.invisionzone.com/topic/56658-covid-19-and-cushing%E2%80%99s-disease-i n-a-patient-with-acth-secreting-pituitary-carcinoma/ X-ALT-DESC;FMTTYPE=text/html:We describe the case of a patient with seve re COVID-19 infection with active Cushing&rsquo\;s disease due to pituitar y carcinoma\, who was treated with high-dose dexamethasone followed by &ls quo\;block-replacement&rsquo\; therapy with hydrocortisone in combination with off-label use of ketoconazole as a steroidogenesis inhibitor. His hos pitalization was prolonged by multiple readmissions to the ICU for infecti ous causes. Our case illustrates the presence of multiple comorbidities fo r a severe and complicated course of COVID-19 in a patient with active Cus hing&rsquo\;s disease.
CATEGORIES:Cushings UID:20220310T1102480Z-549422-1526@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211109 SUMMARY:Cushing’s Syndrome: A Tale of Frequent Misdiagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301109;BYMONTHDAY=9 DESCRIPTION:Cushing’s syndrome is considered rare\, but that may be because it is under-reported. As a result\, we don’t have good estimates for how many people have it\, which is why the estimates for the actual number of cases vary so much–from 5 to 28 million people. The most common age group that Cushing’s affects are those 20 to 50 years old. It is thought that o besity\, type 2 diabetes\, and high blood pressure may increase your risk of developing this syndrome. Read more at https://cushings.invisionzone.co m/topic/56262-cushing%E2%80%99s-syndrome-a-tale-of-frequent-misdiagnosis/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is considered rar e\, but that may be because it is under-reported. As a result\, we don&rsq uo\;t have good estimates for how many people have it\, which is why the e stimates for the actual number of cases vary so much&ndash\;from 5 to 28 m illion people. The most common age group that Cushing&rsquo\;s affects are those 20 to 50 years old. \;It is thought that obesity\, type 2 diab etes\, and high blood pressure may increase your risk of developing this s yndrome.
Read more at \;https://cushings.invisionzone.com/topic/56262-cushing% E2%80%99s-syndrome-a-tale-of-frequent-misdiagnosis/
CATEGORIES:Cushings UID:20211109T1335560Z-549422-1451@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220926 SUMMARY:Recordati scores FDA nod for Cushing's disease med—and Novartis cas toff—Isturisa RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230926;BYMONTHDAY=26 DESCRIPTION:The FDA on Friday approved Recordati's Isturisa (osilodrostat) to treat Cushing's disease—a rare disease in which patients' adrenal gland s produce too much cortisol—in those who have undergone a prior pituitary gland surgery or are not eligible for one. Read more at https://cushings.i nvisionzone.com/topic/57563-recordati-scores-fda-nod-for-cushings-disease- med%E2%80%94and-novartis-castoff%E2%80%94isturisa/ X-ALT-DESC;FMTTYPE=text/html:The FDA on Friday \; approved \;Recordati's Ist urisa (osilodrostat) to treat Cushing's disease&mdash\;a rare disease in w hich patients' adrenal glands produce too much cortisol&mdash\;in those wh o \;have undergone a prior pituitary gland surgery or are not eligible for one.
CATEGORIES:News Items UID:20220926T1402210Z-549422-1611@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211204 SUMMARY:Basics: The Pituitary Gland: Small But Mighty RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301204;BYMONTHDAY=4 DESCRIPTION:“The pituitary is commonly referred to as the ‘master’ gland be cause it does so many important jobs in the body\,” says Karen Frankwich\, MD\, a board-certified endocrinologist at Mission Hospital. “Not only doe s the pituitary make its own hormones\, but it also triggers hormone produ ction in other glands. The pituitary is aided in its job by the hypothalam us. This part of the brain is situated above the pituitary\, and sends mes sages to the gland on when to release or stimulate production of necessary hormones.” Read more at https://cushings.invisionzone.com/topic/56334-the -pituitary-gland-small-but-mighty/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;The pituitary is commonly referred to as the &lsquo\;master&rsquo\; gland because it does so many important j obs in the body\,&rdquo\; says Karen Frankwich\, MD\, a board-certified en docrinologist at Mission Hospital. &ldquo\;Not only does the pituitary mak e its own hormones\, but it also triggers hormone production in other glan ds. The pituitary is aided in its job by the hypothalamus. This part of th e brain is situated above the pituitary\, and sends messages to the gland on when to release or stimulate production of necessary hormones.&rdquo\;< /p>
Read more at \;https://cushings.invisionzone.com/topic/56334-the-pituitary-gland-smal l-but-mighty/
CATEGORIES:Cushings UID:20230904T2150530Z-549422-1475@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Jessica and Justin\, Siblings In the Media DTSTART;VALUE=DATE:20190126 DTEND;VALUE=DATE:20190127 RRULE:FREQ=MONTHLY;UNTIL=20191229;BYDAY=-1SA DESCRIPTION:In the media: Jessica and Justin\, siblings who both had pituit ary tumors. Read more at https://cushingsbios.com/2018/12/29/jessica-and- justin-siblings-in-the-media/ X-ALT-DESC;FMTTYPE=text/html:In the media: Jessica and Justin\, siblings who both had pituitary tumors. \;
Read more at \;https://cushingsbios.com/2018/12/29/jessica-and-just in-siblings-in-the-media/
CATEGORIES:Cushie Bios UID:20181229T2303010Z-549422-1054@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Register for Rare Disease Week DTSTART;VALUE=DATE:20211206 DTEND;VALUE=DATE:20211207 RRULE:FREQ=WEEKLY;UNTIL=20220302;BYDAY=MO DESCRIPTION:We are thrilled to invite you to join us and hundreds of others virtually for Rare Disease Week on Capitol Hill from February 22nd to Mar ch 2nd\, for a week that can change your life. In 2022 advocates will once again have the opportunity to participate in the Points for Advocacy Scav enger Hunt and the EveryLife Foundation will award a total of $100\,000 to the top-50 point earners' rare disease non-profit organization of choice! Over the last 11 years\, thousands of rare disease patients\, family memb ers\, friends\, and health care providers have joined together to give rar e disease patients a voice on Capitol Hill. Meeting virtually during the p andemic has not slowed us down but has reenergized many of us on the impor tance of our advocacy work. Read more at https://cushings.invisionzone.com /topic/56347-register-for-rare-disease-week/ X-ALT-DESC;FMTTYPE=text/html:We are thrilled to invite you to join us an d hundreds of others virtually for Rare Disease Week on Capitol Hill from February 22nd \;to March 2nd\, for a week that can change your life. I n 2022 advocates will once again have the opportunity to participate in th e Points for Advocacy Scavenger Hunt and the EveryLife Foundation will awa rd a \;total of $100\,000 to the top-50 point earners' rare disease no n-profit organization of choice!
Over the last 11 years\, thousand s of rare disease patients\, family members\, friends\, and health care pr oviders have joined together to give rare disease patients a voice on Capi tol Hill. Meeting virtually during the pandemic has not slowed us down but has reenergized many of us on the importance of our advocacy work.
< p>Read more at \;https://cushings.invisi onzone.com/topic/56347-register-for-rare-disease-week/ CATEGORIES:Events and Meetings UID:20211206T2239460Z-549422-1478@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190116 SUMMARY:Comment added to Stefanie\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190616;BYMONTHDAY=16 DESCRIPTION:...Diagnosed in & had surgery in 2010\, have been in remission since. Life has been somewhat of a struggle\, but great improvements every day. In the comments area of https://cushingsbios.com/2019/01/11/stefanie- pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:...Diagnosed in &\; had surgery in 2010\ , have been in remission since. Life has been somewhat of a struggle\, but great improvements everyday.
In the comments area of \;https://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190116T2335030Z-549422-1070@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211214 SUMMARY:Topical Corticosteroid-Induced Iatrogenic Cushing Syndrome in an In fant RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221214;BYMONTHDAY=14 DESCRIPTION:A 4-month-old female infant presented with an insidious onset o f face puffiness that progressed over a 2-month period. The mother reporte d to have used a cream containing Betamethasone corticosteroid 5–8 times a day for a duration of 3 months to treat diaper dermatitis. Read more at h ttps://cushings.invisionzone.com/topic/56367-topical-corticosteroid-induce d-iatrogenic-cushing-syndrome-in-an-infant/ X-ALT-DESC;FMTTYPE=text/html:A 4-month-old female infant presented with an insidious onset of face puffiness that progressed over a 2-month period . The mother reported to have used a cream containing \;Betamethasone& nbsp\;corticosteroid 5&ndash\;8 times a day for a duration of 3 months to treat \;diaper dermatitis.
Read more at \;https://cus hings.invisionzone.com/topic/56367-topical-corticosteroid-induced-iatrogen ic-cushing-syndrome-in-an-infant/
CATEGORIES:Cushings UID:20211214T1000010Z-549422-1482@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Cushing's Basics: The Endocrine System DTSTART;VALUE=DATE:20211211 DTEND;VALUE=DATE:20211212 RRULE:FREQ=MONTHLY;UNTIL=20301113;BYDAY=2SA DESCRIPTION:The endocrine system is a complex network of glands and organs. It uses hormones to control and coordinate your body's metabolism\, energ y level\, reproduction\, growth and development\, and response to injury\, stress\, and mood. The following are integral parts of the endocrine syst em.. Read more at https://cushings.invisionzone.com/topic/56271-the-endocr ine-system/ X-ALT-DESC;FMTTYPE=text/html:The endocrine system is a complex network o f glands and organs. It uses hormones to control and coordinate your body' s metabolism\, energy level\, reproduction\, growth and development\, and response to injury\, stress\, and mood. The following are integral parts o f the endocrine system..
Read more at \;ht tps://cushings.invisionzone.com/topic/56271-the-endocrine-system/
CATEGORIES:Cushings UID:20211113T1216100Z-549422-1455@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220627 SUMMARY:Kim Jones (KimVJ)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240627;BYMONTHDAY=27 DESCRIPTION:Kim is from Wisconsin. She was recently diagnosed with Cushing ’s after about three years of testing. This is in addition to a diagnosis of Lipedema a little over a year ago. Read more at https://cushingsbios.c om/2022/06/27/kim-jones-kimvj-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Kim is from Wisconsin. \;She was recen tly diagnosed with Cushing&rsquo\;s after about three years of testing. &n bsp\;This is in addition to a diagnosis of Lipedema a little over a year a go.
Read more at \;https://cushingsbios.com /2022/06/27/kim-jones-kimvj-pituitary-bio/
CATEGORIES:Cushie Bios UID:20220627T0944500Z-549422-1588@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211113 SUMMARY:Paraneoplastic Cushing Syndrome in Gastrointestinal Neuroendocrine Tumour RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221113;BYMONTHDAY=13 DESCRIPTION:A 50-year-old man was admitted for an intestinal obstruction ca used by a tumour of the intestine. Paraneoplastic Cushing syndrome was dia gnosed more than a year later following the appearance of cushingoid sympt oms\, despite stable disease according to RECIST criteria but chromogranin A increase. Ketoconazole and sandostatin medical treatment and liver chem oembolization never managed to control the hypercortisolism unlike the bil ateral adrenalectomy. The identification and effective management of this uncommon statement of ectopic ACTH secretion is important to improve the p atient’s prognosis and quality of life. Read more at https://cushings.invi sionzone.com/topic/56270-paraneoplastic-cushing-syndrome-in-gastrointestin al-neuroendocrine-tumour/ X-ALT-DESC;FMTTYPE=text/html:A 50-year-old man was admitted for an intes tinal obstruction caused by a tumour of the intestine. Paraneoplastic Cush ing syndrome was diagnosed more than a year later following the appearance of cushingoid symptoms\, despite stable disease according to RECIST crite ria but chromogranin A increase.
Ketoconazole and sandostatin medi cal treatment and liver chemoembolization never managed to control the hyp ercortisolism unlike the bilateral adrenalectomy.
The identificati on and effective management of this uncommon statement of ectopic ACTH sec retion is important to improve the patient&rsquo\;s prognosis and quality of life.
Read more at \;https://cushings.invisionzone.com/topic /56270-paraneoplastic-cushing-syndrome-in-gastrointestinal-neuroendocrine- tumour/
CATEGORIES:Cushings UID:20211113T1157240Z-549422-1454@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181030 SUMMARY:All Types of Cushing's are NOT the Same DESCRIPTION: In the words of our dear friend and advocate\, Robin Ess\, 'Th ere are many genetic varieties with quite a few discovered in the past cou ple of years. Plus\, there are several types such as adrenal\, ectopic\, a nd pituitary. And so on'....Amazingly\, some doctors do not realize that t here are different varieties of Cushing's and that the symptoms can come f rom a different source. Read more at http://www.cushings-info.com/index.ph p?title=All_Types_of_Cushing%27s_are_NOT_the_Same X-ALT-DESC;FMTTYPE=text/html: \;In the words of our dear friend and
advocate\, Robin Ess\, 'There are many genetic varieties with quite a few
discovered in the past couple of years. Plus\, there are several types suc
h as adrenal\, ectopic\, and pituitary. And so on'....Amazingly\, some doc
tors do not realize that there are different varieties of Cushing's and th
at the symptoms can come from a different source.
Read more at&
nbsp\;http://www.cushings-info.com/
index.php?title=All_Types_of_Cushing%27s_are_NOT_the_Same
My daughter had hair loss since age of 15At 16 she had a hump at the back of her neck
Age 17 had anxiety\,
negative thoughts and memory loss.
Weight gain\, acanthosis and mens
trual irregularities.
I had shown her to many dermatologists for h air loss. At 16 had shown her to 2 endocrinologists
https://cushingsbios.com/2025/11/14/sahana-sahana-adrenal- bio/
CATEGORIES:Cushie Bios UID:20251116T1356220Z-549422-1986@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181017 SUMMARY:Cushie Car DESCRIPTION:Today\, I'm thankful for my 'Cushie Car'. Since I started atte nding Cushing's events\, I've always tried to rent a PT Cruiser. There's j ust been something about them that I liked. Read more at https://cushieblo gger.com/2018/10/17/cushie-car/ X-ALT-DESC;FMTTYPE=text/html:Today\, I'm thankful for my 'Cushie Car'. & nbsp\;Since I started attending Cushing's events\, I've always tried to re nt a PT Cruiser. There's just been something about them that I liked.
Read more at \;https://cushieblogger.com/2018/10/17/cushie-car/
CATEGORIES:Cushings UID:20181026T2105290Z-549422-1007@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Long-Term Follow-Up of Survivors of Pediatric Cushing Disease DTSTART;VALUE=DATE:20220507 DTEND;VALUE=DATE:20220508 RRULE:FREQ=MONTHLY;UNTIL=20300402;BYDAY=1SA DESCRIPTION:The pituitary gland produces hormones. A tumor in this gland ca n cause it to produce too much of the hormone cortisol. Too much cortisol in the body causes Cushing disease. This disease causes many problems. Som e of these problems might persist after the disease is cured. Read more at https://cushings.invisionzone.com/topic/56742-long-term-follow-up-of-surv ivors-of-pediatric-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:The pituitary gland produces hormones. A tu mor in this gland can cause it to produce too much of the hormone cortisol . Too much cortisol in the body causes Cushing disease. This disease cause s many problems. Some of these problems might persist after the disease is cured.
Read more at \;https://cushings.invisionzone.com/topic/56742-long-t erm-follow-up-of-survivors-of-pediatric-cushing-disease/
CATEGORIES:Cushings UID:20220402T1750510Z-549422-1543@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190427 SUMMARY:New discoveries offer possible Cushing’s disease cure RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200427;BYMONTHDAY=27 DESCRIPTION:Cushing’s disease is fatal without treatment\; the median survi val if uncontrolled is about 4.5 years\, Melmed said. “This truly is a me tabolic\, malignant disorder\,” he said. “The life expectancy today in pat ients who are not controlled is apparently no different from 1930.” Read m ore at https://cushieblog.com/2019/04/27/new-discoveries-offer-possible-cu shings-disease-cure/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease is fatal without t reatment\; the median survival if uncontrolled is about 4.5 years\, Melmed said. \;&ldquo\;This truly is a metabolic\, malignant disorder\,&rdq uo\; he said. &ldquo\;The life expectancy today in patients who are not co ntrolled is apparently no different from 1930.&rdquo\;
Read more a t \;https://cushieblog.com/201 9/04/27/new-discoveries-offer-possible-cushings-disease-cure/
CATEGORIES:Cushings UID:20190427T1557530Z-549422-1150@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220121 SUMMARY:Deva\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250120;BYMONTHDAY=21 DESCRIPTION:Deva suffered for 14 years until she read an article in reader' s Digest. She had pituitary surgery. Read more at https://cushingsbios.co m/2022/01/21/deva-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Deva suffered for 14 years until she read a n article in reader's Digest. \;She had pituitary surgery.
Re ad more at \;https://cushingsbios.com/2022/01/21/deva-pituitar y-bio/
CATEGORIES:Cushie Bios UID:20220121T1421020Z-549422-1506@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20221126 SUMMARY:Michelle M\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20251126;BYMONTHDAY=26 DESCRIPTION:Michelle is from Columbia\, MO. She was diagnosed with Cushin g's in 2020 and had pituitary surgery. This year\, it appeared that she h ad PCOS but it turned out to be a recurrence. Read more at https://cushing sbios.com/2022/11/26/michelle-m-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Michelle is from Columbia\, \;MO. &nbs p\;She was diagnosed with Cushing's in 2020 and had pituitary surgery. &nb sp\;This year\, it appeared that she had PCOS but it turned out to be a re currence.
Read more at \;https:// cushingsbios.com/2022/11/26/michelle-m-pituitary-bio/
CATEGORIES:Cushie Bios UID:20221126T1716440Z-549422-1626@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211204 SUMMARY:Final Diagnosis: ACTH-dependent Cushing’s syndrome • ectopic ACTH s yndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221204;BYMONTHDAY=4 DESCRIPTION:This was a challenging condition and requires a multidisciplina ry approach in diagnosis and management\, which can be very difficult in r esource-limited areas. In addition\, a delay in diagnosis and management o ften results in rapid deterioration of clinical status. Read more at https ://cushings.invisionzone.com/topic/56339-final-diagnosis-acth-dependent-cu shing%E2%80%99s-syndrome-%E2%80%A2-ectopic-acth-syndrome/ X-ALT-DESC;FMTTYPE=text/html:This was a challenging condition and requir es a multidisciplinary approach in diagnosis and management\, which can be very difficult in resource-limited areas. In addition\, a delay in diagno sis and management often results in rapid deterioration of clinical status .
CATEGORIES:Cushings UID:20211204T1126200Z-549422-1476@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181123 SUMMARY: Louise\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191123;BYMONTHDAY=23 DESCRIPTION:Louise from Washington She has ACTH independent bilateral adr enal hyperplasia. Read her bio at https://cushingsbios.com/2018/11/23/loui se-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Louise from Washington \; She has ACTH independent bilateral adrenal hyperplasia.
Read her bio at \; https://cushingsbios.com/2018/11/23/louise-adrenal-bio/
CATEGORIES:Cushie Bios UID:20181123T1353380Z-549422-1037@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Miriam\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301121;BYMONTH=11;BYMONTHDAY=21 DTSTART;VALUE=DATE:20251121 DTEND;VALUE=DATE:20251122 DESCRIPTION:What do you think? Does it sound like I have cushings? If so\, how should I proceed? Remeber\, I am completely alone in this\, I have lim ited resources and money\, and I am timid and terrible at standing up for myself. I hope that someone here can help\, because I have never felt so a lone and desperate in my life. https://cushingsbios.com/2025/11/21/miriam- undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:What do you think? Does it sound like I have cushings? If so\, how should I proceed? Remeber\, I am completely alone in this\, I have limited resources and money\, and I am timid and te rrible at standing up for myself. I hope that someone here can help\, beca use I have never felt so alone and desperate in my life.
https://cushingsbios.com/2025/11/21/miriam-
undiagnosed-bio/
Weight loss should be considered as a potential benefit of adrenalectomy in patients with mild autonomous corti sol secretion.
CATEGORIES:Cushings UID:20251005T2304340Z-549422-1951@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210130 SUMMARY:Sarah\, Cyclical Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220130;BYMONTHDAY=30 DESCRIPTION:Sarah is 15 from Brazil. Last year her parents started to suspe ct that she had Cushing's and now she is very close to a final diagnosis. Read her bio at https://cushingsbios.com/2021/01/30/sarah-cyclical-cushing s-disease/ X-ALT-DESC;FMTTYPE=text/html:Sarah is 15 from Brazil.
Last year her parents started to suspect that she had Cushing's and now she is very close to a final diagnosis.
Read her bio at \;https://cushingsbios.com/2021/01/30/sarah-cyclical-cushings-disease/< /a>
CATEGORIES:Cushie Bios UID:20210130T2025030Z-549422-1309@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210612 SUMMARY:Can You Help? Testing Soon RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220612;BYMONTHDAY=12 DESCRIPTION:An optimistic person writes: 'I am very interested in learning everything about Cushings. I hope to be tested soon.' Read more at https:/ /cushieblog.com/facebook/comment-page-1/#comment-20661 X-ALT-DESC;FMTTYPE=text/html:An optimistic person writes: 'I am very int erested in learning everything about Cushings. I hope to be tested soon.'< /p>
Read more at \;https://cushieblog.com/facebook/c omment-page-1/#comment-20661
CATEGORIES:Cushings UID:20211016T1103340Z-549422-1397@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 27\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300427;BYMONTH=4;BYMONTHDAY=27 DTSTART;VALUE=DATE:20200427 DTEND;VALUE=DATE:20200428 DESCRIPTION:So\, in my haste to post a 'Sunday post'\, I inadvertently copi ed Day 6. Luckily\, AIU posted something today on Facebook that gave me th e perfect information to share today Read more at https://cushings-help.co m/2025/04/27/day-27-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:So\, in my haste to post a 'Sunday post'\, I inadvertently copied Day 6.
Luckily\, AIU posted something today on Facebook that gave me the perfect information to share today
R ead more at \;https://cushing s-help.com/2025/04/27/day-27-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250428T1525460Z-549422-1253@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210428 SUMMARY:Cushing’s Myths and Facts: Even Though You Are Chronically Ill\, Yo u Should Have The Same Amount Of Energy Every Day… RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220428;BYMONTHDAY=28 DESCRIPTION:Christine Miserandino uses the spoon theory to answer the quest ion\, “What does it feel like to be sick?” The spoons serve as a symbol fo r resources available and energy spent to get through every moment of ever y day. Read more at https://cushieblogger.com/2021/04/28/myth-even-thoug h-you-are-chronically-ill-you-should-have-the-same-amount-of-energy-every- day-2/ X-ALT-DESC;FMTTYPE=text/html:Christine Miserandino uses the spoon theory to answer the question\, &ldquo\;What does it feel like to be sick?&rdquo \; The spoons serve as a symbol for resources available and energy spent t o get through every moment of every day.
\;
Read more at \;https://cushieblogger.com/2021/04/28/myth-even-though -you-are-chronically-ill-you-should-have-the-same-amount-of-energy-every-d ay-2/
CATEGORIES:Cushings UID:20210428T1151370Z-549422-1367@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20260107 SUMMARY:Cushing’s Disease: When Symptoms Are Mistaken for Menopause RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300107;BYMONTHDAY=7 DESCRIPTION:After 8 years of menopause-like symptoms\, a 62 year old patien t discovered she actually had Cushing’s disease. Read about her long journ ey to get a diagnosis and her success in finding her dream-come-true neuro surgeon. https://cushings.invisionzone.com/topic/57939-cushing%E2%80%99s-d isease-when-symptoms-are-mistaken-for-menopause/ X-ALT-DESC;FMTTYPE=text/html:After 8 years of menopause-like symptoms\, a 62 year old patient discovered she actually had Cushing&rsquo\;s disease . Read about her long journey to get a diagnosis and her success in findin g her dream-come-true neurosurgeon.
CATEGORIES:Cushings UID:20260107T2008310Z-549422-2055@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20201017 SUMMARY:Hydrocortisone in Granule Form Effectively Treats Childhood Adrenal Insufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20211017;BYMONTHDAY=17 DESCRIPTION:The researchers concluded that “hydrocortisone granules are an effective treatment for childhood adrenal insufficiency providing the abil ity to accurately prescribe pediatric appropriate doses.” Read more at htt ps://cushieblog.com/2020/10/17/hydrocortisone-in-granule-form-effectively- treats-childhood-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:The researchers concluded that &ldquo\;hydr ocortisone granules are an effective treatment for childhood adrenal insuf ficiency providing the ability to accurately prescribe pediatric appropria te doses.&rdquo\;
Read more at \;https://cushieblog.com/2020/10/17/ hydrocortisone-in-granule-form-effectively-treats-childhood-adrenal-insuff iciency/
CATEGORIES:Cushings UID:20201017T1141430Z-549422-1303@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251031 SUMMARY:Three Cases of Ectopic\, Cyclic Cushing Syndrome: A New Square Wave Variant RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301031;BYMONTHDAY=31 DESCRIPTION:Cyclic Cushing syndrome (CCS) is a rare variant of Cushing synd rome (CS) characterized by intermittent episodes of cortisol peaks alterna ting with variable periods of normal or subnormal adrenocorticotropic horm one (ACTH) and cortisol levels. https://cushings.invisionzone.com/topic/57 906-three-cases-of-ectopic-cyclic-cushing-syndrome-a-new-square-wave-varia nt/ X-ALT-DESC;FMTTYPE=text/html:Cyclic Cushing syndrome (CCS) is a ra re variant of Cushing syndrome (CS) characterized by intermittent episodes of cortisol peaks alternating with variable periods of normal or subnorma l adrenocorticotropic hormone (ACTH) and cortisol levels.
CATEGORIES:Cushings UID:20251031T1446250Z-549422-1961@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220328 SUMMARY:Comment added to Surviving Cushing's: Area woman hit by rare diseas e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250328;BYMONTHDAY=28 DESCRIPTION:…particular\, Helton has made contact with Dr. Karen Thames fro m Chicago. She has been diagnosed with Cushing’s and is working on a docum entary called… Read more at http://cushingsbios.com/2015/04/29/surviving-c ushings-area-woman-hit-by-rare-disease/ X-ALT-DESC;FMTTYPE=text/html:&hellip\;particular\, Helton has made conta ct with Dr. Karen Thames from Chicago. She has been diagnosed with Cushing &rsquo\;s and is working on a documentary called&hellip\;
Read mor e at \;http://cushingsbios.com/2 015/04/29/surviving-cushings-area-woman-hit-by-rare-disease/
CATEGORIES:Cushie Bios UID:20220328T1455110Z-549422-1539@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Jody (jodiann)\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300106;BYMONTH=1;BYMONTHDAY=6 DTSTART;VALUE=DATE:20260106 DTEND;VALUE=DATE:20260107 DESCRIPTION:I was diagnosed with Cushing’s syndrome approx. 3 years ago\, a fter gaining over 100#s\, developing diabetes\, high blood pressure\, fati gue\,muscle weakness\, moon face\,buffalo hump\,many tests later\,it was d iscovered that I had bliateral multinodular adrenal hyperplasia\,and got t he diagnoses finally\,\,\, my mom died from complications from a bilateral adrenalectomy in 1978\,she had Cushing’s syndrome with pheochromocytomas\ ,\,so I watched her symptoms develope\, and had felt sure that I was getti ng the same things\, and finally it was confirmed\,just a little differenc e in the diagnosis\,\, https://cushingsbios.com/2026/01/06/jody-jodiann-ad renal-bio/ X-ALT-DESC;FMTTYPE=text/html:I was diagnosed with Cushing&rsquo\;s syndr ome approx. 3 years ago\, after gaining over 100#s\, developing diabetes\, high blood pressure\, fatigue\,muscle weakness\, moon face\,buffalo hump\ ,many tests later\,it was discovered that I had bliateral multinodular adr enal hyperplasia\,and got the diagnoses finally\,\,\,
my mom died from complications from a bilateral adrenalectomy in 1978\,she had Cushing &rsquo\;s syndrome with pheochromocytomas\,\,so I watched her symptoms dev elope\, and had felt sure that I was getting the same things\, and finally it was confirmed\,just a little difference in the diagnosis\,\,
< a href='https://cushingsbios.com/2026/01/06/jody-jodiann-adrenal-bio/' tar get='_blank' rel='nofollow'>https://cushingsbios.com/2026/01/06/jody-jodia nn-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260106T1414500Z-549422-2050@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Patricia\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300106;BYMONTH=1;BYMONTHDAY=6 DTSTART;VALUE=DATE:20260106 DTEND;VALUE=DATE:20260107 DESCRIPTION:My general practitioner sent me to a cardiologist for my blood pressure which was spiking as high as 194/110. The cardiologist immediate ly suspected a pheo\, and referred me back to the GP with a recommendation for a referral to endocrinology. The initial round of labs were all with in normal limits with the exception of plasma cortisol due to the estrogen pills. The endocrinologist told me to follow up in one year. https://cus hingsbios.com/2026/01/04/patricia-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:My general practitioner sent me to a cardiologist for my blood pressure which was spiking as high as 194/110.&n bsp\; The cardiologist immediately suspected a pheo\, and referred me back to the GP with a recommendation for a referral to endocrinology. \; T he initial round of labs were all within normal limits with the exception of plasma cortisol due to the estrogen pills. \; The endocrinologist t old me to follow up in one year.
https://cushingsbios.com/2026/01/04/patricia-adrenal-bio/< /p> CATEGORIES:Cushie Bios UID:20260106T1408540Z-549422-2048@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Woman who couldn’t lose weight diagnosed with a hidden adrenal tumo r RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301119;BYMONTH=11;BYMONTHDAY=19 DTSTART;VALUE=DATE:20251119 DTEND;VALUE=DATE:20251120 DESCRIPTION:Naomi Benton baffled doctors for over a decade as she continued to pile on the pounds despite following an 800 calorie-a-day diet and und ergoing gastric bypass surgery. https://cushingsbios.com/2025/11/19/woman- who-couldnt-lose-weight-diagnosed-with-a-hidden-adrenal-tumor/ X-ALT-DESC;FMTTYPE=text/html:
Naomi Benton baffled doctors for over a decade as she continued to pile on the pounds despite following an 800 calorie-a-day diet and undergoing gastric bypass surgery.
< span>
CATEGORIES:Cushie Bios UID:20251122T1352330Z-549422-1995@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230204 SUMMARY:Complete and Sustained Remission of Hypercortisolism With Pasireoti de Treatment of an Adrenocorticotropic Hormone (Acth)-Secreting Thoracic N euroendocrine Tumour: an N-Of-1 Trial RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270204;BYMONTHDAY=4 DESCRIPTION:Read more at https://cushings.invisionzone.com/topic/57594-comp lete-and-sustained-remission-of-hypercortisolism-with-pasireotide-treatmen t-of-an-adrenocorticotropic-hormone-acth-secreting-thoracic-neuroendocrine -tumour-an-n-of-1-trial/ %MCEPASTEBIN% X-ALT-DESC;FMTTYPE=text/html:%MCEPASTEBIN%
CATEGORIES:News Items UID:20230204T1437120Z-549422-1641@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Helpful Doctor added to New York DTSTART;VALUE=DATE:20190223 DTEND;VALUE=DATE:20190224 RRULE:FREQ=MONTHLY;UNTIL=20200126;BYDAY=-1SA DESCRIPTION:Toni Murphy Harlem Road West Seneca \,NY 14224 More info at htt ps://cushieblogger.com/2019/01/05/helphttps://cushieblogger.com/2019/01/26 /helpful-doctors-new-york/ful-doctors-new-jersey/ X-ALT-DESC;FMTTYPE=text/html:Toni Murphy
Harlem Road
West Sene
ca \,NY 14224
More info at \;https://cushieblogger.com/20 19/01/05/helphttps://cushieblogger.com/2019/01/26/helpful-doctors-new-york /ful-doctors-new-jersey/
CATEGORIES:Helpful Doctors UID:20190126T2357470Z-549422-1075@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211205 SUMMARY:Basics: Testing: What Is a TSH Test? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301205;BYMONTHDAY=5 DESCRIPTION:TSH stands for “thyroid stimulating hormone” and the test measu res how much of this hormone is in your blood. TSH is produced by the pitu itary gland in your brain. This gland tells your thyroid to make and relea se the thyroid hormones into your blood. Read more at https://cushings.inv isionzone.com/topic/56343-basics-testing-what-is-a-tsh-test/ X-ALT-DESC;FMTTYPE=text/html:TSH stands for &ldquo\;thyroid stimulating hormone&rdquo\; and the test measures how much of this \;hormone \ ;is in your \;blood. TSH is produced by the pituitary gland in your&nb sp\;brain. This gland tells your thyroid to make and release the thyroid h ormones into your \;blood.
Read more at \;https://cushings.invisionzone.com/topic/56343-basics-test ing-what-is-a-tsh-test/
CATEGORIES:Other Medical UID:20211205T1249570Z-549422-1477@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211103 SUMMARY:Sparrow Pharmaceuticals Hopes To Change The Future Of Endocrinology RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221103;BYMONTHDAY=3 DESCRIPTION:In Cushing’s syndrome clinical care and clinical trials\, the s tandard way for someone's cortisol level to be measured is a 24-hour urine collection\,” states Katz. “That involves looking at the amount of cortis ol in the urine over a 24-hour period. That collection is inconvenient and burdensome\, and the patient must then carry it somewhere to be analyzed. ” Sparrow hopes to shift that collection to a spot urine sample\, like wha t patients would experience during a physical... Read more at https://cush ings.invisionzone.com/topic/56246-sparrow-pharmaceuticals-hopes-to-change- the-future-of-endocrinology/ X-ALT-DESC;FMTTYPE=text/html:In Cushing&rsquo\;s syndrome clinical care and clinical trials\, the standard way for someone's cortisol level to be measured is a 24-hour urine collection\,&rdquo\; states Katz. &ldquo\;That involves looking at the amount of cortisol in the urine over a 24-hour pe riod. That collection is inconvenient and burdensome\, and the patient mus t then carry it somewhere to be analyzed.&rdquo\;
Sparrow hopes to shift that collection to a spot urine sample\, like what patients would e xperience during a physical...
Read more at \;https://cushings.invisi onzone.com/topic/56246-sparrow-pharmaceuticals-hopes-to-change-the-future- of-endocrinology/
CATEGORIES:News Items UID:20211103T1412110Z-549422-1445@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Resolution of pituitary microadenoma after coronavirus disease 2019 : a case report DTSTART;VALUE=DATE:20211202 DTEND;VALUE=DATE:20211203 RRULE:FREQ=MONTHLY;UNTIL=20221103;BYDAY=1WE DESCRIPTION:This report describes the case of a patient whose pituitary mic roadenoma resolved after he contracted coronavirus disease 2019. To our kn owledge\, this is one of the first reported cases of pituitary tumor resol ution due to viral illness. Read more at https://cushings.invisionzone.co m/topic/56247-resolution-of-pituitary-microadenoma-after-coronavirus-disea se-2019-a-case-report/ X-ALT-DESC;FMTTYPE=text/html:This report describes the case of a patient whose pituitary microadenoma resolved after he contracted coronavirus dis ease 2019. To our knowledge\, this is one of the first reported cases of p ituitary tumor resolution due to viral illness. \;
Read more a t \;https://cushings.invisionzone.com/topic/56247-resolution-of -pituitary-microadenoma-after-coronavirus-disease-2019-a-case-report/< /p> CATEGORIES:News Items UID:20211103T1422440Z-549422-1446@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Angie T (Angie)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300109;BYMONTH=1;BYMONTHDAY=9 DTSTART;VALUE=DATE:20260109 DTEND;VALUE=DATE:20260110 DESCRIPTION:They did a MRI with contrast and without and I have a Pit Tumor on my Left Gland that is 7mm by 8mm by 5mm. I am trying to find a surgeon in my insurance network so I can have my surgery. I have a lot of other h ealth issues too. I hope when I have my surgery that it takes care of some ot my other problems. https://cushingsbios.com/2026/01/07/angie-t-angie-p ituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:
They did a MRI with contrast and without an d I have a Pit Tumor on my Left Gland that is 7mm by 8mm by 5mm. I am tryi ng to find a surgeon in my insurance network so I can have my surgery. I h ave a lot of other health issues too.
I hope when I have my surger y that it takes care of some ot my other problems.
https://cushingsbios.com/2026/01/07/angie-t-angie-pituita ry-bio/
CATEGORIES:Cushie Bios UID:20260109T1546460Z-549422-2056@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Nicola C (Nikkikicks)\, Undiagnosed Bio DTSTART;VALUE=DATE:20190213 DTEND;VALUE=DATE:20190214 RRULE:FREQ=MONTHLY;UNTIL=20200109;BYDAY=2WE DESCRIPTION:Nicola is from Denver\, Colorado She was in a car accident in 7/17 and had prednisone. That is when her symptoms started. Read more at https://cushingsbios.com/2019/01/09/nicola-c-nikkikicks-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Nicola is from Denver\, Colorado \;She was in a car accident in 7/17 and had prednisone. \;That is when her symptoms started.
Read more at \;htt ps://cushingsbios.com/2019/01/09/nicola-c-nikkikicks-undiagnosed-bio/< /p> CATEGORIES:Cushie Bios UID:20190110T0120580Z-549422-1062@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210219 SUMMARY:MaryO/COVID Vaccine 1 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220219;BYMONTHDAY=19 DESCRIPTION:Quick takeaway: I have adrenal insufficiency (one adrenal was r emoved with my kidney due to cancer\, steroid-dependent (post-Cushing's Di sease)\, growth hormone insufficiency\, panhypopituitary. I had some issu es after my first COVID-19 injection (Moderna) but not too bad. My second injection will be March 15. Read more at https://cushingsbios.com/2021/02 /19/maryo-covid-vaccine-1/ X-ALT-DESC;FMTTYPE=text/html:
Quick takeaway: \;I ha ve adrenal insufficiency (one adrenal was removed with my kidney due to ca ncer\, steroid-dependent (pos t-Cushing's Disease)\, growth hormone insufficiency\, panhypopituitary . \; I had some issues after my first COVID-19 injection (Moderna) but not too bad. \; My second injection will be March 15.
Read mo re at \;https://cushingsbios.com/2021/02/19/maryo-covid-vac cine-1/
CATEGORIES:Cushie Bios UID:20210219T1729300Z-549422-1317@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Deva\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300121;BYMONTH=1;BYMONTHDAY=21 DTSTART;VALUE=DATE:20260121 DTEND;VALUE=DATE:20260122 DESCRIPTION:Deva suffered for 14 years until she read an article in reader' s Digest. She had pituitary surgery. https://cushingsbios.com/2026/01/21/ deva-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Deva suffered for 14 years until she read a n article in reader's Digest. \;She had pituitary surgery.
https://cushingsbios.com/2026/01/21/deva-pituitary-bi o/
CATEGORIES:Cushie Bios UID:20260122T1259300Z-549422-2069@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Amy (Amy)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260122 DTEND;VALUE=DATE:20260123 DESCRIPTION:My symptoms and the development of new ones have gotten much wo rse over the years. During college I had to take a semester off and toward s the end I felt like there was no way to keep up with my class load even though I pretty much studied all day long. My memory is terrible and any c lasses that required memorization were impossible. I developed low grade f evers that continued off and on during the day for at least three months. I sought medical treatment and was tested for HIV\, lyme\, lupus\, hypothy roidism\, etc.\, but the cause never became apparent and I think my doctor lost interest in trying to figure out what it was. My doctor said I proba bly had PCOS because my testosterone was at the high side of normal\, and an infectious disease doctor said I was just depressed. I was too tired to fight for myself and I thought maybe the stress and work of school was ge tting to me and maybe I really was just depressed. I thought that the weig ht\, the brain fog\, the aches\, and the tiredness would go away once I re moved myself from a stressful situation-it didn’t and has since gotten wor se. https://cushingsbios.com/2026/01/21/amy-amy-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:My symptoms and the development of ne w ones have gotten much worse over the years. During college I had to take a semester off and towards the end I felt like there was no way to keep u p with my class load even though I pretty much studied all day long. My me mory is terrible and any classes that required memorization were impossibl e. I developed low grade fevers that continued off and on during the day f or at least three months. I sought medical treatment and was tested for HI V\, lyme\, lupus\, hypothyroidism\, etc.\, but the cause never became appa rent and I think my doctor lost interest in trying to figure out what it w as. My doctor said I probably had PCOS because my testosterone was at the high side of normal\, and an infectious disease doctor said I was just dep ressed. I was too tired to fight for myself and I thought maybe the stress and work of school was getting to me and maybe I really was just depresse d. I thought that the weight\, the brain fog\, the aches\, and the tiredne ss would go away once I removed myself from a stressful situation-it didn& rsquo\;t and has since gotten worse.
https://cushingsbios.com/2026/01/21/amy-amy-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260122T1305060Z-549422-2070@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251121 SUMMARY:Prospective Assessment of Mood and Quality of Life in Cushing Syndr ome Before and After Biochemical Control RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301121;BYMONTHDAY=21 DESCRIPTION:Cushing’s syndrome (CS) impairs quality of life (QoL) and mood. Prospective real-life data on posttreatment recovery and predictors of im provement are limited. https://cushings.invisionzone.com/topic/57918-prosp ective-assessment-of-mood-and-quality-of-life-in-cushing-syndrome-before-a nd-after-biochemical-control/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome (CS) impair s quality of life (QoL) and mood. Prospective real-life data on posttreatm ent recovery and predictors of improvement are limited.
CATEGORIES:Cushings UID:20251121T0909140Z-549422-1993@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Stacy B\, Pituitary/Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300120;BYMONTH=1;BYMONTHDAY=20 DTSTART;VALUE=DATE:20260120 DTEND;VALUE=DATE:20260121 DESCRIPTION:Stacy is from Greencastle\, Indiana. She has tumors on both ad renals and one on her pituitary gland. Her endo offered to put me on a n ew trial drug in which I declined. https://cushingsbios.com/2026/01/20/sta cy-b-pituitary-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Stacy is from Greencastle\, Indiana. \ ;She has tumors on both adrenals and one on her pituitary gland. \; H er endo offered to put me on a new trial drug in which I declined.
https://cushingsbios.com/2026/01/20/sta cy-b-pituitary-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260122T1257280Z-549422-2068@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181027 SUMMARY:Pituitary Post-Op DESCRIPTION:After your physicians have determined that it is reasonably saf e to discharge you from the hospital following transsphenoidal pituitary s urgery there are a number of important situations that may arise. Most peo ple feel well after discharge. However\, you should be aware of these poss ible problems\, just in case. The following general guidelines are provide d to promote your health and safety. Headache\, facial\, and sinus pain ar e not uncommon following pituitary surgery. As you may have noted\, the pa in and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pain or discomfort\, please con tact your neurosurgeon immediately. Read more at http://www.cushings-info. com/index.php?title=Pituitary_Post-Op X-ALT-DESC;FMTTYPE=text/html:After your physicians have determined that it is reasonably safe to discharge you from the hospital following transsp henoidal pituitary surgery there are a number of important situations that may arise. Most people feel well after discharge. However\, you should be aware of these possible problems\, just in case. The following general gu idelines are provided to promote your health and safety.
Headache\ , facial\, and sinus pain are not uncommon following pituitary surgery. As you may have noted\, the pain and discomfort typically improve on a daily basis following surgery. If you should experience a worsening of your pai n or discomfort\, please contact your neurosurgeon immediately.
Re ad more at \;http://www.cushings-info.com/index.php?tit le=Pituitary_Post-Op
CATEGORIES:Cushings UID:20181028T0217220Z-549422-1008@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230309 SUMMARY:Comment on Happy Girl tells her Story So Far RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260309;BYMONTHDAY=9 DESCRIPTION:I am currently struggling to get a Cushing's Diagnosis. I have all the symptoms\, the weight gain\, the striae\, the fatigue\, muscle iss ues\, Buffalo hump\, it all matches up\, but my salivary cortisol tests an d the UFC I took also came back normal (It did not test for 17-OHS). My d octor's keep telling me it's PCOS despite the fact that my testosterone an d androgen levels are well within normal. Do you have any advice for those trying to get diagnosed with episodic Cushing's? I am really struggling h ere. read more at https://cushingsbios.com/2020/10/03/video-happy-girl-tel ls-her-story-so-far/ X-ALT-DESC;FMTTYPE=text/html:I am currently struggling to get a Cu shing's Diagnosis. I have all the symptoms\, the weight gain\, the striae\ , the fatigue\, muscle issues\, Buffalo hump\, it all matches up\, but my salivary cortisol tests and the \; UFC I took also came back normal (I t did not test for 17-OHS). My doctor's keep telling me it's PCOS despite the fact that my testosterone and androgen levels are well within normal. Do you have any advice for those trying to get diagnosed with episodic Cus hing's? I am really struggling here.
read more at&nbs p\;https://cushingsbios.com/20 20/10/03/video-happy-girl-tells-her-story-so-far/
CATEGORIES:Cushie Bios UID:20230309T1010320Z-549422-1644@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20200108T160000 DTEND;TZID=America/New_York:20200108T170000 SUMMARY:Webinar: Management of Recurrent Pituitary Tumors DESCRIPTION:Upon completion of this webinar\, participants should be able t o: Recognize the role for surgery in treating recurrent adenomas Understan d the risk and role of radiosurgery for treatment of recurrent Identify tr eatment indications for recurrent adenomas. Read more at https://cushieblo gger.com/2020/01/03/webinar-management-of-recurrent-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:Upon completion of this webinar\, participa nts should be able to: Recognize the role for surgery in treating recurren t adenomas Understand the risk and role of radiosurgery for treatment of r ecurrent Identify treatment indications for recurrent adenomas.
Re ad more at \;https://cushieblog ger.com/2020/01/03/webinar-management-of-recurrent-pituitary-tumors/ CATEGORIES:Events and Meetings UID:20200103T1426510Z-549422-1222@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200103 SUMMARY:Alicia\, PCOS Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210103;BYMONTHDAY=3 DESCRIPTION:Alicia is from California. She is 18 and has been diagnosed wi th PCOS but it does not explain all of her symptoms. She used to be super athletic and played 3 sports. She got my period at 13 and it was regular. However\, she started losing her periods... Read more at https://cushingsb ios.com/2020/01/03/alicia-alicia-pcos-bio/ X-ALT-DESC;FMTTYPE=text/html:
Alicia is from California. \;She is 18 and has been diagnosed with PCOS but it does not explain all of her sympt oms. She used to be super athletic and played 3 sports. She got my period at 13 and it was regular. However\, she started losing her periods...
Read more at \;https://cushingsbios.com/2020/01/03/ali cia-alicia-pcos-bio/
CATEGORIES:Cushie Bios UID:20200103T1457130Z-549422-1223@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190112 SUMMARY:Comment added to Stefanie\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200112;BYMONTHDAY=12 DESCRIPTION:I\, too\, was diagnosed with a pituitary tumor and subsequently had surgery to remove it. I still struggle day to day with many issues…wo rd finding\, comprehension\, emotions. I also struggle with finding Cushin gs disease support groups in our area. In the comments at https://cushings bios.com/2019/01/11/stefanie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I\, too\, was diagnosed with a pituitary tu mor and subsequently had surgery to remove it. I still struggle day to day with many issues&hellip\;word finding\, comprehension\, emotions. I also struggle with finding Cushings disease support groups in our area.
In the comments at \;https://cushingsbios.com/2019/01/11/ stefanie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190113T0219100Z-549422-1067@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190427 SUMMARY:Novel Therapy Eases Cushing's Symptoms in Pivotal Trial RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200427;BYMONTHDAY=27 DESCRIPTION:There were no significant changes from baseline to the end of m aintenance for other secondary endpoints in the analysis: moon facies\, fa cial plethora\, striae\, bruising\, supraclavicular fat\, irregular menstr uation\, and dysmenorrhea. However\, significant improvements after 6 mont hs of therapy were seen in patient-reported quality of life compared with baseline (mean 10.6 change on the Cushing QOL questionnaire) as well as a significant reduction in depressive symptoms (mean -4.3 change on the Beck Depression Inventory II). Read more at https://cushieblog.com/2019/04/27/ novel-therapy-eases-cushings-symptoms-in-pivotal-trial/ X-ALT-DESC;FMTTYPE=text/html:There were no significant changes from base line to the end of maintenance for other secondary endpoints in the analys is: moon facies\, facial plethora\, striae\, bruising\, supraclavicular fa t\, irregular menstruation\, and dysmenorrhea. However\, significant impro vements after 6 months of therapy were seen in patient-reported quality of life compared with baseline (mean 10.6 change on the Cushing QOL question naire) as well as a significant reduction in depressive symptoms (mean -4. 3 change on the Beck Depression Inventory II).
Read more at \; https://cushieblog.com/2019/04/2 7/novel-therapy-eases-cushings-symptoms-in-pivotal-trial/
CATEGORIES:News Items UID:20190427T1512360Z-549422-1149@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211121 SUMMARY:Free cortisol evaluation ‘useful’ after abnormal dexamethasone test RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221121;BYMONTHDAY=21 DESCRIPTION:In the evaluation of endogenous Cushing’s disease\, the guideli ne algorithm recommends two of three positive tests — 24-hour free urine c ortisol\, late midnight salivary cortisol level and 1 mg dexamethasone sup pression test\, or DST — for diagnosing hypercortisolism. Of those tests\, the most accurate to detect adrenal secretion of cortisol when a patient may have an adrenal incidentaloma is the 1 mg DST. The caveat with this sp ecific test is that it is affected by dexamethasone absorption and metabol ism and the proportion of cortisol bound to corticosteroid-binding globuli n. Up to 20% of these tests report false-positive findings. Read more at h ttps://cushings.invisionzone.com/topic/56284-free-cortisol-evaluation-%E2% 80%98useful%E2%80%99-after-abnormal-dexamethasone-test/ X-ALT-DESC;FMTTYPE=text/html:In the evaluation of endogenous Cushing&rsq uo\;s disease\, the guideline algorithm recommends two of three positive t ests &mdash\; 24-hour free urine cortisol\, late midnight salivary cortiso l level and 1 mg dexamethasone suppression test\, or DST &mdash\; for diag nosing hypercortisolism. Of those tests\, the most accurate to detect adre nal secretion of cortisol when a patient may have an adrenal incidentaloma is the 1 mg DST. The caveat with this specific test is that it is affecte d by dexamethasone absorption and metabolism and the proportion of cortiso l bound to corticosteroid-binding globulin. Up to 20% of these tests repor t false-positive findings.
Read more at \;https://cus hings.invisionzone.com/topic/56284-free-cortisol-evaluation-%E2%80%98usefu l%E2%80%99-after-abnormal-dexamethasone-test/
CATEGORIES:Cushings UID:20211121T0922190Z-549422-1465@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181126 SUMMARY:Mak M\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191126;BYMONTHDAY=26 DESCRIPTION:Mak is from California She has been having a really rough coup le years with a multitude of symptoms. A 6mm microadenoma was found on h er pituitary gland. Read her bio at https://cushingsbios.com/2018/11/26/ma k-m-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Mak is from California \;She has been having a really rough couple years with a multitude of symptoms. \;A \;6mm microadenoma was found on her pituitary gland.
Read her bio at \;https://cushingsbios.com/2018/11/26/mak-m-pituitary -bio/
CATEGORIES:Cushie Bios UID:20181126T1412360Z-549422-1039@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251122 SUMMARY:Real-World Osilodrostat Effectiveness and Safety in Non-Pituitary C ushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301122;BYMONTHDAY=22 DESCRIPTION:Osilodrostat is a suitable treatment for endogenous Cushing syn drome of various non-pituitary etiologies. https://cushings.invisionzone.c om/topic/57919-real-world-osilodrostat-effectiveness-and-safety-in-non-pit uitary-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Osilodrostat is a suitable treatment for endogenous Cushing syndrome of various non-pituitary etiologies.
CATEGORIES:Cushings UID:20251121T1546570Z-549422-1994@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20231001 SUMMARY:Pituitary Surgery Outcome in Patients 75 Years and Older RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301001;BYMONTHDAY=1 DESCRIPTION:Surgery beyond the age of 75\, mainly relying on an endoscopic endonasal transsellar approach\, is effective and safe\, provided that pat ients are managed in tertiary centers. Read more at https://cushings.invis ionzone.com/topic/57640-pituitary-surgery-outcome-in-patients-75%C2%A0year s-and-older/ X-ALT-DESC;FMTTYPE=text/html:Surgery beyond the age of 75\, mainly relying on an endoscopic endonasal transsellar approach\, is effective an d safe\, provided that patients are managed in tertiary centers.
Read more at \;https://cushings.invisionzone.com/topic/5 7640-pituitary-surgery-outcome-in-patients-75%C2%A0years-and-older/
CATEGORIES:Cushings UID:20231001T1534210Z-549422-1682@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220128 SUMMARY:Basics: Meds: Recorlev RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300128;BYMONTHDAY=28 DESCRIPTION:Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treat ed surgically\, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease. Recorlev was approved by the FDA in Decembe r 2021 to treat those Cushing’s patients for whom surgery is not a choice or has failed to lower cortisol levels. Read more at https://cushings.invi sionzone.com/topic/56549-meds-recorlev/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease is a progressive p ituitary disorder in which there is an excess of cortisol in the body. Whi le the disease can be treated surgically\, this option is not possible for all patients. This is one of the approved medications that assist in cont rolling \;cortisol levels in people with Cushing&rsquo\;s disease.
Recorlev was approved by the FDA in December 2021 to treat those Cush ing&rsquo\;s patients for whom surgery is not a choice or has failed to lo wer cortisol levels.
Read more at \;https://cushi ngs.invisionzone.com/topic/56549-meds-recorlev/
CATEGORIES:Cushings UID:20220128T1530540Z-549422-1508@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220118 SUMMARY:Post-Operative Cushing Syndrome Care RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230118;BYMONTHDAY=18 DESCRIPTION:Among 174 patients with Cushing's Syndrome included in the long itudinal cohort study (pituitary in 106\, ectopic in 25\, adrenal in 43)\, median baseline HbA1c was 6.9%. Of these\, 41 patients were not on any th erapy for hyperglycemia\, 93 (52%) took oral medications\, and 64 (37%) we re on insulin. Read more at https://cushings.invisionzone.com/topic/56491- post-operative-cushing-syndrome-care/ X-ALT-DESC;FMTTYPE=text/html:Among 174 patients with Cushing's Syndrome included in the longitudinal cohort study (pituitary in 106\, ectopic in 2 5\, adrenal in 43)\, median baseline HbA1c was 6.9%. Of these\, 41 patient s were not on any therapy for hyperglycemia\, 93 (52%) took oral medicatio ns\, and 64 (37%) were on insulin.
Read more at \;https://cushings.invisionzone.com/topic/56491-post -operative-cushing-syndrome-care/
CATEGORIES:Cushings UID:20220118T1847000Z-549422-1503@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20221015 SUMMARY:Anita S\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301015;BYMONTHDAY=15 DESCRIPTION:Anita is from Rye\, Colorado She was diagnosed with Cushing's i n the summer of 2020 and now has an adrenal adenoma on heright. Read more at https://cushingsbios.com/2022/10/15/anita-s-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Anita is from Rye\, Colorado
She wa s diagnosed with Cushing's in the summer of 2020 and now has an adrenal ad enoma on heright.
Read more at \;https ://cushingsbios.com/2022/10/15/anita-s-adrenal-bio/
CATEGORIES:Cushie Bios UID:20221015T0705570Z-549422-1617@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20221015 SUMMARY:Basics: Testing: Prolactin RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20241015;BYMONTHDAY=15 DESCRIPTION:A prolactin (PRL) test measures how much of a hormone called pr olactin you have in your blood. The hormone is made in your pituitary glan d\, which is located just below your brain. Read more at https://cushings. invisionzone.com/topic/57573-basics-testing-prolactin/ X-ALT-DESC;FMTTYPE=text/html:A \;prolactin \;(PRL) test measu res how much of a \;hormone&nbs p\;called prolactin you have in your blood. The hormone is made in y our pituitary gland\, which is located just below your brain.
Read more at \;https:/ /cushings.invisionzone.com/topic/57573-basics-testing-prolactin/
CATEGORIES:Other Medical UID:20221015T0629540Z-549422-1616@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181105 SUMMARY:Guest Question: Rife Machine RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191105;BYMONTHDAY=5 DESCRIPTION:Anyone ever used a Rife Machine on Cushings syndrome? Read more at https://cushieblogger.com/2018/11/05/guest-question-rife-machine/ X-ALT-DESC;FMTTYPE=text/html:Anyone ever used a Rife Machine on Cushings syndrome?
Read more at \;https://cushieblog ger.com/2018/11/05/guest-question-rife-machine/
CATEGORIES:Cushings UID:20181106T0046160Z-549422-1014@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200407 SUMMARY:Can You Help? Normal Test Results RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200907;BYMONTHDAY=7 DESCRIPTION:I guess my question is has anyone else out there ever had initi al normal cortisol test results only to later find out it’s Cushings? Read more at https://cushieblogger.com/2020/04/07/can-you-help-normal-test-res ults/ X-ALT-DESC;FMTTYPE=text/html:I guess my question is has anyone else out there ever had initial normal cortisol test results only to later find out it&rsquo\;s Cushings?
Read more at \;h ttps://cushieblogger.com/2020/04/07/can-you-help-normal-test-results/< /p> CATEGORIES:Cushings UID:20200407T0605450Z-549422-1238@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Stress\, cortisol and weight gain DTSTART;VALUE=DATE:20181203 DTEND;VALUE=DATE:20181204 RRULE:FREQ=MONTHLY;UNTIL=20191105;BYDAY=1MO DESCRIPTION:If you’ve got your finger on the pulse of health trends\, it’s likely you’ve been hearing the current buzzwords “cortisol creates belly f at” and “cortisol causes muscle wasting and fat storage.” These are the ty pe of catch phrases that gain momentum every few years. And although some of the fads and trends showing up seasonally in fitness are myths\, this c aution about chronically elevated cortisol is true. Cortisol is also deepl y connected with the dangers of chronic inflammation... Read more at https ://cushieblog.com/2018/11/05/stress-cortisol-and-weight-gain/ X-ALT-DESC;FMTTYPE=text/html:
If you&rsquo\;ve got your finger on the pul se of health trends\, it&rsquo\;s likely you&rsquo\;ve been hearing the cu rrent buzzwords &ldquo\;cortisol creates belly fat&rdquo\; and &ldquo\;cor tisol causes muscle wasting and fat storage.&rdquo\; These are the type of catch phrases that gain momentum every few years. And although some of th e fads and trends showing up seasonally in fitness are myths\, this cautio n about chronically elevated cortisol is true. Cortisol is also deeply con nected with the dangers of chronic inflammation...
Read more at&nb sp\;https://cushieblog.com/2018/11/05/stress-cortisol-a nd-weight-gain/
CATEGORIES:News Items UID:20181106T0116560Z-549422-1015@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211121 SUMMARY:Basics: Pituitary Tumors and Headaches RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301121;BYMONTHDAY=21 DESCRIPTION:Headaches are a common complaint in patients with pituitary tum ors. Although many patients presumably have headaches which are unrelated to their pituitary tumor\, there are several important direct and indirect mechanisms by which pituitary tumors may elicit or exacerbate headaches. Pituitary tumors may directly provoke headaches by eroding laterally into the cavernous sinus\, which contains the first and second divisions of the trigeminal nerve\, by involvement of the dural lining of the sella or dia phragma sella (which are innervated by the trigeminal nerve)\, or via sinu sitis\, particularly after transsphenoidal surgery. Read more at https:// cushings.invisionzone.com/topic/56287-pituitary-tumors-and-headaches/ X-ALT-DESC;FMTTYPE=text/html:Headaches are a common complaint in patient s with pituitary tumors. Although many patients presumably have headaches which are unrelated to their pituitary tumor\, there are several important direct and indirect mechanisms by which pituitary tumors may elicit or ex acerbate headaches. Pituitary tumors may directly provoke headaches by ero ding laterally into the cavernous sinus\, which contains the first and sec ond divisions of the trigeminal nerve\, by involvement of the dural lining of the sella or diaphragma sella (which are innervated by the trigeminal nerve)\, or via sinusitis\, particularly after transsphenoidal surgery.&nb sp\;
Read more at \;https://cush ings.invisionzone.com/topic/56287-pituitary-tumors-and-headaches/
CATEGORIES:Cushings UID:20211121T2341450Z-549422-1466@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220215 SUMMARY:Basics: Meds - Korlym RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300215;BYMONTHDAY=15 DESCRIPTION:Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treat ed surgically\, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease. Korlym (mifepristone)\, developed and marke ted by Corcept Therapeutics\, is an FDA-approved treatment for high blood sugar (hyperglycemia) in adults with Cushing’s syndrome who have type 2 di abetes or glucose intolerance\, and for whom surgery is not an option\, or failed to control their symptoms. Read more at https://cushings.invisionz one.com/topic/56598-basics-meds-korlym/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease is a progressive p ituitary disorder in which there is an excess of cortisol in the body. Whi le the disease can be treated surgically\, this option is not possible for all patients. This is one of the approved medications that assist in cont rolling \;cortisol levels in people with Cushing&rsquo\;s disease.
Korlym \;(mifepristone)\, developed and marketed by \;Corcept Therapeutics\, is an FDA-approved treatment for high blood sugar (hypergl ycemia) in adults with Cushing&rsquo\;s syndrome who have type 2 diabetes or glucose intolerance\, and for whom surgery is not an option\, or failed to control their symptoms.
Read more at \;h ttps://cushings.invisionzone.com/topic/56598-basics-meds-korlym/
CATEGORIES:Cushings UID:20220215T1352160Z-549422-1519@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190210 SUMMARY:Comment added to Nicole S (NicoleS)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200210;BYMONTHDAY=10 DESCRIPTION:I too had a left side adrenalextomy. I had a difficult labor an d severe high BP heading in to childbirth. Had high BP leading to other pr oblems for years after until diagnosed... In the comments area of https:// cushingsbios.com/2019/02/10/nicole-s-nicoles-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I too had a left side adrenalextomy. I had a difficult labor and severe high BP heading in to childbirth. Had high BP leading to other problems for years after until diagnosed...
In t he comments area of \;https://cushingsbios.com/2019/ 02/10/nicole-s-nicoles-adrenal-bio/
CATEGORIES:Cushie Bios UID:20190216T1255200Z-549422-1084@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190216 SUMMARY:Cushing’s Syndrome Patients at More Risk of Blood-clotting Problems After Adrenal Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200216;BYMONTHDAY=16 DESCRIPTION:Whether Cushing’s syndrome patients who have an adrenalectomy — surgical removal of one or both adrenal glands — are at a higher risk for VTE (venous thromboembolism) is largely unknown. This is important for po st-operative management\, to decide whether they should have preventive tr eatment for blood clot formation. Read more at https://cushieblog.com/2019 /02/16/cushings-syndrome-patients-at-more-risk-of-blood-clotting-problems- after-adrenal-surgery/ X-ALT-DESC;FMTTYPE=text/html:Whether Cushing&rsquo\;s syndrome patients who have an adrenalectomy &mdash\; surgical removal of one or both adrenal glands &mdash\; are at a higher risk for VTE (venous thromboembolism) is largely unknown. This is important for post-operative management\, to deci de whether they should have preventive treatment for blood clot formation.
Read more at \;https://cushieblog.com/2019/02/16/cushings-s yndrome-patients-at-more-risk-of-blood-clotting-problems-after-adrenal-sur gery/
CATEGORIES:News Items UID:20190216T1251300Z-549422-1083@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210731 SUMMARY:Cushing’s Disease Presenting with Psychosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220731;BYMONTHDAY=31 DESCRIPTION:We present a young woman with 3 weeks of headaches and cognitiv e disturbance who subsequently developed florid psychosis requiring multip le admissions under neurology and psychiatry. Read more at https://cushin gs.invisionzone.com/topic/55894-cushing%E2%80%99s-disease-presenting-with- psychosis/ X-ALT-DESC;FMTTYPE=text/html:We present a young woman with 3 weeks of he adaches and cognitive disturbance who subsequently developed florid psycho sis requiring multiple admissions under neurology and psychiatry. \;
Read more at \;https://cushings.invisionzone.com/topic/55894-cushing%E2%80%99s-disease -presenting-with-psychosis/
CATEGORIES:News Items UID:20210731T1521300Z-549422-1407@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210316 SUMMARY:Celebrate 20 Years-Pituitary Patient Support Group RRULE:FREQ=DAILY;COUNT=26 DESCRIPTION:Please Join Us to Celebrate 20 Years-Pituitary Patient Support Group. Saturday April 10\, 2021: 9:00am-11:00am (PST) (Scroll below for Zo om meeting links) We invite you to join the conversation with our expert s: Pejman Cohan\, neuro-endocrinologist & Daniel Kelly\, neurosurgery. Ema il me or leave your questions in the chat below. We will answer as many qu estions as time allows. We can't wait to see you on Zoom! Read more at h ttps://cushings.invisionzone.com/topic/55569-celebrate-20-years-pituitary- patient-support-group/ X-ALT-DESC;FMTTYPE=text/html:Read more at \;https://cushing s.invisionzone.com/topic/55569-celebrate-20-years-pituitary-patient-suppor t-group/
CATEGORIES:Events and Meetings UID:20210316T0708480Z-549422-1334@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190104 SUMMARY:Metastatic Pituitary Carcinoma Successfully Treated with Radiation\ , Chemo. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200104;BYMONTHDAY=4 DESCRIPTION:A man with Cushing’s disease — caused by an adrenocorticotrophi c hormone (ACTH)-secreting pituitary adenoma — who later developed metasta ses in the central nervous system without Cushing’s recurrence\, was succe ssfully treated over eight years with radiation and chemotherapy\, accordi ng to a case report. https://cushieblog.com/2019/01/04/metastatic-pituitar y-carcinoma-successfully-treated-with-radiation-chemo/ X-ALT-DESC;FMTTYPE=text/html:A man with \;Cushing&rsquo\;s disease&n bsp\;&mdash\; caused by an adrenocorticotrophic hormone (ACTH)-secreting p ituitary adenoma &mdash\; who later developed metastases in the central ne rvous system without Cushing&rsquo\;s recurrence\, was successfully treate d over eight years with radiation and chemotherapy\, according to a case r eport.
https://cushieblog.com/2019/01/04/metastatic-pituitary-carc inoma-successfully-treated-with-radiation-chemo/
CATEGORIES:News Items UID:20190104T1437390Z-549422-1056@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20190109T190000 DTEND;TZID=America/New_York:20190109T200000 SUMMARY: Webinar:Treatment Strategies for Prolactinomas DESCRIPTION:Learning Objectives: To understand the medical therapies for pr olactinomas To understand the roles of surgery for prolactinomas To unders tand the roles of radiation for prolactinomas Read more at https://cushieb logger.com/2019/01/04/webinartreatment-strategies-for-prolactinomas/ X-ALT-DESC;FMTTYPE=text/html:Read more at \;https://cushieblogger.com/2019/01/04/webinartrea tment-strategies-for-prolactinomas/
CATEGORIES:Events and Meetings UID:20190104T1456260Z-549422-1057@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Memory: Christopher “Migs” Migliore RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301005;BYMONTH=10;BYMONTHDAY=5 DTSTART;VALUE=DATE:20251005 DTEND;VALUE=DATE:20251006 DESCRIPTION:At age 31\, Migs fought gallantly his battle with Cushing’s Syn drome. Diagnosed in late 2012\, Migs endured a surgical operation in Febru ary 2013 to excise both his adrenal glands. The objective was to combat th e effects of Cushing’s Syndrome. https://cushingsbios.com/2025/11/20/in-me mory-christopher-migs-migliore/ X-ALT-DESC;FMTTYPE=text/html:At age 31\, Migs fought gallantly his battle with Cushing&rsquo\;s Syndrome. Diagnosed in late 2012\, Migs endu red a surgical operation in February 2013 to excise both his adrenal gland s. The objective was to combat the effects of Cushing&rsquo\;s Syndrome.
https://cushin gsbios.com/2025/11/20/in-memory-christopher-migs-migliore/
CATEGORIES:In Memory UID:20251122T1357110Z-549422-1996@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Teri\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301122;BYMONTH=11;BYMONTHDAY=22 DTSTART;VALUE=DATE:20251122 DTEND;VALUE=DATE:20251123 DESCRIPTION:I went to the emergency room for a kidney stone and the did a c -scan and found a large mass on my right adrenal gland and later found out there is another one on my left. I had my adrenal gland removed the first of November. https://cushingsbios.com/2025/11/22/teri-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I went to the emergency room for a ki dney stone and the did a c-scan and found a large mass on my right adrenal gland and later found out there is another one on my left. I had my adren al gland removed the first of November.
https://cushingsbios.com/2025/11/22/teri-adrenal-bio/ CATEGORIES:Cushie Bios UID:20251122T1403050Z-549422-1998@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251006 SUMMARY:Millennial Woman Hasn’t Slept the Night in 19 Months—Viewers Shocke d Why RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301006;BYMONTHDAY=6 DESCRIPTION:Adrenal hormones: Excess can lead to Cushing’s disease\, charac terized by a moon-shaped face\, excess body hair\, easy bruising\, menstru al irregularities and high blood pressure. https://cushings.invisionzone.c om/topic/57893-newsweek-article-millennial-woman-hasn%E2%80%99t-slept-the- night-in-19-months%E2%80%94viewers-shocked-why/ X-ALT-DESC;FMTTYPE=text/html:
Adrenal hormones: Ex cess can lead to Cushing&rsquo\;s disease\, characterized by a moon-shaped face\, excess body hair\, easy bruising\, menstrual irregularities and hi gh blood pressure.
CATEGORIES:Cushings UID:20251006T1428490Z-549422-1952@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 5: Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300406;BYMONTH=4;BYMONTHDAY=5 DTSTART;VALUE=DATE:20200405 DTEND;VALUE=DATE:20200406 DESCRIPTION:The above is the official Cushing’s path to a diagnosis but her e’s how it seems to be in real life:.. Read more at https://cushings-help. com/2025/04/05/day-5-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:The above is the official Cushing&rsquo\;s path to a diagnosis but here&rsquo\;s how it seems to be in real life:..
Read more at \;https:// cushings-help.com/2025/04/05/day-5-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250407T1222320Z-549422-1244@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190706 SUMMARY:Video: Pituitary tumors: Mayo Clinic Radio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200706;BYMONTHDAY=6 DESCRIPTION:This interview originally aired July 6\, 2019. Dr. William You ng Jr.\, a Mayo Clinic endocrinologist\, discussed pituitary gland tumors. View at https://cushieblogger.com/2019/07/06/video-pituitary-tumors-mayo- clinic-radio/ X-ALT-DESC;FMTTYPE=text/html:This interview originally aired July 6\, 20 19. \; Dr. William Young Jr.\, a Mayo Clinic endocrinologist\, discuss ed pituitary gland tumors.
View at \;https://cushieblogger.com/2019/07/06/video-pituitary-tumors-mayo-cli nic-radio/
CATEGORIES:Cushings UID:20190706T1143420Z-549422-1185@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210316 SUMMARY:Cushie 12-Step Program RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220316;BYMONTHDAY=16 DESCRIPTION:I suggest anyone who feels compelled to google symptoms go to t he message boards to ask for support instead of typing these or any words such as 'buffalo hump' in the google search engine. When this is done all roads lead to one thing...... You Eat Too Much!\; You're Depressed! So\, a nyone who is about to hit enter on their computer which feeds their Google addiction.... go to the message boards to ask for help. One of the other Cushies who have achieved 'Google sobriety' will help you down of the ledg e. Read more at https://cushieblogger.com/2021/03/16/cushie-12-step-progra m/ X-ALT-DESC;FMTTYPE=text/html:I suggest anyone who feels compelled to goo gle symptoms go to \;the message boards \;to ask for support instead of typing these or any words such as 'buffalo hump' in th e google search engine. When this is done all roads lead to one thing..... . You Eat Too Much!\; You're Depressed!
So\, anyone who is about t o hit enter on their computer which feeds their Google addiction.... go to \;the message boards \;to ask for help. One of the other Cushies who have achieved 'Google sobriety' will help you down of th e ledge.
Read more at \;https://cushieblogger.com /2021/03/16/cushie-12-step-program/
CATEGORIES:Cushings UID:20210316T0711060Z-549422-1335@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220131 SUMMARY:What Is Facial Plethora? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300131;BYMONTHDAY=31 DESCRIPTION:Facial plethora is a main symptom of Cushing syndrome\, a rare condition that’s caused by high levels of cortisol\, known as the stress h ormone. Read more at https://cushings.invisionzone.com/topic/56564-what- is-facial-plethora/#comment-477092 X-ALT-DESC;FMTTYPE=text/html:Facial plethora is a main symptom of \; Cushing syndrome\, a rare condition that&rsquo\;s caused by high levels of cortisol\, known as the stress hormone.
\;
Read more at \;https://cushings.invisionz one.com/topic/56564-what-is-facial-plethora/#comment-477092
CATEGORIES:Cushings UID:20220131T1747020Z-549422-1511@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230824 SUMMARY:Enhancing Cushing’s disease diagnosis: exploring the impact of desm opressin on ACTH gradient during BIPSS RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300824;BYMONTHDAY=24 DESCRIPTION:The differential diagnosis between Cushing’s disease (CD) and e ctopic ACTH syndrome (EAS) is complex\, and bilateral inferior petrosal si nus sampling (BIPSS) is considered the gold-standard test. However\, BIPSS with corticotropin-releasing hormone (CRH) stimulation is rarely availabl e. Read more at https://cushings.invisionzone.com/topic/57629-enhancing-cu shing%E2%80%99s-disease-diagnosis-exploring-the-impact-of-desmopressin-on- acth-gradient-during-bipss/ X-ALT-DESC;FMTTYPE=text/html:The differential diagnosis between Cu shing&rsquo\;s disease (CD) and ectopic ACTH syndrome (EAS) is complex\, a nd bilateral inferior petrosal sinus sampling (BIPSS) is considered the go ld-standard test. However\, BIPSS with corticotropin-releasing hormone (CR H) stimulation is rarely available.
CATEGORIES:Cushings UID:20230824T1242300Z-549422-1668@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230818 SUMMARY:Severe McCune–Albright Syndrome Presenting with Neonatal Cushing Sy ndrome: Navigating Through Clinical Obstacles RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300818;BYMONTHDAY=18 DESCRIPTION:Café-au-lait skin macules\, Cushing syndrome (CS)\, hyperthyroi dism\, and liver and cardiac dysfunction are presenting features of neonat al McCune–Albright syndrome (MAS)\, CS being the rarest endocrine feature. Although spontaneous resolution of hypercortisolism has been reported\, o utcome is usually unfavorable. While a unified approach to diagnosis\, tre atment\, and follow-up is lacking\, herein successful treatment and long-t erm follow-up of a rare case is presented. Read more at https://cushings.i nvisionzone.com/topic/57628-severe-mccune%E2%80%93albright-syndrome-presen ting-with-neonatal-cushing-syndrome-navigating-through-clinical-obstacles/ X-ALT-DESC;FMTTYPE=text/html:Café\;-au-lait skin macules\, C ushing syndrome (CS)\, hyperthyroidism\, and liver and cardiac dysfunction are presenting features of neonatal McCune&ndash\;Albright syndrome (MAS) \, CS being the rarest endocrine feature. Although spontaneous resolution of hypercortisolism has been reported\, outcome is usually unfavorable. Wh ile a unified approach to diagnosis\, treatment\, and follow-up is lacking \, herein successful treatment and long-term follow-up of a rare case is p resented.
CATEGORIES:Cushings UID:20230818T1807240Z-549422-1667@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Birth of Neuroscientist Joseph Ransohoff RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300702;BYMONTH=7;BYMONTHDAY=2 DTSTART;VALUE=DATE:20230702 DTEND;VALUE=DATE:20230703 DESCRIPTION:(1915) Russian-Jewish neuroscientist Joseph Ransohoff was born . He is known pioneering the use of medical imaging in the diagnosis and t reatment of brain tumors. https://cushings.invisionzone.com/events/event/1 540-medical-history/ More at X-ALT-DESC;FMTTYPE=text/html:(1915) \; \;Russian-Jewish neurosci
entist Joseph Ransohoff was born. He is known pioneering the use of medica
l imaging in the diagnosis and treatment of brain tumors.
https://cushings.invisionzone.com/events/event/15
40-medical-history/
More at \;
CATEGORIES:Other Medical UID:20230702T2127310Z-549422-1652@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230704 SUMMARY:Cushing’s Syndrome: A New Drug Allows You To Avoid Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20290704;BYMONTHDAY=4 DESCRIPTION:The Cushing’s syndrome\, a disease caused by the excessive prod uction of cortisol by the pituitary gland due to a benign tumor of the gla nd\, has seen a breakthrough in its treatment. Thanks to a new drug called osilodrostat\, approved in 2020 by the Food and Drug Administration and s ubsequently by Aifa in Italy\, patients unfit for surgery can benefit from a treatment that offers the same effects as a scalpel. Furthermore\, this drug reduced symptoms in 80% of cases. Read more at https://cushings.invi sionzone.com/topic/57612-cushing%E2%80%99s-syndrome-a-new-drug-allows-you- to-avoid-surgery/ X-ALT-DESC;FMTTYPE=text/html:The Cushing&rsquo\;s syndrome\, a disease c aused by the excessive production of cortisol by the pituitary gland due t o a benign tumor of the gland\, has seen a breakthrough in its treatment. Thanks to a new drug called osilodrostat\, approved in 2020 by the Food an d Drug Administration and subsequently by Aifa in Italy\, patients unfit f or surgery can benefit from a treatment that offers the same effects as a scalpel. Furthermore\, this drug reduced symptoms in 80% of cases.
Read more at \;https://cushings.invisionzone.com/topic/57612-cu shing%E2%80%99s-syndrome-a-new-drug-allows-you-to-avoid-surgery/
CATEGORIES:Cushings UID:20230704T2137280Z-549422-1653@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Sosei Heptares Starts New Clinical Development Program DTSTART;VALUE=DATE:20190320 DTEND;VALUE=DATE:20190321 RRULE:FREQ=MONTHLY;UNTIL=20200220;BYDAY=3WE DESCRIPTION:Sosei Group Corporation ('the Company'\; TSE: 4565)\, announces that the first healthy subject has been dosed with a novel small molecule HTL0030310 in a Phase I clinical study\, marking the start of a new in-ho use clinical program targeting endocrine disorders\, including Cushing's d isease...Sosei Group Corporation ('the Company'\; TS
E: 4565)\, announces that the first healthy subject has been dosed with a
novel small molecule HTL0030310 in a Phase I clinical study\, marking the
start of a new in-house clinical program targeting endocrine disorders\, i
ncluding Cushing's disease...<\;br />\;
<\;br />\;
HTL00
30310 has been designed to modulate the excess release of hormones from ad
enomas (benign tumors) of the pituitary gland. Highly elevated plasma leve
ls of pituitary hormones result in a number of serious endocrine disorders
\, including Cushing's Disease.
Read more at \;https://cushieblog.com/2019/02/20/sosei-heptare s-starts-new-clinical-development-program/
CATEGORIES:News Items UID:20190220T1544400Z-549422-1086@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Giving Thanks: 36 Years Post-Op RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301103;BYMONTH=11;BYMONTHDAY=3 DTSTART;VALUE=DATE:20231103 DTEND;VALUE=DATE:20231104 DESCRIPTION:Today is the 36th anniversary of my pituitary surgery at NIH. A s one can imagine\, it hasn't been all happiness and light. Most of my jo urney has been documented here and on the message boards - and elsewhere a round the web. My Cushing's has been in remission for most of these 36 yea rs. Due to scarring from my pituitary surgery\, I developed adrenal insuf ficiency. Read more at https://cushingsbios.com/2023/11/03/giving-thanks-3 6-years-post-op/ X-ALT-DESC;FMTTYPE=text/html:Today is the 36th anniversary of my pituita ry surgery at NIH.
As one can imagine\, it hasn't been all happine ss and light. \;Most of my journey has been documented \;h ere \;and on \;the message boards \;- and elsewhere around the web.
My Cushing's has been in remission for most of these 36 years. &nbs p\;Due to scarring from my pituitary surgery\, I developed adrenal insuffi ciency.
Read more at \;http s://cushingsbios.com/2023/11/03/giving-thanks-36-years-post-op/
CATEGORIES:Cushie Bios UID:20231103T0924390Z-549422-1702@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230914 SUMMARY:Rare Challenges in Diagnosing Cushing’s Syndrome and Primary Aldost eronism: A Case Report of a Female With a Negative Workup RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300914;BYMONTHDAY=14 DESCRIPTION:Cushing’s syndrome with concurrent primary aldosteronism (PA) i s a rare presentation\, and establishing an early diagnosis is imperative to preventing morbidity and long-term sequelae. The diagnosis is establish ed by sequential lab work\, showing an elevated cortisol and aldosterone l evel. Read more at https://cushings.invisionzone.com/topic/57634-rare-chal lenges-in-diagnosing-cushing%E2%80%99s-syndrome-and-primary-aldosteronism- a-case-report-of-a-female-with-a-negative-workup/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome with concur rent primary aldosteronism (PA) is a rare presentation\, and establishing an early diagnosis is imperative to preventing morbidity and long-term seq uelae. The diagnosis is established by sequential lab work\, showing an el evated cortisol and aldosterone level.
Read more at&n bsp\;https://cushings.invisionzone.com/topic/57634-rare-challenges-in-diagno sing-cushing%E2%80%99s-syndrome-and-primary-aldosteronism-a-case-report-of -a-female-with-a-negative-workup/
CATEGORIES:Cushings UID:20230914T0858390Z-549422-1673@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230814 SUMMARY:Treatment-Resistant Depression with Acute Psychosis in an Adolescen t Girl with Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300814;BYMONTHDAY=14 DESCRIPTION:Cushing's syndrome (CS) is a rare disease with multiple somatic signs and a high prevalence of co-occurring depression. However\, the cha racteristics of depression secondary to CS and the differences from major depression have not been described in detail. In this case\, we report a 1 7-year-old girl with treatment-resistant depression with a series of atypi cal features and acute psychotic episodes\, which is a rare condition seco ndary to CS. Read more at https://cushings.invisionzone.com/topic/57625-tr eatment-resistant-depression-with-acute-psychosis-in-an-adolescent-girl-wi th-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing's syndrome (CS) is a rare dis ease with multiple somatic signs and a high prevalence of co-occurring dep ression. However\, the characteristics of depression secondary to CS and t he differences from major depression have not been described in detail. In this case\, we report a 17-year-old girl with treatment-resistant depress ion with a series of atypical features and acute psychotic episodes\, whic h is a rare condition secondary to CS.
Read more at&n bsp\;https://cushings.invisionzone.co m/topic/57625-treatment-resistant-depression-with-acute-psychosis-in-an-ad olescent-girl-with-cushings-syndrome/
CATEGORIES:Cushings UID:20230814T1252410Z-549422-1665@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230812 SUMMARY:Exogenous Cushing Syndrome and Hip Fracture Due to Over-the-Counter Supplement (Artri King) RRULE:FREQ=DAILY;COUNT=2558 EXDATE;VALUE=DATE:20240904 DESCRIPTION:The most common cause of Cushing syndrome (CS) is exposure to e xogenous glucocorticoids. There is an increasing incidence of adulterated over-the-counter (OTC) supplements containing steroids. Read more at https ://cushings.invisionzone.com/topic/57624-exogenous-cushing-syndrome-and-hi p-fracture-due-to-over-the-counter-supplement-artri-king/ X-ALT-DESC;FMTTYPE=text/html:The most common cause of Cushing synd rome (CS) is exposure to exogenous glucocorticoids. There is an increasing incidence of adulterated over-the-counter (OTC) supplements containing st eroids.
CATEGORIES:Cushings UID:20230813T1725020Z-549422-1664@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220205 SUMMARY:Basics: Meds - Isturisa RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300205;BYMONTHDAY=5 DESCRIPTION:Cushing’s disease is a progressive pituitary disorder in which there is an excess of cortisol in the body. While the disease can be treat ed surgically\, this option is not possible for all patients. This is one of the approved medications that assist in controlling cortisol levels in people with Cushing’s disease. Isturisa was approved in 2020 to treat adul ts with Cushing’s disease for whom pituitary surgery is ineffective or not an option. Read more at https://cushings.invisionzone.com/topic/56571-med s-isturisa/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease is a progressive p ituitary disorder in which there is an excess of cortisol in the body. Whi le the disease can be treated surgically\, this option is not possible for all patients. This is one of the approved medications that assist in cont rolling \;cortisol levels in people with Cushing&rsquo\;s disease.
Isturisa was approved in 2020 to treat adults with Cushing&rsquo\;s d isease for whom pituitary surgery is ineffective or not an option.
Read more at \;https://cushings.invisionzone.com/topic/5 6571-meds-isturisa/
CATEGORIES:Cushings UID:20220205T0924240Z-549422-1512@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Wonderful Words of Life RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301103;BYMONTH=11;BYMONTHDAY=3 DTSTART;VALUE=DATE:20231103 DTEND;VALUE=DATE:20231104 DESCRIPTION:After I was finished with the long diagnostic process [of Cushi ng's Disease]\, surgery and several post-op visits to NIH\, I was asked to give the scripture reading at Pender. The man who preached the sermon tha t week was the survivor of a horrific accident where he and his family wer e hit by a van while waiting at an airport. Read more at https://penderumc .org/pender-blog/wonderful-words-of-life/ X-ALT-DESC;FMTTYPE=text/html:After I was finished with the long di agnostic process [of Cushing's Disease]\, surgery and several post-op visi ts to NIH\, I was asked to give the scripture reading at Pender. The man w ho preached the sermon that week was the survivor of a horrific accident w here he and his family were hit by a van while waiting at an airport.
Read more at \;https://penderumc. org/pender-blog/wonderful-words-of-life/
CATEGORIES:Cushie Bios UID:20231103T1408550Z-549422-1703@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220207 SUMMARY:Comment added to Amy (Amybtru)\, Pituitary/Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230207;BYMONTHDAY=7 DESCRIPTION:I pray for your agony to let up and give you a break!! This is the most exhausting almost unexplainable damaging heartbreaking thing I’ve gone through in my life. Gentle hugs. Prayers too? X-ALT-DESC;FMTTYPE=text/html:I pray for your agony to let up and give yo u a break!! This is the most exhausting almost unexplainable damaging hear tbreaking thing I&rsquo\;ve gone through in my life. Gentle hugs. Prayers too?
CATEGORIES:Cushie Bios UID:20220207T1448050Z-549422-1513@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230930 SUMMARY:Comment - ❣️The Message Boards Turn 22 Today! ❣️ DESCRIPTION:Comment from LinkedIn: Congratulations Mary! You have helped mo re lives than you will ever know including mine. I am forever grateful for finding your website 18 years ago when I was finally diagnosed with Cushi ngs Disease after a 2-year search for answers. Thank you ? Read more at Li nkedIn X-ALT-DESC;FMTTYPE=text/html:Comment from LinkedIn:
Congratulati ons Mary! You have helped more lives than you will ever know including min e. I am forever grateful for finding your website 18 years ago when I was finally diagnosed with Cushings Disease after a 2-year search for answers. Thank you ?
Read more at \;LinkedIn
CATEGORIES:Cushings UID:20230930T1000160Z-549422-1680@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230106 SUMMARY:Webinar: Good Hormone Health Webinar Sunday January22\, 2023. 6 PM PST DESCRIPTION:Date Change! Dr. Theodore Friedman (The Wiz) will be joined by Eddie Ramirez\, MD and will discuss the 6 pillars of lifestyle medicine as applied to patients with Endocrine disorders Read more at https://cushing s.invisionzone.com/topic/57587-webinar-good-hormone-health-webinar-sunday- january-8-2023-6-pm-pst/ X-ALT-DESC;FMTTYPE=text/html:Date Change!
Dr. Theodore Friedman (The Wiz) will be joined by \ ;Eddie Ramirez\, MD \;and will discuss the 6 pillars of lifestyle medicine as applied to patients with Endocrine disor ders
Read more at \;https://cushings.invis ionzone.com/topic/57587-webinar-good-hormone-health-webinar-sunday-january -8-2023-6-pm-pst/
CATEGORIES:Events and Meetings UID:20221227T2353440Z-549422-1638@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251123 SUMMARY:Basics 911! Adrenal Crisis\, Addison’s/Adrenal Insufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301123;BYMONTHDAY=23 DESCRIPTION:Adrenal crisis occurs if the adrenal gland is deteriorating (Ad dison’s disease\, primary adrenal insufficiency)\, if there is pituitary g land injury (secondary adrenal insufficiency)\, or if adrenal insufficienc y is not adequately treated. Risk factors for adrenal crisis include physi cal stress such as infection\, dehydration\, trauma\, or surgery\, adrenal gland or pituitary gland injury\, and ending treatment with steroids such as prednisone or hydrocortisone too early. https://cushieblogger.com/2025 /11/22/basics-911-adrenal-crisis-addisons-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Adrenal crisis occurs if the adrenal gland is deteriorating (Addison&rsquo\;s disease\, primary adrenal insuffi ciency)\, if there is pituitary gland injury (secondary adrenal insufficie ncy)\, or if adrenal insufficiency is not adequately treated. Risk factors for adrenal crisis include physical stress such as infection\, dehydratio n\, trauma\, or surgery\, adrenal gland or pituitary gland injury\, and en ding treatment with steroids such as prednisone or hydrocortisone too earl y.
https://cushieblogger.com/2025/11/22/basics-911-adrenal-crisis -addisons-adrenal-insufficiency/
CATEGORIES:Cushings UID:20251123T0847180Z-549422-1999@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180929 SUMMARY:Kimberly N (Bedrock Mama)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200929;BYMONTHDAY=29 DESCRIPTION:Kimberley is from New Jersey. She is not yet diagnosed with C ushing's but has many symptoms and a cyst on her pineal gland. Read more a t https://cushingsbios.com/2018/09/29/kimberly-n-bedrock-mama-undiagnosed- bio/ X-ALT-DESC;FMTTYPE=text/html:Kimberley is from New Jersey. \; She i s not yet diagnosed with Cushing's but has many symptoms and a cyst on her pineal gland.
Read more at \;htt ps://cushingsbios.com/2018/09/29/kimberly-n-bedrock-mama-undiagnosed-bio/< /a>
CATEGORIES:Cushie Bios UID:20180929T1452030Z-549422-977@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210906 SUMMARY:Hypopituitarism and COVID-19 – exploring a possible bidirectional r elationship? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220906;BYMONTHDAY=6 DESCRIPTION:The pituitary gland acts like a double-edged sword for COVID-19 . On one end\, hypopituitarism predisposes patients to metabolic disorders like DM\, obesity\, and VFs\, all of which are known risk factors for COV ID-19. On the other hand\, COVID-19 may cause direct or indirect damage to the pituitary glands by entering the brain and inducing unfavorable vascu lar events – though evidence on this remains lesser in comparison to that of hypopituitarism. Ultimately\, the researchers of the current study conc lude that managing patients with hormonal insufficiencies optimally with s teroids is likely to improve outcomes in severe COVID-19. Read more at htt ps://cushings.invisionzone.com/topic/56056-hypopituitarism-and-covid-19-%E 2%80%93-exploring-a-possible-bidirectional-relationship/ X-ALT-DESC;FMTTYPE=text/html:The pituitary gland acts like a double-edge d sword for COVID-19. On one end\, hypopituitarism predisposes patients to metabolic disorders like DM\, obesity\, and VFs\, all of which are known risk factors for COVID-19.
On the other hand\, COVID-19 may cause direct or indirect damage to the pituitary glands by entering the brain an d inducing unfavorable vascular events &ndash\; though evidence on this re mains lesser in comparison to that of hypopituitarism. Ultimately\, the re searchers of the current study conclude that managing patients with hormon al insufficiencies optimally with steroids is likely to improve outcomes i n severe COVID-19.
Read more at \;https://cushings .invisionzone.com/topic/56056-hypopituitarism-and-covid-19-%E2%80%93-explo ring-a-possible-bidirectional-relationship/
CATEGORIES:News Items UID:20210906T1434310Z-549422-1421@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Dr. Theodore Friedman (The Wiz) will host a webinar on 'How to impr ove quality of life for those with no adrenals (BLA and Addison’s)' DTSTART;VALUE=DATE:20200504 DTEND;VALUE=DATE:20200505 RRULE:FREQ=WEEKLY;UNTIL=20200517;BYDAY=MO DESCRIPTION:Dr. Friedman will discuss topics including: Who should get an a drenalectomy? How do you optimally replace adrenal hormones? What laborato ry tests are needed to monitor replacement? When and how do you stress dos e? What about subcut cortisol versus cortisol pumps? Patient Melissa will lead a Q and A Red more at https://cushieblogger.com/2020/05/04/dr-theod ore-friedman-the-wiz-will-host-a-webinar-on-how-to-improve-quality-of-life -for-those-with-no-adrenals-bla-and-addisons/ X-ALT-DESC;FMTTYPE=text/html:Laparoscopic adrenalectomy is the sta ndard treatment for adrenal tumors caused by Cushing's syndrome. However\, few pregnant women have undergone adrenalectomy because of the risk of ge neral anesthesia and surgery.
CATEGORIES:Cushings UID:20230929T0832550Z-549422-1679@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20231012 SUMMARY:Intensity-Modulated Radiotherapy for Cushing’s Disease: Single-Cent er Experience in 70 Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301012;BYMONTHDAY=12 DESCRIPTION:Intensity-Modulated Radiotherapy for Cushing’s Disease was a hi ghly effective second-line therapy with low side effect profile for CD pat ients. Endocrine remission\, tumor control and recurrence rates were compa rable to previous reports on FRT and SRS. Read more at https://cushings.i nvisionzone.com/topic/57645-intensity-modulated-radiotherapy-for-cushing%E 2%80%99s-disease-single-center-experience-in-70-patients/ X-ALT-DESC;FMTTYPE=text/html:Intensity-Modulated Radiotherapy for Cushin g&rsquo\;s Disease was a highly effective second-line therapy with low sid e effect profile for CD patients. Endocrine remission\, tumor control and recurrence rates were comparable \;to previous reports on FRT and SRS .
CATEGORIES:Cushings UID:20231012T1144440Z-549422-1687@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Amy (Amybtru)\, Pituitary/Adrenal Bio DTSTART;VALUE=DATE:20220314 DTEND;VALUE=DATE:20220315 RRULE:FREQ=MONTHLY;UNTIL=20230208;BYDAY=2MO DESCRIPTION:It is an exhausting disease. I am waiting for surgery to remove the adrenal gland and tumour. Putting on weight\, loosing my hair\, devel oped diabetes\, recurring uni’s \, legs are getting very weak\, I’m a mess really. Let’s not despair too much though. Hope you get appropriate treat ment soon. Lots of ❤ Read more at https://cushingsbios.com/2021/06/13/am y-amybtru-pituitary-adrenal-bio/comment-page-1/#comment-58590 X-ALT-DESC;FMTTYPE=text/html:It is an exhausting disease. I am waiting f or surgery to remove the adrenal gland and tumour. Putting on weight\, loo sing my hair\, developed diabetes\, recurring uni&rsquo\;s \, legs are get ting very weak\, I&rsquo\;m a mess really. Let&rsquo\;s not despair too mu ch though. Hope you get appropriate treatment soon. Lots of ❤
&nbs p\;
Read more at \;https://cushingsbios.com/2021/06/13/amy-amybtru-pituitary-adrenal -bio/comment-page-1/#comment-58590
CATEGORIES:Cushie Bios UID:20220207T2105510Z-549422-1514@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20231020 SUMMARY:First-of-its Kind Hormone Replacement Treatment Shows Promise in Pa tient Trials RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301020;BYMONTHDAY=20 DESCRIPTION:The new 'pulsatility' therapy\, the culmination of ten years' r esearch by the Bristol team\, is designed to deliver standard hydrocortiso ne replacement to patients via a pump which replicates more closely cortis ol's natural rhythmic secretion pattern. The pulsatile subcutaneous pump h as now revealed promising results in its first clinical trial. Read more a t https://cushings.invisionzone.com/topic/57651-first-of-its-kind-hormone- replacement-treatment-shows-promise-in-patient-trials/ X-ALT-DESC;FMTTYPE=text/html:The new 'pulsatility' therapy\, the c ulmination of ten years' research by the Bristol team\, is designed to del iver standard hydrocortisone replacement to patients via a pump which repl icates more closely cortisol's natural rhythmic secretion pattern. The pul satile subcutaneous pump has now revealed promising results in its first c linical trial.
Read more at \;https://cushings.invisionzone.com/topic/57651-first-of-its-kind-hormone-r eplacement-treatment-shows-promise-in-patient-trials/
CATEGORIES:News Items UID:20231020T0933150Z-549422-1693@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Helpful Doctors: Ohio DTSTART;VALUE=DATE:20231118 DTEND;VALUE=DATE:20231119 RRULE:FREQ=MONTHLY;UNTIL=20301020;BYDAY=3FR DESCRIPTION:Dr. Correa has special expertise in transgender medicine\; neur oendocrinology\; and caring for adults with adrenal disorders\, such as Cu shing's syndrome\, Addison's disease\, primary hyperaldosteronism\, neuroe ndocrine tumors\, and rare endocrine conditions. Read more at https://cush ings.invisionzone.com/topic/57652-helpful-doctors-ricardo-correa/ X-ALT-DESC;FMTTYPE=text/html:Dr. Correa has special expertise in transge nder medicine\; neuroendocrinology\; and caring for adults with adrenal di sorders\, such as Cushing's syndrome\, Addison's disease\, primary hyperal dosteronism\, neuroendocrine tumors\, and rare endocrine conditions.
Read more at \;https:/ /cushings.invisionzone.com/topic/57652-helpful-doctors-ricardo-correa/
CATEGORIES:Helpful Doctors UID:20231020T0947270Z-549422-1694@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240403 SUMMARY:Corcept Completes Enrollment in Phase 3 Gradient Trial of Relacoril ant in Patients With Adrenal Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300403;BYMONTHDAY=3 DESCRIPTION:“Hypercortisolism with adrenal etiology affects many patients a nd is associated with serious cardiometabolic comorbidities\, including hy pertension and hyperglycemia\, and increased risk of premature death\,” sa id Bill Guyer\, PharmD\, Corcept’s Chief Development Officer. “GRADIENT is the first prospective placebo-controlled study to be conducted exclusivel y in these patients with Cushing’s syndrome. We expect data from GRADIENT in the fourth quarter of this year.” Read more at https://cushings.invisio nzone.com/topic/57710-corcept-completes-enrollment-in-phase-3-gradient-tri al-of-relacorilant-in-patients-with-adrenal-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;Hypercortisolism with adrenal etiology affects many patients and is associated with serious cardiometab olic comorbidities\, including hypertension and hyperglycemia\, and increa sed risk of premature death\,&rdquo\; said Bill Guyer\, PharmD\, Corcept&r squo\;s Chief Development Officer. &ldquo\;GRADIENT is the first prospecti ve placebo-controlled study to be conducted exclusively in these patients with Cushing&rsquo\;s syndrome. We expect data from GRADIENT in the fourth quarter of this year.&rdquo\;
CATEGORIES:Cushings UID:20240403T0845070Z-549422-1766@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240403 SUMMARY:Comment added to Day 3: Cushing’s Awareness Challenge RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300403;BYMONTHDAY=3 EXDATE;VALUE=DATE:20240803 DESCRIPTION:Wow - a lot has happened since I first shared this post. If yo u look at the timestamp\, I'm writing this at 4:20 am and I've been awake for an hour\, even though I'm exhausted. I have been back on Growth Hormon e although it doesn't seem to do me any good. Read more at https://cushing s.invisionzone.com/topic/56745-day-3-cushing%E2%80%99s-awareness-challenge -2022/?do=findComment&comment=478719 X-ALT-DESC;FMTTYPE=text/html:Wow - a lot has happened since I first shar ed this post. \; If you look at the timestamp\, I'm writing this at 4: 20 am and I've been awake for an hour\, even though I'm exhausted.
I have been back on Growth Hormone although it doesn't seem to do me any good.
Read more at \;https://cushings. invisionzone.com/topic/56745-day-3-cushing%E2%80%99s-awareness-challenge-2 022/?do=findComment&\;comment=478719
CATEGORIES:Awareness Challenge UID:20240403T0835260Z-549422-1765@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Laparoscopic Removal of Adrenal Glands Safe for Obese Cushing’s Pat ients DTSTART;VALUE=DATE:20190413 DTEND;VALUE=DATE:20190414 RRULE:FREQ=MONTHLY;UNTIL=20200309;BYDAY=2SA DESCRIPTION:Laparoscopic adrenalectomy — a minimally invasive procedure tha t removes the adrenal glands through a tiny hole in the abdomen — can be s afely performed in obese patients with Cushing’s syndrome\, a retrospectiv e study reports. The surgery resolved symptoms in 95% of cases\, reducing cortisol levels\, lowering blood pressure\, and leading to a significant l oss of weight in morbidly obese patients. Read more at https://cushieblog. com/2019/03/09/laparoscopic-removal-of-adrenal-glands-safe-for-obese-cushi ngs-patients/ X-ALT-DESC;FMTTYPE=text/html:Laparoscopic adrenalectomy &mdash\; a minim ally invasive procedure that removes the adrenal glands through a tiny hol e in the abdomen &mdash\; can be safely performed in obese patients with C ushing&rsquo\;s syndrome\, a \;retrospective study reports.
Th e surgery resolved symptoms in 95% of cases\, reducing cortisol levels\, l owering blood pressure\, and leading to a significant loss of weight in mo rbidly obese patients.
Read more at \;https://cushieblog.com/2019/03/09/lapar oscopic-removal-of-adrenal-glands-safe-for-obese-cushings-patients/
CATEGORIES:News Items UID:20190309T1256200Z-549422-1097@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240217 SUMMARY:Spreading the Word RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270217;BYMONTHDAY=17 DESCRIPTION:I had the opportunity to be in both Fair Oaks Emergency Room an d the hospital in Fairfax\, VA over the last couple days. Whenever a nurs e/medical tech mentioned steroids\, I asked what they knew about Cushing's . One asked if it was a medication. DUH!… Read more at https://cushings. invisionzone.com/topic/57694-spreading-the-word/ X-ALT-DESC;FMTTYPE=text/html:I had the opportunity to be in both Fair Oa ks Emergency Room and the hospital in Fairfax\, VA over the last couple da ys. \;Whenever a nurse/medical tech mentioned steroids\, I asked what they knew about Cushing's. \;One asked if it was a medication. \;DUH!&hellip\;
Read more at \;https://cushings.invisionzone.com/topic/57694-spreading-the-word/
CATEGORIES:Cushings UID:20240217T1331060Z-549422-1745@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20231102 SUMMARY:Cushing's Syndrome Presenting as Non-Atherosclerotic Myocardial Inf arction and Heart Failure RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301102;BYMONTHDAY=2 DESCRIPTION:Cushing's syndrome is a rare cause of myocardial infarction and heart failure. Herein\, we report a female patient who presented acute my ocardial infarction and heart failure with reduced ejection fraction. The patient was found to have hypercortisolism secondary to adrenocortical ade noma and responded well to therapy. This case underlines the effects of hy percortisolism on the cardiovascular system. The clinical presentation of this patient is unique because non-atherosclerotic myocardial infarction i s rarely reported in Cushing's syndrome patients. Read more at https://cus hings.invisionzone.com/topic/57660-cushings-syndrome-presenting-as-non-ath erosclerotic-myocardial-infarction-and-heart-failure/ X-ALT-DESC;FMTTYPE=text/html:Cushing's syndrome is a rare cause of myocardial infarction and heart failure. Herein\, we report a female pati ent who presented acute myocardial infarction and heart failure with reduc ed ejection fraction. The patient was found to have hypercortisolism secon dary to adrenocortical adenoma and responded well to therapy. This case un derlines the effects of hypercortisolism on the cardiovascular system. The clinical presentation of this patient is unique because non-atherosclerot ic myocardial infarction is rarely reported in Cushing's syndrome patients .
Read more at \; https://cushings.invisionzone.com/topic/57660-cushings-syndrome-presenting -as-non-atherosclerotic-myocardial-infarction-and-heart-failure/
CATEGORIES:Cushings UID:20231102T0939070Z-549422-1701@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Cushing's Book Review: True story of woman's abuse is open\, honest DTSTART;VALUE=DATE:20190525 DTEND;VALUE=DATE:20190526 RRULE:FREQ=MONTHLY;UNTIL=20200427;BYDAY=-1SA DESCRIPTION:In spite of the kindness of a therapist and a courageous divorc e in which she attains freedom from abuse for herself and her daughters\, Barbara cannot shake a profound depression that leads to three suicide att empts. Deeply religious and spiritual\, Barbara prays for enlightenment\, or at the very least\, a release from mental torment. But when she is comm itted to a mental hospital\, she experiences a jolting loss of personal fr eedom and brutal treatment. It seems that she has gone from a life of torm ent to a life of torment in a new kind of hell. But through the attentive and kind professionalism of a nurse named Nancy\, who notices markings on her body that seem to indicate Barbara has an undiagnosed medical conditio n\, just recently discussed in medical journals\, Barbara is released on m edical advice to an NIH hospital in Bethesda\, Md. It is at that point tha t her story mercifully changes for the better in her climb to effective tr eatments for Cushing's disease\, pituitary cancer and a chance to recover her life. Read more at https://amzn.to/2GCDit6 X-ALT-DESC;FMTTYPE=text/html:In spite of the kindness of a therapist and a courageous divorce in which she attains freedom from abuse for herself and her daughters\, Barbara cannot shake a profound depression that leads to three suicide attempts. Deeply religious and spiritual\, Barbara prays for enlightenment\, or at the very least\, a release from mental torment. But when she is committed to a mental hospital\, she experiences a jolting loss of personal freedom and brutal treatment. It seems that she has gone from a life of torment to a life of torment in a new kind of hell. But th rough the attentive and kind professionalism of a nurse named Nancy\, who notices markings on her body that seem to indicate Barbara has an undiagno sed medical condition\, just recently discussed in medical journals\, Barb ara is released on medical advice to an NIH hospital in Bethesda\, Md. It is at that point that her story mercifully changes for the better in her c limb to effective treatments for Cushing's disease\, pituitary cancer and a chance to recover her life.
Read more at \;https://amzn.to/2GCDit6
CATEGORIES:Cushings UID:20190427T1600040Z-549422-1151@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190311 SUMMARY:Even in Remission\, Cushing’s Patients Have Excess Mortality RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200311;BYMONTHDAY=11 DESCRIPTION:The outcomes of Cushing’s disease patients have improved with t he introduction of several therapeutic approaches\, such as minimally inva sive surgery and cortisol-lowering therapies. However\, mortality is still high\, especially among those who do not achieve remission. Read more at https://cushieblog.com/2019/03/11/even-in-remission-cushings-patients-have -excess-mortality/ X-ALT-DESC;FMTTYPE=text/html:The outcomes of Cushing&rsquo\;s disease pa tients have improved with the introduction of several therapeutic approach es\, such as minimally invasive surgery and cortisol-lowering therapies. H owever\, mortality is still high\, especially among those who do not achie ve remission.
Read more at \;https://cushieblog.com/2019/03/11/even-in-remission-cushings-p atients-have-excess-mortality/
CATEGORIES:Cushings UID:20190311T2136170Z-549422-1100@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Giving Thanks: Day Twenty RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301120;BYMONTH=11;BYMONTHDAY=20 DTSTART;VALUE=DATE:20231120 DTEND;VALUE=DATE:20231121 DESCRIPTION:My Cushing’s has been in remission for most of these 36 years. Due to scarring from my pituitary surgery\, I developed adrenal insufficie ncy. I took growth hormone for a while. When I got kidney cancer\, I had t o stop the GH Read more at https://www.maryo.co/giving-thanks-day-20/ X-ALT-DESC;FMTTYPE=text/html:My Cushing&rsquo\;s has been in remission f or most of these 36 years. Due to scarring from my pituitary surgery\, I d eveloped adrenal insufficiency.
I took growth hormone for a while.
When I got kidney cancer\, I had to stop the GH
Read more at \;https://www.maryo.co/giving-thanks-day-20/
CATEGORIES:Cushie Bios UID:20231120T1943580Z-549422-1714@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Dr. Friedman Webinar on Optimal replacement for Hypopituitarism and Sheehan’s DTSTART;VALUE=DATE:20231125 DTEND;VALUE=DATE:20231126 RRULE:FREQ=WEEKLY;UNTIL=20231206;BYDAY=MO,WE,SA DESCRIPTION:Dr. Theodore Friedman (the Wiz) will be giving a webinar on Opt imal replacement for Hypopituitarism and Sheehan’s: Oxytocin\, testosteron e\, growth hormone\, stimulants and beyond Learn what most Endocrinologist s don’t know about but will improve your quality of life Read more at http s://cushings.invisionzone.com/topic/57669-dr-friedman-webinar-on-optimal-r eplacement-for-hypopituitarism-and-sheehan%E2%80%99s/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman (the Wiz) will be giv ing a webinar on Optimal replacement for Hypopituitarism and Sheehan&rsquo \;s: Oxytocin\, testosterone\, growth hormone\, stimulants and beyond
Learn what most Endocrinologists don&rsquo\;t know about but will impr ove your quality of life
Read more at \;https://cushings.invisionzone.com/topic/57669-dr-friedman-webinar-on-op timal-replacement-for-hypopituitarism-and-sheehan%E2%80%99s/
CATEGORIES:Events and Meetings UID:20231125T2016570Z-549422-1716@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 11: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250412;BYMONTH=4;BYMONTHDAY=12 DTSTART;VALUE=DATE:20190412 DTEND;VALUE=DATE:20190413 DESCRIPTION:The night before I was admitted\, I signed my will. I was sure I was going to die at NIH. If not during testing\, as a result of surger y. The scary this is that I didn't really care. I'd rather take this cha nce than continue to live with Cushing's. The first time I was there was f or 6 weeks as an inpatient. More of the same tests\, except for one that t hey don't do anymore. I guess it didn't really work for Cushing's. Read m ore at https://cushieblogger.com/2019/04/11/day-11-cushings-awareness-chal lenge-2019/ X-ALT-DESC;FMTTYPE=text/html:The night before I was admitted\, I signed my will. \;I was sure I was going to die at NIH. \;If not during testing\, as a result of surgery. \;The scary this is that I didn't really care. \;I'd rather take this chance than continue to live with Cushing's.
The first time I was there was for 6 weeks as an inpat ient. More of the same tests\, except for one that they don't do anymore. \;I guess it didn't really work for Cushing's.
Read more at&n bsp\;https://cushieblogger.com/2019/04/11/d ay-11-cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190412T1254480Z-549422-1127@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190316 SUMMARY:Video: How the Body Works: The Adrenal Cortex and Medulla RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200316;BYMONTHDAY=16 DESCRIPTION:...Two different regions are distinguishable--the cortex\, cont rolled by the pituitary hormone ACTH\, produces hormones which maintain bo dy chemistry\, and the medulla\, which secretes adrenaline and noradrenali ne to increase body activity. See the video at https://cushieblogger.com/2 019/03/16/video-how-the-body-works-the-adrenal-cortex-and-medulla/ X-ALT-DESC;FMTTYPE=text/html:...Two different regions are distinguishabl e--the cortex\, controlled by the pituitary hormone ACTH\, produces hormon es which maintain body chemistry\, and the medulla\, which secretes adrena line and noradrenaline to increase body activity.
See the video at \;https://cushieblogger .com/2019/03/16/video-how-the-body-works-the-adrenal-cortex-and-medulla/
CATEGORIES:Cushings UID:20190317T1347110Z-549422-1103@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Bilateral adrenocortical Adenomas Causing Adrenocorticotropic Hormo ne-Independent Cushing's Syndrome DTSTART;VALUE=DATE:20190624 DTEND;VALUE=DATE:20190625 RRULE:FREQ=MONTHLY;UNTIL=20200527;BYDAY=-1MO DESCRIPTION:Adrenocorticotropic hormone (ACTH)-independent Cushing's syndro me (CS) is mostly due to unilateral tumors\, with bilateral tumors rarely reported. Its common causes include primary pigmented nodular adrenocortic al disease\, ACTH-independent macronodular adrenal hyperplasia\, and bilat eral adrenocortical adenomas (BAAs) or carcinomas. BAAs causing ACTH-indep endent CS are rare\; up to now\, fewer than 40 BAA cases have been reporte d. The accurate diagnosis and evaluation of BAAs are critical for determin ing optimal treatment options. Adrenal vein sampling (AVS) is a good way t o diagnose ACTH-independent CS. Read more at https://cushieblog.com/2019/0 5/27/bilateral-adrenocortical-adenomas-causing-adrenocorticotropic-hormone -independent-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Adrenocorticotropic hormone (ACTH)-independ ent Cushing's syndrome (CS) is mostly due to unilateral tumors\, with bila teral tumors rarely reported. Its common causes include primary pigmented nodular adrenocortical disease\, ACTH-independent macronodular adrenal hyp erplasia\, and bilateral adrenocortical adenomas (BAAs) or carcinomas. BAA s causing ACTH-independent CS are rare\; up to now\, fewer than 40 BAA cas es have been reported. The accurate diagnosis and evaluation of BAAs are c ritical for determining optimal treatment options. Adrenal vein sampling ( AVS) is a good way to diagnose ACTH-independent CS.
Read more at&n bsp\;https://cushieblog.com/2019/05/27/bilateral-adrenocortic al-adenomas-causing-adrenocorticotropic-hormone-independent-cushings-syndr ome/
CATEGORIES:News Items UID:20190527T1803480Z-549422-1171@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190410 SUMMARY:Day 10: Cushing’s Awareness Challenge 2018 DESCRIPTION:In the fall of 2002 my endo refused to discuss my fatigue or an ything at all with me until I lost 10 pounds. He said I wasn’t worth treat ing in my overweight condition and that I was setting myself up for a hear t attack. He gave me 3 months to lose this weight. Those 3 months included Thanksgiving\, Christmas and New Years. Needless to say\, I left his off ice in tears\, again. Read more at https://cushieblogger.com/2018/04/10/da y-10-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:In the fall of 2002 my endo refused to disc uss my fatigue or anything at all with me until I lost 10 pounds. He said I wasn&rsquo\;t worth treating in my overweight condition and that I was s etting myself up for a heart attack. He gave me 3 months to lose this weig ht. Those 3 months included Thanksgiving\, Christmas and New Years. \ ;Needless to say\, I left his office in tears\, again.
Read more a t \;https://cushieblogger.com/2018/04/1 0/day-10-cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20190412T1253480Z-549422-1126@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 12: Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300412;BYMONTH=4;BYMONTHDAY=12 DTSTART;VALUE=DATE:20190412 DTEND;VALUE=DATE:20190413 DESCRIPTION:As luck would have it\, NIH (National Institutes of Health\, Be thesda\, Maryland) was doing a clinical trial of Cushing's. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH\, Ma yo Clinic and a place in Quebec to do this then-rare pituitary surgery cal led a Transsphenoidal Resection. Read more at https://cushings-help.com/20 25/04/12/day-12-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:As luck would have it\, NIH (National Insti tutes of Health\, Bethesda\, Maryland) was doing a clinical trial of Cushi ng's. I live in the same area as NIH so it was not too inconvenient but ve ry scary at first to think of being tested there. At that time I only had a choice of NIH\, Mayo Clinic and a place in Quebec to do this then-rare p ituitary surgery called a Transsphenoidal Resection.
Read more at& nbsp\;https://cushings-help.com/2 025/04/12/day-12-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250412T1216490Z-549422-1128@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200120 SUMMARY:Adrenocortical Carcinoma and Pulmonary Embolism From Tumoral Extens ion RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210120;BYMONTHDAY=20 DESCRIPTION:Cushing syndrome or a mixed picture of excess androgen and gluc ocorticoid production are the most common presentations of Adrenococortica l carcinoma. Other uncommon presentations include abdominal pain and adren al incidentalomas. In the present report\, a 71-year-old male presented wi th abdominal pain and was eventually diagnosed with ACC. He was found to h ave pulmonary thromboembolism following an investigation for hypoxemia\, w ith the tumor thrombus extending upto the right atrium. This interesting c ase represents the unique presentation of a rare tumor\, which if detected late or left untreated is associated with poor outcomes\, highlighting th e need for a low index of suspicion for ACC when similar presentations are encountered in clinical practice. Read more at http://cushings.invisionzo ne.com/topic/55001-adrenocortical-carcinoma-and-pulmonary-embolism-from-tu moral-extension/?tab=comments#comment-475056 X-ALT-DESC;FMTTYPE=text/html:Cushing syndrome or a mixed picture of exce ss androgen and glucocorticoid production are the most common presentation s of Adrenococortical carcinoma. Other uncommon presentations include abdo minal pain and adrenal incidentalomas. In the present report\, a 71-year-o ld male presented with abdominal pain and was eventually diagnosed with AC C. He was found to have pulmonary thromboembolism following an investigati on for hypoxemia\, with the tumor thrombus extending upto the right atrium . This interesting case represents the unique presentation of a rare tumor \, which if detected late or left untreated is associated with poor outcom es\, highlighting the need for a low index of suspicion for ACC when simil ar presentations are encountered in clinical practice.
CATEGORIES:News Items UID:20200120T1435360Z-549422-1228@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180308 SUMMARY:Cushing’s Patients at Risk for Autoimmune Diseases After Condition Is Resolved RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190308;BYMONTHDAY=8 DESCRIPTION:Patients with Cushing’s syndrome have excess levels of the horm one cortisol\, a corticosteroid that inhibits the effects of the immune sy stem. As a result\, these patients are protected from autoimmune and relat ed diseases. But it is not known if the risk rises after their disease is resolved. Read more at https://cushieblog.com/2018/03/08/cushings-patients -at-risk-for-autoimmune-diseases-after-condition-is-resolved/ X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing&rsquo\;s syndrome hav e excess levels of the hormone cortisol\, a corticosteroid that inhibits t he effects of the immune system. As a result\, these patients are protecte d from \;autoimmune and related diseases. \;But it is not known if the risk rises after their disease is resolved.
Read more at \;https:/ /cushieblog.com/2018/03/08/cushings-patients-at-risk-for-autoimmune-diseas es-after-condition-is-resolved/
CATEGORIES:News Items UID:20180308T1412520Z-549422-847@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240210 SUMMARY:A Rare Case When Acromegaly Meets Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300210;BYMONTHDAY=10 DESCRIPTION:Acromegaly is very uncommon\, as is non-iatrogenic Cushing synd rome\; we discuss a patient who was found to have both a pituitary adenoma causing acromegaly and a cortisol-producing adrenal adenoma causing Cushi ng syndrome within 1 year. Read more at https://cushings.invisionzone.com /topic/57692-a-rare-case-when-acromegaly-meets-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Acromegaly is very uncommon\, as is n on-iatrogenic Cushing syndrome\; we discuss a patient who was found to hav e both a pituitary adenoma causing acromegaly and a cortisol-producing adr enal adenoma causing Cushing syndrome within 1 year. \;
Read more at \;https://cushings.invisionzone.com/topic/57692-a-rare-case -when-acromegaly-meets-cushing-syndrome/
CATEGORIES:Cushings UID:20240210T1459200Z-549422-1743@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190223 SUMMARY:Comment added to Early Detection\, Treatment Needed To Reduce Risk Of Death\, Cardiovascular Disease In Cushing’s Disease Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200223;BYMONTHDAY=23 DESCRIPTION:...I don’t eat much but have fat deposits in the areas associat ed with Cushing’s. My skin tears easily\, I bruise easily\, I have digesti ve disturbances\, my face is rounder\, my hair is way thinner\, I have ach es and pain which is mail a very stiff and aching neck. I have other offer s places of pain that seem to change locations. I have double vision that gets better and then worse.... In the comments area of https://cushieblog. com/2013/02/20/early-detection-treatment-needed-to-reduce-risk-of-death-ca rdiovascular-disease-in-cushings-disease-patients/ X-ALT-DESC;FMTTYPE=text/html:...I don&rsquo\;t eat much but have fat dep osits in the areas associated with Cushing&rsquo\;s. My skin tears easily\ , I bruise easily\, I have digestive disturbances\, my face is rounder\, m y hair is way thinner\, I have aches and pain which is mail a very stiff a nd aching neck. I have other offers places of pain that seem to change loc ations. I have double vision that gets better and then worse....
I n the comments area of \;https://cushieblog.com/ 2013/02/20/early-detection-treatment-needed-to-reduce-risk-of-death-cardio vascular-disease-in-cushings-disease-patients/
CATEGORIES:Cushie Bios UID:20190223T1923320Z-549422-1087@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211211 SUMMARY:Assessment of Vitamin D Metabolism in Patients with Cushing’s Disea se RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221211;BYMONTHDAY=11 DESCRIPTION:In this study we aimed to assess vitamin D metabolism in patien ts with Cushing’s disease (CD) compared to healthy individuals in the sett ing of bolus cholecalciferol treatment. The study group included 30 adults with active CD... Read more at https://cushings.invisionzone.com/topic/56 363-assessment-of-vitamin-d-metabolism-in-patients-with-cushing%E2%80%99s- disease/ X-ALT-DESC;FMTTYPE=text/html:In this study we aimed to assess vitamin D metabolism in patients with Cushing&rsquo\;s disease (CD) compared to heal thy individuals in the setting of bolus cholecalciferol treatment. The stu dy group included 30 adults with active CD...
Read more at \;< a href='https://cushings.invisionzone.com/topic/56363-assessment-of-vitami n-d-metabolism-in-patients-with-cushing%E2%80%99s-disease/' target='_blank '>https://cushings.invisionzone.com/topic/56363-assessment-of-vitamin-d-me tabolism-in-patients-with-cushing%E2%80%99s-disease/
CATEGORIES:News Items UID:20211211T1422060Z-549422-1480@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211129 SUMMARY: Basics: Testing: Dex Tests RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301129;BYMONTHDAY=29 DESCRIPTION:Dexamethasone suppression test measures whether adrenocorticotr ophic hormone (ACTH) secretion by the pituitary can be suppressed. How the Test is Performed During this test\, you will receive dexamethasone. This is a strong man-made (synthetic) glucocorticoid medicine. Afterward\, you r blood is drawn so that the cortisol level in your blood can be measured. Read more at https://cushings.invisionzone.com/topic/56292-testing-dex-te sts/ X-ALT-DESC;FMTTYPE=text/html:Dexamethasone supp ression test measures whether adrenocorticotrophic hormone (ACTH) secretion by the pituitary can b e suppressed.
During this test\, you will receive dexamethasone. This is a strong man-made (syntheti c) glucocorticoid medicine. Afterward\, your blood is drawn so that the co rtisol level in your blood can be measured.
Read more at \;https://cushings.invisionzone.com/topic/56292-testing-dex-te sts/
Evaluate whether age-related differen ces exist in clinical characteristics\, diagnostic approach and management strategies in patients with Cushing&rsquo\;s syndrome included in the Eur opean Registry on Cushing&rsquo\;s Syndrome (ERCUSYN).
CATEGORIES:News Items UID:20230303T1122350Z-549422-1643@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Jamie\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301123;BYMONTH=11;BYMONTHDAY=23 DTSTART;VALUE=DATE:20251123 DTEND;VALUE=DATE:20251124 DESCRIPTION:I am still in remission currently\, but not who I used to be. Still requiring naps a couple of times a day and to bed early . I have a lot of trouble concentrating\, so I can’t drive more than 30 minutes or as my friend says\, “my inner canine comes out” and I start staring out the window…kind of forgetting i’m driving. It’s funny but not really. what a wild ride this has been. https://cushingsbios.com/2025/11/23/jamie-pituit ary-bio/ X-ALT-DESC;FMTTYPE=text/html:I am still in remission currently\, but not who I used to be. \;Still requiring naps a couple of times a day and to bed early . \;I have a lot of trouble concentrating\, so I can&rs quo\;t drive more than 30 minutes or as my friend says\, &ldquo\;my inner canine comes out&rdquo\; and I start staring out the window&hellip\;kind o f forgetting i&rsquo\;m driving. \;It&rsquo\;s funny but not really. \;what a wild ride this has been.
https://cushingsbios.com/20 25/11/23/jamie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251123T1059530Z-549422-2000@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251101 SUMMARY:Sleep Impairment Similar in Cushing Syndrome\, Mild Autonomous Cort isol Secretion RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301101;BYMONTHDAY=1 DESCRIPTION:Patients with Cushing syndrome and mild autonomous cortisol sec retion experienced similar degrees of sleep impairment. https://cushings.i nvisionzone.com/topic/57907-sleep-impairment-similar-in-cushing-syndrome-m ild-autonomous-cortisol-secretion/ X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing syndrome and mild aut onomous cortisol secretion experienced similar degrees of sleep impairment .
CATEGORIES:Cushings UID:20251102T1304520Z-549422-1962@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240104 SUMMARY:FDA Grants Breakthrough Therapy Designation for Oral Congenital Adr enal Hyperplasia Drug RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300104;BYMONTHDAY=4 DESCRIPTION:The FDA granted breakthrough therapy designation for an oral no n-glucocorticoid medication for the treatment of congenital adrenal hyperp lasia\, according to an industry press release. Crinecerfont (Neurocrine B iosciences) is a selective corticotropin-releasing factor type 1 receptor antagonist under development to lower excess adrenal androgens for people with congenital adrenal hyperplasia due to 21-hyroxylase deficiency. Read more at https://cushings.invisionzone.com/topic/57679-fda-grants-breakthro ugh-therapy-designation-for-oral-congenital-adrenal-hyperplasia-drug/ X-ALT-DESC;FMTTYPE=text/html:The FDA granted breakthrough therapy design ation for an oral non-glucocorticoid medication for the treatment of conge nital adrenal hyperplasia\, according to an industry press release.
< p>Crinecerfont (Neurocrine Biosciences) is a selective corticotropin-relea sing factor type 1 receptor antagonist under development to lower excess a drenal androgens for people with congenital adrenal hyperplasia due to 21- hyroxylase deficiency. CATEGORIES:News Items UID:20240104T1346130Z-549422-1727@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Cyclic Cortisol Production May Lead to Misdiagnosis in Cushing’s DTSTART;VALUE=DATE:20190510 DTEND;VALUE=DATE:20190511 RRULE:FREQ=MONTHLY;UNTIL=20200412;BYDAY=2FR DESCRIPTION:Subclinical Cushing’s syndrome is an asymptomatic condition cha racterized by mild cortisol excess without the specific signs of Cushing’s syndrome. The long-term exposure to excess cortisol may lead to cardiovas cular problems in these patients.....However\, cortisol secretion can be c yclic in Cushing’s syndrome\, meaning that clinicians might not detect exc ess amounts of cortisol at first and misdiagnose patients. Read more at ht tps://cushieblog.com/2019/04/12/cyclic-cortisol-production-may-lead-to-mis diagnosis-in-cushings/ X-ALT-DESC;FMTTYPE=text/html:Subclinical Cushing&rsquo\;s syndrome is an asymptomatic condition characterized by mild cortisol excess without the specific signs of Cushing&rsquo\;s syndrome. The long-term exposure to exc ess cortisol may lead to cardiovascular problems in these patients.....How ever\, cortisol secretion can be cyclic in Cushing&rsquo\;s syndrome\, mea ning that clinicians might not detect excess amounts of cortisol at first and misdiagnose patients.
Read more at \;https://cushieblog.com/2019/04/12/cyclic-cor tisol-production-may-lead-to-misdiagnosis-in-cushings/
CATEGORIES:News Items UID:20190412T1414350Z-549422-1130@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190401 SUMMARY:Kara E (Pollyanna Pitbull)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200401;BYMONTHDAY=1 DESCRIPTION:Kara is from Woodstock\, Ga. She was recently diagnosed with Cu shing's\, Lupus\, APS and Osteoporosis Read her bio at https://cushingsbio s.com/2019/04/01/kara-e-pollyanna-pitbull-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Kara is from Woodstock\, Ga. She was recent ly diagnosed with Cushing's\, Lupus\, APS and Osteoporosis
Read he r bio at \;https://cushingsbios.com/2019/04/ 01/kara-e-pollyanna-pitbull-adrenal-bio/
CATEGORIES:Cushie Bios UID:20190401T1301170Z-549422-1110@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Testimonial From Christina P DTSTART;VALUE=DATE:20180818 DTEND;VALUE=DATE:20180819 RRULE:FREQ=MONTHLY;UNTIL=20190721;BYDAY=3SA DESCRIPTION:I found it 11 years ago quite by accident and it not only chang ed my life but saved my life! Thank you\, Mary Kelly O'Connor! Read more at https://cushieblogger.com/testimonial/christina-p-5/ X-ALT-DESC;FMTTYPE=text/html:I found it 11 years ago quite by accident a nd it not only changed my life but saved my life! Thank you\, Mary Kelly O 'Connor! \;
Read more at \;https://cushieblogger.com /testimonial/christina-p-5/
CATEGORIES:Cushings UID:20180721T1532480Z-549422-956@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:18 Years Cancer-Free! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300510;BYMONTH=5;BYMONTHDAY=10 DTSTART;VALUE=DATE:20240510 DTEND;VALUE=DATE:20240511 DESCRIPTION:Today is the Eighteenth Anniversary of my kidney cancer surgery . These eighteen years have been bonus years for me. For my cancer stage \, the 5-year survival rate was 81% and I’ve made it more than three times that long – so far. Read more at https://maryomedical.com/2024/05/09/17-y ears-kidney-cancer-free/ X-ALT-DESC;FMTTYPE=text/html:Today is the Eighteenth Anniversary of my k idney cancer surgery. \;These eighteen years have been bonus years fo r me. \;For my cancer stage\, the 5-year survival rate was 81% and I& rsquo\;ve made it more than three times that long &ndash\; so far.
Read more at \;https://maryomedical.com/2024/05/09/17 -years-kidney-cancer-free/
CATEGORIES:Other Medical UID:20240510T1230270Z-549422-1785@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Adrenal Venous Sampling Helps Surgical Decisions in Type of Cushing ’s DTSTART;VALUE=DATE:20181107 DTEND;VALUE=DATE:20181108 RRULE:FREQ=MONTHLY;UNTIL=20191002;BYDAY=1TU DESCRIPTION:Cushing’s syndrome patients with tumors on both adrenal glands — which sit on top of the kidneys — could undergo adrenal venous sampling\ , a procedure where blood samples are taken from both adrenal glands to de termine which tumors to remove\, researchers suggest. Read more at https:/ /cushieblog.com/2018/10/02/adrenal-venous-sampling-helps-surgical-decision s-in-type-of-cushings/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome \;patients wi th tumors on both adrenal glands &mdash\; which sit on top of the kidneys &mdash\; \;could undergo adrenal venous sampling\, a procedure where b lood samples are taken from both adrenal glands to determine which tumors to remove\, researchers suggest.
Read more at \;https://cushieblog.com/2018/10/0 2/adrenal-venous-sampling-helps-surgical-decisions-in-type-of-cushings/
CATEGORIES:News Items UID:20181002T2145050Z-549422-988@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Memory: Dr. Edward Hudson Oldfield\, September 1\, 2017 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300901;BYMONTH=9;BYMONTHDAY=1 DTSTART;VALUE=DATE:20170901 DTEND;VALUE=DATE:20170902 DESCRIPTION:Dr. Oldfield was MaryO's surgeon at the NIH November 3\, 1987. This was back in the olden days of transsphenoidal surgery. I honestly e xpected to die but this man saved my life. Read more at https://cushingsbi os.com/2020/09/01/in-memory-of-dr-edward-hudson-oldfield-september-1-2017/ X-ALT-DESC;FMTTYPE=text/html:Dr. Oldfield \;was \;MaryO's \;surgeon at the NIH November 3\, 1987. \; \;This was back in the olden days of tra nssphenoidal surgery. \; I honestly expected to die but this man saved my life.
Read more at \;https://cushingsbios.com/2020/09/01/in-memory-of-dr -edward-hudson-oldfield-september-1-2017/
CATEGORIES:In Memory UID:20220905T0919240Z-549422-891@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Roxanna (Dawn)\, Undiagnosed Bio DTSTART;VALUE=DATE:20180507 DTEND;VALUE=DATE:20180508 RRULE:FREQ=MONTHLY;UNTIL=20190402;BYDAY=1MO DESCRIPTION:Roxanna is from San Jose\, CA. Among other symptoms\, she has a large abdomen\, low thyroid and high testosterone\, purple stretch marks \, edema in ankles and legs\, extreme joint pain and vitamin D deficiency. Read more at https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnose d-bio/ X-ALT-DESC;FMTTYPE=text/html:Roxanna is from San Jose\, CA. \;Among other symptoms\, she has a large abdomen\, low thyroid and high testoster one\, purple stretch marks\, edema in ankles and legs\, extreme joint pain and vitamin D deficiency. \;
Read more at \;https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180402T1512580Z-549422-869@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220228 SUMMARY:A Case of Acute Exacerbation of Chronic Hepatitis C During the Cour se of Adrenal Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240228;BYMONTHDAY=28 DESCRIPTION:A 50-year-old woman with adrenal Cushing's syndrome and chronic hepatitis C developed an acute exacerbation of chronic hepatitis C before adrenectomy. After administration of glecaprevir/pibrentasvir was started \, her transaminase levels normalized promptly and a rapid virological res ponse also was achieved. Laparoscopic left adrenectomy was then performed safely. Read more at https://cushings.invisionzone.com/topic/56625-a-case- of-acute-exacerbation-of-chronic-hepatitis-c-during-the-course-of-adrenal- cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A 50-year-old woman with adrenal Cushing's syndrome and chronic hepatitis C developed an acute exacerbation of chroni c hepatitis C before adrenectomy. After administration of glecaprevir/pibr entasvir was started\, her transaminase levels normalized promptly and a r apid virological response also was achieved. Laparoscopic left adrenectomy was then performed safely.
CATEGORIES:News Items UID:20220228T1308260Z-549422-1522@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Day 15\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300415;BYMONTH=4;BYMONTHDAY=15 DTSTART;VALUE=DATE:20240415 DTEND;VALUE=DATE:20240416 DESCRIPTION:So\, I've been back on the growth hormone for about 8 years. I still don't feel like it's doing much/any good but it must be since tests come out ok\, my endo still prescribes it and my insurance still pays for a huge chunk of it. Read more at https://cushings.invisionzone.com/topic/ 56835-day-15-cushing%E2%80%99s-awareness-challenge-2022/?do=findComment&co mment=478739 X-ALT-DESC;FMTTYPE=text/html:So\, I've been back on the growth hor mone for about 8 years. \; I still don't feel like it's doing much/any good but it must be since tests come out ok\, my endo still prescribes it and my insurance still pays for a huge chunk of it.
Read more at \;https://cushings.invisionzone. com/topic/56835-day-15-cushing%E2%80%99s-awareness-challenge-2022/?do=find Comment&\;comment=478739
CATEGORIES:Awareness Challenge UID:20240415T0918320Z-549422-1776@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20231009 SUMMARY:Helpful Doctors: Dr. Sandeep Kunwar RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301009;BYMONTHDAY=9 DESCRIPTION:Dr. Kunwar specializes in gamma knife radiosurgery for metastat ic and primary brain tumors\, and uses the endonasal approach for pituitar y tumors. His research works to improve surgical therapy for brain tumors\ , particularly glioblastomas. He has pioneered a minimally invasive surgic al technique for skull-based tumors and has successfully applied that skil l to transcranial and spine patients as well. Read more at https://cushing s.invisionzone.com/topic/57644-dr-sandeep-kunwar/ X-ALT-DESC;FMTTYPE=text/html:Dr. Kunwar specializes in gamma knife radiosurgery for metastatic and primary brain tumors\, and uses the endon asal approach for pituitary tumors. His research works to improve surgical therapy for brain tumors\, particularly glioblastomas. He has pioneered a minimally invasive surgical technique for skull-based tumors and has succ essfully applied that skill to transcranial and spine patients as well.
Read more at \;http s://cushings.invisionzone.com/topic/57644-dr-sandeep-kunwar/
CATEGORIES:Helpful Doctors UID:20231009T1410130Z-549422-1686@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230722 SUMMARY:High-resolution Contrast-enhanced MRI With Three-Dimensional Fast S pin Echo Improved the Diagnostic Performance for Identifying Pituitary Mic roadenomas In Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300722;BYMONTHDAY=22 DESCRIPTION:The diagnostic performance of hrMRI was higher than cMRI and dM RI for identifying pituitary microadenomas in Cushing’s syndrome. About 80 % of patients\, who were misdiagnosed on cMRI and dMRI\, were correctly di agnosed on hrMRI. Read more at https://cushings.invisionzone.com/topic/576 18-high-resolution-contrast-enhanced-mri-with-three-dimensional-fast-spin- echo-improved-the-diagnostic-performance-for-identifying-pituitary-microad enomas-in-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:The diagnostic performance of hrMRI was hig her than cMRI and dMRI for identifying pituitary microadenomas in Cushing& rsquo\;s syndrome.
About 80% of patients\, who were misdiagnosed o n cMRI and dMRI\, were correctly diagnosed on hrMRI.
Read more at \;https://cus hings.invisionzone.com/topic/57618-high-resolution-contrast-enhanced-mri-w ith-three-dimensional-fast-spin-echo-improved-the-diagnostic-performance-f or-identifying-pituitary-microadenomas-in-cushing%E2%80%99s-syndrome/< /p> CATEGORIES:Cushings UID:20230722T1327500Z-549422-1658@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 19: Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300420;BYMONTH=4;BYMONTHDAY=19 DTSTART;VALUE=DATE:20190419 DTEND;VALUE=DATE:20190420 DESCRIPTION:In case you haven’t guessed it\, my cause seems to be Cushing's Awareness. I never really decided to devote a good portion of my life to Cushing's\, it just fell into my lap\, so to speak – or my laptop. I had b een going along\, raising my son\, keeping the home-fires burning\, trying to forget all about Cushing's. My surgery had been a success\, I was in r emission\, some of the symptoms were still with me but they were more of a n annoyance than anything. Read more at https://cushings.invisionzone.com/ topic/56868-day-19-cushing%E2%80%99s-awareness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:
In case you haven&rsquo\;t guessed it\, my cause seems to be Cushing's Awareness. I never really decided to devote a good portion of my life to Cushing's\, it just fell into my lap\, so to sp eak &ndash\; or my laptop.
I had been going along\, raising
my son\, keeping the home-fires burning\, trying to forget all about Cushi
ng's. My surgery had been a success\, I was in remission\, some of the sym
ptoms were still with me but they were more of an annoyance than anything.
Read more at \;https://cushings.invisionzone.com/topic/56868-day-19-cushing%E2%80%99s- awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220419T1340060Z-549422-1136@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20221016 SUMMARY:Comment added to Niamh (niamhiblog)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301016;BYMONTHDAY=16 DESCRIPTION:I have a tumour on my right adrenal gland and diagnosed with Cu shings 3 years ago . Covid got in the way of surgery initially so now I wa it and I wait. I try to keep going but I really just want to stay in bed a s I’ve little energy\, poor concentration and less interest… Read more at https://cushingsbios.com/2016/08/23/niamh-niamhiblog-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I have a tumour on my right adrenal gland a nd diagnosed with Cushings 3 years ago . Covid got in the way of surgery i nitially so now I wait and I wait. I try to keep going but I really just w ant to stay in bed as I&rsquo\;ve little energy\, poor concentration and l ess interest&hellip\;
Read more at \;https://cushingsbios.com/2016/08/23/niamh-niamhiblog-adrenal-bio/< /a>
CATEGORIES:Cushie Bios UID:20221016T1149160Z-549422-1618@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Cushing's Disease Study DTSTART;VALUE=DATE:20201205 DTEND;VALUE=DATE:20201206 RRULE:FREQ=MONTHLY;UNTIL=20211107;BYDAY=1SA DESCRIPTION:We have an opportunity for you to take part in a Cushing's Dise ase study (IPS_4636) for Patients. Our project number for this study is IP S_4636. Read more at https://cushieblogger.com/2020/11/07/cushings-disease -study/ X-ALT-DESC;FMTTYPE=text/html:We have an opportunity for you to take part in a \;Cushing's Disease study (IPS_4636) \;for Patients. Our project number for this study is \;IPS_4636.
Read more at \;https://cushieblogger.com/20 20/11/07/cushings-disease-study/
CATEGORIES:Cushings UID:20201107T1541240Z-549422-1305@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181130 SUMMARY:Livestream the Rare Disease Congressional Caucus Briefing December 4th RRULE:FREQ=DAILY;COUNT=5 DESCRIPTION:For those who can not make it to Washington\, DC December 4 the re will be a livestream will be available for the Rare Disease Congression al Caucus briefing. Read more at https://cushieblogger.com/2018/11/30/live stream-the-rare-disease-congressional-caucus-briefing-december-4th/ X-ALT-DESC;FMTTYPE=text/html:For those who can not make it to Washington \, DC December 4 there will be a livestream will be available for the Rare Disease Congressional Caucus briefing.
Read more at \;https://cushieblogge r.com/2018/11/30/livestream-the-rare-disease-congressional-caucus-briefing -december-4th/
CATEGORIES:Events and Meetings UID:20181130T2218420Z-549422-1043@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20201107 SUMMARY:Earwax may reveal how stressed you are RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20211107;BYMONTHDAY=7 DESCRIPTION:A new method of collecting and analyzing earwax for levels of t he stress hormone cortisol may be a simple and cheap way to track the ment al health of people with depression and anxiety. Cortisol is a crucial hor mone that spikes when a person is stressed and declines when they're relax ed. In the short-term\, the hormone is responsible for the 'fight or fligh t' response\, so it's important for survival. But cortisol is often consis tently elevated in people with depression and anxiety\, and persistent hig h levels of cortisol can have negative effects on the immune system\, bloo d pressure and other bodily functions. There are other disorders which inv olve abnormal cortisol\, including Cushing's disease (caused by the overpr oduction of cortisol) and Addison's disease (caused by the underproduction of cortisol). People with Cushing's disease have abnormal fat deposits\, weakened immune systems and brittle bones. People with Addison's disease h ave dangerously low blood pressure. Read more at https://cushieblog.com/ 2020/11/07/earwax-may-reveal-how-stressed-you-are/ X-ALT-DESC;FMTTYPE=text/html:A new method of collecting and analyzing ea rwax for levels of the stress hormone \;cortisol \;may be a simple and cheap way to track the mental health of people with depression and an xiety.
Cortisol is a crucial hormone that spikes when a person is stressed and declines when they're relaxed. In the short-term\, the hormon e is responsible for the 'fight or flight' response\, so it's important fo r survival. But cortisol is often consistently elevated in people with&nbs p\;depression \;and anxiety\, and persistent high levels of cortisol c an have negative effects on the \;immune system\, blood pressure and o ther bodily functions.
There are other disorders which involve abn ormal cortisol\, including Cushing's disease (caused by the overproduction of cortisol) and Addison's disease (caused by the underproduction of cort isol). People with Cushing's disease have abnormal fat deposits\, weakened immune systems and brittle bones. People with Addison's disease have dang erously low blood pressure.
\;
Read more at \;https://cushieblog.com/2020/11/07/earwax-may-reveal -how-stressed-you-are/
CATEGORIES:News Items UID:20201107T1445120Z-549422-1304@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Donelle T\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260122 DTEND;VALUE=DATE:20260123 DESCRIPTION:He was rapidly gaining weight — more than 100 pounds in one yea r. His upper torso was getting bigger\, but not his legs. And he felt over whelmingly tired. “My body just started changing\,” the Staten Island\, Ne w York\, native told TODAY as part of a three-day series\, “Medical Myster ies\,” looking at people who have recovered from rare diseases. It was esp ecially puzzling because Trotman had never had weight issues before. https ://cushingsbios.com/2026/01/22/donelle-t-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:He was rapidly gaining weight &mdash\; more than 100 pounds in one year. His upper torso was getting bigger\, but not his legs. And he felt overwhelmingly tired.
&ldquo\;My body just started changing\,&rdquo\; the Staten Island\, New York\, native told TODA Y as part of a three-day series\, &ldquo\;Medical Mysteries\,&rdquo\; look ing at people who have recovered from rare diseases.
It was especi ally puzzling because Trotman had never had weight issues before.
https://cushingsbios.com/2026/01/22/donelle-t- pituitary-bio/
CATEGORIES:Cushie Bios UID:20260124T1400370Z-549422-2073@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Vicki (Pugmom)\, Steroid-Induced Cushing’s RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260122 DTEND;VALUE=DATE:20260123 DESCRIPTION:I take 25mg of hydrocortisone daily to maintain my current heal th status. I will check the message board for others like me and hopefully I can connect either in person or on-line with a group\, I find that livi ng with this health issue to be frustrating and at times depressing. I am trying to overcome being the disease rather than just a person who has Cus hings. At times I just feel crummy for no other reason than my system is o ut of whack. I hope that I can find a group to be a part of and to hear th eir issues and offer any help I can from my experience. I am in the proces s of getting a medical team of doctors and see an endocrinologist in Decem ber. https://cushingsbios.com/2026/01/22/vicki-pugmom-steroid-induced-cush ings/ X-ALT-DESC;FMTTYPE=text/html:I take 25mg of hydrocortisone daily t o maintain my current health status. I will check the message board for ot hers like me and hopefully I can connect either in person or on-line with a group\, I find that living with this health issue to be frustrating and at times depressing. I am trying to overcome being the disease rather than just a person who has Cushings. At times I just feel crummy for no other reason than my system is out of whack. I hope that I can find a group to b e a part of and to hear their issues and offer any help I can from my expe rience. I am in the process of getting a medical team of doctors and see a n endocrinologist in December.
https://cushingsbios.com/2026/01/22/vicki-pugmom-stero id-induced-cushings/
CATEGORIES:Cushie Bios UID:20260124T1353530Z-549422-2071@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Jane (Jane)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260122 DTEND;VALUE=DATE:20260123 DESCRIPTION:I had an autoimmune disease in 1972 called Guillian Barre that left me with residual neuropathy. Recently my PCP noticed I had hyperpigme ntation and thought it might be Cushing’s. My ACTH was in the upper 70s\, serum cortisol normal. My weight has been out of control for years. I did 24 hour urine with normal result. My PCP ordered MRI and showed suspicion for 6 mm adenoma left side of pituitary. Saw endo who ordered 1 mg Dex tes t. https://cushingsbios.com/2026/01/22/jane-jane-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I had an autoimmune disease in 1972 called Guillian Barre that left me with residual neuropathy.
Recently my PCP noticed I had hyperpigmentation and thought it might be Cushing&rsquo\ ;s. My ACTH was in the upper 70s\, serum cortisol normal. My weight has be en out of control for years.
I did 24 hour urine with normal resul t. My PCP ordered MRI and showed suspicion for 6 mm adenoma left side of p ituitary. Saw endo who ordered 1 mg Dex test.
https://cushingsbios.com/2026/01/22/jane-jane-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260124T1357520Z-549422-2072@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Meet Debbie: Cushing’s Disease Video RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301103;BYMONTH=11;BYMONTHDAY=3 DTSTART;VALUE=DATE:20251103 DTEND;VALUE=DATE:20251104 DESCRIPTION:Debbie\, 54\, had experienced a variety of nagging health probl ems for several years before she was diagnosed with Cushing’s Disease caus ed by a tumor in the pituitary gland. It was affecting every aspect of her life. https://cushingsbios.com/2025/11/03/meet-debbie-cushings-disease-vi deo/ X-ALT-DESC;FMTTYPE=text/html:Debbie\, 54\, had experienced a varie ty of nagging health problems for several years before she was diagnosed w ith Cushing&rsquo\;s Disease caused by a tumor in the pituitary gland. It was affecting every aspect of her life.
https://cushingsbios.com/2025/11/03/meet-debbie- cushings-disease-video/
CATEGORIES:Cushie Bios UID:20251103T1115500Z-549422-1964@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251124 SUMMARY:Co-Occurrence of Endogenous and Exogenous Cushing's Syndromes: Does “Double Cushing Syndrome” Really Exist? A Case Report RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301124;BYMONTHDAY=24 DESCRIPTION:Double Cushing syndrome exists: exogenous steroid use can mask concurrent adrenal hypercortisolism. When symptoms persist and cortisol re mains high after tapering or stopping prescribed glucocorticoids\, an endo genous source is likely. Early recognition with ACTH testing\, dexamethaso ne suppression\, and adrenal imaging reduces misdiagnosis\, favors timely surgery\, and supports safe tapering. https://cushings.invisionzone.com/to pic/57920-co-occurrence-of-endogenous-and-exogenous-cushings-syndromes-doe s-%E2%80%9Cdouble-cushing-syndrome%E2%80%9D-really-exist-a-case-report/ X-ALT-DESC;FMTTYPE=text/html:Double Cushing syndrome exists: exoge nous steroid use can mask concurrent adrenal hypercortisolism. When sympto ms persist and cortisol remains high after tapering or stopping prescribed glucocorticoids\, an endogenous source is likely. Early recognition with ACTH testing\, dexamethasone suppression\, and adrenal imaging reduces mis diagnosis\, favors timely surgery\, and supports safe tapering.
CATEGORIES:Cushings UID:20251124T0829190Z-549422-2001@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Sheena (cuddlybeena)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301102;BYMONTH=11;BYMONTHDAY=2 DTSTART;VALUE=DATE:20251102 DTEND;VALUE=DATE:20251103 DESCRIPTION:My endo saw me for 10 mins and said he wanted to rule in or out Cushings He has now sent me a letter stating I have not got Cushings and hopes Im happy ??? I have al the signs and symtoms of Cushings and 6 month s ago was put on treatment for Hyrpothyroid which is all under control I a m in a lot of pain in my legs and headaches and my speech is glitchy https ://cushingsbios.com/2025/11/02/sheena-cuddlybeena-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:My endo saw me for 10 mins and said he want ed to rule in or out Cushings He has now sent me a letter stating I have n ot got Cushings and hopes Im happy ???
I have al the signs and sym toms of Cushings and 6 months ago was put on treatment for Hyrpothyroid wh ich is all under control I am in a lot of pain in my legs and headaches an d my speech is glitchy
http s://cushingsbios.com/2025/11/02/sheena-cuddlybeena-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20251103T0026350Z-549422-1963@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 7: Cushing’s Awareness Challenge 2021 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250407;BYMONTH=4;BYMONTHDAY=7 DTSTART;VALUE=DATE:20200407 DTEND;VALUE=DATE:20200408 DESCRIPTION:On Becoming Empowered. Adapted from my blog post Participatory Medicine. This is kind of a “cheat” post since it’s a compilation of other posts\, web pages\, message board posts and some original thoughts. I wro te it to submit to Robin’s Grand Rounds\, hosted on her blog. Read more at https://cushieblogger.com/2021/04/07/day-7-cushings-awareness-challeng e-2021/ X-ALT-DESC;FMTTYPE=text/html:On Becoming Empowered. Adapted from my blog post Participatory Medicine.
This is kind of a &ldquo\;chea
t&rdquo\; post since it&rsquo\;s a compilation of other posts\, web pages\
, message board posts and some original thoughts. I wrote it to submit to
Robin&rsquo\;s Grand Rounds\, hosted on her blog.
\;
Read more at \; https://cushieblogger.co m/2021/04/07/day-7-cushings-awareness-challenge-2021/
CATEGORIES:Cushings UID:20210407T1410210Z-549422-1245@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Diagnostic pitfalls in Cushing's disease impacting surgical remissi on rates\; test thresholds and lessons learned in 105 patients DTSTART;VALUE=DATE:20211004 DTEND;VALUE=DATE:20211005 RRULE:FREQ=MONTHLY;UNTIL=20220906;BYDAY=1MO DESCRIPTION:Use of strict biochemical thresholds may help avoid offering tr anssphenoidal surgery to presumed CD patients with equivocal data and impr ove surgical remission rates. Patients with Cushingoid phenotype but equiv ocal biochemical data warrant additional rigorous testing. Read more at ht tps://cushings.invisionzone.com/topic/56057-diagnostic-pitfalls-in-cushing s-disease-impacting-surgical-remission-rates-test-thresholds-and-lessons-l earned-in-105-patients/ X-ALT-DESC;FMTTYPE=text/html:Use of strict biochemical thresholds may he lp avoid offering transsphenoidal surgery to presumed CD patients with equ ivocal data and improve surgical remission rates. Patients with Cushingoid phenotype but equivocal biochemical data warrant additional rigorous test ing.
CATEGORIES:News Items UID:20210906T1937040Z-549422-1422@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220625 SUMMARY:Concurrent Mutations of Germline GPR101 and Somatic USP8 in a Pedia tric Giant Pituitary ACTH Adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240625;BYMONTHDAY=25 DESCRIPTION:Cushing’s disease (CD) is rare in pediatric patients. It is cha racterized by elevated plasma adrenocorticotropic hormone (ACTH) from pitu itary adenomas\, with damage to multiple systems and development. In recen t years\, genetic studies have shed light on the etiology and several muta tions have been identified in patients with CD. A girl presented at the ag e of 10 years and 9 months with facial plethora\, hirsutism and acne. Her vision and eye movements were impaired. A quick weight gain and slow growt h were also observed. Physical examination revealed central obesity\, moon face\, buffalo hump\, supra-clavicular fat pads and bruising. Read more a t https://cushings.invisionzone.com/topic/57071-concurrent-mutations-of-ge rmline-gpr101-and-somatic-usp8-in-a-pediatric-giant-pituitary-acth-adenoma / X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is rare in pe diatric patients. It is characterized by elevated plasma adrenocorticotrop ic hormone (ACTH) from pituitary adenomas\, with damage to multiple system s and development. In recent years\, genetic studies have shed light on th e etiology and several mutations have been identified in patients with CD.
A girl presented at the age of 10 years and 9 months with facial plethora\, hirsutism and acne. Her vision and eye movements were impaired. A quick weight gain and slow growth were also observed. Physical examinat ion revealed central obesity\, moon face\, buffalo hump\, supra-clavicular fat pads and bruising.
CATEGORIES:Cushings UID:20220625T1455410Z-549422-1587@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240415 SUMMARY:Comment added to Day 15\, Cushing’s Awareness Challenge RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300415;BYMONTHDAY=15 DESCRIPTION:Cushing's awareness discussions come out in the oddest ways. La st night\, we were out at a Lebanese restaurant couple with a young couple from India and were talking about foods we liked. I said that I liked sp icy foods in general. That led to the fact that I haven't had a good sense of smell since my transsphenoidal surgery and that things taste better wh en I can smell them. That got us around to why I'd had the surgery and wh at the symptoms of Cushing's are.... Read more at https://cushings.invisio nzone.com/topic/56835-day-15-cushing%E2%80%99s-awareness-challenge-2022/?d o=findComment&comment=478739 X-ALT-DESC;FMTTYPE=text/html:Cushing's awareness discussions come out in the oddest ways.
Last night\, we were out at a Lebanese restauran t couple with a young couple from India and were talking about foods we li ked. \; I said that I liked spicy foods in general.
That led t o the fact that I haven't had a good sense of smell since my \;transsphenoidal su rgery \;and that things taste better when I can smell them. \; That got us around to why I'd had the surgery and what the symptoms of Cu shing's are....
Read more at \;https: //cushings.invisionzone.com/topic/56835-day-15-cushing%E2%80%99s-awareness -challenge-2022/?do=findComment&\;comment=478739
CATEGORIES:Awareness Challenge UID:20240415T0921570Z-549422-1777@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Webinar June 16! Compounded Weight Loss Medicines DTSTART;VALUE=DATE:20240607 DTEND;VALUE=DATE:20240608 RRULE:FREQ=WEEKLY;UNTIL=20240616;BYDAY=SU,MO,WE,FR DESCRIPTION:GoodHormoneHealth Webinar on compounded Semaglutide/Tirzepatide (brand names Ozempic and Mounjaro) for patients with endocrine problems R ead more at https://cushings.invisionzone.com/topic/57736-webinar-june-16- compounded-weight-loss-medicines/ X-ALT-DESC;FMTTYPE=text/html:GoodHormoneHealth Webinar on \;compounded Semaglutide/Tirzepatide (brand name
s Ozempic and Mounjaro) for patients with endocrine problems
Observed \;annually on the first Sunday in June\, National Cancer Survivor&rsquo\;s Day has been set aside to &ldquo\;demonstrate that life after a cancer diagnosis can be a reality .&rdquo\;
So today is my day and my mom&rsquo\;s day and countless other people&rsquo\;s day. \;I&rsquo\;m a kidney cancer survivor &ndash\; 18 years now!
Read more at \;< a href='https://christmasinfairfax.com/national-cancer-survivors-day/' tar get='_blank' rel='nofollow'>https://christmasinfairfax.com/national-cancer -survivors-day/
CATEGORIES:Other Medical UID:20240607T0802490Z-549422-1794@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190402 SUMMARY:Day 3: Cushing’s Awareness Challenge 2019 DESCRIPTION:If you believe you have Cushing's (or any other rare disease)\, learn what you can about it\, connect with other patients\, make a timeli ne of symptoms and photographs. Read\, take notes\, save all your doctors notes\, keep your lab findings\, get second/third/ten or more opinions. M ake a calendar showing which days you had what symptoms. Google calendars are great for this. Read more at https://cushieblogger.com/2019/04/03/day -3-cushings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:If you believe you have Cushing's (or any o ther rare disease)\, learn what you can about it\, connect with other pati ents\, make a timeline of symptoms and photographs. Read\, take notes\, sa ve all your doctors notes\, keep your lab findings\, get second/third/ten or more opinions. \;Make a calendar showing which days you had what s ymptoms. \;Google calendars are great for this.
Read more at& nbsp\;https://cushieblogger.com/2019/04/03/d ay-3-cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190403T1344150Z-549422-1117@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250502 SUMMARY:Connecting Canine and Human Health to Fight Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300502;BYMONTHDAY=2 DESCRIPTION:Cushing’s Disease is common in dogs but rare and hard to diagno se in people. That’s why University of Georgia researchers are leveraging canine treatments to find new solutions to battle the condition in humans. This collaboration between veterinary medicine and human health care is j ust one example of how UGA uses a Precision One Health approach to find an d tailor new medical treatments for people and animals. https://cushings.i nvisionzone.com/topic/57820-connecting-canine-and-human-health-to-fight-cu shing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s Disease is common in dogs but rare and hard to diagnose in people. That&rsquo\;s why Universit y of Georgia researchers are leveraging canine treatments to find new solu tions to battle the condition in humans. This collaboration between veteri nary medicine and human health care is just one example of how UGA uses a Precision One Health approach to find and tailor new medical treatments fo r people and animals.
CATEGORIES:Cushings UID:20250502T1510410Z-549422-1882@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:The Efficacy Of Bisphosphonates For Osteoporosis In Young Cushing’s Disease Patients With Biochemical Remission RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300621;BYMONTH=6;BYMONTHDAY=21 DTSTART;VALUE=DATE:20240621 DTEND;VALUE=DATE:20240622 DESCRIPTION:Young patients with Cushing’s disease combined with osteoporosi s might not benefit from bisphosphonate therapy for osteoporosis recovery in the first year after achieving biochemical remission. Read more at http s://cushings.invisionzone.com/topic/57739-the-efficacy-of-bisphosphonates- for-osteoporosis-in-young-cushing’s-disease-patients-with-biochemical-remi ssion/ X-ALT-DESC;FMTTYPE=text/html:Young patients with Cushing&rsquo\;s diseas e combined with osteoporosis might not benefit from bisphosphonate therapy for osteoporosis recovery in the first year after achieving biochemical r emission.
CATEGORIES:Cushings UID:20240621T1521230Z-549422-1796@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190403 SUMMARY:Video: Cushing’s Disease-Pituitary Gland RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300403;BYMONTHDAY=3 DESCRIPTION:Sharmyn McGraw searched for answers for seven years for whateve r it was that was killing her\; finally she diagnosed herself via the Inte rnet with Cushing’s disease\, caused by a pituitary brain tumor. See the video at https://cushieblogger.com/2019/04/03/video-cushings-disease-pitui tary-gland/ X-ALT-DESC;FMTTYPE=text/html:Sharmyn McGraw searched for answers for sev en years for whatever it was that was killing her\; finally she diagnosed herself via the Internet with Cushing&rsquo\;s disease\, caused by a pitui tary brain tumor. \;
See the video at \;https://cushieblogger.com/2019/04/03/video-cushings-disease-pit uitary-gland/
CATEGORIES:Cushings UID:20211203T1430250Z-549422-1118@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250504 SUMMARY:The Impact of Prolonged High-Concentration Cortisol Exposure on Cog nitive Function and Risk Factors: Evidence From Cushing's Disease Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300504;BYMONTHDAY=4 DESCRIPTION:This study confirms the significant impact of prolonged high co rtisol exposure on cognitive function and identifies key risk factors. The nomogram model offers robust performance\, providing a valuable tool for managing Cushing's disease patients’ cognitive health and informing strate gies for other cortisol-related disorders. https://cushings.invisionzone.c om/topic/57821-the-impact-of-prolonged-high-concentration-cortisol-exposur e-on-cognitive-function-and-risk-factors-evidence-from-cushings-disease-pa tients/ X-ALT-DESC;FMTTYPE=text/html:This study confirms the significant i mpact of prolonged high cortisol exposure on cognitive function and identi fies key risk factors. The nomogram model offers robust performance\, prov iding a valuable tool for managing Cushing's disease patients&rsquo\; cogn itive health and informing strategies for other cortisol-related disorders .
CATEGORIES:Cushings UID:20250504T2040030Z-549422-1883@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Reasons You or Your Friend or Family Member Should See Dr. Friedman DTSTART;VALUE=DATE:20250606 DTEND;VALUE=DATE:20250607 RRULE:FREQ=WEEKLY;UNTIL=20260505;INTERVAL=2;BYDAY=FR DESCRIPTION:Dr. Friedman is an expert in pituitary\, thyroid and adrenal is sues as well as several other endocrine conditions\, while most endocrinol ogists specialize in diabetes or just thyroid disease. He has seen and di agnosed more patients with Cushing’s disease\, growth hormone deficiency o r adrenal insufficiency in a month than most Endocrinologists see in a lif etime. https://cushings.invisionzone.com/topic/57822-reasons-you-or-your-f riend-or-family-member-should-see-dr-friedman/ X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman is an expert in pituitary\, th yroid and adrenal issues as well as several other endocrine conditions\, w hile most endocrinologists specialize in diabetes or just thyroid disease. \;He has seen and diagnosed more patients with Cushing&rsquo\;s dise ase\, growth hormone deficiency or adrenal insufficiency in a month than m ost Endocrinologists see in a lifetime.
CATEGORIES:Helpful Doctors UID:20250516T0800570Z-549422-1884@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240711 SUMMARY:Whole Blood Transcriptomic Signature of Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300711;BYMONTHDAY=11 DESCRIPTION:Whole blood transcriptome reflects the circulating levels of gl ucocorticoids. FKBP5 expression could be a nonhormonal marker of Cushing's syndrome. Read more at https://cushings.invisionzone.com/topic/57743-whol e-blood-transcriptomic-signature-of-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Whole blood transcriptome reflects the circ ulating levels of glucocorticoids. FKBP5 expression could be a nonhormonal marker of Cushing's syndrome.
Read more at \;https://cushings.i nvisionzone.com/topic/57743-whole-blood-transcriptomic-signature-of-cushin gs-syndrome/
CATEGORIES:Cushings UID:20240711T1000210Z-549422-1801@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181113 SUMMARY:Cushing's World Map DESCRIPTION: Add your location and diagnosis to our Cushing's World Map us ing the form here: https://cushieblogger.com/2018/11/17/rebuilding-the-mem bermap/ Helpful Doctor locations are being added to this map\, as well See the Map at https://drive.google.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyM sVbJ&usp=sharing X-ALT-DESC;FMTTYPE=text/html:
\;
Add your location and diagnosis to our Cushing's World Map using the form here: \;https://cushieblogger.com/2018/11/17/rebuilding-the-membermap/Helpful Doctor locations are being added to this map\, as well
See the Map at \;https://drive.go ogle.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyMsVbJ&\;usp=sharing
CATEGORIES:Cushie Bios UID:20181117T1545510Z-549422-1026@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Memory: Dr. Madonna Ramp tragically passed away on November 12\, 2024 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301112;BYMONTH=11;BYMONTHDAY=12 DTSTART;VALUE=DATE:20241112 DTEND;VALUE=DATE:20241113 DESCRIPTION:Dr. Friedman's patient Dr. Madonna Ramp tragically passed away on November 12\, 2024. She had adrenal insufficiency and was hospitalized for the last 5 months of her life. Madonna is the fourth patient of Dr. Fr iedman who tragically passed away who had adrenal insufficiency. https://c ushings.invisionzone.com/topic/57771-dr-madonna-ramp-in-memory/ X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman's patient Dr. Madonna Ramp tra gically passed away on November 12\, 2024. She had adrenal insufficiency a nd was hospitalized for the last 5 months of her life.
Madonna is the fourth patient of Dr. Friedman \;who tragically passed away who ha d \;adrenal insufficiency.
https://cushings.invisionzone.com/topic/57771-dr-madonna-ramp-in-memo ry/
CATEGORIES:In Memory UID:20241208T1147160Z-549422-1837@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:2020 Barrow Pituitary Center Patient Education Day DTSTART;VALUE=DATE:20200209 DTEND;VALUE=DATE:20200210 RRULE:FREQ=WEEKLY;UNTIL=20200314;BYDAY=SA DESCRIPTION:Saturday\, March 14\, 2020Saturday\, March 14\, 2020<\;br />\;
8:00 a.m. to 4:00 p.m.<\;br />\;
$30 per person
More i nformation at \;
http s://cushieblogger.com/2020/02/13/2020-barrow-pituitary-center-patient-educ ation-day/
CATEGORIES:Events and Meetings UID:20200213T1330130Z-549422-1232@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240810 SUMMARY:Ectopic Cushing Syndrome in Metastatic Castration‑Resistant Prostat e Cancer RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300810;BYMONTHDAY=10 DESCRIPTION:Cushing's syndrome (CS)\, as a result of ectopic adrenocorticot ropic hormone (ACTH) production\, constitutes a common paraneoplastic mani festation of various malignancies\, with the most common being small cell lung carcinoma. In the literature\, fewer than fifty cases associating ect opic CS with prostate cancer have been documented. In the present study\, the case of a 76‑year old man suffering from castration‑resistant prostate adenocarcinoma that had been treated with enzalutamide and luteinizing ho rmone‑releasing hormone (LHRH) analogue for the last four years is present ed. Read more at https://cushings.invisionzone.com/topic/57754-ectopic-cus hing-syndrome-in-metastatic-castration%E2%80%91resistant-prostate-cancer/ X-ALT-DESC;FMTTYPE=text/html:Cushing's syndrome (CS)\, as a result of ectopic adrenocorticotropic hormone (ACTH) production\, constitutes a common paraneoplastic manifestation of various malignancies\, with the mos t common being small cell lung carcinoma. In the literature\, fewer than f ifty cases associating ectopic CS with prostate cancer have been documente d. In the present study\, the case of a 76‑year old man suffering from cas tration‑resistant prostate adenocarcinoma that had been treated with enzal utamide and luteinizing hormone‑releasing hormone (LHRH) analogue for the last four years is presented.
Read more at \;https://cushings.invisionzone.com/topic/57754-ectopic- cushing-syndrome-in-metastatic-castration%E2%80%91resistant-prostate-cance r/
CATEGORIES:Cushings UID:20240810T2216020Z-549422-1813@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190424 SUMMARY:Cushing’s Myths and Facts: Even Though You Are Chronically Ill\, Yo u Should Have The Same Amount Of Energy Every Day… DESCRIPTION:Christine Miserandino (2010) uses the spoon theory to answer th e question\, “What does it feel like to be sick?” The spoons serve as a sy mbol for resources available and energy spent to get through every moment of every day. Read more at https://cushieblogger.com/2019/04/25/cushings-m yths-and-facts-even-though-you-are-chronically-ill-you-should-have-the-sam e-amount-of-energy-every-day/ X-ALT-DESC;FMTTYPE=text/html:Christine Miserandino (2010) uses the spoon theory to answer the question\, &ldquo\;What does it feel like to be sick ?&rdquo\; The spoons serve as a symbol for resources available and energy spent to get through every moment of every day.
CATEGORIES:Cushings UID:20190426T1222510Z-549422-1143@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190324 SUMMARY:Cushing’s syndrome expert a standout in clinical practice RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200324;BYMONTHDAY=24 DESCRIPTION:James Findling\, MD\, is a veteran of the endocrinology field\, a clinical practitioner and a Cushing’s syndrome expert. For his efforts in these areas\, particularly clinical practice\, the Endocrine Society is honoring him with its Outstanding Clinical Practitioner Award at ENDO 201 9 in New Orleans. Read more at https://cushieblogger.com/2019/03/24/cushin gs-syndrome-expert-a-standout-in-clinical-practice/ X-ALT-DESC;FMTTYPE=text/html:James Findling\, MD\, is a veteran of the e ndocrinology field\, a clinical practitioner and a Cushing&rsquo\;s syndro me expert. For his efforts in these areas\, particularly clinical practice \, the Endocrine Society is honoring him with its Outstanding Clinical Pra ctitioner Award at ENDO 2019 in New Orleans.
Read more at \;https://cushieblogger.com/201 9/03/24/cushings-syndrome-expert-a-standout-in-clinical-practice/
CATEGORIES:Helpful Doctors UID:20190324T1437400Z-549422-1107@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Can You Help? DTSTART;VALUE=DATE:20211227 DTEND;VALUE=DATE:20211228 RRULE:FREQ=MONTHLY;UNTIL=20221122;BYDAY=4MO DESCRIPTION:I'm on my second round of GH (I had to stop the first time due to cancer). I've been on Omnitrope since 2006 and the threads inside my pe n must have worn down - I'm having a lot of trouble injecting it now. Read more at https://cushings.invisionzone.com/topic/56290-omnitrope-pen-issue / X-ALT-DESC;FMTTYPE=text/html:I'm on my second round of GH (I had to stop the first time due to cancer). I've been on Omnitrope since 2006 and the threads inside my pen must have worn down - I'm having a lot of trouble in jecting it now.
Read more at \;https://cush ings.invisionzone.com/topic/56290-omnitrope-pen-issue/
CATEGORIES:Cushings UID:20211122T1313590Z-549422-1468@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181130 SUMMARY:New Cushie added to the Cushing's MemberMap RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191130;BYMONTHDAY=30 DESCRIPTION:Katie is from Barrington\, RI. She has Cushing's Disease and r ecommended her doctor\, Brooke Swearingen. See the map at https://drive.go ogle.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyMsVbJ&usp=sharing X-ALT-DESC;FMTTYPE=text/html:Katie is from Barrington\, RI. \;She h as Cushing's Disease and recommended her doctor\, Brooke Swearingen.
See the map at \;https://drive. google.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyMsVbJ&\;usp=sharing< /p> CATEGORIES:Cushie Bios UID:20181130T2249210Z-549422-1044@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210209 SUMMARY:Thyroid dysfunction highly prevalent in Cushing’s syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220209;BYMONTHDAY=9 DESCRIPTION:Central hypothyroidism is prevalent in about 1 in 2 adults with Cushing’s syndrome\, and thyroid function can be restored after curative surgery for most patients\, according to study findings. Read more at http s://cushieblog.com/2021/02/09/thyroid-dysfunction-highly-prevalent-in-cush ings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:
Central hypothyroidism is prevalent in abou t 1 in 2 adults with Cushing&rsquo\;s syndrome\, and thyroid function can be restored after curative surgery for most patients\, according to study findings.
Read more at \;https://cushieblog.com/2021/02/09/thyroid-dysfunction-highly-preva lent-in-cushings-syndrome/
CATEGORIES:News Items UID:20210209T2107010Z-549422-1313@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251124 SUMMARY:Identification of Endogenous Hypercortisolism and the Effect of Mif epristone Treatment in Patients With Difficult-to-Manage Diabetes: A Case Series RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301124;BYMONTHDAY=24 DESCRIPTION:Endogenous hypercortisolism (Cushing syndrome) is a multisystem ic disease characterized by a wide range of clinical signs and symptoms. I ts heterogeneous presentation can cause significant diagnostic delays\, an d prolonged exposure to excess cortisol activity can contribute to cardiom etabolic abnormalities such as diabetes. When diabetes remains unresponsiv e or only partially responsive to standard-of-care treatment\, clinicians should consider hypercortisolism as a potential underlying driver. https:/ /cushings.invisionzone.com/topic/57921-identification-of-endogenous-hyperc ortisolism-and-the-effect-of-mifepristone-treatment-in-patients-with-diffi cult-to-manage-diabetes-a-case-series/ X-ALT-DESC;FMTTYPE=text/html:Endogenous hypercortisolism (Cushing syndrome) is a multisystemic disease characterized by a wide range of clin ical signs and symptoms. Its heterogeneous presentation can cause signific ant diagnostic delays\, and prolonged exposure to excess cortisol activity can contribute to cardiometabolic abnormalities such as diabetes. When di abetes remains unresponsive or only partially responsive to standard-of-ca re treatment\, clinicians should consider hypercortisolism as a potential underlying driver.
CATEGORIES:Cushings UID:20251124T1419280Z-549422-2004@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Louise\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301124;BYMONTH=11;BYMONTHDAY=24 DTSTART;VALUE=DATE:20251124 DTEND;VALUE=DATE:20251125 DESCRIPTION:Newly diagnosed upon incidental finding on CT related to abd pa in. Just want these adrenals out\, but I fear the recovery. I don’t know w hich is worse…Cushings or Addison’s?? https://cushingsbios.com/2025/11/23/ louise-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Newly diagnosed upon incidental finding on CT related to abd pain. Just want these adrenals out\, but I fear the reco very.
I don&rsquo\;t know which is worse&hellip\;Cushings or Addis on&rsquo\;s??
https://cushingsbios.com/2025 /11/23/louise-adrenal-bio/
CATEGORIES:Cushie Bios UID:20251124T1410050Z-549422-2002@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Amanda\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301124;BYMONTH=11;BYMONTHDAY=24 DTSTART;VALUE=DATE:20251124 DTEND;VALUE=DATE:20251125 DESCRIPTION:I have been battling sickness for about a year and half now. It started with my gaining weight pretty rapidly (about 20 lbs. in a month-m onth and a half). I’ve never been super strict about my eating or exercisi ng but I don’t eat a lot of junk food – don’t buy any chips\, soda\, cooki es\, etc.) I also do remain pretty active in the work that I do as an elem entary teacher. I’ve never had a problem with my weight before and this pa rticular summer I was teaching 3 sections of dance so I was getting plenty of exercise. I told my family practioner about the weight gain and he to ld me that metabolism slows down as you age. Ok. I was 26 when he said thi s and my metabolism must have went down to 0 for me to gaine so fast! I de cided to just be more concious of what I ate and did. https://cushingsbios .com/2025/11/24/amanda-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I have been battling sickness for about a y ear and half now. It started with my gaining weight pretty rapidly (about 20 lbs. in a month-month and a half). I&rsquo\;ve never been super strict about my eating or exercising but I don&rsquo\;t eat a lot of junk food &n dash\; don&rsquo\;t buy any chips\, soda\, cookies\, etc.) I also do remai n pretty active in the work that I do as an elementary teacher. I&rsquo\;v e never had a problem with my weight before and this particular summer I w as teaching 3 sections of dance so I was getting plenty of exercise. \;I told my family practioner about the weight gain and he told me that me tabolism slows down as you age. Ok. I was 26 when he said this and my meta bolism must have went down to 0 for me to gaine so fast! I decided to just be more concious of what I ate and did.
https://cushingsbios.com/2025/11/24/amanda-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20251124T1412370Z-549422-2003@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190426 SUMMARY:Clinical Trial: Endogenous Cushing’s Syndrome Patients Sought for P hase 3 Trial Testing Relacorilant RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200426;BYMONTHDAY=26 DESCRIPTION:Corcept Therapeutics is recruiting participants for its Phase 3 clinical trial evaluating relacorilant as a potential treatment for Cushi ng’s syndrome-related side effects such as high blood pressure and impaire d glucose tolerance....Researchers plan to enroll 130 people in these U.S. cities: Indianapolis\, Indiana\; Metairie\, Louisiana\; Jackson\, Mississ ippi\; Albany\, New York\; Jamaica\, New York\; Wilmington\, North Carolin a\; Miami\, Florida\; Summerville\, South Carolina\; El Paso\, Texas\; Okl ahoma City\, Oklahoma\, and\; Aurora\, Colorado. More detailed information is available here. Learn more here: https://cushieblogger.com/2019/04/26/ clinical-trial-endogenous-cushings-syndrome-patients-sought-for-phase-3-tr ial-testing-relacorilant/ X-ALT-DESC;FMTTYPE=text/html:Corcept Therapeutics is recruiting particip ants for its Phase 3 clinical trial evaluating relacorilant as a potential treatment for Cushing&rsquo\;s syndrome-related side effects such as high blood pressure and impaired glucose tolerance....Researchers plan to enro ll 130 people in these U.S. cities: Indianapolis\, Indiana\; Metairie\, Lo uisiana\; Jackson\, Mississippi\; Albany\, New York\; Jamaica\, New York\; Wilmington\, North Carolina\; Miami\, Florida\; Summerville\, South Carol ina\; El Paso\, Texas\; Oklahoma City\, Oklahoma\, and\; Aurora\, Colorado . More detailed information is available \;here.
Learn more here: \;https ://cushieblogger.com/2019/04/26/clinical-trial-endogenous-cushings-syndrom e-patients-sought-for-phase-3-trial-testing-relacorilant/
CATEGORIES:Cushings UID:20190426T1338230Z-549422-1146@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240303 SUMMARY:Ectopic Adrenocorticotropic Hormone-Secreting Pheochromocytoma with Severe Metabolic Disturbances: A Case Report RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270303;BYMONTHDAY=3 DESCRIPTION:The patient is a 46-year-old male who presented to our hospital with recurrent symptoms of pheochromocytoma. He reported that he experien ced unexplained symptoms such as panic attacks\, headache\, sweating\, nau sea\, vomiting\, and a feeling of imminent death\, which could be alleviat ed by rest. Read more at https://cushings.invisionzone.com/topic/57698-ec topic-adrenocorticotropic-hormone-secreting-pheochromocytoma-with-severe-m etabolic-disturbances-a-case-report/ X-ALT-DESC;FMTTYPE=text/html:The patient is a 46-year-old male who presented to our hospital with recurrent symptoms of pheochromocytoma. He reported that he experienced unexplained symptoms such as panic attacks\, headache\, sweating\, nausea\, vomiting\, and a feeling of imminent death \, which could be alleviated by rest. \;
CATEGORIES:Cushings UID:20240303T1042000Z-549422-1751@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240315 SUMMARY:Epicardial and Pericoronary Adipose Tissue and Coronary Plaque Burd en in Patients with Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300315;BYMONTHDAY=15 DESCRIPTION:The purpose was to assess coronary inflammation by measuring th e volume and density of the epicardial adipose tissue (EAT)\, perivascular fat attenuation index (FAI) and coronary plaque burden in patients with C ushing’s syndrome (CS) based on coronary computed tomography angiography ( CCTA). Read more at https://cushings.invisionzone.com/topic/57700-epicardi al-and-pericoronary-adipose-tissue-and-coronary-plaque-burden-in-patients- with-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:The purpose was to assess coronary inflamma tion by measuring the volume and density of the epicardial adipose tissue (EAT)\, perivascular fat attenuation index (FAI) and coronary plaque burde n in patients with Cushing&rsquo\;s syndrome (CS) based on coronary comput ed tomography angiography (CCTA).
CATEGORIES:Cushings UID:20240315T1237150Z-549422-1753@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190421 SUMMARY:Archived Interview: Leslie\, Pituitary Cushing’s Survivor DESCRIPTION:Leslie had pituitary tumors removed twice at the University Of Michigan. After her second surgery she gave birth to her second baby. She has had another recurrence and has had Gamma Knife Radiation April 3\, 200 8. Listen at https://cushieblogger.com/2019/04/23/archived-interview-lesli e-pituitary-cushings-survivor/ (The URL appears incorrect due to last minu te guest changes.) X-ALT-DESC;FMTTYPE=text/html:Leslie had pituitary tumors removed twice a t the University Of Michigan. After her second surgery she gave birth to h er second baby. She has had another recurrence and has had Gamma Knife Rad iation April 3\, 2008.
Listen at https://cushieblogger.com/2019/04/23/archived-interview-leslie- pituitary-cushings-survivor/ \;(The URL appears incorrect \;du e to last minute guest changes.)
CATEGORIES:Events and Meetings UID:20190423T2324000Z-549422-1140@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250521 SUMMARY:Osilodrostat Treatment of Cushing Syndrome in Real-World Clinical P ractice RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260521;BYMONTHDAY=21 DESCRIPTION:In clinical trials\, osilodrostat (11β-hydroxylase inhibitor) e ffectively reduced cortisol levels in patients with endogenous Cushing syn drome (CS). https://cushings.invisionzone.com/topic/57831-osilodrostat-tre atment-of-cushing-syndrome-in-real-world-clinical-practice/ X-ALT-DESC;FMTTYPE=text/html:In clinical trials\, osilodrostat (11 &beta\;-hydroxylase inhibitor) effectively reduced cortisol levels in pati ents with endogenous Cushing syndrome (CS).
CATEGORIES:Cushings UID:20250521T2350240Z-549422-1893@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250523 SUMMARY:Therapeutic Options for the Prevention of Thromboses in Cushing’s S yndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270523;BYMONTHDAY=23 DESCRIPTION:Cushing’s syndrome\, or hypercortisolism\, occurs after prolong ed exposure to excess cortisol\, and can be characterized by moon facies\, central fat redistribution\, proximal limb muscle weakness and wasting\, and abdominal striae. Medical literature points to a relationship between hypercortisolism and hypercoagulability\, with higher rates of venous thro mboembolism noted. Current guidelines recommend prophylaxis with low-molec ular weight heparin (LMWH)\, but there is little evidence to support LMWH over other forms of anticoagulation. https://cushings.invisionzone.com/top ic/57832-therapeutic-options-for-the-prevention-of-thromboses-in-cushing%E 2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome\, or hyperc ortisolism\, occurs after prolonged exposure to excess cortisol\, and can be characterized by moon facies\, central fat redistribution\, proximal li mb muscle weakness and wasting\, and abdominal striae. Medical literature points to a relationship between hypercortisolism and hypercoagulability\, with higher rates of venous thromboembolism noted. Current guidelines rec ommend prophylaxis with low-molecular weight heparin (LMWH)\, but there is little evidence to support LMWH over other forms of anticoagulation.
CATEGORIES:Cushings UID:20250523T1608530Z-549422-1894@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250523 SUMMARY:Yana\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300523;BYMONTHDAY=23 DESCRIPTION:It took Yana Zavros 16 years to get diagnosed with a disorder c alled Cushing’s disease. Sixteen years of a demoralizing condition that ca uses muscle weakness\, mood changes\, and weight gain\, among other sympto ms\, because the patient’s adrenal glands produce too much of the stress h ormone cortisol. https://cushingsbios.com/2025/05/23/yana-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:It took Yana Zavros 16 years to get diagnos ed with a disorder called Cushing&rsquo\;s disease.
Sixteen years of a demoralizing condition that causes muscle weakness\, mood changes\, a nd weight gain\, among other symptoms\, because the patient&rsquo\;s adren al glands produce too much of the stress hormone cortisol.
https://cushingsbios.com/2025/05/23/yana-pituitary-bio/
CATEGORIES:Cushie Bios UID:20250523T1634100Z-549422-1895@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180324 SUMMARY:1 Week from Tomorrow! DESCRIPTION:Only 8 days until the Cushing’s Awareness Challenge 2018 begins . At night\, when I’m supposed to be sleeping\, ideas for posts keep swar ming through my head. Sometimes\, they form into fully-written posts. Th en\, when I wake up\, the posts are gone... Read more at https://cushieb logger.com/2018/03/24/1-week-from-tomorrow/ X-ALT-DESC;FMTTYPE=text/html:Only 8 days until the Cushing&rsquo\;s Awar eness Challenge 2018 begins. \;At night\, when I&rsquo\;m supposed to be sleeping\, ideas for posts keep swarming through my head. \;Somet imes\, they form into fully-written posts. \;Then\, when I wake up\, the posts are gone...
\;
Read more at \;https://cushieblogger.com/2018/03/24/1-week-from-tomorrow/
CATEGORIES:Awareness Challenge UID:20180324T2323230Z-549422-857@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240904 SUMMARY:Exogenous Cushing Syndrome and Hip Fracture Due to Over-the-Counter Supplement (Artri King) DESCRIPTION:The most common cause of Cushing syndrome (CS) is exposure to e xogenous glucocorticoids. There is an increasing incidence of adulterated over-the-counter (OTC) supplements containing steroids. Read more at https ://cushings.invisionzone.com/topic/57624-exogenous-cushing-syndrome-and-hi p-fracture-due-to-over-the-counter-supplement-artri-king/ X-ALT-DESC;FMTTYPE=text/html:The most common cause of Cushing synd rome (CS) is exposure to exogenous glucocorticoids. There is an increasing incidence of adulterated over-the-counter (OTC) supplements containing st eroids.
CATEGORIES:Cushings UID:20240916T1427020Z-549422-1820@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250403 SUMMARY:Ivory Tower: New PET Scan Molecule Offers Breakthrough in Detecting Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300403;BYMONTHDAY=3 DESCRIPTION:Researchers from endocrinology and nuclear medicine departments have introduced a new PET scan molecule that enhances the detection of ad enoma/small tumour causing Cushing’s syndrome. This development promises t o improve surgical interventions and patient outcomes. https://cushings.in visionzone.com/topic/57806-ivory-tower-new-pet-scan-molecule-offers-breakt hrough-in-detecting-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Researchers from endocrinology and nu clear medicine departments have introduced a new PET scan molecule that en hances the detection of adenoma/small tumour causing Cushing&rsquo\;s synd rome. This development promises to improve surgical interventions and pati ent outcomes.
CATEGORIES:Cushings UID:20250403T0725360Z-549422-1868@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240608 SUMMARY:Is Cushing Syndrome More Common in the US Than We Think? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300608;BYMONTHDAY=8 DESCRIPTION:'Cases are absolutely being missed…. Clinicians should realize that cortisol excess is not rare. It may not be common\, but it needs to b e considered in patients with any constellation of features that are seen in cortisol excess\,' study investigator Ty B. Carroll\, MD\, Associate Pr ofessor of Medicine\, Endocrinology and Molecular Medicine\, and the Endoc rine Fellowship Program Director at Medical College of Wisconsin in Milwau kee\, told Medscape Medical News. From https://cushings.invisionzone.com/ topic/57737-is-cushing-syndrome-more-common-in-the-us-than-we-think/ X-ALT-DESC;FMTTYPE=text/html:
'Cases are absolutely being missed&he llip\;. Clinicians should realize that cortisol excess is not rare. It may not be common\, but it needs to be considered in patients with any conste llation of features that are seen in cortisol excess\,' study investigator Ty B. Carroll\, MD\, Associate Professor of Medicine\, Endocrinology and Molecular Medicine\, and the Endocrine Fellowship Program Director at Medi cal College of Wisconsin in Milwaukee\, told \;Medscape Medical News. \;
CATEGORIES:Cushings UID:20240608T1002310Z-549422-1795@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240320 SUMMARY:Olfactory Neuroblastoma Causing Cushing’s Syndrome Due to the Ectop ic Adrenocorticotropic Hormone (ACTH) Secretion RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300320;BYMONTHDAY=20 DESCRIPTION:Cushing’s syndrome is a constellation of features occurring due to high blood cortisol levels. We report a case of a 47-year-old male wit h a history of recurrent olfactory neuroblastoma (ONB). He presented with bilateral lower limb weakness and anosmia and was found to have Cushing’s syndrome due to high adrenocorticotropic hormone (ACTH) levels from an ect opic source\, ONB in this case. Serum cortisol and ACTH levels declined af ter tumor removal. Read more at https://cushings.invisionzone.com/topic/57 704-olfactory-neuroblastoma-causing-cushing%E2%80%99s-syndrome-due-to-the- ectopic-adrenocorticotropic-hormone-acth-secretion/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is a conste llation of features occurring due to high blood cortisol levels. We report a case of a 47-year-old male with a history of recurrent olfactory neurob lastoma (ONB). He presented with bilateral lower limb weakness and anosmia and was found to have \;Cushing&rsquo\;s syndrome due to high \;a drenocorticotropic hormone (ACTH) levels from an ectopic source\, ONB in t his case. Serum cortisol and ACTH levels declined after tumor removal.
CATEGORIES:Cushings UID:20240320T1329130Z-549422-1756@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210301 SUMMARY:COVID-19 and Cushing's syndrome: recommendations for a special popu lation with endogenous glucocorticoid excess RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220301;BYMONTHDAY=1 DESCRIPTION:Over the past few months\, COVID-19\, the pandemic disease caus ed by severe acute respiratory syndrome coronavirus 2\, has been associate d with a high rate of infection and lethality\, especially in patients wit h comorbidities such as obesity\, hypertension\, diabetes\, and immunodefi ciency syndromes. These cardiometabolic and immune impairments are common comorbidities of Cushing's syndrome\, a condition characterised by excessi ve exposure to endogenous glucocorticoids. In patients with Cushing's synd rome\, the increased cardiovascular risk factors\, amplified by the increa sed thromboembolic risk\, and the increased susceptibility to severe infec tions\, are the two leading causes of death. Read more at https://cushings .invisionzone.com/topic/55545-covid-19-and-cushings-syndrome-recommendatio ns-for-a-special-population-with-endogenous-glucocorticoid-excess/ X-ALT-DESC;FMTTYPE=text/html:Over the past few months\, COVID-19\, the pandemic disease caused by severe acute respi ratory syndrome coronavirus 2\, has been associated with a high rate of in fection and lethality\, especially in patients with comorbidities such as obesity\, hypertension\, diabetes\, and immunodeficiency syndromes.
< p id='para100'>These cardiometabolic and immune impairments are common com orbidities of Cushing's syndrome\, a condition characterised by excessive exposure to endogenous glucocorticoids. In patients with Cushing's syndrom e\, the increased cardiovascular risk factors\, amplified by the increased thromboembolic risk\, and the increased susceptibility to severe infectio ns\, are the two leading causes of death. CATEGORIES:News Items UID:20210301T1127580Z-549422-1323@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210613 SUMMARY:Amy (Amybtru)\, Pituitary/Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220613;BYMONTHDAY=13 DESCRIPTION:Amy is from Michigan. She has a great many symptoms\, a pituit ary microadenoma\, an 8 1/2 mm nodule on the adrenal gland and her left ki dney has a some type of cyst on the superior pole. Read more at https://cu shingsbios.com/2021/06/13/amy-amybtru-pituitary-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Amy is from Michigan. \;She has a grea t many symptoms\, a pituitary microadenoma\, an 8 1/2 mm nodule on the adr enal gland and her left kidney has a some type of cyst on the superior pol e.
Read more at \;https://cushingsbios. com/2021/06/13/amy-amybtru-pituitary-adrenal-bio/
CATEGORIES:Cushie Bios UID:20210613T1625570Z-549422-1398@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20221217 SUMMARY:Association Between Aldosterone and Hypertension Among Patients Wit h Overt and Subclinical Hypercortisolism RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20251217;BYMONTHDAY=17 DESCRIPTION:Among 89 patients enrolled in this study (median age\, 51 years )\, 21 showed clinical signs of Cushing syndrome (overt hypercortisolism) and 68 did not show clinical presentations (subclinical hypercortisolism). Read more at https://cushings.invisionzone.com/topic/57584-association-be tween-aldosterone-and-hypertension-among-patients-with-overt-and-subclinic al-hypercortisolism/ X-ALT-DESC;FMTTYPE=text/html:Among 89 patients enrolled in this st udy (median age\, 51 years)\, 21 showed clinical signs of Cushing syndrome (overt hypercortisolism) and 68 did not show clinical presentations (subc linical hypercortisolism).
CATEGORIES:News Items UID:20221217T1452440Z-549422-1633@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211004 SUMMARY:Can You Help? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221004;BYMONTHDAY=4 DESCRIPTION:My step daughter is really dragging on getting timely care for what appears to be Cushing Syndrome. The symptoms have been going on for y ears. She has an adrenal tumor that needs to be moved and an abdominal her nia that needs repair. My husband and I are very worried and frustrated ab out the deteriorating effects on her health. She is extremely reluctance t o listen to our concerns or our advice. I wish too that we could get some advice about how to help her More at https://cushings.invisionzone.com/top ic/55721-adult-child-with-cushings/#comment-476626 X-ALT-DESC;FMTTYPE=text/html:My step daughter is really dragging on gett ing timely care for what appears to be Cushing Syndrome. The symptoms have been going on for years. She has an adrenal tumor that needs to be moved and an abdominal hernia that needs repair. My husband and I are very worri ed and frustrated about the deteriorating effects on her health. She is ex tremely reluctance to listen to our concerns or our advice. I wish too tha t we could get some advice about how to help her
More at \;https://cushings.invisionzone.com/top ic/55721-adult-child-with-cushings/#comment-476626
CATEGORIES:Cushings UID:20211004T1630530Z-549422-1430@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20180729T180000 DTEND;TZID=America/New_York:20180729T190000 SUMMARY:Dr. Theodore Friedman Webinar on Nuances of Diagnosing and Treating Hypothyroidism DESCRIPTION:More information at https://cushieblogger.com/2018/07/19/theodo re-friedman-webinar-on-nuances-of-diagnosing-and-treating-hypothyroidism/ X-ALT-DESC;FMTTYPE=text/html:More information at \;https://cushieblogger. com/2018/07/19/theodore-friedman-webinar-on-nuances-of-diagnosing-and-trea ting-hypothyroidism/
CATEGORIES:Events and Meetings UID:20180719T1405000Z-549422-953@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20180729T100000 DTEND;TZID=America/New_York:20180729T110000 SUMMARY:Dr. Theodore Friedman Webinar on Nuances of Diagnosing and Treating Hypothyroidism DESCRIPTION:More information at https://cushieblogger.com/2018/07/19/theodo re-friedman-webinar-on-nuances-of-diagnosing-and-treating-hypothyroidism/ X-ALT-DESC;FMTTYPE=text/html:More information at \;https://cushieblogger. com/2018/07/19/theodore-friedman-webinar-on-nuances-of-diagnosing-and-trea ting-hypothyroidism/
CATEGORIES:Cushings UID:20180719T1419580Z-549422-954@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220425 SUMMARY:Sparsely Granulated Corticotroph Pituitary Macroadenoma Presenting with Pituitary Apoplexy Resulting in Remission of Hypercortisolism RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240425;BYMONTHDAY=25 DESCRIPTION:In retrospect\, he reported a 3-year history of ongoing symptom s of hypercortisolism including increased central obesity\, dorsal and sup raclavicular fat pad\, facial plethora\, abdominal purple striae\, easy br uising\, fatigue\, decreased libido and erectile dysfunction. Read more at https://cushings.invisionzone.com/topic/56886-sparsely-granulated-cortico troph-pituitary-macroadenoma-presenting-with-pituitary-apoplexy-resulting- in-remission-of-hypercortisolism/ X-ALT-DESC;FMTTYPE=text/html:In retrospect\, he reported a 3-year histor y of ongoing symptoms of hypercortisolism including increased central obes ity\, dorsal and supraclavicular fat pad\, facial plethora\, abdominal pur ple striae\, easy bruising\, fatigue\, decreased libido and erectile dysfu nction.
CATEGORIES:Cushings UID:20220425T1411040Z-549422-1554@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210220 SUMMARY:Successful Cushing’s Surgery Leads to Better Bone Density RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220220;BYMONTHDAY=20 DESCRIPTION:Biomarkers in a majority of Cushing’s syndrome patients with su rgically induced disease remission showed a high rate of bone turnover and greater bone mineral density one and two years later\, a study reports. B efore treatment\, these patients were found to have greater bone degradati on and poorer bone formation\, as can be common to disease-related bone di sorders. Read more at https://cushings.invisionzone.com/topic/55535-suc cessful-cushing%E2%80%99s-surgery-leads-to-better-bone-density/ X-ALT-DESC;FMTTYPE=text/html:Biomarkers in a majority of \;Cushing&r squo\;s syndrome patients with \;surgically induced disease remission showed \;a high rate of bone turnover and greater bone mineral density one and two years later\, a study reports.
Before treatment\, the se patients were found to have greater bone degradation and poorer bone fo rmation\, as can be common to disease-related bone disorders. \;
\;
Read more at \;https://cushings.invisionzone.com/topic/55535 -successful-cushing%E2%80%99s-surgery-leads-to-better-bone-density/
CATEGORIES:News Items UID:20210220T1321260Z-549422-1318@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210719 SUMMARY:Covid info from Dr. Theodore Friedman (Dr. F) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220719;BYMONTHDAY=19 DESCRIPTION:Statistics are that people who are vaccinated have a 1:1\,000\, 000 chance of dying from COVID\, while people who are unvaccinated have a 1:500 chance of dying from COVID. I think most people would take the 1:1\ ,000\,000 risk. Dr. Friedman has always been a proponent of the COVID-19 vaccine because he is a scientist and bases his decisions on peer-reviewed literature and not social media posts. As we are getting to the stage whe re the COVID-19 pandemic could end if vaccination rates increase\, he feel s that it is even more important for people to get correct information abo ut the COVID-19 vaccine. Read more at https://cushings.invisionzone.com /topic/55819-covid-info-from-dr-theodore-friedman-dr-f/ X-ALT-DESC;FMTTYPE=text/html:Statistics are that people who are vaccinat ed have a 1:1\,000\,000 chance of dying from COVID\, while people who are unvaccinated have a 1:500 chance of dying from COVID. \;I think most people would take the 1:1\,000\,000 risk. \;Dr. Friedman has always b een a proponent of the COVID-19 vaccine because he is a scientist and base s his decisions on peer-reviewed literature and not social media posts. As we are getting to the stage where the COVID-19 pandemic could end if vacc ination rates increase\, he feels that it is even more important for peopl e to get correct information about the COVID-19 vaccine. \;
&n bsp\;
Read more at \; https://cushings.invisionzone.com/topic/55819-covid-info-from-dr-theodore- friedman-dr-f/
CATEGORIES:Other Medical UID:20210719T1229590Z-549422-1406@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230911 SUMMARY:Unique Gene Expression Signature in Periadrenal Adipose Tissue Iden tifies a High Blood Pressure Group in Patients With Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300911;BYMONTHDAY=11 DESCRIPTION:Cushing syndrome (CS) is a rare disease caused by excess cortis ol levels with high cardiovascular morbidity and mortality. Hypertension i n CS promotes hypercortisolism-associated cardiovascular events. Read more at https://cushings.invisionzone.com/topic/57633-unique-gene-expression-s ignature-in-periadrenal-adipose-tissue-identifies-a-high-blood-pressure-gr oup-in-patients-with-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing syndrome (CS) is a rare disea se caused by excess cortisol levels with high cardiovascular morbidity and mortality. Hypertension in CS promotes hypercortisolism-associated cardio vascular events.
CATEGORIES:Cushings UID:20230911T1404070Z-549422-1672@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250421 SUMMARY:High Recovery Rate of Adrenal Function After Successful Surgical Tr eatment of Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300421;BYMONTHDAY=21 DESCRIPTION:The recovery rate of adrenal function after successful surgery as first-line treatment in patients with Cushing’s syndrome is high. Howev er\, it may take several months to years before recovery of adrenal functi on occurs. In case of early recovery of adrenal function\, clinicians shou ld be aware of a possible recurrence of Cushing’s disease. https://cushing s.invisionzone.com/topic/57814-high-recovery-rate-of-adrenal-function-afte r-successful-surgical-treatment-of-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:The recovery rate of adrenal function after successful surgery as first-line treatment in patients with Cushing &rsquo\;s syndrome is high. However\, it may take several months to years before recovery of adrenal function occurs. In case of early recovery of a drenal function\, clinicians should be aware of a possible recurrence of C ushing&rsquo\;s disease.
CATEGORIES:Cushings UID:20250421T0831200Z-549422-1877@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250526 SUMMARY:Utility of Intraoperative Ultrasound in Identifying Pituitary Adeno ma Hidden Behind a Cystic Lesion in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280526;BYMONTHDAY=26 DESCRIPTION:A 55-year-old female patient was referred from the endocrinolog y department for evaluation of Cushing’s disease. She had been on medicati on for hypertension and diabetes for the past seven years. Two months prio r\, she suffered an acute cerebral infarction\, resulting in left-sided he miparesis. https://cushings.invisionzone.com/topic/57835-utility-of-intrao perative-ultrasound-in-identifying-pituitary-adenoma-hidden-behind-a-cysti c-lesion-in-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:A 55-year-old female patient was refe rred from the endocrinology department for evaluation of Cushing&rsquo\;s disease. She had been on medication for hypertension and diabetes for the past seven years. Two months prior\, she suffered an acute cerebral infarc tion\, resulting in left-sided hemiparesis.
CATEGORIES:Cushings UID:20250526T1856100Z-549422-1897@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240928 SUMMARY:Cancer risk elevated for adults after Cushing’s syndrome diagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300928;BYMONTHDAY=28 DESCRIPTION:I certainly know this to be true I'm an 18 year survivor of y et another disease that I shouldn't have gotten: kidney cancer. https://c ushings.invisionzone.com/topic/57758-cancer-risk-elevated-for-adults-after -cushing%E2%80%99s-syndrome-diagnosis/ X-ALT-DESC;FMTTYPE=text/html:I certainly know this to be true \; I' m an 18 year survivor of yet another disease that I shouldn't have gotten: \;kidney cancer.
CATEGORIES:Cushings UID:20240928T1847020Z-549422-1821@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241001 SUMMARY:“The Healthcare System Did Fail Me Repeatedly”: a Qualitative Study On Experiences Of Healthcare Among Canadian Women With Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301001;BYMONTHDAY=1 DESCRIPTION:As a rare endocrine disorder\, Cushing’s Syndrome (Cushing’s) i s characterized by numerous symptoms and a non-specific presentation\, lea ding to a delay to diagnosis for patients with this disease. To date\, res earch examining the lived experiences of patients with Cushing’s in health care is absent in the literature. This preliminary inquiry into the health care experiences of women with Cushing’s aimed to examine the utility of t his line of inquiry to support the patient centered care of individuals wi th Cushing’s. https://cushings.invisionzone.com/topic/57759-%E2%80%9Cthe-h ealthcare-system-did-fail-me-repeatedly%E2%80%9D-a-qualitative-study-on-ex periences-of-healthcare-among-canadian-women-with-cushing%E2%80%99s-syndro me/ X-ALT-DESC;FMTTYPE=text/html:As a rare endocrine disorder\, Cushin g&rsquo\;s Syndrome (Cushing&rsquo\;s) is characterized by numerous sympto ms and a non-specific presentation\, leading to a delay to diagnosis for p atients with this disease. To date\, research examining the lived experien ces of patients with Cushing&rsquo\;s in healthcare is absent in the liter ature. This preliminary inquiry into the healthcare experiences of women w ith Cushing&rsquo\;s aimed to examine the utility of this line of inquiry to support the patient centered care of individuals with Cushing&rsquo\;s.
CATEGORIES:Cushings UID:20241001T1118140Z-549422-1822@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250607 SUMMARY:Survival Probabilities in Patients with Ectopic Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300607;BYMONTHDAY=7 DESCRIPTION:Survival in Ectopic Cushing’s Syndrome varies considerably\, ma inly due to the underlying origin of the tumor\, tumor stage and severity of the hypercortisolism. Further studies analyzing the importance of facto rs affecting survival are needed. https://cushings.invisionzone.com/topic/ 57838-survival-probabilities-in-patients-with-ectopic-cushing%E2%80%99s-sy ndrome/ X-ALT-DESC;FMTTYPE=text/html:Survival in Ectopic Cushing&rsquo\;s Syndro me varies considerably\, mainly due to the underlying origin of the tumor\ , tumor stage and severity of the hypercortisolism. Further studies analyz ing the importance of factors affecting survival are needed.
CATEGORIES:Cushings UID:20250607T1546320Z-549422-1900@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180402 SUMMARY:Book: Be Your Own Doctor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250402;BYMONTHDAY=2 DESCRIPTION:...Being constantly diagnosed as “healthy” caused me to be told \, when I was finally diagnosed correctly\, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and ob ligation to help those suffering from any chronic illness that steals your joy\, and bring awareness to Endocrine Disorders. From my journey through Cushing’s to Addison’s to recovery—from triathlete to barely being able t o dress myself and finally to recovering into a stronger person I never kn ew I was. Read more at https://amzn.to/2pWMhOh X-ALT-DESC;FMTTYPE=text/html:...Being constantly diagnosed as &ldquo\;he althy&rdquo\; caused me to be told\, when I was finally diagnosed correctl y\, that I had maybe five years to live. Misdiagnosis can be a killer.&hel lip\; It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy\, and bring awareness to En docrine Disorders. From my journey through Cushing&rsquo\;s to Addison&rsq uo\;s to recovery&mdash\;from triathlete to barely being able to dress mys elf and finally to recovering into a stronger person I never knew I was.
Read more at \;https://amzn.to/2pWMhOh
CATEGORIES:Cushings UID:20180402T1445400Z-549422-868@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Blogging with the Cushies\, featuring Alicia and The EPIC Foundatio n DTSTART;VALUE=DATE:20180507 DTEND;VALUE=DATE:20180508 RRULE:FREQ=MONTHLY;UNTIL=20190402;BYDAY=1MO DESCRIPTION:Have you checked out The Epic Foundation? I encourage you to do so. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017\, Karen deb uted EPIC. Read more at https://cushieblogger.com/2018/04/02/from-a-past- blogging-challenge-day-1-blogging-with-the-cushies-featuring-alicia-and-th e-epic-foundation/ X-ALT-DESC;FMTTYPE=text/html:Have you checked out The Epic Foundation? I encourage you to do so. Cushie comrade Karen has dreamed of starting this non-profit to help Cushing's patients and others with invisible diseases. In 2017\, Karen debuted EPIC. \;
CATEGORIES:Awareness Challenge UID:20180403T0148540Z-549422-873@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:What I'm Doing for Rare Disease Day RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300228;BYMONTH=2;BYMONTHDAY=28 DTSTART;VALUE=DATE:20250228 DTEND;VALUE=DATE:20250301 DESCRIPTION:Each and every day since 1987\, I tell anyone who will listen a bout Cushing’s... https://cushingsbios.com/2025/02/28/rare-disease-day-202 5-maryo-pituitary-kidney-cancer-bio/ X-ALT-DESC;FMTTYPE=text/html:
Each and every day since 1987\, I tel
l anyone who will listen about Cushing&rsquo\;s...
https://cushingsbios.com/2
025/02/28/rare-disease-day-2025-maryo-pituitary-kidney-cancer-bio/
For all of my early life\, I was the good\, compliant\, patient. I took whatever pills the doctor prescribed\, did wh atever tests h/she (most always a HE) wrote for. Believed that whatever he said was the absolute truth. He had been to med school. He knew what was wrong with me even though he didn't live in my body 24/7 and experience wh at I did.
https://cushingsbios.com/2025/02/28/rare-disease-day-2025-maryo-pituit ary-kidney-cancer-bio/
CATEGORIES:Cushie Bios UID:20250228T1143310Z-549422-1849@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Rare Nasal Cancer May Have Caused Cushing’s Syndrome DTSTART;VALUE=DATE:20180502 DTEND;VALUE=DATE:20180503 RRULE:FREQ=MONTHLY;UNTIL=20190404;BYDAY=1WE DESCRIPTION:Paraneoplastic esthesioneuroblastoma (ENB)\, a very rare type o f nasal tumor\, may sometimes produce excess adrenocorticotrophic hormone (ACTH)\, leading to symptoms of Cushing’s syndrome. Read more at https://c ushieblog.com/2018/04/04/rare-nasal-cancer-may-have-caused-cushings-syndro me/ X-ALT-DESC;FMTTYPE=text/html:Paraneoplastic esthesioneuroblastoma (ENB)\ , a very rare type of nasal tumor\, may sometimes produce excess \;adr enocorticotrophic hormone (ACTH)\, leading to symptoms of Cushing&rsquo\;s syndrome.
Read more at \;https://cushieblog.com/2018/04/04/rare-nasal-cancer-may-have-caused-cus hings-syndrome/
CATEGORIES:News Items UID:20180404T1540490Z-549422-881@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240904 SUMMARY:Can you Help? Cyclic Cushing's? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300904;BYMONTHDAY=4 DESCRIPTION:I'm also noticing physical symptoms such as new patches of hair on my back\, hyperpigmentation of my knuckles\, knee and elbow\, high blo od pressure\, bruises that heal dark as well as the severe nervousness and anxiety. Given my tests and symptoms that are on a cycle\, can this be cy clic cushing's? https://cushings.invisionzone.com/topic/57738-can-i-be-cyc lic/ X-ALT-DESC;FMTTYPE=text/html:I'm also noticing physical symptoms such as new patches of hair on my back\, hyperpigmentation of my knuckles\, knee and elbow\, high blood pressure\, bruises that heal dark as well as the se vere nervousness and anxiety. Given my tests and symptoms that are on a cy cle\, can this be cyclic cushing's?
https://cushings.invisionzone.com/topic/57738-can-i-be-cyclic/
CATEGORIES:Cushings UID:20240904T1450250Z-549422-1817@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250228 SUMMARY:Sterotherapeutics begins Phase II trial for ST-002 targeting Cushin g’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280228;BYMONTHDAY=28 DESCRIPTION:The trial will assess the drug's efficacy\, tolerability\, and safety in individuals with Cushing's. https://cushings.invisionzone.com/to pic/57785-sterotherapeutics-begins-phase-ii-trial-for-st-002-targeting-cus hing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:The trial will assess the drug's efficacy\, tolerability\, and safety in individuals with Cushing's.
CATEGORIES:News Items UID:20250228T1202320Z-549422-1850@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240719 SUMMARY:Longterm-Outcomes In Patients With Cushing’s Disease vs. Non-Functi oning Pituitary Adenoma After Pituitary Surgery: An Active-Comparator Coho rt Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300719;BYMONTHDAY=19 DESCRIPTION:Even after pituitary surgery\, Cushing's Disease patients faced a higher hazard of complications\, especially psychiatric hospitalization s and sepsis. Read more at https://cushings.invisionzone.com/topic/57746-l ongterm-outcomes-in-patients-with-cushing%E2%80%99s-disease-vs-non-functio ning-pituitary-adenoma-after-pituitary-surgery-an-active-comparator-cohort -study/ X-ALT-DESC;FMTTYPE=text/html:Even after pituitary surgery\, Cushing's Di sease patients faced a higher hazard of complications\, especially psychia tric hospitalizations and sepsis.
CATEGORIES:Cushings UID:20240719T1717300Z-549422-1804@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181130 SUMMARY:New Cushie added to the Cushing's MemberMap RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191130;BYMONTHDAY=30 DESCRIPTION:Katie is from Barrington\, RI. She has Cushing's Disease and r ecommended her doctor\, Brooke Swearingen. See the map at https://drive.go ogle.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyMsVbJ&usp=sharing X-ALT-DESC;FMTTYPE=text/html:Katie is from Barrington\, RI. \;She h as Cushing's Disease and recommended her doctor\, Brooke Swearingen.
See the map at \;https://drive. google.com/open?id=1NLdGqTJyaJOvxegUnUR_slLRcYyMsVbJ&\;usp=sharing< /p> CATEGORIES:Cushie Bios UID:20181217T1447290Z-549422-1050@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Surgical Management of Cushing's Disease DTSTART;VALUE=DATE:20180405 DTEND;VALUE=DATE:20180406 RRULE:FREQ=WEEKLY;UNTIL=20180410;BYDAY=TU,TH DESCRIPTION:Learning Objectives: To define clinical features of Cushing’s d isease. To describe management paradigms for Cushing’s disease. To underst and the evaluation of Cushing’s disease patients. Read more at https://cus hieblogger.com/2018/04/05/surgical-management-of-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:
Read more at \;https://cushieblogger.com/201 8/04/05/surgical-management-of-cushings-disease/
CATEGORIES:Events and Meetings UID:20180406T0734160Z-549422-888@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220119 SUMMARY:New Helpful Endo in Tennessee? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300119;BYMONTHDAY=19 DESCRIPTION:CHI Memorial Medical Group announces the opening of CHI Memoria l Endocrinology Associates\, a practice that provides comprehensive medica l management and care for conditions like type 1 and 2 diabetes\, thyroid disease\, thyroid cancer and a range of metabolic\, pituitary and adrenal disorders. The practice will be led by Prashanth Sekhar\, MD\, a fellowshi p trained endocrinologist with more than 10 years’ experience helping indi viduals with hormone-related conditions and diseases. Read more at https:/ /cushings.invisionzone.com/topic/56496-new-helpful-endo-in-tennessee/ X-ALT-DESC;FMTTYPE=text/html:CHI Memorial Medical Group announces the op
ening of CHI Memorial Endocrinology Associates\, a practice that provides
comprehensive medical management and care for conditions like type 1 and 2
diabetes\, thyroid disease\, thyroid cancer and a range of metabolic\, pi
tuitary and adrenal disorders.
The practice will be led by Pras
hanth Sekhar\, MD\, a fellowship trained endocrinologist with more than 10
years&rsquo\; experience helping individuals with hormone-related conditi
ons and diseases.
Read more at \; https://cushings.invisionzone.com/topic/56496-new-helpful-endo-in-tennesse e/
CATEGORIES:Helpful Doctors UID:20220119T1346030Z-549422-1504@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190126 SUMMARY:Michele M (Michele)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200126;BYMONTHDAY=26 DESCRIPTION:Michele is from Buffalo\, NY She had herright adrenal gland a nd a pheochromocytoma removed. The Pathologist and endocrinologist diagnos ed her with Cushings Disease. Read more at https://cushingsbios.com/2019/0 1/26/michele-m-michele-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Michele \;is from Buffalo\, NY \; She had herright adrenal gland and a pheochromocytoma removed. The Patholo gist and endocrinologist diagnosed her with Cushings Disease.
Read more at \;https://cushingsbios.com/2019/01/26/mich ele-m-michele-adrenal-bio/
CATEGORIES:Cushings UID:20190126T2345170Z-549422-1074@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211211 SUMMARY:Basics: Testing: IGF-1 (Insulin-like growth factor 1) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301211;BYMONTHDAY=11 DESCRIPTION:IGF-1 is an important growth hormone\, mediating the protein an abolic and linear growth promoting effect of pituitary GH. It has a GH ind ependent growth stimulating effect\, which with respect to cartilage cells is possibly optimised by the synergistic action with GH. Read more at htt ps://cushings.invisionzone.com/topic/56364-basics-testing-igf-1-insulin-li ke-growth-factor-1/ X-ALT-DESC;FMTTYPE=text/html:IGF-1 is an important growth hormone\, medi ating the protein anabolic and linear growth promoting effect of pituitary GH. It has a GH independent growth stimulating effect\, which with respec t to cartilage cells is possibly optimised by the synergistic action with GH.
Read more at \;https://cushings.invisionzone.com/topic/56364-basics-testing-igf-1-i nsulin-like-growth-factor-1/
CATEGORIES:Cushings UID:20211211T1742550Z-549422-1481@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20221125 SUMMARY:Ketogenic Diet Initially Masks Symptoms of Hypercortisolism in Cush ing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20241125;BYMONTHDAY=25 DESCRIPTION:This case report illustrated how a Low Carb diet was initially successful at ameliorating the patient’s associated symptoms of hypertensi on and obesity\, making his diagnosis of Cushing's Disease go undetected. Read more at https://cushings.invisionzone.com/topic/57578-ketogenic-diet- initially-masks-symptoms-of-hypercortisolism-in-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:This case report illustrated how a Lo w Carb diet was initially successful at ameliorating the patient&rsquo\;s associated symptoms of hypertension and obesity\, making his diagnosis of Cushing's Disease go undetected.
Read more at \;< a href='https://cushings.invisionzone.com/topic/57578-ketogenic-diet-initi ally-masks-symptoms-of-hypercortisolism-in-cushing%E2%80%99s-disease/' tar get='_blank' rel='nofollow'>https://cushings.invisionzone.com/topic/57578- ketogenic-diet-initially-masks-symptoms-of-hypercortisolism-in-cushing%E2% 80%99s-disease/
CATEGORIES:News Items UID:20221125T2251120Z-549422-1625@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Increased Mortality Risk in Patients With Primary and Secondary Adr enal Insufficiency DTSTART;VALUE=DATE:20210320 DTEND;VALUE=DATE:20210321 RRULE:FREQ=MONTHLY;UNTIL=20220220;BYDAY=3SA DESCRIPTION:A retrospective cohort study was performed to compare mortality risk and causes of death in adrenal insufficiency with an individually-ma tched reference population. Researchers examined 6\,821 patients with adre nal insufficiency (primary\, 2052\; secondary\, 3948) and 6\,7564 individu ally-matched controls (primary\, 20366\; secondary\, 39134). It was show n that in adrenal insufficiency\, mortality was elevated\, particularly pr imary\, even with individual matching\, and was found early in the disease course. The data demonstrated that cardiovascular disease was the major c ause but mortality from infection was also high. The adrenal crisis was a common contributor. The outcomes suggested that early education for pro mpt treatment of infections and avoidance of adrenal crisis hold the poten tial to decrease mortality. Read more at https://cushings.invisionzone.com /topic/55536-increased-mortality-risk-in-patients-with-primary-and-seconda ry-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Read more at \;https://cushings.invisionzone.com/topic/55536-in creased-mortality-risk-in-patients-with-primary-and-secondary-adrenal-insu fficiency/
CATEGORIES:News Items UID:20210220T1336020Z-549422-1319@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Webinar on Dr. Friedman’s views on the Pituitary Society “Consensus ” Guidelines on Cushing’s disease and new Cushing’s medicines RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20220403;BYMONTH=3;BYMONTHDAY=20 DTSTART;VALUE=DATE:20220320 DTEND;VALUE=DATE:20220321 DESCRIPTION:Although Dr. Friedman is at the forefront of Cushing’s Disease\ , he was not invited to be part of the Pituitary Society Consensus Guideli nes on Cushing’s Disease published in Lancet Diabetes and Endocrinology in 2021\, many of his ideas on Cushing’s Disease that he has been advocating for years were included in the recent guidelines. In this informative web inar. Read more at https://cushings.invisionzone.com/topic/56690-webinar-o n-dr-friedman%E2%80%99s-views-on-the-pituitary-society-%E2%80%9Cconsensus% E2%80%9D-guidelines-on-cushing%E2%80%99s-disease-and-new-cushing%E2%80%99s -medicines/ X-ALT-DESC;FMTTYPE=text/html:Although Dr. Friedman is at the forefront o f Cushing&rsquo\;s Disease\, he was not invited to be part of the Pituitar y Society Consensus Guidelines on Cushing&rsquo\;s Disease published in La ncet Diabetes and Endocrinology in 2021\, many of his ideas on Cushing&rsq uo\;s Disease that he has been advocating for years were included in the r ecent guidelines. In this informative webinar.
CATEGORIES:Events and Meetings UID:20220320T2206580Z-549422-1530@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 5: Cushing’s Awareness Challenge 2018 DTSTART;VALUE=DATE:20180503 DTEND;VALUE=DATE:20180504 RRULE:FREQ=MONTHLY;UNTIL=20190405;BYDAY=1TH DESCRIPTION:In 2006\, I flew to Chicago\, IL for a Cushing's weekend in Roc kford. Someone else drove us to Lake Geneva\, Wisconsin for the day. Too much travel\, too Cushie\, whatever\, I was too tired to stay awake. I a ctually had put my head down on the dining room table and fallen asleep bu t our hostess suggested the sofa instead. Amazing that I traveled that wh ole distance – and missed the main event? Read more at https://cushieblogg er.com/2018/04/05/day-5-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:In 2006\, I flew to Chicago\, IL for a Cush ing's weekend in Rockford. \;Someone else drove us to Lake Geneva\, W isconsin for the day. \;Too much travel\, too Cushie\, whatever\, I w as too tired to stay awake. \;I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa ins tead. \;Amazing that I traveled that whole distance &ndash\; and miss ed the main event?
Read more at \;https://cushieblogger.com/2018/04/05/day-5-cushings-awareness-challenge -2018/
CATEGORIES:Awareness Challenge UID:20180405T1927280Z-549422-886@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180405 SUMMARY:From a Past Blogging Challenge: Cushing’s Awareness Challenge ~ Dan ielle\, Day 5 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300405;BYMONTHDAY=5 DESCRIPTION:Social media dominates most people's lives these days. You see what everyone you know is up to\, but the problem is\, most people only po st about the highlights of their lives. You don't get to see the low point s\, the every day struggles. You don't see what keeps them up at night wit h worry... Read more at https://cushieblogger.com/2025/04/05/from-a-past-b logging-challenge-cushings-awareness-challenge-danielle-day-5/ X-ALT-DESC;FMTTYPE=text/html:Social media dominates most people's lives these days. You see what everyone you know is up to\, but the problem is\, most people only post about the highlights of their lives.
You do n't get to see the low points\, the every day struggles. You don't see wha t keeps them up at night with worry...
Read more at \;ht tps://cushieblogger.com/2025/04/05/from-a-past-blogging-challenge-cushings -awareness-challenge-danielle-day-5/
CATEGORIES:Awareness Challenge UID:20250405T2219070Z-549422-887@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Webinar: Dr. Theodore Friedman on the Macrilen Stimulation Test for Growth Hormone Deficiency DTSTART;VALUE=DATE:20181124 DTEND;VALUE=DATE:20181125 RRULE:FREQ=WEEKLY;UNTIL=20181209;BYDAY=SU DESCRIPTION:Dr. Theodore Friedman’s next webinar will be on the Macrilen St imulation Test for Growth Hormone Deficiency: Sunday\, December 9\, 2018\ , 6-7 PM PST. He will discuss the new Macrilen stimulation test and compar e it to the glucagon stimulation. If you may have growth hormone deficienc y\, you do not want to miss this webinar. Read more at https://cushieblogg er.com/2018/11/24/webinar-dr-theodore-friedman-on-the-macrilen-stimulation -test-for-growth-hormone-deficiency/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman&rsquo\;s next webinar will be on the Macrilen Stimulation Test for Growth Hormone Deficiency: S unday\, \; December 9\, 2018\, 6-7 PM PST.
He will discuss the new Macrilen stimulation test and compare it to the glucagon stimulation. If you may have growth hormone deficiency\, you do not want to miss this webinar.
Read more at \;https://cushieblogger.com/2018 /11/24/webinar-dr-theodore-friedman-on-the-macrilen-stimulation-test-for-g rowth-hormone-deficiency/
CATEGORIES:Events and Meetings UID:20181124T1450000Z-549422-1038@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241106 SUMMARY:Personalized Noninvasive Diagnostic Algorithms Based on Urinary Fre e Cortisol in ACTH-dependant Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301106;BYMONTHDAY=6 DESCRIPTION:Current guidelines for distinguishing Cushing's disease (CD) fr om ectopic ACTH secretion (EAS) are questionable\, as they use pituitary m agnetic resonance imaging (MRI) as first-line investigation for all patien ts. CRH testing is no longer available\, and they suggest performing infer ior petrosal sinus sampling (BIPPS)\, an invasive and rarely available inv estigation\, in many patients. https://cushings.invisionzone.com/topic/577 65-personalized-noninvasive-diagnostic-algorithms-based-on-urinary-free-co rtisol-in-acth-dependant-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Current guidelines for distinguishing Cushing's disease (CD) from ectopic ACTH secretion (EAS) are questionable \, as they use pituitary magnetic resonance imaging (MRI) as first-line in vestigation for all patients. CRH testing is no longer available\, and the y suggest performing inferior petrosal sinus sampling (BIPPS)\, an invasiv e and rarely available investigation\, in many patients.
CATEGORIES:Cushings UID:20241106T1621080Z-549422-1831@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241122 SUMMARY:Higher Risk and Earlier Onset Glaucoma in Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301122;BYMONTHDAY=22 DESCRIPTION:Endogenous Cushing's Syndrome is associated with increased risk for glaucoma regardless of remission status and develops at a younger age compared with the general population. https://cushings.invisionzone.com/t opic/57769-higher-risk-and-earlier-onset-glaucoma-in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing's Syndrome is asso ciated with increased risk for glaucoma regardless of remission status and develops at a younger age compared with the general population.
CATEGORIES:Cushings UID:20241122T1711100Z-549422-1835@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241214 SUMMARY:Bone Material Strength Index Is Low in Patients With Cushing's Synd rome Even After Long-term Remission RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301214;BYMONTHDAY=14 DESCRIPTION:Bone material properties remain altered in patients with endoge nous CS\, even after long-term remission. These abnormalities\, known to b e associated with fractures in other populations\, may play a role in the persistent bone fragility of steroid excess. https://cushings.invisionzone .com/topic/57772-bone-material-strength-index-is-low-in-patients-with-cush ings-syndrome-even-after-long-term-remission/ X-ALT-DESC;FMTTYPE=text/html:Bone material properties remain alter ed in patients with endogenous CS\, even after long-term remission. These abnormalities\, known to be associated with fractures in other populations \, may play a role in the persistent bone fragility of steroid excess.
CATEGORIES:Cushings UID:20241214T0926200Z-549422-1838@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250612 SUMMARY:Once-Daily Treatment for Cushing Syndrome May Safely Restore Cortis ol Rhythms RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260612;BYMONTHDAY=12 DESCRIPTION:Once-daily evening osilodrostat improved cortisol rhythms\, sle ep\, and quality of life in Cushing syndrome without compromising disease control or safety. https://cushings.invisionzone.com/topic/57841-once-dail y-treatment-for-cushing-syndrome-may-safely-restore-cortisol-rhythms/ X-ALT-DESC;FMTTYPE=text/html:Once-daily evening osilodrostat improve d cortisol rhythms\, sleep\, and quality of life in Cushing syndrome witho ut compromising disease control or safety.
CATEGORIES:Cushings UID:20250612T2335490Z-549422-1904@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180728 SUMMARY:Comment added to Stacy B\, Pituitary/Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190728;BYMONTHDAY=28 DESCRIPTION:I have very complex issues also with the pcos and all how it ba sically attached to new system. It’s very very hard to treat for the many unknowns. I have found odd dr whom thinks outside box typically works best . In the comments at https://cushingsbios.com/2018/01/20/stacy-b-pituitar y-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I have very complex issues also with the pc os and all how it basically attached to new system. It&rsquo\;s very very hard to treat for the many unknowns. I have found odd dr whom thinks outsi de box typically works best. \;
In the comments \;at \ ;https://cushingsbios.com/2018/01/20/stacy-b-pituitary- adrenal-bio/
CATEGORIES:Cushings UID:20180729T0059280Z-549422-962@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Archived Interview: Steve Owens\, adrenal patient RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250421;BYMONTH=4;BYMONTHDAY=20 DTSTART;VALUE=DATE:20180420 DTEND;VALUE=DATE:20180421 DESCRIPTION:Steve was diagnosed with HyperBeta Adrenergic Syndrome in Augus t\, 2005. Doctors thought he might have a pheo\, now they’re checking for ACC cancer. Steve also has a newspaper article written about him. Steve’s daughter may also have Cushing’s. Listen at https://cushieblogger.com/2019 /04/20/archived-interview-steve-owens-adrenal-patient/ X-ALT-DESC;FMTTYPE=text/html:Steve was diagnosed with HyperBeta Adrenerg ic Syndrome in August\, 2005. Doctors thought he might have a pheo\, now t hey&rsquo\;re checking for ACC cancer. Steve also has a newspaper article written about him. Steve&rsquo\;s daughter may also have Cushing&rsquo\;s.
Listen at \;https://cush ieblogger.com/2019/04/20/archived-interview-steve-owens-adrenal-patient/
CATEGORIES:Events and Meetings UID:20190422T1358460Z-549422-913@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180422 SUMMARY:Comment added to Roxanna (Dawn)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190422;BYMONTHDAY=22 DESCRIPTION:I definitely know how you feel. My MRI confirmed a Pituitary Tu mor 13x16mm (benign/macroadenoma). Just got officially diagnosed last week ... In the comments area of https://cushingsbios.com/2018/04/02/roxanna-da wn-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I definitely know how you feel. My MRI conf irmed a Pituitary Tumor 13x16mm (benign/macroadenoma). Just got officially diagnosed last week...
In the comments area of \;https://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180422T1358290Z-549422-914@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250117 SUMMARY:Understanding Cortisol: The Stress Hormone Explained RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300117;BYMONTHDAY=17 DESCRIPTION:Cortisol testing is not routinely done during medical check-ups \, and there currently aren’t any at-home tests available to assess cortis ol levels. Most healthcare providers only recommend testing for cortisol i f there are symptoms indicative of conditions like Cushing’s syndrome. htt ps://cushings.invisionzone.com/topic/57776-understanding-cortisol-the-stre ss-hormone-explained/ X-ALT-DESC;FMTTYPE=text/html:Cortisol testing is not routinely don e during medical check-ups\, and there currently aren&rsquo\;t any at-home tests available to assess cortisol levels. Most healthcare providers only recommend testing for cortisol if there are symptoms indicative of condit ions like Cushing&rsquo\;s syndrome.
https://cushings.invisio nzone.com/topic/57776-understanding-cortisol-the-stress-hormone-explained/
CATEGORIES:Cushings UID:20250117T1754340Z-549422-1842@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240904 SUMMARY:‘Cortisol Face’ Is Real\, But It’s Not As Common As You Might Think RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300904;BYMONTHDAY=4 DESCRIPTION:High levels of the stress hormone cortisol can cause the face t o gradually swell into a rounded shape and is often the result of prolonge d use of corticosteroids\, Cushing syndrome or other underlying medical is sues. https://cushings.invisionzone.com/topic/57757-%E2%80%98cortisol-face %E2%80%99-is-real-but-it%E2%80%99s-not-as-common-as-you-might-think/ X-ALT-DESC;FMTTYPE=text/html:High levels of the stress hormone cortisol can cause the face to gradually swell into a rounded shape and is often th e result of prolonged use of corticosteroids\, Cushing syndrome or other u nderlying medical issues.
CATEGORIES:Cushings UID:20240904T1501100Z-549422-1818@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:In Memory: Liz Raftery\, March 2012 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300301;BYMONTH=3;BYMONTHDAY=1 DTSTART;VALUE=DATE:20210301 DTEND;VALUE=DATE:20210302 DESCRIPTION:We sadly learned that Liz died in March 2012 at the age of 45. She was an active member of the Cushing’s Help Message Boards. She had a photo gallery there. The photo below is from that gallery. Liz wrote in h er bio: Hello\, I’m from Hampton\, just outside London. Same old story – a t least 6 years of various illnesses\, including four operations for vario us crap (kidney stones\, gallbladder removal\, and 2 cysts on my coccyx) R ead more at https://cushingsbios.com/2025/03/01/in-memory-liz-raftery-marc h-2012/ X-ALT-DESC;FMTTYPE=text/html:We sadly learned that \;Liz \;died in March 2012 at the age of 45. \;She was an active member of the \;Cushing&rsquo\;s Help Message Boards. & nbsp\;She had a \;photo gallery \;there. \;The photo below is from that gallery.
Hello\, I&rsquo\;m from Hampton\ , just outside London. Same old story &ndash\; at least 6 years of various illnesses\, including four operations for various crap (kidney stones\, g allbladder removal\, and 2 cysts on my coccyx)
Read more at \; https://cushingsbios.com/2025/03/01/i n-memory-liz-raftery-march-2012/
CATEGORIES:In Memory UID:20251004T2001270Z-549422-1324@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180719 SUMMARY:Medical therapy ‘reasonable option’ vs. surgery in Cushing’s diseas e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190719;BYMONTHDAY=19 DESCRIPTION:“Medical treatment is a reasonable treatment option for Cushing ’s disease patients in case of a contraindication for surgery\, a recurren ce\, or in patients choosing not to have surgery\,” Broersen told Endocrin e Today. “In case of side effects or no treatment effect\, an alternate me dical therapy or combination therapy can be considered.” Read more at http s://cushieblog.com/2018/07/19/medical-therapy-reasonable-option-vs-surgery -in-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;Medical treatment is a reasonable t reatment option for Cushing&rsquo\;s disease patients in case of a contrai ndication for surgery\, a recurrence\, or in patients choosing not to have surgery\,&rdquo\; Broersen told \;Endocrine Today. \;&ld quo\;In case of side effects or no treatment effect\, an alternate medical therapy or combination therapy can be considered.&rdquo\;
Read mo re at \;https://cu shieblog.com/2018/07/19/medical-therapy-reasonable-option-vs-surgery-in-cu shings-disease/
CATEGORIES:Cushings UID:20180719T1419150Z-549422-955@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180504 SUMMARY: Pam M (mapgirl23)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190504;BYMONTHDAY=4 DESCRIPTION:Pam is from Ypsilanti\, Michigan. She is the mother of an 18 y ear old daughter who she suspects has Cushing's. Read more at https://cush ingsbios.com/2018/05/04/pam-m-mapgirl23-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Pam is from Ypsilanti\, Michigan. \;Sh e is the mother of an 18 year old daughter who she suspects has Cushing's.
Read more at \;https://cushingsbios.com/ 2018/05/04/pam-m-mapgirl23-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180504T1711370Z-549422-926@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Amy (Amybtru)\, Pituitary/Adrenal Bio DTSTART;VALUE=DATE:20210711 DTEND;VALUE=DATE:20210712 RRULE:FREQ=MONTHLY;UNTIL=20220613;BYDAY=2SU DESCRIPTION:I have been ill for years & years. Was diagnosed Cushing’s Synd rome in 2010 but now I know what I’m looking for I can honestly say I’ve h ad bouts of it since childhood. Read more at https://cushingsbios.com/2021 /06/13/amy-amybtru-pituitary-adrenal-bio/comment-page-1/#comment-58590 X-ALT-DESC;FMTTYPE=text/html:I have been ill for years &\; years. Was diagnosed Cushing&rsquo\;s Syndrome in 2010 but now I know what I&rsquo\; m looking for I can honestly say I&rsquo\;ve had bouts of it since childho od.
Read more at \;https:/ /cushingsbios.com/2021/06/13/amy-amybtru-pituitary-adrenal-bio/comment-pag e-1/#comment-58590
CATEGORIES:Cushie Bios UID:20210613T1846400Z-549422-1399@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210606 SUMMARY:Can You Hel? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220606;BYMONTHDAY=6 DESCRIPTION:I’m looking for good doctor in Orange County California. Southe rn California. Read more at https://cushieblog.com/message-boards/comment- page-1/#comment-20651 X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m looking for good doctor in Orang e County California. Southern California.
Read more at \;https://cushieblog.com/message-boards/comment-page-1/#comme nt-20651
CATEGORIES:Cushings UID:20210606T2151420Z-549422-1394@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240105 SUMMARY:“I don’t Feel Normal” – The Diagnosis of a Pituitary Tumor & Cushin g’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300105;BYMONTHDAY=5 DESCRIPTION:When Lydia first met with her OBGYN to address her weight gain and the overall feeling that something was wrong with her body\, her conce rns were quickly dismissed. “He told me ‘You’re almost 30 and you’ve had t wo kids\, no wonder you feel the way that you do\,’” said Lydia. “He blew me off and told me that I needed more diet and exercise. He didn’t order o ther tests.” Read more at https://cushings.invisionzone.com/topic/57680-%E 2%80%9Ci-don%E2%80%99t-feel-normal%E2%80%9D-%E2%80%93-the-diagnosis-of-a-p ituitary-tumor-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:When Lydia first met with her OBGYN to addr ess her weight gain and the overall feeling that something was wrong with her body\, her concerns were quickly dismissed. &ldquo\;He told me &lsquo\ ;You&rsquo\;re almost 30 and you&rsquo\;ve had two kids\, no wonder you fe el the way that you do\,&rsquo\;&rdquo\; said Lydia. &ldquo\;He blew me of f and told me that I needed more diet and exercise. He didn&rsquo\;t order other tests.&rdquo\;
CATEGORIES:Helpful Doctors UID:20241106T1424290Z-549422-1728@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240410 SUMMARY:Hiding In Plain Sight: Florid Cushing’s Disease Presenting As A Sev ere Extremity Cellulitis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300410;BYMONTHDAY=10 DESCRIPTION:Cushing’s syndrome is a rare disease\, and the constellation of clinical features can be overlooked if clinicians are not aware of the ma nifestations of hypercortisolism. We present the case of a patient with Cu shing’s syndrome that went unrecognized with life-threatening sequelae. R ead more at https://cushings.invisionzone.com/topic/57714-hiding-in-plain- sight-florid-cushing%E2%80%99s-disease-presenting-as-a-severe-extremity-ce llulitis/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is a rare d isease\, and the constellation of clinical features can be overlooked if c linicians are not aware of the manifestations of hypercortisolism. We pres ent the case of a patient with Cushing&rsquo\;s syndrome that went unrecog nized with life-threatening sequelae. \;
Read more at&n bsp\;https://cushings.invisionzone. com/topic/57714-hiding-in-plain-sight-florid-cushing%E2%80%99s-disease-pre senting-as-a-severe-extremity-cellulitis/
CATEGORIES:Cushings UID:20240410T1249270Z-549422-1771@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250621 SUMMARY:Challenges of Cushing's Syndrome and Bariatric Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300621;BYMONTHDAY=21 DESCRIPTION:Cushing’s disease (CD)\, caused by an adrenocorticotropic hormo ne-secreting pituitary adenoma\, is challenging to diagnose\, especially i n obese patients post-bariatric surgery. This report discusses a misdiagn osed case of CD in a 42-year-old obese male with hypertension. CD was susp ected only after surgery\, confirmed by magnetic resonance imaging (MRI) s howing a pituitary macroadenoma. https://cushings.invisionzone.com/topic/5 7844-challenges-of-cushings-syndrome-and-bariatric-surgery/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD)\, caused by a n adrenocorticotropic hormone-secreting pituitary adenoma\, is challenging to diagnose\, especially in obese patients post-bariatric surgery. \;
This report discusses a misdiagnosed case of CD in a 42-year-old obese male with hypertension. CD was suspected only after surgery\, confir med by magnetic resonance imaging (MRI) showing a pituitary macroadenoma.< /p>
CATEGORIES:Cushings UID:20250621T1436490Z-549422-1907@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250108 SUMMARY:Comment added to Pauline\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300108;BYMONTHDAY=8 DESCRIPTION:Hi I can relate to what you shared. I have hump on back of my n eck. I am hairy and have other symptoms of Cushing's. I have b12 injection s every 3 months… Read more at https://cushingsbios.com/2015/04/06/pauline -undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Hi I can relate to what you shared. I have hump on back of my neck. I am hairy and have other symptoms of Cushing's. I have b12 injections every 3 months&hellip\;
Read more at \;< a href='https://cushingsbios.com/2015/04/06/pauline-undiagnosed-bio/' targ et='_blank' rel='nofollow'>https://cushingsbios.com/2015/04/06/pauline-und iagnosed-bio/
CATEGORIES:Cushie Bios UID:20250108T1200070Z-549422-1840@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Guest Question: Can you have Cushing's with Normal Cortisol Levels ? DTSTART;VALUE=DATE:20180914 DTEND;VALUE=DATE:20180915 RRULE:FREQ=MONTHLY;UNTIL=20200810;BYDAY=2FR DESCRIPTION:Has anyone had normal cortisol levels come back and still had c ushing’s Disease? Read more at https://cushieblogger.com/2018/08/10/guest -question-can-you-have-cushings-with-normal-cortisol-levels/ X-ALT-DESC;FMTTYPE=text/html:Has anyone had normal cortisol levels come back and still had cushing&rsquo\;s Disease? \;
Read more at&n bsp\;https://cushie blogger.com/2018/08/10/guest-question-can-you-have-cushings-with-normal-co rtisol-levels/
CATEGORIES:Cushings UID:20190415T1839400Z-549422-967@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250623 SUMMARY:Postoperative Initiation of Thromboprophylaxis in Patients with Cus hing’s Disease (PIT-CD): RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300623;BYMONTHDAY=23 DESCRIPTION:Pituitary surgical intervention remains the preferred treatment for Cushing’s disease (CD) while postoperative venous thromboembolism (VT E) is a significant risk. Whether to prescribe pharmacological thromboprop hylaxis presents a clinical dilemma\, balancing the benefit of reducing VT E risk with the potential for increasing hemorrhagic events in these patie nts. Currently\, strong evidence and established protocols for routine pha rmacological thromboprophylaxis in this population are lacking. Therefore\ , a randomized\, controlled trial is warranted to determine the efficacy a nd safety of combined pharmacological and mechanical thromboprophylaxis in reducing postoperative VTE risk in patients with CD. https://cushings.inv isionzone.com/topic/57845-postoperative-initiation-of-thromboprophylaxis-i n-patients-with-cushing%E2%80%99s-disease-pit-cd/ X-ALT-DESC;FMTTYPE=text/html:Pituitary surgical intervention remai ns the preferred treatment for Cushing&rsquo\;s disease (CD) while postope rative venous thromboembolism (VTE) is a significant risk. Whether to pres cribe pharmacological thromboprophylaxis presents a clinical dilemma\, bal ancing the benefit of reducing VTE risk with the potential for increasing hemorrhagic events in these patients. Currently\, strong evidence and esta blished protocols for routine pharmacological thromboprophylaxis in this p opulation are lacking. Therefore\, a randomized\, controlled trial is warr anted to determine the efficacy and safety of combined pharmacological and mechanical thromboprophylaxis in reducing postoperative VTE risk in patie nts with CD.
CATEGORIES:Cushings UID:20250623T1420150Z-549422-1908@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220107 SUMMARY:Korlym: Failure to Show a Reasonable Expectation of Success Dooms O bviousness Allegations RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230107;BYMONTHDAY=7 DESCRIPTION:[t]he degree of change in exposure of mifepristone when co-admi nistered with strong CYP3A inhibitors is unknown” and “may present a safet y risk.” The concern was that without the required study the patients wit h Cushing’s syndrome that take strong inhibitors may be unable to use mife pristone. Read more at https://cushings.invisionzone.com/topic/56453-korly m-failure-to-show-a-reasonable-expectation-of-success-dooms-obviousness-al legations/ X-ALT-DESC;FMTTYPE=text/html:[t]he degree of change in exposure of mifep ristone when co-administered with strong CYP3A inhibitors is unknown&rdquo \; and &ldquo\;may present a safety risk.&rdquo\; \;The concern was t hat without the required study the patients with Cushing&rsquo\;s syndrome that take strong inhibitors may be unable to use mifepristone.
Re ad more at \;https://cushings.invisionzone.com/topic/56453-korlym-failur e-to-show-a-reasonable-expectation-of-success-dooms-obviousness-allegation s/
CATEGORIES:Cushings UID:20220107T2334150Z-549422-1494@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210802 SUMMARY:Beth\, Undiagnosed BIo RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220802;BYMONTHDAY=2 DESCRIPTION:Beth is English but lives in France. She is not yet diagnosed but has many symptoms and is testing now. Read more at https://cushingsbio s.com/2021/08/02/beth-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Beth is English but lives in France. \ ;She is not yet diagnosed but has many symptoms and is testing now.
< p>Read more at \;https://cushingsbios.com/2021/08/02/beth-un diagnosed-bio/ CATEGORIES:Cushie Bios UID:20210802T1433030Z-549422-1408@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210621 SUMMARY:Can You Help? Connecticut Doctor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220621;BYMONTHDAY=21 DESCRIPTION:I am trying to find a doctor for my mom. She is located in Mon roe\, CT. Would prefer someone in Fairfield or New Haven county\, but I a m willing to drive further if necessary. https://cushings.invisionzone.co m/topic/55733-can-anyone-recommend-a-doctor-for-cushings-syndrome-in-conne cticut/ X-ALT-DESC;FMTTYPE=text/html:I am trying to find a doctor for my mom.&nb sp\; She is located in Monroe\, CT. \; Would prefer someone in Fairfie ld or New Haven county\, but I am willing to drive further if necessary.&n bsp\;
CATEGORIES:Helpful Doctors UID:20210621T1314200Z-549422-1402@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20191026 SUMMARY:Can You Help? Legal Assistance for Cushing's Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201026;BYMONTHDAY=26 DESCRIPTION:I believe I need legal assistance related to i humane treatment by city and/or county officials. I can explain further\, if need be\, onc e I find out if it’s even possible to get help... Read more at https://cus hieblogger.com/2019/10/26/guest-question-legal-assistance-for-cushings-pat ients/ X-ALT-DESC;FMTTYPE=text/html:I believe I need legal assistance related t o i humane treatment by city and/or county officials. I can explain furthe r\, if need be\, once I find out if it&rsquo\;s even possible to get help. ..
Read more at \; https://cushieblogger.com/2019/10/26/guest-question-legal-assistance-for-c ushings-patients/
CATEGORIES:Cushings UID:20191026T1552520Z-549422-1219@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220425 SUMMARY:Research opportunity for Acromegaly and/or Human Growth Hormone Def iciency (GHD) Patients and Caregivers RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230425;BYMONTHDAY=25 DESCRIPTION:We have an opportunity for you to take part in a Acromegaly and Human Growth Hormone Deficiency (GHD) Study for patients and caregivers. Read more at https://cushings.invisionzone.com/topic/56887-research-opport unity-for-acromegaly-andor-human-growth-hormone-deficiency-ghd-patients-an d-caregivers/ X-ALT-DESC;FMTTYPE=text/html:We have an opportunity for you to take part in a \;Acromegaly and Human Growth Hormone Deficiency (GHD) Study&nbs p\;for patients and caregivers.
CATEGORIES:Other Medical UID:20220425T1802050Z-549422-1555@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251008 SUMMARY:Sleep Disturbances in Patients With Cushing Syndrome and Mild Auton omous Cortisol SecretionPatients with mild autonomous cortisol secretion ( MACS) demonstrate sleep impairment that is similar to patients with Cushin g's Syndrome. Younger women with higher clinical severity of MACS are more likely to have impaired sleep. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301008;BYMONTHDAY=8 DESCRIPTION:Patients with mild autonomous cortisol secretion (MACS) demonst rate sleep impairment that is similar to patients with Cushing's Syndrome. Younger women with higher clinical severity of MACS are more likely to ha ve impaired sleep. https://cushings.invisionzone.com/topic/57895-sleep-dis turbances-in-patients-with-cushing-syndrome-and-mild-autonomous-cortisol-s ecretion/ X-ALT-DESC;FMTTYPE=text/html:Patients with mild autonomous cortisol secr etion (MACS) demonstrate sleep impairment that is similar to patients with Cushing's Syndrome. Younger women with higher clinical severity of MACS a re more likely to have impaired sleep.
https://cushings.invisionzone.com/topic/57895-sleep-disturbances-in-p atients-with-cushing-syndrome-and-mild-autonomous-cortisol-secretion/< /p> CATEGORIES:Cushings UID:20251008T1442590Z-549422-1953@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241030 SUMMARY:Treatments: Adrenalectomy and BLA (Bilateral adrenalectomy) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301030;BYMONTHDAY=30 DESCRIPTION:Some pain is normal after any surgery. Different people have di fferent levels of sensitivity to pain. In general\, you should experience a little less pain every day. Pain is usually worse in the evening when yo u are trying to go to sleep. Do not be afraid to take the pain medicine pr escribed for you\, particularly before you go to sleep\, but you can stop taking it if you are comfortable. Most pain medications cause constipation and they can also cause drowsiness. Do not drive or operate power tools a fter you take narcotic pain medications. If you have only mild discomfort\ , try taking extra-strength Tylenol® as directed. https://cushings-help.co m/2024/10/30/adrenalectomy-and-bla/ X-ALT-DESC;FMTTYPE=text/html:
Some pain is normal after any surgery . Different people have different levels of sensitivity to pain. In genera l\, you should experience a little less pain every day. Pain is usually wo rse in the evening when you are trying to go to sleep. Do not be afraid to take the pain medicine prescribed for you\, particularly before you go to sleep\, but you can stop taking it if you are comfortable. Most pain medi cations cause constipation and they can also cause drowsiness. Do not driv e or operate power tools after you take narcotic pain medications. If you have only mild discomfort\, try taking extra-strength Tylenol®\; as dir ected.
https://cushings-he lp.com/2024/10/30/adrenalectomy-and-bla/
CATEGORIES:Cushings UID:20241030T1336420Z-549422-1825@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250218 SUMMARY:Oncocytic Pituicytoma in a Patient with Cushing's Disease RRULE:FREQ=DAILY;COUNT=1827 DESCRIPTION:Posterior pituitary tumors (PPTs) are extremely rare\, with few er than 400 cases reported to date. In 2022\, the WHO classified four type s of tumors originating from the posterior pituitary Read more at https:// cushings.invisionzone.com/topic/57780-oncocytic-pituicytoma-in-a-patient-w ith-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Posterior pituitary tumors (PPTs) are extremely rare\, with fewer than 400 cases reported to date. In 2022\, th e WHO classified four types of tumors originating from the posterior pitui tary
Read more at \;https://cushings.invisionzone.co m/topic/57780-oncocytic-pituicytoma-in-a-patient-with-cushings-disease/
CATEGORIES:News Items UID:20250218T1630090Z-549422-1846@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250517 SUMMARY:The Role of Late-Night Salivary Cortisol in the Assessment of Endoc rine Remission in Patients With Cushing's Disease After Pituitary Radiothe rapy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270517;BYMONTHDAY=17 DESCRIPTION:Pituitary radiotherapy (RT) is used for persistent/recurrent Cu shing's disease (CD) after pituitary surgery. The utility of late-night sa livary cortisol (LNSC) in evaluating endocrine remission after RT is uncle ar. https://cushings.invisionzone.com/topic/57829-the-role-of-late-night-s alivary-cortisol-in-the-assessment-of-endocrine-remission-in-patients-with -cushings-disease-after-pituitary-radiotherapy/ X-ALT-DESC;FMTTYPE=text/html:Pituitary radiotherapy (RT) is used f or persistent/recurrent Cushing's disease (CD) after pituitary surgery. Th e utility of late-night salivary cortisol (LNSC) in evaluating endocrine r emission after RT is unclear.
CATEGORIES:Cushings UID:20250517T1523410Z-549422-1891@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180430 SUMMARY:Comment added to Stuart M\, Parent of a Teenager RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190430;BYMONTHDAY=30 DESCRIPTION:I too have Cushings. Initially I had my 1.8 cm removed and had about three years of feeling better. And I now have a reoccurrence . I sta rted taking Cagaberline but I could not take it. I am currently taking Met yripone.... In the comments area of https://cushingsbios.com/2018/04/04/st uart-m-parent-of-a-teenager/ X-ALT-DESC;FMTTYPE=text/html:I too have Cushings. Initially I had my 1.8 cm removed and had about three years of feeling better. And I now have a reoccurrence . I started taking Cagaberline but I could not take it. I am currently taking Metyripone....
In the comments area of \;https://cushingsbios.com/2018/04/04/stuart-m-parent-of-a-te enager/
CATEGORIES:Cushie Bios UID:20180430T2348380Z-549422-921@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20250323T210000 DTEND;TZID=America/New_York:20250323T220000 SUMMARY:Webinar Announcement: How Can Blue Zones and Maimonides’ Principles Be Applied To Lead a Healthy Life for Patients With Endocrine Problems? DESCRIPTION:Dr. Theodore Friedman (The Wiz) will start the webinar with an update on compounded GLP-1s (Tirzepatide and Semaglutide) More info at htt ps://cushings.invisionzone.com/topic/57794-webinar-how-can-blue-zones-and- maimonides%E2%80%99-principles-be-applied-to-lead-a-healthy-life-for-patie nts-with-endocrine-problems/ X-ALT-DESC;FMTTYPE=text/html:
Dr. Theodore Friedman (The Wiz) will
start the webinar with an update on compounded GLP-1s (Tirzepatide and Sem
aglutide)
Primary pigmented nodular adrenocorti cal disease (PPNAD) is a rare but important cause of adrenocorticotropic h ormone (ACTH)-independent Cushing syndrome (CS). It usually presents as cy clical CS in young adults. Childhood onset of PPNAD is exceedingly rare. A bout 90% of cases of PPNAD are associated with Carney complex (CNC).
CATEGORIES:News Items UID:20250315T1438020Z-549422-1861@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250317 SUMMARY:Leukocytosis in Cushing’s Syndrome Persists Post-Surgical Remission and Could Predict a Lower Remission Prognosis in Patients with Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260317;BYMONTHDAY=17 DESCRIPTION:At diagnosis\, CS patients have elevated WBC\, neutrophils\, an d NLR compared to controls. Remission does not normalize WBC levels in all patients\, and baseline leukocytosis predicts a poorer remission prognosi s in CD. https://cushings.invisionzone.com/topic/57797-leukocytosis-in-cus hing%E2%80%99s-syndrome-persists-post-surgical-remission-and-could-predict -a-lower-remission-prognosis-in-patients-with-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:At diagnosis\, CS patients have eleva ted WBC\, neutrophils\, and NLR compared to controls. Remission does not n ormalize WBC levels in all patients\, and baseline leukocytosis predicts a poorer remission prognosis in CD.
CATEGORIES:Cushings UID:20250317T1324350Z-549422-1862@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251116 SUMMARY:Clinical Efficacy and Safety of Fluconazole Treatment in Patients w ith Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301116;BYMONTHDAY=16 DESCRIPTION:Ketoconazole is effective for treating Cushing’s syndrome (CS) but its use is limited by the risk of hepatotoxicity. Fluconazole\, with s imilar antifungal properties\, is being investigated as a potentially safe r alternative for managing CS. This study aims to evaluate the efficacy an d safety of fluconazole in patients with CS. https://cushings.invisionzone .com/topic/57916-clinical-efficacy-and-safety-of-fluconazole-treatment-in- patients-with-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Ketoconazole is effective for treatin g Cushing&rsquo\;s syndrome (CS) but its use is limited by the risk of hep atotoxicity. Fluconazole\, with similar antifungal properties\, is being i nvestigated as a potentially safer alternative for managing CS. This study aims to evaluate the efficacy and safety of fluconazole in patients with CS.
CATEGORIES:Cushings UID:20251116T2301250Z-549422-1989@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180828 SUMMARY:New Bio Form! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190828;BYMONTHDAY=28 DESCRIPTION:We have a new form to add your own bio! Try it out at https://c ushingsbios.com/2018/08/28/we-have-a-new-bio-form/ X-ALT-DESC;FMTTYPE=text/html:
We have a new form to add your own bio!
Try it out at \;https://cushingsbios.com/2018/08/28/w e-have-a-new-bio-form/
CATEGORIES:Cushie Bios UID:20180828T1102130Z-549422-970@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250712 SUMMARY:Ectopic Adrenocorticotropic Hormone Syndrome Due To Olfactory Neuro blastoma: A Case Report And Literature Review RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260712;BYMONTHDAY=12 DESCRIPTION:Production of adrenocorticotropic hormone (ACTH) from nonpituit ary tumors – known as ectopic ACTH syndrome (EAS) – is the cause of ACTH-d ependent hypercortisolism in up to 18% of all cases of Cushing's syndrome. https://cushings.invisionzone.com/topic/57851-ectopic-adrenocorticotropic -hormone-syndrome-due-to-olfactory-neuroblastoma-a-case-report-and-literat ure-review/ X-ALT-DESC;FMTTYPE=text/html:Production of adrenocorticotropic hor mone (ACTH) from nonpituitary tumors &ndash\; known as ectopic ACTH syndro me (EAS) &ndash\; is the cause of ACTH-dependent hypercortisolism in up to 18% of all cases of Cushing's syndrome.
CATEGORIES:Cushings UID:20250712T1424420Z-549422-1912@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250713 SUMMARY:Adrenal Gland Volume Measurement Could Assist Surgery Option in Pat ients With Primary Pigmented Nodular Adrenocortical Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280713;BYMONTHDAY=13 DESCRIPTION:Primary pigmented nodular adrenocortical disease is a rare form of adrenocorticotropic hormone–independent Cushing syndrome originating f rom bilateral adrenal lesions. https://cushings.invisionzone.com/topic/578 52-adrenal-gland-volume-measurement-could-assist-surgery-option-in-patient s-with-primary-pigmented-nodular-adrenocortical-disease/ X-ALT-DESC;FMTTYPE=text/html:Primary pigmented nodular adrenocorti cal disease is a rare form of adrenocorticotropic hormone&ndash\;independe nt Cushing syndrome originating from bilateral adrenal lesions.
CATEGORIES:Cushings UID:20250713T1314430Z-549422-1913@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250404 SUMMARY:Thymic Neuroendocrine Tumor With Metastasis to the Breast Causing E ctopic Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300404;BYMONTHDAY=4 DESCRIPTION:We present a case of a 34-year-old woman with a rapid onset of severe hypercortisolism in April 2016. After initial treatment with a ster oid inhibitor (ketoconazole) and diagnostics including 68Ga DOTA-TATE PET/ CT\, it was shown to be caused by a small thymic NET. https://cushings.inv isionzone.com/topic/57807-thymic-neuroendocrine-tumor-with-metastasis-to-t he-breast-causing-ectopic-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:We present a case of a 34-year-old woman wi th a rapid onset of severe hypercortisolism in April 2016. After initial t reatment with a steroid inhibitor (ketoconazole) and diagnostics including 68Ga DOTA-TATE PET/CT\, it was shown to be caused by a small thymic NET.< /p>
CATEGORIES:Cushings UID:20250404T1120400Z-549422-1869@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250405 SUMMARY:We Thought Dad Would Be Alright But We Were Wrong RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300405;BYMONTHDAY=5 DESCRIPTION:A loving dad with ‘boundless energy and positivity’ died unexpe ctedly of a rare condition. Dave Whitfield was 59 when he died in December 2023. His son Archie\, 23\, explained that his dad had been diagnosed wit h several brain tumours throughout his life but they had always been treat able by doctors. This changed in early 2023 however. Another brain tumour led to Dave being diagnosed with Cushing’s syndrome\, a rare condition cau sed by excessive cortisol in the body. Often this overproduction is due to a benign tumour in the pituitary or adrenal glands. Cortisol helps the bo dy cope with stressful situations\, as well as reducing swelling and fight ing off infections. Cushing’s syndrome is also much more common in women t han in men. Because of this\, Archie and the wider family were taken aback about what happened to Dave. Speaking to the ECHO\, Archie said: “Dad had brain tumours come and go over the last 15\, 20 years. “He was always abl e to either get the tumour operated on or have radiotherapy to have them r emoved. However\, a couple years ago\, a tumour came back\, causing Cushin g's syndrome. https://cushingsbios.com/2025/04/05/pituitary-we-thought-dad -would-be-alright-but-we-were-wrong/ X-ALT-DESC;FMTTYPE=text/html:A loving dad with &lsquo\;boundless energy and positivity&rsquo\; died unexpectedly of \;a rare condition. Dave W hitfield was 59 when he died in December 2023.
His son Archie\, 23 \, explained that his dad had been diagnosed with several brain tumours th roughout his life but they had always been treatable by doctors. This chan ged in early 2023 however.
Another brain tumour led to Dave being diagnosed with \;Cushing&rsquo\;s syndrome\, a rare condition caused b y excessive cortisol in the body. Often this overproduction is due to a be nign tumour in the pituitary or adrenal glands.
Cortisol helps the body cope with stressful situations\, as well as reducing swelling and fi ghting off infections. Cushing&rsquo\;s syndrome is also much more common in women than in men.
Because of this\, Archie and the wider famil y were taken aback about what happened to Dave. Speaking to the \;ECHO \, Archie said: &ldquo\;Dad had brain tumours come and go over the last 15 \, 20 years.
&ldquo\;He was always able to either get the tumour o perated on or have radiotherapy to have them removed. However\, a couple y ears ago\, a tumour came back\, causing Cushing's syndrome.
https://cushings bios.com/2025/04/05/pituitary-we-thought-dad-would-be-alright-but-we-were- wrong/
CATEGORIES:Cushie Bios UID:20250405T0944060Z-549422-1870@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250516 SUMMARY:First Oral Therapy for Rare Adrenal Gland Tumors Gets Green Light F rom FDA RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260516;BYMONTHDAY=16 DESCRIPTION:The FDA has expanded the approval of belzutifanopens in a new t ab or window (Welireg) to include certain types of pheochromocytoma or par aganglioma (PPGL) in adults and children. The action establishes belzutifa n as the only approved oral therapy for PPGL. The approval stipulates use in adults and children 12 years or older with locally advanced\, unresecta ble\, or metastatic PPGL. https://cushings.invisionzone.com/topic/57827-fi rst-oral-therapy-for-rare-adrenal-gland-tumors-gets-green-light-from-fda/ X-ALT-DESC;FMTTYPE=text/html:The FDA has \;expanded the approval of belzutifanopens in a new tab or window \;(Welireg) to include certain types of pheochromocytoma or paraganglioma (PPGL) in adults and children.< /p>
The action establishes belzutifan as the only approved oral therap y for PPGL. The approval stipulates use in adults and children 12 years or older with locally advanced\, unresectable\, or metastatic PPGL.
CATEGORIES:Other Medical UID:20250516T0913050Z-549422-1889@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250408 SUMMARY:Dr. Friedman: Update on Compounded GLP-1s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260408;BYMONTHDAY=8 DESCRIPTION:Followup to Dr. Friedman Webinar on Compounded Tirzepatide vs S emaglutide https://cushings.invisionzone.com/topic/57809-dr-friedman-updat e-on-compounded-glp-1s/ X-ALT-DESC;FMTTYPE=text/html:Followup to Dr. Friedman Webinar on C ompounded Tirzepatide vs Semaglutide
https://cushings.invisionzone.com/to pic/57809-dr-friedman-update-on-compounded-glp-1s/
CATEGORIES:Other Medical UID:20250408T0859180Z-549422-1872@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241030 SUMMARY:Cushing Syndrome in Paediatric Population RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301030;BYMONTHDAY=30 DESCRIPTION:The diagnosis of Cushing's Syndrome is often difficult due to t he insidious onset of hypercortisolism\, in absence of relevant early sign s of the disease\, as well as the rarity of the disease in childhood. For these reasons\, the time to diagnosis has been reported as a mean of 33 mo nths (95% CI 29–38) and not dissimilar to adult population. https://cushin gs.invisionzone.com/topic/57762-cushing-syndrome-in-paediatric-population/ X-ALT-DESC;FMTTYPE=text/html:The diagnosis of Cushing's Syndrome is ofte n difficult due to the insidious onset of hypercortisolism\, in absence of relevant early signs of the disease\, as well as the rarity of the diseas e in childhood. For these reasons\, the time to diagnosis has been reporte d as a mean of 33 months (95% CI 29&ndash\;38) and not dissimilar to adult population.
https://cushings.invisionzone.com/topic/57762-cushing-syndrome-in-paedi atric-population/
CATEGORIES:Cushings UID:20241030T1353330Z-549422-1826@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190108 SUMMARY:Comment added to Brian R\, MENS Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200108;BYMONTHDAY=8 DESCRIPTION:Thanks for sharing your story. In February it will be 6 years s ince I’ve had my pituitary surgery. My health is constantly up and down as well. I was just wondering if you’re treated for depression or anxiety at all? Also\, have you found any exercises or physical therapy to be helpfu l?... Read more at https://cushingsbios.com/2018/12/15/brian-r-mens-bio/ X-ALT-DESC;FMTTYPE=text/html:Thanks for sharing your story. In February it will be 6 years since I&rsquo\;ve had my pituitary surgery. My health i s constantly up and down as well. I was just wondering if you&rsquo\;re tr eated for depression or anxiety at all? Also\, have you found any exercise s or physical therapy to be helpful?...
Read more at \;h ttps://cushingsbios.com/2018/12/15/brian-r-mens-bio/
CATEGORIES:Cushie Bios UID:20190109T0237340Z-549422-1060@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180902 SUMMARY:Guest Question: Upcoming Endo Appointment RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190902;BYMONTHDAY=2 DESCRIPTION:Can someone please help me? Over the past few years I have gai ned over 40 lbs\, suffer from extreme fatigue\, muscle cramps\, headaches\ , just to name a few. I also have a hump between my shoulders. I have gone to see my primary care physician and asked about Cushing’s syndrome and s he said that there’s just no way I could have this because it is so rare. Read more at https://cushieblogger.com/2018/09/02/guest-question-upcoming -endo-appointment/ X-ALT-DESC;FMTTYPE=text/html:Can someone please help me? \;Over the past few years I have gained over 40 lbs\, suffer from extreme fatigue\, muscle cramps\, headaches\, just to name a few. I also have a hump between my shoulders. \;I have gone to see my primary care physician and aske d about Cushing&rsquo\;s syndrome and she said that there&rsquo\;s just no way I could have this because it is so rare. \;
Read more at& nbsp\;https://cushieblogger.com/2018/09/02/ guest-question-upcoming-endo-appointment/
CATEGORIES:Cushie Bios UID:20180902T2213410Z-549422-971@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181119 SUMMARY:Krista\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191119;BYMONTHDAY=19 DESCRIPTION:Krista is from Eugene\, OR She had pituitary surgery in April \, 2015. She has also dealt with thyroid cancer. Read more at https://cus hingsbios.com/2018/11/19/krista-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Krista is from Eugene\, OR \; She had pituitary surgery in April\, 2015. \;She has also dealt with thyroid cancer.
Read more at \;https://cushingsbios.com/2018 /11/19/krista-pituitary-bio/
CATEGORIES:Cushie Bios UID:20181120T0153110Z-549422-1032@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Helpful Doctor added to Oregon DTSTART;VALUE=DATE:20181217 DTEND;VALUE=DATE:20181218 RRULE:FREQ=MONTHLY;UNTIL=20191119;BYDAY=3MO DESCRIPTION:In her bio\, Krista added her helpful doctor\, Maria Fleseriu R ead more at https://cushieblogger.com/2018/11/19/helpful-doctors-oregon/ X-ALT-DESC;FMTTYPE=text/html:In her bio\, Krista added her helpful docto r\, Maria Fleseriu
Read more at \;https://cushieb logger.com/2018/11/19/helpful-doctors-oregon/
CATEGORIES:Helpful Doctors UID:20181119T1303060Z-549422-1033@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180721 SUMMARY:New Testimonial From Melanie C RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190721;BYMONTHDAY=21 DESCRIPTION:I remember my first guest post in 2007\, was overjoyed to find I wasn't the only medical anomaly lol! Congratulations to Cushing's Help f or coming of age! ? Posted at https://cushieblogger.com/testimonial/melani e-c/ X-ALT-DESC;FMTTYPE=text/html:I remember my first guest post in 2007\, wa s overjoyed to find I wasn't the only medical anomaly lol!
Congrat ulations to Cushing's Help for coming of age! ?
Posted at \;h ttps://cushieblogger.com/testimonial/melanie-c/
CATEGORIES:Cushings UID:20180722T1303130Z-549422-957@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Day 3: Cushing’s Awareness Challenge 2018I DTSTART;VALUE=DATE:20180501 DTEND;VALUE=DATE:20180502 RRULE:FREQ=MONTHLY;UNTIL=20190403;BYDAY=1TU EXDATE;VALUE=DATE:20190402 DESCRIPTION:If you believe you have Cushing's (or any other rare disease)\, learn what you can about it\, connect with other patients\, make a timeli ne of symptoms and photographs. Read\, take notes\, save all your doctors notes\, keep your lab findings\, get second/third/ten or more opinions. M ake a calendar showing which days you had what symptoms. Google calendars are great for this. Read more at https://cushieblogger.com/2018/04/03/day -3-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:If you believe you have Cushing's (or any o ther rare disease)\, learn what you can about it\, connect with other pati ents\, make a timeline of symptoms and photographs. Read\, take notes\, sa ve all your doctors notes\, keep your lab findings\, get second/third/ten or more opinions. \;Make a calendar showing which days you had what s ymptoms. \;Google calendars are great for this.
Read more at& nbsp\;https://cushieblogger.com/2018/04/03/d ay-3-cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180403T2015540Z-549422-875@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180414 SUMMARY:Comment added to Rachelle L (Rachelle)\, Mother-in-Law of Pituitary Patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190414;BYMONTHDAY=14 DESCRIPTION:...I do have many of the symptoms of hypothyroidism\, including feeling cold all the time. I know I have high testosterone levels\, as th ey have been tested and shown as high\, and I have some of the affects of that\, too\, like increased facial hair and chest hair and deepening of th e voice.... In the comment area of https://cushingsbios.com/2018/04/10/rac helle-l-rachelle-mother-in-law-of-pituitary-patient/ X-ALT-DESC;FMTTYPE=text/html:...I do have many of the symptoms of hypoth yroidism\, including feeling cold all the time. I know I have high testost erone levels\, as they have been tested and shown as high\, and I have som e of the affects of that\, too\, like increased facial hair and chest hair and deepening of the voice....
In the comment area of \;https://cushingsbios.com/2018/04/10 /rachelle-l-rachelle-mother-in-law-of-pituitary-patient/
CATEGORIES:Cushie Bios UID:20180414T1250230Z-549422-906@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20210520 SUMMARY:What Causes Blood Sugar to Rise in Non-Diabetics? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300520;BYMONTHDAY=20 DESCRIPTION:People with Cushing’s syndrome are at an increased risk of deve loping impaired glucose tolerance and hyperglycemia as a result of increas ed levels of cortisol throughout the body… Approximately 10% to 30% of peo ple with Cushing’s syndrome will develop impaired glucose tolerance\, whil e 40% to 45% will develop diabetes. Read more at https://cushings.invisi onzone.com/topic/55671-what-causes-blood-sugar-to-rise-in-non-diabetics/ X-ALT-DESC;FMTTYPE=text/html:People with Cushing&rsquo\;s syndrome are a t an increased risk of developing impaired glucose tolerance and hyperglyc emia as a result of increased levels of cortisol throughout the body&helli p\;
Approximately 10% to 30% of people with Cushing&rsquo\;s syndr ome will develop impaired glucose tolerance\, while 40% to 45% will develo p diabetes.
\;
Read more at \;https://cushings.invisionzone.com/topic/55671 -what-causes-blood-sugar-to-rise-in-non-diabetics/
CATEGORIES:News Items UID:20210520T1537270Z-549422-1379@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Mary Kelly O’Connor\, Person of the Month-May 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250501;BYMONTH=5;BYMONTHDAY=1 DTSTART;VALUE=DATE:20180501 DTEND;VALUE=DATE:20180502 DESCRIPTION:.The EPIC Foundation would like to recognize Mary Kelly O’Conno r as a pioneer in the Cushing’s community as an advocate and life changer! Mary Kelly O’Connor is Person of the Month for May\, 2018!... Mary O want s to support\, educate\, and share! She has been able to provide support t o an entire community of people on her own and with very little funding. S he puts her heart and soul into this work because she cares deeply about t his community! Mary O has been able to turn her adversity into an opportun ity to walk in her purpose to change lives! Mary Kelly O’Connor is definit ely someone you should know! The EPIC Foundation proudly works in alliance with Mary Kelly O’Connor the founder of Cushing’s Help\, a foundation ded icated to giving Cushing’s patients valuable information\, a space to shar e their stories\, and a place to connect with one another. To learn more i nformation about Mary O and her work\, you can go to her website at http:/ /cushings-help.com/ Together\, We are EPIC! Read more at https://cushieblo gger.com/2018/05/01/mary-kelly-oconnor-person-of-the-month-may-2018/ X-ALT-DESC;FMTTYPE=text/html:.The EPIC Foundation would like to recogniz e Mary Kelly O&rsquo\;Connor as a pioneer in the Cushing&rsquo\;s communit y as an advocate and life changer! Mary Kelly O&rsquo\;Connor is Person of the Month for May\, 2018!...
Mary O wants to support\, educ
ate\, and share! She has been able to provide support to an entire communi
ty of people on her own and with very little funding. She puts her heart a
nd soul into this work because she cares deeply about this community! Mary
O has been able to turn her adversity into an opportunity to walk in her
purpose to change lives!
Mary Kelly O&rsquo\;Connor is defin
itely someone you should know! The EPIC Foundation proudly works in allian
ce with Mary Kelly O&rsquo\;Connor the founder of Cushing&rsquo\;s Help\,
a foundation dedicated to giving Cushing&rsquo\;s patients valuable inform
ation\, a space to share their stories\, and a place to connect with one a
nother. To learn more information about Mary O and her work\, you can go t
o her website at \;http://cushings-help.com/ \;Together\, We are E
PIC!
Read more at \;http s://cushieblogger.com/2018/05/01/mary-kelly-oconnor-person-of-the-month-ma y-2018/
CATEGORIES:Cushings UID:20180501T2238570Z-549422-922@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250716 SUMMARY:Novel Cushing's Syndrome Drug Improves Hypertension\, Hyperglycemia RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270716;BYMONTHDAY=16 DESCRIPTION:Relacorilant works differently than other agents indicated for endogenous hypercortisolism (also known as Cushing's syndrome) like the no nselective glucocorticoid receptor antagonist mifepristone (Korlym)\, whic h can be difficult to use given its drug-drug interactions and side effect s like endometrial hypertrophy and vaginal bleeding. https://cushings.invi sionzone.com/topic/57853-novel-cushings-syndrome-drug-improves-hypertensio n-hyperglycemia/ X-ALT-DESC;FMTTYPE=text/html:Relacorilant works differently than other a gents indicated for endogenous hypercortisolism (also known as Cushing's s yndrome) like the nonselective glucocorticoid receptor antagonist mifepris tone (Korlym)\, which can be difficult to use given its drug-drug interact ions and side effects like endometrial hypertrophy and vaginal bleeding.
CATEGORIES:Cushings UID:20250716T1455270Z-549422-1914@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250415 SUMMARY:Efficacy and Safety of Pasireotide in Patients With Cushing’s Disea se RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300415;BYMONTHDAY=15 DESCRIPTION:Pasireotide is the first pituitary-directed approved therapy fo r Cushing’s disease (CD)\, effective in reducing 24 h urine free cortisol (UFC) > 50% in more than half of patients\, with beneficial effects and wi th a relatively high incidence of hyperglycemia. The aim of this study was to evaluate efficacy and safety of long-term treatment with pasireotide ( PAS) in CD patients\, also according to gender. https://cushings.invisionz one.com/topic/57812-efficacy-and-safety-of-pasireotide-in-patients-with-cu shing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Pasireotide is the first pituitary-di rected approved therapy for Cushing&rsquo\;s disease (CD)\, effective in r educing 24&thinsp\;h urine free cortisol (UFC)&thinsp\;>\;&thinsp\;50% i n more than half of patients\, with beneficial effects and with a relative ly high incidence of hyperglycemia. The aim of this study was to evaluate efficacy and safety of long-term treatment with pasireotide (PAS) in CD pa tients\, also according to gender.
CATEGORIES:Cushings UID:20250415T0931160Z-549422-1875@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Dr. Charles Wilson\, One of the world’s greatest neurosurgeons and pioneer of transsphenoidal pituitary surgery died at 88 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20200228;BYMONTH=2;BYMONTHDAY=28 DTSTART;VALUE=DATE:20180228 DTEND;VALUE=DATE:20180301 DESCRIPTION:He took a particular interest in pituitary disorders\, those af fecting the pea-sized ‘master gland’ at the base of the brain responsible for controlling the body’s hormone levels. He was a pioneer of transspheno idal surgery – the endonasal approach for removing pituitary tumors – and performed more than 3\,300 of these procedures at UCSF Medical Center. Rea d more at https://cushieblog.com/2018/03/08/dr-charles-wilson-one-of-the-w orlds-greatest-neurosurgeons-and-pioneer-of-transsphenoidal-pituitary-surg ery-died-at-88/ X-ALT-DESC;FMTTYPE=text/html:He took a particular interest in pituitary disorders\, those affecting the pea-sized &lsquo\;master gland&rsquo\; at the base of the brain responsible for controlling the body&rsquo\;s hormon e levels. He was a pioneer of transsphenoidal surgery &ndash\; the endonas al approach for removing pituitary tumors &ndash\; and performed more than 3\,300 of these procedures at UCSF Medical Center.
Read more at&n bsp\;https://cushieblog.com/2018/03/08/dr- charles-wilson-one-of-the-worlds-greatest-neurosurgeons-and-pioneer-of-tra nssphenoidal-pituitary-surgery-died-at-88/
CATEGORIES:In Memory UID:20180308T1431580Z-549422-848@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250809 SUMMARY:Cushing’s Syndrome in a Young Woman Due to Prolonged Betamethasone Nasal Drop Use RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300809;BYMONTHDAY=9 DESCRIPTION:This report is about a 21-year-old Iranian woman using betameth asone nasal drops for nasal obstruction. The patient presented with weight gain\, Amenorrhea\, mood disturbances\, red purplish striae\, and mild hi rsutism. Hormonal assessments revealed suppression of the hypothalamic–pit uitary–adrenal axis. https://cushings.invisionzone.com/topic/57861-cushing %E2%80%99s-syndrome-in-a-young-woman-due-to-prolonged-betamethasone-nasal- drop-use/ X-ALT-DESC;FMTTYPE=text/html:This report is about a 21-year-old Ir anian woman using betamethasone nasal drops for nasal obstruction. The pat ient presented with weight gain\, Amenorrhea\, mood disturbances\, red pur plish striae\, and mild hirsutism. Hormonal assessments revealed suppressi on of the hypothalamic&ndash\;pituitary&ndash\;adrenal axis.
< p>https://cushings.invisionzone.com/to pic/57861-cushing%E2%80%99s-syndrome-in-a-young-woman-due-to-prolonged-bet amethasone-nasal-drop-use/ CATEGORIES:Cushings UID:20250809T1539140Z-549422-1919@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20250817T210000 DTEND;TZID=America/New_York:20250817T220000 SUMMARY:Webinar: Cortisol Circadian Rhythm: Patterns that are the Guide to Cushing’s Disease and Wellness DESCRIPTION:Dr. Theodore Friedman will be giving a webinar on Salivary Cort isol Circadian Rhythms. What is the normal Cortisol Circadian Rhythm and W hat Happens in Cushing’s? https://cushings.invisionzone.com/topic/57863-we binar-cortisol-circadian-rhythm-patterns-that-are-the-guide-to-cushing%E2% 80%99s-disease-and-wellness/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman will be giving a webi nar on Salivary Cortisol Circadian Rhythms. What is the normal Cortisol Ci rcadian Rhythm and What Happens in Cushing&rsquo\;s?
CATEGORIES:Events and Meetings UID:20250815T1015500Z-549422-1921@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20250826T100000 DTEND;TZID=America/New_York:20250826T110000 SUMMARY:Webinar: Empowering Patients: Co-Designing Clinical Trials for Bett er Outcomes DESCRIPTION:Are you familiar with clinical trial co-design? It’s the proces s of researchers planning and designing a clinical trial together with pat ients\, caregivers\, and other stakeholders to ensure the study is relevan t\, ethical\, and focused on what matters most to the people it affects. E arlier this year\, 2156 U.S. patients were surveyed by Rare Patient Voice on their thoughts regarding taking part in co-design for clinical trials. Join Pam and Mindy as they discuss the importance of empowering patients t o get involved. https://cushings.invisionzone.com/topic/57864-webinar-empo wering-patients-co-designing-clinical-trials-for-better-outcomes/ X-ALT-DESC;FMTTYPE=text/html:Are you familiar with clinical trial co-des ign? It&rsquo\;s the process of researchers planning and designing a clini cal trial together with patients\, caregivers\, and other stakeholders to ensure the study is relevant\, ethical\, and focused on what matters most to the people it affects. Earlier this year\, 2156 U.S. patients were surv eyed by Rare Patient Voice on their thoughts regarding taking part in co-d esign for clinical trials. Join Pam and Mindy as they discuss the importan ce of empowering patients to get involved.
CATEGORIES:Events and Meetings UID:20250820T1320470Z-549422-1922@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250821 SUMMARY:The Reflex Dexamethasone Suppression Test: Development and Assessme nt of Reflexed Serum Dexamethasone Measurement for the Diagnosis of Cushin g Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300821;BYMONTHDAY=21 DESCRIPTION:Screening for Cushing syndrome (CS\; endogenous overproduction of ACTH or cortisol) is performed by the low-dose overnight serum dexameth asone suppression test (oDST) with the measurement of serum dexamethasone concentration to assure an effective dose. https://cushings.invisionzone.c om/topic/57865-the-reflex-dexamethasone-suppression-test-development-and-a ssessment-of-reflexed-serum-dexamethasone-measurement-for-the-diagnosis-of -cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Screening for Cushing syndrome (CS\; endogenous overproduction of ACTH or cortisol) is performed by the low-dos e overnight serum dexamethasone suppression test (oDST) with the measureme nt of serum dexamethasone concentration to assure an effective dose.
CATEGORIES:Cushings UID:20250821T0745340Z-549422-1923@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250828 SUMMARY:Unilateral Adrenalectomy for Pediatric Cyclical Cushing Syndrome Wi th Novel PRKAR1A Variant Associated Carney Complex RRULE:FREQ=DAILY;COUNT=1827 DESCRIPTION:We present a 9-year-old boy who presented at age 4 with cyclica l Cushing syndrome and was eventually diagnosed with a novel\, previously unreported\, unpublished variant in PRKAR1A associated with Carney complex . He was treated with unilateral left adrenalectomy. At 1-year follow-up\, he continues to be in remission of his symptoms of Cushing syndrome. http s://cushings.invisionzone.com/topic/57870-unilateral-adrenalectomy-for-ped iatric-cyclical-cushing-syndrome-with-novel-prkar1a-variant-associated-car ney-complex/ X-ALT-DESC;FMTTYPE=text/html:We present a 9-year-old boy who prese nted at age 4 with cyclical Cushing syndrome and was eventually diagnosed with a novel\, previously unreported\, unpublished variant in \ ;PRKAR1A \;associated with Carney complex. He was treat ed with unilateral left adrenalectomy. At 1-year follow-up\, he continues to be in remission of his symptoms of Cushing syndrome.
CATEGORIES:Cushings UID:20250828T0734580Z-549422-1928@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241227 SUMMARY:A Most Generous Gift! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20251227;BYMONTHDAY=27 DESCRIPTION:Since the advent of Facebook and others\, these message boards are pretty lonely these days. So much so\, that I was thinking about shutt ing down these boards - the most expensive of the lot - this year. So\, al ong came this most generous donation and I can't let people down so... we' re good to go for another several months. https://cushings.invisionzone.co m/topic/57773-a-most-generous-gift/#comment-478960 X-ALT-DESC;FMTTYPE=text/html:Since the advent of Facebook and others\, t hese message boards are pretty lonely these days. So much so\, that I was thinking about shutting down these boards - the most expensive of the lot - this year.
So\, along came this most generous donation and I can 't let people down so... we're good to go for another several months.
https://cushings.inv isionzone.com/topic/57773-a-most-generous-gift/#comment-478960
CATEGORIES:Cushings UID:20241227T1349480Z-549422-1839@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250903 SUMMARY:Save the Date: Dueling Endocrinologists Discussing Hypothyroidism D iagnosis and treatment: Commonalities and Differences RRULE:FREQ=DAILY;COUNT=12 DESCRIPTION:Dr. Friedman will be joined by Brittany Henderson\, MD\, ECNU f or an exciting GoodHormoneHeath Webinar on Dueling Academic-Based Endocrin ologists discussing state-of-the-art hypothyroidism diagnosis and treatmen t: Commonalities and Differences https://cushings.invisionzone.com/topic/5 7875-save-the-date-dueling-endocrinologists-discussing-hypothyroidism-diag nosis-and-treatment-commonalities-and-differences/ X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman will be joined by Brittany Hen derson\, MD\, ECNU for an exciting GoodHormoneHeath Webinar on Dueling Aca demic-Based Endocrinologists discussing state-of-the-art hypothyroidism di agnosis and treatment: Commonalities and Differences
CATEGORIES:Events and Meetings UID:20250903T1504530Z-549422-1933@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181229 SUMMARY:Comment added to Rachel\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191229;BYMONTHDAY=29 DESCRIPTION:Hi Rachel\, I’m 27 and share very similar symptoms with you. I luckily have a great primary care doc who I can talk to about this during my next appt. I’d love to compare notes! Feel free to reach out. Read the original bio at https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio / X-ALT-DESC;FMTTYPE=text/html:Hi Rachel\, I&rsquo\;m 27 and share very si milar symptoms with you. I luckily have a great primary care doc who I can talk to about this during my next appt. I&rsquo\;d love to compare notes! Feel free to reach out.
Read the original bio at \;https: //cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20181229T2247550Z-549422-1053@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240212 SUMMARY:Study of SPI-62 in subjects with ACTH-dependent Cushing's syndrome caused by a non-adrenal tumor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250212;BYMONTHDAY=12 DESCRIPTION:This is a randomized\, placebo-controlled\, study of SPI-62 in subjects with ACTH-dependent Cushing's syndrome caused by a non-adrenal tu mor. Subjects will receive each of the following 2 treatments for 24 weeks : SPI-62 and matching placebo with the option of long-term extension. Read more at https://cushings.invisionzone.com/topic/57693-study-of-spi-62-in- subjects-with-acth-dependent-cushings-syndrome-caused-by-a-non-adrenal-tum or/ X-ALT-DESC;FMTTYPE=text/html:This is a randomized\, placebo-controlled\, study of SPI-62 in subjects with ACTH-dependent Cushing's syndrome caused by a non-adrenal tumor.
Subjects will receive each of the followi ng 2 treatments for 24 weeks: SPI-62 and matching placebo with the option of long-term extension.
CATEGORIES:Cushings UID:20240212T1524150Z-549422-1744@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190121 SUMMARY:How to avoid pitfalls in interpretation of adrenal imaging RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200121;BYMONTHDAY=21 DESCRIPTION:A clear understanding of the pitfalls in the performance and in terpretation of adrenal CT can help prevent incorrect and inappropriate in vestigations\, award-winning researchers from a top London facility have f ound. It's essential to keep aware of the full range of pseudolesions and mimics\, they said. 'Evaluation of adrenal tumor function is limited on im aging\, but may be inferred from imaging findings\,' noted Dr. Gurinder Na ndra and colleagues from the department of radiology at St. George's Unive rsity Hospitals NHS Foundation Trust in an e-poster presentation that rece ived a cum laude award at RSNA 2018 in Chicago. Read more at https://cushi eblog.com/2019/01/21/how-to-avoid-pitfalls-in-interpretation-of-adrenal-im aging/ X-ALT-DESC;FMTTYPE=text/html:A clear understanding of the pitfalls in th e performance and interpretation of adrenal CT can help prevent incorrect and inappropriate investigations\, award-winning researchers from a top Lo ndon facility have found. It's essential to keep aware of the full range o f pseudolesions and mimics\, they said.
'Evaluation of adrenal tum or function is limited on imaging\, but may be inferred from imaging findi ngs\,' noted Dr. \;Gurinder Nandra and colleagues from the department of radiology at St. George's University Hospitals NHS Foundation Trust in an e-poster presentation that received a cum laude award at RSNA 2018 in C hicago.
Read more at \;https://cushieblog.com/2019/01/21/how-to-avoid-pitfalls-in-interpre tation-of-adrenal-imaging/
CATEGORIES:News Items UID:20190121T1641560Z-549422-1073@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230202 SUMMARY:An Aggressive Case of Adrenocortical Carcinoma Complicated by Paran eoplastic Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260202;BYMONTHDAY=2 DESCRIPTION:Endocrinologic evaluation revealed grossly elevated 24-hour uri nary free cortisol and elevated serum cortisol levels consistent with seve re Cushing’s syndrome\, and she was started on high-dose ketoconazole. Rea d more at https://cushings.invisionzone.com/topic/57592-an-aggressive-case -of-adrenocortical-carcinoma-complicated-by-paraneoplastic-cushing%E2%80%9 9s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Endocrinologic evaluation revealed grossly elevated 24-hour urinary free cortisol and elevated serum cortisol levels consistent with severe Cushing&rsquo\;s syndrome\, and she was started on high-dose ketoconazole.
CATEGORIES:News Items UID:20230202T1347560Z-549422-1639@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Please Pray for the Founder of the Adrenal Alternatives Foundation DTSTART;VALUE=DATE:20230202 DTEND;VALUE=DATE:20230203 RRULE:FREQ=WEEKLY;UNTIL=20231002;BYDAY=MO,TH DESCRIPTION:The founder of Adrenal Alternatives Foundation has suffered a s evere adrenal crisis yesterday morning. She is alive but fighting for her life. We are unsure of the status of the Foundation at this time. This is the unfortunate reality of this disease\, not even the strongest ones are exempt from the toll it takes. Keep fighting\, adrenal warriors. Read more at https://cushings.invisionzone.com/topic/57593-please-pray-for-the-foun der-of-the-adrenal-alternatives-foundation/ X-ALT-DESC;FMTTYPE=text/html:The founder of \;Adrenal Alternatives F
oundation has suffered a severe adrenal crisis yesterday morning. She is a
live but fighting for her life.
We are unsure of the status of the Fo
undation at this time.
This is the unfortunate reality of this dis ease\, not even the strongest ones are exempt from the toll it takes. Keep fighting\, adrenal warriors.
Read more at \;https://cu shings.invisionzone.com/topic/57593-please-pray-for-the-founder-of-the-adr enal-alternatives-foundation/
CATEGORIES:Other Medical UID:20231012T1145150Z-549422-1640@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251217 SUMMARY:Approach to the Patient with Cushing’s Syndrome: Use of Anticoagula tion Therapy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301217;BYMONTHDAY=17 DESCRIPTION:There is an increased awareness on the higher hypecoagulability risks in patients with Cushing’s syndrome (CS) but management remains con troversial. https://cushings.invisionzone.com/topic/57928-approach-to-the- patient-with-cushing%E2%80%99s-syndrome-use-of-anticoagulation-therapy/ X-ALT-DESC;FMTTYPE=text/html:There is an increased awareness on th e higher hypecoagulability risks in patients with Cushing&rsquo\;s syndrom e (CS) but management remains controversial.
CATEGORIES:Cushings UID:20251217T1002520Z-549422-2026@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY: Brian R\, MENS Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301217;BYMONTH=12;BYMONTHDAY=17 DTSTART;VALUE=DATE:20251217 DTEND;VALUE=DATE:20251218 DESCRIPTION:Brian is from Pendleton\, IN He had thyroid surgery in October 2015 https://cushingsbios.com/2025/12/15/brian-r-mens-bio/ X-ALT-DESC;FMTTYPE=text/html:Brian is from Pendleton\, IN \;He had thyroid surgery in October 2015
https://cushi ngsbios.com/2025/12/15/brian-r-mens-bio/
CATEGORIES:Cushie Bios UID:20251217T1020200Z-549422-2028@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251217 SUMMARY:Final Diagnosis: ACTH-dependent Cushing’s syndrome • ectopic ACTH s yndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301217;BYMONTHDAY=17 DESCRIPTION:Adrenocorticotropic hormone (ACTH)-dependent Cushing’s syndrome (CS) secondary to an ectopic source is an uncommon condition\, accounting for 4–5% of all cases of CS. Refractory hypokalemia can be the presenting feature in patients with ectopic ACTH syndrome (EAS)\, and is seen in up to 80% of cases. EAS can be rapidly progressive and life-threatening witho ut timely diagnosis and intervention. https://cushingsbios.com/2025/12/16/ final-diagnosis-acth-dependent-cushings-syndrome-ectopic-acth-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Adrenocorticotropic hormone (ACTH)-de pendent Cushing&rsquo\;s syndrome (CS) secondary to an ectopic source is a n uncommon condition\, accounting for 4&ndash\;5% of all cases of CS. Refr actory hypokalemia can be the presenting feature in patients with ectopic ACTH syndrome (EAS)\, and is seen in up to 80% of cases. EAS can be rapidl y progressive and life-threatening without timely diagnosis and interventi on.
CATEGORIES:Cushings UID:20251217T1017570Z-549422-2027@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251009 SUMMARY:Osilodrostat-associated Adrenal Gland Shrinkage: a Case Series of P atients with ACTH-Dependent Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301009;BYMONTHDAY=9 DESCRIPTION:Medical therapy for Cushing’s syndrome (CS) is increasingly use d. A potent adrenal steroidogenesis inhibitor\, osilodrostat\, has been ra rely linked to prolonged adrenal insufficiency (AI). https://cushings.invi sionzone.com/topic/57897-osilodrostat-associated-adrenal-gland-shrinkage-a -case-series-of-patients-with-acth-dependent-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Medical therapy for Cushing&rsquo\;s syndrome (CS) is increasingly used. A potent adrenal steroidogenesis inhib itor\, osilodrostat\, has been rarely linked to prolonged adrenal insuffic iency (AI).
CATEGORIES:Cushings UID:20251009T0932030Z-549422-1954@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment on Michelle (Michelle)\, Cyclical Cushing’s Bio DTSTART;VALUE=DATE:20210617 DTEND;VALUE=DATE:20210618 RRULE:FREQ=MONTHLY;UNTIL=20220520;BYDAY=3TH DESCRIPTION:I have a very very similar experience. I’m scheduled to go to t he mayo clinic in Minnesota in July. I live in Massachusetts so it’s a maj or decision but I am desperate. Like you I’m a very active runner\, cycler \, CrossFit etc. and I just I started progressively gaining weight\, so mu ch slowly in the beginning and then more rapidly in a bit in the past year . Oddly in 2019\, around the time the weight game started happening\, I br oke out in hives all over my body and angioedema of my feet lip trunk. The y had me in the ICU because they thought it was anaphylaxis. It wasn’t and nothing was ever determined as far as the cause. How was your Cushing’s e ver confirmed and what was your source? Read more at https://cushingsbio s.com/2018/11/10/michelle-michelle-cyclical-cushings-bio/comment-page-1/#c omment-58356 X-ALT-DESC;FMTTYPE=text/html:I have a very very similar experience. I&rs quo\;m scheduled to go to the mayo clinic in Minnesota in July. I live in Massachusetts so it&rsquo\;s a major decision but I am desperate. Like you I&rsquo\;m a very active runner\, cycler\, CrossFit etc. and I just I sta rted progressively gaining weight\, so much slowly in the beginning and th en more rapidly in a bit in the past year. Oddly in 2019\, around the time the weight game started happening\, I broke out in hives all over my body and angioedema of my feet lip trunk. They had me in the ICU because they thought it was anaphylaxis. It wasn&rsquo\;t and nothing was ever determin ed as far as the cause. How was your Cushing&rsquo\;s ever confirmed and w hat was your source?
\;
Read more at \;https://cushingsbios.com/2 018/11/10/michelle-michelle-cyclical-cushings-bio/comment-page-1/#comment- 58356
CATEGORIES:Cushie Bios UID:20210520T1606230Z-549422-1380@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180425 SUMMARY:Blood Lipid Levels Linked to High Blood Pressure in Cushing’s Disea se Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190425;BYMONTHDAY=25 DESCRIPTION:In children and adults with Cushing’s syndrome\, the relationsh ip between increased cortisol levels and higher blood pressure has also be en reported. Patients with Cushing’s syndrome may remain hypertensive even after surgery to lower their cortisol levels\, suggesting their hypertens ion is caused by changes in blood vessels. Read more at https://cushieblog .com/2018/04/25/blood-lipid-levels-linked-to-high-blood-pressure-in-cushin gs-disease-patients/ X-ALT-DESC;FMTTYPE=text/html:In children and adults with \;Cushing&r squo\;s syndrome\, the relationship between increased cortisol levels and higher blood pressure has also been reported. Patients with Cushing&rsquo\ ;s syndrome may remain hypertensive even after surgery to lower their cort isol levels\, suggesting their hypertension is caused by changes in blood vessels.
Read more at \;https://cushieblog.com/2018/04/25/blood-lipid-l evels-linked-to-high-blood-pressure-in-cushings-disease-patients/
CATEGORIES:Cushings UID:20180425T2308550Z-549422-917@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240720 SUMMARY:Targeted analysis of Ubiquitin-Specific Peptidase (USP8) in a popul ation of Iranian people with Cushing’s disease and a systematic review of the literature RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300720;BYMONTHDAY=20 DESCRIPTION:Pituitary corticotroph adenoma accounts for 68% of endogenous h ypercortisolism. Prolonged exposure to high cortisol levels is associated with a variety of long-term complications\, impaired quality of life\, and increased mortality. Transsphenoidal surgical excision is the treatment o f choice. However\, curative surgery is challenging with the initial remis sion rate of 65–85% and a high recurrence rate. From https://cushings.invi sionzone.com/topic/57747-targeted-analysis-of-ubiquitin-specific-peptidase -usp8-in-a-population-of-iranian-people-with-cushing%E2%80%99s-disease-and -a-systematic-review-of-the-literature/ X-ALT-DESC;FMTTYPE=text/html:Pituitary corticotroph adenoma accounts for 68% of endogenous hypercortisolism. Prolonged exposure to high cortisol l evels is associated with a variety of long-term complications\, impaired q uality of life\, and increased mortality. Transsphenoidal surgical excisio n is the treatment of choice. However\, curative surgery is challenging wi th the initial remission rate of 65&ndash\;85% and a high recurrence rate.
CATEGORIES:Cushings UID:20240721T0753510Z-549422-1805@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250723 SUMMARY:Improved Noninvasive Diagnostic Evaluations in Treatment-Naïve Adre nocorticotropic Hormone (ACTH)-Dependent Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280723;BYMONTHDAY=23 DESCRIPTION:In patients with ACTH-dependent Cushing’s syndrome\, HDDST + hr MRI\, as noninvasive diagnostic evaluations\, achieves high diagnostic per formance comparable with gold standard (BIPSS)\, and it is superior to BIP SS in terms of tumor lateralization accuracy. https://cushings.invisionzon e.com/topic/57856-improved-noninvasive-diagnostic-evaluations-in-treatment -na%C3%AFve-adrenocorticotropic-hormone-acth-dependent-cushing%E2%80%99s-s yndrome/ X-ALT-DESC;FMTTYPE=text/html:In patients with ACTH-dependent Cushi ng&rsquo\;s syndrome\, HDDST&thinsp\;+&thinsp\;hrMRI\, as noninvasive diag nostic evaluations\, achieves high diagnostic performance comparable with gold standard (BIPSS)\, and it is superior to BIPSS in terms of tumor late ralization accuracy.
CATEGORIES:Cushings UID:20250723T1449550Z-549422-1916@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200105 SUMMARY:Long-Term Obesity Persists Despite Pituitary Adenoma Treatment In C hildhood RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210105;BYMONTHDAY=5 DESCRIPTION:Five children had Cushing’s disease (mean age\, 14 years\; two girls)\, including one macroadenoma. Those with Cushing’s disease presente d with obesity (100%)\, short stature (60%) and headache (40%). Transsphen oidal resection resulted in biochemical cure\; however\, two patients expe rienced relapse 3 and 6 years after surgery\, respectively\, requiring rad iotherapy. One patient also required bilateral adrenalectomy. Read more at https://cushieblog.com/2020/01/05/long-term-obesity-persists-despite-pitu itary-adenoma-treatment-in-childhood/ X-ALT-DESC;FMTTYPE=text/html:Five children had Cushing&rsquo\;s disease (mean age\, 14 years\; two girls)\, including one macroadenoma. Those with Cushing&rsquo\;s disease presented with obesity (100%)\, short stature (6 0%) and headache (40%). Transsphenoidal resection resulted in biochemical cure\; however\, two patients experienced relapse 3 and 6 years after surg ery\, respectively\, requiring radiotherapy. One patient also required bil ateral adrenalectomy.
Read more at \;https://cushieblog.com/2020/01/05/lo ng-term-obesity-persists-despite-pituitary-adenoma-treatment-in-childhood/
CATEGORIES:News Items UID:20200105T2224420Z-549422-1225@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181001 SUMMARY:New Testimonial From Gina G RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191001;BYMONTHDAY=1 DESCRIPTION:It's been a life saving & changing place! You won't know till y ou get to heaven how many lives you've saved & made worthwhile again!! Hug s!! Shared at https://cushieblogger.com/testimonial/gina-g-3/ X-ALT-DESC;FMTTYPE=text/html:It's been a life saving &a mp\; changing place! You won't know till you get to heaven how many lives you've saved &\; made worthwhile again!! Hugs!!
Shared at \;https://cushieblogger.com/testimonial/gina-g-3/
CATEGORIES:Cushings UID:20181001T1455260Z-549422-982@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181006 SUMMARY:In California? Support group meeting\, Saturday Oct. 06\, 2018 DESCRIPTION:View the flyer for this meeting. If you are unable to attend i n person\, Facebook Live Stream is available. View the flyer at https://cu shieblogger.com/2018/10/01/in-california-support-group-meeting-saturday-oc t-06-2018/ X-ALT-DESC;FMTTYPE=text/html:View the flyer for this meeting. \;If you are unable to attend in person\, Facebook Live Stream is available.
View the flyer at \;https://cushieblogger.com/2018/10/01/in-california-support-group-meetin g-saturday-oct-06-2018/
CATEGORIES:Events and Meetings UID:20181001T1542330Z-549422-983@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Can You Help? Newbie Question about CBD Oil DTSTART;VALUE=DATE:20190531 DTEND;VALUE=DATE:20190601 RRULE:FREQ=MONTHLY;UNTIL=20200426;BYDAY=-1FR DESCRIPTION:I would like to know if anybody has tried CBD oils to lower the ir cortisol levels? I have asked my Dr but he isn’t knowledgeable about wh ether CBD oils are useful for lowering cortisol levels. If anybody has tri ed them or has any information on there use in this field I would be inter ested in find... https://cushieblogger.com/2019/04/26/can-you-help-newbie- question-about-cbd-oil/ X-ALT-DESC;FMTTYPE=text/html:I would like to know if anybody has tried C BD oils to lower their cortisol levels? I have asked my Dr but he isn&rsqu o\;t knowledgeable about whether CBD oils are useful for lowering cortisol levels. If anybody has tried them or has any information on there use in this field I would be interested in find...
https://cushieblogger.com/2019/04/26/can-you-help-newbie-questi on-about-cbd-oil/
CATEGORIES:Cushings UID:20190426T1248340Z-549422-1145@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190426 SUMMARY:Cortisol Pumps May Be Viable Option to Reduce Adrenal Crisis in Sev ere Adrenal Insufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200426;BYMONTHDAY=26 DESCRIPTION:The use of an insulin pump to deliver continuous pulsatile cort isol may be a viable treatment option in patients with severe adrenal insu fficiency who are unresponsive to oral corticosteroids Read more at https: //cushieblog.com/2019/04/26/cortisol-pumps-may-be-viable-option-to-reduce- adrenal-crisis-in-severe-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:The use of an insulin pump to deliver conti nuous pulsatile cortisol may be a viable treatment option in patients with severe adrenal insufficiency who are unresponsive to oral corticosteroids
Read more at \;https://cushieblog.com/2019/04/26/cortis ol-pumps-may-be-viable-option-to-reduce-adrenal-crisis-in-severe-adrenal-i nsufficiency/
CATEGORIES:Cushings UID:20190426T1244110Z-549422-1144@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20181002 SUMMARY:In Memory of Lenise Petersen DESCRIPTION:Lenise passed away Wednesday\, Oct. 2\, 2002 at 23 years old\, just after her surgery. Read more at https://cushingsbios.com/2015/10/02/i n-memory-of-lenise-petersen-october-2-2002/ X-ALT-DESC;FMTTYPE=text/html:Lenise passed away Wednesday\, Oct. 2\, 200 2 at 23 years old\, just after her surgery.
Read more at \;https://cushingsbios.com/2015/10/02/in-memor y-of-lenise-petersen-october-2-2002/
CATEGORIES:In Memory UID:20181002T1201130Z-549422-985@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190420 SUMMARY:Cushing’s Myths and Facts: “All Cushing’s patients have the exact s ame symptoms” DESCRIPTION:Fact: Everyone does NOT have the exact same symptoms. Not all C ushing’s patients are exactly the same. This is one mistake that non exper ts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not... Read more at https://cushieblogger .com/2019/04/20/cushings-myths-and-facts-all-cushings-patients-have-the-ex act-same-symptoms/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;Everyone does NOT have the exac t same symptoms. Not all Cushing&rsquo\;s patients are exactly the same. T his is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not...&nb sp\;
Read more at \;https://cushieblogger.com/2019/04/20/cushings-myth s-and-facts-all-cushings-patients-have-the-exact-same-symptoms/
CATEGORIES:Cushings UID:20190422T1404460Z-549422-1138@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Comment added to Stefanie\, Pituitary Bio DTSTART;VALUE=DATE:20190428 DTEND;VALUE=DATE:20190429 RRULE:FREQ=MONTHLY;UNTIL=20200324;BYDAY=4SU DESCRIPTION:...I have a tumor and thinking about surgery but I don’t know w hat to expect after surgery would you do it all over In the comments area of https://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:...I have a tumor and thinking about surger y but I don&rsquo\;t know what to expect after surgery would you do it all over
In the comments area of \;https://cushingsbi os.com/2019/01/11/stefanie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190324T2138110Z-549422-1108@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240117 SUMMARY:Paediatric Cushing Syndrome: Prospective\, Multisite\, Observationa l Cohort Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300117;BYMONTHDAY=17 DESCRIPTION:Paediatric endogenous Cushing syndrome is a rare condition with variable signs and symptoms of presentation. We studied a large cohort of paediatric patients with endogenous Cushing syndrome with the aim of desc ribing anthropometric\, clinical\, and biochemical characteristics as well as associated complications and outcomes to aid diagnosis\, treatment\, a nd management. Read more at https://cushings.invisionzone.com/topic/57686- paediatric-cushing-syndrome-prospective-multisite-observational-cohort-stu dy/ X-ALT-DESC;FMTTYPE=text/html:Paediatric \;endogenous \;Cushing s yndrome \;is a rare condition with variable signs and symptoms of pres entation. We studied a large cohort of paediatric patients with endogenous \;Cushing syndrome \;with the aim of describing \;anthropomet ric\, clinical\, and biochemical characteristics as well as associated com plications and outcomes to aid diagnosis\, \;treatment\, and managemen t.
Read more at \;https://cushings.invisionzo ne.com/topic/57686-paediatric-cushing-syndrome-prospective-multisite-obser vational-cohort-study/
CATEGORIES:News Items UID:20240117T2025440Z-549422-1737@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230723 SUMMARY:Association of IGF-1 Level with Low Bone Mass in Young Patients wit h Cushing’s Disease RRULE:FREQ=DAILY;COUNT=2193 DESCRIPTION:The higher IGF-1 index was independently associated with lower prevalence of low bone mass in young CD patients\, and IGF-1 might play an important role in the pathogenesis of CD-caused low bone mass. Read more at https://cushings.invisionzone.com/topic/57619-association-of-igf-1-leve l-with-low-bone-mass-in-young-patients-with-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:The higher IGF-1 index was independen tly associated with lower prevalence of low bone mass in young CD patients \, and IGF-1 might play an important role in the pathogenesis of CD-caused low bone mass.
CATEGORIES:Cushings UID:20230723T1112570Z-549422-1659@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20180420 SUMMARY:Comment on Have You Had Treatment for Cushing's? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190420;BYMONTHDAY=20 DESCRIPTION:I had surgery last October for Cushing’s syndrome\; had adrenal gland tumor (incidentaloma) and gland removed. Last two years have been a nightmare.. In the comments area at https://cushieblogger.com/2018/04/08/ have-you-had-treatment-for-cushings/ X-ALT-DESC;FMTTYPE=text/html:I had surgery last October for Cushing&rsqu o\;s syndrome\; had adrenal gland tumor (incidentaloma) and gland removed. Last two years have been a nightmare..
In the comments area at&nb sp\;https://cushieblogger.com/2018/04/08/have-yo u-had-treatment-for-cushings/
CATEGORIES:Cushie Bios UID:20180420T1320310Z-549422-909@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20241028 SUMMARY:Sparrow Pharmaceuticals Announces Completion of Phase 2 Trial and F DA Orphan Drug Designation of Clofutriben for Endogenous Cushing’s Syndrom e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301028;BYMONTHDAY=28 DESCRIPTION:HSD-1 inhibition with clofutriben is a completely novel approac h to the treatment of endogenous Cushing’s syndrome that may overcome many of the serious problems with current therapies\, including major safety\, tolerability\, and complexity issues such as the risk of adrenal insuffic iency and adrenal crisis. Read more at https://cushings.invisionzone.com/t opic/57761-sparrow-pharmaceuticals-announces-completion-of-phase-2-trial-a nd-fda-orphan-drug-designation-of-clofutriben-for-endogenous-cushing%E2%80 %99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:HSD-1 inhibition with clofutriben is a completely novel approach to the treatment of endogenous Cushing&rsquo\; s syndrome that may overcome many of the serious problems with current the rapies\, including major safety\, tolerability\, and complexity issues suc h as the risk of adrenal insufficiency and adrenal crisis.
CATEGORIES:Cushings UID:20241028T1544250Z-549422-1824@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211116 SUMMARY: Interview: False Positives for Adrenal Insufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221116;BYMONTHDAY=16 DESCRIPTION:For adrenal insufficiency (AI)\, reducing false positives means more than reducing resource utilization. Treatments like glucocorticoid r eplacement therapy can cause serious harm in people who do not actually ha ve AI. Read more at https://cushings.invisionzone.com/topic/56274-intervie w-false-positives-for-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:For adrenal insufficiency (AI)\, reducing f alse positives means more than reducing resource utilization. Treatments l ike glucocorticoid replacement therapy can cause serious harm in people wh o do not actually have AI.
Read more at \;https://cushings.invisionzone.com/topic/562 74-interview-false-positives-for-adrenal-insufficiency/
CATEGORIES:Other Medical UID:20211116T1402130Z-549422-1456@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Planning for Surgery? You Might Not Need All Those Tests Beforehand DTSTART;VALUE=DATE:20211221 DTEND;VALUE=DATE:20211222 RRULE:FREQ=MONTHLY;UNTIL=20301116;BYDAY=3TU DESCRIPTION:Doctors delayed the surgery until he got a CT scan\, which did not confirm a lung nodule but did find one on an adrenal gland. Again\, do ctors postponed surgery to allow for further work-up of the adrenal nodule \, which was ultimately found to be benign. The man finally had his hernia repaired after six additional months of debilitating pain and repeated an xiety over incidental test findings suggesting he could have cancer. From https://www.nytimes.com/2021/11/15/well/live/surgery-medical-tests.html X-ALT-DESC;FMTTYPE=text/html:Doctors delayed the surgery until he got a CT scan\, which did not confirm a lung nodule but did find one on an adren al gland. Again\, doctors postponed surgery to allow for further work-up o f the adrenal nodule\, which was ultimately found to be benign. The man fi nally had his hernia repaired after six additional months of debilitating pain and repeated anxiety over incidental test findings suggesting he coul d have cancer.
From \;https://www.nyti mes.com/2021/11/15/well/live/surgery-medical-tests.html
CATEGORIES:Cushings UID:20211116T1441100Z-549422-1458@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Case Report Shows Rare Adrenal Tumors Associated with Cushing’s Dis ease DTSTART;VALUE=DATE:20180413 DTEND;VALUE=DATE:20180414 RRULE:FREQ=MONTHLY;UNTIL=20190309;BYDAY=2FR DESCRIPTION:This case confers valuable information about the clinical cours e of adrenal myelolipoma associated with Cushing disease\,” the researcher s said. It also “supports the notion that ACTH can be associated with the development of bilateral adrenal myelolipomas. Read more at https://cushie blog.com/2018/03/09/case-report-shows-rare-adrenal-tumors-associated-with- cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:This case confers valuable information abou t the clinical course of adrenal myelolipoma associated with Cushing disea se\,&rdquo\; the researchers said. It also &ldquo\;supports the notion tha t ACTH can be associated with the development of bilateral adrenal myeloli pomas.
Read more at \;https://cushieblog.com/2018/03/09/case-report-shows-rare -adrenal-tumors-associated-with-cushings-disease/
CATEGORIES:Cushings UID:20180309T1302130Z-549422-849@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20211116 SUMMARY: Interview: False Positives for Adrenal Insufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221116;BYMONTHDAY=16 DESCRIPTION:For adrenal insufficiency (AI)\, reducing false positives means more than reducing resource utilization. Treatments like glucocorticoid r eplacement therapy can cause serious harm in people who do not actually ha ve AI. Read more at https://cushings.invisionzone.com/topic/56274-intervie w-false-positives-for-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:For adrenal insufficiency (AI)\, reducing f alse positives means more than reducing resource utilization. Treatments l ike glucocorticoid replacement therapy can cause serious harm in people wh o do not actually have AI.
Read more at \;https://cushings.invisionzone.com/topic/562 74-interview-false-positives-for-adrenal-insufficiency/
CATEGORIES:Other Medical UID:20211116T1402130Z-549422-1457@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20201109 SUMMARY:Comment added to Kelsey G (kelcann44)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20211109;BYMONTHDAY=9 DESCRIPTION:I have been struggling for years with blood and urine tests com ing back just under the threshold for a definitive diagnosis of Cushings. And when I ask for a repeat test I get hit with questions like “what makes you think you have cushings?” when the original idea came from a rheumato logist. Very frustrating! Read more at https://cushingsbios.com/2015/04/0 2/kelsey-g-kelcann44-undiagnosed-bio/comment-page-1/#comment-57416 X-ALT-DESC;FMTTYPE=text/html:I have been struggling for years with blood and urine tests coming back just under the threshold for a definitive dia gnosis of Cushings. And when I ask for a repeat test I get hit with questi ons like &ldquo\;what makes you think you have cushings?&rdquo\; when the original idea came from a rheumatologist. Very frustrating! \;
Read more at \;h ttps://cushingsbios.com/2015/04/02/kelsey-g-kelcann44-undiagnosed-bio/comm ent-page-1/#comment-57416
CATEGORIES:Cushie Bios UID:20201109T1103580Z-549422-1306@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250609 SUMMARY:A Case Series of Bilateral Inferior Petrosal Sinus Sampling Using D esmopressin for Evaluation of ACTH-Dependent Cushing’s Syndrome in Pediatr ic Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260609;BYMONTHDAY=9 DESCRIPTION:Pediatric Cushing Syndrome (CS) is rare and difficult to diagno se\, especially when distinguishing ACTH-dependent subtypes. Bilateral inf erior petrosal sinus sampling (BIPSS) is an essential but technically chal lenging procedure for this purpose. https://cushings.invisionzone.com/top ic/57839-a-case-series-of-bilateral-inferior-petrosal-sinus-sampling-using -desmopressin-for-evaluation-of-acth-dependent-cushing%E2%80%99s-syndrome- in-pediatric-patients/ X-ALT-DESC;FMTTYPE=text/html:Pediatric Cushing Syndrome (CS) is ra re and difficult to diagnose\, especially when distinguishing ACTH-depende nt subtypes. Bilateral inferior petrosal sinus sampling (BIPSS) is an esse ntial but technically challenging procedure for this purpose. \;
CATEGORIES:Cushings UID:20250609T1411540Z-549422-1901@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200525 SUMMARY:The Effect Of Biochemical Remission on Bone Metabolism in Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210525;BYMONTHDAY=25 DESCRIPTION:This study was attempted to assess bone mineral density and fra cture rates in 89 patients with confirmed Cushing's syndrome at the time o f diagnosis and 2 years after successful tumor resection. Read more at htt ps://cushieblog.com/2020/05/25/the-effect-of-biochemical-remission-on-bone -metabolism-in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:This study was attempted to assess bone min eral density and fracture rates in 89 patients with confirmed Cushing's sy ndrome at the time of diagnosis and 2&thinsp\;years after successful tumor resection.
Read more at \;https://cushieblog.com/2020/05/25/the-effect-o f-biochemical-remission-on-bone-metabolism-in-cushings-syndrome/
CATEGORIES:Cushings UID:20200526T0948520Z-549422-1261@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Archived Interview: Kathy C\, Pituitary Patient DTSTART;VALUE=DATE:20190612 DTEND;VALUE=DATE:20190613 RRULE:FREQ=MONTHLY;UNTIL=20200508;BYDAY=2WE DESCRIPTION:Kathy was diagnosed with a pituitary tumor in 1991. At the time the only symptom she was aware of was a severe headache. She had a transs phenoidal resection followed by radiation therapy for 23 days. They said t hey could not remove all of the tumor. Read more at https://cushingsbios.c om/2019/05/08/archived-interview-kathy-c-pituitary-patient/ X-ALT-DESC;FMTTYPE=text/html:Kathy was diagnosed with a pituitary tumor in 1991.
At the time the only symptom she was aware of was a sever e headache. She had a transsphenoidal resection followed by radiation ther apy for 23 days. They said they could not remove all of the tumor.
Read more at \;https://cushingsbios .com/2019/05/08/archived-interview-kathy-c-pituitary-patient/
CATEGORIES:Events and Meetings UID:20190508T1829110Z-549422-1159@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200610 SUMMARY:Gender-related Differences in the Presentation and Course of Cushin g's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210610;BYMONTHDAY=10 DESCRIPTION:Cushing's disease (CD) presents a marked female preponderance\, but whether this skewed gender distribution has any relevance to the pres entation and outcome of CD is not known. Read more at https://cushieblog.c om/2020/06/10/gender-related-differences-in-the-presentation-and-course-of -cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing's disease (CD) presents a marked fe male preponderance\, but whether this skewed gender distribution has any r elevance to the presentation and outcome of CD is not known.
Read more at \;https://cushieblog.com/2020/06/10/gender-related-differences-in-the-p resentation-and-course-of-cushings-disease/
CATEGORIES:News Items UID:20200610T1313510Z-549422-1265@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Can You Help? Very Few Symptoms DTSTART;VALUE=DATE:20200708 DTEND;VALUE=DATE:20200709 RRULE:FREQ=MONTHLY;UNTIL=20210610;BYDAY=2WE DESCRIPTION:Can I get blood results over ph and skip right to Endocrinologi st if Cortisol is high? Any input of speeding this along? Anyone else with only a few symptoms? Read more at https://cushieblogger.com/2020/06/10/ca n-you-help-very-few-symptoms/ X-ALT-DESC;FMTTYPE=text/html:Can I get blood results over ph and skip ri ght to Endocrinologist if Cortisol is high? Any input of speeding this alo ng?
Anyone else with only a few symptoms?
Read more at&nbs p\;https://cushieblogger.com/2020/06/10/can-you-help- very-few-symptoms/
CATEGORIES:Cushings UID:20200610T1324040Z-549422-1266@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:New Helpful Doctor added to King\, NC DTSTART;VALUE=DATE:20200708 DTEND;VALUE=DATE:20200709 RRULE:FREQ=MONTHLY;UNTIL=20210610;BYDAY=2WE DESCRIPTION:Sherry writes: Excellent Doctor\, Takes his time\, actively lis tens to his patients concerns and addresses questions in an easy to unders tand manner. Read more at https://cushieblogger.com/2020/06/10/helpful-doc tors-north-carolina/ X-ALT-DESC;FMTTYPE=text/html:Sherry writes: Excellent Doctor\, Takes his time\, actively listens to his patients concerns and addresses questions in an easy to understand manner.
Read more at \;https://cushieblogger.com/2020/06/10/helpful-doctors-north-carolina /
CATEGORIES:Helpful Doctors UID:20200610T1408140Z-549422-1268@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20200610 SUMMARY:Sherri A\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210610;BYMONTHDAY=10 DESCRIPTION:Sherry is from King\, NC. She is a 44 year old female started out with joint pain and gastrointestinal issues. Her IPSS is scheduled fo r June 23\, 2020 after an MRI revealed a pituitary tumor. Read more at htt ps://cushingsbios.com/2020/06/10/sherri-a-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Sherry is from King\, NC. \;She is a 4 4 year old female started out with joint pain and gastrointestinal issues. \;Her IPSS is scheduled for June 23\, 2020 after an MRI revealed a p ituitary tumor.
Read more at \;https://cushingsbio s.com/2020/06/10/sherri-a-pituitary-bio/
CATEGORIES:Cushie Bios UID:20200610T1347160Z-549422-1267@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220308 SUMMARY:Vitamin D Deficiency in Cushing’s Disease: Before and After Its Sup plementation RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240308;BYMONTHDAY=8 DESCRIPTION:Long-standing studies were conducted on vitamin D levels in pat ients with Cushing's Disease. Patients with CD\, with and without osteopen ia\, were compared before and after oral calcium load showing that serum 1 \,25 (OH)2D3 plasma levels were higher in subjects with osteopenia than in those without it\, likely due to a secondary increase in PTH levels as an effect of hypercortisolism [19]. Another study investigated the effect of hypercortisolism and eucortisolism\, showing a reduction in serum 25(OH)D levels\, but not in 1\,25 (OH)2D3 in patients with hypercortisolism. Rea d more at https://cushings.invisionzone.com/topic/56652-vitamin-d-deficien cy-in-cushing%E2%80%99s-disease-before-and-after-its-supplementation/ X-ALT-DESC;FMTTYPE=text/html:Long-standing studies were conducted on vit amin D levels in patients with Cushing's Disease. Patients with CD\, with and without osteopenia\, were compared before and after oral calcium load showing that serum 1\,25 (OH)2D3 plasma levels were higher in subjects wit h osteopenia than in those without it\, likely due to a secondary increase in PTH levels as an effect of hypercortisolism [19]. Another study invest igated the effect of hypercortisolism and eucortisolism\, showing a reduct ion in serum 25(OH)D levels\, but not in 1\,25 (OH)2D3 in patients with hy percortisolism. \;
Read more at \;https://cush ings.invisionzone.com/topic/56652-vitamin-d-deficiency-in-cushing%E2%80%99 s-disease-before-and-after-its-supplementation/
CATEGORIES:Cushings UID:20220308T1106120Z-549422-1525@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250301 SUMMARY:Impact of Remission Status in Endogenous Cushing's Syndrome on Canc er Incidence RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20290301;BYMONTHDAY=1 DESCRIPTION:Endogenous Cushing's syndrome (CS) has been linked with an incr eased risk of cancer. We aimed to evaluate the association between cancer risk and disease remission post-surgery in adrenal CS and Cushing's diseas e (CD). https://cushings.invisionzone.com/topic/57786-impact-of-remission- status-in-endogenous-cushings-syndrome-on-cancer-incidence/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing's syndrome (CS) ha s been linked with an increased risk of cancer. We aimed to evaluate the a ssociation between cancer risk and disease remission post-surgery in adren al CS and Cushing's disease (CD).
CATEGORIES:News Items UID:20250301T1526510Z-549422-1851@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250120 SUMMARY:Can We Predict the Risk of Venous Thromboembolism in Patients With Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300120;BYMONTHDAY=20 DESCRIPTION:Patients with Cushing’s syndrome (CS) have an increased venous thromboembolism (VTE) risk with most studies focusing on the perioperative period. The purpose of this study was to assess the 5-year VTE risk and i dentify predictors of VTE at CS diagnosis. https://cushings.invisionzone.c om/topic/57777-can-we-predict-the-risk-of-venous-thromboembolism-in-patien ts-with-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing&rsquo\;s syndro me (CS) have an increased venous thromboembolism (VTE) risk with most stud ies focusing on the perioperative period. The purpose of this study was to assess the 5-year VTE risk and identify predictors of VTE at CS diagnosis .
CATEGORIES:Cushings UID:20250120T1620130Z-549422-1843@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Guest Question: Cushing's in 15 year old male DTSTART;VALUE=DATE:20181101 DTEND;VALUE=DATE:20181102 RRULE:FREQ=MONTHLY;UNTIL=20191004;BYDAY=1TH DESCRIPTION:...We have contributed all of this to puberty and life experien ces\, just typical teenage stuff... but last week\, when i was able to act aully have him come out of his room... i noticed a 'lump' on the top of ba ck\, base of the neck. I am not sure if a buffalo hump can be caused by pl aying video games and sitting in a computer chair for 18 hours a day? Or i f this is considered a buffalo hump?? Reae more at https://cushieblogger.c om/2018/10/04/guest-question-cushings-in-15-year-old-male/ X-ALT-DESC;FMTTYPE=text/html:...We have contributed all of this to puber ty and life experiences\, just typical teenage stuff... but last week\, wh en i was able to actaully have him come out of his room... i noticed a 'lu mp' on the top of back\, base of the neck. I am not sure if a buffalo hump can be caused by playing video games and sitting in a computer chair for 18 hours a day? Or if this is considered a buffalo hump??
Reae mor e at \;https://cushieblogger.com/201 8/10/04/guest-question-cushings-in-15-year-old-male/
CATEGORIES:Cushings UID:20181004T1314180Z-549422-990@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230816 SUMMARY:Asymptomatic Pheochromocytoma Associated with MEN Syndrome and Subc linical Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300816;BYMONTHDAY=16 DESCRIPTION:Pheochromocytoma and Cushing's syndrome are rare endocrine cond itions caused by tumors in the adrenal gland. These conditions are classif ied under Multiple Endocrine Neoplasia (MEN) syndrome... Read more at http s://cushings.invisionzone.com/topic/57627-asymptomatic-pheochromocytoma-as sociated-with-men-syndrome-and-subclinical-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Pheochromocytoma \;and \;Cushing's sy ndrome \;are rare endocrine conditions caused by tumors in the&nbs p\;adrenal gland . These conditions are classified under Multiple Endocrine Neoplasia ( MEN) syndrome...
CATEGORIES:Cushings UID:20230816T1248010Z-549422-1666@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20230210 SUMMARY:What Do *You* Think? Medical Gaslighting RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300210;BYMONTHDAY=10 DESCRIPTION:Read more at https://cushings.invisionzone.com/topic/57595-what -do-you-think-medical-gaslighting/ %MCEPASTEBIN% X-ALT-DESC;FMTTYPE=text/html:Read more at \;https://cushings.invisionzone.com/topic/57595- what-do-you-think-medical-gaslighting/
%MCEPASTEBIN%
CATEGORIES:Cushings UID:20230210T1516400Z-549422-1642@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20251010 SUMMARY:Cushing Syndrome Test Choice Should Fit Patient Factors & Disease S tage RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301010;BYMONTHDAY=10 DESCRIPTION:Caused by excessive exposure to the hormone cortisol\, endogeno us Cushing syndrome (CS) is difficult to diagnose. Currently available bio chemical tests that assess cortisol production have limited diagnostic spe cificity and sensitivity\, and their performance can vary depending on the patient\, according to a review article in Current Opinion in Endocrinolo gy\, Diabetes and Obesity. https://cushings.invisionzone.com/topic/57898-c ushing-syndrome-test-choice-should-fit-patient-factors-disease-stage/ X-ALT-DESC;FMTTYPE=text/html:Caused by excessive exposure to the hormone cortisol\, endogenous Cushing syndrome (CS) is difficult to diagnose. Cur rently available biochemical tests that assess cortisol production have li mited diagnostic specificity and sensitivity\, and their performance can v ary depending on the patient\, according to a review article in Current Op inion in Endocrinology\, Diabetes and Obesity.
CATEGORIES:Cushings UID:20251010T1421070Z-549422-1955@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Lydia\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300109;BYMONTH=1;BYMONTHDAY=9 DTSTART;VALUE=DATE:20260109 DTEND;VALUE=DATE:20260110 DESCRIPTION:Lydia’s weight gain was most noticeable in her face and around her abdomen. “She was exercising all the time and trying to watch what she ate and cut down on sugars\,” said Jeanne. “But she kept putting on more weight. We knew something was not right.” Lydia scheduled the first of wha t would be many doctor appointments hoping for answers. Her primary care p rovider recognized that her rapid weight gain was abnormal and ordered sta ndard blood work. When that blood work came back normal\, her doctor refer red her to an endocrinologist and to her OBGYN. In addition to her weight gain\, Lydia had begun developing other symptoms including excessive sweat ing day and night\, severe acne\, hair loss\, hair gain on her face\, inso mnia\, thin skin\, and brittle nails. “The worst symptom was the constant feeling of fight or flight\,” recalled Lydia. “I always felt on edge and w as letting things bother me.” Lydia would later learn that this feeling wa s caused by the drastic increase of cortisol in her body. https://cushings bios.com/2026/01/08/lydia-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Lydia&rsquo\;s weight gain was most noticea ble in her face and around her abdomen. &ldquo\;She was exercising all the time and trying to watch what she ate and cut down on sugars\,&rdquo\; sa id Jeanne. &ldquo\;But she kept putting on more weight. We knew something was not right.&rdquo\;
Lydia scheduled the first of what would be many doctor appointments hoping for answers. Her primary care provider rec ognized that her rapid weight gain was abnormal and ordered standard blood work. When that blood work came back normal\, her doctor referred her to an endocrinologist and to her OBGYN.
In addition to her weight gai n\, Lydia had begun developing other symptoms including excessive sweating day and night\, severe acne\, hair loss\, hair gain on her face\, insomni a\, thin skin\, and brittle nails. &ldquo\;The worst symptom was the const ant feeling of fight or flight\,&rdquo\; recalled Lydia. &ldquo\;I always felt on edge and was letting things bother me.&rdquo\; Lydia would later l earn that this feeling was caused by the drastic increase of cortisol in h er body.
https://cushingsbios.com/2026/01/ 08/lydia-pituitary-bio/
CATEGORIES:Cushie Bios UID:20260109T1548490Z-549422-2057@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY:Has Cushing's Affected your Job or Quality of Life? DTSTART;VALUE=DATE:20181209 DTEND;VALUE=DATE:20181210 RRULE:FREQ=MONTHLY;UNTIL=20191110;BYDAY=2SU DESCRIPTION:I would love to take one of the surveys mentioned in this news article. My Cushing’s went into “remission” just over 31 years ago but I still feel the effects of having had it. Pre-Cushing’s I had no problem wo rking a full day\, having a piano studio overflowing with students\, going out at night\, cleaning the house\, being a normal mom. Read more at http s://cushieblogger.com/2018/11/10/has-cushings-affected-your-job-or-quality -of-life/ X-ALT-DESC;FMTTYPE=text/html:I would love to take one of the surveys men tioned in \;this news article. \; My Cushing&rsquo\;s went int o &ldquo\;remission&rdquo\; \;just over 31 years ago \;but I still feel the effects of havi ng had it.
Pre-Cushing&rsq uo\;s I had no problem working a full day\, having \;a piano stu dio \;overflowing with students\, going out at night\, cleaning th e house\, being a normal mom.
Read more at \;https://cushieblogger.com/2018/11/10/has-cushings-a ffected-your-job-or-quality-of-life/
CATEGORIES:Cushings UID:20181110T1724020Z-549422-1022@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20190518 SUMMARY:Cynthia M\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200518;BYMONTHDAY=18 DESCRIPTION:Cynthia is from Ruckersville\, VA. She is testing for Cushing' s due to many symptoms. She also has Lupus\, Sjgrens\, Hypothyroid\, High BP\, Arthritis and Fibromyalgia. Read more at https://cushingsbios.com/2 019/05/18/cynthia-m-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Cynthia is from Ruckersville\, VA. \;S he is testing for Cushing's due to many symptoms. She also has \;Lupu s\, Sjgrens\, Hypothyroid\, High BP\, Arthritis and Fibromyalgia. \;
Read more at \;https://cushingsbios.com/2019/05/ 18/cynthia-m-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20190518T1606510Z-549422-1160@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250821 SUMMARY:Severe Psychosis Due to Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300821;BYMONTHDAY=21 DESCRIPTION:Cushing syndrome (CS) is a rare clinical condition resulting in excess cortisol production. Neuropsychiatric disturbances are prevalent\, in addition to the well-known metabolic effects. Depression and anxiety a re the most common manifestations\, while mania and psychosis are rare.1\, 2 We report the case of a patient who presented with severe psychosis due to adrenocorticotropic hormone (ACTH)–dependent CS due to a pituitary aden oma (PA). https://cushings.invisionzone.com/topic/57866-severe-psychosis- due-to-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing syndrome (CS) is a rare clinical condition resulting in excess cortisol production. Neuropsy chiatric disturbances are prevalent\, in addition to the well-known metabo lic effects. Depression and anxiety are the most common manifestations\, w hile mania and psychosis are rare.1\,2 \;We report the case of a patie nt who presented with severe psychosis due to adrenocorticotropic hormone (ACTH)&ndash\;dependent CS due to a pituitary adenoma (PA).
\ ;https://cushings.i nvisionzone.com/topic/57866-severe-psychosis-due-to-cushing-syndrome/< /p> CATEGORIES:Cushings UID:20250822T0012390Z-549422-1924@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z SUMMARY: Register for Johns Hopkins Pituitary Day October 25\, 2025 DTSTART;VALUE=DATE:20250516 DTEND;VALUE=DATE:20250517 RRULE:FREQ=WEEKLY;UNTIL=20251018;BYDAY=MO,FR DESCRIPTION:The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. https://cush ings.invisionzone.com/topic/57826-johns-hopkins-pituitary-patient-educatio n-day/ X-ALT-DESC;FMTTYPE=text/html:
The annual Pituitary Patient Education Day is a free event that features presentation s from Johns Hopkins pituitary experts.
h ttps://cushings.invisionzone.com/topic/57826-johns-hopkins-pituitary-patie nt-education-day/
CATEGORIES:Events and Meetings UID:20250516T0800040Z-549422-1887@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;TZID=America/New_York:20251025T090000 DTEND;TZID=America/New_York:20251025T130000 SUMMARY:Johns Hopkins Pituitary Patient Education Day DESCRIPTION:The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts. https://cush ings.invisionzone.com/topic/57826-johns-hopkins-pituitary-patient-educatio n-day/ X-ALT-DESC;FMTTYPE=text/html:The annual Pituitary Patient Education Day is a free event that features presentation s from Johns Hopkins pituitary experts.
h ttps://cushings.invisionzone.com/topic/57826-johns-hopkins-pituitary-patie nt-education-day/
CATEGORIES:Events and Meetings UID:20250516T0802130Z-549422-1888@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250319 SUMMARY:Thin Skin in Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300319;BYMONTHDAY=19 DESCRIPTION:A 53-year-old woman with a history of metastatic small-cell lun g cancer was evaluated during an inpatient admission for Cushing’s syndrom e on the basis of new findings of hypertension\, hypokalemia\, hyperglycem ia\, and metabolic alkalosis. https://cushings.invisionzone.com/topic/5779 8-thin-skin-in-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A 53-year-old woman with a history of metastatic small-cell lung cancer was evaluated during an inpatient admis sion for Cushing&rsquo\;s syndrome on the basis of new findings of hyperte nsion\, hypokalemia\, hyperglycemia\, and metabolic alkalosis.
https://cushings .invisionzone.com/topic/57798-thin-skin-in-cushing%E2%80%99s-syndrome/
CATEGORIES:Cushings UID:20250319T2037280Z-549422-1863@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20220227 SUMMARY:Endoscopic vs. Microscopic Transsphenoidal Surgery for the Treatmen t of Pituitary Adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240227;BYMONTHDAY=27 DESCRIPTION:Currently\, endoscopic transsphenoidal surgery (ETS) and micros copic transsphenoidal surgery (MTS) are commonly applied treatments for pa tients with pituitary adenomas. This meta-analysis was conducted to evalua te the efficacy and safety of ETS and MTS for these patients. Read more at https://cushings.invisionzone.com/topic/56622-endoscopic-vs-microscopic-t ranssphenoidal-surgery-for-the-treatment-of-pituitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:Currently\, endoscopic transsphenoidal surg ery (ETS) and microscopic transsphenoidal surgery (MTS) are commonly appli ed treatments for patients with pituitary adenomas. This meta-analysis was conducted to evaluate the efficacy and safety of ETS and MTS for these pa tients.
CATEGORIES:News Items UID:20220227T1016110Z-549422-1521@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20250301 SUMMARY: How is Cushing's Disease Diagnosed? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300301;BYMONTHDAY=1 DESCRIPTION:Diagnosing Cushing's disease involves a series of tests to conf irm excessive cortisol production and determine its source. https://cushin gs.invisionzone.com/topic/57787-how-is-cushings-disease-diagnosed/ X-ALT-DESC;FMTTYPE=text/html:Diagnosing Cushing's disease involves a series of tests to confirm excessive cortisol production and determine its source.
https://cushings.invisionzone.com/topic/57787-how-is-cushings-disea se-diagnosed/
CATEGORIES:Cushings UID:20250301T1616220Z-549422-1852@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240105 SUMMARY:In Memory: Jill's Father DESCRIPTION:January 5\, 2005 Jill wrote: 'In December 2004 my dad who had a ddison's for over 30 years had a triple bypass surgery 6 days before Chris tmas. The surgery was an amazine success and it was predicted he would be home before Christmas. Day 2 following surgery the hospital neglected to g ive him his steriods for his Addison's for 22 hours\, which they were comp letely aware that he had...' Read more at https://cushingsbios.com/2022/01 /05/in-memory-jills-father-january-5-2005-2/ X-ALT-DESC;FMTTYPE=text/html:
January 5\, 2005
Jill wrote: 'I n December 2004 my dad who had addison's for over 30 years had a triple by pass surgery 6 days before Christmas. The surgery was an amazine success a nd it was predicted he would be home before Christmas. Day 2 following sur gery the hospital neglected to give him his steriods for his Addison's for 22 hours\, which they were completely aware that he had...'
Read more at \;https://cus hingsbios.com/2022/01/05/in-memory-jills-father-january-5-2005-2/
CATEGORIES:In Memory UID:20240106T1257050Z-549422-1731@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240104 SUMMARY:In Memory of Malia Kenney DESCRIPTION:Malia died on this date\, January 4\, 2017 at the age of 40. S he had been dealing with Cushing's Disease for the past 18 years or so. Re ad more at https://cushingsbios.com/2022/01/04/in-memory-malia-kenney-janu ary-4-2017/ X-ALT-DESC;FMTTYPE=text/html:Malia died on this date\, January 4\, \ ;2017 \;at the age of 40. \; \;She had been dealing with Cushi ng's Disease for the past 18 years or so.
Read more at \;https://cushingsbios.com/2022/01/04/i n-memory-malia-kenney-january-4-2017/
CATEGORIES:In Memory UID:20240106T1257250Z-549422-1732@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021018Z DTSTART;VALUE=DATE:20240106 SUMMARY:Cushing’s Syndrome caused by ACTH Precursors Secreted from a Pancre atic Yolk Sac Tumor in an Adult RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300106;BYMONTHDAY=6 DESCRIPTION:A 27-year-old Chinese woman\, who had unremarkable past health and family history\, presented with right upper quadrant abdominal pain an d nausea in early 2020. Abdominal ultrasonography was unrevealing. A few m onths later\, she developed Cushingoid features and oligomenorrhea. Read m ore at https://cushings.invisionzone.com/topic/57681-cushing%E2%80%99s-syn drome-caused-by-acth-precursors-secreted-from-a-pancreatic-yolk-sac-tumor- in-an-adult/ X-ALT-DESC;FMTTYPE=text/html:A 27-year-old Chinese woman\, who had unrem arkable past health and family history\, presented with right upper quadra nt abdominal pain and nausea in early 2020. Abdominal ultrasonography was unrevealing. A few months later\, she developed Cushingoid features and ol igomenorrhea.
CATEGORIES:Cushings UID:20240106T1247270Z-549422-1729@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:What Was the Most Memorable Thing that Happened to YOU Last Year? DTSTART;VALUE=DATE:20240106 DTEND;VALUE=DATE:20240107 RRULE:FREQ=WEEKLY;UNTIL=20300106;BYDAY=MO,SA DESCRIPTION:Like most everything else in my life\, having had Cushing's (pi tuitary) made this surgery more difficult. My surgeon had to plan with my endocrinologist how much cortisol I'd need during the operation\, then I had to stay overnight to get me successfully weaned off the cortisone agai n. Read more at https://cushings.invisionzone.com/topic/57682-what-was-the -most-memorable-thing-that-happened-to-you-last-year/ X-ALT-DESC;FMTTYPE=text/html:Like most everything else in my life\, havi ng had Cushing's (pituitary) made this surgery more difficult. \; My s urgeon had to plan with my endocrinologist how much cortisol I'd need duri ng the operation\, then I had to stay overnight to get me successfully wea ned off the cortisone again.
Read more at \;https://cushi ngs.invisionzone.com/topic/57682-what-was-the-most-memorable-thing-that-ha ppened-to-you-last-year/
CATEGORIES:Cushings UID:20240106T1330430Z-549422-1733@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240106 SUMMARY:In Memory: Lori Holt ~ January 6\, 2008 DESCRIPTION:During the first few days of September 2007\, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surge ry and never recovered. Read more at https://cushingsbios.com/2022/01/06/i n-memory-lori-holt-january-6-2008/ X-ALT-DESC;FMTTYPE=text/html:During the first few days of September 2007
\, Lori had surgery to remove her adrenal gland.
She experienced extr
eme difficulty post surgery and never recovered.
Read more at \;https://cushingsbios.com/2022/01/ 06/in-memory-lori-holt-january-6-2008/
CATEGORIES:In Memory UID:20240106T1256510Z-549422-1730@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231207 SUMMARY:Reversibility of Impaired Large-Scale Functional Brain Networks in Cushing’s Disease after Surgery Treatment: A Longitudinal Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301207;BYMONTHDAY=7 DESCRIPTION:Chronic exposure to excessive endogenous cortisol leads to brai n changes in Cushing’s disease (CD). However\, it remains unclear how CD a ffects large-scale functional networks (FNs) and whether these effects are reversible after treatment. This study aimed to investigate functional ne twork changes of CD patients and their reversibility in a longitudinal coh ort. Read more at https://cushings.invisionzone.com/topic/57671-reversibi lity-of-impaired-large-scale-functional-brain-networks-in-cushing%E2%80%99 s-disease-after-surgery-treatment-a-longitudinal-study/ X-ALT-DESC;FMTTYPE=text/html:Chronic exposure to excessive endogen ous cortisol leads to brain changes in Cushing&rsquo\;s disease (CD). Howe ver\, it remains unclear how CD affects large-scale functional networks (F Ns) and whether these effects are reversible after treatment. This study a imed to investigate functional network changes of CD patients and their re versibility in a longitudinal cohort. \;
< span>Read more at \;https://cushings.invisionzone.com/topic/57671- reversibility-of-impaired-large-scale-functional-brain-networks-in-cushing %E2%80%99s-disease-after-surgery-treatment-a-longitudinal-study/
CATEGORIES:Cushings UID:20231207T1047330Z-549422-1718@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Correy D (Cushie Correy)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300109;BYMONTH=1;BYMONTHDAY=9 DTSTART;VALUE=DATE:20260109 DTEND;VALUE=DATE:20260110 DESCRIPTION:This journey started long before I knew it did. I was healthy f or the first 27 years of my life. Around 27 or 28 I started having problem s. It started with high blood pressure. No problem\, that runs in the fami ly. Medication will solve that. Around 30 there was something more strange going on. I still produced milk even though my youngest was 5. My doctor sent me in for a galactogram (a mammogram with dye injected in my glands). It came back normal. My breast and mammary glands were fine. Over the nex t few years came depression\, weight gain regardless of diet and exercise\ , and random muscle strains. My doctor said to try a little harder and eat a little better. I threw my hands up in the air. I had already tried ever ything and still I was gaining. More at https://cushingsbios.com/2026/01/ 08/correy-d-cushie-correy-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:This journey started long before I knew it did. I was healthy for the first 27 years of my life. Around 27 or 28 I st arted having problems. It started with high blood pressure. No problem\, t hat runs in the family. Medication will solve that. Around 30 there was so mething more strange going on. I still produced milk even though my younge st was 5. My doctor sent me in for a galactogram (a mammogram with dye inj ected in my glands). It came back normal. My breast and mammary glands wer e fine.
Over the next few years came depression\, weight gain rega rdless of diet and exercise\, and random muscle strains. My doctor said to try a little harder and eat a little better. I threw my hands up in the a ir. I had already tried everything and still I was gaining. \;
More at \;https://cushingsbi os.com/2026/01/08/correy-d-cushie-correy-pituitary-bio/
CATEGORIES:Cushie Bios UID:20260109T1550580Z-549422-2058@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Violet (hamot)\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300109;BYMONTH=1;BYMONTHDAY=9 DTSTART;VALUE=DATE:20260109 DTEND;VALUE=DATE:20260110 DESCRIPTION:miss diagnosed 12+ years. Head a left adrenalectomy for a benig n adrenal adnoma. Been in secondary addisons since. My right adrenal nev er fully recovered it makes about 4.5 cortisol. I average 12-15mgs of cor tef per day. More at https://cushingsbios.com/2026/01/09/violet-hamot-adre nal-bio/ X-ALT-DESC;FMTTYPE=text/html:miss diagnosed 12+ years.
Head a le ft adrenalectomy for a benign adrenal adnoma. \; \;Been in second ary addisons since.
My right adrenal never fully recovered it make s about 4.5 cortisol. \;I average 12-15mgs of cortef per day.
More at \;https://cushingsbios.com/2026/ 01/09/violet-hamot-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260109T1553300Z-549422-2059@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181024 SUMMARY:Cushing's Glossary DESCRIPTION:Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know. Find them at http://www.cu shings-help.com/definitions.htm X-ALT-DESC;FMTTYPE=text/html:Getting a diagnosis and dealing with tests can be a very trying time. Here are some words you'll want to know.
< p>Find them at \;http://www.cushings-help.com/definitions.htm CATEGORIES:Cushings UID:20181024T1510200Z-549422-1002@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220321 SUMMARY:Valrie\, Pituitary News Item RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300321;BYMONTHDAY=21 DESCRIPTION:HOUR-LONG seizures\, vision loss in the right eye\, and failure to complete sentences are among the challenges that 54-year-old Valrie An derson has been battling for the last 20 years. These problems stem from a condition called pituitary adenoma\, which is a growth or tumour on the p ituitary gland in the brain. Read more at https://cushingsbios.com/2022/03 /21/valrie-pituitary-news-item/ X-ALT-DESC;FMTTYPE=text/html:HOUR-LONG seizures\, vision loss in the rig ht eye\, and failure to complete sentences are among the challenges that 5 4-year-old Valrie Anderson has been battling for the last 20 years.
< p>These problems stem from a condition called pituitary adenoma\, which is a growth or tumour on the pituitary gland in the brain.Read more at \;https://cushingsbios.com/2022/03/ 21/valrie-pituitary-news-item/
CATEGORIES:Cushie Bios UID:20240320T1329540Z-549422-1531@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181024 SUMMARY:Cushing’s Disease Patients with USP8 Mutations More Likely to Achie ve Remission After Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191024;BYMONTHDAY=24 DESCRIPTION:Cushing’s disease patients whose pituitary tumors carry a USP8 mutation are more likely to achieve remission after surgery than those wit hout such mutations\, a retrospective Italian study found. Read more at ht tps://cushieblog.com/2018/10/24/cushings-disease-patients-with-usp8-mutati ons-more-likely-to-achieve-remission-after-surgery/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease patients whose pit uitary tumors carry a \;USP8 \;mutation are more likely t o achieve remission after surgery than those without such mutations\, a re trospective Italian study found.
Read more at \;https:// cushieblog.com/2018/10/24/cushings-disease-patients-with-usp8-mutations-mo re-likely-to-achieve-remission-after-surgery/
CATEGORIES:Cushings UID:20181024T1509180Z-549422-1001@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190522 SUMMARY: Register for Webinar: Adrenal Insufficiency/Addison's Disease DESCRIPTION:Webinar Learning Objectives: To distinguish between primary and secondary adrenal insufficiency To understand the pitfalls of current dia gnostic tests to diagnose adrenal insufficiency. To describe physiological replacement therapy for adrenal insufficiency To distinguish between adre nal insufficiency and glucocorticoid withdrawal syndrome. Read more at htt ps://cushieblogger.com/2019/05/22/webinar-adrenal-insufficiency-addisons-d isease/ X-ALT-DESC;FMTTYPE=text/html:R ead more at \;https://cushieblogg er.com/2019/05/22/webinar-adrenal-insufficiency-addisons-disease/
CATEGORIES:Events and Meetings UID:20190522T0746430Z-549422-1166@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190528 SUMMARY: Webinar: Adrenal Insufficiency/Addison's Disease DESCRIPTION:Webinar Learning Objectives: To distinguish between primary and secondary adrenal insufficiency To understand the pitfalls of current dia gnostic tests to diagnose adrenal insufficiency. To describe physiological replacement therapy for adrenal insufficiency To distinguish between adre nal insufficiency and glucocorticoid withdrawal syndrome. Read more at htt ps://cushieblogger.com/2019/05/22/webinar-adrenal-insufficiency-addisons-d isease/ X-ALT-DESC;FMTTYPE=text/html:R ead more at \;https://cushieblogg er.com/2019/05/22/webinar-adrenal-insufficiency-addisons-disease/
CATEGORIES:Events and Meetings UID:20190522T0747340Z-549422-1167@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190220 SUMMARY:Guest Question: Low TSH\, Low FT4\, buffalo hump and many other sym ptoms RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200220;BYMONTHDAY=20 DESCRIPTION:I have been struggling with progressive symptoms of extreme fat igue\, muscle weakness\, increased anxiety and depression\, rage\, acne\, weight gain\, and sweating just doing small tasks over the last 3 to 4 yea rs. I also have a very hard time controlling my body temperature. Read mor e at https://cushieblogger.com/2019/02/20/can-you-help/ X-ALT-DESC;FMTTYPE=text/html:I have been struggling with progressive sym ptoms of extreme fatigue\, muscle weakness\, increased anxiety and depress ion\, rage\, acne\, weight gain\, and sweating just doing small tasks over the last 3 to 4 years. I also have a very hard time controlling my body t emperature.
Read more at \;https://cushieblogger.com/2019/0 2/20/can-you-help/
CATEGORIES:Cushie Bios UID:20190220T1509160Z-549422-1085@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240220 SUMMARY:Surgical Remission of Cushing's Disease Tied to New Autoimmune Cond itions RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300220;BYMONTHDAY=20 DESCRIPTION:Development of autoimmune disease was more common in patients w ith surgical remission of Cushing's disease than in those with surgically treated nonfunctioning pituitary adenomas (NFPAs)\, according to a retrosp ective matched cohort study. Read more at https://www.medpagetoday.com/end ocrinology/generalendocrinology/108801? X-ALT-DESC;FMTTYPE=text/html:Development of autoimmune disease was more common in patients with surgical remission of Cushing's disease than in those with surgically treated nonfunctioning pituitary adenomas (NFPAs )\, according to a retrospective matched cohort study.
This study suggests that BIPSS may be a rel iable and low-complication technique in evaluating patients with ACTH-depe ndent CS who had inconclusive imaging and biochemical test results. The di agnostic accuracy is improved by DDAVP stimulation. Pituitary adenoma late ralization can be predicted with the aid of BIPSS.
CATEGORIES:Cushings UID:20231116T0000100Z-549422-1711@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180403 SUMMARY:From a Past Blogging Challenge: Sleep\, the Goldilocks and the thre e bears of Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190403;BYMONTHDAY=3 DESCRIPTION:Insomnia was one of the first things that troubled me enough to try to get help for with Cushing’s Disease. By my last year in music scho ol\, I had flipped my schedule around. I felt best and got more done if I practiced through the night and slept through the day... Read more at http s://cushieblogger.com/2018/04/03/from-a-past-blogging-challenge-sleep-the- goldilocks-and-the-three-bears-of-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Insomnia was one of the first things that t roubled me enough to try to get help for with Cushing&rsquo\;s Disease. By my last year in music school\, I had flipped my schedule around. I felt b est and got more done if I practiced through the night and slept through t he day...
Read more at \;https://cushieblogger.com/201 8/04/03/from-a-past-blogging-challenge-sleep-the-goldilocks-and-the-three- bears-of-cushings-disease/
CATEGORIES:Awareness Challenge UID:20180403T2125050Z-549422-876@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230724 SUMMARY:Basics: Treatment - Transsphenoidal adenomectomy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300724;BYMONTHDAY=24 DESCRIPTION:The most common procedure to remove pituitary tumors is transsp henoidal adenomectomy. It allows the removal of the tumor with minimal dam age to the surrounding structures. The surgical team accesses the pituitar y gland through the sphenoid sinus — a hollow space behind the nasal passa ges and below the pituitary gland. Read more at https://cushings.invisionz one.com/topic/57620-basics-treatment-transsphenoidal-adenomectomy/ X-ALT-DESC;FMTTYPE=text/html:The most common procedure to remove p ituitary tumors is \;transsphenoidal adenomectomy. It all ows the removal of the tumor with minimal damage to the surrounding struct ures. The surgical team accesses the pituitary gland through the sphenoid sinus &mdash\; a hollow space behind the nasal passages and below the pitu itary gland.
Read more at \;https://cushings.invisionzone.com/t opic/57620-basics-treatment-transsphenoidal-adenomectomy/
CATEGORIES:Cushings UID:20230724T1504040Z-549422-1660@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20201123 SUMMARY:Dr. Friedman: COVID-19 November 2020 update RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20211123;BYMONTHDAY=23 DESCRIPTION:As mentioned in the March update\, patients with endocrine prob lems such as Cushing’s syndrome\, Addison’s Disease\, hypopituitarism and diabetes have slightly impaired immune systems\, making them potentially s usceptible for a more severe infection by COVID-19. He would recommend tho se patients to be especially vigilant about mask-wearing/social distancing and to get a vaccine when it comes out. Read more at https://cushieblo gger.com/2020/11/23/dr-friedman-covid-19-november-2020-update/ X-ALT-DESC;FMTTYPE=text/html:As mentioned in the March update\, patients with endocrine problems such as Cushing&rsquo\;s syndrome\, Addison&rsquo \;s Disease\, hypopituitarism and diabetes have slightly impaired immune s ystems\, making them potentially susceptible for a more severe infection b y COVID-19. He would recommend those patients to be especially vigilant ab out mask-wearing/social distancing and to get a vaccine when it comes out. \;
\;
Read more at \;https:/ /cushieblogger.com/2020/11/23/dr-friedman-covid-19-november-2020-update/
CATEGORIES:Other Medical UID:20201123T1404240Z-549422-1308@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211020 SUMMARY:Identified: the gene behind an unusual form of Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221020;BYMONTHDAY=20 DESCRIPTION:A team of scientists in Montreal and Paris has succeeded in ide ntifying the gene responsible for the development of a food-dependent form of Cushing’s Syndrome\, a rare disease affecting both adrenal glands. In their study published in The Lancet Diabetes & Endocrinology\, Dr. Isabell e Bourdeau and Dr. Peter Kamenicky identify in the gene KDM1A the mutation s responsible for the development of this unusual form of the disease. The scientists also show\, for the first time\, that the disease is genetical ly transmitted. Read more at https://cushings.invisionzone.com/topic/56234 -identified-the-gene-behind-an-unusual-form-of-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A team of scientists in Montreal and Paris has succeeded in identifying the gene responsible for the development of a food-dependent form of Cushing&rsquo\;s Syndrome\, a rare disease affecti ng both adrenal glands.
In their study published in The Lancet Dia betes &\; Endocrinology\, Dr. Isabelle Bourdeau and Dr. Peter Kamenicky identify in the gene KDM1A the mutations responsible for the development of this unusual form of the disease.
The scientists also show\, fo r the first time\, that the disease is genetically transmitted.
Re ad more at \;https://cushings.invisionzone.com/topic/56234-identified-th e-gene-behind-an-unusual-form-of-cushing%E2%80%99s-syndrome/
CATEGORIES:News Items UID:20211020T0547160Z-549422-1438@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221027 SUMMARY:Jason T\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301027;BYMONTHDAY=27 DESCRIPTION:Jason is from England. Pituitary tumour found in 2020(posterio r lobe)\,now test after test and 2nd MRI still shows microadenoma. He also had two traumatic brain injuries. Read more at https://cushingsbios.com/2 022/10/27/jason-t-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Jason is from England. \;Pituitary tum our found in 2020(posterior lobe)\,now test after test and 2nd MRI still s hows microadenoma. He also had two traumatic brain injuries.
Read more at \;https://cushingsbios.com/2022/10/2 7/jason-t-pituitary-bio/
CATEGORIES:Cushie Bios UID:20221027T1331410Z-549422-1620@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory: Bonny Hamm\, October 12\, 2009 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301012;BYMONTH=10;BYMONTHDAY=12 DTSTART;VALUE=DATE:20091012 DTEND;VALUE=DATE:20091013 DESCRIPTION:She was only 45 at the time of her death October 12\, 2009. I’v e known far too many Cushies who have died far too young from this disease . Bonny wrote July 1\, 2009 I was sick with ALL the symptoms (about 30-40) for 5 years. Finally got correctly diagonosed and had my left Adrenal Gla nd and its tumour removed in June 2007. The recovery was long and hellish. The worst symptom after the operation was 3 months of constant itching li terally from my scalp to my heels and every inch of skin in between. I als o had pain in every single joint of my body\, along with all the pre op sy mptoms that took a long long time to improve. Read more at https://cushi ngsbios.com/2021/10/12/in-memory-of-bonny-hamm-october-12-2009/ X-ALT-DESC;FMTTYPE=text/html:She was only 45 at the time of her death Oc tober 12\, 2009. I&rsquo\;ve known far too many Cushies who have died far too young from this disease.
Bonny wrote July 1\, 2009
I w as sick with ALL the symptoms (about 30-40) for 5 years. Finally got corre ctly diagonosed and had my left Adrenal Gland and its tumour removed in Ju ne 2007. The recovery was long and hellish. The worst symptom after the op eration was 3 months of constant itching literally from my scalp to my hee ls and every inch of skin in between. I also had pain in every single join t of my body\, along with all the pre op symptoms that took a long long ti me to improve.
\;
Read more at \;https://cushingsbios.com/2021/10/12/in-memory- of-bonny-hamm-october-12-2009/
CATEGORIES:In Memory UID:20221015T0621410Z-549422-1433@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250428 SUMMARY:Cardiometabolic Complications After Cushing’s Disease Remission RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300428;BYMONTHDAY=28 DESCRIPTION:Cushing’s disease (CD) is associated with phenotypic traits and comorbidities that may persist after the normalization of cortisol levels . Medical therapy is usually given in recurrent or persistent CD after tra nssphenoidal surgery. We aimed to investigate the impact of long-term norm alization of daily cortisol secretion on clinical picture and cardiometabo lic comorbidities\, comparing surgical remission to medical treatment. htt ps://cushings.invisionzone.com/topic/57817-cardiometabolic-complications-a fter-cushing%E2%80%99s-disease-remission/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is asso ciated with phenotypic traits and comorbidities that may persist after the normalization of cortisol levels. Medical therapy is usually given in rec urrent or persistent CD after transsphenoidal surgery. We aimed to investi gate the impact of long-term normalization of daily cortisol secretion on clinical picture and cardiometabolic comorbidities\, comparing surgical re mission to medical treatment.
CATEGORIES:Cushings UID:20250428T1524170Z-549422-1879@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180516 SUMMARY:Study Describes 6 Common Surgical Failures in Cushing’s Disease Tre atment RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190516;BYMONTHDAY=16 DESCRIPTION:Based on long-term patient outcomes\, researchers were able to identify six categories of common diagnostic and surgical failures. They i nclude: persistently high cortisol levels despite the successful removal o f lesions the failure of tumor resection recurrence of disease a failure t o identify the source of ACTH secretion the absence of identifiable lesion s during exploratory surgery concurrent tumors. Read more at https://cushi eblog.com/2018/05/16/study-describes-6-common-surgical-failures-in-cushing s-disease-treatment/ X-ALT-DESC;FMTTYPE=text/html:Based on long-term patient outcomes\, resea rchers were able to identify six categories of common diagnostic and surgi cal failures. They include:
Read more at \;https://cushieblog.com/2018/05/16/study-describes-6-common-surgical- failures-in-cushings-disease-treatment/
CATEGORIES:Cushings UID:20180516T1521480Z-549422-935@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 17: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250417;BYMONTH=4;BYMONTHDAY=17 DTSTART;VALUE=DATE:20190417 DTEND;VALUE=DATE:20190418 DESCRIPTION:I used to carry a print out of this everywhere I go because I f ind it very soothing. This print out was in a plastic page saver. On the other side there is a Psalm 116\, part of the post from Day Fifteen of the 2018 Cushing's Challenge. These days\, both these readings are available on my phone. Read more at https://cushieblogger.com/2019/04/17/day-17-cus hings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:I used to carry a print out of this everywh ere I go because I find it very soothing. \;This print out was in a p lastic page saver. On the other side there is a Psalm 116\, part of the po st from Day Fifteen of the 2018 Cushing's Challenge. \;These days\, b oth these readings are available on my phone.
Read more at \;< a href='https://cushieblogger.com/2019/04/17/day-17-cushings-awareness-cha llenge-2019/' target='_blank'>https://cushieblogger.com/2019/04/17/day-17- cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190417T2126380Z-549422-1134@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20250119T210000 DTEND;TZID=America/New_York:20250119T220000 SUMMARY: Webinar on How to Stay Alive Without Adrenals (BLA and Addison’s) DESCRIPTION:Dr. Theodore Friedman (The Wiz) will be giving an updated webin ar on how to flourish if you have adrenal insufficiency. More info at http s://cushings.invisionzone.com/topic/57774-webinar-on-how-to-stay-alive-wit hout-adrenals-bla-and-addison%E2%80%99s/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on how to flourish if you have adrenal insuff iciency.
More info at \;https://cushi ngs.invisionzone.com/topic/57774-webinar-on-how-to-stay-alive-without-adre nals-bla-and-addison%E2%80%99s/
CATEGORIES:Cushings UID:20250109T0946310Z-549422-1841@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220516 SUMMARY:The Genomic Landscape of Corticotroph Tumors: From Silent Adenomas to ACTH-Secreting Carcinomas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240516;BYMONTHDAY=16 DESCRIPTION:Corticotroph cells give rise to aggressive and rare pituitary n eoplasms comprising ACTH-producing adenomas resulting in Cushing disease ( CD)\, clinically silent ACTH adenomas (SCA)\, Crooke cell adenomas (CCA) a nd ACTH-producing carcinomas (CA). Read more at https://cushings.invisionz one.com/topic/56904-the-genomic-landscape-of-corticotroph-tumors-from-sile nt-adenomas-to-acth-secreting-carcinomas/ X-ALT-DESC;FMTTYPE=text/html:Corticotroph cells give rise to aggressive and rare pituitary neoplasms comprising ACTH-producing adenomas resulting in Cushing disease (CD)\, clinically silent ACTH adenomas (SCA)\, Crooke c ell adenomas (CCA) and ACTH-producing carcinomas (CA).
Read more a t \;https://cushings.invisionzone.com/topic/56904- the-genomic-landscape-of-corticotroph-tumors-from-silent-adenomas-to-acth- secreting-carcinomas/
CATEGORIES:Cushings UID:20220516T1021550Z-549422-1569@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240304 SUMMARY:Fulminant Ectopic Cushing’s Syndrome Caused by Metastatic Small Int estine Neuroendocrine Tumour RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280304;BYMONTHDAY=4 DESCRIPTION:This review is illustrated by the case of a 75-year old woman w ith fulminant ectopic Cushing's Syndrome caused by a ACTH-secreting metast atic siNET. Severe hypokalemia\, fluid retention and refractory hypertensi on were the presenting symptoms. Read more at https://cushings.invisionzon e.com/topic/57699-fulminant-ectopic-cushing%E2%80%99s-syndrome-caused-by-m etastatic-small-intestine-neuroendocrine-tumour/ X-ALT-DESC;FMTTYPE=text/html:This review is illustrated by the cas e of a 75-year old woman with fulminant ectopic Cushing's Syndrome caused by a ACTH-secreting metastatic siNET. Severe hypokalemia\, fluid retention and refractory hypertension were the presenting symptoms.
CATEGORIES:Cushings UID:20240304T1411520Z-549422-1752@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to In Memory: Liz Raftery\, March 2012 DTSTART;VALUE=DATE:20210405 DTEND;VALUE=DATE:20210406 RRULE:FREQ=MONTHLY;UNTIL=20250301;BYDAY=1MO DESCRIPTION:This breaks my heart. Liz was so young. She was finally so hope ful after way too long. We have to do something to change this. People esp ecially doctors have to know what we go through. Mary is one person and lo ok at all she has done to raise awareness. We are so many. There has to be something we all can do. Read more at https://cushingsbios.com/2021/03/0 1/in-memory-liz-raftery-march-2012/ X-ALT-DESC;FMTTYPE=text/html:This breaks my heart. Liz was so young. She was finally so hopeful after way too long. We have to do something to cha nge this. People especially doctors have to know what we go through. Mary is one person and look at all she has done to raise awareness. We are so m any. There has to be something we all can do. \;
Read more at& nbsp\;https://cushingsbios.com/2021/03/01/in-memory- liz-raftery-march-2012/
CATEGORIES:In Memory UID:20210301T2104390Z-549422-1325@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221201 SUMMARY:12 Days of Cortisol Christmas Event DESCRIPTION:'We invite you to join us for our opening 12 Days of Cortisol C hristmas event\, “Overcoming Fatophobia” with Dr. Karen Thames . Read more at https://cushings.invisionzone.com/topic/57579-12-days-of-cortisol-chri stmas-event/ X-ALT-DESC;FMTTYPE=text/html:'We invite you to join us for our opening 1 2 Days of Cortisol Christmas event\, &ldquo\;Overcoming Fatophobia&rdquo\; with Dr. Karen Thames .
Read more at \;https://cushings.invisionzone.com/topic/ 57579-12-days-of-cortisol-christmas-event/
CATEGORIES:Events and Meetings UID:20221127T0956570Z-549422-1627@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251124 SUMMARY:Global Longitudinal Strain Reduction With Apical Sparing in Cushing Syndrome-Related Heart Failure With Preserved Ejection Fraction (HFpEF): A Case Report RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301124;BYMONTHDAY=24 DESCRIPTION:We describe a case of a 56-year-old woman with a history of rec urrent pituitary adenoma\, not well followed\, and known comorbidities of coronary artery disease\, hypertension\, and type 2 diabetes mellitus. She arrived with severely high blood pressure and signs pointing to hypercort isolism. https://cushings.invisionzone.com/topic/57922-global-longitudina l-strain-reduction-with-apical-sparing-in-cushing-syndrome-related-heart-f ailure-with-preserved-ejection-fraction-hfpef-a-case-report/ X-ALT-DESC;FMTTYPE=text/html:We describe a case of a 56-year-old w oman with a history of recurrent pituitary adenoma\, not well followed\, a nd known comorbidities of coronary artery disease\, hypertension\, and typ e 2 diabetes mellitus. She arrived with severely high blood pressure and s igns pointing to hypercortisolism. \;
CATEGORIES:Cushings UID:20251126T1058200Z-549422-2005@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251011 SUMMARY:Risk Comparison and Assessment Model of Deep Vein Thrombosis in Pat ients with Pituitary Adenomas After Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301011;BYMONTHDAY=11 DESCRIPTION:Limited studies have identified a particularly elevated Venous thromboembolism (VTE) risk in patients with Cushing's disease\, a hormone- secreting subtype of pituitary adenoma. https://cushings.invisionzone.com/ topic/57899-risk-comparison-and-assessment-model-of-deep-vein-thrombosis-i n-patients-with-pituitary-adenomas-after-surgery/ X-ALT-DESC;FMTTYPE=text/html:Limited studies have identified a particula rly elevated Venous thromboembolism (VTE) risk in patients with Cushing's disease\, a hormone-secreting subtype of pituitary adenoma.
CATEGORIES:Cushings UID:20251011T0944090Z-549422-1956@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251011 SUMMARY:Osilodrostat for Cyclic Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301011;BYMONTHDAY=11 DESCRIPTION:Cyclic Cushing’s syndrome is a rare subtype of Cushing’s syndro me with episodes of hypercortisolism\, followed by spontaneous remission. https://cushings.invisionzone.com/topic/57900-osilodrostat-for-cyclic-cush ing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Cyclic Cushing&rsquo\;s syndrome is a rare subtype of Cushing&rsquo\;s syndrome with episodes of hypercortisoli sm\, followed by spontaneous remission.
CATEGORIES:Cushings UID:20251011T1630210Z-549422-1957@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190428 SUMMARY:VIDEO: ‘Subclinical’ Cushing’s syndrome needs new name RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200428;BYMONTHDAY=28 DESCRIPTION:Maria Fleseriu\, MD\, FACE\, professor of neurological surgery and professor of medicine in the division of endocrinology\, diabetes and clinical nutrition in the School of Medicine at Oregon Health & Science Un iversity and director of the OHSU Northwest Pituitary Center\, discusses w hy mild Cushing’s syndrome matters. See the video at https://cushieblogger .com/2019/04/28/video-subclinical-cushings-syndrome-needs-new-name/ X-ALT-DESC;FMTTYPE=text/html:
Maria Fleseriu\, MD\, FACE\, professor of n eurological surgery and professor of medicine in the division of endocrino logy\, diabetes and clinical nutrition in the School of Medicine at Oregon Health &\; Science University and director of the OHSU Northwest Pitui tary Center\, discusses why mild Cushing&rsquo\;s syndrome matters.
< p>See the video at \;https:// cushieblogger.com/2019/04/28/video-subclinical-cushings-syndrome-needs-new -name/ CATEGORIES:Cushings UID:20190428T1441070Z-549422-1152@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Dr. Theodore Friedman will host an important webinar on Coronavirus Information for Endocrine Patients DTSTART;VALUE=DATE:20200327 DTEND;VALUE=DATE:20200328 RRULE:FREQ=WEEKLY;UNTIL=20200405;BYDAY=FR DESCRIPTION:Many patients have asked Dr. Friedman what do during the Corona virus Pandemic. He will give candid answers from his view as an Endocrinol ogist. He will also talk about new telehealth opportunities for his patien ts. Read more at https://cushieblogger.com/2020/03/27/dr-theodore-friedman -will-host-an-important-webinar-on-coronavirus-information-for-endocrine-p atients/ X-ALT-DESC;FMTTYPE=text/html:Many patients have asked Dr. Friedman what do during the Coronavirus Pandemic. He will give candid answers from his v iew as an Endocrinologist. He will also talk about new telehealth opportun ities for his patients.
CATEGORIES:Events and Meetings UID:20200327T2224180Z-549422-1235@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210322 SUMMARY:Growth Hormone Study Opportunity - It pays money! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220322;BYMONTHDAY=22 DESCRIPTION:Here's your chance to make your voice heard on Growth Hormone I ssues. Anyone interested would sign up with Rare Patient Voice using the C ushingsHelp referral Link. You would then get an email invite to the actua l study. This is a 30 min online survey and Compensation is $50. Read more at https://cushings.invisionzone.com/topic/55578-growth-hormone-study -opportunity-it-pays-money/?tab=comments#comment-475831 X-ALT-DESC;FMTTYPE=text/html:Here's your chance to make your voice heard on Growth Hormone Issues.
The February 2022 issue of Reader's Digest has information about a pituitary Cushing's patient.
Read the arti cle at \;https://cushings.invisionzone. com/topic/56500-from-this-months-readers-digest/
CATEGORIES:Cushings UID:20220120T1045070Z-549422-1505@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230624 SUMMARY:Cushing's Disease Associated With Partially Empty Sella Turcica Syn drome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280624;BYMONTHDAY=24 DESCRIPTION:The association between empty sella turcica (EST) syndrome and Cushing's disease has been rarely reported. It is plausible to hypothesize that EST syndrome in association with Cushing's disease can be attributed to intracranial hypertension Read more at https://cushings.invisionzone.c om/topic/57609-cushings-disease-associated-with-partially-empty-sella-turc ica-syndrome/ X-ALT-DESC;FMTTYPE=text/html:The association between empty sella t urcica (EST) syndrome and Cushing's disease has been rarely reported. It i s plausible to hypothesize that EST syndrome in association with Cushing's disease can be attributed to intracranial hypertension
Radiation therapy targeting the \;entir e sella &mdash\; the compartment where the pituitary gland resides at the base of the brain &mdash\; is effective at controlling Cushing&rsquo\;s di sease and should be considered for patients with suspected invasive adenom a tumors\, a new study shows.
Read more at \;https://cushieblog.com/20 18/06/02/radiation-to-the-whole-pituitary-compartment-effective-at-control ling-cushings/
CATEGORIES:Cushings UID:20180602T1602220Z-549422-942@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180728 SUMMARY:Health Alert: Adrenal Crisis Causes Death in Some People Who Were T reated with hGH RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190728;BYMONTHDAY=28 DESCRIPTION:Most people who were treated with hGH did not make enough of th eir own growth hormone. Some of them lacked growth hormone because they ha d birth defects\, tumors or other diseases that cause the pituitary gland to malfunction or shut down. People with those problems frequently lack ot her key hormones made by the pituitary gland\, such as ACTH\, which direct s the adrenal gland to make cortisol\, a hormone necessary for life. Havin g too little cortisol can be fatal if not properly treated. Treatment with hGH does not cause adrenal crisis\, but because a number of people lackin g growth hormone also lack ACTH\, adrenal crisis has occurred in some peop le who were treated with hGH. In earlier updates we have talked about how adrenal crisis can be prevented\, but people continue to die from adrenal crisis\, which is brought on by lack of cortisol. These deaths can be prev ented. Please talk to your doctor about whether you are at risk for adrena l crisis. Read more at https://cushieblog.com/2018/07/28/health-alert-adre nal-crisis-causes-death-in-some-people-who-were-treated-with-hgh/ X-ALT-DESC;FMTTYPE=text/html:Most people who were treated with hGH did n ot make enough of their own growth hormone. Some of them lacked growth hor mone because they had birth defects\, tumors or other diseases that cause the pituitary gland to malfunction or shut down. People with those problem s frequently lack other key hormones made by the pituitary gland\, such as ACTH\, which directs the adrenal gland to make cortisol\, a hormone neces sary for life. Having too little cortisol can be fatal if not properly tre ated.
Treatment with hGH does not cause adrenal crisis \, but because a number of people lacking growth hormone als o lack ACTH\, adrenal crisis has occurred in some people who were treated with hGH. In earlier updates we have talked about how adrenal crisis can b e prevented\, but people continue to die from adrenal crisis\, which is br ought on by lack of cortisol. These deaths can be prevented. Please talk t o your doctor about whether you are at risk for adrenal crisis.
Re ad more at \;https://cushieblog.com/2018/07/28/health-alert-adrenal-crisis- causes-death-in-some-people-who-were-treated-with-hgh/
CATEGORIES:Cushings UID:20180728T1527100Z-549422-959@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210527 SUMMARY:In Manchester? New Endocrinology Unit RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220527;BYMONTHDAY=27 DESCRIPTION:These are the conditions which are diagnosed and treated by the clinic’s consultants. Some of the examples include thyroid problems\, adr enal nodules\, which may lead to Cushing’s syndrome with hypertension\, di abetes and osteoporosis\; or pituitary nodules\, which may lead to pituita ry deficiency or cause blindness. Some of these conditions are difficult t o diagnose\, and simple blood tests are not enough. In these cases\, ‘dyna mic tests’ are needed\, which require significant expertise in how they ar e performed and how the results are interpreted. Previously these speciali sed tests required an inpatient stay\, where patients would often have to wait for over few months. Read more at https://cushings.invisionzone.com/t opic/55688-in-manchester-new-endocrinology-unit/ X-ALT-DESC;FMTTYPE=text/html:These are the conditions which are diagnose d and treated by the clinic&rsquo\;s consultants. Some of the examples inc lude thyroid problems\, adrenal nodules\, which may lead to Cushing&rsquo\ ;s syndrome with hypertension\, diabetes and osteoporosis\; or pituitary n odules\, which may lead to pituitary deficiency or cause blindness.
< p>Some of these conditions are difficult to diagnose\, and simple blood te sts are not enough. In these cases\, &lsquo\;dynamic tests&rsquo\; are nee ded\, which require significant expertise in how they are performed and ho w the results are interpreted. Previously these specialised tests required an inpatient stay\, where patients would often have to wait for over few months.Read more at \;htt ps://cushings.invisionzone.com/topic/55688-in-manchester-new-endocrinology -unit/
CATEGORIES:Helpful Doctors UID:20210527T1318220Z-549422-1385@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220414 SUMMARY:Comment added to Video: Taylor Davis Spreads Awareness about Cushin g’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240414;BYMONTHDAY=14 DESCRIPTION:I know your frustration..cant find a Dr. to help.My daughter ha s all the symptoms but is told on a scale of 1-5 for cushings she is 4\,8 thus isn't cushings.Her health is awful\,gained over 100 lbs.. https://c ushieblogger.com/2019/07/07/video-taylor-davis-spreads-awareness-about-cus hings-disease/ X-ALT-DESC;FMTTYPE=text/html:I know your frustration..cant find a Dr. to help.My daughter has all the symptoms but is told on a scale of 1-5 for c ushings she is 4\,8 thus isn't cushings.Her health is awful\,gained over 1 00 lbs..
\;
https://cushieblogger.com/2019/07/07/video-taylor-davis-spreads-a wareness-about-cushings-disease/
CATEGORIES:Cushie Bios UID:20220414T2231450Z-549422-1551@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240531 SUMMARY:Cushing Syndrome and Hormone Disorders RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300531;BYMONTHDAY=31 DESCRIPTION:In our Daily Dose\, a viewer is asking about hormone problems t hat can cause your face to become round. Dr. Lacy Anderson joined News 9 t o explain how some hormone disorders\, like Cushing syndrome work. Read mo re at https://cushings.invisionzone.com/topic/57733-cushing-syndrome-and-h ormone-disorders/ X-ALT-DESC;FMTTYPE=text/html:In our Daily Dose\, a viewer is askin g about hormone problems that can cause your face to become round. Dr. \;Lacy Anderson \;joined News 9 to explain how so me hormone disorders\, like Cushing syndrome work.
Re ad more at \;http s://cushings.invisionzone.com/topic/57733-cushing-syndrome-and-hormone-dis orders/
CATEGORIES:Cushings UID:20240531T2307580Z-549422-1790@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190708 SUMMARY:Researchers Report Rare Case of Cushing’s Caused by Bilateral Adren al Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200708;BYMONTHDAY=8 DESCRIPTION:Cases of adrenocorticotropic hormone (ACTH)-independent Cushing ’s syndrome are often caused by unilateral tumors in the adrenal glands\, but Indian researchers have now reported a rare case where the condition w as caused by tumors in both adrenal glands. Read more at https://cushieblo g.com/2019/07/08/researchers-report-rare-case-of-cushings-caused-by-bilate ral-adrenal-tumors/ X-ALT-DESC;FMTTYPE=text/html:Cases of adrenocorticotropic hormone (ACTH) -independent Cushing&rsquo\;s syndrome are often caused by unilateral tumo rs in the adrenal glands\, but Indian researchers have now reported a rare case where the condition was caused by tumors in both adrenal glands.
Read more at \;https://cushieblog.com/2019/07/08/researchers-report-rare-cas e-of-cushings-caused-by-bilateral-adrenal-tumors/
CATEGORIES:News Items UID:20190708T1613010Z-549422-1188@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Surgical Removal of Pituitary Adenomas Through the Nose Remains an Effective Treatment for Pediatric Patients DTSTART;VALUE=DATE:20190727 DTEND;VALUE=DATE:20190728 RRULE:FREQ=MONTHLY;UNTIL=20200622;BYDAY=4SA DESCRIPTION:Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment o ption for pediatric patients\, despite its inherent technical difficulties \, a new study shows. Read more at https://cushieblog.com/2019/06/22/surgi cal-removal-of-pituitary-adenomas-through-the-nose-remains-an-effective-tr eatment-for-pediatric-patients/ X-ALT-DESC;FMTTYPE=text/html:Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment option for pediatric patients\, despite its in herent technical difficulties\, a new study shows.
Read more at&nb sp\;https://cushieblog.com/2019/06/22/surgical-remo val-of-pituitary-adenomas-through-the-nose-remains-an-effective-treatment- for-pediatric-patients/
CATEGORIES:News Items UID:20190622T1403170Z-549422-1174@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190622 SUMMARY:New Testimonial From Sally C RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200622;BYMONTHDAY=22 DESCRIPTION:...Mary saved my life with her site and I had so many good time s with her in real life. I did a search to see if old Penelopee was still here and she is :) perhaps some new people can enjoy the craziness of Cush ies at Sea :) Read more at https://cushieblogger.com/testimonial/sally-c/ X-ALT-DESC;FMTTYPE=text/html:...Mary saved my life with her site and I h ad so many good times with her in real life. I did a search to see if old Penelopee was still here and she is :) perhaps some new people can enjoy t he craziness of Cushies at Sea :)
Read more at \;https://cushie blogger.com/testimonial/sally-c/
CATEGORIES:Cushings UID:20190622T1404410Z-549422-1175@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Meghan T\, Pituitary Bio DTSTART;VALUE=DATE:20190727 DTEND;VALUE=DATE:20190728 RRULE:FREQ=MONTHLY;UNTIL=20200629;BYDAY=-1SA DESCRIPTION:Meghan is from Arlington\, Texas. At age 21 (2015) she was dia gnosed with Cushing's Disease. After a failed pituitary surgery\, she had a BLA. Read her bio at https://cushingsbios.com/2019/06/29/meghan-t-pituit ary-bio/ X-ALT-DESC;FMTTYPE=text/html:Meghan is from Arlington\, Texas. \;At age 21 (2015) she was diagnosed with Cushing's Disease. After a failed pi tuitary surgery\, she had a BLA.
Read her bio at \;https://cushingsbios.com/2019/06/29/meghan-t-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190629T1520290Z-549422-1179@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190629 SUMMARY:New Helpful Doctor in Texas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200629;BYMONTHDAY=29 DESCRIPTION:Sasan Mirfakhraee\, specializing in Cushings Disease/Syndrome\, type 1 and type 2 diabetes mellitus\, as well as thyroid\, pituitary\, an d bone remodeling disorders. Read more at https://cushieblogger.com/2019/0 6/29/helpful-doctors-texas/ X-ALT-DESC;FMTTYPE=text/html:Sasan Mirfakhraee\, specializing in Cushing s Disease/Syndrome\, type 1 and type 2 diabetes mellitus\, as well as thyr oid\, pituitary\, and bone remodeling disorders.
Read more at \;https://cushieblogger.com/2019/06/29/helpful-doctors-texas/< /a>
CATEGORIES:Helpful Doctors UID:20190629T1541530Z-549422-1180@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Temozolomide Effective Against Cushing’s Caused by Aggressive Tumor s DTSTART;VALUE=DATE:20190720 DTEND;VALUE=DATE:20190721 RRULE:FREQ=MONTHLY;UNTIL=20200618;BYDAY=3SA DESCRIPTION:Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment o ption for pediatric patients\, despite its inherent technical difficulties \, a new study shows. Read more at https://cushieblog.com/2019/06/29/temoz olomide-effective-against-cushings-caused-aggressive-tumors/ X-ALT-DESC;FMTTYPE=text/html:Removal of pituitary adenomas by inserting surgical instruments through the nose (transsphenoidal resection) remains the best treatment option for pediatric patients\, despite its inherent te chnical difficulties\, a new study shows.
Read more at \;https://cushieblog.com/2019 /06/29/temozolomide-effective-against-cushings-caused-aggressive-tumors/
CATEGORIES:News Items UID:20190629T1604250Z-549422-1181@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251101 SUMMARY:2025 Neuro-Endocrine Pituitary Conference: For Physicians\, Nurses & Patients RRULE:FREQ=DAILY;COUNT=2 DESCRIPTION:ave the Date: In-depth information for nurses and patients in t wo separate curated sessions. https://cushings.invisionzone.com/topic/5782 8-2025-neuro-endocrine-pituitary-conference-for-physicians-nurses-patients / X-ALT-DESC;FMTTYPE=text/html:ave the Date: In-depth information for nurs es and patients in two separate curated sessions.
CATEGORIES:Events and Meetings UID:20250517T0827350Z-549422-1890@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221104 SUMMARY:Development of Human Pituitary Neuroendocrine Tumor Organoids to Fa cilitate Effective Targeted Treatments of Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301104;BYMONTHDAY=4 DESCRIPTION:Cushing’s disease (CD) is a serious endocrine disorder caused b y an adrenocorticotropic hormone (ACTH)-secreting pituitary neuroendocrine tumor (PitNET) that stimulates the adrenal glands to overproduce cortisol . Chronic exposure to excess cortisol has detrimental effects on health\, including increased stroke rates\, diabetes\, obesity\, cognitive impairme nt\, anxiety\, depression\, and death. The first-line treatment for CD is pituitary surgery. Current surgical remission rates reported in only 56% o f patients depending on several criteria. The lack of specificity\, poor t olerability\, and low efficacy of the subsequent second-line medical thera pies make CD a medical therapeutic challenge. One major limitation that hi nders the development of specific medical therapies is the lack of relevan t human model systems that recapitulate the cellular composition of PitNET microenvironment. Read more at https://cushings.invisionzone.com/topic/57 575-development-of-human-pituitary-neuroendocrine-tumor-organoids-to-facil itate-effective-targeted-treatments-of-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is a se rious endocrine disorder caused by an adrenocorticotropic hormone (ACTH)-s ecreting pituitary neuroendocrine tumor (PitNET) that stimulates the adren al glands to overproduce cortisol. Chronic exposure to excess cortisol has detrimental effects on health\, including increased stroke rates\, diabet es\, obesity\, cognitive impairment\, anxiety\, depression\, and death. Th e first-line treatment for CD is pituitary surgery. Current surgical remis sion rates reported in only 56% of patients depending on several criteria. The lack of specificity\, poor tolerability\, and low efficacy of the sub sequent second-line medical therapies make CD a medical therapeutic challe nge. One major limitation that hinders the development of specific medical therapies is the lack of relevant human model systems that recapitulate t he cellular composition of PitNET microenvironment.
< p>Read more at \;https://cushings.invisionzone.com/topic/57575-develo pment-of-human-pituitary-neuroendocrine-tumor-organoids-to-facilitate-effe ctive-targeted-treatments-of-cushing%E2%80%99s-disease/ CATEGORIES:News Items UID:20221104T1512360Z-549422-1621@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251218 SUMMARY:A Case of Recurrent Cushing’s Disease With Optimised Perinatal Outc omes RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301218;BYMONTHDAY=18 DESCRIPTION:This is a case of a patient with a 10-year history of Cushing’s disease (CD) that was previously treated with transsphenoidal pituitary t umour resection. Conception occurred spontaneously\, and during early preg nancy recurrent CD became apparent both clinically and biochemically. http s://cushings.invisionzone.com/topic/57928-approach-to-the-patient-with-cus hing’s-syndrome-use-of-anticoagulation-therapy/ X-ALT-DESC;FMTTYPE=text/html:This is a case of a patient with a 10 -year history of Cushing&rsquo\;s disease (CD) that was previously treated with transsphenoidal pituitary tumour resection. Conception occurred spon taneously\, and during early pregnancy recurrent CD became apparent both c linically and biochemically.
CATEGORIES:Cushings UID:20251218T0827490Z-549422-2029@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250920 SUMMARY:High Prevalence of Adrenal Imaging Abnormalities in Cushing’s Disea se RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300920;BYMONTHDAY=20 DESCRIPTION:We identified abnormal adrenal imaging in 51.5% of patients wit h CD. The prevalence of adrenal nodules in our study was 10-fold higher th an in the normal population\, for all age groups. This suggests that chron ic ACTH secretion in Cushing's Disease is associated with adrenal nodules appearance. https://cushings.invisionzone.com/topic/57881-high-prevalence- of-adrenal-imaging-abnormalities-in-cushing’s-disease/ X-ALT-DESC;FMTTYPE=text/html:We identified abnormal adrenal imaging in 5 1.5% of patients with CD. The prevalence of adrenal nodules in our study w as 10-fold higher than in the normal population\, for all age groups. This suggests that chronic ACTH secretion in Cushing's Disease is associated w ith adrenal nodules appearance.
CATEGORIES:Cushings UID:20250921T0820540Z-549422-1937@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190623 SUMMARY:Archived Interview: With Pat\, Pituitary Patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200623;BYMONTHDAY=23 DESCRIPTION:Pat shared her story in an interview. She ad a Pituitary Tumor (Cushing’s Disease) removed (Macro 1.4 size) by Dr. Kelly at UCLA. Read m ore at https://cushingsbios.com/2019/06/23/archived-interview-with-pat-pit uitary-patient/ X-ALT-DESC;FMTTYPE=text/html:Pat shared her story in an interview. She a d a Pituitary Tumor (Cushing&rsquo\;s Disease) removed \;(Macro 1.4 s ize) by Dr. Kelly at UCLA.
Read more at \;https://cushingsbios.com/2019/06/23/archived-interview-with -pat-pituitary-patient/
CATEGORIES:Cushie Bios UID:20190629T0936300Z-549422-1178@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Kim H\, Ectopic Bio DTSTART;VALUE=DATE:20190812 DTEND;VALUE=DATE:20190813 RRULE:FREQ=MONTHLY;UNTIL=20200708;BYDAY=2MO DESCRIPTION:Kim H is from Grays\, UK. She has ectopic Cushing's but nearly 16 years later the ectopic source has never been found despite many more tests. It is still there because it still produces ACTH. Update May 2007: The ectopic source was in Kim's appendix. After testing\, it was found to be a carcinoid tumour. Rread more at https://cushingsbios.com/2019/07/08/ kim-h-ectopic-bio-2/ X-ALT-DESC;FMTTYPE=text/html:Kim H is from Grays\, UK. \;She has ec topic Cushing's but nearly 16 years later the ectopic source has never bee n found despite many more tests. It is still there because it still produc es ACTH. \;Update May 2007: The ectopic source was in Kim's appendix. After testing\, it was found to be a carcinoid tumour.
Rread more at \;https://cushingsbios.com/2019/07/08/kim-h-ectopic-bio-2 /
CATEGORIES:Cushie Bios UID:20190708T2212400Z-549422-1189@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Medical ID Jewelry Often Lacks Clear Instructions For Adrenal Insuf ficiency DTSTART;VALUE=DATE:20190526 DTEND;VALUE=DATE:20190527 RRULE:FREQ=MONTHLY;UNTIL=20250428;BYDAY=-1SU DESCRIPTION:Only 4.8% of patients with adrenal insufficiency who use medica l identification jewelry clearly indicate on their emblem the need for urg ent parenteral hydrocortisone in the event of an adrenal crisis\, potentia lly jeopardizing the ability to receive proper assistance in an emergency\ , according to a cross-sectional analysis published in Clinical Endocrinol ogy. “Although the use of medical identification jewelry is recommended fo r patients with adrenal insufficiency to assist in the prevention and trea tment of an adrenal crisis\, the results of this study indicate that this advice is taken up by only a modest proportion of patients\,” R. Louise Ru shworth\, MBBS\, PhD\, FAFPHM\, an adjunct professor and medical epidemiol ogist at the School of Medicine\, Sydney\, and the University of Notre Dam e Australia\, told Endocrine Today. “Patients with secondary adrenal insuf ficiency have a lower uptake than those with primary adrenal insufficiency despite their risk of an adrenal crisis approaching that people with prim ary adrenal insufficiency.” Read more at https://cushieblog.com/2019/04/28 /medical-id-jewelry-often-lacks-clear-instructions-for-adrenal-insufficien cy/ X-ALT-DESC;FMTTYPE=text/html:Only 4.8% of patients with adrenal insuffic iency who use medical identification jewelry clearly indicate on their emb lem the need for urgent parenteral hydrocortisone in the event of an adren al crisis\, potentially jeopardizing the ability to receive proper assista nce in an emergency\, according to a cross-sectional analysis published in \;Clinical Endocrinology.
&ldquo\;Although the use o f medical identification jewelry is recommended for patients with adrenal insufficiency to assist in the prevention and \;treatment of an adrenal crisis\, the results of this study in dicate that this advice is taken up by only a modest proportion of patient s\,&rdquo\; \;R. Louise Rushworth\,< strong> \;MBBS\, PhD\, FAFPHM\, \;an adjunct professor an d medical epidemiologist at the School of Medicine\, Sydney\, and the Univ ersity of Notre Dame Australia\, told \;Endocrine Today. &ldq uo\;Patients with secondary adrenal insufficiency have a lower uptake than those with primary adrenal insufficiency despite their risk of an adrenal crisis approaching that people with primary adrenal insufficiency.&rdquo\ ;
Read more at \;https://cushieblog.com/2019/04/28/medical-id-jewelry-oft en-lacks-clear-instructions-for-adrenal-insufficiency/
CATEGORIES:Cushings UID:20190428T1646090Z-549422-1153@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190127 SUMMARY:Nicole S (NicoleS)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200127;BYMONTHDAY=27 DESCRIPTION:Nicole is from Toronto\, Canada She is 37 years old and was di agnosed with Cushing's disease in May 2017 after suffering through a high risk pregnancy\, early delivery and postpartum pain. She had a left adrena lectomy. Read nore at https://cushingsbios.com/2019/02/10/nicole-s-nicoles -adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Nicole is from Toronto\, Canada \;She is 37 years old and was diagnosed with Cushing's disease in May 2017 after suffering through a high risk pregnancy\, early delivery and postpartum p ain. She had a left adrenalectomy.
Read nore at \;https://cushingsbios.com/2019/02/10/nicole-s-nicoles-adrenal-bio/
CATEGORIES:Cushie Bios UID:20190210T2109340Z-549422-1079@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190202 SUMMARY:Comment added to Niamh (niamhiblog)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200202;BYMONTHDAY=2 DESCRIPTION:...I started having symptoms going back over 2 years now but to make a Long story short I was diagnosed with Cushings Syndrome 8 days ago & am on tablet treatment since. I am having good&bad days since. I identi fy sooooo much with you & the way you described the ‘crash following reduc ing the cortisol.... Read more in the comments area of https://cushingsbio s.com/2016/08/23/niamh-niamhiblog-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:...I started having symptoms going back ove
r 2 years now but to make a
Long story short I was diagnosed with Cus
hings Syndrome 8 days ago &\; am on tablet treatment since.
I am h
aving good&\;bad days since.
I identify sooooo much with you &\
; the way you described the &lsquo\;crash following reducing the cortisol.
...
Read more in the comments area of \;http s://cushingsbios.com/2016/08/23/niamh-niamhiblog-adrenal-bio/
CATEGORIES:Cushie Bios UID:20190210T2123500Z-549422-1081@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190210 SUMMARY:Comment added to Mak M\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200131;BYMONTHDAY=10 DESCRIPTION:...All my labs came back normal also when I had my pituitary mi croadenoma The only way they got a positive result was from an IPSS... Rea d more in the comments area of https://cushingsbios.com/2018/11/26/mak-m-p ituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:...All my labs came back normal also when I had my pituitary microadenoma The only way they got a positive result was from an IPSS...
Read more in the comments area of \; https://cushingsbios.com/2018/11/26/mak-m-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190210T2117490Z-549422-1080@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240316 SUMMARY:Violaceous Abdominal Striae Noted on Physical Examination: A Clue t o the Diagnosis of Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300316;BYMONTHDAY=16 DESCRIPTION:Doctors should suspect Cushing’s syndrome when they see patient s with purple stretch marks and metabolic conditions such as diabetes\, ev en if those symptoms aren’t the reasons for a medical visit\, physicians i n Japan wrote in a case study describing how they reached that diagnosis f or a woman in her early 30s. Read more at https://cushings.invisionzone.co m/topic/57701-violaceous-abdominal-striae-noted-on-physical-examination-a- clue-to-the-diagnosis-of-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Doctors should suspect Cushing&rsquo\;s syn drome when they see patients with purple stretch marks and metabolic condi tions such as diabetes\, even if those symptoms aren&rsquo\;t the reasons for a medical visit\, physicians in Japan wrote in a case study describing how they reached that diagnosis for a woman in her early 30s.
CATEGORIES:Cushings UID:20240316T1432310Z-549422-1754@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231209 SUMMARY:Radiation-induced Undifferentiated Malignant Pituitary Tumor After 5 Years of Treatment for Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301209;BYMONTHDAY=9 DESCRIPTION:The incidence of a second pituitary tumor in patients irradiate d for adrenocorticotropic hormone secreting pituitary adenoma is rare. We report a case of a 40-year-old female with Cushing disease who underwent s urgical management followed by radiotherapy. Read more at https://cushings .invisionzone.com/topic/57672-radiation-induced-undifferentiated-malignant -pituitary-tumor-after-5-years-of-treatment-for-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:The incidence of a second pituitary t umor in patients irradiated for adrenocorticotropic hormone secreting pitu itary adenoma is rare. We report a case of a 40-year-old female with Cushi ng disease who underwent surgical management followed by radiotherapy.
CATEGORIES:News Items UID:20231209T1432000Z-549422-1719@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231018 SUMMARY:How AI Could Help Make Brain Surgery Safer RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301018;BYMONTHDAY=18 DESCRIPTION:The AI system analyzed video of more than 200 pituitary gland t umor operations\, and gained around 10 years-worth of experience in a frac tion of the time. Read more at https://cushings.invisionzone.com/topic/576 50-how-ai-could-help-make-brain-surgery-safer/ X-ALT-DESC;FMTTYPE=text/html:The AI system analyzed video of more than 2 00 pituitary gland tumor operations\, and gained around 10 years-worth of experience in a fraction of the time.
Read more at \;https://cushings.invisionz one.com/topic/57650-how-ai-could-help-make-brain-surgery-safer/
CATEGORIES:Cushings UID:20231018T1207310Z-549422-1692@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210508 SUMMARY:Chronic Insomnia Can Be Sign of Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300508;BYMONTHDAY=8 DESCRIPTION:Chronic insomnia can be a sign of Cushing’s syndrome\, and doct ors need be aware of this possibility\, according to a case report of a wo man diagnosed with Cushing’s shortly after seeking help for her insomnia. This case also emphasized the usefulness of the dexamethasone suppression test in identifying the specific cause of Cushing’s. Read more at https:// cushings.invisionzone.com/topic/55648-chronic-insomnia-can-be-sign-of-cush ing%E2%80%99s/ X-ALT-DESC;FMTTYPE=text/html:Chronic insomnia can be a sign of Cushing&r squo\;s syndrome\, and doctors need be aware of this possibility\, accordi ng to a case report of a woman diagnosed with Cushing&rsquo\;s shortly aft er seeking help for her insomnia.
This case also emphasized the us efulness of the dexamethasone suppression test in identifying the specific cause of Cushing&rsquo\;s.
Read more at \;https://cushings.invisionzone.com/topic/5564 8-chronic-insomnia-can-be-sign-of-cushing%E2%80%99s/
CATEGORIES:News Items UID:20210508T1309260Z-549422-1371@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Acromegaly: Chronic disease root of young man's abnormally gray hai r and facial changes DTSTART;VALUE=DATE:20210612 DTEND;VALUE=DATE:20210613 RRULE:FREQ=MONTHLY;UNTIL=20300508;BYDAY=2SA DESCRIPTION:A chronic\, progressive disease was discovered to be the reason why a man in his 20s experienced a sudden increase of gray hair and facia l changes\, local doctors said… Doctors suspected he suffered from acromeg aly\, a chronic disease characterized by enlargement of head bones\, soft parts of the feet and hands and sometimes other parts of the body due to e xcessive secretion of growth hormones by the pituitary gland. Read more at https://cushings.invisionzone.com/topic/55649-chronic-disease-root-of-you ng-mans-abnormally-gray-hair-and-facial-changes/ X-ALT-DESC;FMTTYPE=text/html:A chronic\, progressive disease was discove red to be the reason why a man in his 20s experienced a sudden increase of gray hair and facial changes\, local doctors said&hellip\;
Doctor s suspected he suffered from acromegaly\, a chronic disease characterized by enlargement of head bones\, soft parts of the feet and hands and someti mes other parts of the body due to excessive secretion of growth hormones by the pituitary gland.
Read more at \;https://cushings.invisi onzone.com/topic/55649-chronic-disease-root-of-young-mans-abnormally-gray- hair-and-facial-changes/
CATEGORIES:News Items UID:20210508T1326130Z-549422-1372@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180518 SUMMARY:Etomidate Found Effective in Severe Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190518;BYMONTHDAY=18 DESCRIPTION:In April 2017\, the patient arrived at the emergency room with sepsis — a potentially life-threatening complication of an infection — tha t originated in the gut. Because ketoconazole had failed to lower cortisol levels\, the patient started receiving infused etomidate\, an inhibitor o f the enzyme 11‐beta‐hydroxylase that prevents cortisol synthesis. This tr eatment was stopped one day before the bilateral removal of the adrenal gl ands as a definitive treatment for the elevated production of cortisol. Re ad more at https://cushieblog.com/2018/05/18/etomidate-found-effective-in- severe-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:In April 2017\, the patient arrived at the emergency room with \;sepsis \;&mdash\; a potentially life-threate ning complication of an infection &mdash\; that originated in the gut.
Because ketoconazole had failed to lower cortisol levels\, the patien t \;started receiving infused etomidate\, an inhibitor of the enzyme 1 1‐beta‐hydroxylase that prevents cortisol synthesis.
This treatmen t was stopped \;one day before the bilateral removal of the adrenal gl ands as a definitive treatment for the elevated production of cortisol.
Read more at \;https:// cushieblog.com/2018/05/18/etomidate-found-effective-in-severe-cushings-syn drome/
CATEGORIES:Cushings UID:20180518T1416390Z-549422-937@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210918 SUMMARY:Cushing's Basics: Testing: 24 Hour Urine Tests (UFC) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220918;BYMONTHDAY=18 DESCRIPTION:Twenty-four Hour Urine: The doctor will give you a gallon colle ction jug\, usually with boric acid in it. The instructions are usually pr inted on the side. Generally\, you urinate first thing in the morning\, as usual. after that\, you collect the rest of the urine for the next 24 hou rs in the jug. The directions usually tell you to refrigerate the jug. Rea d more at https://cushings.invisionzone.com/topic/56107-testing-24-hour-ur ine-tests-ufc/ X-ALT-DESC;FMTTYPE=text/html:Twenty-four Hour Urine:
The doctor will give you a gallon collection jug\, usually with boric acid in it. The instructions are usually printed on the side. Generally\, you urinate fir st thing in the morning\, as usual. after that\, you collect the rest of t he urine for the next 24 hours in the jug. The directions usually tell you to refrigerate the jug.
Read more at \;https://cushings.invisionzone.com/topic/56107-testing-24-hour-uri ne-tests-ufc/
CATEGORIES:Cushings UID:20210918T1551200Z-549422-1426@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250806 SUMMARY:Cushing Syndrome Leaves Lasting Health Effects RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300806;BYMONTHDAY=6 DESCRIPTION:Compared with a matched population-based control group\, patien ts with Cushing syndrome continued to exhibit elevated systolic and diasto lic blood pressures along with reduced kidney function at least 14 years a fter biochemical remission. https://cushings.invisionzone.com/topic/57860- cushing-syndrome-leaves-lasting-health-effects/ X-ALT-DESC;FMTTYPE=text/html:Compared with a matched population-ba sed control group\, patients with \;Cushing syndrome \;continued to exhibit elevated systolic and diastolic blood pressures along with reduced kidney function at least 14 years after bioch emical remission.
https://cushings.invisionzone.com/topic/57860-cu shing-syndrome-leaves-lasting-health-effects/
CATEGORIES:Cushings UID:20250806T2206300Z-549422-1918@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240208 SUMMARY:A Case of an Ectopic ACTH-Producing Tumor With Adrenal Shrinkage Du ring Osilodrostat Administration RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300208;BYMONTHDAY=8 DESCRIPTION:The case involves a 68-year-old man diagnosed with small cell l ung cancer and ectopic ACTH-producing Cushing syndrome. Initially\, metyra pone was administered to manage hypercortisolism\, but its effect proved i nsufficient. Subsequently\, osilodrostat was initiated while gradually dec reasing metyrapone\, leading to full suppression of blood cortisol levels. With continued osilodrostat treatment\, the adrenal glands reduced in siz e\, suggesting the potential to reduce the osilodrostat dosage. Read more at https://cushings.invisionzone.com/topic/57691-a-case-of-an-ectopic-acth -producing-tumor-with-adrenal-shrinkage-during-osilodrostat-administration / X-ALT-DESC;FMTTYPE=text/html:The case involves a 68-year-old man d iagnosed with small cell lung cancer and ectopic ACTH-producing Cushing sy ndrome. Initially\, metyrapone was administered to manage hypercortisolism \, but its effect proved insufficient. Subsequently\, osilodrostat was ini tiated while gradually decreasing metyrapone\, leading to full suppression of blood cortisol levels. With continued osilodrostat treatment\, the adr enal glands reduced in size\, suggesting the potential to reduce the osilo drostat dosage.
CATEGORIES:Cushings UID:20240208T1423370Z-549422-1742@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210323 SUMMARY:Severe COVID-19 risks greatly increased for children with adrenal i nsufficiency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220323;BYMONTHDAY=23 DESCRIPTION:Adrenal insufficiency increases the risk for severe outcomes\, including death\, 23-fold for children who contract COVID-19\, according t o a data analysis presented at the ENDO annual meeting. Read more at https ://cushings.invisionzone.com/topic/55579-severe-covid-19-risks-greatly-inc reased-for-children-with-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Adrenal insufficiency increases the risk fo r severe outcomes\, including death\, 23-fold for children who contract CO VID-19\, according to a data analysis presented at the ENDO annual meeting .
Read more at \;https://cushings.invisionzone.com/topic/ 55579-severe-covid-19-risks-greatly-increased-for-children-with-adrenal-in sufficiency/
CATEGORIES:Other Medical UID:20210323T1258160Z-549422-1341@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New Testimonial From Mary L DTSTART;VALUE=DATE:20180514 DTEND;VALUE=DATE:20180515 RRULE:FREQ=MONTHLY;UNTIL=20190409;BYDAY=2MO DESCRIPTION:I’m thankful\, too\, Susan. I’m especially thankful for Mary Ke lly O'Connor\, who made our meeting each other and other patients possible through her site\, www.cushings-help.com. Without all of you and the real advice and advocacy I got there\, I don’t think I’d be here. I love my Cu shing’s friends! We’ve been down a road nobody else can possibly understan d. From https://cushieblogger.com/testimonial/mary-l/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m thankful\, too\, Susan. I&rsquo\ ;m especially thankful for Mary Kelly O'Connor\, who made our meeting each other and other patients possible through her site\, www.cushings-help.co m. Without all of you and the real advice and advocacy I got there\, I don &rsquo\;t think I&rsquo\;d be here. I love my Cushing&rsquo\;s friends! We &rsquo\;ve been down a road nobody else can possibly understand.
& nbsp\;
From \;https://cushieblogger.com/testimonial/mary-l/< /p> CATEGORIES:Cushings UID:20180409T2006440Z-549422-896@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251126 SUMMARY:Cushing's Syndrome Study\, 45-minutes\, 90 Dollars RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20261126;BYMONTHDAY=26 DESCRIPTION:We have an opportunity for you to take part in a Cushing's Synd rome Study for patients. Our project number for this study is KOV_12349. W eb-assisted telephone interview (you must be by a computer with high-speed internet access while on the phone during the time of the interview) - WE BCAM Interview is 45-minutes long. up to 90 Dollar Reward https://cushings .invisionzone.com/topic/57923-cushings-syndrome-study-45-minutes-90-dollar s/ X-ALT-DESC;FMTTYPE=text/html:
We have an opportunity for you to take part in a \;Cushing's Syndrome Study \;for patients. Our project numbe r for this study is \;KOV_12349.
Web-assisted telephone interv iew (you must be by a computer with high-speed internet access while on th e phone during the time of the interview) - WEBCAM
Interview is 45 -minutes long.
up to 90 Dollar Reward
https://cushings.invisionzone.com/ topic/57923-cushings-syndrome-study-45-minutes-90-dollars/
CATEGORIES:Cushings UID:20251126T2057350Z-549422-2006@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Melissa F\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301126;BYMONTH=11;BYMONTHDAY=26 DTSTART;VALUE=DATE:20251126 DTEND;VALUE=DATE:20251127 DESCRIPTION:A journey through Hell… with a happy ending by Melissa Fine The most insidious aspect of Cushing’s Disease is\, while it is attacking you physically\, it is destroying your self-esteem\, your peace of mind\, you r very spirit. That more doctors\, psychologists\, psychiatrists\, drug\, alcohol and weight-loss counselors (and the list goes on) don’t know how t o recognize something that\, in retrospect\, seems so blatantly obvious is appalling—and not only tragic\, it is\, in my opinion\, criminal. I often wonder how many Cushing’s victims we lose to suicide because they were no t able to get a diagnosis before they lost the will to live… simply becaus e no one thought to look for the definitive answer in their blood\, urine or saliva. I am certain that Cushing’s isn’t nearly as rare as the doctors believe it is. What is rare is their ability to recognize it. https://cus hingsbios.com/2025/11/26/melissa-f-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:A journey through Hell&hellip\; with a happ
y ending
by Melissa Fine
The most insidious aspect of Cushing &rsquo\;s Disease is\, while it is attacking you physically\, it is destro ying your self-esteem\, your peace of mind\, your very spirit. That more d octors\, psychologists\, psychiatrists\, drug\, alcohol and weight-loss co unselors (and the list goes on) don&rsquo\;t know how to recognize somethi ng that\, in retrospect\, seems so blatantly obvious is appalling&mdash\;a nd not only tragic\, it is\, in my opinion\, criminal. I often wonder how many Cushing&rsquo\;s victims we lose to suicide because they were not abl e to get a diagnosis before they lost the will to live&hellip\; simply bec ause no one thought to look for the definitive answer in their blood\, uri ne or saliva. I am certain that Cushing&rsquo\;s isn&rsquo\;t nearly as ra re as the doctors believe it is. What is rare is their ability to recogniz e it.
https://cushingsbios.com/2025/11 /26/melissa-f-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251127T1143210Z-549422-2007@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Molly (Iloveparrots)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300105;BYMONTH=1;BYMONTHDAY=5 DTSTART;VALUE=DATE:20260105 DTEND;VALUE=DATE:20260106 DESCRIPTION:I’m seeing an Endocrinologist that I’m not that thrilled with a nd found one in a nearby city that specializes in Cushings\, so I think I will go to her for a second opinion and possibly stay with her. I’m very s cared and have little to no support network. https://cushingsbios.com/2026 /01/05/molly-iloveparrots-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m seeing an Endocrinologist that I &rsquo\;m not that thrilled with and found one in a nearby city that speci alizes in Cushings\, so I think I will go to her for a second opinion and possibly stay with her.
I&rsquo\;m very scared and have little to no support network.
https:/ /cushingsbios.com/2026/01/05/molly-iloveparrots-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260106T1412250Z-549422-2049@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Sarah R\, Adrenal Insufficiency bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301127;BYMONTH=11;BYMONTHDAY=27 DTSTART;VALUE=DATE:20251127 DTEND;VALUE=DATE:20251128 DESCRIPTION:“I have adrenal insufficiency\, which can cause depression and anxiety as a sign and symptom of low cortisol. After attempting hospitaliz ation for depression\, we found that I’d been living on almost undetectabl e cortisol for at least a year\,” Sarah Reilley said. “Now that I’m on hyd rocortisone replacement\, my depression and anxiety are nearly gone and se rve to warn me when my cortisol is dangerously low! I’m really lucky to be alive.” https://cushingsbios.com/2025/11/26/sarah-r-adrenal-insufficiency -bio/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;I have adrenal insufficiency\ , which can cause depression and anxiety as a sign and symptom of low cort isol. After attempting hospitalization for depression\, we found that I&rs quo\;d been living on almost undetectable cortisol for at least a year\,&r dquo\; Sarah Reilley said. &ldquo\;Now that I&rsquo\;m on hydrocortisone r eplacement\, my depression and anxiety are nearly gone and serve to warn m e when my cortisol is dangerously low! I&rsquo\;m really lucky to be alive .&rdquo\;
https ://cushingsbios.com/2025/11/26/sarah-r-adrenal-insufficiency-bio/
CATEGORIES:Cushie Bios UID:20251127T1146250Z-549422-2008@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250823 SUMMARY:Using the PET/CT Radiotracer [68Ga]Ga-DOTA-mDesmo to Target V1B Rec eptors and Localize Corticotropinoma in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300823;BYMONTHDAY=23 DESCRIPTION:Cushing’s disease\, the most common cause of Cushing’s syndrome \, is driven by pituitary tumors (corticotropinoma) and characterized by t he overexpression of CRH R1 and V1b receptors. Accurate detection of these tumors remains challenging. This study aims to develop and evaluate a cor ticotropinoma specific radiopharmaceutical\, [68Ga]Ga-DOTA-mDesmo\, that t argets the V1b receptor for both anatomical and functional identification of corticotropinomas. https://cushings.invisionzone.com/topic/57867-using- the-petct-radiotracer-68gaga-dota-mdesmo-to-target-v1b-receptors-and-local ize-corticotropinoma-in-cushing’s-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease\, the most c ommon cause of Cushing&rsquo\;s syndrome\, is driven by pituitary tumors ( corticotropinoma) and characterized by the overexpression of CRH R1 and V1 b receptors. Accurate detection of these tumors remains challenging. This study aims to develop and evaluate a corticotropinoma specific radiopharma ceutical\, [68Ga]Ga-DOTA-mDesmo\, that targets t he V1b receptor for both anatomical and functional identification of corti cotropinomas.
CATEGORIES:Cushings UID:20250825T0605450Z-549422-1925@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180429 SUMMARY:Comment added to Stuart M\, Parent of a Teenager RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190429;BYMONTHDAY=29 DESCRIPTION:I also have a teenage boy diagnosed with Cushings. He has been treated with medication for a year and a half and now we are back to the b eginning... Read more at https://cushingsbios.com/2018/04/04/stuart-m-pare nt-of-a-teenager/ X-ALT-DESC;FMTTYPE=text/html:I also have a teenage boy diagnosed with Cu shings. He has been treated with medication for a year and a half and now we are back to the beginning...
Read more at \;https://cushingsbios.com/2018/04/04/stuart-m-parent-of-a-teenager/
CATEGORIES:Cushie Bios UID:20180430T0035230Z-549422-918@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250303 SUMMARY:Adrenal insufficiency Basics RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300303;BYMONTHDAY=3 DESCRIPTION:Adrenal insufficiency is a condition where the adrenal glands d on't produce enough of certain hormones\, primarily cortisol and sometimes aldosterone. This disorder can be categorized into primary (Addison's dis ease) and secondary forms. https://cushings.invisionzone.com/topic/57788-a drenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:Adrenal insufficiency is a condition where the adrenal glands don't produce enough of certain hormones\, primarily co rtisol and sometimes aldosterone. This disorder can be categorized into pr imary (Addison's disease) and secondary forms.
https://cushings.invisionzone.com/topic/57788-adrenal-ins ufficiency/
CATEGORIES:Cushings UID:20250303T1040170Z-549422-1853@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210602 SUMMARY:Can You Help? Many Symptoms RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220602;BYMONTHDAY=2 DESCRIPTION:I think I have Cushing’s I have about 10 symptoms...my cortisol levels came out high with a 24 hour urine hormone panel but my endocrinol ogist did not even mention it. At the time when I had the test done\, (Mar ch 2020)I had no idea what cortisol was. I just figured and trusted my end ocrinologist would prescribe me with whatever hormones and or treatment I needed and would have me take whatever tests he order. Anyhow\, in a range from 1-10 for bedtime cortisol\, my result was 27! Cortisol metabolites\, range from 1160-2183\, my result was 5370!!! Please help Letisia at http s://cushings.invisionzone.com/topic/55609-advice/#comment-476005 X-ALT-DESC;FMTTYPE=text/html:I think I have Cushing&rsquo\;s I have abou t 10 symptoms...my cortisol levels came out high with a 24 hour urine horm one panel but my endocrinologist did not even mention it. At the time when I had the test done\, \;(March 2020)I had no idea what cortisol was. I just figured and trusted my endocrinologist would prescribe me with what ever hormones and or treatment \;I needed and would have me take whate ver tests he order. Anyhow\, in a range from 1-10 for bedtime cortisol\, m y result was 27! Cortisol metabolites\, range from 1160-2183\, my result w as 5370!!! \;
Please help \;Letisia at \;https://cushings.invisionzone.com/topic/55609-advice/#comment-4760 05
CATEGORIES:Cushings UID:20210602T1414500Z-549422-1390@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210509 SUMMARY:Vision Loss May Herald Brain Tumor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300509;BYMONTHDAY=9 DESCRIPTION:Tumors arising in the pituitary gland show symptoms either due to excessive hormone secretion or due to excessive growth and compression and spread to the surrounding tissues. Adenomas that do not secrete hormon es usually grow slowly and can remain asymptomatic for years. Those who se crete hormones show early symptoms due to the effects of hormones in the b ody… Cushing's - In ACTH excess\; fat in abnormal areas of the body\, musc le weakness\, high blood pressure and blood sugar\, skin oily and acne dev elopment\, stretch marks\, psychological problems. Read more at https://cu shings.invisionzone.com/topic/55650-vision-loss-may-herald-brain-tumor/ X-ALT-DESC;FMTTYPE=text/html:Tumors arising in the pituitary gland show symptoms either due to excessive hormone secretion or due to excessive gro wth and compression and spread to the surrounding tissues. Adenomas that d o not secrete hormones usually grow slowly and can remain asymptomatic for years. Those who secrete hormones show early symptoms due to the effects of hormones in the body&hellip\;
Cushing's - In ACTH excess\; fat in abnormal areas of the body\, muscle weakness\, high blood pressure and blood sugar\, skin oily and acne development\, stretch marks\, psychologic al problems.
Read more at \; https://cushings.invisionzone.com/topic/55650-vision-loss-may-herald-brain -tumor/
CATEGORIES:News Items UID:20210508T1359020Z-549422-1373@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240501 SUMMARY:Investigational Cushing’s Syndrome Medication Reduces BP\, Glucose in Open-Label Trial RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300501;BYMONTHDAY=1 DESCRIPTION:Relacorilant was deemed well tolerated in the trial. The most c ommon adverse events were nausea\, edema\, back and extremity pain and fat igue\, all of which were mild or moderate in nature and are consistent wit h symptoms people experience after surgery or the start of therapy to trea t hypercortisolism. Read more at https://cushings.invisionzone.com/topic/5 7728-investigational-cushing%E2%80%99s-syndrome-medication-reduces-bp-gluc ose-in-open-label-trial/ X-ALT-DESC;FMTTYPE=text/html:Relacorilant was deemed well tolerate d in the trial. The most common adverse events were nausea\, edema\, back and extremity pain and fatigue\, all of which were mild or moderate in nat ure and are consistent with symptoms people experience after surgery or th e start of therapy to treat hypercortisolism.
Read mo re at \;https://cushings.invisionzone .com/topic/57728-investigational-cushing%E2%80%99s-syndrome-medication-red uces-bp-glucose-in-open-label-trial/
CATEGORIES:Cushings UID:20240501T0714530Z-549422-1784@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240601 SUMMARY:Cardiac Magnetic Resonance Reveals Biventricular Impairment In Cush ing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300601;BYMONTHDAY=1 DESCRIPTION:Cushing’s syndrome (CS) is associated with severe cardiovascula r (CV) morbidity and mortality. Cardiac magnetic resonance (CMR) is the no n-invasive gold standard for assessing cardiac structure and function\; ho wever\, few CMR studies explore cardiac remodeling in patients exposed to chronic glucocorticoid (GC) excess. We aimed to describe the CMR features directly attributable to previous GC exposure in patients with cured or tr eated endogenous CS. Read more at https://cushings.invisionzone.com/topic/ 57734-cardiac-magnetic-resonance-reveals-biventricular-impairment-in-cushi ng%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome (CS) is ass ociated with severe cardiovascular (CV) morbidity and mortality. Cardiac m agnetic resonance (CMR) is the non-invasive gold standard for assessing ca rdiac structure and function\; however\, few CMR studies explore cardiac r emodeling in patients exposed to chronic glucocorticoid (GC) excess. We ai med to describe the CMR features directly attributable to previous GC expo sure in patients with cured or treated endogenous CS.
CATEGORIES:Cushings UID:20240601T1437340Z-549422-1791@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:USC's 7 Tesla MRI scanner first to identify Cushing's disease in US patient DTSTART;VALUE=DATE:20180428 DTEND;VALUE=DATE:20180429 RRULE:FREQ=MONTHLY;UNTIL=20190324;BYDAY=4SA DESCRIPTION:When a brain tumor was found to be 'MRI-negative' in a 28-year- old female patient\, physicians at the USC's Pituitary Center were unsatis fied with the results. After deciding to use the Neuroimaging and Informat ics Institute's (INI) new ultrahigh field 7 Tesla MRI scanner to localize the tumor\, the patient was officially diagnosed with Cushing's disease an d researchers were finally able be see the tumor that would've otherwise a ppeared hidden in a standard MRI. Read more at https://cushieblog.com/20 18/03/24/uscs-7-tesla-mri-scanner-first-to-identify-cushings-disease-in-us -patient/ X-ALT-DESC;FMTTYPE=text/html:When a brain \;tumor was found to be 'M RI-negative' in \;a \;28-year-old \;female \;patient\,&nbs p\;physicians \;at \;the USC's \;Pituitary Center \;were u nsatisfied with the results. \;After \;deciding \;to \;use \;the Neuroimaging and Informatics Institute's (INI) \;new \; ultrahigh field 7 Tesla \;MRI \;scanner to localize the \;tumo r\, the patient was officially \;diagnosed \;with \;Cushing's disease \;and \;researchers \;were finally \;able be see t he tumor that would've otherwise appeared hidden in \;a standard MRI. \;
Read more at \;https://cushieblog.com/2018/03/24/uscs-7-tesla-mri-s canner-first-to-identify-cushings-disease-in-us-patient/
CATEGORIES:Cushings UID:20180324T1434210Z-549422-855@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180324 SUMMARY:New Testimonial From Erin G RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190324;BYMONTHDAY=24 DESCRIPTION:This site saved my life when I suffered through Cushing's. Than ks to Mary O and her dedication. Cushing's Help and Support helped out so many people suffering through Cushing's. I miss Sue and Cookie so much. Fr om https://cushieblogger.com/testimonial/erin-g/ X-ALT-DESC;FMTTYPE=text/html:This site saved my life when I suffered thr ough Cushing's. Thanks to Mary O and her dedication. Cushing's Help and Su pport helped out so many people suffering through Cushing's. I miss Sue an d Cookie so much.
From \;https://cushieblogger.com/testimonial/e rin-g/
CATEGORIES:Cushings UID:20180324T1545310Z-549422-856@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 12\, Cushing’s Awareness Challenge 2021 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250412;BYMONTH=4;BYMONTHDAY=12 DTSTART;VALUE=DATE:20200412 DTEND;VALUE=DATE:20200413 DESCRIPTION:As luck would have it\, NIH (National Institutes of Health\, Be thesda\, Maryland) was doing a clinical trial of Cushing’s. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH\, Ma yo Clinic and a place in Quebec to do this then-rare pituitary surgery cal led a Transsphenoidal Resection. My husband asked my endo if it were his w ife\, if he would recommend this surgery. The endo responded that he was divorcing his wife – he didn’t care what happened to her. Oh\, my! Read m ore at https://cushieblogger.com/2021/04/12/day-12-cushings-awareness-chal lenge-2021/ X-ALT-DESC;FMTTYPE=text/html:As luck would have it\, NIH (National Insti tutes of Health\, Bethesda\, Maryland) was doing a clinical trial of Cushi ng&rsquo\;s. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I on ly had a choice of NIH\, Mayo Clinic and a place in Quebec to do this then -rare pituitary surgery called a Transsphenoidal Resection.
My hus band asked my endo if it were his wife\, if he would recommend this surger y. \;The endo responded that he was divorcing his wife &ndash\; he di dn&rsquo\;t care what happened to her. \;Oh\, my!
Read more&n bsp\;at \;https://cushieblogger.com/202 1/04/12/day-12-cushings-awareness-challenge-2021/
CATEGORIES:Awareness Challenge UID:20210413T0038260Z-549422-1250@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250825 SUMMARY:Graphic Era Hospital’s Milestone Treatment of Two Complex Cases RRULE:FREQ=DAILY;COUNT=1827 DESCRIPTION:Graphic Era Hospital has achieved a remarkable mileston by succ essfully treating two complex cases of the rare hormonal disorder Cushing’ s Disease in Dehradun. The hospital’s experts used advanced technology and surgical skills to give the patients a new lease on life\, marking this s ignificant achievement. https://cushings.invisionzone.com/topic/57868-grap hic-era-hospital%E2%80%99s-milestone-treatment-of-two-complex-cases/ X-ALT-DESC;FMTTYPE=text/html:Graphic Era Hospital \;has achiev ed a remarkable mileston by successfully \;treating two complex cases \;of the rare hormonal disorder Cushing&rsquo\;s Disease in Dehradun. The hospital&rsquo\;s experts used advanced technology and su rgical skills to give the patients a new lease on life\, marking this sign ificant achievement.
CATEGORIES:Cushings UID:20250825T1424340Z-549422-1926@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250518 SUMMARY:New Advances For Treating Complex Pituitary Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300518;BYMONTHDAY=18 DESCRIPTION:Pituitary tumors can vary widely in severity\, with some requir ing surgical intervention. While certain pituitary tumors are more straigh tforward to remove\, those that extend beyond the medial wall of the caver nous sinus (MWCS) are considered complex. A delicate region near the pitui tary gland\, the MWCS contains critical structures like cranial nerves and the carotid artery\, which present additional surgical challenges. https: //cushings.invisionzone.com/topic/57830-new-advances-for-treating-complex- pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:Pituitary tumors \;can vary wide ly in severity\, with some requiring surgical intervention. While certain pituitary tumors are more straightforward to remove\, those that extend be yond the medial wall of the cavernous sinus (MWCS) are considered complex. A delicate region near the pituitary gland\, the MWCS contains critical s tructures like cranial nerves and the carotid artery\, which present addit ional surgical challenges.
https://cushings.invisionzone.com/t opic/57830-new-advances-for-treating-complex-pituitary-tumors/< /p> CATEGORIES:Cushings UID:20250518T1941560Z-549422-1892@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250507 SUMMARY:Osilodrostat Treatment for Adrenal and Ectopic Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300507;BYMONTHDAY=7 DESCRIPTION:Although most cases of endogenous Cushing syndrome are caused b y a pituitary adenoma (Cushing disease)\, approximately one-third of patie nts present with ectopic or adrenal causes. Surgery is the first-line tre atment for most patients with Cushing syndrome\; however\, medical therapy is an important management option for those who are not eligible for\, re fuse\, or do not respond to surgery. https://cushings.invisionzone.com/top ic/57823-osilodrostat-treatment-for-adrenal-and-ectopic-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:
Although most cases of endogenous Cushing s yndrome are caused by a pituitary adenoma (Cushing disease)\, approximatel y one-third of patients present with ectopic or adrenal causes. \;
Surgery is the first-line treatment for most patients with Cushing sy ndrome\; however\, medical therapy is an important management option for t hose who are not eligible for\, refuse\, or do not respond to surgery.
CATEGORIES:Cushings UID:20250507T1556460Z-549422-1885@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180506 SUMMARY:Webinar: Preserving Function in Pituitary Surgery DESCRIPTION:Understand the importance of gland function preservation during pituitary surgery. Read more at https://cushieblogger.com/2018/05/02/webi nar-preserving-function-in-pituitary-surgery/ X-ALT-DESC;FMTTYPE=text/html:Understand the importance of gland function preservation during pituitary surgery.
Read more at \;https://cushieblogger.com/2018/05/02/webin ar-preserving-function-in-pituitary-surgery/
CATEGORIES:Events and Meetings UID:20180502T1339590Z-549422-923@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190409 SUMMARY:Archived Interview: JenS discussed Bilateral Adrenalectomy (BLA) DESCRIPTION:Jen had Pituitary surgery by Dr. Shahinian 4/28/04\, removed AC TH secreting corticotroph hyperplasia and prolactinoma. Read more at https ://cushieblogger.com/2019/04/09/archived-interview-jens-discussed-bilatera l-adrenalectomy-bla/ X-ALT-DESC;FMTTYPE=text/html:Jen had Pituitary surgery by Dr. Shahinian 4/28/04\, removed ACTH secreting corticotroph hyperplasia and prolactinoma .
Read more at \;https://cushieblogger.com/2019/04/09/archived-interview-jens-discus sed-bilateral-adrenalectomy-bla/
CATEGORIES:Events and Meetings UID:20190409T2311430Z-549422-1124@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 9: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250409;BYMONTH=4;BYMONTHDAY=9 DTSTART;VALUE=DATE:20190409 DTEND;VALUE=DATE:20190410 DESCRIPTION:So\, these are only seven of the many\, many symptoms of Cushin g's. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing's affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected. Read more at https://cushieblogger.com/2019/04/09/day-9-cushings-awareness-challeng e-2019/ X-ALT-DESC;FMTTYPE=text/html:So\, these are only seven of the many\, man
y symptoms of Cushing's. I had those above &ndash\; and I often felt like
I looked like one of those little bearded dwarves.
Cushing's affects
every part of the body. It&rsquo\;s not like when I had kidney cancer and
only the kidney was affected.
Read more at \;https://cushieblogger.com/2019/04/09/day-9-cushings-awareness -challenge-2019/
CATEGORIES:Cushings UID:20190409T2306130Z-549422-1123@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180805 SUMMARY:Night Cortisol Levels for Diagnosing Cushing’s Syndrome Less Accura te in Clinical Practice RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190805;BYMONTHDAY=5 DESCRIPTION:In healthy individuals\, the levels of cortisol — a steroid hor mone secreted by the adrenal glands — go through changes over a 24-hour pe riod\, with the lowest levels normally detected at night. But this circadi an rhythm is disrupted in certain diseases such as Cushing’s syndrome\, wh ere night cortisol levels can be used as a diagnostic tool. Among the test s that can be used to detect these levels are late-night serum cortisol (L NSeC) and late-night salivary cortisol (LNSaC) tests. Since it uses saliva samples\, LNSaC is more practical and does not require hospitalization\, so it is often recommended for the diagnosis of Cushing’s syndrome. Read m ore at https://cushieblog.com/2018/08/05/night-cortisol-levels-for-diagnos ing-cushings-syndrome-less-accurate-in-clinical-practice/ X-ALT-DESC;FMTTYPE=text/html:In healthy individuals\, the levels of cort isol &mdash\; a steroid hormone secreted by the adrenal glands &mdash\; go through changes over a 24-hour period\, with the lowest levels normally d etected at night.
But this circadian rhythm is disrupted in certai n diseases such as Cushing&rsquo\;s syndrome\, where night cortisol levels can be used as a diagnostic tool.
Among the tests that can be use d to detect these levels are late-night serum cortisol (LNSeC) and late-ni ght salivary cortisol (LNSaC) tests. Since it uses saliva samples\, LNSaC is more practical and does not require hospitalization\, so it is often re commended for the diagnosis of Cushing&rsquo\;s syndrome.
Read mor e at \;https://cushieblog.com/2018/08/05/night-cortisol-levels-for- diagnosing-cushings-syndrome-less-accurate-in-clinical-practice/
CATEGORIES:Cushings UID:20180806T0050500Z-549422-964@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180407 SUMMARY:Comment on Forums RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190407;BYMONTHDAY=7 DESCRIPTION:my dr did not tell me I had cushings but I have hashimotos\, an d I just started Korlym\, does anyone know about weight loss\, I am now ta king 3 thyroid meds.. In the comments area of https://cushieblog.com/messa ge-boards/ X-ALT-DESC;FMTTYPE=text/html:my dr did not tell me I had cushings but I have hashimotos\, and I just started Korlym\, does anyone know about weigh t loss\, I am now taking 3 thyroid meds..
In the comments area of& nbsp\;htt ps://cushieblog.com/message-boards/
CATEGORIES:Cushings UID:20180407T1701490Z-549422-890@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251105 SUMMARY:Metyrapone Benefits Blood Pressure in Mild Hypercortisolism RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301105;BYMONTHDAY=5 DESCRIPTION:A notable proportion of patients with mild hypercortisolism ach ieved blood pressure (BP) control with low-dose evening metyrapone\, witho ut requiring the intensification of antihypertensive therapy. The treatmen t was particularly beneficial for those with higher baseline systolic BP a nd was well tolerated\, with no adverse events reported. https://cushings. invisionzone.com/topic/57908-metyrapone-benefits-blood-pressure-in-mild-hy percortisolism/ X-ALT-DESC;FMTTYPE=text/html:A notable proportion of patients with mild \;hypercortisolism \;achieved bloo d pressure (BP) control with low-dose evening \;metyrapone\, without requiring the intensification of antihypertensive therapy. The treatment was particularly beneficial fo r those with higher baseline systolic BP and was well tolerated\, with no adverse events reported.
CATEGORIES:Cushings UID:20251105T1142430Z-549422-1965@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Deidre (deidre)\, Undiagnosed bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301105;BYMONTH=11;BYMONTHDAY=5 DTSTART;VALUE=DATE:20251105 DTEND;VALUE=DATE:20251106 DESCRIPTION:I am a mother of a 20-year-old daughter with suspected Cushing’ s. She was diagnosed with Hashimoto’s disease (with goiter) almost 4 year s ago. Synthroid no help. Armour keeps TSH levels in range\, but symptom s of fatigue\, increased weight\, etc\, etc continue. https://cushingsbios .com/2025/11/05/deidre-deidre-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I am a mother of a 20-year-old daught er with suspected Cushing&rsquo\;s. \;She was diagnosed with Hashimot o&rsquo\;s disease (with goiter) almost 4 years ago. \;Synthroid no h elp. \;Armour keeps TSH levels in range\, but symptoms of fatigue\, i ncreased weight\, etc\, etc continue.
https://cushingsbios.com/2025/11/05/deidre-deidre-undia gnosed-bio/
CATEGORIES:Cushie Bios UID:20251105T1157400Z-549422-1967@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251105 SUMMARY:Tips from Message Board Members RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301105;BYMONTHDAY=5 DESCRIPTION:Things I’ve learned and wanted to share From Cushing’s Message Board members. This is a continuing list\, if you want to share. I have le arned so much on this Cushing’s journey\, much of it from all of you and t his site. I wanted to share those learnings\, in the event that it helps a nyone else.... https://cushings-help.com/2025/11/04/tips-from-message-boar d-members/ X-ALT-DESC;FMTTYPE=text/html:Things I&rsquo\;ve learned and wanted to sh are
From \;Cushing&rsquo\;s Message Board members. This is a con tinuing list\, if you want to share.
I have learned so much on thi s Cushing&rsquo\;s journey\, much of it from all of you and this site. I w anted to share those learnings\, in the event that it helps anyone else... .
https://cushings-h elp.com/2025/11/04/tips-from-message-board-members/
CATEGORIES:Cushings UID:20251105T1149170Z-549422-1966@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230616 SUMMARY:Cushing’s Syndrome is Associated with Early Medical- and Surgical-r elated Complications Following Total Joint Arthroplasty RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260616;BYMONTHDAY=16 DESCRIPTION:Cushing’s syndrome is associated with early medical- and surgic al-related complications following total joint arthroplasty and a reduced incidence of manipulation under anesthesia following total knee arthroplas ty. Read more at https://cushings.invisionzone.com/topic/57607-cushing%E2% 80%99s-syndrome-is-associated-with-early-medical-and-surgical-related-comp lications-following-total-joint-arthroplasty/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is associated wit h early medical- and surgical-related complications following total joint arthroplasty and a reduced incidence of manipulation under anesthesia foll owing total knee arthroplasty.
CATEGORIES:Cushings UID:20230616T1328170Z-549422-1648@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200715 SUMMARY:How an Emergency Injection works! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250715;BYMONTHDAY=15 DESCRIPTION:What should you do if an Addison crisis threatens? How do you p repare an emergency injection and how do you administer it? See the video clip at http://cushings.invisionzone.com/topic/55250-important-how-an-eme rgency-injection-works/ X-ALT-DESC;FMTTYPE=text/html:What should you do if an Addison crisis thr eatens? How do you prepare an emergency injection and how do you administe r it? \;
See the video clip at \;http://cushings.invisionzone.com/topic/55250-important-how -an-emergency-injection-works/
CATEGORIES:Cushings UID:20200715T1318040Z-549422-1273@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180410 SUMMARY:Comment added to Have You Had Treatment for Cushing's? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190410;BYMONTHDAY=10 DESCRIPTION:I had pituitary surgery for cushings disease in 2005\, had a re occurance and had gamma knife radiation in 2007\, it took 6 years for them to diagnose me from this disease... Read more in the comments area of htt ps://cushieblogger.com/2018/04/08/have-you-had-treatment-for-cushings/ X-ALT-DESC;FMTTYPE=text/html:I had pituitary surgery for cushings diseas e in 2005\, had a reoccurance and had gamma knife radiation in 2007\, it t ook 6 years for them to diagnose me from this disease...
Read more in the comments area of \;https://cushieblo gger.com/2018/04/08/have-you-had-treatment-for-cushings/
CATEGORIES:Cushie Bios UID:20180410T0905270Z-549422-898@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200716 SUMMARY:Estrogen receptor α plays an important role in Cushing’s syndrome d uring pregnancy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210716;BYMONTHDAY=16 DESCRIPTION:Cushing’s syndrome (CS) during pregnancy is very rare with a fe w cases reported in the literature. Of great interest\, some cases of CS d uring pregnancy spontaneously resolve after delivery. Read more at https:/ /cushieblog.com/2020/07/16/estrogen-receptor-%ce%b1-plays-an-important-rol e-in-cushings-syndrome-during-pregnancy/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome (CS) during pregnancy is very rare with a few cases reported in the literature.
Of great interest\, some cases of CS during pregnancy spontaneous ly resolve after delivery.
Read more at \;https://cushieblog.c om/2020/07/16/estrogen-receptor-%ce%b1-plays-an-important-role-in-cushings -syndrome-during-pregnancy/
CATEGORIES:Cushings UID:20200716T1455150Z-549422-1275@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 3: Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300403;BYMONTH=4;BYMONTHDAY=3 DTSTART;VALUE=DATE:20200403 DTEND;VALUE=DATE:20200404 DESCRIPTION:Sleep. Naps. Fatigue\, Exhaustion. I still have them all. I wrote on my bio in 1987 after my pituitary surgery “I am still and always tired and need a nap most days. I do not\, however\, still need to take w hole days off just to sleep.” Read more at https://cushings.invisionzone. com/topic/56745-day-3-cushing%E2%80%99s-awareness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:Sleep. \;Naps. \;Fatigue\, Exhaus tion. \;I still have them all. \;I wrote on \;my bio \;in 1987 after my pituitary surgery &ldquo\;I am still a nd always tired and need a nap most days. I do not\, however\, still need to take whole days off just to sleep.&rdquo\;
Read more at&nb sp\; https://cushings.invi sionzone.com/topic/56745-day-3-cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220403T2039150Z-549422-1241@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190502 SUMMARY:In Memory: Patti\, May 2\, 2002 DESCRIPTION:May 2\, 2002 From the Message Boards: ” I loved her\, she was a great friend. She died of adrenal cortical carcinoma.” Read more at https ://cushingsbios.com/2019/05/02/in-memory-patti-may-2-2002/ X-ALT-DESC;FMTTYPE=text/html:May 2\, 2002
From the Message Board s: &rdquo\; I loved her\, she was a great friend. She died of adrenal cort ical carcinoma.&rdquo\;
Read more at \;https:/ /cushingsbios.com/2019/05/02/in-memory-patti-may-2-2002/
CATEGORIES:In Memory UID:20190503T1228280Z-549422-1156@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250402 SUMMARY:Myocardial Work Impairment in Patients With Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280402;BYMONTHDAY=2 DESCRIPTION:Endogenous Cushing’s Syndrome (CS) is associated with an increa sed cardiovascular (CV) and metabolic risk profile\, yet the specific impa ct of hypercortisolism on myocardial function remains inadequately underst ood. https://cushings.invisionzone.com/topic/57805-myocardial-work-impairm ent-in-patients-with-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing&rsquo\;s Syndrome (CS) is associated with an increased cardiovascular (CV) and metabolic ris k profile\, yet the specific impact of hypercortisolism on myocardial func tion remains inadequately understood.
CATEGORIES:Cushings UID:20250402T0802120Z-549422-1867@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Rare Patient Voice Current Studies RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300723;BYMONTH=7;BYMONTHDAY=23 DTSTART;VALUE=DATE:20240723 DTEND;VALUE=DATE:20240724 DESCRIPTION:Here's your chance to make your voice heard on Cushing's-relate d Issues AND make some money. Read more at https://cushings.invisionzone.c om/topic/57748-rare-patient-voice-current-studies/ X-ALT-DESC;FMTTYPE=text/html:Here's your chance to make your voice heard on Cushing's-related Issues AND make some money.
Read more at&nbs p\;https://cushings.invis ionzone.com/topic/57748-rare-patient-voice-current-studies/
CATEGORIES:Other Medical UID:20240723T1025170Z-549422-1806@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20191231 SUMMARY:Risk for thrombotic events high after Cushing’s syndrome surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210101;BYMONTHDAY=31 DESCRIPTION:Fleseriu cautioned that the findings do not necessarily suggest that every individual with Cushing’s syndrome needs anticoagulation thera py\, as the study was retrospective. Additionally\, sex\, age\, BMI\, smok ing status\, estrogen or testosterone supplementation\, diabetes and hyper tension — all known factors for increased thrombosis risk among the genera l population — were not found to significantly increase the risk for devel oping a thromboembolic event\, Fleseriu said. “As significantly more patie nts have exogenous Cushing’s syndrome than endogenous Cushing’s syndrome a nd many of these patients undergo surgeries\, we hope that our study incre ased awareness regarding thromboembolic risks and the need to balance adva ntages of thromboprophylaxis with risk of bleeding\,” Fleseriu said Read m ore at https://cushieblog.com/2019/12/31/risk-for-thrombotic-events-high-a fter-cushings-syndrome-surgery/ X-ALT-DESC;FMTTYPE=text/html:Fleseriu cautioned that the findings do not necessarily suggest that every individual with Cushing&rsquo\;s syndrome needs anticoagulation therapy\, as the study was retrospective. Additional ly\, sex\, age\, BMI\, smoking status\, estrogen or testosterone supplemen tation\, diabetes and hypertension &mdash\; all known factors for increase d thrombosis risk among the general population &mdash\; were not found to significantly increase the risk for developing a thromboembolic event\, Fl eseriu said.
&ldquo\;As significantly more patients have exogenous Cushing&rsquo\;s syndrome than endogenous Cushing&rsquo\;s syndrome and m any of these patients undergo surgeries\, we hope that our study increased awareness regarding thromboembolic risks and the need to balance advantag es of thromboprophylaxis with risk of bleeding\,&rdquo\; Fleseriu said
Read more at \;https://cushieblog.com/2019/12/31/risk-for-thrombotic-events-high-after-c ushings-syndrome-surgery/
CATEGORIES:News Items UID:20200101T0121400Z-549422-1221@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushie Car RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20191017;BYMONTH=10;BYMONTHDAY=17 DTSTART;VALUE=DATE:20181017 DTEND;VALUE=DATE:20181018 EXDATE;VALUE=DATE:20181017 DESCRIPTION:Today\, I'm thankful for my 'Cushie Car'. Since I started atte nding Cushing's events\, I've always tried to rent a PT Cruiser. There's j ust been something about them that I liked. Read more at https://cushieblo gger.com/2018/10/17/cushie-car/ X-ALT-DESC;FMTTYPE=text/html:Today\, I'm thankful for my 'Cushie Car'. & nbsp\;Since I started attending Cushing's events\, I've always tried to re nt a PT Cruiser. There's just been something about them that I liked.
Read more at \;https://cushieblogger.com/2018/10/17/cushie-car/
CATEGORIES:Cushings UID:20181026T2101500Z-549422-993@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Pituitary Tumor Support Group - Michigan DTSTART;VALUE=DATE:20230920 DTEND;VALUE=DATE:20230921 RRULE:FREQ=WEEKLY;UNTIL=20231007;BYDAY=TU,SA DESCRIPTION:Please consider joining us for #Pituitary Tumor Support Group o n Saturday October 7th\, 2023 at 9am to discuss Current and Emerging Medic al Therapies in Pituitary Tumor Treatment by Dr. Mahalakshi Honasage\, #En docrinologist\, and Dr. Jack Rock\, #Neurosurgery. More information at htt ps://cushings.invisionzone.com/topic/57635-pituitary%C2%A0tumor-support-gr oup/#comment-478468 X-ALT-DESC;FMTTYPE=text/html:Please consider joining us for #Pituitary T umor Support Group on Saturday October 7th\, 2023 at 9am to discuss Curren t and Emerging Medical Therapies in Pituitary Tumor Treatment by Dr. Mahal akshi Honasage\, #Endocrinologist\, and Dr. Jack Rock\, #Neurosurgery.
More information at \;https://cushings.invisionzone.com/topic/57635-pituita ry%C2%A0tumor-support-group/#comment-478468
CATEGORIES:Events and Meetings UID:20230920T2028020Z-549422-1674@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180502 SUMMARY:New Testimonial From Autumn RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190502;BYMONTHDAY=2 DESCRIPTION:Mary Kelly O'Connor\, you are an inspiration to so many! Thank you for all you have done and continue to do for our community! More at ht tps://cushieblogger.com/testimonial/autumn/ X-ALT-DESC;FMTTYPE=text/html:Mary Kelly O'Connor\, you are an inspiratio n to so many! Thank you for all you have done and continue to do for our c ommunity!
More at \;https://cushieblogger.com/testimonial/autumn /
CATEGORIES:Cushings UID:20180502T1348180Z-549422-924@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221105 SUMMARY:Levoketoconazole Treatment in Endogenous Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301105;BYMONTHDAY=5 DESCRIPTION:This extended evaluation (EE) of the SONICS study assessed effe cts of levoketoconazole for an additional 6 months following open-label\, 6-month maintenance treatment in endogenous Cushing’s syndrome. Read more at https://cushings.invisionzone.com/topic/57576-levoketoconazole-treatmen t-in-endogenous-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:This extended evaluation (EE) of the SONICS study assessed effects of levoketoconazole for an additional 6 mont hs following open-label\, 6-month maintenance treatment in endogenous Cush ing&rsquo\;s syndrome.
Read more at \;htt ps://cushings.invisionzone.com/topic/57576-levoketoconazole-treatment-in-e ndogenous-cushing%E2%80%99s-syndrome/
CATEGORIES:News Items UID:20221105T1458400Z-549422-1622@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210429 SUMMARY:Acute Pancreatitis Associated With Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220429;BYMONTHDAY=29 DESCRIPTION:Cushing's syndrome (CS) is a rare and severe disease. Acute pan creatitis is the leading cause of hospitalization. The association of the two disease is rare and uncommon. We report the case of a 37-year-old woma n admitted in our service for acute pancreatitis and whose Cushing syndrom e was diagnosed during hospitalisation. The aim of this work is to try to understand the influence of de Cushing in acute pancreatitis and to establ ish a causative relationship between the two diseases. Read more at https: //cushings.invisionzone.com/topic/55637-acute-pancreatitis-associated-with -cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing's syndrome (CS) is a rare and sever e disease. Acute \;pancreatitis \;is the leading cause of hospitalization. The association of the two disease is rare and uncommon. We report the case o f a 37-year-old woman admitted in our service for acute pancreatitis and w hose Cushing syndrome was diagnosed during hospitalisation. The aim of thi s work is to try to understand the influence of de Cushing in acute pancre atitis and to establish a causative relationship between the two diseases.
Read more at \;https://cushings.invisionzone.com/topic/55637-acute-pancreatitis-asso ciated-with-cushing-syndrome/
CATEGORIES:News Items UID:20210429T1532020Z-549422-1368@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20260128 SUMMARY:Disease Remission and Surgical Outcomes of Endoscopic Transsphenoid al Surgery for Cushing Disease: A Single Center Experience RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300128;BYMONTHDAY=28 DESCRIPTION:Transsphenoidal surgery is the primary treatment for patients w ith Cushing disease (CD). This study assessed the surgical and endocrinolo gic outcomes of patients with CD following endoscopic pituitary surgery us ing strict biochemical criteria to guide surveillance in patients not achi eving early remission. https://cushings.invisionzone.com/topic/57943-disea se-remission-and-surgical-outcomes-of-endoscopic-transsphenoidal-surgery-f or-cushing-disease-a-single-center-experience/ X-ALT-DESC;FMTTYPE=text/html:Transsphenoidal surgery is the primar y treatment for patients with Cushing disease (CD). This study assessed th e surgical and endocrinologic outcomes of patients with CD following endos copic pituitary surgery using strict biochemical criteria to guide surveil lance in patients not achieving early remission.
CATEGORIES:Cushings UID:20260128T0926390Z-549422-2074@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Roseglass (Roseglass)\, Adrenal BIo RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260122 DTEND;VALUE=DATE:20260123 DESCRIPTION:I have been ill for 9 years. I was experiencing severe anxiety/ depression\, profuse sweating\, extreme hypertension\, a non-stop migraine \, and living in a constant state of fight-or-flight. Seven years ago\, a full body CT scan revealed a left adrenal tumour. It has taken until this past year (actually just a few months ago) to finally get a diagnosis of p heochromocytoma from the medical field (no one listens to the patient – I have been telling them about the pheo and that I have Cushings for 7 years ! My cousin died from an undiagnosed pheo.) Fortunately\, I have wonderful long-term family doctor and more recently a great endo who have given me alpha and beta blockers to keep the symptoms more tolerable while we waite d for a confirmed diagnosis. https://cushingsbios.com/2026/01/22/roseglass -roseglass-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I have been ill for 9 years. I was ex periencing severe anxiety/depression\, profuse sweating\, extreme hyperten sion\, a non-stop migraine\, and living in a constant state of fight-or-fl ight. Seven years ago\, a full body CT scan revealed a left adrenal tumour . It has taken until this past year (actually just a few months ago) to fi nally get a diagnosis of pheochromocytoma from the medical field (no one l istens to the patient &ndash\; I have been telling them about the pheo and that I have Cushings for 7 years! My cousin died from an undiagnosed pheo .) Fortunately\, I have wonderful long-term family doctor and more recentl y a great endo who have given me alpha and beta blockers to keep the sympt oms more tolerable while we waited for a confirmed diagnosis.
https://cushingsbios.com/2026 /01/22/roseglass-roseglass-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260128T0935060Z-549422-2075@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221105 SUMMARY:More Comments added to MaryO\, 35th Pituitary Surgery Anniversary RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20241105;BYMONTHDAY=5 DESCRIPTION:More from Facebook\, 2022 - Janice said 'I’m so happy that you documented your life. And am grateful you gave up so Much of your life to raise awareness for our disease....If it weren’t for the support that you have provided all of us over the years life would be so Much more difficul t. Thanks for everything you’ve done and continue to do' Marie said 'Congr ats to you on this special anniversary! I feel so honored and blessed to have met you on a few occasions and most grateful for your visit at NIH wh ile I was there for 3 weeks. Thank you so much for your kindness and suppo rt! They meant alot to me!' Judy said 'Thank you\, thank you\, thank you.. ..' Aemi said 'Amazing. Thank you for sharing your story and for continuin g to educate doctors on Cushings!' From https://cushingsbios.com/2021/11/0 3/maryo-34th-pituitary-surgery-anniversary/ X-ALT-DESC;FMTTYPE=text/html:More from Facebook\, 2022 - Janice said 'I& rsquo\;m so happy that you documented your life. And am grateful you gave up so Much of your life to raise awareness for our disease....If it weren& rsquo\;t for the support that you have provided all of us over the years l ife would be so Much more difficult. Thanks for everything you&rsquo\;ve d one and continue to do'
Marie said 'Congrats \;to you on this special anniversary! I feel so honored and blessed to have met you on a f ew occasions and most grateful for your visit at NIH while I was there for 3 weeks. Thank you so much for your kindness and support! They meant alot to \;me!'
Judy said 'Thank you\, thank you\, thank you....'
Aemi said 'Amazing. Thank you for sharing your story and for contin uing to educate doctors on Cushings!'
From \;https://cushingsbios.com/2021/11/03/maryo-34th -pituitary-surgery-anniversary/
CATEGORIES:Cushie Bios UID:20221105T1517470Z-549422-1623@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231026 SUMMARY:A Case Report of Cushing’s Disease Presenting With Psychosis and Mu scle Weakness Postpartum RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301026;BYMONTHDAY=26 DESCRIPTION:The diagnosis of Cushing’s syndrome in pregnancy is often delay ed because the symptoms overlap. We presented a thin 31-year-old woman\, a dmitted 2 months after a normal-term delivery\, with an atypical presentat ion of Cushing’s disease\, unusual clinical features\, and a challenging c linical course. She had no clinical discriminatory features of Cushing’s s yndrome. Read more at https://cushings.invisionzone.com/topic/57656-a-cas e-report-of-cushing%E2%80%99s-disease-presenting-with-psychosis-and-muscle -weakness-postpartum/ X-ALT-DESC;FMTTYPE=text/html:The diagnosis of Cushing&rsquo\;s syn drome in pregnancy is often delayed because the symptoms overlap. We prese nted a thin 31-year-old woman\, admitted 2 months after a normal-term deli very\, with an atypical presentation of Cushing&rsquo\;s disease\, unusual clinical features\, and a challenging clinical course. She had no clinica l discriminatory features of Cushing&rsquo\;s syndrome. \;
CATEGORIES:Cushings UID:20231026T0711300Z-549422-1697@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250619 SUMMARY:A Prospective Trial With Ketoconazole Induction Therapy and Octreot ide Maintenance Treatment for Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300619;BYMONTHDAY=19 DESCRIPTION:Sequential treatment with ketoconazole to lower cortisol levels followed by octreotide to maintain biochemical remission according to UFC may be effective in a subset of patients with mild Cushing's Disease\, su ggesting that cortisol-mediated suppression of SST2 expression is a revers ible process. https://cushings.invisionzone.com/topic/57843-a-prospective -trial-with-ketoconazole-induction-therapy-and-octreotide-maintenance-trea tment-for-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Sequential treatment with ketoconazole to l ower cortisol levels followed by octreotide to maintain biochemical remiss ion according to UFC may be effective in a subset of patients with mild Cu shing's Disease\, suggesting that cortisol-mediated suppression of SST2 ex pression is a reversible process. \;
CATEGORIES:Cushings UID:20250619T1006510Z-549422-1906@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190408 SUMMARY:Mary O’Connor (MaryO) second archived interview with Robin Smith (s taticnrg) DESCRIPTION:Robin had Cushing's for over 20 years\, at least. Of course\, n o one figured it out or even put two and two together until her new PCP wh om she found in 2004 said 'endocrine'. She didn't figure it out\, either\, but at least Robin had a piece of the puzzle and she found cushings-help. com. Robin immediately went into denial and left for several months until she got so sick she knew she had to have help. She had originally sought t his PCP because she had been going to all sorts of doctors. Read more at h ttps://cushieblogger.com/2019/04/10/mary-oconnor-maryo-second-archived-int erview-with-robin-smith-staticnrg/ X-ALT-DESC;FMTTYPE=text/html:Robin had Cushing's for over 20 years\, at least. Of course\, no one figured it out or even put two and two together until her new PCP whom she found in 2004 said 'endocrine'. She didn't figu re it out\, either\, but at least Robin had a piece of the puzzle and she found cushings-help.com. Robin immediately went into denial and left for s everal months until she got so sick she knew she had to have help. She had originally sought this PCP because she had been going to all sorts of doc tors.
Read more at \;https://cushieblogger.com/2019/04/10/mary-oconnor-mar yo-second-archived-interview-with-robin-smith-staticnrg/
CATEGORIES:Events and Meetings UID:20190410T1815580Z-549422-1125@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Webinar: Growth Hormone Deficiency\, PCOS or Cushing’s: How do You Tell Them Apart? DTSTART;VALUE=DATE:20200719 DTEND;VALUE=DATE:20200720 RRULE:FREQ=WEEKLY;UNTIL=20200802;BYDAY=MO DESCRIPTION:Dr. Friedman will discuss topics including: Signs and Symptoms of Cushing’s Syndrome Testing for Cushing’s Signs and Symptoms of Growth H ormone Deficiency Testing for Growth Hormone Deficiency Signs and Symptoms of PCOS Testing for PCOS How do you tell them apart? Read more at https:/ /cushieblogger.com/2020/07/20/webinar-growth-hormone-deficiency-pcos-or-cu shings-how-do-you-tell-them-apart/ X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman will discuss topics in cluding:
Read more at \;https://cushi eblogger.com/2020/07/20/webinar-growth-hormone-deficiency-pcos-or-cushings -how-do-you-tell-them-apart/
CATEGORIES:Events and Meetings UID:20200720T0749400Z-549422-1280@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Korlym: How an abortion pill turned out to be a treatment for a rar e disease DTSTART;VALUE=DATE:20180513 DTEND;VALUE=DATE:20180514 RRULE:FREQ=MONTHLY;UNTIL=20190408;BYDAY=2SU DESCRIPTION:Corcept\, said Korlym’s average cost per patient is $180\,000 a nnually and concedes that “we have an expensive drug. There’s no getting a round that.” But\, he said\, he believes Corcept has a “social contract” t o take care of patients and pledged that any patient who is prescribed Kor lym will get it regardless of insurance coverage or costs. The story of Ko rlym highlights how America’s drug development system can turn an old drug into a new one that treats relatively few — but often very desperate — pa tients. Read more at https://cushieblog.com/2018/04/08/korlym-how-an-abort ion-pill-turned-out-to-be-a-treatment-for-a-rare-disease/ X-ALT-DESC;FMTTYPE=text/html:Corcept\, said Korlym&rsqu o\;s average cost per patient is $180\,000 annually and concedes that &ldq uo\;we have an expensive drug. There&rsquo\;s no getting around that.&rdqu o\; But\, he said\, he believes Corcept has a &ldquo\;social contract&rdqu o\; to take care of patients and pledged that any patient who is prescribe d Korlym will get it regardless of insurance coverage or costs.
The story of Korlym highlights how America&rsquo\;s drug de velopment system can turn an old drug into a new one that treats relativel y few &mdash\; but often very desperate &mdash\; patients.
Read more at \;https://cushieblog.com/2018/04/08/korlym-how-an-abortion -pill-turned-out-to-be-a-treatment-for-a-rare-disease/
CATEGORIES:Cushings UID:20180408T2232000Z-549422-892@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20200717T180000 DTEND;TZID=America/New_York:20200717T190000 SUMMARY:Webinar: The Current 'State-of-the-Art' in the Treatment of Pituita ry Disease. DESCRIPTION:After registering you will receive a confirmation email contain ing information about joining the Webinar. Date: Wednesday\, July 17\, 202 0 Time: 3:00 PM Pacific Daylight Time\, 6:00 PM Eastern Daylight Time More info at https://cushieblogger.com/2020/06/17/webinar-what-every-patient-n eeds-to-know-about-recent-advancements-in-pituitary-surgery/ X-ALT-DESC;FMTTYPE=text/html:After registering you will receive a confir
mation email containing information about joining the Webinar.
Date:
Wednesday\, July 17\, 2020 \;Time: 3:00 PM Pacific Daylight Time\, 6:0
0 PM Eastern Daylight Time
More info at \;https://cushiebl ogger.com/2020/06/17/webinar-what-every-patient-needs-to-know-about-recent -advancements-in-pituitary-surgery/
CATEGORIES:Cushings UID:20200716T1439360Z-549422-1274@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 13\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300413;BYMONTH=4;BYMONTHDAY=13 DTSTART;VALUE=DATE:20190413 DTEND;VALUE=DATE:20190414 DESCRIPTION:Cushing’s Conventions have always been special times for me – w e learn a lot\, get to meet other Cushies\, even get referrals to endos! A s early as 2001 (or before) my pituitary function was dropping. My former endo tested annually but did nothing to help me with the symptoms. Read m ore at https://cushings-help.com/2025/04/13/day-13-cushings-awareness-chal lenge/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s Conventions have always be en special times for me &ndash\; we learn a lot\, get to meet other Cushie s\, even get referrals to endos!
As early as 2001 (or before) my p ituitary function was dropping. \;My former endo tested annually but did nothing to help me with the symptoms.
Read more at \;https://cushings-help.com/2025/04/13/d ay-13-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250413T1005000Z-549422-1131@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240816 SUMMARY:Insights on Diagnosing and Managing Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300816;BYMONTHDAY=16 DESCRIPTION:A lot of Cushing’s patients are getting diagnosed and treated i n primary care\, which is completely appropriate. But I’ve also met endocr inologists who are uncomfortable diagnosing and managing Cushing’s because it is so rare\,” she said. Read more at https://cushings.invisionzone.com /topic/57755-insights-on-diagnosing-and-managing-cushing%E2%80%99s-syndrom e/ X-ALT-DESC;FMTTYPE=text/html:A lot of Cushing&rsquo\;s patients ar e getting diagnosed and treated in primary care\, which is completely appr opriate. But I&rsquo\;ve also met endocrinologists who are uncomfortable d iagnosing and managing Cushing&rsquo\;s because it is so rare\,&rdquo\; sh e said.
Read more at \;https://cushings.invisi onzone.com/topic/57755-insights-on-diagnosing-and-managing-cushing%E2%80%9 9s-syndrome/
CATEGORIES:Cushings UID:20240816T1446350Z-549422-1814@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240416 SUMMARY:Epigenetic Mechanisms Modulated by Glucocorticoids With a Focus on Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300416;BYMONTHDAY=16 DESCRIPTION:In Cushing syndrome (CS)\, prolonged exposure to high cortisol levels results in a wide range of devastating effects causing multisystem morbidity. Read more at https://cushings.invisionzone.com/topic/57717-epi genetic-mechanisms-modulated-by-glucocorticoids-with-a-focus-on-cushing-sy ndrome/ X-ALT-DESC;FMTTYPE=text/html:In Cushing syndrome (CS)\, prolonged exposure to high cortisol levels results in a wide range of devastating ef fects causing multisystem morbidity. \;
Read more at \;https://cushings.invisionzone.com/topic/ 57717-epigenetic-mechanisms-modulated-by-glucocorticoids-with-a-focus-on-c ushing-syndrome/
CATEGORIES:Cushings UID:20240416T0737190Z-549422-1778@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240416 SUMMARY:Comment added to Day 16\, Cushing’s Awareness Challenge RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300416;BYMONTHDAY=16 DESCRIPTION:Boy\, I really needed to reread this again today. Many thanks a gain...to me!...for sharing. Except for my new 'hobby' of learning the bal alaika\, everything is seeming painful\, blah\, boring and\, at times\, pl ain annoying. Read more at https://cushings.invisionzone.com/topic/56844-d ay-16-cushing%E2%80%99s-awareness-challenge-2022/?do=findComment&comment=4 78742 X-ALT-DESC;FMTTYPE=text/html:Boy\, I really needed to reread this again today.
Many thanks again...to me!...for sharing.
Except fo r my new 'hobby' of learning the balalaika\, everything is seeming painful \, blah\, boring and\, at times\, plain annoying.
Read more at&nbs p\;https://cushings.invisionzone.com/topic/56844- day-16-cushing%E2%80%99s-awareness-challenge-2022/?do=findComment&\;com ment=478742
CATEGORIES:Awareness Challenge UID:20240416T0827540Z-549422-1779@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Video of Transsphenoidal Surgery DTSTART;VALUE=DATE:20231201 DTEND;VALUE=DATE:20231202 RRULE:FREQ=MONTHLY;UNTIL=20301026;BYDAY=-1TH DESCRIPTION:The Case Records of the Mayo Clinic Florida Neurosurgery featur ed an endoscopic transsphenoidal approach for a pituitary tumor resection. Read more at https://cushings.invisionzone.com/topic/57657-video-of-tran ssphenoidal-surgery/ X-ALT-DESC;FMTTYPE=text/html:The Case Records of the Mayo Clinic F lorida Neurosurgery featured an endoscopic transsphenoidal approach for a& nbsp\;pituitary \;tumor resection.
R ead more at \;https:// cushings.invisionzone.com/topic/57657-video-of-transsphenoidal-surgery/
CATEGORIES:Cushings UID:20231026T0725310Z-549422-1698@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Happy Birthday Dr. Friedman! RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301117;BYMONTH=11;BYMONTHDAY=17 DTSTART;VALUE=DATE:20211117 DTEND;VALUE=DATE:20211118 DESCRIPTION:Happy birthday Dr. Friedman! Thank you for all you do and for t he incredible impact you are making in the world! Join us in wishing Dr. F riedman a joyous and healthy year ahead! https://cushings.invisionzone. com/topic/56276-happy-birthday-dr-friedman/ X-ALT-DESC;FMTTYPE=text/html:Happy birthday Dr. Friedman! Thank you for all you do and for the incredible impact you are making in the world! Join us in wishing Dr. Friedman a joyous and healthy year ahead! \;
< p> \;https://cushings.invisionzone. com/topic/56276-happy-birthday-dr-friedman/
CATEGORIES:Cushings UID:20211117T0631550Z-549422-1459@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211013 SUMMARY:Were You a Patient at Beth Israel Medical Center in New York? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221013;BYMONTHDAY=13 DESCRIPTION:Neurologist Accused of Sexual Assault A neurologist at Beth Isr ael Medical Center in New York has been accused of repeatedly sexually ass aulting patients over the course of a decade\, but was still able to secur e three jobs in three states until surrendering his license in 2017\, a ne w lawsuit with multiple plaintiffs revealed. Read more at https://cushings .invisionzone.com/topic/56208-were-you-a-patient-at-beth-israel-medical-ce nter-in-new-york/ X-ALT-DESC;FMTTYPE=text/html:Neurologist Accused of Sexual Assau lt
A neurologist at Beth Israel Medical Center in New Yor k has been accused of repeatedly sexually assaulting patients over the cou rse of a decade\, but was still able to secure three jobs in three states until surrendering his license in 2017\, a new lawsuit with multiple plain tiffs revealed.
Read more at \;https://cushings.invisionzone.com/topic/56208 -were-you-a-patient-at-beth-israel-medical-center-in-new-york/
CATEGORIES:Helpful Doctors UID:20211013T1824280Z-549422-1434@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181031 SUMMARY:Guest Question: Sudden Hearing Loss RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191031;BYMONTHDAY=31 DESCRIPTION:I have many symptoms of cushings\, I have used cloatasol prop ionate for about 5 years for my chronic eczema I was on oral steroids in J uly then high dose steroids again in September. thejuly in July it was for a severe eczema breakout and in September it was for sudden hearing loss. .. Can you help? https://cushieblogger.com/2018/10/31/guest-question-sudde n-hearing-loss/ X-ALT-DESC;FMTTYPE=text/html:I \; \;have many symptoms of cushin gs\, \;I have used cloatasol propionate for about 5 years for my chro nic eczema I was on oral steroids in July then high dose steroids again in September. thejuly in July it was for a severe eczema breakout and in Sep tember it was for sudden hearing loss...
Can you help? \;https://cushieblogger.com/2018/10/31/guest-question-su dden-hearing-loss/
\;
CATEGORIES:Cushings UID:20181031T2229480Z-549422-1010@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Neale O (NealeO)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260122 DTEND;VALUE=DATE:20260123 DESCRIPTION:I used to be skinny. I was 160 lbs dripping wet. I had a thin f ace and exercised regularly. In fact\, up until 2 years ago\, I was doing CrossFit every morning at 5AM\, and was pretty good at it! I guess about 5 -6 years ago\, I started putting on weight. It started with what I thought was just a beer belly. I was dating a great girl and we went out a lot to eat and drink. I figured I was just getting fat and happy. Fast forward ( got married to her) and we started to live our lives together. One day (20 12) I was going in for a routine physical and was going over some things w ith my PCP. He suggested we do a finger prick to check my Glucose levels. The sample showed a 567. He was astonished\, and immediately admitted me t o the hospital. I ended up taking 5 IV bags as I was severely dehydrated. My PCP then schedule me in for the next day so that he could tell me I had Type 2 Diabetes (runs in family). They started me on drugs and insulin in jections. So there I was\, being treated for Diabetes (the Sugars as they call them) and High Blood Pressure (HBP). https://cushingsbios.com/2026/01 /22/neale-o-nealeo-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I used to be skinny. I was 160 lbs dripping wet. I had a thin face and exercised regularly. In fact\, up until 2 year s ago\, I was doing CrossFit every morning at 5AM\, and was pretty good at it!
I guess about 5-6 years ago\, I started putting on weight. It started with what I thought was just a beer belly. I was dating a great g irl and we went out a lot to eat and drink. I figured I was just getting f at and happy. Fast forward (got married to her) and we started to live our lives together. One day (2012) I was going in for a routine physical and was going over some things with my PCP. He suggested we do a finger prick to check my Glucose levels. The sample showed a 567. He was astonished\, a nd immediately admitted me to the hospital. I ended up taking 5 IV bags as I was severely dehydrated. My PCP then schedule me in for the next day so that he could tell me I had Type 2 Diabetes (runs in family). They starte d me on drugs and insulin injections. So there I was\, being treated for D iabetes (the Sugars as they call them) and High Blood Pressure (HBP).
https://cushingsbios.com/2026/01/22/n eale-o-nealeo-pituitary-bio/
CATEGORIES:Cushie Bios UID:20260128T0941140Z-549422-2077@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220317 SUMMARY:Difference in miRNA Expression in Functioning and Silent Corticotro ph Pituitary Adenomas Indicates the Role of miRNA in the Regulation of Cor ticosteroid Receptors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250317;BYMONTHDAY=17 DESCRIPTION:Corticotroph pituitary adenomas commonly cause Cushing’s diseas e (CD)\, but some of them are clinically silent. The reason why they do no t cause endocrinological symptoms remains unclear. Read more at https://cu shings.invisionzone.com/topic/56679-difference-in-mirna-expression-in-func tioning-and-silent-corticotroph-pituitary-adenomas-indicates-the-role-of-m irna-in-the-regulation-of-corticosteroid-receptors/ X-ALT-DESC;FMTTYPE=text/html:Corticotroph pituitary adenomas commonly ca use Cushing&rsquo\;s disease (CD)\, but some of them are clinically silent . The reason why they do not cause endocrinological symptoms remains uncle ar.
CATEGORIES:Cushings UID:20220317T1328260Z-549422-1528@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Sam\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260122 DTEND;VALUE=DATE:20260123 DESCRIPTION:HI – I have just been diagnosed with Cushings. I had a left adr enalectomy to confirm it. I am interested in hearing from others – specifi cally “before and after”. https://cushingsbios.com/2026/01/22/sam-adrenal- bio/ X-ALT-DESC;FMTTYPE=text/html:HI &ndash\; I have just been diagnosed with Cushings.
I had a left adrenalectomy to confirm it.
I am interested in hearing from others &ndash\; specifically &ldquo\;before and after&rdquo\;.
https://cushingsbios.com/2026/ 01/22/sam-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260128T0937580Z-549422-2076@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Post-Op BLA RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300123;BYMONTH=1;BYMONTHDAY=23 DTSTART;VALUE=DATE:20260123 DTEND;VALUE=DATE:20260124 DESCRIPTION:‘m going to try to keep all of my post-op BLA updates in this t hread. I am hoping it will eventually show positive progression and be a r ealistic and inspirational thread for others. Today I am two weeks post-op BLA. So far\, no scares. I am on 30/20/20 of hydrocortisone and weaning b y 10 mg every four days. I am sleeping a good bit during the day and resti ng a lot to get my strength back. If I am upright too long my abdominal ar ea aches and I get fatigued\, sometimes it still aches even if I am not up right. My nighttime sleep has been good. I’m waking up only 1-2 times to g o to the bathroom (I think the meds are making my bladder more active than normal)\, but otherwise am sleeping through the night which is a huge cha nge from Cushing’s. I am hoping this is due to being Cushing’s-free rather than just due to the pain meds I am taking right now. We’ll see if this l asts as I drop the pain meds and hopefully the nighttime urination will le t up as the hydro levels drop. https://cushingsbios.com/2026/01/23/post-op -bla/ X-ALT-DESC;FMTTYPE=text/html:&lsquo\;m going to try to keep all of my po st-op BLA updates in this thread. I am hoping it will eventually show posi tive progression and be a realistic and inspirational thread for others.
Today I am two weeks post-op BLA. So far\, no scares. I am on 30/20 /20 of hydrocortisone and weaning by 10 mg every four days. I am sleeping a good bit during the day and resting a lot to get my strength back. If I am upright too long my abdominal area aches and I get fatigued\, sometimes it still aches even if I am not upright. My nighttime sleep has been good . I&rsquo\;m waking up only 1-2 times to go to the bathroom (I think the m eds are making my bladder more active than normal)\, but otherwise am slee ping through the night which is a huge change from Cushing&rsquo\;s. I am hoping this is due to being Cushing&rsquo\;s-free rather than just due to the pain meds I am taking right now. We&rsquo\;ll see if this lasts as I d rop the pain meds and hopefully the nighttime urination will let up as the hydro levels drop.
https://cushingsbios.com/2026/ 01/23/post-op-bla/
CATEGORIES:Cushie Bios UID:20260128T0945340Z-549422-2078@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180409 SUMMARY:New Testimonial from Catherine B RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190409;BYMONTHDAY=9 DESCRIPTION:Thank you for all you do\, MaryO! I am just one of the countles s number of lives your work has not only touched\, but saved. ❤️ From Face book X-ALT-DESC;FMTTYPE=text/html:Thank you for all you do\, MaryO! I am just
one of the countless number of lives your work has not only touched\, but
saved. \;
❤️
From \;Facebook
CATEGORIES:Cushings UID:20180409T2047440Z-549422-897@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200720 SUMMARY:Sara M\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210720;BYMONTHDAY=20 DESCRIPTION:Sara M is from Ponderay\, Idaho. She is not yet diagnosed with Cushing's but has these diagnoses: Fibromyalgia\, hypoglycemia\, Irrita ble bowel syndrome\, obesity\, high blood pressure Read her bio at https ://cushingsbios.com/2020/07/20/sara-m-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Sara M is from Ponderay\, Idaho. \;She is not yet diagnosed with Cushing's but has these diagnoses: Fibromyalgia \, \;hypoglycemia\, \;Irritable bowel syndrome\, \;obesity\ , \;high blood pressure
Read her bio at \;htt ps://cushingsbios.com/2020/07/20/sara-m-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20200720T1326510Z-549422-1281@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190519 SUMMARY: Lili\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210519;BYMONTHDAY=19 DESCRIPTION: Lili is from Florida. She is testing for Cushing's due to man y symptoms. She shares some of her test results. Lil has had thyroid canc er Read more at https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:\;Lili is from Florida. \;She is testing for Cushing's due to many symptoms. She shares some of her test re sults. \;Lil has had thyroid cancer
Read more at \;https://cushingsbios.com/2019/05/19/lili-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20200720T0750140Z-549422-1161@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Register for Johns Hopkins Pituitary Day October 19\, 2019! DTSTART;VALUE=DATE:20190602 DTEND;VALUE=DATE:20190603 RRULE:FREQ=WEEKLY;UNTIL=20191020;INTERVAL=2;BYDAY=SU DESCRIPTION:The 11th annual Pituitary Day will take place on October 19\, 2 019 Patients living with pituitary disorders can hear lectures from our p ituitary specialists\, see movies of pituitary surgeries and hear from oth er patients about their experience living with pituitary disease and under going surgery. Read more at https://cushieblogger.com/2019/05/19/register- for-johns-hopkins-pituitary-day-october-19-2019/ X-ALT-DESC;FMTTYPE=text/html:The 11th annual Pituitary Day will take pla ce on October 19\, 2019 \; Patients living with pituitary disorders ca n hear lectures from our pituitary specialists\, see movies of pituitary s urgeries and hear from other patients about their experience living with p ituitary disease and undergoing surgery.
Read more at \;https://cushieblogger.com/2019/05 /19/register-for-johns-hopkins-pituitary-day-october-19-2019/
CATEGORIES:Events and Meetings UID:20190519T1530070Z-549422-1162@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Video: Cushing's Syndrome – Story of a Patient DTSTART;VALUE=DATE:20190616 DTEND;VALUE=DATE:20190617 RRULE:FREQ=MONTHLY;UNTIL=20200519;BYDAY=3SU DESCRIPTION:The signs of the disease are often overlooked. It took 14 years to diagnose Ida with the disease and to start treating it successfully. See Ida's Story at https://cushieblogger.com/2019/05/19/video-cushings-syn drome-story-of-a-patient/ X-ALT-DESC;FMTTYPE=text/html:The signs of the disease are often overlook ed. It took 14 years to diagnose Ida with the disease and to start treatin g it successfully. \;
See Ida's Story at \;https://cushieblogger.com/2019/05/19/video-cushings-synd rome-story-of-a-patient/
CATEGORIES:Cushings UID:20190519T1557330Z-549422-1163@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Digging deep - Depression\, anxiety and suicide. RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300402;BYMONTH=4;BYMONTHDAY=2 DTSTART;VALUE=DATE:20210402 DTEND;VALUE=DATE:20210403 DESCRIPTION:...We lost a young woman with Cushing's to suicide in 2014. The re are rumors now that another recent loss was suicide as well. In my mind \, regardless of what the exact cause was\, Cushing's is at fault. Cushin g's led them to their deaths just as surely as if it had struck the death blow itself. If that is hard for you to fathom\, then please allow me to e ducate you briefly on this dastardly\, 'most morbid of diseases' and why I feel the way I do.... Read more at https://cushieblogger.com/2022/04/02/d igging-deep-depression-anxiety-and-suicide-3/ X-ALT-DESC;FMTTYPE=text/html:...We lost a young woman with Cushing's to suicide in 2014. There are rumors now that another recent loss was suicide as well. In my mind\, regardless of what the exact cause was\, Cushing's is at fault. \;Cushing's led them to their deaths just as surely as i f it had struck the death blow itself. If that is hard for you to fathom\, then please allow me to educate you briefly on this dastardly\, 'most mor bid of diseases' and why I feel the way I do....
Read more at \;https://cushieblogger.com/2022/04/02 /digging-deep-depression-anxiety-and-suicide-3/
CATEGORIES:Awareness Challenge UID:20220402T1913080Z-549422-1347@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Deborah S\, Undiagnosed Bio DTSTART;VALUE=DATE:20190607 DTEND;VALUE=DATE:20190608 RRULE:FREQ=MONTHLY;UNTIL=20200503;BYDAY=1FR DESCRIPTION:I am having the exact same thing (symptoms\, test results and D r. Frustration) and driving myself crazy trying to figure it out. Did you ever get a proper diagnosis? Read more at https://cushingsbios.com/2016/03 /19/deborah-s-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I am having the exact same thing (symptoms\ , test results and Dr. Frustration) and driving myself crazy trying to fig ure it out. Did you ever get a proper diagnosis?
Read more at \;https://cushingsbios.com/2016/03/19/deborah-s-undiagnosed -bio/
CATEGORIES:Cushie Bios UID:20190503T1255190Z-549422-1157@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190428 SUMMARY:What’s on *Your* Medical ID? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200428;BYMONTHDAY=28 DESCRIPTION:You do have one\, right??? I loved the one that Natalie had and \, after her death\, I bought the same style as a way to honor her memory. Read more at https://cushieblogger.com/2019/04/28/whats-on-your-medical-i d/ X-ALT-DESC;FMTTYPE=text/html:You do have one\, right???
I loved the one that Natalie had and\, \;after her death\, I bought the same style as a way to honor her memo ry.
Read more at \;https://cushieblogger.com/20 19/04/28/whats-on-your-medical-id/
CATEGORIES:Cushings UID:20190428T2237230Z-549422-1154@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250529 SUMMARY:A Second Look at Cushing Disease: Hypercortisolism Recurrence From Another Gland RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300529;BYMONTHDAY=29 DESCRIPTION:Cushing disease (CD) is the most common form of adrenocorticotr opin (ACTH)-dependent Cushing syndrome (CS)\, whereas unilateral adrenal a denoma is the most common cause of ACTH-independent CS. However\, the occu rrence of different subtypes of CS in a single individual is very rare. ht tps://cushings.invisionzone.com/topic/57836-a-second-look-at-cushing-disea se-hypercortisolism-recurrence-from-another-gland/ X-ALT-DESC;FMTTYPE=text/html:Cushing disease (CD) is the most comm on form of adrenocorticotropin (ACTH)-dependent Cushing syndrome (CS)\, wh ereas unilateral adrenal adenoma is the most common cause of ACTH-independ ent CS. However\, the occurrence of different subtypes of CS in a single i ndividual is very rare.
CATEGORIES:Cushings UID:20250529T1118270Z-549422-1898@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240317 SUMMARY:Clinical Features and Treatment Options for Pediatric Adrenal Incid entalomas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270317;BYMONTHDAY=17 DESCRIPTION:Cortical tumors are particularly rare among children with AIs a nd are sometimes not clearly distinguishable from neurogenic tumors on pre operative imaging\; in such patients\, the presence of subclinical Cushing ’s syndrome needs to be carefully evaluated preoperatively\; otherwise\, a perioperative adrenal crisis may occur [21]. In patients in whom the poss ibility of an adrenocortical tumor was considered preoperatively\, the ass essment for subclinical Cushing’s syndrome mainly involved assessing the s erum dehydroepiandrosterone sulfate level and performing an overnight dexa methasone suppression test. Read more at https://cushings.invisionzone.com /topic/57702-clinical-features-and-treatment-options-for-pediatric-adrenal -incidentalomas/ X-ALT-DESC;FMTTYPE=text/html:Cortical tumors are particularly rare among children with AIs and are sometimes not clearly distinguishable fro m neurogenic tumors on preoperative imaging\; in such patients\, the prese nce of subclinical Cushing&rsquo\;s syndrome needs to be carefully evaluat ed preoperatively\; otherwise\, a perioperative adrenal crisis may occur [ 21]. In patient s in whom the possibility of an adrenocortical tumor was considered preope ratively\, the assessment for subclinical Cushing&rsquo\;s syndrome mainly involved assessing the serum dehydroepiandrosterone sulfate level and per forming an overnight dexamethasone suppression test.
Read more at \;https://cushings.invisionzone.com/topi c/57702-clinical-features-and-treatment-options-for-pediatric-adrenal-inci dentalomas/
CATEGORIES:Cushings UID:20240317T0739210Z-549422-1755@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181231 SUMMARY:Caryl\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191231;BYMONTHDAY=31 DESCRIPTION:Caryl is from Philippines. She is not yet diagnosed with Cushi ng's but her OB-GYN told her she has PCOS. She has several other Cushing' s symptoms. Read more at https://cushingsbios.com/2018/12/31/caryl-undiagn osed-bio/ X-ALT-DESC;FMTTYPE=text/html:Caryl is from Philippines. \;She is no t yet diagnosed with Cushing's but her OB-GYN told her she has PCOS. \;She has several other Cushing's symptoms.
Read more at \;https://cushingsbios.com/2018/12/31/caryl-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20181231T1617080Z-549422-1055@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210201 SUMMARY:Acute and life-threatening complications in Cushing syndrome: Preva lence\, predictors and mortality RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220201;BYMONTHDAY=1 DESCRIPTION:Researchers conducted this retrospective cohort study to invest igate acute and life-threatening complications in patients with active Cus hing syndrome (CS). Participants in the study were 242 patients with CS\, including 213 with benign CS (pituitary n = 101\, adrenal n = 99\, ectopic n = 13)\, and 29 with malignant disease. Read more at https://cushieblog. com/2021/02/01/acute-and-life-threatening-complications-in-cushing-syndrom e-prevalence-predictors-and-mortality/ X-ALT-DESC;FMTTYPE=text/html:Researchers conducted this retrospective co hort study to investigate acute and life-threatening complications in pati ents with active Cushing syndrome (CS). Participants in the study were 242 patients with CS\, including 213 with benign CS (pituitary n = 101\, adre nal n = 99\, ectopic n = 13)\, and 29 with malignant disease.
Read more at \;https://cushieblog.com/2021/02/01/acute-and-life- threatening-complications-in-cushing-syndrome-prevalence-predictors-and-mo rtality/
CATEGORIES:News Items UID:20210202T0153330Z-549422-1310@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230625 SUMMARY:Severe Osteoporosis in a Young Man with Bilateral Cushing’s Syndrom e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20290625;BYMONTHDAY=25 DESCRIPTION:The diagnosis of Cushing’s syndrome is challenging\; however\, through the clinical picture and the search for secondary causes of osteop orosis\, it was possible to reach the diagnosis of the case reported. Ther e was an independent\, symptomatic ACTH hypercortisolism manifested by typ ical phenotypic changes\, severe secondary osteoporosis and arterial hyper tension in a young patient. Read more at https://cushings.invisionzone.com /topic/57610-severe-osteoporosis-in-a-young-man-with-bilateral-cushing%E2% 80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:The diagnosis of Cushing&rsquo\;s syn drome is challenging\; however\, through the clinical picture and the sear ch for secondary causes of osteoporosis\, it was possible to reach the dia gnosis of the case reported. There was an independent\, symptomatic ACTH h ypercortisolism manifested by typical phenotypic changes\, severe secondar y osteoporosis and arterial hypertension in a young patient.
< p>Read more at \;https:// cushings.invisionzone.com/topic/57610-severe-osteoporosis-in-a-young-man-w ith-bilateral-cushing%E2%80%99s-syndrome/
CATEGORIES:Cushings UID:20230625T2214270Z-549422-1650@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180423 SUMMARY:Cushing’s Awareness Ribbon Stickers are Here RRULE:FREQ=DAILY;COUNT=62 DESCRIPTION:A long-time member of the Cushing’s Help message boards\, Autum nOMA \, gave me permission to share info about these wonderful Cushing’s A wareness Stickers she has made Read more at https://cushieblogger.com/2018 /04/23/%F0%9F%A6%93-cushings-awareness-ribbon-stickers-are-here/ X-ALT-DESC;FMTTYPE=text/html:A long-time member of the \;Cushing&rs quo\;s Help message boards\, AutumnOMA \, gave me permission to share info about these wonderful Cushing&rsquo\;s Awareness Stickers she has mad e
Read more at \;https://cushieblogger.com/2018/04/23/%F0%9F%A6%93-cushings-awareness-rib bon-stickers-are-here/
CATEGORIES:Awareness Challenge UID:20180424T0046540Z-549422-916@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181114 SUMMARY:Sahana (Sahana)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191114;BYMONTHDAY=14 DESCRIPTION:Sahana is from Mumbai India Her daughter had many Cushings sy mptoms starting at 15. She had laparoscopic adrenal surgery and is now 7 months post-op. Read more at https://cushingsbios.com/2018/11/14/sahana-sa hana-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Sahana is from Mumbai India \; Her dau ghter had many Cushings symptoms starting at 15. \;She had laparoscop ic adrenal surgery and is now 7 months post-op.
Read more at \ ;https://cushingsbios.com/2018/11/14/sahana-sahana-adrenal- bio/
CATEGORIES:Cushie Bios UID:20181115T0033240Z-549422-1024@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211105 SUMMARY:Acute severe Cushing's disease presenting as a hypercoagulable stat e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221105;BYMONTHDAY=5 DESCRIPTION:We discuss the case of a 60-year-old woman with recurrent venou s thromboembolism\, refractory hypokalemia\, and lumbar vertebrae compress ion fractures with a rapidly progressive disease course. Ectopic hypercort isolism was suspected given the patient’s age and rapid onset of disease. Read more at https://cushings.invisionzone.com/topic/56250-acute-severe-c ushings-disease-presenting-as-a-hypercoagulable-state/ X-ALT-DESC;FMTTYPE=text/html:We discuss the case of a 60-year-old woman with recurrent venous thromboembolism\, refractory hypokalemia\, and lumba r vertebrae compression fractures with a rapidly progressive disease cours e. Ectopic hypercortisolism was suspected given the patient&rsquo\;s age a nd rapid onset of disease. \;
Read more at \;https://cushings.inv isionzone.com/topic/56250-acute-severe-cushings-disease-presenting-as-a-hy percoagulable-state/
CATEGORIES:News Items UID:20211105T1425100Z-549422-1447@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20250325T093000 DTEND;TZID=America/New_York:20250325T143000 SUMMARY:Adrenal Insufficiency United’s Lunch & Learn: Oregon DESCRIPTION:Adrenal Insufficiency United’s Lunch & Learn Events are one day mini-conferences located in different cities in the USA. We find great lo cal speakers to lead sessions and give presentations about issues affectin g those with adrenal insufficiency. These one day events will be packed fu ll of opportunities giving attendees more chances to ask questions\, share their own experiences and network with fellow members of the community. https://cushings.invisionzone.com/topic/57779-adrenal-insufficiency-united %E2%80%99s-lunch-learn/ X-ALT-DESC;FMTTYPE=text/html:Adrenal Insufficiency United&rsquo\;s Lunch &\; Learn Events are one day mini-conferences located in differe nt cities in the USA. We find great local speakers to lead sessions and gi ve presentations about issues affecting those with adrenal insufficiency. These one day events will be packed full of opportunities giving attendees more chances to ask questions\, share their own experiences and network w ith fellow members of the community. \;
https://cushings.i nvisionzone.com/topic/57779-adrenal-insufficiency-united%E2%80%99s-lunch-l earn/
CATEGORIES:Events and Meetings UID:20250201T0146370Z-549422-1845@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Steve\, Ectopic Bio DTSTART;VALUE=DATE:20180902 DTEND;VALUE=DATE:20180903 RRULE:FREQ=MONTHLY;UNTIL=20190805;BYDAY=1SU DESCRIPTION:Steve was undiagnosed for 12 years. After a pituitary surgery\ , he turned out to have ectopic Cushing's in his right lung. Read more at https://cushingsbios.com/2018/08/05/steve-ectopic-bio/ X-ALT-DESC;FMTTYPE=text/html:Steve was undiagnosed for 12 years. \; After a pituitary surgery\, he turned out to have ectopic Cushing's in his right lung.
Read more at \;https://cushingsbios.com/20 18/08/05/steve-ectopic-bio/
CATEGORIES:Cushie Bios UID:20180806T0107520Z-549422-965@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Gianna\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20230304;BYMONTH=3;BYMONTHDAY=4 DTSTART;VALUE=DATE:20220304 DTEND;VALUE=DATE:20220305 DESCRIPTION:Eventually\, an MRI revealed a small benign tumor\, called a mi croadenoma\, located on Gianna’s pituitary gland. That’s an indication of Cushing disease\, a rare and serious disorder that affects only 10 to 15 p eople per million. With proper surgical or medical treatments\, a person w ith Cushing can return to a healthier life — as was the case with Ms. Sche mbari after she met a team of experts in removing pituitary tumors at Miam i Neuroscience Institute\, part of Baptist Health. Read more at https:// cushingsbios.com/2022/03/04/gianna-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Eventually\, an MRI revealed a small benign tumor\, called a microadenoma\, located on Gianna&rsquo\;s pituitary glan d. That&rsquo\;s an indication of Cushing disease\, a rare and serious dis order that affects only 10 to 15 people per million. With proper surgical or medical treatments\, a person with Cushing can return to a healthier li fe &mdash\; as was the case with Ms. Schembari after she met a team of exp erts in removing pituitary tumors at \;Miami Neuroscience Institut e\, part of Baptist Health.
\;
Read more at \ ;https://cushingsbios.com/2022/03/04/gianna-pituitary-bio/ CATEGORIES:Cushie Bios UID:20220304T1629200Z-549422-1523@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20250622T210000 DTEND;TZID=America/New_York:20250622T220000 SUMMARY:Hear About Dr. Friedman’s Landmark New Publication on Rt3 Published in PLoS One DESCRIPTION:Dr. Friedman will discuss his findings on Reverse T3 in patient s with hypothyroidism on different thyroid hormone replacement. PLoS One 2 0(6) https://cushings.invisionzone.com/topic/57840-hear-about-dr-friedman% E2%80%99s-landmark-new-publication-on-rt3-published-in-plos-one/#comment-4 79029 X-ALT-DESC;FMTTYPE=text/html:
Dr. Friedman will discuss his findings on R everse T3 in patients with hypothyroidism on different thyroid hormone rep lacement. PLoS One 20(6)
CATEGORIES:Cushings UID:20250611T0750410Z-549422-1902@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY: Webinar: The Implications of COVID-19 on Patients with Endocrine D isorders DTSTART;VALUE=DATE:20200505 DTEND;VALUE=DATE:20200506 RRULE:FREQ=WEEKLY;UNTIL=20200510;BYDAY=TU,SA DESCRIPTION:Presented by Nelson M. Oyesiku\, MD\, PhD\, FACS Professor of N eurosurgery and Medicine Vice-Chairman\, Neurosurgery Residency Program Di rector Emory University School of Medicine Read more at https://cushieblog ger.com/2020/05/05/webinar-the-implications-of-covid-19-on-patients-with-e ndocrine-disorders/ X-ALT-DESC;FMTTYPE=text/html:Presented by
Nelson M. Oyesiku\, MD
\, PhD\, FACS
Professor of Neurosurgery and Medicine
Vice-Chairm
an\, Neurosurgery Residency Program Director
Emory University School
of Medicine
Read more at \;https://cushieblogger.com/2020/05/05/webinar- the-implications-of-covid-19-on-patients-with-endocrine-disorders/
CATEGORIES:Events and Meetings UID:20200505T1151210Z-549422-1255@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 17\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300417;BYMONTH=4;BYMONTHDAY=17 DTSTART;VALUE=DATE:20200417 DTEND;VALUE=DATE:20200418 DESCRIPTION:I asked doctors for several years – PCP\, gynecologist\, neurol ogist\, podiatrist – all said the now-famous refrain. “It’s too rare. You couldn’t have Cushing’s.” I kept persisting in my reading\, making copies of library texts even when I didn’t understand them\, keeping notes. I jus t knew that someone\, somewhere would “discover” that I had Cushing’s. Rea d more at https://cushings-help.com/2025/04/17/day-17-cushings-awareness-c hallenge/ X-ALT-DESC;FMTTYPE=text/html:I asked doctors for several years &ndash\; PCP\, gynecologist\, neurologist\, podiatrist &ndash\; all said the now-fa mous refrain. &ldquo\;It&rsquo\;s too rare. You couldn&rsquo\;t have C ushing&rsquo\;s.&rdquo\; I kept persisting in my reading\, making cop ies of library texts even when I didn&rsquo\;t understand them\, keeping n otes. I just knew that someone\, somewhere would &ldquo\;discover&rdquo\; that I had Cushing&rsquo\;s.
Read more at \;https://cushings-help.com/2025/04/17/day-17-cushing s-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250417T1013080Z-549422-1251@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190425 SUMMARY:Archived Interview Donna Sellers\, Mother of a Cushing’s patient DESCRIPTION:Donna Sellers\, President\, John’s Foundation for Cushing’s Awa reness\, mother of a Cushing’s patient. Listen at https://cushieblogger.co m/2019/04/26/archived-interview-donna-sellers-mother-of-a-cushings-patient / X-ALT-DESC;FMTTYPE=text/html:Donna Sellers\, President\, John&rsquo\;s F oundation for Cushing&rsquo\;s Awareness\, mother of a Cushing&rsquo\;s pa tient.
Listen at \;https://cushieblogger.com/2019/04/26/archived-interview-donna-sel lers-mother-of-a-cushings-patient/
CATEGORIES:Events and Meetings UID:20190426T2053440Z-549422-1147@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190419 SUMMARY:Archived Interview with FerolV\, pituitary survivor DESCRIPTION:Ferol started noticing irregular symptoms in her late 20’s\, bu t more developed since 2001\, and rapidly more chronic as time went by. Fi nally\, at her March 2005 physical\, she had enough symptoms listed for he r GP to start getting the connection to Cushing’s. She was immediately ref erred to Dr. Adam Spitz\, endocrinologist\, with a battery of tests confir med the initial diagnosis. Her pituitary surgery was performed 09-30-05. S he has lost 30+ pounds after reaching a high of 190 prior to surgery. List en at https://cushieblogger.com/2019/04/22/archived-interview-ferolv-pitui tary-survivor/ X-ALT-DESC;FMTTYPE=text/html:Ferol started noticing irregular symptoms i n her late 20&rsquo\;s\, but more developed since 2001\, and rapidly more chronic as time went by. Finally\, at her March 2005 physical\, she had en ough symptoms listed for her GP to start getting the connection to Cushing &rsquo\;s.
She was immediately referred to Dr. Adam Spitz\, endocr inologist\, with a battery of tests confirmed the initial diagnosis. Her p ituitary surgery was performed 09-30-05. She has lost 30+ pounds after rea ching a high of 190 prior to surgery.
Listen at \;https://cushieblogger.com/2019/04/22/archived-inter view-ferolv-pituitary-survivor/
CATEGORIES:Events and Meetings UID:20190423T0043530Z-549422-1139@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240404 SUMMARY:From a Past Blogging Challenge: Cushing’s Awareness Challenge ~ Dan ielle\, Day 4 DESCRIPTION:I have often said\, I wish I had cancer instead. Most people w ould not understand this sentiment\, why in the world would you wish for s uch a horrible disease?... Read more at https://cushieblogger.com/2019/04/ 04/from-a-past-blogging-challenge-cushings-awareness-challenge-danielle-da y-4/ X-ALT-DESC;FMTTYPE=text/html:I have often said\, I wish I had cancer ins tead. \;Most people would not understand this sentiment\, why in the world would you wish for such a horrible disease?...
Read more at& nbsp\;https://cushieblogger.com/2019/04/04/from-a-past-blogging-chal lenge-cushings-awareness-challenge-danielle-day-4/
CATEGORIES:Awareness Challenge UID:20240405T0829280Z-549422-1767@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231223 SUMMARY:Inferior Petrosal Sinus Sampling (IPSS) Tumor Lateralization and Th e Surgical Treatment of Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301223;BYMONTHDAY=23 DESCRIPTION:Limited data suggest that the rate of correct IPSS tumor latera lization may not be positively associated with postoperative remission or cure in patients with Cushing’s disease. These findings bring into questio n the utility of IPSS tumor lateralization in the context of preoperative planning and surgical approach rather than confirming a pituitary source. Read more at https://cushings.invisionzone.com/topic/57675-inferior-petros al-sinus-sampling-ipss-tumor-lateralization-and-the-surgical-treatment-of- cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Limited data suggest that the rate of correct IPSS tumor lateralization may not be positively associated with p ostoperative remission or cure in patients with Cushing&rsquo\;s disease. These findings bring into question the utility of IPSS tumor lateralizatio n in the context of preoperative planning and surgical approach rather tha n confirming a pituitary source.
Read more at \;< a href='https://cushings.invisionzone.com/topic/57675-inferior-petrosal-si nus-sampling-ipss-tumor-lateralization-and-the-surgical-treatment-of-cushi ng%E2%80%99s-disease/' target='_blank' rel='nofollow'>https://cushings.inv isionzone.com/topic/57675-inferior-petrosal-sinus-sampling-ipss-tumor-late ralization-and-the-surgical-treatment-of-cushing%E2%80%99s-disease/
CATEGORIES:Cushings UID:20231223T1707550Z-549422-1723@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing’s Patient Exhibits Cortisol-Secreting Lesions in Both Adren al Glands DTSTART;VALUE=DATE:20180601 DTEND;VALUE=DATE:20180602 RRULE:FREQ=MONTHLY;UNTIL=20190504;BYDAY=1FR DESCRIPTION:In rare cases\, Cushing’s syndrome may be caused by cortisol-se creting masses in both adrenal glands\, a case report shows. Read more at https://cushieblog.com/2018/05/04/cushings-patient-exhibits-cortisol-secre ting-lesions-in-both-adrenal-glands/ X-ALT-DESC;FMTTYPE=text/html:In rare cases\, Cushing&rsquo\;s syndrome m ay be caused by cortisol-secreting masses in both adrenal glands\, a case report shows.
Read more at \;https://cushieblog.com/2018/05/04/cushings-p atient-exhibits-cortisol-secreting-lesions-in-both-adrenal-glands/
CATEGORIES:Cushings UID:20180504T2135380Z-549422-927@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210803 SUMMARY:Dr. Oyesiku to Receive Distinguished Service Award from Society of University Neurosurgeons RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220803;BYMONTHDAY=3 DESCRIPTION:Nelson M. Oyesiku\, MD\, PhD\, FACS\, Chair Chair of the UNC Sc hool of Medicine Department of Neurosurgery\, will receive the Distinguish ed Service Award given by the Society of University Neurosurgeons at their 2021 Annual Meeting in Whitefish\, Montana\, August 8-11. Read more at ht tps://cushieblogger.com/2021/08/03/dr-oyesiku-to-receive-distinguished-ser vice-award-from-society-of-university-neurosurgeons/ X-ALT-DESC;FMTTYPE=text/html:Nelson M. Oyesiku\, MD\, PhD\, FACS\, Chair Chair of the UNC School of Medicine Department of Neurosurgery\, will rec eive the Distinguished Service Award given by the Society of University Ne urosurgeons at their 2021 Annual Meeting in Whitefish\, Montana\, August 8 -11.
Read more at \;https://cushieblogger.com/2021/08/0 3/dr-oyesiku-to-receive-distinguished-service-award-from-society-of-univer sity-neurosurgeons/
CATEGORIES:Helpful Doctors UID:20210803T0814470Z-549422-1409@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190225 SUMMARY:My Daughter Lisa Marie Bates Died Needlessly Of Addison's Disease DESCRIPTION:The problem with Addison's disease is that only 1 out of 100\,0 00 people get this. Lisa's symptoms were classic\, vitilago which are whi te spots\, darkened pigment\, and flu like symptoms. Even in this day and age doctors can miss a case of Addison's. Read more at http://addisonshel p.blogspot.com/2009/07/my-daughter-lisa-marie-bates-died.html X-ALT-DESC;FMTTYPE=text/html:The problem with Addison's disease is that only 1 out of 100\,000 people get this. \;Lisa's symptoms were classi c\, vitilago which are white spots\, darkened pigment\, and flu like sympt oms. \;Even in this day and age doctors can miss a case of Addison's.
Read more at \;http://addison shelp.blogspot.com/2009/07/my-daughter-lisa-marie-bates-died.html
CATEGORIES:In Memory UID:20190225T1426330Z-549422-1088@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190119 SUMMARY:Transsphenoidal Surgery Leads to Remission in Children with Cushing ’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200119;BYMONTHDAY=19 DESCRIPTION:Transsphenoidal surgery — a minimally invasive surgery for remo ving pituitary tumors in Cushing’s disease patients — is also effective in children and adolescents with the condition\, leading to remission with a low rate of complications\, a study reports. The research\, “Neurosurgica l treatment of Cushing disease in pediatric patients: case series and revi ew of literature\,” was published in the journal Child’s Nervous System. R ead more at https://cushieblog.com/2019/01/19/transsphenoidal-surgery-lead s-to-remission-in-children-with-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Transsphenoidal surgery &mdash\; a minimall y invasive surgery for removing pituitary tumors in \;Cushing&rsquo\;s disease \;patients &mdash\; is also effective in children and adolesc ents with the condition\, leading to remission with a low rate of complica tions\, a study reports.
The research\, &ldquo\;Neurosurgical treatment of Cushing disease in pediatri c patients: case series and review of literature\,&rdquo\; was publish ed in the journal \;Child&rsquo\;s Nervous System.
Read more at \;https://cushieblog.com/2019/01/19/transsphenoidal -surgery-leads-to-remission-in-children-with-cushings-disease/
CATEGORIES:News Items UID:20190119T2234330Z-549422-1072@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190812 SUMMARY:Amy G\, Cyclical Cushing's Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200812;BYMONTHDAY=12 DESCRIPTION:Amy G is from Ogden\, Utah.. She has been diagnosed with Cycli cal Cushings Disease with Empty Sella Turcia. 1/4 sized damaged pituitary . She also has rare complications with my Cushings Disease and is having t rouble finding the right doctors in Utah. Read more at https://cushingsbio s.com/2019/08/21/amy-g-cyclical-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:Amy G is from Ogden\, Utah.. \;She has been diagnosed with Cyclical Cushings Disease with Empty Sella Turcia. &n bsp\;1/4 sized damaged pituitary. She also has rare complications with my Cushings Disease and is having trouble finding the right doctors in Utah.< /p>
Read more at \;https://cushingsbios.com/2019/ 08/21/amy-g-cyclical-cushings-bio/
CATEGORIES:Cushie Bios UID:20190821T1557010Z-549422-1195@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240603 SUMMARY:Xeris Presents New Post Hoc Analysis on Effects of Levoketoconazole (Recorlev®) in Cushing’s Syndrome Patients at ENDO 2024 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300603;BYMONTHDAY=3 DESCRIPTION:Cases of hepatotoxicity with fatal outcome or requiring liver t ransplantation have been reported with oral ketoconazole. Some patients ha d no obvious risk factors for liver disease. Recorlev is associated with s erious hepatotoxicity. Evaluate liver enzymes prior to and during treatmen t. Read more at https://cushings.invisionzone.com/topic/57735-xeris-presen ts-new-post-hoc-analysis-on-effects-of-levoketoconazole-recorlev%C2%AE-in- cushing%E2%80%99s-syndrome-patients-at-endo-2024/ X-ALT-DESC;FMTTYPE=text/html:Cases of hepatotoxicity with fatal outcome or requiring liver transplantation have been reported with oral ketoconazo le. Some patients had no obvious risk factors for liver disease. Recorlev is associated with serious hepatotoxicity. Evaluate liver enzymes prior to and during treatment.
CATEGORIES:Cushings UID:20240603T1441310Z-549422-1792@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250629 SUMMARY:Double Synchronous Functional Pituitary Adenomas Causing Acromegaly and Subclinical Cushing Disease. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300629;BYMONTHDAY=29 DESCRIPTION:We report the case of a patient with double functional pituitar y adenomas causing acromegaly and subclinical Cushing's disease. A 45-year -old woman was referred to our Department for suspected acromegaly. Her pa st medical history included diabetes mellitus treated with oral antidiabet ic drugs and hypertension. https://cushings.invisionzone.com/topic/57847-d ouble-synchronous-functional-pituitary-adenomas-causing-acromegaly-and-sub clinical-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:We report the case of a patient with double functional pituitary adenomas causing acromegaly and subclinical Cu shing's disease. A 45-year-old woman was referred to our Department for su spected acromegaly. Her past medical history included diabetes mellitus tr eated with oral antidiabetic drugs and hypertension.
CATEGORIES:Cushings UID:20250629T2032250Z-549422-1910@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Rare Prostate Cancer Associated with Cushing’s Syndrome DTSTART;VALUE=DATE:20181122 DTEND;VALUE=DATE:20181123 RRULE:FREQ=MONTHLY;UNTIL=20191017;BYDAY=3WE DESCRIPTION:A patient with depression developed Cushing’s syndrome (CS) bec ause of a rare ACTH-secreting small cell cancer of the prostate\, a case s tudy reports. Read more at http://cushings.invisionzone.com/topic/54471-ra re-prostate-cancer-associated-with-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A patient with depression developed \;C ushing&rsquo\;s syndrome \;(CS) because of a rare ACTH-secreting \ ;small cell cancer of the prostate\, a case study reports.
Read more at \;http://cushings.invisionzone.com/topic/54471-rare-prostate-cancer- associated-with-cushing%E2%80%99s-syndrome/
CATEGORIES:News Items UID:20181017T1539050Z-549422-994@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240405 SUMMARY:Talus Avascular Necrosis as a Rare Complication of Cushing’s Diseas e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300405;BYMONTHDAY=5 EXDATE;VALUE=DATE:20240905 DESCRIPTION:We report a middle-aged woman with Cushing’s syndrome symptoms\ , such as hypertension and moon face\, since her youth. A few years ago\, she experienced pain and swelling in her ankle\, which was diagnosed as at raumatic AVNT and treated with hindfoot fusion. Years later\, she was diag nosed with Cushing’s disease caused by an adrenocorticotropic hormone (ACT H)-producing pituitary adenoma in laboratory tests and imaging\, which was resected in 2020. Read more at https://cushings.invisionzone.com/topic/5 7711-talus-avascular-necrosis-as-a-rare-complication-of-cushing%E2%80%99s- disease/ X-ALT-DESC;FMTTYPE=text/html:We report a middle-aged woman with Cu shing&rsquo\;s syndrome symptoms\, such as hypertension and moon face\, si nce her youth. A few years ago\, she experienced pain and swelling in her ankle\, which was diagnosed as atraumatic \;AVNT \;and treated wit h hindfoot fusion. Years later\, she was diagnosed with Cushing&rsquo\;s d isease caused by an adrenocorticotropic hormone (ACTH)-producing pituitary adenoma in laboratory tests and imaging\, which was resected in 2020.&nbs p\;
Read more at \;https://cushi ngs.invisionzone.com/topic/57711-talus-avascular-necrosis-as-a-rare-compli cation-of-cushing%E2%80%99s-disease/
CATEGORIES:Cushings UID:20240405T0838090Z-549422-1768@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210713 SUMMARY:Patient and Provider Perspectives on Postsurgical Recovery of Cushi ng Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220713;BYMONTHDAY=13 DESCRIPTION:Poor communication between physicians and CS patients may contr ibute to dissatisfaction with the postsurgical experience. Increased infor mation on recovery\, including helpful coping mechanisms\, and improved pr ovider-physician communication may improve HRQOL during recovery. Read mor e at https://cushings.invisionzone.com/topic/55789-patient-and-provider-pe rspectives-on-postsurgical-recovery-of-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Poor communication between physicians and C S patients may contribute to dissatisfaction with the postsurgical experie nce. Increased information on recovery\, including helpful coping mechanis ms\, and improved provider-physician communication may improve HRQOL durin g recovery.
Read more at \;https://cushings.invisionzone.c om/topic/55789-patient-and-provider-perspectives-on-postsurgical-recovery- of-cushing-syndrome/
CATEGORIES:News Items UID:20210713T1120110Z-549422-1404@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210622 SUMMARY:Bradley Javorsky\, MD\, on a New Cortisol Cutoff for Adrenal Insuff iciency Diagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220622;BYMONTHDAY=22 DESCRIPTION:With the goal of reducing false positives for adrenal insuffici ency (AI)\, scientists are recommending a new\, more precise diagnostic cu toff of 14-15 μg/dL of serum cortisol\, rather than the current 18 μg/dL. Read more at https://cushings.invisionzone.com/topic/55736-bradley-javorsk y-md-on-a-new-cortisol-cutoff-for-adrenal-insufficiency-diagnosis/ X-ALT-DESC;FMTTYPE=text/html:With the goal of reducing false positives f or adrenal insufficiency (AI)\, scientists are recommending a new\, more p recise diagnostic cutoff of 14-15 &mu\;g/dL of serum cortisol\, rather tha n the current 18 &mu\;g/dL.
Read more at \;https://cushi ngs.invisionzone.com/topic/55736-bradley-javorsky-md-on-a-new-cortisol-cut off-for-adrenal-insufficiency-diagnosis/
CATEGORIES:News Items UID:20210622T0643280Z-549422-1403@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20260110 SUMMARY:Diagnostic Performance of Desmopressin Stimulation Test in Pediatri c Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300110;BYMONTHDAY=10 DESCRIPTION:To evaluate the diagnostic performance of the desmopressin (DDA VP) stimulation test in pediatric patients with Cushing’s disease (CD)\, a nd to compare its accuracy and safety profile to the ovine corticotropin-r eleasing hormone (oCRH) stimulation test. https://cushings.invisionzone.co m/topic/57940-diagnostic-performance-of-desmopressin-stimulation-test-in-p ediatric-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:To evaluate the diagnostic performanc e of the desmopressin (DDAVP) stimulation test in pediatric patients with Cushing&rsquo\;s disease (CD)\, and to compare its accuracy and safety pro file to the ovine corticotropin-releasing hormone (oCRH) stimulation test.
CATEGORIES:Cushings UID:20260110T2356280Z-549422-2060@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220330 SUMMARY:Comment added to Magdalena\, Food-Dependent Cushing's Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250330;BYMONTHDAY=30 DESCRIPTION:hello\,i found your story while researching gip induced cushing s. your story was very touching to me. i am sorry you had to endure all th is. it is so completely frusterating when the doctors dont understand .i w as recently diagnosed with subclinical cushings but now have more tests co nfirming high cortisol. i have bilateral tumors causing mine. although rec ently my symptoms have increased. i am barely able to eat anything without stomach pain and upset. my list of foods that i can eat is becoming incre asing small. your story and symptoms of the pain and stomach swelling is t he same. sadly also my 13 year old daughter is starting to develop food in sensitivities and food intolerances... Read more at https://cushingsbios.c om/2013/06/23/magdalena-food-dependent-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:hello\,i found your story while researching gip induced cushings. your story was very touching to me. i am sorry you had to endure all this. it is so completely frusterating when the doctors dont understand .i was recently diagnosed with subclinical cushings but no w have more tests confirming high cortisol. i have bilateral tumors causin g mine. although recently my symptoms have increased. i am barely able to eat anything without stomach pain and upset. my list of foods that i can e at is becoming increasing small. your story and symptoms of the pain and s tomach swelling is the same. sadly also my 13 year old daughter is startin g to develop food insensitivities and food intolerances...
Read mo re at \;https://cushingsbios.com/2013/06/23 /magdalena-food-dependent-cushings-bio/
CATEGORIES:Cushie Bios UID:20220330T1257170Z-549422-1540@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220513 SUMMARY:Copeptin Levels Before and After Transsphenoidal Surgery for Cushin g Disease: A Potential Early Marker of Remission RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250513;BYMONTHDAY=13 DESCRIPTION:A difference in peak postoperative plasma copeptin as an early marker to predict remission of CD was not consistently present\, although the data point to the need for a larger sample size to further evaluate th is. However\, the utility of this test may be limited to those who develop neither DI nor SIADH postoperatively. Read more at https://cushings.invis ionzone.com/topic/56900-copeptin-levels-before-and-after-transsphenoidal-s urgery-for-cushing-disease-a-potential-early-marker-of-remission/ X-ALT-DESC;FMTTYPE=text/html:A difference in peak postoperative plasma c opeptin as an early marker to predict remission of CD was not consistently present\, although the data point to the need for a larger sample size to further evaluate this. However\, the utility of this test may be limited to those who develop neither DI nor SIADH postoperatively.
CATEGORIES:Cushings UID:20220513T1406300Z-549422-1565@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190625 SUMMARY:Post-traumatic Stress Symptoms Common in Cushing’s Patients Before Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200625;BYMONTHDAY=25 DESCRIPTION:Patients with Cushing’s disease may develop post-traumatic stre ss symptoms\, which are generally resolved once they undergo surgery to re move the tumor\, but can persist in some cases\, a study shows. The study\ , “Posttraumatic stress symptoms (PTSS) in patients with Cushing’s disease before and after surgery: A prospective study\,” was published in the Jou rnal of Clinical Neuroscience. Read more at https://cushieblog.com/2019/06 /29/post-traumatic-stress-symptoms-common-in-cushings-patients-before-surg ery/ X-ALT-DESC;FMTTYPE=text/html:Patients with \;Cushing&rsquo\;s diseas e \;may develop \;post-traumatic stress symptoms\, wh ich are generally resolved once they undergo surgery to remove the tumor\, but can persist in some cases\, a study shows.
The study\, &ldquo \;Posttraumatic stress symptoms (PTSS) in patients with Cushi ng&rsquo\;s disease before and after surgery: A prospective study\,&rdquo\; was published in the \;Journal of Clinical Neuroscience.
Read m ore at \; https://cushieblog.com/2019/06/29/post-traumatic-stress-symptoms-common-in -cushings-patients-before-surgery/
CATEGORIES:News Items UID:20190630T0020270Z-549422-1182@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Theodore Friedman Webinar on Treatments for Insomnia DTSTART;VALUE=DATE:20190519 DTEND;VALUE=DATE:20190520 RRULE:FREQ=WEEKLY;UNTIL=20190603;BYDAY=SU DESCRIPTION:Dr. Theodore Friedman hosts Jay Khorsandi\, DDS and Barbara Bur ggraaff\, MD from Snore Experts for an important webinar on insomnia Read more at https://cushieblogger.com/2019/05/19/theodore-friedman-webinar-on- treatments-for-insomnia-june-2-2019/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman hosts Jay Khorsandi\, DDS and Barbara Burggraaff\, MD from Snore Experts for an important webin ar on insomnia
Read more at \;https://cushieblogger.com/2019/05/19/theodore-fried man-webinar-on-treatments-for-insomnia-june-2-2019/
CATEGORIES:Events and Meetings UID:20190519T2058110Z-549422-1164@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220409 SUMMARY:Osilodrostat Normalizes Urinary Free Cortisol in Most Adults with C ushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240409;BYMONTHDAY=9 DESCRIPTION:More than three-quarters of adults with Cushing’s disease assig ned osilodrostat had a normalized mean urinary free cortisol level at 12 w eeks and maintained a normal level at 36 weeks. Read more at https://cushi ngs.invisionzone.com/topic/56787-osilodrostat-normalizes-urinary-free-cort isol-in-most-adults-with-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:More than three-quarters of adults with Cus hing&rsquo\;s disease assigned osilodrostat had a normalized mean urinary free cortisol level at 12 weeks and maintained a normal level at 36 weeks.
CATEGORIES:News Items UID:20220409T1508280Z-549422-1548@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New Testimonial From Karen N DTSTART;VALUE=DATE:20181028 DTEND;VALUE=DATE:20181029 RRULE:FREQ=MONTHLY;UNTIL=20191001;BYDAY=-1SU DESCRIPTION:I have been a proud member for around 12 of those years! ~ In r esponse to a Facebook post on the Birthday of the Message Boards Posted at https://cushieblogger.com/testimonial/karen-n/ X-ALT-DESC;FMTTYPE=text/html:I have been a proud member for around 12 of those years!
~ In response to \;a Facebook post on the \; Birthday of the Message Boards
Posted at \;https://c ushieblogger.com/testimonial/karen-n/ \; \;
CATEGORIES:Cushings UID:20181001T0112570Z-549422-979@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to In Memory: Shianne Lombard-Treman\, March 28\, 201 8 DTSTART;VALUE=DATE:20180507 DTEND;VALUE=DATE:20180508 RRULE:FREQ=MONTHLY;UNTIL=20190402;BYDAY=1MO DESCRIPTION:I was also suffer a long time Cushing syndrome\,10 years before they figure it out\, or should I say “believed me”. I In the comments are a of https://cushingsbios.com/2018/04/01/in-memory-shianne-lombard-treman- march-28-2018/ X-ALT-DESC;FMTTYPE=text/html:I was also suffer a long time Cushing syndr ome\,10 years before they figure it out\, or should I say &ldquo\;believed me&rdquo\;. I
In the comments area of \;https://cushingsbios.com/2018/04/01/in-memory-shianne-lomba rd-treman-march-28-2018/
CATEGORIES:Cushie Bios UID:20180402T2037070Z-549422-870@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180402 SUMMARY:Digging deep - Depression\, anxiety and suicide. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190402;BYMONTHDAY=2 EXDATE;VALUE=DATE:20190402 DESCRIPTION:...We lost a young woman with Cushing's to suicide in 2014. The re are rumors now that another recent loss was suicide as well. In my mind \, regardless of what the exact cause was\, Cushing's is at fault. Cushin g's led them to their deaths just as surely as if it had struck the death blow itself. If that is hard for you to fathom\, then please allow me to e ducate you briefly on this dastardly\, 'most morbid of diseases' and why I feel the way I do.... Read more at https://cushieblogger.com/2018/04/02/d igging-deep-depression-anxiety-and-suicide/ X-ALT-DESC;FMTTYPE=text/html:...We lost a young woman with Cushing's to suicide in 2014. There are rumors now that another recent loss was suicide as well. In my mind\, regardless of what the exact cause was\, Cushing's is at fault. \;Cushing's led them to their deaths just as surely as i f it had struck the death blow itself. If that is hard for you to fathom\, then please allow me to educate you briefly on this dastardly\, 'most mor bid of diseases' and why I feel the way I do....
Read more at \;https://cushieblogger.com/2018/04/02/d igging-deep-depression-anxiety-and-suicide/
CATEGORIES:Awareness Challenge UID:20180402T2041030Z-549422-871@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241101 SUMMARY:Corcept’s relacorilant GRADIENT trial misses primary endpoint RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301101;BYMONTHDAY=1 DESCRIPTION:The Phase III GRADIENT trial for relacorilant has missed its pr imary endpoint of improving SBP for Cushing's syndrome patients. https://c ushings.invisionzone.com/topic/57763-corcept%E2%80%99s-relacorilant-gradie nt-trial-misses-primary-endpoint/ X-ALT-DESC;FMTTYPE=text/html:The Phase III GRADIENT trial for rela corilant has missed its primary endpoint of improving SBP for Cushing's sy ndrome patients.
CATEGORIES:Cushings UID:20241101T1540580Z-549422-1827@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20240331T180000 DTEND;TZID=America/New_York:20240331T190000 SUMMARY:Webinar March 31! Medical Treatment for Cushing’s Disease DESCRIPTION:In this informative webinar\, Dr. Friedman will discuss What me dicines to use to treat Cushing’s disease Side effects and timing of the m edicines The use of ketoconazole for a medication trial before surgery Lo nger-term treatment for Cushing’s How to determine when a patient should g o to surgery Read more at https://cushings.invisionzone.com/topic/57705-we binar-march-31-medical-treatment-for-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:In this informative webinar\, Dr. F riedman will discuss
Read mo re at \;https://cushings.invisionzone.com/topic/57705-webinar-mar ch-31-medical-treatment-for-cushing%E2%80%99s-disease/
CATEGORIES:Events and Meetings UID:20240321T0811520Z-549422-1757@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240321 SUMMARY:Shagufta\, Pituitary Recurrence RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270321;BYMONTHDAY=21 DESCRIPTION:Shagufta is a Cushings survivor - post pituitary surgery 20 yea rs ago. Cushing's came back in 2008 after three surgeries. Was put on medi cation until 2012 when s/he had gamma knife radiotherapy. Still has health issues... Read more at https://cushings.invisionzone.com/topic/57703-godo 1965dar/#comment-478580 X-ALT-DESC;FMTTYPE=text/html:Shagufta is a Cushings survivor - pos t pituitary surgery 20 years ago. Cushing's came back in 2008 after three surgeries. Was put on medication until 2012 when s/he had gamma knife radi otherapy. Still has health issues...
Read more at&nbs p\;https://cushings.invisionzone. com/topic/57703-godo1965dar/#comment-478580
CATEGORIES:Cushie Bios UID:20240321T0828460Z-549422-1758@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230626 SUMMARY:Webinar: Good Hormone Health Webinar Sunday July 9\, 2023\, 2023. 6 PM PST RRULE:FREQ=DAILY;COUNT=11 DESCRIPTION:Dr. Theodore Friedman (The Wiz) will giving a webinar on Ozempi c and other new weight loss medicines. More info at https://cushings.invis ionzone.com/topic/57611-webinar-good-hormone-health-webinar-sunday-july-9- 2023-2023-6-pm-pst/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman (The Wiz) will giving a webinar on Ozempic and other new weight loss medicines.
More in fo at \;https://cushings.invisionzone.com/topic/57611-webinar -good-hormone-health-webinar-sunday-july-9-2023-2023-6-pm-pst/
CATEGORIES:Events and Meetings UID:20230626T0805080Z-549422-1651@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190105 SUMMARY:New Helpful Doctor added to New Jersey RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200105;BYMONTHDAY=5 DESCRIPTION:James K. Liu\, MD Professor of Neurosurgery Director of Skull B ase and Pituitary Surgery Rutgers University\, New Jersey Medical School R WJ Barnabas Health Read more at https://cushieblogger.com/2019/01/05/helpf ul-doctors-new-jersey/ X-ALT-DESC;FMTTYPE=text/html:James K. Liu\, MD
Professor of Neurosu
rgery
Director of Skull Base and Pituitary Surgery
Rutgers Unive
rsity\, New Jersey Medical School
RWJ Barnabas Health
Read mo re at \;https://cushieblogger.com/2019/01/05/helpful- doctors-new-jersey/
CATEGORIES:Helpful Doctors UID:20190106T0125020Z-549422-1058@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250923 SUMMARY:Relacorilant and Cardiometabolic Outcomes RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270923;BYMONTHDAY=23 DESCRIPTION:New data on relacorilant (Corcept Therapeutics)\, a selective g lucocorticoid receptor modulator\, revealed several cardiometabolic benefi ts for patients with hypercortisolism. Researchers presented results from the GRACE and GRADIENT trials\, which assessed relacorilant in adults with hypercortisolism. GRACE was an open-label trial that enrolled adults with endogenous hypercortisolism\, whereas GRADIENT included those with adrena l hypercortisolism and randomly assigned participants to relacorilant or p lacebo. https://cushings.invisionzone.com/topic/57883-relacorilant-and-car diometabolic-outcomes/ X-ALT-DESC;FMTTYPE=text/html:New data on \;relacorilant \;(Corcept Therapeutics)\, a selective gluco corticoid receptor modulator\, revealed several cardiometabolic benefits f or patients with hypercortisolism.
Researchers presented results f rom the GRACE and GRADIENT trials\, which assessed relacorilant in adults with hypercortisolism. GRACE was an open-label trial that enrolled adults with endogenous hypercortisolism\, whereas GRADIENT included those with ad renal hypercortisolism and randomly assigned participants to relacorilant or placebo.
https://cushings.invisionzone.com/topic/57883-relacorilant-and-cardiomet abolic-outcomes/
CATEGORIES:Cushings UID:20250923T1009340Z-549422-1938@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210403 SUMMARY:Kind Words for Cushing’s Awareness Month RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300403;BYMONTHDAY=3 DESCRIPTION:Through the newly available dial-up internet\, I joined forces with a small group of wonderful Cushing’s advocates. Cathy Gifford and Mar y O’Connor\, were my first Cushing’s friends\, and are still dear friends twenty one years later. Together we got things moving. Mary\, has built th e largest Cushing’s support boards\, and her admirable dedication continue s to help and support patients from all over the world\, Cushing’s Help an d Support (cushings-help.com). Read more at https://cushieblogger.com/20 22/04/03/kind-words-for-cushings-awareness-month/ X-ALT-DESC;FMTTYPE=text/html:Through the newly available dial-up int ernet\, I joined forces with a small group of wonderful Cushing&rsquo\;s a dvocates. Cathy Gifford and Mary O&rsquo\;Connor\, were my first Cushing&r squo\;s friends\, and are still dear friends twenty one years later. Toget her we got things moving. Mary\, has built the largest Cushing&rsquo\;s su pport boards\, and her admirable dedication continues to help and support patients from all over the world\, \;Cushing&rsquo\;s Help and Support (cushings -help.com).
\;
Read more at \;https://cushieblogger.com/2022/04/03/ki nd-words-for-cushings-awareness-month/
CATEGORIES:Awareness Challenge UID:20231103T1414270Z-549422-1348@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250630 SUMMARY:Reconstructive Liposuction for Residual Lipodystrophy After Remissi on of Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280630;BYMONTHDAY=30 DESCRIPTION:We report a case of a 16-year-old female with recurrent Cushing ’s disease secondary to a pituitary microadenoma\, confirmed by elevated u rinary free cortisol and magnetic resonance imaging (MRI). It was initiall y treated with transsphenoidal resection in 2019\; disease recurrence was confirmed and again treated in 2024. https://cushings.invisionzone.com/top ic/57848-reconstructive-liposuction-for-residual-lipodystrophy-after-remis sion-of-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:We report a case of a 16-year-old fem ale with recurrent Cushing&rsquo\;s disease secondary to a pituitary micro adenoma\, confirmed by elevated urinary free cortisol and magnetic resonan ce imaging (MRI). It was initially treated with transsphenoidal resection in 2019\; disease recurrence was confirmed and again treated in 2024.
CATEGORIES:Cushings UID:20250630T2254320Z-549422-1911@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250725 SUMMARY:The Outcome of Abnormal Glucose Metabolism and Its Clinical Feature s in Patients With Cushing’s Disease After Curative Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270725;BYMONTHDAY=25 DESCRIPTION:Cushing's patients demonstrated a high incidence of abnormal gl ucose metabolism. Notably\, approximately two-thirds demonstrated improved glucose metabolism one year after curative surgery\, with the greatest im provements observed at 3- to 6-month postoperative follow-up. https://cush ings.invisionzone.com/topic/57858-the-outcome-of-abnormal-glucose-metaboli sm-and-its-clinical-features-in-patients-with-cushing%E2%80%99s-disease-af ter-curative-surgery/#comment-479047 X-ALT-DESC;FMTTYPE=text/html:Cushing's patients demonstrated a hig h incidence of abnormal glucose metabolism. Notably\, approximately two-th irds demonstrated improved glucose metabolism one year after curative surg ery\, with the greatest improvements observed at 3- to 6-month postoperati ve follow-up.
CATEGORIES:Cushings UID:20250726T0912030Z-549422-1917@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190430 SUMMARY:Archived Interview: Robin (staticnrg) and Mary O’Connor (MaryO) Dis cussed Spreading the Word about Cushing’s DESCRIPTION:Part 1. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blo gs and other topics of interest to Cushing’s Patients. Listen at http://ww w.blogtalkradio.com/cushingshelp/2008/08/21/tentative-interview-with-josel le Part 2. Robin and MaryO discuss the role of blogs in helping to spre ad the word about Cushing’s. They also discuss popular doctor blogs and ot her topics of interest to Cushing’s Patients\, friends and family. Listen at http://www.blogtalkradio.com/cushingshelp/2008/09/25/robin-staticnrg-an d-mary-oconnor-maryo-discuss-spreading-the-word-about-cushings-part-2 X-ALT-DESC;FMTTYPE=text/html:Part 1. \;Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing&rsquo\;s. They also discussed popular doctor blogs and other topics of interest to Cushin g&rsquo\;s Patients.
Listen at \;http://www.blogtalkradio.com/cushingshe lp/2008/08/21/tentative-interview-with-joselle
\;
Part 2. \; \;Robin and MaryO discuss the role of blogs in helping to spread the word about Cushing&rsquo\;s. They also discuss popular doct or blogs and other topics of interest to Cushing&rsquo\;s Patients\, frien ds and family.
CATEGORIES:Events and Meetings UID:20190501T0445050Z-549422-1155@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Why It's Safer Than Ever To Remove Pituitary Tumors DTSTART;VALUE=DATE:20190803 DTEND;VALUE=DATE:20190804 RRULE:FREQ=MONTHLY;UNTIL=20200706;BYDAY=1SA DESCRIPTION:Pituitary tumors are unusually common. Fifteen percent of adult s have one. Most do not cause symptoms or require treatment. If you have o ne that does\, your treatment may involve medication\, radiation\, and sur gery. Removing a pituitary tumor by surgery can be tricky. The gland is su rrounded by carotid arteries\, optic nerves\, and lots of important brain matter. Nor is it easy to access or visualize. But with the help of revolu tionary technology and modern expertise\, surgeons are now able to remove pituitary tumors in a safe and minimally invasive way. Read more at https: //cushieblog.com/2019/07/06/why-its-safer-than-ever-to-remove-pituitary-tu mors/ X-ALT-DESC;FMTTYPE=text/html:Pituitary tumors are unusually common. Fift een percent of adults have one. Most do not cause symptoms or require trea tment. If you have one that does\, your treatment may involve medication\, radiation\, and surgery.
Removing a pituitary tumor by surgery ca n be tricky. The gland is surrounded by carotid arteries\, optic nerves\, and lots of important brain matter. Nor is it easy to access or visualize. But with the help of revolutionary technology and modern expertise\, surg eons are now able to remove pituitary tumors in a safe and minimally invas ive way.
Read more at \; https://cushieblog.com/2019/07/06/why-its-safer-than-ever-to-remove-pituit ary-tumors/
CATEGORIES:Cushings UID:20190706T1204040Z-549422-1186@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190803 SUMMARY:Taylor D\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200803;BYMONTHDAY=3 DESCRIPTION:Taylor is from Florence SC.. She was a healthy young adult whe n she started as a student at the University of South Carolina in the fall of 2015\, but soon into her college career\, she began experiencing sever al symptoms\, such as weight gain\, insomnia and panic attacks. Davis spen t the next three years going from doctor to doctor trying to get a diagnos is for her symptoms. Read more at https://cushingsbios.com/2019/08/03/tayl or-d-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Taylor is from Florence SC.. \;She was a healthy young adult when she started as a student at the University of South Carolina in the fall of 2015\, but soon into her college career\, sh e began experiencing several symptoms\, such as weight gain\, insomnia and panic attacks. Davis spent the next three years going from doctor to doct or trying to get a diagnosis for her symptoms.
Read more at \; https://cushingsbios.com/2019/08/03/taylor-d-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190803T1348090Z-549422-1192@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Recovery of HPA Axis Can Occur Late After Transsphenoidal Adenomect omy DTSTART;VALUE=DATE:20190907 DTEND;VALUE=DATE:20190908 RRULE:FREQ=MONTHLY;UNTIL=20200803;BYDAY=1SA DESCRIPTION:Recovery of the hypothalamus-pituitary-adrenal (HPA) axis can o ccur as late as 12 months after transsphenoidal adenomectomy (TSA)\, accor ding to study results published in The Journal of Clinical Endocrinology & Metabolism. These findings emphasize the need to periodically assess thes e patients to avoid unnecessary hydrocortisone replacement. Read more at h ttps://cushieblog.com/2019/08/03/recovery-of-hpa-axis-can-occur-late-after -transsphenoidal-adenomectomy/ X-ALT-DESC;FMTTYPE=text/html:Recovery of the hypothalamus-pituitary-adre nal (HPA) axis can occur as late as 12 months after transsphenoidal adenom ectomy (TSA)\, according to study results published in \;The Journ al of Clinical Endocrinology &\; Metabolism. These findings emphas ize the need to periodically assess these patients to avoid unnecessary&nb sp\;hydrocortisone \;replacement.
Read more at \;https://cushieblog.com/20 19/08/03/recovery-of-hpa-axis-can-occur-late-after-transsphenoidal-adenome ctomy/
CATEGORIES:News Items UID:20190803T1504130Z-549422-1193@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Tamara K\, Pituitary Bio DTSTART;VALUE=DATE:20180518 DTEND;VALUE=DATE:20180519 RRULE:FREQ=MONTHLY;UNTIL=20190420;BYDAY=3FR DESCRIPTION:...I too have Cushings. I have a recurrence of my tumor and I a m currently taking medication. You are not alone. In the comments area of https://cushingsbios.com/2018/04/03/tamara-k-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:...I too have Cushings. I have a recurrence of my tumor and I am currently taking medication. You are not alone.
In the comments area of \;https://cushingsbios.com/201 8/04/03/tamara-k-pituitary-bio/
CATEGORIES:Cushie Bios UID:20180420T1418320Z-549422-910@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190423 SUMMARY:Archived Interview: Heather S\, Pituitary Cushing’s Survivor DESCRIPTION:Heather\, pituitary surgery on January 18\, 2006 after years of medical problems\, June 5\, 7:30PM Listen at https://cushieblogger.com/2 019/04/24/archived-interview-heather-s-pituitary-cushings-survivor/ X-ALT-DESC;FMTTYPE=text/html:Heather\, pituitary surgery on January 18\, 2006 after years of medical problems\, June 5\, 7:30PM \;
Lis ten at \;https://cushie blogger.com/2019/04/24/archived-interview-heather-s-pituitary-cushings-sur vivor/
CATEGORIES:Events and Meetings UID:20190424T2123420Z-549422-1142@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190402 SUMMARY:Digging deep - Depression\, anxiety and suicide. DESCRIPTION:...We lost a young woman with Cushing's to suicide in 2014. The re are rumors now that another recent loss was suicide as well. In my mind \, regardless of what the exact cause was\, Cushing's is at fault. Cushin g's led them to their deaths just as surely as if it had struck the death blow itself. If that is hard for you to fathom\, then please allow me to e ducate you briefly on this dastardly\, 'most morbid of diseases' and why I feel the way I do.... Read more at https://cushieblogger.com/2019/04/02/d igging-deep-depression-anxiety-and-suicie/ X-ALT-DESC;FMTTYPE=text/html:...We lost a young woman with Cushing's to suicide in 2014. There are rumors now that another recent loss was suicide as well. In my mind\, regardless of what the exact cause was\, Cushing's is at fault. \;Cushing's led them to their deaths just as surely as i f it had struck the death blow itself. If that is hard for you to fathom\, then please allow me to educate you briefly on this dastardly\, 'most mor bid of diseases' and why I feel the way I do....
Read more at \;https://cushieblogger.com/2019/04/02/di gging-deep-depression-anxiety-and-suicie/
CATEGORIES:Awareness Challenge UID:20190402T2216170Z-549422-1113@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190306 SUMMARY:Barbara S\, Steroid-Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200306;BYMONTHDAY=6 DESCRIPTION:Barbara is from Columbus\, Ohio She has been experiencing symp toms since the mid 1990s. Barbara spent almost four years on high doses of steroids for a brain tumor\, and had difficulty being weaned off. Read mo re at https://cushingsbios.com/2019/03/06/barbara-s-steroid-use-bio/ X-ALT-DESC;FMTTYPE=text/html:Barbara is from Columbus\, Ohio \;She has been experiencing symptoms since the mid 1990s. Barbara spent almost f our years on high doses of steroids for a brain tumor\, and had difficulty being weaned off.
Read more at \;https://cushi ngsbios.com/2019/03/06/barbara-s-steroid-use-bio/
CATEGORIES:Cushie Bios UID:20190306T1148290Z-549422-1091@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190306 SUMMARY:Hormonal Imbalance – Indication of Pituitary Gland Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200306;BYMONTHDAY=6 DESCRIPTION:“Highlights of the therapy being ease of access to any complex location without the need to use the surgical knife\, precision of the bea m with high dose radiation to the tumor location\, and the safety. It is a day care procedure without pain and risk\, and the patient can get back t o daily chores as soon as the session gets over which depends on the tumor typically (30 minutes) and hence eliminates the requirement of any hospit al stay.” Added Dr Gupta Read more at https://cushieblog.com/2019/03/06/ho rmonal-imbalance-indication-of-pituitary-gland-tumors/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;Highlights of the therapy being eas e of access to any complex location without the need to use the surgical k nife\, precision of the beam with high dose radiation to the tumor locatio n\, and the safety. It is a day care procedure without pain and risk\, and the patient can get back to daily chores as soon as the session gets over which depends on the tumor typically (30 minutes) and hence eliminates th e requirement of any hospital stay.&rdquo\; \;Added Dr Gupta
R ead more at \;https://cushi eblog.com/2019/03/06/hormonal-imbalance-indication-of-pituitary-gland-tumo rs/
CATEGORIES:News Items UID:20190306T1214060Z-549422-1092@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New Testimonial From Lisa A DTSTART;VALUE=DATE:20181028 DTEND;VALUE=DATE:20181029 RRULE:FREQ=MONTHLY;UNTIL=20190930;BYDAY=-1SU DESCRIPTION:I met some of my closest friends on the Cushing's board! Thank you Mary Kelly O'Connor From https://cushieblogger.com/testimonial/lisa-a- 3/ X-ALT-DESC;FMTTYPE=text/html:I met some of my closest friends on the Cus hing's board! Thank you \;Mary Kelly O 'Connor
From \;https://cushieblogger.com/testimonial/lisa- a-3/
CATEGORIES:Cushings UID:20180930T1038420Z-549422-978@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Tenth Annual Johns Hopkins Pituitary Patient Day DTSTART;VALUE=DATE:20180601 DTEND;VALUE=DATE:20180602 RRULE:FREQ=WEEKLY;UNTIL=20181013;INTERVAL=2;BYDAY=FR DESCRIPTION:Register now for the 10th Annual Johns Hopkins Pituitary Patien t Day Saturday\, October 13\, 2018\, 9:00 a.m. to 3:00 p.m. More info at h ttps://cushieblogger.com/2018/05/18/tenth-annual-johns-hopkins-pituitary-p atient-day/ X-ALT-DESC;FMTTYPE=text/html:Register now for the 10th Annual Johns Hopk ins Pituitary Patient Day
Saturday\, October 13\, 2018\, \;9:0 0 a.m. to 3:00 p.m.
More info at \;https://cushieblogger.com/2018/05/18/tenth-annual-johns-hopkin s-pituitary-patient-day/
\;
CATEGORIES:Events and Meetings UID:20180518T1359280Z-549422-936@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220106 SUMMARY:'Benign' Adrenal Gland Tumors Might Cause Harm to Millions RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230106;BYMONTHDAY=6 DESCRIPTION:As many as 1 in 10 people have a non-cancerous tumor on one or both of their adrenal glands that could cause the gland to produce excess amounts of the stress hormone cortisol. Read more at https://cushings.invi sionzone.com/topic/56446-benign-adrenal-gland-tumors-might-cause-harm-to-m illions/ X-ALT-DESC;FMTTYPE=text/html:As many as 1 in 10 people have a non-cancer ous tumor on one or both of their adrenal glands that could cause the glan d to produce excess amounts of the stress hormone cortisol.
Read m ore at \;https ://cushings.invisionzone.com/topic/56446-benign-adrenal-gland-tumors-might -cause-harm-to-millions/
CATEGORIES:Cushings UID:20220106T1209330Z-549422-1492@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Can You Help With a Guest Question? DTSTART;VALUE=DATE:20180428 DTEND;VALUE=DATE:20180429 RRULE:FREQ=MONTHLY;UNTIL=20190331;BYDAY=-1SA DESCRIPTION:Is it possible to have cushing disease without high blood press ure? they are experiencing a lot of the other symptoms kidney stones\, hea dache\, fatigue\, joint pain\, stretch marks on back\, abdomen\, arms\, br easts\, hair loss\, obesity in stomach area\, potbelly\, thin legs\, memor y issues\, thinning of skin\, irregular periods\, oily skin\, acne\, puffy face etc. Read more at https://cushieblogger.com/2018/03/31/can-you-help- with-a-guest-question/ X-ALT-DESC;FMTTYPE=text/html:Is it possible to have cushing disease with out high blood pressure? they are experiencing a lot of the other symptoms kidney stones\, headache\, fatigue\, joint pain\, stretch marks on back\, abdomen\, arms\, breasts\, hair loss\, obesity in stomach area\, potbelly \, thin legs\, memory issues\, thinning of skin\, irregular periods\, oily skin\, acne\, puffy face etc.
Read more at \;https://cushieblogger.com/2018/03/31/can-you-help-with-a-guest-qu estion/
CATEGORIES:Cushings UID:20180331T1352130Z-549422-859@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180414 SUMMARY:Comment added to Rachelle L (Rachelle)\, Mother-in-Law of Pituitary Patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190414;BYMONTHDAY=14 DESCRIPTION:Dr. John Lee was a doctor who wrote extensively about progester one therapy for women in menopause. This is one of his books on amazon: ht tps://amzn.to/2JJ1JWw Here’s a lecture on the HPA Axis... Read more in the comments area of https://cushingsbios.com/2018/04/10/rachelle-l-rachelle- mother-in-law-of-pituitary-patient/ X-ALT-DESC;FMTTYPE=text/html:Dr. John Lee was a doctor who wrote extensi vely about progesterone therapy for women in menopause. This is one of his books on amazon: \;h ttps://amzn.to/2JJ1JWw
Here&rsquo\;s a lecture on the HPA Axis ...
Read more in the comments area of \;https://cushingsbios.com/2018/04/10/rachelle-l-rache lle-mother-in-law-of-pituitary-patient/
CATEGORIES:Cushie Bios UID:20180414T1259330Z-549422-907@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Wendy I\, Pituitary Bio DTSTART;VALUE=DATE:20190918 DTEND;VALUE=DATE:20190919 RRULE:FREQ=MONTHLY;UNTIL=20200821;BYDAY=3WE DESCRIPTION:Wendy is from Grand Rapids MI. She is newly diagnosed (5/2019) with a pituitary tumor\, waiting for appointment at the University of Mic higan on 9/26. Read more at https://cushingsbios.com/2019/08/21/wendy-i-pi ano-bio/ X-ALT-DESC;FMTTYPE=text/html:Wendy is from Grand Rapids MI. \;She i s newly diagnosed (5/2019) with a pituitary tumor\, waiting for appointmen t at the University of Michigan on 9/26.
Read more at \;https://cushingsbios.com/2019/08/21/wendy-i-piano-bio/
CATEGORIES:Cushie Bios UID:20190822T0022280Z-549422-1197@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190715 SUMMARY:Gina\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200715;BYMONTHDAY=15 DESCRIPTION:Gina is from Illinois. She has PCOS and a 2mm pituitary microa denoma. She needs a new endo. Read more at https://cushingsbios.com/2019/ 07/15/gina-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Gina is from Illinois. \;She has PCOS and a 2mm pituitary microadenoma. \;She needs a new endo.
Rea d more at \;https://cushingsbios.com/2019/07/15/gina-pituitary -bio/
CATEGORIES:Cushie Bios UID:20190822T0028460Z-549422-1198@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Louise\, Updated Adrenal Bio DTSTART;VALUE=DATE:20190918 DTEND;VALUE=DATE:20190919 RRULE:FREQ=MONTHLY;UNTIL=20200821;BYDAY=3WE DESCRIPTION:Louise is from Portland\, OR. She has ACTH independent bilatera l adrenal hyperplasia. Read more at https://cushingsbios.com/2019/01/21/lo uise-updated-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Louise is from Portland\, OR. She has ACTH independent bilateral adrenal hyperplasia.
Read more at \;https://cushingsbios.com/2019/01/21/louise-updated-adrenal-bio /
CATEGORIES:Cushie Bios UID:20190822T0049390Z-549422-1199@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190406 SUMMARY:Day 6: Cushing’s Awareness Challenge 2019 DESCRIPTION:Uh\, Oh – I’m nearly a day late (and a dollar short?)…and I’m n ot yet sure what today’s topic will be. I seem swamped by everything late ly\, waking up tired\, napping\, going to bed tired\, waking up in the mid dle of the night\, starting all over again…and my DH was recently diagnose d with cancer which makes everything more hectic and tiring... Read more a t https://cushieblogger.com/2019/04/06/day-6-cushings-awareness-challenge- 2019/ X-ALT-DESC;FMTTYPE=text/html:Uh\, Oh &ndash\; I&rsquo\;m nearly a day la te (and a dollar short?)&hellip\;and I&rsquo\;m not yet sure what today&rs quo\;s topic will be. \;I seem swamped by everything lately\, waking up tired\, napping\, going to bed tired\, waking up in the middle of the n ight\, starting all over again&hellip\;and my DH was recently \;diagno sed with cancer which makes everything more hectic and tiring...
R ead more at \;https://cushieblogger.com/ 2019/04/06/day-6-cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190408T0734180Z-549422-1122@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180404 SUMMARY:From a Past Blogging Challenge: Cushing’s Awareness Challenge ~ Dan ielle\, Day 4 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300404;BYMONTHDAY=4 EXDATE;VALUE=DATE:20240404 DESCRIPTION:I have often said\, I wish I had cancer instead. Most people w ould not understand this sentiment\, why in the world would you wish for s uch a horrible disease?... Read more at https://cushieblogger.com/2025/04/ 04/from-a-past-blogging-challenge-cushings-awareness-challenge-danielle-da y-4/ X-ALT-DESC;FMTTYPE=text/html:I have often said\, I wish I had cancer ins tead. \;Most people would not understand this sentiment\, why in the world would you wish for such a horrible disease?...
Read more at& nbsp\;https://cushieblogger.com/2025/04/04/from-a-past-blogging-chal lenge-cushings-awareness-challenge-danielle-day-4/
CATEGORIES:Awareness Challenge UID:20250404T1644250Z-549422-883@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190402 SUMMARY:Comment added to Day 2: Cushing’s Awareness Challenge 2019 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200402;BYMONTHDAY=2 DESCRIPTION:...My family doctor and husband think I am lazy\, fat and crazy when they ship me off to a mental ward. I know I am physically sick but c an’t convince the psychiatrist. He writes in his reports that I am a hypoc hondriac. My controlling\, narcissistic husband tries to gaslight me into believing I am mentally ill. After he admits his affair\, I leave him and find out I have Cushing’s Disease with a pituitary tumor and uterine cance r. I have sucessfull surgery to remove the tumor and cancer... In the comm ents area of https://cushieblogger.com/2019/04/02/day-2-cushings-awareness -challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:...My family doctor and husband think I am lazy\, fat and crazy when they ship me off to a mental ward. I know I am p hysically sick but can&rsquo\;t convince the psychiatrist. He writes in hi s reports that I am a hypochondriac. My controlling\, narcissistic husband tries to gaslight me into believing I am mentally ill. After he admits hi s affair\, I leave him and find out I have Cushing&rsquo\;s Disease with a pituitary tumor and uterine cancer. I have sucessfull surgery to remove t he tumor and cancer...
In the comments area of \;https://cushieblogger.com/2019/04/02/day-2-cushings-aware ness-challenge-2019/
CATEGORIES:Cushie Bios UID:20190402T2224580Z-549422-1114@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180403 SUMMARY:From a Past Blogging Challenge: Cushing’s Awareness Challenge – Dan ielle\, Day 3 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250403;BYMONTHDAY=3 DESCRIPTION:One of my least favorite things about my life with chronic illn ess is having imaging appointments. Whether it's my yearly brain MRI\, or a chest X-ray\, the whole process is uncomfortable\, and sometimes even p ainful... Read more at https://cushieblogger.com/2019/04/03/from-a-past-bl ogging-challenge-cushings-awareness-challenge-danielle-day-3/ X-ALT-DESC;FMTTYPE=text/html:One of my least favorite things about my li fe with chronic illness is having imaging appointments. \;Whether it' s my yearly brain MRI\, or a chest X-ray\, the whole process is uncomforta ble\, and sometimes even painful...
Read more at \;https://cushieblogge r.com/2019/04/03/from-a-past-blogging-challenge-cushings-awareness-challen ge-danielle-day-3/
CATEGORIES:Awareness Challenge UID:20190403T2212270Z-549422-877@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Video: Growth Hormone Supplementation May Contribute To Successful Pregnancy For Women With Hypopituitarism DTSTART;VALUE=DATE:20190507 DTEND;VALUE=DATE:20190508 RRULE:FREQ=MONTHLY;UNTIL=20200402;BYDAY=1TU DESCRIPTION:In this video exclusive\, Maria Fleseriu\, MD\, professor of ne urological surgery and professor of medicine in the division of endocrinol ogy\, diabetes and clinical nutrition in the School of Medicine at Oregon Health & Science University and director of the OHSU Northwest Pituitary C enter\, discusses management of hypopituitarism during pregnancy and an up coming study of effects of growth hormone supplementation. https://cushi eblogger.com/2019/04/02/video-growth-hormone-supplementation-may-contribut e-to-successful-pregnancy-for-women-with-hypopituitarism/ X-ALT-DESC;FMTTYPE=text/html:In this video exclusive\, \;Mar ia Fleseriu\, MD\, \;professor of neurological surgery and pr ofessor of medicine in the division of endocrinology\, diabetes and clinic al nutrition in the School of Medicine at Oregon Health &\; Science Uni versity and director of the OHSU Northwest Pituitary Center\, discusses ma nagement of hypopituitarism during pregnancy and an upcoming study of effe cts of growth hormone supplementation.
\;
CATEGORIES:Cushings UID:20190402T2239450Z-549422-1115@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Archived Interview with Jayne\, Ectopic Cushing’s Patient RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300414;BYMONTH=4;BYMONTHDAY=14 DTSTART;VALUE=DATE:20210414 DTEND;VALUE=DATE:20210415 DESCRIPTION:Mary O’Connor (MaryO) hosted an interview with Jayne\, a Cushin g’s patient who had pituitary surgeries and a bilateral adrenalectomy befo re finding the true source of her ectopic Cushing’s. Read more at https:// cushieblogger.com/2022/04/14/archived-interview-with-jayne-ectopic-cushing s-patient-2/ X-ALT-DESC;FMTTYPE=text/html:Mary O&rsquo\;Connor (MaryO) hosted an inte rview with Jayne\, a Cushing&rsquo\;s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopi c Cushing&rsquo\;s.
Read more at \;https://cushieblogger.com/2022/04/14/archived-intervie w-with-jayne-ectopic-cushings-patient-2/
CATEGORIES:Events and Meetings UID:20220415T1156070Z-549422-1353@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20201114 SUMMARY:Pituitary Support Meeting DESCRIPTION:From group leader Sharmyn McGraw: Hi All\, I hope you can join us on Zoom this Saturday\, Nov. 14\, 2020 starting at 9:00 a.m. (PST). For those that can't make it\, I will record the meeting and post it later on our Facebook page. I look forward to seeing you! See the invite at https: //cushieblogger.com/2020/11/11/pituitary-support-meeting-saturday-november -14-2020/ X-ALT-DESC;FMTTYPE=text/html:From group leader Sharmyn McGraw: Hi All\, I hope you can join us on Zoom this Saturday\, Nov. 14\, 2020 starting at 9:00 a.m. (PST). For those that can't make it\, I will record the meeting and post it later on our Facebook page. I look forward to seeing you!
See the invite at \;http s://cushieblogger.com/2020/11/11/pituitary-support-meeting-saturday-novemb er-14-2020/
CATEGORIES:Events and Meetings UID:20201111T1249160Z-549422-1307@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Kamile\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301106;BYMONTH=11;BYMONTHDAY=6 DTSTART;VALUE=DATE:20251106 DTEND;VALUE=DATE:20251107 DESCRIPTION:58 year old female with high cortisol following many stressful life events. https://cushingsbios.com/2025/11/05/kamile-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:58 year old female with high cortisol following many stressful life events.
https://cushingsbios.com/2025/11/05/kamile-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20251106T0651000Z-549422-1969@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251106 SUMMARY:Secondary Adrenal Insufficiency and Iatrogenic Cushing's Syndrome i n a 13-Year-Old Male With Vogt-Koyanagi-Harada Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301106;BYMONTHDAY=6 DESCRIPTION:We report a 13-year-old male with VKH who developed iatrogenic Cushing’s syndrome and secondary adrenal insufficiency after prolonged pre dnisone treatment. Despite adding mycophenolate mofetil\, tapering failed due to relapses. He showed weight gain\, growth delay\, striae\, and suppr essed cortisol and adrenocorticotropic hormone\, confirming hypothalamic-p ituitary-adrenal axis suppression. https://cushings.invisionzone.com/topi c/57909-secondary-adrenal-insufficiency-and-iatrogenic-cushings-syndrome-i n-a-13-year-old-male-with-vogt-koyanagi-harada-disease/ X-ALT-DESC;FMTTYPE=text/html:We report a 13-year-old male with VKH who developed iatrogenic Cushing&rsquo\;s syndrome and secondary adrenal insufficiency after prolonged prednisone treatment. Despite adding mycophe nolate mofetil\, tapering failed due to relapses. He showed weight gain\, growth delay\, striae\, and suppressed cortisol and adrenocorticotropic ho rmone\, confirming hypothalamic-pituitary-adrenal axis suppression. \;
CATEGORIES:Cushings UID:20251106T0641580Z-549422-1968@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:📰 Age and Hematologic Parameters Can Predict Prolonged Glucocortic oid Replacement After Remission Of Cushing Disease And Adrenal Cushing’s S yndrome RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300504;BYMONTH=5;BYMONTHDAY=4 DTSTART;VALUE=DATE:20260504 DTEND;VALUE=DATE:20260505 DESCRIPTION:Older age\, and lower baseline neutrophils and NLR\, were assoc iated with prolonged postoperative GC replacement. These findings suggest that routine hematologic markers may help predict delayed recovery and gui de individualized tapering strategies. https://cushings.invisionzone.com/t opic/57954-%F0%9F%93%B0-age-and-hematologic-parameters-can-predict-prolong ed-glucocorticoid-replacement-after-remission-of-cushing-disease-and-adren al-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Older age\, and lower baseline neutro phils and NLR\, were associated with prolonged postoperative GC replacemen t. These findings suggest that routine hematologic markers may help predic t delayed recovery and guide individualized tapering strategies.
CATEGORIES:News Items UID:20260504T1526090Z-549422-2086@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Webinar on The 20-minute Mini Back Scope Adrenalectomy (MBSA) DTSTART;VALUE=DATE:20211029 DTEND;VALUE=DATE:20211030 RRULE:FREQ=WEEKLY;UNTIL=20211106;BYDAY=FR DESCRIPTION:Webinar: Dr. Friedman will host Tobias Carling\, MD\, PhD\, FAC S Surgeon-in-Chief & Founder Carling Adrenal Center Hospital for Endocrine Surgery who will talk on the 20-minute Mini Back Scope Adrenalectomy (MBS A). Read more at https://cushings.invisionzone.com/topic/56244-webinar-on- the-20-minute-mini-back-scope-adrenalectomy-mbsa/ X-ALT-DESC;FMTTYPE=text/html:Webinar: Dr. Friedman will host Tobias Carl ing\, MD\, PhD\, FACS Surgeon-in-Chief &\; Founder Carling Adrenal Cent er Hospital for Endocrine Surgery who will talk on the 20-minute Mini Back Scope Adrenalectomy (MBSA).
Read more at \;https://cushings.invisionzone.com /topic/56244-webinar-on-the-20-minute-mini-back-scope-adrenalectomy-mbsa/< /a>
CATEGORIES:Events and Meetings UID:20211029T1131270Z-549422-1443@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190824 SUMMARY:The Relationship of Mitochondrial Dysfunction and the Development o f Insulin Resistance in Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200824;BYMONTHDAY=24 DESCRIPTION:Cushing’s syndrome is characterized by metabolic disturbances i ncluding insulin resistance. Mitochondrial dysfunction is one pathogenic f actor in the development of insulin resistance in patients with obesity. W e explored whether mitochondrial dysfunction correlates with insulin resis tance and other metabolic complications. Read more at https://cushieblog.c om/2019/08/24/the-relationship-of-mitochondrial-dysfunction-and-the-develo pment-of-insulin-resistance-in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is characterized by metabolic disturbances including insulin resistance. Mitochondrial dysf unction is one pathogenic factor in the development of insulin resistance in patients with obesity. We explored whether mitochondrial dysfunction co rrelates with insulin resistance and other metabolic complications.
< p>Read more at \;https://cushieblog.com/2019/08/ 24/the-relationship-of-mitochondrial-dysfunction-and-the-development-of-in sulin-resistance-in-cushings-syndrome/ CATEGORIES:News Items UID:20190824T1611530Z-549422-1201@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:EvE7070\, Pituitary Bio DTSTART;VALUE=DATE:20190928 DTEND;VALUE=DATE:20190929 RRULE:FREQ=MONTHLY;UNTIL=20200824;BYDAY=4SA DESCRIPTION:EvE7070 is from Tucson\, Az.USA She was finally diagnosed with Cushing's in 2015. She had pituitary surgery and was in remission. At t he beginning of 2019 her endo said that Cushing's has returned. Read more at https://cushingsbios.com/2019/08/24/eve7070-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:EvE7070 is from Tucson\, Az.USA \;She was finally diagnosed with Cushing's in 2015. \;She had pituitary sur gery and was in remission. \;At the beginning of 2019 her endo said t hat Cushing's has returned.
Read more at \;https:// cushingsbios.com/2019/08/24/eve7070-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190824T1605500Z-549422-1200@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200905 SUMMARY:New Cushing’s Saliva Test Does Not Meet Standard Methods RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210905;BYMONTHDAY=5 DESCRIPTION:Late-night salivary cortisol (LNSC) measured by enzyme immunoas say (EIA-F) is a first-line screening test for Cushing’s syndrome (CS) wit h a reported sensitivity and specificity of >90%. However\, liquid chromat ography-tandem mass spectrometry\, validated to measure salivary cortisol (LCMS-F) and cortisone (LCMS-E)\, has been proposed to be superior diagnos tically. Read more at http://cushings.invisionzone.com/topic/55327-new-cus hing%E2%80%99s-saliva-test-does-not-meet-standard-methods/ X-ALT-DESC;FMTTYPE=text/html:Late-night salivary cortisol (LNSC) measure d by enzyme immunoassay (EIA-F) is a first-line screening test for Cushing &rsquo\;s syndrome (CS) with a reported sensitivity and specificity of > \;90%. However\, liquid chromatography-tandem mass spectrometry\, validate d to measure salivary cortisol (LCMS-F) and cortisone (LCMS-E)\, has been proposed to be superior diagnostically.
Read more at \;http://cushings.in visionzone.com/topic/55327-new-cushing%E2%80%99s-saliva-test-does-not-meet -standard-methods/
CATEGORIES:Cushings UID:20200905T0733380Z-549422-1287@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190729 SUMMARY:Kendra D\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200729;BYMONTHDAY=29 DESCRIPTION:Kendra is from Calgary\, AB\, Canada.. Her issues started with a left adrenal gland in 2014. She hopes to have an adrenalectomy soon. R ead more at https://cushingsbios.com/2019/07/29/kendra-d-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Kendra is from Calgary\, AB\, Canada.. &nbs p\;Her issues started with a left adrenal gland in 2014. \;She hopes to have an adrenalectomy soon.
Read more at \;https: //cushingsbios.com/2019/07/29/kendra-d-adrenal-bio/
CATEGORIES:Cushie Bios UID:20190821T1609200Z-549422-1196@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250122 SUMMARY:Cushing Disease Clinical Phenotype and Tumor Behavior Vary With Age RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300122;BYMONTHDAY=22 DESCRIPTION:There are age-dependent differences in clinical presentation\, tumor behavior\, and postoperative outcomes in patients with Cushing's Dis ease. Compared to younger patients\, older patients present with a less cl assic phenotype characterized by fewer hallmark features\, more medical co morbidities\, and larger tumors. https://cushings.invisionzone.com/topic/ 57778-cushing-disease-clinical-phenotype-and-tumor-behavior-vary-with-age/ X-ALT-DESC;FMTTYPE=text/html:There are age-dependent differences i n clinical presentation\, tumor behavior\, and postoperative outcomes in p atients with Cushing's Disease. Compared to younger patients\, older patie nts present with a less classic phenotype characterized by fewer hallmark features\, more medical comorbidities\, and larger tumors. \;
https://cushings.invisionzone.com/topic/57778-cushing -disease-clinical-phenotype-and-tumor-behavior-vary-with-age/ CATEGORIES:Cushings UID:20250122T1059090Z-549422-1844@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210324 SUMMARY:Mortality rate in Cushing’s syndrome ‘unacceptably high’ RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220324;BYMONTHDAY=24 DESCRIPTION:A large study of mortality in Cushing’s syndrome calculated a t hreefold higher mortality rate for these patients\, with cerebrovascular a nd atherosclerotic vascular diseases and infection accounting for 50% of d eaths\, researchers reported. Read more at https://cushings.invisionzone.c om/topic/55581-mortality-rate-in-cushing%E2%80%99s-syndrome-%E2%80%98unacc eptably-high%E2%80%99/ X-ALT-DESC;FMTTYPE=text/html:
A large study of mortality in Cushing&rsquo \;s syndrome calculated a threefold higher mortality rate for these patien ts\, with cerebrovascular and atherosclerotic vascular diseases and infect ion accounting for 50% of deaths\, researchers reported.
Read more at \;https://cushings.invisionzone.com/topic/55581-mortality-ra te-in-cushing%E2%80%99s-syndrome-%E2%80%98unacceptably-high%E2%80%99/< /p> CATEGORIES:News Items UID:20210324T0744390Z-549422-1342@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181222 SUMMARY:Comment added to Diana M (dbear12003)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191222;BYMONTHDAY=22 DESCRIPTION:This could be me! I need to talk to the person who wrote this. We have so much in common! We need to chat\, Read the original bio at http s://cushingsbios.com/2015/06/16/diana-m-dbear12003-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:
This could be me! I need to talk to the per son who wrote this. We have so much in common! We need to chat\,
R ead the original bio at \;https://cushingsbios.com /2015/06/16/diana-m-dbear12003-adrenal-bio/
CATEGORIES:Cushie Bios UID:20181222T0951510Z-549422-1051@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181119 SUMMARY:Comment added to Sahana (Sahana)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191119;BYMONTHDAY=19 DESCRIPTION:How is your daughter doing? I have an adrenal adenoma and am ha ving a right adrenalectomy soon... Read more at https://cushingsbios.com/2 018/11/14/sahana-sahana-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:How is your daughter doing? I have an adren al adenoma and am having a right adrenalectomy soon...
Read more a t \;https://cushingsbios.com/2018/11/14/sahana-sahana-a drenal-bio/
CATEGORIES:Cushie Bios UID:20181120T0132470Z-549422-1035@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190830 SUMMARY:Comment added to Stacy B\, Pituitary/Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200830;BYMONTHDAY=30 DESCRIPTION:I’m in Indiana also .I have lots of other autoimmune diseases a s well.I will see the endrocnoligist Dr for the 1st time this week August 29th 2019 to see if I have Cushing disease .I would like to hear from you and see where your at with your health care at this time. Read more at htt ps://cushingsbios.com/2018/01/20/stacy-b-pituitary-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m in Indiana also .I have lots of other autoimmune diseases as well.I will see the endrocnoligist Dr for the 1st time this week August 29th 2019 to see if I have Cushing disease .I w ould like to hear from you and see where your at with your health care at this time.
Read more at \;https://cushingsb ios.com/2018/01/20/stacy-b-pituitary-adrenal-bio/
CATEGORIES:Cushie Bios UID:20190830T1343040Z-549422-1205@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:ACTH Levels After Surgery Help Predict Remission\, Recurrence in Cu shing’s DTSTART;VALUE=DATE:20190929 DTEND;VALUE=DATE:20190930 RRULE:FREQ=MONTHLY;UNTIL=20200831;BYDAY=-1SU DESCRIPTION:Levels of adrenocorticotropic hormone (ACTH) in circulation aft er pituitary surgery may help predict which Cushing’s disease patients wil l achieve early remission and which will eventually see the disease return \, a study shows. Also\, the earlier that patients reached their lowest pe ak of ACTH levels\, the better their long-term outcomes. Read more at http s://cushieblog.com/2019/09/01/acth-levels-after-surgery-help-predict-remis sion-recurrence-in-cushings/ X-ALT-DESC;FMTTYPE=text/html:Levels of \;adrenocorticotropic hormone \;(ACTH) in circulation after pituitary surgery may help predict whic h \;Cushing&rsquo\;s disease \;patients will achieve early remissi on and which will eventually see the disease return\, a study shows.
Also\, the earlier that patients reached their lowest peak of ACTH leve ls\, the better their long-term outcomes.
Read more at \;https://cushieblog.c om/2019/09/01/acth-levels-after-surgery-help-predict-remission-recurrence- in-cushings/
CATEGORIES:News Items UID:20190901T1209080Z-549422-1206@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190804 SUMMARY:Webinar: Approaches for Pituitary Surgery DESCRIPTION:Dr. Theodore Friedman hosts Gautam Mehta\, MD for a fascinating webinar on Approaches for Pituitary Surgery Dr. Mehta is a neurosurgeon s pecializing in pituitary surgery at the House Clinic in Los Angeles. He wa s trained by Ian McCutcheon\, MD and Ed Oldfield\, MD More information at https://cushieblogger.com/2019/07/22/webinar-approaches-for-pituitary-surg ery/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman hosts Gautam Mehta\,
MD for a fascinating webinar on Approaches for Pituitary Surgery
Dr. Mehta is a neurosurgeon specializing in pituitary surgery at the Hou
se Clinic in Los Angeles. He was trained by Ian McCutcheon\, MD and Ed Old
field\, MD
More information at \;https://cushieblogger.com/2019/07/22/webinar-approaches-for-pituitary-su rgery/
CATEGORIES:Events and Meetings UID:20190723T0006440Z-549422-1190@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190622 SUMMARY:Nikki C\, Steroid-Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200622;BYMONTHDAY=22 DESCRIPTION:Nikki is from New Zealand. She is one of the very few New Zeal anders with Cushing's syndrome\, a very rare disease caused by excess prod uction of cortisol. Long afflicted by skin disease psoriasis\, she had bee n prescribed the steroidal cream Dermol. Read more at https://cushingsbios .com/2019/06/22/nikki-c-steroid-induced-bio/ X-ALT-DESC;FMTTYPE=text/html:Nikki is from New Zealand. \;She is on e of the very few New Zealanders with Cushing's syndrome\, a very rare dis ease caused by excess production of cortisol. Long afflicted by skin disea se psoriasis\, she had been prescribed the steroidal cream Dermol.
Read more at \;https://cushingsbios.com/2019/06/22/n ikki-c-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20190622T1228150Z-549422-1173@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190304 SUMMARY:Comment added to Nicole\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200304;BYMONTHDAY=4 DESCRIPTION:I saw your case on searching against dexamethasone yours and ot hers sound so similar to the person who I care for who has been so affecte d by what we see as steroid induced cushings.. In the comments area of htt ps://cushingsbios.com/2017/07/13/nicole-undiagnosed-bio X-ALT-DESC;FMTTYPE=text/html:I saw your case on searching against dexame thasone yours and others sound so similar to the person who I care for who has been so affected by what we see as steroid induced cushings..
In the comments area of \;https://cushingsbios.com/2017/07 /13/nicole-undiagnosed-bio
CATEGORIES:Cushie Bios UID:20190304T1555410Z-549422-1089@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211222 SUMMARY:Pituitary MRI standard and advanced sequences: Role in the diagnosi s and characterization of pituitary adenomas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221222;BYMONTHDAY=22 DESCRIPTION:This article involves discussion on the use of standard and adv anced magnetic resonance imaging (MRI) sequences to diagnose and character ize pituitary adenomas (PAs)\, including MRI characteristics related to tr eatment response that could assist in presurgical assessment and planning\ , and red flags that could suggest an alternative diagnosis. Read more at https://cushings.invisionzone.com/topic/56390-pituitary-mri-standard-and-a dvanced-sequences-role-in-the-diagnosis-and-characterization-of-pituitary- adenomas/ X-ALT-DESC;FMTTYPE=text/html:This article involves discussion on the use of standard and advanced magnetic resonance imaging (MRI) sequences to di agnose and characterize pituitary adenomas (PAs)\, including MRI character istics related to treatment response that could assist in presurgical asse ssment and planning\, and red flags that could suggest an alternative diag nosis.
CATEGORIES:News Items UID:20211222T1120370Z-549422-1485@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory: Alexandra Rose Bibby RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301119;BYMONTH=11;BYMONTHDAY=19 DTSTART;VALUE=DATE:20221119 DTEND;VALUE=DATE:20221120 DESCRIPTION:On Saturday\, November 19\, 2022\, Alexandra Rose Bibby\, much loved daughter\, sister\, and friend\, left us too soon at the age of 29. Alex passed away from multi organ failure after cardiac arrest complicated by adrenal insufficiency. Read more at https://beyondthedash.com/obituar y/alexandra-bibby-1086729106 X-ALT-DESC;FMTTYPE=text/html:On Saturday\, November 19\, 2022\, Al exandra Rose Bibby\, much loved daughter\, sister\, and friend\, left us t oo soon at the age of 29. Alex passed away from multi organ failure after cardiac arrest complicated by adrenal insufficiency. \;
Read more at \;https://beyondtheda sh.com/obituary/alexandra-bibby-1086729106
CATEGORIES:In Memory UID:20221202T0955210Z-549422-1628@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210415 SUMMARY:Cushing Death Rate 'Unacceptable\,' Triple That of General Populati on RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220415;BYMONTHDAY=15 DESCRIPTION:Excess mortality among people with endogenous Cushing syndrome (CS) has declined in the past 20 years yet remains three times higher than in the general population\, new research finds. ... Excess deaths were h igher among those with adrenal CS compared to those with Cushing disease. The most common causes of death among those with CS were cardiovascular di seases\, cerebrovascular accident\, infection\, and malignancy Read more a t https://cushings.invisionzone.com/topic/55608-cushing-death-rate-unaccep table-triple-that-of-general-population/ X-ALT-DESC;FMTTYPE=text/html:Excess mortality among people with \;endogenous Cushing syndrome&nbs p\;(CS) has declined in the past 20 years yet remains three times higher t han in the general population\, new research finds.
\;...
Excess deaths were higher among those with adrenal CS compared to tho se with Cushing disease. The most common causes of death among those with CS were cardiovascular diseases\, \;cerebrovascular accident\, infection\, and malignancy
R ead more at \;https://cushings.invisionzone.com/topic/55608-cushing-death-rate- unacceptable-triple-that-of-general-population/
CATEGORIES:Cushings UID:20210415T0808400Z-549422-1354@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221227 SUMMARY:Cushing’s Disease Patients are More Likely to Have Ocular Hypertens ion RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20261227;BYMONTHDAY=27 DESCRIPTION:Ocular hypertension was more common in people with Cushing’s il lness. The usage of steroids in the body is a major contributor to high in traocular pressure (IOP). Topical or systemic glucocorticoid use may incre ase the prevalence. Read more at https://cushings.invisionzone.com/topic/5 7588-cushing%E2%80%99s-disease-patients-are-more-likely-to-have-ocular-hyp ertension/ X-ALT-DESC;FMTTYPE=text/html:Ocular hypertension was more common i n people with Cushing&rsquo\;s illness. The usage of steroids in the body is a major contributor to high intraocular pressure (IOP).&nb sp\;Topical or systemic glucocorticoid use may increase the prevalence.
Read more at \;https://cushings. invisionzone.com/topic/57588-cushing%E2%80%99s-disease-patients-are-more-l ikely-to-have-ocular-hypertension/
CATEGORIES:News Items UID:20221227T1147160Z-549422-1637@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Tracie (ktfisher91)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301106;BYMONTH=11;BYMONTHDAY=6 DTSTART;VALUE=DATE:20251106 DTEND;VALUE=DATE:20251107 DESCRIPTION:I am currently 8 months into remission\, however\, the recovery process has been a beast! I had very severe muscle fatigue and joint pain to the point that I could not get myself up out of chairs. I am just now able to make it up and downstairs without assistance and muscle pain. I st ill have some joint pain and overall fatigue. I can not make it much past 9pm without having to go to bed. https://cushingsbios.com/2025/11/06/traci e-ktfisher91-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I am currently 8 months into remissio n\, however\, the recovery process has been a beast! I had very severe mus cle fatigue and joint pain to the point that I could not get myself up out of chairs. I am just now able to make it up and downstairs without assist ance and muscle pain. I still have some joint pain and overall fatigue. I can not make it much past 9pm without having to go to bed.
https://cushingsbios.com/2025/11 /06/tracie-ktfisher91-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251106T1237130Z-549422-1970@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240723 SUMMARY:Diagnostic dilemma in Cushing’s syndrome: discrepancy between patie nt-reported and physician-assessed manifestations RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300723;BYMONTHDAY=23 DESCRIPTION:Early diagnosis and immediate treatment of Cushing’s syndrome ( CS) are critical for a better prognosis but remain a challenge. However\, few comprehensive reports have focused on this issue or investigated wheth er patient-reported manifestations are consistent with physician-assessed symptoms of CS. This study aimed to clarify the differences in patient-rep orted and physician-assessed manifestations of signs and symptoms of CS th at prevent early diagnosis. Read more at https://cushings.invisionzone.com /topic/57749-diagnostic-dilemma-in-cushing%E2%80%99s-syndrome-discrepancy- between-patient-reported-and-physician-assessed-manifestations/ X-ALT-DESC;FMTTYPE=text/html:Early diagnosis and immediate treatme nt of Cushing&rsquo\;s syndrome (CS) are critical for a better prognosis b ut remain a challenge. However\, few comprehensive reports have focused on this issue or investigated whether patient-reported manifestations are co nsistent with physician-assessed symptoms of CS. This study aimed to clari fy the differences in patient-reported and physician-assessed manifestatio ns of signs and symptoms of CS that prevent early diagnosis.
< p>Read more at \;https://cushings.invisionzone.com/topic/57749-diagnostic- dilemma-in-cushing%E2%80%99s-syndrome-discrepancy-between-patient-reported -and-physician-assessed-manifestations/ CATEGORIES:Cushings UID:20240723T2222130Z-549422-1807@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20200923T150000 DTEND;TZID=America/New_York:20200923T160000 SUMMARY:Webinar: Expect more from pituitary surgery: difference-makers for post-operative outcomes DESCRIPTION:Learning objectives: 1. To understand the surgical steps of en doscopic pituitary surgery 2. To understand how the surgical steps of end oscopic pituitary surgery translate to post-operative outcomes 3. To unde rstand surgical factors that can modify post-operative outcomes after endo scopic pituitary surgery 4. To understand post-operative care that can mo dify post-operative outcomes after endoscopic pituitary surgery Learn mo ore at https://cushieblogger.com/2020/09/17/webinar-expect-more-from-pitui tary-surgery-difference-makers-for-post-operative-outcomes/ X-ALT-DESC;FMTTYPE=text/html:Learning \;objectives:
This study was done to compare corticotroph hyperplasia and histopathologically proven adenomas in patients with Cush ing disease by analyzing diagnostic features\, surgical management\, and c linical outcomes.
Read more at \;https://cushieblog.com/2020 /09/17/corticotroph-hyperplasia-and-cushing-disease-diagnostic-features-an d-surgical-management/
CATEGORIES:News Items UID:20200917T1926520Z-549422-1293@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190826 SUMMARY:Patricia's Daughter\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200826;BYMONTHDAY=26 DESCRIPTION:Patricia is from Austria. Her 15-year-old daughter is in a lot of pain and has had many symptoms of Cushing's since January 2018. Read m ore at https://cushingsbios.com/2019/08/26/patricias-daughter-undiagnosed- bio/ X-ALT-DESC;FMTTYPE=text/html:Patricia \;is from Austria. Her 15-yea r-old daughter is in a lot of pain and has had many symptoms of Cushing's since January 2018.
Read more at \;htt ps://cushingsbios.com/2019/08/26/patricias-daughter-undiagnosed-bio/ CATEGORIES:Cushie Bios UID:20190826T1108570Z-549422-1203@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Roberta 'Bert' P\, Undiagnosed Bio DTSTART;VALUE=DATE:20191005 DTEND;VALUE=DATE:20191006 RRULE:FREQ=MONTHLY;UNTIL=20200907;BYDAY=1SA DESCRIPTION:A Golden Oldie post. Roberta was in pain\, gaining weight\, ha ve moon face\, etc. She had Fibromyalgia for over 4 years and was lucky to have a very good doctor for that who is a specialist in his field. Read m ore at https://cushingsbios.com/2019/09/07/roberta-bert-p-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:
A Golden Oldie post. \;Roberta was in pain\, gaining weight\, have moon face\, etc. She had Fibromyalgia for ove r 4 years and was lucky to have a very good doctor for that who is a speci alist in his field.
Read more at \;https:/ /cushingsbios.com/2019/09/07/roberta-bert-p-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20190907T1119110Z-549422-1211@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Ectopic Adrenocorticotropic Hormone Production in a Stage IV Neuroe ndocrine Tumor: A Rare Presentation of Cushing's Syndrome DTSTART;VALUE=DATE:20250528 DTEND;VALUE=DATE:20250529 RRULE:FREQ=MONTHLY;UNTIL=20300423;BYDAY=4WE DESCRIPTION:In this case\, we describe a 54-year-old man with a stage IV NE T with metastatic liver and pancreatic lesions\, who presented with Cushin g's syndrome due to ectopic ACTH production. https://cushings.invisionzone .com/topic/57816-ectopic-adrenocorticotropic-hormone-production-in-a-stage -iv-neuroendocrine-tumor-a-rare-presentation-of-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:In this case\, we describe a 54-year- old man with a stage IV NET with metastatic liver and pancreatic lesions\, who presented with Cushing's syndrome due to ectopic ACTH production.
CATEGORIES:Cushings UID:20250423T1254330Z-549422-1878@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240712 SUMMARY:Spontaneous Cushing’s Disease Remission Induced by Pituitary Apople xy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300712;BYMONTHDAY=12 DESCRIPTION:Spontaneous remission of Cushing’s disease (CD) is uncommon and often attributed to pituitary tumor apoplexy. We present a case involving a 14-year-old female who exhibited clinical features of Cushing’s syndrom e. Read more at https://cushings.invisionzone.com/topic/57744-spontaneous- cushing%E2%80%99s-disease-remission-induced-by-pituitary-apoplexy/ X-ALT-DESC;FMTTYPE=text/html:Spontaneous remission of Cushing&rsqu o\;s disease (CD) is uncommon and often attributed to pituitary tumor apop lexy. We present a case involving a 14-year-old female who exhibited clini cal features of Cushing&rsquo\;s syndrome.
Read more at \;https://cushings.invisionzone.com/topic/57744-s pontaneous-cushing%E2%80%99s-disease-remission-induced-by-pituitary-apople xy/
CATEGORIES:Cushings UID:20240713T0214140Z-549422-1802@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:3D-Printing Technology Improves Outcomes In Pituitary Adenoma Surge ry DTSTART;VALUE=DATE:20190401 DTEND;VALUE=DATE:20190402 RRULE:FREQ=MONTHLY;UNTIL=20200304;BYDAY=1MO DESCRIPTION:The use of 3D-printed models could lead to less operation time and blood loss and fewer postoperative complications in adults who undergo endoscopic endonasal transsphenoidal surgery for pituitary adenomas and o ther conditions\, according to findings published in Pituitary. Read more at https://cushieblog.com/2019/03/04/3d-printing-technology-improves-outco mes-in-pituitary-adenoma-surgery/ X-ALT-DESC;FMTTYPE=text/html:The use of 3D-printed models could lead to less operation time and blood loss and fewer postoperative complications i n adults who undergo endoscopic endonasal transsphenoidal surgery for pitu itary adenomas and other conditions\, according to findings published in&n bsp\;Pituitary.
Read more at \;https://cushieblog.com/2019/03/04/3d-pr inting-technology-improves-outcomes-in-pituitary-adenoma-surgery/
CATEGORIES:News Items UID:20190304T1638090Z-549422-1090@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231226 SUMMARY:Bilateral Co-Secretory Lesions Presenting with Coexisting Cushing S yndrome and Primary Aldosteronism RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301226;BYMONTHDAY=26 DESCRIPTION:The case was a 45-year-old female from the adrenal disease diag nosis and treatment centre in West China Hospital of Sichuan University. T he patient presented with hypertension\, moon-shaped face\, central obesit y\, fat accumulation on the back of the neck\, disappearance of cortisol c ircadian rhythm\, ACTH < 5 ng/L\, failed elevated cortisol inhibition by d examethasone\, orthostatic aldosterone/renin activity > 30 (ng/dL)/(ng/mL/ h)\, and plasma aldosterone concentration > 10 ng/dL after saline infusion testing. Read more at https://cushings.invisionzone.com/topic/57676-bilat eral-co-secretory-lesions-presenting-with-coexisting-cushing-syndrome-and- primary-aldosteronism/ X-ALT-DESC;FMTTYPE=text/html:The case was a 45-year-old female fro m the adrenal disease diagnosis and treatment centre in West China Hospita l of Sichuan University. The patient presented with hypertension\, moon-sh aped face\, central obesity\, fat accumulation on the back of the neck\, d isappearance of cortisol circadian rhythm\, ACTH&thinsp\;<\;&thinsp\;5&n bsp\;ng/L\, failed elevated cortisol inhibition by dexamethasone\, orthost atic aldosterone/renin activity&thinsp\;>\;&thinsp\;30 (ng/dL)/(ng/mL/h) \, and plasma aldosterone concentration&thinsp\;>\;&thinsp\;10 \;ng/ dL after saline infusion testing.
CATEGORIES:Cushings UID:20231226T1233500Z-549422-1724@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180402 SUMMARY:Comment added to Roxanna (Dawn)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190402;BYMONTHDAY=2 DESCRIPTION:...I have been taking a lot of liquid Magnesium and minerals sh e suggested and I feel better. I had the same symptoms\, plus polycystic o varies\, and migraines. This regime has helped me... In the comments at ht tps://cushingsbios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...I have been taking a lot of liquid Magne sium and minerals she suggested and I feel better. I had the same symptoms \, plus polycystic ovaries\, and migraines. This regime has helped me...
In the comments at \;https://cushingsbios.com /2018/04/02/roxanna-dawn-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180402T2225380Z-549422-872@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251130 SUMMARY:Adrenal Cushing’s Syndrome in Pregnancy Complicated by Fetal Growth Restriction Following Retroperitoneoscopic Adrenalectomy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301130;BYMONTHDAY=30 DESCRIPTION:A 29-year-old Japanese pregnant woman\, G5P3A1\, conceived spon taneously and was referred to our hospital because of uncontrolled hyperte nsion at 24 weeks of gestation. On admission\, she presented with physical findings characteristic of Cushing's syndrome (CS)\, such as moon face\, buffalo hump\, and reddish-purple striae. Laboratory examination revealed hyperglycemia and hypercortisolism with suppressed adrenocorticotropic hor mone levels. Imaging studies revealed a right adrenocortical adenoma\, and the patient was clinically diagnosed with adrenal CS. https://cushings.i nvisionzone.com/topic/57924-adrenal-cushing%E2%80%99s-syndrome-in-pregnanc y-complicated-by-fetal-growth-restriction-following-retroperitoneoscopic-a drenalectomy/ X-ALT-DESC;FMTTYPE=text/html:A 29-year-old Japanese pregnant woman \, G5P3A1\, conceived spontaneously and was referred to our hospital becau se of uncontrolled hypertension at 24 weeks of gestation. On admission\, s he presented with physical findings characteristic of Cushing's syndrome ( CS)\, such as moon face\, buffalo hump\, and reddish-purple striae. Labora tory examination revealed hyperglycemia and hypercortisolism with suppress ed adrenocorticotropic hormone levels. Imaging studies revealed a right ad renocortical adenoma\, and the patient was clinically diagnosed with adren al CS. \;
CATEGORIES:Cushings UID:20251130T2203180Z-549422-2009@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211008 SUMMARY:4th Pituitary Update | Perelman School of Medicine at the Universit y of Pennsylvania DESCRIPTION:This activity has been designed for endocrinologists\, neurosur geons\, ophthalmologists\, gynecologists\, general radiologists\, nurse pr actitioners\, nurses\, residents and fellows. Additionally\, patients and their caregivers\, family members\, advocates and members of the public w ho may benefit from understanding current innovative approaches to pituita ry tumor care are invited. Read more at https://cushings.invisionzone.com/ topic/56156-4th-pituitary-update-perelman-school-of-medicine-at-the-univer sity-of-pennsylvania/ X-ALT-DESC;FMTTYPE=text/html:This activity has been designed for endocri nologists\, neurosurgeons\, ophthalmologists\, gynecologists\, general rad iologists\, nurse practitioners\, nurses\, residents and fellows. \;
Additionally\, patients and their caregivers\, family membe rs\, advocates and members of the public who may benefit from understandin g current innovative approaches to pituitary tumor care are invited.
Read more at \;https://cushings.invisionzone.com/t opic/56156-4th-pituitary-update-perelman-school-of-medicine-at-the-univers ity-of-pennsylvania/
CATEGORIES:Events and Meetings UID:20210927T0806270Z-549422-1427@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Muscle Weakness Persists in Cushing’s Syndrome Despite Remission DTSTART;VALUE=DATE:20201108 DTEND;VALUE=DATE:20201109 RRULE:FREQ=MONTHLY;UNTIL=20211003;BYDAY=1SA DESCRIPTION:In the new study\, researchers analyzed data for 88 people with endogenous Cushing’s syndrome diagnosed between 2012 and 2018 who had und ergone regular muscle function tests. The data were collected as part of t he German Cushing’s Registry\, and the assessed group was mostly female (7 8%)\, with an average age of 49. Read more at https://cushieblog.com/2020/ 10/03/muscle-weakness-persists-in-cushings-syndrome-despite-remission/ X-ALT-DESC;FMTTYPE=text/html:In the new study\, researchers analyzed dat a for 88 people with endogenous Cushing&rsquo\;s syndrome diagnosed betwee n 2012 and 2018 who had undergone regular muscle function tests. The data were collected as part of the German Cushing&rsquo\;s Registry\, and the a ssessed group was mostly female (78%)\, with an average age of 49.
Read more at \;htt ps://cushieblog.com/2020/10/03/muscle-weakness-persists-in-cushings-syndro me-despite-remission/
CATEGORIES:Cushings UID:20201003T1424310Z-549422-1298@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190918 SUMMARY:Webinar: Experimental Treatments for Aggressive Pituitary Tumors DESCRIPTION:During the webinar Dr. Lin will be: 1) Defining aggressive pitu itary tumors. 2) Reviewing the current treatment options for aggressive pi tuitary tumors. 3) Discussing experimental treatment options including a p hase II trial investigating the activity of the immunotherapies nivolumab and ipilimumab. Registration info at https://cushieblogger.com/2019/09/11/ webinar-experimental-treatments-for-aggressive-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:During the webinar Dr. Lin will be:
1) Defining aggressive pituitary tumors.
2) Reviewing the curr
ent treatment options for aggressive pituitary tumors.
3) Discussing
experimental treatment options including a phase II trial investigating th
e activity of the immunotherapies nivolumab and ipilimumab.
Regist ration info at \;https://cushieblogger.com/2019/09/11/webinar-experimental-treatments-for- aggressive-pituitary-tumors/
CATEGORIES:Events and Meetings UID:20190911T1155280Z-549422-1213@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20201003 SUMMARY:WP Thyroid\, Nature-Throid and NP Thyroid recall-October 2020 updat e RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20211003;BYMONTHDAY=3 DESCRIPTION:Dr. Friedman wants to update his patients about natural desicca ted thyroid (NDT) recalls based on new information from the FDA. Read mor e at https://cushieblogger.com/2020/10/03/wp-thyroid-nature-throid-and-np- thyroid-recall-october-2020-update/ X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman wants to update his patients a bout natural desiccated thyroid (NDT) recalls based on new information fro m the FDA. \;
Read more at \;https://cushieblogger.com/2020/10/03/wp-thyroi d-nature-throid-and-np-thyroid-recall-october-2020-update/
CATEGORIES:News Items UID:20201003T1347380Z-549422-1297@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210925 SUMMARY:Video: Happy Girl tells her Story So Far (Update September 25\,\, 2 021) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230803;BYMONTHDAY=25 DESCRIPTION:Happy Girl writes: This is just a quick update. I am not in a g ood head space. Being denied a much needed surgery because of irresponsibl e people are not following cdc guidelines\, makes me very very very very u pset! Every day a new issue pops up\, IIH could make me go blind\, my bone s could break\, my muscles are weak\, my mental health is poor\, my heart is enlarged\, my brain is in atrophy!!! I did make a detailed youtube vide o to tell my story so far. Read more at https://cushingsbios.com/2021/08/0 8/tera-happygirl-video-bio/ X-ALT-DESC;FMTTYPE=text/html:Happy Girl writes: \;This is just a qui
ck update. I am not in a good head space. Being denied a much needed surge
ry because of irresponsible people are not following cdc guidelines\, make
s me very very very very upset!
Every day a new issue pops up\,
IIH could make me go blind\, my bones could break\, my muscles are weak\,
my mental health is poor\, my heart is enlarged\, my brain is in atrophy!
!!
I did make a detailed youtube video to tell my s
tory so far.
Read more at \;https://cushingsbios .com/2021/08/08/tera-happygirl-video-bio/
CATEGORIES:Cushie Bios UID:20210925T1013330Z-549422-1300@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Webinar: What every Patient needs to know about Recent Advancements in Pituitary Surgery DTSTART;VALUE=DATE:20200617 DTEND;VALUE=DATE:20200618 RRULE:FREQ=WEEKLY;UNTIL=20200701;BYDAY=WE DESCRIPTION:After registering you will receive a confirmation email contain ing information about joining the Webinar. Date: Wednesday\, July 1\, 2020 Time: 3:00 PM Pacific Daylight Time\, 6:00 PM Eastern Daylight Time More information at https://cushieblogger.com/2020/06/17/webinar-what-every-pat ient-needs-to-know-about-recent-advancements-in-pituitary-surgery/ X-ALT-DESC;FMTTYPE=text/html:After registering you will receive a confir mation email containing information about joining the Webinar.
Dat e: Wednesday\, July 1\, 2020
Time: 3:00 PM Pacific Daylight Time\, 6:00 PM Eastern Daylight Time
More information at \;https ://cushieblogger.com/2020/06/17/webinar-what-every-patient-needs-to-know-a bout-recent-advancements-in-pituitary-surgery/
CATEGORIES:Events and Meetings UID:20200617T1409300Z-549422-1270@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190910 SUMMARY:Mike H\, Steroid-Induced Cushing's Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200910;BYMONTHDAY=10 DESCRIPTION:Mike is from Carrollton\, VA. His adrenal glands aren't workin g so he has to take prednisone\, which has now caused Cushing's. Read more at https://cushingsbios.com/2019/09/12/mike-h-steroid-induced-cushings-bi o/ X-ALT-DESC;FMTTYPE=text/html:Mike is from Carrollton\, VA. \;His ad renal glands aren't working so he has to take prednisone\, which has now c aused Cushing's.
Read more at \;https ://cushingsbios.com/2019/09/12/mike-h-steroid-induced-cushings-bio/
CATEGORIES:Cushie Bios UID:20190912T1003090Z-549422-1215@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190912 SUMMARY:Ashleigh\, Pituitary Tumor Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200912;BYMONTHDAY=12 DESCRIPTION:Ashleigh is from Australia. She was originally diagnosed with PCOS. Her main symptoms before pituitary surgery were weight gain\, brigh t red stretch marks\, joint pains\, muscle loss and fatigue. Read more at https://cushingsbios.com/2019/09/12/ashleigh-pituitary-tumor-bio/ X-ALT-DESC;FMTTYPE=text/html:Ashleigh is from Australia. \;She was originally diagnosed with PCOS. \;Her main symptoms before pituitary surgery were weight gain\, bright red stretch marks\, joint pains\, muscle loss and fatigue.
Read more at \;https://cu shingsbios.com/2019/09/12/ashleigh-pituitary-tumor-bio/
CATEGORIES:Cushie Bios UID:20190912T0950090Z-549422-1214@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250903 SUMMARY:Hypercoagulability in Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300903;BYMONTHDAY=3 DESCRIPTION:This case highlights the necessity of providers to be aware of potential complications of endocrinological disorders. The risk of thrombo embolism is more commonly present in patients with Cushing syndrome\, who have risk factors such as obesity\, surgery and invasive diagnostic proced ures. https://cushings.invisionzone.com/topic/57876-hypercoagulability-in- cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:This case highlights the necessity of providers to be aware of potential complications of endocrinological diso rders. The risk of thromboembolism is more commonly present in patients wi th Cushing syndrome\, who have risk factors such as obesity\, surgery and invasive diagnostic procedures.
https://cushings.invisionzone.com/topic/57 876-hypercoagulability-in-cushing-syndrome/
CATEGORIES:Cushings UID:20250903T1503480Z-549422-1934@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240724 SUMMARY:Management of Diabetes Mellitus in Acromegaly and Cushing’s Disease with Focus on Pasireotide Therapy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300724;BYMONTHDAY=24 DESCRIPTION:Patients suffering from acromegaly and Cushing’s Disease (CD) f ace the risk of several clinical complications. The onset of diabetes mell itus (DM) is among the most important: exposure to elevated growth hormone or cortisol levels is associated with insulin resistance (IR). Read more at https://cushings.invisionzone.com/topic/57750-management-of-diabetes-me llitus-in-acromegaly-and-cushing%E2%80%99s-disease-with-focus-on-pasireoti de-therapy/ X-ALT-DESC;FMTTYPE=text/html:Patients suffering from acromegaly an d Cushing&rsquo\;s Disease (CD) face the risk of several clinical complica tions. The onset of diabetes mellitus (DM) is among the most important: ex posure to elevated growth hormone or cortisol levels is associated with in sulin resistance (IR).
CATEGORIES:Cushings UID:20240724T1242390Z-549422-1808@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190309 SUMMARY:Tim D (TimD)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200309;BYMONTHDAY=9 DESCRIPTION:Tim is from Middletown\, Connecticut. He is glad he's finally g etting tested since he's sure he has Cushing's. Read more at https://cushi ngsbios.com/2019/03/09/tim-d-timd-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Tim is from Middletown\, Connecticut. He is glad he's finally getting tested since he's sure he has Cushing's.
< p>Read more at \;https://cushingsbios.com/2019/03/09/t im-d-timd-undiagnosed-bio/ CATEGORIES:Cushie Bios UID:20190309T1231020Z-549422-1096@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240222 SUMMARY:Cushing Syndrome due to a CRH- and ACTH-Secreting Silent Pheochromo cytoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270222;BYMONTHDAY=22 DESCRIPTION:Ectopic co-secretion of corticotropin-releasing hormone (CRH) a nd adrenocorticotropic hormone (ACTH) in silent (i.e.\, noncatecholamine-s ecreting) pheochromocytoma is a rare cause of Cushing Syndrome (CS). Read more at https://cushings.invisionzone.com/topic/57695-cushing-syndrome-due -to-a-crh-and-acth-secreting-silent-pheochromocytoma/ X-ALT-DESC;FMTTYPE=text/html:Ectopic co-secretion of corticotropin -releasing hormone (CRH) and adrenocorticotropic hormone (ACTH) in silent (i.e.\, noncatecholamine-secreting) pheochromocytoma is a rare cause of Cu shing Syndrome (CS).
Read more at \; https://cushings.invisionzone.com/topic/57695-cushing-syndrome-due-to-a-cr h-and-acth-secreting-silent-pheochromocytoma/
CATEGORIES:Cushings UID:20240222T0733520Z-549422-1747@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190306 SUMMARY:Sheryl\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200306;BYMONTHDAY=6 DESCRIPTION:Sheryl is from Florida. Her journey started about 7 years ago w ith severe insomnia\, muscle and joint aches. She was deteriorating so ra pidly that I decided to go to LA and see Dr. Theodore Friedman (Dr. F) Rea d more at https://cushingsbios.com/2019/03/06/sheryl-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Sheryl is from Florida. Her journey started about 7 years ago with severe insomnia\, muscle and joint aches. \;S he was deteriorating so rapidly that I decided to go to LA and see Dr. The odore Friedman (Dr. F)
Read more at \;https://cushin gsbios.com/2019/03/06/sheryl-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190306T1534050Z-549422-1093@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY: New Helpful Doctor added to California DTSTART;VALUE=DATE:20190403 DTEND;VALUE=DATE:20190404 RRULE:FREQ=MONTHLY;UNTIL=20200306;BYDAY=1WE DESCRIPTION:Sheryl added her Helpful Doctor Theodore Friedman https://cushi eblogger.com/2019/03/06/helpful-doctors-california/ X-ALT-DESC;FMTTYPE=text/html:Sheryl added her Helpful Doctor Theodore Fr iedman
https://cushieblogger.com/2019/03/06/helpf ul-doctors-california/
CATEGORIES:Helpful Doctors UID:20190306T1545580Z-549422-1094@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230529 SUMMARY:Seliciclib for the Treatment of Cushing’s Disease Targeting Pituita ry RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270529;BYMONTHDAY=29 DESCRIPTION:Seliciclib (R-roscovitine) has been shown in preclinical studie s to inhibit neoplastic corticotroph proliferation and the production of a drenocorticotropic hormone (ACTH) in the pituitary gland. Therefore\, for a study\, researchers sought to investigate the effectiveness of selicicli b as a pituitary-targeting treatment for patients with Cushing’s disease ( CD). Read more at https://cushings.invisionzone.com/topic/57604-seliciclib -for-the-treatment-of-cushing%E2%80%99s-disease-targeting-pituitary/ X-ALT-DESC;FMTTYPE=text/html:Seliciclib (R-roscovitine) has been shown i n preclinical studies to inhibit neoplastic corticotroph proliferation and the production of adrenocorticotropic hormone (ACTH) in the pituitary gla nd. Therefore\, for a study\, researchers sought to investigate the effect iveness of seliciclib as a pituitary-targeting treatment for patients with Cushing&rsquo\;s disease (CD).
Read more at \;https://cushings.invisionzone.com/topic/57604-seliciclib-for-the-treatm ent-of-cushing%E2%80%99s-disease-targeting-pituitary/
CATEGORIES:Cushings UID:20230529T1444350Z-549422-1645@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180408 SUMMARY:Have You Had Treatment for Cushing's? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190408;BYMONTHDAY=8 DESCRIPTION:Fellow Cushing’s Survivors NEED YOUR VOICES and recovery experi ences to help assess our needs and guide advocacy projects within the medi cal community! Read more at https://cushieblogger.com/2018/04/08/have-you- had-treatment-for-cushings/ X-ALT-DESC;FMTTYPE=text/html:Fellow Cushing&rsquo\;s Survivors NEED YOUR VOICES and recovery experiences to help assess our needs and guide advoca cy projects within the medical community!
Read more at \;https://cushieblogger.com/2018/04/08/have-you-had-tre atment-for-cushings/
CATEGORIES:Cushings UID:20180409T0050070Z-549422-893@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251128 SUMMARY:Trish\, Steroid-Induced Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301128;BYMONTHDAY=28 DESCRIPTION:She got Cushing’s Syndrome from abundant steroid injections due to a severe back injury and it has rendered her “comatose”. She has no energy\, she sleeps all the time\, and I miss her and am lonely when she i s in this state\, which is all the time. https://cushingsbios.com/2025/11/ 28/trish-steroid-induced-bio/ X-ALT-DESC;FMTTYPE=text/html:She got Cushing&rsquo\;s Syndrome fro m abundant steroid injections due to a severe back injury and it has rende red her &ldquo\;comatose&rdquo\;. \; She has no energy\, she sleeps a ll the time\, and I miss her and am lonely when she is in this state\, whi ch is all the time.
htt ps://cushingsbios.com/2025/11/28/trish-steroid-induced-bio/
CATEGORIES:Cushie Bios UID:20251130T2258440Z-549422-2011@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Robin\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301127;BYMONTH=11;BYMONTHDAY=27 DTSTART;VALUE=DATE:20251127 DTEND;VALUE=DATE:20251128 DESCRIPTION:Had surgery for cushing disease for adrenal tumor 10 years ago. Lost the right kidney due to a blood clot 6 months after my surgery. Was doing really well then 5 years later got Thyriod cancer so they removed m y thyroid. https://cushingsbios.com/2025/11/27/robin-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Had surgery for cushing disease for a drenal tumor 10 years ago. Lost the right kidney due to a blood clot 6 mon ths after my surgery. \;Was doing really well then 5 years later got Thyriod cancer so they removed my thyroid.
https://cushingsbios.com/2025/11/27/robin-adrenal-bio/< /p> CATEGORIES:Cushie Bios UID:20251130T2256250Z-549422-2010@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251130 SUMMARY:Voices from the Past: Laura F\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301130;BYMONTHDAY=30 DESCRIPTION:I’ve been gaining weight for about 3 1/2 yrs since having my th yroid removed due to a 25 yr old nodule that was calcified. My thyroid lev els have always been good\, before and after removal. There were A typical cells in the nodule\, that’s why they advised removing the thyroid. As I gain weight and have lumps of inflammation now over all of my body\, all I have been told is to eat less and exercise more. Even though I have told my drs that I barely eat at all. https://cushingsbios.com/2025/11/30/laura -f-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:
I&rsquo\;ve been gaining weight for about 3 1/2 yrs since having my thyroid removed due to a 25 yr old nodule that wa s calcified. My thyroid levels have always been good\, before and after re moval. There were A typical cells in the nodule\, that&rsquo\;s why they a dvised removing the thyroid.
As I gain weight and have lumps of in flammation now over all of my body\, all I have been told is to eat less a nd exercise more. Even though I have told my drs that I barely eat at all.
https://cushingsbios.com/2025/11/30/l aura-f-undiagnosed-bio/
CATEGORIES:Cushings UID:20251130T2310320Z-549422-2013@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190306 SUMMARY:New Testimonial From Sheryl RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200306;BYMONTHDAY=6 DESCRIPTION:For the first time in many years I feel there is a light at the end of the tunnel. I am so greatful that I have found Board s like this o ne so that I am able to inform myself. So thank you ! From https://cushieb logger.com/testimonial/sheryl/ X-ALT-DESC;FMTTYPE=text/html:For the first time in many years I feel the re is a light at the end of the tunnel. I am so greatful that I have found Board s like this one so that I am able to inform myself. So thank you !< /p>
From \;https://cushieblogger.com/testimonial/sheryl/
CATEGORIES:Cushie Bios UID:20190306T1557200Z-549422-1095@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181022 SUMMARY:Comment added to What do YOU Think? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191022;BYMONTHDAY=22 DESCRIPTION:Yes absolutely. Post surgery 7 years and I have low tolerance f or food and real allergies to things and food. From https://cushieblogger. com/2018/10/21/what-do-you-think-2/ X-ALT-DESC;FMTTYPE=text/html:Yes absolutely. Post surgery 7 years and I have low tolerance for food and real allergies to things and food.
From \;https://cushieblogger.com/2018/10/21/what-do-you-thi nk-2/
CATEGORIES:Cushings UID:20181023T0107130Z-549422-999@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240421 SUMMARY:From Knee Pain Consultation to Pituitary Surgery: The Challenge of Cushing Disease Diagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300421;BYMONTHDAY=21 DESCRIPTION:We present the case of a 66-year-old female patient who receive d a referral to endocrinology for an evaluation of obesity due to right kn ee arthropathy. Taking into consideration her age\, she was screened for o steoporosis\, with results that showed diminished bone density. Considerin g this\, combined with other clinical features of the patient\, suspicion turned toward hypercortisolism. Laboratory findings suggested that the CS was ACTH-dependent and originated in the pituitary gland. After a second look at the magnetic resonance imaging results\, a 4-mm lesion was identif ied on the pituitary gland\, prompting a transsphenoidal resection of the pituitary adenoma. Read more at https://cushings.invisionzone.com/topic/57 720-from-knee-pain-consultation-to-pituitary-surgery-the-challenge-of-cush ing-disease-diagnosis/ X-ALT-DESC;FMTTYPE=text/html:We present the case of a 66-year-old female patient who received a referral to endocrinology for an evaluation of obe sity due to right knee arthropathy. Taking into consideration her age\, sh e was screened for osteoporosis\, with results that showed diminished bone density. Considering this\, combined with other clinical features of the patient\, suspicion turned toward hypercortisolism. Laboratory findings su ggested that the CS was ACTH-dependent and originated in the pituitary gla nd. \;
After a second look at the magnetic resonance imaging r esults\, a 4-mm lesion was identified on the pituitary gland\, prompting a transsphenoidal resection of the pituitary adenoma.
Read more at& nbsp\;https://cushings.invisionzone.com/to pic/57720-from-knee-pain-consultation-to-pituitary-surgery-the-challenge-o f-cushing-disease-diagnosis/
CATEGORIES:Cushings UID:20240421T0621440Z-549422-1781@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240427 SUMMARY:Emergence of De Novo Conditions Following Remission of Cushing Synd rome: A Case Report and Scoping Review RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300427;BYMONTHDAY=27 DESCRIPTION:Our scoping review identified several cases of de novo conditio ns emerging following the remission of Cushing syndrome. They occurred mos tly in women and within the year following remission. Read more at https:/ /cushings.invisionzone.com/topic/57726-emergence-of-de-novo-conditions-fol lowing-remission-of-cushing-syndrome-a-case-report-and-scoping-review/ X-ALT-DESC;FMTTYPE=text/html:Our scoping review identified several cases of de novo conditions emerging following the remission of Cushing s yndrome. They occurred mostly in women and within the year following remis sion.
CATEGORIES:Cushings UID:20240427T1454340Z-549422-1783@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180905 SUMMARY:Minimally Invasive Approaches Lead to High Remission Rates in Child ren RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190905;BYMONTHDAY=5 DESCRIPTION:In transnasal surgery (TNS)\, a surgeon goes through the nose u sing an endoscope to remove a pituitary tumor. The approach is the first-c hoice treatment for children with Cushing’s disease due to ACTH-secreting adenomas — or tumors — in the pituitary gland. Read more at https://cushie blog.com/2018/09/05/minimally-invasive-approaches-lead-to-high-remission-r ates-in-children/ X-ALT-DESC;FMTTYPE=text/html:In transnasal surgery (TNS)\, a surgeon goe s through the nose using an endoscope to remove a pituitary tumor. The app roach is the \;first-choice treatment for children with Cushing&rsquo\ ;s disease due to ACTH-secreting adenomas \;&mdash\; or tumors \;& mdash\; in the pituitary gland.
Read more at \;https://cushieblog.com/2018/09/ 05/minimally-invasive-approaches-lead-to-high-remission-rates-in-children/
CATEGORIES:Cushings UID:20180905T1425480Z-549422-973@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190106 SUMMARY:In Memory: Lori Holt DESCRIPTION:During the first few days of September 2007\, Lori had surgery to remove her adrenal gland. She experienced extreme difficulty post surge ry and never recovered. Read more at https://cushingsbios.com/2015/01/06/i n-memory-lori-holt/ X-ALT-DESC;FMTTYPE=text/html:During the first few days of September 2007
\, Lori had surgery to remove her adrenal gland.
She experienced extr
eme difficulty post surgery and never recovered.
Read more at \;https://cushingsbios.com/2015/01/06/in-memory-lori-holt/
CATEGORIES:In Memory UID:20190106T2101240Z-549422-1059@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210203 SUMMARY:Cushing's syndrome in a child RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220203;BYMONTHDAY=3 DESCRIPTION:Cushing's syndrome is a rare entity in children. Adrenal tumour is the common cause of this syndrome in young children\, whereas\, iatrog enic causes are more common among older children. We report a 4 year old m ale child diagnosed with Cushing syndrome due to a right adrenal adenoma\; the child presented with obesity and increase distribution of body hair. After thorough investigation and control of hypertension and dyselectrolyt emia\, right adrenalectomy was performed. The patient had good clinical re covery with weight loss and biochemical resolution of Cushing's syndrome. Read more at https://cushieblog.com/2021/02/03/cushings-syndrome-in-a-chil d/ X-ALT-DESC;FMTTYPE=text/html:Cushing's syndrome is a rare entity in chil dren. Adrenal tumour is the common cause of this syndrome in young childre n\, whereas\, iatrogenic causes are more common among older children. We r eport a 4 year old male child diagnosed with Cushing syndrome due to a rig ht adrenal adenoma\; the child presented with obesity and increase distrib ution of body hair. After thorough investigation and control of hypertensi on and dyselectrolytemia\, right adrenalectomy was performed. The patient had good clinical recovery with weight loss and biochemical resolution of Cushing's syndrome.
Read more at \;https://cus hieblog.com/2021/02/03/cushings-syndrome-in-a-child/
CATEGORIES:News Items UID:20210203T1302130Z-549422-1311@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Most Subclinical Cushing’s Patients Don’t Require Glucocorticoids A fter Adrenalectomy DTSTART;VALUE=DATE:20181128 DTEND;VALUE=DATE:20181129 RRULE:FREQ=MONTHLY;UNTIL=20191023;BYDAY=4TU DESCRIPTION:Patients with subclinical hypercortisolism\, i.e.\, without sym ptoms of cortisol overproduction\, and adrenal incidentalomas recover thei r hypothalamic-pituitary-adrenal (HPA) axis function after surgery faster than those with Cushing’s syndrome (CS)\, according to a study. Read more at https://cushieblog.com/2018/10/23/most-subclinical-cushings-patients-do nt-require-glucocorticoids-after-adrenalectomy/ X-ALT-DESC;FMTTYPE=text/html:Patients with subclinical hypercortisolism\ , i.e.\, without symptoms of cortisol overproduction\, and \;adrenal i ncidentalomas \;recover their hypothalamic-pituitary-adrenal (HPA) axi s function after surgery faster than those with \;Cushing&rsquo\;s syn drome \;(CS)\, according to a study.
Read more at \;https://c ushieblog.com/2018/10/23/most-subclinical-cushings-patients-dont-require-g lucocorticoids-after-adrenalectomy/
CATEGORIES:Cushings UID:20181023T1533440Z-549422-1000@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181024 SUMMARY:Comment added to Jason\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191024;BYMONTHDAY=24 DESCRIPTION:... I have a right side adrenal adenoma and have experienced a number of the things that you wrote about over the years. Have you had an adrenalectomy?... Read more at https://cushingsbios.com/2015/07/24/jason- adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:... I have a right side adrenal adenoma and have experienced a number of the things that you wrote about over the yea rs. Have you had an adrenalectomy?... \;
Read more at \;https://cushingsbios.com/2015/07/24/jason-adrenal-bio/
CATEGORIES:Cushie Bios UID:20181024T2145110Z-549422-1003@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20181101T220000 DTEND;TZID=America/New_York:20181101T230000 SUMMARY:Webinar: Pituitary 101 DESCRIPTION:Learning Objectives: To discuss the anatomy of the pituitary gl and To discuss the physiology of pituitary hormone secretion To discuss wh at can go wrong and how to treat pituitary disorders Read more at https:// cushieblogger.com/2018/10/24/webinar-pituitary-101/ X-ALT-DESC;FMTTYPE=text/html:Learning Objectives: To discuss the anatomy of the pituitary gland To discuss the physiology of pituitary hormone sec retion To discuss what can go wrong and how to treat pituitary disorders
Read more at \;https://cushieblogger.com/2018/10/24 /webinar-pituitary-101/
CATEGORIES:Events and Meetings UID:20181025T0143360Z-549422-1004@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cerce H\, Undiagnosed Bio DTSTART;VALUE=DATE:20181201 DTEND;VALUE=DATE:20181202 RRULE:FREQ=MONTHLY;UNTIL=20191026;BYDAY=-1FR DESCRIPTION:Cerce is from Rohnert Park\, CA. It has been 26 years since he r first symptom of excruciating unrelenting back\, and neck\, jaw\, and t emple pain. She has been diagnosed with Hashimoto's and is testing for C ushing's now. Read more at https://cushingsbios.com/2018/10/26/cerce-h-und iagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Cerce is from Rohnert Park\, CA. \;It has been 26 years since her first symptom of excruciating unrelenting back \, and neck\, \;jaw\, and temple pain. \;She has been diagnosed with \;Hashimoto's and is testing for Cushing's now.
Read mor e at \;https://cushingsbios.com/2018/10/26/cerce-h-undiag nosed-bio/
CATEGORIES:Cushie Bios UID:20181026T1002490Z-549422-1005@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200903 SUMMARY:WP Thyroid and Nature-Throid recall-August 2020 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210903;BYMONTHDAY=3 DESCRIPTION:Dr. Friedman prescribes various thyroid hormone preparations to his patients with hypothyroidism. This includes natural desiccated thyroi d (NDT) of which two preparations are WP Thyroid and Nature-Throid\, both made by RLC Labs. On August 25\, 2020\, RLC Labs announced a voluntary\, c onsumer-level recall of all lots of Nature-Throid and WP Thyroid tablets b ecause some lots contain less than the required 90% of the active ingredie nt as determined by the FDA. The RLC spokesperson said to Dr. Friedman tha t one lot of WP Thyroid and 5 lots of Nature-Throid contained between 87% and 90% of the labeled amount of levothyroxine (T4) or liothyronine (T3). The recall did not disclose which of the lots were affected and all lots a re recalled\, not just the affected lots. According to the recall\, if a p atient receives a sub-potent tablet\, hypothyroid symptoms may not be cont rolled. To date\, there have been no reports of adverse events related to this recall. Patients who have had an adverse event should contact RLC Lab s. Read more at http://cushings.invisionzone.com/topic/55326-wp-thyroid-an d-nature-throid-recall-august-2020/?tab=comments#comment-475509 X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman prescribes various thyroid hor mone preparations to his patients with hypothyroidism. This includes natur al desiccated thyroid (NDT) of which two preparations are WP Thyroid and N ature-Throid\, both made by RLC Labs. \;On August 25\, 2020\, RLC Labs announced a voluntary\, consumer-level recall of all lots of Nature-Throi d and WP Thyroid tablets because \;some \;lots contain less than t he required 90% of the active ingredient as determined by the FDA. The RLC spokesperson said to Dr. Friedman that \;one \;lot of \;WP Th yroid \;and \;5 \;lots of \;Nature-Throid \;contained between 87% and 90% of the labeled amount of levothyroxine (T4) or liothyr onine (T3). The recall did not disclose which of the lots were affected an d \;all \;lots are recalled\, not just the affected lots. \;Ac cording to the recall\, if a patient receives a sub-potent tablet\, hypoth yroid symptoms may not be controlled. To date\, there have been no reports of adverse events related to this recall. \;Patients who have had an adverse event should contact RLC Labs.
Read more at \;http://c ushings.invisionzone.com/topic/55326-wp-thyroid-and-nature-throid-recall-a ugust-2020/?tab=comments#comment-475509
CATEGORIES:News Items UID:20200903T1211550Z-549422-1286@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190705 SUMMARY:Lili\, Pituitary Post-Op Update RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200705;BYMONTHDAY=5 DESCRIPTION:Lili is from Florida. She updated her bio after her pituitary surgery. Read more at https://cushingsbios.com/2019/07/05/lili-pituitary-p ost-op-update/ X-ALT-DESC;FMTTYPE=text/html:Lili is from Florida. \;She updated he r bio after her pituitary surgery.
Read more at \;https://cushingsbios.com/2019/07/05/lili-pituitary-post-op-update/< /a>
CATEGORIES:Cushie Bios UID:20190705T1105250Z-549422-1183@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Adrenal incidentalomas—do they need follow up? DTSTART;VALUE=DATE:20190802 DTEND;VALUE=DATE:20190803 RRULE:FREQ=MONTHLY;UNTIL=20200705;BYDAY=1FR DESCRIPTION:Are adrenal incidentalomas\, which are found by chance on imagi ng\, really harmless? In this paper\, the authors looked at 32 studies\, i ncluding 4121 patients with benign non-functioning adrenal tumours (NFATs) or adenomas that cause mild autonomous cortisol excess (MACE). Read more at https://cushieblog.com/2019/07/05/adrenal-incidentalomas-do-they-need-f ollow-up/ X-ALT-DESC;FMTTYPE=text/html:Are adrenal incidentalomas\, which are foun d by chance on imaging\, really harmless? In this paper\, the authors look ed at 32 studies\, including 4121 patients with benign non-functioning adr enal tumours (NFATs) or adenomas that cause mild autonomous cortisol exces s (MACE).
Read more at \;http s://cushieblog.com/2019/07/05/adrenal-incidentalomas-do-they-need-follow-u p/
CATEGORIES:News Items UID:20190705T1126450Z-549422-1184@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Update on Coronavirus (COVID-19) DTSTART;VALUE=DATE:20200309 DTEND;VALUE=DATE:20200310 RRULE:FREQ=WEEKLY;UNTIL=20210309;BYDAY=MO DESCRIPTION:Those with adrenal insufficiency fall into that category. When sick with a viral infection\, they can have a more serious illness\, and c ertainly require stress dose steroids to help to respond to the illness. I f someone with adrenal insufficiency contracts the coronavirus\, it is mor e likely to lead to the need for supportive care\, including hospitalizati on. Read more at http://cushings.invisionzone.com/topic/55070-update-on-co ronavirus-covid-19/ X-ALT-DESC;FMTTYPE=text/html:Those with adrenal insufficiency fall into that category. When sick with a viral infection\, they can have a more ser ious illness\, and certainly require stress dose steroids to help to respo nd to the illness. If someone with adrenal insufficiency contracts the cor onavirus\, it is more likely to lead to the need for supportive care\, inc luding hospitalization.
Read more at \;http://cushings.invisionzone.com/topic/55070-update-on-coronavirus-c ovid-19/
CATEGORIES:Cushings UID:20200309T1259340Z-549422-1233@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190403 SUMMARY:The Incidence Of Cushing's Disease: A Nationwide Swedish Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200403;BYMONTHDAY=3 DESCRIPTION:Studies on the incidence of Cushing's disease (CD) are few and usually limited by a small number of patients. The aim of this study was t o assess the annual incidence in a nationwide cohort of patients with pres umed CD in Sweden. Read more at https://cushieblog.com/2019/04/03/the-inci dence-of-cushings-disease-a-nationwide-swedish-study/ X-ALT-DESC;FMTTYPE=text/html:Studies on the incidence of Cushing's disea se (CD) are few and usually limited by a small number of patients. The aim of this study was to assess the annual incidence in a nationwide cohort o f patients with presumed CD in Sweden.
Read more at \;https://cushieblog.com/2019/04/03/ the-incidence-of-cushings-disease-a-nationwide-swedish-study/
CATEGORIES:News Items UID:20190403T0558520Z-549422-1116@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New study identifies the main genetic causes of autoimmune Addison' s disease DTSTART;VALUE=DATE:20210313 DTEND;VALUE=DATE:20210314 RRULE:FREQ=MONTHLY;UNTIL=20220213;BYDAY=2SA DESCRIPTION:Scientists from the University of Bergen (Norway) and Karolinsk a Institutet (Sweden) have discovered the genes involved in autoimmune Add ison's disease\, a condition where the body's immune systems destroys the adrenal cortex leading to a life-threatening hormonal deficiency of cortis ol and aldosterone. Read more at https://cushieblog.com/2021/02/13/new-stu dy-identifies-the-main-genetic-causes-of-autoimmune-addisons-disease/ X-ALT-DESC;FMTTYPE=text/html:Scientists from the University of Bergen (N orway) and Karolinska Institutet (Sweden) have discovered the genes involv ed in autoimmune Addison's disease\, a condition where the body's immune s ystems destroys the adrenal cortex leading to a life-threatening hormonal deficiency of cortisol and aldosterone.
Read more at \;https://cushieblog .com/2021/02/13/new-study-identifies-the-main-genetic-causes-of-autoimmune -addisons-disease/
CATEGORIES:News Items UID:20210213T1143510Z-549422-1315@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231005 SUMMARY:Investigating the Frequency of Active Adrenal Incidentalomas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301005;BYMONTHDAY=5 DESCRIPTION: For a study\, researchers sought to ascertain the prevalence o f various forms of autonomous hormone secretion in individuals diagnosed w ith adrenal incidentaloma\, including autonomous/possible autonomous corti sol secretion (ACS)\, primary aldosteronism (PA)\, pheochromocytoma (PHEO) \, and Cushing syndrome (CS). Read more at https://cushings.invisionzone.c om/topic/57641-investigating-the-frequency-of-active-adrenal-incidentaloma s/ X-ALT-DESC;FMTTYPE=text/html:\;For a study\, researchers sought to ascertain the prevalence of various forms of autonomous hormone secretion in individuals diagnosed with adrenal incidentaloma\, including autonomous /possible autonomous cortisol secretion (ACS)\, primary aldosteronism (PA) \, pheochromocytoma (PHEO)\, and Cushing syndrome (CS).
Read more at \;https://cushings.invisionzone.com/topic/57641-investigating-the- frequency-of-active-adrenal-incidentalomas/
CATEGORIES:Cushings UID:20231005T0816580Z-549422-1683@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210213 SUMMARY:Can You Help? Possible Recurrence RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220213;BYMONTHDAY=13 DESCRIPTION:I thought I had moved on from this terrible disease. .. I have had two unsuccessful put surguries\, a bla 2x (due to ectopic adrenal tiss ue) and fear I may be having a recurrence. Read more at https://cushings.i nvisionzone.com/topic/55529-where-is-everyone/ X-ALT-DESC;FMTTYPE=text/html:I thought I had moved on from this terrible disease. .. I have had two unsuccessful put surguries\, a bla 2x (due to ectopic adrenal tissue) and fear I may be having a recurrence.
Rea d more at \;https://cushings.invisionzone.com/topic/5 5529-where-is-everyone/
CATEGORIES:Cushie Bios UID:20210213T0957070Z-549422-1314@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211215 SUMMARY:Curative Treatment on Hyperglycemia in Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221215;BYMONTHDAY=15 DESCRIPTION:Led by a team of investigators from the Mayo Clinic in Rocheste r\, MN\, the study examined a cohort of 174 adult patients with Cushing Sy ndrome and determined 2-in-3 patients with hyperglycemia experienced resol ution or improvement of hyperglycemia after a curative procedure. Read mor e at https://cushings.invisionzone.com/topic/56369-curative-treatment-on-h yperglycemia-in-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Led by a team of investigators from the May o Clinic in Rochester\, MN\, the study examined a cohort of 174 adult pati ents with Cushing Syndrome and determined 2-in-3 patients with hyperglycem ia experienced resolution or improvement of hyperglycemia after a curative procedure.
Read more at \;https://cushings.invisionzone.com/topic/56369-curative -treatment-on-hyperglycemia-in-cushing-syndrome/
CATEGORIES:Cushings UID:20211215T1420280Z-549422-1483@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment - ❣️The Message Boards Turn 22 Today! ❣️ RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300930;BYMONTH=9;BYMONTHDAY=30 DTSTART;VALUE=DATE:20220930 DTEND;VALUE=DATE:20221001 EXDATE;VALUE=DATE:20230930 DESCRIPTION:Comment from LinkedIn: Congratulations Mary! You have helped mo re lives than you will ever know including mine. I am forever grateful for finding your website 18 years ago when I was finally diagnosed with Cushi ngs Disease after a 2-year search for answers. Thank you ? Read more at Li nkedIn X-ALT-DESC;FMTTYPE=text/html:Comment from LinkedIn:
Congratulati ons Mary! You have helped more lives than you will ever know including min e. I am forever grateful for finding your website 18 years ago when I was finally diagnosed with Cushings Disease after a 2-year search for answers. Thank you ?
Read more at \;LinkedIn
CATEGORIES:Cushings UID:20220930T2118020Z-549422-1612@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210430 SUMMARY:Home cortisol tests: 3 of the best RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300430;BYMONTHDAY=30 DESCRIPTION:There are several home cortisol tests available to purchase ove r the counter or online. These allow a person to take a sample of blood\, urine\, or saliva before sending it off for analysis. After taking a home cortisol test\, people can usually receive their results within 2–5 days o nline or via a telephone call with a healthcare professional. However\, th ere are currently no studies investigating the reliability of these home c ortisol tests. Therefore\, people should follow up on their test results w ith a healthcare professional. Read more at https://cushings.invisionzone. com/topic/55639-home-cortisol-tests-3-of-the-best/ X-ALT-DESC;FMTTYPE=text/html:There are several home cortisol tests avail able to purchase over the counter or online. These allow a person to take a sample of blood\, urine\, or saliva before sending it off for analysis.< /p>
After taking a home cortisol test\, people can usually receive the ir results within 2&ndash\;5 days online or via a telephone call with a he althcare professional.
However\, there are currently no studies in vestigating the reliability of these home cortisol tests. Therefore\, peop le should follow up on their test results with a healthcare professional.< /p>
Read more at \;https://cushin gs.invisionzone.com/topic/55639-home-cortisol-tests-3-of-the-best/
CATEGORIES:Cushings UID:20210430T1347100Z-549422-1369@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210521 SUMMARY:Rapid Control Of Ectopic Cushing's Syndrome During The Covid-19 Pan demic in a Patient With Chronic Hypokalaemia RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230521;BYMONTHDAY=21 DESCRIPTION:In this case report\, we describe the management of a patient w ho was admitted with an ectopic ACTH syndrome during the COVID pandemic wi th new-onset type 2 diabetes\, neutrophilia and unexplained hypokalaemia. These three findings when combined should alert physicians to the potentia l presence of Cushing’s syndrome (CS). Read more at https://cushings.invis ionzone.com/topic/55676-rapid-control-of-ectopic-cushings-syndrome-during- the-covid-19-pandemic-in-a-patient-with-chronic-hypokalaemia/ X-ALT-DESC;FMTTYPE=text/html:In this case report\, we describe the manag ement of a patient who was admitted with an ectopic ACTH syndrome during t he COVID pandemic with new-onset type 2 diabetes\, neutrophilia and unexpl ained hypokalaemia. These three findings when combined should alert physic ians to the potential presence of Cushing&rsquo\;s syndrome (CS).
CATEGORIES:News Items UID:20210522T0020180Z-549422-1382@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231108 SUMMARY:Multiple Clinical Indications of Mifepristone: A Systematic Review RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301108;BYMONTHDAY=8 DESCRIPTION:Mifepristone has also been shown to improve treatment course in patients with Cushing’s disease (CD) who failed or are unable to undergo surgical treatment. In addition\, mifepristone has been shown to be a succ essful treatment option for adenomyosis and leiomyomas. Read more at http s://cushings.invisionzone.com/topic/57661-multiple-clinical-indications-of -mifepristone-a-systematic-review/ X-ALT-DESC;FMTTYPE=text/html:Mifepristone has also been shown to i mprove treatment course in patients with Cushing&rsquo\;s disease (CD) who failed or are unable to undergo surgical treatment. \;In addition\, m ifepristone has been shown to be a successful treatment option for adenomy osis and leiomyomas. \;
Read more at \; https://cushings.invisionzone.com/topic/57661-multiple-clinical-indication s-of-mifepristone-a-systematic-review/
CATEGORIES:Cushings UID:20231108T1636220Z-549422-1704@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230901 SUMMARY:Adults with Cushing’s Syndrome Report High Burden Of Illness\, Desp ite Ongoing Treatment RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300901;BYMONTHDAY=1 DESCRIPTION:Key takeaways: Cushing’s syndrome symptoms moderately impact qu ality of life for adults with the condition. Weight gain\, muscle fatigue and menstrual changes decline in severity from diagnosis to follow-up. Rea d more at https://cushings.invisionzone.com/topic/57630-adults-with-cushin g%E2%80%99s-syndrome-report-high-burden-of-illness-despite-ongoing-treatme nt/ X-ALT-DESC;FMTTYPE=text/html:Key takeaways:
Ectopic Cushing&prime\;s syndrome (ECS) ind uced by medullary thyroid cancer (MTC) is rare\, and data on clinical char acteristics\, treatment and outcome are limited.
Read more at \;https://cushings.invisionzone.com/topic/56277-medullary-thyroid-c ancer-with-ectopic-cushings-syndrome-a-multicentre-case-series/
CATEGORIES:News Items UID:20211118T1437050Z-549422-1460@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Stephanie M (Stephanie)\, Pituitary Bio DTSTART;VALUE=DATE:20181205 DTEND;VALUE=DATE:20181206 RRULE:FREQ=MONTHLY;UNTIL=20191107;BYDAY=1WE DESCRIPTION:Stephanie is from Eielson AFB Alaska. She has had two pituita ry surgeries\, gamma knife and has taken mifepristone. Read more at https: //cushingsbios.com/2018/11/07/stephanie-m-stephanie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Stephanie is from Eielson AFB Alaska. \; She has had two pituitary surgeries\, gamma knife and has taken mifepri stone.
Read more at \;https://cushing sbios.com/2018/11/07/stephanie-m-stephanie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20181107T1332400Z-549422-1017@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Vynn\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300505;BYMONTH=5;BYMONTHDAY=5 DTSTART;VALUE=DATE:20260505 DTEND;VALUE=DATE:20260506 DESCRIPTION:Have had 8 grueling months of tests and could have done with su pport as I was quite confused. Nothing in Australia. Tried internet but di dnt see this site. https://cushingsbios.com/2026/05/04/vynn-w-pituitary-bi o/ X-ALT-DESC;FMTTYPE=text/html:Have had 8 grueling months of tests a nd could have done with support as I was quite confused. Nothing in Austra lia. \;Tried internet but didnt see this site.
https://cushingsbios.com/2026/05/04/vynn-w-pituitar y-bio/
CATEGORIES:Cushie Bios UID:20260505T0857380Z-549422-2089@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Hannah C\, Video Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300505;BYMONTH=5;BYMONTHDAY=5 DTSTART;VALUE=DATE:20260505 DTEND;VALUE=DATE:20260506 DESCRIPTION:Hannah Cadwallader\, 34\, went 10 years without answers before learning she had Cushing’s disease\, a form of Cushing’s syndrome\, caused by a pituitary tumour that triggers the overproduction of the hormone cor tisol. https://cushingsbios.com/2026/05/05/hannah-c-video-bio/ X-ALT-DESC;FMTTYPE=text/html:Hannah Cadwallader\, 34\, went 10 years wit hout answers before learning she had Cushing&rsquo\;s disease\, a form of Cushing&rsquo\;s syndrome\, caused by a pituitary tumour that triggers the overproduction of the hormone cortisol.
h ttps://cushingsbios.com/2026/05/05/hannah-c-video-bio/
CATEGORIES:Cushie Bios UID:20260505T0847180Z-549422-2087@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:A Positive Corticotropin-Releasing Hormone Test May Obviate the Nee d For Petrosal Sinus Sampling in Patients With Cushing’s Disease RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300505;BYMONTH=5;BYMONTHDAY=5 DTSTART;VALUE=DATE:20260505 DTEND;VALUE=DATE:20260506 DESCRIPTION:Bilateral inferior petrosal sinus sampling (BIPSS) is considere d the most accurate procedure to confirm the diagnosis of Cushing’s diseas e (CD). However\, it is a cumbersome and costly procedure. We aim to deter mine whether the corticotropin-releasing hormone (CRH) test alone might di fferentiate CD from ectopic adrenocorticotropin (ACTH) syndrome (EAS). htt ps://cushings.invisionzone.com/topic/57955-a-positive-corticotropin-releas ing-hormone-test-may-obviate-the-need-for-petrosal-sinus-sampling-in-patie nts-with-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Bilateral inferior petrosal sinus sam pling (BIPSS) is considered the most accurate procedure to confirm the dia gnosis of Cushing&rsquo\;s disease (CD). However\, it is a cumbersome and costly procedure. We aim \;to determine whether the corti cotropin-releasing hormone (CRH) test alone might differentiate CD from ec topic adrenocorticotropin (ACTH) syndrome (EAS).
CATEGORIES:News Items UID:20260505T0907590Z-549422-2090@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Mary (TheGoat)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300505;BYMONTH=5;BYMONTHDAY=5 DTSTART;VALUE=DATE:20260505 DTEND;VALUE=DATE:20260506 DESCRIPTION:I had 3 transphenoidal surgeries 1 month apart in 2003. I had a csf leak and when it was repaired the pituitary had become necrotic and I lost the whole gland. They said that did not cure the cushings so I had a BLA in 2004. https://cushingsbios.com/2026/05/04/mary-thegoat-pituitary-b io/ X-ALT-DESC;FMTTYPE=text/html:I had 3 transphenoidal surgeries 1 month ap art in 2003. I had a csf leak and when it was repaired the pituitary had b ecome necrotic and I lost the whole gland.
They said that did not cure the cushings so I had a BLA in 2004.
https://cushingsbios.com/2026/05/04/mary-thegoat-pituitary-bio/
CATEGORIES:Cushie Bios UID:20260505T0853030Z-549422-2088@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Metyrapone Effective and Safe in Endogenous Cushing’s Syndrome in L ong Term DTSTART;VALUE=DATE:20210618 DTEND;VALUE=DATE:20210619 RRULE:FREQ=MONTHLY;UNTIL=20220521;BYDAY=3FR DESCRIPTION:Metyrapone is approved in Europe for the treatment of endogenou s Cushing’s syndrome. It works by inhibiting the 11-beta-hydroxylase enzym e\, the final step in cortisol synthesis. Read more at https://cushings.in visionzone.com/topic/55677-metyrapone-effective-and-safe-in-endogenous-cus hing%E2%80%99s-syndrome-in-long-term/ X-ALT-DESC;FMTTYPE=text/html:Metyrapone is approved in Europe for the tr eatment of endogenous Cushing&rsquo\;s syndrome. It works by inhibiting th e 11-beta-hydroxylase enzyme\, the final step in cortisol synthesis.
Read more at \;https://cushings.invisionzone.com/topic/556 77-metyrapone-effective-and-safe-in-endogenous-cushing%E2%80%99s-syndrome- in-long-term/
CATEGORIES:News Items UID:20210522T0032330Z-549422-1383@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Stefanie\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300111;BYMONTH=1;BYMONTHDAY=11 DTSTART;VALUE=DATE:20260111 DTEND;VALUE=DATE:20260112 DESCRIPTION:Stefanie is from Michigan She was diagnosed in 2012 and had pi tuitary surgery in 2013. She is currently on medications. https://cushings bios.com/2026/01/11/stefanie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Stefanie is from Michigan \;She was di agnosed in 2012 and had pituitary surgery in 2013. She is currently on med ications.
https://cushingsbios.com/2026 /01/11/stefanie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20260113T1336050Z-549422-2063@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Sam in the News RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300110;BYMONTH=1;BYMONTHDAY=10 DTSTART;VALUE=DATE:20260110 DTEND;VALUE=DATE:20260111 DESCRIPTION:Sam\, 17\, has faced limitations with serious health issues\, i ncluding Cushing's\, Addison’s disease and osteoporosis. https://cushingsb ios.com/2026/01/10/sam-in-the-news/ X-ALT-DESC;FMTTYPE=text/html:Sam\, 17\, has faced limitations with serio us health issues\, including Cushing's\, Addison&rsquo\;s disease and oste oporosis.
https://cushingsbios.com/2026/01/10/ sam-in-the-news/
CATEGORIES:Cushie Bios UID:20260113T1333320Z-549422-2062@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Nicola C (Nikkikicks)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300109;BYMONTH=1;BYMONTHDAY=9 DTSTART;VALUE=DATE:20260109 DTEND;VALUE=DATE:20260110 DESCRIPTION:I am 40 lbs heavier and I choose between working out\, cooking healthy or functioning at work. The cold Colorado weather is like stabbing me with a million tiny knives. My family thinks I’m being dramatic and m y boyfriend thinks that I can still work out 4-6 days a week as I did befo re my car accident. At this point I’m trying not to cry or mourn the loss of my healthy lifestyle- I’m literally fighting for my life. I’m just goin g to get my official diagnosis and then do all I can to recover. https://c ushingsbios.com/2026/01/09/nicola-c-nikkikicks-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I am 40 lbs heavier and I choose between wo rking out\, cooking healthy or functioning at work. The cold Colorado weat her is like stabbing me with a million tiny \;knives.
My fami ly thinks I&rsquo\;m being dramatic and my boyfriend thinks that I can sti ll work out 4-6 days a week as I did before my car accident.
At th is point I&rsquo\;m trying not to cry or mourn the loss of my healthy life style- I&rsquo\;m literally fighting for my life.
I&rsquo\;m just going to get my official diagnosis and then do all I can to recover.
https://cushingsbios.com/2026/0 1/09/nicola-c-nikkikicks-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260113T1330530Z-549422-2061@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180304 SUMMARY:Cushing's and Hairy Nipples RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190303;BYMONTHDAY=4 DESCRIPTION:Causes of hairy nipples in women There are several underlying r easons that might cause nipple hairs to grow. These are: Cushing's syndrom e Cushing's syndrome is another condition caused by hormonal imbalance. Wh en it occurs\, there is an excess of cortisol in the body. Read more at ht tps://cushieblog.com/2018/03/03/cushings-and-hairy-nipples/ X-ALT-DESC;FMTTYPE=text/html:There are several underlying reasons that might cause nipple hairs to grow . These are:
Cushing's syndrome is an other condition caused by hormonal imbalance. When it occurs\, there is an excess of cortisol in the body.
Read more at \; https://cushieblog.com/2018/03/03/cushings-and-hairy-nipples/
CATEGORIES:Cushings UID:20180304T0117460Z-549422-844@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180413 SUMMARY:Comment added to Ren\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190413;BYMONTHDAY=13 DESCRIPTION:...My husband was diagnosed with Cushing’s disease Nov 2016 and was told the moon face (round swelling of face) and the purple striae (pu rple stretch marks) were classic symptoms of Cushing’s... In the comments area of https://cushingsbios.com/2017/10/24/ren-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...My husband was diagnosed with Cushing&rs quo\;s disease Nov 2016 and was told the moon face (round swelling of face ) and the purple striae (purple stretch marks) were classic symptoms of Cu shing&rsquo\;s...
In the comments area of \;https://c ushingsbios.com/2017/10/24/ren-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180414T0128020Z-549422-902@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240629 SUMMARY:Unveiling the Uncommon: Cushing’s Syndrome (CS) Masquerading as Sev ere Hypokalemia RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300629;BYMONTHDAY=29 DESCRIPTION:A 48-year-old male with a history of hypertension presented to his primary care physician with complaints of bilateral leg swelling\, occ asional shortness of breath\, dizziness\, and a general feeling of malaise persisting for 10 days. The patient reported increased water intake and u rinary frequency without dysuria. The patient was diagnosed with hypertens ion eight months ago. He experienced progressive muscle weakness over two months\, hindering his ability to perform daily activities\, including usi ng the bathroom. Read more at https://cushings.invisionzone.com/topic/577 40-unveiling-the-uncommon-cushing%E2%80%99s-syndrome-cs-masquerading-as-se vere-hypokalemia/ X-ALT-DESC;FMTTYPE=text/html:A 48-year-old male with a history of hypertension presented to his primary care physician with complaints of bi lateral leg swelling\, occasional shortness of breath\, dizziness\, and a general feeling of malaise persisting for 10 days. The patient reported in creased water intake and urinary frequency without dysuria. The patient wa s diagnosed with hypertension eight months ago. He experienced progressive muscle weakness over two months\, hindering his ability to perform daily activities\, including using the bathroom. \;
Rea d more at \;https://cushings.invisionzone. com/topic/57740-unveiling-the-uncommon-cushing%E2%80%99s-syndrome-cs-masqu erading-as-severe-hypokalemia/
CATEGORIES:Cushings UID:20240629T1557360Z-549422-1797@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200309 SUMMARY:FDA Approves New Treatment for Adults with Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210309;BYMONTHDAY=9 DESCRIPTION:The U.S. Food and Drug Administration today approved Isturisa ( osilodrostat) oral tablets for adults with Cushing's disease who either ca nnot undergo pituitary gland surgery or have undergone the surgery but sti ll have the disease. Cushing's disease is a rare disease in which the adre nal glands make too much of the cortisol hormone. Isturisa is the first FD A-approved drug to directly address this cortisol overproduction by blocki ng the enzyme known as 11-beta-hydroxylase and preventing cortisol synthes is. Read more at https://cushieblog.com/2020/03/09/fda-approves-new-treatm ent-for-adults-with-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:The U.S. Food and Drug Administration today approved Isturisa (osilodrostat) oral tablets for adults with Cushing's d isease who either cannot undergo pituitary gland surgery or have undergone the surgery but still have the disease. Cushing's disease is a rare disea se in which the \;adrenal glands make too much of the cortisol hormone . Isturisa is the first FDA-approved drug to directly address this cortiso l overproduction by blocking the enzyme known as 11-beta-hydroxylase and p reventing cortisol synthesis.
Read more at \;https://cushieblog.com/2020/03/09/fda-approv es-new-treatment-for-adults-with-cushings-disease/
CATEGORIES:Cushings UID:20200309T1333410Z-549422-1234@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190901 SUMMARY:Corcept Therapeutics Announces Allowance of Additional Patent Cover ing the Use of Korlym to Treat Patients With Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200901;BYMONTHDAY=1 DESCRIPTION:Corcept Therapeutics Incorporated (NASDAQ: CORT) announced toda y that the United States Patent and Trademark Office has issued a Notice o f Allowance for a patent covering the administration of Korlym® with food. The patent will expire in November 2032. “This patent covers an importan t finding of our research – that for optimal effect\, Korlym must be taken with food\,” said Joseph K. Belanoff\, MD\, Corcept’s Chief Executive Off icer. “Korlym’s label instructs doctors that ‘Korlym must always be taken with a meal.’” Read more at http://cushings.invisionzone.com/topic/54784-c orcept-therapeutics-announces-allowance-of-additional-patent-covering-the- use-of-korlym-to-treat-patients-with-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Corcept Therapeutics Incorp orated (NASDAQ: CORT) announced today that the United States Patent and Tr ademark Office has issued a Notice of Allowance for a patent covering the administration of Korlym®\; \;with food. \; The patent will exp ire in November 2032.
&ldquo\;This patent covers a n important finding of our research &ndash\; that for optimal effect\, Kor lym must be taken with food\,&rdquo\; said Joseph K. Belanoff\, MD\, Corce pt&rsquo\;s Chief Executive Officer. &ldquo\;Korlym&rsquo\;s label instruc ts doctors that &lsquo\;Korlym must always be taken with a meal.&rsquo\;&r dquo\;
CATEGORIES:News Items UID:20190901T1243280Z-549422-1207@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190622 SUMMARY:Michael B\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200622;BYMONTHDAY=22 DESCRIPTION:Michael is from the UK. He was diagnosed in May 2015 and had a failed transsphenoidal surgery in September 2015. As of June 2019 he is waiting for gamma knife to work. Read more at https://cushingsbios.com/201 9/06/22/michael-b-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Michael is from the UK. \;He was diagn osed in May 2015 and had a failed transsphenoidal surgery in September 201 5. \;As of June 2019 he is waiting for gamma knife to work.
R ead more at \;https://cushingsbios.com/2019/06/22/michael -b-pituitary-bio/
CATEGORIES:Helpful Doctors UID:20190622T2153530Z-549422-1177@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Melissa\, Pituitary Bio DTSTART;VALUE=DATE:20190727 DTEND;VALUE=DATE:20190728 RRULE:FREQ=MONTHLY;UNTIL=20200622;BYDAY=4SA DESCRIPTION:Melissa is from Asheville\, NC. She was diagnosed with Cushing' s Syndrome about 4 yrs ago at 40 yrs old. She was told it was due to the s teriods my Neurologist prescribed for Trigeminal Neuralgia and other sever e facial pain. Read more at https://cushingsbios.com/2019/06/22/melissa-pi tuitary-bio-3/ X-ALT-DESC;FMTTYPE=text/html:Melissa is from Asheville\, NC. She was dia
gnosed with Cushing's Syndrome about 4 yrs ago at 40 yrs old.
She was
told it was due to the steriods my Neurologist prescribed for Trigeminal
Neuralgia and other severe facial pain.
Read more at \;https://cushingsbios.com/2019/06/22/melissa-pituitary-bio-3/
CATEGORIES:Cushie Bios UID:20190622T2120550Z-549422-1176@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200406 SUMMARY:Patients on Steroids With COVID-19 Might Need Rescue Steroids RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210406;BYMONTHDAY=6 DESCRIPTION:'No patient with a history of prior exposure to chronic glucoco rticoid therapy (> 3 months)...should die without consideration' for a str ess dose of replacement glucocorticoid therapy. Read more at http://cushin gs.invisionzone.com/topic/55015-clinical-characterization-of-patients-with -primary-aldosteronism-plus-subclinical-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:'No patient with a history of prior exposur e to chronic glucocorticoid therapy (>\; 3 months)...should die without consideration' for a stress dose of replacement glucocorticoid therapy.
CATEGORIES:Cushings UID:20200407T0003100Z-549422-1237@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190321 SUMMARY:Dr. Ali Krisht receives 2019 Herbert Olivecrona Award RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200321;BYMONTHDAY=21 DESCRIPTION:Dr. Krisht earned the honor — sometimes known as the Nobel Priz e for neurosurgery — for his cerebrovascular\, pituitary and skull base tu mor surgery work. Read more at https://cushieblogger.com/2019/03/21/dr-ali -krisht-receives-2019-herbert-olivecrona-award/ X-ALT-DESC;FMTTYPE=text/html:Dr. Krisht earned the honor &mdash\; someti mes known as the Nobel Prize for neurosurgery &mdash\; for his cerebrovasc ular\, pituitary and skull base tumor surgery work.
Read more at&n bsp\;https://cushieblogger.com/ 2019/03/21/dr-ali-krisht-receives-2019-herbert-olivecrona-award/
CATEGORIES:Helpful Doctors UID:20190321T1012540Z-549422-1105@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:It's Time to Sign Up for the Cushing’s Awareness Challenge 2019 DTSTART;VALUE=DATE:20190321 DTEND;VALUE=DATE:20190322 RRULE:FREQ=WEEKLY;UNTIL=20190402;BYDAY=SU,TH DESCRIPTION:As always\, anyone who wants to join me on the Cushing's Awaren ess Challenge can share their blog URL with me and I'll add it to the link s on the right side\, so whenever a new post comes up\, it will show up au tomatically. Read more at https://cushieblogger.com/2019/03/21/its-time-to -sign-up-for-the-cushings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:As always\, anyone who wants to join me on the Cushing's Awareness Challenge can share their blog URL with me and I'l l add it to the links on the right side\, so whenever a new post comes up\ , it will show up automatically.
Read more at \;https://cushieblogger.com/2019/03/21 /its-time-to-sign-up-for-the-cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190322T0125330Z-549422-1104@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Join Us for the 13th Pituitary Patient Education Day DTSTART;VALUE=DATE:20240629 DTEND;VALUE=DATE:20240630 RRULE:FREQ=WEEKLY;UNTIL=20241102;BYDAY=TU,SA DESCRIPTION:The annual Pituitary Patient Education Day is a free event on N ovember 2 that features presentations from Johns Hopkins pituitary experts . Read more at https://cushings.invisionzone.com/topic/57741-join-us-for-t he-13th-pituitary-patient-education-day/ X-ALT-DESC;FMTTYPE=text/html:The annual Pituitary Patient Education Day is a free event o n November 2 that features presentations from Johns Hopkins pituitary expe rts.
Read more at \;https://cushings.invisionzone.com/topic/57741 -join-us-for-the-13th-pituitary-patient-education-day/
CATEGORIES:Events and Meetings UID:20240629T1647490Z-549422-1798@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240125 SUMMARY:A Medical Chart Audit to Assess Endocrinologist Perceptions of the Burden of Endogenous Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300125;BYMONTHDAY=25 DESCRIPTION:Sixty-nine endocrinologists abstracted data from 273 unique med ical charts of patients with CS. Mean patient age was 46.5 ± 13.4 years\, with a 60:40 (female:male) gender split. The mean duration of endogenous C S amongst patients was 4.1 years. Chart data indicated that patients exper ienced a high burden of comorbidities and symptoms\, including fatigue\, w eight gain\, and muscle weakness despite multi-modal treatment. Read more at https://cushings.invisionzone.com/topic/57687-a-medical-chart-audit-to -assess-endocrinologist-perceptions-of-the-burden-of-endogenous-cushing%E2 %80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Sixty-nine endocrinologists abstracte d data from 273 unique medical charts of patients with CS. Mean patient ag e was 46.5&thinsp\;±\;&thinsp\;13.4 \;years\, with a 60:40 (fema le:male) gender split. The mean duration of endogenous CS amongst patients was 4.1 \;years. Chart data indicated that patients experienced a hig h burden of comorbidities and symptoms\, including fatigue\, weight gain\, and muscle weakness despite multi-modal treatment. \;
CATEGORIES:Cushings UID:20240125T1238340Z-549422-1738@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231118 SUMMARY:Interpetrosal Sphingosine-1-Phosphate Ratio Predicting Cushing’s Di sease Tumor Laterality and Remission After Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301118;BYMONTHDAY=18 DESCRIPTION:Cushing’s disease (CD) poses significant challenges in its trea tment due to the lack of reliable biomarkers for predicting tumor localiza tion or postoperative clinical outcomes. Sphingosine-1-phosphate (S1P) has been shown to increase cortisol biosynthesis and is regulated by adrenoco rticotropic hormone (ACTH). Read more at https://cushings.invisionzone.com /topic/57667-interpetrosal-sphingosine-1-phosphate-ratio-predicting-cushin g%E2%80%99s-disease-tumor-laterality-and-remission-after-surgery/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) poses signifi cant challenges in its treatment due to the lack of reliable biomarkers fo r predicting tumor localization or postoperative clinical outcomes. Sphing osine-1-phosphate (S1P) has been shown to increase cortisol biosynthesis a nd is regulated by adrenocorticotropic hormone (ACTH).
CATEGORIES:News Items UID:20231118T2351180Z-549422-1712@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210213 SUMMARY:$$$ Attention Cushing's Patients ~ Patient Advisory Board $$$ RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220213;BYMONTHDAY=13 DESCRIPTION:Virtual Patient Panel for Cushing's Syndrome Patients Patients that are accepted will be compensated for their participation. Read more at https://cushieblogger.com/2021/02/13/attention-cushings-patients-patien t-advisory-board/ X-ALT-DESC;FMTTYPE=text/html:Virtual Patient Panel for Cushing's Syndrom
e Patients \;
Patients that are accepted will be compensated for
their participation.
Read more at \;https://cushieblogger.com/2021/02/13/attention-cushings-pat ients-patient-advisory-board/
CATEGORIES:Cushings UID:20210213T2138200Z-549422-1316@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220116 SUMMARY:Lung Neuroendocrine Tumors With Cushing Syndrome Not Biologically A ggressive RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230116;BYMONTHDAY=16 DESCRIPTION:Neuroendocrine pulmonary tumors in people with Cushing syndrome (CS) are associated with increased nodal metastasis\, higher recurrence\, and lower disease-free survival compared with quiescent bronchopulmonary tumors\, according to results from an observational case series published in JAMA Network Open. Researchers said their study shows these tumors are not biologically aggressive and underlying carcinoid biology may not be as important as symptomatic hormonal physiology. Read more at https://cushin gs.invisionzone.com/topic/56481-lung-neuroendocrine-tumors-with-cushing-sy ndrome-not-biologically-aggressive/ X-ALT-DESC;FMTTYPE=text/html:Neuroendocrine pulmonary tumors in people w ith Cushing syndrome (CS) are associated with increased nodal metastasis\, higher recurrence\, and lower disease-free survival compared with quiesce nt bronchopulmonary tumors\, according to results from an observational ca se series published in \;JAMA Network Open. Researchers said their study shows these tumors are not biologically aggressive and underly ing carcinoid biology may not be as important as symptomatic hormonal phys iology.
Read more at \;https://cushings.invisionzone.com/top ic/56481-lung-neuroendocrine-tumors-with-cushing-syndrome-not-biologically -aggressive/
CATEGORIES:Cushings UID:20220116T1215150Z-549422-1499@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:NIH 70th Anniversary (2023) RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300706;BYMONTH=7;BYMONTHDAY=6 DTSTART;VALUE=DATE:20230706 DTEND;VALUE=DATE:20230707 DESCRIPTION:On July 6\, 1953\, the NIH Clinical Center opened its doors to patients…. Seventy years later\, the Clinical Center remains a national fo cal point for clinical research and creating cures that improve the health of the nation and the world. More info at https://cushings.invisionzone.c om/topic/57613-nih-70th-anniversary-celebration-2023/ X-ALT-DESC;FMTTYPE=text/html:On July 6\, 1953\, the NIH Clinical Center
opened its doors to patients&hellip\;.
Seventy years later\, the Clin
ical Center remains a national focal point for clinical research and creat
ing cures that improve the health of the nation and the world.
Mor e info at \;https: //cushings.invisionzone.com/topic/57613-nih-70th-anniversary-celebration-2 023/
CATEGORIES:This Day in Medical History UID:20230705T2035460Z-549422-1654@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180430 SUMMARY:Angie (Angie)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190430;BYMONTHDAY=30 DESCRIPTION:Angie is from Alamo. Her Endo tested her and within 6 months t hey were positive for Cushing's. She had surgery on her pituitary gland A pril 11\, 2017. The endo at the hospital said that the surgery was unsucce ssful. Read more at https://cushingsbios.com/2018/04/30/angie-angie-pituit ary-bio/ X-ALT-DESC;FMTTYPE=text/html:Angie is from Alamo. \;Her Endo tested her and within 6 months they were positive for Cushing's. She had surgery on her pituitary gland \;April 11\, 2017. The endo at the hospital s aid that the surgery was unsuccessful.
Read more at \;https://cushingsbios.com/2018/04/30/angie-angie-pituitary-bio/< /p> CATEGORIES:Cushie Bios UID:20180430T1706020Z-549422-919@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Rachel\, Undiagnosed Bio DTSTART;VALUE=DATE:20180511 DTEND;VALUE=DATE:20180512 RRULE:FREQ=MONTHLY;UNTIL=20190413;BYDAY=2FR DESCRIPTION:...You may also have undiagnosed hypothyroid problem just becau se all thyroid hormone levels are within normal limit in the test. However \, there are 6 different kind of thyroid disease with different mechanism. .. In the comments area of https://cushingsbios.com/2017/04/03/rachel-und iagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:
...You may also have undiagnosed hypothyroi d problem just because all thyroid hormone levels are within normal limit in the test. However\, there are 6 different kind of thyroid disease with different mechanism... \;
In the comments area of \;https://cushingsbios.com/2017/04/03/rachel-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180414T0130140Z-549422-903@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211106 SUMMARY:Cushing Disease Treated Successfully with Metyrapone During Pregnan cy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221106;BYMONTHDAY=6 DESCRIPTION:Clinical Relevance: Cushing’s Disease (CD) in pregnancy is a ra re\, but serious\, disease that has potential adverse effects on maternal and fetal health. Surgery is considered first line therapy\, and there is little consensus on medical treatment of CD in pregnancy. This CASE demons trates the successful use and titration of metyrapone throughout pregnancy . Read more at https://cushings.invisionzone.com/topic/56254-cushing-disea se-treated-successfully-with-metyrapone-during-pregnancy/ X-ALT-DESC;FMTTYPE=text/html:Clinical Relevance: Cushing&rsquo\;s Diseas e (CD) in pregnancy is a rare\, but serious\, disease that has potential a dverse effects on maternal and fetal health. Surgery is considered first l ine therapy\, and there is little consensus on medical treatment of CD in pregnancy. This CASE demonstrates the successful use and titration of mety rapone throughout pregnancy.
Read more at \;https://cushings.invisi onzone.com/topic/56254-cushing-disease-treated-successfully-with-metyrapon e-during-pregnancy/
CATEGORIES:News Items UID:20211106T1331560Z-549422-1448@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New MemberMap Coming! DTSTART;VALUE=DATE:20181206 DTEND;VALUE=DATE:20181207 RRULE:FREQ=MONTHLY;UNTIL=20191115;BYDAY=1TH,3TH EXDATE;VALUE=DATE:20181115 DESCRIPTION:I'm having to rebuild the Cushing's Member Map from old info an d the newer bios that are coming in. Find the new MemberMap here Add your information - or your doctor's - at https://cushingsbios.com/2018/10/28/w e-have-a-new-bio-form/ X-ALT-DESC;FMTTYPE=text/html:I'm having to rebuild the Cushing's Member Map from old info and the newer bios that are coming in. \;Find the n ew \;MemberMap here
Ad d your information - or your doctor's - at \;https://cushi ngsbios.com/2018/10/28/we-have-a-new-bio-form/
CATEGORIES:Cushie Bios UID:20181116T0257320Z-549422-1025@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Janice (Not So Cushie)\, Upcoming Book\, Installment 1 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300111;BYMONTH=1;BYMONTHDAY=11 DTSTART;VALUE=DATE:20260111 DTEND;VALUE=DATE:20260112 DESCRIPTION:Janice writes: I have written a memoir about my experiences wit h Cushing's Disease. An agent is interested in it but says I have to have a platform before she will represent me. So I need a following. I want thi s book to get out to show people the effects of Cushing's in our lives and to help the families going through this to better help and understand the person suffering with this disease. In the book I mention this site. Unfo rtunately I found it after I already had the pit surgery. I have also wri tten a play based on my memoir. I am on a mission to inform people of this disease... https://cushingsbios.com/2026/01/11/janice-not-so-cushie-upcom ing-book-installment-1/ X-ALT-DESC;FMTTYPE=text/html:Janice writes: I have written a memoir abou t my experiences with Cushing's Disease. An agent is interested in it but says I have to have a platform before she will represent me. So I need a f ollowing. I want this book to get out to show people the effects of Cushin g's in our lives and to help the families going through this to better hel p and understand the person suffering with this disease. In the book I men tion this site. Unfortunately I found it after I already had the pit surge ry. \;I have also written a play based on my memoir. I am on a missio n to inform people of this disease...
https://cushingsbios.com/2026/01/11/janice-not-so -cushie-upcoming-book-installment-1/
CATEGORIES:Cushie Bios UID:20260113T1346490Z-549422-2064@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210522 SUMMARY:Comment on Melissa\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220522;BYMONTHDAY=22 DESCRIPTION:Have you had a functional doctor check your B12 levels? B12 def iciency can cause the exhaustion you are experiencing. From https://cushin gsbios.com/2019/06/22/melissa-pituitary-bio-3/comment-page-1/#comment-5836 5 X-ALT-DESC;FMTTYPE=text/html:Have you had a functional doctor check your B12 levels? B12 deficiency can cause the exhaustion you are experiencing.
From \;https://cush ingsbios.com/2019/06/22/melissa-pituitary-bio-3/comment-page-1/#comment-58 365
CATEGORIES:Cushie Bios UID:20210522T1110370Z-549422-1384@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:The Neurosurgical Outcome of Pediatric Cushing’s Disease in a Singl e Center From China: A 20-Year Experience DTSTART;VALUE=DATE:20251015 DTEND;VALUE=DATE:20251016 RRULE:FREQ=MONTHLY;UNTIL=20280924;BYDAY=3WE DESCRIPTION:Transsphenoidal surgery represents a highly effective first-lin e treatment for pediatric CD\, achieving high rates of immediate (90.9%) a nd long-term remission (81.8%) in a specialized center. A meticulous diagn ostic approach incorporating BIPSS is crucial\, particularly for MRI-negat ive cases. While recurrence occurred in a minority of patients\, primarily those with microadenomas\, durable disease control is attainable for the majority with appropriate surgical management. The transition to endoscopi c techniques was feasible and effective. https://cushings.invisionzone.com /topic/57885-the-neurosurgical-outcome-of-pediatric-cushing%E2%80%99s-dise ase-in-a-single-center-from-china-a-20-year-experience/ X-ALT-DESC;FMTTYPE=text/html:Transsphenoidal surgery represents a highly effective first-line treatment for pediatric CD\, achieving high ra tes of immediate (90.9%) and long-term remission (81.8%) in a specialized center. A meticulous diagnostic approach incorporating BIPSS is crucial\, particularly for MRI-negative cases. While recurrence occurred in a minori ty of patients\, primarily those with microadenomas\, durable disease cont rol is attainable for the majority with appropriate surgical management. T he transition to endoscopic techniques was feasible and effective.< /p>
CATEGORIES:Cushings UID:20250924T1619100Z-549422-1940@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240110 SUMMARY:An Ectopic Cushing’s Syndrome with Severe Psychiatric Presentation RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300110;BYMONTHDAY=10 DESCRIPTION:We report a case of severe EAS in a young Tunisian man resultin g from a well differentiated Neuroendocrine Tumor (NET) of the lung. Besid es catabolic signs and profound hypokalemia orienting towards Cushing’s Sy ndrome (CS)\, psychiatric symptoms were particularly severe\, dominant and atypical including persecutory delusions\, depression and anxiety. Read m ore at https://cushings.invisionzone.com/topic/57683-an-ectopic-cushing%E2 %80%99s-syndrome-with-severe-psychiatric-presentation/ X-ALT-DESC;FMTTYPE=text/html:We report a case of severe EAS in a young T unisian man resulting from a well differentiated Neuroendocrine Tumor (NET ) of the lung. Besides catabolic signs and profound hypokalemia orienting towards Cushing&rsquo\;s Syndrome (CS)\, psychiatric symptoms were particu larly severe\, dominant and atypical including persecutory delusions\, dep ression and anxiety.
Read more at \;https://cus hings.invisionzone.com/topic/57683-an-ectopic-cushing%E2%80%99s-syndrome-w ith-severe-psychiatric-presentation/
CATEGORIES:Cushings UID:20240110T2023380Z-549422-1734@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20240803T040000 DTEND;TZID=America/New_York:20240803T050000 SUMMARY:Comment added to Day 3: Cushing’s Awareness Challenge DESCRIPTION:Wow - a lot has happened since I first shared this post. If yo u look at the timestamp\, I'm writing this at 4:20 am and I've been awake for an hour\, even though I'm exhausted. I have been back on Growth Hormon e although it doesn't seem to do me any good. Read more at https://cushing s.invisionzone.com/topic/56745-day-3-cushing%E2%80%99s-awareness-challenge -2022/?do=findComment&comment=478719 X-ALT-DESC;FMTTYPE=text/html:Wow - a lot has happened since I first shar ed this post. \; If you look at the timestamp\, I'm writing this at 4: 20 am and I've been awake for an hour\, even though I'm exhausted.
I have been back on Growth Hormone although it doesn't seem to do me any good.
Read more at \;https://cushings. invisionzone.com/topic/56745-day-3-cushing%E2%80%99s-awareness-challenge-2 022/?do=findComment&\;comment=478719
CATEGORIES:Awareness Challenge UID:20240830T0145450Z-549422-1815@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190315 SUMMARY:Cushing's Disease Stresses Your Heart and Your Mental Health RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200315;BYMONTHDAY=15 DESCRIPTION:Adults with Cushing's syndrome\, also called hypercortisolism\, have a three-fold higher risk of dying from heart disease compared to the general population\, according to findings reported by a Swiss research t eam. Although the researchers found that the risk drops when patients are under care\, receiving treatment\, and are in remission\, the risks don't disappear completely. Read more at https://cushieblog.com/2019/03/15/cus hings-disease-stresses-your-heart-and-your-mental-health/ X-ALT-DESC;FMTTYPE=text/html:Adults with Cushing's syndrome\, also calle d hypercortisolism\, have a three-fold higher risk of dying from heart dis ease compared to the general population\, according to findings reported b y a Swiss research team. Although the researchers found that the risk drop s when patients are under care\, receiving treatment\, and are in remissio n\, the risks don't disappear completely. \;
Read more at&nbs p\;https://cushieblog.com/2 019/03/15/cushings-disease-stresses-your-heart-and-your-mental-health/
CATEGORIES:Cushings UID:20190315T1353530Z-549422-1101@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20190210T180000 DTEND;TZID=America/New_York:20190210T190000 SUMMARY:Webinar: New and Traditional Treatments for Male Hypogonad DESCRIPTION:Dr. Theodore Friedman will be joined by Shira Miller\, MD hosti ng a webinar on New and Traditional Treatments for Male Hypogonadism Spous es welcome More info at https://cushieblogger.com/2019/01/30/webinar-new-a nd-traditional-treatments-for-male-hypogonadism/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman will be joined by Shi ra Miller\, MD hosting a webinar \;on \;New and Traditional Treatm ents for Male Hypogonadism
Spouses welcome
More info at&nb sp\;https://cushieblogg er.com/2019/01/30/webinar-new-and-traditional-treatments-for-male-hypogona dism/
CATEGORIES:Events and Meetings UID:20190130T1344470Z-549422-1077@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180707 SUMMARY:Cushing's Syndrome Eludes Treatment Paradigm or Standard Approach t o Care RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190707;BYMONTHDAY=7 DESCRIPTION:Results of two systematic reviews indicate that while surgery i s the preferred treatment\, many patients present with contraindications w ithout an accepted management paradigm leaving clinicians to follow a pati ent-centric approach to care. Read more at https://cushieblog.com/2018/07/ 07/cushings-syndrome-eludes-treatment-paradigm-or-standard-approach-to-car e/ X-ALT-DESC;FMTTYPE=text/html:Results of two systematic reviews indicate that while surgery is the preferred treatment\, many patients present with contraindications without an accepted management paradigm leaving clinici ans to follow a patient-centric approach to care.
Read more at&nbs p\;https://cus hieblog.com/2018/07/07/cushings-syndrome-eludes-treatment-paradigm-or-stan dard-approach-to-care/
CATEGORIES:Cushings UID:20180707T1829210Z-549422-951@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180505 SUMMARY:sjw (Jane W)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190505;BYMONTHDAY=5 DESCRIPTION:Jane is from California. She 76 years old and was recently di agnosed with Cushing's Syndrome after years and years and years of sufferi ng symptoms. Read more at https://cushingsbios.com/2018/05/05/sjw-jane-w-a drenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Jane is from California. \;She \; 76 years old and was recently diagnosed with Cushing's Syndrome after year s and years and years of suffering symptoms.
Read more at \;https://cushingsbios.com/2018/05/05/sjw-jane-w-adrenal-bio/< /p> CATEGORIES:Cushie Bios UID:20180505T1616400Z-549422-929@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory: Bettye Jean Douglas RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300928;BYMONTH=9;BYMONTHDAY=28 DTSTART;VALUE=DATE:20160928 DTEND;VALUE=DATE:20160929 EXDATE;VALUE=DATE:20180928 DESCRIPTION:Bettye passed away due to complications of Cushing’s disease. Once she was finally diagnosed\, a decision was made against surgery and B ettye was put on the cortisol-lowering medication Korlym. Though she had initially gained weight from Cushing’s disease\, as many patients do\, she rapidly lost weight and was admitted into hospice care soon after. Read m ore at https://cushingsbios.com/2021/09/28/in-memory-of-bettye-jean-dougla s-september-28-2016/ X-ALT-DESC;FMTTYPE=text/html:
Bettye passed away due to complications of Cushing&rsquo\;s disease. \; Once she was finally diagnosed\, a decisi on was made against surgery and Bettye was put on the cortisol-lowering me dication Korlym. \; Though she had initially gained weight from Cushin g&rsquo\;s disease\, as many patients do\, she rapidly lost weight and was admitted into hospice care soon after.
Read more at \;https://cushingsbios.com/2 021/09/28/in-memory-of-bettye-jean-douglas-september-28-2016/
CATEGORIES:In Memory UID:20230929T0837040Z-549422-879@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220722 SUMMARY:Eyelid Edema Due to Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240722;BYMONTHDAY=22 DESCRIPTION:Cushing's syndrome (CS) shows diverse signs such as centripetal obesity\, moon face\, and buffalo hump\, which can complicate the diagnos is. Facial features including eyelid edema\, as an underrecognized sign\, can be diagnostic clues for an excess of corticoids in a CS patient. Read more at https://cushings.invisionzone.com/topic/57191-eyelid-edema-due-to- cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing's syndrome (CS) shows diverse signs such as centripetal obesity\, moon face\, and buffalo hump\, which can co mplicate the diagnosis. Facial features including eyelid edema\, as an und errecognized sign\, can be diagnostic clues for an excess of corticoids in a CS patient.
Read more at \;https://cushings.invisionzone.com/topic/57191-eyelid-edema-due-to-cus hings-syndrome/
CATEGORIES:News Items UID:20220722T1257370Z-549422-1593@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181106 SUMMARY:New Helpful Doctor added to Alaska RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191106;BYMONTHDAY=6 DESCRIPTION:Dr. Ahmed is professional\, thorough with his research\, though tful\, and thinks I'm his star Cushing's patient (I'm his only Cushing's p atient). Read more at https://cushieblogger.com/2018/11/06/helpful-doctors -alaska/ X-ALT-DESC;FMTTYPE=text/html:Dr. Ahmed is professional\, thorough with h is research\, thoughtful\, and thinks I'm his star Cushing's patient (I'm his only Cushing's patient).
Read more at \;https ://cushieblogger.com/2018/11/06/helpful-doctors-alaska/
CATEGORIES:Cushings UID:20181107T0240300Z-549422-1016@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory of Jenni Moore ~ January 25\, 2016 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300125;BYMONTH=1;BYMONTHDAY=25 DTSTART;VALUE=DATE:20220125 DTEND;VALUE=DATE:20220126 DESCRIPTION:Jenni was a 26-year-old who had complications from two unsucces sful operations to remove a tumor of the pituitary gland. A Type 2 diabeti c since 2002\, Miss Moore suffered from emotionally unstable personality d isorder and an abusive relationship\, before a diagnosis of Cushing's dise ase as a result of the tumor. Read more at In Memory of Jenni Moore ~ Ja nuary 25\, 2016 X-ALT-DESC;FMTTYPE=text/html:Jenni was a 26-year-old who had complicatio ns from two unsuccessful operations to remove a tumor of the pituitary gla nd.
A Type 2 diabetic since 2002\, Miss Moore suffered from emotio nally unstable personality disorder and an abusive relationship\, before a diagnosis of Cushing's disease as a result of the tumor.
\;< /p>
Read more at \;In Memory of Jenni Moore ~ January 25\, 2016
CATEGORIES:In Memory UID:20260205T1426050Z-549422-1507@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Patty\, Pituitary Bio DTSTART;VALUE=DATE:20180528 DTEND;VALUE=DATE:20180529 RRULE:FREQ=MONTHLY;UNTIL=20190430;BYDAY=-1MO DESCRIPTION:Patty met with her neurosurgeon and ENT and had pituitary surge ry June 2017. Read more at https://cushingsbios.com/2018/04/30/patty-pitui tary-bio/ X-ALT-DESC;FMTTYPE=text/html:Patty met with her neurosurgeon and ENT and had pituitary surgery June 2017.
Read more at \;http s://cushingsbios.com/2018/04/30/patty-pituitary-bio/
CATEGORIES:Cushie Bios UID:20180430T1739440Z-549422-920@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240524 SUMMARY:Repeat Endoscopic Endonasal Transsphenoidal Surgery for Residual or Recurrent Cushing’s Disease: Safety\, Feasibility\, And Success RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300524;BYMONTHDAY=24 DESCRIPTION:The success and outcomes of repeat endoscopic transsphenoidal s urgery (ETS) for residual or recurrent Cushing’s disease (CD) are underrep orted in the literature. This study aims to address this gap by assessing the safety\, feasibility\, and efficacy of repeat ETS in these patients. R ead more at https://cushings.invisionzone.com/topic/57731-repeat-endoscopi c-endonasal-transsphenoidal-surgery-for-residual-or-recurrent-cushing%E2%8 0%99s-disease-safety-feasibility-and-success/ X-ALT-DESC;FMTTYPE=text/html:The success and outcomes of repeat endoscop ic transsphenoidal surgery (ETS) for residual or recurrent Cushing&rsquo\; s disease (CD) are underreported in the literature. This study aims to add ress this gap by assessing the safety\, feasibility\, and efficacy of repe at ETS in these patients.
CATEGORIES:Cushings UID:20240524T1438530Z-549422-1788@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190413 SUMMARY:Archived Interview: Monica and Crystal\, Pituitary Buddies DESCRIPTION:Monica was diagnosed with Cyclical Cushing’s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed . Since there was no post-op crash\, she also had a BLA in December 2006. Read more at https://cushieblogger.com/2019/04/14/archived-interview-moni ca-and-crystal-pituitary-buddies/ X-ALT-DESC;FMTTYPE=text/html:Monica was diagnosed with Cyclical Cushing& rsquo\;s. She had pituitary surgery in November 2006. An 8mm encapsulated pituitary tumor was removed. Since there was no post-op crash\, she also h ad a BLA in December 2006. \;
Read more at https://cushieblogger.com/2019/04/14/archived-i nterview-monica-and-crystal-pituitary-buddies/
CATEGORIES:Events and Meetings UID:20190414T2332570Z-549422-1132@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Coronavirus (COVID-19) and People with Adrenal Insufficiency and Cu shing’s Syndrome DTSTART;VALUE=DATE:20200331 DTEND;VALUE=DATE:20200401 RRULE:FREQ=WEEKLY;UNTIL=20200630;BYDAY=TU DESCRIPTION:Studies have reported that individuals with adrenal insufficien cy have an increased rate of respiratory infection-related deaths\, possib ly due to impaired immune function. As such\, people with adrenal insuffic iency should observe the following recommendations: Maintain social distan cing to reduce the risk of contracting COVID-19 Continue taking medication s as prescribed Ensure appropriate supplies for oral and injectable steroi ds at home\, ideally a 90-day preparation In the case of hydrocortisone sh ortages\, ask your pharmacist and physician about replacement with differe nt strengths of hydrocortisone tablets that might be available. Hydrocorti sone (or brand name Cortef) tablets have 5 mg\, 10 mg or 20 mg strength In cases of acute illness\, increase the hydrocortisone dose per instruction s and call the physician’s office for more details Follow sick day rules f or increasing oral glucocorticoids or injectables per your physician’s rec ommendations In general\, patients should double their usual glucocorticoi d dose in times of acute illness In case of inability to take oral glucoco rticoids\, contact your physician for alternative medicines and regimens I f experiencing fever\, cough\, shortness of breath or other symptoms\, cal l both the COVID-19 hotline (check your state government website for conta ct information) and your primary care physician or endocrinologist Monitor symptoms and contact your physician immediately following signs of illnes s Acquire a medical alert bracelet/necklace in case of an emergency Read m ore at http://cushings.invisionzone.com/topic/55106-aace-position-statemen t-coronavirus-covid-19-and-people-with-adrenal-insufficiency-and-cushing%E 2%80%99s-syndrome/?tab=comments#comment-475178 X-ALT-DESC;FMTTYPE=text/html:Studies have reported that individuals with adrenal insufficiency have an increased rate of respiratory infection-rel ated deaths\, possibly due to impaired immune function. As such\, people w ith adrenal insufficiency should observe the following recommendations:
Our &ldquo\;Official mascot&rdquo\; is the zebra. In med school\, student doctors are told &ldquo\;When you hear hoof beats\, think horses\, not zebras&ldquo\;.
Read more at \;https://cushings-help.com/2025/04/04/d ay-4-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250404T1121380Z-549422-1242@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 5\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300405;BYMONTH=4;BYMONTHDAY=5 DTSTART;VALUE=DATE:20200405 DTEND;VALUE=DATE:20200406 DESCRIPTION:I remember the naive\, simple days when I thought I’d give them a tube or two of blood and they’d tell me I had Cushing’s for sure. Who k new that diagnosing Cushing’s would be years of testing\, weeks of collect ing every drop of urine\, countless blood tests\, many CT and MRI scans… R ead more at https://cushings-help.com/2025/04/05/day-5-cushings-awareness- challenge/ X-ALT-DESC;FMTTYPE=text/html:I remember the naive\, simple days when I t hought I&rsquo\;d give them a tube or two of blood and they&rsquo\;d tell me I had Cushing&rsquo\;s for sure.
Who knew that diagnosing Cushi ng&rsquo\;s would be years of testing\, weeks of collecting every drop of urine\, countless blood tests\, many CT and MRI scans&hellip\;
Rea d more at \;https://cushings-h elp.com/2025/04/05/day-5-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250405T1011260Z-549422-1243@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 2\, Cushing’s Awareness Challenge 2025 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300402;BYMONTH=4;BYMONTHDAY=2 DTSTART;VALUE=DATE:20200402 DTEND;VALUE=DATE:20200403 DESCRIPTION:So\, these are only seven of the many\, many symptoms of Cushin g’s. I had those above – and I often felt like I looked like one of those little bearded dwarves. Read more at https://cushings-help.com/2025/04/0 2/day-2-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:So\, these are only seven of the many\, man y symptoms of Cushing&rsquo\;s. \;I had those above &ndash\; and I of ten felt like I looked like one of those little bearded dwarves.
R ead more at \; https://cushing s-help.com/2025/04/02/day-2-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250402T1012190Z-549422-1240@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250813 SUMMARY:A Case 0f Hailey–Hailey Disease Accompanied by Cushing’s Syndrome a nd Adrenal Insufficiency Due to Long-Term Usage of Topical Steroids With R eview of Literature RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300813;BYMONTHDAY=13 DESCRIPTION:Here\, we report the case of a 50-year-old woman with HHD who h ad been using topical clobetasol or betamethasone for over 10 years\, reac hing doses up to 50 g/day. She developed Cushingoid features\, metabolic abnormalities\, and suppression of the hypothalamic–pituitary–adrenal (HPA ) axis. After tapering off topical corticosteroids\, she developed adrenal insufficiency and associated withdrawal symptoms. Following the initiatio n of hydrocortisone replacement therapy\, psychiatric symptoms\, impaired glucose tolerance\, and osteoporotic fractures emerged\, suggesting exacer bation of iatrogenic Cushing’s syndrome. https://cushings.invisionzone.com /topic/57862-a-case-0f-hailey%E2%80%93hailey-disease-accompanied-by-cushin g%E2%80%99s-syndrome-and-adrenal-insufficiency-due-to-long-term-usage-of-t opical-steroids-with-review-of-literature/ X-ALT-DESC;FMTTYPE=text/html:Here\, we report the case of a 50-year-old woman with HHD who had been using topical clobetasol or betamethasone for over 10 years\, reaching doses up to 50 g/day. \;
She develope d Cushingoid features\, metabolic abnormalities\, and suppression of the h ypothalamic&ndash\;pituitary&ndash\;adrenal (HPA) axis. After tapering off topical corticosteroids\, she developed adrenal insufficiency and associa ted withdrawal symptoms. Following the initiation of hydrocortisone replac ement therapy\, psychiatric symptoms\, impaired glucose tolerance\, and os teoporotic fractures emerged\, suggesting exacerbation of iatrogenic Cushi ng&rsquo\;s syndrome.
CATEGORIES:Cushings UID:20250813T1456500Z-549422-1920@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 1: Cushing's Awareness Challenge 2025 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300401;BYMONTH=4;BYMONTHDAY=1 DTSTART;VALUE=DATE:20200401 DTEND;VALUE=DATE:20200402 DESCRIPTION:April is always Cushing’s Awareness Challenge month because Dr. Harvey Cushing was born on April 8th\, 1869. How fitting that this challe nge should begin on April Fool’s Day. So much of Cushing’s Syndrome/Dise ase makes us Cushies seem like we’re the April Fool. Maybe\, just maybe\, it’s the doctors who are the April Fools… Read more at https://cushings-h elp.com/2025/04/01/day-1-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:April is always Cushing&rsquo\;s Awareness Challenge month because Dr. Harvey Cushing was born on April 8th\, 1869.
How fitting that this challenge should begin on April Fool&rsquo\;s Day. \;So much of Cushing&rsquo\;s \;Syndrome/Disease makes us Cushies seem like we&rsquo\;re the April Fool. \;Maybe\, just maybe\, it&rsquo\;s the doctors who are the April Fools&hellip\;
Read mor e at \;https://cushings-help.com/2025/04/01/da y-1-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20250401T1009410Z-549422-1239@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250612 SUMMARY:Alyssa\, Pituitary Video RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270612;BYMONTHDAY=12 DESCRIPTION:Alyssa is a busy wife and mother who finally found the time and space in her life to train as a triathlete. Everything went well until he r body started to rebel. She and her doctors were mystified when her exerc ise was derailed by fatigue\, unusual aches\, and worst of all\, a signifi cant weight gain despite careful eating and loads of exercise. https://cus hingsbios.com/2025/06/12/alyssa-pituitary-video/ X-ALT-DESC;FMTTYPE=text/html:Alyssa is a busy wife and mother who finally found the time and space in her life to train as a triathlete. Eve rything went well until her body started to rebel. She and her doctors wer e mystified when her exercise was derailed by fatigue\, unusual aches\, an d worst of all\, a significant weight gain despite careful eating and load s of exercise.
https://cus hingsbios.com/2025/06/12/alyssa-pituitary-video/
CATEGORIES:Cushie Bios UID:20250612T0855280Z-549422-1903@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250530 SUMMARY:Adrenal Insufficiency: Physician and Patient Perspectives RRULE:FREQ=DAILY;COUNT=20 DESCRIPTION:Adrenal insufficiency is still a preventable cause of death\, a nd a diagnosis carries with it considerable implications for the patient\, family and caregivers. Early diagnosis and prevention of acute crisis is key. This session will address less well known etiologies\, diagnostic tes ts and novel treatments for prevention of patient morbidity and mortality. Register at https://cushings.invisionzone.com/topic/57837-webinar-june-18 -adrenal-insufficiency-physician-and-patient-perspectives/ X-ALT-DESC;FMTTYPE=text/html:
Adrenal insufficiency is still a prev entable cause of death\, and a diagnosis carries with it considerable impl ications for the patient\, family and caregivers. Early diagnosis and prev ention of acute crisis is key. This session will address less well known e tiologies\, diagnostic tests and novel treatments for prevention of patien t morbidity and mortality.
Register at \;https://cushings.invisionzone.com/topic/57837-webinar-june-18-adrena l-insufficiency-physician-and-patient-perspectives/
CATEGORIES:Events and Meetings UID:20250530T1510170Z-549422-1899@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250305 SUMMARY:Older Adults With Cushing’s Disease Present With Fewer Symptoms Tha n Younger Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300305;BYMONTHDAY=5 DESCRIPTION:The presentation of Cushing’s disease varies by age\, with olde r adults having fewer hallmark features of the condition and more comorbid ities\, according to study findings published in The Journal of Clinical E ndocrinology & Metabolism. https://cushings.invisionzone.com/topic/57790-o lder-adults-with-cushing%E2%80%99s-disease-present-with-fewer-symptoms-tha n-younger-patients/ X-ALT-DESC;FMTTYPE=text/html:The presentation of Cushing&rsquo\;s disease varies by age\, with older adults having fewer hallmark features o f the condition and more comorbidities\, according to study findings publi shed in \;The Journal of Clinical Endocrinology &\; Metaboli sm.
CATEGORIES:Cushings UID:20250305T2305410Z-549422-1854@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220212 SUMMARY:First Adrenal Insufficiency Patient Dosed in Phase 2 Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230212;BYMONTHDAY=12 DESCRIPTION:Diurnal has announced that the first patient has been dosed in its phase 2 European clinical trial of modified-release hydrocortisone. It is treating people with adrenal insufficiency (AI)\, also known as Addiso n’s disease\, while the trial also represents a significant marketing oppo rtunity for the company across Europe and throughout the UK. Read more at https://cushings.invisionzone.com/topic/56587-first-adrenal-insufficiency- patient-dosed-in-phase-2-study/ X-ALT-DESC;FMTTYPE=text/html:Diurnal has announced that the first patien t has been dosed in its phase 2 European clinical trial of modified-releas e hydrocortisone.
It is treating people with adrenal insufficiency (AI)\, also known as Addison&rsquo\;s disease\, while the trial also repr esents a significant marketing opportunity for the company across Europe a nd throughout the UK.
Read more at \;https://cushings.invisionzone.com/topic/5 6587-first-adrenal-insufficiency-patient-dosed-in-phase-2-study/
CATEGORIES:News Items UID:20220212T1052180Z-549422-1515@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211107 SUMMARY:Innovative One-Visit Adrenal Tumor Diagnosis and Treatment Program Begins in Tampa RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221107;BYMONTHDAY=7 DESCRIPTION:The novel protocol and diagnostic method for adrenal tumors wil l condense a 2–4-week process of localization of hyper-secreting adrenal t umors and subsequent curative surgery down to just one day. The innovative approach combines highly specialized adrenal vein sampling with rapid adr enal hormone lab testing and then consultation with the world's highest vo lume adrenal surgeon. If appropriate\, a patient may even complete their m ini-surgery during that same visit. Read more at https://cushings.invision zone.com/topic/56260-innovative-one-visit-adrenal-tumor-diagnosis-and-trea tment-program-begins-in-tampa/ X-ALT-DESC;FMTTYPE=text/html:The novel protocol and diagnostic method fo r adrenal tumors will condense a 2&ndash\;4-week process of localization o f hyper-secreting adrenal tumors and subsequent curative surgery down to j ust one day. The innovative approach combines highly specialized adrenal v ein sampling with rapid adrenal hormone lab testing and then consultation with the world's highest volume adrenal surgeon. If appropriate\, a patien t may even complete their mini-surgery during that same visit.
Rea d more at \;https://cushings.invisionzone.com/topic/56260-inno vative-one-visit-adrenal-tumor-diagnosis-and-treatment-program-begins-in-t ampa/
CATEGORIES:News Items UID:20211107T1211030Z-549422-1450@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Hannah B\, Pituitary Bio DTSTART;VALUE=DATE:20210528 DTEND;VALUE=DATE:20210529 RRULE:FREQ=MONTHLY;UNTIL=20220430;BYDAY=-1FR DESCRIPTION:After countless doctors appointments and misdiagnoses\, Hannah was diagnosed with Cushing syndrome. She has a tumor on her pituitary glad [sic] which causes it to release too much cortisol into her body\, affect ing her metabolism and growth hormones. It also affects her energy levels and her ability to recover from workouts. “Labs are normal\, this is norm al and I knew this was not normal. I had never felt so helpless\,” Jamie B lankenship\, Hannah’s mother said. “Once we found out and got that diagnos es and started reading and concentrating on the symptoms\, we realized tha t was definitely what was going on she has every symptom.” Read more at ht tps://cushingsbios.com/2021/04/30/hannah-b-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:After countless doctors appointments and mi sdiagnoses\, Hannah was diagnosed with Cushing syndrome. \;She has a t umor on her pituitary glad [sic] which causes it to release too much corti sol into her body\, affecting her metabolism and growth hormones. \;It also affects her energy levels and her ability to recover from workouts.& nbsp\;
&ldquo\;Labs are normal\, this is normal and I knew this wa s not normal. I had never felt so helpless\,&rdquo\; Jamie Blankenship\, H annah&rsquo\;s mother said. &ldquo\;Once we found out and got that diagnos es and started reading and concentrating on the symptoms\, we realized tha t was definitely what was going on she has every symptom.&rdquo\;
Read more at \;https://cushingsbios.com/2021/04/30/hannah- b-pituitary-bio/
CATEGORIES:Cushie Bios UID:20210430T1455190Z-549422-1370@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 10: Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300410;BYMONTH=4;BYMONTHDAY=10 DTSTART;VALUE=DATE:20210410 DTEND;VALUE=DATE:20210411 DESCRIPTION:This one is so easy. I’ve said it a thousand times – you know y our own body better than any doctor will. Most doctors have never seen a C ushing’s patient\, few ever will in the future. If you believe you have Cu shing’s (or any other rare disease)\, learn what you can about it\, connec t with other patients\, make a timeline of symptoms and photographs. Read\ , take notes\, save all your doctors’ notes\, keep your lab findings\, get second/third/ten or more opinions. Make a calendar showing which days yo u had what symptoms. Google calendars are great for this. Read more at ht tps://cushieblogger.com/2024/04/10/day-10-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:This one is so easy. I&rsquo\;ve said it a thousand times &ndash\; you know your own body better than any doctor will . Most doctors have never seen a Cushing&rsquo\;s patient\, few ever will in the future.
If you believe you have Cushing&rsquo\;s (or any ot her rare disease)\, learn what you can about it\, connect with other patie nts\, make a timeline of symptoms and photographs. Read\, take notes\, sav e all your doctors&rsquo\; notes\, keep your lab findings\, get second/thi rd/ten or more opinions. \;Make a calendar showing which days you had what symptoms. \;Google calendars are great for this.
Read m ore at \;https://cushieblogge r.com/2024/04/10/day-10-cushings-awareness-challenge/
CATEGORIES:Awareness Challenge UID:20240410T1532430Z-549422-1350@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240830 SUMMARY:Cushing’s Syndrome Masquerading as Fibromyalgia: A Case Series RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300830;BYMONTHDAY=30 DESCRIPTION:Three young female patients with a history of generalized body pain were diagnosed with fibromyalgia. They visited several specialities w hich related patients' symptoms to their previous diagnosis of fibromyalgi a and were treated symptomatically. These patients developed a multitude o f clinical features including fractures\, hypertension\, abnormal weight g ain\, proximal myopathic pain and bruising. They were seen by rheumatologi sts whose assessment was that their clinical features were not entirely du e to fibromyalgia and suspected that patients have a possible underlying e ndocrine cause. Patients were referred to an endocrinologist for further t ests with suspicion of Cushing’s syndrome. Laboratory tests and imaging co nfirmed a diagnosis of Cushing’s syndrome. Two of them had adrenal adenoma and one had iatrogenic corticosteroid use. These cases emphasize the need for thorough clinical evaluation for patients who are thought to have fib romyalgia. Fibromyalgia is a diagnosis of exclusion. Read more at https:// cushings.invisionzone.com/topic/57756-cushing%E2%80%99s-syndrome-masquerad ing-as-fibromyalgia-a-case-series/ X-ALT-DESC;FMTTYPE=text/html:Three young female patients with a hi story of generalized body pain were diagnosed with fibromyalgia. They visi ted several specialities which related patients' symptoms to their previou s diagnosis of fibromyalgia and were treated symptomatically. These patien ts developed a multitude of clinical features including fractures\, hypert ension\, abnormal weight gain\, proximal myopathic pain and bruising. They were seen by rheumatologists whose assessment was that their clinical fea tures were not entirely due to fibromyalgia and suspected that patients ha ve a possible underlying endocrine cause. Patients were referred to an end ocrinologist for further tests with suspicion of Cushing&rsquo\;s syndrome . Laboratory tests and imaging confirmed a diagnosis of Cushing&rsquo\;s s yndrome. Two of them had adrenal adenoma and one had iatrogenic corticoste roid use. These cases emphasize the need for thorough clinical evaluation for patients who are thought to have fibromyalgia. Fibromyalgia is a diagn osis of exclusion.
Read more at \;https ://cushings.invisionzone.com/topic/57756-cushing%E2%80%99s-syndrome-masque rading-as-fibromyalgia-a-case-series/
CATEGORIES:Cushings UID:20240830T1543180Z-549422-1816@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190824 SUMMARY:Jennifer P's Daughter\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200824;BYMONTHDAY=24 DESCRIPTION:Jennifer P is from Dallas\, TX. She is mom to a beautiful 13 y ear old girl who has struggled with her weight for years. After slowed gr owth doctor diagnosed her as growth hormone deficient and she has done inj ections for almost a year. Read more at https://cushingsbios.com/2019/08/2 4/jennifer-ps-daughter-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Jennifer P \;is from Dallas\, TX. She is mom to a beautiful 13 year old girl who has struggled with her weight f or years. \;After slowed growth doctor diagnosed her as growth hormon e deficient and she has done injections for almost a year.
Read mo re at \;https://cushingsbios.com/2019/08/24/ jennifer-ps-daughter-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20190824T2249130Z-549422-1202@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200616 SUMMARY:COVID-19 and Cushing's Syndrome: Recommendations For A Special Popu lation With Endogenous Glucocorticoid Excess RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210616;BYMONTHDAY=16 DESCRIPTION:Over the past few months\, COVID-19\, the pandemic disease caus ed by severe acute respiratory syndrome coronavirus 2\, has been associate d with a high rate of infection and lethality\, especially in patients wit h comorbidities such as obesity\, hypertension\, diabetes\, and immunodefi ciency syndromes. These cardiometabolic and immune impairments are common comorbidities of Cushing's syndrome\, a condition characterised by excessi ve exposure to endogenous glucocorticoids. In patients with Cushing's synd rome\, the increased cardiovascular risk factors\, amplified by the increa sed thromboembolic risk\, and the increased susceptibility to severe infec tions\, are the two leading causes of death. Read more at http://cushings. invisionzone.com/topic/55203-covid-19-and-cushings-syndrome-recommendation s-for-a-special-population-with-endogenous-glucocorticoid-excess/ X-ALT-DESC;FMTTYPE=text/html:Over the past few months\, COVI D-19\, the pandemic disease caused by severe acute respiratory syndrome co ronavirus 2\, has been associated with a high rate of infection and lethal ity\, especially in patients with comorbidities such as obesity\, hyperten sion\, diabetes\, and immunodeficiency syndromes.
The se cardiometabolic and immune impairments are common comorbidities of Cush ing's syndrome\, a condition characterised by excessive exposure to endoge nous glucocorticoids. In patients with Cushing's syndrome\, the increased cardiovascular risk factors\, amplified by the increased thromboembolic ri sk\, and the increased susceptibility to severe infections\, are the two l eading causes of death.
CATEGORIES:News Items UID:20200616T1744130Z-549422-1269@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20240408T190000 DTEND;TZID=America/New_York:20240408T200000 SUMMARY:Virtual Town Hall Meeting on Cushing's Awareness Day DESCRIPTION:Mark your calendars for Monday\, April 8\, 2024\, from 7 - 8 pm EST as we shed light on Cushing's syndrome with two incredible people who are living with this condition.https://cushings.invisionzone.com/topic/57 705-webinar-march-31-medical-treatment-for-cushing’s-disease/ Gain valuabl e insights\, hear personal stories\, and learn more about Cushing's syndro me from those who understand it firsthand. Read more at X-ALT-DESC;FMTTYPE=text/html:Mark your calendars for Monday\, April 8\, 2024\, from 7 - 8 pm EST as we shed light on Cushing's syndrome with two i ncredible people who are living with this condition.https://cushings.i nvisionzone.com/topic/57705-webinar-march-31-medical-treatment-for-cushing &rsquo\;s-disease/
Gain valuable insights\, hear personal stor ies\, and learn more about Cushing's syndrome from those who understand it firsthand.
Read more at \;
CATEGORIES:Events and Meetings UID:20240401T2312180Z-549422-1761@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240202 SUMMARY:Accidental Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300202;BYMONTHDAY=2 DESCRIPTION:We present a patient with Cushing syndrome secondary to acciden tal intake of corticosteroid tablets—a 66-year-old woman with a history of well-controlled hypertension\, who over the course of a few weeks develop ed full-blown Cushing syndrome with uncontrolled blood pressure\, typical central fat accumulation\, and easy bruising. Read more at https://cushing s.invisionzone.com/topic/57688-accidental-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:We present a patient with Cushing syn drome secondary to accidental intake of corticosteroid tablets&mdash\;a 66 -year-old woman with a history of well-controlled hypertension\, who over the course of a few weeks developed full-blown Cushing syndrome with uncon trolled blood pressure\, typical central fat accumulation\, and easy bruis ing.
Read more at \;https://cushings.invisionzone.com/topic/57688-accidental-cush ing-syndrome/
CATEGORIES:Cushings UID:20240202T1338470Z-549422-1739@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180414 SUMMARY:Comment added to Ren\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190414;BYMONTHDAY=14 DESCRIPTION:...My dermatologist took one look at me and suggested it was Cu shing’s then immediately referred me to an endocrinologist. I have been lu cky to have good doctors along the way. I’ve had my pituitary and adrenal glands removed as well as radiation treatment and participated in a drug s tudy. Today I struggle mostly with fatigue\, weak muscles\, headaches and anxiety... In the comments area of https://cushingsbios.com/2017/10/24/ren -undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:...My dermatologist took one look at me and suggested it was Cushing&rsquo\;s then immediately referred me to an endo crinologist. I have been lucky to have good doctors along the way. I&rsquo \;ve had my pituitary and adrenal glands removed as well as radiation trea tment and participated in a drug study. Today I struggle mostly with fatig ue\, weak muscles\, headaches and anxiety...
In the comments area of \;https://cushingsbios.com/2017/10/24/ren-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180414T0641260Z-549422-904@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Adrenal: How the SARS-CoV-2 virus undermines our body’s 'fight' res ponse DTSTART;VALUE=DATE:20220127 DTEND;VALUE=DATE:20220128 RRULE:FREQ=MONTHLY;UNTIL=20221223;BYDAY=4TH DESCRIPTION:According to a study\, the coronavirus targets the adrenal glan ds\, thereby weakening the body’s ability to produce the stress hormones c ortisol and adrenaline needed to help battle a serious infection. Part of the body’s defence mechanism\, these glands are indispensable for our surv ival of stressful situations\, particularly with a coronavirus infection. Read more at https://cushings.invisionzone.com/topic/56396-adrenal-how-the -sars-cov-2-virus-undermines-our-body%E2%80%99s-fight-response/ X-ALT-DESC;FMTTYPE=text/html:According to a study\, the coronavirus targ ets the adrenal glands\, thereby weakening the body&rsquo\;s ability to pr oduce the stress hormones cortisol and adrenaline needed to help battle a serious infection.
Part of the body&rsquo\;s defence mechanism\, t hese glands are indispensable for our survival of stressful situations\, p articularly with a coronavirus infection.
Read more at \;ht tps://cushings.invisionzone.com/topic/56396-adrenal-how-the-sars-cov-2-vir us-undermines-our-body%E2%80%99s-fight-response/
CATEGORIES:News Items UID:20211223T1016090Z-549422-1487@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211223 SUMMARY:13 Surprising Medical Conditions That Can Cause Weight Gain or Loss RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20231223;BYMONTHDAY=23 DESCRIPTION:Beyond weight gain\, symptoms of Cushing syndrome include depos its of fat-based tissue at the midsection\, upper back\, face\, and betwee n the shoulders\, stretch marks due to rapid weight gain\, thinning skin p rone to bruising\, increased body hair\, irregular or missing periods. Rea d more at https://cushings.invisionzone.com/topic/56395-13-surprising-medi cal-conditions-that-can-cause-weight-gain-or-loss/ X-ALT-DESC;FMTTYPE=text/html:Beyond weight gain\, symptoms of Cushing sy ndrome include deposits of fat-based tissue at the midsection\, upper back \, face\, and between the shoulders\, stretch marks due to rapid weight ga in\, thinning skin prone to bruising\, increased body hair\, irregular or missing periods.
Read more at \;https://cushings.invisionzone.com/top ic/56395-13-surprising-medical-conditions-that-can-cause-weight-gain-or-lo ss/
CATEGORIES:Cushings UID:20211223T1003290Z-549422-1486@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211215 SUMMARY:Record a Video and Receive Rarity the Zebra! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221215;BYMONTHDAY=15 DESCRIPTION:Please help us spread the word to other patients and caregivers about Rare Patient Voice by submitting a short video about your experienc e with us. Using the Storyvine app\, recording a video on your phone is qu ick\, easy\, and fun! Videos will be featured on our website\, on social m edia\, and in newsletters. More information at https://cushings.invisionzo ne.com/topic/56372-record-a-video-and-receive-rarity-the-zebra/ X-ALT-DESC;FMTTYPE=text/html:Please help us spread the word to other pat ients and caregivers about Rare Patient Voice by submitting a short video about your experience with us. Using the Storyvine app\, recording a video on your phone is quick\, easy\, and fun! Videos will be featured on our w ebsite\, on social media\, and in newsletters.
More information at \;https://cushings.invisio nzone.com/topic/56372-record-a-video-and-receive-rarity-the-zebra/
CATEGORIES:Cushings UID:20211215T2204080Z-549422-1484@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210423 SUMMARY:How does COVID-19 impact the adrenal gland? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220423;BYMONTHDAY=23 DESCRIPTION:COVID-19 was found in the adrenal and pituitary glands of some patients who succumbed to the illness\, suggesting that these organs might be among the targets for infection. One of the first highly effective th erapies for COVID-19 infection was the use of IV steroid (dexamethasone) s upplementation in hospitalized patients in patients requiring oxygen. A focused search of COVID-19-related health literature shows 85 peer-reviewe d papers that have been published in medical literature specifically on th e adrenal gland and COVID-19. This literature focuses on three phases of C OVID infection that may impact the adrenal gland: the acute active infecti on phase\, the immediate post-infection phase\, and the long-term recovery phase. Read more at https://cushings.invisionzone.com/topic/55619-how-d oes-covid-19-impact-the-adrenal-gland/ X-ALT-DESC;FMTTYPE=text/html:COVID-19 was found in the adrenal and pitui tary glands of some patients who succumbed to the illness\, suggesting tha t these organs might be among the targets for infection. \;One of the first highly effective therapies for COVID-19 infection was the use of IV steroid (dexamethasone) supplementation in hospitalized patients in patie nts requiring oxygen.
\;
A \;focused search of COVID-19-related heal th literature \;shows 85 peer-reviewed papers that have been publi shed in medical literature specifically on the adrenal gland and COVID-19. This literature focuses on three phases of COVID infection that may impac t the adrenal gland: the acute active infection phase\, the immediate post -infection phase\, and the long-term recovery phase.
\;
Read more at \;https://cu shings.invisionzone.com/topic/55619-how-does-covid-19-impact-the-adrenal-g land/
CATEGORIES:News Items UID:20210423T1011250Z-549422-1359@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181102 SUMMARY:New Phase 3 Data Further Support Recorlev’s Ability to Safely Lower Cortisol Levels in Cushing’s Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191102;BYMONTHDAY=2 DESCRIPTION:The trial consisted of three parts: a dose-escalation phase to determine the appropriate Recorlev dose that achieved normalization of cor tisol levels\; a maintenance phase in which patients received the establis hed dose for six months\; and a final extended phase\, in which patients w ere treated with Recorlev for an additional six months\, with the possibil ity of dose adjustments. Read more at https://cushieblog.com/2018/11/02/ne w-phase-3-data-further-support-recorlevs-ability-to-safely-lower-cortisol- levels-in-cushings-patients/ X-ALT-DESC;FMTTYPE=text/html:The trial consisted of three parts: a dose- escalation phase to determine the appropriate Recorlev dose that achieved normalization of cortisol levels\; a maintenance phase in which patients r eceived the established dose for six months\; and a final extended phase\, in which patients were treated with Recorlev for an additional six months \, with the possibility of dose adjustments.
CATEGORIES:Cushings UID:20181103T0031460Z-549422-1011@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241120 SUMMARY:Adrenal Insufficiency May Be Misdiagnosed as Anxiety RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301120;BYMONTHDAY=20 DESCRIPTION:The hormone cortisol is produced by the adrenal glands\, so adr enal insufficiency (also called Addison’s disease) is caused when the adre nal glands do not produce cortisol normally. Low cortisol can actually cau se anxiety and depression\, so some patients may really have anxiety — tho ugh doctors need to do further testing and/or evaluation to see that it is caused by their hormone levels\, not a mental illness. https://cushings.i nvisionzone.com/topic/57767-adrenal-insufficiency-may-be-misdiagnosed-as-a nxiety/ X-ALT-DESC;FMTTYPE=text/html:The hormone cortisol is produced by t he adrenal glands\, so \;adrenal insufficiency \;< /span>(also called Addison&rsquo\;s disease) is caused when the adre nal glands do not produce cortisol normally. Low cortisol can actually cau se anxiety and depression\, so some patients may really have anxiety &mdas h\; though doctors need to do further testing and/or evaluation to see tha t it is caused by their hormone levels\, not a mental illness.
https://cushings.invisionzone.com/topic/57767-adrenal-insufficiency-may -be-misdiagnosed-as-anxiety/
CATEGORIES:Cushings UID:20241120T0917510Z-549422-1833@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190909 SUMMARY:Long-acting pasireotide provides ‘sustained biochemical improvement s’ in Cushing’s disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200909;BYMONTHDAY=9 DESCRIPTION:For patients with persistent or recurring Cushing’s disease\, m onthly pasireotide therapy was safe and effective\, leading to normal urin ary free cortisol levels in 47% of patients after 2 years\, according to f indings published in Clinical Endocrinology. Read more at https://cushiebl og.com/2019/09/09/long-acting-pasireotide-provides-sustained-biochemical-i mprovements-in-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:For patients with persistent or recurring C ushing&rsquo\;s disease\, monthly pasireotide therapy was safe and effecti ve\, leading to normal urinary free cortisol levels in 47% of patients aft er 2 years\, according to findings published in \;Clinical Endocri nology.
Read more at \;https://cushieblog.com/2019/09/09 /long-acting-pasireotide-provides-sustained-biochemical-improvements-in-cu shings-disease/
CATEGORIES:News Items UID:20190909T2154280Z-549422-1212@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231227 SUMMARY:What Is The Life Expectancy Of Someone With Cushing's Syndrome? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301227;BYMONTHDAY=27 DESCRIPTION:Complications of Cushing's syndrome include Hypertension\, DM\, infection\, Bone fracture\, mood swings\, memory loss. If left untreated then life expectancy would be around 5 years. Read more at https://cushing s.invisionzone.com/topic/57677-what-is-the-life-expectancy-of-someone-with -cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Complications of \;Cushing's synd rome \;include \;Hypertension\, DM\, infection\, \;Bone fractu re\, \;mood swings\, \;memory loss. If left untreated then life ex pectancy would be around 5 years.
Read more at \; https://cushings.invisionzone.com/topic/57677-what-is-the-life-expectanc y-of-someone-with-cushings-syndrome/
CATEGORIES:Cushings UID:20231227T1422340Z-549422-1725@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180526 SUMMARY:Endoscopic Surgery Should Be Standard for Cushing’s Patients with L arge Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190526;BYMONTHDAY=26 DESCRIPTION:When classifying patients by tumor size\, however\, researchers found that patients with macroadenomas — tumors larger than 10 mm — had h igher rates of remission and lower recurrence rates after endoscopic surge ry. Patients with microadenomas (tumors smaller than 10 mm) had comparable outcomes with either technique. Read more at https://cushieblog.com/2018/ 05/26/endoscopic-surgery-should-be-standard-for-cushings-patients-with-lar ge-tumors/ X-ALT-DESC;FMTTYPE=text/html:When classifying patients by tumor size\, h owever\, researchers found that \;patients with macroadenomas &mdash\; tumors larger than 10 mm &mdash\; had higher rates of remission and lower recurrence rates after endoscopic surgery. Patients with microadenomas (t umors smaller than 10 mm) had comparable outcomes with either technique.
Read more at \;https://cushieblog.com/2018/05/26/endoscopic-surgery-shou ld-be-standard-for-cushings-patients-with-large-tumors/
CATEGORIES:Cushings UID:20180526T1324320Z-549422-938@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20180531T130000 DTEND;TZID=America/New_York:20180531T140000 SUMMARY:Webinar: Oxytocin and Hypopituitarism: A Missing Forgotten Hormone? DESCRIPTION:Learning Objectives: 1) Review the functions of oxytocin in hum ans 2) Describe areas of active research on oxytocin effects 3) Review the relevant oxytocin and hypopituitarism literature Information on registeri ng at https://cushieblogger.com/2018/05/26/webinar-oxytocin-and-hypopituit arism-a-missing-forgotten-hormone/ X-ALT-DESC;FMTTYPE=text/html:Learning Objectives:
1) Review the functions of oxytocin in humans
2) Describe areas of
active research on oxytocin effects
3) Review the relevant oxytocin
and hypopituitarism literature
Information on registering at \ ;https://cushieblog ger.com/2018/05/26/webinar-oxytocin-and-hypopituitarism-a-missing-forgotte n-hormone/
CATEGORIES:Events and Meetings UID:20180526T1343550Z-549422-939@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211208 SUMMARY:No Synthetic Steroid Version of Korlym at This Time RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221208;BYMONTHDAY=8 DESCRIPTION:Corcept last year made over $353 million from sales of Korlym\, the company's only drug\, according to a filing with the U.S. Securities and Exchange Commission. Corcept's patent relates to using a specific dose of Korlym's active ingredient mifepristone and another drug to treat Cush ing's syndrome\, which creates an excess of the hormone cortisol and cause s high blood sugar\, among other things. Read more at https://cushings.inv isionzone.com/topic/56355-no-synthetic-steroid-version-of-korlym-at-this-t ime/ X-ALT-DESC;FMTTYPE=text/html:Corcept l ast year made over $353 million from sales of Korlym\, the compan y's only drug\, according to a filing with the U.S. Securities and Exchang e Commission.
Corcept's patent relates t o using a specific dose of Korlym's active ingredient mifepristone and ano ther drug to treat Cushing's syndrome\, which creates an excess of the hor mone cortisol and causes high blood sugar\, among other things.
Read more at \;https://cushings.invisionzone.com/topic/56355-no-synth etic-steroid-version-of-korlym-at-this-time/
CATEGORIES:Cushings UID:20211208T1617330Z-549422-1479@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY: Day 24\, Cushing’s Awareness Challenge 2022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300424;BYMONTH=4;BYMONTHDAY=24 DTSTART;VALUE=DATE:20220424 DTEND;VALUE=DATE:20220425 DESCRIPTION:After I was finished with the Cushing’s long diagnostic process \, surgery and several post-op visits to NIH\, I was asked to give the scr ipture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport. Read more at https://cushieblogger.com/2 022/04/24/%f0%9f%a6%93-day-24-cushings-awareness-challenge-2022/ X-ALT-DESC;FMTTYPE=text/html:After I was finished with the Cushing&rsquo \;s long diagnostic process\, surgery and several post-op visits to NIH\, I was asked to give the scripture reading at my church. The man who preach ed \;the sermon that week was the survivor of a horrific accident wher e he and his family were hit by a van while waiting at an airport.
Read more at \;https://cu shieblogger.com/2022/04/24/%f0%9f%a6%93-day-24-cushings-awareness-challeng e-2022/
CATEGORIES:Awareness Challenge UID:20220424T2216370Z-549422-1553@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250718 SUMMARY:Predictors of Cancer in Patients With Endogenous Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280718;BYMONTHDAY=18 DESCRIPTION:Prolonged cortisol exposure may promote cancer development and growth. Epidemiological research showed that extended glucocorticoids use is associated with elevated overall cancer risk. Recently\, several studie s suggested that cortisol levels increase cancer risk in patients with end ogenous Cushing’s syndrome (CS). https://cushings.invisionzone.com/topic/5 7854-predictors-of-cancer-in-patients-with-endogenous-cushing%E2%80%99s-sy ndrome/ X-ALT-DESC;FMTTYPE=text/html:Prolonged cortisol exposure may promote can cer development and growth. Epidemiological research showed that extended glucocorticoids use is associated with elevated overall cancer risk. Recen tly\, several studies suggested that cortisol levels increase cancer risk in patients with endogenous Cushing&rsquo\;s syndrome (CS).
CATEGORIES:Cushings UID:20250718T1008180Z-549422-1915@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250510 SUMMARY:Adrenal Crisis: Still Deadly in the 21st Century. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300510;BYMONTHDAY=10 DESCRIPTION:Adrenal crisis is a life-threatening medical emergency\, associ ated with a high mortality unless it is appropriately recognized and early treatment is rendered. Despite it being a treatable condition for almost 70 years\, failure of adequate preventive measures or delayed treatment ha s often led to unnecessary deaths. Watch video at https://cushings-help.co m/2025/05/10/adrenal-crisis-still-deadly-in-the-21st-century/ X-ALT-DESC;FMTTYPE=text/html:Adrenal crisis is a life-threatening medical emergency\, associated with a high mortality unless it is appropri ately recognized and early treatment is rendered. Despite it being a treat able condition for almost 70 years\, failure of adequate preventive measur es or delayed treatment has often led to unnecessary deaths.
< p>Watch video at \;https://cushings-help.com/2025/05/10/adrenal-crisis-still-deadly-i n-the-21st-century/ CATEGORIES:Cushings UID:20250510T1621200Z-549422-1886@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241104 SUMMARY:Webinar on Compounded Tirzepatide vs Semaglutide RRULE:FREQ=DAILY;COUNT=14 DESCRIPTION:Dr. Theodore Friedman (Dr. F) will be giving an updated webinar on compounded weight loss medicines. https://cushings.invisionzone.com/to pic/57764-webinar-announcement-compounded-tirzepatide-vs-semaglutide/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman (Dr. F) will be giving an updated webinar on \;compounded \;weight loss medicines .
CATEGORIES:Cushings UID:20241104T1416310Z-549422-1828@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New Testimonial From Kara E DTSTART;VALUE=DATE:20190506 DTEND;VALUE=DATE:20190507 RRULE:FREQ=MONTHLY;UNTIL=20200401;BYDAY=1MO DESCRIPTION:Found your sites and am so grateful to read information that is informative\, hopeful and honest. Read more at https://cushieblogger.co m/testimonial/kara-e/ X-ALT-DESC;FMTTYPE=text/html:Found your sites and am so grateful to read information that is informative\, hopeful and honest. \;
Rea d more at \;https://cushieblogger.com/testimonial/kara-e/
CATEGORIES:Cushie Bios UID:20190401T1331250Z-549422-1111@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY: Light Up for Rare DTSTART;VALUE=DATE:20211229 DTEND;VALUE=DATE:20211230 RRULE:FREQ=WEEKLY;UNTIL=20220228;BYDAY=WE DESCRIPTION:The National Organization for Rare Disorders (NORD) asks Americ ans to plan ahead to participate in the Light Up for Rare campaign to rais e awareness of rare diseases. NORD is the U.S. sponsor for Rare Disease D ay on Feb. 28. The annual awareness day spotlights approximately 7\,000 r are diseases that affect more than 300 million people worldwide. More than 25 million Americans and their families are believed to be affected by ra re diseases. Participants are encouraged to light or decorate their homes in blue\, green\, pink\, and purple at 7 p.m. local time on Feb. 28. (Blue should be used if only one color is possible.) NORD suggests using NovaBr ight to light up a building\, monument\, home\, or neighborhood in these r are disease colors. More information at https://cushings.invisionzone.com/ topic/56422-light-up-for-rare X-ALT-DESC;FMTTYPE=text/html:The \;Nation al Organization for Rare Disorders \;(NORD) asks Americans to plan ahead to participate in the \;Light Up for Rare c ampaign \;to raise awareness of rare diseases.
NORD is the U.S. sponsor for \; \;Rare Disease Day \; \;on Feb. 28. \;The annual awareness day spotlights approximately 7\,000 rare diseases that affect more than 300 million people worldwide. More than 25 million Americans and their families are believed to be affected by rare diseases.
Participants are encouraged to light or decorate their hom es in blue\, green\, pink\, and purple at 7 p.m. local time on Feb. 28. (B lue should be used if only one color is possible.) NORD suggests using&nbs p\;NovaBright to light up a building\, monument\, home\, or neighborhood i n these rare disease colors.
More information at \;https://cushings.invisionzone.com/topic/56422-light-up-for-rare CATEGORIES:Cushings UID:20211229T1549140Z-549422-1489@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Register for 13th Annual Conference for Adults with Endocrine Disor ders February 28th\, 2019 - March 3rd\, 2019 Phoenix\, Arizona DTSTART;VALUE=DATE:20190111 DTEND;VALUE=DATE:20190112 RRULE:FREQ=WEEKLY;UNTIL=20190128;BYDAY=FR DESCRIPTION:13th Annual Conference for Adults with Endocrine Disorders in P artnership with Barrow Neurological Institute Pituitary Center February 28 th\, 2019 - March 3rd\, 2019 in Phoenix\, Arizona More information at http s://cushieblogger.com/2019/01/11/13th-annual-conference-for-adults-with-en docrine-disorder/ X-ALT-DESC;FMTTYPE=text/html:
13th Annual Conference for Adults with Endo crine Disorders \;in Partnership with Barrow Neurological Institute Pi tuitary Center \;February 28th\, 2019 - March 3rd\, 2019 in Phoenix\, Arizona
More information at \;https://cushieblogger.com/2019/01/11/13th-annual-conferenc e-for-adults-with-endocrine-disorder/
CATEGORIES:Events and Meetings UID:20190111T1358220Z-549422-1063@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:A Challenging Diagnosis of Cushing’s Syndrome in Primary Care: A Ca se Report RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300506;BYMONTH=5;BYMONTHDAY=6 DTSTART;VALUE=DATE:20260506 DTEND;VALUE=DATE:20260507 DESCRIPTION:Cushing’s syndrome is a rare endocrine disorder characterized b y an insidious course and multisystem manifestations\, often leading to de layed diagnosis due to its nonspecific presentation. A 52-year-old woman w ith a history of type 2 diabetes mellitus and hypertension was followed in primary care for persistent musculoskeletal pain and worsening metabolic control\, initially attributed to poor treatment adherence. Her condition progressively led to significant functional impairment\, requiring the use of crutches for ambulation and ultimately resulting in medical retirement due to disability. After presenting with abdominal pain\, a computed tomo graphy scan incidentally revealed a 35 mm left adrenal mass suggestive of an adenoma. In light of the clinical context\, further evaluation confirme d adrenocorticotropic hormone (ACTH)-independent hypercortisolism. The pat ient underwent left adrenalectomy and remains under clinical follow-up\, w ith progressive improvement in metabolic parameters and functional status. This case highlights the importance of reassessing persistent symptoms an d appropriately evaluating incidental findings in primary care\, as well a s the potential for significant functional decline in undiagnosed cases. E arly recognition of atypical presentations may facilitate the diagnosis of rare endocrine disorders. https://cushings.invisionzone.com/topic/57956-a -challenging-diagnosis-of-cushing%E2%80%99s-syndrome-in-primary-care-a-cas e-report/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is a rare e ndocrine disorder characterized by an insidious course and multisystem man ifestations\, often leading to delayed diagnosis due to its nonspecific pr esentation. A 52-year-old woman with a history of type 2 diabetes mellitus and hypertension was followed in primary care for persistent musculoskele tal pain and worsening metabolic control\, initially attributed to poor tr eatment adherence. Her condition progressively led to significant function al impairment\, requiring the use of crutches for ambulation and ultimatel y resulting in medical retirement due to disability. After presenting with abdominal pain\, a computed tomography scan incidentally revealed a 35 mm left adrenal mass suggestive of an adenoma. In light of the clinical cont ext\, further evaluation confirmed adrenocorticotropic hormone (ACTH)-inde pendent hypercortisolism. The patient underwent left adrenalectomy and rem ains under clinical follow-up\, with progressive improvement in metabolic parameters and functional status.
T his case highlights the importance of reassessing persisten t symptoms and appropriately evaluating incidental findings in primary car e\, as well as the potential for significant functional decline in undiagn osed cases. Early recognition of atypical presentations may facilitate the diagnosis of rare endocrine disorders.
CATEGORIES:News Items UID:20260506T0854490Z-549422-2091@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20260506 SUMMARY:Dee (Dee)\, Pituitary Bio RRULE:FREQ=DAILY;COUNT=1462 DESCRIPTION:After a hormone panel\, my doctor told me I was in menopause. A t this time\, the whites of my eyes started hemorrhaging and my skin becam e paper thin\, bleeding and bruising. I was tested for Von Willebrands wh ich came back negative. A few years passed and my blood pressure sky rocke ted\, my hair started falling out\, my teeth were breaking and I was gaini ng weight and unable to stop it. I grew a heavy beard\, black hairs on my arms and thighs. My face became distored\, my head was pushed towards my feet from a hump on my back. I was losing the use of my legs\, and unabl e to hold a pen or pencil. I started to look 7 months pregnant with a lar ged mid-section. I couldn’t retain simple instructions\, and had to stop driving... https://cushingsbios.com/2026/05/04/dee-dee-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:After a hormone panel\, my doctor told me I was in menopause.
At this time\, the whites of my eyes started he morrhaging and my skin became paper thin\, bleeding and bruising. \;I was tested for Von Willebrands which came back negative.
A few ye ars passed and my blood pressure sky rocketed\, my hair started falling ou t\, my teeth were breaking and I was gaining weight and unable to stop it. \;I grew a heavy beard\, black hairs on my arms and thighs. \;M y face became distored\, my head was pushed towards my feet from a hump on my back. \;I was losing the use of my legs\, and unable to hold a pe n or pencil. \;I started to look 7 months pregnant with a larged mid- section. \;I couldn&rsquo\;t retain simple instructions\, and had to stop driving...
https://cushingsbios.com /2026/05/04/dee-dee-pituitary-bio/
CATEGORIES:Cushie Bios UID:20260506T0903050Z-549422-2092@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180410 SUMMARY:Gene test for growth hormone deficiency developed RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190410;BYMONTHDAY=10 DESCRIPTION:Children suspected of having GHD – which cause growth to slow d own or stop and other serious physical problems—currently require a test i nvolving fasting for up to 12 hours. Read more at https://cushieblog.com/2 018/04/10/gene-test-for-growth-hormone-deficiency-developed/ X-ALT-DESC;FMTTYPE=text/html:Children suspected of having GHD &ndash\; w hich cause growth to slow down or stop and other serious physical problems &mdash\;currently require a test involving fasting for up to 12 hours.
Read more at \;https://cushi eblog.com/2018/04/10/gene-test-for-growth-hormone-deficiency-developed/
CATEGORIES:Other Medical UID:20180410T1019390Z-549422-899@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 10: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250410;BYMONTH=4;BYMONTHDAY=10 DTSTART;VALUE=DATE:20180410 DTEND;VALUE=DATE:20180411 DESCRIPTION:The above is the official Cushing's path to a diagnosis but her e’s how it seems to be in real life... Read more at https://cushieblogger. com/2019/04/10/day-10-cushings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:The above is the official Cushing's path to a diagnosis but here&rsquo\;s how it seems to be in real life...
Read more at \;https://cushieblogger.co m/2019/04/10/day-10-cushings-awareness-challenge-2019/
CATEGORIES:Awareness Challenge UID:20190410T1547190Z-549422-894@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181002 SUMMARY:Pregnancy Could Be Linked to Onset of Cushing’s Symptoms RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191002;BYMONTHDAY=2 DESCRIPTION:More than 25 percent of women with Cushing’s disease experience d their first symptoms within one year of giving birth\, a small study by the Pacific Neuroscience Institute found. The findings suggest a possible causal relationship between the biological stress of pregnancy and Cushing ’s disease (CD)\, with more than a two-fold risk of women developing the d isease within one year of pregnancy. Read more at https://cushieblog.com/2 018/10/02/pregnancy-could-be-linked-to-onset-of-cushings-symptoms/ X-ALT-DESC;FMTTYPE=text/html:More than 25 percent of women with \;Cu shing&rsquo\;s disease \;experienced their first symptoms within one y ear of giving birth\, a small study by the \;Pacific Neuroscience Inst itute \;found.
The findings suggest a possible causal relation ship between the biological stress of pregnancy and Cushing&rsquo\;s disea se (CD)\, with more than a two-fold risk of women developing the disease w ithin one \;year of pregnancy.
Read more at \;https://cushieblog.com/2018/10/02/pregnancy -could-be-linked-to-onset-of-cushings-symptoms/
CATEGORIES:News Items UID:20181002T1214060Z-549422-986@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190401 SUMMARY:Osilodrostat Continues to Show Promise for Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200401;BYMONTHDAY=1 DESCRIPTION:Significantly more patients randomized to osilodrostat maintain ed a mean urinary free cortisol (mUFC) response versus placebo at 34 weeks following a 24-week open-label period plus 8-week randomized phase\, with rapid and sustained mUFC reduction in most patients.Patients also experie nced improvements in clinical signs of hypercortisolism and quality of lif e. The drug was generally well-tolerated and had no unexpected side effect s. Read more at https://cushieblog.com/2019/04/01/osilodrostat-continues-t o-show-promise-for-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Significantly more patients randomized to o silodrostat maintained a mean urinary free cortisol (mUFC) response versus placebo at 34 weeks following a 24-week open-label period plus 8-week ran domized phase\, with rapid and sustained mUFC reduction in most patients.P atients also experienced improvements in clinical signs of hypercortisolis m and quality of life. The drug was generally well-tolerated and had no un expected side effects.
Read more at \;https://cushieblog.com/2019/04/01/osilodrostat-cont inues-to-show-promise-for-cushings-disease/
CATEGORIES:News Items UID:20190401T1334300Z-549422-1112@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200910 SUMMARY:High Cortisol Levels in Urine May Be Linked to Changes in Blood Sug ar Metabolism RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210910;BYMONTHDAY=10 DESCRIPTION:Abnormally high levels of cortisol in the urine — one of the ha llmarks of Cushing’s syndrome — seem to be associated with alterations in blood sugar metabolism in obese patients\, a study found. Read more at htt ps://cushieblog.com/2020/09/10/high-cortisol-levels-in-urine-may-be-linked -to-changes-in-blood-sugar-metabolism/ X-ALT-DESC;FMTTYPE=text/html:Abnormally high levels of cortisol in the u rine &mdash\; one of the hallmarks of Cushing&rsquo\;s syndrome &mdash\; s eem to be associated with alterations in blood sugar metabolism in obese p atients\, a study found.
Read more at \;https://cushieblog.com/2020/ 09/10/high-cortisol-levels-in-urine-may-be-linked-to-changes-in-blood-suga r-metabolism/
CATEGORIES:News Items UID:20200910T1559470Z-549422-1288@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Ohio State Pituitary Patient Symposium DTSTART;VALUE=DATE:20190601 DTEND;VALUE=DATE:20190602 RRULE:FREQ=WEEKLY;UNTIL=20190713;BYDAY=SU DESCRIPTION:The Keynote Speaker will be Maria Fleseriu\, MD FACE. July 13\ , 2019 Read more at https://cushieblogger.com/2019/06/02/ohio-state-pituit ary-patient-symposium/ X-ALT-DESC;FMTTYPE=text/html:The Keynote Speaker will be Maria Fleseriu\ , MD FACE. \;July 13\, 2019
Read more at \;https://cushieblogger.com/2019/06/02/ohio-state-pituitary-p atient-symposium/
CATEGORIES:Events and Meetings UID:20190602T1252270Z-549422-1172@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Carlin\, Recovered from Pituitary Tumor DTSTART;VALUE=DATE:20220312 DTEND;VALUE=DATE:20220313 RRULE:FREQ=MONTHLY;UNTIL=20300212;BYDAY=2SA DESCRIPTION:Carlin is from the Napa Valley CA. USA. I’m 66 yo and have reco vered from Cushings but now take hydrocortisone\, thyroxine\, ddavp and ci talopram. It’s was a real fight to find a dr who believed me. (my GP said I was a morbidly obese hypochondriac). Read more at https://cushingsbios.c om/2022/02/12/carlin-recovered-from-pituitary-tumor/ X-ALT-DESC;FMTTYPE=text/html:Carlin is from the Napa Valley CA. USA.
I&rsquo\;m 66 yo and have recovered from Cushings but now take hydroc ortisone\, thyroxine\, ddavp and citalopram. It&rsquo\;s was a real fight to find a dr who believed me. (my GP said I was a morbidly obese hypochond riac).
Read more at \;https://cushi ngsbios.com/2022/02/12/carlin-recovered-from-pituitary-tumor/
CATEGORIES:Cushie Bios UID:20220212T1135140Z-549422-1516@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240412 SUMMARY:Response to Osilodrostat Therapy in Adrenal Cushing’s Syndrome DESCRIPTION:Our study demonstrated that osilodrostat therapy in patients wi th CPA may require a different approach than that in CD\, with higher dose s\, faster dose escalation\, and a possible initial inverse response or la ck of response. Read more at https://cushings.invisionzone.com/topic/57715 -response-to-osilodrostat-therapy-in-adrenal-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Our study demonstrated that osilodros tat therapy in patients with CPA may require a different approach than tha t in CD\, with higher doses\, faster dose escalation\, and a possible init ial inverse response or lack of response.
Read more a t \;https://cushings.invisionzone.com/topic/57715-response- to-osilodrostat-therapy-in-adrenal-cushing%E2%80%99s-syndrome/< /p> CATEGORIES:Cushings UID:20240412T1302460Z-549422-1773@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240412 SUMMARY:Response to Osilodrostat Therapy in Adrenal Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300412;BYMONTHDAY=12 EXDATE;VALUE=DATE:20240412 DESCRIPTION:Our study demonstrated that osilodrostat therapy in patients wi th CPA may require a different approach than that in CD\, with higher dose s\, faster dose escalation\, and a possible initial inverse response or la ck of response. Read more at https://cushings.invisionzone.com/topic/57715 -response-to-osilodrostat-therapy-in-adrenal-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:
Our study demonstrated that osilodros tat therapy in patients with CPA may require a different approach than tha t in CD\, with higher doses\, faster dose escalation\, and a possible init ial inverse response or lack of response.
Read more a t \;https://cushings.invisionzone.com/topic/57715-response- to-osilodrostat-therapy-in-adrenal-cushing%E2%80%99s-syndrome/< /p> CATEGORIES:Cushings UID:20240412T1235240Z-549422-1772@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 6\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300406;BYMONTH=4;BYMONTHDAY=6 DTSTART;VALUE=DATE:20240406 DTEND;VALUE=DATE:20240407 DESCRIPTION:It's Sunday again\, so this is another semi-religious post so f eel free to skip it I'm sure that many would think that Abide With Me is a pretty strange choice for my all-time favorite hymn\, especially since i t often shows up at funerals and memorial services. Read more at https://c ushings-help.com/2025/04/06/day-6-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:
It's Sunday again\, so this is another semi
-religious post so feel free to skip it \;
I'm sure that many would think that \;Abide With Me \;is a pretty strange choice for my all-time favorite hymn\, especially since it often shows up at funerals and memorial services.
Read more at \;https://cushings-help.com/2025/04/06/day-6-cushings-aware ness-challenge/
CATEGORIES:Awareness Challenge UID:20250407T1220540Z-549422-1769@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190228 SUMMARY:13th Annual Conference for Adults with Endocrine Disorder RRULE:FREQ=DAILY;COUNT=4 DESCRIPTION:13th Annual Conference for Adults with Endocrine Disorders in P artnership with Barrow Neurological Institute Pituitary Center February 28 th\, 2019 - March 3rd\, 2019 in Phoenix\, Arizona More information at http s://cushieblogger.com/2019/01/11/13th-annual-conference-for-adults-with-en docrine-disorder/ X-ALT-DESC;FMTTYPE=text/html:13th Annual Conference for Adults with Endo crine Disorders \;in Partnership with Barrow Neurological Institute Pi tuitary Center \;February 28th\, 2019 - March 3rd\, 2019 in Phoenix\, Arizona
More information at \;https://cushieblogger.com/2019/01/11/13th-annual-conferenc e-for-adults-with-endocrine-disorder/
CATEGORIES:Events and Meetings UID:20190111T1357210Z-549422-1064@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New Testimonial From Ken K DTSTART;VALUE=DATE:20181107 DTEND;VALUE=DATE:20181108 RRULE:FREQ=MONTHLY;UNTIL=20191002;BYDAY=1TU DESCRIPTION:...If not for you Mary Kelly O'Connor many of us would not know each other\, met each other\, & helped each other so so so much! THANK T HE LORD FOR YOU!!!! Read more at https://cushieblogger.com/testimonial/ken -k-3/ X-ALT-DESC;FMTTYPE=text/html:...If not for y ou \;< span class='s1'>Mary Kelly O'Connor \;many of us would not know each other\, met each other\, &\; helped each other so so so much! \;
THANK THE LORD FOR YOU! !!!
Read more at \;https://c ushieblogger.com/testimonial/ken-k-3/
CATEGORIES:Cushings UID:20181002T1217430Z-549422-987@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180726 SUMMARY:Many Thanks! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190726;BYMONTHDAY=26 DESCRIPTION:Many thanks to everyone who is making a difference and helping Cushing's Help stay afloat for another year! Read more at https://cushiebl ogger.com/2018/07/26/many-thanks/ X-ALT-DESC;FMTTYPE=text/html:Many thanks to everyone who is making a dif ference and helping \;Cushing's Help \;stay afloat for&n bsp\;another year!
Read more at https://cushieblogger.com/2018/07/26/many-thanks/ \;
CATEGORIES:Cushings UID:20180726T1635130Z-549422-958@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Rachelle L (Rachelle)\, Mother-in-Law of Pituitary Patient DTSTART;VALUE=DATE:20180508 DTEND;VALUE=DATE:20180509 RRULE:FREQ=MONTHLY;UNTIL=20190410;BYDAY=2TU DESCRIPTION:Rachelle is from Phoenix\, Arizona Her daughter-in-law has bee n told the tumor is inoperable and the only form of treatment is mifeprist one (the abortion pill). After 5 rounds of IUI\, they found out on 3/20 th ey are pregnant! Read more at https://cushingsbios.com/2018/04/10/rachelle -l-rachelle-mother-in-law-of-pituitary-patient/ X-ALT-DESC;FMTTYPE=text/html:Rachelle is from Phoenix\, Arizona \;H er daughter-in-law has been told the tumor is inoperable and the only form of treatment is mifepristone (the abortion pill). After 5 rounds of IUI\, they found out on 3/20 they are pregnant!
Read more at \;https://cushingsbios.com/2018/04/1 0/rachelle-l-rachelle-mother-in-law-of-pituitary-patient/
CATEGORIES:Cushie Bios UID:20180410T1054060Z-549422-900@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220428 SUMMARY:Media Attention! Cushing's on Today RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300428;BYMONTHDAY=28 DESCRIPTION:Blood tests and an MRI finally confirmed the doctor’s suspicion : Yawn had a tumor in her pituitary gland — a pea-size organ at the base o f the brain — that was causing the gland to release too much adrenocortico tropic hormone. That\, in turn\, flooded her body with cortisol\, a steroi d hormone that’s normally released in response to stress or danger. The re sulting condition is called Cushing disease. Read more at https://cushings .invisionzone.com/topic/56889-media-attention-cushings-on-today/ X-ALT-DESC;FMTTYPE=text/html:Blood tests and an MRI finally confirmed th e doctor&rsquo\;s suspicion: Yawn had a tumor in her pituitary gland &mdas h\; a pea-size organ at the base of the brain &mdash\; that was causing th e gland to release too much adrenocorticotropic hormone. That\, in turn\, flooded her body with \;cortisol\, a steroid hormo ne that&rsquo\;s normally released in response to stress or danger. The re sulting condition is called \;Cushing disease.
Read more at&nb sp\;https://cushings.invisionzone.com/top ic/56889-media-attention-cushings-on-today/
CATEGORIES:Cushie Bios UID:20220428T0658540Z-549422-1557@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190310 SUMMARY:Video: Cushing Disease & ACTH-Secreting Pituitary Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200310;BYMONTHDAY=10 DESCRIPTION:Irina Bancos\, M.D.\, an endocrinologist at Mayo Clinic in Roch ester\, Minnesota\, and Jamie J. Van Gompel\, M.D.\, a neurosurgeon at May o Clinic's campus in Minnesota\, discuss Mayo's multidisciplinary approach to adrenocorticotropic hormone (ACTH)-secreting pituitary tumors. Pituita ry tumors are common and often don't cause problems. But some pituitary tu mors produce the hormone ACTH\, which stimulates the production of another hormone (cortisol). Overproduction of cortisol can result in Cushing synd rome\, with signs and symptoms such as weight gain\, skin changes and fati gue. Cushing syndrome is rare but can cause significant long-term health p roblems. View at https://cushieblogger.com/2019/03/10/video-cushing-diseas e-acth-secreting-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:Irina Bancos\, M.D.\, an endocrinologist at Mayo Clinic in Rochester\, Minnesota\, and Jamie J. Van Gompel\, M.D.\, a neurosurgeon at Mayo Clinic's campus in Minnesota\, discuss Mayo's multid isciplinary approach to adrenocorticotropic hormone (ACTH)-secreting pitui tary tumors. Pituitary tumors are common and often don't cause problems. B ut some pituitary tumors produce the hormone ACTH\, which stimulates the p roduction of another hormone (cortisol). Overproduction of cortisol can re sult in Cushing syndrome\, with signs and symptoms such as weight gain\, s kin changes and fatigue. Cushing syndrome is rare but can cause significan t long-term health problems.
View at \;https://cushieblogger.com/2019/03/10/video-cushing-di sease-acth-secreting-pituitary-tumors/
CATEGORIES:Cushings UID:20190310T1735250Z-549422-1098@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231109 SUMMARY:Long-Term Efficacy and Safety of Subcutaneous Pasireotide Alone or In Combination With Cabergoline in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301109;BYMONTHDAY=9 DESCRIPTION:Addition of cabergoline in patients with persistently elevated mUFC on maximum tolerated doses of pasireotide is an effective and well-to lerated long-term strategy for enhancing control of hypercortisolism in so me CD patients. Read more at https://cushings.invisionzone.com/topic/57662 -long-term-efficacy-and-safety-of-subcutaneous-pasireotide-alone-or-in-com bination-with-cabergoline-in-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Addition of cabergoline in patients w ith persistently elevated mUFC on maximum tolerated doses of pasireotide i s an effective and well-tolerated long-term strategy for enhancing control of hypercortisolism in some CD patients.
CATEGORIES:Cushings UID:20231109T0905230Z-549422-1705@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY: Webinar: Pituitary Surgery During the COVID-19 Pandemic DTSTART;VALUE=DATE:20200505 DTEND;VALUE=DATE:20200506 RRULE:FREQ=WEEKLY;UNTIL=20200511;BYDAY=SU,TU DESCRIPTION:Objectives: - Understand the additional considerations that are key to performing endonasal surgery during the COVID pandemic - Identify the practice changes that are allowing pituitary surgery to proceed safely - Characterize the nasal cavity and nasopharyn x as a reservoir for the coronavirus - Identify the risk of under going pituitary surgery during the Covid -19 pandemic Read more at https ://cushieblogger.com/2020/05/05/webinar-pituitary-surgery-during-the-covid -19-pandemic/ X-ALT-DESC;FMTTYPE=text/html:I am thankful\, believe it or not\, that I had Cushing&rsquo\;s. Mind you\, I wouldn&rsquo\;t want to have it now\, a lthough diagnoses and surgeries seem &ldquo\;easier&rdquo\; now.
< /p>
Having Cushing&rsquo\;s taught me a lot\, including how to stick u p for myself\, how to read medical books to learn more about my disease\, how to do web design\, how to navigate NIH. It taught me patience\, how to make phone calls. It brought me a lot of new friends.
Read more a t https://www.maryo.co/giving-thanks-day-19-2/
CATEGORIES:Cushie Bios UID:20231119T2049000Z-549422-1713@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231109 SUMMARY:Comment added to Celebrities with Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301109;BYMONTHDAY=9 DESCRIPTION:I read Kevin Sorbo developed Cushings as a result of his Steroi d usage on “Hercules\, the Legendary Journeys”. I recall them saying that’ s why the series ended. He actually tore tissue and muscle. Can anyone con firm? Read more at https://cushieblog.com/2010/01/05/celebrities-with-cush ings/comment-page-1/#comment-25585 X-ALT-DESC;FMTTYPE=text/html:I read Kevin Sorbo developed Cushings as a result of his Steroid usage on &ldquo\;Hercules\, the Legendary Jour neys&rdquo\;. I recall them saying that&rsquo\;s why the series ended. He actually tore tissue and muscle. Can anyone confirm?
Read more at \;https://cushieblog.com/2010/01/05/celebrities-with-cushings/comment-page -1/#comment-25585
CATEGORIES:Cushie Bios UID:20231109T1153230Z-549422-1706@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230802 SUMMARY:Dr. Theodore Friedman (The Wiz) will giving a webinar on Updates on Treating Hypothyroidism DESCRIPTION:Topics to be discussed include: New articles showing patients p refer desiccated thyroid Moving away from a TSH-centered approach New thyr oid hormone preparations\, including Adthyza •Does biotin affect thyroid t ests? •Hypothyroidism diet? What is the difference between desiccated thyr oid and synthetic thyroid hormones? Is rT3 important? Read more at https:/ /cushings.invisionzone.com/topic/57621-webinar-dr-theodore-friedman-the-wi z-will-giving-a-webinar-on-updates-on-treating-hypothyroidism/ X-ALT-DESC;FMTTYPE=text/html:Topics to be discussed include:
Cushing syndrome characteristically present s with skin changes such as facial plethora\, easy bruising\, and purple s triae and with metabolic manifestations such as hyperglycemia\, hypertensi on\, and excess fat deposition in the face\, back of the neck\, and viscer al organs. \;
Read more at \;https://cushings.invisionzone.com/topic/57616-basics-cus hing-syndrome-a-review/
CATEGORIES:Cushings UID:20230715T1239500Z-549422-1657@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180423 SUMMARY:Comment added to Myths and Facts about Cushing’s: UFC’s are the Go ld Standard for Cushing’s testing RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190423;BYMONTHDAY=23 DESCRIPTION:I was diagnosed with ACTH independent cyclical cushings. It too k 5 years to get a diagnosis... In the comments area of https://cushieblog ger.com/2018/04/16/myths-and-facts-about-cushings-ufcs-are-the-gold-standa rd-for-cushings-testing/ X-ALT-DESC;FMTTYPE=text/html:I was diagnosed with ACTH independent cycli cal cushings. It took 5 years to get a diagnosis...
In the comment s area of \;https://cushieblogger.com/2018/04/16/myths-and-facts-about-cush ings-ufcs-are-the-gold-standard-for-cushings-testing/
CATEGORIES:Cushie Bios UID:20180423T1254060Z-549422-915@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180409 SUMMARY:Comment added to Have You Had Treatment for Cushing's? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190409;BYMONTHDAY=9 DESCRIPTION:...My son the doctors call him a Zebra regarding his medical & now brain. Issues from cortisol damage . I’ve traveled 26\,000 miles tryin g to battle this disease with him... In the comments area of https://cushi eblogger.com/2018/04/08/have-you-had-treatment-for-cushings/ X-ALT-DESC;FMTTYPE=text/html:...My son the doctors call him a Zebra rega rding his medical &\; now brain. Issues from cortisol damage . I&rsquo\ ;ve traveled 26\,000 miles trying to battle this disease with him...
In the comments area of \;https://cushieb logger.com/2018/04/08/have-you-had-treatment-for-cushings/
CATEGORIES:Cushings UID:20180409T1317580Z-549422-895@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210224 SUMMARY:The Effect of Biochemical Remission on Bone Metabolism in Cushing's Syndrome: A 2‐Year Follow‐Up Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220224;BYMONTHDAY=24 DESCRIPTION:Endogenous Cushing's syndrome (CS) is a rare cause of secondary osteoporosis. The long‐term consequences for bone metabolism after succes sful surgical treatment remain largely unknown. We assessed bone mineral d ensity and fracture rates in 89 patients with confirmed Cushing's syndrome at the time of diagnosis and 2 years after successful tumor resection. We determined five bone turnover markers at the time of diagnosis\, 1 and 2 years postoperatively. Read more at https://cushings.invisionzone.com/topi c/55541-the-effect-of-biochemical-remission-on-bone-metabolism-in-cushings -syndrome-a-2%E2%80%90year-follow%E2%80%90up-study/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing's syndrome (CS) is a rar e cause of secondary osteoporosis. The long‐term consequences for bone met abolism after successful surgical treatment remain largely unknown. We ass essed bone mineral density and fracture rates in 89 patients with confirme d Cushing's syndrome at the time of diagnosis and 2&thinsp\;years after su ccessful tumor resection. We determined five bone turnover markers at the time of diagnosis\, 1 and 2&thinsp\;years postoperatively.
Read mo re at \;https://cushings.inv isionzone.com/topic/55541-the-effect-of-biochemical-remission-on-bone-meta bolism-in-cushings-syndrome-a-2%E2%80%90year-follow%E2%80%90up-study/< /p> CATEGORIES:News Items UID:20210224T1048360Z-549422-1320@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing's Basics: What is Cortisol? DTSTART;VALUE=DATE:20211204 DTEND;VALUE=DATE:20211205 RRULE:FREQ=MONTHLY;UNTIL=20301106;BYDAY=1SA DESCRIPTION:Cortisol is a hormone which produced by the adrenal gland (cort ex) to control blood sugar. The production of cortisol is triggered by the pituitary hormone ACTH. Cortisol is a glucocorticoid which stimulates an increase in blood glucose. Cortisol will also stimulate the release of ami no acids from muscle tissue and fatty acids from adipose tissue. The amino acids are then converted in the liver to glucose (for use by the brain). The fatty acids can be used by skeletal muscles for energy (rather than gl ucose) thereby freeing up glucose for selective utilization by the brain. Cortisol levels are often measured to evaluate the function of the pituita ry or adrenal glands. Some of the cortisol is metabolized by the liver to produce 17 hydroxycorticosteroids\, which is then excreted in the urine. R ead more at https://cushings.invisionzone.com/topic/56255-what-is-cortisol / X-ALT-DESC;FMTTYPE=text/html:
Cortisol is a hormone which produced by the \;adrenal \;gland (cortex) to co ntrol blood sugar. The production of cortisol is triggered by the \;pituitary \;hormone \;ACTH. Cortisol is a glucocorticoid whi ch stimulates an increase in blood glucose. Cortisol will also stimulate t he release of amino acids from muscle tissue and fatty acids from adipose tissue. The amino acids are then converted in the liver to glucose (for us e by the brain). The fatty acids can be used by skeletal muscles for energ y (rather than glucose) thereby freeing up glucose for selective utilizati on by the brain. Cortisol levels are often measured to evaluate the functi on of the \;pituitary \ ;or \;adrenal \;glands. Some of the cortisol is metabolized by the liver to produce 17 hydroxycort icosteroids\, which is then excreted in the urine.
Read more at&nb sp\;https://cushings.invisionzone.com/topic/56255-what-is- cortisol/
CATEGORIES:Cushings UID:20211106T1401550Z-549422-1449@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Shea S (Shea)\, Undiagnosed Bio DTSTART;VALUE=DATE:20210704 DTEND;VALUE=DATE:20210705 RRULE:FREQ=MONTHLY;UNTIL=20220606;BYDAY=1SU DESCRIPTION:I am 53 and have many of the same symptoms. Almost no eyebrows or eyelashes and now I am becoming bald. I have a huge belly\, diabetes\, heart failure and high blood pressure. Plus so many other symptoms. My end ocrinologist wants to run more and more tests but I am afraid I am running out of time. Read more at https://cushingsbios.com/2021/04/04/shea-s-shea -undiagnosed-bio/comment-page-1/#comment-58581 X-ALT-DESC;FMTTYPE=text/html:I am 53 and have many of the same symptoms. Almost no eyebrows or eyelashes and now I am becoming bald. I have a huge belly\, diabetes\, heart failure and high blood pressure. Plus so many ot her symptoms. My endocrinologist wants to run more and more tests but I am afraid I am running out of time.
Read more at \;https://cushingsbios.com/2021/04/04/shea- s-shea-undiagnosed-bio/comment-page-1/#comment-58581
CATEGORIES:Cushie Bios UID:20210607T0113510Z-549422-1395@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Janet (janetelizabeth)\, Adrenal Bio DTSTART;VALUE=DATE:20251108 DTEND;VALUE=DATE:20251109 RRULE:FREQ=WEEKLY;UNTIL=20301108;BYDAY=SA DESCRIPTION:I have recently been diagnosed with cushings syndrome and await ing removal of gland and tumour. https://cushingsbios.com/2025/11/07/janet -janetelizabeth-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I have recently been diagnosed with c ushings syndrome and awaiting removal of gland and tumour.
https://cushingsbios.com/2025/1 1/07/janet-janetelizabeth-adrenal-bio/
CATEGORIES:Cushie Bios UID:20251108T1137540Z-549422-1971@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:BIPSS Diagnostic Method May Cause False Positive in Some Cases of C yclic Cushing’s Syndrome DTSTART;VALUE=DATE:20200207 DTEND;VALUE=DATE:20200208 RRULE:FREQ=MONTHLY;UNTIL=20210103;BYDAY=1FR DESCRIPTION:A diagnostic technique called bilateral inferior petrosal sinus sampling (BIPSS)\, which measures the levels of the adrenocorticotropic h ormone (ACTH) produced by the pituitary gland\, should only be used to dia gnose cyclic Cushing’s syndrome patients during periods of cortisol excess \, a case report shows. When it is used during a spontaneous remission per iod of cycling Cushing’s syndrome\, this kind of sampling can lead to fals e results\, the researchers found. Read more at https://cushieblog.com/202 0/01/03/bipss-diagnostic-method-may-cause-false-positive-in-some-cases-of- cyclic-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A diagnostic technique called \;bilateral inferior petrosal sinus sampling \;(BI PSS)\, which measures the levels of the \;adrenocorticotropic hormone \;(ACTH) produced by t he \;pituitary gland\, should only be used to diagnose cyclic \;Cu shing&rsquo\;s syndrome \;patients during periods of cortisol excess\, a case report shows.
When it is used during a spontaneous remissi on period of cycling Cushing&rsquo\;s syndrome\, this kind of sampling can lead to false results\, the researchers found.
Read more at \ ;https://cushieblog.com/2020/01/03/bipss-diagnostic-method-may-cause-f alse-positive-in-some-cases-of-cyclic-cushings-syndrome/
CATEGORIES:News Items UID:20200103T1513170Z-549422-1224@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190902 SUMMARY:Elaine\, Adrenal and Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200902;BYMONTHDAY=2 DESCRIPTION:A Golden Oldie post. Elaine had a tumor in both the pituitary gland as well as the adrenal gland. Read more at https://cushingsbios.com/ 2019/09/02/elaine-adrenal-and-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:A Golden Oldie post. \;Elaine had a tu mor in both the pituitary gland as well as the adrenal gland.
Read more at \;https://cushingsbios.com/2019/09/02/e laine-adrenal-and-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190902T0606050Z-549422-1208@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200617 SUMMARY:Steroids! Scientists Hail Dexamethasone as ‘Major Breakthrough’ in Treating Coronavirus RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210617;BYMONTHDAY=17 DESCRIPTION:Dexamethasone\, a cheap and widely used steroid\, has become th e first drug shown to be able to save lives among Covid-19 patients in wha t scientists hailed as a “major breakthrough”. Results of trials announced on Tuesday showed dexamethasone\, which is used to reduce inflammation in other diseases\, reduced death rates by around a third among the most sev erely ill Covid-19 patients admitted to hospital. Read more at https://cus hieblog.com/2020/06/17/steroids-scientists-hail-dexamethasone-as-major-bre akthrough-in-treating-coronavirus/ X-ALT-DESC;FMTTYPE=text/html:Dexamethasone\, a cheap and widely used ste roid\, has become the first drug shown to be able to save lives among Covi d-19 patients in what scientists hailed as a &ldquo\;major breakthrough&rd quo\;.
Results of trials announced on Tuesday showed dexamethasone \, which is used to reduce inflammation in other diseases\, reduced death rates by around a third among the most severely ill Covid-19 patients admi tted to hospital.
Read more at \;https://cushieblog.com/2020/06/ 17/steroids-scientists-hail-dexamethasone-as-major-breakthrough-in-treatin g-coronavirus/
CATEGORIES:Cushings UID:20200617T1557520Z-549422-1271@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory of Sherry Carlson ~ May 30\, 2020 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300530;BYMONTH=5;BYMONTHDAY=30 DTSTART;VALUE=DATE:20200530 DTEND;VALUE=DATE:20200531 DESCRIPTION:Sherry passed away this afternoon\, naturally and peacefully in her sleep. She loved her community and we know how grateful she was to ev ery one of her friends on here for the genuine love and support she’s rece ived over the years. Read more at https://cushingsbios.com/2022/05/30/in-m emory-of-sherry-carlson-may-30-2020-2/ X-ALT-DESC;FMTTYPE=text/html:Sherry passed away this afternoon\, natural ly and peacefully in her sleep.
She loved her community and we kno w how grateful she was to every one of her friends on here for the genuine love and support she&rsquo\;s received over the years.
Read more at \;https://cushingsbios.com/2022/05/3 0/in-memory-of-sherry-carlson-may-30-2020-2/
CATEGORIES:In Memory UID:20220531T0134580Z-549422-1262@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200531 SUMMARY:Comment added to Jessica (JessicaAnn)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210531;BYMONTHDAY=31 DESCRIPTION:oh my god\, I am the exact same way. They are just testing me n ow with cushings and while the first test did come back negative after I t ook the dextromorphisone pill the night before\, they hadn't tested my usu al levels. So an internest tested my levels without the dextromorpbisone p ill and it did come back higher than normal. Read more at https://cushings bios.com/2013/05/04/jessica-jessicaann-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:oh my god\, I am the exact same way. They a re just testing me now with cushings and while the first test did come bac k negative after I took the dextromorphisone pill the night before\, they hadn't tested my usual levels. So an internest tested my levels without th e dextromorpbisone pill and it did come back higher than normal.
R ead more at \;https://cushingsbios.com/2013/05 /04/jessica-jessicaann-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20200531T1228540Z-549422-1263@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Specific Cortisol Receptor Antagonist Created DTSTART;VALUE=DATE:20200608 DTEND;VALUE=DATE:20200609 RRULE:FREQ=MONTHLY;UNTIL=20210511;BYDAY=2MO DESCRIPTION:A member of the message board writes: 'I’ve just discovered thi s article two months ago and I was very pleased to speak directly to Dr. G erardo Burton He and his team developed a drug (21OH-6OP) which is a SPECI FIC antagonist for cortisol receptors\, unlikely mifepristone which inhibi ts cortisol AND progesterone with so many undesired adverse effects.' Read more at http://cushings.invisionzone.com/topic/55167-specific-cortisol-re ceptor-antagonist-created/?tab=comments#comment-475251 X-ALT-DESC;FMTTYPE=text/html:A member of the message board writes: 'I&rs quo\;ve just discovered this article two months ago and I was very pleased to speak directly to Dr. Gerardo Burton
He and his team dev
eloped a drug (21OH-6OP) which is a SPECIFIC antagonist for cortisol recep
tors\, unlikely mifepristone which inhibits cortisol AND progesterone with
so many undesired adverse effects.'
Read more at \;http://cushi ngs.invisionzone.com/topic/55167-specific-cortisol-receptor-antagonist-cre ated/?tab=comments#comment-475251
CATEGORIES:Cushings UID:20200511T1350030Z-549422-1260@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200511 SUMMARY:Can You Help? Possible Cushing's or Cortisol Issue RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210511;BYMONTHDAY=11 DESCRIPTION:A guest on the Cushing's Help message boards asked: Hi wondered if anyone could help me out - been suffering with these symptoms lately a nd wondered if cortisol could be the issue Read more at https://cushieblog ger.com/2020/05/11/can-you-help-possible-cushings-or-cortisol-issue/ X-ALT-DESC;FMTTYPE=text/html:A guest on the Cushing's Help message board s asked:
Hi wondered if anyone could help me out - been suff
ering with these symptoms lately and wondered if cortisol could be the iss
ue
Read more at \;https ://cushieblogger.com/2020/05/11/can-you-help-possible-cushings-or-cortisol -issue/
CATEGORIES:Cushings UID:20200511T1343420Z-549422-1259@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190520 SUMMARY:Imaging Agent Effectively Detects\, Localizes Tumors in Cushing’s S yndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200520;BYMONTHDAY=20 DESCRIPTION:“Our study demonstrates the high sensitivity of [gallium Ga-68 dotatate] in the localization of [ectopic Cushing’s syndrome]\, for both o ccult primary tumors and metastatic lesions\,” the researchers wrote. “Imp ortantly\, the use of [gallium Ga-68 dotatate] impacted clinical managemen t in 64% of patients with [ectopic Cushing’s syndrome] overall.” The resea rchers noted that the high cost and limited availability of PET/CT imaging might preclude the widespread use of gallium Ga-68 dotatate for imaging i n patients with suspected ectopic Cushing’s syndrome\, and that experience with the scans remains limited vs. other imaging studies. Read more at ht tps://cushieblog.com/2019/05/20/imaging-agent-effectively-detects-localize s-tumors-in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;Our study demonstrates the high sen sitivity of [gallium Ga-68 dotatate] in the localization of [ectopic Cushi ng&rsquo\;s syndrome]\, for both occult primary tumors and metastatic lesi ons\,&rdquo\; the researchers wrote. &ldquo\;Importantly\, the use of [gal lium Ga-68 dotatate] impacted clinical management in 64% of patients with [ectopic Cushing&rsquo\;s syndrome] overall.&rdquo\;
The researche rs noted that the high cost and limited availability of PET/CT imaging mig ht preclude the widespread use of gallium Ga-68 dotatate for imaging in pa tients with suspected ectopic Cushing&rsquo\;s syndrome\, and that experie nce with the scans remains limited vs. other imaging studies.
Read more at \; https://cushieblog.com/2019/05/20/imaging-agent-effectively-detects-locali zes-tumors-in-cushings-syndrome/
CATEGORIES:News Items UID:20190520T2205570Z-549422-1165@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241104 SUMMARY:Tips from Message Board Members RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301104;BYMONTHDAY=4 DESCRIPTION:I have learned so much on this Cushing’s journey\, much of it f rom all of you and this site. I wanted to share those learnings\, in the e vent that it helps anyone else. Obviously – my own opinions here! My best wishes to everyone on their Cushing’s journey. https://cushings-help.com/2 024/11/04/tips-from-message-board-members/ X-ALT-DESC;FMTTYPE=text/html:I have learned so much on this Cushing&rsqu o\;s journey\, much of it from all of you and this site. I wanted to share those learnings\, in the event that it helps anyone else.
Obvious ly &ndash\; my own opinions here!
My best wishes to everyone on th eir Cushing&rsquo\;s journey.
https://cushings-help.com/2024/11/04/tips-from-message-board-members/
CATEGORIES:Cushings UID:20241104T2220550Z-549422-1829@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Do You Use Mario Badescu Skin Care Products? DTSTART;VALUE=DATE:20190414 DTEND;VALUE=DATE:20190415 RRULE:FREQ=MONTHLY;UNTIL=20200310;BYDAY=2SU DESCRIPTION:The plaintiffs were unaware of the steroids in Mario Badescu’s products and used the products on their faces\, usually daily\, for as lon g as fourteen years. Many of the plaintiffs allege that they unwittingly b ecame addicted to the steroids such that even a day without use of the Pro ducts caused severe and painful withdrawal reactions. Moreover\, many of t he plaintiffs allege that they suffered from steroid-related ailments whil e using Control Cream or Healing Cream\, including cataracts\, glaucoma\, mood disorders\, heart issues\, elevated cortisol levels\, adrenal system suppression and Cushing’s Syndrome. Plaintiffs allege that because they di d not know they were using steroids at the time\, they were unable to info rm their physicians about the true source of their injuries and were repea tedly misdiagnosed by their medical providers. Read more at https://cushie blogger.com/2019/03/10/do-you-use-mario-badescu-skin-care-products/ X-ALT-DESC;FMTTYPE=text/html:The plaintiffs were unaware of the steroids in Mario Badescu&rsquo\;s products and used the products on their faces\, usually daily\, for as long as fourteen years. Many of the plaintiffs all ege that they unwittingly became addicted to the steroids such that even a day without use of the Products caused severe and painful withdrawal reac tions. Moreover\, many of the plaintiffs allege that they suffered from st eroid-related ailments while using Control Cream or Healing Cream\, includ ing cataracts\, glaucoma\, mood disorders\, heart issues\, elevated cortis ol levels\, adrenal system suppression and Cushing&rsquo\;s Syndrome. Plai ntiffs allege that because they did not know they were using steroids at t he time\, they were unable to inform their physicians about the true sourc e of their injuries and were repeatedly misdiagnosed by their medical prov iders.
Read more at \;https: //cushieblogger.com/2019/03/10/do-you-use-mario-badescu-skin-care-products /
CATEGORIES:Cushings UID:20190310T2033340Z-549422-1099@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240121 SUMMARY:Dr. Theodore Friedman Will Be Giving a Brief Update on Growth Hormo ne Replacement DESCRIPTION:Dr. Theodore Friedman will be giving a brief update on growth h ormone replacement\, then answer your questions about endocrine issues. Re ad more at https://cushings.invisionzone.com/topic/57685-dr-theodore-fried man-will-be-giving-a-brief-update-on-growth-hormone-replacement/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman \;will be giving a brief update on growth hormone replacement\, then answer your questions about endocrine issues.
Read more at \;ht tps://cushings.invisionzone.com/topic/57685-dr-theodore-friedman-will-be-g iving-a-brief-update-on-growth-hormone-replacement/
CATEGORIES:Events and Meetings UID:20240115T0823340Z-549422-1736@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231213 SUMMARY:Helpful Doctors: Dr. Fernandez-Miranda RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301213;BYMONTHDAY=13 DESCRIPTION:I was then fortunate to continue my clinical training at Univer sity of Virginia with several giants of neurosurgery\, and I was greatly i nfluenced by the meticulous approach of Dr. Ed Oldfield’s pituitary surger ies\, particularly for Cushing’s disease. It was such a joy to watch his p recise extracapsular tumor resections. At the same time\, I had become tot ally enchanted by the endoscopic endonasal operations that Dr. Amin Kassam was performing at University of Pittsburgh\, and after many requests he f inally accepted me for specialized training with him and his team. That wa s a life changing event for me\, as my career was about to be centered in the development and refinement of endoscopic endonasal skull base and pitu itary surgery. Read more at https://cushings.invisionzone.com/topic/57673 -dr-fernandez-miranda/ X-ALT-DESC;FMTTYPE=text/html:I was then fortunate to continue my c linical training at University of Virginia with several giants of neurosur gery\, and I was greatly influenced by the meticulous approach of Dr. Ed O ldfield&rsquo\;s pituitary surgeries\, particularly for Cushing&rsquo\;s d isease. It was such a joy to watch his precise extracapsular tumor resecti ons. At the same time\, I had become totally enchanted by the endoscopic e ndonasal operations that Dr. Amin Kassam was performing at University of P ittsburgh\, and after many requests he finally accepted me for specialized training with him and his team. That was a life changing event for me\, a s my career was about to be centered in the development and refinement of endoscopic endonasal skull base and pituitary surgery.
October 7 \;@ \;9:00 am \;&ndas h\; \;1:00 pm
The annual Pituitary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary expert s.
To RSVP\, please email \;pituitaryday@jhmi.edu. Space is li mited. One member per family is encouraged to attend.
Read more at \;https:/ /cushings.invisionzone.com/topic/57631-johns-hopkins-pituitary-patient-edu cation-day/
CATEGORIES:Events and Meetings UID:20230902T2218280Z-549422-1670@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Midnight Salivary Cortisol Test to Diagnose Cushing’s in Chinese Po pulation DTSTART;VALUE=DATE:20190208 DTEND;VALUE=DATE:20190209 RRULE:FREQ=MONTHLY;UNTIL=20200111;BYDAY=2FR DESCRIPTION:A simple test that measures free cortisol levels in saliva at m idnight — called a midnight salivary cortisol test — showed good diagnosti c performance for Cushing’s syndrome among a Chinese population\, accordin g to a recent study. The test was better than the standard urine free cort isol levels and may be an alternative for people with end-stage kidney dis ease\, in whom measuring cortisol in urine is challenging. Read more at ht tps://cushieblog.com/2019/01/11/study-supports-midnight-salivary-cortisol- test-to-diagnose-cushings-in-chinese-population/ X-ALT-DESC;FMTTYPE=text/html:A simple test that measures free cortisol l evels in saliva at midnight &mdash\; called a midnight salivary cortisol t est &mdash\; showed good diagnostic performance for Cushing&rsquo\;s syndr ome among a Chinese population\, according to a recent study.
The test was better than the standard urine free cortisol levels and may be an alternative for people with end-stage kidney disease\, in whom measuring cortisol in urine is challenging.
Read more at \;https://cu shieblog.com/2019/01/11/study-supports-midnight-salivary-cortisol-test-to- diagnose-cushings-in-chinese-population/
CATEGORIES:News Items UID:20190111T1422220Z-549422-1066@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180420 SUMMARY:Comment added to Cyndi K (What Now?)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190420;BYMONTHDAY=20 DESCRIPTION:I am 54. I understand what you are going through. I too have th is disease. I just want you to know that you are NOT alone. In the comment s area of https://cushingsbios.com/2018/03/03/cyndi-k-what-now-undiagnosed -bio/ X-ALT-DESC;FMTTYPE=text/html:I am 54. I understand what you are going th rough. I too have this disease. I just want you to know that you are NOT a lone.
In the comments area of \;https:// cushingsbios.com/2018/03/03/cyndi-k-what-now-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180420T2025310Z-549422-911@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190111 SUMMARY:Stefanie\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200111;BYMONTHDAY=11 DESCRIPTION:Stefanie is from Michigan She was diagnosed in 2012 and had p ituitary surgery in 2013. She is currently on medications. Read more at ht tps://cushingsbios.com/2019/01/11/stefanie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Stefanie is from Michigan \;She \ ;was diagnosed in 2012 and had pituitary surgery in 2013. She is currently on medications.
Read more at \;https://cushingsbi os.com/2019/01/11/stefanie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20190111T1418430Z-549422-1065@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181129 SUMMARY:In Memory: Hermina Dala DESCRIPTION:Hermina had Cushing's Disease. She passed away November 29\, 20 02. X-ALT-DESC;FMTTYPE=text/html:Hermina had Cushing's Disease. She passed a way November 29\, 2002.
CATEGORIES:In Memory UID:20181129T0846330Z-549422-1040@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181129 SUMMARY:Webinar: Surgical Strategies in the Treatment of Pituitary Tumors RRULE:FREQ=DAILY;COUNT=5 DESCRIPTION:Learning Objectives: To understand the role of surgery in the t reatment of pituitary tumors To understand the advantages and disadvantage s of different surgical approaches in the treatment of pituitary tumors To understand the risks and benefits associated with different surgical stra tegies Learn more and get the registration link at https://cushieblogger.c om/2018/11/29/webinar-surgical-strategies-in-the-treatment-of-pituitary-tu mors/ X-ALT-DESC;FMTTYPE=text/html:Learn more and get the registration link at \;https://cushieblogger.com/2018/11/29/ webinar-surgical-strategies-in-the-treatment-of-pituitary-tumors/
CATEGORIES:Events and Meetings UID:20181129T0952180Z-549422-1041@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181129 SUMMARY:Laura\, In The Media RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191129;BYMONTHDAY=29 DESCRIPTION:Cushing's has appeared several times in the media. Jayne Kerns encouraged Zastrow to check out a Cushing's Web site\, which Zastrow did. Every symptom listed matched her condition. Her doctor ran some tests\, a nd the results confirmed Zastrow had Cushing's\, a hormonal disorder often brought on by a tumor. Read more at https://cushingsbios.com/2018/11/29/ laura-in-the-media/ X-ALT-DESC;FMTTYPE=text/html:Cushing's has appeared several times in the media. \;Jayne Kerns encouraged Zastrow to check out a Cushing's Web site\, which Zastrow did. Every symptom listed matched her condition. Her doctor ran some tests\, and the results confirmed Zastrow had Cushing's\, a hormonal disorder often brought \;on by a tumor.
Read more at \;https://cushingsbios.com/2018/11/29/laura-in-the-media/< /a>
\;
CATEGORIES:Cushie Bios UID:20181129T1003170Z-549422-1042@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220617 SUMMARY:Transsphenoidal Surgery in an Older Patient with Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260617;BYMONTHDAY=17 DESCRIPTION:Cushing's disease causes numerous metabolic disorders\, cogniti ve decline\, and sarcopenia\, leading to deterioration of the general heal th in older individuals. Cushing's disease can be treated with transspheno idal surgery\, but thus far\, surgery has often been avoided in older pati ents. Read more at https://cushings.invisionzone.com/topic/57005-transsphe noidal-surgery-in-an-older-patient-with-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing's disease causes numerous metabolic disorders\, cognitive decline\, and sarcopenia\, leading to deterioration of the general health in older individuals. Cushing's disease can be trea ted with transsphenoidal surgery\, but thus far\, surgery has often been a voided in older patients.
Read more at \;https://cushings.invisionzone. com/topic/57005-transsphenoidal-surgery-in-an-older-patient-with-cushings- disease/
CATEGORIES:Cushings UID:20220618T0910490Z-549422-1584@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251225 SUMMARY:Efficacy And Safety of Osilodrostat In Patients With Ectopic Cushin g´s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301225;BYMONTHDAY=25 DESCRIPTION:Overall\, osilodrostat controls hypercortisolism in approximate ly 90% of the patients with ECS and severe hypercortisolism and with norma lization of UFC in 40% of cases after just 4 weeks of treatment. Therefore \, osilodrostat should be considered as first-line treatment in patients w ith ECS\, especially in patients with severe hypercortisolism. https://cus hings.invisionzone.com/topic/57930-efficacy-and-safety-of-osilodrostat-in- patients-with-ectopic-cushing%C2%B4s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Overall\, osilodrostat controls hyper cortisolism in approximately 90% of the patients with ECS and severe hyper cortisolism and with normalization of UFC in 40% of cases after just 4 wee ks of treatment. Therefore\, osilodrostat should be considered as first-li ne treatment in patients with ECS\, especially in patients with severe hyp ercortisolism.
CATEGORIES:Cushings UID:20251225T0942460Z-549422-2030@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220618 SUMMARY:Basics: What is Cushing's disease? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300618;BYMONTHDAY=18 DESCRIPTION:Blood tests and an MRI confirmed that Yawn had a tumour in her pituitary gland — a small\, pea-sized organ at the base of the brain — tha t caused the gland to release excess adrenocorticotropic hormones. As a re sult\, she became inundated with cortisol\, a steroid the body releases in response to danger or stress. This combination of factors led to her diag nosis — Cushing’s disease.https://cushings.invisionzone.com/topic/57014-ba sics-what-is-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Blood tests and an MRI confirmed that Yawn had a tumour in her pituitary gland &mdash\; a small\, pea-sized organ at the base of the brain &mdash\; that caused the gland to release excess adr enocorticotropic hormones. As a result\, she became inundated with cortiso l\, a steroid the body \;releases \;in response to danger or stres s. This combination of factors led to her diagnosis &mdash\; Cushing&rsquo \;s disease.https://cushings.invisionzone.c om/topic/57014-basics-what-is-cushings-disease/
CATEGORIES:Cushings UID:20220618T0921580Z-549422-1585@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210909 SUMMARY:Comment added to Explaining Cushing’s to Others RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220909;BYMONTHDAY=9 DESCRIPTION:Thanks a lot for this post. Read more at https://cushieblog.com /2011/05/10/explaining-cushings-to-others/ X-ALT-DESC;FMTTYPE=text/html:Thanks a lot for this post.
Read mo re at \;https://cushieblog.com/2011/05/10/explaining- cushings-to-others/
CATEGORIES:Cushings UID:20210909T1842180Z-549422-1423@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:RECORDATI: ISTURISA® (Osilodrostat) Phase III LINC-4 Trial Meets It s Primary Endpoint In Cushing’s Disease DTSTART;VALUE=DATE:20200715 DTEND;VALUE=DATE:20200716 RRULE:FREQ=MONTHLY;UNTIL=20210617;BYDAY=3WE DESCRIPTION:Recordati today announces positive results from the large Phase III LINC-4 study of Isturisa® (osilodrostat) for the treatment of patient s with Cushing’s disease for whom pituitary surgery is not an option or ha s not been curative. Data from the LINC-4 study demonstrate that a signifi cantly higher proportion of patients receiving Isturisa® achieve normal mU FC\, the primary treatment goal for Cushing’s disease\, after 12 weeks of treatment versus placebo (77% vs 8%\; P<0.0001). Read more at https://cush ieblog.com/2020/06/17/recordati-isturisa-osilodrostat-phase-iii-linc-4-tri al-meets-its-primary-endpoint-in-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Recordati today announces positive results from the large Phase \;III LINC-4 study of Isturisa®\; (osilodrosta t) for the treatment of patients with Cushing&rsquo\;s disease for whom pi tuitary surgery is not an option or has not been curative. Data from the L INC-4 study demonstrate that a significantly higher proportion of patients receiving Isturisa®\; achieve normal mUFC\, the primary treatment goal for Cushing&rsquo\;s disease\, after 12 weeks of treatment versus placebo (77% vs 8%\; \;P<\;0.0001).
CATEGORIES:News Items UID:20200617T1607090Z-549422-1272@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250416 SUMMARY:Mortality in Cushing’s Syndrome: Declining Over Two Decades but Rem aining Higher Than the General Population RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300416;BYMONTHDAY=16 DESCRIPTION:Patients with endogenous Cushing’s syndrome (CS) have elevated mortality\, particularly during active disease. A recent meta-analysis rep orted reduced mortality rates after 2000 in adrenal CS and Cushing disease (CD)\, though many studies lacked population-matched controls. https://cu shings.invisionzone.com/topic/57813-mortality-in-cushing%E2%80%99s-syndrom e-declining-over-two-decades-but-remaining-higher-than-the-general-populat ion/ X-ALT-DESC;FMTTYPE=text/html:Patients with endogenous Cushing&rsqu o\;s syndrome (CS) have elevated mortality\, particularly during active di sease. A recent meta-analysis reported reduced mortality rates after 2000 in adrenal CS and Cushing disease (CD)\, though many studies lacked popula tion-matched controls.
CATEGORIES:Cushings UID:20250416T1426550Z-549422-1876@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241120 SUMMARY:Bone Material Strength index is low in Patients with Cushing's Synd rome even after long-term remission RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301120;BYMONTHDAY=20 DESCRIPTION:Bone material properties remain altered in patients with endoge nous Cushing's Syndrome\, even after long-term remission. These abnormalit ies\, known to be associated with fractures in other populations\, may pla y a role in the persistent bone fragility of steroid excess. https://cushi ngs.invisionzone.com/topic/57768-bone-material-strength-index-is-low-in-pa tients-with-cushings-syndrome-even-after-long-term-remission/ X-ALT-DESC;FMTTYPE=text/html:Bone material properties remain alter ed in patients with endogenous Cushing's Syndrome\, even after long-term r emission. These abnormalities\, known to be associated with fractures in o ther populations\, may play a role in the persistent bone fragility of ste roid excess.
CATEGORIES:Cushings UID:20241120T1734110Z-549422-1834@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240402 SUMMARY:PET/MRI may improve diagnosis of Cushing disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280402;BYMONTHDAY=2 DESCRIPTION:In patients diagnosed with the disease yet who had inconclusive MRI results\, PET/MRI was positive in 100% of cases\, noted lead author I lanah Pruis\, a doctoral student at Erasmus University Medical Center in R otterdam\, Netherlands. “This multimodal imaging technique provides a welc ome improvement for diagnosis\, planning of surgery\, and clinical outcome in patients with Cushing disease\,” the authors wrote. Read more at https ://cushings.invisionzone.com/topic/57709-petmri-may-improve-diagnosis-of-c ushing-disease/ X-ALT-DESC;FMTTYPE=text/html:In patients diagnosed with the disease yet who had inconclusive MRI results\, PET/MRI was positive in 100% of cases\, noted lead author Ilanah Pruis\, a doctoral student at Erasmus University Medical Center in Rotterdam\, Netherlands.
&ldquo\;This multimoda l imaging technique provides a welcome improvement for diagnosis\, plannin g of surgery\, and clinical outcome in patients with Cushing disease\,&rdq uo\; the authors wrote.
Read more at \;https://cushings.invisionzone.com/t opic/57709-petmri-may-improve-diagnosis-of-cushing-disease/
CATEGORIES:Cushings UID:20240402T0631420Z-549422-1762@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190413 SUMMARY:Day 15: Cushing’s Awareness Challenge 2019 DESCRIPTION:So\, where did all this blue and yellow come from\, anyway? Th e answer is so easy and without any thought that it will amaze you. Read m ore at https://cushieblogger.com/2019/04/15/day-15-cushings-awareness-chal lenge-2019/ X-ALT-DESC;FMTTYPE=text/html:So\, where did all this blue and yellow com e from\, anyway? \;The answer is so easy and without any thought that it will amaze you.
Read more at \;https://cushieblogger.com/2019/04/15/day-15-cushings-awareness-challen ge-2019/
CATEGORIES:Awareness Challenge UID:20190415T1401330Z-549422-1133@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210303 SUMMARY:New Drug Application for RECORLEV® (levoketoconazole) for the Treat ment of Endogenous Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220303;BYMONTHDAY=3 DESCRIPTION:Nearly 40 Percent of Prescription-Treated Endogenous Cushing’s Syndrome Patients in the U.S. Are Not Well-Controlled\, Underscoring Need for New\, Safe and Effective Pharmaceutical Options to Help Regulate Corti sol Levels. Read more at https://cushings.invisionzone.com/topic/55551-new -drug-application-for-recorlev®-levoketoconazole-for-the-treatment-of-endo genous-cushing’s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Nearly 40 Percent of Prescription-Treated E ndogenous Cushing&rsquo\;s Syndrome Patients in the U.S. Are Not Well-Cont rolled\, Underscoring Need for New\, Safe and Effective Pharmaceutical Opt ions to Help Regulate Cortisol Levels.
CATEGORIES:Cushings UID:20210303T2215260Z-549422-1326@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251130 SUMMARY:Cushing’s\, Cancer and Other Serious Diseases RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301130;BYMONTHDAY=30 DESCRIPTION:I was drawn to this blog post because the author mentioned that she had both Cushing’s and cancer\, a kind of unusual combination. 1974 t o Today: Seal it up By Experience I still haven’t heard what the consensus is on my aftercare: Cushing’s and Cancer. I don’t know what I will be exp ecting to feel like after surgery. My endocrinologist said that I should g et sick after the surgery and need some kind of … 1974 to Today – http://1 974totoday.blogspot.com/ X-ALT-DESC;FMTTYPE=text/html:I was drawn to this blog post because the a uthor mentioned that she had both Cushing&rsquo\;s and cancer\, a kind of unusual combination.
1974 to Today: Seal it
up
By Experience
I still haven&rsquo\;t heard what the cons
ensus is on my aftercare: \;Cushing&rsquo\;s \;an
d Cancer. I don&rsquo\;t know what I will be expecting to feel like after
surgery. My endocrinologist said that I should get sick after the surgery
and need some kind of \;&hellip\;
1974 to Today
&ndash\; http://1974totoday.blogspot.com/
Adults deficient in pituitary growth hormone have a unique phenotype. They develop central obesity and may have high blood pressure and lethargy. Growth hormone in adulthood is needed t o maintain body homeostasis\, i.e.\, the appropriate ratio between lean bo dy mass and fat mass. When these GH-deficient adults [receive] very low do ses of growth hormone\, body changes are recalibrated and homeostatic chan ges that occur with hormone deficiency may be reversed.
Stuart is from Brisbane\, Australia \; His daughter's \;chronic weight gain plus all the other acute symptom s ruin her life\, and chip away at her once-immense self-esteem.
R ead more at \;https://cushingsbios.com/2018/04/04/s tuart-m-parent-of-a-teenager/
CATEGORIES:Cushie Bios UID:20180404T1511490Z-549422-880@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200506 SUMMARY:Predicting Prolonged Length of Stay After Endoscopic Transsphenoida l Surgery for Pituitary Adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210506;BYMONTHDAY=6 DESCRIPTION:Endoscopic transsphenoidal surgery (ETS) for the resection of p ituitary adenoma has become more common throughout the past decade. Althou gh most patients have a short postoperative hospitalization\, others requi re a more prolonged stay. We aimed to identify predictors for prolonged ho spitalization in the setting of ETS for pituitary adenomas. Read more at h ttps://cushieblog.com/2020/05/06/predicting-prolonged-length-of-stay-after -endoscopic-transsphenoidal-surgery-for-pituitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:Endoscopic transsphenoidal surgery (ETS) fo r the resection of pituitary adenoma has become more common throughout the past decade. Although most patients have a short postoperative hospitaliz ation\, others require a more prolonged stay. We aimed to identify predict ors for prolonged hospitalization in the setting of ETS for pituitary aden omas.
Read more at \;https://cushieblog.com/2020/0 5/06/predicting-prolonged-length-of-stay-after-endoscopic-transsphenoidal- surgery-for-pituitary-adenoma/
CATEGORIES:News Items UID:20200506T0957200Z-549422-1257@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200829 SUMMARY:Osilodrostat Associated With Sustained Reduction of UFC in Cushing’ s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210829;BYMONTHDAY=29 DESCRIPTION:Osilodrostat treatment was found to be associated with a rapid and sustained reduction in mean concentration of urinary free cortisol (UF C) and improved clinical symptoms in patients with Cushing’s disease\, acc ording to the results of a prospective\, multicenter\, open-label\, phase 3 study published in the Lancet Diabetes Endocrinology. Read more at http: //cushings.invisionzone.com/topic/55316-osilodrostat-associated-with-susta ined-reduction-of-ufc-in-cushing%E2%80%99s-disease/?tab=comments#comment-4 75492 X-ALT-DESC;FMTTYPE=text/html:Osilodrostat treatment was found to be asso ciated with a rapid and sustained reduction in mean concentration of urina ry free cortisol (UFC) and improved clinical symptoms in patients with&nbs p\;Cushing&rsquo\;s disease\, according to the results of a prospective\, multicenter\, open-label\, phase 3 study published in the \;Lancet Diabetes Endocrinology.
CATEGORIES:News Items UID:20200829T0913320Z-549422-1284@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing’s syndrome driver mutation disrupts protein kinase A allost eric network\, altering both regulation and substrate specificity DTSTART;VALUE=DATE:20191007 DTEND;VALUE=DATE:20191008 RRULE:FREQ=MONTHLY;UNTIL=20200902;BYDAY=1MO DESCRIPTION:Only recently have somatic mutations been identified in the PRK ACA gene coding for the catalytic α subunit of PKA (PKA-C) and discovered in cortisol-secreting adrenocortical adenomas responsible for Cushing’s sy ndrome Read more at https://cushieblog.com/2019/09/02/cushings-syndrome-dr iver-mutation-disrupts-protein-kinase-a-allosteric-network-altering-both-r egulation-and-substrate-specificity/ X-ALT-DESC;FMTTYPE=text/html:Only recently have somatic mutations been i dentified in the \;PRKACA \;gene coding for the catalytic &alpha\; subunit of PKA (PKA-C) and discovered in cortisol-secreting adre nocortical adenomas responsible for Cushing&rsquo\;s syndrome
CATEGORIES:News Items UID:20190902T1503250Z-549422-1209@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Can You Help? Looking for Naturopath DTSTART;VALUE=DATE:20200603 DTEND;VALUE=DATE:20200604 RRULE:FREQ=MONTHLY;UNTIL=20210506;BYDAY=1WE DESCRIPTION:A guest on the Cushing's Help message boards asked: Hi\, anyone here able to recommend a naturopath who has been successful in getting Cu shings under control? Read more at https://cushieblogger.com/2020/05/06/ can-you-help-looking-for-naturopath/ X-ALT-DESC;FMTTYPE=text/html:A guest on \;the Cushing's Help message boards \;asked:
Hi\, anyone here able to recommend a naturopath who has been s uccessful in getting Cushings under control?
\;
Read more at \;https://cushieblogger.com/2020/05/ 06/can-you-help-looking-for-naturopath/
\;
CATEGORIES:Cushings UID:20200506T1006550Z-549422-1258@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 5: Cushing’s Awareness Challenge 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250405;BYMONTH=4;BYMONTHDAY=5 DTSTART;VALUE=DATE:20190405 DTEND;VALUE=DATE:20190406 DESCRIPTION:In 2006\, I flew to Chicago\, IL for a Cushing's weekend in Roc kford. Someone else drove us to Lake Geneva\, Wisconsin for the day. Too much travel\, too Cushie\, whatever\, I was too tired to stay awake. I a ctually had put my head down on the dining room table and fallen asleep bu t our hostess suggested the sofa instead. Amazing that I traveled that wh ole distance – and missed the main event? Read more at https://cushieblogg er.com/2019/04/05/day-5-cushings-awareness-challenge-2019/ X-ALT-DESC;FMTTYPE=text/html:In 2006\, I flew to Chicago\, IL for a Cush ing's weekend in Rockford. \;Someone else drove us to Lake Geneva\, W isconsin for the day. \;Too much travel\, too Cushie\, whatever\, I w as too tired to stay awake. \;I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa ins tead. \;Amazing that I traveled that whole distance &ndash\; and miss ed the main event?
Read more at \;https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge- 2019/
CATEGORIES:Cushings UID:20190501T1346480Z-549422-1121@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210303 SUMMARY:eSummet: Quality of Life of Pituitary Patients RRULE:FREQ=DAILY;COUNT=17 DESCRIPTION:We seek to empower and improve the Quality of Life of Pituitary Patients\, by sharing knowledge and inform you about treatment choices. Learn more at https://cushings.invisionzone.com/topic/55552-esummet-quali ty-of-life-of-pituitary-patients-march-19-20-2021/ X-ALT-DESC;FMTTYPE=text/html:We seek to empower and improve the Quality of Life of Pituitary Patients\, by sharing knowledge and inform you about treatment choices.
\;
Learn more at \;https://cushings.invisi onzone.com/topic/55552-esummet-quality-of-life-of-pituitary-patients-march -19-20-2021/
CATEGORIES:Events and Meetings UID:20210313T2124070Z-549422-1327@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220113 SUMMARY:Pediatric Adrenal Insufficiency: Challenges and Solutions RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230113;BYMONTHDAY=13 DESCRIPTION:However\, children that experience low cortisol concentrations and symptoms of cortisol insufficiency can take advantage using a modified release hydrocortisone formulation. The acute adrenal crisis is a life-th reatening condition in all ages\, treatment is effective if administered p romptly\, and it must not be delayed for any reason. Read more at https:// cushings.invisionzone.com/topic/56473-pediatric-adrenal-insufficiency-chal lenges-and-solutions/ X-ALT-DESC;FMTTYPE=text/html:However\, children that experience low cort isol concentrations and symptoms of cortisol insufficiency can take advant age using a modified release hydrocortisone formulation. The acute adrenal crisis is a life-threatening condition in all ages\, treatment is effecti ve if administered promptly\, and it must not be delayed for any reason.
Read more at \;https://cushings.invisionzone.com/topic/56473-pediatric-adrenal-in sufficiency-challenges-and-solutions/
CATEGORIES:News Items UID:20220113T1404290Z-549422-1497@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221210 SUMMARY:(Korlym) Corcept settles patent dispute with Hikma over Cushing’s s yndrome drug RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20261210;BYMONTHDAY=10 DESCRIPTION:Per the terms of the settlement\, Corcept (CORT) has allowed Hi kma (OTCPK:HKMPF) the rights to market a generic version of Korlym from Oc t. 01\, 2034\, or earlier subject to certain conditions. Read more at http s://cushings.invisionzone.com/topic/57582-korlym-corcept-settles-patent-di spute-with-hikma-over-cushing%E2%80%99s-syndrome-drug/ X-ALT-DESC;FMTTYPE=text/html:Per the terms of the settlement\, Cor cept (CORT) has allowed Hikma (OTCPK:HKMPF) the rights to market a generic version of Korlym from Oct. 01\, 2034\, or earlier subject to c ertain conditions.
Read more at \;https://cushings.invisionzone.com/topic/57582-korlym-corcept-se ttles-patent-dispute-with-hikma-over-cushing%E2%80%99s-syndrome-drug/< /span>
CATEGORIES:In Memory UID:20221210T1415110Z-549422-1630@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181212 SUMMARY:New Helpful Doctor added to Pennsylvania RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191212;BYMONTHDAY=12 DESCRIPTION:New helpful endocrinologist specializing in Cushing's added to Pennsylvania. https://cushieblogger.com/2018/12/12/helpful-doctors-penns ylvania/ X-ALT-DESC;FMTTYPE=text/html:New helpful \;endocrinologist specializ ing in Cushing's added to Pennsylvania. \;
\;https://cushieblogger.com/2018/12/12/helpful-doctors-pennsylvania/
CATEGORIES:Helpful Doctors UID:20181212T1457000Z-549422-1045@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251203 SUMMARY:Diabetic Ketoacidosis as the First Manifestation of Ectopic Cushing ’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301203;BYMONTHDAY=3 DESCRIPTION:Diabetic ketoacidosis is an exceptionally rare initial manifest ation of ectopic adrenocorticotropic hormone (ACTH) syndrome. A 42-year-ol d woman with multiple cardiovascular risk factors was admitted to the emer gency room with diabetic ketoacidosis. https://cushings.invisionzone.com/ topic/57925-diabetic-ketoacidosis-as-the-first-manifestation-of-ectopic-cu shing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Diabetic ketoacidosis is an exception ally rare initial manifestation of ectopic adrenocorticotropic hormone (AC TH) syndrome. A 42-year-old woman with multiple cardiovascular risk factor s was admitted to the emergency room with diabetic ketoacidosis. \;
CATEGORIES:Cushings UID:20251203T1441570Z-549422-2015@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230922 SUMMARY:Etomidate in the Treatment Of Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300922;BYMONTHDAY=22 DESCRIPTION:Cushing syndrome is a metabolic disease caused by chronic expos ure to high levels of glucocorticoids. It can present as an endocrine emer gency due to a rapid increase in circulating cortisol leading to increased risk of cardiovascular disease and infection. Etomidate rapidly reduces p lasma cortisol levels by inhibiting the action of 11β-hidroxilase. We repo rt the case of a patient with severe hypercortisolaemia accompanied by met abolic and psychiatric disorders in whom administration of etomidate reduc ed preoperative levels of cortisol. Read more at https://cushings.invision zone.com/topic/57636-etomidate-in-the-treatment-of-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing syndrome is a metabolic disease cau sed by chronic exposure to high levels of glucocorticoids. It can present as an endocrine emergency due to a rapid increase in circulating cortisol leading to increased risk of cardiovascular disease and infection. Etomida te rapidly reduces plasma cortisol levels by inhibiting the action of 11&b eta\;-hidroxilase. We report the case of a patient with severe hypercortis olaemia accompanied by metabolic and psychiatric disorders in whom adminis tration of etomidate reduced preoperative levels of cortisol.
Learning \;objectives:
- \; \; \; \; \; \; \; \; \; the basic charact eristics of the different types of pituitary adenomas
- \;&nbs p\; \; \; \; \; \; \; \; the potential predict ors of recurrence and aggressiveness in pituitary adenomas
- \ ; \; \; \; \; \; \; \; \; the surgical and radiotherapy options for recurrent pituitary adenomas
- \;&nb sp\; \; \; \; \; \; \; \; the potential medica l interventions\, including chemotherapy\, for recurrent pituitary adenoma s
\;
Read more at \;https://cushieblogger.com/2020/09/28/webinar-recurrent- pituitary-adenomas-what-are-the-options/
CATEGORIES:Cushings UID:20200928T2246100Z-549422-1296@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230923 SUMMARY:Dexamethasone Suppression for 18F-FDG PET/CT to Localize ACTH-Secre ting Pituitary Tumors RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300923;BYMONTHDAY=23 DESCRIPTION:Currently\, magnetic resonance imaging (MRI) is the gold standa rd for detecting pituitary adenomas. Nevertheless\, modern MRI modalities\ , including dynamic or volumetric sequences\, can reliably detect corticot rophic adenomas in 50–90% cases of CD [9\,10\,11\,12]. This indicates that complementary imaging strategies are required to improve the localization of primary lesions in CD. Read more at https://cushings.invisionzone.com/ topic/57637-dexamethasone-suppression-for%C2%A018f-fdg-petct-to-localize-a cth-secreting-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:Currently\, magnetic resonance imagin g (MRI) is the gold standard for detecting pituitary adenomas. Nevertheles s\, modern MRI modalities\, including dynamic or volumetric sequences\, ca n reliably detect corticotrophic adenomas in 50&ndash\;90% cases of CD [9\,10\,11\,12]. This indicates that complementary im aging strategies are required to improve the localization of primary lesio ns in CD.
CATEGORIES:Cushings UID:20230923T1503540Z-549422-1676@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Therapeutic Options for the Prevention of Thromboses in Cushing’s S yndrome DTSTART;VALUE=DATE:20250711 DTEND;VALUE=DATE:20250712 RRULE:FREQ=MONTHLY;UNTIL=20300613;BYDAY=2FR DESCRIPTION:Although low-molecular weight heparin (LMWH) is currently recom mended as the gold standard for anticoagulation in patients with hypercort isolism\, our evidence suggests that low-dose antiplatelets such as aspiri n 81 mg could outperform it. https://cushings.invisionzone.com/topic/57842 -therapeutic-options-for-the-prevention-of-thromboses-in-cushing%E2%80%99s -syndrome/ X-ALT-DESC;FMTTYPE=text/html:Although low-molecular weight heparin (LMWH ) is currently recommended as the gold standard for anticoagulation in pat ients with hypercortisolism\, our evidence suggests that low-dose antiplat elets such as aspirin 81 mg could outperform it.
CATEGORIES:Cushings UID:20250613T0518290Z-549422-1905@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250307 SUMMARY:From Weight Gain To Diabetes—Endocrinologist Shares Signs That Indi cate You Have Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300307;BYMONTHDAY=7 DESCRIPTION:Cushing’s syndrome happens when the body has too much cortisol\ , the stress hormone. It can cause weight gain\, high blood pressure\, and diabetes. So how to keep your health in check and what are the treatment options available? In an exclusive interview with Times Now\, an Endocrino logist explains its symptoms\, causes\, and treatments. https://cushings. invisionzone.com/topic/57791-from-weight-gain-to-diabetes%E2%80%94endocrin ologist-shares-signs-that-indicate-you-have-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome happens whe n the body has too much cortisol\, the stress hormone. It can cause weight gain\, high blood pressure\, and diabetes. So how to keep your health in check and what are the treatment options available? In an exclusive interv iew with Times Now\, an Endocrinologist explains its symptoms\, causes\, a nd treatments. \;
https://cushings.invisionzo ne.com/topic/57791-from-weight-gain-to-diabetes%E2%80%94endocrinologist-sh ares-signs-that-indicate-you-have-cushing%E2%80%99s-syndrome/ CATEGORIES:Cushings UID:20250307T1110290Z-549422-1855@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Interview With an Endocrinologist DTSTART;VALUE=DATE:20250411 DTEND;VALUE=DATE:20250412 RRULE:FREQ=MONTHLY;UNTIL=20300307;BYDAY=2FR DESCRIPTION:“Cushing’s Syndrome can be life-threatening if left untreated\, but early diagnosis and proper management can significantly improve quali ty of life. So if you experience unexplained weight gain\, blood pressure spikes\, or other symptoms\, consult an endocrinologist to manage hormonal imbalances\,” he said. https://cushings-help.com/2025/03/07/interview-wit h-an-endo/ X-ALT-DESC;FMTTYPE=text/html:
&ldquo\;Cushing&rsquo\;s Syndrome can be life-threatening if left untreated\, but early diagnosis and proper ma nagement can significantly improve quality of life. So if you experience u nexplained weight gain\, blood pressure spikes\, or other symptoms\, consu lt an endocrinologist to manage hormonal imbalances\,&rdquo\; he said.
https://cushings-help.com/20 25/03/07/interview-with-an-endo/
CATEGORIES:Cushings UID:20250307T1118550Z-549422-1856@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240702 SUMMARY:Anonymous Woman\, Recurrent Cushing's RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300702;BYMONTHDAY=2 DESCRIPTION:A 45-year-old female developed clinical and biochemical recurre nt Cushings’ Disease 2.5 years after transsphenoidal hypophysectomy for 2c m pituitary macroadenoma. Read more at https://cushingsbios.com/2024/07/02 /anonymous-woman-recurrent-cushings/ X-ALT-DESC;FMTTYPE=text/html:A 45-year-old female developed clinical and biochemical recurrent Cushings&rsquo\; Disease 2.5 years after transsphen oidal hypophysectomy for 2cm pituitary macroadenoma.
Read more at& nbsp\;https://cushingsbios.com/2024 /07/02/anonymous-woman-recurrent-cushings/
CATEGORIES:Cushie Bios UID:20240702T1006440Z-549422-1799@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240525 SUMMARY:A More Accurate Diagnosis of Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300525;BYMONTHDAY=25 DESCRIPTION:Cushing's syndrome is associated with excessive cortisol produc tion and\, if left untreated\, can result in severe complications\, such a s heart attacks\, strokes\, and type 2 diabetes. To diagnose this conditio n\, a dexamethasone suppression test is commonly performed. Read more at h ttps://cushings.invisionzone.com/topic/57732-a-more-accurate-diagnosis-of- cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing's syndrome is associated with exces sive cortisol production and\, if left untreated\, can result in severe co mplications\, such as heart attacks\, strokes\, and type 2 diabetes. To di agnose this condition\, a dexamethasone suppression test is commonly perfo rmed.
Read more at \;https://cushings.invisionzone.com/topic/57732 -a-more-accurate-diagnosis-of-cushing%E2%80%99s-syndrome/
CATEGORIES:Cushings UID:20240525T1439570Z-549422-1789@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230810 SUMMARY:Complications and Mortality of Cushing’s Disease: Report on Data Co llected Over a 20-Year Period at a Referral Centre RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300810;BYMONTHDAY=10 DESCRIPTION:Patients with active Cushing's Disease presented a poor surviva l outcome. Remission restored the patients’ life expectancy regardless of the timing or the types of treatments used to achieve it. Persistent Cushi ng's Disease-related comorbidities remained major risk factors. Read more at https://cushings.invisionzone.com/topic/57622-complications-and-mortali ty-of-cushing%E2%80%99s-disease-report-on-data-collected-over-a-20-year-pe riod-at-a-referral-centre/ X-ALT-DESC;FMTTYPE=text/html:Patients with active Cushing's Disease pres ented a poor survival outcome. Remission restored the patients&rsquo\; lif e expectancy regardless of the timing or the types of treatments used to a chieve it. Persistent Cushing's Disease-related comorbidities remained maj or risk factors.
CATEGORIES:Cushings UID:20230814T1253220Z-549422-1662@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Guest Question: PTSD and Cushings DTSTART;VALUE=DATE:20180609 DTEND;VALUE=DATE:20180610 RRULE:FREQ=MONTHLY;UNTIL=20190512;BYDAY=2SA DESCRIPTION:Every ache or pain or out of the ordinary experience triggers a nxiety. I am 7 years post op. I don’t have panic attacks per se\, but I do get upset and frightened. These feelings also occur when the doctor sends me for routine testing just to make sure there is no relapse... In the co mments area of https://cushieblogger.com/2018/05/11/guest-question-ptsd-an d-cushings/ X-ALT-DESC;FMTTYPE=text/html:Every ache or pain or out of the ordinary e xperience triggers anxiety. I am 7 years post op. I don&rsquo\;t have pani c attacks per se\, but I do get upset and frightened. These feelings also occur when the doctor sends me for routine testing just to make sure there is no relapse...
In the comments area of \;https://cushieblogger.com/2018/05/11/guest-question-ptsd-and-cushings /
CATEGORIES:Cushie Bios UID:20180512T2110490Z-549422-934@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20260115 SUMMARY:ISTURISA® (osilodrostat) Now Available in Canada for the Treatment of Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300115;BYMONTHDAY=15 DESCRIPTION:ISTURISA® (osilodrostat) is indicated for the treatment of adul t patients with Cushing's disease who have persistent or recurrent hyperco rtisolism after primary pituitary surgery and/or irradiation\, or for whom pituitary surgery is not an option. https://cushings.invisionzone.com/top ic/57941-isturisa%C2%AE-osilodrostat-now-available-in-canada-for-the-treat ment-of-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:ISTURISA®\; \;(osilodro stat) is indicated for the treatment of adult patients with Cushing's dise ase who have persistent or recurrent hypercortisolism after primary pituit ary surgery and/or irradiation\, or for whom pituitary surgery is not an o ption.
CATEGORIES:Cushings UID:20260115T0738390Z-549422-2065@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Rashelle\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301109;BYMONTH=11;BYMONTHDAY=9 DTSTART;VALUE=DATE:20251109 DTEND;VALUE=DATE:20251110 DESCRIPTION:My name is Rashelle and here is my success story. I grew up as a tall\, skinny\, athletic and active girl. I was one of those girls you e nvied who could eat what I wanted\, when I wanted without having to worry about gaining weight. In fact most my high school life I maintained a stea dy weight of 118 pounds. That all changed in the blink of eye during my se nior year of high school. At 18 yrs old my once long and skinny face\, tur ned round and moon-like. My stomach\, once flat as a board\, now looked li ke the belly of a pregnant woman. I once stood tall but found it difficult to keep my shoulders back with the “buffalo hump” now protruding behind m y neck. My nice long legs now were now covered in stretch marks and I star ted getting unwanted hair in places where hair should not grow on a girl. I stopped getting my period\, felt tired all the time and started to get r eally bad migraines. I suffered insomnia and depression. https://cushingsb ios.com/2025/11/08/rashelle-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:My name is Rashelle and here is my success story.
I grew up as a tall\, skinny\, athletic and active girl. I was one of those girls you envied who could eat what I wanted\, when I wan ted without having to worry about gaining weight. In fact most my high sch ool life I maintained a steady weight of 118 pounds.
That all chan ged in the blink of eye during my senior year of high school. At 18 yrs ol d my once long and skinny face\, turned round and moon-like. My stomach\, once flat as a board\, now looked like the belly of a pregnant woman. I on ce stood tall but found it difficult to keep my shoulders back with the &l dquo\;buffalo hump&rdquo\; now protruding behind my neck. My nice long leg s now were now covered in stretch marks and I started getting unwanted hai r in places where hair should not grow on a girl. I stopped getting my per iod\, felt tired all the time and started to get really bad migraines. I s uffered insomnia and depression.
https://cushingsbios.com/2025/11/08/rashelle-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251109T0857070Z-549422-1973@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181107 SUMMARY:FDA Approves High-resolution MRI\, Better at Spotting Pituitary Tum ors in Cushing’s Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191107;BYMONTHDAY=7 DESCRIPTION:The U.S. Food and Drug Administration has approved the clinical use of a magnetic resonance imaging (MRI) scanner — the ultra-high-field 7T Terra MRI — with unprecedented resolution that allows for more reliable images of the brain. The approach recently allowed the precise localizati on of a small tumor in the pituitary gland\, which standard MRI had failed to spot\, in a patient with Cushing’s disease. Read more at https://cushi eblog.com/2018/11/07/fda-approves-high-resolution-mri-better-at-spotting-p ituitary-tumors-in-cushings-patients/ X-ALT-DESC;FMTTYPE=text/html:The U.S. Food and Drug Administration has a pproved the clinical use of a magnetic resonance imaging (MRI) scanner &md ash\; the ultra-high-field 7T Terra MRI &mdash\; with unprecedented resolu tion that allows for more reliable images of the brain.
The approa ch recently allowed the precise localization of a small tumor in the pitui tary gland\, which standard MRI had failed to spot\, in a patient with&nbs p\;Cushing&rsquo\;s disease.
Read more at \;https://cushieb log.com/2018/11/07/fda-approves-high-resolution-mri-better-at-spotting-pit uitary-tumors-in-cushings-patients/
CATEGORIES:News Items UID:20181107T1458530Z-549422-1018@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Mary Lou (MarLo)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300114;BYMONTH=1;BYMONTHDAY=14 DTSTART;VALUE=DATE:20260114 DTEND;VALUE=DATE:20260115 DESCRIPTION:I am the mother of a 19 girl who is currently being evaluated f or Cushing’s Syndrome/Disease. My daughter is in her first year of colleg e and over the past eighteen months\, she has gained close to 50 pounds. I have watched her struggle and we have even attended two military-style b ootcamps for weight loss. Despite eating healthy\, during that five weeks\ , she gained 2 pounds. Her facial features are so distorted from her moon face appearance that she does not even look like herself. She has a Buffa lo Hump and purple stretch marks on her rotund abdomen. She has almost no energy and when not in class\, she is sleeping in her dorm. She has a br own stripe of skin in the crease of her neck which prompted her roommate to ask her if she had worn a necklace with copper in it. Her vision is po or and her periods are now very irregular. She has excessive thirst and u rination. https://cushingsbios.com/2026/01/14/mary-lou-marlo-undiagnosed-b io/ X-ALT-DESC;FMTTYPE=text/html:I am the mother of a 19 girl who is current ly being evaluated for Cushing&rsquo\;s Syndrome/Disease. \;My daught er is in her first year of college and over the past eighteen months\, she has gained close to 50 pounds. \;I have watched her struggle and we have even attended two military-style bootcamps for weight loss.
D espite eating healthy\, during that five weeks\, she gained 2 pounds. &nbs p\;Her facial features are so distorted from her moonface appearance that she does not even look like herself. \;She has a Buffalo Hump and pur ple stretch marks on her rotund abdomen. \;She has almost no energy a nd when not in class\, she is sleeping in her dorm. \;She has a brown stripe of skin in \;the crease of her neck which prompted her roomma te to ask her if she had worn a necklace with copper in it. \;Her vis ion is poor and her periods are now very irregular. \;She has excessi ve thirst and urination.
https: //cushingsbios.com/2026/01/14/mary-lou-marlo-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260115T0753450Z-549422-2066@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180928 SUMMARY:Fluconazole Found to Be Safe Alternative for Patient with Recurrent Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190928;BYMONTHDAY=28 DESCRIPTION:Treatment with fluconazole after cabergoline eased symptoms and normalized cortisol levels in a patient with recurrent Cushing’s disease who failed to respond to ketoconazole\, a case study reports. Read more at https://wp.me/p3t4Te-Sa X-ALT-DESC;FMTTYPE=text/html:Treatment with fluconazole after cabergolin e eased symptoms and normalized cortisol levels in a patient with recurren t \;Cushing&rsquo\;s disease \;who failed to respond to ketoconazo le\, a case study reports.
Read more at \;https://wp.me/p3t4Te-Sa
CATEGORIES:Cushings UID:20180928T1527250Z-549422-974@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:From a Past Blogging Challenge ~ Sleep\, the Goldilocks and the Thr ee bears of Cushing’s Disease RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300403;BYMONTH=4;BYMONTHDAY=3 DTSTART;VALUE=DATE:20200403 DTEND;VALUE=DATE:20200404 DESCRIPTION:Insomnia was one of the first things that troubled me enough to try to get help for with Cushing’s Disease. By my last year in music scho ol\, I had flipped my schedule around. I felt best and got more done if I practiced through the night and slept through the day... Read more at http s://cushieblogger.com/2022/04/03/from-a-past-blogging-challenge-sleep-the- goldilocks-and-the-three-bears-of-cushings-disease-4/ X-ALT-DESC;FMTTYPE=text/html:Insomnia was one of the first things that t roubled me enough to try to get help for with Cushing&rsquo\;s Disease. By my last year in music school\, I had flipped my schedule around. I felt b est and got more done if I practiced through the night and slept through t he day...
Read more at \;https://cush ieblogger.com/2022/04/03/from-a-past-blogging-challenge-sleep-the-goldiloc ks-and-the-three-bears-of-cushings-disease-4/
CATEGORIES:Awareness Challenge UID:20240403T0826110Z-549422-1246@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240726 SUMMARY:Choosing the Optimal Approach for Giant Pituitary Adenomas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300726;BYMONTHDAY=26 DESCRIPTION:As noted in a review published in the January 2024 issue of Ope rative Neurosurgery\, endoscopic transnasal transsphenoidal surgery is inc reasingly applied to giant pituitary adenomas. 'We prefer this approach ev en when giant pituitary adenomas extend into the third ventricle because i t's associated with lower postoperative morbidity and a higher likelihood of preserving normal pituitary and visual function\,' Dr. Byrne says. Read more at https://cushings-help.com/2024/07/26/choosing-the-optimal-approac h-for-giant-pituitary-adenomas/ X-ALT-DESC;FMTTYPE=text/html:As noted in a review published in the January 2024 issue of Operative Neurosurgery\, endoscopic transnasal tran ssphenoidal surgery is increasingly applied to giant pituitary adenomas. ' We prefer this approach even when giant pituitary adenomas extend into the third ventricle because it's associated with lower postoperative morbidit y and a higher likelihood of preserving normal pituitary and visual functi on\,' Dr. Byrne says.
Read more at \;https://cushings-help. com/2024/07/26/choosing-the-optimal-approach-for-giant-pituitary-adenomas/
CATEGORIES:Other Medical UID:20240726T0739130Z-549422-1809@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190707 SUMMARY:Video: Taylor Davis Spreads Awareness about Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200707;BYMONTHDAY=7 DESCRIPTION:21-year-old Taylor Davis\, spent nearly three years battling a mysterious illness called Cushing’s Disease. “I could barely walk to class anymore. I was in pain. I gained like 70 pounds\, despite extreme dieting and exercising\,” said Davis. Read more at https://cushieblogger.com/2019 /07/07/video-taylor-davis-spreads-awareness-about-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:21-year-old Taylor Davis\, spent nearly thr ee years battling a mysterious illness called Cushing&rsquo\;s Disease.
&ldquo\;I could barely walk to class anymore. I was in pain. I gaine d like 70 pounds\, despite extreme dieting and exercising\,&rdquo\; said D avis.
Read more at \;https://cushieblogger.com/2019/07/07/video-taylor-davis-spreads-a wareness-about-cushings-disease/
CATEGORIES:Cushie Bios UID:20190707T2135140Z-549422-1187@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Interview Archive with Judy\, mom to 2 Cushing’s Patients\, and her daughter Jess RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20250403;BYMONTH=4;BYMONTHDAY=3 DTSTART;VALUE=DATE:20200403 DTEND;VALUE=DATE:20200404 DESCRIPTION:Interview with Judy\, the mother of two Cushing’s patients\, an d her daughter\, Jess\, a high school student with Cushing’s. Robin (stati cnrg) hosted. Read more at https://cushieblogger.com/2020/04/03/archived-i nterview-with-judy-mom-to-two-cushings-patients-and-her-daughter-jess-2/ X-ALT-DESC;FMTTYPE=text/html:Interview with Judy\, the mother of two Cus hing&rsquo\;s patients\, and her daughter\, Jess\, a high school student w ith Cushing&rsquo\;s. Robin (staticnrg) hosted.
Read more at \ ;h ttps://cushieblogger.com/2020/04/03/archived-interview-with-judy-mom-to-tw o-cushings-patients-and-her-daughter-jess-2/
CATEGORIES:Events and Meetings UID:20200408T1344070Z-549422-1247@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Stanford Pituitary Patient Education Day DTSTART;VALUE=DATE:20190406 DTEND;VALUE=DATE:20190407 RRULE:FREQ=WEEKLY;UNTIL=20190518;INTERVAL=2;BYDAY=SA DESCRIPTION:The Stanford Pituitary Center invites patients with pituitary d isease\, their family and friends to Stanford's Pituitary Patient Educatio n Day! May 18\, 2019 at the Sheraton Palo Alto Hotel 625 El Camino Real P alo Alto\, CA 94301 USA More information at https://cushieblogger.com/201 9/03/21/stanford-pituitary-patient-education-day/ X-ALT-DESC;FMTTYPE=text/html:May 18\, 2019 at the Sheraton Palo Alto Hotel
625 El Camino Real
Palo Alto\, CA 94301 \;
USA
More information at \;https://cushieblogger.com/2019/03/21/stanford- pituitary-patient-education-day/
CATEGORIES:Events and Meetings UID:20190322T0124080Z-549422-1106@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200118 SUMMARY:Clinical Trial: Multicenter Study of Seliciclib (R-roscovitine) for Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210118;BYMONTHDAY=18 DESCRIPTION:This phase 2 multicenter\, open-label clinical trial will evalu ate safety and efficacy of 4 weeks of oral seliciclib in patients with new ly diagnosed\, persistent\, or recurrent Cushing disease. Read more at htt ps://cushieblog.com/2020/01/18/clinical-trial-multicenter-study-of-selicic lib-r-roscovitine-for-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:This phase 2 multicenter\, open-label clini cal trial will evaluate safety and efficacy of 4 weeks of oral seliciclib in patients with newly diagnosed\, persistent\, or recurrent Cushing disea se.
Read more at \;https://cushieblog.com/2020/01/18/clinical-trial- multicenter-study-of-seliciclib-r-roscovitine-for-cushing-disease/
CATEGORIES:Cushings UID:20200118T1112560Z-549422-1227@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231013 SUMMARY:Crooke Cell Adenoma Confers Poorer Endocrinological Outcomes Compar ed with Corticotroph Adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301013;BYMONTHDAY=13 DESCRIPTION:Crooke cell adenomas (CCA) are a rare\, aggressive subset of ad renocorticotrophin secreting pituitary corticotroph adenomas (sCTA) found in 5–10% of patients with Cushing’s disease. Multiple studies support wors e outcomes in CCA but are limited by small sample size and single-institut ion databases. We compared outcomes in CCA and sCTA using a multicenter\, international retrospective database of high-volume skull base centers. Re ad more at https://cushings.invisionzone.com/topic/57646-crooke-cell-adeno ma-confers-poorer-endocrinological-outcomes-compared-with-corticotroph-ade noma/ X-ALT-DESC;FMTTYPE=text/html:Crooke cell adenomas (CCA) are a rare \, aggressive subset of adrenocorticotrophin secreting pituitary corticotr oph adenomas (sCTA) found in 5&ndash\;10% of patients with Cushing&rsquo\; s disease. Multiple studies support worse outcomes in CCA but are limited by small sample size and single-institution databases. We compared outcome s in CCA and sCTA using a multicenter\, international retrospective databa se of high-volume skull base centers.
Read more at&nb sp\;https://cushings.invisionzone.com/ topic/57646-crooke-cell-adenoma-confers-poorer-endocrinological-outcomes-c ompared-with-corticotroph-adenoma/
CATEGORIES:Cushings UID:20231013T2241280Z-549422-1688@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory: Jessica Lee Pierson\, August 29\, 2018 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300829;BYMONTH=8;BYMONTHDAY=29 DTSTART;VALUE=DATE:20180829 DTEND;VALUE=DATE:20180830 DESCRIPTION:Jessica Lee Pierson\, 35\, passed away Wednesday\, August 29\, 2018 from complications of Addison’s disease. Read more at https://cushing sbios.com/2022/08/29/in-memory-of-jessica-lee-pierson-august-29-2018/ X-ALT-DESC;FMTTYPE=text/html:Jessica Lee Pierson\, 35\, passed away Wedn esday\, August 29\, 2018 from complications of Addison&rsquo\;s disease.
Read more at \;https://cushingsbios.com/2022/08/29/in-memory-of-jessica-lee-pierson-a ugust-29-2018/
CATEGORIES:In Memory UID:20220829T0947540Z-549422-972@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221211 SUMMARY:Amber D\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20251211;BYMONTHDAY=11 DESCRIPTION:Amber is from New Zealand. She was diagnosed with a pituitary tumor in 2020 \, and underwent surgery\, several years after symptoms eme rged\, including rapid weight gain\, muscle loss\, brain fog\, fatigue\, d epression and severe headaches. Read more at https://cushingsbios.com/2022 /12/11/amber-d-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Amber is from New Zealand. \;She was d iagnosed with a pituitary tumor in 2020 \, and underwent \;surgery\, several years after symptoms emerged\, including rapid weight gain\, muscl e loss\, brain fog\, fatigue\, depression and severe headaches.
Re ad more at \;https://cushingsbios.com/2022/1 2/11/amber-d-pituitary-bio/
CATEGORIES:Cushie Bios UID:20221211T1122230Z-549422-1631@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Living Rare Living Stronger ~ Nord® Patient and Family Forum June 2 6-27Th DTSTART;VALUE=DATE:20210615 DTEND;VALUE=DATE:20210616 RRULE:FREQ=WEEKLY;UNTIL=20210626;BYDAY=TU,FR DESCRIPTION:2021 Living Rare\, Living Stronger NORD Patient and Family Foru m featuring the Rare Impact Awards The health and well-being of people liv ing with rare diseases\, their loved ones and those working to improve the ir lives continues to remain a top priority for all of us here at NORD. Th e COVID-19 pandemic brought us new ways to engage with our community and o ur 2020 virtual program was the most successful forum to date! In 2021 we will continue to work hard to keep our community healthy and safe while en gaging in this impactful program. Check back regularly as we will update t he website often with new developments. https://cushings.invisionzone.com/ topic/55728-living-rare-living-stronger-~-nord%C2%AE-patient-and-family-fo rum-june-26-27th/ X-ALT-DESC;FMTTYPE=text/html:The healt h and well-being of people living with rare diseases\, their loved ones an d those working to improve their lives continues to remain a top priority for all of us here at NORD. The COVID-19 pandemic brought us new ways to e ngage with our community and our 2020 virtual program was the most success ful forum to date!
In 2021 we will continue to work hard to keep o ur community healthy and safe while engaging in this impactful program. Ch eck back regularly as we will update the website often with new developmen ts.
CATEGORIES:Events and Meetings UID:20210616T0052570Z-549422-1400@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Fluorescent Metabolite Might Help Surgeons Remove Pituitary Tumors DTSTART;VALUE=DATE:20180512 DTEND;VALUE=DATE:20180513 RRULE:FREQ=MONTHLY;UNTIL=20190414;BYDAY=2SA DESCRIPTION:The resection of microadenomas — small\, benign tumors in the p ituitary gland underlying Cushing’s disease — could be aided by a fluoresc ent marker that is naturally produced by the tumor\, a new study shows. Re ad more at https://cushieblog.com/2018/04/14/fluorescent-metabolite-might- help-surgeons-remove-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:The resection of microadenomas &mdash\; sma ll\, benign tumors in the pituitary gland underlying Cushing&rsquo\;s dise ase &mdash\; could be aided by a fluorescent marker that is naturally prod uced by the tumor\, a new study shows.
Read more at \;https://cushieblog.com/2018/ 04/14/fluorescent-metabolite-might-help-surgeons-remove-pituitary-tumors/< /a>
CATEGORIES:News Items UID:20180414T0651470Z-549422-905@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180824 SUMMARY:ACTH test after adenomectomy may accurately predict Cushing’s disea se remission RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190824;BYMONTHDAY=24 DESCRIPTION:A plasma adrenocorticotropic hormone suppression test performed shortly after surgical adenomectomy may accurately predict both short- an d long-term remission of Cushing’s disease. Read more at https://cushieblo g.com/2018/08/24/acth-test-after-adenomectomy-may-accurately-predict-cushi ngs-disease-remission/ X-ALT-DESC;FMTTYPE=text/html:A plasma adrenocorticotropic hormone suppre ssion test performed shortly after surgical adenomectomy may accurately pr edict both short- and long-term remission of Cushing&rsquo\;s disease.
Read more at \;https://cushieblog.com/2018/08/24/acth-test-after-adenomec tomy-may-accurately-predict-cushings-disease-remission/
CATEGORIES:Cushings UID:20180824T1437110Z-549422-969@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200831 SUMMARY:Cushing Syndrome interview (NEON_4470)\, 60-minutes\, One Hundred D ollar reward RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201031;BYMONTHDAY=31 DESCRIPTION:We have an opportunity for you to take part in a Cushing Syndro me interview (NEON_4470) for Patients. Our project number for this study i s NEON_4470. Read more at http://cushings.invisionzone.com/topic/55321-cus hing-syndrome-interview-neon_4470-60-minutes-one-hundred-dollar-reward/ X-ALT-DESC;FMTTYPE=text/html:We have an opportunity for you to take part in a \;Cushing Syndrome interview (NEON_4470) \; for Patients. Our project number for this study is \;NEON_4470 .
Read more at \;http://cushings.invisionzone.com/topic /55321-cushing-syndrome-interview-neon_4470-60-minutes-one-hundred-dollar- reward/
CATEGORIES:Cushings UID:20200831T2219000Z-549422-1285@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220305 SUMMARY:Basics: Workup for Incidental Pituitary Adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300305;BYMONTHDAY=5 DESCRIPTION:A 35-year-old woman is seen in the outpatient clinic for evalua tion of an incidental pituitary macroadenoma. Her medical history is signi ficant for hypertension\, diabetes\, hyperlipidemia\, polycystic ovary syn drome\, and obesity. She initially presented to the emergency department ( ED) a week ago after an episode of right visual field changes that she des cribed as waviness in her right eye and right hemibody sensory changes wit hout motor deficits. While in the ED\, she underwent a full workup for pos sible stroke\, which was negative. Magnetic resonance imaging (MRI) of her brain without contrast revealed a 12-mm pituitary lesion\; a repeat MRI w ith contrast was then ordered (Figure). No serum hormonal panel was availa ble for review from ED records. Read more at https://cushings.invisionzon e.com/topic/56643-workup-for-incidental-pituitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:A 35-year-old woman is seen in the outpatie nt clinic for evaluation of an incidental pituitary macroadenoma. Her medi cal history is significant for hypertension\, diabetes\, hyperlipidemia\, polycystic ovary syndrome\, and obesity. She initially presented to the em ergency department (ED) a week ago after an episode of right visual field changes that she described as waviness in her right eye and right hemibody sensory changes without motor deficits. While in the ED\, she underwent a full workup for possible stroke\, which was negative. Magnetic resonance imaging (MRI) of her brain without contrast revealed a 12-mm pituitary les ion\; a repeat MRI with contrast was then ordered (Figure). No serum hormo nal panel was available for review from ED records. \;
Read mo re at \;https://cushings.invisi onzone.com/topic/56643-workup-for-incidental-pituitary-adenoma/
CATEGORIES:Cushings UID:20220305T2137120Z-549422-1524@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200718 SUMMARY:Ppituitary Disease Management And Patient Care Recommendations Duri ng The Covid-19 Pandemic RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210718;BYMONTHDAY=18 DESCRIPTION:Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2)\, the viral strain that has caused the coronavirus disease 2019 (COVID-19) p andemic\, has presented healthcare systems around the world with an unprec edented challenge. In locations with significant rates of viral transmissi on\, social distancing measures and enforced ‘lockdowns’ are the new ‘norm ’ as governments try to prevent healthcare services from being overwhelmed . However\, with these measures have come important challenges for the del ivery of existing services for other diseases and conditions. The clinical care of patients with pituitary disorders typically involves a multidisci plinary team\, working in concert to deliver timely\, often complex\, dise ase investigation and management\, including pituitary surgery. COVID-19 h as brought about major disruption to such services\, limiting access to ca re and opportunities for testing (both laboratory and radiological)\, and dramatically reducing the ability to safely undertake transsphenoidal surg ery. In the absence of clinical trials to guide management of patients wit h pituitary disease during the COVID-19 pandemic\, herein the Professional Education Committee of the Pituitary Society proposes guidance for contin ued safe management and care of this population. Read more at https://cush ieblog.com/2020/07/18/pituitary-disease-management-and-patient-care-recomm endations-during-the-covid-19-pandemic/ X-ALT-DESC;FMTTYPE=text/html:Severe acute respiratory syndrome coronavir us 2 (SARS-CoV-2)\, the viral strain that has caused the coronavirus disea se 2019 (COVID-19) pandemic\, has presented healthcare systems around the world with an unprecedented challenge. In locations with significant rates of viral transmission\, social distancing measures and enforced &lsquo\;l ockdowns&rsquo\; are the new &lsquo\;norm&rsquo\; as governments try to pr event healthcare services from being overwhelmed. However\, with these mea sures have come important challenges for the delivery of existing services for other diseases and conditions. The clinical care of patients with pit uitary disorders typically involves a multidisciplinary team\, working in concert to deliver timely\, often complex\, disease investigation and mana gement\, including pituitary surgery. COVID-19 has brought about major dis ruption to such services\, limiting access to care and opportunities for t esting (both laboratory and radiological)\, and dramatically reducing the ability to safely undertake transsphenoidal surgery. In the absence of cli nical trials to guide management of patients with pituitary disease during the COVID-19 pandemic\, herein the Professional Education Committee of th e Pituitary Society proposes guidance for continued safe management and ca re of this population.
Read more at \;https://cushieblog.c om/2020/07/18/pituitary-disease-management-and-patient-care-recommendation s-during-the-covid-19-pandemic/
CATEGORIES:News Items UID:20200718T1437560Z-549422-1276@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Smart\, Soft Contact Lens For Wireless Immunosensing of Cortisol DTSTART;VALUE=DATE:20200815 DTEND;VALUE=DATE:20200816 RRULE:FREQ=MONTHLY;UNTIL=20210718;BYDAY=3SA DESCRIPTION:Here\, we describe a human pilot trial of a soft\, smart contac t lens for real-time detection of the cortisol concentration in tears usin g a smartphone. Read more at https://cushieblog.com/2020/07/18/smart-soft -contact-lens-for-wireless-immunosensing-of-cortisol/ X-ALT-DESC;FMTTYPE=text/html:Here\, we describe a human pilot trial of a soft\, smart contact lens for real-time detection of the cortisol concent ration in tears using a smartphone. \;
Read more at \;https://cushieblog.com/2020/ 07/18/smart-soft-contact-lens-for-wireless-immunosensing-of-cortisol/< /p> CATEGORIES:News Items UID:20200718T1546000Z-549422-1277@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240422 SUMMARY:Unveiling the Uncommon: Cushing’s Syndrome (CS) Masquerading as Sev ere Hypokalemia RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300422;BYMONTHDAY=22 DESCRIPTION:This case report presents an unusual manifestation of CS in a 4 8-year-old male with a history of hypertension\, where severe hypokalemia was the primary presentation. Read more at https://cushings.invisionzone.c om/topic/57721-unveiling-the-uncommon-cushing%E2%80%99s-syndrome-cs-masque rading-as-severe-hypokalemia/ X-ALT-DESC;FMTTYPE=text/html:
This case report presents an unusual manifestation of CS in a 48-year-old male with a history of hypertension\, where severe hypokalemia was the primary presentation.
CATEGORIES:Cushings UID:20240422T1409520Z-549422-1782@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240402 SUMMARY:Comment added to Day 2\, Cushing’s Awareness Challenge RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300402;BYMONTHDAY=2 DESCRIPTION:Even though this was from two years ago\, I don't think that th ere have been any significant changes in the many symptoms of Cushing's. Today's News Item proclaimed loftily Quote In patients diagnosed with th e disease yet who had inconclusive MRI results\, PET/MRI was positive in 1 00% of cases\, noted lead author Ilanah Pruis\, a doctoral student at Eras mus University Medical Center in Rotterdam\, Netherlands. “This multimodal imaging technique provides a welcome improvement for diagnosis\, planning of surgery\, and clinical outcome in patients with Cushing disease\,” the authors wrote. But will enough doctors actually allow patients to get tha t far or will they still blow them off? From https://cushings.invisionzone .com/topic/56737-day-2-cushing%E2%80%99s-awareness-challenge-2022/?do=find Comment&comment=478717 X-ALT-DESC;FMTTYPE=text/html:Even though this was from two year
s ago\, I don't think that there have been any significant changes in the
many symptoms of Cushing's. \;
Today's News Item \;pro claimed loftily \; \;
Quote
In patients d iagnosed with the disease yet who had inconclusive MRI results\, PET/MRI w as positive in 100% of cases\, noted lead author Ilanah Pruis\, a doctoral student at Erasmus University Medical Center in Rotterdam\, Netherlands.< /p>
&ldquo\;This multimodal imaging technique provides a welcome impro vement for diagnosis\, planning of surgery\, and clinical outcome in patie nts with Cushing disease\,&rdquo\; the authors wrote.
But will enough doctors actually allow patients to get that far or w ill they still blow them off?
CATEGORIES:Awareness Challenge UID:20240402T1254280Z-549422-1763@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing’s Disease\, Type 2 Diabetes Study (M3_8994)\, 60-minutes\, 120 Dollars DTSTART;VALUE=DATE:20231201 DTEND;VALUE=DATE:20231202 RRULE:FREQ=WEEKLY;UNTIL=20241110;INTERVAL=2;BYDAY=FR DESCRIPTION:We have an opportunity for you to take part in a Cushing’s Dise ase\, Type 2 Diabetes Study (M3_8994) for patients. Our project number for this study is M3_8994. Project Details: Web-assisted telephone interview (you must be by a computer with high-speed internet access while on the ph one during the time of the interview) Interview is 60-minutes long 120 Dol lar Reward Read more at https://cushings.invisionzone.com/topic/57663-cush ing%E2%80%99s-disease-type-2-diabetes-study-m3_8994-60-minutes-120-dollars / X-ALT-DESC;FMTTYPE=text/html:We have an opportunity for you to take part in a \;Cushing&rsquo\;s Disease\, Type 2 Diabetes Study (M3_8 994) \;for patients. Our project number for this study is&nbs p\;M3_8994.
Project Details:
Read more at \;https://cushings.invisionzone.com/topic/57663-cushing%E2%80%99s-disea se-type-2-diabetes-study-m3_8994-60-minutes-120-dollars/
CATEGORIES:Cushings UID:20231110T1206330Z-549422-1707@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231110 SUMMARY:Book - We Are Not Alone: Learning to Live with Chronic Illness RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301110;BYMONTHDAY=10 DESCRIPTION:A twilight zone moment - I just started rereading this book aga in last night and this post from November 10\, 2008 appeared on Facebook: Read more at https://cushings.invisionzone.com/topic/57664-we-are-not-alon e-learning-to-live-with-chronic-illness/ X-ALT-DESC;FMTTYPE=text/html:A twilight zone moment - I just started rer eading this book again last night and this post from November 10\, 2008 ap peared on Facebook:
Read more at \;https://cushings.invisionzone.com/topic/57664-we- are-not-alone-learning-to-live-with-chronic-illness/
CATEGORIES:Other Medical UID:20231110T1238300Z-549422-1708@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180630 SUMMARY:Measuring TSH Levels Could Improve Diagnosis for Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190630;BYMONTHDAY=30 DESCRIPTION:Measuring the variation in thyroid stimulating hormone blood le vels between midnight and morning may be better for diagnosing Cushing’s s yndrome than current approaches\, a study suggests. Read more at https:// cushieblog.com/2018/06/30/measuring-tsh-levels-could-improve-diagnosis-for -cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Measuring the variation in t hyroid stimulating hormone blood levels between midnight and morning may b e better for diagnosing Cushing&rsquo\;s syndrome than current approaches\ , a study suggests. \;
Read more at \;https://cushieblog .com/2018/06/30/measuring-tsh-levels-could-improve-diagnosis-for-cushings- syndrome/
CATEGORIES:Cushings UID:20180630T1233210Z-549422-950@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230707 SUMMARY:Cushing Syndrome Caused by an Ectopic ACTH-Producing Pituitary Aden oma of the Clivus Region RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300707;BYMONTHDAY=7 DESCRIPTION:Ectopic ACTH-producing pituitary adenoma (EAPA) of the clivus r egion is extraordinarily infrequent condition and merely a few reports hav e been reported to date. The patient was a 53-year-old woman who presented with Cushing-like appearances and a soft tissue mass in the clivus region . Read more at https://cushings.invisionzone.com/topic/57614-cushing%C2%A0 syndrome-caused-by-an%C2%A0ectopic-acth-producing-pituitary-adenoma%C2%A0o f-the%C2%A0clivus-region/ X-ALT-DESC;FMTTYPE=text/html:Ectopic ACTH-producing pituitary adenoma (E APA) of the clivus region is extraordinarily infrequent condition and mere ly a few reports have been reported to date.
The patient was a 53- year-old woman who presented with Cushing-like appearances and a soft tiss ue mass in the clivus region.
CATEGORIES:Cushings UID:20230707T1351480Z-549422-1655@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Insulin First Used on this date in 1022 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300122;BYMONTH=1;BYMONTHDAY=22 DTSTART;VALUE=DATE:20220122 DTEND;VALUE=DATE:20220123 DESCRIPTION:The first injection of Insulin ( called isletin originally ) on Leonard Thompson\, a 14-year-old diabetic who lay dying at the Toronto Ge neral Hospital on January 11\, 1922 caused a severe allergic reaction. For the next 12 days the biochemist James Collip worked to improve and purify the ox-pancreas extract and on the second injection bought the boy out of his coma and was a complete success. More about History of Insulin X-ALT-DESC;FMTTYPE=text/html:The first injection of Insulin ( called isl etin originally ) on Leonard Thompson\, a 14-year-old diabetic who lay dyi ng at the Toronto General Hospital on January 11\, \;1922 caused a sev ere allergic reaction.
For the next 12 days the biochemist James C ollip worked to improve and purify the ox-pancreas extract and on the seco nd injection bought the boy out of his coma and was a complete success.
CATEGORIES:Other Medical UID:20220113T1451210Z-549422-1498@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210615 SUMMARY:Hydrocortisone Autoinjector RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220615;BYMONTHDAY=15 DESCRIPTION:The ZENEO autoinjector is a revolutionary delivery system\, and this product is a terrific strategic fit with our current adrenal insuffi ciency business. Patients\, advocacy groups\, and physicians in the adrena l insufficiency community have repeatedly expressed to us the need for a h ydrocortisone autoinjector\, so we are excited to be partnering with Cross ject to bring this product to patients in need\,” said Sean Brynjelsen\, C EO of Eton Pharmaceuticals. Read more at https://cushings.invisionzone.com /topic/55729-hydrocortisone-autoinjector/ X-ALT-DESC;FMTTYPE=text/html:The ZENEO autoinjector is a revolutionary d elivery system\, and this product is a terrific strategic fit with our cur rent adrenal insufficiency business. Patients\, advocacy groups\, and phys icians in the adrenal insufficiency community have repeatedly expressed to us the need for a hydrocortisone autoinjector\, so we are excited to be p artnering with Crossject to bring this product to patients in need\,&rdquo \; said Sean Brynjelsen\, CEO of Eton Pharmaceuticals.
Read more a t \;https://cushings.invisionzone.com/topic /55729-hydrocortisone-autoinjector/
CATEGORIES:News Items UID:20210616T0143230Z-549422-1401@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210902 SUMMARY:Primary Adrenal Insufficiency Due to Bilateral Adrenal Infarction i n COVID-19 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220902;BYMONTHDAY=2 DESCRIPTION:Patients with positive antiphospholipid antibodies should be cl osely monitored for symptoms or signs of acute adrenal insufficiency durin g COVID-19. Read more at https://cushings.invisionzone.com/topic/56042-pri mary-adrenal-insufficiency-due-to-bilateral-adrenal-infarction-in-covid-19 / X-ALT-DESC;FMTTYPE=text/html:Patients with positive antiphospholipid ant ibodies should be closely monitored for symptoms or signs of acute adrenal insufficiency during COVID-19.
Read more at \;https://cush ings.invisionzone.com/topic/56042-primary-adrenal-insufficiency-due-to-bil ateral-adrenal-infarction-in-covid-19/
CATEGORIES:News Items UID:20210902T1313500Z-549422-1417@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210902 SUMMARY:Primary Adrenal Insufficiency Due to Bilateral Adrenal Infarction i n COVID-19 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220902;BYMONTHDAY=2 DESCRIPTION:Patients with positive antiphospholipid antibodies should be cl osely monitored for symptoms or signs of acute adrenal insufficiency durin g COVID-19. Read more at https://cushings.invisionzone.com/topic/56042-pri mary-adrenal-insufficiency-due-to-bilateral-adrenal-infarction-in-covid-19 / X-ALT-DESC;FMTTYPE=text/html:Patients with positive antiphospholipid ant ibodies should be closely monitored for symptoms or signs of acute adrenal insufficiency during COVID-19.
Read more at \;https://cush ings.invisionzone.com/topic/56042-primary-adrenal-insufficiency-due-to-bil ateral-adrenal-infarction-in-covid-19/
CATEGORIES:News Items UID:20210902T1313520Z-549422-1418@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210902 SUMMARY:Primary Adrenal Insufficiency Due to Bilateral Adrenal Infarction i n COVID-19 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220902;BYMONTHDAY=2 DESCRIPTION:Patients with positive antiphospholipid antibodies should be cl osely monitored for symptoms or signs of acute adrenal insufficiency durin g COVID-19. Read more at https://cushings.invisionzone.com/topic/56042-pri mary-adrenal-insufficiency-due-to-bilateral-adrenal-infarction-in-covid-19 / X-ALT-DESC;FMTTYPE=text/html:Patients with positive antiphospholipid ant ibodies should be closely monitored for symptoms or signs of acute adrenal insufficiency during COVID-19.
Read more at \;https://cush ings.invisionzone.com/topic/56042-primary-adrenal-insufficiency-due-to-bil ateral-adrenal-infarction-in-covid-19/
CATEGORIES:News Items UID:20210902T1313540Z-549422-1419@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Angelique (Angelique)\, Undiagnosed Bio DTSTART;VALUE=DATE:20210522 DTEND;VALUE=DATE:20210523 RRULE:FREQ=MONTHLY;UNTIL=20220424;BYDAY=4SA DESCRIPTION:Angelique L is from the United Arab Emirates. She is a 54 year old woman with no kids. She had a hysterectomy at age 44 and went through the change… Fast forward to 2019 and she got a very painful and swollen pi tuitary gland infection on the right side of her face. Admitted to hospita l and administered 60mg Prednisone intravenously. Read more at https://cus hingsbios.com/2021/04/24/angelique-l-angelique-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Angelique L is from the United Arab Emirate s. She is a 54 year old woman with no kids. She had a hysterectomy at age 44 and went through the change&hellip\;
Fast forward to 2019
and she got a very painful and swollen pituitary gland infection on the r
ight side of her face. Admitted to hospital and administered 60mg Predniso
ne intravenously.
Read more at \;ht tps://cushingsbios.com/2021/04/24/angelique-l-angelique-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20210424T0802140Z-549422-1361@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210424 SUMMARY:Téra (HappyGirl)\, Video Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220424;BYMONTHDAY=24 DESCRIPTION:Téra is a member of the message boards - you can respond to her posts here. Dear endocrinologist\, I need to say something for all the pe ople like myself with endogenous mild episodic Cushings that are dismissed there's some patients who may not be strong enough to speak up or even ad vocate for themselves & know what tests to ask for. Some will just give up and accept this as their fate and have a horrible quality of life & die w ay too soon from the terrible things this illness does to your body. Some may take their own lives (depression\, anxiety\, self doubt is a very real & serious symptom of this illness). I heard that voice in my head\, 'if o ne more doctor dismisses me\, I am ending my life! I can't live like this anymore!' These are very important things to remember. Read more at https: //cushingsbios.com/2021/04/24/tera-happygirl-video-bio/ X-ALT-DESC;FMTTYPE=text/html:Té\;ra is a member of the message boa rds - you can \; respond to her posts here.
Dear endocrinologist\, I need to sa y something for all the people like myself with endogenous mild episodic C ushings that are dismissed there's some patients who may not be strong eno ugh to speak up or even advocate for themselves &\; know what tests to ask for. Some will just give up and accept this as their fate and have a h orrible quality of life &\; die way too soon from the terrible things t his illness does to your body. Some may take their own lives (depression\, anxiety\, self doubt is a very real &\; serious symptom of this illnes s). I heard that voice in my head\, 'if one more doctor dismisses me\, I a m ending my life! I can't live like this anymore!' These are very importan t things to remember.
Read more at \;https://cus hingsbios.com/2021/04/24/tera-happygirl-video-bio/
CATEGORIES:Cushie Bios UID:20210424T0728170Z-549422-1360@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:No Association Between Long-Term Gh Replacement\, Comorbidities In Nonfunctioning Pituitary Adenoma DTSTART;VALUE=DATE:20181201 DTEND;VALUE=DATE:20181202 RRULE:FREQ=MONTHLY;UNTIL=20191103;BYDAY=1SA DESCRIPTION:Patients with growth hormone deficiency due to nonfunctioning p ituitary adenoma experienced excessive morbidity due to cerebral infarctio n and sepsis regardless of whether they received long-term GH therapy\, wh ereas treatment was associated with a normal incidence of type 2 diabetes\ , despite higher BMI and more severe hypopituitarism in treated patients.. Read more at https://cushieblog.com/2018/11/03/no-association-between-lon g-term-gh-replacement-comorbidities-in-nonfunctioning-pituitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:Patients with growth hormone deficiency due to nonfunctioning pituitary adenoma experienced excessive morbidity due t o cerebral infarction and sepsis regardless of whether they received long- term GH therapy\, whereas treatment was associated with a normal \;inc idence of type 2 diabetes\, despite higher BMI and more severe hypopituita rism in treated patients..
Read more at \;https://c ushieblog.com/2018/11/03/no-association-between-long-term-gh-replacement-c omorbidities-in-nonfunctioning-pituitary-adenoma/
CATEGORIES:News Items UID:20181103T1541100Z-549422-1012@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220323 SUMMARY:Pregnancy Doesn't Boost Cushing Disease Recurrences RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250323;BYMONTHDAY=23 DESCRIPTION:Among women who underwent pituitary surgery to treat Cushing di sease subsequent pregnancy had no apparent effect on Cushing disease recur rence\, in a single-center review of 113 women treated over a 30-year peri od. Read more at https://cushings.invisionzone.com/topic/56702-pregnancy-d oesnt-boost-cushing-disease-recurrences/ X-ALT-DESC;FMTTYPE=text/html:Among women who underwent pitui tary surgery to treat \;Cushin g disease \;subsequent pregnancy had no apparent effect on Cushing disease recurrence\, in a single-center review of 113 women treated over a 30-year period.
Read more at \;https://cushings.invisionzone.com/topic /56702-pregnancy-doesnt-boost-cushing-disease-recurrences/
CATEGORIES:Cushings UID:20220323T1716110Z-549422-1533@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181103 SUMMARY:MaryO Pituitary Surgery Anniversary DESCRIPTION:Today is the anniversary of MaryO's pituitary surgery at NIH in 1987. Read more at https://cushingsbios.com/2018/11/03/maryo-31st-pit uitary-surgery-anniversary/ X-ALT-DESC;FMTTYPE=text/html:Today is the anniversary of MaryO's pituita ry surgery at NIH in 1987. \;
\;
Read more at&nb sp\;https://cushingsbios.com/2018/11/03/mary o-31st-pituitary-surgery-anniversary/
\;
To treat \;Cushing's&n bsp\;syndrome (CS) as soon as feasible\, a rapid diagnosis is required. A simple measure\, the \;Cushing \;score\, was crea ted and \;...
Read more at \;https://cushings.invisionzone.com/topic/56427- new-test-may-help-in-early-diagnosis-of-cushings-syndrome/
CATEGORIES:Cushings UID:20211230T1439250Z-549422-1490@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing’s Myths and Facts: Cushing’s is RARE\, No one has Cushing’s ! DTSTART;VALUE=DATE:20180503 DTEND;VALUE=DATE:20180504 RRULE:FREQ=MONTHLY;UNTIL=20250404;BYDAY=1TH DESCRIPTION:Myth: “Cushing’s is RARE”\, “No one has Cushing’s!”\, “It is li terally impossible for you to have Cushing’s Disease!” Read more at https: //cushieblogger.com/2021/04/04/cushings-myths-and-facts-cushings-is-rare-n o-one-has-cushings-3/ X-ALT-DESC;FMTTYPE=text/html:Myth: &ldquo\;Cushing&rsquo\;s is RARE&rdqu o\;\, &ldquo\;No one has Cushing&rsquo\;s!&rdquo\;\, &ldquo\;It is literal ly impossible for you to have Cushing&rsquo\;s Disease!&rdquo\;
Re ad more at \;htt ps://cushieblogger.com/2021/04/04/cushings-myths-and-facts-cushings-is-rar e-no-one-has-cushings-3/
CATEGORIES:Cushings UID:20210404T2312170Z-549422-885@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190126 SUMMARY:Patient Develops Cyclic Cushing’s Syndrome Due to Lung Neuroendocri ne Tumor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200126;BYMONTHDAY=26 DESCRIPTION:Tumors located outside the pituitary gland that produce the adr enocorticotropic hormone (ACTH) may cause\, on rare occasions\, cyclic Cus hing’s syndrome — when cortisol levels show substantial fluctuations over time. That finding\, based on the case of a patient with ACTH-secreting lu ng cancer\, is found in the study\, “Cyclic Cushing’s syndrome caused by neuroendocrine tumor: a case report\,” which was published in Endocrine Jo urnal. Read more at https://cushieblog.com/2019/01/26/patient-develops-cyc lic-cushings-syndrome-due-to-lung-neuroendocrine-tumor/ X-ALT-DESC;FMTTYPE=text/html:Tumors located outside the pituitary gland that produce the adrenocorticotropic hormone (ACTH) may cause\, on rare oc casions\, cyclic \;Cushing&rsquo\;s syndrome &mdash\; when cortisol le vels show substantial fluctuations over time.
That finding\, based on the \;case of a patient with ACTH-secreting lung cancer\, \;i s found in the study\, &ldquo\; Cyclic Cushing&rsq uo\;s syndrome caused by neuroendocrine tumor: a case report\,& rdquo\; which was published in \;Endo crine Journal.
Read more at \;https://cushieblog.com/2019/01/26/p atient-develops-cyclic-cushings-syndrome-due-to-lung-neuroendocrine-tumor/
CATEGORIES:News Items UID:20190127T0015430Z-549422-1076@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211201 SUMMARY:Sushmita Sen's battle with Addison's disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221201;BYMONTHDAY=1 DESCRIPTION:It was in 2014 when the actress left her fans shocked when she revealed that she was diagnosed with Addison's disease. Talking about her condition\, Sushmita said that the years she battled Addison's disease 'we re pretty traumatising'. After fighting for 4 long years with the chronic condition\, the actress healed and emerged stronger by exercising daily. R ead more at https://cushingsbios.com/2021/12/01/sushmita-sens-battle-with- addisons-disease/ X-ALT-DESC;FMTTYPE=text/html:It was in 2014 when the actress left her fa ns shocked when she revealed that she was diagnosed with Addison's disease . Talking about her condition\, Sushmita said that the years she battled A ddison's disease 'were pretty traumatising'. After fighting for 4 long yea rs with the chronic condition\, the actress healed and emerged stronger by exercising daily.
Read more at \;https://cushingsbios.com/2021/12/01/sushmita-sens-battle-with-addisons -disease/
CATEGORIES:Cushie Bios UID:20211201T1530090Z-549422-1472@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211119 SUMMARY:COVID-19 Targets Human Adrenal Glands RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221119;BYMONTHDAY=19 DESCRIPTION:The adrenal gland is an effector organ of the hypothalamic–pitu itary–adrenal axis and the main source of glucocorticoids\, which are crit ical to manage and to survive sepsis. Therefore\, patients with pre-existi ng adrenal insufficiency are advised to double their doses of glucocortico id supplementation after developing moderate to more severe forms of COVID -19. Read more at https://cushings.invisionzone.com/topic/56279-covid-19-t argets-human-adrenal-glands/ X-ALT-DESC;FMTTYPE=text/html:The adrenal gland is an effector organ of t he hypothalamic&ndash\;pituitary&ndash\;adrenal axis and the main source o f glucocorticoids\, which are critical to manage and to survive sepsis. Th erefore\, patients with pre-existing adrenal insufficiency are advised to double their doses of glucocorticoid supplementation after developing mode rate to more severe forms of COVID-19.
Read more at \;https://cushings.invisionzone.com/topic/56279 -covid-19-targets-human-adrenal-glands/
CATEGORIES:Other Medical UID:20211119T1107300Z-549422-1461@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220620 SUMMARY:Results Reinforce Efficacy of Recordati’s Isturisa in Cushing’s Dis ease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240620;BYMONTHDAY=20 DESCRIPTION:Isturisa is a cortisol synthesis inhibitor indicated for the tr eatment of adult patients with Cushing’s disease for whom pituitary surger y is not an option or has not been curative. Read more at https://cushings .invisionzone.com/topic/57024-results-reinforce-efficacy-of-recordati%E2%8 0%99s-isturisa-in-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Isturisa is a cortisol synthesis inhibitor indicated for the treatment of adult patients with Cushing&rsquo\;s diseas e for whom pituitary surgery is not an option or has not been curative.
CATEGORIES:Cushings UID:20220620T0834240Z-549422-1586@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Kim\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301110;BYMONTH=11;BYMONTHDAY=10 DTSTART;VALUE=DATE:20251110 DTEND;VALUE=DATE:20251111 DESCRIPTION:“So\, about me…I’ve had various non-specific symptoms since I w as a child and various specific diagnoses as an adult … hypothyroid\, fibr omyalgia\, adult ADD (misdiagnosed and treated as bipolar from 2005-2008)\ , chronic atrophic gastritis and chronic duodenitis (diagnosed via biopsy) \, colon polyps\, non-celiac gluten sensitivity\, sinus polyps\, insomnia alternating with hypersomnia (sometimes I sleep up to 15 hours a day)\, pl us an REM sleep disorder (REM sleep latency 287 min/378.5 total sleep time \, REM sleep 37.5 min with 12 upper airway resistance episodes during that time) … and the list goes on. I have multiple vitamin deficiencies too (C \, D\, zinc and iron) and other abnormal blood levels (low arginine and do pamine\, and high folic acid\, glutamine\, glycine\, norepinephrine and or nithine). The levels that made some people suspect Cushing’s (vs. PCOS) we re my DHEA and Testosterone. My highest DHEA was 1342\, lowest Free T is 0 .2. https://cushingsbios.com/2025/11/10/kim-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;So\, about me&hellip\;I&rsquo \;ve had various non-specific symptoms since I was a child and various spe cific diagnoses as an adult &hellip\; hypothyroid\, fibromyalgia\, adult A DD (misdiagnosed and treated as bipolar from 2005-2008)\, chronic atrophic gastritis and chronic duodenitis (diagnosed via biopsy)\, colon polyps\, non-celiac gluten sensitivity\, sinus polyps\, insomnia alternating with h ypersomnia (sometimes I sleep up to 15 hours a day)\, plus an REM sleep di sorder (REM sleep latency 287 min/378.5 total sleep time\, REM sleep 37.5 min with 12 upper airway resistance episodes during that time) &hellip\; a nd the list goes on. I have multiple vitamin deficiencies too (C\, D\, zin c and iron) and other abnormal blood levels (low arginine and dopamine\, a nd high folic acid\, glutamine\, glycine\, norepinephrine and ornithine). The levels that made some people suspect Cushing&rsquo\;s (vs. PCOS) were my DHEA and Testosterone. My highest DHEA was 1342\, lowest Free T is 0.2.
https://cushingsbios.com/202 5/11/10/kim-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20251110T1306240Z-549422-1974@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251110 SUMMARY:Clinical Efficacy and Safety of Fluconazole Treatment in Patients w ith Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301110;BYMONTHDAY=10 DESCRIPTION:Ketoconazole is effective for treating Cushing’s syndrome (CS) but its use is limited by the risk of hepatotoxicity. Fluconazole\, with s imilar antifungal properties\, is being investigated as a potentially safe r alternative for managing CS. This study aims to evaluate the efficacy an d safety of fluconazole in patients with CS. https://cushings.invisionzone .com/topic/57910-clinical-efficacy-and-safety-of-fluconazole-treatment-in- patients-with-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Ketoconazole is effective for treatin g Cushing&rsquo\;s syndrome (CS) but its use is limited by the risk of hep atotoxicity. Fluconazole\, with similar antifungal properties\, is being i nvestigated as a potentially safer alternative for managing CS. This study aims to evaluate the efficacy and safety of fluconazole in patients with CS.
CATEGORIES:Cushings UID:20251110T1412110Z-549422-1975@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210424 SUMMARY:Comment added to Cushing’s Myths and Facts: After a “cure” for Cush ing’s\, everyone heals and goes back to normal. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300424;BYMONTHDAY=24 DESCRIPTION:Hi my name is Shagufta and I have had Cushings Disease for over 16 years ..Post surgery and still suffering since surgery in 2004/2005.. I was diagnosed in 2004 after suffering and running back and forth to the doctors for over 10 years .. I think my symptoms started in 1990 when I ha d an early menopause at 24 years old.. I had benign tumour in the Pitituar y gland .. Had Pitituary surgery 3 times 2004/2005 before it was successfu l.. Read more at https://cushieblogger.com/2022/04/24/myth-after-a-cure-fo r-cushings-everyone-heals-and-goes-back-to-normal-2/ X-ALT-DESC;FMTTYPE=text/html:Hi my name is Shagufta and I have had Cushi ngs Disease for over 16 years ..Post surgery and still suffering since sur gery in 2004/2005.. I was diagnosed in 2004 after suffering and running ba ck and forth to the doctors for over 10 years .. I think my symptoms start ed in 1990 when I had an early menopause at 24 years old.. I had benign tu mour in the Pitituary gland .. Had Pitituary surgery 3 times 2004/2005 bef ore it was successful..
Read more at \;https://cushieblogger.com/2022/04/2 4/myth-after-a-cure-for-cushings-everyone-heals-and-goes-back-to-normal-2/
CATEGORIES:Cushie Bios UID:20220424T2217420Z-549422-1362@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200926 SUMMARY:CLINICAL TRIALS | Awareness Project RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210926;BYMONTHDAY=26 DESCRIPTION: Everyone who has taken part in a clinical trial is asked to sh are. We are interested in learning why you decided to take part in a clini cal trial and how your experience went. Read more at https://cushieblogger .com/2020/09/26/clinical-trials-awareness-project/ X-ALT-DESC;FMTTYPE=text/html:\;Everyone who has taken part in a cli nical trial is asked to share. We are interested in learning why you decid ed to take part in a clinical trial and how your experience went.
Read more at \;https://cushieblogger.com/2020/ 09/26/clinical-trials-awareness-project/
CATEGORIES:Awareness Challenge UID:20200926T1335320Z-549422-1294@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250501 SUMMARY:Ectopic ACTH-secreting Pheochromocytoma Without Typical Signs of Cu shing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300501;BYMONTHDAY=1 DESCRIPTION:Abstract This case report describes a 42-year-old female with a rare pheochromocytoma presenting without classic Cushingoid features but with uncontrolled hypertension\, type 2 diabetes\, and recurrent headaches . Despite the absence of typical signs\, biochemical analysis revealed ele vated cortisol and ACTH levels\, and imaging showed a 6 cm adrenal mass. T he patient was stabilized preoperatively with alpha-blockers and metyrapon e before undergoing a successful laparoscopic adrenalectomy. Histopatholog y confirmed pheochromocytoma with aggressive features. Postoperatively\, h er blood pressure and symptoms improved\, and her cortisol levels normaliz ed. This case underscores the diagnostic challenges of ACTH-secreting pheo chromocytomas without classic hypercortisolism signs and emphasizes the ne ed for thorough endocrine and imaging assessments. Surgical resection rema ins the definitive treatment\, with long-term follow-up essential to monit or for recurrence. This case contributes to the limited literature on the coexistence of pheochromocytoma and ectopic ACTH secretion. https://cushin gs.invisionzone.com/topic/57818-ectopic-acth-secreting-pheochromocytoma-wi thout-typical-signs-of-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Abstract
This case report describes a 42-year-old female with a rare pheochromocytoma presenting without clas sic Cushingoid features but with uncontrolled hypertension\, type 2 diabet es\, and recurrent headaches. Despite the absence of typical signs\, bioch emical analysis revealed elevated cortisol and ACTH levels\, and imaging s howed a 6 \;cm adrenal mass. The patient was stabilized preoperatively with alpha-blockers and metyrapone before undergoing a successful laparos copic adrenalectomy. Histopathology confirmed pheochromocytoma with aggres sive features. Postoperatively\, her blood pressure and symptoms improved\ , and her cortisol levels normalized. This case underscores the diagnostic challenges of ACTH-secreting pheochromocytomas without classic hypercorti solism signs and emphasizes the need for thorough endocrine and imaging as sessments. Surgical resection remains the definitive treatment\, with long -term follow-up essential to monitor for recurrence. This case contributes to the limited literature on the coexistence of pheochromocytoma and ecto pic ACTH secretion.
CATEGORIES:Cushings UID:20250501T1154500Z-549422-1880@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241106 SUMMARY:Tips for Living with Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301106;BYMONTHDAY=6 DESCRIPTION:Cushing’s disease may sometimes make you feel that your life is out of your control. But there are some general things you can do to help take back control. https://cushings-help.com/2024/11/05/tips-for-living-w ith-cushings/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease may sometime s make you feel that your life is out of your control. But there are some general things you can do to help take back control.
https://cushings-help.com/2024/11/05/ti ps-for-living-with-cushings/
CATEGORIES:Cushings UID:20251105T1147430Z-549422-1830@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180728 SUMMARY:Danielle G\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190728;BYMONTHDAY=28 DESCRIPTION:Danielle had suddenly gained more than 20kg\, found herself los ing hair\, constantly breaking bones and struggling to sleep. Making matte rs worse\, the young mother became severely depressed and noticed an unusu al-looking ‘hump’ on her back. Read more at https://cushingsbios.com/2018/ 07/28/danielle-g-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Danielle had suddenly gained more than 20kg \, found herself losing hair\, constantly breaking bones and struggling to sleep.
Making matters worse\, the youn g mother became severely depressed and noticed an unusual-looking &lsquo\; hump&rsquo\; on her back.
Read more at& nbsp\;https://cushingsbios.com/2018/07/28/danielle-g-pituita ry-bio/
CATEGORIES:Cushie Bios UID:20180728T1735580Z-549422-961@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200408 SUMMARY:Patients With Cushing Have New Nonsurgical Treatment Option RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210408;BYMONTHDAY=8 DESCRIPTION:Osilodrostat (Isturisa) is the first FDA approved drug who eith er can’t undergo pituitary gland surgery or have undergone the surgery but still have the disease. The oral tablet functions by blocking the enzyme responsible for cortisol synthesis\, 11-beta-hydroxylase. Side effects of osilodrostat occurring in more than 20% of patients are adrenal insufficie ncy\, headache\, nausea\, fatigue\, and edema. Other side effects can incl ude vomiting\, hypocortisolism (low cortisol levels)\, QTc prolongation (h eart rhythm condition)\, elevations in adrenal hormone precursors (inactiv e substance converted into hormone)\, and androgens (hormone that regulate d male characteristics). Read more at https://cushieblog.com/2020/04/08/pa tients-with-cushing-have-new-nonsurgical-treatment-option/ X-ALT-DESC;FMTTYPE=text/html:Osilodrostat (Isturisa) is the \;first FDA approved \;drug who either can&rsquo\;t undergo pituitary gland surgery or have undergone the surgery but still have the d isease. The oral tablet functions by blocking the enzyme responsible for c ortisol synthesis\, 11-beta-hydroxylase.
Side effects of osilodros tat occurring in more than 20% of patients are adrenal insufficiency\, hea dache\, nausea\, fatigue\, and edema. Other side effects can include vomit ing\, hypocortisolism (low cortisol levels)\, QTc prolongation (heart rhyt hm condition)\, elevations in adrenal hormone precursors (inactive substan ce converted into hormone)\, and androgens (hormone that regulated male ch aracteristics).
Read more at \;https://cushieblog.com/2020/04/08/patients-with-cushing-ha ve-new-nonsurgical-treatment-option/
CATEGORIES:News Items UID:20200408T1709510Z-549422-1248@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200408 SUMMARY:New Testimonial RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210408;BYMONTHDAY=8 DESCRIPTION:And Mary has been so kind and generous to me with her help. She offered to share one of my videos on her blog. She has worked so hard for all of us over all those years to give us support. I feel she offers the most knowledgable and current information more than any other Cushing's su pport sites out there. I list her site as a resource on my website. I can' t sing her praises enough. A courageous\, selfless\, generous\, tireless p erson who works so very hard in our best interests. Read more at https://c ushieblogger.com/testimonial/janice-b/ X-ALT-DESC;FMTTYPE=text/html:And Mary has been so kind and generous to m e with her help. She offered to share one of my videos on her blog. She ha s worked so hard for all of us over all those years to give us support. I feel she offers the most knowledgable and current information more than an y other Cushing's support sites out there. I list her site as a resource o n my website. I can't sing her praises enough. A courageous\, selfless\, g enerous\, tireless person who works so very hard in our best interests.
Read more at \;https://cushieblogger.com/testimonial/janice-b/
CATEGORIES:Cushings UID:20200408T1726170Z-549422-1249@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180401 SUMMARY:New Testimonial From NotSoCushie RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190401;BYMONTHDAY=1 DESCRIPTION:Thanks Mary. This is so kind of you to do all the folllow up yo u do especially since you are so busy with this site and all the others. Y ou are truly about helping others and being selfless. You are an inspirati on to all of us. From http://cushings.invisionzone.com/topic/54363-new-her e/?tab=comments#comment-474062 X-ALT-DESC;FMTTYPE=text/html:Thanks Mary. This is so kind of you to do a ll the folllow up you do especially since you are so busy with this site a nd all the others. You are truly about helping others and being selfless. You are an inspiration to all of us.
From \;http://cushings.invisionzone.com/topic/54363-new-here/?tab=comments#comme nt-474062
CATEGORIES:Cushings UID:20180401T1056240Z-549422-860@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231014 SUMMARY:Osteoporosis as the First Sign of Cushing’s Disease in a Thin 16-Ye ar-Old Boy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301014;BYMONTHDAY=14 DESCRIPTION:Cushing’s disease (CD) is an extremely rare diagnosis in childr en. In this report\, we present the case of an almost 16-year-old\, short and thin boy with CD\, the first symptoms of which were spinal pain and ve rtebral fractures as a result of osteoporosis. In light of his growth reta rdation and short stature\, the boy underwent diagnostics\, which excluded growth hormone (GH) deficiency\, hypothyroidism and celiac disease. Final ly\, based on cortisol profile results\, dexamethasone suppression tests a nd bilateral sampling during catheterization of the inferior petrosal sinu ses\, CD was diagnosed. Read more at https://cushings.invisionzone.com/top ic/57647-osteoporosis-as-the-first-sign-of-cushing%E2%80%99s-disease-in-a- thin-16-year-old-boy/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is an e xtremely rare diagnosis in children. In this report\, we present the case of an almost 16-year-old\, short and thin boy with CD\, the first symptoms of which were spinal pain and vertebral fractures as a result of osteopor osis. In light of his growth retardation and short stature\, the boy under went diagnostics\, which excluded growth hormone (GH) deficiency\, hypothy roidism and celiac disease. Finally\, based on cortisol profile results\, dexamethasone suppression tests and bilateral sampling during catheterizat ion of the inferior petrosal sinuses\, CD was diagnosed.
Read more at \;https://cushings.invision
zone.com/topic/57647-osteoporosis-as-the-first-sign-of-cushing%E2%80%99s-d
isease-in-a-thin-16-year-old-boy/
This sounds a lot like what we have been do ing for the last 20 years...
HRA Pharma Rare Diseases\, an a
ffiliate of global consumer healthcare company HRA Pharma\, has announced
it is funding an online platform containing information and news on Cushin
g&rsquo\;s Syndrome.
The &lsquo\;Cushing&rsquo\;s Hub&rsquo\;\, de veloped by Springer Healthcare Education\, is set to make all information on the rare condition available in one place for medical professionals to access.
\;
Read more at \;https://cushings.invision zone.com/topic/55572-hra-pharma-rare-diseases-funds-online-hub-for-cushing %E2%80%99s-syndrome/
CATEGORIES:Cushings UID:20210318T1829530Z-549422-1336@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210416 SUMMARY:Can You Help? Many Symptoms RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220416;BYMONTHDAY=16 DESCRIPTION:So i think I maybe have Cushings. For 3 years now I have been f eeling tired\, with muscle and joint pain\, fatigue.also diabetes insipidu s ( I think\, excessive thirst and urination) and excessive brusing on leg s. My period stoped for a year or so after the pill. That's when I starte d looking for a couse. My doctor gave me metformin for my period wich help ed as my period was back and regular. Read more at https://cushings.invi sionzone.com/topic/55609-advice/ X-ALT-DESC;FMTTYPE=text/html:So i think I maybe have Cushings. For 3 yea rs now I have been feeling tired\, with muscle and joint pain\, fatigue.al so diabetes insipidus ( I \;think\, excessive thirst and urination) an d excessive brusing on legs. \; \;My period stoped for a year or s o after the pill. That's when I started looking for a couse. My doctor gav e me metformin for my period wich helped as my period was back and regular . \;
Read more at \;https://cushings.invisionzone.c om/topic/55609-advice/
CATEGORIES:Cushings UID:20210417T0141020Z-549422-1356@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251117 SUMMARY:Prevalence and Associated Risk Factors for Venous Thromboembolism i n a Large Cohort of Patients With Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301117;BYMONTHDAY=17 DESCRIPTION:Endogenous Cushing syndrome is associated with an intrinsic hyp ercoagulable state and an increased risk of venous thromboembolism (VTE). This study aimed to determine the prevalence and risk factors for VTE in a large cohort of patients with Cushing disease (CD). https://cushings.invi sionzone.com/topic/57917-prevalence-and-associated-risk-factors-for-venous -thromboembolism-in-a-large-cohort-of-patients-with-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing syndrome is associ ated with an intrinsic hypercoagulable state and an increased risk of veno us thromboembolism (VTE). This study aimed to determine the prevalence and risk factors for VTE in a large cohort of patients with Cushing disease ( CD).
CATEGORIES:Cushings UID:20251117T1436530Z-549422-1991@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181113 SUMMARY:Comment added to Roxanna (Dawn)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191113;BYMONTHDAY=13 DESCRIPTION:I AM HAVING THE SAME SYMPTOMS YOU SUGGESTED AND MY TESTS ALL LO OK FINE AS WELL. I AM AT MY WITS END WITH THIS AND MY FAMILY BARES THE BRU NT OF IT. I WILL DO ANYTHING TO GET HELP... Read more at https://cushingsb ios.com/2018/04/02/roxanna-dawn-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I AM HAVING THE SAME SYMPTOMS YOU SUGGESTED AND MY TESTS ALL LOOK FINE AS WELL. I AM AT MY WITS END WITH THIS AND MY FAMILY BARES THE BRUNT OF IT. I WILL DO ANYTHING TO GET HELP...
Re ad more at \;https://cushingsbios.com/2018/04/02/rox anna-dawn-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20181113T1409040Z-549422-1023@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190525 SUMMARY:Transsphenoidal Surgery Recommended for Cushing Disease With Inconc lusive or Normal MRI RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200525;BYMONTHDAY=25 DESCRIPTION:In patients with a diagnosis of Cushing disease in whom magneti c resonance imaging (MRI) shows either no abnormalities or nonspecific abn ormalities\, surgery is preferable to medical treatment...There is a conse nsus that the first line of treatment for Cushing disease is transsphenoid al surgery to remove the pituitary adenoma causing the disease\, with an 8 0% remission rate following the intervention. However\, in the absence of clear evidence of a pituitary adenoma on imaging\, there is some controver sy regarding the best treatment. Read more at https://cushieblog.com/2019/ 05/25/transsphenoidal-surgery-recommended-for-cushing-disease-with-inconcl usive-or-normal-mri/ X-ALT-DESC;FMTTYPE=text/html:In patients with a diagnosis of \;Cushi ng disease \;in whom magnetic resonance imaging (MRI) shows either no abnormalities or nonspecific abnormalities\, surgery is preferable to medical treatment...There is a consensus that the first line of treatm ent for Cushing disease is transsphenoidal surgery to remove the pituitary adenoma causing the disease\, with an 80% remission rate following the in tervention. However\, in the absence of clear evidence of a pituitary aden oma on imaging\, there is some controversy regarding the best treatment.
Read more at \;https://cushieblog.com/2019/05/25/tran ssphenoidal-surgery-recommended-for-cushing-disease-with-inconclusive-or-n ormal-mri/
CATEGORIES:Cushings UID:20190525T1241350Z-549422-1168@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Scientists Discover Biological Reason Why Women Are More Likely to Develop Adrenal Disorders DTSTART;VALUE=DATE:20190629 DTEND;VALUE=DATE:20190630 RRULE:FREQ=MONTHLY;UNTIL=20200525;BYDAY=-1SA DESCRIPTION:Scientists have discovered a potential biological reason why wo men are more likely to develop adrenal disorders\, including cancer. Accor ding to the researchers\, the answer could lie in the increased turnover o f hormone-producing cells found in the adrenal glands of females. Read mor e at https://cushieblog.com/2019/05/25/scientists-discover-biological-reas on-why-women-are-more-likely-to-develop-adrenal-disorders/ X-ALT-DESC;FMTTYPE=text/html:Scientists have discovered a potential biol ogical reason why women are more likely to develop adrenal disorders\, inc luding cancer. According to the researchers\, the answer could lie in the increased turnover of hormone-producing cells found in the adrenal glands of females.
Read more at \;https://cushieblog.com/2019/0 5/25/scientists-discover-biological-reason-why-women-are-more-likely-to-de velop-adrenal-disorders/
CATEGORIES:News Items UID:20190525T1517100Z-549422-1169@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181027 SUMMARY:Barrow Pituitary Center Patient Education Day DESCRIPTION:The Barrow Pituitary Center is dedicated to educating patients\ , caregivers\, and loved ones by providing information which is current an d non-biased. Experts at this conference will address management of the em otional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about the ir healthcare and achieve their goals for a long and fruitful life. Read m ore at https://cushieblogger.com/2018/10/13/barrow-pituitary-center-patien t-education-day/ X-ALT-DESC;FMTTYPE=text/html:The Barrow Pituitary Center is dedicated to educating patients\, caregivers\, and loved ones by providing information which is current and non-biased. Experts at this conference will address management of the emotional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about their healthcare and achieve their goals for a long and f ruitful life.
Read more at \;https://cushieblogger.com/2018/10/13/barrow-pituitary-center-patient-ed ucation-day/
CATEGORIES:Events and Meetings UID:20181013T1509350Z-549422-992@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231111 SUMMARY:Basics: What Is Moon Face? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301111;BYMONTHDAY=11 DESCRIPTION:Among the most common causes of moon face is Cushing's syndrome —a condition that occurs when your body makes too much cortisol\, which is commonly referred to as the 'stress hormone.' One of the most common symp toms of Cushing's syndrome is moon face\, but you might also experience da rkening of the skin\, weight gain\, and muscle weakness. Read more at http s://cushings.invisionzone.com/topic/57665-basics-what-is-moon-face/ X-ALT-DESC;FMTTYPE=text/html:Among the most common causes of moon face is \;Cushing's syndrome&mdash\;a condit ion that occurs when your body makes too much \;cortisol< /span>\, which is commonly referred to as the 'stress hormone.' One of the most common symptoms of Cushing's syndrome is moon face\, but you m ight also experience darkening of the skin\, weight gain\, and muscle weak ness.
Read more at \;https://cushings.invisionzone.com/topic/57665-basics-what-is-mo on-face/
CATEGORIES:Cushings UID:20231111T1508450Z-549422-1709@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210312 SUMMARY:Cushing’s Disease Caused by a Pituitary Microadenoma Coexistent wit h a Meningioma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220312;BYMONTHDAY=12 DESCRIPTION:Meningioma is the most common type of primary intracranial tumo r and is usually benign. The patient in this case report presented with CD coexisting with pituitary microadenoma and meningioma\, which is an extre mely rare comorbidity. Read more at https://cushings.invisionzone.com/top ic/55565-cushing%E2%80%99s-disease-caused-by-a-pituitary-microadenoma-coex istent-with-a-meningioma/ X-ALT-DESC;FMTTYPE=text/html:Meningioma is the most common type of prima ry intracranial tumor and is usually benign. The patient in this case repo rt presented with CD coexisting with pituitary microadenoma and meningioma \, which is an extremely rare comorbidity. \;
Read more at&nbs p\;https://cushings.invisionzone.com/topic/55565-cushing%E2 %80%99s-disease-caused-by-a-pituitary-microadenoma-coexistent-with-a-menin gioma/
CATEGORIES:News Items UID:20210312T0828180Z-549422-1330@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181115 SUMMARY:New MemberMap Coming! DESCRIPTION:I'm having to rebuild the Cushing's Member Map from old info an d the newer bios that are coming in. Find the new MemberMap here Add your information - or your doctor's - at https://cushingsbios.com/2018/10/28/w e-have-a-new-bio-form/ X-ALT-DESC;FMTTYPE=text/html:I'm having to rebuild the Cushing's Member Map from old info and the newer bios that are coming in. \;Find the n ew \;MemberMap here
Ad d your information - or your doctor's - at \;https://cushi ngsbios.com/2018/10/28/we-have-a-new-bio-form/
CATEGORIES:Cushie Bios UID:20181117T1605560Z-549422-1027@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181117 SUMMARY:Lesley Rees was born in 1942 DESCRIPTION:(1942) British professor\, medical doctor\, and endocrinologist Lesley Rees was born. She has improving medical education and published o ver 300 articles in peer-reviewed journals\, many on endocrinology. X-ALT-DESC;FMTTYPE=text/html:(1942) British professor\, medical doctor\, and endocrinologist Lesley Rees was born. She has improving medical educa tion and published over 300 articles in peer-reviewed journals\, many on e ndocrinology.
CATEGORIES:This Day in Medical History UID:20181117T1754400Z-549422-1029@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Jayne\, In the Media DTSTART;VALUE=DATE:20181215 DTEND;VALUE=DATE:20181216 RRULE:FREQ=MONTHLY;UNTIL=20191117;BYDAY=3SA DESCRIPTION:Jayne who was diagnosed with Cushing's disease and became pregn ant despite her illness\, which usually makes women infertile. Jayne was t he subject of a Live Interview in the Cushings Help Voice Chat / Podcast s eries. Read more at https://cushingsbios.com/2018/11/17/jayne-in-the-media / X-ALT-DESC;FMTTYPE=text/html:Jayne who was diagnosed with Cushing's dise ase and became pregnant despite her illness\, which usually makes women in fertile. Jayne was the subject of a Live Interview in the Cushings Help Vo ice Chat / Podcast series.
Read more at \;https://cush ingsbios.com/2018/11/17/jayne-in-the-media/
CATEGORIES:Cushie Bios UID:20181117T1658290Z-549422-1028@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181117 SUMMARY:Comment added to Guest Question: Is Itching Common with Cushing’s Syndrome? DESCRIPTION:Were your itching\, flushing and elevated BP episodes (cyclic) or there all of the time? In the comments area of https://cushieblogger.co m/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Were your itching\, flushing and elevated B P episodes (cyclic) or there all of the time?
In the comments area of \;https://cushieblog ger.com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome /
CATEGORIES:Cushings UID:20181117T1756300Z-549422-1030@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250927 SUMMARY:Changing face of Cushing’s Disease Over Three Decades in Pituitary Center RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300927;BYMONTHDAY=27 DESCRIPTION:As the clinical presentation of Cushing’s disease changes over time\, waiting for the typical Cushing’s clinic can delay diagnosis. It is important that clinicians take this into account when they suspect CD. ht tps://cushings.invisionzone.com/topic/57886-changing-face-of-cushing%E2%80 %99s-disease-over-three-decades-in-pituitary-center/ X-ALT-DESC;FMTTYPE=text/html:As the clinical presentation of Cushi ng&rsquo\;s disease changes over time\, waiting for the typical Cushing&rs quo\;s clinic can delay diagnosis. It is important that clinicians take th is into account when they suspect CD.
https://cushings.invisionzone.com/topic/57886-changing-face-of-cush ing%E2%80%99s-disease-over-three-decades-in-pituitary-center/ CATEGORIES:Cushings UID:20250927T1419520Z-549422-1941@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221024 SUMMARY:Evaluation of Ketoconazole As a Treatment for Cushing’s Disease in a Retrospective Cohort RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301024;BYMONTHDAY=24 DESCRIPTION:The first-line treatment for Cushing’s disease is transsphenoid al surgery\, after which the rates of remission are 60 to 80%\, with long- term recurrence of 20 to 30%\, even in those with real initial remission. Drug therapies are indicated for patients without initial remission or wit h surgical contraindications or recurrence\, and ketoconazole is one of th e main available therapies. Read more at https://cushings.invisionzone.com /topic/57574-evaluation-of-ketoconazole-as-a-treatment-for-cushing%E2%80%9 9s-disease-in-a-retrospective-cohort/ X-ALT-DESC;FMTTYPE=text/html:
The first-line treatment for Cushing& rsquo\;s disease is transsphenoidal surgery\, after which the rates of rem ission are 60 to 80%\, with long-term recurrence of 20 to 30%\, even in th ose with real initial remission. Drug therapies are indicated for patients without initial remission or with surgical contraindications or recurrenc e\, and ketoconazole is one of the main available therapies.
< p>Read more at \;https://c ushings.invisionzone.com/topic/57574-evaluation-of-ketoconazole-as-a-treat ment-for-cushing%E2%80%99s-disease-in-a-retrospective-cohort/ CATEGORIES:Cushings UID:20221024T1250220Z-549422-1619@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181021 SUMMARY:What do YOU Think? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191021;BYMONTHDAY=21 DESCRIPTION:What do you think? Are your allergies worse or are you having new ones after being post-op Cushing's? Read more at https://cushieblogger .com/2018/10/21/what-do-you-think-2/ X-ALT-DESC;FMTTYPE=text/html:What do you think? \;Are your allergie s worse or are you having new ones after being post-op Cushing's?
Read more at \;https://cushieblogger.com/2018/10/21/what-do-you-think-2/
CATEGORIES:Cushings UID:20181022T0300200Z-549422-996@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250407 SUMMARY:Merck Manuals: Answering Common Questions About Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300407;BYMONTHDAY=7 DESCRIPTION:High cortisol – and its deleterious effects on the body – may b e a more commonly recognized phrase in today's healthcare lexicon. Still\, doctors say there is a need for more awareness of a rare and potentially life-threatening condition involving cortisol\, known as Cushing's Syndrom e https://cushings.invisionzone.com/topic/57808-merck-manuals-answering-co mmon-questions-about-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:High cortisol &ndash\; and its delete rious effects on the body &ndash\; may be a more commonly recognized phras e in today's healthcare lexicon. Still\, doctors say there is a need for m ore awareness of a rare and potentially life-threatening condition involvi ng cortisol\, known as \;Cushing's Syndrome
CATEGORIES:Cushings UID:20250407T1619120Z-549422-1871@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250326 SUMMARY:First-Episode Psychosis and Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300326;BYMONTHDAY=26 DESCRIPTION:Neuropsychiatric symptoms of Cushing syndrome are well document ed\, including irritability\, anxiety\, depressed mood\, and cognitive imp airment. https://cushings.invisionzone.com/topic/57800-first-episode-psych osis-and-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Neuropsychiatric symptoms of Cushing syndrome are well documented\, including irritability\, anxiety\, depresse d mood\, and cognitive impairment.
https://cushings.invisionzone.com /topic/57800-first-episode-psychosis-and-cushing-syndrome/
CATEGORIES:Cushings UID:20250326T1525530Z-549422-1865@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250326 SUMMARY:Cushing's Clinical Trial RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260326;BYMONTHDAY=26 DESCRIPTION:Cushing's Syndrome (Hypercortisolism) patients United States 30 -minute online survey\, compensation is $60 https://cushings.invisionzone. com/topic/57799-take-part-in-a-cushings-clinical-trial/ X-ALT-DESC;FMTTYPE=text/html:Cus
hing's Syndrome (Hypercortisolism) patients \;United
States
30-minute online survey\, compensation is \;
https://cushings.invisionzone.co m/topic/57799-take-part-in-a-cushings-clinical-trial/
CATEGORIES:Cushings UID:20250326T1429350Z-549422-1864@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Webinar Announcement: Unlocking The Cavernous Sinus - Applications Of Advanced Surgical Anatomy For Management Of Invasive Pituitary Tumors DTSTART;VALUE=DATE:20240702 DTEND;VALUE=DATE:20240703 RRULE:FREQ=WEEKLY;UNTIL=20240710;BYDAY=WE,SA DESCRIPTION:Presented By: Dr. Almeida of Mayo Clinic Wednesday July 10\, 20 24 10:00 AM – 11:00 AM EDT Learning Objectives: TBD Read more at https:// cushings.invisionzone.com/topic/57742-webinar-announcement-unlocking-the-c avernous-sinus-applications-of-advanced-surgical-anatomy-for-management-of -invasive-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:Presented By: Dr. Almeida of Mayo Clinic
Wednesday July 10\, 2024
10:00 AM &ndash\; 11:00 AM \
; EDT
Learning Objectives: TBD
While American actress Amy Schumer is sprea ding the word about Cushing&rsquo\;s in general\, I think that in some way s she is hurting things for everyone else. \; \;CBS N ews reports that &ldquo\;she says she now feels &lsquo\;reborn&rsquo\; aft er her diagnosis\, and while some forms of Cushing can be fatal\, she has a type that &lsquo\;will just work itself out.&rsquo\;&rdquo\;
How many others will try to get diagnosed and only be told not to worry\, tha t it &ldquo\;will just work itself out&rdquo\;?
Read more at \ ;https://cushings.invisionzone.com/topic/56733-day-1-cushin gs-awareness-challenge-2022/?do=findComment&\;comment=478703
CATEGORIES:Awareness Challenge UID:20240402T1253590Z-549422-1764@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240323 SUMMARY:Medium and Long-Term Data from a Series of 96 Endoscopic Transsphen oidal Surgeries for Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300323;BYMONTHDAY=23 DESCRIPTION:Postoperative data on Cushing’s disease (CD) are equivocal in t he literature. These discrepancies may be attributed to different series w ith different criteria for remission and variable follow-up durations. Add itional data from experienced centers may address these discrepancies. In this study\, we present the results obtained from 96 endoscopic transsphen oidal surgeries (ETSSs) for CD conducted in a well-experienced center. Rea d more at https://cushings.invisionzone.com/topic/57706-medium-and-long-te rm-data-from-a-series-of-96-endoscopic-transsphenoidal-surgeries-for-cushi ng-disease/ X-ALT-DESC;FMTTYPE=text/html:Postoperative data on Cushing&rsquo\; s disease (CD) are equivocal in the literature. These discrepancies may be attributed to different series with different criteria for remission and variable follow-up durations. Additional data from experienced centers may address these discrepancies. In this study\, we present the results obtai ned from 96 endoscopic transsphenoidal surgeries (ETSSs) for CD conducted in a well-experienced center.
CATEGORIES:Cushings UID:20240323T1232020Z-549422-1759@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240113 SUMMARY:Metformin Inhibits Cell Proliferation and ACTH Secretion In AtT20 C ells Via Regulating the Mapk Pathway RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300113;BYMONTHDAY=13 DESCRIPTION:In conclusion\, metformin inhibits tumor progression and ACTH s ecretion\, potentially through suppression of the MAPK pathway in AtT20 ce ll lines. These findings suggest metformin as a potential drug for the tre atment of Cushing's disease. Read more at https://cushings.invisionzone.co m/topic/57684-metformin-inhibits-cell-proliferation-and-acth-secretion-ina tt20-cells-via-regulating-the-mapk-pathway/ X-ALT-DESC;FMTTYPE=text/html:In conclusion\, metformin inhibits tumor pr ogression and ACTH secretion\, potentially through suppression of the \;MAPK \;pathway in AtT20 \;cell lines. These findings suggest met formin as a potential \;drug \;for the \;treatment \;of&nb sp\;Cushing's disease.
CATEGORIES:Cushings UID:20240113T1528560Z-549422-1735@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231021 SUMMARY:Ectopic Cushing’s Syndrome From a Corticotropin-Releasing Hormone-S ecreting Medullary Thyroid Carcinoma: a Rare Pitfall af Inferior Petrosal Sinus Sampling RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301021;BYMONTHDAY=21 DESCRIPTION:This case shows that Cushing’s Syndrome (CS) caused by ectopic corticotropin-releasing hormone (CRH) secretion may masquerade as CS due t o a false positive inferior petrosal sinus sampling test (IPSS) test. It a lso highlights the importance of considering rare causes of CS when diagno stic test results are ambiguous. Read more at https://cushings.invisionzon e.com/topic/57653-ectopic-cushing%E2%80%99s-syndrome-from-a-corticotropin- releasing-hormone-secreting-medullary-thyroid-carcinoma-a-rare-pitfall-af- inferior-petrosal-sinus-sampling/ X-ALT-DESC;FMTTYPE=text/html:This case shows that Cushing&rsquo\;s Syndr ome (CS) caused by ectopic corticotropin-releasing hormone (CRH) secretion may masquerade as CS due to a false positive inferior petrosal sinus samp ling test (IPSS) test. It also highlights the importance of considering ra re causes of CS when diagnostic test results are ambiguous.
CATEGORIES:Cushings UID:20231021T0916480Z-549422-1695@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230905 SUMMARY:Long-Term Efficacy and Safety of Osilodrostat in Patients with Cush ing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300905;BYMONTHDAY=5 DESCRIPTION:Osilodrostat provided long-term control of cortisol secretion t hat was associated with sustained improvements in clinical signs and physi cal manifestations of hypercortisolism. Osilodrostat is an effective long- term treatment for patients with Cushing’s disease. Read more at https://c ushings.invisionzone.com/topic/57632-long-term-efficacy-and-safety-of-osil odrostat-in-patients-with-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Osilodrostat provided long-term contr ol of cortisol secretion that was associated with sustained improvements i n clinical signs and physical manifestations of hypercortisolism. Osilodro stat is an effective long-term treatment for patients with Cushing&rsquo\; s disease.
Read more at \; https://cushings.invisionzone.com/topic/57632-long-term-efficacy-and-safet y-of-osilodrostat-in-patients-with-cushing%E2%80%99s-disease/
CATEGORIES:Cushings UID:20230905T1305370Z-549422-1671@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230811 SUMMARY:BMD may Underestimate Bone Deterioration for Women with Endogenous Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300811;BYMONTHDAY=11 DESCRIPTION:Of the 40 women with Cushing’s syndrome\, 32 were ACTH-dependen t and the other eight were ACTH independent. Of the independent group\, se ven had adrenal adenoma and one had adrenocortical carcinoma. Read more at https://cushings.invisionzone.com/topic/57623-bmd-may-underestimate-bone- deterioration-for-women-with-endogenous-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Of the 40 women with Cushing&rsquo\;s syndr ome\, 32 were ACTH-dependent and the other eight were ACTH independent. Of the independent group\, seven had adrenal adenoma and one had adrenocorti cal carcinoma.
Read more at \;https://cushings.invisionzone.com/topic/57623-bmd-may-underestimate-bone -deterioration-for-women-with-endogenous-cushing%E2%80%99s-syndrome/ CATEGORIES:Cushings UID:20230811T1117280Z-549422-1663@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190420 SUMMARY:Archived Interview: Jackie (samsmom) and Jordan DESCRIPTION:Jackie (samsmom) & Jordan: Cushing’s in young people\, the figh t to diagnose\, the amazing gift of a GOOD endocrinologist. Jackie has app eared on Discovery Health discussing her fight for a cure for her younger daughter\, as well. Later\, the gene responsible for Sam’s illness was fou nd. Her father carried the gene as did her two sisters. Jordan\, Jackie’s oldest daughter\, has recently had her adrenals removed. Listen at https:/ /cushieblogger.com/2019/04/23/archived-interview-jackie-samsmom-and-jordan / X-ALT-DESC;FMTTYPE=text/html:
Jackie (samsmom) &\; Jordan: Cushing&rsq uo\;s in young people\, the fight to diagnose\, the amazing gift of a GOOD endocrinologist. Jackie has appeared on Discovery Health discussing her f ight for a cure for her younger daughter\, as well. Later\, the gene respo nsible for Sam&rsquo\;s illness was found. Her father carried the gene as did her two sisters. Jordan\, Jackie&rsquo\;s oldest daughter\, has recent ly had her adrenals removed.
Listen at \;https://cushieblogger.com/2019/04/23/archived-interview-jack ie-samsmom-and-jordan/
CATEGORIES:Events and Meetings UID:20190423T2330070Z-549422-1141@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221212 SUMMARY:Reoperation for Recurrent and Persistent Cushing’s Disease without Visible MRI Findings RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20251212;BYMONTHDAY=12 DESCRIPTION:Transsphenoidal surgery is the first-line treatment for Cushing ’s disease (CD)\, even with negative preoperative magnetic resonance imagi ng (MRI) results. Some patients with persistent or recurring hypercortisol ism have negative MRI findings after the initial surgery. We aimed to anal yze the efficacy of repeat surgery in two groups of patients and determine if there is an association between positive MRI findings and early remiss ion. Read more at https://cushings.invisionzone.com/topic/57583-reoperatio n-for-recurrent-and-persistent-cushing%E2%80%99s-disease-without-visible-m ri-findings/ X-ALT-DESC;FMTTYPE=text/html:Transsphenoidal surgery is the first- line treatment for Cushing&rsquo\;s disease (CD)\, even with negative preo perative magnetic resonance imaging (MRI) results. Some patients with pers istent or recurring hypercortisolism have negative MRI findings after the initial surgery. We aimed to analyze the efficacy of repeat surgery in two groups of patients and determine if there is an association between posit ive MRI findings and early remission.
CATEGORIES:News Items UID:20221212T0922390Z-549422-1632@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221001 SUMMARY:What Do *You* Think? Alternate Treatments RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301001;BYMONTHDAY=1 DESCRIPTION:Has your doctor ever tried to dissuade you from using an altern ative treatment? Read more at https://cushings.invisionzone.com/topic/5756 7-what-do-you-think-alternative-treatments/ X-ALT-DESC;FMTTYPE=text/html:
Has your doctor ever tried to dissuade you from using an alternative treatment?
Read more at \;https://cushings.invisionzone .com/topic/57567-what-do-you-think-alternative-treatments/
CATEGORIES:Cushings UID:20221001T2133120Z-549422-1614@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190508 SUMMARY:Metoclopramide Can Mask Adrenal Insufficiency After Gland Removal i n BMAH Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200508;BYMONTHDAY=8 DESCRIPTION:Metoclopramide\, a gastrointestinal medicine\, can increase cor tisol levels after unilateral adrenalectomy — the surgical removal of one adrenal gland — and conceal adrenal insufficiency in bilateral macronodula r adrenal hyperplasia (BMAH) patients\, a case report suggests...BMAH is a subtype of adrenal Cushing’s syndrome\, characterized by the formation of nodules and enlargement of both adrenal glands. Read more at https://cush ieblog.com/2019/05/08/metoclopramide-can-mask-adrenal-insufficiency-after- gland-removal-in-bmah-patients/ X-ALT-DESC;FMTTYPE=text/html:Metoclopramide\, a gastrointestinal medicin e\, can increase cortisol levels after unilateral adrenalectomy &mdash\; t he surgical removal of one adrenal gland &mdash\; and conceal adrenal insu fficiency in bilateral macronodular adrenal hyperplasia (BMAH) patients\, a case report suggests...BMAH is a subtype of adrenal Cushing&rsquo\;s syn drome\, characterized by the formation of nodules and enlargement of both adrenal glands.
Read more at \;https://cushieblog.com/2019/05/08/m etoclopramide-can-mask-adrenal-insufficiency-after-gland-removal-in-bmah-p atients/
CATEGORIES:News Items UID:20190508T1534420Z-549422-1158@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210319 SUMMARY:Nasal Swab Test for COVID-19 Risky for Sinus Surgery Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220319;BYMONTHDAY=19 DESCRIPTION:There is an absence of online information regarding the risks o f severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) nasopharyng eal swab (NPS) testing for patients with a history of sinus and/or pituita ry surgery\, according to a research letter published online March 4 in JA MA Otolaryngology-Head & Neck Surgery. Read more at https://cushings.inv isionzone.com/topic/55573-nasal-swab-test-for-covid-19-risky-for-sinus-sur gery-patients/?tab=comments#comment-475826 X-ALT-DESC;FMTTYPE=text/html:There is an absence of online information r egarding the risks of severe acute respiratory syndrome coronavirus 2 (SAR S-CoV-2) nasopharyngeal swab (NPS) testing for patients with a history of sinus and/or pituitary surgery\, according to a research letter published online March 4 in \;JAMA Otolaryngology-Head &\; Neck Surgery.
\;
CATEGORIES:News Items UID:20210319T1315590Z-549422-1337@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:About the Hypothalamus-Pituitary- Adrenal Axis (HPA Axis) DTSTART;VALUE=DATE:20180512 DTEND;VALUE=DATE:20180513 RRULE:FREQ=MONTHLY;UNTIL=20250414;BYDAY=2SA DESCRIPTION:This is a video is on the HPA Axis. You may have to sign up/log in to view this video but Coursera is free – and you might find other cou rses of interest! Read more at https://cushieblog.com/2015/02/06/hypothala mus-pituitary-adrenal-axis/ X-ALT-DESC;FMTTYPE=text/html:This is a \;video is on the HPA Axis.
You may have to sign up/log in to view this video but Coursera is f ree &ndash\; and you might find other courses of interest!
Read mo re at \;https://cushieblog.com/2015/02/06/hypot halamus-pituitary-adrenal-axis/
CATEGORIES:Cushings UID:20180414T1306050Z-549422-908@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200601 SUMMARY:New Helpful Doctor added to Washington\, DC RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210601;BYMONTHDAY=1 DESCRIPTION:Susmeeta Sharma\, MD\, is the director of pituitary endocrinolo gy at the MedStar Pituitary Center. Dr. Sharma has extensive experience in evaluating and treating patients with pituitary disorders such as prolact inoma\, Cushing's disease\, acromegaly\, non-functioning pituitary tumors\ , adrenal insufficiency and other pituitary hormone deficiencies. Her clin ical research interests include pathogenesis and diagnosis of hormonally a ctive pituitary tumors as well as development of non-surgical treatment mo dalities for management of pituitary tumors. Read more at https://cushiebl ogger.com/2020/06/01/helpful-doctors-washington-d-c/ X-ALT-DESC;FMTTYPE=text/html:Susmeeta Sharma\, MD\, is the director of p ituitary endocrinology at the \;MedStar Pituitary Center. Dr. Sharma has extensive experience in evaluating and treating patients with pituitary disorders such as prolacti noma\, Cushing's disease\, acromegaly\, non-functioning pituitary tumors\, adrenal insufficiency and other pituitary hormone deficiencies. Her clini cal research interests include pathogenesis and diagnosis of hormonally ac tive pituitary tumors as well as development of non-surgical treatment mod alities for management of pituitary tumors.
Read more at \;https://cushieblogger.com/2020/06/01/helpful-doctors-was hington-d-c/
CATEGORIES:Helpful Doctors UID:20200601T1446490Z-549422-1264@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220225 SUMMARY:“A Window into Rare” a Rare Disease Day Panel Discussion DESCRIPTION:Join our Rare Disease Day virtual panel discussion as BioNews c olumnists from a variety of our rare communities participate in a lively c onversation with fellow patient advocate Liza Bernstein. This window into often overlooked aspects of life with a rare disease will provide a variet y of patient perspectives. Topics will include awareness and advocacy\, e quity\, mental health\, empowerment\, and more. We invite everyone to join us for this signature event and look forward to your participation in the Q and A! Read more at https://cushings.invisionzone.com/topic/56618-%E2%8 0%9Ca-window-into-rare%E2%80%9D-a-rare-disease-day-panel-discussion/ X-ALT-DESC;FMTTYPE=text/html:Join our Rare Disease Day virtual panel dis cussion as BioNews columnists from a variety of our rare communities parti cipate in a lively conversation with fellow patient advocate Liza Bernstei n. This window into often overlooked aspects of life with a rare disease w ill provide a variety of patient perspectives. \;
Topics will include awareness and advocacy\, equity\, mental health\, empowerment\, an d more. We invite everyone to join us for this signature event and look fo rward to your participation in the Q and A!
Read more at \;https ://cushings.invisionzone.com/topic/56618-%E2%80%9Ca-window-into-rare%E2%80 %9D-a-rare-disease-day-panel-discussion/
CATEGORIES:Cushings UID:20220225T0748590Z-549422-1520@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231215 SUMMARY:In Memory: Judy Kennedy - December 15\, 2019 DESCRIPTION:Judy died on December 15\, 2019\, after battling lung cancer\, Atrial fibrillation\, and total body weakness. She was a great warrior fo r her children. More information at https://cushingsbios.com/2021/12/15/in -memory-of-judy-kennedy-december-15-2019/ X-ALT-DESC;FMTTYPE=text/html:Judy died on December 15\, 2019\, after bat tling lung cancer\, Atrial fibrillation\, and total body weakness. \; She was a great warrior for her children.
More information at \;https://cushingsbios.com/ 2021/12/15/in-memory-of-judy-kennedy-december-15-2019/
CATEGORIES:In Memory UID:20231215T1546150Z-549422-1721@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory: Judy Kennedy - December 15\, 2019 RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301215;BYMONTH=12;BYMONTHDAY=15 DTSTART;VALUE=DATE:20191215 DTEND;VALUE=DATE:20191216 EXDATE;VALUE=DATE:20231215 DESCRIPTION:Judy died on December 15\, 2019\, after battling lung cancer\, Atrial fibrillation\, and total body weakness. She was a great warrior fo r her children. More information at https://cushingsbios.com/2021/12/15/in -memory-of-judy-kennedy-december-15-2019/ X-ALT-DESC;FMTTYPE=text/html:Judy died on December 15\, 2019\, after bat tling lung cancer\, Atrial fibrillation\, and total body weakness. \; She was a great warrior for her children.
More information at \;https://cushingsbios.com/2021/12/15/in-m emory-of-judy-kennedy-december-15-2019/
CATEGORIES:In Memory UID:20211215T1421280Z-549422-1220@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Margaret D (MargaretD)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301203;BYMONTH=12;BYMONTHDAY=3 DTSTART;VALUE=DATE:20251203 DTEND;VALUE=DATE:20251204 DESCRIPTION:My story spands over 20 years and may sound familiar to many wi th Cushings who read this. The first clue came when I was diagnosed at 19 yrs old with a thyroid tumor. The tumor turned out to be both solid and cy stic… Cushings is a cystic disease. Shortly after my thyroid surgery\, I d eveloped difficulties with having regular menstrual cycle. I was diagnosed with PCOS… Cushings is a cystic disease. https://cushingsbios.com/2025/12 /03/margaret-d-margaretd-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:My story spands over 20 years and may sound familiar to many with Cushings who read this. The first clue came when I was diagnosed at 19 yrs old with a thyroid tumor. The tumor turned out to be both solid and cystic&hellip\; Cushings is a cystic disease.
Sh ortly after my thyroid surgery\, I developed difficulties with having regu lar menstrual cycle. I was diagnosed with PCOS&hellip\; Cushings is a cyst ic disease.
https://cushing sbios.com/2025/12/03/margaret-d-margaretd-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251204T1141100Z-549422-2018@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Michelle (Michelle)\, Cyclical Cushing’s Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301111;BYMONTH=11;BYMONTHDAY=11 DTSTART;VALUE=DATE:20251111 DTEND;VALUE=DATE:20251112 DESCRIPTION:It was a nightmare then I went to Mayo Clinic where she thought I had cushings from an external source ( September ) she told me to just wait and everything would go back to normal. Even though there was no outs ide steroid source. Then I wasn’t getting better in the end of October I w ent to two doctors in nyc\, who didn’t do anything. https://cushingsbios.c om/2025/11/10/michelle-michelle-cyclical-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:It was a nightmare then I went to Mayo Clin ic where she thought I had cushings from an external source ( September ) she told me to just wait and everything would go back to normal. Even thou gh there was no outside steroid source.
Then I wasn&rsquo\;t getti ng better in the end of October I went to two doctors in nyc\, who didn&rs quo\;t do anything.
ht tps://cushingsbios.com/2025/11/10/michelle-michelle-cyclical-cushings-bio/
CATEGORIES:Cushie Bios UID:20251111T0857480Z-549422-1977@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251111 SUMMARY:Complete Surgical Resection of Cortisol Secreting Neuroendocrine Th ymic Tumour RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301111;BYMONTHDAY=11 DESCRIPTION:43-year-old male presented with Cushing’s syndrome and was diag nosed with a cortical secreting atypical carcinoid of the thymus. He under went a robotic thymectomy. https://cushings.invisionzone.com/topic/57911- complete-surgical-resection-of-cortisol-secreting-neuroendocrine-thymic-tu mour/ X-ALT-DESC;FMTTYPE=text/html:43-year-old male presented with Cushi ng&rsquo\;s syndrome and was diagnosed with a cortical secreting atypical carcinoid of the thymus. He underwent a robotic thymectomy. \;< /p>
CATEGORIES:Cushings UID:20251111T0849570Z-549422-1976@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Andrea P\, Steroid-Induced Cushing’s RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301201;BYMONTH=12;BYMONTHDAY=1 DTSTART;VALUE=DATE:20251201 DTEND;VALUE=DATE:20251202 DESCRIPTION:What can you do when the cure might be worse than the disease? “Have you thought of losing some weight? This would most likely take care of the many complaints you have.” The all too eager yet condescending youn g intern continued despite my blank stare\, “Have you had a sleep study do ne?” How many times had I been in this situation? Change the doctor\, but keep me there\, in the crazy patient’s chair. “Well\, the patient has five children\, a long history of miscarriages\, a fairly recent history of a traumatic abdominal hysterectomy… couple these with the recent death of he r father to cancer and basically all normal testing… clearly she’s a depre ssed\, middle aged woman hitting the Ben and Jerry’s a little too much and addicted to Lifetime movies.” Or something like that. https://cushingsbio s.com/2025/12/01/andrea-p-steroid-induced-cushings/ X-ALT-DESC;FMTTYPE=text/html:What can you do when the cure might be wors e than the disease?
&ldquo\;Have you thought of losing some weight ? This would most likely take care of the many complaints you have.&rdquo\ ; The all too eager yet condescending young intern continued despite my bl ank stare\, &ldquo\;Have you had a sleep study done?&rdquo\;
How m any times had I been in this situation? Change the doctor\, but keep me th ere\, in the crazy patient&rsquo\;s chair. &ldquo\;Well\, the patient has five children\, a long history of miscarriages\, a fairly recent history o f a traumatic abdominal hysterectomy&hellip\; couple these with the recent death of her father to cancer and basically all normal testing&hellip\; c learly she&rsquo\;s a depressed\, middle aged woman hitting the Ben and Je rry&rsquo\;s a little too much and addicted to Lifetime movies.&rdquo\; Or something like that.
https: //cushingsbios.com/2025/12/01/andrea-p-steroid-induced-cushings/
CATEGORIES:Cushie Bios UID:20251204T1133500Z-549422-2016@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Laree (Laree)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301202;BYMONTH=12;BYMONTHDAY=2 DTSTART;VALUE=DATE:20251202 DTEND;VALUE=DATE:20251203 DESCRIPTION:My Thanksgiving Day was less stressful this year than I thought it might be\, because I had my head examined the day before at Johns Hopk ins at about 9:30 in the morning. By 1:30 in the afternoon\, my endocrino logist there\, a metabolic bone specialist\, had emailed me that I was the proud parent of a 0.7mm lesion on the right side of my pituitary gland. All day Tuesday I had performance anxiety because I feared that after six months of testing every liquid my body could produce for excessive cortiso l\, I had finally been given the green light to undergo the Holy Grail of tests and have a look-see at the Master Gland. I feared that I wouldn’t b e able to come up with the goods\, but I managed to produce\, and now I’m being referred to a neurosurgeon. https://cushingsbios.com/2025/12/02/lare e-laree-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:My Thanksgiving Day was less stressfu l this year than I thought it might be\, because I had my head examined th e day before at Johns Hopkins at about 9:30 in the morning. \;By 1:30 in the afternoon\, my endocrinologist there\, a metabolic bone specialist \, had emailed me that I was the proud parent of a 0.7mm lesion on the rig ht side of my pituitary gland. \;All day Tuesday I had performance an xiety because I feared that after six months of testing every liquid my bo dy could produce for excessive cortisol\, I had finally been given the gre en light to undergo the Holy Grail of tests and have a look-see at the Mas ter Gland. \;I feared that I wouldn&rsquo\;t be able to come up with the goods\, but I managed to produce\, and now I&rsquo\;m being referred t o a neurosurgeon.
https ://cushingsbios.com/2025/12/02/laree-laree-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251204T1137490Z-549422-2017@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210812 SUMMARY:Crinetics Pharmaceuticals’ Oral ACTH Antagonist\, CRN04894\, Demons trates Pharmacologic Proof-of-Concept with Dose-Dependent Cortisol Suppres sion in Single Ascending Dose Portion of Phase 1 Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220812;BYMONTHDAY=12 DESCRIPTION:Crinetics Pharmaceuticals\, Inc announced positive preliminary findings from the single ascending dose (SAD) portion of a first-in-human Phase 1 clinical study with CRN04894 demonstrating pharmacologic proof-of- concept for this first-in-class\, investigational\, oral\, nonpeptide adre nocorticotropic hormone (ACTH) antagonist that is being developed for the treatment of conditions of ACTH excess\, including Cushing’s disease and c ongenital adrenal hyperplasia. Read more at https://cushings.invisionzone. com/topic/55941-crinetics-pharmaceuticals%E2%80%99-oral-acth-antagonist-cr n04894-demonstrates-pharmacologic-proof-of-concept-with-dose-dependent-cor tisol-suppression-in-single-ascending-dose-portion-of-phase-1-study/ X-ALT-DESC;FMTTYPE=text/html:Crinetics Pharmaceuticals\, Inc announced p ositive preliminary findings from the single ascending dose (SAD) portion of a first-in-human Phase 1 clinical study with CRN04894 demonstrating pha rmacologic proof-of-concept for this first-in-class\, investigational\, or al\, nonpeptide adrenocorticotropic hormone (ACTH) antagonist that is bein g developed for the treatment of conditions of ACTH excess\, including Cus hing&rsquo\;s disease and congenital adrenal hyperplasia.
CATEGORIES:News Items UID:20210812T1324500Z-549422-1411@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200808 SUMMARY:Short-Term Oral Corticosteroid Use Tied to Higher Risks of GI Bleed s\, Sepsis\, Heart Failure RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210808;BYMONTHDAY=8 DESCRIPTION:It has long been known that long-term use of corticosteroids ca n be both effective and toxic. Long-term use is associated with adverse ef fects such as infections\, GI bleeding/ulcers\, cardiovascular disease (CV D)\, Cushing syndrome\, diabetes and metabolic syndromes\, cataracts\, gla ucoma\, and osteoporosis. Most clinical practice guidelines caution agains t long-term steroid use unless medically necessary. Read more at https://c ushieblog.com/2020/08/08/short-term-oral-corticosteroid-use-tied-to-higher -risks-of-gi-bleeds-sepsis-heart-failure/ X-ALT-DESC;FMTTYPE=text/html:It has long been known that long-term use o f corticosteroids can be both effective and toxic. Long-term use is associ ated with adverse effects such as infections\, GI bleeding/ulcers\, cardio vascular disease (CVD)\, Cushing syndrome\, diabetes and metabolic syndrom es\, cataracts\, glaucoma\, and osteoporosis. Most clinical practice guide lines caution against long-term steroid use unless medically necessary.
Read more at \;https://cushieblog.com/2020/08/08/short-term-o ral-corticosteroid-use-tied-to-higher-risks-of-gi-bleeds-sepsis-heart-fail ure/
CATEGORIES:News Items UID:20200808T1354170Z-549422-1283@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Remembering Sue Koziol (SuziQ) DTSTART;VALUE=DATE:20180411 DTEND;VALUE=DATE:20180412 RRULE:FREQ=MONTHLY;UNTIL=20190314;BYDAY=2WE DESCRIPTION:She was a great Cushie friend to my mom\, Cookie Rothenberg. I am thankful for her and others fighting to educate doctors. and I can’t th ank SusieQ enough for being in my mom’s life. From https://cushingsbios.co m/2015/03/12/remembering-sue-koziol-suziq/ X-ALT-DESC;FMTTYPE=text/html:She was a great Cushie friend to my mom\, C ookie Rothenberg. I am thankful for her and others fighting to educate doc tors. and I can&rsquo\;t thank SusieQ enough for being in my mom&rsquo\;s life.
From \;https://cushingsbios.com/2015/0 3/12/remembering-sue-koziol-suziq/
CATEGORIES:Cushie Bios UID:20180314T1310470Z-549422-853@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180305 SUMMARY:Annie\, a Child's Pituitary Success Video RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190305;BYMONTHDAY=5 DESCRIPTION:Annie was treated at Eunice Kennedy Shriver National Institute of Child Health and Human Development for Cushing's Syndrome. See the vide o at https://cushieblogger.com/2018/03/05/annie-pituitary-video/ X-ALT-DESC;FMTTYPE=text/html:Annie was treated at Eunice Kennedy Shriver National Institute of Child Health and Human Development for Cushing's Sy ndrome.
See the video at \;https://cushieblogger.c om/2018/03/05/annie-pituitary-video/
CATEGORIES:Cushings UID:20180306T0130350Z-549422-845@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231005 SUMMARY:Investigating the Frequency of Active Adrenal Incidentalomas RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301005;BYMONTHDAY=5 DESCRIPTION: For a study\, researchers sought to ascertain the prevalence o f various forms of autonomous hormone secretion in individuals diagnosed w ith adrenal incidentaloma\, including autonomous/possible autonomous corti sol secretion (ACS)\, primary aldosteronism (PA)\, pheochromocytoma (PHEO) \, and Cushing syndrome (CS). Read more at https://cushings.invisionzone.c om/topic/57641-investigating-the-frequency-of-active-adrenal-incidentaloma s/ X-ALT-DESC;FMTTYPE=text/html:\;For a study\, researchers sought to ascertain the prevalence of various forms of autonomous hormone secretion in individuals diagnosed with adrenal incidentaloma\, including autonomous /possible autonomous cortisol secretion (ACS)\, primary aldosteronism (PA) \, pheochromocytoma (PHEO)\, and Cushing syndrome (CS).
Read more at \;https://cushings.invisionzone.com/topic/57641-investigating-the- frequency-of-active-adrenal-incidentalomas/
CATEGORIES:Cushings UID:20231006T1343100Z-549422-1684@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:7 Things Your Hair Reveals About Your Health DTSTART;VALUE=DATE:20220220 DTEND;VALUE=DATE:20220221 RRULE:FREQ=MONTHLY;UNTIL=20230116;BYDAY=3SU DESCRIPTION:Brittle hair is one of the symptoms of Cushing’s syndrome\, whi ch is a rare condition caused by excess cortisol\, the main hormone body s tress. But\, there are many other\, more obvious symptoms of Cushing’s syn drome\, including high blood pressure\, fatigue\, and back pain. Treatment for Cushing’s syndrome may involve changing the dose of medication that m ay be causing the condition\, such as glucocorticoids\, which are steroids used to treat inflammation caused by various diseases. Read more at https ://cushings.invisionzone.com/topic/56484-7-things-your-hair-reveals-about- your-health/ X-ALT-DESC;FMTTYPE=text/html:Brittle hair is one of the symptoms of Cush ing&rsquo\;s syndrome\, which is a rare condition caused by excess cortiso l\, the main hormone body stress. But\, there are many other\, more obviou s symptoms of Cushing&rsquo\;s syndrome\, including high blood pressure\, fatigue\, and back pain. Treatment for Cushing&rsquo\;s syndrome may invol ve changing the dose of medication that may be causing the condition\, suc h as glucocorticoids\, which are steroids used to treat inflammation cause d by various diseases.
Read more at \;https://cushings.invisionzone.com/topic/56484-7-things -your-hair-reveals-about-your-health/
CATEGORIES:Cushings UID:20220116T2354550Z-549422-1500@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220525 SUMMARY:Crinetics Pharmaceuticals (CRNX) Reports Positive Top-line Results Including Strong Adrenal Suppression from CRN04894 Phase 1 Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240525;BYMONTHDAY=25 DESCRIPTION:ACTH is the key regulator of the hypothalamic-pituitary adrenal (HPA) axis controlling adrenal activation. It is regulated by cortisol vi a a negative feedback loop that acts to inhibit ACTH secretion. This feedb ack loop is dysregulated in diseases of excess ACTH. In Cushing’s disease\ , a benign pituitary tumor drives excess ACTH secretion even in the presen ce of excess cortisol. Read more at https://cushings.invisionzone.com/topi c/56916-crinetics-pharmaceuticals-crnx-reports-positive-top-line-results-i ncluding-strong-adrenal-suppression-from-crn04894-phase-1-study/ X-ALT-DESC;FMTTYPE=text/html:ACTH is the key regulator of the hypothalam ic-pituitary adrenal (HPA) axis controlling adrenal activation. It is regu lated by cortisol via a negative feedback loop that acts to inhibit ACTH s ecretion. This feedback loop is dysregulated in diseases of excess ACTH. I n Cushing&rsquo\;s disease\, a benign pituitary tumor drives excess ACTH s ecretion even in the presence of excess cortisol.
Read more at&nbs p\;https://cushings .invisionzone.com/topic/56916-crinetics-pharmaceuticals-crnx-reports-posit ive-top-line-results-including-strong-adrenal-suppression-from-crn04894-ph ase-1-study/
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CATEGORIES:Cushings UID:20220526T1356150Z-549422-1573@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Is it Possible to Have Coexisting Exogenous and Endogenous Cushing' s Syndrome? RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300522;BYMONTH=5;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260522 DTEND;VALUE=DATE:20260523 DESCRIPTION:A 40-year-old female patient\, hypertensive for three months an d treated with 5 mg of amlodipine\, with newly diagnosed untreated diabete s mellitus\, presented to the emergency department with severe asthenia\, abdominal pain\, and vomiting. The medical history revealed prolonged self -medication with dexamethasone at a dose of 1 mg/day for three years in or der to gain weight. The patient reported having ceased this corticosteroid therapy 10 days prior to presentation. https://cushings.invisionzone.com/ topic/57960-is-it-possible-to-have-coexisting-exogenous-and-endogenous-cus hings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A 40-year-old female patient\, hypert ensive for three months and treated with 5 mg of amlodipine\, with newly d iagnosed untreated diabetes mellitus\, presented to the emergency departme nt with severe asthenia\, abdominal pain\, and vomiting. The medical histo ry revealed prolonged self-medication with dexamethasone at a dose of 1 mg /day for three years in order to gain weight. The patient reported having ceased this corticosteroid therapy 10 days prior to presentation.
CATEGORIES:Cushings UID:20260522T1509280Z-549422-2094@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Video: People Don’t Understand Cushing’s Disease RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300522;BYMONTH=5;BYMONTHDAY=22 DTSTART;VALUE=DATE:20260522 DTEND;VALUE=DATE:20260523 DESCRIPTION:Cushing’s disease changed my body\, my mind\, and honestly my w hole life. The swelling\, cortisol\, mood swings\, pain\, exhaustion… peop le don’t always understand how brutal it can be. This morning one of our v iewers shared that they were just diagnosed too\, and it hit me hard. So t o anybody out there fighting something silently — cancer\, Cushing’s\, chr onic illness\, fear\, depression\, anything… You are NOT alone. We’re pray ing for you over here. https://cushingsbios.com/2026/05/22/video-people-do nt-understand-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease changed my b ody\, my mind\, and honestly my whole life. The swelling\, cortisol\, mood swings\, pain\, exhaustion&hellip\; people don&rsquo\;t always understand how brutal it can be. This morning one of our viewers shared that they we re just diagnosed too\, and it hit me hard. So to anybody out there fighti ng something silently &mdash\; cancer\, Cushing&rsquo\;s\, chronic illness \, fear\, depression\, anything&hellip\; You are NOT alone. We&rsquo\;re p raying for you over here.
https://cushingsbios.com/2026 /05/22/video-people-dont-understand-cushings-disease/
CATEGORIES:Cushie Bios UID:20260522T1520530Z-549422-2095@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251112 SUMMARY:Endogenous Cushing's Syndrome Market Insights Highlight Expanding O utlook Till 2032 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301112;BYMONTHDAY=12 DESCRIPTION:Endogenous Cushing's Syndrome is a rare hormonal disorder cause d by the body's overproduction of cortisol\, a hormone produced by the adr enal glands. This overproduction can result from tumors or abnormalities i n the pituitary gland (Cushing's disease)\, adrenal glands\, or other part s of the body that cause excessive cortisol secretion. It contrasts with e xogenous Cushing's syndrome\, which results from external sources like lon g-term use of corticosteroid medications. https://cushings.invisionzone.co m/topic/57912-endogenous-cushings-syndrome-market-insights-highlight-expan ding-outlook-till-2032/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing's Syndrome is a ra re hormonal disorder caused by the body's overproduction of cortisol\, a h ormone produced by the adrenal glands. This overproduction can result from tumors or abnormalities in the pituitary gland (Cushing's disease)\, adre nal glands\, or other parts of the body that cause excessive cortisol secr etion. It contrasts with exogenous Cushing's syndrome\, which results from external sources like long-term use of corticosteroid medications.
CATEGORIES:Cushings UID:20251111T1419500Z-549422-1978@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210425 SUMMARY:Myth: “All Cushing’s patients have the exact same symptoms RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220425;BYMONTHDAY=25 DESCRIPTION:Fact: Everyone does NOT have the exact same symptoms. Not all C ushing’s patients are exactly the same. This is one mistake that non exper ts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not. Experts have come to learn that each patient should be treated individually. Though there are symptoms that are more prominent in the Cushing’s population\, not every patient has to mee t every single symptom in order to meet criteria for Cushing’s. For instan ce\, not all Cushing’s patients become overweight. Everyone does not gain the same amount of weight. There are various theories as to why. One issue is that different patients are diagnosed at different stages of the illne ss. We know that patients tend not to be diagnosed at the onset of the ill ness because of doctors’ misconception that Cushing’s patients must be ext remely obese to have the disease. So\, patients who have not gained as muc h weight may not be listened to until after the weight has gotten out of c ontrol. However\, there ARE patients who are diagnosed early enough where there has not been a tremendous amount of weight gain. Read more at https: //cushieblogger.com/2021/04/25/myth-all-cushings-patients-have-the-exact-s ame-symptoms-2/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;Everyone does NOT have the exac t same symptoms. Not all Cushing&rsquo\;s patients are exactly the same. T his is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not. Expe rts have come to learn that each patient should be treated individually. T hough there are symptoms that are more prominent in the Cushing&rsquo\;s p opulation\, not every patient has to meet every single symptom in order to meet criteria for Cushing&rsquo\;s.
For instance\, not all Cushin g&rsquo\;s patients become overweight. Everyone does not gain the same amo unt of weight. There are various theories as to why. One issue is that dif ferent patients are diagnosed at different stages of the illness. We know that patients tend not to be diagnosed at the onset of the illness because of doctors&rsquo\; misconception that Cushing&rsquo\;s patients must be e xtremely obese to have the disease. So\, patients who have not gained as m uch weight may not be listened to until after the weight has gotten out of control. However\, there ARE patients who are diagnosed early enough wher e there has not been a tremendous amount of weight gain.
Read more at \;https://cushiebl ogger.com/2021/04/25/myth-all-cushings-patients-have-the-exact-same-sympto ms-2/
CATEGORIES:Cushings UID:20210425T0804030Z-549422-1363@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220718 SUMMARY:Lisa S\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230718;BYMONTHDAY=18 DESCRIPTION:Lisa is from St. Louis Mo. In the last 9 months she has been i n the ICU twice for adrenal crisis after three pituitary surgeries. Nothin g is getting better. Read more at https://cushingsbios.com/2022/07/18/lisa -s-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Lisa is from St. Louis Mo. \;In the la st 9 months she has been in the ICU twice for adrenal crisis after three p ituitary surgeries. Nothing is getting better.
Read more at \; https://cushingsbios.com/2022/07/18/lisa-s-pituitary-bio/
CATEGORIES:Cushie Bios UID:20220718T1429290Z-549422-1592@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:7 Things Your Hair Reveals About Your Health DTSTART;VALUE=DATE:20220220 DTEND;VALUE=DATE:20220221 RRULE:FREQ=MONTHLY;UNTIL=20230116;BYDAY=3SU DESCRIPTION:Brittle hair is one of the symptoms of Cushing’s syndrome\, whi ch is a rare condition caused by excess cortisol\, the main hormone body s tress. But\, there are many other\, more obvious symptoms of Cushing’s syn drome\, including high blood pressure\, fatigue\, and back pain. Treatment for Cushing’s syndrome may involve changing the dose of medication that m ay be causing the condition\, such as glucocorticoids\, which are steroids used to treat inflammation caused by various diseases. Read more at https ://cushings.invisionzone.com/topic/56484-7-things-your-hair-reveals-about- your-health/ X-ALT-DESC;FMTTYPE=text/html:Brittle hair is one of the symptoms of Cush ing&rsquo\;s syndrome\, which is a rare condition caused by excess cortiso l\, the main hormone body stress. But\, there are many other\, more obviou s symptoms of Cushing&rsquo\;s syndrome\, including high blood pressure\, fatigue\, and back pain. Treatment for Cushing&rsquo\;s syndrome may invol ve changing the dose of medication that may be causing the condition\, suc h as glucocorticoids\, which are steroids used to treat inflammation cause d by various diseases.
Read more at \;https://cushings.invisionzone.com/topic/56484-7-things -your-hair-reveals-about-your-health/
CATEGORIES:Cushings UID:20220116T2354590Z-549422-1502@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240223 SUMMARY:Different Patient Versus Provider Perspectives on Living with Cushi ng’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270223;BYMONTHDAY=23 DESCRIPTION:Patients with Cushing’s disease (CD) face challenges living wit h and receiving appropriate care for this rare\, chronic condition. Even w ith successful treatment\, many patients experience ongoing symptoms and i mpaired quality of life (QoL). Different perspectives and expectations bet ween patients and healthcare providers (HCPs) may also impair well-being. Read more at https://cushings.invisionzone.com/topic/57696-different-patie nt-versus-provider-perspectives-on-living-with-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing&rsquo\;s diseas e (CD) face challenges living with and receiving appropriate care for this rare\, chronic condition. Even with successful treatment\, many patients experience ongoing symptoms and impaired quality of life (QoL). Different perspectives and expectations between patients and healthcare providers (H CPs) may also impair well-being.
Read more at \;< a href='https://cushings.invisionzone.com/topic/57696-different-patient-ve rsus-provider-perspectives-on-living-with-cushing%E2%80%99s-disease/' targ et='_blank' rel='nofollow'>https://cushings.invisionzone.com/topic/57696-d ifferent-patient-versus-provider-perspectives-on-living-with-cushing%E2%80 %99s-disease/
CATEGORIES:Cushings UID:20240223T1501320Z-549422-1748@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20201011 SUMMARY:Comment on Comment on Leah (Lele)\, diagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20211011;BYMONTHDAY=11 DESCRIPTION:i have been on high doses of prednisone for over a year and hav e all the symptoms of exogenous cushing syndrome but have been made to fee l like i\;m going mad. they have not diagnosed me as having this. i get so depressed with the pain sometimes and feel like they are only interested in the original condition not the side effects. Read more at https://cush ingsbios.com/2013/08/22/leah-lele-undiagnosed-bio/comment-page-1/#comment- 57283 X-ALT-DESC;FMTTYPE=text/html:i have been on high doses of prednisone for over a year and have all the symptoms of exogenous cushing syndrome but h ave been made to feel like i\;m going mad. they have not diagnosed me as h aving this. i get so depressed with the pain sometimes and feel like they are only interested in the original condition not the side effects. \;
Read more at \;ht tps://cushingsbios.com/2013/08/22/leah-lele-undiagnosed-bio/comment-page-1 /#comment-57283
CATEGORIES:Cushie Bios UID:20201011T1220500Z-549422-1301@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Can You Help? Buffalo Hump DTSTART;VALUE=DATE:20201109 DTEND;VALUE=DATE:20201110 RRULE:FREQ=MONTHLY;UNTIL=20211011;BYDAY=2SU DESCRIPTION:Hi I recently became aware of my possible buffalo hump after xr ays of my neck were normal except for a fat pad at the base of my neck. Af ter reading of some of the symptoms of Cushings it was a light bulb moment with so many symptoms being similar to what I’m going through. Read mo re at https://cushieblogger.com/2020/10/11/can-you-help-3/ X-ALT-DESC;FMTTYPE=text/html:Hi I recently became aware of my possible b uffalo hump after xrays of my neck were normal except for a fat pad at the base of my neck.
After reading of some of the symptoms of Cushing s it was a light bulb moment with so many symptoms being similar to what I &rsquo\;m going through. \;
\;
Read more at \ ;https://cushieblogger.com/2020/10/11/can-you-help-3/
CATEGORIES:Cushie Bios UID:20201011T1247180Z-549422-1302@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200912 SUMMARY:No Increased COVID-19 Risk With Adequately Treated Adrenal Insuffic iency RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210912;BYMONTHDAY=12 DESCRIPTION:There is no evidence that COVID-19 has a more severe course amo ng individuals with primary and secondary adrenal insufficiency\; however\ , those with adrenal insufficiency are at increased risk for respiratory a nd viral infections\, and patients experiencing major inflammation and fev er are at risk for life-threatening adrenal crisis. Read more at https://m aryomedical.com/2020/09/12/no-increased-covid-19-risk-with-adequately-trea ted-adrenal-insufficiency/ X-ALT-DESC;FMTTYPE=text/html:There is no evidence that COVID-19 has a mo re severe course among individuals with primary and secondary adrenal insu fficiency\; however\, those with adrenal insufficiency are at increased ri sk for respiratory and viral infections\, and patients experiencing major inflammation and fever are at risk for life-threatening adrenal crisis.
Read more at \;https://maryomedical.com/2020/09/12/no-increased-covid-19-ris k-with-adequately-treated-adrenal-insufficiency/
CATEGORIES:Other Medical UID:20200912T1441300Z-549422-1291@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200912 SUMMARY:Study Shows Metyrapone Effective for Treating Rare Cushing’s Syndro me RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210912;BYMONTHDAY=12 DESCRIPTION:Frederique Welgryn\, Managing Director of HRA Pharma Rare Disea ses\, added: “Cushing’s Syndrome is a chronic disease that can lead to det erioration in patients’ conditions if not treated appropriately. We are th rilled to announce that this first prospective study verifies that metyrap one is both an effective and safe way to treat endogenous Cushing’s Syndro me. This is a big step given the high unmet medical need for patients with endogenous Cushing’s Syndrome.” Read more at https://cushieblog.com/2020/ 09/12/study-shows-metyrapone-effective-for-treating-rare-cushings-syndrome / X-ALT-DESC;FMTTYPE=text/html:Frederique Welgryn\, Managing Director of H RA Pharma Rare Diseases\, added: &ldquo\;Cushing&rsquo\;s Syndrome is a ch ronic disease that can lead to deterioration in patients&rsquo\; condition s if not treated appropriately. We are thrilled to announce that this firs t prospective study verifies that metyrapone is both an effective and safe way to treat endogenous Cushing&rsquo\;s Syndrome. This is a big step giv en the high unmet medical need for patients with endogenous Cushing&rsquo\ ;s Syndrome.&rdquo\;
Read more at \;https://cushieblog.com/2020/09/12/study-show s-metyrapone-effective-for-treating-rare-cushings-syndrome/
CATEGORIES:News Items UID:20200912T1415320Z-549422-1289@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Transsphenoidal Surgery Is Safe and Effective Treatment for Cushing ’s Disease DTSTART;VALUE=DATE:20180825 DTEND;VALUE=DATE:20180826 RRULE:FREQ=MONTHLY;UNTIL=20190728;BYDAY=-1SA DESCRIPTION:Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing’s disease treatment. Transsphenoidal surgery (TSS) usually leads to good remission rates ranging from 68-95%\, depending on the location and type of tumor\, the neurosurgeon’s expertis e\, follow-up period\, and the definition of remission. Today\, TSS consis ts of surgery directed through the nose to get to the bottom of the skull\ , where the pituitary gland is located. The tumor is reached via the nasal cavity with no need for incisions on the face. Read more at https://cushi eblog.com/2018/07/28/transsphenoidal-surgery-is-safe-and-effective-treatme nt-for-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing&rsquo\;s disease treatment.
Transsphenoidal surgery (TSS) \;usually leads to g ood remission rates ranging from 68-95%\, depending on the location and ty pe of tumor\, the neurosurgeon&rsquo\;s expertise\, follow-up period\, and the definition of remission.
Today\, TSS consists of surgery dire cted through the nose to get to the bottom of the skull\, where the pituit ary gland is located. The tumor is reached via the nasal cavity with no ne ed for incisions on the face.
Read more at \;https://cushieblog.com/2018 /07/28/transsphenoidal-surgery-is-safe-and-effective-treatment-for-cushing s-disease/
CATEGORIES:Cushings UID:20180728T1640100Z-549422-960@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250308 SUMMARY:Avascular Necrosis in Patients With Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280308;BYMONTHDAY=8 DESCRIPTION:We describe a case of a 71-year-old male with florid Cushing di sease who initially presented with bilateral hip AVN and later developed b ilateral shoulder Avascular Necrosis despite achieving biochemical remissi on following transsphenoidal surgery and adjuvant stereotactic photon radi osurgery. AVN in endogenous CS is underreported\, and guidance on routine screening is lacking. https://cushings.invisionzone.com/topic/57792-avascu lar-necrosis-in-patients-with-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:We describe a case of a 71-year-old male wi th florid Cushing disease who initially presented with bilateral hip AVN a nd later developed bilateral shoulder Avascular Necrosis despite achieving biochemical remission following transsphenoidal surgery and adjuvant ster eotactic photon radiosurgery. AVN in endogenous CS is underreported\, and guidance on routine screening is lacking.
https://cushings.invisionzone.c om/topic/57792-avascular-necrosis-in-patients-with-cushing-syndrome/ CATEGORIES:Cushings UID:20250308T1121530Z-549422-1857@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20250327T150000 DTEND;TZID=America/New_York:20250327T160000 SUMMARY:The Art of Parenting While Sick DESCRIPTION:Are you a parent with adrenal insufficiency? If you’ve ever str uggled with how to talk to your child about adrenal insufficiency\, you’re not alone. X-ALT-DESC;FMTTYPE=text/html:
Are you a parent with adrenal insuf ficiency?
If you&rsquo\;ve ever struggled with how to tal k to your child about adrenal insufficiency\, you&rsquo\;re not alone.
CATEGORIES:Events and Meetings UID:20250225T1159020Z-549422-1847@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Alexis (Alexis)\, Undiagnosed Bio DTSTART;VALUE=DATE:20180825 DTEND;VALUE=DATE:20180826 RRULE:FREQ=MONTHLY;UNTIL=20190728;BYDAY=-1SA DESCRIPTION:Alexis\, can you tell me if your workup has revealed any answer s? Someone I love is experiencing the same symptoms. With weight gain\, ro unded face\, resting HR high\, heat intolerance\, nausea\, vomiting\, fain ting.. In the comments area of https://cushingsbios.com/2013/04/30/alexis- alexis-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Alexis\, can you tell me if your workup has revealed any answers? Someone I love is experiencing the same symptoms. W ith weight gain\, rounded face\, resting HR high\, heat intolerance\, naus ea\, vomiting\, fainting..
In the comments area of \;https://cushingsbios.com/2013/04/30/alexis-alexis-undiagnosed-bi o/
CATEGORIES:Cushings UID:20180729T0103430Z-549422-963@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210404 SUMMARY:Shea S (Shea)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220404;BYMONTHDAY=4 DESCRIPTION:Shea is from Grass Valley\, CA. She is a a 54-year-old woman w ho over the past two years has developed a buffalo hump and gained 60 poun ds. Read more at https://cushingsbios.com/2021/04/04/shea-s-shea-undiagno sed-bio/ X-ALT-DESC;FMTTYPE=text/html:Shea is from Grass Valley\, CA. \;She is a a 54-year-old woman who over the past two years has developed a buffa lo hump and gained 60 pounds. \;
Read more at \;https://cushingsbios.com/2021/04/04/shea-s-shea-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20210404T0701510Z-549422-1349@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231016 SUMMARY:Teenager Overcomes Brain Tumour and Shares His Experience (Hypopitu itarism) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301016;BYMONTHDAY=16 DESCRIPTION:The tumour affected teenager Niall’s pituitary gland\, resultin g in a condition known as hypopituitarism. Read more at https://cushingsbi os.com/2023/10/16/teenager-overcomes-brain-tumour-and-shares-his-experienc e-hypopituitarism/ X-ALT-DESC;FMTTYPE=text/html:The tumour affected teenager Niall&rsquo\;s pituitary gland\, resulting in a condition known as hypopituitarism.
Read more at \;https://cushingsbios.com/2023/10/16/teenager-ov ercomes-brain-tumour-and-shares-his-experience-hypopituitarism/
CATEGORIES:Cushie Bios UID:20231016T0729410Z-549422-1690@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:LOGICS Trial Supports Recorlev’s Efficacy in Lowering Cortisol Leve ls DTSTART;VALUE=DATE:20201010 DTEND;VALUE=DATE:20201011 RRULE:FREQ=MONTHLY;UNTIL=20210912;BYDAY=2SA DESCRIPTION:If approved\, Recorlev could be available to patients in the U. S. in 2022. “We are delighted to announce the positive and statistically s ignificant top-line results of the LOGICS study\, which add to the growing body of evidence supporting the potential of Recorlev (levoketoconazole) as an effective and well tolerated cortisol synthesis inhibitor to treat C ushing’s syndrome\,” Fredric Cohen\, MD\, chief medical officer of Strongb ridge Biopharma Read more at https://cushieblog.com/2020/09/12/logics-tria l-supports-recorlevs-efficacy-in-lowering-cortisol-levels/ X-ALT-DESC;FMTTYPE=text/html:If approved\, Re corlev could be available to patients in the U.S. in 2022.
&ldquo\;We are delighted to announce the positi ve and statistically significant top-line results of the LOGICS study\, wh ich add to the growing body of evidence supporting the potential of Recorl ev (levoketoconazole) as an effective and well tolerated cortisol synthesi s inhibitor to treat Cushing&rsquo\;s syndrome\,&rdquo\; Fredric Cohen\, M D\, chief medical officer of Strongbridge Biopharma
Read more at \;https://cushieblog.com/2020/09/12/logics-trial-suppor ts-recorlevs-efficacy-in-lowering-cortisol-levels/
CATEGORIES:News Items UID:20200912T1428290Z-549422-1290@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181215 SUMMARY:New Helpful Doctor added to Arizona RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191215;BYMONTHDAY=15 DESCRIPTION: Went to my Endo appt yesterday (prepared) I had a list of all of my symptoms and a few photos of me to show the dramatic changes that my body has gone through over a short period of time. Without my prompting\, He is sure that I have Cushings. ...The endo walked in the room\, introdu ced himself\, took a good look at me and my pictures and asked me if I had ever heard of Cushings? He told me that I was in good hands and that he w ould set me up with a great neurosurgeon. Read more at https://cushieblogg er.com/2018/12/15/helpful-doctors-arizona/ X-ALT-DESC;FMTTYPE=text/html:\;Went to my Endo appt yesterday (prep ared) I had a list of all of my symptoms and a few photos of me to show th e dramatic changes that my body has gone through over a short period of ti me. Without my prompting\, He is sure that I have Cushings. ...The endo wa lked in the room\, introduced himself\, took a good look at me and my pict ures and asked me if I had ever heard of Cushings? He told me that I was i n good hands and that he would set me up with a great neurosurgeon.
< p>Read more at \;https://cushieblogger.com/2018/12/15/he lpful-doctors-arizona/ CATEGORIES:Helpful Doctors UID:20181215T1618470Z-549422-1047@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241027 SUMMARY:Atypical Presentation of Cushing’s Disease With Weight Loss and Hyp okalemia RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301027;BYMONTHDAY=27 DESCRIPTION:Learning points Patients with CD do not always present with cla ssical clinical features and may present with symptoms and biochemical fin dings that would otherwise suggest ectopic ACTH production. While most pat ients with CD typically lose weight after biochemical remission\, some pat ients gain weight after the normalization of cortisol levels. This case hi ghlights the need to entertain a broad differential in patients presenting with hypokalemia and weight loss and the need to exclude hypercortisolemi a. https://cushings.invisionzone.com/topic/57760-atypical-presentation-of- cushing%E2%80%99s-disease-with-weight-loss-and-hypokalemia/ X-ALT-DESC;FMTTYPE=text/html:Learning points
Patient s with CD do not always present with classical clinical features and may p resent with symptoms and biochemical findings that would otherwise suggest ectopic ACTH production.
While most patients with CD typically lose weight after biochemical remission\, some patients gain we ight after the normalization of cortisol levels.
This case highlights the need to entertain a broad differential in patients pr esenting with hypokalemia and weight loss and the need to exclude hypercor tisolemia.
All 4 patients with symptomatic Cushing's d isease experienced resolution of symptoms after autotransplantation withou t Nelson Syndrome.
Read more at \;http://cushings.invi sionzone.com/topic/54795-autologous-adrenal-transplantation-for-the-treatm ent-of-refractory-cushings-disease/
CATEGORIES:News Items UID:20190907T1103350Z-549422-1210@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190826 SUMMARY:Barbara S (Babs1953)\, Adrenal Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200826;BYMONTHDAY=26 DESCRIPTION:Barbara S is from Columbus\, Ohio. She was finally diagnosed in February 2019 and had surgery mid March to take left adrenal. She is sti ll on 3mg prednisone daily and still has symptoms. Read more at https://cu shingsbios.com/2019/08/26/barbara-s-babs1953-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Barbara S is from Columbus\, Ohio. She was finally diagnosed in February 2019 and \;had surgery mid March to tak e left adrenal. She is still on 3mg prednisone daily and still has symptom s.
Read more at \;https://cushingsbios.com /2019/08/26/barbara-s-babs1953-adrenal-bio/
CATEGORIES:Cushie Bios UID:20190827T0033300Z-549422-1204@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Webinar: Update on the Management of Cushing's Disease DTSTART;VALUE=DATE:20190814 DTEND;VALUE=DATE:20190815 RRULE:FREQ=WEEKLY;UNTIL=20190824;BYDAY=WE DESCRIPTION:Learning Objectives: Describe the signs and symptoms of Cushing 's Disease Describe the work up for patients with Cushing's Disease Unders tand the goals\, risks\, and expected outcomes for treatment Describe alte rnative treatments when surgery is not curative. More info at https://cu shieblogger.com/2019/08/14/webinar-update-on-the-management-of-cushings-di sease/ X-ALT-DESC;FMTTYPE=text/html:\;
More info at \;https://cush ieblogger.com/2019/08/14/webinar-update-on-the-management-of-cushings-dise ase/
CATEGORIES:Events and Meetings UID:20190814T1031270Z-549422-1194@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:ACTH/Cortisol Ratio May Be Simple\, Reliable Test to Diagnose Cushi ng’s Disease DTSTART;VALUE=DATE:20180420 DTEND;VALUE=DATE:20180421 RRULE:FREQ=MONTHLY;UNTIL=20190316;BYDAY=3FR DESCRIPTION:Patients with recurrent CD showed higher pretreatment ACTH leve ls and ACTH/cortisol ratio than those who achieved sustained remission. CD patients also exhibited more invasive\, atypical and larger tumors\, as w ell as lower postoperative remission and higher recurrence rates. “Higher ACTH/cortisol ratio might predict poorer prognosis\,” the investigators sa id. Read more at https://cushieblog.com/2018/03/16/acth-cortisol-ratio-may -be-simple-reliable-test-to-diagnose-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Patients with recurrent CD showed higher pr etreatment ACTH levels and ACTH/cortisol ratio than those who achieved sus tained remission. CD patients also exhibited more invasive\, atypical and larger tumors\, as well as lower postoperative remission and higher recurr ence rates.
&ldquo\;Higher ACTH/cortisol ratio might predict poore r prognosis\,&rdquo\; the investigators said.
Read more at \;< a href='https://cushieblog.com/2018/03/16/acth-cortisol-ratio-may-be-simpl e-reliable-test-to-diagnose-cushings-disease/' target='_blank'>https://cus hieblog.com/2018/03/16/acth-cortisol-ratio-may-be-simple-reliable-test-to- diagnose-cushings-disease/
CATEGORIES:Cushings UID:20180316T1453280Z-549422-854@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Day 13\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300413;BYMONTH=4;BYMONTHDAY=13 DTSTART;VALUE=DATE:20240413 DTEND;VALUE=DATE:20240414 DESCRIPTION:You know\, I'm still not sure if the GH is worth it\, even afte r almost 20 years (with some hiccups). I had to stop after I've had kidne y cancer and flying with the stuff is such a pain due to the refrigeration (more about that here). Read more at https://cushings.invisionzone.com/to pic/56821-day-13-cushing%E2%80%99s-awareness-challenge-2022/?do=findCommen t&comment=478736 X-ALT-DESC;FMTTYPE=text/html:You know\, I'm still not sure if the GH is worth it\, even after almost \;20 years \ ;(with some hiccups). \; I had to stop after I've had \;kidney cancer \;and flying with the stuff is such a pain due to the refrigeration (more about that here).
Read more a t \;https://cushings.invisionzone.com/topic/5 6821-day-13-cushing%E2%80%99s-awareness-challenge-2022/?do=findComment& \;comment=478736
CATEGORIES:Awareness Challenge UID:20240413T1348430Z-549422-1774@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190526 SUMMARY:Comment added to In Memory: Shianne Lombard-Treman\, March 28\, 201 8 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200501;BYMONTHDAY=26 DESCRIPTION:My mother had adrenal carsinoma-cushing syndrome in the 60’s.i would sure like to know what was documented.i believe she went to UCLA med ical center using some experimental/new drugs for this.i was young I remem ber lots of trips their..granted she passed when I was a young teenager.di dnt get muchof a chance to know her.she was sick 95% of the time Read more at https://cushingsbios.com/2018/04/01/in-memory-shianne-lombard-treman-m arch-28-2018/comment-page-1/#comment-50421 X-ALT-DESC;FMTTYPE=text/html:My mother had adrenal carsinoma-cushing syn drome in the 60&rsquo\;s.i would sure like to know what was documented.i b elieve she went to UCLA medical center using some experimental/new drugs f or this.i was young I remember lots of trips their..granted she passed whe n I was a young teenager.didnt get muchof a chance to know her.she was sic k 95% of the time
Read more at \;https://cushingsbios.com/2018/04/01/in -memory-shianne-lombard-treman-march-28-2018/comment-page-1/#comment-50421
CATEGORIES:Cushings UID:20190526T2014150Z-549422-1170@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Evaluation of Psoriasis Patients With Long-Term Topical Corticoster oids for Their Risk of Developing Adrenal Insufficiency\, Cushing’s Syndro me and Osteoporosis RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300101;BYMONTH=1;BYMONTHDAY=1 DTSTART;VALUE=DATE:20240101 DTEND;VALUE=DATE:20240102 DESCRIPTION:In this study\, we will investigate the possible side effects o f psoriasis patients using long-term topical corticosteroids (TCS) such as adrenal insufficiency\, Cushing’s Syndrome (CS) and osteoporosis and dete rmine how these side effects develop. Read more at https://cushings.invisi onzone.com/topic/57678-evaluation-of-psoriasis-patients-with-long-term-top ical-corticosteroids-for-their-risk-of-developing-adrenal-insufficiency-cu shing%E2%80%99s-syndrome-and-osteoporosis/ X-ALT-DESC;FMTTYPE=text/html:In this study\, we will investigate the pos sible side effects of psoriasis patients using long-term topical corticost eroids (TCS) such as adrenal insufficiency\, Cushing&rsquo\;s Syndrome (CS ) and osteoporosis and determine how these side effects develop.
CATEGORIES:Cushings UID:20240101T1625410Z-549422-1726@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210530 SUMMARY:Testing Vitamin B3 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300530;BYMONTHDAY=30 DESCRIPTION:Since I just had Mohs surgery for squamous cell carcinoma\, I i mmediately went to amazon to search for nicotinamide. Read more at https:/ /maryomedical.com/2021/05/30/testing-vitamin-b3/ X-ALT-DESC;FMTTYPE=text/html:Since I just had Mohs surgery for squamous cell carcinoma\, I immediately went to amazon to search for nicotinamide.< /p>
Read more at \;https://maryomedical.com/2021/05/30/tes ting-vitamin-b3/
CATEGORIES:Other Medical UID:20210530T1150340Z-549422-1389@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Sharmyn\, In The Media DTSTART;VALUE=DATE:20190420 DTEND;VALUE=DATE:20190421 RRULE:FREQ=MONTHLY;UNTIL=20200316;BYDAY=3SA DESCRIPTION:In the media: Sharmyn had pituitary Cushing's and is in remissi on. This is a compilation of some of her interviews and videos. Read more at https://cushingsbios.com/2019/03/16/sharmyn-in-the-media/ X-ALT-DESC;FMTTYPE=text/html:In the media: Sharmyn had pituitary Cushing 's and is in remission. \;This is a compilation of some of her interv iews and videos.
Read more at \;https://cushingsbios .com/2019/03/16/sharmyn-in-the-media/
CATEGORIES:Cushie Bios UID:20190316T1516360Z-549422-1102@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220925 SUMMARY:TP53 Mutations in Functional Corticotroph Tumors Are Linked to Inva sion and Worse Clinical Outcome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250925;BYMONTHDAY=25 DESCRIPTION:Mutations in the two Cushing’s disease mutational hotspots USP8 and USP48 are less frequent in corticotroph macroadenomas and invasive tu mors. There is evidence that TP53 mutations are not as rare as previously thought in these tumors. Read more at https://cushings.invisionzone.com/to pic/57562-tp53-mutations-in-functional-corticotroph-tumors-are-linked-to-i nvasion-and-worse-clinical-outcome/ X-ALT-DESC;FMTTYPE=text/html:Mutations in the two Cushing&rsquo\;s disease mutational hotspots \;USP8 \;and \;USP48 \;ar e less frequent in corticotroph macroadenomas and invasive tumors. There i s evidence that \;TP53 \;mu tations are not as rare as previously thought in these tumors.
CATEGORIES:News Items UID:20220925T1135300Z-549422-1610@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220905 SUMMARY:Ectopic Adrenocorticotropic Hormone-Secreting Pituitary Adenoma in the Clivus Region: A Case Report RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240905;BYMONTHDAY=5 DESCRIPTION:Ectopic pituitary adenoma (EPA) is a pituitary adenoma unrelate d to the intrasellar component and is an extremely rare disease. Read more at https://cushings.invisionzone.com/topic/57535-ectopic-adrenocorticotro pic-hormone-secreting-pituitary-adenoma-in-the-clivus-region-a-case-report / X-ALT-DESC;FMTTYPE=text/html:Ectopic pituitary adenoma (EPA) is a pituitary adenoma unrelated to the intrasellar component and is an extreme ly rare disease.
CATEGORIES:News Items UID:20220905T0952150Z-549422-1603@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240413 SUMMARY:Olfactory Neuroblastoma Causing Cushing’s Syndrome Due to the Ectop ic Adrenocorticotropic Hormone (ACTH) Secretion RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300413;BYMONTHDAY=13 DESCRIPTION:Cushing’s syndrome is a constellation of features occurring due to high blood cortisol levels. We report a case of a 47-year-old male wit h a history of recurrent olfactory neuroblastoma (ONB). He presented with bilateral lower limb weakness and anosmia and was found to have Cushing’s syndrome due to high adrenocorticotropic hormone (ACTH) levels from an ect opic source\, ONB in this case. Serum cortisol and ACTH levels declined af ter tumor removal. Read more at https://cushings.invisionzone.com/topic/57 716-olfactory-neuroblastoma-causing-cushing%E2%80%99s-syndrome-due-to-the- ectopic-adrenocorticotropic-hormone-acth-secretion/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is a conste llation of features occurring due to high blood cortisol levels. We report a case of a 47-year-old male with a history of recurrent olfactory neurob lastoma (ONB). He presented with bilateral lower limb weakness and anosmia and was found to have \;Cushing&rsquo\;s syndrome due to high \;a drenocorticotropic hormone (ACTH) levels from an ectopic source\, ONB in t his case. Serum cortisol and ACTH levels declined after tumor removal.
CATEGORIES:Cushings UID:20240413T1414110Z-549422-1775@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Day 18\, Cushing’s Awareness Challenge RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300420;BYMONTH=4;BYMONTHDAY=18 DTSTART;VALUE=DATE:20190418 DTEND;VALUE=DATE:20190419 DESCRIPTION:And today\, we talk about pink jeeps and ziplines… How in the w orld did we get here in a Cushing’s Challenge? I’m sliding these in becau se earlier I linked (possibly!) my growth hormone use as a cause of my can cer – and I took the GH due to Cushing’s issues. Clear? LOL Read more at https://cushings-help.com/2025/04/18/day-18-cushings-awareness-challenge/ X-ALT-DESC;FMTTYPE=text/html:And today\, we talk about pink jeeps and zi plines&hellip\;
How in the world did we get here in a Cushing&rsqu o\;s Challenge? \;I&rsquo\;m sliding these in because earlier \;I linked (possibly!) my growth hormone use as a cause of my cancer &ndash\; and I took the GH due to Cushing&rsquo\;s issues. \;Clear? \;LO L
Read more at \;http s://cushings-help.com/2025/04/18/day-18-cushings-awareness-challenge/< /p> CATEGORIES:Awareness Challenge UID:20250418T1012480Z-549422-1137@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190418 SUMMARY:Cushing’s Myths and Facts: “Men1 and Men2 are the only genetic caus es of Cushing’s” DESCRIPTION:This is a Myth. More current research has explored multiple eti ologies of Cushing’s. It was once thought that heredity had no influence o n the development of Cushing’s Syndrome/Disease and our knowledge was once limited in this sense. Read more at https://cushieblogger.com/2019/04/18/ cushings-myths-and-facts-men1-and-men2-are-the-only-genetic-causes-of-cush ings/ X-ALT-DESC;FMTTYPE=text/html:
This is a Myth. More current research has e xplored multiple etiologies of Cushing&rsquo\;s. It was once thought that heredity had no influence on the development of Cushing&rsquo\;s Syndrome/ Disease and our knowledge was once limited in this sense.
Read mor e at \;https://cushieblogger.com/2019/04/18/cushings-myths-and-facts-men1-a nd-men2-are-the-only-genetic-causes-of-cushings/
CATEGORIES:Cushings UID:20190420T1321510Z-549422-1135@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190412 SUMMARY:Comment added to Webinar: New and Traditional Treatments for Male H ypogonadism RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200412;BYMONTHDAY=12 DESCRIPTION:steroid induced cushing’s does any one know of a doctor that tr eats this If you can help\, comment here: https://cushieblogger.com/2019/0 1/30/webinar-new-and-traditional-treatments-for-male-hypogonadism/ X-ALT-DESC;FMTTYPE=text/html:steroid induced cushing&rsquo\;s does any o ne know of a doctor that treats this
If you can help\, comment her e: \;https://cushie blogger.com/2019/01/30/webinar-new-and-traditional-treatments-for-male-hyp ogonadism/
CATEGORIES:Cushie Bios UID:20190412T1319190Z-549422-1129@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:What Do You Think? DTSTART;VALUE=DATE:20180715 DTEND;VALUE=DATE:20180716 RRULE:FREQ=MONTHLY;UNTIL=20190617;BYDAY=3SU DESCRIPTION:A “friend” pushed me and I hit my head on a radiator and broke it and a few months after a tumor grew. I’ve been having symptoms ever sin ce. Could I go after here and get compensation for medical care I need now ? in the comments area of http://cushieblog.com/2016/12/21/pituitary-dysfu nction-as-a-result-of-traumatic-brain-injury X-ALT-DESC;FMTTYPE=text/html:A &ldquo\;friend&rdquo\; pushed me and I hi t my head on a radiator and broke it and a few months after a tumor grew. I&rsquo\;ve been having symptoms ever since. Could I go after here and get compensation for medical care I need now?
in the comments area of \;http://cushieblog.com/ 2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury
CATEGORIES:Cushings UID:20180617T2011410Z-549422-946@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240329 SUMMARY:Delayed Diagnosis of Ectopic Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280329;BYMONTHDAY=29 DESCRIPTION:While many patients with Cushing syndrome have a delayed diagno sis\, this case highlights the critical need to increase awareness of the signs and symptoms of hypercortisolism and to improve the understanding of appropriate screening tests among nonendocrine providers. Read more at ht tps://cushings.invisionzone.com/topic/57707-delayed-diagnosis-of-ectopic-c ushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:While many patients with Cushing synd rome have a delayed diagnosis\, this case highlights the critical need to increase awareness of the signs and symptoms of hypercortisolism and to im prove the understanding of appropriate screening tests among nonendocrine providers.
Read more at \;https://cushings.invisionzone.com/top ic/57707-delayed-diagnosis-of-ectopic-cushing-syndrome/
CATEGORIES:Cushings UID:20240329T0828260Z-549422-1760@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231113 SUMMARY:Bridget H\, Ectopic Cushing's RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301113;BYMONTHDAY=13 DESCRIPTION:Findling ordered a dotatate PET scan to find where Houser's tum or was\, finding it in her left lung. Ultimately\, after much deliberation \, Houser elected to undergo surgery to remove part of her left lung. A pa thologist found the tumor was a rare\, slow-growing neuroendocrine lung ca ncer known as bronchial carcinoid\, which can cause Cushing's. Read more a t https://cushingsbios.com/2023/11/13/bridget-h-ectopic-cushings/ X-ALT-DESC;FMTTYPE=text/html:Findling ordered a dotatate PET scan to fin d where Houser's tumor was\, finding it in her left lung. Ultimately\, aft er much deliberation\, Houser elected to undergo surgery to remove part of her left lung. A pathologist found the tumor was a rare\, slow-growing ne uroendocrine lung cancer known as bronchial carcinoid\, which can cause Cu shing's.
Read more at \;https:/ /cushingsbios.com/2023/11/13/bridget-h-ectopic-cushings/
CATEGORIES:Cushie Bios UID:20231113T1521420Z-549422-1710@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220111 SUMMARY:Frequently Asked Questions in Patients With Adrenal Insufficiency i n the Time of COVID-19 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230111;BYMONTHDAY=11 DESCRIPTION:Adrenal insufficiency (AI) is a life-threatening disorder\, wit h increased morbidity and mortality\, especially in case of an acute illne ss that can increase the requirement of cortisol. A novel infectious disea se\, termed Coronavirus Disease 2019 (COVID-19)\, appeared in 2020. Read m ore at https://cushings.invisionzone.com/topic/56462-frequently-asked-ques tions-in-patients-with-adrenal-insufficiency-in-the-time-of-covid-19/ X-ALT-DESC;FMTTYPE=text/html:Adrenal insufficiency (AI) is a life-threat ening disorder\, with increased morbidity and mortality\, especially in ca se of an acute illness that can increase the requirement of cortisol. A no vel infectious disease\, termed Coronavirus Disease 2019 (COVID-19)\, appe ared in 2020.
CATEGORIES:Cushings UID:20220111T1332560Z-549422-1496@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211202 SUMMARY:Desmopressin Stimulation Test in a Pregnant Patient with Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221202;BYMONTHDAY=2 DESCRIPTION:The hypothalamic-pituitary-adrenal axis stimulation during preg nancy complicates the investigation of Cushing's syndrome. Our objective i s to present a pregnant patient with Cushing syndrome caused by pituitary tumor in which the desmopressin stimulation test helped in the diagnosis a nd led to appropriate management. Read more at https://cushings.invisionzo ne.com/topic/56326-desmopressin-stimulation-test-in-a-pregnant-patient-wit h-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:The hypothalamic-pituitary-adrenal axis sti mulation during pregnancy complicates the investigation of Cushing's syndr ome. Our objective is to present a pregnant patient with Cushing syndrome caused by pituitary tumor in which the desmopressin stimulation test helpe d in the diagnosis and led to appropriate management.
Read more at \;https://cushings.invisionzone.com/topic/56326-desmopressin- stimulation-test-in-a-pregnant-patient-with-cushing%E2%80%99s-disease/
CATEGORIES:News Items UID:20211202T1032380Z-549422-1473@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211022 SUMMARY:ACTH secreting pituitary carcinoma: Rare\, durable response to conc urrent chemotherapy and re-irradiation with a review of the literature. Re current pituitary carcinoma re-irradiation RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221022;BYMONTHDAY=22 DESCRIPTION:This report describes the complete resolution of severe Cushing 's disease due to an ACTH secreting pituitary carcinoma followed by the de velopment of pituitary hypoadrenalism after re-irradiation and concurrent temozolomide radio-sensitization. Read more at https://cushings.invisionz one.com/topic/56237-acth-secreting-pituitary-carcinoma-rare-durable-respon se-to-concurrent-chemotherapy-and-re-irradiation-with-a-review-of-the-lite rature-recurrent-pituitary-carcinoma-re-irradiation/ X-ALT-DESC;FMTTYPE=text/html:This report describes the complete resoluti on of severe Cushing's disease due to an ACTH secreting pituitary carcinom a followed by the development of pituitary hypoadrenalism after re-irradia tion and concurrent temozolomide radio-sensitization. \;
CATEGORIES:News Items UID:20211022T1452310Z-549422-1440@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200107 SUMMARY:Pasireotide Reduces Pituitary Tumor Volume in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210107;BYMONTHDAY=7 DESCRIPTION:Most adults with persistent or recurrent Cushing’s disease trea ted with the somatostatin analogue pasireotide experienced a measurable de crease in MRI-detectable pituitary tumor volume at 12 months. Read more at http://cushings.invisionzone.com/topic/54987-pasireotide-reduces-pituitar y-tumor-volume-in-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Most adults with persistent or recurrent Cu shing&rsquo\;s disease treated with the somatostatin analogue pasireotide experienced a measurable decrease in MRI-detectable pituitary tumor volume at 12 months.
Read more at \;http://cushings.invisionzone.com/top ic/54987-pasireotide-reduces-pituitary-tumor-volume-in-cushing%E2%80%99s-d isease/
CATEGORIES:News Items UID:20200107T2324390Z-549422-1226@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210929 SUMMARY:Consecutive Adrenal Cushing’s Syndrome and Cushing’s Disease in a P atient With Somatic CTNNB1\, USP8\, and NR3C1 Mutations RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220929;BYMONTHDAY=29 DESCRIPTION:The occurrence of different subtypes of endogenous Cushing’s sy ndrome (CS) in single individuals is extremely rare. We here present the c ase of a female patient who was successfully cured from adrenal CS 4 years before being diagnosed with Cushing’s disease (CD). The patient was di agnosed at the age of 50 with ACTH-independent CS and a left-sided adrenal adenoma\, in January 2015. After adrenalectomy and histopathological conf irmation of a cortisol-producing adrenocortical adenoma\, biochemical hype rcortisolism and clinical symptoms significantly improved. Read more at https://cushings.invisionzone.com/topic/56167-consecutive-adrenal-cushing% E2%80%99s-syndrome-and-cushing%E2%80%99s-disease-in-a-patient-with-somatic -ctnnb1-usp8-and-nr3c1-mutations/ X-ALT-DESC;FMTTYPE=text/html:Christopher Albergo\, M.D. is a board-certi fied Endocrinologist skilled in general endocrinology\, including Hypothyr oid\, Parathyroid\, Thyroid Cancer\, Graves' Disease\, Pituitary disorders \, Adrenal disorders\, Hypogonadism \, PCOS\, Obesity\, Diabetes and Osteo porosis.
Read more at \;https://c ushieblogger.com/2019/09/25/possible-new-helpful-endo-in-tennessee/
CATEGORIES:Helpful Doctors UID:20190925T0928200Z-549422-1217@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220723 SUMMARY:Successful Immunomodulatory Treatment of COVID-19 in a Patient With Severe ACTH-Dependent Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240723;BYMONTHDAY=23 DESCRIPTION:Patients with Cushing’s syndrome (CS) represent a highly sensit ive group during corona virus disease 2019 (COVID-19) pandemic. The effect of multiple comorbidities and immune system supression make the clinical picture complicated and treatment challenging. Read more at https://cushin gs.invisionzone.com/topic/57192-successful-immunomodulatory-treatment-of-c ovid-19-in-a-patient-with-severe-acth-dependent-cushing%E2%80%99s-syndrome / X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing&rsquo\;s syndrome (CS ) represent a highly sensitive group during corona virus disease 2019 (COV ID-19) pandemic. The effect of multiple comorbidities and immune system su pression make the clinical picture complicated and treatment challenging.< /p>
CATEGORIES:News Items UID:20220723T2122430Z-549422-1594@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211016 SUMMARY:Cushing's Basics: Testing: Inferior Petrosal Sinus Sampling RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301016;BYMONTHDAY=16 DESCRIPTION:Video\, personal stories and 'official information'. The MRI s till showed nothing\, so they did a Petrosal Sinus Sampling Test. That sca red me more than the prospect of surgery. (This test carries the risk of s troke and uncontrollable bleeding from the incision points.) Catheters wer e fed from my groin area to my pituitary gland and dye was injected. I cou ld watch the whole procedure on monitors. I could not move during this tes t or for several hours afterwards to prevent uncontrollable bleeding from a major artery. The test did show where the tumor probably was located... Read more at https://cushings.invisionzone.com/topic/56225-testing-infer ior-petrosal-sinus-sampling/ X-ALT-DESC;FMTTYPE=text/html:Video\, personal stories and 'official info rmation'. \;
The MRI still showed nothing\, so they did a Petr osal Sinus Sampling Test. That scared me more than the prospect of surgery . (This test carries the risk of stroke and uncontrollable bleeding from t he incision points.)
Catheters were fed from my groin area to my p ituitary gland and dye was injected. I could watch the whole procedure on monitors. I could not move during this test or for several hours afterward s to prevent uncontrollable bleeding from a major artery.
The test did show where the tumor \;probably \;was located...
\;
Read more at \;https://cushings.invisionzone.com/topic/56225-testing-inferior-petro sal-sinus-sampling/
CATEGORIES:Cushings UID:20211016T1048480Z-549422-1436@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240727 SUMMARY:A Challenging Case of Severe Cushing’s Syndrome in the Course of Me tastatic Thymic Neuroendocrine Carcinoma with a Synchronous Adrenal Tumor RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300727;BYMONTHDAY=27 DESCRIPTION:Endogenous Cushing’s syndrome (CS) is a rare endocrine conditio n caused by excess cortisol production with an annual incidence of 0.2–5 c ases per million people Read more at https://cushings.invisionzone.com/top ic/57751-a-challenging-case-of-severe-cushing%E2%80%99s-syndrome-in-the-co urse-of-metastatic-thymic-neuroendocrine-carcinoma-with-a-synchronous-adre nal-tumor/ X-ALT-DESC;FMTTYPE=text/html:Endogenous Cushing&rsquo\;s syndrome (CS) is a rare endocrine condition caused by excess cortisol production wi th an annual incidence of 0.2&ndash\;5 cases per million people
CATEGORIES:Cushings UID:20240728T2015030Z-549422-1810@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240905 SUMMARY:Talus Avascular Necrosis as a Rare Complication of Cushing’s Diseas e DESCRIPTION:We report a middle-aged woman with Cushing’s syndrome symptoms\ , such as hypertension and moon face\, since her youth. A few years ago\, she experienced pain and swelling in her ankle\, which was diagnosed as at raumatic AVNT and treated with hindfoot fusion. Years later\, she was diag nosed with Cushing’s disease caused by an adrenocorticotropic hormone (ACT H)-producing pituitary adenoma in laboratory tests and imaging\, which was resected in 2020. Read more at https://cushings.invisionzone.com/topic/5 7711-talus-avascular-necrosis-as-a-rare-complication-of-cushing%E2%80%99s- disease/ X-ALT-DESC;FMTTYPE=text/html:We report a middle-aged woman with Cu shing&rsquo\;s syndrome symptoms\, such as hypertension and moon face\, si nce her youth. A few years ago\, she experienced pain and swelling in her ankle\, which was diagnosed as atraumatic \;AVNT \;and treated wit h hindfoot fusion. Years later\, she was diagnosed with Cushing&rsquo\;s d isease caused by an adrenocorticotropic hormone (ACTH)-producing pituitary adenoma in laboratory tests and imaging\, which was resected in 2020.&nbs p\;
Read more at \;https://cushi ngs.invisionzone.com/topic/57711-talus-avascular-necrosis-as-a-rare-compli cation-of-cushing%E2%80%99s-disease/
CATEGORIES:Cushings UID:20240916T1424110Z-549422-1819@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240418 SUMMARY:Obesity-Related Hemodynamic Alterations in Patients with Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300418;BYMONTHDAY=18 DESCRIPTION:Cushing’s disease (CD) is associated with a specific form of me tabolic syndrome that includes visceral obesity\, which may affect cardiov ascular hemodynamics by stimulating hypercortisolism-related metabolic act ivity. The purpose of this study was to evaluate the relationship between obesity and the hemodynamic profile of patients with CD. Read more at htt ps://cushings.invisionzone.com/topic/57719-obesity-related-hemodynamic-alt erations-in-patients-with-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is asso ciated with a specific form of metabolic syndrome that includes visceral o besity\, which may affect cardiovascular hemodynamics by stimulating hyper cortisolism-related metabolic activity. The purpose of this study was to e valuate the relationship between obesity and the hemodynamic profile of pa tients with CD. \;
Read more at \;https://cushings.invisionzone.com/topic/57719-obesity-related-hemody namic-alterations-in-patients-with-cushing%E2%80%99s-disease/
CATEGORIES:Cushings UID:20240418T0809180Z-549422-1780@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220109 SUMMARY:Unique Cell in Rare Tumor Tied to Ectopic Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230109;BYMONTHDAY=9 DESCRIPTION:Ectopic Cushing’s syndrome due to ectopic ACTH&CRH-secreting by pheochromocytoma is extremely rare and can be fatal if not properly diagn osed. It remains unclear whether a unique cell type is responsible for mul tiple hormones secreting. Read more at https://cushings.invisionzone.com/t opic/56454-unique-cell-in-rare-tumor-tied-to-ectopic-cushing%E2%80%99s/ X-ALT-DESC;FMTTYPE=text/html:Ectopic Cushing&rsquo\;s syndrome due to ec topic ACTH&\;CRH-secreting by pheochromocytoma is extremely rare and ca n be fatal if not properly diagnosed. It remains unclear whether a unique cell type is responsible for multiple hormones secreting.
Read mor e at \;http s://cushings.invisionzone.com/topic/56454-unique-cell-in-rare-tumor-tied-t o-ectopic-cushing%E2%80%99s/
CATEGORIES:Cushings UID:20220109T0727300Z-549422-1495@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231122 SUMMARY:Adrenocorticotropin-Dependent Ectopic Cushing's Syndrome: A Case Re port RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301122;BYMONTHDAY=22 DESCRIPTION:The diagnosis of Cushing's Syndrome is a three-step process tha t includes its suspicion based on the patient's laboratory and semiologic findings\, the documentation of hypercortisolism\, and the identification of its cause\, which can be either ACTH-dependent or independent. Read mor e at https://cushings.invisionzone.com/topic/57668-adrenocorticotropin-dep endent-ectopic-cushings-syndrome-a-case-report/ X-ALT-DESC;FMTTYPE=text/html:T he diagnosis of Cushing's Syndrome is a three-step process that includes i ts suspicion based on the patient's laboratory and semiologic findings\, t he documentation of hypercortisolism\, and the identification of its cause \, which can be either ACTH-dependent or independent.
Transsphenoidal surgery (TSS) to resect an adrenocorticotropic hormone (ACTH)-secreting pituitary adenoma is the firs t-line treatment for Cushing&rsquo\;s disease (CD)\, with increasing usage of endoscopic transsphenoidal (ETSS) technique. The aim of this study was to assess remission rates and postoperative complications following ETSS for CD.
Read more at \;https://cushings.invisionzone.com/topic/55582- outcomes-of-endoscopic-transsphenoidal-surgery-for-cushings-disease/ CATEGORIES:News Items UID:20210326T1014570Z-549422-1343@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Emily B-C (EmilyBC)\, Undiagnosed Bio DTSTART;VALUE=DATE:20210430 DTEND;VALUE=DATE:20210501 RRULE:FREQ=MONTHLY;UNTIL=20220326;BYDAY=-1FR DESCRIPTION:…I too have vitamin D deficiency\, Ebstein Barr Virus\, ibs-c\, high A1c and elevated glucose (am thirsty all the time and use the bathro om frequently as well)\, elevated cortisol\, extremely high cholesterol le vels\, pituitary adenoma\, chronic fatigue\, and hyperpigmentation on my f ace….not to mention the weight gain in my midsection front and back…. Read more at https://cushingsbios.com/2015/07/01/emily-b-c-emilybc-undiagnosed -bio/comment-page-1/#comment-58161 X-ALT-DESC;FMTTYPE=text/html:
&hellip\;I too have vitamin D deficiency\, Ebstein Barr Virus\, ibs-c\, high A1c and elevated glucose (am thirsty all the time and use the bathroom frequently as well)\, elevated cortisol\, e xtremely high cholesterol levels\, pituitary adenoma\, chronic fatigue\, a nd hyperpigmentation on my face&hellip\;.not to mention the weight gain in my midsection front and back&hellip\;.
Read more at \;https://cushingsbios.com/2015 /07/01/emily-b-c-emilybc-undiagnosed-bio/comment-page-1/#comment-58161
CATEGORIES:Cushie Bios UID:20210326T1140300Z-549422-1345@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Did You Get The Pfizer Vaccine? You May Need the Booster DTSTART;VALUE=DATE:20211121 DTEND;VALUE=DATE:20211122 RRULE:FREQ=MONTHLY;UNTIL=20221016;BYDAY=3SA DESCRIPTION:COVID-19 Vaccine booster shots are available for the following Pfizer-BioNTech vaccine recipients who completed their initial series at l east 6 months ago and are: Obese or diabetic. Read more at https://cushing s.invisionzone.com/topic/56226-did-you-get-the-pfizer-vaccine-you-may-need -the-booster/ X-ALT-DESC;FMTTYPE=text/html:COVID-19 Vaccine booster shots are availabl e for the following Pfizer-BioNTech vaccine recipients who completed their initial series at least 6 months ago and are: Obese or diabetic.
Read more at \; https://cushings.invisionzone.com/topic/56226-did-you-get-the-pfizer-vacci ne-you-may-need-the-booster/
CATEGORIES:Other Medical UID:20211016T1353210Z-549422-1437@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:It’s Time to Sign Up for the Cushing’s Awareness Challenge 2021 DTSTART;VALUE=DATE:20210326 DTEND;VALUE=DATE:20210327 RRULE:FREQ=WEEKLY;UNTIL=20210401;BYDAY=MO,WE,FR DESCRIPTION:The Cushing’s Awareness Challenge is almost upon us again! Do you blog? Want to get started? Since April 8 is Cushing’s Awareness Day \, several people got their heads together to create the Eighth Annual Cus hing’s Awareness Blogging Challenge. All you have to do is blog about so mething Cushing’s related for the 30 days of April. Read more at https:/ /cushieblogger.com/2021/03/21/its-time-to-sign-up-for-the-cushings-awarene ss-challenge-2021/ X-ALT-DESC;FMTTYPE=text/html:Increased use of psychotropic drugs in CD w as observed before diagnosis and remained elevated regardless of remission status\, suggesting persisting negative effects on mental health. The stu dy highlights the importance of early diagnosis of CD\, and the need for l ong-term monitoring of mental health.
CATEGORIES:News Items UID:20210225T1755150Z-549422-1321@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Study Opportunity for Cushing's Patients DTSTART;VALUE=DATE:20210602 DTEND;VALUE=DATE:20210603 RRULE:FREQ=WEEKLY;UNTIL=20230512;INTERVAL=2;BYDAY=WE DESCRIPTION:This is a 30 min Online Survey and Compensation is $50 Sign up at the link below to receive an email invite to the study and see if you q ualify https://rarepatientvoice.com/CushingsHelp/ Read more at https://cus hings.invisionzone.com/topic/55655-study-opportunity-for-cushings-patients / X-ALT-DESC;FMTTYPE=text/html:This is a 3 0 min Online Survey and Compensation is $50
Sign up at the link below to receive an email invite to t he study and see if you qualify
https://rarepatientvoice.com/CushingsHelp/
Read more at \;https://cushings.invisionzone.com/topic/55655-study-opportunity-for-cu shings-patients/
CATEGORIES:Cushings UID:20210522T0021360Z-549422-1375@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220813 SUMMARY:Characterization of Adrenal miRNA-Based Dysregulations in Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240813;BYMONTHDAY=13 DESCRIPTION:miRNA-based next-generation sequencing was performed in adrenal tissues taken from patients with ACTH-independent cortisol-producing adre nocortical adenomas (CPA)\, from patients with ACTH-dependent pituitary Cu shing’s disease (CD) after bilateral adrenalectomy\, and from control subj ects. Read more at https://cushings.invisionzone.com/topic/57306-character ization-of-adrenal-mirna-based-dysregulations-in-cushing%E2%80%99s-syndrom e/ X-ALT-DESC;FMTTYPE=text/html:miRNA-based next-generation sequencin g was performed in adrenal tissues taken from patients with ACTH-independe nt cortisol-producing adrenocortical adenomas (CPA)\, from patients with A CTH-dependent pituitary Cushing&rsquo\;s disease (CD) after bilateral adre nalectomy\, and from control subjects.
Read more at&n bsp\;https://cushings.invisionzone.com/topic/5730 6-characterization-of-adrenal-mirna-based-dysregulations-in-cushing%E2%80% 99s-syndrome/
CATEGORIES:News Items UID:20220813T1258020Z-549422-1602@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240717 SUMMARY:Evaluating the usefulness of plasma chromogranin A measurement in c yclic ACTH-dependent Cushing’s syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300717;BYMONTHDAY=17 DESCRIPTION:Cushing’s syndrome\, a clinical condition characterized by hype rcortisolemia\, exhibits distinct clinical signs and is associated with cy clic cortisol secretion in some patients. The clinical presentation of cyc lic Cushing’s syndrome can be ambiguous and its diagnosis is often challen ging. Read more at https://cushings.invisionzone.com/topic/57745-evaluatin g-the-usefulness-of-plasma-chromogranin-a-measurement-in-cyclic-acth-depen dent-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome\, a clinical cond ition characterized by hypercortisolemia\, exhibits distinct clinical sign s and is associated with cyclic cortisol secretion in some patients. The c linical presentation of cyclic Cushing&rsquo\;s syndrome can be ambiguous and its diagnosis is often challenging.
CATEGORIES:Cushings UID:20240718T0254100Z-549422-1803@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211008 SUMMARY:Metabolic profile differences in ACTH-dependent and ACTH-independen t Cushing syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221008;BYMONTHDAY=8 DESCRIPTION:The most common etiologies of Cushing's syndrome (CS) are adren ocorticotropic hormone (ACTH)-producing pituitary adenoma (pitCS) and prim ary adrenal gland disease (adrCS)\, both of which burden patients with met abolic disturbance. The aim of this study was to compare the metabolic fea tures of pitCS and adrCS patients. Read more at https://cushings.invisio nzone.com/topic/56190-metabolic-profile-differences-in-acth-dependent-and- acth-independent-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:The most common etiologies of Cushing's syn drome (CS) are adrenocorticotropic hormone (ACTH)-producing pituitary aden oma (pitCS) and primary adrenal gland disease (adrCS)\, both of which burd en patients with metabolic disturbance. The aim of this study was to compa re the metabolic features of pitCS and adrCS patients.
\;
Read more at \;https://cushings.invisionzone.com/topic /56190-metabolic-profile-differences-in-acth-dependent-and-acth-independen t-cushing-syndrome/
CATEGORIES:News Items UID:20211009T0807090Z-549422-1431@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250328 SUMMARY:📰 Clinical and Surgical Outcomes of Pediatric Cushing’s Disease Fo llowing Endoscopic Transsphenoidal Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270328;BYMONTHDAY=28 DESCRIPTION:Cushing’s disease (CD) is characterized by hypercortisolism due to excessive adrenocorticotropic hormone (ACTH) secretion from a pituitar y adenoma. Though more common in adults\, pediatric cases constitute appro ximately 5% of those seen in adults. Early diagnosis and treatment are cri tical due to the severe impacts on growth and development in children. End oscopic transsphenoidal surgery (ETSS) is the preferred first-line treatme nt for both children and adults. https://cushings.invisionzone.com/topic/5 7801-clinical-and-surgical-outcomes-of-pediatric-cushing%E2%80%99s-disease -following-endoscopic-transsphenoidal-surgery/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is char acterized by hypercortisolism due to excessive adrenocorticotropic hormone (ACTH) secretion from a pituitary adenoma. Though more common in adults\, pediatric cases constitute approximately 5% of those seen in adults. Earl y diagnosis and treatment are critical due to the severe impacts on growth and development in children. Endoscopic transsphenoidal surgery (ETSS) is the preferred first-line treatment for both children and adults.
CATEGORIES:Cushings UID:20250328T1019060Z-549422-1866@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220214 SUMMARY:Association Between Cushing’s Syndrome and Sleep Apnea RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230214;BYMONTHDAY=14 DESCRIPTION:A new study found that people with Cushing's syndrome were sign ificantly more likely to have sleep apnea\, including obstructive sleep ap nea. Read more at https://cushings.invisionzone.com/topic/56593-associatio n-between-cushing%E2%80%99s-syndrome-and-sleep-apnea/ X-ALT-DESC;FMTTYPE=text/html:A new study found that people with Cushing' s syndrome were significantly more likely to have sleep apnea\, including obstructive sleep apnea.
Read more at \;https://cushings.invisionzone.com/ topic/56593-association-between-cushing%E2%80%99s-syndrome-and-sleep-apnea /
CATEGORIES:Cushings UID:20220215T0111150Z-549422-1517@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240517 SUMMARY:Repeat Endoscopic Endonasal Transsphenoidal Surgery for Residual or Recurrent Cushing's Disease: Safety\, Feasibility\, and Success RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300517;BYMONTHDAY=17 DESCRIPTION:The success and outcomes of repeat endoscopic transsphenoidal s urgery (ETS) for residual or recurrent Cushing's disease (CD) are underrep orted in the literature. This study aims to address this gap by assessing the safety\, feasibility\, and efficacy of repeat ETS in these patients. R ead more at https://cushings.invisionzone.com/topic/57729-repeat-endoscopi c-endonasal-transsphenoidal-surgery-for-residual-or-recurrent-cushings-dis ease-safety-feasibility-and-success/ X-ALT-DESC;FMTTYPE=text/html:The success and outcomes of repeat endoscop ic transsphenoidal surgery (ETS) for residual or recurrent Cushing's disea se (CD) are underreported in the literature. This study aims to address th is gap by assessing the safety\, feasibility\, and efficacy of repeat ETS in these patients.
CATEGORIES:Cushings UID:20240517T1456290Z-549422-1786@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240204 SUMMARY:What Do *You* Think? Only One Urine Test for Cushing's? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270204;BYMONTHDAY=4 DESCRIPTION:I sure had way more than one urine test\, and lots of blood and more but that was a long time ago. What are your thoughts on this? Let u s know at https://cushings.invisionzone.com/topic/57689-what-do-you-think- only-one-urine-test-for-cushings/ X-ALT-DESC;FMTTYPE=text/html:I sure had way more than one urine test\, a nd lots of blood and more but that was a long time ago. \;What are yo ur thoughts on this?
Let us know at \;https://cushings.invisionzone.com /topic/57689-what-do-you-think-only-one-urine-test-for-cushings/
CATEGORIES:Cushings UID:20240204T2202550Z-549422-1740@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190325 SUMMARY:Endoscopic Transsphenoidal Approach for Pituitary Tumor Resection RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200325;BYMONTHDAY=25 DESCRIPTION:This video depicts an endoscopic transsphenoidal pituitary appr oach for a patient with a non-functioning macroadenoma. See the video at https://cushieblogger.com/2019/03/25/endoscopic-transsphenoidal-approach-f or-pituitary-tumor-resection/ X-ALT-DESC;FMTTYPE=text/html:This video depicts an endoscopic transsphen oidal pituitary approach for a patient with a non-functioning macroadenoma . \;
See the video at \;https://cushieblogger.com/2019/03/25/endoscopic-tran ssphenoidal-approach-for-pituitary-tumor-resection/
CATEGORIES:Cushings UID:20190325T1852500Z-549422-1109@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211030 SUMMARY:A Case of Cushing’s Disease Presenting with Isolated Suicidal Attem pt RRULE:FREQ=DAILY;COUNT=366 DESCRIPTION: Cushing syndrome can present with wide range of neuropsychiatr ic manifestations including major depression. Although presentation with s uicidal depression is unusual. Early diagnosis and prompt management of hy percortisolsim may aid in preventing or lessening of psychiatric symptoms. Read more at https://cushings.invisionzone.com/topic/56245-a-case-of-cush ing%E2%80%99s-disease-presenting-with-isolated-suicidal-attempt/ X-ALT-DESC;FMTTYPE=text/html:\;Cushing syndrome can present with wi de range of neuropsychiatric manifestations including major depression. Al though presentation with suicidal depression is unusual. Early diagnosis a nd prompt management of hypercortisolsim may aid in preventing or lessenin g of psychiatric symptoms.
Read more at \;https://cushings. invisionzone.com/topic/56245-a-case-of-cushing%E2%80%99s-disease-presentin g-with-isolated-suicidal-attempt/
CATEGORIES:News Items UID:20211030T1340230Z-549422-1444@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Endocrine testing in obesity DTSTART;VALUE=DATE:20210416 DTEND;VALUE=DATE:20210417 RRULE:FREQ=MONTHLY;UNTIL=20220319;BYDAY=3FR DESCRIPTION:Endocrine disorders such as Cushing's syndrome and hypothyroidi sm may cause weight gain and exacerbate metabolic dysfunction in obesity. Other forms of endocrine dysfunction\, particularly gonadal dysfunction (p redominantly testosterone deficiency in men and polycystic ovarian syndrom e in women)\, and abnormalities of the hypothalamic-pituitary-adrenal axis \, the growth hormone-IGF-1 system and vitamin D deficiency are common in obesity. As a result\, endocrinologists may be referred people with obesit y for endocrine testing and asked to consider treatment with various hormo nes. Read more at https://cushings.invisionzone.com/topic/55574-endocrine- testing-in-obesity/ X-ALT-DESC;FMTTYPE=text/html:Endocrine disorders such as Cushing's syndr ome and hypothyroidism may cause weight gain and exacerbate metabolic dysf unction in obesity. Other forms of endocrine dysfunction\, particularly go nadal dysfunction (predominantly testosterone deficiency in men and polycy stic ovarian syndrome in women)\, and abnormalities of the hypothalamic-pi tuitary-adrenal axis\, the growth hormone-IGF-1 system and vitamin D defic iency are common in obesity. As a result\, endocrinologists may be referre d people with obesity for endocrine testing and asked to consider treatmen t with various hormones.
Read more at \;https://cushings.invisionzone.com/topic/55574-endocrine-testing-in-o besity/
CATEGORIES:News Items UID:20210319T1337080Z-549422-1338@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing's Basics: Family Information / Kate DTSTART;VALUE=DATE:20211114 DTEND;VALUE=DATE:20211115 RRULE:FREQ=MONTHLY;UNTIL=20301009;BYDAY=2SA DESCRIPTION:Dear friends and family: I am writing this letter to share with you some basic facts about Cushing’s Disease/Syndrome and the recovery pr ocess so that you will have sufficient information to form realistic expec tations about me and my ability to engage in certain activities in light o f this disease and its aftermath. As you know\, Cushing’s is a rarely diag nosed endocrine disorder characterized by hypercortisolism. Read more at https://cushings.invisionzone.com/topic/56191-family-information-kate/ X-ALT-DESC;FMTTYPE=text/html:Dear friends and family:
I am writi ng this letter to share with you some basic facts about Cushing&rsquo\;s D isease/Syndrome and the recovery process so that you will have sufficient information to form realistic expectations about me and my ability to enga ge in certain activities in light of this disease and its aftermath.
As you know\, Cushing&rsquo\;s is a rarely diagnosed endocrine disorder characterized by hypercortisolism. \;
Read more at \;https://cushings.invisionzone.com/topic/56191-family-in formation-kate/
CATEGORIES:Cushings UID:20211009T0828260Z-549422-1432@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Record a Video\, Receive A Rarity T-Shirt! DTSTART;VALUE=DATE:20220316 DTEND;VALUE=DATE:20220317 RRULE:FREQ=WEEKLY;UNTIL=20230316;BYDAY=WE DESCRIPTION:Help Rare Patient Voice spread the word to other patients and c aregivers about RPV by submitting a short video on your experience with us . Check out the growing group of patients and caregivers who have recorded stories: https://rarepatientvoice.com#sharevoice. Read more at https://cu shings.invisionzone.com/topic/56677-record-a-video-receive-a-rarity-t-shir t/ X-ALT-DESC;FMTTYPE=text/html:Help Rare Patient Voice spread the word to
other patients and caregivers about RPV by submitting a short video on you
r experience with us. Check out the growing group of patients and caregive
rs who have recorded stories: \;https://
Read more at \; https://cushings.invisionzone.com/t opic/56677-record-a-video-receive-a-rarity-t-shirt/
CATEGORIES:Cushings UID:20220316T1434550Z-549422-1527@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Intermittent Blurry Vision: An Unexpected Presentation of Cushing’s Syndrome Due to Primary Bilateral Macronodular Adrenal Hyperplasia (PBMAH ) DTSTART;VALUE=DATE:20220620 DTEND;VALUE=DATE:20220621 RRULE:FREQ=MONTHLY;UNTIL=20240516;BYDAY=3MO DESCRIPTION:Our patient’s presentation was unusual as she presented at 40 y ears old\, 10 years earlier than expected for PBMAH\; and primarily with c omplaints of episodic blurry vision. Her symptoms also progressed rapidly as signs and symptoms largely presented over the course of 12 months\, how ever responded well to surgical resection. Read more at https://cushings. invisionzone.com/topic/56905-intermittent-blurry-vision-an-unexpected-pres entation-of-cushing%E2%80%99s-syndrome-due-to-primary-bilateral-macronodul ar-adrenal-hyperplasia-pbmah/ X-ALT-DESC;FMTTYPE=text/html:Our patient&rsquo\;s presentation was unusu al as she presented at 40 years old\, 10 years earlier than expected for P BMAH\; and primarily with complaints of episodic blurry vision. Her sympto ms also progressed rapidly as signs and symptoms largely presented over th e course of 12 months\, however responded well to surgical resection. \;
CATEGORIES:Cushings UID:20220516T1716320Z-549422-1570@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200719 SUMMARY:2020 Barrow Pituitary Center Patient Education Day October 24\, 202 0 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20201024;BYMONTHDAY=19 DESCRIPTION:The Barrow Pituitary Center is dedicated to educating patients\ , caregivers\, and loved ones by providing information which is current an d non-biased. Experts at this conference will address management of the em otional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about the ir healthcare and achieve their goals for a long and fruitful life. In Per son and Online Registration Options This conference will be offered in per son and through live online format with Zoom. We reserve the right to tran sition to a solely live online format as a result of health concerns as we move into the fall. Participants will be notified if this change develops . More information at https://cushieblogger.com/2020/07/19/2020-barrow-pit uitary-center-patient-education-day-october-24-2020/ X-ALT-DESC;FMTTYPE=text/html:The Barrow Pituitary Center is dedicated to educating patients\, caregivers\, and loved ones by providing information which is current and non-biased. Experts at this conference will address management of the emotional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about their healthcare and achieve their goals for a long and f ruitful life.
In Person and Online Registration Options
This conference will be offered in person and through live onlin
e format with Zoom. We reserve the right to transition to a solely live on
line format as a result of health concerns as we move into the fall. Parti
cipants will be notified if this change develops.
More information at \;https:/ /cushieblogger.com/2020/07/19/2020-barrow-pituitary-center-patient-educati on-day-october-24-2020/
CATEGORIES:Events and Meetings UID:20200719T1945030Z-549422-1278@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251129 SUMMARY:Laura\, In The Media RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301129;BYMONTHDAY=29 DESCRIPTION:Cushing's has appeared several times in the media. Jayne Kerns encouraged Zastrow to check out a Cushing's Web site\, which Zastrow did. Every symptom listed matched her condition. Her doctor ran some tests\, a nd the results confirmed Zastrow had Cushing's\, a hormonal disorder often brought on by a tumor. https://cushingsbios.com/2025/11/29/laura-in-the- media/ X-ALT-DESC;FMTTYPE=text/html:Cushing's has appeared several times in the media. \;Jayne Kerns encouraged Zastrow to check out a Cushing's Web site\, which Zastrow did. Every symptom listed matched her condition. Her doctor ran some tests\, and the results confirmed Zastrow had Cushing's\, a hormonal disorder often brought \;on by a tumor.
https://cushingsbios.com/2025/11/29/laura-in-the-media/< /p> CATEGORIES:News Items UID:20251130T2309110Z-549422-2012@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250502 SUMMARY:TikTok Saved My Life: Student Discovers Life-threatening Tumour Aft er Self-diagnosing Rare Condition RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300502;BYMONTHDAY=2 DESCRIPTION:Did't we all do this? A young woman saved her own life after su ccessfully self-diagnosing cancer/Cushing's that doctors had missed becaus e she researched her own worrying symptoms on TikTok. https://cushings.inv isionzone.com/topic/57819-tiktok-saved-my-life-student-discovers-life-thre atening-tumour-after-self-diagnosing-rare-condition/ X-ALT-DESC;FMTTYPE=text/html:
Did't we all do this?
A young woman saved her own life after successfully self-diagnosing cancer/Cushing's th at doctors had missed because she researched her own worrying symptoms on TikTok.
CATEGORIES:Cushings UID:20250502T1454360Z-549422-1881@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240409 SUMMARY:Related Factors of Delirium After Transsphenoidal Endoscopic Pituit ary Adenoma Resection RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300409;BYMONTHDAY=9 DESCRIPTION:The primary aim of this study is to explore the factors associa ted with delirium incidence in postoperative patients who have undergone e ndoscopic transsphenoidal approach surgery for pituitary adenoma. Read mor e at https://cushings.invisionzone.com/topic/57713-related-factors-of-deli rium-after-transsphenoidal-endoscopic-pituitary-adenoma-resection/ X-ALT-DESC;FMTTYPE=text/html:The primary aim of this study is to e xplore the factors associated with delirium incidence in postoperative pat ients who have undergone endoscopic transsphenoidal approach surgery for p ituitary adenoma.
CATEGORIES:Cushings UID:20240409T1020240Z-549422-1770@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Active Cushing’s disease is characterized by increased adipose tiss ue macrophage presence DTSTART;VALUE=DATE:20190310 DTEND;VALUE=DATE:20190311 RRULE:FREQ=MONTHLY;UNTIL=20200210;BYDAY=2SU DESCRIPTION:Using immunohistochemistry\, researchers determined whether adi pose tissue (AT) inflammation in humans is associated with chronic endogen ous glucocorticoid (GC) exposure due to Cushing’s disease (CD). Read more at https://cushieblog.com/2019/02/10/active-cushings-disease-is-characteri zed-by-increased-adipose-tissue-macrophage-presence/ X-ALT-DESC;FMTTYPE=text/html:Using immunohistochemistry\, researchers de termined whether adipose tissue (AT) inflammation in humans is associated with chronic endogenous glucocorticoid (GC) exposure due to Cushing&rsquo\ ;s disease (CD).
Read more at \;https://cushieblog.com/2019/ 02/10/active-cushings-disease-is-characterized-by-increased-adipose-tissue -macrophage-presence/
CATEGORIES:News Items UID:20190210T2138040Z-549422-1082@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211224 SUMMARY:Racial Disparities in Acromegaly and Cushing's Disease: A Referral Center Study in 241 Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221224;BYMONTHDAY=24 DESCRIPTION:OBJECTIVE: To determine the impact of race on presentation and postoperative outcomes in adults with Acromegaly and Cushing's Disease\, w hich has not yet been evaluated. Read more at https://cushings.invisionzon e.com/topic/56399-racial-disparities-in-acromegaly-and-cushings-disease-a- referral-center-study-in-241-patients/ X-ALT-DESC;FMTTYPE=text/html:OBJECTIVE: To determine the impact of race on presentation and postoperative outcomes in adults with Acromegaly and C ushing's Disease\, which has not yet been evaluated.
Read more at& nbsp\;https://cushings.invisionzone.com/topic/56399-rac ial-disparities-in-acromegaly-and-cushings-disease-a-referral-center-study -in-241-patients/
CATEGORIES:Cushings UID:20211224T1352010Z-549422-1488@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210425 SUMMARY:Day 25\, Cushing’s Awareness Challenge 2021 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300425;BYMONTHDAY=25 DESCRIPTION:At NIH I set up a daily “routine” of sorts and listening to the se tapes was a very important part of my day and helped me get through the ordeal of more testing\, surgery\, post-op and more. When I had my kidney cancer surgery\, those tapes were long broken and irreplaceable\, but I h ad replaced all the songs – this time on my iPod. Read more at https://cus hings.invisionzone.com/topic/56885-day-25-cushing%E2%80%99s-awareness-chal lenge-2022/ X-ALT-DESC;FMTTYPE=text/html:At NIH I set up a daily &ldquo\;routine&rdq uo\; of sorts and listening to these tapes was a very important part of my day and helped me get through the ordeal of more testing\, surgery\, post -op and more.
When I had my kidney cancer surgery\, those tapes we re long broken and irreplaceable\, but I had replaced all the songs &ndash \; this time on my iPod.
Read more at \;https://cushings.invisionzone.com/topic/56885-d ay-25-cushing%E2%80%99s-awareness-challenge-2022/
CATEGORIES:Awareness Challenge UID:20220425T1227520Z-549422-1364@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250409 SUMMARY:Surviving Cushing’s Disease: A Young Man’s Journey RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300409;BYMONTHDAY=9 DESCRIPTION:This narrative nonfiction novel chronicles my son’s twenty-year journey to get his Cushing’s disease diagnosed—a journey that took far to o long. Throughout the book\, I highlight opportunities for testing that c ould have been done according to endocrinologist guidelines. The core mess age is clear: early diagnosis is crucial for people to live vibrant lives. Read Surviving Cushing’s Disease: A Young Man’s Journey. X-ALT-DESC;FMTTYPE=text/html:This narrative nonfiction novel chronicles my son&rsquo\;s twenty-year journey to get his Cushing&rsquo\;s disease di agnosed&mdash\;a journey that took far too long.
Throughout the bo ok\, I highlight opportunities for testing that could have been done accor ding to endocrinologist guidelines.
The core message is clear: ear ly diagnosis is crucial for people to live vibrant lives.
Read S urviving Cushing&rsquo\;s Disease: A Young Man&rsquo\;s Journey.
CATEGORIES:Cushie Bios UID:20250409T0924320Z-549422-1873@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181121 SUMMARY:Mutations in Two Genes\, USP48 and BRAF\, Linked to Cushing’s Disea se RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191121;BYMONTHDAY=21 DESCRIPTION:Mutations in USP48 and BRAF genes contribute to the overproduct ion of adrenocorticotropin (ACTH) hormone by the pituitary gland and conse quent development of Cushing’s disease\, a study shows\, linking these gen es to the disease for a first time. The study\, “Identification of recurre nt USP48 and BRAF mutations in Cushing’s disease\,” published in the journ al Nature Communications\, also identified a possible treatment for patien ts with BRAF-related mutations. ... It is still not clear why some people develop these tumors\, but studies have pointed to mutations in the USP8 g ene as a possible cause. They are present in 35%–62% of all tumor cases\, and influence treatment response and long-term outcomes. Read more at http s://cushieblog.com/2018/11/21/mutations-in-two-genes-usp48-and-braf-linked -to-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Mutations in \;USP48 \;and \;BRAF \;genes contribute to the overprodu ction of adrenocorticotropin (ACTH) hormone by the pituitary gland and con sequent development of Cushing&rsquo\;s disease\, a study shows\, linking these genes to the disease for a first time.
The study\, &ldquo\;< a href='https://doi.org/10.1038/s41467-018-05275-5' target='_blank' rel='n ofollow noopener'>Identification of recurrent USP48 and BRAF mutations in Cushing&rsquo\;s disease\,&rdquo\; published in the journal \;Nature Communications\, also identified a possible treatme nt for patients with \;BRAF-related mutations.
...
It is still not clear why some people develop these tumors\, but stu dies have pointed to mutations in the \;USP8 \;gene as a possible cause. They are present in \;35%&ndash\;62% of all tumor case s\, and influence \;treatment response \;and \;long-term outco mes.
Read more at \;https://cushieblog.com/2018/11/21/mutations-in-two-genes-usp48-a nd-braf-linked-to-cushings-disease/
CATEGORIES:Cushings UID:20181121T1411490Z-549422-1036@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20241107 SUMMARY:Iatrogenic Cushing Syndrome and Adrenal Suppression Presenting as P erimenopause RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301107;BYMONTHDAY=7 DESCRIPTION:Secondary adrenal insufficiency is a life-threatening condition that may arise in the setting of iatrogenic Cushing syndrome. Intra-artic ular corticosteroid injections (IACs) are a standard treatment for osteoar thritis\, and they carry a high risk of secondary central adrenal suppress ion (SAI). https://cushings.invisionzone.com/topic/57766-iatrogenic-cushin g-syndrome-and-adrenal-suppression-presenting-as-perimenopause/ X-ALT-DESC;FMTTYPE=text/html:Secondary adrenal insufficiency is a life-threatening condition that may arise in the setting of iatrogenic Cus hing syndrome. Intra-articular corticosteroid injections (IACs) are a stan dard treatment for osteoarthritis\, and they carry a high risk of secondar y central adrenal suppression (SAI).
CATEGORIES:Cushings UID:20241107T1043420Z-549422-1832@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240729 SUMMARY:Cushing's: A comprehensive guide to understanding a devastating con dition RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300729;BYMONTHDAY=29 DESCRIPTION:By Dr. Lewis Blevins: This book is perhaps something a little d ifferent than most would expect. Firstly\, it's a single-author book on Cu shing's syndrome. It is not\, like most textbooks\, a compendium of edited submissions from multiple authors where there are often divergent opinion s from one chapter to the next. Instead\, it's a treatise reflecting my ed ucation and experience. It is not referenced but instead each chapter is f ollowed by suggested readings. It represents my thoughts\, understanding a nd a personal reflection on a career of evaluating a multitude of patients suspected of having the disorder and treating those confirmed to have hyp ercortisolism due to one cause or another. It reflects my perspectives of the art and science of the field. More info at https://cushings.invisionzo ne.com/topic/57752-cushings-a-comprehensive-guide-to-understanding-a-devas tating-condition/ X-ALT-DESC;FMTTYPE=text/html:By Dr. Lewis Blevins: This book is perhaps something a little different than most would expect. Firstly\, it's a sing le-author book on Cushing's syndrome. It is not\, like most textbooks\, a compendium of edited submissions from multiple authors where there are oft en divergent opinions from one chapter to the next. Instead\, it's a treat ise reflecting my education and experience. It is not referenced but inste ad each chapter is followed by suggested readings. It represents my though ts\, understanding and a personal reflection on a career of evaluating a m ultitude of patients suspected of having the disorder and treating those c onfirmed to have hypercortisolism due to one cause or another. It reflects my perspectives of the art and science of the field.
More info at \;https://cushings.invisionzone.com/topic/57752-cushings- a-comprehensive-guide-to-understanding-a-devastating-condition/
< p> CATEGORIES:Cushings UID:20240729T1335310Z-549422-1811@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231030 SUMMARY:Clinical Features\, Diagnosis and Treatment Outcomes of Cushing's D isease In Children: a Multicenter Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301030;BYMONTHDAY=30 DESCRIPTION:Herein\, national data of the clinical experience on paediatric CD have been presented. Our findings highlight that presenting complaints may be subtle in children\, the sensitivities of the diagnostic tests are very variable and require a careful interpretation\, and MRI fails to det ect adenoma in approximately one-third of cases. Finally\, clinicians shou ld be aware of the recurrence of the disease during the follow-up after su rgery. Read more at https://cushings.invisionzone.com/topic/57658-clinical -features-diagnosis-and-treatment-outcomes-of-cushings-disease-in-children -a-multicenter-study/ X-ALT-DESC;FMTTYPE=text/html:Herein\, national data of the clinica l experience on paediatric CD have been presented. Our findings highlight that presenting complaints may be subtle in children\, the sensitivities o f the diagnostic tests are very variable and require a careful interpretat ion\, and MRI fails to detect adenoma in approximately one-third of cases. Finally\, clinicians should be aware of the recurrence of the disease dur ing the follow-up after surgery.
Read more at \;< a href='https://cushings.invisionzone.com/topic/57658-clinical-features-di agnosis-and-treatment-outcomes-of-cushings-disease-in-children-a-multicent er-study/' target='_blank' rel='nofollow'>https://cushings.invisionzone.co m/topic/57658-clinical-features-diagnosis-and-treatment-outcomes-of-cushin gs-disease-in-children-a-multicenter-study/
CATEGORIES:Cushings UID:20231030T2157390Z-549422-1699@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231022 SUMMARY:Dynamic Functional Connectivity Changes Associated with Psychiatric Traits and Cognitive Deficits in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301022;BYMONTHDAY=22 DESCRIPTION:Cushing’s disease is a rare neuroendocrine disorder with excess ive endogenous cortisol\, impaired cognition\, and psychiatric symptoms. E vidence from resting-state fMRI revealed the abnormalities of static brain connectivity in patients with Cushing’s disease (CD patients). Read more at https://cushings.invisionzone.com/topic/57655-dynamic-functional-conne ctivity-changes-associated-with-psychiatric-traits-and-cognitive-deficits- in-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease is a rare ne uroendocrine disorder with excessive endogenous cortisol\, impaired cognit ion\, and psychiatric symptoms. Evidence from resting-state fMRI revealed the abnormalities of static brain connectivity in patients with Cushing&rs quo\;s disease (CD patients). \;
CATEGORIES:Cushings UID:20231021T2219000Z-549422-1696@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cheryl\, Bilateral Adrenalectomy Patient Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20220313;BYMONTH=3;BYMONTHDAY=13 DTSTART;VALUE=DATE:20210313 DTEND;VALUE=DATE:20210314 DESCRIPTION:Cheryl is from Mount Dora\, Florida. She had a bilateral adren alectomy (BLA) after two failed pituitary surgeries. Read more at https:// cushingsbios.com/2021/03/13/cheryl-bilateral-adrenalectomy-patient-bio/ X-ALT-DESC;FMTTYPE=text/html:
Cheryl is from Mount Dora\, Florida. \ ;She had a bilateral adrenalectomy (BLA) after two failed pituitary surger ies.
Read more at \;https://cu shingsbios.com/2021/03/13/cheryl-bilateral-adrenalectomy-patient-bio/< /p> CATEGORIES:Cushie Bios UID:20210313T1432140Z-549422-1331@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory: Danielle Reszenski RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300924;BYMONTH=9;BYMONTHDAY=24 DTSTART;VALUE=DATE:20230924 DTEND;VALUE=DATE:20230925 DESCRIPTION:So sad to report we lost Danielle Reszenski this date in 2021 t o complications from adrenal insufficiency. Please keep her family and lov ed ones in your thoughts and prayers. It is always such a shock even all o f these years later in this community. People can seem fine on the outside but it only takes one illness to have a devastating loss with AI. X-ALT-DESC;FMTTYPE=text/html:
So sad to report we lost Daniel le Reszenski \;this date in 2021 to complication s from adrenal insufficiency.
Please keep her family and loved one s in your thoughts and prayers. It is always such a shock even all of thes e years later in this community. People can seem fine on the outside but i t only takes one illness to have a devastating loss with AI.
CATEGORIES:In Memory UID:20230925T1140000Z-549422-1677@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211126 SUMMARY:Do you Live with Congenital Adrenal Hyperplasia (CAH)? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221126;BYMONTHDAY=26 DESCRIPTION:CAHmelia 203 and CAHmelia 204 are clinical trials to test tilda cerfont in adults with classic CAH\, which may offer you and your loved on es hope of a brighter future – one where you may not have to choose betwee n symptom management and long-term health. Read more at https://cushings.i nvisionzone.com/topic/56301-do-you-live-with-congenital-adrenal-hyperplasi a-cah/ X-ALT-DESC;FMTTYPE=text/html:CAHmelia 203 and CAHmelia 204 are clinical trials to test tildacerfont in adults with classic CAH\, which may offer y ou and your loved ones hope of a brighter future &ndash\; one where you ma y not have to \;choose between symptom management and long-ter m health.
Read more at \;https://cushings.invisionzone.com/topic/56301-do-yo u-live-with-congenital-adrenal-hyperplasia-cah/
CATEGORIES:Other Medical UID:20211126T0917290Z-549422-1469@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220925 SUMMARY:Basics: Diagnostic Procedures in Suspected Adrenocortical Carcinoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250925;BYMONTHDAY=25 DESCRIPTION:Patients with suspected adrenocortical carcinoma (ACC) may also undergo additional tests to identify excess sex steroids and steroid prec ursors\, mineralocorticoids and glucocorticoids. Read more at https://cush ings.invisionzone.com/topic/57561-basics-diagnostic-procedures-in-suspecte d-adrenocortical-carcinoma/ X-ALT-DESC;FMTTYPE=text/html:Patients with suspected adrenocortica l carcinoma (ACC) may also undergo additional tests to identify excess sex steroids and steroid precursors\, mineralocorticoids and glucocorticoids.
Read more at \;https://cushings.invisionz one.com/topic/57561-basics-diagnostic-procedures-in-suspected-adrenocortic al-carcinoma/
CATEGORIES:Cushings UID:20220925T1047290Z-549422-1609@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Miriam K (Meeks089)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301112;BYMONTH=11;BYMONTHDAY=12 DTSTART;VALUE=DATE:20251112 DTEND;VALUE=DATE:20251113 DESCRIPTION:It was a long hellish journey .However I would not trade it for anything else in the world. Although I suffered immensly\, Cushings has m ade me who I am today. I have become strong from this disease. Although I suffered many symptoms\, the emotional ones were by far the worst. https:/ /cushingsbios.com/2025/11/11/miriam-k-meeks089-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:It was a long hellish journey .However I wo uld not trade it for anything else in the world.
Although I suffer ed immensly\, Cushings has made me who I am today. I have become strong fr om this disease. Although I suffered many symptoms\, the emotional ones we re by far the worst.
https://c ushingsbios.com/2025/11/11/miriam-k-meeks089-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251112T0841400Z-549422-1980@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251112 SUMMARY:Prospective Assessment of Mood and Quality of Life in Cushing syndr ome before and after Biochemical Control RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301112;BYMONTHDAY=12 DESCRIPTION:Although effective treatment improves mood and Quality of Life in Cushing's Syndrome\, clinically meaningful recovery is variable and inc omplete for some patients. https://cushings.invisionzone.com/topic/57913-p rospective-assessment-of-mood-and-quality-of-life-in-cushing-syndrome-befo re-and-after-biochemical-control/ X-ALT-DESC;FMTTYPE=text/html:Although effective treatment improves mood and Quality of Life in Cushing's Syndrome\, clinically meaningful recovery is variable and incomplete for some patients.
CATEGORIES:Cushings UID:20251112T0818360Z-549422-1979@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251229 SUMMARY:The Effect of Hypercortisolism Treatment on Dyslipidemia in Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301229;BYMONTHDAY=29 DESCRIPTION:Our study demonstrate a significant improvement in serum lipid levels after treatment of Cushings Syndrome. Since the cardiovascular comp lications of hypercortisolism depend on several factors\, further studies are needed to determine whether this directly translates into an adequate reduction in the risk of major cardiovascular events. https://cushings.inv isionzone.com/topic/57931-the-effect-of-hypercortisolism-treatment-on-dysl ipidemia-in-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Our study demonstrate a significant improve ment in serum lipid levels after treatment of Cushings Syndrome. Since the cardiovascular complications of hypercortisolism depend on several factor s\, further studies are needed to determine whether this directly translat es into an adequate reduction in the risk of major cardiovascular events.< /p>
CATEGORIES:Cushings UID:20251229T2227520Z-549422-2031@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181110 SUMMARY:Michelle (Michelle)\, Cyclical Cushing's Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191110;BYMONTHDAY=10 DESCRIPTION:Michelle is from Santa Monica\, CA. She is not yet diagnosed with Cushing's but gained 50 pounds with no change in activity or eating. She sent an article on Cyclical Cushing's to her doctor at the Mayo Clini c. Read more at https://cushingsbios.com/2018/11/10/michelle-michelle-cycl ical-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:Michelle is from \;Santa Monica\, CA. \; She is not yet diagnosed with Cushing's but gained 50 pounds with no change in activity or eating. She sent an article on Cyclical Cushing's to her doctor at the Mayo Clinic.
Read more at \;https://cushingsbios.com/2018/11/10/michelle-michelle-cyc lical-cushings-bio/
CATEGORIES:Cushie Bios UID:20181110T1555060Z-549422-1019@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181110 SUMMARY:A Letter To Patients With Chronic Disease DESCRIPTION:MaryO'Note: Dr. Rob was interviewed by Robin (staticnrg) and M ary O'Connor (MaryO) October 2\, 2008 on BlogTalkRadio Cushing's Help ...I am talking about your understanding of a fact that everyone else seems to miss\, a fact that many doctors hide from: we are normal\, fallible peopl e who happen to doctor for a job. We are not special. In fact\, many of us are very insecure\, wanting to feel the affirmation of people who get b etter\, hearing the praise of those we help. We want to cure disease\, to save lives\, to be the helping hand\, the right person in the right place at the right time. But chronic unsolvable disease stands square in our wa y. You don't get better\, and it makes many of us frustrated\, and it mak es some of us mad at you. We don't want to face things we can't fix becau se it shows our limits. We want the miraculous\, and you deny us that cha nce... Read more at https://cushieblog.com/2017/01/10/a-letter-to-patients -with-chronic-disease/ X-ALT-DESC;FMTTYPE=text/html:MaryO'Note: \; \;D r. Rob was interviewed by Robin (staticnrg) and Mary O'Connor (MaryO) Octo ber 2\, \;2008 \;on \;BlogTalkRadio Cushing's Help
...I am ta lking about your understanding of a fact that everyone else seems to miss\ , a fact that many doctors hide \;from: \;we are normal\, fallible people who happen to doctor for a job. \; We are not special. \; In fact\, many of us are very insecure\, wanting to feel the affirmation o f people who get better\, hearing the praise of those we help. \; We w ant to cure disease\, to save lives\, to be the helping hand\, the right p erson in the right place at the right time.
But chronic unsolvable
disease stands square in our way. \; You don't get better\, and it ma
kes many of us frustrated\, and it makes some of us mad at you. \; We
don't want to face things we can't fix because it shows our limits. \;
We want the miraculous\, and you deny us that chance...
Read m
ore at \;https://cushieblog.com/2017/01/1
0/a-letter-to-patients-with-chronic-disease/
The child&rsquo\;s excess fat was mainly in his abdomen plus he had a round\, red\, puffy face\, which are both commo n features of Cushing&rsquo\;s disease. He had no history of acute or chro nic steroid intake\, mood swings\, sleep disorders\, or issues with eyesig ht.
Given his clinical presentation\, the investigators suspected the boy had Cushing&rsquo\;s disease or pseudo-Cushing&rsquo\;s disease\, which refers to situations where the overproduction of cortisol is caused by something unrelated to the disease\, such as stress or uncontrolled&nbs p\;diabetes mellitus.
Read more at \;https://cushieblog.com/2018/10/26/rare-case-of-cushing s-disease-diagnosed-in-7-year-old-boy/
CATEGORIES:Cushings UID:20181026T1519110Z-549422-1006@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251022 SUMMARY:Enhanced Radiological Detection of a Corticotroph Adenoma Following Treatment With Osilodrostat RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301022;BYMONTHDAY=22 DESCRIPTION:We describe a 42-year-old woman with Cushing disease\, in whom MRI findings at presentation were equivocal with no clear adenoma visualiz ed. She was initially treated with metyrapone\, which resulted in partial biochemical control of hypercortisolism. After switching to osilodrostat\, there was a marked improvement in her symptoms and rapid normalization of cortisol levels. https://cushings.invisionzone.com/topic/57903-enhanced-r adiological-detection-of-a-corticotroph-adenoma-following-treatment-with-o silodrostat/ X-ALT-DESC;FMTTYPE=text/html:We describe a 42-year-old woman with Cushin g disease\, in whom MRI findings at presentation were equivocal with no cl ear adenoma visualized. She was initially treated with metyrapone\, which resulted in partial biochemical control of hypercortisolism. After switchi ng to osilodrostat\, there was a marked improvement in her symptoms and ra pid normalization of cortisol levels.
CATEGORIES:Cushings UID:20251022T1426310Z-549422-1958@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:MizBellaTru\, Undiagnosed bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301112;BYMONTH=11;BYMONTHDAY=12 DTSTART;VALUE=DATE:20251112 DTEND;VALUE=DATE:20251113 DESCRIPTION:Also I want to point out that I gained a lot of weight over the last 15 years and I’m now about 120 lbs overweight. I gained 12 of those pounds in just less than 2 weeks recently and my eating hasn’t changed. Th is is what made me start looking on the internet about rapid weight gain w hen I came across Cushings and started wondering if I could have this. At this time I’m waiting on some results from a urine test to see if I’m star ting to have a problem with my kidneys because I’m dealing with a lot of e dema lately. I don’t know if all the problems I’m having such as the poor wound healing\, edema\, diabetes\, developing high blood pressure are all separate things or more related to my Diabetes. https://cushingsbios.com/2 025/11/12/mizbellatru-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Also I want to point out that I gained a lo t of weight over the last 15 years and I&rsquo\;m now about 120 lbs overwe ight. I gained 12 of those pounds in just less than 2 weeks recently and m y eating hasn&rsquo\;t changed. This is what made me start looking on the internet about rapid weight gain when I came across Cushings and started w ondering if I could have this.
At this time I&rsquo\;m waiting on some results from a urine test to see if I&rsquo\;m starting to have a pro blem with my kidneys because I&rsquo\;m dealing with a lot of edema lately . I don&rsquo\;t know if all the problems I&rsquo\;m having such as the po or wound healing\, edema\, diabetes\, developing high blood pressure are a ll separate things or more related to my Diabetes.
https://cushingsbios.com/2025/11/12/mizbellatru-undiagnos ed-bio/
CATEGORIES:Cushie Bios UID:20251112T1146530Z-549422-1981@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240206 SUMMARY:Navigating the Surgical Landscape: A Comprehensive Analysis of Endo scopic vs. Microscopic Transsphenoidal Pituitary Surgery Outcomes RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300206;BYMONTHDAY=6 DESCRIPTION:Pituitary surgery\, a critical intervention for various pituita ry disorders\, has sparked ongoing debates regarding the preference betwee n endoscopic and microscopic transsphenoidal approaches. This systematic r eview delves into the outcomes associated with these techniques\, taking i nto account the recent advancements in neurosurgery. Read more at https:/ /cushings.invisionzone.com/topic/57690-navigating-the-surgical-landscape-a -comprehensive-analysis-of-endoscopic-vs-microscopic-transsphenoidal-pitui tary-surgery-outcomes/ X-ALT-DESC;FMTTYPE=text/html:Pituitary surgery\, a critical interv ention for various pituitary disorders\, has sparked ongoing debates regar ding the preference between endoscopic and microscopic transsphenoidal app roaches. This systematic review delves into the outcomes associated with t hese techniques\, taking into account the recent advancements in neurosurg ery. \;
CATEGORIES:Cushings UID:20240206T1133570Z-549422-1741@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230708 SUMMARY:Minimizing the Number of False Positives in Dexamethasone Suppressi on Testing for the Diagnosis of Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270708;BYMONTHDAY=8 DESCRIPTION:A method for diagnosing Cushing's syndrome efficiently and accu rately. The approach involves simultaneous the measurement of cortisol and dexamethasone levels using LC-MS/MS\, which reduces false positives in de xamethasone suppression test (DSTs). The described LC-MS/MS method enables the tracking of multiple analytes\, including cortisol\, cortisone\, and dexamethasone\, in serum or plasma… Read more at https://cushings.invision zone.com/topic/57615-minimizing-the-number-of-false-positives-in-dexametha sone-suppression-testing-for-the-diagnosis-of-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A method for diagnosing Cushing's syndrome efficiently and accurately. The approach involves simultaneous the measure ment of cortisol and dexamethasone levels using LC-MS/MS\, which reduces f alse positives in dexamethasone suppression test (DSTs). The described LC- MS/MS method enables the tracking of multiple analytes\, including cortiso l\, cortisone\, and dexamethasone\, in serum or plasma&hellip\;
CATEGORIES:Cushings UID:20230708T1349130Z-549422-1656@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Treatment-Resistant Cushing Disease and Acromegaly in a Young Woman : A Case Of Functional Pituitary Macroadenoma DTSTART;VALUE=DATE:20250414 DTEND;VALUE=DATE:20250415 RRULE:FREQ=MONTHLY;UNTIL=20300310;BYDAY=2MO DESCRIPTION:Cushing disease and acromegaly are common endocrine disorders c aused by excessive cortisol and growth hormone production\, respectively. Both conditions can co-occur due to functioning pituitary adenomas\, which are typically benign pituitary gland tumors. This report discusses a 30-y ear-old woman with hyperpituitarism leading to treatment-resistant Cushing disease and acromegaly caused by a functional pituitary macroadenoma. htt ps://cushings.invisionzone.com/topic/57793-treatment-resistant-cushing-dis ease-and-acromegaly-in-a-young-woman-a-case-of-functional-pituitary-macroa denoma/ X-ALT-DESC;FMTTYPE=text/html:
Cushing disease and acromegaly are co mmon endocrine disorders caused by excessive cortisol and growth hormone p roduction\, respectively. Both conditions can co-occur due to functioning pituitary adenomas\, which are typically benign pituitary gland tumors. Th is report discusses a 30-year-old woman with hyperpituitarism leading to t reatment-resistant Cushing disease and acromegaly caused by a functional p ituitary macroadenoma.
CATEGORIES:Cushings UID:20250310T1349090Z-549422-1858@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Foundation Seeks Awareness on Cushing’s Syndrome RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300409;BYMONTH=4;BYMONTHDAY=9 DTSTART;VALUE=DATE:20250409 DTEND;VALUE=DATE:20250410 DESCRIPTION:The Aisha Adamu Fari Foundation has emphasised the need for inc reased investment in raising awareness about early detection and treatment of Cushing’s Syndrome to contain the disease. https://cushings.invisionzo ne.com/topic/57811-foundation-seeks-awareness-on-cushing%E2%80%99s-syndrom e/ X-ALT-DESC;FMTTYPE=text/html:The Aisha Adamu Fari Foundation has e mphasised the need for increased investment in raising awareness about ear ly detection and treatment of Cushing&rsquo\;s Syndrome to contain the dis ease.
CATEGORIES:Awareness Challenge UID:20250409T1422310Z-549422-1874@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250903 SUMMARY:Research Study for Patients Diagnosed with Cushing's Disease and Th eir Caregivers RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300903;BYMONTHDAY=3 DESCRIPTION:We’re looking for caregivers to loved ones diagnosed with Cushi ng's Disease or patients diagnosed with Cushing's Disease to participate i n a research study. Who: Patients and caregivers of loved ones What: 30 -minute Online Survey Compensation: $60.00 Sign up here: https://rarepati entvoice.com/CushingsHelp/ X-ALT-DESC;FMTTYPE=text/html:We&rsquo\;re looking for \;caregi vers to loved ones diagnosed with \;Cushing's Disease&nbs p\;or patients \;diagnosed with \;Cushing's Disease \;to participate in a research study. \;< /span>
Sign up here:&nb sp\;https://rar epatientvoice.com/CushingsHelp/
CATEGORIES:Cushings UID:20250903T1924300Z-549422-1935@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180810 SUMMARY:Metyrapone Reduced Urinary-Free Cortisol Levels in Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190810;BYMONTHDAY=10 DESCRIPTION:This observational\, longitudinal study evaluated the effects o f the 11β -hydroxylase inhibitor metyrapone on adult patients with Cushing syndrome. Urinary-free cortisol and late-night salivary cortisol levels w ere evaluated in 31 patients who were already treated with metyrapone to m onitor cortisol normalization and rhythm. Read more at https://cushieblog. com/2018/08/10/metyrapone-reduced-urinary-free-cortisol-levels-in-cushing- syndrome/ X-ALT-DESC;FMTTYPE=text/html:This observational\, longitudinal study eva luated the effects of the 11&beta\; -hydroxylase inhibitor metyrapone on a dult patients with Cushing syndrome. Urinary-free cortisol and late-night salivary cortisol levels were evaluated in 31 patients who were already tr eated with metyrapone to monitor cortisol normalization and rhythm.
< p>Read more at \;https://cushieblog.com/2018/08/10/metyrapone-reduced-urinary-free-cortis ol-levels-in-cushing-syndrome/ CATEGORIES:Cushings UID:20180810T1440050Z-549422-966@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210715 SUMMARY:Why Did I Stop Sleeping? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220715;BYMONTHDAY=15 DESCRIPTION:An article on pituitary Cushing's from Prevention magazine. Rea d more at https://cushingsbios.com/2021/07/15/why-did-i-stop-sleeping/ X-ALT-DESC;FMTTYPE=text/html:An article on pituitary Cushing's from Prev ention magazine.
Read more at \;https://cushingsb ios.com/2021/07/15/why-did-i-stop-sleeping/
CATEGORIES:Cushie Bios UID:20210715T1132250Z-549422-1405@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180818 SUMMARY:Cushing Syndrome Results in Poor Quality of Life Even After Remissi on RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190818;BYMONTHDAY=18 DESCRIPTION:Functional remission did not occur in most patients with Cushin g syndrome who were considered to be in biochemical and clinical remission \, according to a study published in Endocrine. This was evidenced by thei r quality of life\, which remained impaired in all domains. Read more at h ttps://cushieblog.com/2018/08/18/cushing-syndrome-results-in-poor-quality- of-life-even-after-remission/ X-ALT-DESC;FMTTYPE=text/html:Functional remission did not occur in most patients with \;Cushing syndrome \;who were considered to be in bi ochemical and clinical remission\, according to a study published in \ ;Endocrine. This was evidenced by their quality of life\, which r emained impaired in all domains.
Read more at \;https://cushieblog.com/2018/08/ 18/cushing-syndrome-results-in-poor-quality-of-life-even-after-remission/< /a>
CATEGORIES:Cushings UID:20180818T1706140Z-549422-968@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180421 SUMMARY:Comment added to Tamara K\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190421;BYMONTHDAY=21 DESCRIPTION:I see a doctor at Vanderbilt who specializes in Cushings. I am very grateful that I found her but she never talks about the fatigue. I re ally wish this was discussed more. I’m not even sure if I have the energy to continue to work... In the comments area of https://cushingsbios.com/20 18/04/03/tamara-k-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I see a doctor at Vanderbilt who specialize s in Cushings. I am very grateful that I found her but she never talks abo ut the fatigue. I really wish this was discussed more. I&rsquo\;m not even sure if I have the energy to continue to work...
In the comments area of \;https://cushingsbios.com/2018/04/03/tamara-k-pit uitary-bio/
CATEGORIES:Cushie Bios UID:20180421T1252150Z-549422-912@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20190925 SUMMARY:Cortisol Levels Predict Remission in Cushing’s Patients Undergoing Transsphenoidal Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200925;BYMONTHDAY=25 DESCRIPTION:In patients with Cushing’s disease\, removing the pituitary tum or via an endoscopic transsphenoidal surgery (TSS) leads to better remissi on rates than microscopic TSS\, according to new research. But regardless of surgical approach\, plasma cortisol levels one day after surgery are pr edictive of remission. Read more at https://cushieblog.com/2019/09/25/cort isol-levels-predict-remission-in-cushings-patients-undergoing-transsphenoi dal-surgery/ X-ALT-DESC;FMTTYPE=text/html:In patients with \;Cushing&rsquo\;s dis ease\, removing the pituitary tumor via an endoscopic transsphenoidal surg ery (TSS) leads to better remission rates than microscopic TSS\, according to new research.
But regardless of surgical approach\, plasma cor tisol levels one day after surgery are predictive of remission.
Re ad more at \;https://cushieblog.com/2019/09/25/cortisol-levels-pred ict-remission-in-cushings-patients-undergoing-transsphenoidal-surgery/
CATEGORIES:News Items UID:20190925T0911070Z-549422-1216@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Sandy (KindredSpirit)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301230;BYMONTH=12;BYMONTHDAY=30 DTSTART;VALUE=DATE:20251230 DTEND;VALUE=DATE:20251231 DESCRIPTION:I have been on the health journey for a number of years. It was a friend who gave me the name of Cushing’s and had I been tested. Tested? ! Never heard of it. Went online and saw the symptoms. Felt that the missi ng piece of the puzzle was found. https://cushingsbios.com/2025/12/30/sand y-kindredspirit-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I have been on the health journey for a num ber of years. It was a friend who gave me the name of Cushing&rsquo\;s and had I been tested. Tested?! Never heard of it.
Went online and sa w the symptoms. Felt that the missing piece of the puzzle was found.
https://cushingsbios.com/2025/12/ 30/sandy-kindredspirit-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251230T1356480Z-549422-2032@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220526 SUMMARY:Osilodrostat Improves Physical Manifestations of Hypercortisolism f or Most Adults RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240526;BYMONTHDAY=26 DESCRIPTION:Osilodrostat is associated with improvements in physical manife stations of hypercortisolism and reductions in mean body weight and BMI in adults with Cushing’s syndrome\, according to a speaker. Read more at htt ps://cushings.invisionzone.com/topic/56917-osilodrostat-improves-physical- manifestations-of-hypercortisolism-for-most-adults/ X-ALT-DESC;FMTTYPE=text/html:Osilodrostat is associated with improvement s in physical manifestations of hypercortisolism and reductions in mean bo dy weight and BMI in adults with Cushing&rsquo\;s syndrome\, according to a speaker.
Read more at \;https://cushings.invisionzone .com/topic/56917-osilodrostat-improves-physical-manifestations-of-hypercor tisolism-for-most-adults/
CATEGORIES:Cushings UID:20220526T2316210Z-549422-1574@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Jessica and Justin\, Siblings In the Media RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301229;BYMONTH=12;BYMONTHDAY=29 DTSTART;VALUE=DATE:20251229 DTEND;VALUE=DATE:20251230 DESCRIPTION:In the media: Jessica and Justin\, siblings who both had pituit ary tumors. https://cushingsbios.com/2025/12/29/jessica-and-justin-sibling s-in-the-media/ X-ALT-DESC;FMTTYPE=text/html:In the media: Jessica and Justin\, siblings who both had pituitary tumors.
https://cushingsbios.com/2025/12/29/jessica-and-justin-siblings -in-the-media/
CATEGORIES:Cushie Bios UID:20251230T1359300Z-549422-2033@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251230 SUMMARY:Video: Morning Medical Update - Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301230;BYMONTHDAY=30 DESCRIPTION:Cushing's Disease can be treated\, but only with the right doct or and diagnosis. We explore the barriers that make some patients endure years of symptoms before finding relief. https://cushings.invisionzone.com /topic/57933-morning-medical-update-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing's Disease can be treated\, but only with the right doctor and diagnosis. \;
We explore the barrie rs that make some patients endure years of symptoms before finding relief.
https://cus hings.invisionzone.com/topic/57933-morning-medical-update-cushings-disease /
CATEGORIES:Cushings UID:20251230T1429460Z-549422-2035@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251230 SUMMARY:Environmental Issues and Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301230;BYMONTHDAY=30 DESCRIPTION:Scientists now tell us there is something in our waters that we least expected. That “something” is a class of chemicals called endocrine disruptors\, and Dr. Vicki Blazer\, a fisheries biologist at the United S tates Geological Survey\, thinks the chemicals are responsible for the hig h concentrations of intersex fish found in the Potomac\, and other rivers in the mid-Atlantic. https://cushieblog.com/2025/12/30/environmental-issue s-and-cushings/ X-ALT-DESC;FMTTYPE=text/html:Scientists now tell us there is something i n our waters that we least expected.
That &ldquo\;something&rdquo\ ; is a class of chemicals called endocrine disruptors\, and Dr. Vicki Blaz er\, a fisheries biologist at the United States Geological Survey\, thinks the chemicals are responsible for the high concentrations of intersex fis h found in the Potomac\, and other rivers in the mid-Atlantic.
https://cushieblog.com/2025/12/30/environ mental-issues-and-cushings/
CATEGORIES:Cushings UID:20251230T1442330Z-549422-2036@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Adrenal Fatigue: Faux Diagnosis? DTSTART;VALUE=DATE:20211231 DTEND;VALUE=DATE:20220101 RRULE:FREQ=MONTHLY;UNTIL=20221126;BYDAY=-1FR DESCRIPTION:You may have heard of so-called 'adrenal fatigue\,' supposedly caused by ongoing emotional stress. Or you might have come across adrenal support supplements sold online to treat it. But if someone suggests you h ave the controversial\, unproven condition\, seek a second opinion\, exper ts say. And if someone tries to sell you dietary supplements or other trea tments for adrenal fatigue\, be safe and save your money. Read more at htt ps://cushings.invisionzone.com/topic/56303-adrenal-fatigue-faux-diagnosis/ X-ALT-DESC;FMTTYPE=text/html:You may have heard of so-called 'adrenal fa tigue\,' supposedly caused by ongoing emotional stress. Or you might have come across adrenal support supplements sold online to treat it. But if so meone suggests you have the controversial\, unproven condition\, seek a se cond opinion\, experts say. And if someone tries to sell you dietary suppl ements or other treatments for \;adrenal fatigue \, be safe and save your money.
Read more at \;https://cushings.invisionzone.com/topic/56303-adrenal-fatig ue-faux-diagnosis/
CATEGORIES:Other Medical UID:20211126T1446270Z-549422-1470@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180413 SUMMARY:Comment added to Rachelle L (Rachelle)\, Mother-in-Law of Pituitary Patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190413;BYMONTHDAY=13 DESCRIPTION:I had cyclical Cushing with both my pregnancies…. didn’t know i t tho… but my first one was a bad pregnancy….pre eclampsia….low birth weig ht even tho he was over due…. In the comments at https://cushingsbios.com/ 2018/04/10/rachelle-l-rachelle-mother-in-law-of-pituitary-patient/ X-ALT-DESC;FMTTYPE=text/html:I had cyclical Cushing with both my pregnan cies&hellip\;. didn&rsquo\;t know it tho&hellip\; but my first one was a b ad pregnancy&hellip\;.pre eclampsia&hellip\;.low birth weight even tho he was over due&hellip\;.
In the comments at \;https://cushingsbios.com/2018/04/10/rachelle-l-r achelle-mother-in-law-of-pituitary-patient/
CATEGORIES:Cushie Bios UID:20180414T0121170Z-549422-901@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:From a Past Blogging Challenge. DTSTART;VALUE=DATE:20180506 DTEND;VALUE=DATE:20180507 RRULE:FREQ=MONTHLY;UNTIL=20190401;BYDAY=1SU DESCRIPTION:Today\, I’m going to be talking about my Cushing’s story\, whic h still continues\, even 8 years after I was diagnosed... Read more at htt ps://cushieblogger.com/2018/04/01/from-a-past-blogging-challenge/ X-ALT-DESC;FMTTYPE=text/html:Today\, I&rsquo\;m going to be talking abou t my Cushing&rsquo\;s story\, which still continues\, even 8 years after I was diagnosed...
Read more at \;https:// cushieblogger.com/2018/04/01/from-a-past-blogging-challenge/
CATEGORIES:Awareness Challenge UID:20180401T2257590Z-549422-861@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180401 SUMMARY:Detailed MRI Analysis Provides Correlations with Clinical Features and Response to Treatment in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190401;BYMONTHDAY=1 DESCRIPTION:Detailed imaging analysis of patients with Cushing’s disease (C D) and other disorders caused by pituitary adenomas (tumors that arise fro m the pituitary\, a small gland in the brain) provides correlation with cl inical characteristics and treatment response... Read more at https://cush ieblog.com/2018/04/01/detailed-mri-analysis-provides-correlations-with-cli nical-features-and-response-to-treatment-in-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:Detailed imaging analysis of patients with& nbsp\;Cushing&rsquo\;s disease \;(CD) and other disorders caused by pi tuitary adenomas (tumors that arise from the pituitary\, a small gland in the brain) provides correlation with clinical characteristics and treatmen t response...
CATEGORIES:Cushings UID:20180401T2311580Z-549422-862@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:In Memory: Shianne Lombard-Treman RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300328;BYMONTH=3;BYMONTHDAY=28 DTSTART;VALUE=DATE:20180328 DTEND;VALUE=DATE:20180329 DESCRIPTION:Shianne was a Cushing's Survivor who had just published a book\ , Be Your Own Doctor She was 41. Read more at https://cushingsbios.com/202 1/03/28/in-memory-shianne-lombard-treman-march-28-2018-3/ X-ALT-DESC;FMTTYPE=text/html:Shianne was a Cushing's Survivor who had ju st published a book\, Be Your Own Doctor
She was 41.
Read more at \;https://cushingsbios.c om/2021/03/28/in-memory-shianne-lombard-treman-march-28-2018-3/
CATEGORIES:In Memory UID:20220328T1556210Z-549422-866@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:From another Cushie Blogger: Another loss DTSTART;VALUE=DATE:20180507 DTEND;VALUE=DATE:20180508 RRULE:FREQ=MONTHLY;UNTIL=20190402;BYDAY=1MO DESCRIPTION:Shianne Lombard-Treman passed just three days ago. She had a fo rm of Cushing’s Syndrome caused by adrenal tumors\, and I am in remission from Cushing’s Disease caused by a tumor on my pituitary. My heart aches t hinking of Shianne and all those we have lost in the last few years. Today marks the start of Cushing’s Disease Awareness Month (and Adrenal Insuffi ciency Awareness Month - a common result from Cushing’s treatment)... Read more at https://cushieblogger.com/2018/04/02/another-loss-just-as-cushing s-awareness-month-starts-again/ X-ALT-DESC;FMTTYPE=text/html:Shianne Lombard-Treman passed just three da ys ago. She had a form of Cushing&rsquo\;s Syndrome caused by adrenal tumo rs\, and I am in remission from Cushing&rsquo\;s Disease caused by a tumor on my pituitary. My heart aches thinking of Shianne and all those we have lost in the last few years. Today marks the start of Cushing&rsquo\;s Dis ease Awareness Month (and Adrenal Insufficiency Awareness Month - a common result from Cushing&rsquo\;s treatment)...
Read more at \;https://cushieblogger.com/2018/04/02/another -loss-just-as-cushings-awareness-month-starts-again/
CATEGORIES:Awareness Challenge UID:20180402T1237300Z-549422-867@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Crystal\, Pseudo Cushing's Bio DTSTART;VALUE=DATE:20180402 DTEND;VALUE=DATE:20180403 RRULE:FREQ=MONTHLY;UNTIL=20190305;BYDAY=1MO DESCRIPTION:This sounds very much like my illness. I have the weight gain i n middle and neck with back hump. Thinning skin bruising. High blood press ure edema in my feet and ankles... Read more at https://cushingsbios.com/2 017/05/03/crystal-pseudo-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:This sounds very much like my illness. I ha ve the weight gain in middle and neck with back hump. Thinning skin bruisi ng. High blood pressure edema in my feet and ankles...
Read more a t \;https://cushingsbios.com/2017/05/03/crystal-pseud o-cushings-bio/
CATEGORIES:Cushie Bios UID:20180306T0134070Z-549422-846@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180506 SUMMARY:Summer J (Summer84)\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190506;BYMONTHDAY=6 DESCRIPTION:Summer is from Fresno CA. She had pituitary surgery 1-24-17 a nd had a lot of trouble weaning off steroids post-op. Read more at https:/ /cushingsbios.com/2018/05/06/summer-j-summer84-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Summer is from Fresno CA. \;She had pi tuitary surgery \;1-24-17 and had a lot of trouble weaning off steroi ds post-op.
Read more at \;https://cushin gsbios.com/2018/05/06/summer-j-summer84-pituitary-bio/
CATEGORIES:Cushie Bios UID:20180506T1917140Z-549422-930@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240808 SUMMARY:Diagnostic Dilemma in Cushing’s Syndrome: Discrepancy Between Patie nt-Reported And Physician-Assessed Manifestations RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300808;BYMONTHDAY=8 DESCRIPTION:Early diagnosis and immediate treatment of Cushing’s syndrome ( CS) are critical for a better prognosis but remain a challenge. However\, few comprehensive reports have focused on this issue or investigated wheth er patient-reported manifestations are consistent with physician-assessed symptoms of CS. This study aimed to clarify the differences in patient-rep orted and physician-assessed manifestations of signs and symptoms of CS th at prevent early diagnosis. Read more at https://cushings.invisionzone.com /topic/57753-diagnostic-dilemma-in-cushing%E2%80%99s-syndrome-discrepancy- between-patient-reported-and-physician-assessed-manifestations/ X-ALT-DESC;FMTTYPE=text/html:Early diagnosis and immediate treatme nt of Cushing&rsquo\;s syndrome (CS) are critical for a better prognosis b ut remain a challenge. However\, few comprehensive reports have focused on this issue or investigated whether patient-reported manifestations are co nsistent with physician-assessed symptoms of CS. This study aimed to clari fy the differences in patient-reported and physician-assessed manifestatio ns of signs and symptoms of CS that prevent early diagnosis.
< p>Read more at \;https://cushings.invisionzone.com/topic/57753-diagnostic- dilemma-in-cushing%E2%80%99s-syndrome-discrepancy-between-patient-reported -and-physician-assessed-manifestations/ CATEGORIES:Cushings UID:20240808T1241440Z-549422-1812@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230531 SUMMARY:Ketoconazole As Second-Line Treatment for Cushing’s Disease After T ranssphenoidal Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20260531;BYMONTHDAY=31 DESCRIPTION:The first-line treatment for Cushing’s disease is transsphenoid al surgery for pituitary tumor resection. Ketoconazole has been used as a second-line drug despite limited data on its safety and efficacy for this purpose. Read more at https://cushings.invisionzone.com/topic/57605-ketoco nazole-as-second-line-treatment-for-cushing%E2%80%99s-disease-after-transs phenoidal-surgery/ X-ALT-DESC;FMTTYPE=text/html:The first-line treatment for Cushing& rsquo\;s disease is transsphenoidal surgery for pituitary tumor resection. Ketoconazole has been used as a second-line drug despite limited data on its safety and efficacy for this purpose.
CATEGORIES:Cushings UID:20230531T2334510Z-549422-1646@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211231 SUMMARY:Xeris Biopharma Scores FDA Approval for Endogenous Cushing's Syndro me Drug Recorlev RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221231;BYMONTHDAY=31 DESCRIPTION:Recorlev's approval covers the treatment of endogenous hypercor tisolemia in adults with Cushing’s syndrome who aren't eligible for surger y or haven't responded to surgery. Read more at https://cushings.invisionz one.com/topic/56431-fda-approval-for-endogenous-cushings-syndrome-drug-rec orlev/ X-ALT-DESC;FMTTYPE=text/html:Recorlev's approval covers the treatment of endogenous hypercortisolemia in adults with Cushing&rsquo\;s syndrome who aren't eligible for surgery or haven't responded to surgery.
Read more at \; https://cushings.invisionzone.com/topic/56431-fda-approval-for-endogenous- cushings-syndrome-drug-recorlev/
CATEGORIES:Cushings UID:20211231T1452010Z-549422-1491@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180403 SUMMARY:Tamara K\, Pituitary Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190403;BYMONTHDAY=3 DESCRIPTION:Tamara is from Louisiana and Illinois She has been told by thr ee physicians including Pacific Neuroscience Institute and a Harvard physi cian that she has Cushing’s Disease. Read more at https://cushingsbios.com /2018/04/03/tamara-k-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Tamara is from Louisiana and Illinois \;She has been told by three physicians including Pacific Neuroscience Ins titute and a Harvard physician that she has Cushing&rsquo\;s Disease.
Read more at \;https://cushingsbios.com/2018/04/03/tam ara-k-pituitary-bio/
CATEGORIES:Cushie Bios UID:20180403T2013070Z-549422-874@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220429 SUMMARY:Challenging Case of Ectopic ACTH Secretion from Prostate Adenocarci noma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250429;BYMONTHDAY=29 DESCRIPTION:Cushing’s syndrome (CS) secondary to ectopic adrenocorticotroph ic hormone (ACTH)-producing prostate cancer is rare with less than 50 case s reported. The diagnosis can be challenging due to atypical and variable clinical presentations of this uncommon source of ectopic ACTH secretion. Read more at https://cushings.invisionzone.com/topic/56892-challenging-cas e-of-ectopic-acth-secretion-from-prostate-adenocarcinoma/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome (CS) secondary to ectopic adrenocorticotrophic hormone (ACTH)-producing prostate cancer is rare with less than 50 cases reported. The diagnosis can be challenging du e to atypical and variable clinical presentations of this uncommon source of ectopic ACTH secretion.
Read more at \;https://cushings.invisi onzone.com/topic/56892-challenging-case-of-ectopic-acth-secretion-from-pro state-adenocarcinoma/
CATEGORIES:News Items UID:20220430T0017350Z-549422-1558@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Ohio State Pituitary Patient Symposium 2019 DTSTART;VALUE=DATE:20190731 DTEND;VALUE=DATE:20190801 RRULE:FREQ=WEEKLY;UNTIL=20190914;BYDAY=SA DESCRIPTION:**REGISTER NOW!** Saturday\, Sept 14\, 2019 7:30am – 4:00pm Ple ase join the Pituitary Network Association and The Ohio State University f or a Pituitary Patient Symposium featuring a series of pituitary and hormo nal patient education sessions presented by some of the top physicians of pituitary and hormonal medicine. The symposium faculty will share the most up-to-date information and be available to answer your most pressing ques tions. Keynote Speaker: Maria Fleseriu\, MD FACE **We are offering a limit ed number of registration only scholarships. Register today to claim your scholarship!** More information at https://cushieblogger.com/2019/07/31/ ohio-state-pituitary-patient-symposium-2019/ X-ALT-DESC;FMTTYPE=text/html:Please join the Pituitary Network Association and The Ohio State Univ ersity for a Pituitary Patient Symposium featuring a series of pituitary a nd hormonal patient education sessions presented by some of the top physic ians of pituitary and hormonal medicine. The symposium faculty will share the most up-to-date information and be available to answer your most press ing questions.
**We are offering a limited number of registration only scholarsh ips. Register today to claim your scholarship!**
\;< /p>
More information at \;https://cushieblogger.com/2019/07/31/ohio-state-pituitary-patient-sympos ium-2019/
In the new smartwatch\, a strip of speciali zed thin adhesive film collects tiny volumes of sweat\, measurable in mill ionths of a liter. An attached sensor detects cortisol using engineered st rands of DNA\, called aptamers\, which are designed so that a cortisol mol ecule will fit into each aptamer like a key fits a lock. When cortisol att aches\, the aptamer changes shape in a way that alters electric fields at the surface of a transistor.
Read more at \;https://cushings.invisionzone.com/topic/56595- what-do-you-think-smartwatch-measures-cortisol/
CATEGORIES:Cushings UID:20220215T0143530Z-549422-1518@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210305 SUMMARY:Cushing’s Found to Cause ‘Persistent Mental Health Problems’ in Pat ients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220305;BYMONTHDAY=5 DESCRIPTION:For years before and after their diagnosis\, people with Cushin g’s disease use more psychotropic medications — those that affect mood\, t houghts\, or perception — for mental health problems than their healthy pe ers\, a study in Sweden found. Notably\, patients experiencing long-term d isease remission still showed higher use of antidepressants and sleeping p ills than healthy individuals. Read more at https://cushings.invisionzon e.com/topic/55558-cushing%E2%80%99s-found-to-cause-%E2%80%98persistent-men tal-health-problems%E2%80%99-in-patients/ X-ALT-DESC;FMTTYPE=text/html:For years before and after their diagnosis\ , people with Cushing&rsquo\;s disease use more psychotropic medications & mdash\; those that affect mood\, thoughts\, or perception &mdash\; for men tal health problems than their healthy peers\, a study in Sweden found.
Notably\, patients experiencing long-term disease remission still sh owed higher use of antidepressants and sleeping pills than healthy individ uals.
\;
CATEGORIES:News Items UID:20210305T1417490Z-549422-1328@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220527 SUMMARY:Withdrawal Study Details Effects of Levoketoconazole in Cushing's S yndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240527;BYMONTHDAY=27 DESCRIPTION:Data presented at AACE 2022 detail levoketoconazole-specific ef fects observed among patients with endogenous Cushing's syndrome from the phase 3 LOGICS trial. Read more at https://cushings.invisionzone.com/topic /56919-withdrawal-study-details-effects-of-levoketoconazole-in-cushings-sy ndrome/ X-ALT-DESC;FMTTYPE=text/html:Data presented at AACE 2022 detail levoketo conazole-specific effects observed among patients with endogenous Cushing' s syndrome from the phase 3 LOGICS trial.
Read more at \;https: //cushings.invisionzone.com/topic/56919-withdrawal-study-details-effects-o f-levoketoconazole-in-cushings-syndrome/
CATEGORIES:Cushings UID:20220527T1234190Z-549422-1575@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250913 SUMMARY:Ectopic Adrenocorticotropic Hormone (ACTH)-Dependent Cushing Syndro me Secondary to Olfactory Neuroblastoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300913;BYMONTHDAY=13 DESCRIPTION:This report presents a case of ACTH-dependent Cushing syndrome due to Olfactory neuroblastoma (ONB)\, emphasizing the diagnostic complexi ty\, multidisciplinary management\, and favorable clinical outcomes. https ://cushings.invisionzone.com/topic/57879-ectopic-adrenocorticotropic-hormo ne-acth-dependent-cushing-syndrome-secondary-to-olfactory-neuroblastoma/ X-ALT-DESC;FMTTYPE=text/html:This report presents a case of ACTH-depende nt Cushing syndrome due to Olfactory neuroblastoma (ONB)\, emphasizing the diagnostic complexity\, multidisciplinary management\, and favorable clin ical outcomes.
CATEGORIES:Cushings UID:20250913T1156440Z-549422-1936@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Webinar: Cushing’s Disease: Recent Advances in Medical Therapy DTSTART;VALUE=DATE:20180711 DTEND;VALUE=DATE:20180712 RRULE:FREQ=WEEKLY;UNTIL=20180718;BYDAY=WE DESCRIPTION:Review Cushing’s disease treatment guidelines Evaluate currentl y available medical therapies for Cushing’s disease Discuss new therapies in clinical trials Registration info at https://cushieblogger.com/2018/07/ 11/webinar-cushings-disease-recent-advances-in-medical-therapy-july-18/ X-ALT-DESC;FMTTYPE=text/html:Review Cushing&rsquo\;s disease treatment g uidelines
Evaluate currently available medical therapies for Cushi ng&rsquo\;s disease
Discuss new therapies in clinical trials
Registration info at \;https://cushieblogger.com/2018/07/11/webinar-cushings-diseas e-recent-advances-in-medical-therapy-july-18/
CATEGORIES:Events and Meetings UID:20180711T0737100Z-549422-952@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180613 SUMMARY:Cushing’s syndrome caused by ACTH-producing thymic typical carcinoi d with local invasion and regional lymph node metastasis: a case report RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190613;BYMONTHDAY=13 DESCRIPTION:Ectopic ACTH-producing thymic carcinoid tumors are rare\, but o ften behave aggressively with local invasion and distant metastasis. We he rein report a case of ACTH-producing thymic typical carcinoid tumor with l ymph node metastasis treated by surgery and postoperative radiation therap y. Read more at https://cushieblog.com/2018/06/13/cushings-syndrome-caused -by-acth-producing-thymic-typical-carcinoid-with-local-invasion-and-region al-lymph-node-metastasis-a-case-report/ X-ALT-DESC;FMTTYPE=text/html:Ectopic ACTH-producing thymic carcinoid tum ors are rare\, but often behave aggressively with local invasion and dista nt metastasis. We herein report a case of ACTH-producing thymic typical ca rcinoid tumor with lymph node metastasis treated by surgery and postoperat ive radiation therapy.
CATEGORIES:Cushings UID:20180613T2211290Z-549422-943@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20240224 SUMMARY:Amy Schumer\, Steroid-Induced Cushing's RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300224;BYMONTHDAY=24 DESCRIPTION:Schumer revealed she has exogenous Cushing syndrome\, brought o n by getting steroid injections that resulted in excess cortisol in her bo dy. According to the Mayo Clinic\, the condition can lead to weight gain\, fatigue\, “moon face\,” headaches and other symptoms. Read more at https: //cushingsbios.com/2024/02/24/amy-schumer-steroid-induced-cushings/ X-ALT-DESC;FMTTYPE=text/html:Schumer revealed she has exogenous Cu shing syndrome\, brought on by getting steroid injections that resulted in excess cortisol in her body. According to the Mayo Clinic\, the condition can lead to weight gain\, fatigue\, &ldquo\;moon face\,&rdquo\; headaches and other symptoms.
Read more at \;https://cushingsbios.com/2024/02/24/amy-schume r-steroid-induced-cushings/
CATEGORIES:Cushie Bios UID:20240224T0817410Z-549422-1749@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Salk Institute Mourns the Loss of Nobel Laureate Roger Guillemin\, Distinguished Professor Emeritus Considered the “Father Of Neuroendocrinol ogy' RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300221;BYMONTH=2;BYMONTHDAY=21 DTSTART;VALUE=DATE:20240221 DTEND;VALUE=DATE:20240222 DESCRIPTION:Guillemin joined Salk in 1970 to head the newly established Lab oratories for Neuroendocrinology. He and his group discovered somatostatin \, which regulates the activities of the pituitary gland and the pancreas. Somatostatin is used clinically to treat pituitary tumors. He was among t he first people to isolate endorphins\, brain molecules that act as natura l opiates\, and his work with cellular growth factors (FGFs) led to the re cognition of multiple physiological functions and developmental mechanisms . Read more at https://cushings.invisionzone.com/topic/57697-salk-institut e-mourns-the-loss-of-nobel-laureate-roger-guillemin-distinguished-professo r-emeritus-considered-the-%E2%80%9Cfather-of-neuroendocrinology/ X-ALT-DESC;FMTTYPE=text/html:Guillemin joined Salk in 1970 to head the newly established Laboratories for Neuroendocrinology. He and his gro up discovered somatostatin\, which regulates the activities of the pituita ry gland and the pancreas. Somatostatin is used clinically to treat pituit ary tumors. He was among the first people to isolate endorphins\, brain mo lecules that act as natural opiates\, and his work with cellular growth fa ctors (FGFs) led to the recognition of multiple physiological functions an d developmental mechanisms.
CATEGORIES:In Memory UID:20240224T0835410Z-549422-1750@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Join us for a Virtual RDLA Regional Meet and Greet Session! DTSTART;VALUE=DATE:20220107 DTEND;VALUE=DATE:20220108 RRULE:FREQ=WEEKLY;UNTIL=20220307;BYDAY=FR DESCRIPTION:This is a fun opportunity for the rare disease community in eac h region and state to get together before Rare Disease Week to foster comm unity and camaraderie. Whether you are new or a veteran of the rare diseas e community\, there will be something for everyone. We want to take time t o get together socially before the excitement of Rare Disease Week! See be low for details on the virtual session in YOUR region. Read more at https: //cushings.invisionzone.com/topic/56450-join-us-for-a-virtual-rdla-regiona l-meet-and-greet-session/ X-ALT-DESC;FMTTYPE=text/html:This is a fun opportunity for the rare dise ase community in each region and state \;to get together before Rare D isease Week to foster community and camaraderie. Whether you are new or a veteran of the rare disease community\, there will be something for everyo ne. \;We want to take time to get together socially before the excitem ent of Rare Disease Week! \;See below for details on the virtual sessi on in \;YOUR \; region.
Read more at \;https://cushings.invisionzone.com/topic /56450-join-us-for-a-virtual-rdla-regional-meet-and-greet-session/
CATEGORIES:Events and Meetings UID:20220107T1420400Z-549422-1493@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231007 SUMMARY:A Patient With a Bronchial Carcinoid Presents With Cushingoid Sympt oms Due To An Atypical and Potentially Dangerous Supplement RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20271007;BYMONTHDAY=7 DESCRIPTION:The most common cause of ectopic ACTH syndrome is pulmonary car cinoid tumors and squamous cell lung cancer\; however it is a relatively u ncommon complication of pulmonary neoplasms. The most common cause of Cush ing syndrome is iatrogenic corticosteroid use and it should be considered in all patients regardless of clinical background. Low urine cortisol leve ls may be associated with exogenous glucocorticoid exposure. Occult glucoc orticoid exposure is rare but can be evaluated with liquid chromatography. Consumers should be aware of the potential risks of taking supplements\, especially those advertised as joint pain relief products. Read more at ht tps://cushings.invisionzone.com/topic/57642-a-patient-with-a-bronchial-car cinoid-presents-with-cushingoid-symptoms-due-to-an-atypical-and-potentiall y-dangerous-supplement/ X-ALT-DESC;FMTTYPE=text/html:The most common cause of ectopic ACTH syndr ome is pulmonary carcinoid tumors and squamous cell lung cancer\; however it is a relatively uncommon complication of pulmonary neoplasms.
The most common cause of Cushing syndrome is iatrogenic c orticosteroid use and it should be considered in all patients regardless o f clinical background.
Low urine cortiso l levels may be associated with exogenous glucocorticoid exposure.< /p>
Occult glucocorticoid exposure is rare but can be evaluated with liquid chromatography.
Consumers should be aware of the potential risks of taking supplements\, especially those advertised as joint pain relief products.
Meningioma is the most common type of prima ry intracranial tumor and is usually benign. The patient in this case repo rt presented with CD coexisting with pituitary microadenoma and meningioma \, which is an extremely rare comorbidity.
Read more at \;https://cushings.invisionzone.com/topic/55567-adrenal-insufficiency-assoc iated-with-increased-cvd-and-cerebrovascular-disease/ \;
CATEGORIES:News Items UID:20210313T2123190Z-549422-1332@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181002 SUMMARY:New Testimonial From Tasia S RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191002;BYMONTHDAY=2 DESCRIPTION:18 already?! I'm able to be myself because of what you created. ? ? ? ? ? ☀️☀️☀️☀️ ~ In response to a Facebook post on the Birthday of th e Message Boards X-ALT-DESC;FMTTYPE=text/html:18 already?! I'm able to be myse lf because of what you created. \;? ? ? ? ? ☀️☀️☀️☀️
~ In resp onse to a Facebook post on the \;Birthday of the Message Boards
CATEGORIES:Cushings UID:20181002T2149110Z-549422-989@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251113 SUMMARY:Rapid Endocrine Remission After ZAP-X Gyroscopic Radiosurgery for C ushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301113;BYMONTHDAY=13 DESCRIPTION:A 48-year-old female with an unremarkable medical history excep t for hyperlipidemia underwent investigation in 2018 due to symptoms and f indings consistent with Cushing's syndrome\, leading to the detection of h ypercortisolism. https://cushings.invisionzone.com/topic/57914-rapid-endo crine-remission-after-zap-x-gyroscopic-radiosurgery-for-cushing%E2%80%99s- disease/ X-ALT-DESC;FMTTYPE=text/html:A 48-year-old female with an unremark able medical history except for hyperlipidemia underwent investigation in 2018 due to symptoms and findings consistent with Cushing's syndrome\, lea ding to the detection of hypercortisolism. \;
CATEGORIES:Cushings UID:20251113T1423260Z-549422-1982@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210419 SUMMARY:Tanya (Tanylou)\, Testing for Cushing's RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220419;BYMONTHDAY=19 DESCRIPTION:Tanya is from Western Australia. She is testing now for Cushing 's and has been diagnosed with other health issues including diverticular disease\, hypothyroidism\, Hashimoto's autoimmune thyroiditis (including m ulti-nodular gland)\, secondary hyperparathyroidism\, non alcoholic fatty liver\, high cholesterol\, major depressive disorder and social anxiety an d borderline diabetes. Read more at https://cushingsbios.com/2021/04/19/ta nya-tanylou-testing-for-cushings/ X-ALT-DESC;FMTTYPE=text/html:Tanya is from Western Australia. She is tes ting now for Cushing's and has been diagnosed with other health issues inc luding diverticular disease\, hypothyroidism\, Hashimoto's autoimmune thyr oiditis (including multi-nodular gland)\, secondary hyperparathyroidism\, non alcoholic fatty liver\, high cholesterol\, major depressive disorder a nd social anxiety and borderline diabetes.
Read more at \;https://cushingsbios.com/2021/04/19/tanya-tanylou-test ing-for-cushings/
CATEGORIES:Cushie Bios UID:20210419T1219500Z-549422-1357@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Brian (Brian)\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301231;BYMONTH=12;BYMONTHDAY=31 DTSTART;VALUE=DATE:20251231 DTEND;VALUE=DATE:20260101 DESCRIPTION:In 2011\, I realized I had Cushing’s Syndrome. I was a 30 year old male with several complications: swollen feet\, swollen legs\, stomach looked 9 months pregnant\, hair fell out\, memory loss\, couldn’t sleep\, couldn’t eat\, diabetes\, mood swings\, depression\, urination every hour during the night\, bright pink stretch marks\, etc. After changing my doc tors several times for misdiagnosis\, I was finally tested for Cushing’s D isease/Syndrome. I contacted the National Institute of Health and doctors advised me to come in immediately. I survived 2 months living at NIH\, whi le doctors ran several tests to determine if I had Cushing’s Disease or Cu shing’s Syndrome. I had Cushing’s Syndrome and my tumor was found in my ri ght adrenal gland. https://cushingsbios.com/2025/12/31/brian-brian-adrenal -bio/ X-ALT-DESC;FMTTYPE=text/html:In 2011\, I realized I had Cushing&rsquo\;s Syndrome. I was a 30 year old male with several complications: swollen fe et\, swollen legs\, stomach looked 9 months pregnant\, hair fell out\, mem ory loss\, couldn&rsquo\;t sleep\, couldn&rsquo\;t eat\, diabetes\, mood s wings\, depression\, urination every hour during the night\, bright pink s tretch marks\, etc.
After changing my doctors several times for mi sdiagnosis\, I was finally tested for Cushing&rsquo\;s Disease/Syndrome. I contacted the National Institute of Health and doctors advised me to come in immediately. I survived 2 months living at NIH\, while doctors ran sev eral tests to determine if I had Cushing&rsquo\;s Disease or Cushing&rsquo \;s Syndrome. I had Cushing&rsquo\;s Syndrome and my tumor was found in my right adrenal gland.
https://cushings bios.com/2025/12/31/brian-brian-adrenal-bio/
CATEGORIES:Cushie Bios UID:20251231T1425060Z-549422-2037@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231218 SUMMARY:Consecutive Resections of Double Pituitary Adenoma for Resolution o f Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301218;BYMONTHDAY=18 DESCRIPTION:Double pituitary adenomas are rare presentations of two distinc t adenohypophyseal lesions seen in <1% of surgical cases. Increased rates of recurrence or persistence are reported in the resection of Cushing micr oadenomas and are attributed to the small tumor size and localization diff iculties. Read more at https://cushings.invisionzone.com/topic/57674-conse cutive-resections-of-double-pituitary-adenoma-for-resolution-of-cushing-di sease/ X-ALT-DESC;FMTTYPE=text/html:Double pituitary adenomas are rare pr esentations of two distinct adenohypophyseal lesions seen in <\;1% of su rgical cases. Increased rates of recurrence or persistence are reported in the resection of Cushing microadenomas and are attributed to the small tu mor size and localization difficulties.
Read more at& nbsp\;https://cushings.invisionzone.com/topic/576 74-consecutive-resections-of-double-pituitary-adenoma-for-resolution-of-cu shing-disease/
CATEGORIES:News Items UID:20231218T1049000Z-549422-1722@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231204 SUMMARY:Restoration of Intra-patient Variability and Diurnal Range of ACTH with Remission in Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301204;BYMONTHDAY=4 DESCRIPTION:The following is a summary of “Diurnal Range and Intra-patient Variability of ACTH Is Restored With Remission in Cushing’s Disease\,” pub lished in the November 2023 issue of Endocrinology by Alvarez\, et al. Rea d more at https://cushings.invisionzone.com/topic/57670-restoration-of-int ra-patient-variability-and-diurnal-range-of-acth-with-remission-in-cushing %E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:The following is a summary of &ldquo\;Diurn al Range and Intra-patient Variability of ACTH Is Restored With Remission in Cushing&rsquo\;s Disease\,&rdquo\; published in the November 2023 issue of \;Endocrinology \;by Alvarez\, et al.
CATEGORIES:News Items UID:20231204T1504430Z-549422-1717@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20230926 SUMMARY:Basics: The Role of Endocrinology in Managing Polycystic Ovary Synd rome and Diabetes RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300926;BYMONTHDAY=26 DESCRIPTION:Endocrinology is a complex field that requires a deep understan ding of the endocrine system and its role in regulating the body’s hormone s. An endocrinologist can help patients with PCOS and diabetes manage thei r conditions and achieve their health goals. By working with an endocrinol ogist\, patients can get the help they need to manage their PCOS or diabet es and achieve their health goals. Read more at https://cushings.invisionz one.com/topic/57638-basics-the-role-of-endocrinology-in-managing-polycysti c-ovary-syndrome-and-diabetes/ X-ALT-DESC;FMTTYPE=text/html:Endocrinology is a complex field that requi res a deep understanding of the endocrine system and its role in regulatin g the body&rsquo\;s hormones. An endocrinologist can help patients with PC OS and diabetes manage their conditions and achieve their health goals. By working with an endocrinologist\, patients can get the help they need to manage their PCOS or diabetes and achieve their health goals.
Read more at \;https://cushings.invisionzone.com/t opic/57638-basics-the-role-of-endocrinology-in-managing-polycystic-ovary-s yndrome-and-diabetes/
CATEGORIES:Other Medical UID:20230926T0926030Z-549422-1678@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200208 SUMMARY:New way to study pituitary tumors holds potential for better diagno ses and treatments RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20210208;BYMONTHDAY=8 DESCRIPTION:The new tests being investigated at Houston Methodist not only have the potential to lead to better diagnoses for patients with pituitary adenomas\, but also for many other types of brain tumors in the future. T he findings\, which were published Jan. 28 in Scientific Reports\, an onli ne journal from Nature Publishing Group\, describe a new way being looked at to study the blood of patients with pituitary tumors to determine exact ly what tumor type they have and whether they might respond to medical tre atment rather than surgery. Read more at https://cushieblog.com/2020/02/08 /new-way-to-study-pituitary-tumors-holds-potential-for-better-diagnoses-an d-treatments/ X-ALT-DESC;FMTTYPE=text/html:The new tests being investigated at Houston
Methodist not only have the potential to lead to better diagnoses for pat
ients with pituitary adenomas\, but also for many other types of brain tum
ors in the future. The findings\, which were published Jan. 28 in \;
Read more at \;https://cushieblog.com/2020/02/08/n ew-way-to-study-pituitary-tumors-holds-potential-for-better-diagnoses-and- treatments/
CATEGORIES:News Items UID:20200208T1422010Z-549422-1229@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Clinical Characterization of Patients With Primary Aldosteronism Pl us Subclinical Cushing’s Syndrome DTSTART;VALUE=DATE:20200314 DTEND;VALUE=DATE:20200315 RRULE:FREQ=MONTHLY;UNTIL=20210208;BYDAY=2SA DESCRIPTION:Primary aldosteronism (PA) plus subclinical Cushing’s syndrome (SCS)\, PASCS\, has occasionally been reported. We aimed to clinically cha racterize patients with PASCS who are poorly profiled. Read more at http ://cushings.invisionzone.com/topic/55015-clinical-characterization-of-pati ents-with-primary-aldosteronism-plus-subclinical-cushing%E2%80%99s-syndrom e/ X-ALT-DESC;FMTTYPE=text/html:Primary aldosteronism (PA) plus subclinical Cushing&rsquo\;s syndrome (SCS)\, PASCS\, has occasionally been reported. We aimed to clinically characterize patients with PASCS who are poorly pr ofiled.
\;
CATEGORIES:News Items UID:20200208T1439120Z-549422-1230@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20200218 SUMMARY:Webinar: Perioperative Care for the Pituitary Patient: Optimizing t he Surgical Experience DESCRIPTION:Learning Objectives: Discuss patient expectations for pituitary surgery and recovery Discuss best practices to minimize risk of complicat ions What questions to ask your medical providers Learn more at https://cu shieblogger.com/2020/02/08/webinar-perioperative-care-for-the-pituitary-pa tient-optimizing-the-surgical-experience/ X-ALT-DESC;FMTTYPE=text/html:Discuss pati
ent expectations for pituitary surgery and recovery
Discuss best prac
tices to minimize risk of complications
What questions to ask your me
dical providers
Learn more at \;https://cushieblogger.com/ 2020/02/08/webinar-perioperative-care-for-the-pituitary-patient-optimizing -the-surgical-experience/
CATEGORIES:Events and Meetings UID:20200208T1502180Z-549422-1231@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211111 SUMMARY:Updated Cushing’s disease guideline highlights new diagnosis\, trea tment ‘roadmap’ RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20231111;BYMONTHDAY=11 DESCRIPTION:An updated guideline for the treatment of Cushing’s disease foc uses on new therapeutic options and an algorithm for screening and diagnos is\, along with best practices for managing disease recurrence. Despite th e recent approval of novel therapies\, management of Cushing’s disease rem ains challenging. The disorder is associated with significant comorbiditie s and has high mortality if left uncontrolled. Read more at https://cushin gs.invisionzone.com/topic/56266-updated-cushing%E2%80%99s-disease-guidelin e-highlights-new-diagnosis-treatment-%E2%80%98roadmap%E2%80%99/ X-ALT-DESC;FMTTYPE=text/html:An updated guideline for the treatment of C ushing&rsquo\;s disease focuses on new therapeutic options and an algorith m for screening and diagnosis\, along with best practices for managing dis ease recurrence.
Despite the recent approval of novel therapies\, management of Cushing&rsquo\;s disease remains challenging. The disorder i s associated with significant comorbidities and has high mortality if left uncontrolled.
CATEGORIES:Cushings UID:20211111T1435340Z-549422-1452@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Time to Sign Up for the Cushing’s Awareness Challenge 2018 DTSTART;VALUE=DATE:20180401 DTEND;VALUE=DATE:20180402 RRULE:FREQ=WEEKLY;UNTIL=20180430;INTERVAL=2;BYDAY=SU DESCRIPTION:As always\, anyone who wants to join me on the Cushing's Awaren ess Challenge can share their blog URL with me and I'll add it to the link s on the right side\, so whenever a new post comes up\, it will show up au tomatically. Read more at https://cushieblogger.com/2018/03/11/time-to-sig n-up-for-the-cushings-awareness-challenge-2018/ X-ALT-DESC;FMTTYPE=text/html:As always\, anyone who wants to join me on the Cushing's Awareness Challenge can share their blog URL with me and I'l l add it to the links on the right side\, so whenever a new post comes up\ , it will show up automatically.
Read more at \;https://cushieblogger.com/2018/03/11/tim e-to-sign-up-for-the-cushings-awareness-challenge-2018/
CATEGORIES:Awareness Challenge UID:20180312T0139520Z-549422-851@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210205 SUMMARY:Treatment for Rare Cancer May Help Cushing’s Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220205;BYMONTHDAY=5 DESCRIPTION:The cancer medicine bexarotene may hold promise for treating Cu shing’s disease\, a study suggests. Read more at https://cushieblog.com/20 21/02/05/treatment-for-rare-cancer-may-help-cushings-patients/ X-ALT-DESC;FMTTYPE=text/html:The cancer medicine bexarotene may hold pro mise for treating \;Cushing&rsquo\;s disease\, a study suggests.
Read more at \;https://cush ieblog.com/2021/02/05/treatment-for-rare-cancer-may-help-cushings-patients /
CATEGORIES:News Items UID:20210206T0128380Z-549422-1312@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New Testimonial From Terry G DTSTART;VALUE=DATE:20181106 DTEND;VALUE=DATE:20181107 RRULE:FREQ=MONTHLY;UNTIL=20191001;BYDAY=1MO DESCRIPTION:You are amazing Mary Kelly O'Connor ~ In response to a Facebook post on the Birthday of the Message Boards Posted at https://cushieblogge r.com/2018/09/30/the-message-boards-turn-18-today/ X-ALT-DESC;FMTTYPE=text/html:You are amazing
\;
~ In response to a Facebook post on the \;Birt hday of the Message Boards
Posted at \;https://cushieblogger.com/2018/09/30/the-message-boards-turn-18-today/
CATEGORIES:Cushings UID:20181001T1451520Z-549422-981@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220725 SUMMARY:Subclinical Hemorrhage of ACTH-secreting Pituitary Adenomas in Chil dren and Adolescents Changes Their Biochemical Profile RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240725;BYMONTHDAY=25 DESCRIPTION:Subclinical pituitary hemorrhage\, necrosis\, and/or cystic deg eneration (SPH) presents mainly in large tumors and prolactinomas. The cha racteristics of patients with Cushing disease (CD) and SPH are not known. Read more at https://cushings.invisionzone.com/topic/57193-subclinical-hem orrhage-of-acth-secreting-pituitary-adenomas-in-children-and-adolescents-c hanges-their-biochemical-profile/ X-ALT-DESC;FMTTYPE=text/html:Subclinical pituitary hemorrhage\, necrosis \, and/or cystic degeneration (SPH) presents mainly in large tumors and pr olactinomas. The characteristics of patients with Cushing disease (CD) and SPH are not known.
CATEGORIES:News Items UID:20220725T1338280Z-549422-1595@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Rosemary (Berry)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301231;BYMONTH=12;BYMONTHDAY=31 DTSTART;VALUE=DATE:20251231 DTEND;VALUE=DATE:20260101 DESCRIPTION:No formal diagnosis yet. Self-diagnosis by overhwhelming clini cal suspicion\, including CT scan evidence of growing left adrenal adenoma . Clueless endrocrinologist who has missed the diagnosis for the whole two years I have been consulting her\, including missing an acute state cause d by prescribed Prednisone that resulted in my being pushed into her offic e in a wheelchair. She didn’t even comment on that. :-O https://cushingsb ios.com/2025/12/31/rosemary-berry-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:No formal diagnosis yet. \;Self-diagno sis by overhwhelming clinical suspicion\, including CT scan evidence of gr owing left adrenal adenoma.
Clueless endrocrinologist who has miss ed the diagnosis for the whole two years I have been consulting her\, incl uding missing an acute state caused by prescribed Prednisone that resulted in my being pushed into her office in a wheelchair. \;She didn&rsquo \;t even comment on that. :-O
h ttps://cushingsbios.com/2025/12/31/rosemary-berry-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20251231T1432180Z-549422-2040@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Chelsea\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300123;BYMONTH=1;BYMONTHDAY=23 DTSTART;VALUE=DATE:20260123 DTEND;VALUE=DATE:20260124 DESCRIPTION:Up until I was 21\, I was 110 pounds soaking wet. I’m 5’3 and h ave always been extremely active. I was on the USTA junior tennis circuit for 15 years and then started coaching when I was in college. I also was a lways on a high protein\, low card diet for the majority of my life. I als o went on birth control at age 13 and stayed on it until I was 20. The fir st 6 months off of birth control\, I never had a period but I assumed it w as normal after being on the pill for so long so I didn’t worry about it. https://cushingsbios.com/2026/01/23/chelsea-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Up until I was 21\, I was 110 pounds soakin g wet. I&rsquo\;m 5&rsquo\;3 and have always been extremely active. I was on the USTA junior tennis circuit for 15 years and then started coaching w hen I was in college. I also was always on a high protein\, low card diet for the majority of my life.
I also went on birth control at age 1 3 and stayed on it until I was 20. The first 6 months off of birth control \, I never had a period but I assumed it was normal after being on the pil l for so long so I didn&rsquo\;t worry about it.
https://cushingsbios.com/2026/01/23/chelsea-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260205T1423470Z-549422-2081@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:H. Lane (Sunshine)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301231;BYMONTH=12;BYMONTHDAY=31 DTSTART;VALUE=DATE:20251231 DTEND;VALUE=DATE:20260101 DESCRIPTION:I have a giant buffalo hump on the back of the neck with vertic al blue/purple lines below it. I also have lipomas not symetrical across m y upper back. Then there are two symetrical lumps near each arm pit. Two lab results come back saying I have a normal cortisol level. https://cushi ngsbios.com/2025/12/31/h-lane-sunshine-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I have a giant buffalo hump on the back of the neck with vertical blue/purple lines below it.
I also have lip omas not symetrical across my upper back. \;Then there are two symetr ical lumps near each arm pit.
Two lab results come back saying I h ave a normal cortisol level.
h ttps://cushingsbios.com/2025/12/31/h-lane-sunshine-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20251231T1427320Z-549422-2038@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Melissa B\, Undiagnosed Daughters RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300128;BYMONTH=1;BYMONTHDAY=28 DTSTART;VALUE=DATE:20260128 DTEND;VALUE=DATE:20260129 DESCRIPTION:Hi everyone\, I never imagined that I would wake up this mornin g to a life changing realization. I have spent years asking doctors what i s happening to my child with no amswers. She was just 5 years old when she began to display cushings symptoms. At the time we repeatedly raised conc erns with our pediatrician about her dramatic weight gain specifically in her belly area which made her appear pregnant and a once advanced child wa s regressing academically but the doctor’s constantly told me not to worry because all children develop differently they said. https://cushingsbios. com/2026/01/23/melissa-b-undiagnosed-daughters/ X-ALT-DESC;FMTTYPE=text/html:Hi everyone\, I never imagined that I would wake up this morning to a life changing realization. I have spent y ears asking doctors what is happening to my child with no amswers. She was just 5 years old when she began to display cushings symptoms. At the time we repeatedly raised concerns with our pediatrician about her dramatic we ight gain specifically in her belly area which made her appear pregnant an d a once advanced child was regressing academically but the doctor&rsquo\; s constantly told me not to worry because all children develop differently they said.
https ://cushingsbios.com/2026/01/23/melissa-b-undiagnosed-daughters/
CATEGORIES:Cushie Bios UID:20260205T1418140Z-549422-2079@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Toni (Toni)\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300123;BYMONTH=1;BYMONTHDAY=23 DTSTART;VALUE=DATE:20260123 DTEND;VALUE=DATE:20260124 DESCRIPTION:Diagnosed with cushings syndrome\, right adenoma. Reviewed righ t adrenalectomy after 3 years of being bounced from doctor to doctor. Diag nosed with high blood pressure\, high cholesterol. Hair loss\, intense itc hing\, bruising\, weight gain\, depression and osteoporosis\, eith multipl e fractures\, torn ligaments and tendons. https://cushingsbios.com/2026/01 /23/toni-toni-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:Diagnosed with cushings syndrome\, ri ght adenoma. Reviewed right adrenalectomy after 3 years of being bounced f rom doctor to doctor. Diagnosed with high blood pressure\, high cholestero l. Hair loss\, intense itching\, bruising\, weight gain\, depression and o steoporosis\, eith multiple fractures\, torn ligaments and tendons.
https://cushingsbios.com/2026/01/ 23/toni-toni-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260205T1421090Z-549422-2080@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Donna (Dutchie)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301231;BYMONTH=12;BYMONTHDAY=31 DTSTART;VALUE=DATE:20251231 DTEND;VALUE=DATE:20260101 DESCRIPTION:I have a pituitary microadenoma and am still doing all kinds of testing to see if it is active. I’ve gotten two clinically high indicati ve Cushing’s test results so far–midnight serum cortisol of 14 and 24 hour uring 17OHS of 11.5. We are still testing. https://cushingsbios.com/2025/ 12/31/donna-dutchie-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I have a pituitary microadenoma and am stil l doing all kinds of testing to see if it is active. \;I&rsquo\;ve go tten two clinically high indicative Cushing&rsquo\;s test results so far&n dash\;midnight serum cortisol of 14 and 24 hour uring 17OHS of 11.5.
We are still testing.
https://c ushingsbios.com/2025/12/31/donna-dutchie-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251231T1429530Z-549422-2039@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210413 SUMMARY:Webinar: Updates on Treating Hypothyroidism RRULE:FREQ=DAILY;COUNT=13 DESCRIPTION:On Sunday\, April 25 Dr. Theodore Friedman will host a webinar on Hypothyroidism and treatment options. Read more at https://cushings.inv isionzone.com/topic/55602-webinar-updates-on-treating-hypothyroidism/ X-ALT-DESC;FMTTYPE=text/html:On Sunday\, April 25 Dr. Theodore Friedman will host a webinar on Hypothyroidism and treatment options.
Read more at \;https://cushings.i nvisionzone.com/topic/55602-webinar-updates-on-treating-hypothyroidism/
CATEGORIES:Events and Meetings UID:20210413T1343540Z-549422-1352@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180509 SUMMARY:New Testimonial From Diane RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190509;BYMONTHDAY=9 DESCRIPTION:Today I challenge a wonderful woman who I really admire Mary Ke lly O'Connor who can disregard if she's already been tagged or doesn't wan t to take part (completely understand as I know these posts can be annoyin g) but I just wanted to select you because as the founder of the website w ww.cushings-help.com that saved my life when I was diagnosed and I made so me wonderful life-long friends all across the World as a result. I am so g lad I found that website and the beautiful souls that shared their stories and wealth of knowledge. Read more at https://cushieblogger.com/testimoni al/diane/ X-ALT-DESC;FMTTYPE=text/html:Today I challenge a wonderful woman who I r eally admire \;Mary Kelly O'Connor \;who can dis regard if she's already been tagged or doesn't want to take part (complete ly understand as I know these posts can be annoying) but I just wanted to select you because as the founder of the w ebsite \;www.cushings-help.com \;t hat saved my life when I was diagnosed and I made some wonderful life-long friends all across the World as a result. I am so glad I found that websi te and the beautiful souls that shared their stories and wealth of knowled ge.
Read more at \;https:/ /cushieblogger.com/testimonial/diane/
CATEGORIES:Cushings UID:20180509T1737490Z-549422-931@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231101 SUMMARY:Adrenocorticotropic Hormone-Dependent Cushing's Syndrome Complicate d With Gastric Ulcer Perforation in a 30-Year-Old Saudi Female RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301101;BYMONTHDAY=1 DESCRIPTION:We report a case of a recently diagnosed adrenocorticotropic ho rmone (ACTH)-dependent Cushing's syndrome in a 30-years-old female who pre sented initially with a three-month history of progressive weight gain\, g eneralized weakness\, acne\, menstrual irregularity\, and severe hypokalem ia\, and then developed a gastric ulcer perforation only one month after h er ACTH-dependent Cushing's syndrome diagnosis and was managed through eme rgent surgery. Read more at https://cushings.invisionzone.com/topic/57659- adrenocorticotropic-hormone-dependent-cushings-syndrome-complicated-with-g astric-ulcer-perforation-in-a-30-year-old-saudi-female/ X-ALT-DESC;FMTTYPE=text/html:We report a case of a recently diagno sed adrenocorticotropic hormone (ACTH)-dependent Cushing's syndrome in a 3 0-years-old female who presented initially with a three-month history of p rogressive weight gain\, generalized weakness\, acne\, menstrual irregular ity\, and severe hypokalemia\, and then developed a gastric ulcer perforat ion only one month after her ACTH-dependent Cushing's syndrome diagnosis a nd was managed through emergent surgery.
CATEGORIES:Cushings UID:20231101T1431260Z-549422-1700@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Steroid Medication for Nasal Obstruction in Infants May Cause Cushi ng’s Syndrome DTSTART;VALUE=DATE:20180414 DTEND;VALUE=DATE:20180415 RRULE:FREQ=MONTHLY;UNTIL=20190310;BYDAY=2SA DESCRIPTION:Intranasal steroid drops used to treat nasal obstruction may ca use Cushing’s syndrome and adrenal insufficiency in infants. Read more at https://cushieblog.com/2018/03/10/steroid-medication-for-nasal-obstruction -in-infants-may-cause-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Intranasal steroid drops used to treat nasa l obstruction may cause Cushing&rsquo\;s syndrome and adrenal insufficienc y in infants.
Read more at \;https://cushieblog.com/2018/03/10/steroi d-medication-for-nasal-obstruction-in-infants-may-cause-cushings-syndrome/
CATEGORIES:Cushings UID:20180310T1626060Z-549422-850@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181020 SUMMARY:Finding Ways to Deal with Post-surgery Anxieties RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191020;BYMONTHDAY=20 DESCRIPTION:Post-traumatic stress disorder (PTSD) following Cushing’s disea se is a real issue many of us face. However\, we don’t have to let it cont rol our lives — there are ways to cope. Cushing’s changes us both mentally and physically. We become forgetful. We lose strength. We become someone we don’t recognize in the mirror. We lose hair on our heads and gain it ev erywhere else. We’re always in pain\, and we’re always sick\, with no end in sight (or at least it feels that way). Read more at https://cushieblog. com/2018/10/20/finding-ways-to-deal-with-post-surgery-anxieties/ X-ALT-DESC;FMTTYPE=text/html:Post-traumatic stress disorder (PTSD) \ ;following Cushing&rsquo\;s disease is a real issue many of us face. Howev er\, we don&rsquo\;t have to let it control our lives &mdash\; there are w ays to cope.
Cushing&rsquo\;s changes us both mentally and p
hysically. We become forgetful. We lose strength. We become someone we don
&rsquo\;t recognize in the mirror. We lose hair on our heads and gain it e
verywhere else. We&rsquo\;re always in pain\, and we&rsquo\;re always sick
\, with no end in sight (or at least it feels that way).
Read more at \;https://cushieblog.com/2018/ 10/20/finding-ways-to-deal-with-post-surgery-anxieties/
CATEGORIES:Cushings UID:20181020T2303240Z-549422-995@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210314 SUMMARY:P. Hyde\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220314;BYMONTHDAY=14 DESCRIPTION:P. Hyde is from Farmington\, UT. He is a 48-year old male who h ad a prolactinoma. He started getting symptoms of cyclical (episodic) Cush ing's in 2012. He is asking what ever help anyone can offer. Read more at https://cushingsbios.com/2021/03/14/p-hyde-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:P. Hyde is from Farmington\, UT. He is a 48 -year old male who had a prolactinoma. He started getting symptoms of cycl ical (episodic) Cushing's in 2012.
He is asking what ever help any one can offer.
Read more at \;https://cushingsbios .com/2021/03/14/p-hyde-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20210314T1618260Z-549422-1333@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:RARE Patient Advocacy Summit DTSTART;VALUE=DATE:20210824 DTEND;VALUE=DATE:20210825 RRULE:FREQ=WEEKLY;UNTIL=20210929;BYDAY=TU DESCRIPTION:Each year\, Global Genes convenes one of the world’s largest ga therings of rare disease patients\, caregivers\, advocates\, healthcare pr ofessionals\, researchers\, partners and allies. Join us for a variety of interactive and educational events\, meet-ups\, workshops and networking o pportunities. Here you’ll have the opportunity to connect and engage with others in the rare disease community\, while experiencing the sense of com munity and belonging we’ve missed so much. Gain insights about the latest in rare disease innovations\, best practices for advocating on an individu al and organizational level\, and actionable strategies you can implement immediately to accelerate change. Read more at https://cushings.invisionzo ne.com/topic/55997-rare-patient-advocacy-summit/ X-ALT-DESC;FMTTYPE=text/html:Each year\, Global Genes convenes one of the world&rsquo\;s largest gatherings of rare disease patients\, c aregivers\, advocates\, healthcare professionals\, researchers\, partners and allies.
Join us for a variety of interactive and edu cational events\, meet-ups\, workshops and networking opportunities. Here you&rsquo\;ll have the opportunity to connect and engage with others in th e rare disease community\, while experiencing the sense of community and b elonging we&rsquo\;ve missed so much. Gain insights about the latest in ra re disease innovations\, best practices for advocating on an individual an d organizational level\, and actionable strategies you can implement immed iately to accelerate change.
Read more at \;https://cushings.invisionzone.com/topic/55997-rare-pat ient-advocacy-summit/
CATEGORIES:Events and Meetings UID:20210824T2318370Z-549422-1412@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210824 SUMMARY:Last chance to submit a RareVoice Nomination! DESCRIPTION:Read more at https://cushings.invisionzone.com/topic/55998-last -chance-to-submit-a-rarevoice-nomination/ X-ALT-DESC;FMTTYPE=text/html:Read more at \;https://cushings.invisionzone.com/topic/55998-last-cha nce-to-submit-a-rarevoice-nomination/
CATEGORIES:Cushings UID:20210825T0001420Z-549422-1413@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180929 SUMMARY:Bilateral Adrenalectomy Negatively Affects Quality of Life in Cushi ng’s Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190929;BYMONTHDAY=29 DESCRIPTION:Bilateral adrenalectomy\, in which the adrenal glands are remov ed\, has a bigger negative impact on the quality of life of patients with Cushing’s disease than other treatment options\, a recent study suggests. This may be due to the longer exposure to high levels of cortisol in these patients\, which is known to greatly affect their quality of life\, the a uthors hypothesize. Read more at http://cushings.invisionzone.com/topic/54 462-bilateral-adrenalectomy-negatively-affects-quality-of-life-in-cushing% E2%80%99s-patients/ X-ALT-DESC;FMTTYPE=text/html:Bilateral adrenalectomy\, in which the adre nal glands are removed\, has a bigger negative impact on the quality of li fe of patients with Cushing&rsquo\;s disease than other treatment options\ , a recent study suggests.
This may be due to the longer exposure to high levels of cortisol in these patients\, which is known to greatly a ffect their quality of life\, the authors hypothesize.
Read more a t \;http://cushings.invisionzone.com/topic/54462-bilatera l-adrenalectomy-negatively-affects-quality-of-life-in-cushing%E2%80%99s-pa tients/
CATEGORIES:Cushings UID:20180929T1329140Z-549422-976@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180617 SUMMARY:Comment added to Guest Question: Is Itching Common with Cushing’s Syndrome? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190617;BYMONTHDAY=17 EXDATE;VALUE=DATE:20181117 DESCRIPTION:Were your itching\, flushing and elevated BP episodes (cyclic) or there all of the time? In the comments area of https://cushieblogger.co m/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Were your itching\, flushing and elevated B P episodes (cyclic) or there all of the time?
In the comments area of \;https://cushieblog ger.com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome /
CATEGORIES:Cushings UID:20180618T0133390Z-549422-947@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20231017 SUMMARY:Hormones and High Blood Pressure: Study Reveals Endocrine Culprits and Targeted Treatments RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301017;BYMONTHDAY=17 DESCRIPTION:CS is treated through surgical procedures based on the detected lesions. Patients with severe CS are treated with steroidogenic inhibitor s\, such as metyrapone\, ketoconazole\, osilodrostat\, and mitotane. Pitui tary radiotherapy and bilateral adrenalectomy are performed when other tre atments are not effective. Read more at https://cushings.invisionzone.com/ topic/57649-hormones-and-high-blood-pressure-study-reveals-endocrine-culpr its-and-targeted-treatments/ X-ALT-DESC;FMTTYPE=text/html:CS is treated through surgical procedures b ased on the detected lesions. Patients with severe CS are treated with ste roidogenic inhibitors\, such as metyrapone\, ketoconazole\, osilodrostat\, and mitotane. Pituitary radiotherapy and bilateral adrenalectomy are perf ormed when other treatments are not effective.
Read more at \; https://cushings.invisionzone.com/topic/5764 9-hormones-and-high-blood-pressure-study-reveals-endocrine-culprits-and-ta rgeted-treatments/
CATEGORIES:Cushings UID:20231017T1105240Z-549422-1691@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180401 SUMMARY:Lin N (Lin)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20200401;BYMONTHDAY=1 DESCRIPTION:Lin is from Vassalboro\, Me. She is not yet diagnosed with Cus hing's but her new doctor agreed that she may have Cushings and referred h er to an Endocrinologist. Her midnight saliva Cortisol is twice high norma l. Read more at https://cushingsbios.com/2018/04/01/lin-n-lin-undiagnosed- bio/ X-ALT-DESC;FMTTYPE=text/html:Lin is from Vassalboro\, Me. \;She is not yet diagnosed with Cushing's but her new doctor agreed that she may ha ve Cushings and referred her to an Endocrinologist. Her midnight saliva Co rtisol is twice high normal.
Read more at \;htt ps://cushingsbios.com/2018/04/01/lin-n-lin-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20180402T0010220Z-549422-864@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Comment added to Stacy B\, Pituitary/Adrenal Bio DTSTART;VALUE=DATE:20180606 DTEND;VALUE=DATE:20180607 RRULE:FREQ=MONTHLY;UNTIL=20190502;BYDAY=1WE DESCRIPTION:I’m in Indiana as well and undergoing testing now to confirm Cu shing’s but I’m not impressed with the Endo my family doctor referred me t o.... In the comments area of https://cushingsbios.com/2018/01/20/stacy-b- pituitary-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m in Indiana as well and undergoin g testing now to confirm Cushing&rsquo\;s but I&rsquo\;m not impressed wit h the Endo my family doctor referred me to....
In the comments are a of \;https://cushingsbios.com/2018/01/20/stacy-b- pituitary-adrenal-bio/
CATEGORIES:Cushie Bios UID:20180502T2134290Z-549422-925@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20180624T180000 DTEND;TZID=America/New_York:20180624T190000 SUMMARY:Dr. Theodore Friedman Webinar DESCRIPTION:Dr. Theodore Friedman hosts Jay Khorsandi\, DDS from Snore Expe rts for a fascinating webinar on the relationship between Sleep Apnea\, Sn oring\, Weight Gain and Daytime Fatigue. Read more at https://cushieblogge r.com/2018/06/17/dr-theodore-friedman-webinar-june-24/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman hosts Jay Khorsandi\, DDS from Snore Experts for a fascinating webinar on the relationship betw een Sleep Apnea\, Snoring\, Weight Gain and Daytime Fatigue.
Read more at \;https://cushieblogger.com/2018/06 /17/dr-theodore-friedman-webinar-june-24/
CATEGORIES:Events and Meetings UID:20180618T0141260Z-549422-948@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing's Disease—Monthly Injection Is Good Alternative to Surgery DTSTART;VALUE=DATE:20191106 DTEND;VALUE=DATE:20191107 RRULE:FREQ=MONTHLY;UNTIL=20201001;BYDAY=1TU DESCRIPTION:Now\, there is good news about long-term positive results achie ved with pasireotide (Signifor)—the first medication to demonstrate effect iveness in both normalizing serum cortisol levels and either shrinking or slowing growth of tumors over the long term. Read more at https://cushiebl og.com/2019/10/01/cushings-disease-monthly-injection-is-good-alternative-t o-surgery/ X-ALT-DESC;FMTTYPE=text/html:Now\, there is good news about long-term po sitive results achieved with pasireotide (Signifor)&mdash\;the first medic ation to demonstrate effectiveness in both normalizing serum cortisol leve ls and either shrinking or slowing growth of tumors over the long term.
Read more at \;https://cushieblog.com/2019/10/01/cushings-disease-monthly-injection-i s-good-alternative-to-surgery/
CATEGORIES:News Items UID:20191001T1157530Z-549422-1218@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251207 SUMMARY:Suggesting Cushing’s to Others RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301207;BYMONTHDAY=7 DESCRIPTION:Some early responses from Facebook: Would you tell a stranger t hey might have Cushing’s? Yes!!! I did…and it did not go over well. I reco mmended two ladies see an endo because they were obviously cushie. Both th ought I was nuts and didn’t listen to me (that I know of.) One was a patie nt of my GI and she told me all her symptoms and it was classic Cushing’s- and she didn’t believe me. She told the doc I was nuts. I don’t know if I helped or hindered their quest for a diagnosis. It makes me think twice if I see someone that might have Cushing’s. Well... https://cushieblog.com/2 025/12/06/suggesting-cushings-to-others/ X-ALT-DESC;FMTTYPE=text/html:Some early responses from Facebook:Would you tell a stranger they might have Cushing&rsquo\;s?
https://cushieblog.com/2025/12/06/su ggesting-cushings-to-others/
CATEGORIES:Cushings UID:20251207T1027160Z-549422-2020@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251207 SUMMARY:Ultrasound-Guided Jugular Vein Access for Inferior Petrosal Sinus S ampling: A Safe and Feasible Technique RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301207;BYMONTHDAY=7 DESCRIPTION:A woman with poorly controlled diabetes\, obesity\, chronic kid ney disease (CKD)\, and hypertension presented with suspected Cushing’s sy ndrome. Despite normal urinary free cortisol (UFC) levels (likely influenc ed by renal dysfunction)\, clinical suspicion prompted further testing\, w hich revealed an inverted cortisol rhythm and lack of suppression on low-d ose dexamethasone. High-dose suppression indicated a pituitary source. MRI findings were inconclusive. To confirm the diagnosis\, bilateral IPSS was attempted. Right petrosal sinus catheterization via femoral access was su ccessful\; however\, left-sided access failed. An alternative\, ultrasound -guided direct left internal jugular puncture was performed\, allowing com plete sampling. https://cushings.invisionzone.com/topic/57926-ultrasound- guided-jugular-vein-access-for-inferior-petrosal-sinus-sampling-a-safe-and -feasible-technique/ X-ALT-DESC;FMTTYPE=text/html:A woman with poorly controlled diabet es\, obesity\, chronic kidney disease (CKD)\, and hypertension presented w ith suspected Cushing&rsquo\;s syndrome. Despite normal urinary free corti sol (UFC) levels (likely influenced by renal dysfunction)\, clinical suspi cion prompted further testing\, which revealed an inverted cortisol rhythm and lack of suppression on low-dose dexamethasone. High-dose suppression indicated a pituitary source. MRI \;findings were inconclusive. To con firm the diagnosis\, bilateral IPSS was attempted. Right petrosal sinus ca theterization via femoral access was successful\; however\, left-sided acc ess failed. An alternative\, ultrasound-guided direct left internal jugula r puncture was performed\, allowing complete sampling. \;
CATEGORIES:Cushings UID:20251207T1021000Z-549422-2019@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Tiffiny D (Tiffiny 3)\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301206;BYMONTH=12;BYMONTHDAY=6 DTSTART;VALUE=DATE:20251206 DTEND;VALUE=DATE:20251207 DESCRIPTION:Hi! My name is Tiffiny. I am 34 years old. I was diagnosed wit h anxiety and depression back in May because of weird pains in my back and on the right front of my stomach. I thought something was wrong with my k idneys and sciatic nerve. I kept getting weird tingling in my legs and fac e. I was told it sounded like anxiety attacks\, which I am sure they were. I am stressed all the time and I don’t know why. I am also very short tem pered. I was prescribed meds but I didn’t think I was depressed or have an xiety\, so I didn’t take them. https://cushingsbios.com/2025/12/06/tiffiny -d-tiffiny-3-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Hi! My name is Tiffiny. \; I am 3 4 years old. I was diagnosed with anxiety and depression back in May becau se of weird pains in my back and on the right front of my stomach. I thoug ht something was wrong with my kidneys and sciatic nerve. I kept getting w eird tingling in my legs and face. I was told it sounded like anxiety atta cks\, which I am sure they were. I am stressed all the time and I don&rsqu o\;t know why. I am also very short tempered. I was prescribed meds but I didn&rsquo\;t think I was depressed or have anxiety\, so I didn&rsquo\;t t ake them.
https ://cushingsbios.com/2025/12/06/tiffiny-d-tiffiny-3-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251207T1036220Z-549422-2022@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Actress Charly Clive\, Pituitary Adenoma RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301204;BYMONTH=12;BYMONTHDAY=4 DTSTART;VALUE=DATE:20251204 DTEND;VALUE=DATE:20251205 DESCRIPTION:In 2015\, Charly came home for a visit\, and went to see her GP about her lack of periods and a blind spot in her peripheral vision. An M RI scan showed a mass on her brain. ‘They said it had eroded the bone in m y nose and was pressing on the optic nerve\, and it was lucky we had caugh t it\,’ she says. ‘The next step would have been discovering it because I’ d gone blind.’ https://cushingsbios.com/2025/12/04/actress-charly-clive-pi tuitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:In 2015\, Charly came home for a visit\, an d went to see her GP about her lack of periods and a blind spot in her per ipheral vision. An MRI scan showed a mass on her brain. &lsquo\;They said it had eroded the bone in my nose and was pressing on the optic nerve\, an d it was lucky we had caught it\,&rsquo\; she says. &lsquo\;The next step would have been discovering it because I&rsquo\;d gone blind.&rsquo\;
https://cushingsbios.com/20 25/12/04/actress-charly-clive-pituitary-adenoma/
CATEGORIES:Cushie Bios UID:20251207T1031420Z-549422-2021@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220402 SUMMARY:A Promising In Vitro Model to Study Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240402;BYMONTHDAY=2 DESCRIPTION:In Cushing’s syndrome (CS)\, chronic glucocorticoid excess (GC) and disrupted circadian rhythm lead to insulin resistance (IR)\, diabetes mellitus\, dyslipidaemia and cardiovascular comorbidities. As undifferent iated\, self-renewing progenitors of adipocytes\, mesenchymal stem cells ( MSCs) may display the detrimental effects of excess GC\, thus revealing a promising model to study the molecular mechanisms underlying the metabolic complications of CS. Read more at https://cushings.invisionzone.com/topic /56741-a-promising-in-vitro-model-to-study-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:In Cushing&rsquo\;s syndrome (CS)\, chronic glucocorticoid excess (GC) and disrupted circadian rhythm lead to insulin resistance (IR)\, diabetes mellitus\, dyslipidaemia and cardiovascular co morbidities. As undifferentiated\, self-renewing progenitors of adipocytes \, mesenchymal stem cells (MSCs) may display the detrimental effects of ex cess GC\, thus revealing a promising model to study the molecular mechanis ms underlying the metabolic complications of CS.
Read more at \;https://cu shings.invisionzone.com/topic/56741-a-promising-in-vitro-model-to-study-cu shing%E2%80%99s-syndrome/
CATEGORIES:Cushings UID:20220402T1557020Z-549422-1542@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180314 SUMMARY:Mild Cortisol Increases Affect Cardiovascular Changes Linked to Hea rt Disease in Cushing’s RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190314;BYMONTHDAY=14 DESCRIPTION:Increases in cortisol secretion\, even if mild\, induce early h eart and blood vessel changes that may increase the risk for cardiovascula r disease\, according to Italian researchers. The findings continue to sup port the role of the hormone cortisol in heart disease\, and demonstrate t he need for carefully monitoring cardiovascular risk in patients with high levels of the hormone\, including those with Cushing’s disease... Read mo re at https://cushieblog.com/2018/03/14/mild-cortisol-increases-affect-car diovascular-changes-linked-to-heart-disease-in-cushings/ X-ALT-DESC;FMTTYPE=text/html:Increases in cortisol secretion\, even if m ild\, induce early heart and blood vessel changes that may increase the ri sk for cardiovascular disease\, according to Italian researchers.
The findings continue to support the \;role of the hormone cortisol in heart disease\, and demonstrate the need for carefully monitoring cardiov ascular risk in patients with high levels of the hormone\, including those with \;Cushing&rsquo\;s disease...
Read more at \;http s://cushieblog.com/2018/03/14/mild-cortisol-increases-affect-cardiovascula r-changes-linked-to-heart-disease-in-cushings/
CATEGORIES:Cushings UID:20180314T0806010Z-549422-852@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180403 SUMMARY:Cushing’s Myths and Facts RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300404;BYMONTHDAY=3 DESCRIPTION:Dr. Karen Thames shared these on her Facebook Page\, Empowering People with Invisible Chronic Illness – The EPIC Foundation She has graci ously given me permission to share them here and in the CushieWiki and on the Cushing’s Help message boards. Read more at https://cushieblogger.com/ 2022/04/03/cushings-myths-and-facts-4/ X-ALT-DESC;FMTTYPE=text/html:Dr. Karen Thames shared these on her Facebo ok Page\, \;Empowering People with Invisible Chronic Illnes s &ndash\; The EPIC Foundation
She has graciously given me per mission to share them here and in \;the CushieWiki \;and on the \;Cushing& rsquo\;s Help message boards.
Read more at \;https://cushieblogger.com/2022/04/03/cushings-myths-and-facts-4/ CATEGORIES:Cushings UID:20220403T2228170Z-549422-878@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180404 SUMMARY:SteroTherapeutics Receives FDA Orphan-Drug Designation RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190404;BYMONTHDAY=4 DESCRIPTION:“We are pursuing a drug that has a very real potential to becom e the optimal agent of choice and a standard of care for these Cushing’s p atients\,” said Manohar Katakam Ph. D.\, CEO of SteroTherapeutics. 'Our cl inical trial will target multiple critical metabolic-related outcomes incl uding the reduction of triglycerides\, insulin resistance\, weight loss\, and the prevention and/or abrogation of hepatic steatosis and fibrosis.” R ead more at https://cushieblog.com/2018/04/04/sterotherapeutics-receives-f da-orphan-drug-designation/ X-ALT-DESC;FMTTYPE=text/html:
&ldquo\;We are pursuing a drug that has a v ery real potential to become the optimal agent of choice and a standard of care for these Cushing&rsquo\;s patients\,&rdquo\; said Manohar Katakam P h. D.\, CEO of SteroTherapeutics. 'Our clinical trial will target multiple critical metabolic-related outcomes including the reduction of triglyceri des\, insulin resistance\, weight loss\, and the prevention and/or abrogat ion of hepatic steatosis and fibrosis.&rdquo\;
Read more at \; https://cushieblog.com/2018/04/0 4/sterotherapeutics-receives-fda-orphan-drug-designation/
CATEGORIES:News Items UID:20180404T1548470Z-549422-882@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211203 SUMMARY:Actress Charly Clive\, Pituitary Adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221203;BYMONTHDAY=3 DESCRIPTION:In 2015\, Charly came home for a visit\, and went to see her GP about her lack of periods and a blind spot in her peripheral vision. An M RI scan showed a mass on her brain. ‘They said it had eroded the bone in m y nose and was pressing on the optic nerve\, and it was lucky we had caugh t it\,’ she says. ‘The next step would have been discovering it because I’ d gone blind.’ Read more at https://cushings.invisionzone.com/topic/56330- actress-charly-clive-pituitary-adenoma/ X-ALT-DESC;FMTTYPE=text/html:In 2015\, Charly came home for a visit\, an d went to see her GP about her lack of periods and a blind spot in her per ipheral vision. An MRI scan showed a mass on her brain. &lsquo\;They said it had eroded the bone in my nose and was pressing on the optic nerve\, an d it was lucky we had caught it\,&rsquo\; she says. &lsquo\;The next step would have been discovering it because I&rsquo\;d gone blind.&rsquo\;
Read more at \;https://cushi ngs.invisionzone.com/topic/56330-actress-charly-clive-pituitary-adenoma/
CATEGORIES:Cushie Bios UID:20211203T0934040Z-549422-1474@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180404 SUMMARY:New Testimonial From Judy K RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190404;BYMONTHDAY=4 DESCRIPTION:...What I kept thinking was how much http://cushings-help.com w as what got me through\, all the information and the support from forum me mbers kept me going. I was going to send you a message to thank you but de cided it needed to be said publicly. Thank you so much\, you saved my fami ly. Read more at https://cushieblogger.com/testimonial/judy-k-2/ X-ALT-DESC;FMTTYPE=text/html:...What I kept thinking was how much \; http://cushings-help.com \;was what got me thr ough\, all the information and the support from forum members kept me goin g. I was going to send you a message to thank you but decided it needed to be said publicly. Thank you so much\, you saved my family.
Read m ore at \;https://cushieblogger.com/testimonial/judy-k-2/
CATEGORIES:Cushings UID:20180404T2230250Z-549422-884@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180511 SUMMARY:PTSD and Cushings RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190511;BYMONTHDAY=11 DESCRIPTION:I’m wondering if anyone post surgery is dealing with PTSD\, spe cifically feeling like you are re-experiencing Cushings when you are havin g anxiety. I’m almost 3 years post surgery and have regular panic attacks where I feel like I am re-living having the disease Please either respond hereor in the comments at https://cushieblogger.com/2018/05/11/guest-quest ion-ptsd-and-cushings/ X-ALT-DESC;FMTTYPE=text/html:I&rsquo\;m wondering if anyone post surgery is dealing with PTSD\, specifically feeling like you are re-experiencing Cushings when you are having anxiety. I&rsquo\;m almost 3 years post surge ry and have regular panic attacks where I feel like I am re-living having the disease
Please either respond \;hereor in the comments at \;https://cushieblogger.com/2018/05/11/guest-question-ptsd-and-c ushings/
Lin is from Vassalboro\, Me. \;She is not yet diagnosed with Cushing's but her new doctor agreed that she may ha ve Cushings and referred her to an Endocrinologist. Her midnight saliva Co rtisol is twice high normal.
Add your own info (or your doctor's) to the Cushie MemberMap.
https://www.zeemaps.com/map?group=342449#
CATEGORIES:Cushie Bios UID:20180402T0024290Z-549422-865@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221223 SUMMARY:CRH Stimulation Test Boosts Cushing Disease Diagnosis RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20261223;BYMONTHDAY=23 DESCRIPTION:Adding a corticotropin-releasing hormone (CRH) stimulation test immediately following a 2-day low-dose dexamethasone suppression test (LD DST) ― what's known as a Dex-CRH test and was first introduced in 1993 ― i dentified Cushing disease in 5 of 65 people (7.7%) with a confirmed diagno sis but who had previously shown normal cortisol levels on a conventional LDDST. Read more at https://cushings.invisionzone.com/topic/57586-crh-stim ulation-test-boosts-cushing-disease-diagnosis/ X-ALT-DESC;FMTTYPE=text/html:Adding a corticotropin-releasing horm one (CRH) stimulation test immediately following a 2-day low-dose&n bsp\;dexamethasone \;suppression test (LDDST) ― what's kn own as \;a Dex-CRH test \;and was fi rst introduced in 1993 ― identified Cushing disease in 5 of 65 people (7.7 %) with a confirmed diagnosis but who had previously shown normal cortisol levels on a conventional LDDST.
Read more at \;< a href='https://cushings.invisionzone.com/topic/57586-crh-stimulation-test -boosts-cushing-disease-diagnosis/' target='_blank' rel='nofollow'>https:/ /cushings.invisionzone.com/topic/57586-crh-stimulation-test-boosts-cushing -disease-diagnosis/
CATEGORIES:News Items UID:20221223T1655530Z-549422-1635@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221223 SUMMARY:Follow HappyGirl's BLA Journey RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20241223;BYMONTHDAY=23 DESCRIPTION:Cliff notes: 4 mm microadenoma in my pituitary\, 3 years testin g because I am cyclical\, ipss\, pit sx Oct 13th 2021\, remission for abou t 8 months then recurrence. No target on mris\, all my tests back high. No w I am getting a bla. Met my surgeon yesterday. Read more at https://cus hings.invisionzone.com/topic/57585-my-bla-journey/ X-ALT-DESC;FMTTYPE=text/html:Cliff notes: 4 mm microadenoma in my pituit ary\, 3 years testing because I am cyclical\, ipss\, pit sx Oct 13th 2021\ , remission for about 8 months then recurrence. No target on mris\, all my tests back high. Now I am getting a bla. \;
Met my surgeon ye sterday. \;
Read more at \;ht tps://cushings.invisionzone.com/topic/57585-my-bla-journey/
CATEGORIES:Cushie Bios UID:20221223T1642500Z-549422-1634@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Bridget H\, Ectopic Cushing’s RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301114;BYMONTH=11;BYMONTHDAY=14 DTSTART;VALUE=DATE:20251114 DTEND;VALUE=DATE:20251115 DESCRIPTION:For years\, Bridget Houser experienced a number of symptoms\, i ncluding mysterious weight gain and headaches\, that gradually got worse o ver time. But while many doctors attributed the symptoms to stress\, tests ultimately revealed Houser had a serious illness\, Sandra Boodman reports for the Washington Post. https://cushingsbios.com/2025/11/13/bridget-h-ec topic-cushings/ X-ALT-DESC;FMTTYPE=text/html:For years\, Bridget Houser experience d a number of symptoms\, including mysterious weight gain and headaches\, that gradually got worse over time. But while many doctors attributed the symptoms to stress\, tests ultimately revealed Houser had a serious illnes s\, Sandra Boodman reports for the Washington Post.
< p>https://cushingsbios.com/2025/11/13/bridg et-h-ectopic-cushings/ CATEGORIES:Cushie Bios UID:20251114T1205240Z-549422-1984@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251114 SUMMARY:Delirium Induced by Rapid Titration of Osilodrostat in a Patient Wi th Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301114;BYMONTHDAY=14 DESCRIPTION:Cushing’s disease frequently presents with psychiatric symptoms such as depression\, anxiety\, and cognitive impairment. Osilodrostat\, a n 11β-hydroxylase inhibitor\, is used for persistent or recurrent cases\, but rapid titration may precipitate adrenal insufficiency and psychiatric complications. https://cushings.invisionzone.com/topic/57915-delirium-indu ced-by-rapid-titration-of-osilodrostat-in-a-patient-with-cushing%E2%80%99s -disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease frequently p resents with psychiatric symptoms such as depression\, anxiety\, and cogni tive impairment. Osilodrostat\, an 11&beta\;-hydroxylase inhibitor\, is us ed for persistent or recurrent cases\, but rapid titration may precipitate adrenal insufficiency and psychiatric complications.
CATEGORIES:Cushings UID:20251114T1014220Z-549422-1983@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Register for 2018 RARE Patient Advocacy Summit DTSTART;VALUE=DATE:20180506 DTEND;VALUE=DATE:20180507 RRULE:FREQ=WEEKLY;UNTIL=20181003;INTERVAL=2;BYDAY=SU DESCRIPTION:The RARE Patient Advocacy Summit is the can’t-miss event of the year for rare disease stakeholders. The Summit will take place October 3- 4 at the Hotel Irvine in Irvine\, California\, and it is the largest gathe ring of rare disease patients\, advocates and thought leaders worldwide. Read more here https://cushieblogger.com/2018/04/01/register-for-2018-rare -patient-advocacy-summit/ X-ALT-DESC;FMTTYPE=text/html:The RARE Patient Advocacy Summit is the can &rsquo\;t-miss event of the year for rare disease stakeholders. The Summit will take place October 3-4 at the Hotel Irvine in Irvine\, California\, and it is the \;largest gathering of rare disease patients\, advocates and thought leaders worldwide. \;
Read more here \;https://cushieblogger.com/2018/04/01/regist er-for-2018-rare-patient-advocacy-summit/
CATEGORIES:Events and Meetings UID:20180401T2332430Z-549422-863@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211112 SUMMARY:Novel Predictive Model for Adrenal Insufficiency in Dermatological Patients with Topical Corticosteroids Use: A Cross-Sectional Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221112;BYMONTHDAY=12 DESCRIPTION:This study aimed to identify predictive factors and to develop a predictive model for adrenal insufficiency (AI) related to topical corti costeroids use. Read more at https://cushings.invisionzone.com/topic/56269 -novel-predictive-model-for-adrenal-insufficiency-in-dermatological-patien ts-with-topical-corticosteroids-use-a-cross-sectional-study/ X-ALT-DESC;FMTTYPE=text/html:This study aimed to identify predictive fac tors and to develop a predictive model for adrenal insufficiency (AI) rela ted to topical corticosteroids use.
CATEGORIES:News Items UID:20211112T0951280Z-549422-1453@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180407 SUMMARY:Comment added to In Memory: Shianne Lombard-Treman\, March 28\, 201 8 RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190407;BYMONTHDAY=7 DESCRIPTION:I was so very sorry to hear of Shianne’s passing last week. She was one of the reasons I continue to fight this demon of a disease.Being 100% honest here\, these past 2 weeks have been the worst for me yet and I have contemplated on more than one night to just be done. But for some re ason\, Shianne’s death made me realize I need to honor her by fighting and hard!.. In the comments area at https://cushingsbios.com/2018/04/01/in-me mory-shianne-lombard-treman-march-28-2018/ X-ALT-DESC;FMTTYPE=text/html:I was so very sorry to hear of Shianne&rsqu o\;s passing last week. She was one of the reasons I continue to fight thi s demon of a disease.Being 100% honest here\, these past 2 weeks have been the worst for me yet and I have contemplated on more than one night to ju st be done. But for some reason\, Shianne&rsquo\;s death made me realize I need to honor her by fighting and hard!..
In the comments area at \;https://cushingsbios.com/2018/0 4/01/in-memory-shianne-lombard-treman-march-28-2018/
CATEGORIES:Cushie Bios UID:20180407T1546370Z-549422-889@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180627 SUMMARY:Comment added to Diana B (Diana Brown)\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190627;BYMONTHDAY=27 DESCRIPTION:My symptoms are almost identical to yours\, but I have yet to h ave any cortisol testing done (I have doctors appointments coming up that I will ask about having the tests done). Read more at https://cushingsbios .com/2014/04/25/diana-b-diana-brown-undiagnosed-bio/comment-page-1/#commen t-25835 X-ALT-DESC;FMTTYPE=text/html:My symptoms are almost identical to yours\, but I have yet to have any cortisol testing done (I have doctors appointm ents coming up that I will ask about having the tests done).
Read more at \;https: //cushingsbios.com/2014/04/25/diana-b-diana-brown-undiagnosed-bio/comment- page-1/#comment-25835
CATEGORIES:Cushie Bios UID:20180627T2327180Z-549422-949@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180330 SUMMARY:Late-night Salivary Cortisol a Poor Approach for Detecting Cushing’ s in Obese Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250330;BYMONTHDAY=30 DESCRIPTION:Assessment of late-night salivary cortisol (LNSC) levels is a p oor diagnostic tool for detecting Cushing’s disease in obese patients\, a new study from Germany shows. The test demonstrated a particularly poor se nsitivity in obese people\, meaning it will often suggest a patient has Cu shing’s disease when that is not the case — called a false-positive... Rea d more at https://cushieblog.com/2018/03/30/late-night-salivary-cortisol-a -poor-approach-for-detecting-cushings-in-obese-patients/ X-ALT-DESC;FMTTYPE=text/html:Assessment of late-night salivary cortisol (LNSC) levels is a poor diagnostic tool for detecting \;Cushing&rsquo\ ;s disease \;in obese patients\, a new study from Germany shows.
The test demonstrated a particularly poor sensitivity in obese people\, meaning it will often suggest a patient has Cushing&rsquo\;s disease when that is not the case &mdash\; called a false-positive...
Read mor e at \;https://cushieblog.com/2018/03/30/late-night-salivary-cortisol-a -poor-approach-for-detecting-cushings-in-obese-patients/
CATEGORIES:Cushings UID:20180330T1419220Z-549422-858@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220325 SUMMARY:Comment added to Magdalena\, Food-Dependent Cushing's Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250325;BYMONTHDAY=25 DESCRIPTION:I do also seem to have GIP dependent Cushing and I was wonderin g if there was any enlargement of your adrenals visible in imaging\, cause mine are small which confuses all my endocrinologists and surgeons. Thank you the most! Read more at https://cushingsbios.com/2013/06/23/magdalena- food-dependent-cushings-bio/ X-ALT-DESC;FMTTYPE=text/html:I do also seem to have GIP dependent Cushin g and I was wondering if there was any enlargement of your adrenals visibl e in imaging\, cause mine are small which confuses all my endocrinologists and surgeons. Thank you the most!
Read more at \;https://cushingsbios.com/2013/06/23/magdalena-food-dependen t-cushings-bio/
CATEGORIES:Cushie Bios UID:20220325T1318180Z-549422-1534@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250827 SUMMARY:Paraneoplastic Cushing Syndrome Unmasking Small Cell Lung Cancer: A Rare Presentation RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300827;BYMONTHDAY=27 DESCRIPTION:We present a case of a middle-aged woman who presented with che st pain and shortness of breath. Laboratory tests revealed persistent hypo kalaemia\, hyperglycaemia\, and metabolic alkalosis despite treatment. Ima ging identified a mass near the right hilum suggestive of lung malignancy. Endocrine evaluation showed markedly elevated cortisol and adrenocorticot ropic hormone levels\, consistent with paraneoplastic Cushing syndrome cau sed by ectopic hormone production. https://cushings.invisionzone.com/topic /57869-paraneoplastic-cushing-syndrome-unmasking-small-cell-lung-cancer-a- rare-presentation/ X-ALT-DESC;FMTTYPE=text/html:We present a case of a middle-aged wo man who presented with chest pain and shortness of breath. Laboratory test s revealed persistent hypokalaemia\, hyperglycaemia\, and metabolic alkalo sis despite treatment. Imaging identified a mass near the right hilum sugg estive of lung malignancy. Endocrine evaluation showed markedly elevated c ortisol and adrenocorticotropic hormone levels\, consistent with paraneopl astic Cushing syndrome caused by ectopic hormone production.
< p>https://cushings.invisionzone.com/topic/5 7869-paraneoplastic-cushing-syndrome-unmasking-small-cell-lung-cancer-a-ra re-presentation/ CATEGORIES:Cushings UID:20250827T1939320Z-549422-1927@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251231 SUMMARY:FDA Declines to Approve Relacorilant for Hypertension Linked to Hyp ercortisolism RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301231;BYMONTHDAY=31 DESCRIPTION:“We are surprised and disappointed by this outcome\,” Joseph K. Belanoff\, MD\, CEO of Corcept Therapeutics\, said in a press release. “O ur commitment to patients suffering from the effects of hypercortisolism i s unwavering. I am confident we will find a way to get relacorilant to the patients it could help. We will meet with the FDA as soon as possible to discuss the best path forward.” https://cushings.invisionzone.com/topic/57 934-fda-declines-to-approve-relacorilant-for-hypertension-linked-to-hyperc ortisolism/ X-ALT-DESC;FMTTYPE=text/html:&ldquo\;We are surprised and disappoi nted by this outcome\,&rdquo\; \;Joseph K. Belanoff\, MD\, \;CEO of Corcept Therapeutics\, said in a press release. &ldquo\;Our commitment to patients suffering from the effects of hypercortisolism is unwavering. I am confident we will find a way to get relacorilant to the p atients it could help. We will meet with the FDA as soon as possible to di scuss the best path forward.&rdquo\;
CATEGORIES:Cushings UID:20251231T2320270Z-549422-2041@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220416 SUMMARY:Novel Application of Amniotic Membrane Saves Adrenal Tissue in Pati ents Undergoing Adrenal Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300416;BYMONTHDAY=16 DESCRIPTION:The goal is to leave some normal adrenal tissue so that the pat ient can avoid adrenal insufficiency which requires a daily dose of severa l adrenal hormones and steroids. Partial adrenal surgery is especially ben eficial for patients with pheochromocytoma\, as well as Conn's and Cushing 's syndrome. Avoiding daily steroids is life-changing for these patients s o this is a major breakthrough.' Read more at https://cushings.invisionzon e.com/topic/56841-novel-application-of-amniotic-membrane-saves-adrenal-tis sue-in-patients-undergoing-adrenal-surgery/ X-ALT-DESC;FMTTYPE=text/html:The goal is to leave some normal adrenal ti ssue so that the patient can \;avoid \;ad renal insufficiency \;which requires a daily dose of several adrenal hormones and steroids. Partial adrenal surgery is especially benef icial for patients with pheochromocytoma\, as well as Conn's and Cushing's syndrome. Avoiding daily steroids is life-changing for these patients so this is a major breakthrough.'
CATEGORIES:Cushings UID:20220416T1040360Z-549422-1552@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210913 SUMMARY:New Area For Cushing's Basics RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300913;BYMONTHDAY=13 DESCRIPTION:We'll periodically post basic Cushing's info here - along with updated info if available. Please feel free to ask questions to learn more about Cushing's\, testing\, treatments and such. Find it at https://cushi ngs.invisionzone.com/forum/321-cushings-basics/ X-ALT-DESC;FMTTYPE=text/html:We'll periodically post basic Cushing's inf o here - along with updated info if available.
Please feel free to ask questions to learn more about Cushing's\, testing\, treatments and su ch.
Find it at \;https://cushings.invisionzone.co m/forum/321-cushings-basics/
CATEGORIES:Cushings UID:20210913T1438360Z-549422-1424@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210514 SUMMARY:FDA accepts NDA for novel Cushing’s syndrome treatment RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220514;BYMONTHDAY=14 DESCRIPTION:The FDA accepted for review a new drug application for the ster oidogenesis inhibitor levoketoconazole for the treatment of endogenous Cus hing’s syndrome\, according to an industry press release. Read more at htt ps://cushings.invisionzone.com/topic/55660-fda-accepts-nda-for-novel-cushi ng%E2%80%99s-syndrome-treatment/ X-ALT-DESC;FMTTYPE=text/html:The FDA accepted for review a new drug appl ication for the steroidogenesis inhibitor levoketoconazole for the treatme nt of \;endogenous Cu shing&rsquo\;s syndrome\, according to an industry press release.
Read more at \;https://cushings.invisionzone.com/topic/55660-fda-accepts-nda-f or-novel-cushing%E2%80%99s-syndrome-treatment/
CATEGORIES:News Items UID:20210514T1415480Z-549422-1376@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Increased Risk of Death in Cushing's Disease Persists After Remissi on DTSTART;VALUE=DATE:20220429 DTEND;VALUE=DATE:20220430 RRULE:FREQ=MONTHLY;UNTIL=20240325;BYDAY=-1FR DESCRIPTION:An analysis of nationwide data from Sweden provides an overview of the increased risk of death associated with Cushing's disease was pres ent even after biochemical remission. New data from an analysis of patient data over nearly 30 years suggests the increased risk of mortality associ ated with Cushing’s disease persists even after treatment. Read more at ht tps://cushings.invisionzone.com/topic/56709-increased-risk-of-death-in-cus hings-disease-persists-after-remission/ X-ALT-DESC;FMTTYPE=text/html:An analysis of nationwide data from Sweden provides an overview of the increased risk of death associated with Cushin g's disease was present even after biochemical remission.
New data from an analysis of patient data over nearly 30 years suggests the increa sed risk of mortality associated with \;Cushing&rsquo\;s disease \ ;persists even after treatment.
Read more at \;https://cushings.invi sionzone.com/topic/56709-increased-risk-of-death-in-cushings-disease-persi sts-after-remission/
CATEGORIES:Cushings UID:20220325T1452320Z-549422-1535@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181001 SUMMARY:8 medical conditions that could cause sudden weight gain RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20191001;BYMONTHDAY=1 DESCRIPTION:Cushing syndrome: Sometimes tumours on the pituitary or adrenal glands can contribute to a condition known as Cushing’s disease which is characterised by high levels of cortisol in the blood. Taking long termste roids could also result in this disease. Patients with Cushing syndrome wi ll experience rapid weight gain in the face\, abdomen and chest. They also display slender arms and legs compared to the heavy weightin the core of the body. Other symptoms include: high blood pressure\, mood swings\, oste oporosis\, discoloured stretch marks\, acne\, and fragile skin. Depending on the cause\, Cushing‘s disease can be treated in a different ways. Read more at https://cushieblog.com/2018/10/01/8-medical-conditions-that-could -cause-sudden-weight-gain/ X-ALT-DESC;FMTTYPE=text/html:Cushing syndrome: \;So metimes tumours on the pituitary or adrenal glands can contribute to a con dition known as Cushing&rsquo\;s disease which is characterised by high le vels of cortisol in the blood. Taking \;long termsteroids could also r esult in this disease. Patients with Cushing syndrome will experience rapi d weight gain in the face\, abdomen and chest. They also display slender a rms and legs compared to the \;heavy weightin the core of the body. Ot her symptoms include: high blood pressure\, mood swings\, osteoporosis\, d iscoloured stretch marks\, acne\, and fragile skin. Depending on the cause \, Cushing&lsquo\;s disease can be treated in a different ways. \;
Read more at \;https: //cushieblog.com/2018/10/01/8-medical-conditions-that-could-cause-sudden-w eight-gain/
CATEGORIES:News Items UID:20181001T1428230Z-549422-980@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:New Testimonial From Sybil F DTSTART;VALUE=DATE:20181106 DTEND;VALUE=DATE:20181107 RRULE:FREQ=MONTHLY;UNTIL=20191001;BYDAY=1MO DESCRIPTION:You saved my life!!! ~ In response to a Facebook post on the Bi rthday of the Message Boards X-ALT-DESC;FMTTYPE=text/html:You saved my li fe!!!
~ In response to a Facebook post on the \;Birthday of the Message Boards
CATEGORIES:Cushings UID:20181001T1545240Z-549422-984@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210611 SUMMARY:Can You Help? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220611;BYMONTHDAY=11 DESCRIPTION:Hi\, It's important to respect mother/adult child boundaries\, and I am careful about how I interact with my beautiful daughter so that s he does not think I am criticizing her\, but I'm very worried. She is pr esenting what is listed as classic Cushing's symptoms. We have a family hi story of pituitary problems.... Read more and answer Mom's question here: https://cushings.invisionzone.com/topic/55721-adult-child-with-cushings X-ALT-DESC;FMTTYPE=text/html:Hi\, It's important to respect mother/adult child boundaries\, and I am careful about how I interact with my beautifu l daughter so that she does not think I am criticizing her\, but I'm very worried. \; She is presenting what is listed as classic Cushing's sym ptoms. We have a family history of pituitary problems....
Read mor e and answer Mom's question here: \;https://cu shings.invisionzone.com/topic/55721-adult-child-with-cushings
CATEGORIES:Cushie Bios UID:20210611T0824510Z-549422-1396@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210529 SUMMARY:More Gradual Dose Titration Could Reduce Hypocortisolism Risk with Osilodrostat in Cushing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220529;BYMONTHDAY=29 DESCRIPTION:Data from LINC3 and LINC4 provide insight into the impact of do sing titration schedules on risk of hypocortisolism-related adverse events associated with osilodrostat use in patients with Cushing's disease. Read more at https://cushings.invisionzone.com/topic/55694-more-gradual-dose-t itration-could-reduce-hypocortisolism-risk-with-osilodrostat-in-cushings-d isease/ X-ALT-DESC;FMTTYPE=text/html:Data from LINC3 and LINC4 provide insight i nto the impact of dosing titration schedules on risk of hypocortisolism-re lated adverse events associated with osilodrostat use in patients with Cus hing's disease.
CATEGORIES:News Items UID:20210529T1429160Z-549422-1388@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180512 SUMMARY:Relacorilant Effectively Manages Cortisol Effects in Cushing’s Pati ents RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190512;BYMONTHDAY=12 DESCRIPTION:Relacorilant\, an investigational therapy developed by Corcept Therapeutics\, may effectively manage the effects of excess cortisol in pa tients with Cushing’s syndrome\, interim data from an ongoing Phase 2 tria l show. In particular\, the treatment significantly improved sugar toleran ce and the levels of osteocalcin\, a bone growth biomarker commonly suppr essed by excess cortisol. Read more at https://cushieblog.com/2018/05/12/r elacorilant-effectively-manages-cortisol-effects-in-cushings-patients/ X-ALT-DESC;FMTTYPE=text/html:Relacorilant\, an investigational therapy d eveloped by \;Corcept Therapeutics\, may effectively manage the effect s of excess cortisol in patients with \;Cushing&rsquo\;s syndrome\, in terim data from an ongoing Phase 2 trial show.
In particular\, the treatment significantly improved sugar tolerance and the levels of \; osteocalcin\, a bone growth biomarker \; commonly suppressed by excess cortisol.
Read more at \;https://cushieblog.com/2018/05/12/relacorilant-effec tively-manages-cortisol-effects-in-cushings-patients/
CATEGORIES:News Items UID:20180512T1639340Z-549422-933@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Guest Question: Is Itching Common with Cushing’s Syndrome? DTSTART;VALUE=DATE:20180627 DTEND;VALUE=DATE:20180628 RRULE:FREQ=MONTHLY;UNTIL=20190530;BYDAY=-1WE DESCRIPTION:Is itching common with Cushing’s Syndrome? Is it common to fee l somewhat good for a day and then have itching\, high blood pressure\, na usea\, flushed red face? Please either respond here or in the comments at https://cushieblogger.com/2018/05/30/guest-question-is-itching-common-with -cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Is itching common with Cushing&rsquo\;s Syn drome? \;Is it common to feel somewhat good for a day and then have i tching\, \;high blood pressure\, nausea\, flushed red face?
Pl ease either respond \;here \;or in the comments at& nbsp\;https://cushieblogger. com/2018/05/30/guest-question-is-itching-common-with-cushings-syndrome/
CATEGORIES:Cushings UID:20180530T1413230Z-549422-941@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Janice B\, Pituitary Bio DTSTART;VALUE=DATE:20210525 DTEND;VALUE=DATE:20210526 RRULE:FREQ=MONTHLY;UNTIL=20230427;BYDAY=-1TU DESCRIPTION:I was married 38 years when I became sick in 2011\, but the fam ily doctor and my husband wouldn’t believe me. They thought I was lazy\, f at and crazy when they shipped me off to a mental ward in a hospital. I kn ew I was physically sick with Cushing’s Disease\, but I couldn’t convince the psychiatrist. I left my husband\, got a new doctor and was diagnosed w ith Cushing’s Disease in 2012. I had successful surgery in April 2013 to r emove the pituitary tumor. I had Adrenal Insufficiency and was put on 5mg of prednisone as my body would not produce its own cortisol. Janice's bio includes a video. Read more at https://cushingsbios.com/2021/04/27/janice- b-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:I was married 38 years when I became sick i n 2011\, but the family doctor and my husband wouldn&rsquo\;t believe me.& nbsp\;They thought I was lazy\, fat and crazy when they shipped me off to a mental ward in a hospital. I knew I was physically sick with Cushing&rsq uo\;s Disease\, but I couldn&rsquo\;t convince the psychiatrist. I left my husband\, got a new doctor and was diagnosed with Cushing&rsquo\;s Diseas e in 2012. I had successful surgery in April 2013 to remove the pituitary tumor. I had Adrenal Insufficiency and was put on 5mg of prednisone as my body would not produce its own cortisol.
Janice's bio includes a v ideo.
Read more at \;https://cushingsbios.com/2021 /04/27/janice-b-pituitary-bio/
CATEGORIES:Cushie Bios UID:20210427T1115310Z-549422-1366@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210426 SUMMARY:Myth: “You should be all better by now!” RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300427;BYMONTHDAY=26 DESCRIPTION:Myth: “You should be all better by now! You found out what was wrong\, you got the surgery\, it’s been quite some time\, and you are STIL L not better?! You SHOULD have gotten better by now!” Chronic illness foll ows the same pattern as normal illness. You get diagnosed\, treated\, and then go back to a state of recovery\, eventually leading you back to a sta te of “normal health”. Read more at https://cushieblogger.com/2021/04/27/m yth-you-should-be-all-better-by-now-2/ X-ALT-DESC;FMTTYPE=text/html:Myth: \;&ldquo\;You should be all bette r by now! You found out what was wrong\, you got the surgery\, it&rsquo\;s been quite some time\, and you are STILL not better?! You SHOULD have got ten better by now!&rdquo\; Chronic illness follows the same pattern as nor mal illness. You get diagnosed\, treated\, and then go back to a state of recovery\, eventually leading you back to a state of &ldquo\;normal health &rdquo\;.
Read more at \;https:// cushieblogger.com/2021/04/27/myth-you-should-be-all-better-by-now-2/ CATEGORIES:Cushings UID:20210427T1041090Z-549422-1365@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181021 SUMMARY:Pituitary Dysfunction as a Result of Traumatic Brain Injury DESCRIPTION:Unfortunately\, problems with the pituitary gland may not alway s be visible on MRIs or other imaging tests because the pituitary is so sm all. Endocrinologists who handle hormone therapy frequently are not famili ar with brain injuries\, and may not make the connection that your brain i njury was the cause of the problem. Read more at http://cushieblog.com/201 6/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury X-ALT-DESC;FMTTYPE=text/html:
Unfortunately\, problems with the pituitary gland may not always be visible on MRIs or other imaging tests because th e pituitary is so small. Endocrinologists who handle hormone therapy frequ ently are not familiar with brain injuries\, and may not make the connecti on that your brain injury was the cause of the problem.
Read more at \;http://cushieblog.co m/2016/12/21/pituitary-dysfunction-as-a-result-of-traumatic-brain-injury
CATEGORIES:News Items UID:20181022T1405040Z-549422-997@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20181022 SUMMARY:Myth: “Each Person Requires the Same Dose of Steroid in Order to Su rvive… DESCRIPTION:Fact: In simple terms\, Adrenal Insufficiency occurs when the b ody does not have enough cortisol in it. You see\, cortisol is life sustai ning and we actually do need cortisol to survive. You have probably seen t he commercials about “getting rid of extra belly fat” by lowering your cor tisol. These advertisements make it hard for people to actually understand the importance of the function of cortisol.... Read more at https://cush ieblogger.com/2018/04/22/myths-and-facts-about-cushings-each-person-requir es-the-same-dose-of-steroid-in-order-to-survive/ X-ALT-DESC;FMTTYPE=text/html:Fact: \;In simple terms\, Adrenal Insuf ficiency occurs when the body does not have enough cortisol in it. You see \, cortisol is life sustaining and we actually do need cortisol to survive . You have probably seen the commercials about &ldquo\;getting rid of extr a belly fat&rdquo\; by lowering your cortisol. These advertisements make i t hard for people to actually understand the importance of the function of cortisol....
Read more at \; https://cushieblogg er.com/2018/04/22/myths-and-facts-about-cushings-each-person-requires-the- same-dose-of-steroid-in-order-to-survive/
CATEGORIES:Cushings UID:20181022T1406210Z-549422-998@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210515 SUMMARY:Severe Infection Including Disseminated Herpes Zoster Triggered by Subclinical Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220515;BYMONTHDAY=15 DESCRIPTION:The case of an elderly woman who developed shingles triggered b y subclinical Cushing’s disease\, and later died from sudden cardiac arres t\, underscores the importance of closely monitoring immune responses in p atients showing signs of that disorder. Read more at https://cushings.invi sionzone.com/topic/55662-severe-infection-including-disseminated-herpes-zo ster-triggered-by-subclinical-cushing%E2%80%99s-disease/ X-ALT-DESC;FMTTYPE=text/html:The case of an elderly woman who developed shingles triggered by subclinical Cushing&rsquo\;s disease\, and later die d from sudden cardiac arrest\, underscores the importance of closely monit oring immune responses in patients showing signs of that disorder.
CATEGORIES:News Items UID:20210515T1610430Z-549422-1377@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Memorial Sloan Kettering 2020 Update on the Treatment of Pituitary Tumors DTSTART;VALUE=DATE:20200816 DTEND;VALUE=DATE:20200817 RRULE:FREQ=MONTHLY;UNTIL=20201205;BYDAY=3SU DESCRIPTION:This course is intended for endocrinologists\, neurosurgeons\, otolaryngologists\, radiation oncologists\, neurologists\, ophthalmologist s\, neuro-oncologists\, family medicine and internal medicine physicians\, physicians in training and other allied health professionals who treat an d manage patients with pituitary diseases. We also invite patients with p ituitary disease and their caregivers to attend this educational activity and participate in our interactive afternoon breakout sessions. Read more at https://cushieblogger.com/2020/07/19/memorial-sloan-kettering-2020-upd ate-on-the-treatment-of-pituitary-tumors/ X-ALT-DESC;FMTTYPE=text/html:This course is intended for endocrinologist s\, neurosurgeons\, otolaryngologists\, radiation oncologists\, neurologis ts\, ophthalmologists\, neuro-oncologists\, family medicine and internal m edicine physicians\, physicians in training and other allied health profes sionals who treat and manage patients with pituitary diseases.&nbs p\;
We also invite patients with pituitary diseas e and their caregivers to attend this educational activity and pa rticipate in our interactive afternoon breakout sessions. \;
R ead more at \;https://cushieblogger.com/2020/07/19/memorial-sloan-kettering-2020 -update-on-the-treatment-of-pituitary-tumors/
CATEGORIES:Events and Meetings UID:20200720T0019130Z-549422-1279@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251001 SUMMARY:Global Longitudinal Strain Reduction With Apical Sparing in Cushing Syndrome-Related Heart Failure With Preserved Ejection Fraction (HFpEF) RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20281001;BYMONTHDAY=1 DESCRIPTION:We describe a case of a 56-year-old woman with a history of rec urrent pituitary adenoma\, not well followed\, and known comorbidities of coronary artery disease\, hypertension\, and type 2 diabetes mellitus. She arrived with severely high blood pressure and signs pointing to hypercort isolism. Further evaluation revealed left ventricular hypertrophy\, reduce d global longitudinal strain\, and preserved left ventricular ejection fra ction\, consistent with heart failure with preserved ejection fraction (HF pEF). Workup for amyloidosis was negative. This case highlights that chron ic hypercortisolism may cause pathophysiological changes in the heart\, le ading to HFpEF\, and may induce myocardial fibrosis and impaired myocardia l mechanics\, producing an echocardiographic pattern that can mimic infilt rative cardiomyopathy. Recognition of this overlap is crucial to avoid mis diagnosis and to ensure timely endocrine and cardiovascular management. ht tps://cushings.invisionzone.com/topic/57888-global-longitudinal-strain-red uction-with-apical-sparing-in-cushing-syndrome-related-heart-failure-with- preserved-ejection-fraction-hfpef/ X-ALT-DESC;FMTTYPE=text/html:We describe a case of a 56-year-old woman w ith a history of recurrent pituitary adenoma\, not well followed\, and kno wn comorbidities of coronary artery disease\, hypertension\, and type 2 di abetes mellitus. She arrived with severely high blood pressure and signs p ointing to hypercortisolism. Further evaluation revealed left ventricular hypertrophy\, reduced global longitudinal strain\, and preserved left vent ricular ejection fraction\, consistent with heart failure with preserved e jection fraction (HFpEF). Workup for amyloidosis was negative.
Thi s case highlights that chronic hypercortisolism may cause pathophysiologic al changes in the heart\, leading to HFpEF\, and may induce myocardial fib rosis and impaired myocardial mechanics\, producing an echocardiographic p attern that can mimic infiltrative cardiomyopathy. Recognition of this ove rlap is crucial to avoid misdiagnosis and to ensure timely endocrine and c ardiovascular management.
CATEGORIES:Cushings UID:20251001T1438230Z-549422-1943@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251001 SUMMARY:A Silent Invader: Asymptomatic Rhodococcus Infection Unmasked In a Patient With Ectopic ACTH-Dependent Cushing’s Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301001;BYMONTHDAY=1 DESCRIPTION:We report the case of a 29-year-old male who presented with new -onset diabetes mellitus\, resistant hypertension and significant weight g ain. Physical examination revealed features consistent with Cushing’s synd rome. https://cushings.invisionzone.com/topic/57889-a-silent-invader-asym ptomatic-rhodococcus-infection-unmasked-in-a-patient-with-ectopic-acth-dep endent-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:We report the case of a 29-year-old m ale who presented with new-onset diabetes mellitus\, resistant hypertensio n and significant weight gain. Physical examination revealed features cons istent with Cushing&rsquo\;s syndrome. \;
CATEGORIES:Cushings UID:20251001T1449100Z-549422-1944@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20211001 SUMMARY:ACTH-independent Cushing's syndrome due to bilateral adrenocortical adenoma RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20221001;BYMONTHDAY=1 DESCRIPTION:The chronic excess of glucocorticoids results in Cushing's synd rome. Cushing's syndrome presents with a variety of signs and symptoms inc luding: central obesity\, proximal muscle weakness\, fatigue striae\, poor wound healing\, amenorrhea\, and others. ACTH independent Cushing's syndr ome is usually due to unilateral adenoma. A rare cause of it is bilateral adrenal adenomas. Read more at https://cushings.invisionzone.com/topic/561 71-acth-independent-cushings-syndrome-due-to-bilateral-adrenocortical-aden oma/ X-ALT-DESC;FMTTYPE=text/html:The chronic excess of \;g lucocorticoids \;results in \;Cushing's syndrome. Cushing's syndro me presents with a variety of signs and symptoms including: central obesit y\, proximal muscle weakness\, fatigue \;striae\, poor wound healing\, \;amenorrhea\, and others.
ACTH independent Cus hing's syndrome is usually due to unilateral adenoma. A rare cause of it i s bilateral \;adrenal adenomas.
Read more at \;https://cus hings.invisionzone.com/topic/56171-acth-independent-cushings-syndrome-due- to-bilateral-adrenocortical-adenoma/
CATEGORIES:News Items UID:20211001T1325240Z-549422-1429@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Webinar: Good Hormone Health Webinar Sunday January 8\, 2023. 6 PM PST DTSTART;VALUE=DATE:20221226 DTEND;VALUE=DATE:20221227 RRULE:FREQ=WEEKLY;UNTIL=20230108;BYDAY=MO,FR EXDATE;VALUE=DATE:20230106 DESCRIPTION:Dr. Theodore Friedman (The Wiz) will be joined by Eddie Ramirez \, MD and will discuss the 6 pillars of lifestyle medicine as applied to p atients with Endocrine disorders Read more at https://cushings.invisionzon e.com/topic/57587-webinar-good-hormone-health-webinar-sunday-january-8-202 3-6-pm-pst/ X-ALT-DESC;FMTTYPE=text/html:Dr. Theodore Friedman (The Wiz) will be joined by \;Eddie Ramirez\, MD \;and will discuss the 6 pillars of lifestyle medicine as applied to patients wi th Endocrine disorders
Read more at \;http s://cushings.invisionzone.com/topic/57587-webinar-good-hormone-health-webi nar-sunday-january-8-2023-6-pm-pst/
CATEGORIES:Events and Meetings UID:20221226T1427390Z-549422-1636@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20260408 SUMMARY:Urinary free cortisol analyses: Enhancing their clinical performanc e in Cushing's syndrome management by means of LC-MS/MS RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300408;BYMONTHDAY=8 DESCRIPTION:24 h urinary free cortisol (UFC) analysis constitutes one of th e three first level recommended tests in Cushing's syndrome (CS) diagnosti c confirmation work up. However\, it occasionally leads to inaccurate resu lts due to the use of immunoassays (IAs) or the concomitant administration of exogenous glucocorticoids\, among others. https://cushings.invisionzon e.com/topic/57952-urinary-free-cortisol-analyses-enhancing-their-clinical- performance-in-cushings-syndrome-management-by-means-of-lc-msms/ X-ALT-DESC;FMTTYPE=text/html:24 \;h urinary free cortisol (UFC ) analysis constitutes one of the three first level recommended tests in C ushing's syndrome (CS) diagnostic confirmation work up. However\, it occas ionally leads to inaccurate results due to the use of immunoassays (IAs) o r the concomitant administration of exogenous glucocorticoids\, among othe rs.
CATEGORIES:Cushings UID:20260408T1448030Z-549422-2084@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Kayla\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300101;BYMONTH=1;BYMONTHDAY=1 DTSTART;VALUE=DATE:20260101 DTEND;VALUE=DATE:20260102 DESCRIPTION:well I’m 21 years old i have had a pituitary tumor and addisons for almost 4 years. Then last year my doctor took me off my addiosns med for no reason and now i am being diagnosed with cushing and its very hard for me because my doctor doesn’t know how to treat me and I’m very frustra ted and scared. https://cushingsbios.com/2025/12/31/kayla-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:well I&rsquo\;m 21 years old i have had a p ituitary tumor and addisons for almost 4 years.
Then last year my doctor took me off my addiosns med for no reason and now i am being diagno sed with cushing and its very hard for me because my doctor doesn&rsquo\;t know how to treat me and I&rsquo\;m very frustrated and scared.
< a href='https://cushingsbios.com/2025/12/31/kayla-pituitary-bio/' target=' _blank' rel='nofollow'>https://cushingsbios.com/2025/12/31/kayla-pituitary -bio/
CATEGORIES:Cushie Bios UID:20260101T1134280Z-549422-2042@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Trish D (trishtd)\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300101;BYMONTH=1;BYMONTHDAY=1 DTSTART;VALUE=DATE:20260101 DTEND;VALUE=DATE:20260102 DESCRIPTION:She has never smoked\, drunk or used any illicit substance. Sh e ought be very healthy. Over the past few years she has been increasingly ill. Extreme fatigue\, massive weight gain\, in the upper body and aroun d what used to be her waist. She has the classic moon face\, with no dist inguishable jawline or cheekbones. She has a great deal of fat around her neck and a defined ‘buffalo hump’. https://cushingsbios.com/2025/12/31/tri sh-d-trishtd-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:She has never smoked\, drunk or used any il licit substance. \;She ought be very healthy.
Over the past f ew years she has been increasingly ill. \;Extreme fatigue\, massive w eight gain\, in the upper body and around what used to be her waist. \;She has the classic moon face\, with no distinguishable jawline or cheek bones. She has a great deal of fat around her neck and a defined &lsquo\;b uffalo hump&rsquo\;.
https://c ushingsbios.com/2025/12/31/trish-d-trishtd-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260101T1139310Z-549422-2044@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Bev\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301114;BYMONTH=11;BYMONTHDAY=14 DTSTART;VALUE=DATE:20251114 DTEND;VALUE=DATE:20251115 DESCRIPTION:Now in the last year I have gained about 100 lbs. …No matter w hat I eat or how much I exercise…. I recently went to the ER because of wa y more than usual water retention along with chest pain and shortness of b reath. They tested me for congestive heart failure\, and that is not the problem. After many blood test and etc. they have “unofficially” said I ha ve Cushings. I go to see the Endoconologist in a week. I dont want to have this as I know noone else does! But it would be a relief to know what is actually wrong with me….. I am tired of this emotional and painful roller coaster my body has me on. https://cushingsbios.com/2025/11/14/bev-undiagn osed-bio/ X-ALT-DESC;FMTTYPE=text/html:Now in \;the last year I have gained a bout 100 lbs. &hellip\;No matter what I eat or how much I exercise&hellip\ ;. I recently went to the ER because of way more than usual water retentio n along with chest pain and shortness of breath. \;They tested me for congestive heart failure\, and that is not the problem.
After man y blood test and etc. they have &ldquo\;unofficially&rdquo\; said I have C ushings. I go to see the Endoconologist in a week. I dont want to have thi s as I know noone else does! But it would be a relief to know what is actu ally wrong with me&hellip\;.. I am tired of this emotional and painful rol ler coaster my body has me on.
https://cus hingsbios.com/2025/11/14/bev-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20251116T1354250Z-549422-1985@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Tiffany\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301115;BYMONTH=11;BYMONTHDAY=15 DTSTART;VALUE=DATE:20251115 DTEND;VALUE=DATE:20251116 DESCRIPTION:I had to do my own research and had someone non-medically relat ed suggest that I might have cushings. I was in denial and then after havi ng two others suggest it\, I asked to be tested. https://cushingsbios.com/ 2025/11/15/tiffany-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I had to do my own research and had s omeone non-medically related suggest that I might have cushings. I was in denial and then after having two others suggest it\, I asked to be tested.
https://cushingsbios.com/202 5/11/15/tiffany-adrenal-bio/
CATEGORIES:Cushie Bios UID:20251116T1401080Z-549422-1987@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Liz D\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301116;BYMONTH=11;BYMONTHDAY=16 DTSTART;VALUE=DATE:20251116 DTEND;VALUE=DATE:20251117 DESCRIPTION:I was diagnosed with PCOS about 5 years ago so everytime I went to a Dr. complaining of my symptoms they blamed it on the PCOS and stress and sent me home. I knew there was something else wrong\, the symptoms d idn’t add up\, my face would get SO red it was embarassing\, I would sweat through my clothes 2-3 times a day\, my face became puffy\, I would gain weight despite healthy eating and working out like crazy\, I was anxious\, depressed\, I never slept\, it didn’t add up. Luckily I am a physician as sistant and remembered learning about cushings briefly in school. I read that most tumors were in the pituitary gland so a year ago I convinced my Dr to let me get an MRI of my brain to look for this ‘tumor’ that I was su re was there. Well the MRI came back negative and I was ironically disapp ointed! I was so sure I had cushings but maybe I was just crazy? The sym ptoms continued to get worse and I just knew that I had cushings even thou gh everyone told me I didnt because I was still petite and didnt ‘fit the picture’. https://cushingsbios.com/2025/11/16/liz-d-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:I was diagnosed with PCOS about 5 years ago so everytime I went to a Dr. complaining of my symptoms they blamed it on the PCOS and stress and sent me home. \;I knew there was something e lse wrong\, the symptoms didn&rsquo\;t add up\, my face would get SO red i t was embarassing\, I would sweat through my clothes 2-3 times a day\, my face became puffy\, I would gain weight despite healthy eating and working out like crazy\, I was anxious\, depressed\, I never slept\, it didn&rsqu o\;t add up.
Luckily I am a physician assistant and remembered lea rning about cushings briefly in school. \;I read that most tumors wer e in the pituitary gland so a year ago I convinced my Dr to let me get an MRI of my brain to look for this &lsquo\;tumor&rsquo\; that I was sure was there. \;Well the MRI came back negative and I was ironically disapp ointed! \;I was so sure I had cushings but maybe I was just crazy? &n bsp\;The symptoms continued to get worse and I just knew that I had cushin gs even though everyone told me I didnt because I was still petite and did nt &lsquo\;fit the picture&rsquo\;.
https:// cushingsbios.com/2025/11/16/liz-d-adrenal-bio/
CATEGORIES:Cushings UID:20251116T1403370Z-549422-1988@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Caryl\, Undiagnosed Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300101;BYMONTH=1;BYMONTHDAY=1 DTSTART;VALUE=DATE:20260101 DTEND;VALUE=DATE:20260102 DESCRIPTION:Caryl is from Philippines. She is not yet diagnosed with Cushi ng's but her OB-GYN told her she has PCOS. She has several other Cushing' s symptoms. https://cushingsbios.com/2025/12/31/caryl-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Caryl is from Philippines. \;She is no t yet diagnosed with Cushing's but her OB-GYN told her she has PCOS. \;She has several other Cushing's symptoms.
https://cushingsbios.com/2025/12/31/caryl-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20260101T1136430Z-549422-2043@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20260406 SUMMARY:Behind High Blood Pressure and Anxiety\, a Hidden Diagnosis: The Ov erlooked Rise of Adrenal Disorders RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300406;BYMONTHDAY=6 DESCRIPTION:April marks Adrenal Awareness Month\, a national initiative foc used on a group of hormonal disorders that are frequently overlooked\, oft en misdiagnosed\, and in some cases life-threatening if left untreated. Ma ny adrenal disorders present with symptoms that mimic common conditions—su ch as high blood pressure\, anxiety\, weight gain\, or fatigue—leading pat ients to go undiagnosed for years. Adrenal Awareness Month expands its foc us to spotlight a broader range of adrenal disorders\, including Cushing’s syndrome\, pheochromocytoma\, Conn’s syndrome\, and adrenal cancer. Each condition will be featured throughout the month\, offering targeted educat ion\, resources\, and increased visibility for these complex and often ove rlooked diseases. https://cushings.invisionzone.com/topic/57950-behind-hig h-blood-pressure-and-anxiety-a-hidden-diagnosis-the-overlooked-rise-of-adr enal-disorders/ X-ALT-DESC;FMTTYPE=text/html:April marks Adrenal Awareness Month\, a nat ional initiative focused on a group of hormonal disorders that are frequen tly overlooked\, often misdiagnosed\, and in some cases life-threatening i f left untreated. Many adrenal disorders present with symptoms that mimic common conditions&mdash\;such as high blood pressure\, anxiety\, weight ga in\, or fatigue&mdash\;leading patients to go undiagnosed for years.
Adrenal Awareness Month expands its focus to spotlight a broader range of adrenal disorders\, including Cushing&rsquo\;s syndrome\, pheochromocyt oma\, Conn&rsquo\;s syndrome\, and adrenal cancer. Each condition will be featured throughout the month\, offering targeted education\, resources\, and increased visibility for these complex and often overlooked diseases.< /p>
CATEGORIES:Cushings UID:20260408T1330470Z-549422-2083@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20221202 SUMMARY:Preop TT3 Predicts HPA Axis Recovery After Cushing Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20271202;BYMONTHDAY=2 DESCRIPTION:Patients with Cushing’s disease (CD) experienced transient cent ral adrenal insufficiency (CAI) after successful surgery. However\, the re ported recovery time of hypothalamic-pituitary-adrenal (HPA) axis varied a nd the risk factors which could affect recovery time of HPA axis had not b een extensively studied. This study aimed to analyze the duration of CAI a nd explore the risk factors affecting HPA axis recovery in post-operative CD patients with biochemical remission. Read more at https://cushings.invi sionzone.com/topic/57581-preop-tt3-predicts-hpa-axis-recovery-after-cushin g-surgery/ X-ALT-DESC;FMTTYPE=text/html:Patients with Cushing&rsquo\;s diseas e (CD) experienced transient central adrenal insufficiency (CAI) after suc cessful surgery. However\, the reported recovery time of hypothalamic-pitu itary-adrenal (HPA) axis varied and the risk factors which could affect re covery time of HPA axis had not been extensively studied. This study aimed to analyze the duration of CAI and explore the risk factors affecting HPA axis recovery in post-operative CD patients with biochemical remission.
Read more at \;https://cushings.invisionzone.com/to pic/57581-preop-tt3-predicts-hpa-axis-recovery-after-cushing-surgery/< /span>
CATEGORIES:News Items UID:20221202T1009160Z-549422-1629@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20260408 SUMMARY:How To Tell if You Have “Cortisol Face” And What to Do About It RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300408;BYMONTHDAY=8 DESCRIPTION:The biology behind cortisol face is real. A rough week probably is not causing it. But if changes persist and stack up alongside other sy mptoms\, it is worth taking seriously. https://cushings.invisionzone.com/t opic/57951-how-to-tell-if-you-have-%E2%80%9Ccortisol-face%E2%80%9D-and-wha t-to-do-about-it/ X-ALT-DESC;FMTTYPE=text/html:The biology behind cortisol face is real. A rough week probably is not causing it. But if changes persist and stack u p alongside other symptoms\, it is worth taking seriously.
CATEGORIES:Cushings UID:20260408T1329020Z-549422-2082@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Cushing's Syndrome Overview DTSTART;VALUE=DATE:20211011 DTEND;VALUE=DATE:20211012 RRULE:FREQ=MONTHLY;UNTIL=20220913;BYDAY=2MO DESCRIPTION:Cushing’s syndrome is a rare disorder that occurs when the body is exposed to too much cortisol. Cortisol is produced by the body and is also used in corticosteroid drugs. Cushing's syndrome can occur either bec ause cortisol is being overproduced by the body or from the use of drugs t hat contain cortisol (like prednisone)... Read more at https://cushings.in visionzone.com/topic/56080-cushings-syndrome-overview/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome is a rare disorde r that occurs when the body is exposed to too much cortisol. \;Cortisol is produced by the body and is als o used in corticosteroid drugs. Cushing's syndrome can occur either becaus e cortisol is being overproduced by the body or from the use of drugs that contain cortisol (like \;prednisone)...
Read more at \;https://cushings.invisionzone.com/topic/56080-cush ings-syndrome-overview/
CATEGORIES:Cushings UID:20210913T1453050Z-549422-1425@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220808 SUMMARY:Can you help? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240808;BYMONTHDAY=8 DESCRIPTION:I'm on a medication which interferes with the dexamethasone sup pression tests. I tried going off the medication\, but wasn't able to do s o. I've taken saliva and 24 urine tests. I have many of the symptoms. Read more here: https://cushings.invisionzone.com/topic/57202-difficulty-diagn osing-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:I'm on a medication which interferes with t he dexamethasone suppression tests. I tried going off the medication\, but wasn't able to do so. I've taken saliva and 24 urine tests. I have many o f the symptoms.
Read more here: \;https://cushings.invisionzone.com/topic/57202-difficulty-diagnos ing-cushing-syndrome/
CATEGORIES:Cushings UID:20220808T1115370Z-549422-1597@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220808 SUMMARY:Webinar: Best Practices for the Management of Individuals with Cush ing's Disease. RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230808;BYMONTHDAY=8 DESCRIPTION: In this CME Webinar\, #endocrinology experts in the management of #CushingsDisease will describe best practices for the diagnosis and tr eatment to improve long-term outcomes for patients. Read more at https://c ushings.invisionzone.com/topic/57242-webinar-best-practices-for-the-manage ment-of-individuals-with-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:\;In this CME Webinar\, #endocrinology experts in the management of #CushingsDisease will describe best practices for the diagnosis and treatment to improve long-term outcom es for patients.
< span data-text='true'>Read more at \;https://cushings.invisionzone .com/topic/57242-webinar-best-practices-for-the-management-of-individuals- with-cushings-disease/
CATEGORIES:Events and Meetings UID:20220808T1138360Z-549422-1598@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251210 SUMMARY:A Case of Adrenocorticotropin-dependent Cushing Syndrome with Osilo drostat Exposure in Early Pregnancy RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301210;BYMONTHDAY=10 DESCRIPTION:Active Cushing syndrome decreases fertility\, which explains it s rarity in pregnancy. Fewer than 250 cases have been documented. Whether it is ACTH-dependent or ACTH-independent\, this disease poses significant risks to both mother and fetus. Its maternal complications include hyperte nsion\, preeclampsia\, and diabetes\, whereas the fetal risks include misc arriage\, intrauterine growth restriction\, and prematurity. https://cushi ngs.invisionzone.com/topic/57927-a-case-of-adrenocorticotropin-dependent-c ushing-syndrome-with-osilodrostat-exposure-in-early-pregnancy/ X-ALT-DESC;FMTTYPE=text/html:Active Cushing syndrome decreases fertility \, which explains its rarity in pregnancy. Fewer than 250 cases have been documented. Whether it is ACTH-dependent or ACTH-independent\, this diseas e poses significant risks to both mother and fetus. Its maternal complicat ions include hypertension\, preeclampsia\, and diabetes\, whereas the feta l risks include miscarriage\, intrauterine growth restriction\, and premat urity.
CATEGORIES:Cushings UID:20251210T1451180Z-549422-2023@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Elaine\, Pituitary Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301117;BYMONTH=11;BYMONTHDAY=17 DTSTART;VALUE=DATE:20251117 DTEND;VALUE=DATE:20251118 DESCRIPTION:Pit tumor removed. cortisol getting higher last 3 yrs. now conf irmed ‘its back’. Dr wants to remove both adrenals. https://cushingsbios.c om/2025/11/17/elaine-pituitary-bio/ X-ALT-DESC;FMTTYPE=text/html:Pit tumor removed. cortisol getting higher last 3 yrs. now confirmed &lsquo\;its back&rsquo\;.
Dr wants to re move both adrenals.
https://cushingsbios. com/2025/11/17/elaine-pituitary-bio/
CATEGORIES:Cushie Bios UID:20251117T1303490Z-549422-1990@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180928 SUMMARY:In Memory: Bettye Jean Douglas DESCRIPTION:Bettye passed away due to complications of Cushing’s disease. Once she was finally diagnosed\, a decision was made against surgery and B ettye was put on the cortisol-lowering medication Korlym. Though she had initially gained weight from Cushing’s disease\, as many patients do\, she rapidly lost weight and was admitted into hospice care soon after. Read m ore at https://cushingsbios.com/2017/09/28/in-memory-bettye-jean-douglas-s eptember-28-2016/ X-ALT-DESC;FMTTYPE=text/html:Bettye passed away due to complications of Cushing&rsquo\;s disease. \; Once she was finally diagnosed\, a decisi on was made against surgery and Bettye was put on the cortisol-lowering me dication Korlym. \; Though she had initially gained weight from Cushin g&rsquo\;s disease\, as many patients do\, she rapidly lost weight and was admitted into hospice care soon after.
Read more at \;https://cushingsbios.com/2017/09/28/in-memor y-bettye-jean-douglas-september-28-2016/
CATEGORIES:In Memory UID:20180928T1534380Z-549422-975@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Levoketoconazole improves cortisol control in endogenous Cushing’s syndrome DTSTART;VALUE=DATE:20220611 DTEND;VALUE=DATE:20220612 RRULE:FREQ=MONTHLY;UNTIL=20240514;BYDAY=2SA DESCRIPTION:Compared with placebo\, levoketoconazole improved cortisol cont rol and serum cholesterol levels for adults with endogenous Cushing’s synd rome Read more at https://cushings.invisionzone.com/topic/56902-levoketoco nazole-improves-cortisol-control-in-endogenous-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Compared with placebo\, levoketoconazole im proved cortisol control and serum cholesterol levels for adults with endog enous Cushing&rsquo\;s syndrome
Read more at \;https: //cushings.invisionzone.com/topic/56902-levoketoconazole-improves-cortisol -control-in-endogenous-cushing%E2%80%99s-syndrome/
CATEGORIES:Cushings UID:20220514T1612270Z-549422-1567@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220916 SUMMARY:Basics: Pseudo-Cushing’s syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300916;BYMONTHDAY=16 DESCRIPTION:Pseudo-Cushing’s syndrome is when symptoms are similar to those of Cushing’s syndrome\, but further tests show that the syndrome is not p resent. Read more at https://cushings.invisionzone.com/topic/57556-basics- pseudo-cushing%E2%80%99s-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Pseudo-Cushing&rsquo\;s syndrome is when sy mptoms are similar to those of Cushing&rsquo\;s syndrome\, but further tes ts show that the syndrome is not present.
Read more at \;https://cushings.invisio nzone.com/topic/57556-basics-pseudo-cushing%E2%80%99s-syndrome/
CATEGORIES:Cushings UID:20220916T1334130Z-549422-1607@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;TZID=America/New_York:20181019T080000 DTEND;TZID=America/New_York:20181019T160000 SUMMARY:2nd Annual Weill Cornell Pituitary Symposium: Pituitary Disorders A cross the Age Spectrum CME DESCRIPTION:This course is a comprehensive overview and discussion of the e valuation\; management\; and medical\, surgical\, and radiation treatments of the pituitary tumor. The conference will comprise lectures\, case-base d talks\, and Q&A panel sessions. Read more at https://cushieblogger.com/2 018/10/13/2nd-annual-weill-cornell-pituitary-symposium-pituitary-disorders -across-the-age-spectrum-cme/ X-ALT-DESC;FMTTYPE=text/html:This course is a comprehensive overview and discussion of the evaluation\; management\; and medical\, surgical\, and radiation treatments of the pituitary tumor. The conference will comprise lectures\, case-based talks\, and Q&\;A panel sessions.
Read mo re at \;https://cushieblogger.com/2018/10/13/2nd-annual-weill -cornell-pituitary-symposium-pituitary-disorders-across-the-age-spectrum-c me/
CATEGORIES:Events and Meetings UID:20181013T1509490Z-549422-991@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220528 SUMMARY:Sparrow Pharmaceuticals Presents New Clinical Trial Data Analyses o n HSD-1 Inhibitor SPI-62 at the 24th European Congress of Endocrinology RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240528;BYMONTHDAY=28 DESCRIPTION:Clinical trial analyses focus on the human body’s homeostatic r esponse to potent HSD-1 inhibition by SPI-62. Results highlight that urina ry free cortisol is distinct from intracellular cortisol that causes sympt oms in patients with Cushing’s syndrome or autonomous cortisol secretion. Read more at https://cushings.invisionzone.com/topic/56920-sparrow-pharmac euticals-presents-new-clinical-trial-data-analyses-on-hsd-1-inhibitor-spi- 62-at-the-24th-european-congress-of-endocrinology/ X-ALT-DESC;FMTTYPE=text/html:Clinical trial analyses focus on the human body&rsquo\;s homeostatic response to potent HSD-1 inhibition by SPI-62.
Results highlight that urinary free cortisol is distinct from intra cellular cortisol that causes symptoms in patients with Cushing&rsquo\;s s yndrome or autonomous cortisol secretion.
CATEGORIES:News Items UID:20220528T1509450Z-549422-1576@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220907 SUMMARY:Persistent vs Recurrent Cushing’s Disease Diagnosed Four Weeks Post partum RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240907;BYMONTHDAY=7 DESCRIPTION:We describe the first report of recurrent Cushing's Disease tha t was quiescent during pregnancy and diagnosed in the immediate postpartum period. Understanding the risk and mechanisms of CD recurrence in pregnan cy allows us to counsel these otherwise healthy\, reproductive-age women i n the context of additional family planning. Read more at https://cushings .invisionzone.com/topic/57548-persistent-vs-recurrent-cushing%E2%80%99s-di sease-diagnosed-four-weeks-postpartum/ X-ALT-DESC;FMTTYPE=text/html:We describe the first report of recurrent C ushing's Disease that was quiescent during pregnancy and diagnosed in the immediate postpartum period. Understanding the risk and mechanisms of CD r ecurrence in pregnancy allows us to counsel these otherwise healthy\, repr oductive-age women in the context of additional family planning.
R ead more at \;https://cushings.invisionzone.com/ topic/57548-persistent-vs-recurrent-cushing%E2%80%99s-disease-diagnosed-fo ur-weeks-postpartum/
CATEGORIES:News Items UID:20220907T1327160Z-549422-1604@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180616 SUMMARY:Cushing’s Patients at Risk of Life-threatening Pulmonary Fungal Inf ection RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190616;BYMONTHDAY=16 DESCRIPTION:Cushing’s disease patients who exhibit nodules or masses in the ir lungs should be thoroughly investigated to exclude fungal infection wit h Cryptococcus neoformans\, a study from China suggests. While rare\, the infection can be life-threatening\, showing a particularly worse prognosis in patients with fluid infiltration in their lungs or with low white bloo d cell counts in their blood. Read more at https://cushieblog.com/2018/06/ 16/cushings-patients-at-risk-of-life-threatening-pulmonary-fungal-infectio n/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease patients who exhib it nodules or masses in their lungs should be thoroughly investigated to e xclude fungal infection with \;Cryptococcus neoformans\, \;a study from China suggests.
While rare\, the infection can be l ife-threatening\, showing a particularly worse prognosis in patients with fluid infiltration in their lungs or with low white blood cell counts in t heir blood.
Read more at \;https://cushieblog.com/2018/06/16/cushings-patien ts-at-risk-of-life-threatening-pulmonary-fungal-infection/
CATEGORIES:Cushings UID:20180616T1714130Z-549422-944@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180617 SUMMARY:USC's 7 Tesla MRI scanner first to identify Cushing's disease in US patient RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190617;BYMONTHDAY=17 DESCRIPTION:A noninvasive 7 Tesla MRI scanner at University of Southern Cal ifornia is the first 7T scanner to be used on a patient with Cushing's dis ease in the U.S.\, according to a USC news release. When a brain tumor w as found to be 'MRI-negative' in a 28-year-old female patient\, physicians at the USC's Pituitary Center were unsatisfied with the results. After de ciding to use the Neuroimaging and Informatics Institute's (INI) new ultra high field 7 Tesla MRI scanner to localize the tumor\, the patient was off icially diagnosed with Cushing's disease and researchers were finally able to be see the tumor that would've otherwise appeared hidden in a standard MRI. Read more at https://www.healthimaging.com/topics/neuroimaging/usc s-7-tesla-mri-scanner-first-identify-cushings-disease-us-patient X-ALT-DESC;FMTTYPE=text/html:A noninvasive 7 \;Tesla \;MRI \;scanner \;at University of Southern&nbs p\;California \;is the first \;7T scanner \;to \;be used o n a patient with Cushing's disease in the U.S.\, according to a USC \; news release. \; \;
When a brain \;tumor was found to be 'MRI-negative' in \;a \ ;28-year-old \;female \;patient\, \;physicians \;at \; the USC's \;Pituitary Center \;were unsatisfied with the results.& nbsp\;After \;deciding \;to \;use \;the Neuroimaging and I nformatics Institute's (INI) \;new \;ultrahigh field 7 Tesla \ ;MRI \;scanner to localize the \;tumor\, the patient was officiall y \;diagnosed \;with \;Cushing's disease \;and \;resea rchers \;were finally \;able to be see the tumor that would've oth erwise appeared hidden in \;a standard MRI. \;
Read more at \;https://www.healthimaging.com/topics/ne uroimaging/uscs-7-tesla-mri-scanner-first-identify-cushings-disease-us-pat ient
CATEGORIES:Cushings UID:20180617T1931280Z-549422-945@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220502 SUMMARY:Management of Adrenocorticotropic Hormone-secreting Neuroendocrine Tumors and the Role of Bilateral Adrenalectomy in Ectopic Cushing Syndrome RRULE:FREQ=DAILY;COUNT=732 DESCRIPTION:Patients with neuroendocrine tumors before ectopic Cushing synd rome development were more likely metastatic and had worse survival Read m ore at https://cushings.invisionzone.com/topic/56894-management-of-adrenoc orticotropic-hormone-secreting-neuroendocrine-tumors-and-the-role-of-bilat eral-adrenalectomy-in-ectopic-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Patients with neuroendocrine tumors before ectopic Cushing syndrome development were more likely metastatic and had w orse survival
CATEGORIES:Cushings UID:20220502T1137140Z-549422-1559@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250829 SUMMARY:Webinar: 'Navigating Adrenal Health' RRULE:FREQ=DAILY;COUNT=36 DESCRIPTION:Join NADF for the first annual virtual conference for patients and caregivers\, 'Navigating Adrenal Health'. With talks on topics ranging from research updates to accessing patient resources to EMS standards and expectations\, participants can prepare for a wealth of information for p atients\, caregivers\, and clinicians alike. https://cushings.invisionzone .com/topic/57871-webinar-navigating-adrenal-health/ X-ALT-DESC;FMTTYPE=text/html:Join NADF for the first annual virtual conf erence for patients and caregivers\, 'Navigating Adrenal Health'. With tal ks on topics ranging from research updates to accessing patient resources to EMS standards and expectations\, participants can prepare for a wealth of information for patients\, caregivers\, and clinicians alike.
< /p>
https://cushings.i nvisionzone.com/topic/57871-webinar-navigating-adrenal-health/
CATEGORIES:Events and Meetings UID:20250829T1357410Z-549422-1929@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220509 SUMMARY:Human Growth Hormone Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240509;BYMONTHDAY=9 DESCRIPTION:Research opportunity for Human Growth Hormone Deficiency caregi vers of adolescent patients. This is a 75 min web-assisted phone interview \, and the compensation is $125. Read more at https://cushings.invisionzon e.com/topic/56899-human-growth-hormone-study/ X-ALT-DESC;FMTTYPE=text/html:Research opportunity for Human Growth Hormo ne Deficiency caregivers of adolescent patients.
This is a 75 min web-assisted phone interview\, and the compensation is $125.
Read more at \;https://cushings.invisionzone.com/ topic/56899-human-growth-hormone-study/
CATEGORIES:Cushings UID:20220509T1621380Z-549422-1564@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210825 SUMMARY:The Cushings Disease Treatment Market To Be Consistent In The Next 10 Years RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220825;BYMONTHDAY=25 DESCRIPTION:Growing healthcare expenditure and increasing awareness regardi ng Cushing syndrome aids in the revenue growth of Cushing’s disease treatm ent market. Increasing number of new product launches also drives the mark et for Cushing’s disease Treatment devices. However availability of altern ative therapies for curing Cushing syndrome is expected to hamper the grow th of the Cushing’s disease treatment market over the forecast period. Rea d more at https://cushings.invisionzone.com/topic/56001-the-cushings-disea se-treatment-market-to-be-consistent-in-the-next-10-years/ X-ALT-DESC;FMTTYPE=text/html:Growing healthcare expenditure and increasi ng awareness regarding Cushing syndrome aids in the revenue growth of Cush ing&rsquo\;s disease treatment market. Increasing number of new product la unches also drives the market for Cushing&rsquo\;s disease Treatment devic es. However availability of alternative therapies for curing Cushing syndr ome is expected to hamper the growth of the Cushing&rsquo\;s disease treat ment market over the forecast period.
Read more at \;https:// cushings.invisionzone.com/topic/56001-the-cushings-disease-treatment-marke t-to-be-consistent-in-the-next-10-years/
CATEGORIES:News Items UID:20210826T0616410Z-549422-1414@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180505 SUMMARY:Rare Malignant Tumor of Adrenal Gland Led to Cushing’s\, Girl’s Dea th RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190505;BYMONTHDAY=5 DESCRIPTION:Adrenocortical carcinoma is a malignant tumor that develops in the cortex of the adrenal gland. It usually is identified by increased amo unts of hormones that are produced by the adrenal glands\, like cortisol. This tumor type is very rare in children\, representing fewer than two in every 1\,000 pediatric tumors. Read more at https://cushieblog.com/2018/05 /05/rare-malignant-tumor-of-adrenal-gland-led-to-cushings-girls-death/ X-ALT-DESC;FMTTYPE=text/html:Adrenocortical carcinoma is a malignant tum or that develops in the cortex of the adrenal gland. It usually is identif ied by increased amounts of hormones that are produced by the adrenal glan ds\, like cortisol.
This tumor type is very rare in children\, rep resenting fewer than two in every 1\,000 pediatric tumors.
Read mo re at \;https://c ushieblog.com/2018/05/05/rare-malignant-tumor-of-adrenal-gland-led-to-cush ings-girls-death/
CATEGORIES:Cushings UID:20180505T1443420Z-549422-928@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Lynn M\, Adrenal Bio RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20300102;BYMONTH=1;BYMONTHDAY=2 DTSTART;VALUE=DATE:20260102 DTEND;VALUE=DATE:20260103 DESCRIPTION:My tumor had been present for about 5 years but it took three y ears of different doctors to diagnose me with Cushing’s. Now one year post op I have lost 45 lbs on weight watchers but still taking 35mg of cortef and 50 mg potassium and diabetic. My other glands have not started to func tion yet now I am at home recovering from ankle surgery scared to death of infection or not healing because of the steroids… https://cushingsbios.co m/2026/01/02/lynn-m-adrenal-bio/ X-ALT-DESC;FMTTYPE=text/html:My tumor had been present for about 5 years but it took three years of different doctors to diagnose me with Cu shing&rsquo\;s. Now one year post op I have lost 45 lbs on weight watchers but still taking 35mg of cortef and 50 mg potassium and diabetic. My othe r glands have not started to function yet now I am at home recovering from ankle surgery scared to death of infection or not healing because of the steroids&hellip\;
https://cush ingsbios.com/2026/01/02/lynn-m-adrenal-bio/
CATEGORIES:Cushie Bios UID:20260103T1235150Z-549422-2045@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Jayne\, In The Media RRULE:FREQ=YEARLY;WKST=SU;UNTIL=20301118;BYMONTH=11;BYMONTHDAY=18 DTSTART;VALUE=DATE:20251118 DTEND;VALUE=DATE:20251119 DESCRIPTION:Jayne was diagnosed with Cushing's disease and became pregnant despite her illness\, which usually makes women infertile. https://cushing sbios.com/2025/11/17/jayne-in-the-media/ X-ALT-DESC;FMTTYPE=text/html:Jayne was diagnosed with Cushing's disease and became pregnant despite her illness\, which usually makes women infert ile.
https://cushingsbios.com/2025 /11/17/jayne-in-the-media/
CATEGORIES:Cushie Bios UID:20251118T1122330Z-549422-1992@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20251025 SUMMARY:The CuPeR Model: A Dynamic Online Tool for Predicting Cushing’s Dis ease Persistence and Recurrence After Pituitary Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20301025;BYMONTHDAY=25 DESCRIPTION:This study introduces the CuPeR model\, an online dynamic nomog ram developed to address these gaps by predicting postoperative outcomes i n patients with CD undergoing pituitary surgery. https://cushings.invision zone.com/topic/57904-the-cuper-model-a-dynamic-online-tool-for-predicting- cushing%E2%80%99s-disease-persistence-and-recurrence-after-pituitary-surge ry/ X-ALT-DESC;FMTTYPE=text/html:This study introduces the CuPeR model \, an online dynamic nomogram developed to address these gaps by predictin g postoperative outcomes in patients with CD undergoing pituitary surgery.
CATEGORIES:Cushings UID:20251025T1346040Z-549422-1959@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20180529 SUMMARY:Guest Question: Vision Issues Post surgery! RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20190529;BYMONTHDAY=29 DESCRIPTION:I have been a recovering Cushings patient for 20 years\, I stil l get all of the vision issues that I had before surgery\, it comes and go es\, normally last a month or 2 then goes away for a while. Is anyone else having the same issues? Respond on the message boards at http://cushings. invisionzone.com/topic/54417-vision-issues-post-surgery/?page=0#comment-47 4104 or in this post https://cushieblogger.com/2018/05/29/guest-question-v ision-issues-post-surgery/ X-ALT-DESC;FMTTYPE=text/html:I have been a recovering Cushings patient f or 20 years\, I still get all of the vision issues that I had before surge ry\, it comes and goes\, normally last a month or 2 then goes away for a w hile. Is anyone else having the same issues?
Respond on the messag e boards at \;http://cu shings.invisionzone.com/topic/54417-vision-issues-post-surgery/?page=0#com ment-474104 \;or in this post \;https://cushieblogger.com/2018/05/29/guest-question-vision-issues-post-s urgery/
CATEGORIES:Cushings UID:20180529T2305560Z-549422-940@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220326 SUMMARY:Association of Chronic Central Serous Chorioretinopathy with Subcli nical Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250326;BYMONTHDAY=26 DESCRIPTION:A 50-year-old female patient with multifocal\, chronic CSCR was found to have an adrenal incidentaloma and was diagnosed with subclinical hypercortisolism. Patient elected to undergo minimally-invasive adrenalec tomy and presented at 3 months after surgery without subretinal fluid. Rea d more at https://cushings.invisionzone.com/topic/56713-association-of-chr onic-central-serous-chorioretinopathy-with-subclinical-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A 50-year-old female patient with multifoca l\, chronic CSCR was found to have an adrenal incidentaloma and was diagno sed with subclinical hypercortisolism. Patient elected to undergo minimall y-invasive adrenalectomy and presented at 3 months after surgery without s ubretinal fluid.
CATEGORIES:Cushings UID:20220326T1409110Z-549422-1536@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220326 SUMMARY:Possible Good News! Effects of Tubastatin A on Adrenocorticotropic Hormone Synthesis and Proliferation of Att-20 Corticotroph Tumor Cells RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250326;BYMONTHDAY=26 DESCRIPTION:Using a mouse model\, scientists have found that the small mole cule tubastatin A may be a potential treatment for Cushing’s disease. Tuba statin A was shown to reduce the activity of genes encoding the precursor of the adrenocorticotropic hormone (ACTH)\, and to lessen the growth of AC TH-producing tumor cells isolated from the pituitary gland of the mice. “T hese findings suggest that tubastatin A may have applications as a novel t herapy for Cushing’s disease\,” the researchers wrote. Read more at https: //cushings.invisionzone.com/topic/56714-possible-good-news-effects-of-tuba statin-a-on-adrenocorticotropic-hormone-synthesis-and-proliferation-of-att -20-corticotroph-tumor-cells/ X-ALT-DESC;FMTTYPE=text/html:Using a mouse model\, scientists have found that the small molecule tubastatin A may be a potential treatment for Cus hing&rsquo\;s disease.
Tubastatin A was shown to reduce the activi ty of genes encoding the precursor of the adrenocorticotropic hormone (ACT H)\, and to lessen the growth of ACTH-producing tumor cells isolated from the pituitary gland of the mice.
&ldquo\;These findings suggest th at tubastatin A may have applications as a novel therapy for Cushing&rsquo \;s disease\,&rdquo\; the researchers wrote.
CATEGORIES:Cushings UID:20220326T1440000Z-549422-1538@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z SUMMARY:Dana\, Undiagnosed Bio DTSTART;VALUE=DATE:20220430 DTEND;VALUE=DATE:20220501 RRULE:FREQ=MONTHLY;UNTIL=20300326;BYDAY=-1SA DESCRIPTION:Well\, I'm 29 now and still undiagnosed. If Cushing's is what's wrong with me\, I have had it for quite a long time. I gained a lot of we ight (60 lbs) the last 2 years of high school (17-18 years old). I lost 30 lbs at age 19 (I just didn't eat much) and have since gained 70 lbs. Read more at https://cushingsbios.com/2022/03/26/dana-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:Well\, I'm 29 now and still undiagnosed. If Cushing's is what's wrong with me\, I have had it for quite a long time. I gained a lot of weight (60 lbs) the last 2 years of high school (17-18 y ears old). I lost 30 lbs at age 19 (I just didn't eat much) and have since gained 70 lbs.
Read more at \;https://cushingsbios. com/2022/03/26/dana-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20220326T1416260Z-549422-1537@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220530 SUMMARY:How Do We Cope with Uncertainty During Testing? RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240530;BYMONTHDAY=30 DESCRIPTION:When I suggested cushings to my GP early this year\, after stum bling upon info online\, and linking the purple stretch marks\, high blood pressure\, weight gain\, brain fog etc... I was told by the GP that cushi ngs was EXTREMELY rare\, and most often 'only diagnosed in children'. I fe ll apart and I felt defeated after genuinely thinking there might have bee n light at the end of the tunnel. But I insisted that I have some kind of test for peace of mind... Read more at https://cushings.invisionzone.com/t opic/56921-how-do-we-cope-with-uncertainty-during-testing/ X-ALT-DESC;FMTTYPE=text/html:When I suggested cushings to my GP early th is year\, after stumbling upon info online\, and linking the purple stretc h marks\, high blood pressure\, weight gain\, brain fog etc... I was told by the GP that cushings was EXTREMELY rare\, and most often 'only diagnose d in children'. I fell apart and I felt defeated after genuinely thinking there might have been light at the end of the tunnel. But I insisted that I have some kind of test for peace of mind...
Read more at \;< a href='https://cushings.invisionzone.com/topic/56921-how-do-we-cope-with- uncertainty-during-testing/' target='_blank'>https://cushings.invisionzone .com/topic/56921-how-do-we-cope-with-uncertainty-during-testing/
CATEGORIES:Cushings UID:20220530T1040350Z-549422-1577@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250831 SUMMARY:Pregnancy Case: Cushing’s Syndrome with Diabetes Insipidus RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300831;BYMONTHDAY=31 DESCRIPTION:Cushing's Syndrome\, a rare but complex endocrine disorder char acterized by excessive cortisol production\, presents unique challenges an d risks during pregnancy. Recent advancements in medical understanding hav e led to greater awareness of the implications of this syndrome when coupl ed with conditions like diabetes insipidus\, particularly in pregnant pati ents. The coexistence of these disorders emphasizes the need for a multidi sciplinary approach to manage these high-risk pregnancies effectively. htt ps://cushings.invisionzone.com/topic/57872-pregnancy-case-cushing%E2%80%99 s-syndrome-with-diabetes-insipidus/ X-ALT-DESC;FMTTYPE=text/html:Cushing's Syndrome\, a rare but compl ex endocrine disorder characterized by excessive cortisol production\, pre sents unique challenges and risks during pregnancy. Recent advancements in medical understanding have led to greater awareness of the implications o f this syndrome when coupled with conditions like diabetes insipidus\, par ticularly in pregnant patients. The coexistence of these disorders emphasi zes the need for a multidisciplinary approach to manage these high-risk pr egnancies effectively.
CATEGORIES:Cushings UID:20250831T0906590Z-549422-1930@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220917 SUMMARY:Osilodrostat normalizes urinary free cortisol in Cushing’s disease for most at 72 weeks RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240917;BYMONTHDAY=17 DESCRIPTION:More than 80% of adults with Cushing’s disease receiving osilod rostat had normalized mean urinary free cortisol levels at 72 weeks of tre atment\, according to findings from the LINC 3 study extension. Read more at https://cushings.invisionzone.com/topic/57557-osilodrostat-normalizes-u rinary-free-cortisol-in-cushing%E2%80%99s-disease-for-most-at-72-weeks/ X-ALT-DESC;FMTTYPE=text/html:More than 80% of \;< /span>adults with Cushing&rsq uo\;s disease \;receiving osilodrostat had norm alized mean urinary free cortisol levels at 72 weeks of treatment\, accord ing to findings from the LINC 3 study extension.
CATEGORIES:News Items UID:20220917T1103450Z-549422-1608@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250314 SUMMARY:Ectopic CRH/ACTH-Co-Secreting Neuroendocrine Tumors Leading to Cush ing's Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20300314;BYMONTHDAY=14 DESCRIPTION:We report the case of a 53-year-old female patient who presente d with severe Cushing’s syndrome and was diagnosed with ectopic ACTH syndr ome. Despite initial indications pointing towards pituitary-dependent hype rcortisolism\, further investigations revealed the presence of a highly di fferentiated atypically located tumor in the upper lobe of the left lung\, adjacent to the mediastinum. Immunohistochemistry of the tumor tissue dem onstrated not only ACTH but also CRH and CRH-R1 expression. https://cushin gs.invisionzone.com/topic/57795-ectopic-crhacth-co-secreting-neuroendocrin e-tumors-leading-to-cushings-disease/ X-ALT-DESC;FMTTYPE=text/html:We report the case of a 53-year-old f emale patient who presented with severe Cushing&rsquo\;s syndrome and was diagnosed with ectopic ACTH syndrome. Despite initial indications pointing towards pituitary-dependent hypercortisolism\, further investigations rev ealed the presence of a highly differentiated atypically located tumor in the upper lobe of the left lung\, adjacent to the mediastinum. Immunohisto chemistry of the tumor tissue demonstrated not only ACTH but also CRH and CRH-R1 expression.
CATEGORIES:Cushings UID:20250314T0810200Z-549422-1860@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220319 SUMMARY:Copeptin Rules Out Diabetes Insipidus Post Pituitary Surgery RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240319;BYMONTHDAY=19 DESCRIPTION:An estimated 1% to 67% of patients who undergo pituitary gland surgery develop diabetes insipidus\, often soon after surgery\, although i t is often transient. Read more at https://cushings.invisionzone.com/topic /56685-copeptin-rules-out-diabetes-insipidus-post-pituitary-surgery/ X-ALT-DESC;FMTTYPE=text/html:An estimated 1% to 67% of patients who unde rgo pituitary gland surgery develop diabetes insipidus\, often soon after surgery\, although it is often transient.
Read more at \;https://cushings.in visionzone.com/topic/56685-copeptin-rules-out-diabetes-insipidus-post-pitu itary-surgery/
CATEGORIES:Cushings UID:20220319T1407590Z-549422-1529@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250831 SUMMARY:A Rare Case of Hypercortisolemia Alongside Anorexia Nervosa RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280831;BYMONTHDAY=31 DESCRIPTION:We present a case of anorexia nervosa (AN)\, which is a rare ca use of hypercortisolism. We discuss the case of a female patient with a bo dy mass index (BMI) of 12.4 kg/m2 who was referred to us because of hyperc ortisolism. When the patient was evaluated for Cushing's syndrome (CS)\, t he clinical presentation was not suggestive. https://cushings.invisionzone .com/topic/57873-a-rare-case-of-hypercortisolemia-alongside-anorexia-nervo sa/ X-ALT-DESC;FMTTYPE=text/html:We present a case of anorexia nervosa
(AN)\, which is a rare cause of hypercortisolism. We discuss the case of
a female patient \;with a body mass index (BMI) of 12.4 kg/m2 \;who was referred to us because of hypercortisolism. When the pa
tient was evaluated for Cushing's syndrome (CS)\, the clinical presentatio
n was not suggestive.
Here\, we report the case of Mr D.M.\, 53-y ears old\, diagnosed with adrenocorticotrophic hormone (ACTH)-independent CS 6 months earlier. At diagnosis\, he presented with resistant hypertensi on\, hypokalemia\, diabetes mellitus\, easy bruising\, purple abdominal st riae and major oedema of the lower limbs.
CATEGORIES:News Items UID:20220129T1141440Z-549422-1509@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220908 SUMMARY:Unmet needs in Cushing’s Syndrome: the Patients RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240908;BYMONTHDAY=8 DESCRIPTION:Cushing’s syndrome (CS) is a rare condition of chronically elev ated cortisol levels resulting in diverse comorbidities\, many of which en dure beyond successful treatment affecting the quality of life. Few data a re available concerning patients’ experiences of diagnosis\, care and pers istent comorbidities. Read more at https://cushings.invisionzone.com/topic /57550-unmet-needs-in-cushing%E2%80%99s-syndrome-the-patients/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s syndrome (CS) is a r are condition of chronically elevated cortisol levels resulting in diverse comorbidities\, many of which endure beyond successful treatment affectin g the quality of life. Few data are available concerning patients&rsquo\; experiences of diagnosis\, care and persistent comorbidities.
Read more at \;https://cushings.invisionzone.com/topic/57550-unmet -needs-in-cushing%E2%80%99s-syndrome-the-patients/
CATEGORIES:News Items UID:20220908T0826200Z-549422-1605@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220726 SUMMARY:Comment on Chelsea\, Undiagnosed Bio RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240726;BYMONTHDAY=26 DESCRIPTION:I know this is an old post\, but I’m curious if you got any ans wers. I feel your frustration in so many ways. Read more at https://cushin gsbios.com/2016/01/23/chelsea-undiagnosed-bio/ X-ALT-DESC;FMTTYPE=text/html:I know this is an old post\, but I&rsquo\;m curious if you got any answers. I feel your frustration in so many ways.< /p>
Read more at \;https://cushingsbios.com/2016/01/2 3/chelsea-undiagnosed-bio/
CATEGORIES:Cushie Bios UID:20220727T1217560Z-549422-1596@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250901 SUMMARY:The STUB1-TPIT Axis Regulates the Secretion of Adrenocorticotrophic Hormone in Cushing Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20280901;BYMONTHDAY=1 DESCRIPTION:Cushing’s disease (CD) is a clinical syndrome caused by excessi ve secretion of adrenocorticotropic hormone (ACTH) from a pituitary cortic otroph adenoma\, resulting in adrenal cortical hyperplasia and overproduct ion of cortisol. The T-box transcription factor (TPIT) is crucial for regu lating ACTH secretion in pituitary corticotroph adenomas. This study aims to explore the ubiquitin-mediated degradation of TPIT and identify potenti al pharmaceutical agents for treating CD. https://cushings.invisionzone.co m/topic/57874-the-stub1-tpit-axis-regulates-the-secretion-of-adrenocortico trophic-hormone-in-cushing-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is a cl inical syndrome caused by excessive secretion of adrenocorticotropic hormo ne (ACTH) from a pituitary corticotroph adenoma\, resulting in adrenal cor tical hyperplasia and overproduction of cortisol. The T-box transcription factor (TPIT) is crucial for regulating ACTH secretion in pituitary cortic otroph adenomas. This study aims to explore the ubiquitin-mediated degrada tion of TPIT and identify potential pharmaceutical agents for treating CD.
CATEGORIES:Cushings UID:20250901T1346470Z-549422-1932@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20210826 SUMMARY:Dr. Friedman: COVID-19 Vaccine Third Shots vs Booster Shots RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20220826;BYMONTHDAY=26 DESCRIPTION:Dr. Friedman is getting a lot of emails on booster shots versus third shots. Third shots are for immuno-compromised patients that the FDA is recommending for a small group of patients The FDA also has the intent ion to soon make booster doses widely available to all healthy individuals . I am writing to clarify the difference between booster shots and third d oses. … Dr. Friedman thinks it is unlikely that any of his patients have t hese conditions. Patients with Cushing’s syndrome\, Addison’s\, diabetes o r thyroid disorders do not qualify. Read more at https://cushings.invisi onzone.com/topic/56005-dr-friedman-covid-19-vaccine-third-shots-vs-booster -shots/ X-ALT-DESC;FMTTYPE=text/html:Dr. Friedman is getting a lot of emails on& nbsp\;booster shots \;versus \;third shots. Third shots are for&nb sp\;immuno-compromised patients that the FDA is recommending for a small g roup of patients The FDA also has the intention to soon make booster doses widely available to all healthy individuals. I am writing to clarify the difference between booster shots and third doses.
&hellip\;
< p>Dr. Friedman thinks it is unlikely that any of his patients have these c onditions. Patients with Cushing&rsquo\;s syndrome\, Addison&rsquo\;s\, di abetes or thyroid disorders do not qualify.\;
Read m ore at \;http s://cushings.invisionzone.com/topic/56005-dr-friedman-covid-19-vaccine-thi rd-shots-vs-booster-shots/
CATEGORIES:Cushings UID:20210826T0618080Z-549422-1415@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220717 SUMMARY:Long-term Outcomes and Complications from Endoscopic Versus Microsc opic Transsphenoidal Surgery for Cushing’s Disease – a 15-year Single-cent er Study RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20250717;BYMONTHDAY=17 DESCRIPTION:Endoscopic endonasal surgery is the main transsphenoidal approa ch for pituitary surgery in many centers\, however few studies compare the endoscopic and microscopic surgical approach with regard to long-term fol low-up. This single-center study aimed to compare the two techniques over 15 years. Read more at https://cushings.invisionzone.com/topic/57189-long- term-outcomes-and-complications-from-endoscopic-versus-microscopic-transsp henoidal-surgery-for-cushing%E2%80%99s-disease-%E2%80%93-a-15-year-single- center-study/ X-ALT-DESC;FMTTYPE=text/html:Endoscopic endonasal surgery is the main tr anssphenoidal approach for pituitary surgery in many centers\, however few studies compare the endoscopic and microscopic surgical approach with reg ard to long-term follow-up. This single-center study aimed to compare the two techniques over 15 years.
CATEGORIES:Cushings UID:20220717T2144500Z-549422-1591@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220716 SUMMARY:MRI-negative Cushing’s Disease RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240716;BYMONTHDAY=16 DESCRIPTION:Cushing’s disease (CD) is among the most common etiologies of h ypercortisolism. Magnetic resonance imaging (MRI) is often utilized in the diagnosis of CD\, however\, up to 64% of adrenocorticotropic hormone (ACT H)-producing pituitary microadenomas are undetectable on MRI. We report 15 cases of MRI negative CD who underwent surgical resection utilizing a pur ely endoscopic endonasal approach. Read more at https://cushings.invisionz one.com/topic/57188-mri-negative-cushing’s-disease/ X-ALT-DESC;FMTTYPE=text/html:Cushing&rsquo\;s disease (CD) is among the most common etiologies of hypercortisolism. Magnetic resonance imaging (MR I) is often utilized in the diagnosis of CD\, however\, up to 64% of adren ocorticotropic hormone (ACTH)-producing pituitary microadenomas are undete ctable on MRI. We report 15 cases of MRI negative CD who underwent surgica l resection utilizing a purely endoscopic endonasal approach.
Read more at \;https://cushings.invis ionzone.com/topic/57188-mri-negative-cushing&rsquo\;s-disease/
CATEGORIES:Cushings UID:20220716T0953360Z-549422-1590@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220409 SUMMARY:Simultaneous Pituitary and Adrenal Adenomas in a Patient with Non A CTH Dependent Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240409;BYMONTHDAY=9 DESCRIPTION:A 37–year–old female presented with amenorrhea for the last yea r\, associated with weight gain. She had a moon face\, buffalo hump\, and central obesity. A 24-hour urine collection for cortisol was performed\, r evealing elevated cortisol. Cortisol level was non-suppressed after admini stering dexamethasone. MRI of the pituitary revealed a pituitary microaden oma\, and the CT scan of the abdomen with adrenal protocol revealed a left adrenal adenoma. Read more at https://cushings.invisionzone.com/topic/567 85-simultaneous-pituitary-and-adrenal-adenomas-in-a-patient-with-non-acth- dependent-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A 37&ndash\;year&ndash\;old female presente d with amenorrhea for the last year\, associated with weight gain. She had a moon face\, buffalo hump\, and central obesity. A 24-hour urine collect ion for cortisol was performed\, revealing elevated cortisol. Cortisol lev el was non-suppressed after administering dexamethasone. MRI of the pituit ary revealed a pituitary microadenoma\, and the CT scan of the abdomen wit h adrenal protocol revealed a left adrenal adenoma.
Read more at&n bsp\;https://cushings.invisionzone.com/topic/56785- simultaneous-pituitary-and-adrenal-adenomas-in-a-patient-with-non-acth-dep endent-cushing-syndrome/
CATEGORIES:Cushings UID:20220409T1338340Z-549422-1546@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220130 SUMMARY:Capillary Microarchitectural Changes in Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20230130;BYMONTHDAY=30 DESCRIPTION:Macrovascular alterations are prominent in Cushing’s syndrome ( CS). Microvascular abnormalities are yet to be established. This cross-sec tional observational study aimed to evaluate microvascular changes in nail fold capillaries and their association with disease status and carotid int ima-media thickness (CIMT) as a marker of atherosclerosis. Read more at ht tps://cushings.invisionzone.com/topic/56562-capillary-microarchitectural-c hanges-in-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Macrovascular alterations are prominent in Cushing&rsquo\;s syndrome (CS). Microvascular abnormalities are yet to be established. This cross-sectional observational study aimed to evaluate mi crovascular changes in nailfold capillaries and their association with dis ease status and carotid intima-media thickness (CIMT) as a marker of ather osclerosis.
Read more at \;https://cushings.invisionzone.com/topic/56562-capill ary-microarchitectural-changes-in-cushings-syndrome/
CATEGORIES:News Items UID:20220130T1800150Z-549422-1510@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20220515 SUMMARY:Glucocorticoid Withdrawal Syndrome following treatment of endogenou s Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20240515;BYMONTHDAY=15 DESCRIPTION:Literature regarding endogenous Cushing syndrome (CS) largely f ocuses on the challenges of diagnosis\, subtyping\, and treatment. The eni gmatic phenomenon of glucocorticoid withdrawal syndrome (GWS)\, due to rap id reduction in cortisol exposure following treatment of CS\, is less comm only discussed but also difficult to manage. We highlight the clinical app roach to navigating patients from GWS and adrenal insufficiency to full hy pothalamic-pituitary-adrenal (HPA) axis recovery. Read more at https://cus hings.invisionzone.com/topic/56903-glucocorticoid-withdrawal-syndrome-foll owing-treatment-of-endogenous-cushing-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Literature regarding endogenous Cushing syn drome (CS) largely focuses on the challenges of diagnosis\, subtyping\, an d treatment. The enigmatic phenomenon of glucocorticoid withdrawal syndrom e (GWS)\, due to rapid reduction in cortisol exposure following treatment of CS\, is less commonly discussed but also difficult to manage. We highli ght the clinical approach to navigating patients from GWS and adrenal insu fficiency to full hypothalamic-pituitary-adrenal (HPA) axis recovery.
Read more at \;https://cushings.invisionzone.com/topic/ 56903-glucocorticoid-withdrawal-syndrome-following-treatment-of-endogenous -cushing-syndrome/
CATEGORIES:Cushings UID:20220515T1147270Z-549422-1568@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250627 SUMMARY:Sterotherapeutics Announces First Patient Dosed in Phase 2 Clinical Trial Evaluating ST-002 for Cushing's Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270627;BYMONTHDAY=27 DESCRIPTION:A clinical-stage biopharmaceutical company focused on rare endo crine diseases\, announced that the first patient has been successfully do sed in its ongoing Phase 2 clinical trial evaluating ST-002 for the treatm ent of Cushing's Syndrome. https://cushings.invisionzone.com/topic/57846-s terotherapeutics-announces-first-patient-dosed-in-phase-2-clinical-trial-e valuating-st-002-for-cushings-syndrome/ X-ALT-DESC;FMTTYPE=text/html:A clinical-stage biopharmaceutical company focused on rare endocrine diseases\, announced that the first patient has been successfully dosed in its ongoing Phase 2 clinical trial evaluating S T-002 for the treatment of Cushing's Syndrome.
CATEGORIES:Cushings UID:20250627T0926460Z-549422-1909@localendar.com END:VEVENT BEGIN:VEVENT DTSTAMP:20260601T021019Z DTSTART;VALUE=DATE:20250524 SUMMARY:Changes in Clinical Features of Adrenal Cushing Syndrome RRULE:FREQ=MONTHLY;WKST=SU;UNTIL=20270524;BYMONTHDAY=24 DESCRIPTION:Adrenal Cushing syndrome (CS) has been rarely studied in recent years in Japan. This study aimed to investigate clinical characteristics and their changes over time in patients with adrenal CS. https://cushings. invisionzone.com/topic/57834-changes-in-clinical-features-of-adrenal-cushi ng-syndrome/ X-ALT-DESC;FMTTYPE=text/html:Adrenal Cushing syndrome (CS) has bee n rarely studied in recent years in Japan. This study aimed to investigate clinical characteristics and their changes over time in patients with adr enal CS.
CATEGORIES:Cushings UID:20250524T1147160Z-549422-1896@localendar.com END:VEVENT END:VCALENDAR